Dude, can't thank you enough for having the motivation and chops to make these videos. Whatever the good points of healthcare are, quality time, service and good outpatient patient home care maintenance information is not always among them, nor does customer service improve as the prices go up. Your vids are not only helpful, but if one is not used to a tube hanging out of a most sensitive part of their body, they also can have a fear calming effect. Thanks again brother.
@tompassaretti6645 Awwww man!!! Thank you for the kind words of support. It means a great deal to me that I helped you...even a little bit. Like you said - there is limited information and support provided at all levels, which to me is the true definition of adding insult to injury. I never thought in a million years I would have the nerve to do these types of videos on a topic that is so private, however, becoming a peer support for the tens of thousands of people the videos have helped I could not be more proud and humbled. Cheers and wishing you and your loved ones great health. Tony
I had only had one nurse talk to me about cleaning my catheter. He was extremely helpful, but this was extremely in depth. I truly appreciate it, I really don’t want a uti 😢
You're very welcome. I've coined a terrible term for what can happen down there from the bodies natural discharge that doesn't go through the catheter.....sandpaper willy. I'm sorry but it does adequately describe it. Your nurse did better than I and most when it came to getting any info on keeping the catheter clean. So many people just had it put in....often their first was in the ER, like me....and sent home with no information or for that matter with any supplies. It's insane and I'm working on changing it, so that the urologists/nurses provide basic information. Too many people will have to experience having a catheter for a variety of medical reasons and not getting any information on how to live with it, is like adding insult to injury. As for the UTI, I am sorry to say, that if you have a catheter for any length of time, a UTI has a higher risk of developing. I think I had two in three months. I hope hope hope it won't happen to you. Fingers crossed.
6/1/24@11:25am Hey, Tony, Thank you so much for your videos!!! I’m a 70 year old guy and just got my prostate removed on Thursday. After getting home and resting for a few hours and my bag started getting full, it hit me that I needed to start learning this whole catheter routine. Reading the instructions on the bag is okay, but I said to myself, “I wonder if someone has made a RUclips video about this?” Thank you so much for taking the time to share your experiences. The only thing I would have you add is a little trigger warning that some viewers may chuckle at your great sense of humor, so be prepared for a little pain from laughing. Maybe a little video on how to ease the pain when you’re laughing. Although a bit painful, laughter was good a good medicine to ease into this temporary change in lifestyle. Thank you again!!! Garth
This is very important information, thanks for sharing. Not gross at all, we talk about male plumbing. I just checked for build up on my catheter and cleaned. Your video is helping me hopefully avoiding an infection. This is not gross, your are helping me, and all of us watching this.
Hi Tomi, I'm really happy this video helped and your right it's not gross, it's actually quite natural. I guess maybe it was my headspace at the time of making the video. Anyhow, I hope all the other videos are as useful to you. Knowing I am making a small difference for people going through this is humbling. Cheers, and wishing you great health. Tony
You rock! This is so right on. Regular cleaning 2 or more times a day to eliminate catheter "crust" Soap and water or Perineal Cleaner or best of all Foley Wipes!!!
Hi Jay, thanks for the positive comment, and thank you for the suggestions. I didn't even know there was such a thing as Foley wipes. I may have to do a follow-up video with this new information as it will help so many others. I was so scared to put this video out there initially because it was so personal but I'm glad I did. Cheers, and wishing you and your loved ones great health. Tony ps. How are you doing? What was your diagnosis that led to catheter use?
I got a catheter put in me yesterday. By far one of the most traumatic things I've ever been through. Basically they got it in after four attempts and said have a good day. Your content really helps and I greatly appreciate it.
Awww man I feel you with the four attempts to get it in then send you out with no information. Pure BS! It took them seven tries in the ER before they got my first one in. Then they left me with the the billing lady. No nothing about how to take care of myself while I searched for a urologist. I think I may have a lil residual PTSD but I'm working on it. Anyhow, I am really glad that you found the videos helpful. Makes me proud to know I am helping my fellow man in a small way. How're you doing with it all? Hows your mental and emotional state.....you coping ok? If you have any questions, feel free to email me and I'd be happy to help in any way I can. I've spoken to tons of people on the phone and I know its been very helpful to speak with someone thats been there. It's like peer support. Hang in there. Cheers Tony
Tony, you are doing a great job of giving people that heads-up info. Many people leave the hospital and are just "dazed" at what happend to them. They get home and are clueless as to what to do. You put an honest face and true caring for others in this position.
Hi Rod, thank you so much for the kind words. I know that feeling of being "dazed" all too well. I was dazed, confused, and a lil depressed to be honest. I actually felt broken.....less than. I had no information on how to live with a giant straw sticking out of my privates. But I had to dig deep, get my mind right and figure some shit out. That's what prompted the making of the videos. I decided to share what I had learned from first-hand experience in the hopes it would help even one person and it seems to be doing just that, which makes me happy. Wishing you great health. Tony
Thank you so much for your series of videos. They remove much of the fear and apprehension guys can get when they are told they will be getting one after their prostate removal.
Robert, you are so welcome. I'm really glad that you found the videos helpful. I had a prostatectomy and will post those videos in a coupla of weeks about the pre, time during the hospital, and post-recovery. It was a journey, however, I am happy to report I am healthy. How are you doing? What's going on with your health? Not sure if you had the surgery yet but if you wanna talk with someone who went through it email me and we can set up a time. I've talked with quite a few guys and it's been great. In the meantime wishing you great health. Cheers Tony
@@maletenance This Monday, (6-27) I'm having a prostate biopsy. The results of which will determine the course of action. One choice is a prostatectomy, with its associated Foley recovery. Your video series have been most helpful in giving me a preview on what follows. [The medical personnel will probably do a "quick and dirty" (no pun intended) post-op description of how to handle a Foley. Your videos will fill in the omissions.]
@ritawhite6960 Hi Rita, I am so so glad that you found the videos helpful. I am working on getting doctors and nurses to recommend them as non-medical peer support. I have received thousands of comments stating exactly what you say......there is not enough information provided to the patient or caregiver. This has to change. My hat is off to you for doing the research to help your husband. Take care of yourself too. Cheers, Tony
I had a Urethroplasty on May 2, 2024 in Denver. I have had the catheter in now for 2 weeks and nobody in the Urologist’s office told me anything or how bad the pain was going to be for 4 weeks. Thank you so very much for your videos and helpful information. I have cried so many times in the course of this process. 4:51
What's up Big D. I'm so sorry that you are having a rough time with the catheter. It is unfortunately a necessary evil. I'm glad the videos have helped you. I am always amazed and shocked that again no information was provided. What is wrong with these offices?! Some simple information would save people so much time, pain, anxiety, and tears. I've been there. How are you doing now? Are you managing any better? Please feel free to reach out directly if you have any questions. Tony.alcindor@Maletenance.com In the meantime hang in there. Cheers, Tony
Thank you very much. I have now also started with a catheter. feel like life is over but see so many people who manage this. It hits me hard. But then it's people like you who help us. Thanks a lot keep these videos coming
Hi and welcome to the club you never wanted to be a part of, but know this you are not alone. I know that feeling of "life is over" all too well. I've been there and had to have some real heart-to-heart conversations with myself to get through it all. It is tough and requires some serious mental gymnastics to get through it but you can as so many of us have. I know I went through a period of loss and that my old life was over. I also asked why me? However once, stopped asking why me and started realizing it was just my turn, because I'm not special why should I be immune from a health crisis. I realized that there would be life after everything, including my prostatectomy surgery. In a weird and wonderful way, it has made me a better person. More kind, and empathetic, and has added purpose. I certainly don't take my health or the resources I had to get me through for granted. If you ever want to talk, email me. I've spoken to tons of people and it has helped to talk to someone that's been there. We laugh, and we talk about the ups and downs, our fears, our journey with dealing with prostate, BPH, catheters, aging, etc. All kinds of stuff that only people who have had to deal with a urinary catheter can understand. Sometimes it's funny AF.....like adult diapers and putting them on for the first time and actually going in them. I coulda swore everyone knew what I was doing LOL! Hang in there. Cheers, and wishing you and your loved ones great health. Tony
@@maletenance Stared the day today connecting hoses and daybag. Went to work for the first time in many weeks and months. first thing thath happened was Leek between the hose and inside where you know. messed up so much for me. whas crying. Embarrassing. brought new clothes, underwear that you had advised me to and new things for the catheter. Thanks again for the tips. and thanks for all the tings you do
@@dowregubben6684 It happens and it's ok. It's not like you did it on purpose. Don't worry. Also, remember black pants hide wet spots really well until you can dry off. (watch the video). I might suggest that you pack some extra items to change into just in case. Funny story....I went once to have my catheter changed and while I was waiting for the nurse to come back into the office, I needed to pass gas and felt it was safe to do so. The problem was, it was not gas...I made a big mess. I was mortified, and horrified, I almost started crying. I kept thinking what the hell has my life become, I have problems in the front and now problems in the back. I quickly cleaned up and rolled out more of that stupid, but necessary, paper they make you lie on and acted like nothing happened when she came back in. I'm sure she knew cause there was an aroma but she was kind and has seen it all. This may have been an over-share but it's just to show you that all of us have had embarrassing moments and you'll get through and maybe even laugh about them in the future. Cheers mate and wishing to great health.
