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5 Things I Wish I'd Known About CPAP Masks from the Get-Go
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- Опубликовано: 14 авг 2024
- I'm still getting the hang of this whole CPAP thing, but in the six months since I started therapy, I've learned SO MUCH about masks that I wish someone had told me before I started a symbiotic relationship with one.
The most important things I wish I had known:
1) Masks come in all shapes and sizes, and what works for one person won't work for another.
2) If you hate the first mask you're prescribed, most DMEs will let you swap it out within the first 30 days, or they'll just give you a new one.
3) Many modern masks, like the Philips Dreamwear and ResMed "i" series, are modular, so if you have a full face mask, you can just swap two relatively inexpensive bits and have a completely different mask.
4) Even a lifelong mouth-breather like me can learn to nose-breathe, although what works for one person won't necessarily work for everyone.
5) I don't care who you are, there's almost certainly a CPAP mask that will work for you. Don't give up. Be stubborn! Decide that you're going to find a mask that works and you will.
Some affiliate links to products mentioned in this video:
- Here's a direct link to CPAPSupplyUSA's storefront, if you're looking for a reliable provider of legitimate CPAP supplies via Amazon: www.amazon.com...
- Navage Saline Nasal Irrigator: amzn.to/37R3Zbu
- Xlear Nasal Spray with Xylitol (a safe alternative to steroid nasal sprays) amzn.to/3k0MjQu
- Boil-and-bite mouth guard: amzn.to/3xVnmus
- A chin strap that seems to work for a lot of people: amzn.to/3snzhQV
(As an Amazon Associate, I earn from qualifying purchases, but it doesn't cost you anything extra).
Here's a recent episode of TheLankyLefty27 in which Jason discusses using denture cream to solve mouth leaks: • CPAP with a Beard: IMP...
Here's some more information about Orthotropics and Mewing, although, again, I'm skeptical about the claimed benefits beyond simply allowing me to breathe through my nose: orthotropics-n...
Chapters:
0:00 Intro
0:58 Opening credits
1:12 My first CPAP mask and why it didn't work
3:38 How I learned to keep my mouth closed
7:38 Did you know you can trade in your first CPAP mask?
8:28 The modularity of modern masks
14:26 What works for me does NOT work for my wife
17:34 The Cult of Full Face Masks
18:58 Philips vs. ResMed nasal pillows
23:07 TL;DR summary of everything I wish I'd known from the giddy-up
Great stuff, Dennis. One comment my sleep doc made when we were discussing mask choices for my forthcoming CPAP: "All masks leak." I'm sure that's partly true, but I'm also sure there are degrees of leakiness. Some leak more than others depending on the face, facial hair, etc. Keep up the fine work, sir!
That's true! It's absolutely true. But it's complicated. These things have to ventilate so you're not breathing in your own exhaled CO2. And each type of mask has a different intended leak rate. You'll typically find that anything less than 24 liters per minute is the correct amount of leakage for the average mask with the average user at the average pressure. Anything above that, the machine has to work harder to maintain your prescribed pressure.
So, yeah, I need to get into the habit of being more specific about this stuff. I use "leaks" as shorthand for "large, unintentional leaks outside the design parameters of the mask and machine." But that's not obvious! And I promise I'll do a better job of spelling that out going forward.
@@AdventureswithCPAP certainly wasn't a criticism - just sharing what my doc said, for what that's worth.
@@GregRobinsonHD, I think you know me well enough by now to know that if I interpreted it as a criticism, I would have told you to go eff yourself. I interpreted it instead as incredibly helpful and meaningful feedback, which I intend to take to heart!
I've had memory foam masks for the last few months..they don't fart and leak. 😊
Get on carnivore where many attest to having been able to stop the cpap and snoring within weeks.
I had a massive hemmorhagic stroke caused by sleep apnea. I am half paralyzed because I did not have a CPAP. Wear it!
I hope you are doing well and better than when you posted this comment.
I have heard it from many people. You can hear them cough or literally stop breathing. Many never get to sleep at all they never reach REM. They claim they just can't tolerate on their face and they get clostrophbia so they do nothing. So many days get shaved off of your life if you don't get your head together and you learn how to tolerate some discomfort. Get ahold of yourself and control your life. The first day after I woke up after using my first CPAP. Was amazing. I hadn't slept like that since I was a kid. I was a new man. That was 31 years ago. I can not sleep without it. Without it I have bad headaches. It's miserable. I dread possible power outages. Long term ones for 3-5 days means no sleep for me for 3-5 days. I am on my 6th machine. Do yourself a favor get it and use it. Loose your stupid ego. No one is perfect. There is no shame in discovering you're not either. You wanna be a real man? Take control of your heath!
@dewhittjames im so glad you caught it on time im 40 and i believe i had it since i was in my late 20s when i had a panic attack after waking up gasping for air one night and due to that i lost my job back then. Just recently when i was tired of waking up tired and and couldn't think clear i said let me get my cpap on and started using it while watching tv and reading, got used it and now i love it. I sleep like a baby. I even was on tears of remembering all those years that i threw away and wasn't living right. Now i can't live without it til i get to reach my weight goal. You should get a battery pack that can last you for days.
@dewhittjames hey I thing resmed makes a battery powered cpap .... its like a travel type... I haven't tried it but you might look into it for power outages
Sorry to hear about your condition. Did you try to fix the underlying problem causing Sleep Apnea? The forced air of a Cpap is just a bandaid solution. The quick & easy thing for a Dr. Is to just send you to a sleep specialist so they can sell you or your insurance an overpriced Cpap machine with all the accessories ect.
