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Tips for SLEEPING WITH A FOLEY CATHETER and the night bag.
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- Опубликовано: 15 авг 2024
- For Catheter Peer Support - www.Maletenanc...
The positioning of the drainage bag tube, which is 14”, can be really bothersome and cause it to disconnect from the drainage bag while moving during sleep. See how best to place the tube and more options for a restful night's sleep.
Cheers, and wishing you great health. Tony
DISCLAIMER
Responses should be considered general in nature, and not specific to any one person; consequently, they are not to be construed as specific medical advice and do not create a doctor/patient relationship. For more specific advice unique to your particular situation, consult a local medical professional.
The hangar tip, plus all your tips have been lifesavers. This is the best series of videos we've found, and needed so much, at a time when even basic medical advice and help can be very difficult to access. Thank you so much.
I'm so glad the videos helped. I was so scared to post them, however, when I get a comment like yours, I'm really glad I did it.
Cheers, and wishing you great health
Just wanted to say I am young 32. Had to have Urethroplasty surgery done and in a catheter for a month. This video helped tremendously because it’s coming from someone who is actually going through this process. Thank you.
@eyedominate1257
You are so welcome and I'm sorry you have to deal with the archaic device. There was no one out there sharing what it's like to live with a catheter, so I thought let me try and help. It was scary AF to put my face out there on such a personal topic but it has been worth it knowing I'm helping in a small way.
I had mine for over 3 months and I hope never to need another but continue to support. May I ask what was your diagnosis that led to catheter use?
Cheers and sending you positive energy. Tony
@@maletenance stricture near my sphincter that slowly led to scar tissue building up and was nearly closed. Peeing was extremely painful. So this was a must be done surgery. A common cause could of been some kind of kick under the groin that could linger for years before even becoming an issue. I have no recollection of it tho. But here I am and as of writing this now 16 days to go. Surgery is a 95% success rate so that is hopeful.
Thank you for sharing. I truly have my fingers crossed that everything works out for you. It's amazing the things that can happen or that have such an impact on something as simple as taking a pee that can change our lives so dramatically. Hang in there. Tony
eye dominate, I am of the same age as you and yesterday underwent a urethrotomy due to a urethra stircture with a catheter in place for one month. It would be good to speak to you more to exchange any advice if youre okay with that?
@@nonotnasty8965 I've included his YT @eyedominate1257 so hopefully, he'll get the message. I'm not familiar with the urethrotomy but if have any questions I can answer regarding living with the catheter, I'd be happy to help. Hang in there.
Thank you sir 👍. Helpful for me, and I've had to wear a condom cath at night (leg bag during the day) for 5+ years now; combat wounds from Iraq. I really appreciate it
Hi Matt, I'm so happy to help....that's why I started making these video's. Thank you for your service sir.
You have no idea how many lives you have changed with your video's. The first night, I spent several attempts trying to find a way to hang the night bag and ended up hooking it on the side of the bed frame with a spring clamp which put it much lower than I wanted it because that shortened the hose by almost a foot. I then spent one of the worst nights ever trying to sleep with the hose wrapped over my right leg which meant I could only sleep on my right side, (I always sleep on my left side, on the left side of the bed when facing the pillows). Needless to say I didn't sleep at all that night and hated the whole idea of a foley and was depressed just thinking about the next night. Then I saw your video's and everything changed for the better. Your coat hanger trick really is genius and works beautifully. After I put the hanger between the mattress and the box spring, I hooked the night bag on, and pushed the hanger way in to ensure that the bag couldn't come unhooked. Then I put the hose between my legs like you suggested and that allowed me to sleep on either side because I now had more hose available and when I moved the hose just followed me no matter what side I slept on. That second night I slept normal because of you. Thank you so much for taking the time to make these video's, you have changed more lives that you know.
I have no words except to say thank you for your very kind, supportive words. I am so happy that the videos have helped you and so many others. It is very humbling.
Cheers, and wishing you and your loved ones great health.
ps. If you ever have any questions, please don't hesitate to ask.
