Loving Me thank you so much for your message, that truly means a lot! I really hope that is what people sense and feel when they watch/listen to my videos. Oh yes, and I want them to experience so much Joy!! God bless and pray you're having a beautiful day!
So sweet, thank you! Well, if you want to hear more of our singing, go to the playlist section at the top of my channel. Click on the playlist titled “Joy Ross singing and performing, and the Ross family videos. :-)
Joy you are an inspiration. I am an agnostic for the past 4 years due to personal reasons but my faith in the human kind is strong because when I see people like you overcoming obstacles gives me faith in the human kind. I wish I knew you personally and give you a hug. So I send you a hug from the UK
Awe, thank you for your kind words! I completely respect your beliefs, but I could not be the woman I am who is confident, strong, hopeful, full of faith, and joyful without God giving me every single ability. I don’t know where I would be without God in my life, if you could only imagine the devastation I’ve gone through, the pain, the heart ache, if I didn’t have something more powerful to lean on in my darkest moments, I don’t think I would have made it this far. I love you all so much because the love God has put within me. Suffering, persevering, and overcoming has made me fall in love with people in this world more than you can even imagine. It doesn’t matter your religion, your race, your personal choices, your disabilities, or failures, I just want to bring hope, peace, love, and joy to the hurting. I always say if God could do it for me, He can do it for anyone. Big hugs and many blessings 💛
Joy - my father has been diagnosed with brain cancer about three weeks ago. Watching your videos has brought me a lot of peace . Your strength and bravery inspires me and gives me confidence in the human spirit!
You've been through so much despite what others may have thought you couldn't accomplish. Totally blown away by The Ross' story, and you inspire me with hope about my own illnesses. Life can be hard but it can be so beautiful too! Loved the singing btw, your kids are just as amazing as their mum.
SnazzyBoxx thank you, your message truly was so sweet! Yes, we have been through so much, but we are so much stronger because of it! God is so good and we are truly blessed in so many ways… praying God's blessings over your life as well💛💛
I have just recently found your channel and I’ve just watched a ton of your videos. I’m so glad I came across this video about juvenile arthritis. I’m a member of Alpha Omicron Pi sorority and our philanthropy that we support is the Juvenile Arthritis Foundation. We are the only ones in the Greek community who support this cause and it has such a special place in my heart. I love to be able to put faces to the philanthropic work that we strive for all year long. You and your family are such inspirations and I’m so glad I’m in an organization that supports people like you and helps find a cure. All the best to you and your family❤️
Hi Joy! I just discovered you because you came up in my recommended videos and I'm so glad you did. I was diagnosed with juvenile rheumatoid arthritis and am lucky that it never had a big effect on my eyesight. I was diagnosed Young, at 18 months old. One of my earliest memories was my nurse Lisa at Children's Hospital of Philadelphia. There for a while we were going almost weekly for blood tests and other check-ups. I saw an opthamologist for years for frequent check-ups until my arthritis was in remission. I have watched so many videos of yours just today and I'm so inspired by you.
When y’all started singing I couldn’t help but to tear up! Such beautiful voices!!! Aw Joy!!! Look at this! Look at the awareness you’re bringing to the pharmaceutical and medical communities. There are many illness with medications that can save yet are taken out of reach because of cost or profit. This is so wonderful. Bringing light to the darkness, and the darkness cannot stop you, because you have been there and back. And you have the world at your finger tips at this moment. All that you have done has brought you here! All your determination, all your love and devotion. I know your family and loved ones are so proud of you! Darlin you amaze and inspire me!!!
This is very inspiring I also suffer from RA I got it in many joints. I still hope one day I will have a family of my own and care of my kids as much possible. I wish health on everyone going threw illness. ❤️❤️🙏
Life is full of the most challenging things. Your such a great person, lots of people cannot look past the fact that they’re life is so different for them.