I’ve worked in sleep as a tech and CPAP coach over the last 30 years. I’ve spent six years studying failing CPAP users for a full year after one month of non-compliance and have a huge catalog of things that keep people from succeeding with CPAP. I will retire in six months and plan on starting YT channel called Sleepy Tom, the CPAP Evangelist. I would do well to give a small percentage of the valuable info you have given in this presentation. I would love to add my two cents worth from a professional stand-point. Let me know. Meanwhile, you have enhanced my sorrow over how the various professionals in my field treat patients who need help with CPAP. Many thanks to you.
Start it now!
I have a question,,, if the doctor refers you to take a home sleep study test like thr wrist watch device,,, can someone let a family member or wife or husband wear the device for them? Like will the watch device or readings be able to determine that its not the person that was referred for the sleep study test at home??
See my comment above over an attempt to sell a machine to me that was one of their rental machines as if it were new.
@@YES-IM-TROLLING Interesting. I have suspected such swithcheroos when scoring home sleep studies, especially during the years when departments of transportation strictly enforced sleep studies for truck drivers with potential sleep apnea (RIP you pancaked drivers who never knew what hit you from behind). I have never had the ability to verify such suspicions.
@@YES-IM-TROLLINGAre you a Truck Driver that don’t want the DOT all in your life? 😂 the aggravation of dealing with all this crap? If so I’m right there with ya, I have to go this week to set up a sleep study, because they got me dozing off a bit on camera, I do believe I may have a touch of sleep apnea but honestly my MAIN ISSUE is my jobs stupid “schedule” or lack of…… you never know when you’re gonna work, how long you’re gonna be gone….. you just wait by the phone and they call you and say “be here at __________ time” and it could be anywhere from 18 hours from the call, all the way down to can you come in RIGHT NOW!! Usually it’s about a 10 to 12 hour heads up, the problem with that is it’s NEVER the same time Daily they may give you 10 hours off in between, they may give you 48 hours off in between so YOU NEVER CAN PLAN OUT YOUR SLEEP!!! So what ALWAYS HAPPENS TO ME, I just sleep when I’m tired and wake up naturally, and IT ALMOST ALWAYS WORKS OUT, that they call me after I done had a big 10 hour good sleep, then they will call me maybe 2 hours after I wake up, and say “be here…. 12 hours from now” so now I’m in a situation where I am WELL RESTED, done Been awake 2 hours, got to be at work in 12 hours….. AND I JUST CANT GO TO SLEEP!! So now RIGHT WHEN IM GETTING SLEEPY…… it’s time to go to work….. and I usually get runs that I have to use up my whole 14 hour clock, plus I live an hour away from my job…… so now I’m at a point where towards the end of my run I’m pushing at OVER 30 hours STRAIGHT AT BEING AWAKE!!! And this has been the case for the couple times they got me dozing off, but now THEY ARE FORCING ME TO DO THE SLEEP STUDY, well I will probably show to have sleep apne, because I have had some rapid weight gain over the last few years…. And I do wake up sometimes from night terrors of someone choking me or smothering me, or like I am drowning in a pool and can’t breathe…… SO I WILL PROBABLY FAIL THE SLEEP STUDY (so to speak) but I believe THE REAL PROBLEM IS MY JOB AND THE STUPID HOURS, and they TELL YOU “ if you think you’re tired and can’t do the run just say no to the run SAFETY IS #1 😁” then hit me with the fake smile……. But just as I thought they would do the times I have told them I don’t think I’m going to be able to get enough sleep so I can’t take this run, well they get mad at me, they purposely punish me by giving me multiple days off with no work, they know that I enjoy getting hours so they punish me basically saying to me without actually saying it “ either you take what we got for you to do or you will sit your ass at home with no money“ ANY TRUCK DRIVER KNOWS THIS PAIN….. so anyway now I’m at a point where I’m going to be forced to probably get a CPAP (which COULD BE BENEFICIAL, OR COULD BE A NIGHTMARE) but more importantly, I have ALWAYS worked long hours, ran off little sleep, but I NEVER HAD A PROBLEM DOZING OFF DRIVING til I got THIS JOB with the stupid scheduling…… my problem is it really I can stay awake for a long time with very little sleep (if I have a Night where the sleep apnea doesn’t affect me that bad) so my job is treating me like I am this sleepy ass that can’t stay awake but really my problem is I am INCREDIBLE AT STAYING AWAKE 😂 and I just can’t GO BACK TO SLEEP….. from the time they call me til the time I need to clock in at work…. So I think I probably just need to find another Job but right now Trucking ain’t TOO HOT, so I figured I’d just submit to the sleep study, get the stupid machine….. and hopefully I will benefit from it….. and maybe then I can start job hunting….. BUT YOU SEE….. now I’m gonna have the DOT up my ass when I don’t really think my sleep apnea is that bad YET, however my worst nightmare is to run over a minivan filled with an innocent family, so if the CPAP/BPAP can even help A LITTLE BIT prevent that…… I’m down to suffer a bit…..but still I believe the main problem is MY JOB And I know there are many jobs in trucking like my job where they preach safety……. BUT IN REALITY THEY JUST WANT YOU TO HIT THE ROAD WHEN THEY WANT YOU TO NO MATTER IF YOU ARE GONNA BE SLEEPY OR NOT…. I think I really just need to search for a totally different career but that is not something I can do overnight so until then I guess I will do all I can do to keep from running over someone….. anyway sorry for the loooong reply, this was really meant for you, and the sleep tech guy AND ANYONE ELSE to read who may be dealing with the same thing…… I had the QUICK THOUGHT of letting someone else do my sleep study FOR ME, because I genuinely feel like….. though I MAY HAVE A TOUCH OF SLEEP APNEA, that is not my MAIN PROBLEM, if I have a schedule I have NEVER HAD A PROBLEM getting enough sleep to stay awake/aware during my shift or multiple shifts when I work two jobs, so I hate to spend all this money and have the DOT up my ass when I feel like I really don’t need that in my life, but I quickly decided if I can DO ANYTHING…… THAT MAY PREVENT ME FROM RUNNING OVER A FAMILY, then I will do that…… my ultimate goal is to find a job with a better MORE PREDICTABLE schedule, OR just completely switch careers….. so not sure if this is your issue, I also wanted to see if this sleep tech “Tom” I think he said his name was…… had any advice….. again sorry for the long reply….. I’m off work now with nothing else to do…. 🤷🏻♂️
As a person who worked for a DME as a technician I despise restocking of the masks particularly because they're so many types. Seems like the prescribing nurse would push the products we had in overstock rather than what the patient needed. Now that I'm a CPAP user in training I've learned it's incredibly important to get sent home with several different types of masks to practice with. Also keeping in mind of the occasional sickness which could require a totally different fullface mask then what you normally use. Sick while on CPAP is horrible especially with a phlegmy cough with clogged nasal passages. I love your videos and you speak with compassion.
