I have been living with TSW for over two months and have dry skin with some redness still. My skin is flaking but in very small pieces, so I do exfoliate once every morning very gently with a soft towel. I have had some small areas weep for a few hours but they are drying up now and I still have swollen lymph nodes in the groin area. I have been giving Methotrexate which I started a week ago to help calm my immune system. I have stuck to a NMT( no moisture treatment ) for most of the time and making sure I have enough Protein and vitamins every day. If anyone is going through this please stay strong and remember for every day that goes by, you are winning!
sorry to hear that about your child. I have been on Methotrexate for 5 weeks now and almost all my symptoms have gone. I am back to sleeping normally and going out each day for walks. I plan to stay on this drug for at least a year and then see what my condition is like when tampering off it. I can also use biologic's if needed but i am taking one step at a time. I really hope your child can get well soon. I only used a cream for one year and this was the result! crazy!!@@colinmutumbi7121 🙏
It’s because are cells are sensitive to B3, which case us to have a niacin flush. Do not use lotions, throw them away. Work on doing (NMT) No moisture technique. You want your limit the amount of water you drink and no more hot showers. I take ice bath and wash up in all cold water. Do not take oat meal bath it suffocates your skin to be able to breath just like lotion. You want to fall asleep before 10pm and try sleep as much as you can this helps the healing. I also do long term fasting . Work your way up at first. Longest I’ve fasted for was 72 hours and helped my skin so much. But limit your b3 intake. I’m over 4 years of tsw.
@@TheShamwari oh I take them now, just when your skin is bad and flaring. Cooling the body temperature helps with calming the flares. Also I’ve been taking liquid melatonin/potassium drops and have seen wonders with my skin. Also have more energy and sleep better
That is very case dependent. For me, until now I have the best skin ever (I had eczema since baby). I don't have any eczema at the moment. But the root cause of eczema can be very diverse, so if the root cause is still present, yes, then eczema is still there. But what other ex tsw patients report is that their original eczema is peanuts compared to the suffering which they had during tsw and that they manage to live with it very well. (finding out your tiggers (stress, foods, contact allergens, alcohol use, etc) and what helps your skin (like sun and sea vacation planned during winter time or moving to a better climate for your skin) can both massively help with the management of eczema and even clear it completely if all triggers are found and addressed.
How is a flare defined? I hear the words cycles and flares but struggle to know the difference. My body for the most part is just dry with thick elephant skin on elbows and behind knees but my face tends to go through the shedding, bleeding and sometimes oozing the most. Can have better periods in between but never totally normal. My forehead in particular seems to be affected the most. This has been case for 2.5-3 years and I'm 23 months steroid free so just trying to figure out the phase I'm in.
Hi! A flare is when the skin becomes red and inflamed because of a trigger. Watch the video on Triggers that delay the healing rate of TSW + Phases of Wound healing on this channel to understand what triggers are and why they cause a delay in the healing rate of TSW skin. In the beginning of the TSW healing process, the skin is continuously inflamed and red (explained in Symptoms of TSW explained). But at a certain point the skin is getting a bit better and a bit stronger, with lots of flaking. Flaking on TSW skin is a sign of healing. It means that new skin cells are being made. When the skin has been flaking and healing, but becomes red and inflamed again, there must have been a trigger. Finding out your triggers and avoiding them is key for a good healing rate of TSW skin. Especially irritant exposure is often overlooked. Please watch the video on Triggers that delay the healing rate of TSW on this channel. Many people go to cycles of flares before they heal. Good luck!
@@TSW.healing I see. I'm flaking and a bit red underneath. I'm not bright red like I was during the addiction phase over 2 years ago. Does removing flakes make any difference to healing? The skin can sometimes be a bit damp underneath if I do that but generally it doesn't do anything and the cycle just repeats the next day. The level of flaking varies aswell but my skin is never totally smooth.
@@F_Arrow95 Hi. Skin flakes should be kept on the skin to have the best healing rate. The skin is thinned and impaired, so rubbing the flakes off can cause little wounds or sometimes even oozing spots. Also the skin flakes provide some protection against irritant exposure. It may not look nice 😉 but is best to kep them on your skin. Good luck !
@@TSW.healing Thanks! Yeah it's just tough to resist first thing when I wake up because it gets a bit itchy. As long as it's not affecting healing too much then it brings me some comfort.
Hi, any difference between psoriasis/eczema biopsie and tsw biopsie? The problem with the soles of the feet is that over time, calluses form over them again and then they feel like armor. And underneath, after a while the inflammation flares up again, followed by insane itching, redness and hundreds of very very tiny gray dots (I almost suspect that it is dyshidrosis). I had a total of 4 biopsies on the soles of my feet. The first (2013) could not verify exactly whether it was psoriasis or eczema. The second (2016) showed eczema. The third (2017) and fourth (2023) both showed psoriasis.
