My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Dr. Karen Herbst properly diagnosed (with palpitation) my late partner who had Dercum‘s Disease after we found her (at the time, in San Diego) because my partner was misdiagnosed by multiple doctors in two different Oregon cities; a neurologist (Dr. Bell at St. Charles in Bend, OR) alleged she had ‘Blue Mood’ (depression from being diagnosed, and operated for breast cancer); that it was all ‘in her head’, and another (@OHSU in Portland) alleged fatty liver disease (claiming she had more fatty tissue around her liver than anyone he had ever seen before, but that it was simply her “new normal”). The diagnosis was a bittersweet relief, but it was nice that Dr. Herbert confirmed what we felt we already knew, when no one else would listen.
The model is a champion and a hero. Thanks so much for standing in for all of us. And she’s so strong. No crying, slapping, kicking or anything! It was all very informative and we hope she forgives you some day, Dr!
THE PATIENT IS A HERO TO SHARE HER BODY TO SHOW THIS. NO DR. HAS DIAGNOSED ME. I AM 73 AND KNOW I HAVE LIPEDEMA., I HAVE SO MANY SYMPTOMS. I SHOW DR.S MY BIG ARM AND NO REPLY, AND I HAVE DONE THIS FOR YEARS. THANK YOU
Where oh where does one find such a caring and thoughtful dr ,mine takes two months for an appointment, then gives me ten minutes, I don't think she has ever seen my body !
I have only recently realized that have had lipedema since puberty. None of the Dr.'s ever addressed it even when all the signs were in plain view, and complaints were voiced. I have never been obese, and always reasonably fit. Yet, when I repeatedly complained about, and even showed photographs of my incredibly swollen ankles and feet, along with the fat folds in my knees that never went away even when I was emaciated (weighing 94 lbs), I was dismissed by my PCP as being "dramatic." Recently, I was diagnosed with lipedematous alopecia. Even with this diagnosis, nobody connected the dots. I am 66 years old, and thanks to this information, I finally put the diagnostic puzzle together.
I'm just finding out at 30, but yes it has been upsetting because this whole time I think it's my fault (even when I severely restricted and the rest of me got skinny)
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Every time she says she’s moving to another area and palpating I’m saying ouch! This exam would put me under the bed for a month. A very deep thank you to this sweet lady going through this exam for us.
I've been reading about this because I'm showing symptoms & starting to have surface pain on my legs even just rubbing them but I was wondering the same thing like doesn't that hurt. I have two autoimmune diseases that both cause chronic pain & has caused substantial weight gain but there are areas that I just can't seem to lose it despite how much I try which is why I'm here
I love Dr. Herbst - she has been such a font of knowledge on the subject of Lipedema. Unfortunately patients report that she has recently stopped seeing new patients. The very few doctors who even diagnose and treat Lipedema with her level of expertise have LONG waitlists. We need more competent, trained clinicians!
A shout out the lady in the video who is the patient. That's take a lot of guts to stand up and offer your self as a example. You looked nervous. You dam you get my total respect for your Awseomness.
Thank you both, this helped me so much! To the patient-thank you for putting yourself out there, I know it couldn’t have been easy. To the Dr. thank you for mentioning the hyper mobility. I have hEDS and I believe I have lipidema. This was so helpful.
Amazing video, fantastic Doctor and explanation on palpation. I really admire the patient openness and bravery shown by the patient. It's videos like this that will change the world's understanding of Lipedema. Thank you for creating this!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I just want to say THANK YOU SO MUCH to the lady who volunteered for the exam. This video helped me alot as I have EDS Hypermobile Type and am suspecting I have lipedema. My mother has a fatty liver so I am going to get checked mow too. This video is life changing. Thank you to the Dr and the brave volunteer !!
@@kayceekrieg6064 Hi! I had my liver checked out just in case. I don't have fatty liver yet but could still get it in the future. Still unclear about a lipedema diagnosis, looking into it.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
This was massively helpful. A lot of research I’ve done doesn’t mention anywhere else on body apart from the bottom half of body- and the upper arms. Thank you. I think I have Lipedema, I also have hyper mobility !!!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size
In 1991-1993, I had a work accident in a glass plant, giving me an all body injury. The injury occurred with my right arm, at a full body connection. Everything was meatballs, nerves almost completely severed, muscles, etc. My lymph nodes were completely destroyed. I have had lymphedems, lipedema since that time. I was not told about it at the time that I was aware of. I died 2 times. I have increased fat accumulation since that time. All records have been destroyed. 😢 I have lived this way over 20 years.
I have nodules in almost all of those locations, and have always struggled to lose weight, even when extremely active and eating very healthy. I also have scars from multiple abdominal surgeries that ruined the muscles in my abdomen, and fibromyalgia. Fighting for disability for damage to my body and joints from things I've been through.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I have Poland syndrome and so one side of my body is smaller than the other. My larger side my arm is significantly bigger. I'm just now getting help for trauma and I'm looking forward to advocating for myself in this regard also. Thank you for showing me there's something I can do.
This Videos are so important for other countries. In Germany all Doctors say you can not have Lipedema in your tummy. Just legs, arms, and booty. Its so sad that they get angry if women tell them there are more areas where it can be.
It's a very distressing Dx, In Hudson Valley area of NY I have not been able to find a knowledgeable MD yet. My 29 yr old daughter Dx last yr in FL. We are most likely going to Burlington MA to the Lahey Hospital & Medical Center Hospital in Burlington, MA. Rebounding is a good exercise to help move the lymph, (make sure to get a bar for stability) treat.medicine.arizona.edu/sites/treat.medicine.arizona.edu/files/medicine-and-supplements-handout-fdrs-2016_without_color.pdf
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My question is, why is this doctor such a rare bird? I've lost count on how many doctors I've had to explain this condition to, and that includes female doctors as well. Incredibly frustrating.
@@Stacey-js1gm I cannot count the times I've been to a doctor and they hand me a print-out of an example of a 2000 calorie diet. And I'm like: I DONT EVEN EAT 2000 CALORIES & WHAT I DO EAT IS WAYYYY BETTER THAN WHATS ON THIS STUPID PAPER! LITERALLY DID YOU EVEN LISTEN TO ME?! And they're just dumbfounded that I didn't take the paper like a good little patient and go about my way. They have lost the ability to listen to their patients. Oh you want to lose weight? Here an Rx for Ozempic. 🤦♀️ No, I do not want your toxic drugs.....