I know how you feel joy . I have rheumatoid arthritis ( juvenile ) ! I was told 2 years ago I couldn't walk again due too losing nerves in my legs! Keep your head high and your daughter too! You have a lot of support not just from me but all your fans ! I always love watching your videos where you tell these amazing stories and you and your daughters are troopers ❤️ , I love you guys
My oldest sister was diagnosed with RA a few years ago. My mom’s twin sister suffers from RA too. I know the effects of this disease. I admire and I’m so compassionate to people suffering from this incredibly painful disease. Stay strong ❤️💪
You are a very beautiful person. I love your story. Watched a lot of your videos & you have such a strong, loving and caring spirit. You are an amazing mother!!!
I have arthritis(had since childhood),vision issues, neuropathy,vit d deficiency & other health issues(some that have no diagnosis ),life has gotten hard lately. At times I've felt like it's over and hopeless. However,The Ross story IS giving me hope. I know your name & Jesus knows your name he's using your story ,your families story to spread hope. Thanks for being a willing vessel.I will keep your family in my prayers. Please pray for me also. Thanks God bless!
I watch your videos as a mom of a 5 year old boy chronic bilateral uveitis and juvenile arthritis ( oligoarticular) . He has arthritis in his cervical spine, jaw, knees, elbow (complete immobility in the left) and his ankle. He takes methotrexate and Humira injections weekly as well as steroid eye drops daily. It’s an amazing thing to watch you succeed in everything knowing my little guy can too. Thank you! ❤️
I have just recently watched 2 of your videos and I am amazed of how strong you have been to overcome such tragedy in your life. But you give hope to many of those that go through loses in their lives and give them positive mindsets that they could get past anything. I am now subscribed and I’m really looking forward to watching many more of your videos. Always remain positive and stay completely strong.
Clarissa Palacios thank you so much, so happy you found me and have subscribed. Yes, The great challenges I have faced and continue to face give me a beautiful perspective and what matters most in life. If I had allowed the darkest storms in my life to destroy me, look at all the incredible blessings I would be missing out on! Sharing my life so openly with the world, using my challenges to inspire others to move past their’s, keeps inspire me each and every day. I wouldn’t change my life for anything, my blindness, my challenges, have given me my purpose in life. God bless, look forward to hearing from you again 😊
furyfox13 no actually if the arthritis is in only one or two joints you have a much higher chance of getting it in the eyes. I have it in all my joints so my eyes are fine
My daughter was diagnosed at age 8 with rheumatoid arthritis and ulcerative colitis. It has been a battle. To see the pain is awful. She is 13 now. She has been on Remicade infusions every 6 wks the highest dose and a methotrexate injection weekly. Her eyes are checked every 6 months by a specialist. Your story is an inspiration. I hope your beautiful family continues to reach out and spread awareness. Thank you ❤
Oh wow, it is definitely not easy seeing your children suffer pain. It is always so wonderful and encouraging to me others going through similar situation as you. Have you guys ever attended the national juvenile arthritis conferences in the summer? It is an amazing place to gain wonderful friends, family, and support, and your kids get to make friendships with other kids who know exactly what they’re going through.
I was also diagnosed at age of three with JRA also. I will be 55 this year. I was blessed with twin boys, nice surprise at 7 months along. I am teacher. Just came across your channel.
I have inflammatory arthritis and have been on Methotrexate for 5 years. It gave me my life back. I hope your family has a long healthy, pain free life!
I have psoriatic arthritis & I get methotrexate injections. I was diagnosed at age 19. It's rare to become blind from psoriatic arthritis (they say 7 percent, I think) But you are so inspiring to me, your "lust for life" is so beautiful
You are incredible joy!! I have been going through some things and you are such an inspiration to my life! So proud of you! Jesus loves you and I hope you have an amazing day❤️
Funny sometimes you go on the day to day stuff and never take the time to appreciate the little things....joy your can do and never give up attitude is a true inspiration to all of us!
@@JoyRoss i completely agree...in my case ive invested a ton of time in my business while my son looks on. My son is 6 now and watching your videos really has changed my perspective on the true meaning of the persuit of happiness.
I have rheumatoid arthritis and I was diagnosed at 3 and I am 13! I’m not blind I do have to wear glasses! I feel so sorry for you! And I know what you are going through!