Totally agree. This trick is a game changer. I wish urologists and their teams could watch these too.
@@rmgpdoc I agree. It would help so many with having to deal with a catheter if they were guided here (I'm not giving medical advice) because you truly have no idea what's in store unless you've had one yourself. I had a great urologist, great nurses, and a fantastic surgical team and they took care of me medically but they could not help me with navigating my new normal. I asked every one of them I encountered if they had ever had a catheter and everyone shook their head no. I was f%#$ing lost!
So all this to say I'm really happy I was brave and stopped worrying about being the catheter guy and made the videos.
Man, I blab a lot 😆
Cheers
I hope you see this comment I just want to thank you so much. Came home with a Foley it'll be a few days I don't know how you handled it so long. Your suggestions really help I appreciate it more than you know
Hi Michigan Hiker, I see your comment and I am pleased that you found the videos and that they are helping. I'm sorry you have to deal with a catheter, it can be miserable. I was able to get through it because I had no choice but to hunker down and deal with it all....one minute, one hour, one day at a time. That's all you can do. Now don't get me wrong, I don't have some great resolve, some super mind-over-body shit...there were moments I was a $%#@ mess curled up on the bathroom floor in the fetal position. So I put on my big boy diapers and kept it moving with hope and gratitude for the resources and incredible doctors and nurses that sometime in the near I would be ok again. You'll be alright and if you have any questions, or need to talk, please feel free to reach out. My email is on the home page. Cheers mate and wishing you great health. Tony
Can't wait to sleep without this, but in the meantime, thanks for much for the tips and info! This was really useful.
I'm so glad the tips helped.
Wishing you great health.
Tony
Thank heaven for you and your willingness to educate and share your experiences. These videos are very helpful in helping us get through my husband's journey.
Hi, it is my absolute pleasure to help others who find themselves having to use a catheter. It is a difficult time physically, mentally, and emotionally for not only the person having to use a catheter but for their loved ones as well. I'm sorry your husband has to go through this, however, your support, patience, and love will make it more manageable.
If you or he has any questions that I did not cover in the videos.....I think there are 40-50....please feel free to reach out.I respond to everyone.
Cheers, and wishing you and your husband great health. Tony
Thank you! I just got one early this morning due to a structure. Good information !
I'm glad to help out. Good luck with everything.
Agree about the between legs. But all the instructions say to leave leg bag connected, and connect the night bag to its output (and open the tap). Also free the lower end of leg bag. Cheers.
This changed my life using the hanger
plus tube placement. Thank you so
very much.
Hi Sharon, You are so welcome and I'm glad the lil trick is making a difference. We need all the helpful tricks and support we can get while having a catheter.
Cheers, and wishing you and your loved ones great health☺
I do not disconnect the leg bag at night. I take a small piece of tubing and connect it from the leg bag drain to the inlet of the night bag. That way it never pulls. I also put the night bag in a 5-gallon plastic Home Depot bucket. That way if I want to move around at night, I just pick up the bucket and walk away. This method also reduces the chance of bacteria getting into the catheter because you never touch it.
Great tip!
Hello May I request for a picture of the leg bag attached to night bag set up please?
Thanks for this.... Today my 1st time,im hella scared,and it sucks having this in me,again thank you
You are so welcome. It's seriously anxiety-inducing for sure. It's not easy and it's a whole new world but be brave. Can I ask what was your diagnosis that has you using a catheter? Also, feel free to ask me anything that I may not cover in the videos. I'm all about supporting anyone that's going through catheter use. I've talked to so many people cause no one else understands unless they've been there.
Cheers mate and wishing you well.
@@maletenance woke up on Saturday morning couldn't urinate drip drip waited till monday to see doc had over s liter of urine in me.... Over larged prostate pushing up my bladder and uretha ... Now i have this crap in me.... Thanks for asking
@@franku211rc Sounds just like what happened to me. I was eventually diagnosed with BPH. Prior to that, I had my first catheter inserted at the ER. It took seven tries before it went in (pure hell) and like you, over a liter of urine came out. I've never felt such relief in my life. That's when the rest of my journey began with that archaic device.
