Eczema Warrior Amy Aston on Her Battle and Steroid Withdrawal Awareness | This Morning
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- Опубликовано: 3 апр 2024
- Amy Aston has battled eczema all of her life, but has been able to manage her symptoms with steroid creams. In January this year, Amy says her usual steroid creams suddenly started to burn her skin, making her eczema the worst it has ever been. After causing severe redness, peeling and oozing, Amy was left unable to do basic tasks and last month was hospitalised “due to severe eczema”. After returning home just last week, Amy joins us today to share her story and raise awareness of topical steroid withdrawal, alongside dermatology expert Dr George Moncrieff.
Broadcast on 04/04/2024
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Oh thank GOD a dermatologist is finally acknowledging this in public! I’ve been suffering from TSW for 3 years - it is a fate worse than death, and most of us have to battle through it alone with no support from the medical community.
Yes! It saw so many doctor, dermatologists, allergists etc and everyone just told me to get back on the steroids.
FINALLY, I went to get another dermatologist and she heard my story. The first thing she said back, without me even bringing it up, was “I think your skin is withdrawing from steroids”
She saved my life!
Ditto
I believe all dermatologist are singing hymn sheet. All say the same thing. Moisture and put the steroids cream on. The only people who seem to understand are the people who have it. I believe everyones eczema is unique to them. One type of medication won't work for everyone. These dermatologist think they know your eczema better than you which is annoying. It's a all about diet and mental health, that's how you can control, but easier said than done
Please look at homeopathy guys
I’m so sorry your having to deal with this. It’s insane the medical industry still don’t have real answers for this. I can’t recommend the Medical Medium books enough, there’s plenty of free info online too from Medical Medium talking all about the real root causes of eczema and psoriasis and how to heal it. I had psoriasis all my life and would break out in spots of it all over my body. I don’t now I’ve healed it. Yes it can be healed and reversed!! I’ve been following the protocols from the Medical Medium books, totally life changing.
Finally this is reaching the mainstream! Thank you This Morning for pursuing this. I was applying for 2.5 years. Now at 15 months of TSW I’m over the worst of it. A horrific “condition”. The whole pharmaceutical industry is corrupt. They want us to be addicted! Remember - a patient healed is a customer lost.
im in my 2nd week, mental symptoms are insane, I am literally suicidal and weeping and having nervous break downs
I’ve had TSW for 2 years this month. I’m So glad it’s getting more recognition. The worst thing about this is that there no help from doctors or dermatologists
I suffer with chronic eczema and found this to be very helpful. What a brave woman. Also the Doctor had a lovely good old fashioned bedside manner with empathy. Wish there were more like him.
😊 I thought the same he's a good guy we defo need more like him
Try Hanna sillitoe Multi strain Biotic. It all starts by improving the gut health. My daughter has eczema, had the biotic and within 6-8 weeks was clear. Sea salt baths do help Also
I really feel for this lady😢 I don’t have eczema, but I have severe psoriasis and it’s very similar and debilitating. Sending love to everyone who is suffering, stay strong💪🏼
What a brave lady to come on and address such a widespread issue of the dangers of topical steroid use. Dermatology is NOT the foolproof science backed, has all the answers solution that it professes to be. Having gone through my own struggle with painful rosacea and skincare products worsening my skin over the past 10 years and the only advice from dermatologists was to carry on using these products and once being prescribed a steroid cream which i reacted horrificly to.... I can safely say after a year of putting nothing on my skin it is Finally begining to heal. But my god the horrible journey I've been on just like this brave woman.
We honestly need to question dermatologist advice and realise that they give very blanket advice that does not take into consideration more sensitive skin types which are so so common today.
Great awareness for TSW. Sending strength and love to everyone going through it. If you feel suicidal you are not alone. You are so brave and please persevere with no steroids and letting your skin heal on its own even if it takes years.
Thank you to Amy and Dr Moncrieff for speaking out about this. I’ve been going through TSW for 2.5 years and it has been the most brutal and traumatic experience of my life. I hope the medical profession and the government are listening. This condition is ruining lives. Listen to your patients, fund more research and please take TSW seriously!
Sending love and support. Sorry you had to go through this. just curious about your experience, how is your skin now 2.5 years on?