I caught a sinus infection and the machine just pushed it deeper into my lungs... hate it.
@@saragunnmeche1268 oh ouch!!😢
If I’m sick with a lot of secretions/snot/phlegm, I’ll take a break from using my CPap because there’s just no way it works without trying to drown me. It doesn’t matter what settings it’s on or mask I wear. It’s just too much to deal with.
Sounds like the machine worsens your problem, than helps. You can say it makes matter worse
That would be putting busine$$ before human healthcare.
your voice is very soothing. i kept your video playing while i was unboxing my new CPAP
That's what I'm doing right now, lol
When I got my CPAP machine and mask, the provider had me try on several masks to see what fit best and provide good comfort. We spent about 45 minutes in all. Then he showed me how to properly clean the mask, tube, and water reservoir to prevent respiratory infection or other problems. It is important that these components be cleaned after each use... not every other use.....EACH USE.
Yeah not sure who told you that but I say once a week. That’s a little aggressive
You are spot on. There is no support after being told you need a cpap. Fitting and design are very individual. I only have come across one technician who had any knowledge and was willing to speak with me on my concerns and actual knew about machine and how it works.
Starting the CPap sent me into panic mode. I Absolutly could not tolerate something over my face. I have mostly overcome that but my major issue dryness. I am a mouth breather. My nose is deviated. The dryness was extreme, bleeding and infection.
The cost is astrnomical. Things I have found to help; Biotene spray and mouthwash, Lamisol nipple cream yup! Its also great for chaffing lips nose a tube will last forever. Saline spray, netty pots.
Ignore their sizing try different fits.
Great content Dennis, very informative!
I agree with most of what you said. The real problem comes when the manufacturer decides to discontinue what took you years to finally find.
When I am dead asleep my sinus will swell shut almost instantly . Thank God I automatically switch and still breath but then it is rough for me to sleep like that. They sent me seven different mask to try and now of them would seal up on my face. Their Tech told me that I was on my own. I gave them back the machine and went to a different place. The Tech had me try a full face in her office and it felt good but she also gave me a mask that just covered my nose. It did good. Since my nose shuts off on me I been using the full face. Noticed that the ones that didn't work had a cloth on the rubber sealing part to my face. Thank You.
My husband had severe sleep apnea and refused to test for it I wore ear plugs so I could sleep. His health began to suffer and before he had his test he had already damaged his heart and ended up on oxygen. He only lived 3years more. If only he had listened. Sleep apnea drains your body if left untreated
How old?
I have missed three nights of CPAP usage in 19 years… life changing!
This is more information than I've gotten from the so-called professionals. Thanks man!
By the way, I just started seeing medical people after having avoided that for decades. And what I've learned over the last few years is, every American is prediabetic, and at the least has mild sleep apnea!
Thanks again.
Yep, that's true. If a oerson stops eating all sugar, In all forms. Stop eating so many carbs and using seed oils. Your pre-diabetes will go away and your sleep apnea will too. You'll also loose a bunch of weight and feel amazing as a side benefit. Resaerxh Keto and carnivore diets. Blessings to all.
I have had a bi-pap going on 14 years. I have ResMed as my supplier. I wash my hoses 2-3 times a week, and my masks every 2-3 days. I can’t sleep without my machine. In my sleep study, I was stopping breathing 114 in a hour. Before I got the c-pap, I would wake up to go to the bathroom 3-5 times a week. Right now, I’m satisfied with my ResMed equipment, I very seldom have any leaks. You have given some great advice. I need to watch your other videos. I also have A-fib, asthma, and several other health issues. I’m sure your videos are going to help many people. Thank-you
This was extremely helpful. I have been struggling with the cpap torture device for a month now. I immediately clicked on your link and ordered the gel nasal mask because it would fit on the existing frame I've been struggling with. I took a nap with it and it was really great. I won't say it's fixed the problems but if it fixes half of them, I will be thrilled. Thanks for the video. I hope you get some pennies from amazon because I clicked your link.
You have NO idea how happy it makes me to hear that! Forget the pennies. They're nice, but the don't compare to lovely comments like yours.
Fisher & Paykel Auto Cpap machine is hands down my favorite machine! Resmed forces to much air to fast when I have a apnea causing me to wake up. The fisher will increase little by little and not hammer you. After 10 years of the resmed 10 cant wait to get my new machine. Yes my machine has lasted for 10 years. I change my filters every 2 weeks or sooner I buy bulk filters from Amazon cheap!
I’ll check this out
Memory foam mask cushions are a life changer in CPAP experience.
