MY 6 YEAR MONO JOURNEY! Tips and Tricks on dealing with chronic fatigue
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- Опубликовано: 29 сен 2024
- I hope this video gave you a glimpse into my current life dealing with Chronic Epstein-Barr Virus. Dealing with chronic fatigue, and the other symptoms associated with mono is never easy but I hope these tips and tricks help to ease your symptoms as much as possible! Know that you are not alone in your struggles and I am always here to talk and answer questions in the comments or over on my instagram @betsygideon10
My current diet cuts out the following foods: gluten, dairy, soy, corn, beans and legumes, sugar, and broccoli!
As always thank you so much for watching and make sure to hit that subscribe button to stick around for more videos :)
I had chronic mono and was one of the first patients diagnosed 1990. I had it bad and couldn’t get out of bed.
I am a molecular biologist and got it during college too.
A Georgetown famous virologists wrote a paper on my case. He gave me IgA injections and it immediately cured me on the first shot. It was considered a chemotherapy treatment and is hard on kidneys. I also drank green juice and forced myself to walk to get my limp ha moving. I was the worst experience of my life. I used a Nordic track at home. I just saw info that COVID and mono are a deadly combo so take care. Even the vaccine can hurt patients. Prayers
I remember it was human interferon treatment. It worked so fast. Prayers.
Thank you for sharing your story and very good advice. How are you doing now?
It has been a while but it was Interferon injections. I gave up sugar and bread and anything with yeast. I drank green juice everyday and forced myself to walk on a Nordic Track to get my lymph’s moving. I could only do a minute at first but I got stronger. Good luck and 🙏🏻 prayers.
@@geminiflower I never had mono again. I avoid anything with sugar and avoid stress. If I feel sick I drink fresh squeezed juice and green juice. Viruses tend to comeback when the immune system id down. I had a lot of support from other sufferers at the time. It is a difficult illness especially when you are young and need to get so much done.
Hi Alice, Thank you for sharing your story! IgA injection is considered a Human Interferon Treatment? I know the question is silly, but I am trying to really understand how you were healed. Moreover, the IgA injection you took in the early 90's was an unconventional treatment for that day and probably still difficult to access today for EBV sufferers? Basically, the IgA injection suppressed the virus, which was crucial for your healing and aside from some minor life style changes you have been EBV free 30+ years due majorly to the injection? I have had EBV for the past 7 month and it has recked my life so far lol. It has hijacked my DNA and begun the aging process. Its a pretty devilish virus. Therefore, I try to dive deep into interesting unconventional solutions for EBV just like yours. Thank you so much! Michael Biela.
MONOLAURIN destroys EBV. The one I take is from LAURICIDIN.
Chronic Epstein barr vs chronic fatigue syndrom (ME/CFS)
What you list having cut out of your diet doesn’t include eggs - I was of the understanding that eggs feed ENV
Any EBV updates?
Are there any supplements you recommend for ebv?
I’ve heard monolauren and L-lysine are helpful.
I saw a video on RUclips. Take unfiltered 1-2 tablespoons of coconut oil 2 times a day. I spread it on toast or mix it in red potatoes. Some folks just swallow it. I also take vitamin C, zinc, d3 and acidophilus. I was in the hospital almost three weeks. I had a dangerously high blood pressure and heart rate. It did that too me in 2012 as well when I was diagnosed. It’s a horrible disease. Only God has brought me through it. They really did nothing for the EBV when I was in the hospital. I had to tell them to check my level. The ID doc only told me there was no cure. No suggestions how to do anything. You must research on your own. I’m still weak but I can walk short distances without my heart rate climbing. Right now I can’t even go to a follow up visit. My son and husband carried up the stairs.
I’ve had chronic fatigue for twelve years now. It’s really hard to not get down on yourself.
So you’ve had ebv for 12 years??
Or mould. A mould infestation (or mold if you're American), can also cause fatigue and pain. EBV is as the above mentioned the primary cause.
Medical Medium books helped me a lot with chronic fatigue syndrome.
I've had EBV for about 15 years now, I always thought I'm just crappy weak but only now got diagnosed..
@@lili_91what are thé symptômes
I’d love to hear how you’re doing now! Just diagnosed with reactived ebv and really relate to a lot of what you’re saying!
Same... I feel like I can't shake these reactivations...
Same. Done lots of treatments. Been on antivirals for a month and jut got a test back that it still hasn’t gone back into remission. So dang frustrating.
Hi. What I have discovered is EBV is still "active" infection even now, so it's been 3 yrs straight. Honestly, it has interrupted my life so badly that I can't work anymore. The fatigue, Dizziness, muscle weakness, and brain fog keep me limited in any physical capacity. Plus, I run low grade fever every afternoon (100°). I work from home now, but still cannot do full-time. My immune system is weak, so I get infection easily. Do you guys get headaches? It has also really messed up my gastro system! I do walk twice a day, even if just 15 min each time.
