@@bethjohnson3123 tbh I think the hospital made a mistake , I had to wear a little monitor on my finger over night . Then the hospital contacted me . That when I got the news I had server obstructed sleep apnea. It’s funny how my AHI is only 0.2 average.
It's amazing to me. The MDs earn money, the hospital earns money, the manufacturer earns money, the support service earns money... you would think they would be motivated to ensure you get the most out of your therapy and the highest return possible on the money invested/ WTF! I really really appreciate all your videos but this one, in particular, helped me understand the variables that can change the impact of your therapy. Thanks so much!
I started with my CPAP about 2.5 months ago. It's been a terrible experience. I have only recently come across this channel. The information here is so good that it makes me angry that I was provided any of it. Tonight will be my first night with SleepHQ, and the information it provides will be so helpful. Why my Dr doesn't have this level of information is beyond me. The paradigm of finding the right mask is madening. There is no test fitting before purchase. The idea is that you are supposed to keep buying masks until you find one that works is asinine. My fingers are crossed that I'll be able to sort it out myself.
Hi Andrew, great to hear you're enjoying the channel. A lot of mask manufacturers have 'mask fit guarantees' these days but you normally have to purchase in-store to get them. F&P has the 30-day surefit guarantee and they make great masks. Cheers
I have just started also but I had mask fitting with a pharmacist who supply the machine to trial for one month. There was no way I can handle a nose only mask. I'm a mouth breather until I'm fully relaxed but I often sleep breathing through my mouth because my nose is always feeling blocked up. People should try nasal and full face masks.
Yeah, definitely feel like I was completely uniformed. They want to make the sale, make a good showing of concern and then forget you existed. This channel and a few others have been instrumental. So far, I'm still only able to keep the mask on for an hour or two before I rip it off in my sleep. But the trending is upwards. So, I'm hopeful. First 3 nights were absolutely frustrating.
Videos like this would be great to get sleep doctor's and technicians to watch. The doctors around my area believe they know it all and scoff at people who try to learn how to improve their comfort and aih. They also try to get us to ZeRo events and keep us there and I'm not a fan of doing a sleeping marathon of terror each night. These videos coming out of Australia are extremely helpful and we thank you sir. 🙏
I agree, it's amazing to me that doctors are offended that you are trying to learn more about the condition that they diagnosed you with lol. This will be my second go around with CPAP therapy and I'm going to insist on low pressure settings initially as ramping up to quickly will just lead to me not using it at all like before. I'm going for my second sleep study but this time with CPAP so I really need to keep an eye on the techs ramping up pressure too quickly.
Absolutely, "believe they know it all and scoff at people who try to learn how to improve their comfort", I have a clinician not seen a Doctor yet, who is so much like this and can't seem to cope that out there are many people doing jobs and have degrees in very high technical subjects. Mine is IT Training, since 1982 and without wishing to appear a 'know it all' I have sussed out the use and reading of my Oscar data but on asking this clinician , what I would consider low level questions i.e. "Now getting use to a full face mask, not taking breaks during night from mask any more, no more panic attacks, gone from 3.6 hours average per night to 7.3 hours with keeping mask on, slowly increasing my pressure and humidifier settings - Why has my AHI averages over four months not changed at all?" Result embarrassing silence !!
Just wanted to thank you for all you do. Was ready to give up on the whole CPAP thing. But after listening to a lot of your tips and tricks, its not too bad and things are getting easier to handle. you are definitely my favorite uncle. Thanks again.
Just happened across this video while searching for something else. I was about to give up on my C-Pap treatment but this video is giving me hope. I definitely think this video should be given to people here in the US when they are ordered Pap treatment. The Drs and NP's here in the state just "tell you what to do" without explaining the benefits of using it correctly. Thank You for this video "Uncle" and I will be watching for any further info you have for us.
I’m sitting here, very happy with your video and really unhappy with my pulmonologist. I had an AHI of 9 at my sleep study but I have mild pulmonary hypertension and use 02 at night. He recommended a CPAP to reduce general fatigue. We discussed setting it at 8. I used my machine and it was a shitshow. Uncomfortable, mouth breathing and dry mouth. Switched to a full face mask and then had a very upset belly and pain. Called Doc and pressure turned down to 9. Still have Aerophagia plus with the full face mask it’s hot and giving me fits with nightmares of suffocating. Saw your video today. MIND BLOWN!!! I called my doc and asked for another pressure reduction. I am keeping my full face mask as it’s expensive and I’ve already ordered a nose pillow mask on my own. I’ll use the cpap again when the pressure is reduced and when I get the nose mask. I strongly suspect it might actually help me. I’m strongly peeved because I’ve had to learn all this ON MY OWN. Considering what my pulmo makes per appointment, I would have expected more support. I’ve learned more from YOU in a few videos during the past two weeks then I learned from my physician. Thank you.
The medical industry is just that, an industry. They make huge money off keeping people helpless. The best thing I learned to improve my health is that I alone am responsible for my health. I am the best person to heal and treat myself. The minute you give your power away to someone else, you're wasting time.
I totally understand.... had a similar experience with my sleep study/ CPAP prescription. Pulmonologist never actually saw me, I only dealt with the sleep techs. The CPAP would cause the inside of my nose to swell up and I would wake with a completely blocked nose and/or sore throat. My AHI was only 15 during my sleep study, mostly due to sleeping on my back and less than 5 when on my side. The CPAP brought me down to 1-4 AHI but I could only sleep 1-4 hours until it woke me up. I've been getting a lot better and uninterrupted sleep since I returned it. Thankfully here in the U.S. the insurance companies force the equipment providers to lease CPAP machines out and I don't have to pay for a machine that I am not using any more. Going to see if EPAP/ Provent might work for me. Hope you have better luck with yours. :)
Hey Nick! I'm finally starting to feel better. More energy. I've been sleeping a lot less too. Took over a year to feel better. Thank you for being there for everyone.
@@xpusostomos I know many swear by it but cpap just keeps you one step from insane. No amount of sleep was enough. In 93 when I was 12 I had a brain tumor of my pineal gland. They eradicated it along with the tumor they thought the pineal gland does nothing, turns out it regulates your sleep and deep sleep my emitting melatonin. I'm 44 and before I got on cpap I had 3 strokes, most likely sleep depravation. Though I've been off cpap for a long while. I still wake up feeling like someone punched me in the eyes.
Thanks for this breakdown of the SleepHQ results. I accessed the clinical settings via your instructions on my AirCurve machine. A few days later the clinician phoned and I was scolded because the BIPAP pressure they set the machine at was 22/12 and I had turned it down. "This is a prescription. You shouldn't change it", was what I was told. So, I had been doing quite well at a lower pressure, but they did not want that. So, I've been fiddling around with different mask types and watching reviews from you about different full face masks. I haven't touched the clinical pressure settings in a couple of weeks but my results have been varied because I was trying to find a mask that worked for me. My AirTouch worked okay, but started to leak around my eyes when up to full pressure. I just got a F&P Evora Full Face mask and have been wearing it for three days. NO leaks. When I slept I had results under 5 events per hour and it feels pretty comfortable. Sorry for the long-winded comment, but I have really been inspired by your channel to work on my sleep apnea and try to get it under control so I can sleep better, lose weight, and be more healthy. Thanks so much for your channel and the work you are doing with this app to help us CPAPers. I know I can get this under control again and make therapy start working for me.
You sound like me and what I’m going through. I’m up at 4 watching this video by Nick! Thank Goodness for Nick!! I think I need a better mask! Had the go T type and than some guy gave me full face it was terrible!
I had a runny nose with the go t type because it blows right under the nose. I know I’m a mouth breather. I have 35 to 45 AHI and so that’s higher than my sleep study. It could be causing more problems. I don’t know, it’s frustrating to say the least.
Wow…just wow! I’m so impressed with Jay’s willingness to embrace the changes and achieve excellent outcomes. You are spot on regarding how each of us can be our own champion by making simple changes but mostly educating ourselves. Thanks Uncle Nicko! Love to all!
Though I really don't understand it, his pressure was obviously too high at 15 then he played around with with his pressure settings and he's now back up to around 15 with amazing outcomes.?
OMG, Nick! Best video ever!! I am beginning to think that maybe I’ll be able to figure this out instead of looking at all those charts and graphs with a big question mark ❓ over my head. Finally the light bulb💡 is coming on! Thank you so much for these informative videos. Bravo 👏
That's great to hear Doreen. I know they're not exactly the most exciting videos but each case study will have it's only little lessons that will help you piece together the puzzle. Good luck. Nicko
Really appreciate the video advice! As a mouth breather, it became apparent that this wasn't going to create success with the nose mask I'm using for my apnea struggle. Seeing your description, and getting the right adjustment on pressure made all the difference in keeping my mouth closed, and consistently lowering my AHI occurrence down below 5. Thanks for all the great direction!
I have used a CPAP machine for a lot of years. Initially I had a sleep study done. When I had the appointment to get the results from that the specialist said that my results were so bad that he didn't want we making the hour plus journey (country roads AND city traffic) to get the sleep study done with CPAP at his recommended settings. Instead I was set-up with a machine on hire and sent home to try it out. The most difficult task was the trial and error over the next couple of months, to get a mask that I was comfortable with. I ended up with the nasal pillows, which I had originally discounted because of my hay fever. I think that the mask (Swift FX) has helped with that. I wear a chin strap to stop the mask leaks but the bug-bear with that is the velcro ripping my hair . . . . so I put something over my hair (I have settled on a toweling hair turban/towel), so that is no longer a problem. After watching your video, I thought I would have a look at what the read-outs were on my machine. Instead of have realised that I cannot even turn it off. For the past few years I have simply plugged the machine into a power board with individual on/off switches, and simple turn the machine on and off at that switch. (Very necessary due to back pain when twisting further . . . and I sure don't miss having to put my glasses on to read the screen.) Perhaps my machine never had those read-outs, just the mask-fit screen and then it moves on to auto. What machine do I have? Wait for it . . . It is the ResMed S8 Auto Set Spirit 11. It works . . . I wake up rested . . . the Fitness app on my watch indicates that I have an amazing deep sleep vs light sleep percentage (40 - 50% deep sleep) and, if I have to get up during the night, it indicates that I usually fall back asleep very quickly. I tend to 'roll with the punches' with what life throws at me . . . . When my dentist told me that my teeth were getting worn down because I must grind them in my sleep, I thought, "Oh good god! Now I have to wear a mouth guard!" Truth is, that isn't so bad. I didn't go the expense of a custom piece from the dentist . . . . and I found that the shop-bought mouth guards are too rigid and perhaps a bit too high on the gums. I figured that this was because they were aimed at impact protection when playing sports.. Thank goodness for eBay and finding mouthguards aimed at just stopping teeth grinding. They cost less than $2 each. You pop it in hot water for 20 - 30 secs, take it out to cool slightly before you press it onto your teeth and the roof of the mouth to shape it to fit you. If you aren't happy with the result, let cool and then repeat this procedure . . . A bit of advice: Don't get the clear ones . . . particularly if you have bad eyesight. They are very had to find, when they have rolled somewhere across the floor or gotten caught up in the bedding!!
Thank you for all you do. I have really became educated on Cpap therapy and I give you a lot of credit for my success. Thank you again and please keep up the great work and content.
Regret that I can’t have your attention and advice! Because your involvement in resolving problems for your patients are so inspiring, you search deep cause and not just want to sel a mask! You exprès real humanity thank you.