Right! It is hellish. So many people have responded to this video thanking me for doing it. I was freaking out before I posted it cause it's so personal but it has helped so many. It's already painful having a catheter but then add catheter crust on top of it.....nightmare!!! Here's a tip I just learned from someone who wrote to me - you can get these things called Perineal Cleaner or Foley wipes. They are specifically for cleaning the catheter and help prevent the build-up. Who knew?! God forbid they give any practical information in the hospital or doctor's office. By the way, how are you doing?
@maletenance doing ok thanks, hoping it's going to be taken out on the 12th Sept, fingers crossed,but I've still got to get the doctors to sort out the BPH, looks like some sort of surgery, are you all sorted now ?
@@nicktarbox1984 I'm all sorted out. I had to have surgery and pee like a racehorse now. Did a bunch of videos about it. I will suggest you review/research/be very thoughtful about what is offered to you to solve the BPH. All procedures have side effects and risks, some more than others depending on various things. I only mention it because I wish I had done my homework as I might have gone in another direction...I was just desperate to have the catheter removed and pee on my own. Oh well, its in the past now.
@@maletenance Ive just been watching a load of your videos, Wow you have helped so many people including myself and have replied to everyone who has commented, You have been so honest about your journey , your a hero, Thank you
That's a really nice thing to say. I don't consider myself a hero, just someone who wants to help where no practical help is given. I was just thinking about it the other day....everything from a can of soup to a car to flying has some sort of instructions/directions/information/pamphlet/brochure that comes with it but not a urinary catheter. What in the actual @#$!. It makes no sense. This is one of the reasons I continue to offer peer support through the videos and one one-on-one calls. Why do people who are already going through so much are discharged without any support on how to live with the damn thing. Sorry for the rant. Anyhow, If you have any questions that I did not cover in the videos, feel free to reach out. I've spoken to people from around the world and it seems to help to talk to someone who's been there. Tony.Alcindor@Maletenance.com Either way, I'll check in with you here after Sept 12th to see how you're doin. Hang in there. Cheers, Tony
OMG so real! I never had an issue with the “crusting”, until the last catheter I had. The nurse clearly was “not a regular” catheter inserter, she even ask another nurse to “standby”. Anyway, I think the reason I had issues this time, was precisely because she put too much of the tube in… so there was that “room” for movement. Anyway, I cleaned and showered daily, so thankfully it wasn’t a major issue , but yeah, watch for the crust people!
Right!!! There should be a PSA for all catheter users to keep everything extra clean. When I was making this video, I was quite embarrassed but it's really a thing that happens more often than not and can add so much additional pain, so I had to do it and I'm glad I did. It has helped thousands. I'm going to do an updated video and include the wipes to use..... Who knew there were specific wipes for catheter crust? Also some of the names people call what it feels like....none of them should ever be associated with your privates.
I thank you for the information that NOBODY, not my urologist, my primary physician, or any of the ER people who replaced my catheter several times, even mentioned in passing. A few tips I learned slowly: don't use chlorine bleach to sanitize your collection bags. Even diluted and washed out, bleach makes the bags deteriorate, grow brittle and leak. Wash out the bag and hose with water first, then add 6 to 8 ounces of vinegar, fill the bag with warm water and let it sit all night, or at least 30 minutes.. Drain it and wash out with water, then hang it and let it dry. Get one of those rubber shower hoses that connect to a faucet (for washing pets or your hair in a sink), cut off the shower head side, hook the cut hose to the catheter hose and wash out the bag that way. Hold the faucet side tight to the bathroom sink faucet nozzle to minimize leaks. Doctors won't give you enough bags; buy two or three off eBay. I'd tell you more, but I don't have the video gear, a human looking face or the performer's ego to make RUclips videos. Thanks again!
You are so welcome. Those are some GREAT tips!!! So many people read the comments here and I know when they see this it will defiantly help. May I ask what your diagnosis was that led to catheter use and how old you are? I've been putting together stats to continue my advocacy for men's health. Cheers Tony
Thank you thank you thank you... You're the first person including my urologist who is spoken openly about this. I think I have been traumatized too the first few days there were nightmares... They're actually putting in an SPC.
Hi Gary, you are so welcome. When it happened to me it felt like an insult to injury. I'm already in pain from the giant straw and now I have what feels like sandpaper down there too. WTF! So I had to to the video....and all the others....so others would not suffer. No one was talking or sharing info or supporting the members of this club we never wanted to be a part of so I said WTF be brave because it will help so many. I mean not even my urologist could give me any first-hand info on how to live with the archaic thing and he's an amazing urologist. So when I get a comment from someone like yourself, it makes me very happy and humbled to have helped even a lil bit. May I ask what led you to catheter use? How did you find the video and how are you doing? Tony
Thank you man … I had a traumatic accident and have one in … it comes out in February … it’s deff a miserable thing … I’m your 500🎉 subscriber !! Lol , but anyways THANK YOU 🙏 for the info Idfk if it’s just a urologist thing but it’s like nobody tells you anything like if you forget to ask something then you gonna be on phones talking to everyone and anyone trying to connect to the doctor himself , but it anyways just THANK YOU 🙏
What's up 500th subscriber? I just saw this. It's so cool cause it means I'm helping which is all I wanted then to do. Glad you found the videos and I hope they provide some info on how to live with a catheter. The main reason I started making the videos was for exactly what you said - you get sent home with no information and you spend all this time on the phone trying to reach someone to tell you're not dying and what's going on is a normal part of having a urinary catheter. There is nothing normal about having a 14" straw in your junk. Sorry about your accident but hopefully, you're on your way back to great health. Having to deal with a catheter is not fun and all the added attention to your business from everyone is sometimes unnerving. No one signs up to be a member of this club but until they come up with another way to void urine from the bladder here we are. However, if I can make it easier I'm happy to help. Anyhow thank you for the support of the channel but more importantly, wishing you a fast recovery....hang in there. Cheers
The people telling us most likely never had a cathater themselves including your Urologist. Thank you. I just had the Aquablation procedure and was just released from hospital after 24 hours. Sent home with this thing with 3 heads sticking out of my Johnson. Only one hose was attached to a leg bag. After sitting in the car then doing some walking getting some stuff done before crashing on the couch I was in a lot of pain on the head of my said Johnson. Exactly what you just said was that bloody crust. I cleaned it with disinfective wipes. That helped immediately. Thanks for that.
Hi David, I'm really glad the video helped you out. It was such a strange video to make and post....its somewhat embarrassing but it has helped so many, so it was worth it. May I ask what was your diagnosis that led to Aquablation? Cheers, and speedy recovery. Tony
@@maletenance had the surgery yesterday, came home to day with the cath in me. Really freaks me out. The leg bag I came home with dropped down my leg pulling on my pinus. That is painful with a lot of blood. Over the last 10 years it was getting worse. Strong urges with weak stream. my doc is awesome. So I hope I have a speedy recovery. Just a week with a catheter then the plan is to take it out. Then he told me after the catheter is out things may get worse before it gets better. Bladder spasms, blood in urine and stools. He also did a biopsy of the prostate while I was under. Very glad you made it through. I can’t even imagine having the thing up me for more than a week. But we all have to deal with the cards we are dealt.
Ouch! The pulling after the leg bag dropped must have been painful. Secure those straps really well. Glad to hear you have a great doc. It makes all the difference in the world. With any luck you'll have good report from your biopsies and won't have to have the catheter too long.
Hi Barry, I know exactly what that's like. I still have PTSD from being jabbed and poked by the nurses trying to get it in before the on-call urologist showed up and finally got it in on his first try. Then discharged with absolutely no information about the archaic torture device. I am sorry you have to deal with all of this, however, I am glad you found the channel and all the videos. If you have any questions please feel free to reach out. You can email me if you prefer at Tony.Alcindor@Maletenance.com Hang in there. Tony
@maletenance Thanx so much. I was really shocked in hindsight. I left alone, my ding-dong was bleeding, n too make a long crazy story short ... Before I had a panic attack, I took some scissors, cut the catheter n took it out. Consequently, I had to go back to the ER, etc., etc. I wonder what they do with homeless people? I am calmed down n using your advice--which all medical departments should give. I am so so grateful for your videos n thanx again.
Man, you really wanted that thing outta you. I'm happy to hear you are doing much better. The physical toll is one thing, but the mental and emotional toll is, in my opinion, equally difficult and often completely ignored. It needs to be addressed because to get through it all, it's the mind-body connection. Once you get your head in the game it becomes much more manageable. I agree with you that my advice should be given out and I hope that my videos could be used as a starting point to help so many who find themselves with a catheter and no practical information. It would do a world of good for so many. I'm trying with the pamphlets I made, but it takes time and since it's not medical advice, it'll take a bit more effort, but I won't give up. Anyhow, keep on keeping on. Cheers, Tony
@maletenance same im a patient care technician, I work for the state and get clients through their program. And I have private patients as well. I currently have a long time patient that will most likely have foley catheter for the rest of time. 😢
@@AdrianaHernandez-zr9gd Wow! You are providing some very important care. I'm so thrilled that the videos offered you some info that can assist you. I am sorry for your patient, who may have to use a Foley permanently. it is not only physically challenging but mentally and emotionally also. My hat is off to you for the work you do that helps so many. Cheers, and wishing you great health. Tony
You're so welcome. I'm really glad that you found the videos helpful. It's definitely not an easy topic to discuss due to the location and no one knows what it's like unless they've had a catheter also. I've taken it a few steps further than the videos by talking to individuals around the world for that exact reason. It's been great to offer peer support and it really helps people to talk to someone who knows what it's like living with the archaic device. I don't have all the answers and don't offer medical advice, but people want to connect as it can be a very isolating journey. I spoke to one guy, who has four daughters, and they were all very concerned, which he was grateful for. However, all the unwarranted attention around his privates was becoming unnerving. He just wanted a break a lil break. We just chatted about catheters and other stuff and I know it really helped him. I also made brochures to try and reach more people who seem to get their first catheter in the ER and are discharged with no information, which is so unfair. As you can see from the length of this, I like talking. You can reach out to me if you wanna talk or have questions. In the meantime hang in there. Cheers Tony
@@maletenance Yes it was the ER that I got my first catheter and with no information I knew absolutely nothing about what was going on and what to expect I had no idea the pain that I was about to encounter and all the blood that I would be losing so I found your videos most helpful very informative information that is helping me through this so again I thank you so much for opening up and sharing with us
Awwww Karl that means the world to me. Probably the best thing I've done was share my story. I'm about to post more videos about the prostatectomy surgery and aging and health etc. At 59 I may have some tips. Cheers, and wishing you great health.