You guys all inspire me I never knew any of this was possible I have a guy in my high school class who is legally blind and has had 24 surgery’s it just amazes me how you guys all function in different ways instead of a service dog he has the help of amazing people in my school a school for the disabled I would really like it if you came down to our school in dix hills it’s called James e Allen jr/sr high school /middle school and tell everyone about your story it would be much appreciated my name is Emily List please Joy it would mean a lot to have everyone know never to give up on anything in my school please respond to this if u can thank you for reading this 😊😊😊😊😊😊😊😊
I was put on methotrexate and Himarra. I quit because I didnt feel good on it but it did get my vision back. I went blind for 8 months. I am actually living on faith. The doctors can really scare a person into not getting well, I felt being told I was going to go blind every month wasn't healthy to remission. I am glad I found you Joy no matter what happens I know I can still have a adventurous life. Thank you
Wow, so happy you are doing much better. And yes, no matter what happens with your eyesight, a beautiful and adventurous life is possible, I am living proof of that! Many blessings 💛
You and your family are an inspiration for anyone! I have been looking into the ketogenic diet on RUclips recently and found it helps -from kids with epilepsy, to cancer, to diabetes, to heart disease, chronic pain, dementia, heart disease, arthritis and many other conditions for many people. I was wondering if this diet might help your girls?
Hi Joy, you have beautiful daughters with plastic frame glasses. You do so well for not having any vision. It's like putting something over your eyes that no light can pass through and trying to live your life. How does your dog know how to guide you to where you want to go? You were trying to navigate Macy's and had to ask for help a few times. Do you use a cane, too or just the dog? Did you ever have sight, did you become blind when you were little?
I developed psoriatic arthritis around the age of 17. I was put on a biologic at the age of 20 after I had my daughter bcs my arthritis got so bad I couldn’t get out of bed. I was on it for abt 4 yrs until I got a lung infection from it. After that i was told i couldn’t be on biológics anymore. And now I’m freaking out bcs I didn’t know you could go blind from RA 😔
I was diagnosed at the age of 2. I missed out on the awesome medications RA sufferers have now. But It makes me so happy to know that our children have better options for treatment. My oldest is 15, my daughter 10 and our baby boy is 4 with dwarfism. I still worry all the time about them having to deal with RA. So far we haven't had any trouble. We may never have to deal with JRA. But if its in our cards I know they will be ok. 🤗 When my son was born and my daughter dx with ADD and severe anxiety my first thought was it's my fault. Has anyone else felt that way after your children being diagnosed with something? As much as doctors tell me it wasn't in the back of my mind i still have doubts.
My mom has fibromyalgia and they forced her to change her meds she now has flair ups a lot more and it makes me very angry. I hate that they do this to people
Love hearing your story! You guys are amazing! Also, this might sound weird, but does your daughter have a RUclips channel? Or have you guys thought about making videos with the 3 of you singing? I just really love music and you three have such beautiful voices that I think it would be cool to hear you guys singing. :)
I don't know the situation but go checked for Lyme not all get a red rung and many don't remember being bot. If it helps people with most cit c have leads to arthritis. Condroitin and glucosamine resmooth joint roundness. The. Inner fluids should move better. They can take may nonths or years but it works.
I had to switch medications at the beginning of my treatment for ulcerative colitis because the price had suddenly quadrupled from what it had been when I started on it. It was the only drug I had been on, up to that time, that had done anything to help with my flare ups. After that happened and we no longer could afford the medication, my doctors put me on these other ones that, not only did I have to take them much more frequently, but also had a lesser affect for my body. The first round of medications I was on were biomatched to me. The second was not. The only reason I cannot take the drugs that helps me tremendously in the past is because the drug company decided they wanted to up their profit on a drug that is so helpful to people with my condition. Over the past 2.5 years I’ve been on this new drug I don’t think I’ve noticed any progress in my remission, only sustainment. After only 2 weeks on that first drug I was already on my way into remission. I am entirely exhausted over trying to find better alternatives, and fighting with my representatives over this. Joy, you and your daughters stories are so inspiring, I’m so glad that there are other people who want to fight for this as well.