I have been struggling. I have been dealing with sleep apnea for abiut 15 years. Im now 30. I have had my CPAP for about 12 nights and HATE it. I feel so defeated. My issue I was trying to fix was to keep from waking up so often due to the stoppage of breathing. I often wake up feeling like I never even slept. The CPAP just made it worse. You helped me so much. I was having an issue breathing out and I would wake up fighting for my life trying to rip my mask off my face too catch a breath. I turned mine down to 4 / 7 and going to go up by 1 every two weeks. Thank you again.
Nice work Jay! I live in a remote parts of Australia and no doctors ect who deal with sleep aponia. I knew I had it because of friends who have it (feeling like I didn't sleep when i had 10 hours sleep) and weight gain ect. I brought a air sense 10 and CPAP Reviews taught me the rest. after 7 hours sleep i feel like a million bucks! thank you Nick! i can not thank you enough.
I was unexpectedly hospitalized away from home and the hospital provided me with a CPAP for the night's stay. A PT set the machine up asking me about the ramp and pressures but we did not account for the filter they use to isolate me from the hospital's machine causing a restriction of the flow rate. When I gave her the pressures and told her that I don't use a ramp, that I needed the pressure right away to fall asleep, she was surprised. Later that evening, I felt like I had to suck to draw enough air so I opened the settings, cranked things up to where I was comfortable and fell asleep just fine. In the AM, the PT came by and I mentioned that I had to turn it up because of the filter. She blew a fuse; first being surprised that I knew how to do that and then a little unhappy that I 'trepassed' on her territory. I explained that I've been on CPAP for a long time and that, IMO, CPAP users better know how to adjust the machine themselves, intimating that they just can't run to a PT every time they needed to adjust their machines. [ I know some will always be uncomfortable changing settings but most should know how.] Thank you for your channel - I am satisfied that I am getting the most I can with the settings I am using because your content is helping me understand what the readings mean and how to fine tune my machine. For example, as you were describing the patient's index numbers, I immediately knew he had to go to a full face mask or try to stay under the burst pressure for his mouth leak. PS - I also think that you do a truly professional job with your media presentation - it is a real stand out in the RUclips universe!
Hi there, thanks for great comment and for sharing your cpap experience with the community. I do admire people like yourself who are willing to learn. Never stop!
Increasing medical evidence apparently strengthens the link between untreated sleep apnoea and stroke. 3 yrs ago, my bro at 59yrs old had a devastating, massive BrainStem stroke and survived. In the absence of other risk factors untreated sleep apnoea was thought to be the smoking gun. Taking CPAP therapy seriously and doing your best to make it work is so important. I have had CPAP for over 12 yrs for really severe OSA (AHI 80 and SAO2 75%) & probably wouldn't be alive today without it. Keep up the good work Nikko, your work is making a valuable contribution to the lives of many. I will be joining up with Sleep HQ for my CPAP plus monitoring my poor bro's BIPAP therapy. He has OSA & Central Apnoea requiring BIPAP pressure of 28!!!. He feels like his poor brain is being blown out of his ears so this tutorial was interesting. Cheers and thank you.🤯
the sleep hq app is absolutely incredible. I'm getting so much more help and information from you than I am from lofta, where I got my diagnosis and my bipap machine. THANK YOU!
Thank you so much! I’m three months in and so far have been mostly unhappy because I don’t feel any better my wallet just got so much lighter. Everyone told me how great cpap was but I’ve been so upset. Im going to get the new mask on Monday. The same as Jay here in the video. I’ve been using a nasal mask and I often get nose irritation so that I have to stop therapy for a few days. I do use a chin strap but I think I do have a lot of mouth leak anyway. The place that sold me my equip said that I can’t buy a new mask for three months because my insurance would not pay. It’s been three and it’s time to change. I don’t have a card reader yet but as soon as it comes I can get my data uploaded and see what is going on. Thank you again!
Howdy Nico! I was diagnosed with severe OSA back in August of 2022 and finally getting my Air Sense 11 on Monday. I am very excited to get started with treatment and to eliminate the anxiety and make a massive change for a better life. My AHI was 81 when diagnosed. Scared the life out of me learning how many times I was not breathing well asleep. Finding your videos and educating myself of this condition has made a world of difference leading up to getting started. Thank you so much for these educational videos. And thank you for being amazing.
Nick you are the best. I am 35 years old, overweight, about 265lbs. Been getting terrible sleep for 5+ years. Finally got a sleep study done, my AHI is super high. Severe OSA. I just got my first CPAP machine less than 60 days ago. And... Sadly... And very unfortunately... I honestly have not been able to get a single minute of sleep with it. Typically, and for my entire life, it's always been an ongoing joke (with family, friends, and lovely better-half of 18 years) that I can sleep anywhere, even on a hard floor without a pillow. I typically fall asleep within 5min of laying down, when tired. But...... Add a CPAP into the situation (brand new AirSense unit)... And BAM! Somehow, no clue why, my body/brain is physically absolutely incapable of falling asleep. I've tried probably 25 different nights over the past 2 months.... and not a single minute of recorded sleeo. If I leave the mask on, I literally am awake nonstop... And... In the event that I get close to "dozing off", I often wake up feeling panicked and pounding heart, as if I was being strangled. (Oddly enough.... Very very different from my typical apnea events). I was given zero help from the horrid facility/team that I got my CPAP from... They immediately set my settings to AUTO mode, with a min of 5 and a max of 15, and said "that's standard, and what most people use"... I've tried pressure relief settings, levels 1, 2, and 3. I've tried pressure changes. Tried lowered my max to 13. Then 11. I have a full face mask... Which the CPAP company told me was a REQUIREMENT because one of my nostrils is fairly collapsed, so I typically breathe about 90% out of my mouth (especially when sleeping). Am I lost cause? Am I a case that cannot succeed with CPAP treatment? I really want to feel well rested for the first time in my life. I've been dieting and exercising so much for the past 8 months, and struggling to lose weight, as I never rest properly. (I'd love to be your next direct patient, that you link up with, and help me find success with this therapy that I want to work more than anything in the world. I want my life back. And I want to stop sleeping in the guest room, because my middle of the night choking scares the sh*t out of my fiancee!) Willing to contact you via email, whatsapp, chats, Skype, Teams, Zoom, etc! Help me Obi Wan NickNobi, you're my only hope!!!
@@gloriasaliba3395 I never even got a reply from Nick on this. But regardless, I have an interesting follow-up story. Since June 1st of this year, I have dropped from about 280lbs, down to 235lbs, and still going! I am simply just tracking my calories, and keeping myself at a proper limit, based on my desired goal weight. And I also force myself to walk 8k-12k steps every day (whenever possible). And the weight is just falling off still! APNEA HAS ALMOST RESOLVED ITSELF. Not fully, obviously, as some of it is my anatomical structures in my nose and throat. But my AHI breathing events have dropped to almost nothing.
Thanks for the great videos. I started apap therapy with an hired Airsense 10 1 week ago. My sleep tech started me with a Resmed N10 and that first night i hated it and using SleepHQ my AHI was 16. I checked some of your reviews and got myself a Resmed P30i and the difference was night and day. My AHI is now down to 5 or less and when i wake in the mornings I feel a lot clearer and less tired. Your videos have been a great help and now i need to look at getting my own machine.
Adam, I am impressed having once been an IT trainer/teacher with Nick and his enthusiasm and desire to help us with SA, but don't forget he is not doing all of this or free . Close to a 100K subscribers and many plugs for CPAP equipment, services and health products provides him what appears his main income.
@@phildimopoulos6010 FIRSTLY Well how the fact on learning I would have to wear CPAP mask for the rest of life, that caused me to wake 6-7 times a night, a blocked nose so had to war a full face one, a skin itching condition that even wearing a watch was a problem, found wearing the mask a very big problem. Did a lot of research on the Internet not just RUclips and found VERY LITTLE in regard to any alternatives but primarily mainly obvious commercial backed ones for wearing masks. By pure chance came across a study carried out in Japan that losing weight, exercising and a far better diet if serious enough could lead to not having to wear one. Thus, for a year using the discipline I learnt as a young man in the RAF learning Tae Kwon Do, most days of the week I did about 2.5 hours of exercising: indoor rowing, cycling, dumb-bells,, kettlebells, punch bag, and out door running and power walks. Totally changed my diet and went from 134kg to 92kg which for about a year now have kept. Saw a CPAP specialist who got me to carry out the same overnight sleep test and to her amazement could not believe I had absolutely no signs of sleep apnoea at all. I also only wake one or twice now, not having to wear the mask. SECONDLY Been teaching and training IT since 1982 and thus know very know what is required to produce You Tubes, which are to all intents and purposes 'training videos' which require a lot of time, energy, effort and most of all money, i.e. decent kit. Having well recall the very amateurish and non-profit-making efforts of the early days of RUclips, I can assure you that what we see now are often better than major film and TV companies would be able to produce and there are many such companies that offer such services to RUclipsrs, plus the obvious financial support from companies to assist RUclipsrs who have the gall to say they are Independent of the company they are doing a review on. MY POINT You are simply, as with so many people now are being very naive, trusting and incredibly and dare I say, STUPID because if you think I am being unfair in my comment to Adam by stating an alternative to wearing a CPAP mask ( albeit one not many could do) as well as my actual experience in the of IT and the Internet - you still have the mind of a child and believe in Father Christmas and Fairies.
I’ve been using a full face mask for 12 years. It changed everything. I thought it would be awful but it is actually way more comfortable than the zillions of other types of masks I had tried. A t-shaped pillow really makes a difference, too. It keeps me from knocking off the mask accidentally, and it allows a much more comfortable sleeping position.
hey mate hope.your well, how lonflg before you seen noticeable improvements, I've only been doing it about six weeks but feeling a bit underwhelmed with the improvements?😊 thanks for the reply
@@generalismoquabablinotheth5902 When it is working for me, I generally know immediately the next morning. If you are not feeling better, large leak throughout the night could be an issue. A properly fitted full face mask will generally fix large leak. Also, you might not have the correct pressure(s) dialed in yet. Does your machine provide a data file for you to examine? This will tell you if your mask is leaking. Some machines will beep at you when there is a leak. Is the machine auto-adjusting (adjusting pressures in real-time as your body needs support)? My early days sucked! Don’t give up!
@@CPAPReviewsreally detailed stuff. I hope there is an app for mine. I’ll look in to that. I’m also in the market for a proper less intrusive full face mask. No luck so far.4
Great video. Thank you. I'm new to CPAP and you've been helping me to stick with it in a better way. I KNOW I will feel better someday or another. If I can figure all this out that suits me best. You're an inspiration.
Your channel is awesome! I'm 32, just diagnosed with Disruptive Sleep apnea here in brissy, I had an ahi of over 30. At least there is a huge rabbit hole of Tech to explore.
I've been watching your videos for a little over a month now. They've helped me immensely with my therapy (cpap now for just over a month). I thought my doctor and my provider were good and gave me decent information, but you take it to a whole new level. Info about my machine, masks, how to improve my therapy and everything! This video pushed me to sign up for SleepHQ just so I can really get into my data and how much better things could be. Thanks for everything so far!
The therapist at my cpap store knew hardly anything....just keep trying another mask she would say....I even taught her things I learned on here....how she keeps her position is z mystery.