@@thesupermom1975 To add insult to injury, we're *paying* them to talk down to us "non-male", "birthing people" of illegitimate gender. I've had all I can take with the profession. I avoid doctors at all costs (money and aggravation).
Very informative. I'm 67 and heavy my entire life. Never knew about this. Had one side mastectomy 4 yrs ago. Arm becoming tender from pit too elbow. Have appointment this week back at Cancer Dr about this.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Also, I'd love to see Dx on less advanced stage. A lot of us would prefer to diagnose and treat it in the early stages before the pain and fibrosis get worse, but videos mostly only show us patients with obvious lipedema.
@@LisaLisa-mx3hq Maybe not, but I mean for people with lipedema who are not or only barely overweight? What signs can we look for when there isn't much fat or fibrotic nodules to palpate?
@@globalgourmand that's my question too, as I wasn't big either. I'm starting to get there though and was diagnosed with Fibromyalgia 10-12 years ago.... Is it actually lipodema or with Fibromyalgia? I don't know and right now don't really care! How do we treat it!!??? It's like firemen having a seminar about fires while standing in front of a burning building with people inside... Treatment please!! 🙏❤️🙏
That’s fine and all but so many of us are in advanced stages and not even able to walk, after being told with disdain all our lives to just lose weight. Or accusing us of lying about our caloric intakes, logs, charts of our eating we showed. Well, many of us did lose weight on lowcarb/keto/paleo… and the disease persisted. It worsens terribly. If we don’t get diagnosed quickly in these later stages, the pain can be unbearable, the decrease in mobility into disability, the progression of Lipedema to lymphedema… all that. We are at the end of our rope and doctors like this are our last hope. I heard this year Dr. Herbst has stopped seeing new patients. Unfortunately there are still so few doctors who even treat this like she does. So many stage 1s have all the appointments that many of later stage are on wait lists of up to TWO years to see a specialist like her. I’m nearing my appointment after a yearlong wait and I’ve gone from walking pretty well with a cane to barely dragging my heavy legs along with a walker. This is life and death to many of us.
@@dorigutman6217 I hear your frustration, and empathize deeply. I would only posit that you are addressing different issues. One is the very unjust, unhelpful bias and stigma against fat people that prevents them from getting the care they deserve whether they have lipedema or not. A second is the overall ignorance or simple lack of experience/familiarity regarding lipedemia amongst general doctors, and the lack of specialists. I am with you on both of these My argument is one that prevents ever getting to those unbearable later stages. Virtually EVERY photo and video shows an advanced stage. How would life be different if you had known at age 15 or 20? But who is considering lipedema when its almost indistinguishable from normal fat? And then we end up in this situation where surgery is our only hope of relief....
To the patient… thank you for being vulnerable for us to learn. I have Lipademea and Lipoma tumors all over my body…the cure is the same as obese people… very low or zero low carb high protein medium to high animal fat. Exercise helps very little in the beginning… I am at my target weight finally and I still have Lipademea on my body but it’s going away slowly. ALL SEED OILS AND PROCESSED FOODS NEED TO LEAVE THE LIFESTYLE FOOD INTAKE
Is it really going away? The only thing I could do to get rid of lipedema was extended water fasting. We're talking 5+ days at a time with 0 food, only salt water. If I eat at a low calorie range, even if it's 0 carb keto diet, I will lose weight but NOT shrink my lipedema fat.
I’m 50. Ketosis anti inflammatory diet low dairy (organic ghee & butter are ok for me), low omega6, intermittent fasting, strength training, walking has improved my lipedema & CVI like none other. It makes a difference! PS updates below
@@xSunnyDaysx Chronic Venous Insufficiency. Venous system has trouble pumping blood back to the heart, then it pools, causes edema, and other problems. Diet and full body exercise has been paramount to manage it. Each few pounds of fat I lose and muscle built has made it better and I’m not overweight but as lean as sustainable is what I’m after. Lipedema and CVI symptoms often are seen together whether it’s “diagnosed” or not.
@@xSunnyDaysx I can’t find any help from “professionals” Doctors or otherwise. They are trained in pills or procedures. I have done experiments on myself and figuring out what decreases symptoms by understanding more how diet and movements effects circulation/inflammation/edema. I found a new book on fat I’m gonna read next to learn what it actually does and how it effects the body. Secret Life of Fat by Sylvia Tara PHD.
@@CalmVibesVee I understand. When i say i will educate myself i really mean educate myself. No doctor has helped me with any of the issues i am dealing with now. I have learned all the solutions from the internet. But this topic seems a bit under lighted. There’s barely anything in depth to read or watch. We need to know what the root cause is why the body makes excess fat. The only solution seems to be liposuction. But i’ve read that when people gained weight that the fat went into other weird places.
If I was examined like this it would be so painful. I have lumpy painful tissue practically all over my body. It's like painful cellulite but it's in random odd places as well as the regular places that you'd find cellulite. Lots of ridges and ropey areas that all hurt to touch and even when I'm not touching them. I have been told it's fibromyalgia but it seems like fibromyalgia plus more if that makes sense. I'm so tired of it all. I used to be able to exercise but that just aggravates everything and makes it worse.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
@@terrys.997 Yes I heard of her many years ago and found her interesting and helpful. Thank you for leaving a message though. I should take another look at her because there may be more up to date info.
