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GET HOME FAST after you get your first indwelling urinary catheter.
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- Опубликовано: 15 авг 2024
- For Catheter Peer Support - www.Maletenanc...
The numbing cream that they used to insert the catheter will start to wear off and the pain will start to kick in. I took the subway and that was a mistake and took too long. By the time I reached my stop, I could barely walk it hurt so bad. No motorcycles, no bikes, don't walk. If possible have a friend take you home or take a cab. Go straight home, take a nap, and rest, your body has been through a lot. Do not go back to work. You'll feel a little sideways and will need a bit of time to get used to having a catheter in you.
Cheers, and wishing you great health. Tony
DISCLAIMER
Responses should be considered general in nature, and not specific to any one person; consequently, they are not to be construed as specific medical advice and do not create a doctor/patient relationship. For more specific advice unique to your particular situation, consult a local medical professional.
Thank you so much for the videos.
I just brought my husband home from the hospital with a catheter.
This information is so helpful! All they told us at the hospital was, "You'll get used to it," lol. You're a lifesaver❤
Hello Jena, Thank you for the kind words and I'm so happy you found the videos helpful. It is a damn shame that the only information you were given was "You'll get used to it". How about they have one put in and see how it feels. I bet they would be singing another tune!
It upsets me that hundreds of thousands of people have found the videos, so many express that no practical information was provided on how to live with a catheter. It is the reason I started the channel....I just had to help.
Anyhow, I hope your husband is managing better. If you or he have any questions please email me at Tony.Alcindor@Maletenance.com. I've spoken to so many people and it helps.
In the meantime, both of you hang in there. Cheer's Tony
First Off...
THANK YOU TONY!!!
I had a Catheter inserted over a week ago after being hit by a number of ailments which required Me to go to the Emergency Room. I wasn't urinating properly due to the Diabetes medication given not working and causing major conflicts. After being on IVs for the first few days, the Doctors told Me that I had to have a Catheter inserted due to by Bladder being filled with Urine (up to my kidneys). I was ANGRY, confused, depressed, embarrassed, and had no idea what to do. Because my particular situation was life-threatening. So I really didn't have much of a choice.
I'm going to be 60 this year. Many people tell Me I look like I'm in my mid-30s. Mostly due to taking care of Myself health-wise over the decades. When I was diagnosed with Type 2 Diabetes a few years ago, I thought I had it under control. And I've never been hospitalized in my life. So this took A LOT out of me.
My Mother ended up picking Me up from the hospital. And I had to get my meds that day. And it was a CHORE walking from Madison Ave to Lexington Ave ( I gathered that from your other vids, that you're a NY'er. So you know how long those avenues can be). I thought I could do it. I nearly passed out a few times. But I made it.
When The Mom's got a cab, and had me dropped off, I practically had no idea where I was for a few minutes. But I just plopped into my computer chair and just stayed there for hours. Physically and Emotionally out of shape.
Doing a slew of research online, I came upon your videos. Your takes on your personal Catheter experiences has made my personal situation easier to deal with. It's become more discomforting than painful. I've only had one instance of a leg bag releasing ( I had to do a laundromat run. Good thing I was wearing Black Cargo Pants. LOL). But oddly, I've been gaining a weird sense of structure and peace working with the leg and sleep bags. Again, along with watching your videos.
Dude,
You have done a GREAT Service with this channel.
You have no idea how much I've appreciated you sharing your Catheter experiences.
My Deepest and Humblest of THANKS to You!
Sorry if I rambled on a bit.
Now I have to deal with taking it out myself a day before I see my Urologist next week. Which scares DA ABSOLUTE S**T out of Me.
THANKS AGAIN, BROTHER!!!
I'm gonna be 60 this year too and I'm a New Yorker! Oh, you're so right - those avenues are a bitch when you have to walk with a catheter attached....the pain was intense. I to look a lot younger than my age. I go to the gym religiously and eat right. Vanity is part of it, however, it's become more to help ward off the many ailments that go with being older. I'm not going down without a fight. LOL!
Thank you for the kind words and no apologies for rambling. I do it all the time and I'm glad that you did. We are part of a club that we never wanted to be in, so we gotta kinda lean on each other to get through it all by sharing our journey.
I'm sorry to hear about your diagnosis that led to having a catheter. People don't know what a physical but mental and emotional toll it takes on you and it's not an easy thing to discuss, with anyone due to its geography.
I got really in my head for a while until I had my "Come to Jesus" moment and accepted that it was just my turn, and I'm just gonna take it one day at a time and figure this $#@% out, which was a turning point and that start of making the videos. I take it you watched the "Hiding wet spots " video LOL!