G'day mates, there's an 'Easter Egg' but I've made it much harder to find. If you can find it I'll send you a 02 Ring & SleepHQ hat If you find it, comment on this thread and let me know A. Where you found it & B. Who They Are (there's a clue!) The no.1 reason people give up on CPAP therapy is terrible advice and education. The 3 fundamental elements of success are 1. What therapy mode? CPAP, APAP or BiPAP 2. What pressure settings provide COMFORT & CONTROL 3. What CPAP Mask These 3 elements are linked and provide the foundation for CPAP compliance. Don't expect your clinician to get it right! They're not the ones sleeping with the mask. In fact, most have probably never slept with CPAP. Today's case study was just an example of how you can work on the 3 elements to improve your CPAP results. It is not a 'one size fit's all approach', and the methods we used to improve Jays' results might not suit you. One thing is for sure, it's a great idea to monitor your therapy data and trends on sleephq.com . It's free to join the community and review your data. The platform now supports ResMed & Philips Respironics CPAP users. It's super easy to upload, review and share your cpap therapy data charts. We're adding new CPAP machines to the platform every month, so join our mailing list, and we will let you know when your CPAP is compatible cpap.review/sleephq-newsletter Connect with me sleephq.com/connect/nicko RemSleep 02 Ring - Free International DHL Global Express shipping with coupon code RING cpap.review/02-ring Join me & over 7000 cpap users on our Facebook group - facebook.com/groups/cpapreviews Shopping for CPAP Gear? My Channel Sponsors will take great care of you! U.S Sleeplay Channel Sponsor - cpap.review/shop Australia Channel Sponsor - cpap.review/cpap-direct A big thanks to Jay for sharing his sleephq profile with us today! If you enjoy my CPAP Reviews and it's helped you with your therapy, please consider supporting the Channel by becoming a channel member - cpap.review/membership . I can 100% guarantee your membership will end up paying for itself. Lots of love. Uncle Nicko
CPAP over APAP based on the machine ramping up the pressure for the first guy when he didn’t need it. The pressures that provide comfort and control are the ones that make you sleep well without fighting the mask. That’s what I got from the vid. Which mask? The one that is comfortable for you that you will wear.
What a fabulous outcome for Jay, brilliant! Not sure if I found your easter egg Nick - is it you making hilarious sounds at the end of your video 21.19 - 21.22? That had me in stitches! 😂
The thing that completely confuses me is that I thought his pressure of around 15 was too high and was the main problem, then after playing around with settings he ended up with a pressure setting of 14 anyway and things were miraculously solved??
Thank you for this video. I can now see why I’m struggling with the auto-cpap pushing out to much pressure sometimes. Will try this incremental method you showed here. Thank you!
FINALLY - Finally - got the mask. Took forever for the DR - to write the prescription. Then the mask supplier had to order the thing. Finally picked it up today. Can't wait to take it for a ride. I used my Samsung phone to show my sleep tech - the SLEEPHQ data. She was impressed with the site. -- I'm not sure I'm crazy about the clips on the mask. I'll have to relearn. Thanks for your videos.
Nick, awesome video. I've learned more about my therapy in your video than I have from the Dr. and clinicians in 15 yrs. I'm heading over to SleepHQ to get an account to take back control of my s.leep apnea. Thank you from the bottom of my soul.
Great watch, I’m struggling to keep my mask on nightly. Thanks for all of the useful tips. My support team have been awesome checking in on me monthly, they will be pleased with better success I’m sure after following you. I’m understanding a bit better how all of this is working. Keep up the good work
Thank you for this excellent video. I am very new to CPAP therapy, but I watched your videos before picking up my machine (Airsense 11) and I also went with the F30i mask (based on one of your previous videos). I find the mask to be pretty comfortable, although I also experience leakage at around 11cm of air. I have been sleeping better since day one, but I also experienced cyclical swings and recently went to CPAP of 11cm. Hoping for the trend to settle out. I installed an SD card into my machine to use with your excellent site.
Hi Paul, thanks for your membership mate! You've got some great gear. Air11/F30i is a great combo. All hybrid full face masks leak a bit so you really have to work on finding a great pressure setting. Try 11cm and see how you go but make sure you also try lower settings to see if you achieve similar results at lower pressure. All the best brother. Nicko
You little rippa. I changed my upper pressure limit to 10 a few nights ago. My leak has since gone to 0 if I chin strap and 10L if I don't. My AHI is still under 1 and I'm not waking up from 4am onwards because of my cheeks being glued to my teeth and with terrible thirst. I think I'll ignore the chinstrap and be happy with leak up to 10L, for comfort.
Thank you to Jay for your example. I have learned a lot from it via Nick's review & explanation. I am nowhere as bad you Jay, (not rubbing it in, really sir) just saying that we all can learn from this example. I switched from a nasal to a full mask when my seasonal nasal passage swelling and plugged nose hit in the fall. My previously successful trial and first few weeks of my own machine went down the toilet. I ordered a F & P Evora full and could breathe again. But at 2 am, each night, my pressure would increase (set for max 12) and I woke up with my mask farting away. This vid helped me to reduce my upper pressure to a minimum and I am gradually increasing the upper limit. So far so good and I got 8 hrs, 20 minutes of good sleep last light with a high of 6.2 pressure. I will stay there for a few days and up it gradually until I get unacceptable leask rates.
Hello. My husband wears the Philips Dreamwear. If he opens his mouth, does this also have an influence on the leak rate, despite the mask beeing a "full face" mask?
WOW!!! THANK YOU THANK YOU THANK YOU for your videos. I just today learned about Sleep HQ, downloaded it and am trying to understand it, navigate, etc. The doctor at the sleep center where I got my prescription has been out of country whenever I've sought an appointment to see what's up with my therapy. I saw your vids when my machine started whining and was looking for replacing the motor. I found one from China and can put it in in a few weeks. Thank you again for all you are doing.
Your videos are so helpful! I have to decide what CPAP to use soon as a first timer and I’m still confused lol. AirSense10 seems to be gold standard but the ibreeze seems lovely. Ever do a comparison video of these two?
Thanks for sharing this video dude. Had no idea what the charts meant when i first saw then. Explained really well, way better than my sleep therapist anyway
Amazing video mate! Thank you so much for all the help you give! I get my AirSense 10 today, and look forward to taking better care of my sleep for the first time in a long time!
I started with cpap, now on bipap. Not Much difference between those that I can tell, but I can see where starting with bipap might be easier for first time patients. The key for me was the mask. The sleep doctor and techs tried to put me on nasal pillows but those did not work. Full face mask worked for me. The cpap has been a lifesaver. I used to get 3-4 hours sleep a night. Now I get 7-8 hours.
I've been a CPAP user for almost 2 months... and your channel has been a godsend. Thank you. I read comments, (somewhere among your videos), one man kept saying he would turn off/on the machine. Two things have directly been impacted by your videos is that, 1) ordered a nasal cushion mask and 2) I turn off the machine and turn it back on because I start bubbling air out of my mouth. What I have realized is that when I fall asleep and my jaw drops back, I end up mouth breathing and air leakage and my pressure goes up. And when my pressure went up too high, I would have to turn off the machine and turn it back on so that it would reset and ramp back up. It allowed me to go back to sleep. I originally had a full mask and I loved the feeling of it because it equaled the pressure between my nose and mouth. But I could never find a good position for my tossing and turning side to side that I didn't have constant air leaks. And again I wasn't even on the system a month and it was a struggle. So this nasal cushion has done wonders for my sleep, though I still wake up to the noise and the leakage and discomfort. It is way better. This video proves my own hypothesis. After I got off the full face mask and gone to the nasal cushion, my air leakage mouth breathing improved because I sleep side to side and I turn off the machine because otherwise my mouth bubbles air. Thank you for this very much.
I was ready to give up. I hated being air-raped and just couldn’t tolerate it. My tech tweaked the settings snd now I sleep comfortably with the CPAP. My AHI went from 140/minute to 3.5/minute.
Great video! So interesting and educational. A big thumbs up to Jay! He shaved off his beard and this may increase his lifespan. In the grand scheme of things - a small price to pay. Keep up the good work!
Regarding using a Full Face mask (FFM). After suffering through eye irritation caused by small leaks around the bridge of my nose through the ResMed F20 mask, switched to a F30i; A world of improvement!
@@CPAPReviews Not at all this is the type of video we need to make informed decisions about our treatment and how to dial and adjust for better results and wellbeing . Doctors don't have time for this dial in stage ..To be successful you need to have bought in to the treatment and this guy forsure has ..I would love to see a before and after Beard picture... Congratulations Guys wicked video and this one will help your fellow Hoseheads bigtime
@@BritinCanada Hoseheads! I love that (especially with the F30i). You might be interested to know that I'm growing the beard back until I get leaks at 95%, then I'll keep it trimmed at that length.
Really appreciate the insights, keep up the great work! Love to see more like this about how to interpret data and correlations on SleepHQ. How would you address Jay's CA events? Is that a normal amount?
Hi Alan, thank you. I do think his centrals are a big problem now. The first thing i normally do is drop the pressure to make sure they are not treatment emergent central sleep apnea (TECSA) where the PAP therapy is causing the problem. If it's only a small amount of central apnea which tends to happen in the older folk and those with certain heart / brain conditions then i don't worry about it too much. If there's a lot of it then ASV is the way to go! - ruclips.net/video/0j6m6ZRf8Kw/видео.html
This....'variability' of result, relative to equipment, is great for people selling these products. Is there any 'legitimate' unbiased statistical 'generalized' preference for machines, masks or pressure that might define a reasonable place to start. It is very telling that the machines are sold without masks of any kind despite the fact that the manufacturers also sponsor or manufacture the masks as well. For what it costs to manufacture these masks, manufacturers should include examples of each with these unnecessarily expensive machines (as 'medical' devices, they have a ridiculously high markup relative to general consumer goods).
I'm angry at the CPAP equipment retailer and the hospital sleep centre. I've had a great AHI but leak well above 30 even when I mouth tape. I've bought several different masks and chin straps. I watched an earlier video on this channel and dropped my max pressure to 10 and my leak was 0! I went back to the n30i and my leak is between 0 and 10L. I battled leak for a year and no one suggested I change pressure settings. I tried max pressure 9 for one night but my AHI rose to 1. Now I just have to decide if I want to return the P30i while I still can. I like it's minimal touch but it's made my skin bleed, and with reduced pressure my p30i is working. Good on Jay, but it shouldn't be up to patients to educate themselves and feel slightly naughty making their own changes to their therapy. I have an upcoming medical review and am worried I'll get in trouble for changing my pressure settings from 4-15 to 6-10., even though now my AHI and leak rate are great.
Been on CPAP for about 6 months. Moderate obstructive diagnosis. 69 years old and other wise in good health. At first I did notice a better energy level. Now I'm starting to wonder if it was psychosomatic. There has got to be a better way.
I have been om CPAP (APAP) for 7 months. But the first 5 months i was using a nasal mask and it did not work, now i am using a pillow mask and chin strap which works great. My AHI is between 0,5 to 2.5 and when i was tested it was 68!
I cannot get My mask to seal prperly and I snug up the mask so much it hurts and thus 4 hours is the max that I can wear it. I have a pacemaker and can't wear the mask that I found comfortable because of the magnets, the mask connected to the hose at the top of my head and it was comfortable because, I am a side sleeper. I would rather not wear the mask at all if I had to try sleeping on My back. I am 77 and I don't mess with the settings of the machine because, I don't trust myself in remembering what the hell I did last. I have to tell you that all the stuff you are presenting just totally scrambles My mind.
The sleep center I was seen at could care less. never returns calls, lies, talks a good game until you get a device then cuts you loose. I actually hate them.