Also, because of the different medications I’ve been on to treat my UC, I cannot receive a proper diagnosis for rheumatoid arthritis. Even though I’ve struggled with arthritic symptoms for longer than I’ve UC symptoms, no doctors would believe that I had it until I was diagnosed with UC. And now I cannot even get a proper diagnosis due to the medications I am on treating the similar symptoms.
I have arthritis in my ankles knees hips fingers rists elbows and shoulders I take methotrexate anakindra and folic acid all tablets but the anakindra is a needle
Are these drugs immune suppressants? I follow someone in the UK who lost her sight from rheumatoid arthritis and she is on drugs which suppress her immune system which means that for example she would not have any resistance to this coronavirus, so she has to stay indoors and away from her husband who is still working.
Living with CRPS (Chronic Regional Pain Syndrome) since 13 years old and having type 1 diabetes for 20 years, I guess at least I'm not blind though! So every cloud has silver lining right... Yeah right!!
I wish you a miracle cure, I hope God blesses you with sight, I believe miracles exist but I don't want to give false hope, but that's the hard part of having faith, you have to believe in hope. One of the biggest struggles I have with God is not knowing why he allows people to be harmed by evil especially natural physical evil like being born with a disease that makes you blind, i really don't know why God allows this to some people.
Honest question. Are these videos considered not accessible because there are large chunks of writing that come on the screen, and no one reads them out loud?
Yes, and that is very frustrating to me. I had no idea how they would produce the entire video until it was done. If I had known they would have written text on the screen, I would have advocated for voiceover/audio description.
Joy Ross thank you for replying, Joy. I have started watching Molly Burke and you on the regular. I work in design and tech and love learning what is “passable” but absolutely not accessible. It’s a visually pleasing video and the writing is informative.... like a side note.... but kind of weird. I feel like it would be easy enough for them or you to have done a voiceover while keeping their aesthetic and mood. I’m sorry they’d do it like this.
I love your videos. When I watch you i feel an overwhelming of peace and calming!
Loving Me thank you so much for your message, that truly means a lot! I really hope that is what people sense and feel when they watch/listen to my videos. Oh yes, and I want them to experience so much Joy!! God bless and pray you're having a beautiful day!
I was gonna say the same thing!
You're so so sweet lady. I have major anxiety disorder and I love watching your videos
Ash Neel I feel the same way. She’s very positive and calming.
Wanted to hear more of the singing. One of the few times where a clip of someone singing is actually beautiful and it's quieted down so quickly
So sweet, thank you! Well, if you want to hear more of our singing, go to the playlist section at the top of my channel. Click on the playlist titled “Joy Ross singing and performing, and the Ross family videos. :-)
Omg when they were singing together 😭❤️ how lovely. I love Joy!
Joy you are an inspiration. I am an agnostic for the past 4 years due to personal reasons but my faith in the human kind is strong because when I see people like you overcoming obstacles gives me faith in the human kind. I wish I knew you personally and give you a hug. So I send you a hug from the UK
Awe, thank you for your kind words! I completely respect your beliefs, but I could not be the woman I am who is confident, strong, hopeful, full of faith, and joyful without God giving me every single ability. I don’t know where I would be without God in my life, if you could only imagine the devastation I’ve gone through, the pain, the heart ache, if I didn’t have something more powerful to lean on in my darkest moments, I don’t think I would have made it this far. I love you all so much because the love God has put within me. Suffering, persevering, and overcoming has made me fall in love with people in this world more than you can even imagine. It doesn’t matter your religion, your race, your personal choices, your disabilities, or failures, I just want to bring hope, peace, love, and joy to the hurting. I always say if God could do it for me, He can do it for anyone. Big hugs and many blessings 💛
Joy - my father has been diagnosed with brain cancer about three weeks ago.
Watching your videos has brought me a lot of peace .
Your strength and bravery inspires me and gives me confidence in the human spirit!
I don't know how she has come through this so positive and glowing..I would be completely destroyed. I'm cying watching this..she is so beautiful!!
You've been through so much despite what others may have thought you couldn't accomplish. Totally blown away by The Ross' story, and you inspire me with hope about my own illnesses. Life can be hard but it can be so beautiful too! Loved the singing btw, your kids are just as amazing as their mum.
