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Jessica, you're not alone. I'm up between 2 & 4. And can't go back to sleep. Sometimes ill get 5 or 6 hours of sleep for 2 or 3 nights in a row. But then back to 4 hours or so. i find talking to God, reading or doing housecleaning, may not get you back to sleep, but least you get something productive done. Usually, if i stay in bed and pray for others, 50% of the time, i will gi back to sleep. I'm with you, Karen PS. Yes, take your meds on schedule

What is mds?

Well I'm sitting here crying my eyes out!!! Carl Beech you obviously are a lovely genuine man - thank you for sharing your experience and amazing invention with us, your fellow Parkinson's family and the wider world. Hope is what you have given us and that is priceless. God Bless you and may all of your dreams to make this available to Third World countries be realised. You are an inspiration.

Happy New Year

I started almost daily walks last summer. I just added arm and leg strength training. I enjoy both!

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Exercise, Exercise, Exercise, eat, sleep repeat. 😃

Hi Jessica & Brian! I live in Latvia and was diagnosed at age 31. I am now 33. Thank you for your podcast, it has given me so much information and insights. I wanted to ask about the seratonin and antidepressants. I am on them for 2 years now but am wondering if I can get off them and still be on good seratonin levels with Parkinsons? Maybe there could be an episode about this with some specialis? Just an idea🙏 Take care and thanks ❤

Great points, especially about needing naps now😁keep up the good work

I also have awful pain in back and legs just about daily. At different times. Stress and upsetment exacerbates pain

I am 64. I’ve had Parkinson’s at least 5 years. I’ve exercise my entire life. I find it’s getting more difficult to move unless I have my medication. I can move better, but it also causes dyskinesia. I’d rather have that than that slow heavy movement, which I get at night no matter what. I have a better diet pre-Parkinson’s, because the medication bothers my stomach Parkinson’s bothers my stomach, so I can’t eat a ton of roughage like I could pre-Parkinson’s I exercise at least 3to 4 times a week, but I can tell I am progressively getting weaker. 13:54

I am 64. I’ve had Parkinson’s at least 5 years. I’ve exercise my entire life. I find it’s getting more difficult to move unless I have my medication. I can move better, but it also causes dyskinesia. I’d rather have that than that slow heavy movement, which I get at night no matter what. I have a better diet pre-Parkinson’s, because the medication bothers my stomach Parkinson’s bothers my stomach, so I can’t eat a ton of roughage like I could pre-Parkinson’s I exercise at least 3to 4 times a week, but I can tell I am progressively getting weaker.

Happy New Year from Germany. My goal is to play 2 times a week table tennis " ping pong Parkinson".

Hi from New Zealand, in summer, thanks for the conversations as you progress. Heres a great indoor walking video (11mins) for when its stormy or snowing! RUclips: Exercise for Health "Wake Up Walking Workout". Best wishes, John

Jessica, I'm in the same boat you are. I decided NOT to do DBS last November after being cleared for that surgery. I am going to try VYALEV instead. No shaving the head. 🙂

Just diagnosed 2025

In my final 30 seconds I'll leave ye with this. Brian , if you want to lose 10 pounds, you have to stop eating elephants 🐘 . Jessica, stop cheat8ng on your work husband, the cheek making videos without our main man. Love you both, thank you for all you do . Love from Ireland 🇮🇪 ❤️

I know the feeling ! Do you ever have days of severe sleepynness

Totally inspirational Carl.. 👏 Legend

Blessings 💕

My husband has PD and we are also trying to decide on the DBS option - love your show and enjoy you both sharing ❤

I was diagnosed in 2018, I do a 2 step program called Admit and Accept. I admit I have it and can't fight or cure it. I accept that my life is different but not over. I have been dealing with a very bad heart since 2003 so I can't exercise enough but I go to PT every week and have an at home program. I can't have DBS because of the devices in my heart to keep it going. I can't get a heart transplant because I have Parkinson's. I accept this and look for things I can do. I did have to retire from my job so I stay home and take care of our 3 little dogs, I have a wonderful wife who is a school teacher, a mid school daughter and a son in collage. I can help with laundry, I do most all the cooking and over COVID I learned how to make bread. Vacuuming the floors and mopping are a great activity for me. I admit I have Parkinson's and I accept that I have to live life in bite size pieces. I can't live my old life but I sure enjoy finding ways to successfully live my new life. Never ever give up or in. God bless you both.

Happy new year!

Happy New Year from Spain !!! Wish you both the best , speacially you Jess, no matter what decition you take about your DBS ...

I treat my Parkinson's like a challenging puzzle. Spend your time trying to come up with effective management and coping strategies -- exercise your body and your enginuity. I am now a research group of one. Others can spend their hours doing crosswords, playing computer games, or whatever but I spend some of my time reading medical papers, trying various "what if?" options and coming up with ways to minimize the effects of PD while maximizing my enjoyment of life. Compared to others who were diagnosed at the same time as myself I think I've done really well. Those others seem to have "settled" for simply taking their cinemet and resigning themselves to the inevitable without really recognizing that there is just so much more you can do to delay that inevitability. The solutions (for me) are not that hard. Good nutrition plus supplementation with just a few really useful things, plenty of exercise to get the endorphins flowing (endorphins are a dopamine stimulant), maintaining a high level of intellectual activity (reading, socializing, problem-solving, hobbies, etc) and "having a mission" (ie: minimizing the effects of PD and trying new stuff).

Happy New Year to both of you guys.

