Just came across your podcast when somebody posted episode number 40 about runners. Just at episode two and already know I'm going to love this podcast. Thanks for bringing up depression It is something that is not often talked about, but something that I strongly believe like you needs to be brought up. There is no shame. I remember when it hit me. I took a great trip with my family to England (My wife, older son and our twins} and was having a great time. When we got back. I looked at the pictures and I thought why do I look so depressed and so horrible. That's when I knew something was really wrong. I fought depression for years before my diagnosis in 2019. When I realized my depression was clinical and not situational something that I could not snap out of, it made all the world of a difference to me. That's when I started medication. There is no shame. Stop the stigma
About 6 years ago, my work family has nicknamed me "Grumpy Gus" and those closest to me would actually refer to me in person as "Grumpy Gus". Eventually, the nickname began to really bothered me as I believe in my heart that I was probably the most positive and chill member of my work family. Eventually, I asked the individual that coined the nickname why I was given the nickname of "Grumpy Gus" and she told me that it was because I always had an expressionless face regardless of the situation or discussion. Fast forward 6 years and after a diagnosis and everything begins to make a little more sense! Thank you to you both for what you are doing here for the PD community!
Thank you so much for doing these short clips. I was diagnosed in November 2020 at the age of 55. I have many of the same symptoms that Jessica has. Learning about the naps, the joy or lack of, the medication, and all that you’ve talked about has been very helpful. You two are incredible for doing what you’re doing and taking the time to do it right. Thanks again!
Hey guys it's Rodger again... I can still relate to the crying issue. I cry every day. Sometimes many times a day. I was not planning my life to go in this direction but I'm still in the process of grieving. For 65 years I was very active riding bicycles going to the gym walking around lakes hikes extended vacations travel to Victoria Island, taiwan, and Maui. Now it hurts just get off the freaking couch. That's probably the reason for my crying, at least that's what my therapist says. Joy, I sure do miss Joy. Joy was a part of my life for such a long time until PD came in and the brain fog. I try not to harp on the bad side. Enjoy life while you can. Be better not bitter and that's my new motto. Thanks for listening.
Are you still exercising Rodger? Even moving an hour a day, I’m always amazed at how it affects people. I hope you have a PD group of can find a PD group - that totally helped my mood…along with Sertraline ;)
@@thesecretlifeofparkinsons yes... Exercise does seem to help. With my current medication I cannot take any kind of antidepressant so I need to deal with that on my own. And that is not been easy. Did some good bike riding in California today temperature outside with 73.
Thank you Brian and Jessica for what you are doing! Any education about this wonderful gift we have been given is wonderful. I recently just made my first PD newsletter for my friends and family. They had no idea I was experiencing what I was. Looking forward to your next podcast. Keep up the great work! :)
Amazing! Thank you so much for this episode on loosing Joy, as well as on being depressed. I have been going through an emotional roller coaster, the past year, and it's been quite difficult. I have isolated myself with no socialization for several months now. My goal is to be back at pD Next Steps by end of spring, beginning of summer this year. Your videos have been wonderful and are most appreciated
Great podcast! I have yopd and classes I am in are 70 year old pd people and it is hard to relate. I have identical twin brother who is healthy and well so frustrating comparing myself with him. I also have RUclips channel documenting my journey thanks for talking about this to others with pd. Keep up with the good work!'!!!!
I get that question alot. Are you ever happy? I use to be. The emptiness is crazy. Bla, exactly. I occasionally can smile, then my kids are like mom's smiling! Nothing can be wrong & I look like I'm not happy or I'm angry. I have the rigidity, not shaking. It's crazy😢
Hi, I would like to say that this is a great forum and as someone with Parkinsonism I am still learning about my disease. I got hit with chronic severe constipation in 2012 at 44. At around 48 I got hit with apathy, it has become one of the hardest parts of my disease. I can't cry not even through some pretty bad life moments. Does anyone else have apathy to this degree? I have to fake just about every emotion just for my own sanity.
I actually dealt (and still do to some degree) with apathy. I lost both my grandmother's 1 week apart, at the height of COVID (April 2020). I remember not crying. Very weird but it comes and goes for me.
@@thesecretlifeofparkinsons I'm so sorry for your loss. That was definitely under more extreme circumstances to say the least. Thank you for your help ☺️
More tslk on anxiety and depression please. I too just stsrted low dose ativan to combat insomnia snd anxiety. Helps a lot but terrified of becoming addicted. Thank you for what you do
Please never stop this podcast. It helps us so so much. Brian’s words and your words were incredibly relatable and powerful
That means so much to us. Thank you!
The emotional and psychological aspects of this disease are so often overlooked. Thanks for doing this podcast! So much I can relate to.
Just came across your podcast when somebody posted episode number 40 about runners. Just at episode two and already know I'm going to love this podcast. Thanks for bringing up depression It is something that is not often talked about, but something that I strongly believe like you needs to be brought up. There is no shame. I remember when it hit me. I took a great trip with my family to England (My wife, older son and our twins} and was having a great time. When we got back. I looked at the pictures and I thought why do I look so depressed and so horrible. That's when I knew something was really wrong. I fought depression for years before my diagnosis in 2019.