I am so so incredibly happy that you found the videos and that they provide some help, comfort, and a sense of normalcy. It makes me smile. I'm the one that's humbled actually.
Regarding taking it out yourself.....why are you doing it? I'm assuming it's an indwelling catheter because you said you have to take it out next week before your urologist appointment and if it was an intermittent catheter you would have been taking it out several times a day and be somewhat used to it...I say that very respectfully. Maybe I missed something and my apologies for prying.
Anyhow, now I've rambled on. Again I'm really glad the videos helped.
Cheers, and wishing you great health. Tony
ps. What's your name if you don't mind me asking but I understand anonymity too. Peace.
@@maletenance Hey Buh!
Check your email.
Thanks for your reply.
It amazes me how many doctors are keen to give patients supra pubic catheters, istead of changing programmes on an Interstim implant, or providing custom programmes. There is no way, I will agree to a catheter, when I don't have spinal injury. As far as I am concerned it is just exchanging one set of problems for another. To say nothing of the likely shortages of medical supplies as the present world situation escalates. Better to have less need for medical intervention, rather than more!
Man, these videos are soooo helpful. Thank you.
Awwww man thank you! I am so humbled to be able to help out. There is such a lack of first-hand information available and no one it seems gets any practical advice/tips/info on how to live with the damn thing from their urologist's office or the ER where so many people get their first catheter. It's such a mind $@#%.
If you have any questions I'm happy to help. I've spoken to tons of guys and it eases the anxiety to talk to someone who knows what you're going through. Tony.alcindor@Maletenance.com
Cheers
@maletenance1872 thanks for the great reply. In one video it seemed you were blaming yourself a bit for the BPH (ignoring symptoms, etc) as one who is currently cathed , scoped and waiting for TURP, i can tell you that no one knows the cause for sure. Some say stress is a factor. I'm 59 and nearing 60. It seems men are getting BPH a bit on the younger side of 60 these days. FYI, after my first three catheters ( 2 were just to drain while post gallbladder surgery) I discovered I could ask for loreazapam (Ativan) to help calm me down before catheter is inserted. Big help to me. I had been on tamsulosin to help me pee but everything stopped working after surgery to remove a necrotic gallbladder. First it was thought it was just the anesthetics used. Nope. 12 weeks out and still cathing. Anyways, no need to respond at length. You're a busy man. I've subscribed and will keep watching. Thanks again!
@@kevincameron1567 Hi Kevin, not that busy to support my catheter club members, and thank you for subscribing. I'm pivoting a little to include aging and all that goes with it. You and I are almost the same age. I'm 60. You certainly have been on a journey. great tip about the lorazepam.
Anyhow, I like to think that my support will help someone who is much smarter than I am, doing bigger and better things than I have ever done. If I can help them get through the day with something they learned here then maybe they can get on with solving some more pressing issues facing the world.
As for blaming myself...I did a little because I was aware that something was going on. I was even questioned about it and did nothing. The outcome may have been different or exactly the same. I don't know.
I just hope that people start to take a comprehensive approach to their overall health instead of a reactive role. It's our most important asset.
Cheers
By the way Kevin, sending you lots of good vibes. Keep on Truckin!
I am a walker...love it... this will be difficult for me... i will find out... thank you
I live in NYC and am a huge walker and bicyclist, which I had to put on hold until the catheter was out. It was not easy to be immobile for months, it just hurt. The funny thing is I actually filed my utility patent for an invention to make the use of urinary catheters hurt less so people can continue to be active. It was one of those things where I thought, there has to be a better way. The goal is to help millions and millions who will have to use a catheter lead a more normal and active life.
OMG I can totally identify with this! I made the mistake of agreeing to a few errands before going home, my wife had to pick up a few things, by the time we finally pulled up in front of our home, I could hardly get to the door.
Oh if only you had read this sooner. I could barely take a step it was so painful. I took a taxi like 3 blocks to get the rest of the way home. I think I still have PTSD from the whole experience.
I've had a catheter for a month now and have had no pain at all and only some irritance about a day after it was fitted. I walk to the shops and have ridden my electric bike for a short trip.
So i hope people don't think that they will be in pain. I think instead of helping , you maybe putting fear in catheter users.
Thank you for your comment and I'm really glad that you personally are having no pain and your activities of daily living have not been interrupted. Good for you!
My 90 year old friend walked home, a 45 min walk and he got no numbing cream with his first catheter fitting. They don't make people as tough as the older generations
Congratulations! That's fantastic that at 90 he has no mobility issues. God bless and I wish you and your friend great health.