So how is this helping or healthy? My AHI is 35 to 45. Leaking 114🧜♀️I’m so discouraged. I’m not using the machine. I have the pressure set at 15 changed to a full face and I couldn’t use it. It was very uncomfortable . The bridge of my nose hurt. This whole experience has been a tormented experience and I have spent hours and days now watching RUclips going to supposedly a sleep person at the pulmonary Dr’s office. He handed me a full face mask patted me on the butt and set me on my my way as he was on his cell most of the time while talking to me texting! It’s disgusting and disappointing there is not anyone helping. The manager where I got the machine said it’s high AHI because of the leakage and it’s high. I turned the pressure down because the goT mask was blowing off my face when it was set at 20. I AM SO THANKFUL THAT I FOUND YOU ON YOU TUBE ! But this should not be! Right? So I told a couple friends I’ll probably die in my sleep from a heart attack or apnea. It was 15 when I took the sleep test. I’m up at 4: am writing this not getting my sleep. Again 🙏 I’m going to watch the video again. Is there anything you can suggest. I am a mouth breather. She said I had a high tongue. And the roof of my mouth was lower. I mean what else do I have. It’s ridiculous
Your AHI is slightly less than where mine was. I am also a mouth breather and my pressure is set at 11, going to be moved up to 12 soon. 20 is going to be WAYYYY too high! If you can change the pressure settings, take it down to 10 and see how things go from there. Work on getting a mask that fits and does not leak much. It is a trial and error thing. Use sports tape on the bridge of your nose to keep the pressure off and be sure to completely wash and dry the mask each morning to keep the oils from your skin down. It may leak a little from the tape, but not much. Good luck. Hang in there. You will get it figured out. It is worth the hassle.
I personally found this really depressing. First he had to keep on increasing his pressure. Then he had to switch to a bulkier mask. Then he had to shave off his beard. It just sounds like his experience is getting worse and worse.
Sorry for the late response, I just noticed your comment. It hasn't't been as bad as you think. The F30i just works for me. Nicko's intervention happened at exactly the right time, with zero leaks from the day I shaved. But a little thought and some judicious trimming as the foliage grew back and now I have a beard the looks better and has just enough of a trench that there is no fur under the mask. I'm used to solving complex software problems, and understand that some things take time and patience to work out.
I would encourage new CPAP users to try different mask models, not just one model of each type, until they find a mask they love. Also, try masks that have been out for years, not just the "latest and greatest". In my experience mask design in full-face masks has gotten worse for me, not better. Seems like manufacturers are more interested in planned obsolescence than patient health. Your hat's on backward. Try turning it inside out. ;)
I had high Blood Pressure. Cpap use helped to lower it,. but Airsense 11 keep telling me about leaks. I don't control the Resmed. It is done remotely. I can't afford mistakes with insurance or settings. I have had a stroke so comprehension is difficult. I need to become an expert to continue? I never thought of YT -U would help. Glad I found your channel.
Mate, great vid 👍 some really good bits of info to take away and tweak. Cheers 🍻 the million dollar question now is APAP or CPAP 🤔 I'm APAPing at the moment but I've dialled it down to a range of 1cm. Consistently getting AHI 2-4 where as before 6-8. Thanks for your advice and help 👍
I suppose once you figure out your conditions using the sleephq in cpap then you can go apap with the right pressure in constant mode to better suit you.
Hey Nick, You videos are really helpful. Can you add a feature on SleepHQ which lets us know what should the best pressure setting be based on our previous data?
Hi Angelo, you're welcome my friend. In the future i believe we will have some really cool AI / machine learning that will provide info like you are suggesting
I been using a apap for over a year now with a pressure of 5cm- 15cm...my ahi has been 6.6 haven't really slept good since then tossing and turning..but I seen this video last night and changed the setting to cpap and change the pressure to 10cm after i looked at my 90 days data and my ahi was 0.3 last night thanks..
I have been on cpap over a week. Unfortunately for me, it has been a very uncomfortable journey so far, with almost no sleeping time and a lot of anger and frustration. I have taken the mask already during the night, but still, the frustration level is so high, that I can’t even sleep without it. I have changed pressure settings, tried different pillows, adjusting the straps from very loose until really tight ( up to the point it hurts my nose bridge) but still no result. So far I have a f20 mask, but because I’m a side sleeper and I tend to move a lot during my sleep, I think this is not the proper mask for me. I have been waking mostly because of leaks, noises, and now because of my frustration, I am not taking the therapy in a positive way, and suiting that mask on my face rises my anxiety, which eventually leads to a bad night and no sleep at all. I will try and change my mask to a different one, maybe a f30i which suits better for side sleepers and the mask doesn’t go all the way up until the nose bridge, but it hasn’t been s pleasant journey. Hope I can get back in track somehow, I think it requires a lot of patience.
Hello, I've been on CPAP for over a year. I've been using F30i, but it kept waking me up over night with various problems... I switched to F&P Vitera, and I sleep better with it (at least when I don't have one of my insomnia episodes, and I have them a lot...), but seems that I can't control mask leak well... I had a same-ish beard like Nicko, which yesterday I shaved, and looked at the data this morning and it's still leaking, no changes... Also, the only way to prevent leaks both with f30i and Vitera, is to as tighten them up as possible, if I put them just snug as suggested they started to blow all over place at some point in the night... I am a mouth breather, and obviously, my jaw is recessing during night and f30i usually starts to leak under my leaps leading to waking me up sometimes I would move and probably move the mask in the process and it starts blowing straight into my eyes waking me up.... But the leak results are better with f30i. However, Vitera is more comfortable to me, but the leak results are worse... It's rarely waking me up, and when it leaks, it leaks around my nose bridge, I tried freaking every recommendation about fitting the mask (using just the lower straps for the tightness, leaving upper straps with just a bit of tension and the space between forehead and stability bar, everything...), and always the best result comes up when I tighten up everything as much as I could tolerate. I am a side sleeper, I sleep at the edge of my pillow, so the mask is not in contact with the pillow. Usually I wake up in the same position I fell asleep, and I don't understand how this leaks happen in the middle of the night... I'm using Resmed Airsense Autoset 10, and was experimenting with various pressure ranges except a constant one... I made SleepHQ account and imported all of my data, and hopefully Nicko or someone could help me. Thanks
I was having a lot of air leakage with my full face mask until I started sleeping on my side with half of the mask buried into the pillow. It holds the mask in place snugly and I have had very little leakage with that simple position change. Try it. May work for you too.
I really appreciate how this answered one of my questions regarding leak rates! I have a beard and I have had high leak rates and when you mentioned it, I felt relief. I was thinking I was doing something wrong! I'd like to know of options to mitigate this without having to shave or possible change masks.
Hi Lesley, glad it to hear it mate. I know it's a steep learning curve so just stay the course the and it will all start to make a lot of sense soon. Thanks for your membership my friend. Nicko
I'm so confused.. the first two nights I thought there was real improvement and I feel like I slept well but now I'm blowing air out of my mouth and struggling. My 02 drops to the 50's so I'm anxious about getting my doctor to understand what's going on with the mask because "I"don't know what's going on. I have severe unrelated anxiety and the full face mask was claustrophobic when they rushed in and made me wear it during the sleep study because of the 02 and everything else. I signed up for your website but my resmed 11 doesn't have the chip so I guess I can get it? Anyway the mouth breathing in this video reminded me of what is going on with me so that is a bit of clarity. I didn't get much for the doctor or tech.
I found your podcast very informative. I also own the air 11 CPAP machine but cannot access the feedback from my night's sleep. I have the MyAir app on my phone but it does not appear to give me the information you have show. My question is how can I access the same feedback on my CPAP machine you have discussed. Thank youm
Question for you Nicko: Any idea why none of the new masks include a silicone/gel cushion? For years I used an F&P Acclaim 2 and it was a fantastic mask despite the obstruction in front of the eyes. I always struggle with the newer masks in comparison. There's nothing solid to make the seal and relying on a cushion of air to seal properly is awful. It's a bit like going from solid tyres to the skirt on a hovercraft. I wish they'd bring Acclaim style masks back!
G'day, philips has the amara gel mask ( full face ). They also have the nuance (gel) and they use to have the comfort gel. ResMed has the AirTouch which is memory foam instead of gel. You should try the F&P Zest Plus which is similar to the Acclaim but without that stupid thing in front of the eyes. Cheers
Best wishes for all the help you’ve done for people. Not sure where to put this. Do you think you could show a br1225 battery replacement in the hdm z1?
![Hunxho - Ball Forever [Official Video]](http://i.ytimg.com/vi/nki9ZTF9Uls/mqdefault.jpg)
The education I got when I received mine was about 10 minutes if that. I have learned more from you then anyone else. Thank you!
I agree
Exactly what happened to me
@@craiggreensill7390 Sad isn't it for what we paid.
Yep. My brother didn't get anything. They just dropped off the machine and walked away. I had to be the one to help him with some things.
@@bethjohnson3123 tbh I think the hospital made a mistake , I had to wear a little monitor on my finger over night . Then the hospital contacted me . That when I got the news I had server obstructed sleep apnea. It’s funny how my AHI is only 0.2 average.
It's amazing to me. The MDs earn money, the hospital earns money, the manufacturer earns money, the support service earns money... you would think they would be motivated to ensure you get the most out of your therapy and the highest return possible on the money invested/ WTF! I really really appreciate all your videos but this one, in particular, helped me understand the variables that can change the impact of your therapy. Thanks so much!
Their 'attitude': You have the device, good luck since we won't be helping you. I never hear from them.
Only the manufacturer made money from me.
@@xpusostomos Wrong. Your medical insurance paid for the testing necessary to even be diagnosed with sleep apnea.
I started with my CPAP about 2.5 months ago. It's been a terrible experience. I have only recently come across this channel. The information here is so good that it makes me angry that I was provided any of it. Tonight will be my first night with SleepHQ, and the information it provides will be so helpful. Why my Dr doesn't have this level of information is beyond me.
The paradigm of finding the right mask is madening. There is no test fitting before purchase. The idea is that you are supposed to keep buying masks until you find one that works is asinine.
My fingers are crossed that I'll be able to sort it out myself.
Hi Andrew, great to hear you're enjoying the channel. A lot of mask manufacturers have 'mask fit guarantees' these days but you normally have to purchase in-store to get them. F&P has the 30-day surefit guarantee and they make great masks. Cheers
Same experience here sir. More good info on RUclips v dr office!
Their 'attitude': You have the device, good luck since we won't be helping you. I never hear from them.
I have just started also but I had mask fitting with a pharmacist who supply the machine to trial for one month. There was no way I can handle a nose only mask. I'm a mouth breather until I'm fully relaxed but I often sleep breathing through my mouth because my nose is always feeling blocked up. People should try nasal and full face masks.
Yeah, definitely feel like I was completely uniformed. They want to make the sale, make a good showing of concern and then forget you existed. This channel and a few others have been instrumental. So far, I'm still only able to keep the mask on for an hour or two before I rip it off in my sleep. But the trending is upwards. So, I'm hopeful. First 3 nights were absolutely frustrating.
Videos like this would be great to get sleep doctor's and technicians to watch. The doctors around my area believe they know it all and scoff at people who try to learn how to improve their comfort and aih. They also try to get us to ZeRo events and keep us there and I'm not a fan of doing a sleeping marathon of terror each night. These videos coming out of Australia are extremely helpful and we thank you sir. 🙏
I agree, it's amazing to me that doctors are offended that you are trying to learn more about the condition that they diagnosed you with lol. This will be my second go around with CPAP therapy and I'm going to insist on low pressure settings initially as ramping up to quickly will just lead to me not using it at all like before. I'm going for my second sleep study but this time with CPAP so I really need to keep an eye on the techs ramping up pressure too quickly.