As a person who has been on CPAP therapy for 22 years, this is one heck of a public service video. After decades using a Resmed nasal mask, they discontinued it and I am starting over. The mask they sent me under the auspices that it would be comparable is no even in the same ballpark. So, off I go tomorrow to the brick and mortar DME location tonsee if I can find something that will work. Although still inside 30 days when they sent me the bogus mask, i am sure the 30 day clock has been ticking unfairly. We'll see. 🙄 Thanks for this video, incredibly accurate and well presented. 👏 🙏
This is an excellent video. Well thought out and helpful. I’ve been on CPAP/APAP for 20+ years and I just put up with what I have but now I’m gonna explore options thanks to you.
Carnivore diet cures sleep apnoea in very short time, as well as most other things. Crazy, but real.
OMG, there are so many comfortable choices now! And you can find ones that aren't big and bulky, like the older styles.
@@catgray1 if you change your diet, eliminate sugar carbs and grains, sleep apnoea goes away within weeks. Its your choice to look like Hannibal lecter at night if you want.........i chose no.
Hi Dennis, great story. I loved your Vader improv. When I was diagnosed with sleep apnea many years ago, I received a full face mask that I hated. No matter what I did, sleep on my side, sleep on my back, constantly adjusting the straps on my full face mask, it leaked all night long. I asked my self how could they give someone such a terrible mask. It was gigantic and looked like I was going scuba diving.
It took months before my sleep doctor and DME allowed me to try a different mask. I found a nasal mask called the Nasal Aire II that I loved due to its minimalistic style and size. I was a mouth breather, so I had to train myself to breath through my nose and keep my mouth closed. I'm sure you would have hated the Nasal Aire II because of its nasal plugs. I like it because it provides more direct pressure inside my nasal passages and leaks less than nasal pillows.
Once I started to become an advocate for my CPAP therapy, my quality of sleep improved. I learned from other people's experiences on CPAP forums and used Sleepyhead to gain a better understanding of my sleep sessions from start to finish, instead of the minimal information reported at the end of the night on the CPAP machine. This allowed me to better engage issues with my sleep doctor and advocate changes that needed to be addressed.
So, I can really relate to your experiences and appreciate your efforts to share this with new and existing CPAP users. I learn something new almost every day. Thank you very much.
What is "Sleepyhead?" My husband finally threw up his hands and gave up. Sure could use any information at all! Thanks!
To help prevent nasal clogging, an adjustable bed frame that will slightly raise the top portion of your body at as little as 5° or 10° will help you from getting clogged up and lesson the severity of your sleep apnea events.
want one so bad. i am on disability and after bills broke so cant afford altho need a 'hospital bed type fame' ugh
Could you put a wood pieces or something under the head end of your bed to lift it without spending $ to try it?
Wow, I feel pretty lucky. My sleep doctor tried like a billion (it seemed) masks on me in the office before writing the DME script. (Beard and ex-boxer with nasal/jaw/facial bone issues) and then a year later refit my mask once to get a better seal when I rolled a bunch displacing it, and when I cut off the beard, as promised, for the kid's graduation - before returning to the older one when the beard came back. I'm a bi-pap guy and literally wear it 100%, camping, traveling, everywhere and it changed my Life. A lot of this I'd learned, but this should be essential watching for new Cpap And Bi-pap users. Really well done and spot on dude, Thank you!
I got my Resmed APap the end of June 2023, started with a pillow. I was SO excited starting. In 4 months I would take my mask off in my sleep. My numbers on the app were in the 40-60s. By August I was SO frustrated! I felt like my nose was plugged. After talking to sleep center they told me to call my DME provider. He gave me a different pillow (goes into your nostril). 1st night my number was 90! I didn’t pull it off, it didn’t end up in between my eyes and my app number was 90! I still don’t look forward to going to bed & had 1 night I woke up with it off but so far it’s been SO much better. Numbers are 80-90s dep # of hours slept. Night 7 tonight. Still don’t look forward to wearing it..Great video. Thank you!!
I just wanted to say thank you. I watched all of your videos when I got my sleep apnea diagnosis. I have seen your comment responses & I wanted to wish you the best. I hope you have an amazing weekend & are feeling well. Your videos made me feel so at ease & hopeful. The world needs more people like you. Thank you again!
This is such a generous and accurate review of the c-pap journey. And it was FUNNY! Sinusitis is a real downside from cpap. Thank you!
I have to say, i absolutely loved your presentation. It was if you were speaking from my head and it was sooo much more informative than anything, as you said, that you got from the people who should have helped.. I tried desperately to tolerate the whole cpap situation, and it was simply not going to work. Gave it back and never looked back regarding that. What i did do was go to a dental specialist and got a emd, a dental appliance for sleep apnea. It has been spectacular. Thanks again for your informative presentation!! You could be hired as a spokes person and educator for these companies
I'm sure there are many types of these - but I had one and it just ended up rolling around in my mouth or sticking to my top teeth while I slept with my mouth open. Maybe if I had heard about Mewing as talked about in this video I could have tried it. But was useless when I opened my mouth. Any thoughts?
I literal just stumbled upon this tongue trick two nights ago. Just laying there trying to stop the air blasting thru my mouth. I finally figured out if I keep my tongue pressed against the roof of my mouth and the air stopped. Amazing. Well some of you may say duh. Well it took me awhile to think of it and SHAZAM I find this video. Thank you for helping people.
About 25 years ago I was sure I needed a CPAP, but they didn't want give me one.
So I bought one myself without prescription.
I read a lot on forums, asked a lot of people on the internet, and set the pressure myself.
I was my own CPAP specialist.
Right from the start I didn't have any problems using my CPAP.
And when I did there was always a forum with people to help me with tips.
Didn't have a sleep doc for over 15 years.
