My Tourettes Went Viral - But People Think I'm Faking It | BORN DIFFERENT
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- Опубликовано: 3 апр 2022
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ZARA decided to post videos online to give insight into her reality of living with Tourette’s Syndrome after her tics got worse. The 16-year-old first experienced tics at the age of seven but aged 14, she said the situation ‘spiralled’. The teenager was also recently diagnosed with Functional Neurological Disorder (FND), which causes fainting and seizure episodes as well as paralysis. A video of her having a COVID test went viral and people accused her of faking it but Zara hopes to raise more awareness about her conditions. Zara is passionate about music - she sings, plays guitar and writes her own music - and these are things that give her a break from her conditions. She has been on a journey to accept her conditions and that she cannot control it. Zara said: “It doesn’t have to define who I am, I can be me separately and just have Tourette’s and I can post about it, but that’s not entirely who I am.”
Follow Zara's journey here:
/ zeezee25
/ zara.bethx
/ @zara_beth
Videographer: Paul Chambers
Producers: Emika Berry, Yasmin Walker
Editor: David Bamford
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loved filming with you guys! thank you so much 🎗❤️
hi Zara!
I just discovered your channel, and I am unbelievably impressed by you! I thought you were at least in your early 20s because of your maturity and accomplishments. I don't have Tourette's syndrome myself, but I have a number of neurological conditions, as well as autoimmune disorders, mental health disorders, etc. After most of my brain surgeries, I've also experienced the phenomenon I believe I've heard you describe, wherein you can move only your eyes. You are quite inspiring to me! I'm twice your age, but I really resonate with what I interpret as your old soul and kind spirit. You have a big fan in New York wishing you the absolute best! ❤️🏳️🌈
Me too
Hi Zara I love your channel so much!
Hi zara :)
I couldn’t possibly imagine the stress of going through this without support especially when people think your faking it! she’s truly an inspiration to everyone ❤️
Yeah, I think it’s cause so many people on tik tok or any social media platform fake it
I’ve also got FND
But I was one of the youngest ppl in the world who had it, when I was diagnosed I was 9 and you normally get diagnosed when your a teenager
She does have support, she has her family and friends.
Looks fake to me
I can’t imagine dealing with a condition and people telling you it isn’t true. I’m sorry this happens to her but I’m proud of her for not letting this stop her from living life to the fullest 💜💜
Lol she is doing this by herself because of followers
You are the reason why she is doing
@@fighterinmkiwiscience3517 shut up it’s a real condition
@@iluvhalloween791 it's not look on Google
@@fighterinmkiwiscience3517 Excuse me? tourettes is a real condition and of course people like you say it's not because you don't understand or know what people with it go though and how it effects them.
Her whistle is actually kind of cute. It reminds me of the “Twitter Whistle!”
It’s probably where she picked it up tbh
@@mary.charlotteracine3830 Yeah and?
@@RyosukeTakahashiRX7 I don't think they meant it in a mean way. People with this condition often do copy and repeat sounds if they have the verbal kind of it. When a few people with it meet they also often pick up tics from each other, a few people have talked about experiencing this.
This is why I stopped posting about my Tourette’s and other disorders online tbh. So many people get accused of faking it. EVERY single friend of mine in the community who is open about it has been told they are faking it online, or even straight to their faces. It only happened to me a few times, but it was enough to create a deep rooted fear of being doubted, shamed, bullied, and judged. Having tourettes is hard enough on its own. Many of us struggle with anxiety and feelings of embarrassment, the last thing we need is people reinforcing these fears. It’s so stressful, painful, and sometimes isolating.
I avoid people who disrespect me and situations which impact my mental health. I hate that I no longer feel comfortable spreading awareness. It shouldn’t be this way
That being said, I am so grateful for the lifelong friendships I have made because of my tourettes. It has shaped me into the person I am today. It gives me a reason to laugh every day and it has blessed me with some of the kindest, funniest, most empathetic friends I’ve ever had. I focus on the positive and have learned to love myself. There are some tics I will always hate, but I don’t hate myself for having them. I can’t control it so I shouldn’t feel ashamed or guilty.
(Btw we’ve all been diagnosed, but they don’t owe people proof of their disorder[s] to be respected!!)
Be you 💛
Gracias por tu mensaje. Es muy importante que amemos nuestros mismos, y tu vida me da mucha inspiración. Espero que tengas un buen día.