I hope the rest of the videos help you including getting your head on straight.....it takes some mental gymnastics to get through it. Hang in there bud and I'm available if you ever want to talk. Cheers.ruclips.net/video/pUmQ0_N-UW0/видео.html
Just received medline night bags in mail. of course all through research, no help from the ER. Going to try switching leg bag to night bag tonight and try the hangar tip. Last few nights I slept sitting on couch as to avoid laying down with leg bag. Up three times to drain bag. Im super careful with hand washing and alcohol wipes etc etc so even the bag draining takes time. hoping the night bag will enable a better sleep. i think after a few days most of us understand the mechanics and sterile aspect but i feel like im nervous all the time waiting for something to happen like a bag to not fill or spring a leak. went out for first time today by car to get other supplies and worry the bag will break. cleanup in aisle 3. good luck to all. once again, tony, thanks for the valuable info.
You are so welcome! Good to see you haven't lost your sense of humor...."clean up in aisle 3" LOL
Your videos have been very helpful for me as a beginner.
I'm so pleased that the videos have offered you some help. It's not easy adapting to life with a catheter but it is doable. If you have any questions please feel free to ask and I will do my best from my personal experience to answer.
Cheers, and wishing you great health. Tony
Bless you for taking the time to put together this great information. I got a brief once-through from the nurse on how to attach the catheter and one page of instructions that are no help. I'm watching all of your videos. You are so kind to do this.
I don't know how I missed your wonderful comments. Thank you. It means so much to me that the videos helped. I was so scared to put them out there but I knew they would help cause no one was talking about how to live with a catheter. It's put it in and you're on your own. So to get such a kind message further confirms I did the right thing.
How are you doing? Are you still using a catheter? May I ask what was the diagnosis that you had and your age? It'll help me with the data and statistics I am putting together to become and advocate for mens health in particularly men's urinary and reproductive health. You can email me personally if you'd prefer a private message. Tony.alcindor@maletenance.com
Cheers and wishing you great health.
@@maletenance I'm almost 69 years old. I'm still using catheters 5-6 times a day, about 5 months now I think. I've switched from the Foley to the intermittent ones. Unbeknownst to me, I had been retaining urine in my bladder for a long time. When my primary care dr discovered it, they drained 3.5 liters from me. My prostate is enlarged, but not that much. My problem is that my bladder is so stretched that it won't push the urine out. I'm going in for some tests and hope there is a procedure that might help me. Otherwise, I'm probably going to be using the catheters for the rest of my life - or until some other procedure is developed. I'm still learning how to best use them and have adjusted mentally to the situation. I've found others like yourself online who are willing to help others with this knowledge. The others I've found are on online forums. It really helps to find others who are dealing with this. I really don't understand why the healthcare providers don't provide more in-depth information on this.
Anyway Tony, thank you again so much. When I found your videos I was pretty clueless and it was very stressful. You're a brave and kind man to share this with others.
@@edsahara You are too kind...again. On to the 3.5 liters......wow!!!!! That's an insane amount of fluid. Didn't it cause you pain? I was doubled over at just over a liter. I really hope there is a solution for you with the bladder. Is there such a thing as a bladder lypo or whats that other thing they do to a stomach so you won't eat? Anyhow, I had the option of an intermittent catheter but I just could not bring myself to do it on my own. Glad to hear that you have adjusted mentally. I covered it in one of the videos that having a catheter to void urine is not only physical but also mental and emotional. It's not easy but once you have you get there it's easier to deal with. Mental gymnastics is what I called it. I do agree that the healthcare industry should provide more information cause it's a lot to digest. However, I guess, if you've never had to use a catheter you would not be able to provide any practical information on how to live with one. I hope that maybe doctors would direct people here as I've tried my best to shed light on this subject.
Anyhow, thank you for sharing. Keep me posted on how you're doing.
I wish you continued strength.
Cheers
Tony
Great advice. I used to tape up where the tubes joined together because I was always worried about them coming apart.
