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Hi. I'm sorry to hear that all the symptoms came back. TSW can be a long process. All the info on this channel also goes for pregnant women with TSW. So really look deeply into all possible internal and external triggers and try to avoid them. You can find a lot of info on this channel about possible triggers and irritant exposure. Avoid moisturizers. Keep the skin clean as best as you can by showering and saline solution on cotton pads. Act immediately if you suspect a bacterial of vital infection (seek medical care). Try to optimize sleep. Have light exercise and daylight exposure. If you happen to live near the coast in a warm enough region, that late afternoon sun and sea exposure will be very beneficial. I think you can use red light therapy safely when pregnant, but not on all parts of the body (but you can research this to be sure). Most pregnant women do experience a flare around birth (before and after) because of hormonal fluctuations.

On hardened skin yes, at any stage. Always use on clean skin (the serum doesn't have strong cleaning ingredients since that would irritate tsw skin), so first shower or clean with saline solution on a clean cotton pad and then use the serum. If you have a bacterial infection you should pause the use of the serum. If you have other spots that do not have hardened skin issue, you can use the serum as well, but not in the oozing stage (when the skin is still super super thin).

In my view UVB can give you a break and lower your symptoms, but UVB therapy also lowers the skin cell proliferation rate, so in that sense it is not helpful for healing TSW. Also you have to be very very careful with it. The place you go to needs to understand that TSW skin is super sensitive and thinned, so the exposure time should be very low. In my point of view Red Light Therapy is a better options (if your skin is ready for it). The effect is a lot less strong compared to CAP therapy, but you can do it at home for not too much costs. Just avoid RLT when you have an bacterial infection, when the skin is oozing and when you have irritants on the skin. I hope this is helpful.

@ thank you so much for the detailed reply and sharing your story on YT. I have an infrared light so I’m using it for a few mins a day so I’ll stick to that and good to know it’s helping (in the right dose at the right time in journey) . Would love CAP but the waiting list in UK isn’t even open and those on it I think wait along time. Huge business opportunity for them to scale up their business or a rival will swoop in and clean up the desperate clients waiting! Shame there aren’t more facilities. Maybe I should open one! I see some aesthetic clinics use a form of CAP but I’ve no idea if they are suitable for TSW skin, especially as mine is around my eyes, any thoughts on alternative CAP machines? With huge thanks from 🇬🇧

Hi. The CAP device used and developed in Thailand is a medical grade CAP device. It is also being used in may hospitals for chronic wound healing. So this device is much much stronger then an aesthetic grade CAP device. So the difference in results can be huge. Also the clinic in Thailand has more then 15 years experience in treating TSW skin, and this knowledge is quite specific, I can tell you. Nevertheless what I know in theory about the difference in CAP devices, I think it is really important so see what patients are reporting back to the community. I personally have not seen anyone yet who reported that their skin completely cleared up with those other CAP devices. Some reported worsening of their skin, others reported no difference and others have reported some benefits (but not clearing up their skin). I personally have tested 2 other CAP devices for 4 months in total. My only result was that small little wounds from scratching healed a bit faster. But the rest of my TSW skin stayed the same. (and this has been confirmed by some other patients who tested other cap devices). I didn't have the results at all that I did have in Thailand. I do think that other CAP devices can help with fungal infection, which gives a sudden big improvement, but the device might not be strong enough to really thicken the skin. But we'll have to wait and see, maybe there is a device out there which is strong enough and gives good results (I just haven't seen it (yet)). I hope TSW patients keep reporting their experience back to the community so that we can all learn. The device that is used in the UK clinic is also developed in Thailand. But the CE has expired, so they cannot import more of these devices. In the mean time rules and regulations for getting CE has become much more strict from MDD to MDR. For an aesthetic grade device it is much more easy to get CE, but for medical grade device it is much more difficult.

@ thank you again. Great info. I won’t try the aesthetic versions and wait for UK clinic to open its waiting list again. How frustrating that all the regulations changing are hampering them getting more machines into the country when there are so many sick people needing them.

@@TSW.healinghow do we do red light therapy at home? Is there a device we can buy online? Can you please provide the link? When my skin has oozing issue , can I still use this therapy?

Class nr 1, so the highest potency.

The clinic is specialized in TSW. You could also treat eczema with CAP, but in that case you still have to find the root cause and avoid it, otherwise the effect is only temporary. For TSW, the root cause is the topical medication, which has been stopped already. So you follow a treatment plan and once the skin is back to a healthy skin thickness and healthy skin cell proliferation rate, you can stop the treatment.

Hi, it depends on the exact dose that you used, so how many grams. Did you use full tube of 30 grams? Or 2 tubes of 30 grams, so 60 grams in total? Etc, the dose is important.

Maybe best to send me message on Instagram, then I can send you a voice massage.