What do you mean, if you don't want to be bullied don't make a target of yourself, attracting people's attention online is the worst strategy against that. I guess the revenue paycheck is more important than "spreading the word" at the end of the day.
You get people that fake because people sympathy these sort of issues, they see that and do it to create money and a following🤷♂️
@@justanaveragebalkanthis is called victim blaming. Someone existing online isn't a reason for you to bully them. Visibility helps normalize these disorders and clearly we still need it.
I hope the idiots that fake tics see the damage they're doing, someone actually struggling gets accused of lying.
Social media has helped Tourettes gain a lot of mainstream exposure, and helped me finally get diagnosed at age 24. I'm glad to see it ❤
I also got diagnosed at 24 !
Is it severe
How frightening- I had no idea it could paralyze someone!
Tourettes doesn't cause paralysis. She has another condition called FND and that's what causes it!
Actually Tourette’s cannot paralyze you, but a lot of people who have Tourette’s, also have a condition called FND (like myself) it can cause temporary paralysis, permanent paralysis , seizures, other tics, and absent seizures
I’m so pleased she is able to get support. This sounds incredibly tough. So excited to see her social media progress. She is creating a lot of awareness which is amazing.
I like that she said that's it's just a condition, just a part of who she is. I think that rings true for alot of us.
Ignore haters they have nothing better to do with their lives other then judge someone and something they don't understand you are an amazing person with or without tourettes don't let haters stop you from being you and don't let tourettes stop you from doing things you love.
some people don't understand what is like to have tourette's
@Life with pets I love cats and dogs they are my favorite animals ❤
Are a Disability
Most people don’t understand it, and you can’t really understand it unless you’ve had some form of tics before. Honestly I envy people who will never understand what it’s like to have Tourette’s
What a determined, resilient and talented lady you are Zara! It's great that you're educating people about your conditions and I hope the FND remains manageable.
I've got tourettes but it only got pretty noticeable about 2 years ago. People don't always believe me because of my late diagnosis. A depression and anxiety disorder got out of hand a few years ago and I think that triggered it. Might also be my anti depressant, who knows. It's just not a joke.
Fellow tourettess and FND been having seizure like symptoms when i have severe panic attacks since i was a kid. I had a mom who just would accuse me of throwing a tantum and dispite the only reward i would get is being grounded or hit by my step father. Having people accuse me of faking now is just soul crushing,.
i am so glad that you are able to know and work to deal with it when you are young, I found that i would just try to hide it, and eventually my firends would find out and dispite my insistance to just let me deal, they try to help and then i always have lost those friennds because they think im doing it for attention. Its really insulting too since I dont need to get attenton that way.
Ive learned alot about tourettes syndrome by watching folks that upload and explain it. I appreciate you sharing.
I’m so glad you have your music to help support you through your journey. It’s great that you have also made a good friend who seems to be understanding and accepting of the Tourette’s. I believe you have a bright future ahead.
It’s sad, there’s so many fakers out there that are faking for clout they are telling people like, Zara that their faking it. Zara is not faking it and it’s disappointing that people think so. Stay strong! 💗
ok name some of them then
@@blood1nthewine tics and roses
@@psychanii9768 Only few people fake it. Tics and Roses was obviously a fraud (why they were found out). Tics are pretty difficult to fake and it’s obvious to someone with knowledge of the disorder. For instance, it’s difficult to make the same noise at the same pitch consistently as is typical with a tic.
@@Laurap01 Yes, but all the little children on the internet will see people like Tics and Roses and think that everyone who has Tourettes or any other disorder that causes ticcing and say they're faking.
i’m so so proud of you zara, i love you and so glad we are friends
She is a very beautiful sweet young lady who stays positive and deals with her Tourette’s very well. I can’t imagine having ticks it must be frustrating at times when she has to get school work done. Over all she is doing very well for her self and as she gets older she might find different ways to control her ticks better .
FND AWARENESS! Thank you for sharing this girls story! It's not only TS awareness but FND awareness. I have a very severe version of it that started in early May 2021 as tics and I thought it was ocd or something. Now it's exploded into pain (possible fibromyalgia), still tics, constant tremors, paralysis, balance issues, and (possible) focal awareness seizures (going to test to see if it was a seizure or just severe tremors], and falls!