Great info! I really wish more M.D’s would address these issues during yearly physicals or when pt’s are symptomatic. I have extremely large fat deposits on my back/waist.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
This is very informative. I'm 40 and my body shape almost look like hers except on the the tummy . I have a normal lipid profile , a1c is 5.0. I've been weight training at least 4 times a week . Even though I Iost weight ,my lower body would still be heavy and it's very frustrating. I stumble upon your video because I've been looking for a better exercise to decrease my lower body mass. Your video made me rethink about what might be my REAL problem. Thank you very much for the information.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
If you tissue can stretch easily and hold more fluids it’s cumulative and at a certain point if you aren’t doing resistance training the fluid never gets out and basically balloons. The best thing for EDS is resistance training starting slow and gradually increasing resistance. Make sure you sweat , there are resources for resistance training if you have bad knees already thi NG s you can do on a balance ball ect.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
So when i go to my primary care Dr, what specialty Dr do i ask for a referral to? I'm in Australia by the way. Thank you so much to the lady who assisted the Dr in this video. It was very brave of you and greatly appreciated. Edit:- what are your thoughts on compression garments as part of or only treatment? Thank you
Is this why all the knots hurt once I try to rub them out and causes a flare up and hard to walk it’s like I have knots all over my body and pitted dimples on legs
Very informative. I wish I had a doctor like you that knows what to look for. What kind of specialist should I see to get properly assessed for lipidema? Also what should one do to get rid of it or reduce it if you find you are retaining fluid? My body has become alot like the patient's in the video in the past year or so. After being on a medication for my RA I gained 20 Lb. which went mostly to my hips and stomach and even after going off it I could not lose more than a few pounds of it. I have never been this heavy in my life! I have hypermobile elbows and fingers (especially the last joints near the fingernails) and stretch marks but was ruled out on the Beighton Scale by a rheumatologist because I couldn't touch the floor, touch my wrist with my thumb, or touch my tongue to my nose. I've always wondered though whether I might have vascular EDS because I found out later that I have venous insufficiency pretty badly and some sort of problem in my carotid and vertebral arteries that two ultrasounds have interpreted differently; one saying I had plaque, the other just months later saying it's not plaque but thickening of the artery walls. I don't know what to think of it and have an appointment to see a Cardiologist in March to find out more. I have pitting edema in my lower legs which may be fully due to the venous insufficiency but I wonder whether it might be a combination of things.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My first lump was diagnosed as a lipoma without encapsulation. But as I've gotten more lumps and they are getting bigger, I've done my own research due to a heap of family members being diagnosed with EDS. And figured my problem is this. Now seeing this video am 100% sure if have lipodemia. My tummy is the same shape too which specialist is best to diagnose this?
Wait....hypermobility and flexibility can be symptoms? I just thought I was weird. I have swelling in my upper arms and legs that will not go away even with diet and exercise and I get numbness and tingling in my arms and legs but my doctors think it has something to do with my back from a car accident I was in 13 years ago.
Hi guys I don't know if I have limpodema but 8 mo ago was dx metabolic syndrome and prediabeties. I also have non hodgins lymphoma. Once dx with zero guidance at 5 ft 7 245 lbs bmi 37 I had to find my way out. I decided on a lower carb, low calorie food intake. I couldn't exercise as I just had a hip replacement. In 8 months I had changed glucose from 6.7 to 4.6 and lost 54 lbs 22 inches. I still have about 25 lbs to go for a medically healthy weight. I do think very strict recording each day of everything that went in my mouth and a quite low calorie restriction at 1000 calories a day and between 20 to 40 grams of carbs is my key. I've increased the calories and carbs to 1300 and 50 g carb a day in July and I'm still losing albeit slower. Good luck everyone being predisposed to diabetes is scary and losing weight takes so much concentration. I hope this helps some 1.
Ugh I have nodules in my arms. My mom had lipomas... mine are small. I was terrified it’s cancer until I remembered my mom had it too lol I didn’t realize hypermobility was a component and low blood pressure, which I got both.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Wow. Most GPs out there won't look at us, much less gives such a careful exam, I feel my lipedema is getting worse, been to several doctors and they won't even look at my legs. Where I can get help?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size
This doctor is amazing!! Ive never been cared for by a doctor like this EVER! Shoot, mine don't even touch me anymore. I literally have a lump on my body n she he didn't even touch it to feel if it felt harder or more fluid like! I couldn't believe it. I want this woman to take care of me, then maybe i will live past the age of 45. When was this recorded, where does she practice?
I have had an increase in stress for the last two year and suspect among other things to be in the second stages of Lipedema. I have already asked my PCP two times for a referral, which she keeps denying and using age as an excuse(along with herself) to blow me off. The last visit she was told that all this concerning me, because for the last six months it's becoming extremely difficult to walk and once again she just ignored me and walked out of the office, so don't know what to do to get this referral, which they insist is needed to be seen.
Thats a horrible shame - this healthcare system and these Dr's are completely unfazed -- all the hopps and obstacles we have to go through and demand to be heard and get a diagnosis. Find yourself a new Primary Care, who will listen to you and be open minded to your concerns and ailments, also come with notes and print outs/articles when possible. I'm getting closer to getting a lipoedema diagnosis - finally after 2 years in and out Dr and specialists visits
Try Carnivore way of eating and alternating extended fasting. Why? Because there is a connection between food intolerances and lipedema. And carnivore is an elimination diet.
It's not an elimination diet. Elimination Diet takes out everything that is most likely to cause sensitivities. Animal products are likely to cause sensitivities. As are processed products. The best Elimination Diet starts with fruit and vegetables of limited varieties.
I have never heard of food intolerances and lipidema. It is a combination of autoimmune, hormonal, and vascular problems. Everyone with the diet advice needs to educate themselves. This is a disease most do not understand. At one point, I was on a hardcore exercise regiment for five years and only lost 12 pounds. I have fasted once per week for the last 2 1/2 years and have hardly noticed any difference. This is not a diet issue.
I defiantly have HEDS, diagnosed as a child and my mom has lymphedema and I’ve always been bigger and can’t lose weight with a very out of proportion body. I think lipedema and EDS/hypermobility is linked somehow
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Has anyone here been diagnosed with pots ( postural orthostatic tachycardia syndrome) and Dysautonomia and it's symptoms??? I'm wondering what is done for lipedema on the scalp. I'm experiencing burning sensation with draining sounds when I can position my head perfectly. Chiari malformation has been diagnosed as well so I'm not sure what or where I need to start with more tests.
Yup 🙋♀️ diagnosed POTS & dysautonomia here . I see Dr Graham Exelby at Mermaid Beach Queensland Australia. Do you have the lipedema body shape? How is your health going?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.... ........... ..
I was just diagnosed with POTS. Waiting to have discussion with my primary to review. What did your dr so for it? I recently diagnose lipedema. Fibromyalgia is osteoarthritis. I also had breast cancer this past March. Lumpectomy with 33 radiation treatments. I’m anxious about it all. I haven’t been able to work in a year.
I think her large abdomen can be a result of large diastasis recti that is masked by lipoedema fat. She mentioned 4 pregnancies. That would explain why she might not have metabolic syndrome
Yep. That's what I have too. The combination absolutely ruins your self esteem! Not a day goes by that I don't want to cry after looking at myself. My heart goes out to anyone who's suffering too.
