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❤😊Thanks, yoù are a big blessing to me. Pd since 2012 Love learning from you.

I'm Susan Fr. Phillipines iwas diagnosed of 3 years ago

I does happen overnight if you are one of the lucky ones (yeah me) that has vascular Parkinson’s.😐🫤😒👀. Literally in one day I could no longer just walk. Like the day before.😐. I am now walking like The Tin Man in the Wizard of Oz. 👀. Only with small steps thrown in for fun.🧐. But thankfully I have zero tremors. I was diagnosed in March 2024, and already in the ‘middle stages’. Thanks to this program I now go to Planet Fitness every other day. And I am trying Hyperbaric oxygen treatments to see if it can help. 🙌🙌🙌. Thanks for your show. I love the way you two bicker like best friends.😁🙌👍🏼😂

Coming from the other side of the DBS journey… it hurt as hell. I just don’t want you think when on the operating table everyone will share the same experience as Brian.. He was lucky or have a much greater tolerance of pain as I did. Idk if theyI didn’t give me the correct amount of anesthesia but I felt great pressure and drilling , and gasped. Just want every one to know that could happen.

I just reviewed your first episode and thoroughly enjoyed it.

Can you use this in conjunction with DBS?

Thank you for your podcast. As the partner with a person with Parkinson’s helps me so much and it helps me to be more sensitive to my partner’s needs and issues that he might not necessarily share. I like the different topics you discuss. Would you do a podcast on the “mask” face meaning the losing of expression on one’s face. This is a big issue for us at this point.

Good advice!

Thank you, Jessica, for sharing this. The Turnto Podcast is going to be a game changer. I signed up.

Doesn't that suck, I used to shoot water out of my nose. Spasms in the esophagus!!

very interesting, I actually found the answer, after staring at a prescription list of parkinson's disease meds-rytary at the PADRECC in SF. I was being treated for dystonia, which of course is part of PD. I remember Dr. Katz, testing me for the meds generic sinemet, I got greedy and asked-'why is my tremor started back up, after 20 minutes. She gave me the side eye and said 'your anticipating the effect of the meds'. That just ended my sociapathic and psychopathetic tendencies, or what is the other hiroshito (taking on the symptomology of your nearest companions. Dang supposed charimastic' propaganda!)

I am a neurologist, the symptoms you are displaying may be due to shoulder stiffness: i want to ask your permession to share a part of your video to educate professionals about shoulder stifness in PD. I will be credition your youtube page as a resource of the video

I love seeing you both look so joyful. Thank you for what you do :)

❤❤ exactly ❤❤ You're more informative than any other !! Im so happy I found you. I joined a Rock Steady program on the westside CLE on Lake Erie after I started watching your podcast this past March. You motivate me so much!! It's nice to hear someone complaining 😂as much as I complain inside my head. You make me feel normal and that really helps!!

It’s a great show. I’m totally inspired. I’m 73 just diagnosed PD three weeks ago. I’m determined to continue my 😊12-hour a week exercise program. ❤

I feel part of the club when your med alarm goes off during the podcast. Definitely don't change it.

🙏🙏💯🙏💯♥️♥️♥️♥️♥️Thank you ♥️

I would love to be on your show .had parkinsons for 9 years ive had dbs struggling to find motivation to exercise and cant afford to do somthing in a club or something....i live in france..i also have twitching eyes or had beford dbs and one eye sliding off to the side and i was seeing double...of course its parkinsons!!! Nothing to do with todays program just thought id mention it....

Wish we had a YOPD group in South Florida

Fining a community is the hardest thing!! I've met a few people through zoom but zero people locally. 😎🌴 I'd totally travel to a YOPD conference!! Make sure to advertise widely. 🧳 I am so grateful for RUclips and Zoom as those have been my only connection to a PD community. 🙃

How should our fitness instructor contact Melissa to get certified as a PD Next Steps instructor in MI?

Power for parkinsons on you tube

I am waiting for my appointment to be diagnosed. Pretty confident I have Parkinsons especially since it runs on both sides of my family. It seems like I have like every non motor symptom for years (some since I was a teen), and I had tremors start in just my right hand in May of this year. Since then, they have rapidly increased to other parts of my body (both sides now, my right leg, and face included). I'm 42 years old, and my appointment is still months away, and I am worried how bad it will get before I see the neurologist (my appointment isn't until March 2025). I'm just curious how fast symptoms increased for you all, and did they at least settle down after starting the meds? I was just wondering if I should be looking for an earlier appointment with someone else. (I am in Ohio as well btw😊❤...Cincinnati area) Any advice would be greatly appreciated! Is there anyone in Ohio that specializes in YOPD?

WIsh we had a YOPD group in San Diego.