Hi, this is a recent study in which also biopsies of tsw skin is discussed: www.medrxiv.org/content/10.1101/2024.04.17.24305846v1.full?fbclid=IwZXh0bgNhZW0CMTEAAR1asUs5-NTZRhiktX7iGw2pGblaqsbX74KPw6BNaL2L5h90iGA_SPi5UOs_aem_AT5oU6uDEbQnwA6p4tVX8S9piNK4CFFBs800VshEw3cRYbRim9vEIqPcKxEYq7lZuZYAoqcNHolwbXMVQ9zJMSvx I hope it is helpful.
I have been using steroids creams for 2 months straight i just noticed my skin cant fo with yhe cream, if should stop it i just get rashes and I decided to make research to find i have TSW😭😭
Please help me I can’t find a case like mine. I used neomycin polymyxin with dex (steroid) .01% for 8 months on my eyes. I stopped and immediately got rash on my eyes. I am in week 3 and rash is now spreading to arms very slowly and hands. Does this mean I have a mild case? I didn’t suffer from eczema prior to this or any skin conditions.
It depends on the dose (how many bottles) that you have been using. (so not the length of time). You might have spread the steroids a bit by rubbing in your eye with your fingers and then touching your hand and arms. Usually a period of 8 months of steroid usage does not give a person severe TSW, but as mentioned before, it depends on the dose. It's not very likely that you are a severe case since the rash has spread only to your hands and arms and not full body. Although what you are experiencing is still very uncomfortable and intense to go through. Best what you can do at this time is check all the videos on this channel so you understand better what tsw is. Also: avoid moisturizing and learn about irritants and avoid irritant exposure and other triggers until your skin is healed. I wish you the best healing rate possible.
Most lotions have harmful chemicals it’s best to use organic moisturizers . Try to limit/eliminate soy gluten and dairy from ur diet. Wash laundry with baking soda or detergent that’s very very mild
Yes jay they in some cases can be even worse but it just depends on how long you’ve been using them and how strong they are, but you never know with TSW some people don’t even develop symptoms and some do it really just depends on how your body reacts. I used one of the weakest creams out there that was over-the-counter. And I’m coming up on two years with TSW. I’m almost healed all the way up now but it really is just unique to your own body.
@@selective288Glad to hear that you are almost healed. I use oral steriods whenever I have flare ups, 1st 2 days 40mg, 3rd day 30mg, 4th day 20mg 5th- 7th day 10mg of steriods. that was prescribed by my dermatologist.
Can TSW happen in my ear? I was put a cream that contain steroid in my ears because my ears feel dry..after that, i stop using it..i notice that my ears become red, flaky, and sometimes itchy..is it TSW ? Or psoriasis?…other thing, does TSW and psoriasis look same?..other than that, now my ear has flakes..i want to ask something..when i peel the flakes, the new flakes will form ? Or no flakes anymore after i peel it? Tq
Hello, I never put steroid in my ear (sometimes behind the ear) but I have oozing IN the ear. So, everything can happen. It's true that TSW may look like psoriasis, that's what I thought I had on my hand before learning more about RSS & TSW. To answer your last question, whatever you do (peeling) or not, the flakes will form again and again until a day it stops itself. But yeah, try not to peel it :/
Hi Vicky, I'm sorry to hear that you, or a loved one is going through TSW. And I'm hoping you are doing well and have a good healing rate. The timeline of healing can be different in the following cases: 1) - the lowest point can be later in time in case of triggers that delay the healing rate of TSW (such as not enough sleep, stress, alcohol use, exposure to allergens and irritants). To understand Triggers that delay the healing rate of Topical Steroid Withdrawal, you can watch the long version on this topic (video nr 3 on this channel). Many TSW patients also experience flares during their TSW healing process due to these triggers. 2) - some topicals can have irregular timelines. This has been observed in a small percentage of cases after the use of a certain immunosuppressant cream and a certain high potent steroid cream. In those cases the patient may experience a period of good skin, but when the skin gets triggered, the patients still goes (back) into TSW. Important in this video is understanding the role of irritant exposure. This is a trigger that can slow down the healing rate of TSW considerably, but many TSW patients are not aware of irritants in their environment. This is because a normal healthy skin does not react to irritants. Also a thinned skin which is treated with topical steroid creams does not react to irritants (the reaction is suppressed because of the use of the TS creams). But when a person stops using the steroid creams, these irritants become a problem when someone is going through TSW. Also important in this video, is understanding that when the skin starts looking normal again, it has reached only 70% skin thickness. It's still thinned, very fragile and sensitive and you can easily flare from all kinds of triggers. Take care, and wish you all the best!
