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TSW - Topical Steroid Withdrawal
Добавлен 18 фев 2020
Understanding TSW and sharing knowledge with the TSW community. Support for your healing process. information on CAP treatment for TSW. And sharing of my personal healing journey.
Please support this channel if this information is helpful to you:
paypal.me/supportTSWchannel
Or
whydonate.nl/en/fundraising/support-tsw-community
I spend about 4 - 5 hours daily on answering questions, learning more and making more material. I love it that this info will be available for free, so hopefully many people can benefit from it and heal faster. At the same time life is happening and is costly 😆 so I really need some support to keep on going and finish this project. I have at least 20 topics to cover !
Thank you so much for your help !
💛🌟💛🌟💛
Please support this channel if this information is helpful to you:
paypal.me/supportTSWchannel
Or
whydonate.nl/en/fundraising/support-tsw-community
I spend about 4 - 5 hours daily on answering questions, learning more and making more material. I love it that this info will be available for free, so hopefully many people can benefit from it and heal faster. At the same time life is happening and is costly 😆 so I really need some support to keep on going and finish this project. I have at least 20 topics to cover !
Thank you so much for your help !
💛🌟💛🌟💛
Chronic hardened skin and chronic elephant skin during Topical Steroid Withdrawal - TSW
Chronic hardened skin and chronic elephant skin are preventable. Education is key. For a more detailed explanation on these conditions, you can watch the video on this channel on this topic which includes drawings (on paper 😆) to explain what is happening in the skin in more detail.
#topicalsteroidwithdrawal #redskinsyndrome #tsw #hardenedskin #elephantskin
#topicalsteroidwithdrawal #redskinsyndrome #tsw #hardenedskin #elephantskin
Просмотров: 1 733
Видео
Why do you flare during Topical Steroid Withdrawal ( TSW) ?
Просмотров 1,2 тыс.Год назад
During the first couple of months of the healing process of Topical Steroid Withdrawal, the skin is red all the time. This is because of vasodilation and inflammation. Also the skin is very thin, so the redness of the vasosialated blood vessels shines through even more. But at a certain point this phase is left behind and the skin starts to flake a lot. The skin has a lighter color, sometimes e...
Things that slow down the healing rate of Topical Steroid Withdrawal (TSW)
Просмотров 2,3 тыс.Год назад
To have a good recovery rate of topical steroid withdrawal, it is important to understand what it is, what to avoid and what things to do. Educating yourself is key, since doctors are not of much help at this point. Watching all videos on this channel will help you understand TSW and help your healing process. 🌟🌟🌟 #topicalsteroidwithdrawal #redskinsyndrome #tsw
Skin infections during TSW - Topical Steroid Withdrawal.
Просмотров 2 тыс.Год назад
TSW skin is thinned and impaired skin. So it is very easy to get infected. Also an infection can spread fast, because the skin is so impaired. Many people will have multiple skin infections whilst going through TSW. It is important to educate yourself on this topic so that you can recognize when your skin might be infected. Treating a skin infection when it is still small is much easier then wh...
CHRONIC hardened skin and elephant skin. Complications during Topical Steroid Withdrawal (TSW).
Просмотров 956Год назад
Chronic hardened skin or elephant skin are complications that can occur during TSW. It is a separate condition that can occur on top of TSW skin. Chronic hardened skin or elephant skin should not be confused with the temporary type of elephant skin that goes away by itself with time. Chronic hardened skin and elephant skin have a clear cause. The cause can be prolonged excessive scratching, pro...
Phases of Topical Steroid Withdrawal explained. Stages of TSW.
Просмотров 10 тыс.Год назад
Phases of Topical Steroid Withdrawal. Note: the timeline of healing can be different in the following cases: 1) - the lowest point can be later in time in case of triggers that delay the healing rate of TSW (such as not enough sleep, stress, alcohol use, exposure to allergens and irritants). To understand Triggers that delay the healing rate of Topical Steroid Withdrawal, you can watch the long...
What determines the severity of Topical Steroid Withdrawal - TSW ?
Просмотров 1,7 тыс.Год назад
What determines the severity of Topical Steroid Withdrawal? It doesn't depend on how many years you have been using steroid creams. Much more important is the potency of the topical steroid that you have been using in combination with the dose. #redskinsyndrome #topicalsteroidwithdrawal #tsw You can follow my healing journey with CAP treatment on my Instagram account. Also you will find a lot o...
Symptoms of Topical Steroid Withdrawal explained. Symptoms during TSW.