I had no idea what fnd was when I was diagnosed and it's been a terrible terrifying journey that's causing my muscles to atrophy. I'm hoping this video helps spread awareness about the condition
My girl Zara❤️ so strong and such an influence
You are an amazingly strong young woman. You're destined for great things and you're making a difference. Best Wishes and Great Blessings for your life! 🥰
you so beautiful despite what's going on, thanks for your inner strength that's helping you to conquer. thanks for the awareness 🙏
This is a very good video and ignore the people who say tourettes is not real or your faking it Those kind of people are ignorant on what the condition is.
People say your faking it or it's not real have no understanding on what the condition is or how people living with it deal with it every day.
@@wildcarddomino I'm saying ignorant because people think those who actually suffer with the condition are fakers.
Yes I understand there are people who fake the condition but for those who actually have the condition get called fakers and people don't understand how those who actually have it deal with it everyday.
Never give up, you're amazing!
I can't imagine not only struggling with something like this, but also having people doubt you, or basically mock you by faking it.
You’ll be amazed at the number of people who go straight to mocking when they meet someone with TS. It’s so widely accepted just to bully us straight away. I’ve had colleagues with PhDs think it’s the most appropriate way to respond. It’s ridiculous.
Much love to you dear...
Praying for your success. Go forth and be great
you're incredible and beautiful. The fact you can channel all those emotions into songs-lyrics - will make you a so much stronger person. You are to be admired / total respect to you. Go get em girl !!! 🤘🤘
I follow you on youtube & I adore you. You're so sweet, smart, kind & you have a super fun personality. Keep doing what your doing, you're going to do great things in life 💕
Absolutely despicable people think she is faking it. Wishing this young lady all the best.
Its a condition! The screwed up people in this world who use it for fame, are beyond disgusting! Props to her for standing up to the haters!
How do you know she's not faking it, most of her content seems really staged and forced. If you compare it to someone like Sweet Anita which acts like genuine human being when she talks or tics and you can notice it's generic, with this girl it seems to be targeted to an audience rather than a medical condition.
@@justanaveragebalkan She's not faking it.
@@justanaveragebalkan She has Tourettes and FND, she's not faking
i think most people still think all tourettes is, is swearing. What they don't get, is that it is a neurological disorder. As much as you could joke about it and take it lightly, it's an illness in the brain. Unfortunately there are people out there who fake illnesses and it makes it even harder on those who truly struggle. But bless you and your creative and beautiful brain. Reading those mean comments and being able to smile and move on unaffected shows how strong you already are!
Exactly I swear and i don't have tourettes there are more to tourettes than swearing.
_Good for you to push through the drama. It's crazy that some people actually do fake these things, but I believe you_ 🙏
One of my favorite rappers of all time, Kydd, has the same issue and I didn't even realize it until he mentioned it the other day during a livestream _(he has subtle ticks but can rap nonstop for minutes on end like it helps somehow)._
He's underrated but has a few vids with a million views, so hopefully that gives somebody some inspiration.✌
OMG ZARA ? I NEVER KNEW SHE WAS HERE AAAAAA I LOVE U ❤️❤️❤️
I love watching zara beths videos, makes me feel like there is more of a community
YEAAA PROUD OF YOU ZARA
I feel so bad for not only this condition but any type of issues anyone may have that people could think is fake now thanks to all the jerks who fake things on TikTok and RUclips for more attention. Kinda like the service dog thing like real service dogs are trained but everyone wants to claim they have service animals
Nice to see here here on RUclips. I've actually followed here on Tiktok a while now and I always am happy to see here.
Omg lol I found you on TikTok a while back and then a few weeks later, I hear my dad talking about someone hes been watching with tourettes, and it turns out we were both watching you! Lol I think you are so adorable and an amazing, strong person! .. also, side note/question, does it effect your sleep? If so, what do you do to remedy that situation? Just curious! Thanks!💖💖
i my sometimes does as it keeps me up at night when my tics are bad, but generally i don’t tic when i’m actually fully asleep!💕
@@Zara_Beth amazing and strong you are
People seek attention by faking their tourettes but because of them people like her gets falsely accused which is really upsetting. I wish her and other people with tourettes the best💕💕
You’re never going to actually meet someone who is faking TS in real life. It’s a social media problem. Not only is it a very small percentage of people, but they simply wouldn’t have the balls to experience the embarrassment and shame that comes with publicly ticcing.
I think ur fabulous. Thank u for letting ppl c ur struggles w the disease. I think u rock. God bless.