Hi Vicky, No, it's not like that. TSW skin is thinned and impaired skin. This is why it can react to many things and cause inflammation. Even airborne chemicals like perfumes, air refreshers, fragrances in cleaning detergents etc. but also dust, hair from pets, chemicals on new clothes or furniture, chemicals from a printer, or from paint and glue etc can cause TSW skin to flare. Many TSW patients are not aware of this process. They are not aware why they flare ;) Avoiding irritant exposure will lead to a better healing rate of TSW. :)
@@TSW.healing Well, that could be anything. And how do you then determine what exactly triggered the flare-up? You would have to be locked in a sterile room, that would probably give you the best chance of recovery. Btw: I have been using cortisone/protopic on the soles of my feet for 11 years. At the end, I used the strongest Clobetasol for about 2 years. Now, I haven't had any cortisone for 11 months and no Alitretinoin for 5 months (because of hand eczema). I also had cortisone therapy on the palms of my hands for 3 months at the beginning of 2023. My hands only got worse under alitretinoin therapy for a total of 7 months. At the moment I'm even without moisturizer because I suspect that it just fuels the inflammation. It's incredibly difficult because you always need your feet and hands and they tear open with movement. The most challenging situation in my life and that for 11 years. If things really do improve over the next year due to cortisone withdrawal, then these gentlemen can hear something from me.
Hi, It is very case dependent. It depends on the healing timeline and circumstances. The healing timeline of TSW can be very long. I have met several people who have used over a kg of high potent topical medication. In that case the healing time line is long (decades). That doesn't mean the person has open, impaired skin that long, but the skin cell proliferation rate is not back to normal yet and there is still skin atrophy (thinned skin), which makes the skin more sensitive. As an example: someone has an estimated healing timeline of 20 years. Phase 1 will take 5 years. At the end of Phase 1, is when the person reaches normal looking skin. But at that point the skin is not fully healed yet at all. The skin may look normal at, let's say, around 75% skin thickness (this is an estimate and serves as an example), but is still thinned and hyper sensitive at that stage. The skin can very easily flare at that point from all kinds of triggers (watch Triggers that slow down the healing rate of TSW). But over time the skin quality improves. The skin gets more strong and a bit thicker. At the near end of Phase 2, this person will be into TSW about 9 years. At this point flaring does not happen easily anymore, but can still happen (for example: the person moves into a new home with lots of chemicals in the air). So yes, in case of a long healing timeline, 9 year into TSW, a person can still flare. Other example: a person used a much smaller amount of high potent topical medication. And , for example, this person has an estimated healing timeline of 4 years in total. Phase 1 being 1 year (with visible TSW symptoms). After 4 years the skin cell proliferation rate is back to normal and the skin thickness as well. In this case, if something like a big rash happens 9 years after using topical medication, this is not related to TSW anymore, but is more likely and allergic reaction to something or some other (new) root cause. I hope this makes things more clear.
Usually it starts on the area you've used the steroid cream on, but it usually spreads throughout the body. Not everyone gets full-body TSW, but there will likely be TSW on areas of your body you've never used the steroids on before.
Does steroid use for two months also cause TSW? I use mometasone furoate 0,1 for couple weeks and then some chinese lotion that turns out contains steroid as well..
@@TSW.healing I got 10 grams of mometasone, but I ain't using that down to end, maybe half of it. Because after two weeks of regular use my skin get better and then I stop using it. Three days after that, my eczema came back, and then I use the Chinese zudaifu cream, maybe 15 grams. I also use a Chinese cream named BL cream 7 grams, both contains clobetasol. Sometimes I even compare them with mometasone. But none of them i use down to the end. and I only bought them once. I was under a lot of stress at the time, so anything that people recommend I'll use it.
@@fatyaalkharijah3336 Yes, you can definitely develop TSW in that time because clobetasol is the most potent steroid available on the market! Out of desperation, I used that stupid Chinese cream too! I've had TSW for 4 years now, but I used the Chinese cream for about 3 years. It's pure poison.
Started to develop TSW after getting of steroids and rinvoq because I wanted to conceive. I am five weeks pregnant but now struggling with all of those TSW Symptoms. Is there any tips for pregnant women?
Hi. I'm sorry to hear that all the symptoms came back. TSW can be a long process. All the info on this channel also goes for pregnant women with TSW. So really look deeply into all possible internal and external triggers and try to avoid them. You can find a lot of info on this channel about possible triggers and irritant exposure. Avoid moisturizers. Keep the skin clean as best as you can by showering and saline solution on cotton pads. Act immediately if you suspect a bacterial of vital infection (seek medical care). Try to optimize sleep. Have light exercise and daylight exposure. If you happen to live near the coast in a warm enough region, that late afternoon sun and sea exposure will be very beneficial. I think you can use red light therapy safely when pregnant, but not on all parts of the body (but you can research this to be sure). Most pregnant women do experience a flare around birth (before and after) because of hormonal fluctuations.