Two things that I found out from Doctor Berg: EBV blocks zinc and vitamin D. I find sunshine far superior to vitamin D supplements. Now for my story - I hope it helps you! I first got EBV in college at age 19. I was so sick that I was hallucinating despite never having taken drugs or being on any medication. I told my roommate that I would die if I did not get on a plane and go home. When I got off the plane, my own parents did not recognize me. It took 18 months or so to get "normal" strength back, but I have struggled with tiredness for many years. Despite that, I coached baseball for around 20 years, taught HS and Collège for over 30 years. I have written 8 books. I am still teaching in my 70s. I just had a really bad outbreak of EBV. Everything in your presentation is right on target. Maybe someday God will heal us, but until then, we have to do the things you said and know it will all work out. I have come to realize that although this is difficult, many people have it much worse than we do. This is our life and we can make the best of it. ALL things work together for our good. I made it and you will to. Keep smiling your beautiful smile!
I'm 42 and this is whooping me right now but even with a previous positive test my doctor won't diagnose it. Pressure headache for 2 months, joint and muscle pain, numb legs sometimes, extreme fatigue, pain/fullness in spleen area of abdomen, memory issues, chest pains, mild sore throat, mild fever comes and goes, and anxiety due to no concrete diagnosis. This has been going off and on for 2 years now its agony, I'm usually unstoppable and rarely sick and now I'm useless.
Dr. Berg recommended supporting your immune system with high douses of vitamin D and lots of vegetables. Keep up on everything you can to improve immune health. Lots of sleep, exercise, healthy Lowe carb vitamin/fiber heavy diet… and gradually increasing physical exertion as an athlete would if you have chronic fatigue.
Ah please don't put yourself done. I am in my 9th year of having had. Research lots of fresh fruits and vegetables. Plenty of water, sleep. Also ginger garlic turmeric can really help with viral infection and turmeric and ginger can help wifh pains. You are still you just a different version. God bless. I feel your frustration. 🙂
Hope your feeling better man, I'm also 42 and have been seeing with this off and on almost every year. Oddly enough I'd recommend more beef in your diet, it seems to help me not have it stuck around for a long time.
Me, too Honey, god bless you and heal your body.
To Brasshound. I know how you feel I’m always testing positive for high. Inflammation and testing high positive for Epstein Barr. I have to work constantly to survive. Always take 5 hour energy. Always running late. Feel like I’ve been run over by a bulldozer. I feel people think I’m just lazy. I also have Add. I wonder if there is a correlation. I always get sick quick and have bad digestive problems. Around people who are perky early birds and I feel like an 90 year old woman. It’s so frustrating depressing and debilitating
Thank you for your vid. I have EBV for 25 years and everything you said is very recognisable. Any info about genetic heredity because its hard to find. Wish you the best.
So pleased you mentioned God! Honestly there's no way I would have got through this without God. It's made me so dependent on Him. I've had chronic mono for 10 months. I've been in bed the whole time. I also have chronic pharyngitis. I need to sleep a lot and can only do a small amount of things each day (and i love to do loads of things). What makes me feel better is 1) giving myself grace and not getting frustrated with myself 2) believing the Lord will heal me 3) declaring scripture over my life 4) not caring what people think (cause it can look like laziness. haha but it isn't 5) letting go of control and letting God take control 6) having really good close friends who will talk with you through the process step by step and be really good listeners 7) plan ahead 8) put on worship music or make music to the Lord 9) continue believing that nothing is impossible with God for those who believe.
Thank you for your video.
Almost teared up listening to this…especially the part about being perceived as lazy…thanks for speaking my language ❤
Yes.
We are NOT lazy! It's an invisible illness and doesn't have a name people can understand. If we told people It's cancer, opinions would be much more kind, even compassionate. People tend to belittle things they don't understand. We have to let go of needing validation for how our body feels. At least I did. I listen to my body much better now...since I stopped caring what others think. Just yesterday, I napped all afternoon (4 hrs). No guilt or shame. It's freeing.
Valtrex has been really helpful for me. EBV is in the herpes family and Valtrex inhibits part of its reproduction. It’s so weird to me it’s considered off label use or somehow a controversial diagnosis. My ID doctor diagnosed me in my first vist. When I have a flare I go back on it and tapper it off when my symptoms go away. Feverish, fatigue, sore throat and red tonsils as well as the post nasal drip are my biggest symptoms. I’m just recovering from a flare triggered by stress and grief. I noticed this time as well that I had more pimples beforehand and my digestion was off so hopefully next time I’ll start the Valtrex before I’m in a full flare. Thank you for sharing your experience!
I just started this. Been a month. I hope it helps.
This video is everything I was looking for! I also have mononucleosis since September and it's been the toughest period of my life. I can totally understand your story. My tiredness seems not to improve and I've seen a lot of specialists which have told me that I am fine and it's frustrating. I recently started my PhD in environmental engineering and it's so difficult to make even small progress. I would like to ask you more questions if that were possible.