I use sterile water and alcohol prep pads to clean catheter port and sterile water for balloon. I used soap and water in past but the soap was irritating. Having started catheter journey in total of 3 months I've been blessed in only ever having one uti . I guess being anxious sterile is the way for me
Great information, youre videos have been a real life saver. I'm 22 and just had a Urethroplasty, so the catheter isnt very fun. But your videos have really helped in dealing with the pain and getting so much better sleep. For others, ive realized that baby wipes work great at cleaning the build up he is talking about. I put on some gloves, get a baby wipe (fragrence free causes no irritation) and wipe off all the residual!
@michaelmcdonald4869 Hi Michael, Thanks for the kind words. It makes me happy to know I'm helping people, but more importantly, I'm glad you found the videos helpful and informative. It's really tricky dealing with a catheter when you're not provided any information on how to live with the damn thing. Thanks for the tip (no pun intended) for using baby wipes.....it'll be really helpful for the many people who come here looking for advice. Cheers, and wishing you great health. Tony
@@bluesky7288 I cleaned every morning and night to get rid of any crust that might have built up on the catheter. I also kept a pack with me just in case I had any discharge so I could clean it up
@@maletenance Thanks. Unfortunately husband 9 days in hospital after knee replacement became partially incontinent, had blot clot travel to lung, got catheter, diagnosed with kidney issues, now has pneumonia. Telling me it is not HOSPITAL ACQUIRED PNEUMONIA. Told me he is being sent to Rehab facility 5 days ago but bad things keep happpeing. He was the healthiest, most active 82 year old. Golfing, daily health club, walking over an hour a day.
You were very lucky as it sounds like your urologist and nurses would take calls AND ANSWER QUESTIONS. I HAD TO SEND A TYPED MESSAGES AND WAIT FOR THEIR WRITTEN RESPONSE. AS YOU KNOW THE WRITTEN WORD CAN BE MISINTERPRETED AND YOU WOULD GET AN ANSWER TO A QUESTION YOU NEVER ASKED. AND THEN YOU HAD TO START ALL OVER AGAIN. OF COURSE, IT WAS a 48 hour turn around each time. I am from Akron Ohio so you should be able to figure out which hospital. I am very impressed by the information you were able to get as I got nothing from my hospital. I was never shown or told about cleaning the Foley catheter. I found that strange considering how much attention the nurse took as she said she wanted to teach me how to use the self-catheter. I felt if she needed that good a look she must have thought me an idiot. Catheterizing for a man is not that tough , we dont have to many places to put it and it doesn't try to go the wrong way and get lost.
I was fortunate that is for sure with my nurses. I never got the urologist but I think that's normal..at least in my case. Also, they didn't provide that much info. They actually never told me about cleaning or cleaning just inside where your penis and the catheter meet. I had to figure that out on my own after it felt like sandpaper in there. OMG just thinking about it makes me cringe. I'm sorry that it's been rough with limited access to the medical team when you have concerns. Here's the thing I've learned since I started the channel......the doctors/nurse do their best but most times you're just a number. I think that's why the channel has done so well. Sometimes they take their time putting it in so it does not cause more trauma to the inside of the urethra or further damage to whatever might be blocking your pee hole inside. This can lead to serious complications. The first time I had a catheter was in the ER and it took 7 tries.....they kept poking and prodding and it would not go in. The on-call urologist finally got it in but that was traumatic. So maybe she wasn't just peeping your privates. Just something to think about. Let me know if you have any questions that I did not cover in the videos. I've spoken to a lot of guys and it seems to have helped. Hang in there. Tony
You are so welcome. I'm sorry you have to deal with a catheter. How are you doing? May I ask what was your diagnosis that led to catheter use? Were you provided any information on how to live with the darn thing?
@@maletenance I had it put in about 5 days ago in an emergency ward, the result of enlarged prostate and not being able to urinate. I have a biopsy yet to be scheduled, so I'm expecting to have it for months. I wasn't given much info at all, but I used to work as a nurse's aide years ago so have a bit of experience with other people's catheters. Also, having been a studio musician for years I'm used to cords and cables attached to me while moving around, so dragging the catheter stuff around is only a bit of a hassle. I was lucky enough to run into many of the situations you describe in this short time, so I feel lucky. Aside from feeling like there's a hamster gnawing on my penis sometimes, I feel like my quality of life has improved with the catheter. Especially sleep-wise. Thanks again!
Hi Bruce, thank you for sharing. Be sure to watch my video on biopsies. I hope you find it helpful. Also, I've heard a lot of ways people describe how it feels having to use a catheter.....feels like theres a file rubbing against their penis.....feels like a cats tongue and so on. The hamster gnawing at your penis is a good description....made me flinch and laugh at the same time. It's been almost two weeks how're you doing? You navigating everything ok? If you have any questions as you move forward on your journey please feel free to reach out and email me. It's all about peer support. Cheers. Tony
I've had a couple of uncomfortable days, but it's mostly OK, relatively, thanks. I'm in Canada, not sure how it works in the US, but I had a community health nurse assigned to me to do the catheter changes and answer questions, etc. It took a few days to finally reach her when I did have concerns, so I hope if anything really goes sideways it's not an issue. I'm in a rural area, so resources are a little distant. But all in all, it's not as bad as I feared.
Really glad to hear you're doing good and you're fortunate to have that good healthcare. A community health care nurse would have cost a fortune here in the US. Keep on, keepin on.
Hey Chris, Soap, and water did the trick for me and I was never advised differently from my medical professionals. Like said before and will say it again...be extra diligent. Cheers, and wishing you great health.
Hi Patrick, I am so freakin happy that you found the first-hand information useful. Yeah, there was not much out there on how to live with a catheter, and I am not one for taking advice from people that have never walked in my shoes. That's why I had to share my journey. Going to post the videos about my surgery soon. I believe it'll help. How're you doing? How're you feeling? Are you hanging in there and staying positive? Happy to talk anytime if you have any questions or just need an ear from someone that knows what it's like. People who have never been through this have no idea. My email is on the channel. Wishing you great health. Tony
How far out did you pull the tube for cleaning? Im barely pulling it out. I've been using baby wipes hoping to keep additional irritation from happening. It is a special kind of torment. 6 weeks to surgery. 5 weeks since this misery began. Thanks for your channel.
Hey Steven, I am so @#$% sorry you have to deal with the archaic torture device. I'm actually in the final stages of getting my patent for an improved catheter that will reduce the pain. Lemonade out lemons. As for how far - it's not so much pulling the catheter out as pushing your penis back to clean where it just was and it's not much. Just enough to clean the excess fluid that may have built up just inside before it gets all sandpapery. Someone else said to me in the comments it gets like a cat's tongue. That was a bit much but kind describes it. Make sure your hands are super clean too. Can I ask you what is your diagnosis that got you to catheter use? Also if you don't mind how old are you. If you prefer anonymity you can always email me at Tony.alcindor@Maletenance.com I'm just curious and the stats help in my advocacy for mens health. Also were you provided any information when you had your catheter put in? I'm trying to change the industry by making them provide at the very least my channel to give people some information. I don't know everything but some info is better than nothing....know what I mean. Here's a giant straw in you privates, have a nice day! Not good. How are you doin' otherwise? You got your head screwed on? The whole thing kind be a mind $#@. Lemmie know and hang in there Cheers Tony
You are very kind to make these videos and trying to save other people the pain you experienced. Wondered if you might consider an edit to the video because it indicates pulling the catheter out a little, which might cause some issues for people (like elderly males) following this advice.
Great and super helpful videos. Maybe you could do a video about the Top 5-10 things to demand before and after you are catheterized in urologist office, hospital , but especially ER which from comments can and is often a total uncalled for painful, dangerous(does damage to urethra) and traumatic. I suggest this because many comments reflect that unless you know what to ask and demand you are often left to your own devices and are harmed by incompetence or expedience taking priority over quality care. Thank Sorry I just saw all your tips for getting a catheter put in such as analgesic cream, hygiene, night bag etc. Great.
Hi Patrick, Thanks for the nice comment....means a lot. Yeah you hit the nail on the head.....everyone whose gone to the ER has had almost the same experience. I wonder now that I am on the other side of things if they (nurses/doctors) were more concerned with my situation getting worse, that they had no time for niceties/explanations. I mean my bladder was about to explode which would have opened up a whole other can of worms. Now this still does not excuse the lack of information provided for living with the dang thing. I dunno if there's a way to escape the ordeal without some trauma but I'm trying to spread the word. I made some pamphlets that could be given out upon discharge. It's not medical advice so it's not a conflict. Lemmie know if I can send you some to give to the ER people or to your urologist. Cheers. Tony
Thanks for the information man, just got one in yesterday. Thankfully, I’ll only have it in for a few days. How’s the patent coming along? Heard about it in your comments.