Просмотров 1,1 тыс.Год назад
Symptoms that can occurring during Topical Steroid Withdrawal. What are the symptoms that can occur during TSW and why do they occur? I hope this will help a lot of people who are going through TSW. If I have time I might make another video on this topic with drawings to explain all the symptoms of TSW, but for now the information is at least on this channel. I will post the rest of the intervi...
CAP - Cold Atmospheric Plasma treatment for Topical Steroid Withdrawal - Q&A - Part 2
Просмотров 1,9 тыс.Год назад
Questions answered in this Q&A: 1:08 - When can I start the CAP treatment for TSW? 2:34 - Does the CAP treatment also cures the underlying rash? 4:17 - Can I do the CAP treatment while doing NMT? 6:35 - Does the serum heal TSW? 7:23 - Can my baby or child receive the CAP treatment? 8:38 - How did Dr. Chanchai find out about TSW 15 years ago ? 11:03 - How did you find out about the clinic in Tha...
Chronic hardened skin and elephant skin - part 2 - Q&A.
Просмотров 1,2 тыс.Год назад
Q&A on chronic hardened skin and elephant skin. Questions answered in this video: 1. I heard somewhere that elephant skin is caused by the loss of collagen. Is this correct? 2. Can all moisturisers have a negative effect when used on open or broken skin? I hope this video is helpful.
Chronic hardened skin and elephant skin during Topical Steroid Withdrawal (TSW) explained.
Просмотров 6 тыс.Год назад
Mechanisms and causes of CHRONIC hardened skin (HS) and CHRONIC elephant's skin (ES) explained. Thank you to everyone who was so kind to provide me with photos of their skin. This has been extremely important and helpful in creating this video. And thank you Jay for allowing me to share all the knowledge and expertise on TSW that has been gathered at the clinic in Thailand over the last 15 year...
CAP - Cold Atmospheric Plasma treatment for Topical Steroid Withdrawal - TSW - Q&A Part 1
Просмотров 4,6 тыс.Год назад
CAP- Cold Atmospheric Plasma treatment for Topical Steroid Withdrawal - TSW. Q&A. Website of the UK clinic: www.skinsolaceclinic.co.uk/ For the contact details of the CAP clinic in Thailand, just send me a message via Instagram or Facebook. Link to my Instagram (dedicated to TSW): tsw.topical.steroid.withdrawal Link to my personal Facebook page: marietteMariri You don...
Understanding TSW - Phases of Wound Healing - getting to know your skin - Topical Steroid Withdrawal
Просмотров 2,4 тыс.Год назад
This video is on 'Phases of wound healing'. With the help of this information we can understand better why triggers cause a delay in the healing rate of TSW. Also, it can help us to better observe and understand our skin. 😊🌟 Please support this channel if you can. 💙 It's a really big project to transfer all the knowledge and experience of Jay, making new material and helping people in the TSW c...
Triggers that delay the healing of Topical Steroid Withdrawal - TSW
Просмотров 7 тыс.Год назад
Explanation on triggers that delay the healing process of Topical Steroid Withdrawal - TSW. Please support this channel if you can: paypal.me/supportTSWchannel whydonate.nl/en/fundraising/support-tsw-community With your support I can keep on going making videos and spreading knowlwege on TSW to the community. It takes a lot of time and energy; learning from Jay, making these videos and answerin...
Phases of topical steroid withdrawal - TSW - Stages of Topical Steroid Withdrawal
Просмотров 8 тыс.Год назад
In this video I explain the different phases / stages of the healing process of topical steroid withdrawal. I want to thank Jay, who has treated TSW patients for over 15 years, for sharing his knowledge and experience. He and I, hope that we can help others who are going through TSW by sharing this information. By no means do I suggest that this information is complete. Still much research is n...
Topical Steroid Withdrawal - My story & Introduction
Просмотров 2,6 тыс.Год назад
Topical Steroid Withdrawal - My story & Introduction
Hello. Just starting my TWS journey. Thanks your videos are very helpful. Do you cover UVB therapy as a treatment and/or your views on it?
In my view UVB can give you a break and lower your symptoms, but UVB therapy also lowers the skin cell proliferation rate, so in that sense it is not helpful for healing TSW. Also you have to be very very careful with it. The place you go to needs to understand that TSW skin is super sensitive and thinned, so the exposure time should be very low. In my point of view Red Light Therapy is a better options (if your skin is ready for it). The effect is a lot less strong compared to CAP therapy, but you can do it at home for not too much costs. Just avoid RLT when you have an bacterial infection, when the skin is oozing and when you have irritants on the skin. I hope this is helpful.