Great episode. I'm not early onset but I relate to most of your points. I find people can't be expected to understand unless they also have PD Thsnk you for the posts xd

Loved being a part of this episode!!! You guys are doing our whole community such a huge service talking about things that matter to us.

Great episode! Community is everything, for me it's been things like this channel, the YOPN virtual meetings talking with others around the country with PD that's helping me get through this! Jessica, that was me you spoke with at AJ's after the 5K about the episode with the attorney that helped me navigate changing jobs and how I experimented with telling prospective employers about my PD and it led to no job offers and such, it was quite interesting to say the least!

I got for about a month in a half freezing in my arm it’s like what you said it’s almost 2 years Parkinson’s with me

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you just took the words right out of my mouth, yes bring her back every 6 months for sure. i am convinced that curing the gut is the best avenue to help people with parkinson. between you and her and brian jokes to lighten the mood. keep up the research both of you cant wait to see whats next. hopefully advanced parkinson can be helped.

please ask him why there is not enough movement disorder specialist locally. its hard driving alot of miles to go see them.

one of your best podcast to date keep them coming with this doctor, he is spot on all the time. i said the same thing to our neurologist about backing off the extra pills. wow going back tomorrow,will be bringing this up. thank you very much for what all 3 of you do. it does help to find people who really care about providing the best care possible under the circustances. advance parkinson is tough

Thanks for sharing Jessica. We have these questions daily. Always trying to figure it out too. We are in South Africa so our meds have vastly different names and at the moment, we don't even have a neurologist that consult. The ones we have been with, quite frankly, are of little to no help 😢

wonderful to see a listener visiting! I wish I could visit but I'm too anxious to travel (from California). Love your Secret Life!

I just start at where I left off so start with your first dose but I skip Xadago if missed. I’m told that’s a med you can’t double or take later if you forget or sleep thru. Learned those calls to pharmacist or manufacturer. I was on Gocovri but my body didn’t react well over time. Sometimes just lean in or push thru only you know. Today I made it to physical therapy and allowing my body rest but never know what a great balance is. Tomorrow I will surely push thru if not feeling any better. Be kind to yourself ❤

H2S is also a vasodilator and likely contributing to the low blood pressure! Just figured that out this week 🙂

Have you walked with trekking poles? I have found that it helps me keep a steady gate.

So put an ice bag underneath breast on the left of your chest? Not your belly, right?

Where can I buy these products? I'm from Canada!

thank you~ very incredible upload! take it easy! 🖖

Your workouts scare me! INTENSE!!!! (well done!)

My grandma was diagnosed with sundowners because she got really difficult at night and wouldn't go to sleep. She was so much better in the daytime. My family didn't really understand why she was like this. I8was a horrible time. 😢😢😢 I loved her so much because she taught me so much.,I had a wonderful time with my grandparents, they were loving teaching and patient..

I love donuts!!!

A lot of this went over my head, however it's good to know that someone is looking in to this as deeply as they are. With that said I have been on sugar shift for two months, and I know it has helped immensely. I have struggled with chronic constipation for 15+ years, and things are moving better, and I would say significantly better. I also continue to take MiraLAX and fiber in addition to sugar shift, but I'm very happy with the results. 😎🌴

What fascinating and potentially useful information for people with Parkinson’s. I only understood maybe half of what she was discussing 😂😐, but I will be listening to this again, and writing down those scientific compounds to look into this further. I have a Son who is a chemical engineer and he might have more perspectives on hydrogen sulfide. I know it gives off a smell like rotten eggs. (See Nick, your Momma was paying attention 😂). So if He says something different and worthwhile, I will come back in here and share it. 💪🏼

I wonder if that has to do with the moon? They call lunatics LUNAtics for a reason. The moon affects their behavior.

Awesome topic

I happen to find sundowning in my partner seems to make him a little more agitated. It usually starts late afternoon, around 3, and as the rest of the day/evening goes on, he seems to get frustrated more, it's hard to carry on a conversation with him without him getting more agitated and not wanting to deal with whatever it may be, especially if it's a personal business matter, things like that. I find the best times to talk with him are usually between 11 and before 3. 3:00 m may seem early to most, but it is getting close to the end of the afternoon. It's just what I find that happens in our living situation. It's not easy to deal with, for me, as the Caretaker. I believe this should be visited some more and brought up with more conversation about sundowning. Thank you for addressing this, again, I feel more needs to be discussed about this.

Dr. Patel is always an informative guest on your podcast!

Anxiety/being keyed-up brings on bodily tension. I just finished DBS surgery & next week will get programmed. The surgery itself has changed my fatigue which is now a sleepy, lightheadedness. Before it was bodily & always on edge without any need to sleep. (79 yr old female. Symptoms for about 2 yrs. Device: Boston Scientific)