SnazzyBoxx thank you, your message truly was so sweet! Yes, we have been through so much, but we are so much stronger because of it! God is so good and we are truly blessed in so many ways… praying God's blessings over your life as well💛💛
Joy Ross You are most welcome and glad to hear :) Indeed, God is good. Thank you so much, God Bless you and your family ❤️
I have just recently found your channel and I’ve just watched a ton of your videos. I’m so glad I came across this video about juvenile arthritis. I’m a member of Alpha Omicron Pi sorority and our philanthropy that we support is the Juvenile Arthritis Foundation. We are the only ones in the Greek community who support this cause and it has such a special place in my heart. I love to be able to put faces to the philanthropic work that we strive for all year long. You and your family are such inspirations and I’m so glad I’m in an organization that supports people like you and helps find a cure. All the best to you and your family❤️
Hi Joy! I just discovered you because you came up in my recommended videos and I'm so glad you did. I was diagnosed with juvenile rheumatoid arthritis and am lucky that it never had a big effect on my eyesight. I was diagnosed Young, at 18 months old. One of my earliest memories was my nurse Lisa at Children's Hospital of Philadelphia. There for a while we were going almost weekly for blood tests and other check-ups. I saw an opthamologist for years for frequent check-ups until my arthritis was in remission. I have watched so many videos of yours just today and I'm so inspired by you.
When y’all started singing I couldn’t help but to tear up! Such beautiful voices!!! Aw Joy!!! Look at this! Look at the awareness you’re bringing to the pharmaceutical and medical communities. There are many illness with medications that can save yet are taken out of reach because of cost or profit. This is so wonderful.
Bringing light to the darkness, and the darkness cannot stop you, because you have been there and back. And you have the world at your finger tips at this moment. All that you have done has brought you here! All your determination, all your love and devotion. I know your family and loved ones are so proud of you! Darlin you amaze and inspire me!!!
This is very inspiring I also suffer from RA I got it in many joints. I still hope one day I will have a family of my own and care of my kids as much possible. I wish health on everyone going threw illness. ❤️❤️🙏
This is the lady with the prostetic eye and she is amazing!
I’ve been watching these videos and her heart is just absolutely beautiful..... I’m subscribing. What an uplifting channel.
Scrolling down the comments and saw yours! Thank you, you’re sweet words touched my heart. :-)
Joy I love how beautiful you are inside and out and your so strong. Bless you and your family and wish you all the best
Hello joy I really loved your video of your story uveitis. Joy you give me peace and hope.
Life is full of the most challenging things. Your such a great person, lots of people cannot look past the fact that they’re life is so different for them.
Inspirational Mother and a human. Hats off to you, your husband. I hope there is thing called miracle.
I appreciate that, thank you,
What a sweet lady...
I know how you feel joy . I have rheumatoid arthritis ( juvenile ) ! I was told 2 years ago I couldn't walk again due too losing nerves in my legs! Keep your head high and your daughter too! You have a lot of support not just from me but all your fans ! I always love watching your videos where you tell these amazing stories and you and your daughters are troopers ❤️ , I love you guys
Just started watching your videos, and i love them. Beautiful inside and out.
You are such an amazing inspiration. No doubt you are a blessing to your family and all that watch your videos. 🙂
I love your videos you are all a beautiful and inspirational family 💖💖💖💖
My oldest sister was diagnosed with RA a few years ago. My mom’s twin sister suffers from RA too. I know the effects of this disease. I admire and I’m so compassionate to people suffering from this incredibly painful disease. Stay strong ❤️💪
Your such a beautiful soul and human being Joy! 💜😋 May you have many blessings throughout your lives!!!
You are a very beautiful person. I love your story. Watched a lot of your videos & you have such a strong, loving and caring spirit. You are an amazing mother!!!
I have arthritis(had since childhood),vision issues, neuropathy,vit d deficiency & other health issues(some that have no diagnosis ),life has gotten hard lately. At times I've felt like it's over and hopeless. However,The Ross story IS giving me hope. I know your name & Jesus knows your name he's using your story ,your families story to spread hope. Thanks for being a willing vessel.I will keep your family in my prayers. Please pray for me also. Thanks God bless!