@@emms4867 it’s a lot better. Not completely healed but I’m able to live a pretty normal life with tolerable irritation on my hands (where the steroids were). At the start of TSW the symptoms were severe and full body and I was bed/housebound for 7 months. I’m very grateful for where I am now but it has been an incredible struggle with very little support from doctors or dermatologists. I hope change is coming soon because no one should have to suffer like this, especially not due to a prescribed medication.
@@emms4867 I’m doing very much better thanks. Still a bit of healing to go but mostly doing well. Been a struggle I would not wish on anyone though.
You’re over the worst of it. I’m at 15 months now. My worst breakouts were at months 9 and 12. Getting better now though.
Wow so glad of this awareness my son has suffered from TSW since November and has been healing since through health coaching. I refused any more creams and was gaslit by the dermatologist that it was just eczema. This is not just eczema it is a debilitating condition caused by topical steroid creams period, I am so happy this has been brought to the public attention. If anyone wants support please reach out as I can share what Iv done to support my son.
Any advice would be helpful. Thanks
Thank goodness it’s being spoken about in the media! Feeling validated !
This brave girl speaks for many. Dermatologists listen and listen closely .
Most of my eczema and spots cleared up once I gave up dairy 👍
Dairy has huge links with skin conditions.
Diet does absolutely. I had it since a child where my skin would itch and split on my hands and knees especially. As a little girl, a boy called me "alligator skin". But my parents fought hard for me from UV lights to taking me to salt water beaches to steroid creams. Diet was improved when I got older and I really watched eating around my triggers. I can have diary now where I couldn't back then. But food and some seasonal allergies still remain. God has just helped me be free from the more heavier part of it.
The pain of a doctor telling you steroids are "your only option" is unbearable when you know tsw exists. The fear of being stuck between steroids and uncontrollable pain with no offered alternative is heartbreaking and it's amazing to see people speak about it publicly 💕
I have been suffering with atopic eczema so good to have this on here
Amy you are strong beyond words! The symbolism of that butterfly shirt is not missed on me girl!! You are in the throes of such a devasatingly painful metamorphosis and the humble grattitute you showed for your friends and family demonstrates such profound inner beauty witnessed only by those who also know the depths of this kind of suffering. I was in your condition for what felt at the time like eternity. My withdrawal took four years, the first two severe, full body, and debilitating. The later comprised of many good months followed by surprising and long heartbreaking flares. It seemed to define my whole existence, because everything else about me seemed to be stripped away. I'm fully healed now with minor rashes here and there probably not worth mentioning. I swim in the ocean, run and sweat, wear makeup and perfumes, and revel in the softness of silk of chenille! I know you will arrive at this place too and will be utterly overwhelmed with peace and relief if you can only survive this. It's okay if you don't do it perfectly or know exactly to be really good at being chronically ill, but if you can just live through it, you will be met with an answered prayer. And that feeling will come back over and over again in simple and quiet ways, like some future day when you dip your hands into a cold stream to splash your face. And I know that day is not here now, and so this distant fantasy might come across as empty words. So, if I can offer you one thing now, it's the recognition of the indestructible light within you. If you cannot have physical ease, then I pray you have peace from knowing you are strong and you are loved and you WILL endure!! All my best Amy. -Amanda
Beautiful words ❤. Love from a TSW caregiver
My heart truly goes out to people suffering with this debilitating condition. One of my children suddenly broke out when he was only 4/5 months old and thankfully grew out of it but there was a period of a few months before we got referred to the children’s allergy clinic when he would scratch so badly he would bleed, sleep was disturbed etc it was so awful.
Love her, nothing to be ashamed of, i know many people with it, it doesn't matter
For those doctors who have always given me topical steroid creams and laughed in my face when I told them I'm in TSW and I don't want any steroid, they should be re-educated!
It’s honestly a joke. They say that the cream should be applied for the short term, no more than 2-4 weeks, but when you tell them that you’ve been using for months/years it’s a disgraceful contradiction to they tell you to keep using!
Great program My daughter in law suffers terribly with this condition and it's so good to see it's getting g some recognition thank you
i’ve had eczema since birth too, it’s getting better now, im 22 and focused on my diet or triggers and have started training at the gym. my skin has never been better.
you need to figure out the triggers and work round them. I really feel for her, i know exactly how she feels, I was at the lowest points of my life when mine was bad.