Cheers
Thank you so much for the videos. I am watching them all right now. I haven’t found anyone else really talking about their experience. I was at the ER three days ago - mass pressing on my bladder got worse. Turned out my bladder wouldn’t fully empty so got the catheter. The first one was immediate hell! Numbing cream? Nope. I am a female but still. Like the worst UTI. Burning would NOT stop. They removed it and did a smaller one with lidocaine. Better on insertion but once it was in I just wanted home. They didn’t even give me a night bag. Told me it paid o just be a bit of pressure at times like i need to go to the bathroom. Makes me question if they ever had to have one. I am now doing all my research to understand how to help pain and such. This will be a tough 3 plus weeks.
Also me: Back at work two days after, working reclined from the couch. I am so glad feeling miserable is (unfortunately!!) expected
Hi Kay, I'm so sorry you have to deal with a catheter. Male or female it's miserable, to say the least. Such an archaic device. I too suffered in the ER. It took seven tries before it went in. I was in HELL. Buck-naked from the waist down screaming bloody murder from being probed by over half a dozen people. I still have PTSD and should probably seek counseling. It is truly amazing that they put that thing in you and send you home with no supplies, no knowledge of what to do with it, what to expect.....no nothing! It adds insult to injury. That's the main reason I started the channel. There was no one out there talking, which I understand based on the geography but so so many people for a variety of reasons will have to use a catheter at some point and need info on how to live with it. It scared the crap out of me when I had it not to mention how painful it was. Some people I've heard from had such a nice time with it and said I was exaggerating. Lucky them for not feeling much with a giant straw stuck in their privates. Anyhow, here's what will get you through.....take it one day at a time, even one hour at a time. Slow down when you walk, sit, or move...it reduces the friction and most importantly get your head right. It'll be a tough few weeks but you can do it. It's hopefully an ends to a means and getting back to great health. Feel free to reach out if you have any questions I didn't cover in the videos. We are all part of a club we never wanted to join and need to support each other, cause no one knows how it feels unless they've had a catheter.
Cheers, and wishing you great health.
@@kayfromtheg9846 Hi Kay, reclining on the couch was a perfect position. It helps to keep the catheter from rubbing on the tender inside walls of your bladder and preventing what I refer to as swamp urine. There's a video I did about it called "50 shades of pee" LOL. Listen we have to have a giggle or we would go crazy. I'm glad you found the videos and I hope they help.
Hang in there.
Cheers Tony
Sounds like the folk who told me, having a supra pubic catheter is not the end of the world. Obviously, nothing changes in their world, because they don't have one! Nor do they have any experiece as to what it is like to have one. I nolonger trust the medical profession, always research, and never take anyone's word for it. For a start, a Lotus Catheter has fewer problems than a Foley, but nobody wants to mention that either. No thanks, better to find a custom programme for my Interstim implant that works better than the one I was given initially.
Thankfully, my experience was not as unpleasant. I was not expecting to go home with a catheter the day it was put in. I did have some pains and discomfort afterwards. I’ll get it changed soon. Hopefully, it won’t be worse than the first time.
Count your blessings. From my experience and the tens of thousands that have visited my channel, you are the exception and I have my fingers crossed for you that it remains that way.
May I ask what your diagnosis is that led to catheter use?
Cheers, and wishing you great health.
When I got my first catheter it did hurt a little when they put it in and after that it was a little uncomfortable but not bad the only thing is no car I'm limited it on doing things I need a car but can't afford one
Tony, you should have stood up for the subway ride. I found there’s less pain when not sitting down. ESPECIALLY on the subway
I agree but I wasn't thinking straight! Brain overload. I was in the ER for hours and left in the morning with my first catheter and no explanations on how to live with the damn thing. To top it off the on-call urologist who finally got my catheter in after the 7th try could not be my urologist because he did not accept my insurance. What am I supposed to do now I asked the discharge person? Here's a list of urologists...good luck...and that was that! so when I got on the subway I was exhausted and was out of it just thinking "What the hell just happened to me!". The subway was an insult to injury.
Hopefully, I won't ever have a catheter again to have to take your advice.
i just had mine removed for the 3rd time last week. had aquablation surgery in december. wow that really sucks tony. i think i'm finally rid of it. on flomax and everything is working. thanks for all the helpful videos.@@maletenance
Does the feeling of it ever go away
No, not really! Think about it.....there's a giant straw stuck where giant straw should not be. I needed to slow everything down cause every time I moved 14" was moving back and forth. I found the whole thing miserable and unfortunately, it was the only way for me to urinate while I waited for surgery.
Cheers, and wishing you great health.
Tony