Managing Depression Associated with Chronic Illness

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  • Опубликовано: 25 июл 2024

Комментарии • 59

  • @soaringfamiliescounseling
    @soaringfamiliescounseling  4 года назад

    I hope you found this video helpful. :) Please feel free to comment below with any questions you may have or even tips you may have to share on what helps you cope with depression.

  • @joselynmolina5042
    @joselynmolina5042 2 года назад +18

    I was diagnosed with Crohn’s disease when I was 11. Now 27, I’m at the lowest I’ve ever been. Never knew that my chronic illness could cause depression and anxiety. Now this depression has taken over my life more so than my Crohns. All I want is to get my life back

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  2 года назад +1

      I am sorry to hear about the struggles you are currently facing. The mental and emotional components of chronic illness can definitely be the most challenging at times.
      What are you doing for your own overall self-care? Do you have a strong support system/group to help?

  • @gardenjoy5223
    @gardenjoy5223 2 года назад +15

    At 2: 12 you say: "We should still practice being us. Loving what we love, doing what we want and living our lives to its fullest." Shows what kind of a chronic illness you have: pesty, but not debilitating.
    I'm an outdoorsy person, active, engaged, social, adventurous. Chronic Lyme Disease has stolen SO incredibly much. I've lost and grieved over so much already. Latest thing is, that I cannot do any light work sitting gardening anymore, without getting real sick: much pain, feeling truly ill. The point is that I cannot do what I love, cannot do what I want and live a shadow life literally in the dark inside, cause I'm too sensitive to light (causes severe headaches), although I love sunlight.
    There is NOTHING positive about being ill all the time. I've lost so many friends, because I couldn't do stuff anymore, but I also couldn't have them visit me, for I am literally too ill and exhausted to handle a conversation most of the time! I've worked so hard for my degrees and now that I have them, I cannot use them anymore, for it is too demanding for my physical status! It is me, to give and to help others grow, but I had to withdraw from my volunteer job first, which I liked very much, working with former drug addicts. Then I got more and more incapable of doing my paid job.
    Slowly but surely I've lost 90% of what makes me me. Going shopping became obsolete, so I had to be content with going to the supermarket. But then I got too ill there too, so now I do some shopping on my 'good' days in the closest by shops, perhaps twice a month. Usually makes me more ill for several days to follow. Next coping strategy was shopping on the internet. Better something then nothing.
    I walked hours a week before, now I can walk but a few minutes. The stairs are difficult and painful. And training makes it worse.
    Plus this isn't even a recognized disease, so no matter how ill I am, I am misunderstood and mislabeled, especially by those in white coats. For all the treatment that did help, I had to pay most out of my own pocket! With less possibilities to generate income, even that is out of reach at the moment. I've done Everything in my power to overcome this and still it cripples me, locks me up.
    I'm still the same person on the inside: outdoorsy, actively minded, engaged, social, adventurous. But none of that is in my reach anymore. Can you imagine being ill and you don't get better after two weeks? Not even after three weeks. Well how about if you are not getting better, but worse after nine weeks? That's a LONG time of being ill. But these nine weeks turn into nine months. Which turned into three years. Which turned into nine years.
    And after coping and trying to cope and giving it my all, fighting close to forty symptoms (!) I'm so exhausted. So I thought I need other strategies, for I feel getting more depressed with spring coming up and me not being able to handle the extra light (which I SO love...). Came across this video and gave it a try. But this is no help at all to people like me in this endless trap. Really, I rather die than live like this. For I want so much, but I can so little and another grieving round is due... again... Lyme Disease doesn't kill you, it just takes your life.
    I loved to experiment with cooking. But now I can cook once a month tops and only the simplest of things. My garden was the nicest in town, cause I was creative and active, but now I cannot even get the weeds out anymore. I loved to help others with whatever help they needed: I gave them my time, my knowledge, my energy, my resources, my love; but now I'm too tired and/or ill for any of those. I'm in the prime of my years, but I seem to be more challenged and handicapped than my neighbors, who are around ninety years old.
    Writing this has taken so much energy, that the tinnitus has become real loud, so I stop.
    Just wrote this, so people get at least some insight, in what a Debilitating chronic disease does to people. Especially to people as undertaking as I am. Was.
    Please refrain from empty words of 'knowing better' in reply. They are an insult to injury.