Hi Mike, Glad the video helped and you did what you had to do to get through it. It's terrible to wake up in a pool of pee. Just adds to an already stressful, anxiety inducing situation and if a lil tape gives you some peace of mind, more power to you. Cheer's, Tony
I picked up a second velcro strap that goes around my upper thigh, it provides a second secure point so there's zero tugging in the middle of the night from movement. See Amazon, HAMUHA Catheter Legband. I'd be nervous that releasing the tubing they way demonstrated could cause a problem. Don't want to critic the author here, greatly appreciate his doing these.
Thank you for the tip Doctor! Helped tremendously.
Great to hear!
You are appreciated!
Thanks Mike. I hope the video's help. Wishing you great health
Thanks for these tips. On Wed June 4th, I had a prostate biopsy. Biggest mistake in my life as zero warning on the dangers of that particular procedure and after effects. After the procedure I was taken to a room to urinate and the first thing that came out was blood. No one told me that could happen. Given antibiotics go home and slept the night. Two days later, unbenownst to me I was experiencing sepsis shock but thought it was just the shivers. They went away so I ignored it. Saturday morning full blown sepsis but was unconcious so didn't realize. I eventually heard my my wife say "Don't get up. Stay down." She called 911 and within 5 minutes first responder showed up and apparently my blood pressure was nil. Ambulance rushed me to hospital where I don't remember much. I had ecoli in my blood, I had blood clots in my stool and eventually I had a catheter hooked up as the scan was showing 850 milliters of fluid. I was off and on the catheter when in the hospital and then the fluids built up again so much the the in/out catheter couldn't be used due to blood clots in the penis, so they hooked up a Foley bag with larger tubes and whoosh blood clots and urine came rushing out. I was hooked up this way for about 10 days and then was removed when it showed steady clear urine. That lasted for about 2 days when I had to be hooked up again. Now I am home with the Foley bag and it's amazing how many little things have helped make it more comfortable from your videos.
I even had a shower today and cut my hair.
Thanks and all the best
OMG!!!! I read your message with my mouth hanging open. I can't believe what you went through. It's just awful!
This is a procedure that's supposed to help you avoid sickness/disease and they made you so ill. I'm so sorry. I've never known that getting this type of biopsy could go so wrong. It's a warning to all. I might have to make a video about it with all the stats, pros and cons, and what to possibly expect.
Glad to read that you are showering and even got a haircut. Doing anything that resembles normalcy is, I think, super important in helping to get through it all. I am sorry you have to deal with the archaic torture device, however, I'm really glad the videos have helped you navigate your time with it. How much longer do you have to have the catheter? I hope not much longer.
Hang in there. Cheers. Tony
Thanks Tony. Urologist will be calling today. Keep you updated.
Catheter is out!!
@@BUTLERNIXON Congratulations! This is great news!
I’m sorry you went through that I’ve had septic shock myself. I walked into the ED in septic shock from a perforated gastric ulcer. It sure changed my life I’m alive but…. prostate biopsies are awful and I sure hope you didn’t have cancer.
Thank you so much
You are so very welcome. I wish you and your loved ones great health.
Many thx m. V helpful and straightforward
Hi Phil, thank you for the kind words. I'm really glad you found the videos helpful.
Cheers, and wishing you great health.
Quick question Phil - How did you come across the videos?
Thank you so much👍🏿
You are so welcome. Wishing you great health.
I hung a bag on: the handle an open drawer , and put a small tub under it in case of a leak.
Very MacGyver! Necessity is the mother of invention.
Hello, I've watched a couple of your videos as I've had a catheter put in for the first time in my life. I've found them very helpful and am extremely appreciative. I've been experiencing pain and a burning sensation on and off since my catheter was put in. I chocked this up to being a first timer and the fact that there was a blockage in my urethra they had to pass through. Now that theres some context. Here is my question. I'm 20 and have been having erections in my sleep that cause a lot of pain with the catheter. It causes an intense burning sensation. Do you know if this is normal? Or should I seek out medical attention? Once again, I appreciate you making your videos for those of us who have no clue how to navigate life with a catheter in.