Hi Betsy,
Have you tried to use Lugols Iodine?
I started it 8 weeks ago and my lymph nodes have gone down, I am feeling better.
I started with... 15%
Monday 1 drop
Tuesday 2 drops
Wed 3 drops
Thurs 4 drops
Friday 5 drops
Along with Selenium
Boron powder
N acetyl cysteine 3 times a day
Magnesium
Vitamin D3 and K2 m7
It's been amazing
Hey , I just got 15% lugols iodine.I’m a little sceptical on trying it out. How long do I take it for and who told you about it?
@@STIRFRY89
Good morning to you.
My grandfather and grandmother used it every day. She was a homeopathic doctor and he was an engineer, electronics, and all that good stuff.
They would always say, "when you feel sick, take iodine."
This is echoed through out medical history, as iodine is what the body needs.
If you start with a patch test.
Just put two drops on your forearm, and rub it into a small square. If it is still there in 24 hours then you have no deficiency, if it's not then that's your body deficient.
There are so many great articles on it, books, and even free pdf's on the web.
I take 5 drops a day.
I would suggest the following to start with.
Month 1.
1 drop a day monday to friday.
Have two days off.
If you get a rash, that is your body secreting toxins, as fluoride, choline, and bromide that they poison our food and water with bind to the same cellular function as iodine. They know this as iodine is required by the body and they poison the body.
After you have drank the 1 drop a day, take selenium supplements 200mg as this is a cofactor to lugols iodine. Also increase you salt intake. Hi quality salt such as Sea Salt as the salt bind to the toxins that your body is rejecting.
Month 2.
Monday to Wednesday 1 drop
Thursday to Sunday 2 drops
Remember selenium and salt.
Month 3
If by month three you have had no rash or detox then:
Monday 1 drop
Tuesday 2 drops
Wednesday 3 drops
Thursday 4 drops
Friday 5 drops
Saturday and sunday 0
If you have any massage oil mix a 25% iodine to the oil.
If you're male rub the mixed iodine to oil on your testicles and perineum. This will convert the iodine into free and available testosterone and increase the size of your testicles.
If you're a female then rub the mixed oil over your breasts and ovaries to clear any cysts.
At month 6 I started to take 5 drops a day. My patch test still shows I am deficient in it. Yet, my dry skin has gone, my chest, lymphatic system, and body is recovering from the mould toxicity.
My lumps on my testicles (cysts) have gone along with the ones on my prostate. For me, I am sticking with it for the rest of my life.
The old ways appear to work.
The only side effects are the body dumps out all the poisons and crap we have absorbed and if that's what I had to go through then I shall enter that space with trust and joy as i feel.so much better.
Please, keep me posted and ask anything you like. I will speak openly and speak of what I experienced.
Wow, thank you very much 🙏
I’ve had it reactivated for a year and a half now. I’m 68 and last time I first got it I was 13 and it was a couple months of recovering. Never thought I’d get it again. Stress has definitely caused mine to reactivate. Our last few years have taken a toll on many. All your symptoms are right on and how you explain what we should do is truth. Blessings.
I had mono at 18. I was working as a nurse's aid at the time. I was so sick. It re-activated in 2000 after tremendous stressors in my life. I still have it. Plus fibro. pain. I can relate to this young lady. May God bless each and everyone suffering with this.
I’m curious if you had similar symptoms to your initial mono infection? I had mono pretty bad at 15, in 1974. Took me a year to finally get to “normal” but still had frequent other infections for a few years.. I am currently, age 65, feeling symptoms which I realized are just like when I had mono. Got checked for strep, it was negative. But sleeping a lot, sore throat and swollen glands. I am hoping it isn’t mono, but a bit suspicious.
Hi Betsy, Just ran across your video. I am in early 60s and was diagnosed at 40. I have had mono off and on and I can seriously relate to everything you've said. Especially about the mind games it plays with me. It can get me down. I think I've had mono for much longer than so or so years. I have taken L-Lysine and it seems to help. I REALLY hope that you & everyone who is suffering w mono is given a measure of relief and that God gives us a cure! Looking forward to your videos about Functional Med.
Take care & thank you!
Thank you so much for the kind words and encouragement Beverly! Yes I’m hoping to post an updated video on how I’m doing soon!
I advise everyone with chronic health issues to check Medical Medium Anthony Williams tips for better health.
Hi there. I was diagnosed at 42, I am now 59. It is so debilitating 😪
Thank you so much for sharing your experience and tips. I can relate to so much of what you said in this video. It helps to hear what others are experiencing with EBV.
Hi, how are you doing now? I was diagnosed with reactivated EBV/Chronic mono in 2019 after being sick for about 6 months. Felt better for about a year or so and now I've been feeling weak and sick again, so trying to gain as much info and insight as possible.
Hi Shawna sorry it took me a while to get back to you! I was feeling great for the last 4-5 months or so and am now going through another flare in my symptoms so I would say it comes and goes for me! Hope you feel better quick!