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  2 года назад +6

      I appreciate your time and words with your comment.
      I definitely do not know better with all chronic illness or even my own for that matter. All I do "know" is I share what has worked for me and others and hope it continues to help. The best I can do is be a compassionate ear and be empathetic and try to understand.
      I can say this however, I appreciate the energy, passion, and truth you spoke in your comment and with the passion you shared about your previous work and volunteering. I believe even with this story and testament you shared helps many including myself. I do believe that others should know about this disease and many others like it to help support one another.
      I am sorry to hear your experiences of being invalidated with this illness and struggles with enjoying what you love and what makes you you.
      I do want to share once again that I feel you showed readers of this comment your endurance, perseverance, and passion for others with sharing your experience and authenticity which I feel helps immensely.
      Thank you for taking the time to share your experience and I do wish you the best and hopefully this video helps in some way.

    • @gardenjoy5223
      @gardenjoy5223 2 года назад +8

      @@soaringfamiliescounseling That's just the kindest answer! I am not used to those. Never thought one could read anything positive in my difficult journey. You really touched my heart here.
      I feel so utterly invalidated and unappreciated and misunderstood, that it brings tears to my eyes to find kindness. Thank you! Very much.

    • @AmaraEagle
      @AmaraEagle 2 года назад +4

      How have you been today Garden Joy? I hope it has been a slightly easier day. Your journey sounds so difficult but I too was inspired by your obvious passion for life. I have endometriosis and bile acid malabsorption that are so severe I had to stop doing drama and theatre. This really broke my heart. I understand what it’s like to lose the things you love the most: you don’t stop loving them one bit, just lose the ability to take part. It’s a hard road. I hope there are small things that bring you joy each day, and that you find solace in times of grief. Love Katie xxx

    • @gardenjoy5223
      @gardenjoy5223 2 года назад +5

      @@AmaraEagle Dear Katie, thank you so much for your kindness!
      The view from my window is nice, I watch trees in their full summer beauty right now.
      I also enjoy my three cats, which give me love and are very dear to my heart.
      My living room is full of warm colors and coziness, which help me relax.
      When I can do hardly anything else, which is very often, I can play a video game, that doesn't require much of the brain. I put it always on the easiest level to be able to feel like I 'accomplished' something. It's a way of coping.
      I'm real sorry to hear of your hardships too. You wrote it so well, when you wrote, that you don't stop loving them one bit, but are unable to participate.
      I keep reminding myself, that this life on earth is just a tiny part of our entire journey. I'm overwhelmed with the sorrows on this earth. My own and that of others, like the hunger in Yemen and the war in the Ukraine.
      I loved to be part of the solution in this world. One of the biggest heartaches is, that I feel I'm of no good anymore to help make things better. I was good at handling stress, but now I'm anything but. Get stuck in anger at the many, many people, who just enjoy destroying others and what is theirs...
      Hope you still have this ability. Yes, you do, for you reached out to me. This shows you are kind and you are courageous, since many don't even dare to reach out. Those are qualities this world needs a lot!
      So I end with wishing you this: May God bless you AND make you a continuous blessing to others. May your heart rejoice each and every time you give of these so valid resources in you.
      Thanks again!

    • @Andrei917
      @Andrei917 10 месяцев назад

      ​@@gardenjoy5223Hi, are you online?

  • @sarapink3955
    @sarapink3955 3 года назад +13

    It's not part of my life , it's whole of my life. Cause it's affecing every single part of my life.I have no self confidence ,and depression which comes after that affect my mind and memory , so I can't study I can't focus I can't memorize . The result is failing the exams and more depression. It's like as a circle ☹

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  3 года назад

      Chronic illness can definitely take over our entire life and can create that endless circle of depression with attacking our confidence.
      That's why I focus my treatment on challenging myself and helping others of reframing that depression and overcoming it.
      Thinking we are much more than just this illness is essential. Even if we feel or even if it in fact affects every element of our lives, we are so much more and we have to challenge ourselves to believe that. Maybe even if it's just the simple fact that we are surviving the illness. There can be others that don't do so well with the same illness, yet we are overcoming, managing, or simply surviving and that should count for something!
      I'd love to hear more about what you are studying for and that should definitely be something to focus on and be proud of that you are even attempting. :) Focusing on the strength, endurance, and attempting to study is a big deal as many others, even without chronic illness would just simply not try or find it too difficulty. So give yourself credit and praise that you are going for it and trying.
      I hope that helps. :)