Absolutely, "believe they know it all and scoff at people who try to learn how to improve their comfort", I have a clinician not seen a Doctor yet, who is so much like this and can't seem to cope that out there are many people doing jobs and have degrees in very high technical subjects. Mine is IT Training, since 1982 and without wishing to appear a 'know it all' I have sussed out the use and reading of my Oscar data but on asking this clinician , what I would consider low level questions i.e. "Now getting use to a full face mask, not taking breaks during night from mask any more, no more panic attacks, gone from 3.6 hours average per night to 7.3 hours with keeping mask on, slowly increasing my pressure and humidifier settings - Why has my AHI averages over four months not changed at all?" Result embarrassing silence !!
@@wakeupuk3860 Are you able to control your own pressure settings? Also,What is your AHI at starting and current?
BTW My Health Insurance changed which put a little delay in my follow up Sleep Study. Will hopefully have it sometime in January/Febuary
Nobody cares about you as much as you.
Just wanted to thank you for all you do. Was ready to give up on the whole CPAP thing. But after listening to a lot of your tips and tricks, its not too bad and things are getting easier to handle. you are definitely my favorite uncle. Thanks again.
I love these sort of comments mate. Makes the effort worthwhile. Cheers
Just happened across this video while searching for something else. I was about to give up on my C-Pap treatment but this video is giving me hope. I definitely think this video should be given to people here in the US when they are ordered Pap treatment. The Drs and NP's here in the state just "tell you what to do" without explaining the benefits of using it correctly. Thank You for this video "Uncle" and I will be watching for any further info you have for us.
I’m sitting here, very happy with your video and really unhappy with my pulmonologist. I had an AHI of 9 at my sleep study but I have mild pulmonary hypertension and use 02 at night.
He recommended a CPAP to reduce general fatigue. We discussed setting it at 8. I used my machine and it was a shitshow. Uncomfortable, mouth breathing and dry mouth. Switched to a full face mask and then had a very upset belly and pain. Called Doc and pressure turned down to 9.
Still have Aerophagia plus with the full face mask it’s hot and giving me fits with nightmares of suffocating. Saw your video today. MIND BLOWN!!!
I called my doc and asked for another pressure reduction. I am keeping my full face mask as it’s expensive and I’ve already ordered a nose pillow mask on my own. I’ll use the cpap again when the pressure is reduced and when I get the nose mask. I strongly suspect it might actually help me.
I’m strongly peeved because I’ve had to learn all this ON MY OWN. Considering what my pulmo makes per appointment, I would have expected more support. I’ve learned more from YOU in a few videos during the past two weeks then I learned from my physician. Thank you.
It’s absurd. I’m so unimpressed with how they handle it and we gotta figure it out from youtube
The medical industry is just that, an industry. They make huge money off keeping people helpless. The best thing I learned to improve my health is that I alone am responsible for my health. I am the best person to heal and treat myself. The minute you give your power away to someone else, you're wasting time.
I totally understand.... had a similar experience with my sleep study/ CPAP prescription. Pulmonologist never actually saw me, I only dealt with the sleep techs. The CPAP would cause the inside of my nose to swell up and I would wake with a completely blocked nose and/or sore throat. My AHI was only 15 during my sleep study, mostly due to sleeping on my back and less than 5 when on my side. The CPAP brought me down to 1-4 AHI but I could only sleep 1-4 hours until it woke me up.
I've been getting a lot better and uninterrupted sleep since I returned it. Thankfully here in the U.S. the insurance companies force the equipment providers to lease CPAP machines out and I don't have to pay for a machine that I am not using any more. Going to see if EPAP/ Provent might work for me. Hope you have better luck with yours. :)
This gent is a credit to the world of CPAP
I really appreciate that Roy. Cheers mate
@@CPAPReviews buddy I’ve learnt more from you on the Subject ….than from any other source ….
But not to the world of APAP 😀
Hey Nick! I'm finally starting to feel better. More energy. I've been sleeping a lot less too. Took over a year to feel better. Thank you for being there for everyone.
A year, that's rough. I was on CPAP for only 2 hours my first night, and already felt like a million dollars better the next day.
@@xpusostomos I know many swear by it but cpap just keeps you one step from insane. No amount of sleep was enough. In 93 when I was 12 I had a brain tumor of my pineal gland. They eradicated it along with the tumor they thought the pineal gland does nothing, turns out it regulates your sleep and deep sleep my emitting melatonin. I'm 44 and before I got on cpap I had 3 strokes, most likely sleep depravation. Though I've been off cpap for a long while. I still wake up feeling like someone punched me in the eyes.
Thanks for this breakdown of the SleepHQ results. I accessed the clinical settings via your instructions on my AirCurve machine. A few days later the clinician phoned and I was scolded because the BIPAP pressure they set the machine at was 22/12 and I had turned it down. "This is a prescription. You shouldn't change it", was what I was told. So, I had been doing quite well at a lower pressure, but they did not want that. So, I've been fiddling around with different mask types and watching reviews from you about different full face masks. I haven't touched the clinical pressure settings in a couple of weeks but my results have been varied because I was trying to find a mask that worked for me. My AirTouch worked okay, but started to leak around my eyes when up to full pressure. I just got a F&P Evora Full Face mask and have been wearing it for three days. NO leaks. When I slept I had results under 5 events per hour and it feels pretty comfortable. Sorry for the long-winded comment, but I have really been inspired by your channel to work on my sleep apnea and try to get it under control so I can sleep better, lose weight, and be more healthy.
Thanks so much for your channel and the work you are doing with this app to help us CPAPers. I know I can get this under control again and make therapy start working for me.
You sound like me and what I’m going through. I’m up at 4 watching this video by Nick! Thank Goodness for Nick!! I think I need a better mask! Had the go T type and than some guy gave me full face it was terrible!
I did the same thing turned down the pressure. It was set 5-20. The mask was blowing off my face. I have a slight sore throat
I had a runny nose with the go t type because it blows right under the nose. I know I’m a mouth breather. I have 35 to 45 AHI and so that’s higher than my sleep study. It could be causing more problems. I don’t know, it’s frustrating to say the least.
Can't wait to get scolded Jan 28 when I have my sleep center appt. I've been changing settings like changing undies. I'm sure they will get on me. 😊
Wow…just wow! I’m so impressed with Jay’s willingness to embrace the changes and achieve excellent outcomes. You are spot on regarding how each of us can be our own champion by making simple changes but mostly educating ourselves. Thanks Uncle Nicko! Love to all!
Hi Kath. I'd been watching him for a while and he was going from bad to worse. He now has the tools and education to take care of himself
Though I really don't understand it, his pressure was obviously too high at 15 then he played around with with his pressure settings and he's now back up to around 15 with amazing outcomes.?
OMG, Nick! Best video ever!! I am beginning to think that maybe I’ll be able to figure this out instead of looking at all those charts and graphs with a big question mark ❓ over my head. Finally the light bulb💡 is coming on! Thank you so much for these informative videos. Bravo 👏
That's great to hear Doreen. I know they're not exactly the most exciting videos but each case study will have it's only little lessons that will help you piece together the puzzle. Good luck. Nicko
The
Most informative ….feature on CPAP this gent explains it all well …and he’s a nice bloke with a sense of humour .
Thank you brother, appreciate the lovely comment
@@CPAPReviews your welcome buddy …was going to ask how low can the setting be I start a 4 and the air flow strength goes up
Really appreciate the video advice! As a mouth breather, it became apparent that this wasn't going to create success with the nose mask I'm using for my apnea struggle. Seeing your description, and getting the right adjustment on pressure made all the difference in keeping my mouth closed, and consistently lowering my AHI occurrence down below 5. Thanks for all the great direction!
I have used a CPAP machine for a lot of years. Initially I had a sleep study done. When I had the appointment to get the results from that the specialist said that my results were so bad that he didn't want we making the hour plus journey (country roads AND city traffic) to get the sleep study done with CPAP at his recommended settings. Instead I was set-up with a machine on hire and sent home to try it out. The most difficult task was the trial and error over the next couple of months, to get a mask that I was comfortable with. I ended up with the nasal pillows, which I had originally discounted because of my hay fever. I think that the mask (Swift FX) has helped with that. I wear a chin strap to stop the mask leaks but the bug-bear with that is the velcro ripping my hair . . . . so I put something over my hair (I have settled on a toweling hair turban/towel), so that is no longer a problem. After watching your video, I thought I would have a look at what the read-outs were on my machine. Instead of have realised that I cannot even turn it off. For the past few years I have simply plugged the machine into a power board with individual on/off switches, and simple turn the machine on and off at that switch. (Very necessary due to back pain when twisting further . . . and I sure don't miss having to put my glasses on to read the screen.) Perhaps my machine never had those read-outs, just the mask-fit screen and then it moves on to auto. What machine do I have? Wait for it . . . It is the ResMed S8 Auto Set Spirit 11. It works . . . I wake up rested . . . the Fitness app on my watch indicates that I have an amazing deep sleep vs light sleep percentage (40 - 50% deep sleep) and, if I have to get up during the night, it indicates that I usually fall back asleep very quickly. I tend to 'roll with the punches' with what life throws at me . . . . When my dentist told me that my teeth were getting worn down because I must grind them in my sleep, I thought, "Oh good god! Now I have to wear a mouth guard!" Truth is, that isn't so bad. I didn't go the expense of a custom piece from the dentist . . . . and I found that the shop-bought mouth guards are too rigid and perhaps a bit too high on the gums. I figured that this was because they were aimed at impact protection when playing sports.. Thank goodness for eBay and finding mouthguards aimed at just stopping teeth grinding. They cost less than $2 each. You pop it in hot water for 20 - 30 secs, take it out to cool slightly before you press it onto your teeth and the roof of the mouth to shape it to fit you. If you aren't happy with the result, let cool and then repeat this procedure . . . A bit of advice: Don't get the clear ones . . . particularly if you have bad eyesight. They are very had to find, when they have rolled somewhere across the floor or gotten caught up in the bedding!!
Thank you for all you do. I have really became educated on Cpap therapy and I give you a lot of credit for my success. Thank you again and please keep up the great work and content.
Hi Lee, that's great to hear! All the best brother. Nicko
Regret that I can’t have your attention and advice! Because your involvement in resolving problems for your patients are so inspiring, you search deep cause and not just want to sel a mask! You exprès real humanity thank you.
I have been struggling. I have been dealing with sleep apnea for abiut 15 years. Im now 30. I have had my CPAP for about 12 nights and HATE it. I feel so defeated. My issue I was trying to fix was to keep from waking up so often due to the stoppage of breathing. I often wake up feeling like I never even slept. The CPAP just made it worse.
You helped me so much. I was having an issue breathing out and I would wake up fighting for my life trying to rip my mask off my face too catch a breath.
I turned mine down to 4 / 7 and going to go up by 1 every two weeks.
Thank you again.
Nice work Jay! I live in a remote parts of Australia and no doctors ect who deal with sleep aponia. I knew I had it because of friends who have it (feeling like I didn't sleep when i had 10 hours sleep) and weight gain ect. I brought a air sense 10 and CPAP Reviews taught me the rest. after 7 hours sleep i feel like a million bucks! thank you Nick! i can not thank you enough.
I’m praying for the same results once I get my machine.
What mask is working for you?