Only in the last decade I have officially a CPAP, but many times I know more about CPAP
than the specialists.
I've heard of people donating or selling used machines , but where can I find them?
@@OhMasters.
It's a lot easier nowadays.
Look on sites where they sell used stuff.
Ask them ham much hours the machine was used,
because after a certain number of hours it's
theoretically worthless.
It might still run okay, but it's not reliable anymore.
In the past you needed a prescription to buy one new.
I don't think you need that anymore.
@@OhMasters.
Ebay.
Craigslist.
Only accept current models with little run hours.
When you're a non smoker, only accept a machine from a non smoker.
I heard of stories of CPAPs which turned black inside from cigarette smoke.
Good job ❤
Interesting. The reimbursement cabal does not recognize snoring, in an of itself, as a source of poor sleep. However, I have seen patients in the lab who do not meet the criteria for AHI diagnosis, yet they display a high propensity for awakening to their loud snores. CPAP does treat this problem at relatively low pressures. Sounds like you took the bull by the horns. As you age the likelihood is high that you would eventually become diagnosable and, therefore, treatable by the reimbursements sources. I hope you intervened before other consequences of daytime sleepiness could work their way into your life, e.g., hypertension.
Going to my first CPAP fitting next week. So glad to find your take on masks, especially how you and your wife had different reactions to the same masks and how reviews may differ.
I just got diagnosed and am getting my unit next week. This was really helpful so I have a better idea of the options available. Thank you.
I'm sure somewhere in the comments this is probably mentioned but you only need a prescription for the CPAP machine itself. I just purchased a new style mask off of Amazon without a prescription less than 10 minutes ago. The prescription (lie) is created by DME's to keep you coming back to them rather than looking online for better prices.
In some countries you don't even need a prescription for a CPAP. You can go to medical supply shops or online and buy it and that's what I did first.
The entire industry is a racket.
The DME provider I had was charging 299% over what I paid on Amazon. They suck unless you’re on Medicare. It’s absolutely a racket.
It’s not so great with Medicare either an I don’t know if it’s a Medicare problem or if the supplier of the equipment is giving me a line of BS!
Oh good grief!! You should be a paid consultant!! I gave up on my CPAP years ago...think it was a BiPap. Regardless, I could not get the help I needed to make it work for me. Rather than helping me with the available options, they were piecemealed out to me and I'd be met with an eye roll when I, again, each time, explained my problem. I gave up. That was over a decade ago. I'm on Medicare now and Bipap-less 😂 My PCP advised me that I should be using a CPAP of some sort 🤣😂🤣 I don't know if I've got the patience for any of them at this point in my life!! Having said that, there are studies that show that apnea can cause a host of physical issues. Blood pressure and heart issues primarily so it's worth taking a look at once you've seen a video or two... especially one like this!! Dang...why does being healthy have to be such a PIA!?! 😁
Wow! There is so much to learn! I have just been diagnosed with Sleep Apnea and will pick up my mask next Friday and I have NO KNOWLEDGE about anything so you my teacher. I learned today I need to take distilled water when I go to pick up my mask - didn’t know the machines use water! I picked up some time ago that you have to clean them often but nothing else. I will be reading and watching videos a lot.
Thank you so much for f so hating your knowledge. God bless you really good.
Contemplating getting started with CPAP treatment that I've been recommended by my doctor. This video is great in wrapping my head around at least a small bit of solid info should I decide I am going to commit to this treatment. Your channel appears to be a whole wealth of knowledge and you are great at communicating and making the info and experiences easy for the audience to digest.
Thank you for all your work.
I will never spend another dime with Phillips. Airfit P10 works great for me. Best thing I've discovered under CPAP and I love my F&P machine I have now.
First off I’d like to say thank you for this video 🙌🏼😃. I got diagnosed with sleep apnea and this video is very informative and helpful 🙏🏼. I realized that I have sinus issues and breathing through my nose is more difficult than I realized now that I’ve got my machine and the nasal one isn’t going to work for me and now I had to schedule a fitting appointment witch is a month away. But you showed me there’s way more options than I thought and looking forward to my appointment so I can finally get some good sleep 😴. Thank you again 🙏🏼
My ResMed nasal mask is a great fit. I wear a small, because I have a small nose in distance from the upper lip to the tip of my nose...
Thanks for your reviews!
I started with the ResMed and the person doing the fitting set me up with the small pillows. I had a terrible whistling sound with every breath and problems chafing. Switched to the medium size and it fixed everything! So yes, patients really need the ability to just try every option until they find one that works for them. Doctors and DMEs need to stop just pushing the one thing they know or have experienced themselves (or are being given incentives to push).
Thanks for the information. After eight years of CPAP use, contrary to the ad copy, I can definitely say that CPAP still has a LOT of room for improvement.
So glad after hearing your journey I had a great DME rep. They took so much time to listen to me and like you my first one was the dream ware. I have had to go to bipap and got a new setup I got a ResMed brand of the “dream wear” and so much better. Thanks for sharing you journey it will save a lot of people.
I spent YEARS trying to find a mask I could use. Aside from sleep apnea, allergies, and primarily being a mouth breather at night, I also have arthritis in my neck. I could not tolerate a strap that went around my head.
Finally a nurse suggested the Bella mask and I had to learn how to make it work to breath through my nose at night. There's nothing easy about this, but making it work can be life saving and quality of life sparing.
Thank you! I’m on my third week of just figuring out what mask configuration works best. This makes me want to go to more effort to try everything.
The actual Tay Zonday, holy moly! Hope you find the right mask man.
Tay Zonday! Are you remembering to move your head away from the mic to breathe?
Don't give up. I was dying. It took me a year to figure it out. I would be dead without it.
Very interesting to see you here.