Hi do you think dryness and flakiness is a good sign in TSW and means that im very far in the process of healing and should i peel of the flakes because flakes triggers and its possible to reduce deep bone itching or its impossible because the tingling is so not managable
Hi. Dryness and flaking is indeed a good sign for TSW skin. It is a sign that the skin is proliferating and trying to rebuild skin thickness. It does not mean you are very far or not very far in the process of healing. The skin will keep flaking and flaking from the beginning of TSW until approximately 70 % skin thickness has been reached. At that point the skin looks normal again, but is still thin and sensitive. The skin can still flare very easily at that point, from irritant exposure or any other trigger. Flakes do tend to get smaller over time. In the beginning of TSW skin flakes are usually big and in later stages much smaller. So this is a sign that you are further in the process of healing. It is best to keep skin flakes on the skin. By picking or rubbing them off, you can create damage to the fragile skin. Also the skin flakes provide some protection against irritant exposure. By watching the rest of the videos on this channel, you will have a better understanding of the whole process of TSW. Best of luck!
@@TSW.healing i am starting to see smaller flakes and areas where there is barely any flakes but the skin looks thin still. I am six months into tsw and I do not listen to people’s recovery time as we are all different. If I get a flair up, it takes a couple weeks to get to where I was before the flair up. Every day without steroids is a wining day, even if it doesn’t feel like it. slow and steady wins the race.
@@chrisbrowning550hey can you please help me like how ur flare up occurs an wht do your skin feel at that time i am generally getting on my chicks red hot
I don't know what is happening, but my skin first become red then in 2 or 3 days it dry and within a week it completely disappear and then the next day same cycle happens. And it last for 3 4 months. BTW it is only on my neck whereas my whole body is completely cleared. So it is a way of healing ?
Yes sure, it sounds like you are not a severe case of TSW, only your neck area and that your healing is going well. Try to avoid irritant exposure and other triggers that make your skin flare. Even it you have a mild case of TSW, you'll have to try to avoid these triggers for a while to have a good healing rate. You can check the videos on this channel about 'Triggers that delay the healing rate of TSW' and other clips about irritants. Best of luck!
Hi, in terms of supporting the healing process, there are many things you can so: - avoiding irritant exposure and other triggers (you can find a lot of information about this on this channel). This is very important for a good healing rate. - put your body in a good healing state (sleeping as much as you can, eating healthy food, try to have a positive mindset etc) - infra red and near infra red light has proven scientific effects. - using moisturizers on TSW skin is not recommended (to avoid the risk of getting chronic hardened skin) - in case of a skin infection, act asap and get medical treatment (infection can delay your healing rate) - CAP treatment (Cold Atmospheric Plasma) can speed up the healing rate significantly (when the device used is powerful enough) I hope this is helpful. Wishing you a good healing process!
If you are in the process of healing TSW, then it's best to put nothing on the skin. The skin is very sensitive and thinned and moisturizers can irritate the skin to the extent that your skin starts reacting with a protection mechanism, creating hardened skin. To avoid the development of hardened skin and a delay in the healing rate, it is best to avoid moisturizers. The itchiness is part of TSW. There are 3 types of itchiness: 1. healing itch. This is the same itch that you can experience when a wound is healing. It is part of the healing process and cannot be avoided. 2. itchiness from irritant exposure or an allergen. This itch is avoidable if you are able to avoid the irritant or allergen. Also anti histamine tablets can help with this type of itchiness. 3. itchiness from a skin infection. In case of a skin infection, you need medical treatment.
I have been living with TSW for over two months and have dry skin with some redness still. My skin is flaking but in very small pieces, so I do exfoliate once every morning very gently with a soft towel. I have had some small areas weep for a few hours but they are drying up now and I still have swollen lymph nodes in the groin area. I have been giving Methotrexate which I started a week ago to help calm my immune system. I have stuck to a NMT( no moisture treatment ) for most of the time and making sure I have enough Protein and vitamins every day. If anyone is going through this please stay strong and remember for every day that goes by, you are winning!
Its a real struggle my dear. My 4yr is going through this he does not sleep at all and its affecting me mentally
sorry to hear that about your child. I have been on Methotrexate for 5 weeks now and almost all my symptoms have gone. I am back to sleeping normally and going out each day for walks. I plan to stay on this drug for at least a year and then see what my condition is like when tampering off it. I can also use biologic's if needed but i am taking one step at a time. I really hope your child can get well soon. I only used a cream for one year and this was the result! crazy!!@@colinmutumbi7121 🙏
It’s because are cells are sensitive to B3, which case us to have a niacin flush. Do not use lotions, throw them away. Work on doing (NMT) No moisture technique. You want your limit the amount of water you drink and no more hot showers. I take ice bath and wash up in all cold water. Do not take oat meal bath it suffocates your skin to be able to breath just like lotion. You want to fall asleep before 10pm and try sleep as much as you can this helps the healing. I also do long term fasting . Work your way up at first. Longest I’ve fasted for was 72 hours and helped my skin so much. But limit your b3 intake. I’m over 4 years of tsw.