When I realized my depression was clinical and not situational something that I could not snap out of, it made all the world of a difference to me. That's when I started medication. There is no shame. Stop the stigma
About 6 years ago, my work family has nicknamed me "Grumpy Gus" and those closest to me would actually refer to me in person as "Grumpy Gus". Eventually, the nickname began to really bothered me as I believe in my heart that I was probably the most positive and chill member of my work family. Eventually, I asked the individual that coined the nickname why I was given the nickname of "Grumpy Gus" and she told me that it was because I always had an expressionless face regardless of the situation or discussion. Fast forward 6 years and after a diagnosis and everything begins to make a little more sense! Thank you to you both for what you are doing here for the PD community!
Well Grumpy Gus, we need to come up with a fun name like that for Brian :) Any suggestions?? haha!
Thank you so much for doing these short clips. I was diagnosed in November 2020 at the age of 55. I have many of the same symptoms that Jessica has. Learning about the naps, the joy or lack of, the medication, and all that you’ve talked about has been very helpful. You two are incredible for doing what you’re doing and taking the time to do it right. Thanks again!
Thank you so much! Please continue to check in as we will be posting at least 1-2 episodes each week!
Hey guys it's Rodger again... I can still relate to the crying issue. I cry every day. Sometimes many times a day. I was not planning my life to go in this direction but I'm still in the process of grieving. For 65 years I was very active riding bicycles going to the gym walking around lakes hikes extended vacations travel to Victoria Island, taiwan, and Maui. Now it hurts just get off the freaking couch. That's probably the reason for my crying, at least that's what my therapist says. Joy, I sure do miss Joy. Joy was a part of my life for such a long time until PD came in and the brain fog. I try not to harp on the bad side. Enjoy life while you can. Be better not bitter and that's my new motto. Thanks for listening.
Are you still exercising Rodger? Even moving an hour a day, I’m always amazed at how it affects people. I hope you have a PD group of can find a PD group - that totally helped my mood…along with Sertraline ;)
@@thesecretlifeofparkinsons yes... Exercise does seem to help. With my current medication I cannot take any kind of antidepressant so I need to deal with that on my own. And that is not been easy. Did some good bike riding in California today temperature outside with 73.
I guess I am still grieving as well. Can cry at the drop of a hat these days
@@elizabethsky4681Crying is good don’t keep it bottled inside also talk to someone u just to get things off ur chest and exercise
Thank you Brian and Jessica for what you are doing! Any education about this wonderful gift we have been given is wonderful. I recently just made my first PD newsletter for my friends and family. They had no idea I was experiencing what I was. Looking forward to your next podcast. Keep up the great work! :)
Thanks, Chris!
Amazing! Thank you so much for this episode on loosing Joy, as well as on being depressed. I have been going through an emotional roller coaster, the past year, and it's been quite difficult. I have isolated myself with no socialization for several months now. My goal is to be back at pD Next Steps by end of spring, beginning of summer this year. Your videos have been wonderful and are most appreciated
We miss you!
Thank you
Great podcast! I have yopd and classes I am in are 70 year old pd people and it is hard to relate. I have identical twin brother who is healthy and well so frustrating comparing myself with him. I also have RUclips channel documenting my journey thanks for talking about this to others with pd. Keep up with the good work!'!!!!
I get that question alot. Are you ever happy? I use to be. The emptiness is crazy. Bla, exactly. I occasionally can smile, then my kids are like mom's smiling! Nothing can be wrong & I look like I'm not happy or I'm angry. I have the rigidity, not shaking. It's crazy😢
I just reviewed your first episode and thoroughly enjoyed it.
Thanks, Brian! I hope you made it to more recent ones. Those first couple we were so new to it...didn't really know what we were doing ;)
Thank you for doing this podcast. I am 68 and was diagnosed in November of 2021. Patti from Michigan . . .formerly from Ohio. (go Bucks). 🌺
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@@thesecretlifeofparkinsons I-O
Just came across your podcast, I really enjoyed it! I’m 9 years dx
Glad you enjoyed it! Check back in each week! We are going to try and post each Monday and Thursday!
Bravo!
Hi, I would like to say that this is a great forum and as someone with Parkinsonism
I am still learning about my disease. I got hit with chronic severe constipation in 2012 at 44. At around 48 I got hit with apathy, it has become one of the hardest parts of my disease. I can't cry not even through some pretty bad life moments. Does anyone else have apathy to this degree? I have to fake just about every emotion just for my own sanity.
I actually dealt (and still do to some degree) with apathy. I lost both my grandmother's 1 week apart, at the height of COVID (April 2020). I remember not crying. Very weird but it comes and goes for me.
@@thesecretlifeofparkinsons I'm so sorry for your loss. That was definitely under more extreme circumstances to say the least. Thank you for your help ☺️
@@thesecretlifeofparkinsonsApathy is horrible. Lost my grand daughter. Could not cry. I love and miss her so much. 😢
More tslk on anxiety and depression please. I too just stsrted low dose ativan to combat insomnia snd anxiety. Helps a lot but terrified of becoming addicted. Thank you for what you do
Will do! We can add that topic to our future list of podcasts.
Rotten meat can cause it.
Day to day. Best advice. Exercise within your limitations.. It’s sucks, however, but DO IT.😇