@ thank you so much for the detailed reply and sharing your story on YT. I have an infrared light so I’m using it for a few mins a day so I’ll stick to that and good to know it’s helping (in the right dose at the right time in journey) . Would love CAP but the waiting list in UK isn’t even open and those on it I think wait along time. Huge business opportunity for them to scale up their business or a rival will swoop in and clean up the desperate clients waiting! Shame there aren’t more facilities. Maybe I should open one! I see some aesthetic clinics use a form of CAP but I’ve no idea if they are suitable for TSW skin, especially as mine is around my eyes, any thoughts on alternative CAP machines? With huge thanks from 🇬🇧
Hi. The CAP device used and developed in Thailand is a medical grade CAP device. It is also being used in may hospitals for chronic wound healing. So this device is much much stronger then an aesthetic grade CAP device. So the difference in results can be huge. Also the clinic in Thailand has more then 15 years experience in treating TSW skin, and this knowledge is quite specific, I can tell you. Nevertheless what I know in theory about the difference in CAP devices, I think it is really important so see what patients are reporting back to the community. I personally have not seen anyone yet who reported that their skin completely cleared up with those other CAP devices. Some reported worsening of their skin, others reported no difference and others have reported some benefits (but not clearing up their skin). I personally have tested 2 other CAP devices for 4 months in total. My only result was that small little wounds from scratching healed a bit faster. But the rest of my TSW skin stayed the same. (and this has been confirmed by some other patients who tested other cap devices). I didn't have the results at all that I did have in Thailand. I do think that other CAP devices can help with fungal infection, which gives a sudden big improvement, but the device might not be strong enough to really thicken the skin. But we'll have to wait and see, maybe there is a device out there which is strong enough and gives good results (I just haven't seen it (yet)). I hope TSW patients keep reporting their experience back to the community so that we can all learn. The device that is used in the UK clinic is also developed in Thailand. But the CE has expired, so they cannot import more of these devices. In the mean time rules and regulations for getting CE has become much more strict from MDD to MDR. For an aesthetic grade device it is much more easy to get CE, but for medical grade device it is much more difficult.
@ thank you again. Great info. I won’t try the aesthetic versions and wait for UK clinic to open its waiting list again. How frustrating that all the regulations changing are hampering them getting more machines into the country when there are so many sick people needing them.
Hi I have messaged you on Facebook Cap clinic Bangkok details required Thanks
What class is Clobetasol?
Class nr 1, so the highest potency.
Do they service eczema? Or only tsw?
The clinic is specialized in TSW. You could also treat eczema with CAP, but in that case you still have to find the root cause and avoid it, otherwise the effect is only temporary. For TSW, the root cause is the topical medication, which has been stopped already. So you follow a treatment plan and once the skin is back to a healthy skin thickness and healthy skin cell proliferation rate, you can stop the treatment.
Thank you for sharing your experience! I am currently going through this. I grew up with eczema & as far as I know I’ve only started TSW this year. I started using steroid creams this year after not needing or using it for years. I am in my first month of TSW. It has been rough, but I am looking forward to this healing journey.
How long will it take to heal if I was using clobetasol propionate for 4 months with applying it a couple times each week during those 4 months?
Hi, it depends on the exact dose that you used, so how many grams. Did you use full tube of 30 grams? Or 2 tubes of 30 grams, so 60 grams in total? Etc, the dose is important.
Maybe best to send me message on Instagram, then I can send you a voice massage.
@@TSW.healing thank you for getting back to me! I truly appreciate your help. I’m glad I didn’t use a full tube. I only used the .05% & if my calculations are right, I used about 5 grams.
Hi, 5 gr is actually a very low amount, luckily :) Your skin should be able to look normal again in a matter of months. (or as before, with the original skin rash, but if the root cause of the original rash is taken away or avoided, then your skin should be ok). Your skin might be a bit more sensitive for a while, up to 7 months, but already looking normal. The only factor not taken into account with this estimation is your previous use of topical medication (which strength, and which dose and how long was your break off of them). The use of high potent topical medication makes kind of an 'imprint' on the skin cells. Depending on which potency you have used and which dose and how long you didn't use them for, the previous use might influence your healing rate now. But if the potency was not so high, the amount low and the pause in using them quite long, then you should be fine in matter of months. (Although please make sure you are avoiding triggers that can make the skin flare, so that your healing rate is good. Watch video on Triggers that delay the healing rate of TSW for a good understanding)
@@TSW.healing Thank you so so much! I’ve been telling all my family & some friends about TSW because I had never heard about until I started researching all that I have been going through. The first 2 weeks for me were pretty bad. Everything stung & my face & neck were swollen. Now that I’m about 4 weeks in, my face isn’t as bad. I have other patches on my body that are at a slower pace, but I am hoping & praying for the best. Considering all the things I’ve learned & still learning, I am hoping that I recover within the time line that you have mentioned. 🙏🏻✨
Hi, thank you for your information about TSW, I'm currently going through Protopic withdrawal or TSW, and I wonder how strong is Elidel cream if you compare to Potency of Steroid cream? Is it like class number four or something? Can you please help me with this?