Usefull information about NO hot baths - May be warm ?🤒
@@TheShamwari oh I take them now, just when your skin is bad and flaring. Cooling the body temperature helps with calming the flares. Also I’ve been taking liquid melatonin/potassium drops and have seen wonders with my skin. Also have more energy and sleep better
After you recover, does the original problem come back, ie eczema?
That is very case dependent. For me, until now I have the best skin ever (I had eczema since baby). I don't have any eczema at the moment. But the root cause of eczema can be very diverse, so if the root cause is still present, yes, then eczema is still there. But what other ex tsw patients report is that their original eczema is peanuts compared to the suffering which they had during tsw and that they manage to live with it very well. (finding out your tiggers (stress, foods, contact allergens, alcohol use, etc) and what helps your skin (like sun and sea vacation planned during winter time or moving to a better climate for your skin) can both massively help with the management of eczema and even clear it completely if all triggers are found and addressed.
How is a flare defined? I hear the words cycles and flares but struggle to know the difference. My body for the most part is just dry with thick elephant skin on elbows and behind knees but my face tends to go through the shedding, bleeding and sometimes oozing the most. Can have better periods in between but never totally normal. My forehead in particular seems to be affected the most. This has been case for 2.5-3 years and I'm 23 months steroid free so just trying to figure out the phase I'm in.
Hi! A flare is when the skin becomes red and inflamed because of a trigger. Watch the video on Triggers that delay the healing rate of TSW + Phases of Wound healing on this channel to understand what triggers are and why they cause a delay in the healing rate of TSW skin. In the beginning of the TSW healing process, the skin is continuously inflamed and red (explained in Symptoms of TSW explained). But at a certain point the skin is getting a bit better and a bit stronger, with lots of flaking. Flaking on TSW skin is a sign of healing. It means that new skin cells are being made. When the skin has been flaking and healing, but becomes red and inflamed again, there must have been a trigger. Finding out your triggers and avoiding them is key for a good healing rate of TSW skin. Especially irritant exposure is often overlooked. Please watch the video on Triggers that delay the healing rate of TSW on this channel. Many people go to cycles of flares before they heal. Good luck!
@@TSW.healing I see. I'm flaking and a bit red underneath. I'm not bright red like I was during the addiction phase over 2 years ago. Does removing flakes make any difference to healing? The skin can sometimes be a bit damp underneath if I do that but generally it doesn't do anything and the cycle just repeats the next day. The level of flaking varies aswell but my skin is never totally smooth.
@@F_Arrow95 Hi. Skin flakes should be kept on the skin to have the best healing rate. The skin is thinned and impaired, so rubbing the flakes off can cause little wounds or sometimes even oozing spots. Also the skin flakes provide some protection against irritant exposure. It may not look nice 😉 but is best to kep them on your skin. Good luck !
@@TSW.healing Thanks! Yeah it's just tough to resist first thing when I wake up because it gets a bit itchy. As long as it's not affecting healing too much then it brings me some comfort.
Hey can you explain when do you get flare ups i am having on my chicks
Hi, any difference between psoriasis/eczema biopsie and tsw biopsie?
The problem with the soles of the feet is that over time, calluses form over them again and then they feel like armor. And underneath, after a while the inflammation flares up again, followed by insane itching, redness and hundreds of very very tiny gray dots (I almost suspect that it is dyshidrosis). I had a total of 4 biopsies on the soles of my feet. The first (2013) could not verify exactly whether it was psoriasis or eczema. The second (2016) showed eczema. The third (2017) and fourth (2023) both showed psoriasis.
Hi, this is a recent study in which also biopsies of tsw skin is discussed:
www.medrxiv.org/content/10.1101/2024.04.17.24305846v1.full?fbclid=IwZXh0bgNhZW0CMTEAAR1asUs5-NTZRhiktX7iGw2pGblaqsbX74KPw6BNaL2L5h90iGA_SPi5UOs_aem_AT5oU6uDEbQnwA6p4tVX8S9piNK4CFFBs800VshEw3cRYbRim9vEIqPcKxEYq7lZuZYAoqcNHolwbXMVQ9zJMSvx
I hope it is helpful.