Ayyy my girl! I follow like 20 people on TikTok if even and she’s one of the first ones I followed. I love her.
great interview 😁👍
i have fnd too! its crazy seeing other ppl that have it since its so rare 💗
Love you Zara! 💜
She is very intelligent esp. for her age. Hope she keeps learning the things she is passionate about.
My youngest son suffers from the same thing she has. The tics and noises he makes can drive a person crazy if you don’t know what’s going on.
so many people are faking it, to the point that if you have Tourette's people think you are faking it
it is sad
Aaaand... now I'm ticking lol.
This is the problem, watching stuff about others with tick disorders, makes me tick worse. Anyone else
Me too
It's definitely not fake. My sister has it too and it's an awful disorder to have. It's hard.
Don't worry about the haters thay don't understand what your going throw you make us happy and I'm happy I found you channel it help me understand what you guys go throw but just be you and don't worry about the haters we are always here for you
I know it's not easy because day-to-day life can be challenging sometimes but I hope that she can manage everything and I hope people don't judge her for who she is but her personality because we all come in different ways and having this connection it is not easy on anyone
Lovely information👌
You are inspiration ❤️ is there medication to help flare ups?? I seen friend of my stepdad back in 80s he had tiks, however back in 80s I didn't know anything about it. I knew it was something he had and he couldn't control but it never bothered me. He had more facial tiks
You go girl. Anyone who doesn't make an effort to understand difference will remain closeminded and ignorant.
God bless you. You are who you are , pay no attention to the people who think their goal in life is to inject misery on others.
you're strong, beautiful, and kind... what more can anyone ask for 😍
@Life with pets omg 10!! I adopted 3 and it’s (good) chaos here haha. That’s great what you do, thank you for your service to keeping our furry friends healthy!!!
her whistle is the best!! ♥️♥️😘
You can’t really be 100% sure if someone is faking stuff like this so idk why people who aren’t experienced with these things or aren’t educated at all about them are trying to say that they’re faking because YOU DONT KNOWWWWWMWW >:0
So proud of you Zara!!! Mwah mwah (Millie) x
I completely understand what its like. I had had tics my whole life but my step parents abused me when i ticed so i learned to supress even tho they would end up in seizure like motor tics for hours. it took me 22 years after it started turning into seizure like motor tics to find out i was trauma supressing. I have since learned to let my tics out and the internal turmoil i was in almost completely vanished. But I was really nervous at first that people would think I was faking it because i had hid it for so long or throught it was JUST FND. Im learning to love my tics, even the tic attacks because it means my body is processing things the way it needs to. I have since been a lot more calm and been finally able to reach management stage with my complex case. I think it is abusive to say that some one is faking a very real condition. None of those commenters are doctors so how are they even qualified to tell the difference!?
That's why instead of looking for anything to claim that it's fake and deny it maybe we should learn more about that. Every person is a different world and some people can experience symptoms in a more severe or mild way. Saying it's fake and justify yourself saying that people who fakes illness harms people who actually are ill it's not an excuse. Obviously, probably there are people who fake it for fame but accusing everyone of being fake it's harmful for the people who suffer from this because they may feel that no ones will believe them and then it will be more difficult to ask for help. Not only with Tourette's syndrome but also with mental disorders
I had a friend with Tourettes. It used to piss me off cause people assumed he was a druggie and acting weird cause he was always high. Jerks...
I like how they are interviewing Zara I find that cool because I really like her tiktok videos. 😎😎😎😊😊😊
God bless you.You will fight it and win it.I know it.❤❤❤
To all the people who think she’s faking it, she isn’t. It’s just part of who she is and she’s special.
God Bless her sweet heart!!
Thank you for bringing awareness to tics. I have really bad anxiety tics and I hate going out in public because I’ll flip people off, say hello to them repeatedly, try to touch their hair if it’s long, etc and it’s incredibly embarrassing. Seeing other people experiencing the same things makes me feel less alone.
Then seek a doctor 🤦🏾♂️
Nice to meet you you are beautiful person keep strong
Bless her 🙏 ❤
She is so beautiful inside and out and amazing inspiring remarkable and so special amazing queen queen and so strong passionate loving caring loving and so sweet xoxo 😘 love her proud of her of everything strength and strong and courage and so brave encouragement xoxo 😘
I've met people with tourrettes, I admire you greatly. You are a beautiful, strong young lady. 💪
OMG ZARA IS ON TRULY
God bless her 🙏🏼
@6:26
How can I be on a video?