In strength, Elidel is comparable to class 3 of topical steroids. Protopic is comparable to class 2 of topical steroids. So both pretty high in potency. And as so probably already know, sadly, both can also cause withdrawal symptoms if they have been used continuously and in a certain dose. I hope your healing is going well and wish you all the best!
@@TSW.healinghow about advantan and diprosone?
X
Can you please send me the email of the clinic in Tailand? Thank you for everything, Lu
Hi Lu, yes sure, you can reach me on my Instagram page: instagram.com/tsw.topical.steroid.withdrawal Or post your facebook page or email here and I will contact you.
I have just stopped steroids 3 weeks ago and I have had ring worm for the last year that would not clear up with creams as I was pregnant so couldn’t take the oral antifungals I thought it went away but started going to the solarium and there’s 3 white dots that won’t tan and I’m about to start my TSW journey what should I do I’m not pregnant anymore
Hi dear, if you think it might be fungal, it is best to have your doctor check it for you. 3 white dots doesn't necessarily mean fungal, so best to have it checked out. All the best.
I am white but was born in Africa from parents who had come there from UK after WW2. I am 89 and the skin on my forarms was covered in brownish patches , from years of being out in African sun, Now age 89 I used a steroid (Hydrocortizon 1% ww) cream hoping to improve my condition IT MADE IT WORSE - all patches going red and skin going thin,I stopped after about a month, Now I am using a Mepyramine containing cream (Anthisan), and after 4days thinga are getting better, I was stoopid as the pharmacy would not sell it to me so I bought it online (VoicePharm).😵💫😵💫 f
Is it Cold plasma or Gold plasma therapy?
Cold Atmospheric Plasma :) There are two other videos on this channel about CAP treatment that you can watch for a better understanding of this treatment is.
What was the treatment referred to that speeds recovery???
CAP treatment. It stands for Cold Atmospheric Plasma. There is another video on this channel about CAP treatment that you can watch.
@@TSW.healing Thanks. And for your very measured and clear vids for someone just embarking on this nightmare. It's good to know at last what was happening to me after long trying to convince doctors that the topicals no longer worked, and that their advice to stop use after a period of time now meant that every timne I did so, 2 days later I was in a start of an absolutely torturous and tormenting crisis. Then I would be offered stronger topicals. Lucky (?) I only ever increased to moderate (bad enough of course), but I am 59 now, and have been stuck in this addiction for 50 years, not realising it was an addiction. I was only a child. No wonder drug solutions have subsequently been a damaging factor in my life, having learnt early that certain critical aspects of your body and mind need your direct intervention to functioin as they should, whether bodily organs like the skin or moods and emotional states. So despite the fact that I had knowlingly got myself into trouble with addictive substance, at least I was aware, and called the additions what they were, It's obvious to me now that the associated behavioural and psychological impacts of addiction were shared between topical steroids and the substance of abuse in my case: the constant mindfulness of the supply on hand, factoring in the continued supply to your calendar, special attention to particular events and occasions (e.g. a speech to give next weekend might precipitate a week's long heightened skin anxiety, skin consciousness and often prophylactic application of steroids -just be sure.!) A general concealment and denial of the dependency, both to others and oneself. And there's more besides, all so obviously addictive behaviours. I am slapping myself for having never recognised them as such WRT steroids, and suspect that having not done so will have made the months and years ahead worse and more prolonged. Oh, woe 😞
Need information for treatment in Thailand Asap Thank you
Hi Ray, I think you have send me a message on my Instagram, right? I have just answered you there.
Help I need to know more info for this treatment where and how to make an appointed ASAP!