Thank you for sharing your story, it sounds like you all have gone through so much!
Joy. I could watch you all day.
I love this so much joy I love your story and it's so inspirational for so many people out in the world i know for sure!💙💚
I have been learning so much through your videos!
It has been 8 years with RA for me. I love biologics!
I watch your videos as a mom of a 5 year old boy chronic bilateral uveitis and juvenile arthritis ( oligoarticular) . He has arthritis in his cervical spine, jaw, knees, elbow (complete immobility in the left) and his ankle. He takes methotrexate and Humira injections weekly as well as steroid eye drops daily. It’s an amazing thing to watch you succeed in everything knowing my little guy can too. Thank you! ❤️
Your videos are so calming and they really lower my anxiety! 💕💕💕
Tuesday Nights that is so wonderful to hear, thank you.
I have just recently watched 2 of your videos and I am amazed of how strong you have been to overcome such tragedy in your life. But you give hope to many of those that go through loses in their lives and give them positive mindsets that they could get past anything. I am now subscribed and I’m really looking forward to watching many more of your videos. Always remain positive and stay completely strong.
Clarissa Palacios thank you so much, so happy you found me and have subscribed. Yes, The great challenges I have faced and continue to face give me a beautiful perspective and what matters most in life. If I had allowed the darkest storms in my life to destroy me, look at all the incredible blessings I would be missing out on! Sharing my life so openly with the world, using my challenges to inspire others to move past their’s, keeps inspire me each and every day. I wouldn’t change my life for anything, my blindness, my challenges, have given me my purpose in life. God bless, look forward to hearing from you again 😊
I have juvenile arthritis too they are very pre cautious now a days with getting your eyes checked
furyfox13 no actually if the arthritis is in only one or two joints you have a much higher chance of getting it in the eyes. I have it in all my joints so my eyes are fine
I have jia
Omg same I have SJIA and i get my eyes checked every month
@@mdsupreme1776
I am sorry to upset you but in Systemic Juvenile Rheumatoid Arthritis everything is effected. My eyes and all my joints are effected.
My daughter was diagnosed at age 8 with rheumatoid arthritis and ulcerative colitis. It has been a battle. To see the pain is awful. She is 13 now. She has been on Remicade infusions every 6 wks the highest dose and a methotrexate injection weekly. Her eyes are checked every 6 months by a specialist. Your story is an inspiration. I hope your beautiful family continues to reach out and spread awareness. Thank you ❤
Oh wow, it is definitely not easy seeing your children suffer pain. It is always so wonderful and encouraging to me others going through similar situation as you. Have you guys ever attended the national juvenile arthritis conferences in the summer? It is an amazing place to gain wonderful friends, family, and support, and your kids get to make friendships with other kids who know exactly what they’re going through.
Joy Ross No we haven't had the opportunity but I've heard wonderful things about them.
You seem like such a sweet person god bless you and your family
I love your videos. You're amazing.
I was also diagnosed at age of three with JRA also. I will be 55 this year. I was blessed with twin boys, nice surprise at 7 months along. I am teacher. Just came across your channel.
I just started watching you a week ago. You are a amazing woman and have beautiful girls as you are also very beautiful.
Love you, joy. My heart goes out to you.
I have inflammatory arthritis and have been on Methotrexate for 5 years. It gave me my life back. I hope your family has a long healthy, pain free life!
I have psoriatic arthritis & I get methotrexate injections. I was diagnosed at age 19. It's rare to become blind from psoriatic arthritis (they say 7 percent, I think) But you are so inspiring to me, your "lust for life" is so beautiful
Oh and I also have lupus
I love your channel! So inspiring!
God bless you and your family and you inspire me so much💕 love you joy ❤️
Hi 👋 Joy, just wanted you to know that I am a new subscriber and I love your channel. Thank you for sharing your world with us.
I have just got diagnosed with juvenile arthritis but they haven't found any bad things in my eyes yet. Fingers Crossed.