Medical Medium Anthony Williams tips for EBV
@@ThiagoDVaz Have you tried his plan?
Wondering how she is doing now. Kasia Kines is a great resource for this and has dedicated her career on helping people recover from chronic EBV. She has a book, website, RUclips videos, and an online EBV recovery program. She believes we can be cured. I bought the online program and I am starting it soon. My prayers go out to all who are suffering with this.
Let us know how that goes!
Did it help?
Thank you for sharing this, it’s hard finding those who can share their journey with EBV.
I started testing active in 2019, my blood work has shown that it has been active for over 2 years, I will find out soon if I am going on my 3rd year of testing positive, hoping it’s gone dormant. It has caused me to test positive for ANA/Systemic Lupus- from my research CAEBV often triggers Autoimmune issues so I believe it’s caused the Lupus.
I also struggle with similar things- fatigue, weakness, brain fog, body aches. I’ll have flair ups. I hope you get relief soon!
Hey! Funny enough my story with EBV and lupus sounds very similar to yours. If you would like to share, how did doctors help you treat your symptoms? I feel like my doctors have me on so many medications and I’m curious if they really are helping or not because I don’t feel as if I’m getting better
How have you been since??
20 years of it and nobody gives a shi$
Hello, how do you know it's chronic or just recurring? I've been IgG VCA positive and IgM VCA negative back in 2016, i had to test it because of chronically enlarged lymph nodes. Which indicated past Mono/EBV infection, i redid the test month later and was positive once again.
However now 6 years later, lymph nodes are still here, so i redid the EBV test and i have >750U/ml IgG, which is crazy high, and IgM is positive too which indicates active EBV infection. I'm really confused because i've read that chronic ebv is really rare, and dangerous, but i feel fine for the most part. Lightly increased body temperature (37.2-37.3), always cold too, and neck lymph nodes. And yeah my sleep schedule is horrific, i often get less than 5 hours.
Great question, i also would like to lnow that since i’m on the same boat . Been dealing with this since 2016. It’s ruined my life almost completly.
My lymph nodes have been swollen since I had mono three years ago. I've been diagnosed with Chronic Epstein Barr and that is not ok with me. I am on a mission to get over this hurdle.
So did y’all start with a random swollen lymph node on your neck along with bad fever and sore throat??
Thank you for this post. I don’t feel alone anymore. I’ve bend struggling with tender lymph nodes in the neck for several months. Some days feel ok then I slide backwards with extreme fatigue and lymph nodes again. It’s emotionally draining. I have 2 kids who need me but I can’t get out of bed after work. I’ve been in lauracidin from coconut oil, various immune boosting supplements, bovine spleen supplements, taking in more probiotics from kefir and sauerkraut, etc, but still dealing with the pain.
98 percent of the world had EBV.
Great video! Thank you so much. Videos like this go far in the area of support.
I don’t know any of y’all but it would make me feel better if I was able to talk to some of you guys that have this as well. It’s scary being told u have something chronic or a virus that’ll never leave your body.
Hey how are u I’m here to talk
I have a question I need help I have mono for 3 months does anyone have experience blurry vision and eye infection or problems please I need help cause I never had blurry vision and I want to to know more about this part 😢
I can talk for my experience: I am healing very slowly from mono (currently it has been 4-5 months) but in the first month i got bad conjunctivitis several times. My eye doctor explained to me that since my immune system was completely destroyed because of the mono i was more vulnerable to get also eye infections or cold sores. Moreover i experience often dry eyes in the mornings. I think it takes a lot of time to heal completely and in the meantime i think your weakest "parts" are more vulnerable. How do you feel now?
Hi Betsy, quick suggestion: using a humidifier might help. Plug it in/turn it on before going to bed it will stay on while you are sleeping. When you wake up turn it off. The steam from the humidifier can make you very relaxed/tired feeling it might help.
Thank you for mentioning the temperature issues because I'm the same exact way. I feel like I have a fever of 101, take my temperature, and it's barely raised at all. That's never mentioned or taken seriously.
I get occasional fevers when I overdo it… my band played outside in 90 degree weather (oof) and the next few days I had a low grade fever. It’s like the immune system is responding to the flare up of EBV due to stressors. Like, oh there’s an infection! Let’s kill it with heat. But then the EBV hides again? That’s my best guess.
I have had EBV for 5 months and it is frustrating that dr's say it should be only there for a month and then they are surprised that I am still sick after 5 month and i have also had strep 3 times and found out i am allergic to alot of foods ( corn, soy, milk, pork) that are also causing my problems. I have felt really alone and depressed in this struggle that I have had. I found your video and it makes me feel better that I am not alone. thank you.
Has anyone tried Supportive Oligonucleotide Treatment for long term Reactivated EBV?
