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- Опубликовано: 10 июл 2024
- Dr. Benjamin Walter joined us from the Cleveland Clinic to talk about a very important initiative that he has been working on: when in the hospital, people with Parkinson's should be able to receive their medications at their specific times and that the staff and pharmacy are notified what drugs NOT to administer. I can't thank Dr. Walter and The Parkinson's Foundation enough for putting so much into this very critical project. As Brian said, I was "geeking" out!
The patient is the best person to say when it’s needed to take the meds.
Good information thanks!
Hello Jessica and Brian, my name is Silvina and I live in Austria. I am 60 years and I was diagnosed 12 years ago. I love your podcast, and I would like to suggest if you can do a research about the Parkinson’s gloves
About two years ago it was on the news the presentation of the Parkinson’s glove discovered in the university of Stanford, CA. Very promising non-invasive treatment. I will send you the link in case you haven’t heard. They say that it will be on the market this year.
The other topic that I would like to hear is about the addiction that many people develop with Parkinson’s, like gambling, shopping or even sex addiction. A Tabu topic that is real and no One Talk About it.
Best regards and congratulations for your program
Hi Silvina! Yes, I remember the study with the gloves. While I was also excited, I then quickly learned the study was only done with like 4 people and they are in the very early stages of development. For whatever the reason, the news picked it up, which is frustrating because they are no where near ready for the market. Anyway, I'll keep an eye on it to see if anything new pops up.
as for the addiction part, I only experienced it when I was on Ropinirole (dopamine agonist). We did talk about it in a previous episode but I'll have to get back to you on which episode that was. Yeah, the addiction is real, and it was awful.
Interesting and great information on this
I was diagnosed on May 8th and just started my medication this morning. Carbidopa/Levidopa 25/100 mg 3 times a day, starting off with half a tablet for the first 3 days. I was pretty nervous taking it today just because I didn’t know what to expect
That's normal. I was so nervous before taking meds. But a couple years later (after I realized my meds changed all the time in the beginning...just trying to find the right dose), I realized that just because I start on them doesn't mean I can't stop them (WITH my doctors awareness and recommendation of course....never just go off on your own). But when I think of how I feel now compared to 5 years ago - I am doing great! I used to have such stiffness in my calf muscle and restless leg at night. I have other minor symptoms compared to that now, but meds have helped with those early symptoms. I hope you find relief!
Great information. Thanks
Great
I don't use the Parkinson's drugs. I've had Parkinson's for 14 years. I got to stage 3 and reversed back to almost no symptoms at all.
Doing what? If you don’t mind, please tell us
@@milaloeb977 About four years ago I was starting to rapidly decline,, things were getting worse,, more symptoms started to appear. One of those symptoms was my appetite,, I was hungry all the time. So I researched for appetite suppressants,, found the oldest suppressant,, Nicotine. Did research on pure nicotine,, amazed at all the health benefits and found that it had been studied for use on Parkinson's. Started using nicotine patches,, the results were amazing! Not only did my appetite improve,, a lot of my other symptoms either improved or completely went away. The nicotine patches were expensive and would irritate my skin,, so I switched to using the nicotine pouches you put between your cheek and gum (Product names: Zyn, Velo, On, Lucy, Rogue, ect.) and still occasionally use the patches for muscle tightness. About six months later I started getting a resting tremor in my left hand. Did more research. Started taking low dose Methylene Blue. Haven't had a tremor since. I also (carefully) use Glutathione,, high dose vitamin B1 and other various supplements and I'm also on the carnivore diet.
@@milaloeb977 Tried to respond,, RUclips removed my reply,, don't know why.