I have been using steroids creams for 2 months straight i just noticed my skin cant fo with yhe cream, if should stop it i just get rashes and I decided to make research to find i have TSW😭😭
Please help me I can’t find a case like mine. I used neomycin polymyxin with dex (steroid) .01% for 8 months on my eyes. I stopped and immediately got rash on my eyes. I am in week 3 and rash is now spreading to arms very slowly and hands. Does this mean I have a mild case? I didn’t suffer from eczema prior to this or any skin conditions.
It depends on the dose (how many bottles) that you have been using. (so not the length of time). You might have spread the steroids a bit by rubbing in your eye with your fingers and then touching your hand and arms. Usually a period of 8 months of steroid usage does not give a person severe TSW, but as mentioned before, it depends on the dose. It's not very likely that you are a severe case since the rash has spread only to your hands and arms and not full body. Although what you are experiencing is still very uncomfortable and intense to go through. Best what you can do at this time is check all the videos on this channel so you understand better what tsw is. Also: avoid moisturizing and learn about irritants and avoid irritant exposure and other triggers until your skin is healed. I wish you the best healing rate possible.
I've spent $70 in the past month on lotions trying to nail down the cause of my daily flair ups.
Most lotions have harmful chemicals it’s best to use organic moisturizers . Try to limit/eliminate soy gluten and dairy from ur diet. Wash laundry with baking soda or detergent that’s very very mild
A family member is going through this and we only use vaseline when needed, for example when he can't move because of his dry skin.
I use oral steriods for my eczema instead of topical ones. is it as bad as topical?
Yes jay they in some cases can be even worse but it just depends on how long you’ve been using them and how strong they are, but you never know with TSW some people don’t even develop symptoms and some do it really just depends on how your body reacts. I used one of the weakest creams out there that was over-the-counter. And I’m coming up on two years with TSW. I’m almost healed all the way up now but it really is just unique to your own body.
@@selective288Glad to hear that you are almost healed. I use oral steriods whenever I have flare ups, 1st 2 days 40mg, 3rd day 30mg, 4th day 20mg 5th- 7th day 10mg of steriods. that was prescribed by my dermatologist.
Can TSW happen in my ear? I was put a cream that contain steroid in my ears because my ears feel dry..after that, i stop using it..i notice that my ears become red, flaky, and sometimes itchy..is it TSW ? Or psoriasis?…other thing, does TSW and psoriasis look same?..other than that, now my ear has flakes..i want to ask something..when i peel the flakes, the new flakes will form ? Or no flakes anymore after i peel it? Tq
Yes, it absolutely can! I used steroid drops in my eyes and got TSW in my eyes. New flakes form after you peel the old flakes. :)
Hello, I never put steroid in my ear (sometimes behind the ear) but I have oozing IN the ear. So, everything can happen. It's true that TSW may look like psoriasis, that's what I thought I had on my hand before learning more about RSS & TSW. To answer your last question, whatever you do (peeling) or not, the flakes will form again and again until a day it stops itself. But yeah, try not to peel it :/
You are nor alone i also have it inside the ear
@@IsaBella-yr1rz just use hyaluronic acid lotion. Hada labo premium lotion. The gold one..make my rash inside my ear disappear..the key is “NO STRESS”
This timeline is completely off for our experience
Hi Vicky, I'm sorry to hear that you, or a loved one is going through TSW. And I'm hoping you are doing well and have a good healing rate.
The timeline of healing can be different in the following cases:
1) - the lowest point can be later in time in case of triggers that delay the healing rate of TSW (such as not enough sleep, stress, alcohol use, exposure to allergens and irritants). To understand Triggers that delay the healing rate of Topical Steroid Withdrawal, you can watch the long version on this topic (video nr 3 on this channel). Many TSW patients also experience flares during their TSW healing process due to these triggers.
2) - some topicals can have irregular timelines. This has been observed in a small percentage of cases after the use of a certain immunosuppressant cream and a certain high potent steroid cream. In those cases the patient may experience a period of good skin, but when the skin gets triggered, the patients still goes (back) into TSW.
Important in this video is understanding the role of irritant exposure. This is a trigger that can slow down the healing rate of TSW considerably, but many TSW patients are not aware of irritants in their environment. This is because a normal healthy skin does not react to irritants. Also a thinned skin which is treated with topical steroid creams does not react to irritants (the reaction is suppressed because of the use of the TS creams). But when a person stops using the steroid creams, these irritants become a problem when someone is going through TSW.
Also important in this video, is understanding that when the skin starts looking normal again, it has reached only 70% skin thickness. It's still thinned, very fragile and sensitive and you can easily flare from all kinds of triggers.
Take care, and wish you all the best!
@TSW.healing thank you for your well wishes. Is it your opinion that this is his eczema triggers and not the TSW then?