Thanks for sharing! I initially had it over a decade ago. No issues since until 2020. Basically, there is no break since then, and it's mid-2023. I am also strict on sleep...at least 9 hrs. Dealing with addt'l health issues that impact fatigue (hemolytic anemia + immunoglobin deficiency - both just happen in recent years).
Thanks for the encouragement girl! I've had it for 6 months now and wondering when the fight will be over. The Lord is in control.
So sorry to hear that! It is definitely not easy but we are in this together. And yes never forget that God has a plan❤️
Amen sisters
@@betsygideon2422 Have you found effective ways of getting the epstein barr back into dormancy?
How are you feeling right now?
Honestly it’s been up and down. But something that has helped me get out of bed and completely healed my friend was going to see a homeopathic doctor.
@betsy I really appreciate the scripture. Can I please ask you how you are doing? It’s so hard bc I ask God why are these things happening you know? Why does He allow us to suffer?
Does epstein make your feet so painful when walking and after walking. I feel like after walking a kilometer I pay days after. It's been 3 years for me living with mono. What type vitamins are you using. Did you see a functional doctor yet and is it helping
Use coconut oil dear.
That's actually my problems now. Painful feet and hands. I just go diagnosed with EBV today.
@@osawaruenorense1596 same!!! My feet hurt Soo bad and my hands. I also have swollen lymph nodes. Been in the hospital bc of the pain and inflammation in my lymph nodes.
I was diagnosed with Epstein Barr in December. I was able to get it under control, but since I t’s linked to stress, that’s difficult. I’m a teacher so after every quarter when I get the opportunity to rest, I get a flare up which just takes me out. Swelling lymph nodes, lethargy, and. A mess of other symptoms from either the virus or just stress of having to deal with it.
I feel somewhat hopeless and fearful if I’m being honest. I don’t know what to do or keep doing… I think leaving my job for something less stressful would help but I tend to be a stressed person regardless.
Thanks for talking about this. I just needed to know I’m not alone.
Thank you so much for sharing this. May god bless you and all who are struggling with health issues.❤🙏🏻
After 6 years it’s no longer considered mono. Mono is only 1 way EBV manifests. So what you have is more chronic EBV which sounds crazy but it is different. I have something called chronic active EBV. This is why a mono spot will be negative but your active antibody will be positive. People with this need their PCR/DNA done to check their viral load. High viral load can completely ruin your body and kill you.
I never had mono. I had my Epstein Barr "attack" in September 2004. Verrrry debilitating. Many unneeded tests followed before my Dr. casually asked if he had tested for EBV. Ummm, no. So he did. Office called, told my husband the positive results, and that there was nothing they could do. But, fortunately, his wife, a PA, did care and due to pain she prescribed me the brand new drug Cymbalta because it has a med for pain. It worked!!! It addresses most of the symptoms. They have no idea why and I can't quit taking it. Symptoms come right back.
I have always worked FT.
20 years later, the top 3 symptoms that just won't quit are: #1 Crappy quality of sleep. #2 No matter how much I sleep I am always tired. #3 Dizziness
I just take a licking and keep on ticking.
~Lisa 55y
Please, if you’ve ever seen a comment before, read this one. Take monolaurin as a supplement if you haven’t tried it. It will cure it. Coconut oil has lauric acid in it but it’s low dose. It will still help if you don’t have access to monolaurin. I recommend the supplement “lauricidin”.
@@a.Janine.pretty i’m telling you it works wonders, let me know how many days it takes to work for you
What dosage worked for you? Did you start low and build up??🙏🏻 I have some … just not sure how much to take. Thank you!❤
@@dancingonhands did it work?
Thank you🙏
I take it also, it helps
Today I have chills, my ears and throat hurt. My neck and shoulders hurt so bad i cannot even rub them. I woke up today feverish and feeling so sick. I have CFS.
For sleep take magnesium citrate and in 2 minutes you are off to Mars.
Thank U! For putting this out there! And best wishes & prayers to U as we all need encouragement on this & your getting through college. 🕯️🤍🐦✨
My Epstein Barr started 21 years ago when I was 17 years old. I was one of the “lucky” cases that had the enlarged spleen and then it all escalated into Jaundice & liver failure. I needed a transfusion, and almost died. Then just 3 years later I caught Lyme disease, and was treated late. These things compound each other. Before the Lyme I would only see EBV reactivation with extreme stress or illness. Since I have added COVID delta to my resume, and have ongoing symptoms specific to that, and then other weirdness probably associated with all three diseases.
So interesting. Sorry I have mono:(
Do we get the chance to fall in love and marry?
Yes with help of coconut oil.
@@edimoelvis9904 Always?
@@edimoelvis9904How Do you take it
Bless you. Was so happy to get to the end, and you spoke of God. Brought tears to my eyes
So you can live a long normal life with ebv/mono?