I’ve been through this over the past year and it’s completely soul destroying. Was sent to 2 specialists who tried to prescribe me more steroids. It was an experienced nurse who listened and understood. Ended up having UV light therapy which was pretty good. Not out the woods yet. Just know that there are others out there that are also suffering. You are not alone.
How’re you getting on now? I tried UV but it didn’t work for me. I’ve made much better progress since quitting alcohol and sugar.
@@robertthomas1154 I’m still in the healing phase but way better. Yes quitting alcohol works. I found if I had 1 drink my skin would burn. Very odd. But must be due to dilation of blood vessels. Sorry UV Didn’t work out. Are you going to try any other methods?
@@FizzWizard congrats for getting better. It’s a long journey. I live in China so I’ve tried various traditional medicines here. Acupuncture helped but I really hated the needles. I bought “The eczema diet” book a year ago, I’m glad I did, following the instructions helped a lot too.
I was on steroids for a week and I looked like a hot mess. I was so bloated and swollen. It only masked my symptoms and once I got off the steroids my symptoms came right back in full force. Never again will I agree on taking steroids.
My heart goes out to you. It's awful.
Prescription steroids are the first medication doctors go to. Steroids have to be used so carefully and minimally. When your skin breaks down like this it leaves you so vulnerable to infection. Eczema is so personal to the person, as what suits one doesn’t suit another. Speaking as an eczema sufferer and parent of a child diagnosed with acute eczema at age 4 months. I find diet is very important, sleep, keeping healthy, natural fibres, non scented cleansers, natural products and recently no gluten or lactose. As I say everyone is different and I am so sorry Amy and others are experiencing TSW.
I have been suffering with the same for 30 years on and off. And only within the last few years was it at its worst. I stopped using steriods for a number of years now, but i do get waves of withdrawals, right now i am at my worst so i hope things get better.
My son had eczema shortly after he was born , one midwife thought it was a heat rash but advised to make a doctors appointment , year later 2009 i ended up with eczema
It's amazing to see this... like this woman, iv been using topical steroids all my life... stopped using them in January this year... my skin has been constantly itching oozing and stinging and I haven't been able to sleep consistently for months... as the dr said i am of those who cant use my emollients as they sting to wash even stings..I can't even wear underwear and have to wear very light clothing.. so I went no moisturise and changed my diet ... low hystamine, hi protein diet, no dairy diet...drink lots of turmeric tea with vit a c b12 b5 and 6 and vit d.. now my skin although still very itchy has calmed down alot...it now wants oils as it has become very dry...it's hard but I would never go back to that poison of topical steroid.... the pharmaceutical industry need suing as far as I'm concerned.. Dr's need to look in to holistic therapies that they've been opposed to for all these years they will find some answers there...
Been on severe eczema and topical steriod withrawal myself for 9 mos and now I am clear. Frustrated from all my dermatologists I had to go to a functional doctor. must say I had to fix my leaky gut to heal from the inside. having grain free anti inflammatory low-carb and high protein diet, exercise, daily morning walks, and supplements like probiotics,digestive enzyme, zinc, fish oil, turmeric, glutamine has worked for me tremendously. Going to a functional doctor who knows about leaky gut and tsw will definitely help fix it.
This is similar to the regiment I put my son on , it's nice to hear its helping others too 😊
Just read an article of a girl who suffered from Topical Steroid Withdrawal symptoms and got better after using the 'no moisture treatment': no use of a moisturiser, a few cool showers a week, moderate exercise, and reduced water intake
Thank God, her skin started healing some weeks after.
I’m sorry to hear about this experience - I have atopic dermatitis and that alone is exhausting: even when the skin isn’t ‘flared’, it’s incessantly dry and sensitive. Topical steroids work but as soon as they’re stopped, it starts coming back and then it’s another month of watching your skin flare before allowed to start steroids again. I don’t feel safe in the hands of dermatologists (my referral wait time is a year long), but I dearly hope all who suffer with it start receiving better, more empathetic treatment soon, with higher quality emollients available on the NHS (eczema can be EXPENSIVE!)