Hope your medical journey is bearing fruit, Tay.
You made me LOL about your dream silicone nasal mask and meeting your wife!
Thank you for this very thorough and informative video.
WOW ! What an awesome review and video ! I've been wearing a CPAP for over 8 years .. and learned A LOT ! Thank you Sir for taking the time to record this !
Great video brother.. It took me 5-6years to finally give in and commit to use the CPAP for at least a full month. I'm a light sleeper, so it was a challenge. Finally made the habit stick 3years ago and never looked back. I live in Co Springs now (Higher Altitude) so I rigged my O2 Concentrator into the mask. Benefits 1.) filtered air no more allergies. 2.) the Snoring would scar up my throat / sinuses 3.) When I replace my filters , it amazes me, how much crud it saved me from..
Good info and I got a kick out of the cap, I wear one as well (my wife is not a fan LOL). I have been using my CPAP religiously for years and a few things that work for me. I have a ResMed full face and I am a mouth breather. 1- I use a lip balm on my lips because regardless of using the humidifier they still suffer without it. 2 - I cut a piece of paper towel the shape of my mask and put it between my face and the mask. If you have the humidifier going your face will eventually get moist (at least mine does) and then the mask will start to leak. The paper towel will stop this. Finally I use nasal strips to keep my nose open. Doing this along with regular cleaning and filter replacement has worked great for me for years.
Pleasant sleep and happy dreams... :)
Thanks for honesty... I know nothing about this thing...but heard about it for many years
Dude, you've awesome! I love your ability to describe all the experiences you've been thru in such a relatable and funny manner! As a fellow female cpap user i can relate to so much. Especially how to keep your mouth closed. Thank you for taking the time to share. May the cpap gods bless you in your continued adventures, ❤
I've been using nasal pillows for 16 years now. My advice is to remember that your ears and nose continue to grow as you age. I used the medium for years and years and years and now I'm a large and I'm really glad I didn't just throw them out.
The nose things stretched at my nostrils. My nostrils are small. This wasn’t comfy for me. Actually hurt me.
That’s so true
Wow, are you ever smart to think of this!🎉
I just found your channel. As someone who is just starting out with CPAP, thank you for this and the humor!
This is the very best video I've watched on CPAPs . I am now wearing a nasal mask version that goes around my whole nose. It's hard to breathe from my nose only .... so far. But it's my first night so, I'm going to give it a try. Thanks for. your humor and great conversation about the whole situation. I feel like we had a one on one talk and I feel more comfortable about trying the thing out and seeing how it goes. Thanks!
How did it go over these months?
Thanks heaps, dude. Great video. Lots of info and down to earth advise. I'm on my 4th week cpap tritation, so... I'm trying to precess all this new world bit by bit. I'm glad to have found your video. Hat's off to you, sir.
I don't pay or have private health insurance in Australia, I pay $108 a month for 36 months for a resmed airsense 11, and I own (which is cheaper then renting one at min $120 a month)
This includes 6-monthly specialist appointments for three years, including every 12 months, new mask of your choosing, plus new climate air tubing and reservoir.
Thanks for putting out objective information. Having not received my machine yet. I'm educating myself before having to use it.
Wow. Just wow. I never ever enjoyed watching a (relatively) long video review like i did with this one. For a product I don't (yet) need! My results aren't there yet and maybe my sleep issues are just related to being overweight. But I wanted to get one step ahead and you catapulted me three steps ahead instead while beeing fun to watch. Thank you VERY much and all the best for you! :-)
That makes me feel good! Thank you!
Great presentation.
Will try this new nasal pillow, specs
I can’t fathom how someone would want the tube on their chest preventing movement, turning over in bed.
When its coming off your head you are free to turn sit up. It’s great.
I just have it hooked over the bed head with the tube hanging down the back.
Oh my. Thank you so much. Getting ready to start cpap. No one told me anything. You answered all the questions I didn't know I had. Especially the mouth breathing. I was just telling myself maybe I should learn to sleep with my mouth closed then your video came up and you confirm my thoughts. Thank you again.
And I have permanent scarring from the nasal pillows. Won't go back there. Glad there are so many mask options.
Hey, work for a DME that provides equipment and education on CPAP devices. Just wanted that I reccommened this video to our clients getting started with their journey and and that I love everything mentioned in this video! Thanks for your insights and know that its greatly appreicated!
Thank you!
I appreciate your thoroughness! Also, as a newbie to CPAP, I hadn't realised how much trial and error was going to be necessary! It's good to know that is normal!! Greetings from the UK
thank you for all of this information, I was diagnosed with sever sleep apnea about 2 years ago and I still haven't picked up my cpap. I've been walking and exercising to loose weight but hated the thought of the cpap. You're really saved me a ton of trial and error
Allow me to ENCOURAGE & MOTIVATE you to get on that CPAP. 1. Sleep Apnea definitely can cause heart attack or stroke. 2. Does cause high blood pressure, if left untreated. 3. And, can cause Glaucoma - you could go blind : o
No idea why these aspects are not made more public facts. Channels like this help get to word out!
I almost died from not breathing. My electrical system was zapping me and luckily I was able to get the CPAP. Come to find out I had central sleep apnea caused from severe stress. I practically had to diagnose myself because no doctor for 3 months could figure out what was wrong with me. 7 emergency room trips and finally one doctor in the ER said he thought sleep apnea. Did test and they came back as mild sleep apnea so the gave me CPAP but wasn't working and I researched and found out about central sleep apnea. They tested me again and found it to be that and put me on bipap instead. Once stress went away I'm off it, but don't put off getting it because you can die in your sleep.
The mask your wife ultimately chose has been perfect for me! I just started cop treatment 14 days ago and have been very successful
I've been using a cpap for 14 years now, and tried many different kinds of masks.