Hi, First of all, I am so sorry that you have to deal with a catheter. Secondly, I am so glad that the videos shed some light on an otherwise unspoken topic. To answer your question about the burning sensation: it could be, in my experience, one of two things. 1) it could be that your urethra is irritated due to the catheter's presence and the in and out friction from moving. 2) You might possibly have a UTI. I would defiantly see your urologist to see if it's a UTI as you do not want to leave it untreated and UTIs almost go hand in hand with having a catheter.
I hope that helps and if you have any other questions please feel free to ask.
What led to you having to use a catheter?
Cheers mate. Tony
Oh wow amazing . Could never be comfortable always woke up to tugging me badly
yeah, that was me until I found a way to put tubes. It was not always perfect but I got more full nights sleep than not. I mean I had no choice cause that thing was in me for over 3 months. Necessity is the mother of invention. I hope this message finds you well and healthy and living without a catheter. Cheers
Thank you
You are very welcome. Glad that the videos have helped. Tony
Good ideas
Thank you Steve. I hope the videos help....even in a small way. May I ask how you came to having a catheter and your age? You're welcome to message me at tony.alcindor@maletenance.com. I'm just trying to see if there is any correlations.
If not I totally understand......it's not easy to talk about and privacy, etc.
In the mean time...cheers and wishing you great health.
How about if you are sideward sleeper.. Like me
I'm a side sleeper too.
thanks for the videos, did you ever have issues with the night bag tube twisting on you, is there a way to avoid that
Firstly, you are so very welcome. Secondly, what I did when the tube twisted on the night bag, which only happened once or twice, I would hold the catheter near where it went into my body and then flip the bag over until it un-twisted. I don't know if it's avoidable.
I'm asking for a cousin of mine who lives in England, I'm guessing a foley catheter is the same thing as a Suprapubic catheter(inserted through the lower abdomen rather than the urethra) and he struggles to sleep in peace as switching positions reduces the amount of urine flowing into the night drainage bag, he normally places the bag on a stand on the left bed side. My question is can he place the night bag by his feet when he's sleeping like on the bed? Or is that bad? Please let me know.
Hi Shaun, so great of you to support your cousin.
There is a difference between a Foley catheter and a suprapubic one. The Foley or also known as an indwelling catheter is inserted in through the penis until it reaches the bladder.
As for the best place to put the night bag (simple hanger trick) I did a video on it and included some tips on how to get a more comfortable night's sleep without worrying about leaking, the tube separating from the bag, etc.
There are a ton of videos I did because I had to learn to live with an indwelling for months and there was no information.
Share the RUclips with him as I believe it will make life a little easier.
Cheers, and wishing you and him great health. Tony
ruclips.net/video/5ifGVv5swNs/видео.html
Thanks for the video. Any tips for people wearing long pants to bed instead of shorts? i.e. where would the long tube go down inside the pant leg or loop up over the waistband to hang off the bed?
Bad idea to wear long pants
Sorry fo the delayed response. If its cold and you had to wear long pants/pj/s it would probably be best to put the tube through the fly opening. I would assume less tugging and likelihood of it be becoming detached from you or the bag. Just and idea. Wishing you great health.
I have to have a catheter on for only a week but it is so uncomfortable and painful, what types of medicines can help with pain, also is it normal for my pee to look like blood or have a red-ish color
Sorry for my delayed response....been traveling. Yeah, there's not much to do except try not to move around as much. I took OTC Tylenol as directed by my doctor. I hope you found the other vid's about sitting, showering, sleeping
As for the color of the pee.....watch this vid
ruclips.net/video/dYbSGa4ouYo/видео.html
Hii, My Dad got a catheter today as he couldn't pass urine n stool, we've kept the bag on the bed near his legs.Me n my mom will stay awake the full night, is it necessary to stay up all night to notice the catheter ? It'll be attached for some days.