    • @sarapink3955
      @sarapink3955 3 года назад

      @@soaringfamiliescounselingFirst of all thanks for your reply .
      I am studying medicine (I started it late) & struggling with a visible chromic disorder.I had some operation but unfortunately they didn't work . As I get older I get more nervous and depressed. Life is a hell for me , I feel I can't cope with it anymore.I have no motivation , no dream no aim like as a guy sitting on a desert road waiting for Nothing. I don't go out of home, don't exercise ( even if I make myself going out it happens just for one day and the other days I can't force myself anymore).I spend my days watching movies (although they don't make me happy).
      There was a time I was mad about shopping, although the only result was my empty pocket 😕 & it didn't help my mood to get better.
      Because of my field I have to study hard but with my situation it's very hard to study. I really loved medicine since I was a child but didn't start it for some reasons till yet and now my memory is getting worse because of depression and it's really too hard for me to memorize the lessons.
      I don't have any friend ( don't mean zero but they are kind of friends that will say hello to me if I say hello ), So literally I can say No friend.

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  3 года назад

      @@sarapink3955 Wow medicine! That is a huge feat and accomplishment to even get to that point and you should be proud! :)
      I can understand those feelings and I am sure many others on this channel do as well.
      When it comes to friends, I look at the type of relationships I would want to have and what I am doing to make those happen. It's definitely hard going through life alone and I would highly recommend increasing social interactions to improve our mood in anyways that we can, especially during COVID. My wife and I have taken to online gaming during social distancing just to connect and be friendly and that has significantly helped our moods.
      I like how you said you force yourself one day to get out and about to improve your mood and that's where we need to start. On the other days, we just need to keep pushing forward as much as our body will let us. The thing about depression is we can't just wait until we feel better or motivation strikes us, because it may not come or we may not notice it because we have built the pattern of how to respond to depression. Sometimes we have to make our own motivation even if we don't feel it we need to "just do it" like Nike!
      What are some coping skills you can utilize that help or at least get your mind off things? Anything counts and even if it's just for a minute. :)

    • @sarapink3955
      @sarapink3955 3 года назад

      @@soaringfamiliescounseling coping skills? Well, I used to enjoy listening to music while cycling, but not now. So I can say nothing.

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  3 года назад

      @@sarapink3955 I have a lot of videos covering various coping skills on this channel. Maybe take a look and see if theres something new you would be willing or curious to try. I have videos on using art, hobbies, exercise, gaming, crafts as coping skills.
      I think music is a great coping skill that I would urge you in exploring some more. You can try changing what you listened to or try mindfulness listening. I have a video on that as well. :)

  • @dnt_vtepedr
    @dnt_vtepedr Год назад +2

    You never really know what you are made of until the real you, the core of who you truly are is revealed. When illness hits and everything that made you you and made you happy, gave you meaning and purpose, is taken, that's when you get to see what's underneath. The foundation is revealed when the building crumbles.

  • @veryoriginalname366
    @veryoriginalname366 3 года назад +4

    Oh, a fellow T1D therapist! Thank you for the video. :)

  • @MsOhsusanna
    @MsOhsusanna 2 года назад +6

    I have sjogrens. Super dry eyes and fatigue. Cant read, no screens, difficult driving. The sadness is so heavy at times to not be my old self.
    How to motivate to do the self care to feel better?

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  2 года назад +3

      Thank you for sharing.
      Motivation can be tough, especially in circumstances like this. When it comes to self-care I recommend the "Nike" approach, "just do it!". If you force yourself to practice self-care and do activities that you know will inevitably make you feel better, you'll get it done and motivation will increase with the momentum of acting on it. So whatever self-care you can do, force yourself to "just do it". Start off small with measurable activities you can do on a daily basis to gain momentum. Even little tasks that you usually do like getting ready for the day, brushing your teeth, breakfast, etc. These little actions reframed as positive self-care will help you increase momentum and motivation. I hope that helps. :)

  • @michaelmoreno9442
    @michaelmoreno9442 4 года назад +4

    Thank you for sharing your personal experience and feelings. Clearly you're a role model of what is possible when we think beyond our perceived limitations. Your videos on mindfulness have helped me to focus on "now" and not the "what was" or the "what if".