I'm having ringworm it was small and it was the place where my cat scratched it was just a little scar by mistake i was I've just started to itch that area where my cat scratched and that scratch caused a small bump and then i started to itch that bump and it was getting bigger and then i use some sort of steroid cream in it which is used to treat ringworm infection and then it started to peel off my skin which is was centre clear but the sides which is peeling and expanding in size n then after i went to my gp and then i showed him my skin he again gave me some kinda steroid based cream i wasn't aware of that again i just used it for a month or 3weeks and then it started to become normal and it left dark pigmented skin but again it started to peel like the circle sides started to expand by peeling itself n then i went to dermatologist he gave me antifungal pills and ointment but still it's expanding in size the center is clear but sides were just expanding and then the shedding skin is getting brown but the center is clear but the sides is just peeling slowly what would be the reason ??
I have been using steroids creams for 2 months straight i just noticed my skin cant fo with yhe cream, if should stop it i just get rashes and I decided to make research to find i have TSW😭😭
I have used betamethasone 0.05 for 4 days, now i am on TSW for four months.
What I put on flaky dry itchy skin , very itchy
If you are in the process of healing TSW, then it's best to put nothing on the skin. The skin is very sensitive and thinned and moisturizers can irritate the skin to the extent that your skin starts reacting with a protection mechanism, creating hardened skin. To avoid the development of hardened skin and a delay in the healing rate, it is best to avoid moisturizers. The itchiness is part of TSW. There are 3 types of itchiness: 1. healing itch. This is the same itch that you can experience when a wound is healing. It is part of the healing process and cannot be avoided. 2. itchiness from irritant exposure or an allergen. This itch is avoidable if you are able to avoid the irritant or allergen. Also anti histamine tablets can help with this type of itchiness. 3. itchiness from a skin infection. In case of a skin infection, you need medical treatment.
This process is called lichenification (not elephant skin) and its not excess skin- its over scratched skin that looses its elasticity due to constant damage
Hi! Are you from the Netherlands? ☺️
yep! :)
Great video, thank you. Just one question, can TSW come back after years of having no steroids? Say 9 years?
Hi, It is very case dependent. It depends on the healing timeline and circumstances. The healing timeline of TSW can be very long. I have met several people who have used over a kg of high potent topical medication. In that case the healing time line is long (decades). That doesn't mean the person has open, impaired skin that long, but the skin cell proliferation rate is not back to normal yet and there is still skin atrophy (thinned skin), which makes the skin more sensitive. As an example: someone has an estimated healing timeline of 20 years. Phase 1 will take 5 years. At the end of Phase 1, is when the person reaches normal looking skin. But at that point the skin is not fully healed yet at all. The skin may look normal at, let's say, around 75% skin thickness (this is an estimate and serves as an example), but is still thinned and hyper sensitive at that stage. The skin can very easily flare at that point from all kinds of triggers (watch Triggers that slow down the healing rate of TSW). But over time the skin quality improves. The skin gets more strong and a bit thicker. At the near end of Phase 2, this person will be into TSW about 9 years. At this point flaring does not happen easily anymore, but can still happen (for example: the person moves into a new home with lots of chemicals in the air). So yes, in case of a long healing timeline, 9 year into TSW, a person can still flare. Other example: a person used a much smaller amount of high potent topical medication. And , for example, this person has an estimated healing timeline of 4 years in total. Phase 1 being 1 year (with visible TSW symptoms). After 4 years the skin cell proliferation rate is back to normal and the skin thickness as well. In this case, if something like a big rash happens 9 years after using topical medication, this is not related to TSW anymore, but is more likely and allergic reaction to something or some other (new) root cause. I hope this makes things more clear.
Can i stop using topical medium steroid after using twice daily for a month even though the contact dermatitis has not healed,will it cause TSW?
If you used the steroid creams for only one month and not in a high dose (for example only one small tube), then you should be fine. You might experience a short rebound, but this should last max 6 weeks. But of course the contact dermatitis will come back as long as you haven't resolved the root cause. (which is avoiding the allergen). Best of luck.
I have almost used up the second tube of kenalog (0.1%) which is a medium steroid. Will the withdrawal be severe and how will i stop using it? Is there anything recommended after stopping the steroid tO treat the dermatitis? Please reply
Hello. C'rdt une vidéo d'utilité publique Auriez-vous un mail où pourrai-je vous joindre ?
Hi! You can send me a message via Instagram or Facebook. Link to my Instagram (dedicated to TSW): instagram.com/tsw.topical.steroid.withdrawal/ Link to my personal Facebook page: facebook.com/marietteMariri You don't need to send a friendship request. I will get your message via Messenger and I keep an eye out and check the folder with new chat requests 🌟
Does all tsw result in skin shedding and flaking ❤
Hi, yes all TSW skin has flaking, although in light cases of TSW this is invisible flaking, which can be felt by touch (rough skin) but these flakes are very small.