Glad the information helped. Are you free from the catheter? I hope so.....they are miserable. As for the patent it's coming along. I originally had a provisional patent that allowed me time to further develop the design, R & D, etc. I worked with a company to actually make a prototype and it worked! It blew my mind. It's only an incremental design change to a traditional indwelling catheter using pre-existing engineering from another manufacturing category. I hired a patent attorney for the filing of a non-provisional utility patent.....pretty expensive....and now just waiting for the final approval. I understand that due to Covid the USPTO is a lil backed up so fingers crossed by the end of the year it'll be done. I should do a video about the process. Thanks for asking. Cheers
@@maletenance Yep got it out, now just got to see if I need surgery. Your videos provided me with some comfort when I had it in. Was very uncomfortable and it was a pain to sleep with. Would be glad to see a video on the process, sounds great. Good luck!
@@deso425 Fingers crossed for you man and glad to hear it's out...it's so archaic. If you do need surgery make sure to ask a ton of questions - surgery options, what to expect, pros and cons, recovery time, hospital stay, ED issues, etc. Take a ton of notes and if you have to or can get a second opinion. Can I ask what diagnosis you had that you ended up with a catheter and possible surgery? Also, your age if you don't mind. You can always email me if you prefer. It'll help me with my stats. Thanks, T
I've heard this a thousand times.....catheter in and basically get out! Damn shame. Sorry, you had to go through that. I'm working to change it by providing pamphlets but it's tough to implement as practice to provide some practical information. I'm not giving up though. Cheers and wishing you well. Tony
I have had Uretha catheter in for over 2 years for retention,a catheter nurse comes every month to change it,I just wash it in the shower,no bag just a flip flo which just tucks into your undies,have to get up every 2 or 3 hours to wee
Yeah, I been hearing a lot of positives about the flip flow. It works for some and not for others. Some suffer serious bladder spasms. It's not always a one-size-fits-all when it comes to urine retention. A lot is trial and error, however, I'm really glad it worked out well for you. Are you catheter-free now? If so what procedure did you have?
I did not experience any swelling of the feet during my time with a catheter. However, it could be water retention associated with the catheter. I would contact his doctor to just to be certain.
I had to shower a few times a day to keep clean and to prevent buildup that even women will get. And the warm water just soothed that sore area from moving around.
Hey Angel, Firstly, I'm sorry you have to experience a catheter. It is not exactly a day at the beach. Hopefully, the videos I have made will make your time with it a lil easier. I made a video about showering with a catheter. Keep in mind as some people have pointed out you can get an infection the way I did it, however for me that did not happen. I would suggest, however, that you are extra, extra diligent with your hygiene as it is easier to get an infection. Wash your hands, and try not to touch the tip or opening which will lower the probability of infection. That said I still got 2 infections over my three-plus months with one. My body was just not happy with this foreign object in it and to be honest, maybe I was not as diligent as I should have been at the beginning. Here's the link ruclips.net/video/0IeG5UmygLg/видео.html Wishing you great health. Tony ps. If you have any other questions don't hesitate to ask here or you can email me.
UTI are awful and usually happen with catheters. I’ve been fighting one on and off for 15 months since being catheterized for three weeks. This is even harder to clean in females.
It's so true. I am working with my urologist to provide an in office pamphlet, that also has a QR code link to this channel, as peer support in order to provide information and tips for those who have to live with a catheter. My hope is to get this to all offices/ER departments and provide much needed information too so many who really need it. Cheers and wishing you great health.
This is good information, but I was waiting for you to provide suggestions on what the solution might be with that sandpapery stuff that builds up where the catheter enters the penis. Just rinse with shower water?
@madmaxusa1 I thought I covered it. Anyway, here's what you gotta do for the sandpaper, nail file, cat tongue build-up.....those are all the different ways I've heard it described. When cleaning , you have to push your penis back a little along the catheter and clean that part of the catheter that you don't see so you won't get the secretion buildup. It's usually just on the inside of the tip that gets the build up and not all the way up but it can be painful if not cleaned regularly. I also used basic soap (Dove liquid soap with no fragrance) and water. Nothing with alcohol as it will sting, especially if you already have the tiny abrasions caused by the build-up. It will subside once you are diligent with this. Hope that helps. Cheers, Tony
I don’t understand why students don’t train on each other, but after the mannequins they immediately try to do it on poor patients, even under the supervision of an experienced mentor??? I don't envy the patient if the student does this for the first time.
@vladspb_ That is a great idea! If they only knew how it actually felt they would never say "You'll only feel a little pinch". I remember when I woke up from my surgery, with more tubes coming out of me than when I went in and there were at least 11 doctors, fellows, nurses, and trainees around my bed. I asked if any of them had ever had a urinary catheter and from behind their masks they all shook their heads no, some with fear in their eyes. No Lie! No one will ever know what it's like unless they've been through it. Anyhow, I hope the videos helped...even just a little bit. Cheers, and wishing you and your loved ones great health. Tony
My first catheter at the emergency room was inserted by someone one being instructed for her first time and it was terrible,even the ETM driver that drove me to another hospital told the nurses he had not so much blood in the drainage bag before and he has been on job 8 years.they did answer him.If I ever need one again I will make sure they are experienced.
Yeah, that crusty stuff is dried out blood cells (in my case), the mucus from the lining of your urethra, maybe a bit of semen, a little leaked urine....lots of stuff. And I really hate that in and out motion with every move of your leg, that stupid tube gets to be like a rat-tail file working on you!
The rat-tail file is exactly what it feels like. It's the %$^#ing worst!!! The in-and-out motion with every move killed me. I thought to myself one day when I was reduced to taking painful baby steps to get to the pharmacy, there has to be a better way. So I invented a new and improved catheter that reduces the pain. After much trial and error and R & D, I am almost at the finish line of receiving the final patent. I did the videos to help and support those living with a catheter and soon, the new catheter will help those maintain mobility with reduced pain allowing them to continue with activities of daily living. I made lemonade out of lemons. I just wish I could get one to the millions that have to use a catheter to pee today.....soon though. Quick question - what was the diagnosis that led to catheter use and how old are you? It'll help with my advocacy for men's health. You can always email me privately if you prefer. Cheers mate and hang in there.
@@maletenance My situation from 'post op anesthesia problem', seems urethra 'locked up' after abdominal surgery, bladder 100% full, could only pass a few tablespoons of urine. Nurse not trained well, failed to use numbing gel into urethra, massive pain on insertion, anchor point for tubes too far down leg, every movement aggravates balloon end against bladder, lots of blood all the time, didn't give me the 'day bag' out of the kit
@@silaslongshot941 I can relate so much to what you say. For me, it took seven tries before they called the on-call urologist to get the catheter in. I was in hell! I feel bad for you because you weren't even in the hospital for an incontinence issue. I'm sorry about that. Any which way you slice it, having a catheter sucks, but, since it's the only current way to void urine from the bladder, it is what it is. That's why I made the videos and I hope they continue to help you navigate everything. If you ever wanna talk, which I've done a ton of times with people from here who left comments, email me. Hang in there.
Dude, can't thank you enough for having the motivation and chops to make these videos. Whatever the good points of healthcare are, quality time, service and good outpatient patient home care maintenance information is not always among them, nor does customer service improve as the prices go up. Your vids are not only helpful, but if one is not used to a tube hanging out of a most sensitive part of their body, they also can have a fear calming effect. Thanks again brother.
@tompassaretti6645 Awwww man!!! Thank you for the kind words of support. It means a great deal to me that I helped you...even a little bit.
Like you said - there is limited information and support provided at all levels, which to me is the true definition of adding insult to injury.
I never thought in a million years I would have the nerve to do these types of videos on a topic that is so private, however, becoming a peer support for the tens of thousands of people the videos have helped I could not be more proud and humbled.
Cheers and wishing you and your loved ones great health. Tony
Thanks again and for the reply Tony, best whishes back at you. @@maletenance
I had only had one nurse talk to me about cleaning my catheter. He was extremely helpful, but this was extremely in depth. I truly appreciate it, I really don’t want a uti 😢
You're very welcome. I've coined a terrible term for what can happen down there from the bodies natural discharge that doesn't go through the catheter.....sandpaper willy. I'm sorry but it does adequately describe it.
Your nurse did better than I and most when it came to getting any info on keeping the catheter clean. So many people just had it put in....often their first was in the ER, like me....and sent home with no information or for that matter with any supplies. It's insane and I'm working on changing it, so that the urologists/nurses provide basic information. Too many people will have to experience having a catheter for a variety of medical reasons and not getting any information on how to live with it, is like adding insult to injury.
As for the UTI, I am sorry to say, that if you have a catheter for any length of time, a UTI has a higher risk of developing. I think I had two in three months. I hope hope hope it won't happen to you. Fingers crossed.
Your are the best. I love your communications,all your videos. Thank you so much.