I was unexpectedly hospitalized away from home and the hospital provided me with a CPAP for the night's stay. A PT set the machine up asking me about the ramp and pressures but we did not account for the filter they use to isolate me from the hospital's machine causing a restriction of the flow rate.
When I gave her the pressures and told her that I don't use a ramp, that I needed the pressure right away to fall asleep, she was surprised. Later that evening, I felt like I had to suck to draw enough air so I opened the settings, cranked things up to where I was comfortable and fell asleep just fine.
In the AM, the PT came by and I mentioned that I had to turn it up because of the filter. She blew a fuse; first being surprised that I knew how to do that and then a little unhappy that I 'trepassed' on her territory. I explained that I've been on CPAP for a long time and that, IMO, CPAP users better know how to adjust the machine themselves, intimating that they just can't run to a PT every time they needed to adjust their machines. [ I know some will always be uncomfortable changing settings but most should know how.]
Thank you for your channel - I am satisfied that I am getting the most I can with the settings I am using because your content is helping me understand what the readings mean and how to fine tune my machine. For example, as you were describing the patient's index numbers, I immediately knew he had to go to a full face mask or try to stay under the burst pressure for his mouth leak.
PS - I also think that you do a truly professional job with your media presentation - it is a real stand out in the RUclips universe!
Hi there, thanks for great comment and for sharing your cpap experience with the community. I do admire people like yourself who are willing to learn. Never stop!
Increasing medical evidence apparently strengthens the link between untreated sleep apnoea and stroke. 3 yrs ago, my bro at 59yrs old had a devastating, massive BrainStem stroke and survived. In the absence of other risk factors untreated sleep apnoea was thought to be the smoking gun. Taking CPAP therapy seriously and doing your best to make it work is so important. I have had CPAP for over 12 yrs for really severe OSA (AHI 80 and SAO2 75%) & probably wouldn't be alive today without it. Keep up the good work Nikko, your work is making a valuable contribution to the lives of many. I will be joining up with Sleep HQ for my CPAP plus monitoring my poor bro's BIPAP therapy. He has OSA & Central Apnoea requiring BIPAP pressure of 28!!!. He feels like his poor brain is being blown out of his ears so this tutorial was interesting. Cheers and thank you.🤯
Hi Jeanette, i'm really sorry to hear about your Bro! What a trooper though . Wow, APAP on 28! That's hurricane force. Best wishes to you both xox
the sleep hq app is absolutely incredible. I'm getting so much more help and information from you than I am from lofta, where I got my diagnosis and my bipap machine. THANK YOU!
Thank you so much! I’m three months in and so far have been mostly unhappy because I don’t feel any better my wallet just got so much lighter. Everyone told me how great cpap was but I’ve been so upset. Im going to get the new mask on Monday. The same as Jay here in the video. I’ve been using a nasal mask and I often get nose irritation so that I have to stop therapy for a few days. I do use a chin strap but I think I do have a lot of mouth leak anyway. The place that sold me my equip said that I can’t buy a new mask for three months because my insurance would not pay. It’s been three and it’s time to change. I don’t have a card reader yet but as soon as it comes I can get my data uploaded and see what is going on. Thank you again!
Howdy Nico! I was diagnosed with severe OSA back in August of 2022 and finally getting my Air Sense 11 on Monday. I am very excited to get started with treatment and to eliminate the anxiety and make a massive change for a better life. My AHI was 81 when diagnosed. Scared the life out of me learning how many times I was not breathing well asleep. Finding your videos and educating myself of this condition has made a world of difference leading up to getting started. Thank you so much for these educational videos. And thank you for being amazing.
Gidday Nicko. You are doing a great job. We all need you! Cheers
Hi Phil, that's very nice of you to say brother. Thanks for your membership mate. Nicko
Nick you are the best. I am 35 years old, overweight, about 265lbs. Been getting terrible sleep for 5+ years.
Finally got a sleep study done, my AHI is super high. Severe OSA.
I just got my first CPAP machine less than 60 days ago. And... Sadly... And very unfortunately... I honestly have not been able to get a single minute of sleep with it.
Typically, and for my entire life, it's always been an ongoing joke (with family, friends, and lovely better-half of 18 years) that I can sleep anywhere, even on a hard floor without a pillow.
I typically fall asleep within 5min of laying down, when tired.
But...... Add a CPAP into the situation (brand new AirSense unit)... And BAM! Somehow, no clue why, my body/brain is physically absolutely incapable of falling asleep.
I've tried probably 25 different nights over the past 2 months.... and not a single minute of recorded sleeo.
If I leave the mask on, I literally am awake nonstop... And... In the event that I get close to "dozing off", I often wake up feeling panicked and pounding heart, as if I was being strangled. (Oddly enough.... Very very different from my typical apnea events).
I was given zero help from the horrid facility/team that I got my CPAP from...
They immediately set my settings to AUTO mode, with a min of 5 and a max of 15, and said "that's standard, and what most people use"...
I've tried pressure relief settings, levels 1, 2, and 3.
I've tried pressure changes.
Tried lowered my max to 13. Then 11.
I have a full face mask... Which the CPAP company told me was a REQUIREMENT because one of my nostrils is fairly collapsed, so I typically breathe about 90% out of my mouth (especially when sleeping).
Am I lost cause?
Am I a case that cannot succeed with CPAP treatment?
I really want to feel well rested for the first time in my life.
I've been dieting and exercising so much for the past 8 months, and struggling to lose weight, as I never rest properly.
(I'd love to be your next direct patient, that you link up with, and help me find success with this therapy that I want to work more than anything in the world. I want my life back. And I want to stop sleeping in the guest room, because my middle of the night choking scares the sh*t out of my fiancee!)
Willing to contact you via email, whatsapp, chats, Skype, Teams, Zoom, etc!
Help me Obi Wan NickNobi, you're my only hope!!!
Nick..... Still zero luck. Read my original message above please! Need your help!
Wish I could get a response on this!
I’m in the very same boat mate it’s just awful
@@gloriasaliba3395 I never even got a reply from Nick on this.
But regardless, I have an interesting follow-up story. Since June 1st of this year, I have dropped from about 280lbs, down to 235lbs, and still going!
I am simply just tracking my calories, and keeping myself at a proper limit, based on my desired goal weight. And I also force myself to walk 8k-12k steps every day (whenever possible). And the weight is just falling off still!
APNEA HAS ALMOST RESOLVED ITSELF. Not fully, obviously, as some of it is my anatomical structures in my nose and throat.
But my AHI breathing events have dropped to almost nothing.
Thanks for the great videos. I started apap therapy with an hired Airsense 10 1 week ago. My sleep tech started me with a Resmed N10 and that first night i hated it and using SleepHQ my AHI was 16. I checked some of your reviews and got myself a Resmed P30i and the difference was night and day. My AHI is now down to 5 or less and when i wake in the mornings I feel a lot clearer and less tired. Your videos have been a great help and now i need to look at getting my own machine.
Adam, I am impressed having once been an IT trainer/teacher with Nick and his enthusiasm and desire to help us with SA, but don't forget he is not doing all of this or free . Close to a 100K subscribers and many plugs for CPAP equipment, services and health products provides him what appears his main income.
@@wakeupuk3860 bro, so what? Adam's comment doesn't justify your reply
@@phildimopoulos6010
FIRSTLY
Well how the fact on learning I would have to wear CPAP mask for the rest of life, that caused me to wake 6-7 times a night, a blocked nose so had to war a full face one, a skin itching condition that even wearing a watch was a problem, found wearing the mask a very big problem.
Did a lot of research on the Internet not just RUclips and found VERY LITTLE in regard to any alternatives but primarily mainly obvious commercial backed ones for wearing masks.
By pure chance came across a study carried out in Japan that losing weight, exercising and a far better diet if serious enough could lead to not having to wear one.
Thus, for a year using the discipline I learnt as a young man in the RAF learning Tae Kwon Do, most days of the week I did about 2.5 hours of exercising: indoor rowing, cycling, dumb-bells,, kettlebells, punch bag, and out door running and power walks. Totally changed my diet and went from 134kg to 92kg which for about a year now have kept. Saw a CPAP specialist who got me to carry out the same overnight sleep test and to her amazement could not believe I had absolutely no signs of sleep apnoea at all. I also only wake one or twice now, not having to wear the mask.
SECONDLY
Been teaching and training IT since 1982 and thus know very know what is required to produce You Tubes, which are to all intents and purposes 'training videos' which require a lot of time, energy, effort and most of all money, i.e. decent kit. Having well recall the very amateurish and non-profit-making efforts of the early days of RUclips, I can assure you that what we see now are often better than major film and TV companies would be able to produce and there are many such companies that offer such services to RUclipsrs, plus the obvious financial support from companies to assist RUclipsrs who have the gall to say they are Independent of the company they are doing a review on.
MY POINT
You are simply, as with so many people now are being very naive, trusting and incredibly and dare I say, STUPID because if you think I am being unfair in my comment to Adam by stating an alternative to wearing a CPAP mask ( albeit one not many could do) as well as my actual experience in the of IT and the Internet - you still have the mind of a child and believe in Father Christmas and Fairies.
I’ve been using a full face mask for 12 years. It changed everything. I thought it would be awful but it is actually way more comfortable than the zillions of other types of masks I had tried. A t-shaped pillow really makes a difference, too. It keeps me from knocking off the mask accidentally, and it allows a much more comfortable sleeping position.
hey mate hope.your well, how lonflg before you seen noticeable improvements, I've only been doing it about six weeks but feeling a bit underwhelmed with the improvements?😊 thanks for the reply
@@generalismoquabablinotheth5902 When it is working for me, I generally know immediately the next morning. If you are not feeling better, large leak throughout the night could be an issue. A properly fitted full face mask will generally fix large leak. Also, you might not have the correct pressure(s) dialed in yet. Does your machine provide a data file for you to examine? This will tell you if your mask is leaking. Some machines will beep at you when there is a leak. Is the machine auto-adjusting (adjusting pressures in real-time as your body needs support)? My early days sucked! Don’t give up!
This dude is a sleep apnea genius. Bruh.....
Thanks legend. Been doing this for nearly 20 years now so have picked up a few things along the way 🤙🫶
@@CPAPReviewsreally detailed stuff. I hope there is an app for mine. I’ll look in to that. I’m also in the market for a proper less intrusive full face mask. No luck so far.4
Their 'attitude': You have the device, good luck since we won't be helping you. I never hear from them.
Great video. Thank you.
I'm new to CPAP and you've been helping me to stick with it in a better way.
I KNOW I will feel better someday or another. If I can figure all this out that suits me best.
You're an inspiration.
Hi there, that's great. Stick with it and keep learning
Your channel is awesome! I'm 32, just diagnosed with Disruptive Sleep apnea here in brissy, I had an ahi of over 30. At least there is a huge rabbit hole of Tech to explore.
I've been watching your videos for a little over a month now. They've helped me immensely with my therapy (cpap now for just over a month). I thought my doctor and my provider were good and gave me decent information, but you take it to a whole new level. Info about my machine, masks, how to improve my therapy and everything! This video pushed me to sign up for SleepHQ just so I can really get into my data and how much better things could be. Thanks for everything so far!
G'day Chris, thanks for the great comment. Glad to hear the vids are helping you on your cpap therapy journey . Best wishes for the future. Nicko
The therapist at my cpap store knew hardly anything....just keep trying another mask she would say....I even taught her things I learned on here....how she keeps her position is z mystery.