@TSW.healing ahh right... topical steroids have been placed on my skin for 50 years. I stopped using them in January this year. I felt the burning and stinging sensations, but given I have brown skin, I went darker rather than red. I've been doing no moisture for several weeks, and my skin went very dry and a little rough and scabbie in parts, but the burning has stopped. My skin has also started to moisturise itself in parts. This invisible shedding is new to me, and so I'm wondering if you would do a video on this, please, to help me and others further understand. Thank you so much for sharing your knowledge it is invaluable x
Hi, any difference between psoriasis/eczema biopsie and tsw biopsie? The problem with the soles of the feet is that over time, calluses form over them again and then they feel like armor. And underneath, after a while the inflammation flares up again, followed by insane itching, redness and hundreds of very very tiny gray dots (I almost suspect that it is dyshidrosis). I had a total of 4 biopsies on the soles of my feet. The first (2013) could not verify exactly whether it was psoriasis or eczema. The second (2016) showed eczema. The third (2017) and fourth (2023) both showed psoriasis.
Hi, this is a recent study in which also biopsies of tsw skin is discussed: www.medrxiv.org/content/10.1101/2024.04.17.24305846v1.full?fbclid=IwZXh0bgNhZW0CMTEAAR1asUs5-NTZRhiktX7iGw2pGblaqsbX74KPw6BNaL2L5h90iGA_SPi5UOs_aem_AT5oU6uDEbQnwA6p4tVX8S9piNK4CFFBs800VshEw3cRYbRim9vEIqPcKxEYq7lZuZYAoqcNHolwbXMVQ9zJMSvx I hope it is helpful.
thank you so much ive been seeing a lot more of your videos lately and they are truly fascinating and informative. im on about month 5 and its horrible. do you recommend no moisture in order to completely heal? I tried no moisture for maybe 4 days and o gave up because i had to go out and i couldn’t because of my scaly face.
If you have a light case of TSW, (only some redness and invisible flaking) then you can moisturize. In all the other cases (so with visible flaking) it is not recommended, because of the risk of getting hardened skin. All patients I talked to who have hardened skin absolutely regretted having moisturized their skin since hardened skin is very slow and sometimes very difficult to reverse and it is not always 100% reversible (in severe cases) leaving deep wrinkles and the skin looking old. Flaking is part of TSW, it is a sign of healing. Your skin is trying to get thicker and heal. It is mentally a step to go out side with your skin flaking, but it's the best for your healing (and I have to say, after a while, I didn't even think about it anymore, and accepted my flakes :)
After you recover, does the original problem come back, ie eczema?
That is very case dependent. For me, until now I have the best skin ever (I had eczema since baby). I don't have any eczema at the moment. But the root cause of eczema can be very diverse, so if the root cause is still present, yes, then eczema is still there. But what other ex tsw patients report is that their original eczema is peanuts compared to the suffering which they had during tsw and that they manage to live with it very well. (finding out your tiggers (stress, foods, contact allergens, alcohol use, etc) and what helps your skin (like sun and sea vacation planned during winter time or moving to a better climate for your skin) can both massively help with the management of eczema and even clear it completely if all triggers are found and addressed.
Do you know anything about Mometasone Furoate 0.1% cream? I was using this over 10 years for an itchy/sometimes blistery rash. (I have an autoimmune disease). I am thankful that I did not use it everyday but only when I had autoimmune flareups. I can no longer use it because this past year, I noticed when I would use the cream, it would sooth the itch but a couple of days later, the flare up would be worse! I have just learned about TSW and I will NOT be using any steroids. Moisturizers make it worse too. My skin, especially my face is red, patchy, and dry. I feel like someone took sandpaper and rubbed it all over my face.
Mometasone Furoate CREAM is a mid-potency steroid. (Mometasone Furoate Ointment is stronger and is classified as a strong steroid). The amount of time you used the cream is not what determines if you have developed TSW or how severe the case of TSW is. This depends on the amount (the dose) that you have been using. So exactly how many tubes did you use and how many grams per tube. If you indeed developed TSW (or better: damaged skin by topical medication) then you can experience these symptoms as a result of that. In that case, simple moisturizers that were previously not a problem can indeed cause a reaction of irritation and inflammation (due to the skin being very thin and compromised as a result of the use of the topical medication). If you think you have developed tsw, then it's best not to moisturize and just let the skin flake, so it can restore and get thicker over time. By watching all the videos on this channel, you can learn about the phases of tsw, what irritants are and possible triggers that affect the healing rate of your skin. Your case doesn't sound like a severe case of tsw (which can often be full body with symptoms like oozing, hair loss, shaking, temperature dysregulation, muscle spasms etc.). So in that way you are lucky, although the impact is still very big and a difficult process to go through. But you will heal by time. What you could consider is getting a Red Light Therapy panel. Since this is proven technology and will help your healing rate. Don't expect dramatic changes, but it can make a difference and speed things up a bit. Wishing you all the best!!