I have it all. I'm so tired of living with pain everyday. Its very depressing to be in constant pain. I wish we had good docs in my area to determine a care plan. I just keep being referred to psych. I don't have an issue with being a hypochondriac, I just need someone to care. I have like every single symptom, doc here thinks it could be cancer but I dont. I know its dercums and fibro. I also have lynch syndrome though so.. could be cancer sometime. Ugh life is so sucky.
It's so sad that I live in an area where we have a TON of doctors but none of them seem to want to know anything about lipedema. I'm not too far from Baltimore where there are more knowledgable doctors, but my problem is I have other health issues that make it hard for me to drive, but it's far enough away that I can't ask someone else to take me. I really wish I could find a local doctor who takes insurance. My doctor seemed completely ignorant about it and thought I was saying lipedemia, which is not the same thing.
So I am hyper mobile with thyroid disease (both types up & down) my lower half is waaay bigger than my upper. I always just assumed I was plain fat but now this helps me understand what is up with my body. I’ve also had lipomas removed. Where can I seek more info?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I have a nodule half thw size of a GOLF BALL half way between my arm pit and breast. It's fatty lunp lipoma diagnosed in a ct scan. I also have excessive fat on thighs.
She's wrong about the fat rolls on the back - that IS lipoedema...I have the same and I've had bariatric surgery - if it was 'lifestyle-induced' then I wouldn't have those rolls of back-fat. Like the patient, I also have hEDS.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Wow. Being double-jointed is an issue?! OMG. I'm in such shock. My doctors don't even ask me these questions. My HDLs used to be great, but then all of this just happened. I KNOW I have lipedema. I have NAFLD plus some other issues but I had no idea of these other diseases. How do we treat these things? Gah! I am so confused right now.
Is it possible to have lipedema on one hip? My right hip has unexplained protruding fat blob, my left side looks normal. I've had MRI/CT which doesn't show tumors or anything. No one can tell me why I have this issue. I am hypermobile with suspected EDS hypermobility.
Katarina Glowicka I've had a lipoma before (which was surgically removed) on my back and it's not solid in one spot like a lipoma. I almost wish it was because at least I would know the why and what.
I have that on my left side - my left side is basically my "lumpy" side. I have a fat pocket above my knee, a more pronounced saddle bag, and a blob on my ribcage, and a fatter upper arm with two blobs. None of it is like a moveable lipoma, it's more like thickened works under the skin.
Yes, look at the staging chart for Lipedema. I have had large disproportionate saddlebags since I was a teen - my legs, arms, and torso were all slim. It’s always been a nightmare to find pants that fit. At one time I was a small blouse size and an 18-20 pants size.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size
I wish I had a dr that cared this much..
Yes there is
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
SAME
Dr. Karen Herbst properly diagnosed (with palpitation) my late partner who had Dercum‘s Disease after we found her (at the time, in San Diego) because my partner was misdiagnosed by multiple doctors in two different Oregon cities; a neurologist (Dr. Bell at St. Charles in Bend, OR) alleged she had ‘Blue Mood’ (depression from being diagnosed, and operated for breast cancer); that it was all ‘in her head’, and another (@OHSU in Portland) alleged fatty liver disease (claiming she had more fatty tissue around her liver than anyone he had ever seen before, but that it was simply her “new normal”). The diagnosis was a bittersweet relief, but it was nice that Dr. Herbert confirmed what we felt we already knew, when no one else would listen.
Yeah mine that u see look exhausted and just don't have energy to give a shit
The model is a champion and a hero. Thanks so much for standing in for all of us. And she’s so strong. No crying, slapping, kicking or anything! It was all very informative and we hope she forgives you some day, Dr!
Thank you to the brave lady for sharing her experience and letting us see what the condition looks like in real life. This has been very useful :)
How great that patient is to go through this for us all who struggle with weight 😢 and other symptoms , she is a champion 👍❤️
Thank you to the patient. You are awesome. Your bravery and confidence are appreciated very much.
Thank you to the beautiful lady who volunteered to teach me about lipedema. I am at the beginning stage of this disease.
THE PATIENT IS A HERO TO SHARE HER BODY TO SHOW THIS. NO DR. HAS DIAGNOSED ME. I AM 73 AND KNOW I HAVE LIPEDEMA., I HAVE SO MANY SYMPTOMS. I SHOW DR.S MY BIG ARM AND NO REPLY, AND I HAVE DONE THIS FOR YEARS. THANK YOU
Same!!!
62 and in the same boat!...in the UK doctors just look at you with disdain and tell you to lose weight. Great!
What are the symptoms u faced
Where oh where does one find such a caring and thoughtful dr ,mine takes two months for an appointment, then gives me ten minutes, I don't think she has ever seen my body !
Time for a new doctor
I have only recently realized that have had lipedema since puberty. None of the Dr.'s ever addressed it even when all the signs were in plain view, and complaints were voiced. I have never been obese, and always reasonably fit. Yet, when I repeatedly complained about, and even showed photographs of my incredibly swollen ankles and feet, along with the fat folds in my knees that never went away even when I was emaciated (weighing 94 lbs), I was dismissed by my PCP as being "dramatic." Recently, I was diagnosed with lipedematous alopecia. Even with this diagnosis, nobody connected the dots. I am 66 years old, and thanks to this information, I finally put the diagnostic puzzle together.
Now that you have been diagnosed, have you done anything about it?
I'm just finding out at 30, but yes it has been upsetting because this whole time I think it's my fault (even when I severely restricted and the rest of me got skinny)
singer&voicedoc same here
the problem is that most docs have never heard about it. I just graduated and only by chance did I find out about it
@@xDomglmao soo glad my current Dr did we are on path to get diagnosed
Thanks to the lovely lady who modeled during the exam. My body is similar to yours.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Every time she says she’s moving to another area and palpating I’m saying ouch! This exam would put me under the bed for a month. A very deep thank you to this sweet lady going through this exam for us.
I was yelping as well 😢
And the BIGGEST thank you to that sweet lady
I've been reading about this because I'm showing symptoms & starting to have surface pain on my legs even just rubbing them but I was wondering the same thing like doesn't that hurt. I have two autoimmune diseases that both cause chronic pain & has caused substantial weight gain but there are areas that I just can't seem to lose it despite how much I try which is why I'm here
Oh wow, i was squirming too
I love Dr. Herbst - she has been such a font of knowledge on the subject of Lipedema. Unfortunately patients report that she has recently stopped seeing new patients. The very few doctors who even diagnose and treat Lipedema with her level of expertise have LONG waitlists. We need more competent, trained clinicians!