G'day mates, there's an 'Easter Egg' but I've made it much harder to find. If you can find it I'll send you a 02 Ring & SleepHQ hat If you find it, comment on this thread and let me know A. Where you found it & B. Who They Are (there's a clue!)
The no.1 reason people give up on CPAP therapy is terrible advice and education. The 3 fundamental elements of success are
1. What therapy mode? CPAP, APAP or BiPAP
2. What pressure settings provide COMFORT & CONTROL
3. What CPAP Mask
These 3 elements are linked and provide the foundation for CPAP compliance. Don't expect your clinician to get it right! They're not the ones sleeping with the mask. In fact, most have probably never slept with CPAP.
Today's case study was just an example of how you can work on the 3 elements to improve your CPAP results. It is not a 'one size fit's all approach', and the methods we used to improve Jays' results might not suit you.
One thing is for sure, it's a great idea to monitor your therapy data and trends on sleephq.com .
It's free to join the community and review your data. The platform now supports ResMed & Philips Respironics CPAP users. It's super easy to upload, review and share your cpap therapy data charts. We're adding new CPAP machines to the platform every month, so join our mailing list, and we will let you know when your CPAP is compatible cpap.review/sleephq-newsletter
Connect with me sleephq.com/connect/nicko
RemSleep 02 Ring - Free International DHL Global Express shipping with coupon code RING
cpap.review/02-ring
Join me & over 7000 cpap users on our Facebook group - facebook.com/groups/cpapreviews
Shopping for CPAP Gear? My Channel Sponsors will take great care of you!
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A big thanks to Jay for sharing his sleephq profile with us today!
If you enjoy my CPAP Reviews and it's helped you with your therapy, please consider supporting the Channel by becoming a channel member - cpap.review/membership . I can 100% guarantee your membership will end up paying for itself. Lots of love. Uncle Nicko
Hi Nicko,
If I am not wrong,
1. The headblast emoji at 7.35 mark or
2. The puppy riding down at 10.22s mark...
I think the Easter egg is as at 0:02. Uncle Nicko asking to subscribe for nudes.
CPAP over APAP based on the machine ramping up the pressure for the first guy when he didn’t need it. The pressures that provide comfort and control are the ones that make you sleep well without fighting the mask. That’s what I got from the vid. Which mask? The one that is comfortable for you that you will wear.
What a fabulous outcome for Jay, brilliant!
Not sure if I found your easter egg Nick - is it you making hilarious sounds at the end of your video 21.19 - 21.22? That had me in stitches! 😂
The thing that completely confuses me is that I thought his pressure of around 15 was too high and was the main problem, then after playing around with settings he ended up with a pressure setting of 14 anyway and things were miraculously solved??
Thank you for this video. I can now see why I’m struggling with the auto-cpap pushing out to much pressure sometimes. Will try this incremental method you showed here. Thank you!
FINALLY - Finally - got the mask. Took forever for the DR - to write the prescription. Then the mask supplier had to order the thing. Finally picked it up today. Can't wait to take it for a ride. I used my Samsung phone to show my sleep tech - the SLEEPHQ data. She was impressed with the site. -- I'm not sure I'm crazy about the clips on the mask. I'll have to relearn. Thanks for your videos.
Nick, awesome video. I've learned more about my therapy in your video than I have from the Dr. and clinicians in 15 yrs. I'm heading over to SleepHQ to get an account to take back control of my s.leep apnea. Thank you from the bottom of my soul.
Great watch, I’m struggling to keep my mask on nightly. Thanks for all of the useful tips. My support team have been awesome checking in on me monthly, they will be pleased with better success I’m sure after following you. I’m understanding a bit better how all of this is working. Keep up the good work
Thank you for this excellent video. I am very new to CPAP therapy, but I watched your videos before picking up my machine (Airsense 11) and I also went with the F30i mask (based on one of your previous videos). I find the mask to be pretty comfortable, although I also experience leakage at around 11cm of air. I have been sleeping better since day one, but I also experienced cyclical swings and recently went to CPAP of 11cm. Hoping for the trend to settle out. I installed an SD card into my machine to use with your excellent site.
Hi Paul, thanks for your membership mate! You've got some great gear. Air11/F30i is a great combo. All hybrid full face masks leak a bit so you really have to work on finding a great pressure setting. Try 11cm and see how you go but make sure you also try lower settings to see if you achieve similar results at lower pressure. All the best brother. Nicko
I'm thankful for you sharing your experience in these videos. I've learned a lot and am finding much more success in my CPAP therapy.
You little rippa. I changed my upper pressure limit to 10 a few nights ago. My leak has since gone to 0 if I chin strap and 10L if I don't. My AHI is still under 1 and I'm not waking up from 4am onwards because of my cheeks being glued to my teeth and with terrible thirst. I think I'll ignore the chinstrap and be happy with leak up to 10L, for comfort.
Great videos !! Well explained ! Gives someone so much more motivation to not give up
Thank you to Jay for your example. I have learned a lot from it via Nick's review & explanation. I am nowhere as bad you Jay, (not rubbing it in, really sir) just saying that we all can learn from this example. I switched from a nasal to a full mask when my seasonal nasal passage swelling and plugged nose hit in the fall. My previously successful trial and first few weeks of my own machine went down the toilet. I ordered a F & P Evora full and could breathe again. But at 2 am, each night, my pressure would increase (set for max 12) and I woke up with my mask farting away. This vid helped me to reduce my upper pressure to a minimum and I am gradually increasing the upper limit. So far so good and I got 8 hrs, 20 minutes of good sleep last light with a high of 6.2 pressure. I will stay there for a few days and up it gradually until I get unacceptable leask rates.
You are an absolute legend. Thanks for this information. Looking forward to using this to improve my therapy!
Hello. My husband wears the Philips Dreamwear. If he opens his mouth, does this also have an influence on the leak rate, despite the mask beeing a "full face" mask?
Please keep making your fabulous timestamps !
WOW!!! THANK YOU THANK YOU THANK YOU for your videos. I just today learned about Sleep HQ, downloaded it and am trying to understand it, navigate, etc. The doctor at the sleep center where I got my prescription has been out of country whenever I've sought an appointment to see what's up with my therapy. I saw your vids when my machine started whining and was looking for replacing the motor. I found one from China and can put it in in a few weeks. Thank you again for all you are doing.
Your videos are so helpful! I have to decide what CPAP to use soon as a first timer and I’m still confused lol. AirSense10 seems to be gold standard but the ibreeze seems lovely. Ever do a comparison video of these two?
Thanks for sharing this video dude. Had no idea what the charts meant when i first saw then. Explained really well, way better than my sleep therapist anyway
You're welcome legend. Thanks for watching. Glad you found it useful
Amazing video mate! Thank you so much for all the help you give!
I get my AirSense 10 today, and look forward to taking better care of my sleep for the first time in a long time!
I can’t begin to thank you enough for all the information you’ve given me… I’m trying
Love your content and your humor keep it coming brotha !!!
Cheers Matt, appreciate the kind words. Nick
Found the Easter Egg I think: Mr Bean, located bottom right of the video in the black bar! Great videos. New CPAP user here and love your tips
Thank you so much for showing me the way of my CPAP journey!!
Hi Ruth, you're very welcome my friend
What a great resource this channel is-thanks!
I started with cpap, now on bipap. Not Much difference between those that I can tell, but I can see where starting with bipap might be easier for first time patients. The key for me was the mask. The sleep doctor and techs tried to put me on nasal pillows but those did not work. Full face mask worked for me. The cpap has been a lifesaver. I used to get 3-4 hours sleep a night. Now I get 7-8 hours.
Excellent video. Very helpful and educational!
Thanks for the great comment. Cheers
His soothing Aussie voice.. He could talk me into anything
ASV machines are generally better for central sleep apnea and complex sleep apnea.
I've been a CPAP user for almost 2 months... and your channel has been a godsend. Thank you.
I read comments, (somewhere among your videos), one man kept saying he would turn off/on the machine.
Two things have directly been impacted by your videos is that,
1) ordered a nasal cushion mask and
2) I turn off the machine and turn it back on because I start bubbling air out of my mouth.
What I have realized is that when I fall asleep and my jaw drops back, I end up mouth breathing and air leakage and my pressure goes up. And when my pressure went up too high, I would have to turn off the machine and turn it back on so that it would reset and ramp back up. It allowed me to go back to sleep.
I originally had a full mask and I loved the feeling of it because it equaled the pressure between my nose and mouth. But I could never find a good position for my tossing and turning side to side that I didn't have constant air leaks. And again I wasn't even on the system a month and it was a struggle. So this nasal cushion has done wonders for my sleep, though I still wake up to the noise and the leakage and discomfort. It is way better.
This video proves my own hypothesis. After I got off the full face mask and gone to the nasal cushion, my air leakage mouth breathing improved because I sleep side to side and I turn off the machine because otherwise my mouth bubbles air.
Thank you for this very much.
I was ready to give up. I hated being air-raped and just couldn’t tolerate it. My tech tweaked the settings snd now I sleep comfortably with the CPAP. My AHI went from 140/minute to 3.5/minute.
Great video! So interesting and educational. A big thumbs up to Jay! He shaved off his beard and this may increase his lifespan. In the grand scheme of things - a small price to pay. Keep up the good work!
Regarding using a Full Face mask (FFM).
After suffering through eye irritation caused by small leaks around the bridge of my nose through the ResMed F20 mask, switched to a F30i;
A world of improvement!
That was a Pleasure to watch . Thanks Nicko
Thank you. I know it's a bit boring but there's some good lessons mixed amongst the yawns
@@CPAPReviews Not at all this is the type of video we need to make informed decisions about our treatment and how to dial and adjust for better results and wellbeing . Doctors don't have time for this dial in stage ..To be successful you need to have bought in to the treatment and this guy forsure has ..I would love to see a before and after Beard picture... Congratulations Guys wicked video and this one will help your fellow Hoseheads bigtime
@@BritinCanada Hoseheads! I love that (especially with the F30i). You might be interested to know that I'm growing the beard back until I get leaks at 95%, then I'll keep it trimmed at that length.
@@jaycraig8150 great!
Really appreciate the insights, keep up the great work! Love to see more like this about how to interpret data and correlations on SleepHQ. How would you address Jay's CA events? Is that a normal amount?
Hi Alan, thank you. I do think his centrals are a big problem now. The first thing i normally do is drop the pressure to make sure they are not treatment emergent central sleep apnea (TECSA) where the PAP therapy is causing the problem. If it's only a small amount of central apnea which tends to happen in the older folk and those with certain heart / brain conditions then i don't worry about it too much. If there's a lot of it then ASV is the way to go! - ruclips.net/video/0j6m6ZRf8Kw/видео.html
This....'variability' of result, relative to equipment, is great for people selling these products. Is there any 'legitimate' unbiased statistical 'generalized' preference for machines, masks or pressure that might define a reasonable place to start. It is very telling that the machines are sold without masks of any kind despite the fact that the manufacturers also sponsor or manufacture the masks as well. For what it costs to manufacture these masks, manufacturers should include examples of each with these unnecessarily expensive machines (as 'medical' devices, they have a ridiculously high markup relative to general consumer goods).
Ditto on Kim's comment. Thank You!! Thank You!!
I'm angry at the CPAP equipment retailer and the hospital sleep centre. I've had a great AHI but leak well above 30 even when I mouth tape. I've bought several different masks and chin straps. I watched an earlier video on this channel and dropped my max pressure to 10 and my leak was 0! I went back to the n30i and my leak is between 0 and 10L.
I battled leak for a year and no one suggested I change pressure settings. I tried max pressure 9 for one night but my AHI rose to 1.