It’s so unfair that some people suffer with this. I know so many people who have this and it’s just horrible. It must be awful to be massively itchy and sore all the time. Steroid cream is so harsh for the skin, no wonder it inflames already inflamed eczema skin 😢I hope this woman’s skin improves, it’s just so unfair
Brave amy 👏 we will get recognition we deserve
I believe my son is suffering TSW, after been prescribed steroid creams from the age of 9 months to age 16, he was also prescribed protopic as well, which I also thinks adds to suffering.
Protopic was what kicked my son into TSW the withdrawal is sometimes worse and was in his case
Topical steroids withdrawal is very real and fairly common when coming off steroid creams.
Best thing to do is go down the natural remedy route. Personally I found Ayurvedic treatments work best for me.
I have seen some serious cases like Amy's on TV and YT lately. I can't imagine how terrible their situation is. I have eczema that is 5-10% of what they have, but even that is terrible. Doctors have to educate themselves in waiting for better medical treatment.
Working with private lab testing under the guidance and support of a naturopathic or functional medicine provider is KEY. Don't treat the symptoms - address the root cause.
I am now 2 years and 2 months with TSW. I am under the care of Dr. Rapaport and from reading all his work and studies, he has always said that eczema usually wears off at a certain point, but eczema does not burn and itch as bad as going through TSW. I'm in California and my general doctor and dermatologist does not want to recognize my condition. I've been through a whole lot and testings that they gave me and it was on my own when I found out that I was suffering with TSW. It's a serious condition and nothing can be done but hand holding and maybe a sleeping med and a medication for itch, but that's it. Just have to go through the motion.
Thank you This Morning for raising awareness of TSW. I'm 8 years in and still have flares. Steroid creams are not a long term solution for skin problems.
I've experienced something similar on my hands. I stopped the steroid cream and did my own research and bought a cream from Eucerin that actually helped. Steroid gave me a reaction and I'd still itch and have disturbed sleep, and swelling, cracked hands. Very sore and painful! Thank you for raising awareness. Steroids are not a long term solution
Also make sure to check if your intolerant to any food as that is a main cause. I had issues with severe excema Milk, Sugar and Yeast was the cause. In regards to Meds. Cyclospolorine is a good for for a couple of years. Dupixent injection might help but again look at what food you might be intolerant on
Really feel for anyone who suffers from this, it’s a horrendous condition. I myself have had eczema on and off since a young age and have used ointments and creams too, not understanding that it’s a gut imbalance. I have found avoiding dairy, gluten and sugar has really helped my skin. I can’t recommend a good nutritionist enough to help with this. Agree with others here, functional medicine route is the way to go. Please do see a nutritionist or kinesiologist, it will really help you. I pray you will get better 😢
Changing your diet and removing milk protein containing products is very helpful.
My eczema improves when I eat a strong probiotic like Cocoyo yogurt. I'm definitely allergic to even the tiniest trace of black mold on the skin of onions, even if the skin is peeled off. Eating lots of cocoyo suppresses the eczema response. Good luck to everyone. Following an anti inflammatory diet helps as well to control the eczema.
Yeah but this particular subject is about a damage effect from steroids in itself. Changing cortisol function of the skin, messes with Th levels, vasculqr constriction and nitric oxide.
My child suffered exzema and they pushed steroids and I said no. His evzema is gone but there are food issues - food allergies that lead to exczema. It is a gut issue, address gut problems and you will cure it. It is not skin issue, its a gut.
Try taking mineral oil. My father had firery eczema and for about 3 straight years he lost so much weight... Was always freezing cold... Itching and flaking all over the place. Fortunately his face was about the only part that was not effected. He started taking mineral oil every day and his skin cleared right up. It took a couple months before the skin started to feel soft again.. But the extreme itching and pain noticeably diminished within a few days.
Hanna sillitoe Multi strain Biotic works well. You have to start with improving gut health. Its cleared my daughter's eczema.
I have been incredibly irritated at the medical profession not acknowledging steroid withdrawal and there isn't enough research on it either. Its pathetic really meanwhile so many people suffer with it. Madness!!