I recently switched to the Resmed airfit N30 nasal mask, and I couldn't be happier! It barely feels like I'm wearing a mask, and is super soft, which I love! And, I can wear my glasses to read until I fall asleep too!! As nasal masks go, I tried one that the air was fed into the mask at the top of the head. I hated it. The weight of the hose would move the mask and I'd get leaks. The nasal mask I use now has the air hose connected to the part that goes over your nose, and the head strap is so thin and lightweight that I barely feel it when I'm wearing it. I can't use nasal pillows, they really hurt my nose... the way a phone does when you have it up against your ear too long. It is super important to find the right kind of mask that feels really comfortable for you. Also, when you get your first cpap, it can take a couple of weeks to get used to, so don't give up. You need quality sleep. Once you get used to it, you'll find you can't sleep without it.
I use a Fisher Pakel face nasal pillow mask with my old Phillips machine and now I've switched to a ResMed machine and still use my Fisher Pakel face mask so you can also mix and match masks from different companies to your machine.
Enjoyed your video - I realize that you made it a long time ago. I've gone from the ResMed AirTouch F20 full-face to the BleepSleep Eclipse nasal mask. Like you, I had to train myself to keep my mouth closed at night, and I keep an Xylimelt in my mouth all night. I'm mentioning the Eclipse because it works so well for men with facial hair, so I'm wondering if you've tried it, and if so if you like it. No headgear, no mask, no leaks, no marks left on face and in hair. Love your voice by the way - nice radio voice.
You are tenacious. Good Work. I keep trying a few different masks. I've never done any nasal masks. The under the nose "hybrid" style masks - have been what I've had the best success with.
I’m stuck with the P-10 for now. Don’t know why I say I’m stuck with it because it’s actually a great option. It’s also the quietest mask I’ve tried and believe me when I say I’ve tried them all.
The updated P-10 comes with an adjustable strap which almost makes it perfect for me.
Thanks for the video! I’m going to my initial appointment for seeing what I already know…. That I most likely have issues sleeping. Watching your video gives me hope that I can finally get a good nights sleep with help from helpful people like
yourself!
Thank you for this video. I was diagnosed with severe sleep apnea, and am just now starting my CPAP journey. I look forward to not waking up with pounding headaches.
Be prepared for a burst of energy you weren't quite expecting. It might not be immediate, although it was for me. For my wife, it took a few months. But it'll come eventually!
As a "soon to be" CPAP user, this was a FANTASTIC video. Everything you stated was easy to understand and made perfect sense. I say this because this is the exact type of advice I expected at the sleep clinic when I did my overnight sleep test to determine the appropriate settings. The tech who helped me get setup for my test asked me "do you breathe through your nose"? I said usually, but sometimes I will breathe through my mouth at night. Her response was "OK, you need a full face mask". In the morning, I asked if I will have the opportunity to try other masks when I get my CPAP machine so I can determine which would work best. The response I got was "no, they discourage that. You need to stick with the mask they give you." I just did my test last week and haven't received my prescription yet, so now I feel I am armed with the info I need when ordering the equipment and possibly switching to a different mask if needed.
The other thing that discouraged me was after asking the tech if I would be able to pick the type of CPAP machine I wanted, she said "no, you get whatever they send you. They are all the same anyway". I haven't spoken to the DME supplier yet, but I certainly hope that I have options. I am the one paying for it after all (above what insurance will cover).
You have options! Anyone who tells you that you don't is doing you a disservice. If you get to the DME and they try to give you a Philips, tell them "No thanks," demand a copy of your prescription, and order a Resmed from lofta.com or cpap.com or wherever you want to online!
I wish I could give you a million thumbs up for this video. I just got my BIPAP last week...I am on the mask journey.
Thank you for making this video! Im going for my fitting next week and am a little freaked out by the whole thing. I just want to feel better.
I am on the brink of starting my CPAP journey and I have been searching everywhere for some practical advice and finally your video showed up. You really nailed it on this one highlighting all the variances and showed me how I can work out for myself what will work for me since it is all still a bit mysterious after seeing a ton of other videos on the topic. This is a big confidence booser for what is an uncertain path to finding relief for my sleep issues. Thank you from new subscriber.
I love how you said that reviews are stupid. But you just have one hell of a great review! I actually ended up getting the same those pillow that you’re using I’m still trying to get used to the machine to be honest I haven’t gotten through an hour through the night yet. Great job seriously very well delivered.
I'm so grateful I found this THANK YOU
@AdventureswithCPAP - WOW! I am new to CPAP and just started. I subscribed and will give you my updates and feedback. You have great honest informative laid-back review! Trying a nasal mask as the full face pushed my chin back causing more apnea! Wound up too with open mouth. You are detailed too. Appreciate it bro. Thanks.👍👍👍👍
Thank you for this. I have your first nasal mask, and I'll definitely be swapping it out for the last nasal mask you showed us. I just wished the people who set me up with this had been as detailed as you have been. Now I have to figure out how to keep my mouth shut without tape.
MOUTH TAPE WORKS AMAZING
I was given a nasal pillow headset when I got my first CPAP in 2000. (I think the model was a "Breeze")This thing had a hard plastic and metal spine over the top of it. I learned to bring a roll of electrical tape for field repairs when I traveled. It was fragile. I got a replacement of a silicon Resmed Swift FX in 2010. Still nasal pillows however. It's not being manufactured any longer, so I'm now trying the Resmed model you showed at 19:00, but I think I prefer the silicon nasal pillows as I am accustomed to that design and they seem to provide a more secure fit. I didn't know for a very long time that I could choose alternative masks. Also, I travel a lot for work and some of the best money I ever spent was a mini CPAP for travel. I see an awful lot of people lugging around those familiar CPAP travel bags in airports.