Now I just have to decide if I want to return the P30i while I still can. I like it's minimal touch but it's made my skin bleed, and with reduced pressure my p30i is working.
Good on Jay, but it shouldn't be up to patients to educate themselves and feel slightly naughty making their own changes to their therapy. I have an upcoming medical review and am worried I'll get in trouble for changing my pressure settings from 4-15 to 6-10., even though now my AHI and leak rate are great.
Thanks for the great comment
Did you get your hand slapped? I would just tell them that the change worked better and you would like to keep that pressure. If it works, it works.
I need this kind of help myself. I’m about to throw in the towel completely!! Want to use it but I can’t get my head around it. Driving me demented
Been on CPAP for about 6 months. Moderate obstructive diagnosis. 69 years old and other wise in good health. At first I did notice a better energy level. Now I'm starting to wonder if it was psychosomatic. There has got to be a better way.
So... he had to go from pressure of 8 to 14 just to get his AHI down from 8 to 6? Can that be really worth it?
That was incredibly interesting. Thank you!
I have been om CPAP (APAP) for 7 months. But the first 5 months i was using a nasal mask and it did not work, now i am using a pillow
mask and chin strap which works great. My AHI is between 0,5 to 2.5 and when i was tested it was 68!
Amazing
I cannot get My mask to seal prperly and I snug up the mask so much it hurts and thus 4 hours is the max that I can wear it. I have a pacemaker and can't wear the mask that I found comfortable because of the magnets, the mask connected to the hose at the top of my head and it was comfortable because, I am a side sleeper. I would rather not wear the mask at all if I had to try sleeping on My back. I am 77 and I don't mess with the settings of the machine because, I don't trust myself in remembering what the hell I did last. I have to tell you that all the stuff you are presenting just totally scrambles My mind.
The sleep center I was seen at could care less. never returns calls, lies, talks a good game until you get a device then cuts you loose. I actually hate them.
As always, very informative, certainly for me as a newbie user. Many thanks, happy New Year
Happy new year!
So how is this helping or healthy? My AHI is 35 to 45. Leaking 114🧜♀️I’m so discouraged. I’m not using the machine. I have the pressure set at 15 changed to a full face and I couldn’t use it. It was very uncomfortable . The bridge of my nose hurt. This whole experience has been a tormented experience and I have spent hours and days now watching RUclips going to supposedly a sleep person at the pulmonary Dr’s office. He handed me a full face mask patted me on the butt and set me on my my way as he was on his cell most of the time while talking to me texting! It’s disgusting and disappointing there is not anyone helping. The manager where I got the machine said it’s high AHI because of the leakage and it’s high. I turned the pressure down because the goT mask was blowing off my face when it was set at 20.
I AM SO THANKFUL THAT I FOUND YOU ON YOU TUBE ! But this should not be! Right? So I told a couple friends I’ll probably die in my sleep from a heart attack or apnea. It was 15 when I took the sleep test. I’m up at 4: am writing this not getting my sleep. Again 🙏 I’m going to watch the video again. Is there anything you can suggest. I am a mouth breather. She said I had a high tongue. And the roof of my mouth was lower. I mean what else do I have. It’s ridiculous
Your AHI is slightly less than where mine was. I am also a mouth breather and my pressure is set at 11, going to be moved up to 12 soon. 20 is going to be WAYYYY too high! If you can change the pressure settings, take it down to 10 and see how things go from there. Work on getting a mask that fits and does not leak much. It is a trial and error thing. Use sports tape on the bridge of your nose to keep the pressure off and be sure to completely wash and dry the mask each morning to keep the oils from your skin down. It may leak a little from the tape, but not much. Good luck. Hang in there. You will get it figured out. It is worth the hassle.
I personally found this really depressing. First he had to keep on increasing his pressure. Then he had to switch to a bulkier mask. Then he had to shave off his beard. It just sounds like his experience is getting worse and worse.
Sorry for the late response, I just noticed your comment. It hasn't't been as bad as you think. The F30i just works for me. Nicko's intervention happened at exactly the right time, with zero leaks from the day I shaved. But a little thought and some judicious trimming as the foliage grew back and now I have a beard the looks better and has just enough of a trench that there is no fur under the mask. I'm used to solving complex software problems, and understand that some things take time and patience to work out.
I would encourage new CPAP users to try different mask models, not just one model of each type, until they find a mask they love. Also, try masks that have been out for years, not just the "latest and greatest". In my experience mask design in full-face masks has gotten worse for me, not better. Seems like manufacturers are more interested in planned obsolescence than patient health.
Your hat's on backward. Try turning it inside out. ;)
I had high Blood Pressure. Cpap use helped to lower it,. but Airsense 11 keep telling me about leaks. I don't control the Resmed. It is done remotely. I can't afford mistakes with insurance or settings. I have had a stroke so comprehension is difficult. I need to become an expert to continue? I never thought of YT -U would help. Glad I found your channel.
Hi there Nick - my curiosity is really getting the better of me - did any of us guess where you Easter Egg was hidden? 😊
Nope! Still active that one
Mate, great vid 👍 some really good bits of info to take away and tweak. Cheers 🍻 the million dollar question now is APAP or CPAP 🤔 I'm APAPing at the moment but I've dialled it down to a range of 1cm. Consistently getting AHI 2-4 where as before 6-8. Thanks for your advice and help 👍
I suppose once you figure out your conditions using the sleephq in cpap then you can go apap with the right pressure in constant mode to better suit you.
Hey Nick,
You videos are really helpful.
Can you add a feature on SleepHQ which lets us know what should the best pressure setting be based on our previous data?
Hi Angelo, you're welcome my friend. In the future i believe we will have some really cool AI / machine learning that will provide info like you are suggesting
I been using a apap for over a year now with a pressure of 5cm- 15cm...my ahi has been 6.6 haven't really slept good since then tossing and turning..but I seen this video last night and changed the setting to cpap and change the pressure to 10cm after i looked at my 90 days data and my ahi was 0.3 last night thanks..
I have been on cpap over a week. Unfortunately for me, it has been a very uncomfortable journey so far, with almost no sleeping time and a lot of anger and frustration. I have taken the mask already during the night, but still, the frustration level is so high, that I can’t even sleep without it. I have changed pressure settings, tried different pillows, adjusting the straps from very loose until really tight ( up to the point it hurts my nose bridge) but still no result. So far I have a f20 mask, but because I’m a side sleeper and I tend to move a lot during my sleep, I think this is not the proper mask for me. I have been waking mostly because of leaks, noises, and now because of my frustration, I am not taking the therapy in a positive way, and suiting that mask on my face rises my anxiety, which eventually leads to a bad night and no sleep at all. I will try and change my mask to a different one, maybe a f30i which suits better for side sleepers and the mask doesn’t go all the way up until the nose bridge, but it hasn’t been s pleasant journey. Hope I can get back in track somehow, I think it requires a lot of patience.
I gave up for almost a year but trying again for my kid and health
Hello,
I've been on CPAP for over a year. I've been using F30i, but it kept waking me up over night with various problems... I switched to F&P Vitera, and I sleep better with it (at least when I don't have one of my insomnia episodes, and I have them a lot...), but seems that I can't control mask leak well...
I had a same-ish beard like Nicko, which yesterday I shaved, and looked at the data this morning and it's still leaking, no changes... Also, the only way to prevent leaks both with f30i and Vitera, is to as tighten them up as possible, if I put them just snug as suggested they started to blow all over place at some point in the night...
I am a mouth breather, and obviously, my jaw is recessing during night and f30i usually starts to leak under my leaps leading to waking me up sometimes I would move and probably move the mask in the process and it starts blowing straight into my eyes waking me up.... But the leak results are better with f30i.
However, Vitera is more comfortable to me, but the leak results are worse... It's rarely waking me up, and when it leaks, it leaks around my nose bridge, I tried freaking every recommendation about fitting the mask (using just the lower straps for the tightness, leaving upper straps with just a bit of tension and the space between forehead and stability bar, everything...), and always the best result comes up when I tighten up everything as much as I could tolerate.
I am a side sleeper, I sleep at the edge of my pillow, so the mask is not in contact with the pillow. Usually I wake up in the same position I fell asleep, and I don't understand how this leaks happen in the middle of the night...
I'm using Resmed Airsense Autoset 10, and was experimenting with various pressure ranges except a constant one...
I made SleepHQ account and imported all of my data, and hopefully Nicko or someone could help me.
Thanks
I was having a lot of air leakage with my full face mask until I started sleeping on my side with half of the mask buried into the pillow. It holds the mask in place snugly and I have had very little leakage with that simple position change. Try it. May work for you too.
I really appreciate how this answered one of my questions regarding leak rates! I have a beard and I have had high leak rates and when you mentioned it, I felt relief. I was thinking I was doing something wrong! I'd like to know of options to mitigate this without having to shave or possible change masks.
fantastic. Thank you for these informative videos. With every video it makes so much more sense. The data is more than just a bunch of lines now
Hi Lesley, glad it to hear it mate. I know it's a steep learning curve so just stay the course the and it will all start to make a lot of sense soon. Thanks for your membership my friend. Nicko
Great video, I just wish the Luna 2 machine I was given was able to show detailed data like this...
I'm so confused.. the first two nights I thought there was real improvement and I feel like I slept well but now I'm blowing air out of my mouth and struggling. My 02 drops to the 50's so I'm anxious about getting my doctor to understand what's going on with the mask because "I"don't know what's going on. I have severe unrelated anxiety and the full face mask was claustrophobic when they rushed in and made me wear it during the sleep study because of the 02 and everything else. I signed up for your website but my resmed 11 doesn't have the chip so I guess I can get it? Anyway the mouth breathing in this video reminded me of what is going on with me so that is a bit of clarity. I didn't get much for the doctor or tech.
Hi Nick,great breakdown,I'm thinking it's Reddog mate
G'day Lloyd, you're welcome mate. Not Reddog though
Thank you for explaining this!
No doctor has ever gone over these reports with me. I had to ask for pressure to be reduced.
Thanks for the heads up sir well done..
I found your podcast very informative. I also own the air 11 CPAP machine but cannot access the feedback from my night's sleep. I have the MyAir app on my phone but it does not appear to give me the information you have show. My question is how can I access the same feedback on my CPAP machine you have discussed. Thank youm
I missed understanding what was the key that said change from auto to constant pressure? What do you look for to say the auto is not working for you?
Question for you Nicko: Any idea why none of the new masks include a silicone/gel cushion? For years I used an F&P Acclaim 2 and it was a fantastic mask despite the obstruction in front of the eyes. I always struggle with the newer masks in comparison. There's nothing solid to make the seal and relying on a cushion of air to seal properly is awful. It's a bit like going from solid tyres to the skirt on a hovercraft. I wish they'd bring Acclaim style masks back!
G'day, philips has the amara gel mask ( full face ). They also have the nuance (gel) and they use to have the comfort gel. ResMed has the AirTouch which is memory foam instead of gel. You should try the F&P Zest Plus which is similar to the Acclaim but without that stupid thing in front of the eyes. Cheers
@@CPAPReviews Thanks Nicko. i am using the F&P Eson 2 at the moment. Will check out the Zest.
Why is jay sleeping at 3 pm?
Best wishes for all the help you’ve done for people. Not sure where to put this. Do you think you could show a br1225 battery replacement in the hdm z1?
G'day Phillip, yeah i probably could mate. Next time i'm fixing one up (quite frequently) i'll do a vid. Cheers