Hi Vicky,
No, it's not like that. TSW skin is thinned and impaired skin. This is why it can react to many things and cause inflammation. Even airborne chemicals like perfumes, air refreshers, fragrances in cleaning detergents etc. but also dust, hair from pets, chemicals on new clothes or furniture, chemicals from a printer, or from paint and glue etc can cause TSW skin to flare. Many TSW patients are not aware of this process. They are not aware why they flare ;)
Avoiding irritant exposure will lead to a better healing rate of TSW. :)
@@TSW.healing Well, that could be anything. And how do you then determine what exactly triggered the flare-up? You would have to be locked in a sterile room, that would probably give you the best chance of recovery.
Btw: I have been using cortisone/protopic on the soles of my feet for 11 years. At the end, I used the strongest Clobetasol for about 2 years. Now, I haven't had any cortisone for 11 months and no Alitretinoin for 5 months (because of hand eczema). I also had cortisone therapy on the palms of my hands for 3 months at the beginning of 2023. My hands only got worse under alitretinoin therapy for a total of 7 months. At the moment I'm even without moisturizer because I suspect that it just fuels the inflammation.
It's incredibly difficult because you always need your feet and hands and they tear open with movement. The most challenging situation in my life and that for 11 years. If things really do improve over the next year due to cortisone withdrawal, then these gentlemen can hear something from me.
Great video, thank you. Just one question, can TSW come back after years of having no steroids? Say 9 years?
Hi, It is very case dependent. It depends on the healing timeline and circumstances. The healing timeline of TSW can be very long. I have met several people who have used over a kg of high potent topical medication. In that case the healing time line is long (decades). That doesn't mean the person has open, impaired skin that long, but the skin cell proliferation rate is not back to normal yet and there is still skin atrophy (thinned skin), which makes the skin more sensitive.
As an example: someone has an estimated healing timeline of 20 years. Phase 1 will take 5 years. At the end of Phase 1, is when the person reaches normal looking skin. But at that point the skin is not fully healed yet at all. The skin may look normal at, let's say, around 75% skin thickness (this is an estimate and serves as an example), but is still thinned and hyper sensitive at that stage. The skin can very easily flare at that point from all kinds of triggers (watch Triggers that slow down the healing rate of TSW). But over time the skin quality improves. The skin gets more strong and a bit thicker. At the near end of Phase 2, this person will be into TSW about 9 years. At this point flaring does not happen easily anymore, but can still happen (for example: the person moves into a new home with lots of chemicals in the air). So yes, in case of a long healing timeline, 9 year into TSW, a person can still flare.
Other example: a person used a much smaller amount of high potent topical medication. And , for example, this person has an estimated healing timeline of 4 years in total. Phase 1 being 1 year (with visible TSW symptoms). After 4 years the skin cell proliferation rate is back to normal and the skin thickness as well. In this case, if something like a big rash happens 9 years after using topical medication, this is not related to TSW anymore, but is more likely and allergic reaction to something or some other (new) root cause.
I hope this makes things more clear.
Is there a way to make it go away?..”
This is exactly what I have …
Where is the TSW appear on skin? the TSW appear on the skin that we have put the steroid cream? Or whole body ?
From my experience it can spread anywhere. I have a rash over 80% of my body but I only used the creams on small areas of my legs and scalp.
@@chrisbrowning550 how long do u use?
Usually it starts on the area you've used the steroid cream on, but it usually spreads throughout the body. Not everyone gets full-body TSW, but there will likely be TSW on areas of your body you've never used the steroids on before.
@@yourTSWgirl my TSW is almost full body. I used a cream on my scalp and legs abut tsw is everywhere. Lucky my face has very little.
Does steroid use for two months also cause TSW? I use mometasone furoate 0,1 for couple weeks and then some chinese lotion that turns out contains steroid as well..
Hi. It is possible, but it depends on the dose that you have been using. So how many tubes x grams per tube.
@@TSW.healing I got 10 grams of mometasone, but I ain't using that down to end, maybe half of it. Because after two weeks of regular use my skin get better and then I stop using it. Three days after that, my eczema came back, and then I use the Chinese zudaifu cream, maybe 15 grams. I also use a Chinese cream named BL cream 7 grams, both contains clobetasol. Sometimes I even compare them with mometasone. But none of them i use down to the end. and I only bought them once. I was under a lot of stress at the time, so anything that people recommend I'll use it.
Was it clotosc?
@@fatyaalkharijah3336 Yes, you can definitely develop TSW in that time because clobetasol is the most potent steroid available on the market! Out of desperation, I used that stupid Chinese cream too! I've had TSW for 4 years now, but I used the Chinese cream for about 3 years. It's pure poison.
@@XMponzio33X no, it's different. Mine is clobetasol propionate, it's a very potent steroid
Started to develop TSW after getting of steroids and rinvoq because I wanted to conceive. I am five weeks pregnant but now struggling with all of those TSW Symptoms. Is there any tips for pregnant women?