6/1/24@11:25am Hey, Tony,
Thank you so much for your videos!!! I’m a 70 year old guy and just got my prostate removed on Thursday. After getting home and resting for a few hours and my bag started getting full, it hit me that I needed to start learning this whole catheter routine. Reading the instructions on the bag is okay, but I said to myself, “I wonder if someone has made a RUclips video about this?” Thank you so much for taking the time to share your experiences. The only thing I would have you add is a little trigger warning that some viewers may chuckle at your great sense of humor, so be prepared for a little pain from laughing. Maybe a little video on how to ease the pain when you’re laughing. Although a bit painful, laughter was good a good medicine to ease into this temporary change in lifestyle. Thank you again!!!
Garth
This is very important information, thanks for sharing. Not gross at all, we talk about male plumbing.
I just checked for build up on my catheter and cleaned. Your video is helping me hopefully avoiding an infection.
This is not gross, your are helping me, and all of us watching this.
Hi Tomi, I'm really happy this video helped and your right it's not gross, it's actually quite natural. I guess maybe it was my headspace at the time of making the video. Anyhow, I hope all the other videos are as useful to you. Knowing I am making a small difference for people going through this is humbling. Cheers, and wishing you great health. Tony
You rock! This is so right on. Regular cleaning 2 or more times a day to eliminate catheter "crust" Soap and water or Perineal Cleaner or best of all Foley Wipes!!!
Hi Jay, thanks for the positive comment, and thank you for the suggestions. I didn't even know there was such a thing as Foley wipes. I may have to do a follow-up video with this new information as it will help so many others. I was so scared to put this video out there initially because it was so personal but I'm glad I did.
Cheers, and wishing you and your loved ones great health. Tony
ps. How are you doing? What was your diagnosis that led to catheter use?
I got a catheter put in me yesterday. By far one of the most traumatic things I've ever been through. Basically they got it in after four attempts and said have a good day. Your content really helps and I greatly appreciate it.
Awful isn't. 5 times for me they had to use a guide wire in the end. Currently 4th week with it.
Awww man I feel you with the four attempts to get it in then send you out with no information. Pure BS! It took them seven tries in the ER before they got my first one in. Then they left me with the the billing lady. No nothing about how to take care of myself while I searched for a urologist. I think I may have a lil residual PTSD but I'm working on it.
Anyhow, I am really glad that you found the videos helpful. Makes me proud to know I am helping my fellow man in a small way.
How're you doing with it all? Hows your mental and emotional state.....you coping ok?
If you have any questions, feel free to email me and I'd be happy to help in any way I can. I've spoken to tons of people on the phone and I know its been very helpful to speak with someone thats been there. It's like peer support.
Hang in there.
Cheers Tony
Tony, you are doing a great job of giving people that heads-up info.
Many people leave the hospital and are just "dazed" at what happend to them. They get home and are clueless as to what to do.
You put an honest face and true caring for others in this position.
Hi Rod, thank you so much for the kind words. I know that feeling of being "dazed" all too well. I was dazed, confused, and a lil depressed to be honest. I actually felt broken.....less than. I had no information on how to live with a giant straw sticking out of my privates. But I had to dig deep, get my mind right and figure some shit out. That's what prompted the making of the videos. I decided to share what I had learned from first-hand experience in the hopes it would help even one person and it seems to be doing just that, which makes me happy.
Wishing you great health.
Tony
Thank you so much for your series of videos. They remove much of the fear and apprehension guys can get when they are told they will be getting one after their prostate removal.
Robert, you are so welcome. I'm really glad that you found the videos helpful.
I had a prostatectomy and will post those videos in a coupla of weeks about the pre, time during the hospital, and post-recovery. It was a journey, however, I am happy to report I am healthy.
How are you doing? What's going on with your health? Not sure if you had the surgery yet but if you wanna talk with someone who went through it email me and we can set up a time. I've talked with quite a few guys and it's been great.
In the meantime wishing you great health.
Cheers
Tony
@@maletenance This Monday, (6-27) I'm having a prostate biopsy. The results of which will determine the course of action. One choice is a prostatectomy, with its associated Foley recovery. Your video series have been most helpful in giving me a preview on what follows. [The medical personnel will probably do a "quick and dirty" (no pun intended) post-op description of how to handle a Foley. Your videos will fill in the omissions.]
I'm here to understand and learn so thank you great work..
You're welcome. I hope you find some helpful information. If you have any questions, please feel free to ask here, or you can email me. Cheers, Tony
Thank you so much .found you very helpful as I am looking after my husband. As you say so many things they do not tell you.
@ritawhite6960 Hi Rita, I am so so glad that you found the videos helpful. I am working on getting doctors and nurses to recommend them as non-medical peer support. I have received thousands of comments stating exactly what you say......there is not enough information provided to the patient or caregiver. This has to change. My hat is off to you for doing the research to help your husband. Take care of yourself too. Cheers, Tony
I had a Urethroplasty on May 2, 2024 in Denver. I have had the catheter in now for 2 weeks and nobody in the Urologist’s office told me anything or how bad the pain was going to be for 4 weeks. Thank you so very much for your videos and helpful information. I have cried so many times in the course of this process. 4:51
What's up Big D. I'm so sorry that you are having a rough time with the catheter. It is unfortunately a necessary evil. I'm glad the videos have helped you. I am always amazed and shocked that again no information was provided. What is wrong with these offices?! Some simple information would save people so much time, pain, anxiety, and tears. I've been there.
How are you doing now? Are you managing any better? Please feel free to reach out directly if you have any questions. Tony.alcindor@Maletenance.com
In the meantime hang in there.
Cheers, Tony
Thank you very much. I have now also started with a catheter. feel like life is over but see so many people who manage this. It hits me hard. But then it's people like you who help us. Thanks a lot keep these videos coming
Hi and welcome to the club you never wanted to be a part of, but know this you are not alone.
I know that feeling of "life is over" all too well. I've been there and had to have some real heart-to-heart conversations with myself to get through it all. It is tough and requires some serious mental gymnastics to get through it but you can as so many of us have. I know I went through a period of loss and that my old life was over. I also asked why me? However once, stopped asking why me and started realizing it was just my turn, because I'm not special why should I be immune from a health crisis. I realized that there would be life after everything, including my prostatectomy surgery.
In a weird and wonderful way, it has made me a better person. More kind, and empathetic, and has added purpose. I certainly don't take my health or the resources I had to get me through for granted.
If you ever want to talk, email me. I've spoken to tons of people and it has helped to talk to someone that's been there. We laugh, and we talk about the ups and downs, our fears, our journey with dealing with prostate, BPH, catheters, aging, etc. All kinds of stuff that only people who have had to deal with a urinary catheter can understand. Sometimes it's funny AF.....like adult diapers and putting them on for the first time and actually going in them. I coulda swore everyone knew what I was doing LOL!
Hang in there.
Cheers, and wishing you and your loved ones great health. Tony
@@maletenance Stared the day today connecting hoses and daybag.
Went to work for the first time in many weeks and months. first thing thath happened was Leek between the hose and inside where you know. messed up so much for me. whas crying. Embarrassing. brought new clothes, underwear that you had advised me to and new things for the catheter. Thanks again for the tips. and thanks for all the tings you do
@@dowregubben6684 It happens and it's ok. It's not like you did it on purpose. Don't worry. Also, remember black pants hide wet spots really well until you can dry off. (watch the video). I might suggest that you pack some extra items to change into just in case.
Funny story....I went once to have my catheter changed and while I was waiting for the nurse to come back into the office, I needed to pass gas and felt it was safe to do so. The problem was, it was not gas...I made a big mess. I was mortified, and horrified, I almost started crying. I kept thinking what the hell has my life become, I have problems in the front and now problems in the back. I quickly cleaned up and rolled out more of that stupid, but necessary, paper they make you lie on and acted like nothing happened when she came back in. I'm sure she knew cause there was an aroma but she was kind and has seen it all.
This may have been an over-share but it's just to show you that all of us have had embarrassing moments and you'll get through and maybe even laugh about them in the future.
Cheers mate and wishing to great health.
You are absolutely spot on , having the very same problem, They should show this video to all new users
Right! It is hellish. So many people have responded to this video thanking me for doing it. I was freaking out before I posted it cause it's so personal but it has helped so many. It's already painful having a catheter but then add catheter crust on top of it.....nightmare!!! Here's a tip I just learned from someone who wrote to me - you can get these things called Perineal Cleaner or Foley wipes. They are specifically for cleaning the catheter and help prevent the build-up. Who knew?! God forbid they give any practical information in the hospital or doctor's office.
By the way, how are you doing?
@maletenance doing ok thanks, hoping it's going to be taken out on the 12th Sept, fingers crossed,but I've still got to get the doctors to sort out the BPH, looks like some sort of surgery, are you all sorted now ?
@@nicktarbox1984 I'm all sorted out. I had to have surgery and pee like a racehorse now. Did a bunch of videos about it. I will suggest you review/research/be very thoughtful about what is offered to you to solve the BPH. All procedures have side effects and risks, some more than others depending on various things. I only mention it because I wish I had done my homework as I might have gone in another direction...I was just desperate to have the catheter removed and pee on my own. Oh well, its in the past now.
@@maletenance Ive just been watching a load of your videos, Wow you have helped so many people including myself and have replied to everyone who has commented, You have been so honest about your journey , your a hero, Thank you
That's a really nice thing to say. I don't consider myself a hero, just someone who wants to help where no practical help is given. I was just thinking about it the other day....everything from a can of soup to a car to flying has some sort of instructions/directions/information/pamphlet/brochure that comes with it but not a urinary catheter. What in the actual @#$!. It makes no sense. This is one of the reasons I continue to offer peer support through the videos and one one-on-one calls. Why do people who are already going through so much are discharged without any support on how to live with the damn thing. Sorry for the rant.