😢
Homeopathy was the answer for me, please try it. I struggled for over 20 years. I tried creams, steroids, different foods, avoided foods etc and I tried homeopathy and it changed my life. It’s an alternative medicine and encourages the body to heal itself
AMY sweetheart. How about asking DR VIVEK JOSHI (with over 2Mil subscribers) whether his DIY Fermented Rice Water would help? 🤔🤔 He has JUST uploaded the most simple NO FUSS NO COOKING etc. recipe on his channel.
i have eczema and acne..
Blackcurrant seed oil helped my eczema a lot, nearly dissappeared.
I had this then started using over the counter cera ve and never looked back. Wasted 3 years listening to doctors who gave me steroid cream that ruined my skin.
Why has she not tried Dupixent?
I can’t speak for her of course, but many of us who have been harmed by medications, as is the case with topical steroid withdrawal, are understandably fearful of turning to other medications to solve the problem, especially as there is currently no research into effective treatments for TSW.
Dupixent has its own bad side effects
This has its own issues too and once an injury has occurred from medications it is hard to trust.
Dupixent is the best thing that ever happened to me, it's so freeing knowing something finally works, I had severe atopic eczema all my life , in and out of hospital all the time and dupixent was an absolute godsend when I got put on it the second it was available
Dupixent messed up my daughter's skin around her eyes horribly and she still hasn't recovered completely a year later after being off of it.
Zoe bee beauty. Can you help this lady? X
I wonder if red light therapy would help
Tried it, it didn't help my daughter
Tried it slightly for my son but he wasn't keen and did not think it helped much
Go with natural remedies
Removing gluten from my diet is a life changer. Removing dairy and sugar will also help. Read up about the gut microbiome. I highly recommend Metagenics Vitamin D3 5000 to 10 000 international units per day is also a game changer. 10 000 international units use on a temporary basis
Total agree
Diet is not always going to be the answer. And what helps one person is not going to help everyone. Amy, the woman in this video, stated she has celiac disease… so she never eats gluten anyway.
@@abbyk9774 but the likelihood that she has replaced the gluten with so-called "Free From" products filled with preservatives, refined maize, stabilisers, preservatives, SOY and other junk is very high. The fact that they didn't even MENTION her diet is crazy.
@@minionsgamespuzzles So true!!
@@minionsgamespuzzles totally agree , my son is well into his healing journey after I overhauled his diet as soon as it happened. Its not all diet its lifestyle too but food is the medicine whole foods
You have to withdraw from drinking and smoking and eat healthly it starts within.
The clues and answers lie with the patients. Doctors: please believe your patients!!!
I had worse eczema.
Where are Ben and Cat ?
Not being funny but drinking more water and Hydromol cured my severe eczema. I stopped all steroid treatment and avoided my allergies.
get her on the carnivore diet see what happens
PLESE READ! I had this for 7 years. Now I have perfect skin, thank the Lord. My advice. 1. Get a blood allergy test. Find out what is causing your leaky gut to cause eczema. Avoid those foods that show up you are allergic to. Limit sugar and alcohol. 2. Stop the steroid cream, instead for your face, use a cotton round (never use a wash cloth) and put bioderma miceller water to cleanse the face. Then use the la Roche posay Tolerane sensitiv cream for moisturizer. On your body, use Vaseline Sensitive Skin Relief. Stay away from baths and stick to showers. That’s literally it, be consistent and you will see results.
"Eczema warrior" 😅 these kind of stories wouldnt have been around if Phil and Holly was still here
Exactly I was thinking the same
It’s not eczema though, nothing like it, it’s TSW. This condition brings grown men to tears and suicidal ideation. It’s the most unbearably painful suffering imaginable and it goes on for years.
@@Naiella-ys9yo the actual story wasnt what i was getting at. Read my comment again
@Naiella-ys9yo agree its mistaken for eczema and as a result of lack of awareness from the derms they dismiss it and keep on prescribing 😮😢
@@shaunsowter3329 can you spell it out for me then? What are you getting at?
I wonder if THC or CBDsa would help!?
I dont have ezcema 😭😭😭 what i have now is topical steriod wiyhdrawl😭😭😭😭
You poor poor soul ❤️🩹. I am so sorry this happens to you. I also suffer with eczema and I find it so heavy on my life, I can only imagine how much it makes you suffer. I sincerely hope more funding and research is put towards eczema. It is not “just a skin condition”, it is life debilitating.