A shout out the lady in the video who is the patient. That's take a lot of guts to stand up and offer your self as a example. You looked nervous. You dam you get my total respect for your Awseomness.
Kudos to the patient and the dr is excellent explaining the condition. I wish I can be seen by this doctor
Thank you both, this helped me so much! To the patient-thank you for putting yourself out there, I know it couldn’t have been easy. To the Dr. thank you for mentioning the hyper mobility. I have hEDS and I believe I have lipidema. This was so helpful.
Look for ketogenic or carnivore lifestyle against this desease.
Amazing video, fantastic Doctor and explanation on palpation. I really admire the patient openness and bravery shown by the patient. It's videos like this that will change the world's understanding of Lipedema. Thank you for creating this!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
😮
This lady is my hero! Stone faced until the boobs. I don’t know how she held it together so well 😂🥰
I just want to say THANK YOU SO MUCH to the lady who volunteered for the exam. This video helped me alot as I have EDS Hypermobile Type and am suspecting I have lipedema. My mother has a fatty liver so I am going to get checked mow too. This video is life changing. Thank you to the Dr and the brave volunteer !!
i have hypermobility and mom with fatty liver! did you get a diagnosis?
@@kayceekrieg6064 Hi! I had my liver checked out just in case. I don't have fatty liver yet but could still get it in the future. Still unclear about a lipedema diagnosis, looking into it.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
The hug at the end was a beautiful finish. Thankyou to both.
This was massively helpful. A lot of research I’ve done doesn’t mention anywhere else on body apart from the bottom half of body- and the upper arms. Thank you. I think I have Lipedema, I also have hyper mobility !!!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size
In 1991-1993, I had a work accident in a glass plant, giving me an all body injury. The injury occurred with my right arm, at a full body connection. Everything was meatballs, nerves almost completely severed, muscles, etc. My lymph nodes were completely destroyed. I have had lymphedems, lipedema since that time. I was not told about it at the time that I was aware of. I died 2 times. I have increased fat accumulation since that time. All records have been destroyed. 😢 I have lived this way over 20 years.
I have nodules in almost all of those locations, and have always struggled to lose weight, even when extremely active and eating very healthy. I also have scars from multiple abdominal surgeries that ruined the muscles in my abdomen, and fibromyalgia. Fighting for disability for damage to my body and joints from things I've been through.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
i hope youre getting the support you deserve
Very useful. Thanks to the nice woman and highly professional doctor.
I have Poland syndrome and so one side of my body is smaller than the other. My larger side my arm is significantly bigger. I'm just now getting help for trauma and I'm looking forward to advocating for myself in this regard also. Thank you for showing me there's something I can do.
One side on me is larger too,my arm and my leg/knee
These are my heroes! Thanks, ladies!
This Videos are so important for other countries. In Germany all Doctors say you can not have Lipedema in your tummy. Just legs, arms, and booty. Its so sad that they get angry if women tell them there are more areas where it can be.
They say you can't have it in your breasts either but that's not proven to be wrong!🤦
Thanks to this wonderful lady to share this. I think I will be seeing a new Dr soon about this.
Well that pretty much told me I’ve got this 🥺 And no DR was ever able to figure this out; I just finally did after doing tons of research!
It's a very distressing Dx, In Hudson Valley area of NY I have not been able to find a knowledgeable MD yet. My 29 yr old daughter Dx last yr in FL. We are most likely going to Burlington MA to the Lahey Hospital & Medical Center
Hospital in Burlington, MA. Rebounding is a good exercise to help move the lymph, (make sure to get a bar for stability) treat.medicine.arizona.edu/sites/treat.medicine.arizona.edu/files/medicine-and-supplements-handout-fdrs-2016_without_color.pdf
Check Out Dr Melissa Gallagher on RUclips, FB, and Instagram. She has a lot of knowledge on this. Natural Health Resources
@@blclanee859 Thank you! I have checked out her site and there is a lot of great info there💗
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
We all need a doctor like this ❤
My question is, why is this doctor such a rare bird? I've lost count on how many doctors I've had to explain this condition to, and that includes female doctors as well.
Incredibly frustrating.
@@Stacey-js1gm I cannot count the times I've been to a doctor and they hand me a print-out of an example of a 2000 calorie diet. And I'm like: I DONT EVEN EAT 2000 CALORIES & WHAT I DO EAT IS WAYYYY BETTER THAN WHATS ON THIS STUPID PAPER! LITERALLY DID YOU EVEN LISTEN TO ME?! And they're just dumbfounded that I didn't take the paper like a good little patient and go about my way. They have lost the ability to listen to their patients. Oh you want to lose weight? Here an Rx for Ozempic. 🤦♀️ No, I do not want your toxic drugs.....
@@thesupermom1975
To add insult to injury, we're *paying* them to talk down to us "non-male", "birthing people" of illegitimate gender.
I've had all I can take with the profession. I avoid doctors at all costs (money and aggravation).
@@Stacey-js1gm 👏 Agree 100%
Very informative. I'm 67 and heavy my entire life. Never knew about this. Had one side mastectomy 4 yrs ago. Arm becoming tender from pit too elbow. Have appointment this week back at Cancer Dr about this.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Also, I'd love to see Dx on less advanced stage. A lot of us would prefer to diagnose and treat it in the early stages before the pain and fibrosis get worse, but videos mostly only show us patients with obvious lipedema.
I don't feel like Hers is an advanced stage at all!
@@LisaLisa-mx3hq Maybe not, but I mean for people with lipedema who are not or only barely overweight? What signs can we look for when there isn't much fat or fibrotic nodules to palpate?
@@globalgourmand that's my question too, as I wasn't big either. I'm starting to get there though and was diagnosed with Fibromyalgia 10-12 years ago....
Is it actually lipodema or with Fibromyalgia?
I don't know and right now don't really care!
How do we treat it!!???
It's like firemen having a seminar
about fires while standing
in front of a burning building
with people inside...