Anyhow, If you have any questions that I did not cover in the videos, feel free to reach out. I've spoken to people from around the world and it seems to help to talk to someone who's been there. Tony.Alcindor@Maletenance.com
Either way, I'll check in with you here after Sept 12th to see how you're doin. Hang in there.
Cheers, Tony
OMG so real! I never had an issue with the “crusting”, until the last catheter I had. The nurse clearly was “not a regular” catheter inserter, she even ask another nurse to “standby”. Anyway, I think the reason I had issues this time, was precisely because she put too much of the tube in… so there was that “room” for movement. Anyway, I cleaned and showered daily, so thankfully it wasn’t a major issue , but yeah, watch for the crust people!
Right!!! There should be a PSA for all catheter users to keep everything extra clean. When I was making this video, I was quite embarrassed but it's really a thing that happens more often than not and can add so much additional pain, so I had to do it and I'm glad I did. It has helped thousands. I'm going to do an updated video and include the wipes to use..... Who knew there were specific wipes for catheter crust? Also some of the names people call what it feels like....none of them should ever be associated with your privates.
I thank you for the information that NOBODY, not my urologist, my primary physician, or any of the ER people who replaced my catheter several times, even mentioned in passing. A few tips I learned slowly: don't use chlorine bleach to sanitize your collection bags. Even diluted and washed out, bleach makes the bags deteriorate, grow brittle and leak. Wash out the bag and hose with water first, then add 6 to 8 ounces of vinegar, fill the bag with warm water and let it sit all night, or at least 30 minutes.. Drain it and wash out with water, then hang it and let it dry. Get one of those rubber shower hoses that connect to a faucet (for washing pets or your hair in a sink), cut off the shower head side, hook the cut hose to the catheter hose and wash out the bag that way. Hold the faucet side tight to the bathroom sink faucet nozzle to minimize leaks. Doctors won't give you enough bags; buy two or three off eBay. I'd tell you more, but I don't have the video gear, a human looking face or the performer's ego to make RUclips videos. Thanks again!
You are so welcome. Those are some GREAT tips!!! So many people read the comments here and I know when they see this it will defiantly help. May I ask what your diagnosis was that led to catheter use and how old you are? I've been putting together stats to continue my advocacy for men's health. Cheers Tony
Thank you thank you thank you... You're the first person including my urologist who is spoken openly about this. I think I have been traumatized too the first few days there were nightmares... They're actually putting in an SPC.
Hi Gary, you are so welcome. When it happened to me it felt like an insult to injury. I'm already in pain from the giant straw and now I have what feels like sandpaper down there too. WTF! So I had to to the video....and all the others....so others would not suffer.
No one was talking or sharing info or supporting the members of this club we never wanted to be a part of so I said WTF be brave because it will help so many. I mean not even my urologist could give me any first-hand info on how to live with the archaic thing and he's an amazing urologist.
So when I get a comment from someone like yourself, it makes me very happy and humbled to have helped even a lil bit.
May I ask what led you to catheter use? How did you find the video and how are you doing?
Tony
I love your Videos because you just tell it like it is. Nobody tells you those things you are usually on your own when you leave the hospital or rehab
Awwww! Thank you so much for the kind words. It makes me so happy to know I'm helping.
Wishing you and your loved ones great health.
Tony
Thank you man … I had a traumatic accident and have one in … it comes out in February … it’s deff a miserable thing … I’m your 500🎉 subscriber !! Lol , but anyways THANK YOU 🙏 for the info Idfk if it’s just a urologist thing but it’s like nobody tells you anything like if you forget to ask something then you gonna be on phones talking to everyone and anyone trying to connect to the doctor himself , but it anyways just THANK YOU 🙏
What's up 500th subscriber? I just saw this. It's so cool cause it means I'm helping which is all I wanted then to do.
Glad you found the videos and I hope they provide some info on how to live with a catheter.
The main reason I started making the videos was for exactly what you said - you get sent home with no information and you spend all this time on the phone trying to reach someone to tell you're not dying and what's going on is a normal part of having a urinary catheter. There is nothing normal about having a 14" straw in your junk.
Sorry about your accident but hopefully, you're on your way back to great health.
Having to deal with a catheter is not fun and all the added attention to your business from everyone is sometimes unnerving. No one signs up to be a member of this club but until they come up with another way to void urine from the bladder here we are. However, if I can make it easier I'm happy to help.
Anyhow thank you for the support of the channel but more importantly, wishing you a fast recovery....hang in there.
Cheers
The people telling us most likely never had a cathater themselves including your Urologist. Thank you. I just had the Aquablation procedure and was just released from hospital after 24 hours. Sent home with this thing with 3 heads sticking out of my Johnson. Only one hose was attached to a leg bag. After sitting in the car then doing some walking getting some stuff done before crashing on the couch I was in a lot of pain on the head of my said Johnson. Exactly what you just said was that bloody crust. I cleaned it with disinfective wipes. That helped immediately. Thanks for that.
Hi David, I'm really glad the video helped you out. It was such a strange video to make and post....its somewhat embarrassing but it has helped so many, so it was worth it. May I ask what was your diagnosis that led to Aquablation?
Cheers, and speedy recovery. Tony
@@maletenance had the surgery yesterday, came home to day with the cath in me. Really freaks me out. The leg bag I came home with dropped down my leg pulling on my pinus. That is painful with a lot of blood. Over the last 10 years it was getting worse. Strong urges with weak stream. my doc is awesome. So I hope I have a speedy recovery. Just a week with a catheter then the plan is to take it out. Then he told me after the catheter is out things may get worse before it gets better. Bladder spasms, blood in urine and stools. He also did a biopsy of the prostate while I was under. Very glad you made it through. I can’t even imagine having the thing up me for more than a week. But we all have to deal with the cards we are dealt.
Ouch! The pulling after the leg bag dropped must have been painful. Secure those straps really well. Glad to hear you have a great doc. It makes all the difference in the world. With any luck you'll have good report from your biopsies and won't have to have the catheter too long.
Left ER in trauma n your videos r really helpful.
Hi Barry, I know exactly what that's like. I still have PTSD from being jabbed and poked by the nurses trying to get it in before the on-call urologist showed up and finally got it in on his first try. Then discharged with absolutely no information about the archaic torture device. I am sorry you have to deal with all of this, however, I am glad you found the channel and all the videos. If you have any questions please feel free to reach out. You can email me if you prefer at Tony.Alcindor@Maletenance.com
Hang in there. Tony
@maletenance Thanx so much. I was really shocked in hindsight. I left alone, my ding-dong was bleeding, n too make a long crazy story short ... Before I had a panic attack, I took some scissors, cut the catheter n took it out. Consequently, I had to go back to the ER, etc., etc. I wonder what they do with homeless people? I am calmed down n using your advice--which all medical departments should give. I am so so grateful for your videos n thanx again.
Man, you really wanted that thing outta you. I'm happy to hear you are doing much better. The physical toll is one thing, but the mental and emotional toll is, in my opinion, equally difficult and often completely ignored. It needs to be addressed because to get through it all, it's the mind-body connection. Once you get your head in the game it becomes much more manageable.
I agree with you that my advice should be given out and I hope that my videos could be used as a starting point to help so many who find themselves with a catheter and no practical information. It would do a world of good for so many. I'm trying with the pamphlets I made, but it takes time and since it's not medical advice, it'll take a bit more effort, but I won't give up.
Anyhow, keep on keeping on. Cheers, Tony
Good advice. I’m taking care of a client and this is very useful
I'm glad you found the video helpful and will share it with your client. May I ask what you do.....caregiver, nurse?
@maletenance same im a patient care technician, I work for the state and get clients through their program. And I have private patients as well. I currently have a long time patient that will most likely have foley catheter for the rest of time. 😢
@@AdrianaHernandez-zr9gd Wow! You are providing some very important care. I'm so thrilled that the videos offered you some info that can assist you. I am sorry for your patient, who may have to use a Foley permanently. it is not only physically challenging but mentally and emotionally also. My hat is off to you for the work you do that helps so many. Cheers, and wishing you great health. Tony
Thank you for these videos... Really helpful for those of us that have no one to talk to about such things
You're so welcome. I'm really glad that you found the videos helpful. It's definitely not an easy topic to discuss due to the location and no one knows what it's like unless they've had a catheter also.
I've taken it a few steps further than the videos by talking to individuals around the world for that exact reason. It's been great to offer peer support and it really helps people to talk to someone who knows what it's like living with the archaic device. I don't have all the answers and don't offer medical advice, but people want to connect as it can be a very isolating journey. I spoke to one guy, who has four daughters, and they were all very concerned, which he was grateful for. However, all the unwarranted attention around his privates was becoming unnerving. He just wanted a break a lil break. We just chatted about catheters and other stuff and I know it really helped him. I also made brochures to try and reach more people who seem to get their first catheter in the ER and are discharged with no information, which is so unfair.
As you can see from the length of this, I like talking. You can reach out to me if you wanna talk or have questions. In the meantime hang in there.