I love your video! I have had this since 2000. It is a struggle. I love your attitude
so my ebv Igm is equivocal, VCA Igg is positive, NA IGG is positive . My functional doctor said I'm battling mono still. I feel weak and inflamed all over, also for the past year when I look at myself I can just see my muscle and fat tissue just deplete and I kind of look like I'm wasting but I'm still eating pretty good. Is this from EBV?
I too have issues with chronic EBV, chronic fatigue, and high CMV and high IGG after getting covid last year in March. 16 months . I see the Lord is using it for his glory. Thank you sister for sharing your story.I will keep you and all who see this in my prayers, I too am to the point I want to do functional medicine. I need that funding though. Please keep me in your prayers for that.May the Lord bless you and all who see this. God is good. John 3:16 1 Corinthians 15:3-4.
Me too. Sounds like someone on this thread should start a support group. I'm not computer savvy enough to do it. I've been on a couple but one has fizzled out.
I've had it for 5 months now and I hate that I feel better but then sometimes it flares up and I'm so tired and feel weak again 😔🤒
So glad I found you and blessings to you!! I hope and pray you are doing sooo much better!! Why no broccoli? I knew the rest- but not that one TFS!!
I just figured out I have chronic (active or reactivated) Epstein Barr. I’ve had chronic fatigue syndrome since I was 12 or 13, along with insomnia and memory issues. My test results for EBV VCA IgM was 36 (equivocal). EBV Early Antigen was 48.70 (positive). EBV VCA IgG was 615 (positive) and EBV Nuclear Antigen was > 600 (positive). Stress is not the only trigger, your body could be fighting other viral infections that make it harder to keep the EBV under control. Valacyclovir is used as an off label treatment. I also recommend a stimulant medication (Adderall, Dexedrine, etc..) these are given to people with Narcolepsy and often for chronic fatigue as well.
. Valacyclovir did this help?
Have you been tested for Lyme or mold issues? My EBV levels being off the charts was my first step towards a Lyme diagnosis. When I’ve gotten my Lyme in check my EBV levels returned to normal. When I have a flare my EBV levels rise.
Hmm...I was diagnosed with mono in 1999 when I was 19 and after getting covid this year I have been tired and had light chest pain and my wife told me she thought it was my mono reactivating because she remembered I felt the same way back when we were teenagers and I got it, I saw a doctor a few weeks ago and she said my lymph node on my neck was enlarged and now it feels like my underarm lymph nodes are enlarged so I think my wife is right about it....I told my doctor I thought it might be mono and she said she didn't know much about mono lol..but anyways I've been going thru this since July of this year and it's now November...Also of note you can have chest pain with mono it's actually a possible symptom, some people may not know that
Yes. I thought I had heart issues and had a complete cardio workup. Everything normal.
Thank you so much for this video. I have chronic EBV as well and the stress of nursing school has made my EBV flare up and make me much more fatigued. I was having trouble finding anyone who experiences EBV on RUclips (or at all) and this is the only video I was able to find that really helped me! Thank you!!
I had the active mono infection for 16 months before I got answers/help. The treatment took 3 months. It was hard - but powerful. I also followed an autoimmune paleo diet for two months and then reintroduced foods back in one at a time with 3 days between. I cannot eat gluten or dairy anymore and I won’t drink alcohol again. I have gotten off of all meds except the levothyroxine but the does has been lowered to the smallest dose and my TSH continues to improve, so there is a chance I may get off of that too.
11:15 I am having trouble falling asleep due to Chronic EBV and I see you are recommending Holy Basil tea, but which brand? Teas vary in strength and one brand can be five times stronger than another. Also, how long before sleep should the tea be consumed? If Holy Basil is the active ingredient of the tea, why not take a Holy Basil supplement? I tried a Holy Basil supplement of 1600mg, it had no effect. Does that mean there is some mysterious ingredient in Holy Basil tea that is absent in Holy Basil supplements? Thanks.
Thanks so much *MR OBALAR* on RUclips for curing me from Herpes, keep saving lives.❤😊
6 years ! you can do better girl. there many options
I have chronic as well.. 23ys dealing with it 😵💫
I'm dealing 6 years with it.😭
And how are u feeling so far, was it so bad ??
@@bankimchandrabarman71196 years here too…
Lots of hug and greets from india
I found valerian tincture helps when sleep is an issue. I used a non alcohol tincture, worked great.
I struggled with mine for about 7 yrs. I do find some relief with scripture, meditation and a very healthy diet. I wish I could recommend some supplements but haven’t had great success.
Don’t take it if you are antidepressants.
I am desperately asking anyone for help. I have what is known as crime known as chronic mono that my doctor says is a controversial topic and does not actually exist. I got sick with mono twice back in 2003 and 2005. About 5 months ago I came down with covid and about a year ago I got diagnosed with Gilbert's syndrome. I am exhausted all the time and have been out of work on medical leave for a couple months now and now and I'm really in trouble here I don't know what more I can do if anyone has any tips I would love to hear them thank you
Bless your heart. Look up Dr. Kasia Kines. She has videos on RUclips + a book + website. Best wishes!🙏🏻❤️
Most docs do not even believe in chronic EBV or CFS or fibromyalgia :( . Try an integrative or functional Dr. Plus read all of these comments- I just today found this site and it is good.