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  4 года назад +1

      Thank you very much Michael for your kind words. I am happy to hear that the videos have been helpful to you. :)

  • @ruudgeldermans
    @ruudgeldermans 3 года назад +3

    What beautiful and wise words ..

  • @lenajegerlehner1489
    @lenajegerlehner1489 2 года назад +2

    Thank you

  • @Kelly101Girl
    @Kelly101Girl 2 года назад +3

    I'm diabetic and I recently found out I have heart disease. was told I can't have children and I'm under the age of 30...I've cried daily for the past few months now. at this point I feel like grabbing a backpack and going somewhere randomly just to die. I literally feel like I have nothing to look forward to other than high medical expenses and an eventual early death

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  2 года назад +1

      I'm sorry to hear about this. Chronic illness can be devastating and definitely with this added news.
      Our challenge here is to overcome and cope with these difficulties and to know that life is still worth living. What can you identify in your life that keeps you going and can be your motivation?
      Are you connected with any support related to this chronic illness or receiving support through family, friends, loved ones, or therapy?

    • @willabestorms6059
      @willabestorms6059 Год назад

      Music is the true religion…
      If it wasn’t for my guitars, I would not be alive.
      I have had nine hand surgeries.
      I have had 15 surgeries, I have one lung my left lung is encapsulated (empyema that they did not drain in 1990) and with hundreds of tumors surrounding it. I have four plates in my neck I’m 64 years old now I’m diabetic.
      I think you should study music seriously and make it part of your daily routine maybe play an instrument sing, or even write poetry and music…

  • @aiMotives_
    @aiMotives_ 10 месяцев назад +2

    My life before 2020 was defferent( i used to be happy enargetic and passionate about my life). But in early 2020 fell into illness and everything was changed suddenly . I worried a lot about my illness and then fell into deprression. And then my deprression caused a new ailment for me..chronic digestive issues .since then i have been suffering evryday..

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  10 месяцев назад +1

      I am sorry to hear. Hopefully this video can provide some support and insight on how to manage a bit more with returning to what you love and what you are passionate about. Are there any hobbies, interests, or passions you can continue to be engaged in?

    • @aiMotives_
      @aiMotives_ 10 месяцев назад +1

      I love to read books and love to travel around defferent cities.i am passionate about to be a civil officer in my state

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  10 месяцев назад

      @@aiMotives_ That sounds amazing! Are you still about to travel and read? What kind of books are you interested in?

    • @aiMotives_
      @aiMotives_ 10 месяцев назад +1

      Motivational and spiritual books

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  10 месяцев назад

      @@aiMotives_ Wonderful! I love it! Let's see how engaging in those passion interest can help improve your mood and coping with chronic illness. Try setting a new measurable goal of how much you engage in your hobbies and interest of reading. Or even leaving it up by watching a motivational speaker that also writes one of the books you are reading. I hope that helps. :)

  • @yoshidasan4780
    @yoshidasan4780 3 года назад +5

    I have lost confidence on myself sir ,i can't focus on anything ,not on my studies too .I can't find any distraction to divert my mind from my illness ....i don't know when i will overcome it or when will i be able to focus on my studies again....i was so ambitious just 3 months before ....and suddenly everything changed ..i don't know how to be happy rn ,just negative thoughts are coming that i am having some serious incurable diseases ...i would be happy if you could suggest me something😔

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  3 года назад +3

      Thank you for sharing.
      It can be very overwhelming with adjusting to new news with an incurable illness.
      I would recommend looking into some local support groups or even social media pages that you would feel comfortable with. There is nothing better than receiving feedback and confidence from others that have experience or have experienced similar circumstances.
      If you haven't started with an individual therapist yet, that may be helpful too. You can use resources like Psychologytoday.com to find one in your local area.
      The biggest recommendation I would have related to your studies is to focus on who you are and what led you to your program and area of study. You are still you!
      Remember that you are not your illness and if you are passionate about your studies and that is something that represents you, that should be your spark that you hang on to. Stick to your values and what ultimately makes you you. The illness or disease does not define you, It may be a part of your life, but it doesn't have to be your entire life. :)
      I hope that helps. :)