Treatment please!! 🙏❤️🙏
That’s fine and all but so many of us are in advanced stages and not even able to walk, after being told with disdain all our lives to just lose weight. Or accusing us of lying about our caloric intakes, logs, charts of our eating we showed. Well, many of us did lose weight on lowcarb/keto/paleo… and the disease persisted. It worsens terribly. If we don’t get diagnosed quickly in these later stages, the pain can be unbearable, the decrease in mobility into disability, the progression of Lipedema to lymphedema… all that. We are at the end of our rope and doctors like this are our last hope. I heard this year Dr. Herbst has stopped seeing new patients. Unfortunately there are still so few doctors who even treat this like she does. So many stage 1s have all the appointments that many of later stage are on wait lists of up to TWO years to see a specialist like her. I’m nearing my appointment after a yearlong wait and I’ve gone from walking pretty well with a cane to barely dragging my heavy legs along with a walker. This is life and death to many of us.
@@dorigutman6217 I hear your frustration, and empathize deeply. I would only posit that you are addressing different issues. One is the very unjust, unhelpful bias and stigma against fat people that prevents them from getting the care they deserve whether they have lipedema or not. A second is the overall ignorance or simple lack of experience/familiarity regarding lipedemia amongst general doctors, and the lack of specialists. I am with you on both of these
My argument is one that prevents ever getting to those unbearable later stages. Virtually EVERY photo and video shows an advanced stage. How would life be different if you had known at age 15 or 20? But who is considering lipedema when its almost indistinguishable from normal fat? And then we end up in this situation where surgery is our only hope of relief....
To the patient… thank you for being vulnerable for us to learn. I have Lipademea and Lipoma tumors all over my body…the cure is the same as obese people… very low or zero low carb high protein medium to high animal fat. Exercise helps very little in the beginning… I am at my target weight finally and I still have Lipademea on my body but it’s going away slowly. ALL SEED OILS AND PROCESSED FOODS NEED TO LEAVE THE LIFESTYLE FOOD INTAKE
Is it really going away? The only thing I could do to get rid of lipedema was extended water fasting. We're talking 5+ days at a time with 0 food, only salt water. If I eat at a low calorie range, even if it's 0 carb keto diet, I will lose weight but NOT shrink my lipedema fat.
Look for Dr. Leslyn Keith on ketogenic diet and carnivore diet against lymphoedema and lipodema.
I’m 50. Ketosis anti inflammatory diet low dairy (organic ghee & butter are ok for me), low omega6, intermittent fasting, strength training, walking has improved my lipedema & CVI like none other. It makes a difference!
PS updates below
What is CVI?
@@xSunnyDaysx
Chronic Venous Insufficiency. Venous system has trouble pumping blood back to the heart, then it pools, causes edema, and other problems. Diet and full body exercise has been paramount to manage it. Each few pounds of fat I lose and muscle built has made it better and I’m not overweight but as lean as sustainable is what I’m after. Lipedema and CVI symptoms often are seen together whether it’s “diagnosed” or not.
@@CalmVibesVee Thank you for the great explanation. I will educate myself on that matter.
@@xSunnyDaysx I can’t find any help from “professionals” Doctors or otherwise. They are trained in pills or procedures. I have done experiments on myself and figuring out what decreases symptoms by understanding more how diet and movements effects circulation/inflammation/edema.
I found a new book on fat I’m gonna read next to learn what it actually does and how it effects the body. Secret Life of Fat by Sylvia Tara PHD.
@@CalmVibesVee I understand. When i say i will educate myself i really mean educate myself. No doctor has helped me with any of the issues i am dealing with now.
I have learned all the solutions from the internet. But this topic seems a bit under lighted. There’s barely anything in depth to read or watch. We need to know what the root cause is why the body makes excess fat. The only solution seems to be liposuction. But i’ve read that when people gained weight that the fat went into other weird places.
If I was examined like this it would be so painful. I have lumpy painful tissue practically all over my body. It's like painful cellulite but it's in random odd places as well as the regular places that you'd find cellulite. Lots of ridges and ropey areas that all hurt to touch and even when I'm not touching them. I have been told it's fibromyalgia but it seems like fibromyalgia plus more if that makes sense. I'm so tired of it all. I used to be able to exercise but that just aggravates everything and makes it worse.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Research Dercums Disease. Dr. Karen Herbst has videos on this
@@terrys.997 Yes I heard of her many years ago and found her interesting and helpful. Thank you for leaving a message though. I should take another look at her because there may be more up to date info.
@@allmovies1791 That's a relief. I expect your were delighted. I'll take a look myself.
I had no idea that it wasn't normal for people to not touch the floor with flat hands
Great info! I really wish more M.D’s would address these issues during yearly physicals or when pt’s are symptomatic. I have extremely large fat deposits on my back/waist.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
This is very informative. I'm 40 and my body shape almost look like hers except on the the tummy . I have a normal lipid profile , a1c is 5.0. I've been weight training at least 4 times a week . Even though I Iost weight ,my lower body would still be heavy and it's very frustrating. I stumble upon your video because I've been looking for a better exercise to decrease my lower body mass. Your video made me rethink about what might be my REAL problem. Thank you very much for the information.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I need this doctor!!!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Butchers broom has helped me a lot with my symptoms also, using it with horse chestnut. Just spreading the word.
Great to hear. How do you use it? Internally with powder, tea, capsule? Or topically as a poultice? Thanks
wow - she was very tolerant for the pressing on her skin - I'd be thru the ceiling!!
Hi, how does flexibility equate with the progression of lipedema? I didn't understand that part.
ca. 1/2 of lipedema patients have hypermobility, thus it can be a hint for the diagnosis
Not a "progression of", rather a marker, a red flag, an alarm warning us there's something wrong.
If you tissue can stretch easily and hold more fluids it’s cumulative and at a certain point if you aren’t doing resistance training the fluid never gets out and basically balloons. The best thing for EDS is resistance training starting slow and gradually increasing resistance. Make sure you sweat , there are resources for resistance training if you have bad knees already thi NG s you can do on a balance ball ect.
Best doctor ever ... so sensitive
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
So when i go to my primary care Dr, what specialty Dr do i ask for a referral to? I'm in Australia by the way. Thank you so much to the lady who assisted the Dr in this video. It was very brave of you and greatly appreciated.