Hi, You don't have to stay up all night if you have the right products which there are many. Regarding the urinary catheter, I can only speak to an indwelling catheter. Once the night bag is attached, which is much larger than the day leg bag, there should be no problems of it over-flowing, detaching, or getting too full. It is designed to handle a nights worth or urine. With the correct placement, as I showed in the video it should not become detached from the bag during the night. I would suggest as an additional precaution a peepee pad to protect the mattress....just in case. Keep an eye on the bag as there might be some residual blood, blood clots or different colored urine. Most is normal however if there is pain, fever and or pain contact the urologist. As for the stool issue if there is a worry of an accident, adult diapers would be the best solution. On another note, it is not easy for anyone, particularly men, to go through any kind of incontinence or issues below the waist. Be kind, patient and thoughtful and you'll all get through it.
Cheers.
The Maletenance RUclips Channel does not contain medical advice.
The presenter/s are not doctors, and the material is intended for education, Entertainment and information.
The purpose of the video/s is not to give medical advice.
These videos do not substitute for professional medical advice, diagnosis or treatment.
Tony I wanted to ask if it gets easier having a catheter fitted over time? My catheter was fitted yesterday and I'm so anxious about any more I make whether it be sitting or walking because I sometimes feel a small sensation when the catheter tube is tugged ever so slightly. Will I always feel this sensation throughout my one month catherization or will that feeling eventually numb out?
Hi, in my experience of living with a catheter for months, it always does that. The only difference is you learn how to manage it. Due to the design of the catheter, any movement causes it to move slightly in and out which can cause small sensations all the way to it being painful from friction. Some people get lucky and it goes away but due to its location at a very sensitive part of the body, it's not many. I did everything slower and with intention. Walking slower, sitting slower, etc. I've done some videos on wearing the right underwear to hygiene, to positioning the bag if you're using a Foley setup. I'm actually on the home stretch of patenting an improved catheter that will eliminate about 80% of the movement allowing range of motion thereby reducing pain in order to perform the activities of daily living. I wish they were already available....it would help so many people. If you have any more questions please free to ask or email me at tony.alcindor@gmail.com Hang in there.
I can’t wait for you to get it finalized. These things are so painful even though mines is temporary, I feel for people who have to use these things long term. They hurt and I thank God that it’s over!
@@taurellbutts3205 It can be such a miserable and debilitating time. Short or long-term it is an archaic torture device. The improvements made since it was invented don't consider the user. This new one would change that. Cheers, and wishing you great health.
i was diagnosed with chronic cystitis a urologist told me i can use catheres to sleep better at night
I had to google what chronic cystitis is....I'm sorry you have to deal with it.
@@maletenance yeah and that started when i was 25 im now 30
damn!!! that's really young. Is this a lifetime thing?
@@maletenance i heard of a procedure which is to allow inside skkin of bladder to grow back by cauterizing it
Sounds like it's promising and worth researching more. There have been so many advancements.
Hi. First night here. Will have the cath about a week or 2. does the bag have to be hooked when sleeping even if I have it in a waste basket with a clean bag?
Hey Glenn, You should be fine if the tube on the night bag is long enough so it does not tug. You don't want it to separate during the night and make a mess. My bed has risers on it so it would not have reached comfortably to be on the floor. How're you doing? It's been a few days.
@@maletenance It is going ok. I haven't tried putting it under my leg. I do kind of sleep on the side and the dog behind me so I don't roll over that way at least.. I don't have a Syringe so I have to be really careful when it comes to the bags.. the Hospital didn't give me one and also no information really besides how to put the bags on. I don't drive and the local pharmacies didn't have Syringes. bleh :)
@@GlennTheSadMarinersFan Hey Glen, glad to hear that it's going ok. I'm sorry to hear that you have to go through this ordeal. It's not easy and no one understands unless they've gone through it. I do hope that the videos help. The hospitals didn't provide me with any additional supplies either or information, which I think is terrible. At least give an overnight bag until further treatment from a urologist. That's the reason I started doing the videos. Is it possible to order supplies online since you don't drive or have them delivered. You're welcome to email me if you have any questions. I'm not a doctor but can certainly relate to having had to use a catheter for months. You hang in there and I wish you great health. Tony
I don't think these tips would apply to my set-up, which I think is fairly common. During the day my catheter drains into a 'leg bag', which is strapped to the leg around the knee level. This would not have the capacity for a full night's urine, so at night a 'night bag' is attached below the leg bag, and the valve of the leg bag is opened to allow urine to drain into the night bag, which is held by a stand next to the bed. With this set up it would not be possible to place the drainage tube in the way suggested in the video. This isn't a criticism, but just to point out that there are various different configurations.