    • @yoshidasan4780
      @yoshidasan4780 3 года назад +1

      @@soaringfamiliescounseling thanks a lot for the reply sir ....i will try to follow 😌currently I'm learning ai and machine learning which was my hobby from many years back ...i will try my best to avoid the negative thoughts

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  3 года назад +1

      @@yoshidasan4780 That sounds like a great hobby and AWESOME! Let your passion for it drive you back to your positivity. :)

    • @faithhovey4010
      @faithhovey4010 2 года назад

      I think that it's normal to be grieving only three months into diagnosis. I sincerely hope that you are currently feeling a bit better or more acclimated. I am also in the same position (one month in) and I am devastated.

  • @lauriedunn7573
    @lauriedunn7573 2 года назад +2

    I wish you would explain coping skills as you suggested

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  2 года назад

      I have a full playlist here ruclips.net/p/PLuHrqM8rqSUPBD7DINhER7ueZLIcHEXPY
      describing various coping skills and strategies and will be adding more videos shortly. Was there a specific type you were looking for more information on? :)

  • @raff23able
    @raff23able Год назад +1

    I’ve just been diagnosed with atrial fibrillation now waiting on a CT angiogram and have jus my been told I need a biopsy on a growth on my tongue. My life’s unbearably hard.

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  Год назад +1

      I am sorry to hear about that. I am hoping it all comes back clear and manageable. Keep your spirits up as we head into the holiday and enjoy as you normally would.

  • @tukkerbear
    @tukkerbear 2 года назад +1

    Thank you for this

  • @jameelsulaiman4019
    @jameelsulaiman4019 8 месяцев назад

    Sorry to ask doctor, should patients who diagnosed some disabilities apply thesame technique on their lives?

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  8 месяцев назад

      Hello, I am not sure I am understanding the question can you please explain a bit more?

    • @jameelsulaiman4019
      @jameelsulaiman4019 8 месяцев назад +1

      @@soaringfamiliescounseling
      Alright. Like what i mean is, some patients with disabilities like amputated limbs, atrophied parts or segments, should we also encourage them to apply the same lifestyle modification you mentioned in this video?

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  8 месяцев назад

      @@jameelsulaiman4019 Gotcha and absolutely. With situations like this it is essential to have an individual remember that they are themselves first versus their condition. They can still enjoy their passions and interests, which may be a part of themselves even with modifications if needed due to the limitations. I hope that helps. :)

    • @jameelsulaiman4019
      @jameelsulaiman4019 8 месяцев назад +1

      @@soaringfamiliescounseling yeah sure. It really helped
      Thank you very much for the way out.
      Bless you Dr

  • @ditzywallflwr9714
    @ditzywallflwr9714 9 месяцев назад +1

    I hear you im sure diabetes sucks. I just wish there was more info about coping with an illness that you know will kill you. I know one day i will need a heart and liver transplant and that terrifies me. How do you cope with that? How do you cope with this overwhelming lingering cloud over your head

    • @soaringfamiliescounseling
      @soaringfamiliescounseling  9 месяцев назад

      It definitely is scary and hard. The best and I'll be honest probably most "annoying thing to hear" is taking one day at a time. With all the other recommendations of living your life the way you want and reframing and being yourself I mentioned in the video, doing that all one day at a time is essential. There will be easier and of course harder days depending on the medical concerns experienced, but living mindfully versus thinking of the "what ifs" and "to come" inevitability is essential. I would recommend coping and managing what we can control in any given day versus what we cant. It may help with alleviating some anxiety. I hope that helps. :)

  • @chrisfranco6603
    @chrisfranco6603 Год назад +2

    A right relationship with Jesus can help you. Then get in a good church and join a weekly Bible study small group. We can’t do life alone. Having Christian brothers in my life who encourage me and pray for me has helped me tremendously.