Edit:- what are your thoughts on compression garments as part of or only treatment? Thank you
Is this why all the knots hurt once I try to rub them out and causes a flare up and hard to walk it’s like I have knots all over my body and pitted dimples on legs
Very informative. I wish I had a doctor like you that knows what to look for. What kind of specialist should I see to get properly assessed for lipidema? Also what should one do to get rid of it or reduce it if you find you are retaining fluid? My body has become alot like the patient's in the video in the past year or so. After being on a medication for my RA I gained 20 Lb. which went mostly to my hips and stomach and even after going off it I could not lose more than a few pounds of it. I have never been this heavy in my life!
I have hypermobile elbows and fingers (especially the last joints near the fingernails) and stretch marks but was ruled out on the Beighton Scale by a rheumatologist because I couldn't touch the floor, touch my wrist with my thumb, or touch my tongue to my nose. I've always wondered though whether I might have vascular EDS because I found out later that I have venous insufficiency pretty badly and some sort of problem in my carotid and vertebral arteries that two ultrasounds have interpreted differently; one saying I had plaque, the other just months later saying it's not plaque but thickening of the artery walls. I don't know what to think of it and have an appointment to see a Cardiologist in March to find out more. I have pitting edema in my lower legs which may be fully due to the venous insufficiency but I wonder whether it might be a combination of things.
Hey! I was diagnosed with lipedema by a phlebologist.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
@@allmovies1791 plz provide link
@@sameerabegum1395 ruclips.net/video/Em-H9j8HplM/видео.html
My first lump was diagnosed as a lipoma without encapsulation. But as I've gotten more lumps and they are getting bigger, I've done my own research due to a heap of family members being diagnosed with EDS. And figured my problem is this. Now seeing this video am 100% sure if have lipodemia. My tummy is the same shape too which specialist is best to diagnose this?
are these doctors exist in real life? 😕
terrapin nj
Pamela Pelletier, who's your doctor there?
Yes they do!
my doctor in Sweden never even heard about this
Not in UK :'(
Wait....hypermobility and flexibility can be symptoms? I just thought I was weird. I have swelling in my upper arms and legs that will not go away even with diet and exercise and I get numbness and tingling in my arms and legs but my doctors think it has something to do with my back from a car accident I was in 13 years ago.
Wow. What a nice doctor. I would love to know more about treatment
lipomas everywhere, hypermobility, fluid build up, big belly full of lumps, this is me! wish I could get treatment.
Hi guys I don't know if I have limpodema but 8 mo ago was dx metabolic syndrome and prediabeties. I also have non hodgins lymphoma. Once dx with zero guidance at 5 ft 7 245 lbs bmi 37 I had to find my way out. I decided on a lower carb, low calorie food intake. I couldn't exercise as I just had a hip replacement. In 8 months I had changed glucose from 6.7 to 4.6 and lost 54 lbs 22 inches. I still have about 25 lbs to go for a medically healthy weight. I do think very strict recording each day of everything that went in my mouth and a quite low calorie restriction at 1000 calories a day and between 20 to 40 grams of carbs is my key. I've increased the calories and carbs to 1300 and 50 g carb a day in July and I'm still losing albeit slower. Good luck everyone being predisposed to diabetes is scary and losing weight takes so much concentration. I hope this helps some 1.
Where can I find a Dr like this in my area. The knowledge & compassion is awesome.
Ugh I have nodules in my arms. My mom had lipomas... mine are small. I was terrified it’s cancer until I remembered my mom had it too lol I didn’t realize hypermobility was a component and low blood pressure, which I got both.
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Wow. Most GPs out there won't look at us, much less gives such a careful exam, I feel my lipedema is getting worse, been to several doctors and they won't even look at my legs. Where I can get help?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size
This doctor is amazing!! Ive never been cared for by a doctor like this EVER! Shoot, mine don't even touch me anymore. I literally have a lump on my body n she he didn't even touch it to feel if it felt harder or more fluid like! I couldn't believe it. I want this woman to take care of me, then maybe i will live past the age of 45. When was this recorded, where does she practice?
Thanks to Dr and brave lady
I have had an increase in stress for the last two year and suspect among other things to be in the second stages of Lipedema. I have already asked my PCP two times for a referral, which she keeps denying and using age as an excuse(along with herself) to blow me off. The last visit she was told that all this concerning me, because for the last six months it's becoming extremely difficult to walk and once again she just ignored me and walked out of the office, so don't know what to do to get this referral, which they insist is needed to be seen.
Thats a horrible shame - this healthcare system and these Dr's are completely unfazed -- all the hopps and obstacles we have to go through and demand to be heard and get a diagnosis. Find yourself a new Primary Care, who will listen to you and be open minded to your concerns and ailments, also come with notes and print outs/articles when possible. I'm getting closer to getting a lipoedema diagnosis - finally after 2 years in and out Dr and specialists visits
Thank you so much for sharing this with us! Very helpful!!
@Karen Herbst, when you say “nodules,” is that the same as lipomas?
Can you suggest a type of dr who's knowledgeable in this? I'm 99% sure I have this along with my fibromyalgia
So do I 😢 have you been able to get a diagnosis or treatment since your post 2yrs ago?
In our healthsystem of getting patients in and out and overbooking, this is almost bizarre to watch a doctor so a more than 5 minute exam!
Try Carnivore way of eating and alternating extended fasting. Why? Because there is a connection between food intolerances and lipedema. And carnivore is an elimination diet.
It's not an elimination diet. Elimination Diet takes out everything that is most likely to cause sensitivities. Animal products are likely to cause sensitivities. As are processed products. The best Elimination Diet starts with fruit and vegetables of limited varieties.
@@TraceyMush Sorry, but you are wrong.
I have never heard of food intolerances and lipidema.
It is a combination of autoimmune, hormonal, and vascular problems.
Everyone with the diet advice needs to educate themselves.
This is a disease most do not understand.
At one point, I was on a hardcore exercise regiment for five years and only lost 12 pounds. I have fasted once per week for the last 2 1/2 years and have hardly noticed any difference.
This is not a diet issue.
@@beverlycrowell_ So you didn't try ketogenic or Carnivore way of life. Many lipedema patients have successes there.
@@olenjka55
I do not believe in extreme diets.
I am low carb.
Hey I’m a doctor and this is more looking into lipedema the modular areas aren’t usually in lymphedema
I wonder what hyper-mobility / flexibility has to do with lipedema?