Hey David, I don't take it as criticism at all....not with all the positive comments. I know I did something brave and courageous to share something so personal in order to start a conversation, share knowledge, and lend support. I only know what I went through with the tools I had. You got another way that's great! Share it!!! People who use your setup would benefit, that's what this is all about....supporting people when so little info is available.
Cheers, and wishing you great health
That is exactly the way I was told by the hospital nurses, and the community nurses, I've always assumed that was the only way to do it. Just goes to show.
@@ronnieneo Hi Ronnie, I could not have gotten through my diagnosis and surgery without my doctor, nurses, and team of medical professionals. However, when it came to practical living day-to-day info on how to live with a catheter for months, none of them had ever had a catheter personally. Not to say that you have to go through something to have knowledge about it but if my adjusting how I did things was not causing damage, or obstructing my recovery, I needed to find ways to get me through it all. Here's a quick example of adjusting. Cheers, and wishing you great health.T
ruclips.net/video/PMXSkhrnyC4/видео.html
@@maletenance exactly, I had no idea what I was doing with regards to practical everyday living, I have been scouring the internet for answers since December when I was discharged from hospital, which is why you are doing a great service to us all sharing your experiences. Can't emphasize enough how much I appreciate your time and effort in this subject, many thanks.
@@ronnieneo Ronnie, you inspire me to keep making videos. Your comment is exactly why I started in the first place. I'm humbled that so many people find what I share useful.
What was the diagnosis that got you here and also how did you finally find the videos? If you were discharged in December are you just finding me now? If so I need to work on the algorithms and search words as I could be helping more people by making the channel easier to find. How are you doing now?
Hey Tony ill be having Urethraplasty tomm and imna side sleeper mostly sleeping on my right side or both sides if i do switch and move if the bag i have doesnt reach my feet how far off to the side below the waist should i put the bag
@andrewzy Hi Andrew, I always placed the bag well below my hip if I had it placed on the bed.
Now I know that this is not advised by many doctors/urologists as the urine could flow backwards which would present a problem. I fortunately did not have any issues but I did switch between having it on the bed and hooking the bag to the side of the bed.
Also, you may want to get the larger night bag with a longer tube. I hope that helps.
Good luck with your procedure and if you have any more questions feel free to reach out. Cheers, and wishing you great health. Tony
@@maletenance thank you. Surgery went well but they sent me home without my meds they ordered so kinda mad about that. I had Urethraplasty with mouth graft. So im sore in 3 diff places . I do have the big bag and the some what long tube i think id be ok
@@andrewzy Holy smokes....I just watched a vid on the procedure you had! WOW! Glad to hear you're on the other side. I was sore in three places also after my prostatectomy. I woke up with a much longer incision on my stomach, a suprapubic catheter, and a blood drain. Oh, and I still had the urinary catheter. Today I'm more than fine. Right now you need lots of rest and do nothing strenuous so you can heal. Wishing you a speedy recovery.
@@maletenance yeah i feel like i got rocked in the jaw by mike Tyson. Sore at the incision site other than that its going ok. Except takint all the damn pills
Just checkin on you....how're you doin?
First night tonight, I don't understand why my Dr didn't take sleeping into account? Mine is no way designed to go much further than my leg😮.
Unfortunately and from the hundreds and hundreds of comments I get here, not much if any information is provided on how to navigate living with a catheter. Pop it in and away you go seems to be the norm! The ultimate insult to injury.
That said, I'm sorry you have to deal with a catheter but I'm glad you found the channel and my hope is it provides some information to get you through. If you have any questions please feel free to email me at Tony.alcindor@Maletenance.com.