You are incredible joy!! I have been going through some things and you are such an inspiration to my life! So proud of you! Jesus loves you and I hope you have an amazing day❤️
Funny sometimes you go on the day to day stuff and never take the time to appreciate the little things....joy your can do and never give up attitude is a true inspiration to all of us!
Thank you so much, and I have to remind myself every day about the things I am grateful for. It’s all about having the right perspective, right? 💛
@@JoyRoss i completely agree...in my case ive invested a ton of time in my business while my son looks on. My son is 6 now and watching your videos really has changed my perspective on the true meaning of the persuit of happiness.
You are a very great woman ! :)
God bless you always!!!!
L Slikk thank you so much :-)
I have rheumatoid arthritis and I was diagnosed at 3 and I am 13! I’m not blind I do have to wear glasses! I feel so sorry for you! And I know what you are going through!
You guys all inspire me I never knew any of this was possible I have a guy in my high school class who is legally blind and has had 24 surgery’s it just amazes me how you guys all function in different ways instead of a service dog he has the help of amazing people in my school a school for the disabled I would really like it if you came down to our school in dix hills it’s called James e Allen jr/sr high school /middle school and tell everyone about your story it would be much appreciated my name is Emily List please Joy it would mean a lot to have everyone know never to give up on anything in my school please respond to this if u can thank you for reading this 😊😊😊😊😊😊😊😊
Your story is inspiring, Joy. You’ve gained a new subscriber. Gob bless you and your family.
I was put on methotrexate and Himarra. I quit because I didnt feel good on it but it did get my vision back. I went blind for 8 months. I am actually living on faith. The doctors can really scare a person into not getting well, I felt being told I was going to go blind every month wasn't healthy to remission. I am glad I found you Joy no matter what happens I know I can still have a adventurous life. Thank you
Wow, so happy you are doing much better. And yes, no matter what happens with your eyesight, a beautiful and adventurous life is possible, I am living proof of that! Many blessings 💛
Joy Ross thank you!!! You definitely are an inspirational living proof. You and your family are in my thoughts and heart.
You give me hope thank you
You and your family are an inspiration for anyone!
I have been looking into the ketogenic diet on RUclips recently and found it helps -from kids with epilepsy, to cancer, to diabetes, to heart disease, chronic pain, dementia, heart disease, arthritis and many other conditions for many people. I was wondering if this diet might help your girls?
hqlion thank you so much! And I'm not too familiar with this diet.
Hi Joy, you have beautiful daughters with plastic frame glasses. You do so well for not having any vision. It's like putting something over your eyes that no light can pass through and trying to live your life. How does your dog know how to guide you to where you want to go? You were trying to navigate Macy's and had to ask for help a few times. Do you use a cane, too or just the dog? Did you ever have sight, did you become blind when you were little?
There so beautiful 😍❤️
I developed psoriatic arthritis around the age of 17. I was put on a biologic at the age of 20 after I had my daughter bcs my arthritis got so bad I couldn’t get out of bed. I was on it for abt 4 yrs until I got a lung infection from it. After that i was told i couldn’t be on biológics anymore. And now I’m freaking out bcs I didn’t know you could go blind from RA 😔
Beautiful video. Thanks of sharing. God bless.
I love this 💕
I was diagnosed at the age of 2. I missed out on the awesome medications RA sufferers have now. But It makes me so happy to know that our children have better options for treatment. My oldest is 15, my daughter 10 and our baby boy is 4 with dwarfism. I still worry all the time about them having to deal with RA. So far we haven't had any trouble. We may never have to deal with JRA. But if its in our cards I know they will be ok. 🤗 When my son was born and my daughter dx with ADD and severe anxiety my first thought was it's my fault. Has anyone else felt that way after your children being diagnosed with something? As much as doctors tell me it wasn't in the back of my mind i still have doubts.
My mom has fibromyalgia and they forced her to change her meds she now has flair ups a lot more and it makes me very angry. I hate that they do this to people
Love hearing your story! You guys are amazing! Also, this might sound weird, but does your daughter have a RUclips channel? Or have you guys thought about making videos with the 3 of you singing? I just really love music and you three have such beautiful voices that I think it would be cool to hear you guys singing. :)
you are so amazing.