Medical Medium books by Anthony William really helped me with chronic fatigue syndrome. I have a lot more energy now.
I had CFS for 8 years during that timeI tested positive fir reactivation of ebv. I beat it 8 years ago. Like Betsy had listed I would get on a strict diet that removes Sugar and Grains, dairy and Legumes might be good to take out as well. I found a natureopathic doctor that actually helped, he prescribed Amphotericin B from a compounding pharmacy. If you can’t get a prescription for it you could try apple cider vinegar everyday also Oil of Oregano a medicinal oil. For me it was killing yeast and/or fungal overgrowth in my digestive track, many suffer from this due to high sugar and or alcohol intake or processed foods and pesticides. Organic veggies, organic pasture raised meats , lots of water everyday. Stay away from starches and high glycemic veggies like potatoes and carrots. If after 6 months you’re able to recover you can slowly add these back in.
Find a good infectious disease doctor and get a prescription for Valtrex or find any doctor willing to run you through a cycle of it (you don’t take it forever) It inhibits the reproductive cycle of the EBV virus.
Have you read any of the Medical Medium's books? I highly recommend them. EBV has probably moved to your thyroid. I am a sufferer as well and mine reactivated after having COVID in 2021. I got mono in 1991 and now considered stage 4 of EBV. I am looking to post a video shortly regarding EBV
So it didn't appear since 1991 until 2021 ??
@@amineobeidat8822 no I got mono in 1991 and thought it was gone until my Naturopath did more testing and found it had reactivated at some point and we thought we had it under control again but reactivated again in 2021 when I got covid
I was like this from 2017 until 2023. I started eating more leafy greens, along with magnesium glycinate, high amounts of vitamin D, potassium, and a daily allergy pill, and low impact excercise. So far I feel 98% better.
So sorry for your suffering. May God show you his mercy.
Thank you, been going through this with a family memeber, I know its not in their head or because they "didnt drink enough water" (which they do). We had a functional med. Practitioner but lost her due to the office closing😢 but because of her, we now know virus is active and this makes more sense now. God bless you
Anyone had leucoplasia on tongue ? In laterals of my tongue are totally white. I’m horrored about it.
I have it on my gum. Have EBV for over 30 yrs and a bad case of it. Overlapping autoimmune ,chronic fatigue, fibromyalgia, headaches, numbness in legs and arms, seizures, heart issues, it’s devastating. Ruins one’s hopes and aspirations and dreams. God Speed it’s the reason I am alive. ❤E
What kind of doctor do you see? My husband has chronic Epstein Barr & none of our doctors know anything about it.
Integrative medicine doctors can help from a wholistic approach. This problem is all about how strong your immune system is and if your immune system is stronger than the virus at any given time. Vitamin D, lots of sleep, and a vegetable heavy diet can help as well as minimizing toxins (no smoking, chemical exposures, sauna for detox’ ect,).
Functional doctor.
Naturopath.
Carnivor/keto diet.
Does mano cause hairy leukoplakia(white tongue) without HIV
Ya
Hi Betsy, thank you for sharing! What type of doctor diagnosed you with CAEBV? I got my EA back and it's positive and my PCP has no clue about this virus..
No problem! I am seeing a functional medicine doctor! She is great so I recommend searching and seeing if you have any near you!
@@betsygideon2422 Thank you very much! ☺️
Any severe hair loss?
Have had chronic EBV for one year. I have been in a Ph.D. program and have struggled with my symptoms. Recently, I bought a grounding sheet for my bed and now sleep 10 hours a night with no problem. I also use a grounding mat when I am working at my computer. I am currently researching ways to heal and support my immune system nutritionally.
Functional doc is way to go and a really good one will not stop until they help! ❤️😊❤️ I have really high EBV antibodies and never knew when had it but have suffered from
Fatigue for 30 yrs now.
I had a hard time sleeping with mono because my heart wouldn't beat slower than 100 bpm. After 7 weeks, it's beginning to return to normal. I was very athletic, and had a resting heart rate around 55 bpm before all this. I hope I can get back to mountain biking with my very fast and fit friends again.
Holy basil tea is legit! Helps so much. I’ve been using magic hour brand teas which are great.
You are so sweet... I hope things are better for you right now!
Hello all. Question for the group. How is it determined whether you have chronic EBV reactivation or chronic active EBV? Sounds like chronic active is worse than chronic reactivation. Thanks in advance
Do me a favor. You know your health well & are very self aware. Please have them check you for narcolepsy. The blood test... I want to know if you are positive. The more we know about this the more recognized it will be. I had mono at 12. Im now 43. My whole life have had high ebv level in my blood... Osteoporosis since my mid 20's. Fibromyagia. Chronic pain & fatigue. Headaches. Stress brings the bi polar out of me & then wears me out & makes me feel useless. I am hoping that you speak to your doctors about. Since there is no treatment. Having the diagnosis of narcolepsy gives them a reason to rx me something called the limitless pill or smart pill (aka provigil/nuvigil).