Cheers, Tony
ps. Get the urinary night bag with a long tube as soon as you can.
@@maletenance Drs overall suck these days when it comes to information. Thank you!
As a nurse, we'd never put the tube under the back of the leg, due to causing a sore.
Thank you for your comment. If you'd be so kind to provide context on the situation further that would cause a sore it would be helpful. Is the patient bed ridden or immobile and how long would it take to cause this? Thanks in advance.
Cheers and wishing you great health.
I use a cotton pad to put behind leg. 👍❤️
What do you do for irritation
If you're talking about the irritation to the end of your privates, you can take extra care with your hygiene. Here's a vid on that. If that's not what you meant regarding irritation, be more specific so I can hopefully give some specific guidance.
ruclips.net/video/g8Y-BWKL0hI/видео.html
@@maletenance t
Wondering if there are night stands available to simply place by the bed to support the night bag. Can’t believe there are not many such options. I don’t see them anywhere on Amazon or anywhere else.
@Patrick-uf1cq Here's the thing Patrick.....no one talks so nothing changes. The doctors job is to get you off of using a catheter so they are not focussed on the needs required to accomplish the simple activities of daily living. Probably why the damn thing hasn't changed much since it was invented. It's kind of up to those who have to use a catheter to come up with creative/innovative ways to live with it. That's what I did...I recently got a patent for an improved indwelling catheter that reduces the pain caused by moving. I have no back ground in the medical field but I like you had to use the archaic torture device.
Maybe use a dinner tray or footstool? A tennis racket with a handle wedged between the mattress would make a decent table.
Good luck and if you have any other questions please feel to ask.
Cheers Tony
@@maletenance I think I found a good solution for night bag ….one of the many floor magazine racks …lots of different styles available not expensive ( or doesn’t have to be) they look perfect for this task..can even stand them in a plastic tray if worried about leakage. Lots on Facebook marketplace for next to nothing and many people already have them. Keep us all informed on your patent and product progress and thanks for replying to all my queries.
@Patrick-uf1cq No problem.....happy to answer all your enquires.
The floor magazine racks is a great idea! Hey Necessity is the mother of invention.
As for the Patent - the next step is acquisition by medical manufacturing company. I have no desire to produce/distribute myself. I'll leave that to the experts. I've already had one meeting. It's just a matter of time. I will say that it'll take at least a year after the patent is sold before it'll be available.
I'm in the process of editing a video about how I got the patent and how learning about something new is great for the mind as we age. Should be up soon and i hope people find it inspiring.
@@maletenancelook forward to the video. It’s great that you keep replying to people who watch your videos because it is an ongoing and significant experience for people to be catheterized. By replying it keeps people feeling your channel is timely and open to new ideas and present experiences people are going through. Like you I hope health professionals also see this channel and realize how relatively simple it would be make this a much less difficult and medically costly procedure with some clear compassionate informative info.
I really enjoy replying for all the reasons you stated and it makes me proud and humbled to be able to help. It also helps me and gives me purpose. I feel like I'm helping my fellow man in a small way.
I also started offering peer support by phone and Zoom. It started because so many people had anxiety and were stressed and needed immediate information when they got a catheter and would be asking a ton of questions, especially the first timers.
I could feel their stress when I read their email and had to reach out and offer immediate personal communication, instead of them going through all the videos to find answers.
I found also, that a lot of the time people just desperately wanted to talk to someone who had been through a similar experience. Due in part to geography, having a urinary catheter is not an easy topic to share with family and friends. I spoke to one gentleman who only had women around him - his wife and four daughters - and they would rightfully ask about his catheter, etc and he found it destabilizing to constantly be talking about his privates. He was relived to speak with me. It's been amazing to give that to someone.
Anyhow, I do hope the health professionals eventually see this as a tool at some point. I don't have all the answers but I know I'm a good starting point to help someone during a difficult time.
Sorry for the long message.....my coffee kicked in. LOL!
Don’t have one!!!!
No night bag?
@@maletenance no catheter
oh?
Uh