I’ve been attempting to heal myself through Non Moisture Therapy and Changes in diet, avoiding certain foods along with using red light therapy. My skin has been repairing itself! Also been avoiding foods high in histamines that can trigger hives.
Fantastic results! Well done!!!
I don't know what is happening, but my skin first become red then in 2 or 3 days it dry and within a week it completely disappear and then the next day same cycle happens. And it last for 3 4 months. BTW it is only on my neck whereas my whole body is completely cleared. So it is a way of healing ?
Yes sure, it sounds like you are not a severe case of TSW, only your neck area and that your healing is going well. Try to avoid irritant exposure and other triggers that make your skin flare. Even it you have a mild case of TSW, you'll have to try to avoid these triggers for a while to have a good healing rate. You can check the videos on this channel about 'Triggers that delay the healing rate of TSW' and other clips about irritants. Best of luck!
What device are you talking about?????
CAP, Cold Atmospheric Plasma, you can find several videos on this channel explaining exactly what it is, what it does and where you can find clinics.
Not everyone who uses topical steroids will develop Topical Steroid Withdrawal (TSW). It is unclear why some people experience TSWS after using topical steroids and why others do not. This underpins the need for more research to unravel this issue and provide better support for those affected. Every time I see Topical Steroid Withdrawal (TSW) being discussed I am overcome with excitement which quickly turns to anger and sadness. Awareness on such a large scale is amazing BUT with no real action or change by places of power, it again leaves me feeling gutted. There’s growing global awareness about the side effects of topical steroids, shared online, in the news and even warnings in pamphlets accompanying prescriptions. Yet no real action or change. There needs to be action by the Government to address this issue, silence and lack of action are only contributing to widespread misinformation, online hysteria, and increased worry among those prescribed them. Research on TSW is crucial to aid current sufferers and help prevent future cases. It’s time for tangible support and proactive research to alleviate TSW suffering and prevent future cases. I've started a petition to hopefully address this and give us all some much needed relief from the overthinking petition.parliament.uk/petitions/658458
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Hi Marriott Tony here I just would like to get in contact with Dr J. How do I get in contact with the hospital to discuss treatment? Please could you help me?
Sure, you can send me a message on my Instagram or via FB Messenger (contact info is in de description of this video or the description of this channel). I can give you contact details of the clinic and explain a bit which info to send them.
Can I take sleeping pills to help me sleep? Mine randomly started spreading and showing up in random spots after using RTL at a clinic ;(
Hi :) Sleeping pills on itself usually don't case any problems with TSW skin (unless you are allergic to one of the ingredients). Of course discuss with your doc which ones are safe for you to use and dosage and so on. RLT on itself is well studies and has great benefits to the skin. So it's more likely that you were exposed to a irritant at the clinic you went to (cleaning detergent, perfumes in the air, etc.) Clinics that are not TSW specialized, are usually not TSW friendly in terms of irritant exposure ;) Or maybe some irritant exposure elsewhere coincidentally after you went for the RLT. RLT will help your skin heal, so you could also consider buying a panel for home use, so you can control irritant exposure better. Only avoid RLT on oozing spots or when you have a bacterial skin infection or when you are flaring heavily from irritant exposure.
Please help me I can’t find a case like mine. I used neomycin polymyxin with dex (steroid) .01% for 8 months on my eyes. I stopped and immediately got rash on my eyes. I am in week 3 and rash is now spreading to arms very slowly and hands. Does this mean I have a mild case? I didn’t suffer from eczema prior to this or any skin conditions.
It depends on the dose (how many bottles) that you have been using. (so not the length of time). You might have spread the steroids a bit by rubbing in your eye with your fingers and then touching your hand and arms. Usually a period of 8 months of steroid usage does not give a person severe TSW, but as mentioned before, it depends on the dose. It's not very likely that you are a severe case since the rash has spread only to your hands and arms and not full body. Although what you are experiencing is still very uncomfortable and intense to go through. Best what you can do at this time is check all the videos on this channel so you understand better what tsw is. Also: avoid moisturizing and learn about irritants and avoid irritant exposure and other triggers until your skin is healed. I wish you the best healing rate possible.