She has a great friend ♥️♥️
For those with Tourette's, I discovered whistling a song or singing a song for the whole hour works. Humming works too. Much better than colossal yelling at the top of my lungs repeatedly. Whistling doesn't annoy everyone around me. Never expect people to be kind and understanding; our tics bring out their true colors. Tics are just normal to us. Baylen and Rachel are just normal to us. Putting a Brach's Star Brite Peppermint candy between my back molars to create the perfect sized space so the nerves aren't pinched in my TMJ connecting my jaw to my skull greatly reduces the severity of my tics. My physical tics are also colossal and I easily pull muscles. With the candy between my back teeth the physical tics are tiny. You don't have to bite on the candy. Just create the space and move the bottom jaw forward a little. Experiment- we are all different. I tried a custom built mouth piece but don't like wearing it. Candy is easier. Even a pen or pencil put crossways in your mouth so it is sticking out both sides and separating your molars can help. Baclofen helps a little and doesn't make you a zombie; just a little dumber. Doctors aren't aware of the methods I listed to control tics and disappointingly I found they could care less; no money in it for them.
I have autism and anxiety and get told I’m faking it but I’m not
i have both of them as well and 2 other things and sorry you get told your faking it
Do the ticks hurt? Like muscle pain or feeling your body forced to do these little movements?
no tics themselves do not hurt
Not really, tics more feel like fuzzy soda, and bugs crawling on you, that starts in the area your gonna tic in, and slowly spreads through your body. Unless your tic is hitting yourself, or like something that causes physical pain like that, then they don’t hurt. Unless it’s a tic attack, because then tics hurt, along with the fuzzy, crawly feeling. They can also hurt if they are repetitive movements, and your muscle gets tired, but the tics themself don’t hurt. Hope this cleared it up a little
everyone is unique
That whistle though....its perfect lol
I had a ex friend who faked tic and I knew she faked them, so I feel really bad for Zara or people like her who use there issue for fun
I honestly don't know why people say it's not possible to tell if someone is faking Torrette's. Imagine that you show some random, untrained person the most complex solo ballet ever spontaneously performed, by the most precise ballerina who ever lived - then you tell them you'll give them a million dollars, tax free, if they perform it perfectly, at 3x speed. And that person gives it a truly committed effort . All you'll still see is a person doing their damnedest imitation and looking like they wildin. How would Gertrude, a random passerby, look over and know that that person is not a ballerina? I imagine it would be the trying to figure out moves, and maybe if Gertrude came a bit closer and observed a little longer, the *effort random person was putting into it. Nature is that spontaneous, precision ballerina, and fakers are that wildly choreographing person.
It's not about the types, severity, or frequency of tics, as those are as varied as humans ourselves; it's about watching closely.
This is not advocating bullying people. Even if you notice or know as fact that someone is faking, it's still not your place or right to harass them about it. Leave any eventual reckoning to the medical community and those with the condition and their families. Peace to everyone.
You're awesome beautiful. I don't care about them. You're very cute looking and no one should care about except to help you out to be a happy person. ♡♡♡
She is so cute🤍
My Swiss Stepson suddenly lost his condition in his late teens, and it's never returned! 💪👌😍 I wish the same for you sweetheart! 🙏👍😘
swiss stepson ?
@@Candicedickinsonllc YES! I married his divorced father ... you don't mind do you? 😁🤣
off topic but omg she's so beautiful
so weird how a bunch could believe the other tiktoker who was so obviously faking her condition but when this girl ACTUALLY has it, no one wants to believe her. it's really upsetting. I hope people can be more educated about this syndrome and be more caring towards people who have it:/
She's so beautiful ❤️ don't matter her tourette 😊
Ur great I have psychosis you are so strong it’s true.
Hey there don't you pay no attention that people think that you are fakein it. I know you're not thinking it sweetie you hold your head high and be yourself don't worry about all these idiots that want to be childish don't know how to be an adult so you hang in there girl I love you Cleveland Tennessee we love you.
I love her tt!
Well, Zara has certainly had a lot of copycats, but she herself has always been terribly real.
💪 💪 💪 born in his image. Strong
I love you Zara Beth
U are absolutely gorgeous !!!!
What is the name of one of her song anybody that know a name of just one of her songs
She's mine by Zara Beth
Wait but I love her room❤︎︎
I have tics too but I haven't been diagnosed. I'm 14,they started when I was 11.
i have tics but they started April 2024 and got worse since 6th June when my cat passed away and the neck pain is kicking in i try holding them in but i just cant