Me too! I also have it since my childhood, I already feared it could be EDS (Ehlers Danlos Syndrome)
I defiantly have HEDS, diagnosed as a child and my mom has lymphedema and I’ve always been bigger and can’t lose weight with a very out of proportion body. I think lipedema and EDS/hypermobility is linked somehow
EDS/HSD and Lipoedema are comorbid conditions
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
@OP: ca 1/2 of lipedema patients have hypermobility = it can be a diagnostic clue for the doc
Has anyone here been diagnosed with pots ( postural orthostatic tachycardia syndrome) and Dysautonomia and it's symptoms??? I'm wondering what is done for lipedema on the scalp. I'm experiencing burning sensation with draining sounds when I can position my head perfectly. Chiari malformation has been diagnosed as well so I'm not sure what or where I need to start with more tests.
Yup 🙋♀️ diagnosed POTS & dysautonomia here . I see Dr Graham Exelby at Mermaid Beach Queensland Australia. Do you have the lipedema body shape? How is your health going?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.... ........... ..
I was just diagnosed with POTS. Waiting to have discussion with my primary to review. What did your dr so for it? I recently diagnose lipedema. Fibromyalgia is osteoarthritis. I also had breast cancer this past March. Lumpectomy with 33 radiation treatments. I’m anxious about it all. I haven’t been able to work in a year.
I think her large abdomen can be a result of large diastasis recti that is masked by lipoedema fat. She mentioned 4 pregnancies. That would explain why she might not have metabolic syndrome
Good observation. Curious why no one - neither medical personnel or trainers at the gym - have mentioned that possibility to her.
Yep. That's what I have too. The combination absolutely ruins your self esteem! Not a day goes by that I don't want to cry after looking at myself.
My heart goes out to anyone who's suffering too.
What is that?
I have it all. I'm so tired of living with pain everyday. Its very depressing to be in constant pain. I wish we had good docs in my area to determine a care plan. I just keep being referred to psych. I don't have an issue with being a hypochondriac, I just need someone to care. I have like every single symptom, doc here thinks it could be cancer but I dont. I know its dercums and fibro. I also have lynch syndrome though so.. could be cancer sometime. Ugh life is so sucky.
ruclips.net/user/MetabolismoTV
What doctor diagnoses lipedema and lymphedema?
Are there lifestyle risk factors for lipedema? Certain foods? Smoking? Alcohol use? Exercise level? Sleep?
What type of doctor would you see to diagnose this? And what type of treatments are available to treat Lipedema.
It's so sad that I live in an area where we have a TON of doctors but none of them seem to want to know anything about lipedema. I'm not too far from Baltimore where there are more knowledgable doctors, but my problem is I have other health issues that make it hard for me to drive, but it's far enough away that I can't ask someone else to take me. I really wish I could find a local doctor who takes insurance. My doctor seemed completely ignorant about it and thought I was saying lipedemia, which is not the same thing.
Very informative. Thank you to the women who helped. It would have been nice to say her first name.
So I am hyper mobile with thyroid disease (both types up & down) my lower half is waaay bigger than my upper. I always just assumed I was plain fat but now this helps me understand what is up with my body. I’ve also had lipomas removed. Where can I seek more info?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Been going to my doctor and the ER since May with no results until this video
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
Me gustaría que pusieran la traducción en español saludos de México.
Are lipomas related to lymedema
A very helpful video. Thanks for the information
Does anyone know of any doctors who can diagnose and treat this with water assisted tumescent liposuction in the greater Detroit area?
I have this at my arms and calfs, but no nodular tissues? Is it possible?
How do I get a doctor like this?
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I have a nodule half thw size of a GOLF BALL half way between my arm pit and breast. It's fatty lunp lipoma diagnosed in a ct scan. I also have excessive fat on thighs.
She's wrong about the fat rolls on the back - that IS lipoedema...I have the same and I've had bariatric surgery - if it was 'lifestyle-induced' then I wouldn't have those rolls of back-fat.
Like the patient, I also have hEDS.
I have hEDS and I think I have lipoedema too!
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
I need more information on treatments and causes please
How does one decrease fluid tho?
Is cellulite a form of lipedema?
What kind of specialists doctor can one go to get diagnosed?
What dr or specialist do i see for a diagnosis? Im currently seeing a rheumatologist
What kind of doctor do we go for diagnosis? Treatment?
I want to see this doctor!
I’m pretty sure I have this but can’t feel any nodules, I have the ankle cuffs though
What type of doctor treats this? Dermatologist?
so many people say you cant have it in your hands , she mentions it here
Wow. Being double-jointed is an issue?! OMG. I'm in such shock. My doctors don't even ask me these questions. My HDLs used to be great, but then all of this just happened. I KNOW I have lipedema. I have NAFLD plus some other issues but I had no idea of these other diseases. How do we treat these things? Gah! I am so confused right now.
What kind of doctor checks for this?
Is it possible to have lipedema on one hip? My right hip has unexplained protruding fat blob, my left side looks normal. I've had MRI/CT which doesn't show tumors or anything. No one can tell me why I have this issue. I am hypermobile with suspected EDS hypermobility.
Katarina Glowicka I've had a lipoma before (which was surgically removed) on my back and it's not solid in one spot like a lipoma. I almost wish it was because at least I would know the why and what.
Maybe lymphodema? They get confused often and lympho is not symmetrical.
jerrysizzler44 maybe? I'll ask my pcp again. It's just in a spot that seems weird to me - upper hip below the Iliac crest.
I have that on my left side - my left side is basically my "lumpy" side. I have a fat pocket above my knee, a more pronounced saddle bag, and a blob on my ribcage, and a fatter upper arm with two blobs. None of it is like a moveable lipoma, it's more like thickened works under the skin.
Yes, look at the staging chart for Lipedema. I have had large disproportionate saddlebags since I was a teen - my legs, arms, and torso were all slim. It’s always been a nightmare to find pants that fit. At one time I was a small blouse size and an 18-20 pants size.
where is this doc located? i need her in my life..
😅 I would be laughing during the belly exam LoL
What can be the cure for this?
What's the difference between Dercum's vs lipedema
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size.............................
would body brushing help her saddlebags? thats where my lipedema is (self diagnosed) struggling to loose last 30 pounds..
My leg was swollen for many months and I almost died of depression, but thank God I came across Dr Iyhere on youtube. With his herbal medicine I was cured and my leg went back to it normal size