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So, basically none of this is reverzible?
No, it is reversible, just not in every case 100% reversible. It depends on the severity of the hardened skin (which depends on the dose and type of moisturizers that have been used on thinned, impaired skin). To give an example: if a person has middle or severe TSW and has used moisturizers 3 times a day for 3 years, the chronic hardened skin is much more severe than someone who has middle or severe TSW and who has used moisturizers for 6 months. The longer the moisturizing on thinned, impaired skin has been going on, the more severe the hardened skin will become. In the first example (3 years, 3 x a day) the hardened skin is likely not 100% reversible, but 80% reversible or 90% reversible. So this person is left with visible wrinkles and when you touch the skin it still feels thickened. Hardened skin is a real issue. Sooo many TSW patients are using moisturizers on their skin and end up with hardened skin, not knowing what it is. Severe hardened skin is very painful and the process of healing is very slow. From what patients describe if can feel very very thigh, like suffocating in their own skin. The skin is not flexible and cracks with movement. Some patients are not able to turn their neck or open their arms fully. To get a better understanding you might watch all videos on hardened skin on this channel (I think there are 3 of them). I really hope this information will spread, to prevent further suffering. So please share if you can.
Just curious if the animal and bird sounds in the background are added or if it is part of your surroundings?
:D good one, lol. It was part of my surrounding at the time (I was in Thailand then)
Where can I get Cap treatment
At the moment there is a clinic in Thailand, Singapore and in the UK. Some beauty salons are also offering CAP, but be aware that the result may be very different. The UK clinic has a waiting list at the moment, the Thai clinic is the most economical. If you send me a message on my Instagram, I can answer you with a voice note if you need more info.
Hey there....How can I get this serum in India?? Thank you
Hi, as far as I know the serum is not available in India yet. I guess you could order it in Thailand at the clinic and they can ship it to you, but you would have to check if the customs in India let it through.
How’s your skin now ?
Very good, best skin I can remember having, not even any eczema spots. I learned a lot about triggers, allergens and irritants during my CAP treatment, so maybe this is also helpful for avoiding eczema triggers. I'm much more aware of what products I'm using (not only on the skin, but also around the house), I'm much more conscious of triggers like not enough sleep or stress or alcohol use (I don't drink at all) and some personal food triggers I have. All in all, my skin is doing really good and most people even think I'm younger than my actual age, haha, who would have thought after looking like a granny during TSW. :)
Hey did you experience zinger pains in nearly 2 months in I feel like iv been through the worst but when I try to train go for long walks I experience zinger pains it’s proper annoying
Hi, no I never had zingers or hair loss. All the other symptoms, yes. Very intense! I'm glad to hear you are doing better! I wish you the best healing rate possible.
It seems like most people have the oozing and itching as main symptoms. For me the worst thing has been the loss of elasticity I guess causing moving to be painful. Do you talk to a lot of people that say the same?
Yes, I have talked to hundreds of TSW patients and I have seen about 70 cases live. So being able to observe the skin, see a part of the healing process and talk to the patients.
I have been using 1.6kg of steroid cream per month for 6 years. I just knew this TSW, what should i do
That is a high dose. But It also depends which class of steroids you have been using. Most problems start from class 5 upwards. (class 1 being the strongest and class 7 being the least strong).
@@TSW.healing It was 1/4 formula steroid, so i dont know which class was it.
Can I come to the clinic, any availability??? Please reply, thabkyou so much for your info!! Liked and Subscribed too 😊
Please send me a message on my Instagram. Link is provided in the description of this video. I'll send you a voice note back.
@@TSW.healing done!! Waiting impatiently for your reply 😄😄😁
@@TSW.healingcant find your instagram, can you pls tell??
How much does it cost to get the treatment?
In Thailand 2000 Thai bath per half hour. (about 60 UD dollar). Treating time per session is case dependent. You can imagine that a full body treatment takes much more time than half body or face only. It is best to first watch the videos on this channel about CAP treatment, so that your are well informed. It is not an over-night miracle cure. It does work, but you need treatment time as well (it takes many treatment sessions to get the skin cell proliferation rate back up and the skin to thicken and get strong again).
@@TSW.healing Thank you so much for your answer! It's for both me and my mother. Especially my mom. Hers is even spreading and oozing so bad
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