ResMed AirFit™ N20 Nasal Mask works excellent for me although as my mustache got bigger had some air leakage. With no mustache or mustache trimmed tight it works excellent for me. Best wishes for a good night sleep.
Recently been prescribed a CPAP.
I have not even received it yet.
Thank you for sharing your experience!!!
Funny thing is for years instead of sniffing I would press my tongue against the roof of my mouth like your Mu? technique and swallow hard.
The motion creates a vacuum clearing off my soft palate. It keeps my sinuses open and keeps me from sniffing crap in my lungs creating Bronchitis then coughing it up in my sinuses creating a sinus infection.
I tried the Mu? technique while watching, just a bit of vacuum to hold the tongue in place. Wow, this to my wife’s pleasure kept my mouth shut.
I don’t need to be sleeping to snore but this kept my tongue from sliding backwards.
Again thank you for sharing your experience!
Probably the mist useful CPAP video I have found. Props.
Hey so I just went from struggling with the F30i to nose pillows after watching this and trying a few other things. Remarkable difference. And it also can keep my mouth shut the same way as you. I'm 300lbs and a mouth breather at night typically. Good info in the video! Thank you!
I like the one that your wife like, been wearing it 5 years, tried several others, plus some resmeds, I'm pissed at Phillips, I took the foam out and will never get another Phillips but I will keep thier masks, I wasn't even thinking about the DS2 but after you're video I KNOW they can't pay me to take one. I did the same as you, my wife started a year after me. She was fortunate to try all mine to decide. Thanks for the video.
Best Cpap video i have ever seen, thank you! This is the key completely! Find the right mask and you will be successful!
LOVED this video - it reminded me of my own long and excruciating journey searching for the right mask setup that worked for ME :-) - been using CPAP for ~10 years. Took a while, but I eventually settled for the ResMed P10 nasal mask, along with a tape to literally tape my mouth shut every night. (3M Medipore H 2" x 10 Yard Hypoallergenic Soft Cloth Surgical Tape). This has worked for ME for the past 7 or 8 years. Then again, I am clean shaven :-) , might work for others who mouth-leak a lot. If you are new to CPAP - be patient, and good luck with your own journey :-)
Thanks for this little talk, I didn't know about the tongue exercises but do now and I use the resmed pillow mask you are learning to like, 8 am getting good numbers but I can't side sleep with 5hwt pillow mask and am relocated to sleeping on my back... Great advice to part out a mask to save money, THAT is MONEY!!
The gel nasal pillow beat up my nose sooo much. I will definitely give the silicone version a go.
This is the best educational and inspiring post ever on this subject. Thank you. Much appreciated.
I have a resmed airsense 11. My first mask looked like a fighter pilots mask. Completely covered nose and mouth. Hated it. It rubbed next to my eyes. I use the one that sits under my nostrils and covers my mouth. F30i I believe. My equipment is supplied by apria. The lack of support for a new user is mind-blowing. I had to figure things out on my own. I needed the mask i use now because of the reason i stated and also because the other, the hose hooked to the front of the mask and it was uncomfortable because i am a side sleeper. The one that hooks to the frame on top of my head is better. It has been a journey. One main problem i have still is i am swallowing air in my sleep and i wake up bloated and in pain and well, you can imagine the embarrassing outcome of that! 😂 i was allergic to the foam lined version of my first mask.
Just got my first CPAP machine, a ResMed 11 and trying to figure out how to breath thru my nose with the issues you described. I got both a full face mask (which I hate) and silicon nose mask that I like if I can only learn to nose breath when sleeping, something I’ve never done. I’ll try the learning technique you described. Thanks for your video which could not have come at a better time for me.
I am so glad I found your channel. I have just been diagnosed with sleep apnea. I am currently waiting for my CPAP machine. I did not know there were so many options for masks. Thank you so much for this video
Great look into your cpap journey Dennis and really great you found the right combination for you. Also a quiet mask and device combination is really good for non OSA partners trying to sleep next to you. :)
I'm just about to do my first sleep study and I already know I have sleep apnea and extreme snoring so I really really appreciated your video of that heads up of a few things that I'm sure no one else would have told me thank you so so much again I really appreciated your video
Thank you ao much Dennis for sharing your wisdom and experience. You helped me realize how important it is to address sinus issues. For too long i was ignorant about my sinuses. All the different doctors, nnps didnt ever ask about my sinuses or the ents never fuly addressed it. A functional medicine doc was the first to address it in more detail but i tend to forget the impotnce of daily sinus irrigation. Your video has been so helpful. Wish I had found it sooner. Thank you so much!😊😊😊
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Thank you for this, I got a comfortable mask after watching this so I appreciate your doing this.
The Phillips Gel pillows with the elastic strap works for me.
You didnt mention mouth tape. As long as a person can breathe well through the nose, mouth tape can work. It keeps my lips from getting chapped too. I apply a lip balm first then cover upper and lower, in a relaxed position, and i just use painters tape from the dollar store. If i dont use it, then my mouth will fall open and get so dry, its a big leak.
Dude... I'm about to enter my cpap journey... thank you soooo much for all of the info
Wiseman. Thank you for your honesty and sharing your experiences with us. I really appreciate you recording. Thank you!!!
Great overview. Excellent core message that what works for you is personal and keep trying.
Thank you so much for taking time to make this video. I just got a CPAP today. Let me share a poem with you.
"Grandma has a habit, of chewing in her sleep. She chews on Grandpa's whiskers and thinks its shredded wheat" Thankfully I dont have a beard (yet) I am an older female. Hope you are doing well. God bless.