I had Rheumatoid Arthritis and after going on the Keto Diet it has all gone... within months... all my heath issues have disappeared.
Methotrexate hurts so much I'm sorry she has to go through that at a young age
You are truly AMAZiNG!
ilovea4eva thank you, hope you're having a blessed day :-)
This still is so inspiring to me I have jia
Priceless
My biologics have been great!
Joy, what medications do you find help you or have helped your arthritis? I have systemic lupus and am having a hard time.
So touching and you are such a strong woman full if life it's always inspirational watching you. God bless you all always!!!!
I can relate to everything but I’m not blind
I don't know the situation but go checked for Lyme not all get a red rung and many don't remember being bot. If it helps people with most cit c have leads to arthritis. Condroitin and glucosamine resmooth joint roundness. The. Inner fluids should move better. They can take may nonths or years but it works.
I had to switch medications at the beginning of my treatment for ulcerative colitis because the price had suddenly quadrupled from what it had been when I started on it. It was the only drug I had been on, up to that time, that had done anything to help with my flare ups. After that happened and we no longer could afford the medication, my doctors put me on these other ones that, not only did I have to take them much more frequently, but also had a lesser affect for my body. The first round of medications I was on were biomatched to me. The second was not. The only reason I cannot take the drugs that helps me tremendously in the past is because the drug company decided they wanted to up their profit on a drug that is so helpful to people with my condition. Over the past 2.5 years I’ve been on this new drug I don’t think I’ve noticed any progress in my remission, only sustainment. After only 2 weeks on that first drug I was already on my way into remission. I am entirely exhausted over trying to find better alternatives, and fighting with my representatives over this. Joy, you and your daughters stories are so inspiring, I’m so glad that there are other people who want to fight for this as well.
Also, because of the different medications I’ve been on to treat my UC, I cannot receive a proper diagnosis for rheumatoid arthritis. Even though I’ve struggled with arthritic symptoms for longer than I’ve UC symptoms, no doctors would believe that I had it until I was diagnosed with UC. And now I cannot even get a proper diagnosis due to the medications I am on treating the similar symptoms.
Shellbe Wood i know the pain man
may God bless you all
I have arthritis in my ankles knees hips fingers rists elbows and shoulders I take methotrexate anakindra and folic acid all tablets but the anakindra is a needle
Can you discuss side effects of biologics?
did you try any holistic approaches first?
Inspiration ♥️
Are these drugs immune suppressants? I follow someone in the UK who lost her sight from rheumatoid arthritis and she is on drugs which suppress her immune system which means that for example she would not have any resistance to this coronavirus, so she has to stay indoors and away from her husband who is still working.
love you mom
God bless you
So cool.man
i am a kid living with rheumatoid arthritis
Living with CRPS (Chronic Regional Pain Syndrome) since 13 years old and having type 1 diabetes for 20 years, I guess at least I'm not blind though!
So every cloud has silver lining right... Yeah right!!
How do i do my makeup if i'm blind?
I'm crying 😮
Juvenile Arthritis as in joint pains?
I wish you a miracle cure, I hope God blesses you with sight, I believe miracles exist but I don't want to give false hope, but that's the hard part of having faith, you have to believe in hope.
One of the biggest struggles I have with God is not knowing why he allows people to be harmed by evil especially natural physical evil like being born with a disease that makes you blind, i really don't know why God allows this to some people.
Honest question. Are these videos considered not accessible because there are large chunks of writing that come on the screen, and no one reads them out loud?
Yes, and that is very frustrating to me. I had no idea how they would produce the entire video until it was done. If I had known they would have written text on the screen, I would have advocated for voiceover/audio description.
Joy Ross thank you for replying, Joy. I have started watching Molly Burke and you on the regular. I work in design and tech and love learning what is “passable” but absolutely not accessible. It’s a visually pleasing video and the writing is informative.... like a side note.... but kind of weird. I feel like it would be easy enough for them or you to have done a voiceover while keeping their aesthetic and mood. I’m sorry they’d do it like this.
❤❤❤❤