Cheers Tony
@@maletenance Yes it was the ER that I got my first catheter and with no information I knew absolutely nothing about what was going on and what to expect I had no idea the pain that I was about to encounter and all the blood that I would be losing so I found your videos most helpful very informative information that is helping me through this so again I thank you so much for opening up and sharing with us
Thank you for your videos. I appreciate you for helping everyone with these educational videos
Awwww Karl that means the world to me. Probably the best thing I've done was share my story. I'm about to post more videos about the prostatectomy surgery and aging and health etc. At 59 I may have some tips.
Cheers, and wishing you great health.
Great video & good information. Thanks
Thanks for the kind words. Glad the video helped.
Thx
You're welcome.
I use sterile water and alcohol prep pads to clean catheter port and sterile water for balloon. I used soap and water in past but the soap was irritating. Having started catheter journey in total of 3 months I've been blessed in only ever having one uti . I guess being anxious sterile is the way for me
Great information, youre videos have been a real life saver. I'm 22 and just had a Urethroplasty, so the catheter isnt very fun. But your videos have really helped in dealing with the pain and getting so much better sleep.
For others, ive realized that baby wipes work great at cleaning the build up he is talking about. I put on some gloves, get a baby wipe (fragrence free causes no irritation) and wipe off all the residual!
@michaelmcdonald4869 Hi Michael, Thanks for the kind words. It makes me happy to know I'm helping people, but more importantly, I'm glad you found the videos helpful and informative. It's really tricky dealing with a catheter when you're not provided any information on how to live with the damn thing.
Thanks for the tip (no pun intended) for using baby wipes.....it'll be really helpful for the many people who come here looking for advice.
Cheers, and wishing you great health. Tony
How often do you clean?
@@bluesky7288 I cleaned every morning and night to get rid of any crust that might have built up on the catheter. I also kept a pack with me just in case I had any discharge so I could clean it up
@@bluesky7288 Everyday. You have to be on top of your hygiene as having a catheter makes at a much higher risk for CATUI's
@@maletenance Thanks. Unfortunately husband 9 days in hospital after knee replacement became partially incontinent, had blot clot travel to lung, got catheter, diagnosed with kidney issues, now has pneumonia. Telling me it is not HOSPITAL ACQUIRED PNEUMONIA. Told me he is being sent to Rehab facility 5 days ago but bad things keep happpeing. He was the healthiest, most active 82 year old. Golfing, daily health club, walking over an hour a day.
You were very lucky as it sounds like your urologist and nurses would take calls AND ANSWER QUESTIONS. I HAD TO SEND A TYPED MESSAGES AND WAIT FOR THEIR WRITTEN RESPONSE. AS YOU KNOW THE WRITTEN WORD CAN BE MISINTERPRETED AND YOU WOULD GET AN ANSWER TO A QUESTION YOU NEVER ASKED. AND THEN YOU HAD TO START ALL OVER AGAIN. OF COURSE, IT WAS a 48 hour turn around each time. I am from Akron Ohio so you should be able to figure out which hospital. I am very impressed by the information you were able to get as I got nothing from my hospital. I was never shown or told about cleaning the Foley catheter. I found that strange considering how much attention the nurse took as she said she wanted to teach me how to use the self-catheter. I felt if she needed that good a look she must have thought me an idiot. Catheterizing for a man is not that tough , we dont have to many places to put it and it doesn't try to go the wrong way and get lost.
I was fortunate that is for sure with my nurses. I never got the urologist but I think that's normal..at least in my case. Also, they didn't provide that much info. They actually never told me about cleaning or cleaning just inside where your penis and the catheter meet. I had to figure that out on my own after it felt like sandpaper in there. OMG just thinking about it makes me cringe.
I'm sorry that it's been rough with limited access to the medical team when you have concerns.
Here's the thing I've learned since I started the channel......the doctors/nurse do their best but most times you're just a number. I think that's why the channel has done so well.
Sometimes they take their time putting it in so it does not cause more trauma to the inside of the urethra or further damage to whatever might be blocking your pee hole inside. This can lead to serious complications. The first time I had a catheter was in the ER and it took 7 tries.....they kept poking and prodding and it would not go in. The on-call urologist finally got it in but that was traumatic. So maybe she wasn't just peeping your privates. Just something to think about.
Let me know if you have any questions that I did not cover in the videos. I've spoken to a lot of guys and it seems to have helped.
Hang in there. Tony
You are an excellent teacher, keep up the good work! You have helped me tremendously. Yes, it is OK to say Penis. LOL
Thank you for the kind words of support and I will use the word penis more confidently moving forward. LOL.
Thank you! Very practical stuff, and greatly appreciated.
You are so welcome. I'm sorry you have to deal with a catheter. How are you doing? May I ask what was your diagnosis that led to catheter use? Were you provided any information on how to live with the darn thing?
@@maletenance I had it put in about 5 days ago in an emergency ward, the result of enlarged prostate and not being able to urinate. I have a biopsy yet to be scheduled, so I'm expecting to have it for months. I wasn't given much info at all, but I used to work as a nurse's aide years ago so have a bit of experience with other people's catheters. Also, having been a studio musician for years I'm used to cords and cables attached to me while moving around, so dragging the catheter stuff around is only a bit of a hassle. I was lucky enough to run into many of the situations you describe in this short time, so I feel lucky. Aside from feeling like there's a hamster gnawing on my penis sometimes, I feel like my quality of life has improved with the catheter. Especially sleep-wise. Thanks again!
Hi Bruce, thank you for sharing. Be sure to watch my video on biopsies. I hope you find it helpful. Also, I've heard a lot of ways people describe how it feels having to use a catheter.....feels like theres a file rubbing against their penis.....feels like a cats tongue and so on. The hamster gnawing at your penis is a good description....made me flinch and laugh at the same time.
It's been almost two weeks how're you doing? You navigating everything ok?
If you have any questions as you move forward on your journey please feel free to reach out and email me. It's all about peer support. Cheers. Tony
I've had a couple of uncomfortable days, but it's mostly OK, relatively, thanks. I'm in Canada, not sure how it works in the US, but I had a community health nurse assigned to me to do the catheter changes and answer questions, etc. It took a few days to finally reach her when I did have concerns, so I hope if anything really goes sideways it's not an issue. I'm in a rural area, so resources are a little distant. But all in all, it's not as bad as I feared.
Really glad to hear you're doing good and you're fortunate to have that good healthcare. A community health care nurse would have cost a fortune here in the US. Keep on, keepin on.
Thank you so much. No one told me. Do you just clean it with soap and water?
Hey Chris, Soap, and water did the trick for me and I was never advised differently from my medical professionals. Like said before and will say it again...be extra diligent. Cheers, and wishing you great health.
Good info I'm dealing with this right now need some more information that I also didn't get. Thanks 😊
Hi Patrick, I am so freakin happy that you found the first-hand information useful. Yeah, there was not much out there on how to live with a catheter, and I am not one for taking advice from people that have never walked in my shoes. That's why I had to share my journey. Going to post the videos about my surgery soon. I believe it'll help.
How're you doing? How're you feeling? Are you hanging in there and staying positive? Happy to talk anytime if you have any questions or just need an ear from someone that knows what it's like. People who have never been through this have no idea.
My email is on the channel.
Wishing you great health.
Tony
thank you so much for your candid information!
You are so welcome! I'm so pleased you found some useful information.
How far out did you pull the tube for cleaning? Im barely pulling it out. I've been using baby wipes hoping to keep additional irritation from happening. It is a special kind of torment. 6 weeks to surgery. 5 weeks since this misery began. Thanks for your channel.
Hey Steven, I am so @#$% sorry you have to deal with the archaic torture device. I'm actually in the final stages of getting my patent for an improved catheter that will reduce the pain. Lemonade out lemons.
As for how far - it's not so much pulling the catheter out as pushing your penis back to clean where it just was and it's not much. Just enough to clean the excess fluid that may have built up just inside before it gets all sandpapery. Someone else said to me in the comments it gets like a cat's tongue. That was a bit much but kind describes it. Make sure your hands are super clean too.
Can I ask you what is your diagnosis that got you to catheter use? Also if you don't mind how old are you. If you prefer anonymity you can always email me at Tony.alcindor@Maletenance.com I'm just curious and the stats help in my advocacy for mens health.
Also were you provided any information when you had your catheter put in? I'm trying to change the industry by making them provide at the very least my channel to give people some information. I don't know everything but some info is better than nothing....know what I mean. Here's a giant straw in you privates, have a nice day! Not good.
How are you doin' otherwise? You got your head screwed on? The whole thing kind be a mind $#@.
Lemmie know and hang in there
Cheers Tony
You are very kind to make these videos and trying to save other people the pain you experienced. Wondered if you might consider an edit to the video because it indicates pulling the catheter out a little, which might cause some issues for people (like elderly males) following this advice.
Really great info Sir. Thank you.
I'm really glad the video helped. Cheers, and wishing you and your loved ones great health. Tony
Great and super helpful videos. Maybe you could do a video about the Top 5-10 things to demand before and after you are catheterized in urologist office, hospital , but especially ER which from comments can and is often a total uncalled for painful, dangerous(does damage to urethra) and traumatic. I suggest this because many comments reflect that unless you know what to ask and demand you are often left to your own devices and are harmed by incompetence or expedience taking priority over quality care. Thank
Sorry I just saw all your tips for getting a catheter put in such as analgesic cream, hygiene, night bag etc. Great.
Hi Patrick, Thanks for the nice comment....means a lot.
Yeah you hit the nail on the head.....everyone whose gone to the ER has had almost the same experience. I wonder now that I am on the other side of things if they (nurses/doctors) were more concerned with my situation getting worse, that they had no time for niceties/explanations. I mean my bladder was about to explode which would have opened up a whole other can of worms.