Hi. I'm sorry to hear that all the symptoms came back. TSW can be a long process.
All the info on this channel also goes for pregnant women with TSW. So really look deeply into all possible internal and external triggers and try to avoid them. You can find a lot of info on this channel about possible triggers and irritant exposure. Avoid moisturizers. Keep the skin clean as best as you can by showering and saline solution on cotton pads. Act immediately if you suspect a bacterial of vital infection (seek medical care). Try to optimize sleep. Have light exercise and daylight exposure. If you happen to live near the coast in a warm enough region, that late afternoon sun and sea exposure will be very beneficial. I think you can use red light therapy safely when pregnant, but not on all parts of the body (but you can research this to be sure). Most pregnant women do experience a flare around birth (before and after) because of hormonal fluctuations.
So why are is it still so readily available????
Because big pharma unfortunately… It’s about the money to these doctors & healthcare professionals.
Hi do you think dryness and flakiness is a good sign in TSW and means that im very far in the process of healing and should i peel of the flakes because flakes triggers and its possible to reduce deep bone itching or its impossible because the tingling is so not managable
Hi. Dryness and flaking is indeed a good sign for TSW skin. It is a sign that the skin is proliferating and trying to rebuild skin thickness. It does not mean you are very far or not very far in the process of healing. The skin will keep flaking and flaking from the beginning of TSW until approximately 70 % skin thickness has been reached. At that point the skin looks normal again, but is still thin and sensitive. The skin can still flare very easily at that point, from irritant exposure or any other trigger. Flakes do tend to get smaller over time. In the beginning of TSW skin flakes are usually big and in later stages much smaller. So this is a sign that you are further in the process of healing. It is best to keep skin flakes on the skin. By picking or rubbing them off, you can create damage to the fragile skin. Also the skin flakes provide some protection against irritant exposure. By watching the rest of the videos on this channel, you will have a better understanding of the whole process of TSW. Best of luck!
@@TSW.healing i am starting to see smaller flakes and areas where there is barely any flakes but the skin looks thin still. I am six months into tsw and I do not listen to people’s recovery time as we are all different. If I get a flair up, it takes a couple weeks to get to where I was before the flair up. Every day without steroids is a wining day, even if it doesn’t feel like it. slow and steady wins the race.
@@chrisbrowning550hey can you please help me like how ur flare up occurs an wht do your skin feel at that time i am generally getting on my chicks red hot
@@chrisbrowning550any update ? Did your skin got better ?
Im only 60% 2 years of topical steroid withdrawal
I don't know what is happening, but my skin first become red then in 2 or 3 days it dry and within a week it completely disappear and then the next day same cycle happens. And it last for 3 4 months. BTW it is only on my neck whereas my whole body is completely cleared. So it is a way of healing ?
Yes sure, it sounds like you are not a severe case of TSW, only your neck area and that your healing is going well. Try to avoid irritant exposure and other triggers that make your skin flare. Even it you have a mild case of TSW, you'll have to try to avoid these triggers for a while to have a good healing rate. You can check the videos on this channel about 'Triggers that delay the healing rate of TSW' and other clips about irritants. Best of luck!
Are there ways to help the skins thickening/healing process?
Hi, in terms of supporting the healing process, there are many things you can so:
- avoiding irritant exposure and other triggers (you can find a lot of information about this on this channel). This is very important for a good healing rate.
- put your body in a good healing state (sleeping as much as you can, eating healthy food, try to have a positive mindset etc)
- infra red and near infra red light has proven scientific effects.
- using moisturizers on TSW skin is not recommended (to avoid the risk of getting chronic hardened skin)
- in case of a skin infection, act asap and get medical treatment (infection can delay your healing rate)
- CAP treatment (Cold Atmospheric Plasma) can speed up the healing rate significantly (when the device used is powerful enough)
I hope this is helpful. Wishing you a good healing process!
What I put on flaky dry itchy skin , very itchy
If you are in the process of healing TSW, then it's best to put nothing on the skin. The skin is very sensitive and thinned and moisturizers can irritate the skin to the extent that your skin starts reacting with a protection mechanism, creating hardened skin. To avoid the development of hardened skin and a delay in the healing rate, it is best to avoid moisturizers. The itchiness is part of TSW. There are 3 types of itchiness:
1. healing itch. This is the same itch that you can experience when a wound is healing. It is part of the healing process and cannot be avoided.
2. itchiness from irritant exposure or an allergen. This itch is avoidable if you are able to avoid the irritant or allergen. Also anti histamine tablets can help with this type of itchiness.
3. itchiness from a skin infection. In case of a skin infection, you need medical treatment.
Xiu-Min Li, M.D