I was diagnosed a little under 2 weeks ago at age 50 and honestly my head is still spinning trying to figure out what this is going to mean for my family moving forward. I am glad I came across your video with suggestions about where to find information and potentially finding others farther along this journey to seek advice/support from. Thank you.

This is a current issue for me - if I forget to take meds (currently taking every 3 hours) I find that later in the day I have a deficiency and am more likely to get a dystonia episode. I just had DBS and I’m taking less meds but if I push it with skipping a dose and reducing the amount, well that tends to sideline me later.

Thank you, Karl. We have so many similarities in our story and in our disease control. Would love to chat with you.

Great pod you have, Jessica. I have only great experiences from doing my DBS. Best thing I have done. ruclips.net/video/yLgyje03dRo/видео.html

A friend asked me just yesterday about I find joy in, and the question actually gave me pause. I used to find joy in many things, but less so now. Coding, writing, TV shows, films, games, sports; none of them make me smile like I used to. I did eventually settle on one surefire way to give me joy. A dear friend shared that she was pregnant last year, and I downright danced in my chair. She kept me updated through it all, the good and the bad, such as her amazing superhuman husband picking her up and doing arm curls. She now regularly shares pictures of her daughter, and it brightens my day every time. It extends to others; another friend shared that he was going on a date, and that, too, made me smile. Oh, small addition: my neurologist told me last week (quite firmly) that I have a Parkinsonian syndrome, but they have yet to narrow it down. It remains possible that I have an illlness other than PD. After 18 months, three hospital stays and every possible treatment short of DBS, I'm desperate to finally get diagnosed. I'm 32., and I feel like I'm wasting the best years of my life waiting for this.

a friend of mine with it takes prescribed sleep aids

Thank you, Lord. I'm wishing you the very best and I will pray for you.

God absolutely gave you this idea! Thank you Jesus!!

Thank you Carl Beech your amazing 🙏 God Bless you 😇

What do you call this device?

Great seeing you Beechy! Take care, love Sarah says hi (from soc media)

YES! Oh bloody hell, yes, thank you! I haven't been able to cut meat for two yesrs!

Happy New Year! Thank you for your channel. It’s having a lot of people, myself included. I like your parent analogy in relation to your Parkinson‘s. I do feel I get something out of Parkinson‘s, I see my part PD as a teacher. I’ve learnt a great deal the past 11 years since my diagnosis. If you’re interested, check out my video on acceptance. Keep up the great work you’re doing here. I always appreciate your videos 😁

Happy birthday 🎂 🥳 🎉

Happy birthday my Parkinsons brother.

My husband was diagnosed in 2021 at age 73. On 6/23, he had DBS surgery on the left side; the neurosurgeon wasn't able to place leads on right side. He showed a bit of improvement in June 2023, but it has all been downhill since and he is wheelchair bound. Going to see a spine surgeon next week to see if spinal stenosis in his neck is preventing movement. He also has no strength on his right side. He needs help with all daily needs like eating, bathroom, brushing teeth, standing, etc. We are so discouraged right now. We are located in WV 2 hours from Pittsburgh. Would you advise us to see a Pittsburgh neurologist? Thank you for your show.

Hi there from Israel ❤ you are so charming, how great i feel to have found your channel 🎉🎉 I thought i was too young to get this shit at 54, but you guys are younger! For me this started with the war. I was feeling a bit weak and my handwriting’d changed but i thought it’s because I don’t get to write much. And then in October 2023 when the war started my hands started shaking and then the leg and all that… a couple of months later i was diagnosed. One day there was a siren on my way home from work, i lay down on the floor as instructed by home front commmand and I couldn’t get up , just couldn’t, it was sooo embarrassing 😮 I’ve noticed that any stress, even the slightest, makes all the symptoms go wild. But siren is the worst, it’s so embarrassing to be in the shelter around people, and my hands are shaking like crazy, and there’s nothing i can do. My legs just feel like stone and would not move. Also I noticed that in the morning when i have to drive to work, and get out of the car (god forbid i meet a coworker at the parking lot 😂 ) and walk somehow to my desk, it’s just the worst 😂 i am walking like a pinoccio 😅😅😅 and by the end of the day i am much better

Start now and wear some scarfs to start the process and the new look should you decide to go for it. If you don't, that's ok too!

What a game changer this could be. Inspirational!

My sleep patterns are very similar to yours. I've tried all the things you've tried including a marijuana tincture. I also experience restless legs. My neurologist suggested gabapentin and it works. Not as well as I'd like but my sleep is less fragmented. When I'm awake and can't go back to sleep I do laundry or some chores I've put off. My PD really messes with my sleep and I totally know where you're coming from. Thank you for sharing

I get it and it has happened. You guys are the best…and important!!

Thank you for doing what you do and what you talk about in your podcasts! Serious topics sometimes but done lightly. Keep it up!! I belong to a PD solo group for those of us who live alone and I will recommend it to other members! You are always upbeat…something we all need!

I was diagnosed three years ago and just recently started having these symptoms. Thank you so much for sharing this video. ❤

hi jess, this is the first time ive heard your podcast. i've had pd for 28 years and am now 70. i find that i have dyskinesia when my dopamine levels are off-either too high or too low which means it can occur after taking meds or in an off period. As for dealing with the variability of daily activities, i take my meds according to how i feel. it's roughly every three hors but if ive just exercised the interval will be longer and if my toes start to curl before its time for my next dose, i'll allow myself to take my meds a little earlier. so there's about a half an hour adjustable window on either side of the set time.also if i have some expresso and eat less but more frequently and nap-all those things play into how my meds work as well. nice to meet you.