Now this still does not excuse the lack of information provided for living with the dang thing. I dunno if there's a way to escape the ordeal without some trauma but I'm trying to spread the word. I made some pamphlets that could be given out upon discharge. It's not medical advice so it's not a conflict. Lemmie know if I can send you some to give to the ER people or to your urologist.
Cheers. Tony
Very helpful thank you
You are very welcome. I'm glad they helped.
Cheers, and wishing you great health. Tony
Thanks for the information man, just got one in yesterday. Thankfully, I’ll only have it in for a few days. How’s the patent coming along? Heard about it in your comments.
Glad the information helped. Are you free from the catheter? I hope so.....they are miserable.
As for the patent it's coming along. I originally had a provisional patent that allowed me time to further develop the design, R & D, etc.
I worked with a company to actually make a prototype and it worked! It blew my mind. It's only an incremental design change to a traditional indwelling catheter using pre-existing engineering from another manufacturing category. I hired a patent attorney for the filing of a non-provisional utility patent.....pretty expensive....and now just waiting for the final approval. I understand that due to Covid the USPTO is a lil backed up so fingers crossed by the end of the year it'll be done.
I should do a video about the process. Thanks for asking. Cheers
@@maletenance Yep got it out, now just got to see if I need surgery. Your videos provided me with some comfort when I had it in. Was very uncomfortable and it was a pain to sleep with. Would be glad to see a video on the process, sounds great. Good luck!
@@deso425 Fingers crossed for you man and glad to hear it's out...it's so archaic. If you do need surgery make sure to ask a ton of questions - surgery options, what to expect, pros and cons, recovery time, hospital stay, ED issues, etc. Take a ton of notes and if you have to or can get a second opinion. Can I ask what diagnosis you had that you ended up with a catheter and possible surgery? Also, your age if you don't mind. You can always email me if you prefer. It'll help me with my stats. Thanks, T
Important info. The health professionals just placed my foley and told me to go home. This info BEFORE WOULD HAVE SAVED ME MUCO PAIN.
I've heard this a thousand times.....catheter in and basically get out! Damn shame. Sorry, you had to go through that. I'm working to change it by providing pamphlets but it's tough to implement as practice to provide some practical information. I'm not giving up though. Cheers and wishing you well. Tony
I have had Uretha catheter in for over 2 years for retention,a catheter nurse comes every month to change it,I just wash it in the shower,no bag just a flip flo which just tucks into your undies,have to get up every 2 or 3 hours to wee
Yeah, I been hearing a lot of positives about the flip flow. It works for some and not for others. Some suffer serious bladder spasms. It's not always a one-size-fits-all when it comes to urine retention. A lot is trial and error, however, I'm really glad it worked out well for you. Are you catheter-free now? If so what procedure did you have?
My husband has had a cath 10 weeks. There are many problems but now his feet are swelling. Did you experience this?
I did not experience any swelling of the feet during my time with a catheter. However, it could be water retention associated with the catheter. I would contact his doctor to just to be certain.
And of course if I run short I am listening carefully to what ur saying to stay clean 😊
It's a process on top of everything else but a necessity to keep it clean.
Bless you brother. Hope all is well with you.
Awww man thank you and bless you, too. I am humbled to be able to help. All is good! May I ask how you found the video?
I had to shower a few times a day to keep clean and to prevent buildup that even women will get. And the warm water just soothed that sore area from moving around.
Thanks for sharing. I'm really pleased that some information I provided crosses over to females. All my best.
Yes there is no information available regarding female catheder
How long did you have catheder in and what procedure you have done for treatment
@@iqrazafar7941 bladder repair due to a complicated hysterectomy. My bladder had been cut by the surgeon. The catheter was in place for 23 days.
Thank you for your help
You're very welcome. Happy the videos helped.
Hey, I just got a cather placed in me my first day. Any advice when I shower?
Hey Angel,
Firstly, I'm sorry you have to experience a catheter. It is not exactly a day at the beach. Hopefully, the videos I have made will make your time with it a lil easier.
I made a video about showering with a catheter. Keep in mind as some people have pointed out you can get an infection the way I did it, however for me that did not happen. I would suggest, however, that you are extra, extra diligent with your hygiene as it is easier to get an infection. Wash your hands, and try not to touch the tip or opening which will lower the probability of infection.
That said I still got 2 infections over my three-plus months with one. My body was just not happy with this foreign object in it and to be honest, maybe I was not as diligent as I should have been at the beginning.
Here's the link ruclips.net/video/0IeG5UmygLg/видео.html
Wishing you great health.
Tony
ps. If you have any other questions don't hesitate to ask here or you can email me.
Thank you, thank you, thank you.
You are so welcome sir!
I appreciated your videos. Thank you.
I'm happy they helped. Cheers, Tony
UTI are awful and usually happen with catheters. I’ve been fighting one on and off for 15 months since being catheterized for three weeks. This is even harder to clean in females.
I'm sorry....CATUI's are awful. Hang in there.
Thank you!!!
You're welcome! Wishing you a healthy New Year.
Thanks
You're welcome!
Thank you 🙏
You're welcome.
you are very helpful
Awwww thank you. All I wanted was to help so mission accomplished. Wishing you great health.
Thank you......that's all I wanted to do was help. Wishing you great health.
They do not training. It is sad!
It's so true. I am working with my urologist to provide an in office pamphlet, that also has a QR code link to this channel, as peer support in order to provide information and tips for those who have to live with a catheter. My hope is to get this to all offices/ER departments and provide much needed information too so many who really need it. Cheers and wishing you great health.
This is good information, but I was waiting for you to provide suggestions on what the solution might be with that sandpapery stuff that builds up where the catheter enters the penis. Just rinse with shower water?
@madmaxusa1 I thought I covered it. Anyway, here's what you gotta do for the sandpaper, nail file, cat tongue build-up.....those are all the different ways I've heard it described. When cleaning , you have to push your penis back a little along the catheter and clean that part of the catheter that you don't see so you won't get the secretion buildup. It's usually just on the inside of the tip that gets the build up and not all the way up but it can be painful if not cleaned regularly. I also used basic soap (Dove liquid soap with no fragrance) and water. Nothing with alcohol as it will sting, especially if you already have the tiny abrasions caused by the build-up. It will subside once you are diligent with this. Hope that helps. Cheers, Tony
@@maletenance how often do you clean?
@@bluesky7288 I did it everyday.
I don’t understand why students don’t train on each other, but after the mannequins they immediately try to do it on poor patients, even under the supervision of an experienced mentor??? I don't envy the patient if the student does this for the first time.
@vladspb_ That is a great idea! If they only knew how it actually felt they would never say "You'll only feel a little pinch". I remember when I woke up from my surgery, with more tubes coming out of me than when I went in and there were at least 11 doctors, fellows, nurses, and trainees around my bed. I asked if any of them had ever had a urinary catheter and from behind their masks they all shook their heads no, some with fear in their eyes. No Lie! No one will ever know what it's like unless they've been through it.
Anyhow, I hope the videos helped...even just a little bit.
Cheers, and wishing you and your loved ones great health. Tony
My first catheter at the emergency room was inserted by someone one being instructed for her first time and it was terrible,even the ETM driver that drove me to another hospital told the nurses he had not so much blood in the drainage bag before and he has been on job 8 years.they did answer him.If I ever need one again I will make sure they are experienced.
Yeah, that crusty stuff is dried out blood cells (in my case), the mucus from the lining of your urethra, maybe a bit of semen, a little leaked urine....lots of stuff. And I really hate that in and out motion with every move of your leg, that stupid tube gets to be like a rat-tail file working on you!
The rat-tail file is exactly what it feels like. It's the %$^#ing worst!!! The in-and-out motion with every move killed me.
I thought to myself one day when I was reduced to taking painful baby steps to get to the pharmacy, there has to be a better way. So I invented a new and improved catheter that reduces the pain. After much trial and error and R & D, I am almost at the finish line of receiving the final patent.
I did the videos to help and support those living with a catheter and soon, the new catheter will help those maintain mobility with reduced pain allowing them to continue with activities of daily living.
I made lemonade out of lemons. I just wish I could get one to the millions that have to use a catheter to pee today.....soon though.
Quick question - what was the diagnosis that led to catheter use and how old are you? It'll help with my advocacy for men's health. You can always email me privately if you prefer.
Cheers mate and hang in there.
@@maletenance My situation from 'post op anesthesia problem', seems urethra 'locked up' after abdominal surgery, bladder 100% full, could only pass a few tablespoons of urine. Nurse not trained well, failed to use numbing gel into urethra, massive pain on insertion, anchor point for tubes too far down leg, every movement aggravates balloon end against bladder, lots of blood all the time, didn't give me the 'day bag' out of the kit
@@silaslongshot941 I can relate so much to what you say. For me, it took seven tries before they called the on-call urologist to get the catheter in. I was in hell! I feel bad for you because you weren't even in the hospital for an incontinence issue. I'm sorry about that.
Any which way you slice it, having a catheter sucks, but, since it's the only current way to void urine from the bladder, it is what it is. That's why I made the videos and I hope they continue to help you navigate everything.
If you ever wanna talk, which I've done a ton of times with people from here who left comments, email me.
Hang in there.
It adds insult to injury. I call it sandpaper willy.
A catheter is a huge pain .
It sure is. Some people don't mind it, but most of us would rather never have to deal with it again.