Excellent tips dear. It was blessing to be here 🙏
Long story short. I'm 57. In December I got COVID. Took steroids. Then I'm January I got this awful feeling of sheer exhaustion. Felt like I was dying. Out of breath easy. Napping in the middle of the day. Light headed. Then about 3 weeks ago I woke up with my uvula hanging down in my throat in my throat, face and neck swelling went to hospital er Dr administered epinenephrine, steroids IV Benadryl and I was in ICU for two days to get the swelling down but 3 weeks later I still have neck and face swelling. Went to my oncologist today my cancer numbers are all good my CT scan was good. And he told me that most likely I have mono. Did he test for it?? No. Did he tell how to treat it? No. Did he tell me who to see to get tested???? Nope. So who do you go see to get a test ran to see if that's what's going on?
Same exact thing happened to me except I got blood work done after I kept going to hospital and doctors and finally showed up that I tested positive for mono accidentally…
6:19 is that always? Or some sort of attacks that come and go ??
Have you sought out a functional medicine doctor? Or a natural path doctor? I am currently being treated for reactivated EBV..and the holistic approach seems to bevthe only thing that has worked. For reference I had spent the last 3 years trying to find out what was wrong through regular doctors etc. Ifvyou can look up how to treat this naturally with supplement! Hang in there!
thank you betsy. the music is really exhausting tho (to me anyway)!
I was told that I had chronic fatigue syndrome but am doing so much better since following Medical Medium recommendations in his books.
hi Laura, I’m encouraged to read this has worked for you. I have been following the medical medium protocol for the past 2 months as well as working with a nutritionist and acupuncturist, I’m curious how long did it take for you to start feeling significant improvement? Thank you 🙏🏼
@@ArubaRedOfficial I started with 16 oz of celery juice daily in the morning on an empty stomach probably in late November or early December and started to notice some energy improvement by Christmas. I gradually started adding more of the Medical Medium recommendations (especially lemon water and heavy metal detox smoothie and I increased to 32 oz of celery juice.) I then added some supplements (lysine, vit. C, etc.) and by mid to late March I was noticing that I was walking much farther than I used to, and now I am walking maybe 2 km/day. Before I started following Medical Medium suggestions I had to order my groceries because I couldn't walk around a grocery store. I'd had chronic fatigue syndrome off and on for 2 years. Stress will cause mild setbacks in my energy, but I no longer think of myself as being particularly unwell. So, I would say it took me maybe 5 - 6 months to have a semi-normal amount of energy and I believe this will continue to improve because it's still so early in the journey and I haven't been very consistent with the supplements. I also haven't tried a cleanse yet. I am 57 years old. I'm glad I have been an encouragement to you and I hope you make a rapid and complete recovery very soon!
@@lauramcconville850 Did you take monolaurin?
Did you have any liver pain or elevated liver enzymes for weeks?
How are you doing now?
I'm currently going through this
Anyone experiencing red veins in the eye ?
Madam we can cure parmently or not madam please tell me madam we have this issues please please🙏🙏🙏🙏🙏🙏🙏🙏
I’ve had mono for 3 months so far, and I haven’t been able to go to school because I have such bad fatigue. Currently doing home bound.
Is it getting better?
@@melaniemahaffey1886 finally :) I started school in person this year on Monday. Fatigue is still there, but I'm definitely able to function again!
@@oryoncreates hi, glad to hear! How are you now? - and any tips for me (3 months in) 😊
What’s an active state ?? My EBV EVC IgM is 10 is that active my IgG is 403
Thank you for sharing your story.
Anyone here tried the celery juice for it?
how are you doing today?
Lomatium is extremely effective against ebv
I can help you. As an energy healer, I can eliminate any virus in minutes, and have done it hundreds of times without a failure.
How
@@malekmoum By tapping into cellular memory to find the cause of health issues and the natural remedy. Then I treat the person with the frequency of the needed remedy. The results are very fast and amazing. I just need to hear your voice on the phone in order to test and to treat you. I am a Christian missionary in Colombia and what I do is a gift that I have been given for these last days that we are living in. Mike Carey
I have it right now third time around and I cannot sleep at all. I am so tired I feel so weak. I don’t sweat from my armpits, but my glands are so swollen. This is the first time I’ve ever had sweat and my armpits in my whole entire life.
Have you had a sore throat? My doc thinks I've got mono but I've had no fever or sore throat, just huge lymph nodes and overwhelming fatigue and stomach cramps along with constant headaches.
@@JJ_Beats._. had no cold/flu symptoms, just lymph pain and that god forsaken fatigue took the test and I had mono. That was back in 2017 and I still regularly feel like garbage.
Are you feeling better?