@@TSW.healing thank you for getting back to me! I truly appreciate your help. I’m glad I didn’t use a full tube. I only used the .05% & if my calculations are right, I used about 5 grams.

Hi, 5 gr is actually a very low amount, luckily :) Your skin should be able to look normal again in a matter of months. (or as before, with the original skin rash, but if the root cause of the original rash is taken away or avoided, then your skin should be ok). Your skin might be a bit more sensitive for a while, up to 7 months, but already looking normal. The only factor not taken into account with this estimation is your previous use of topical medication (which strength, and which dose and how long was your break off of them). The use of high potent topical medication makes kind of an 'imprint' on the skin cells. Depending on which potency you have used and which dose and how long you didn't use them for, the previous use might influence your healing rate now. But if the potency was not so high, the amount low and the pause in using them quite long, then you should be fine in matter of months. (Although please make sure you are avoiding triggers that can make the skin flare, so that your healing rate is good. Watch video on Triggers that delay the healing rate of TSW for a good understanding)

@@TSW.healing Thank you so so much! I’ve been telling all my family & some friends about TSW because I had never heard about until I started researching all that I have been going through. The first 2 weeks for me were pretty bad. Everything stung & my face & neck were swollen. Now that I’m about 4 weeks in, my face isn’t as bad. I have other patches on my body that are at a slower pace, but I am hoping & praying for the best. Considering all the things I’ve learned & still learning, I am hoping that I recover within the time line that you have mentioned. 🙏🏻✨

In strength, Elidel is comparable to class 3 of topical steroids. Protopic is comparable to class 2 of topical steroids. So both pretty high in potency. And as so probably already know, sadly, both can also cause withdrawal symptoms if they have been used continuously and in a certain dose. I hope your healing is going well and wish you all the best!

@@TSW.healinghow about advantan and diprosone?

Hi Lu, yes sure, you can reach me on my Instagram page: instagram.com/tsw.topical.steroid.withdrawal Or post your facebook page or email here and I will contact you.

Hi dear, if you think it might be fungal, it is best to have your doctor check it for you. 3 white dots doesn't necessarily mean fungal, so best to have it checked out. All the best.

Cold Atmospheric Plasma :) There are two other videos on this channel about CAP treatment that you can watch for a better understanding of this treatment is.

CAP treatment. It stands for Cold Atmospheric Plasma. There is another video on this channel about CAP treatment that you can watch.

@@TSW.healing Thanks. And for your very measured and clear vids for someone just embarking on this nightmare. It's good to know at last what was happening to me after long trying to convince doctors that the topicals no longer worked, and that their advice to stop use after a period of time now meant that every timne I did so, 2 days later I was in a start of an absolutely torturous and tormenting crisis. Then I would be offered stronger topicals. Lucky (?) I only ever increased to moderate (bad enough of course), but I am 59 now, and have been stuck in this addiction for 50 years, not realising it was an addiction. I was only a child. No wonder drug solutions have subsequently been a damaging factor in my life, having learnt early that certain critical aspects of your body and mind need your direct intervention to functioin as they should, whether bodily organs like the skin or moods and emotional states. So despite the fact that I had knowlingly got myself into trouble with addictive substance, at least I was aware, and called the additions what they were, It's obvious to me now that the associated behavioural and psychological impacts of addiction were shared between topical steroids and the substance of abuse in my case: the constant mindfulness of the supply on hand, factoring in the continued supply to your calendar, special attention to particular events and occasions (e.g. a speech to give next weekend might precipitate a week's long heightened skin anxiety, skin consciousness and often prophylactic application of steroids -just be sure.!) A general concealment and denial of the dependency, both to others and oneself. And there's more besides, all so obviously addictive behaviours. I am slapping myself for having never recognised them as such WRT steroids, and suspect that having not done so will have made the months and years ahead worse and more prolonged. Oh, woe 😞

Hi Ray, I think you have send me a message on my Instagram, right? I have just answered you there.

If you are in the process of healing TSW, then it's best to put nothing on the skin. The skin is very sensitive and thinned and moisturizers can irritate the skin to the extent that your skin starts reacting with a protection mechanism, creating hardened skin. To avoid the development of hardened skin and a delay in the healing rate, it is best to avoid moisturizers. The itchiness is part of TSW. There are 3 types of itchiness: 1. healing itch. This is the same itch that you can experience when a wound is healing. It is part of the healing process and cannot be avoided. 2. itchiness from irritant exposure or an allergen. This itch is avoidable if you are able to avoid the irritant or allergen. Also anti histamine tablets can help with this type of itchiness. 3. itchiness from a skin infection. In case of a skin infection, you need medical treatment.

yep! :)

Hi, It is very case dependent. It depends on the healing timeline and circumstances. The healing timeline of TSW can be very long. I have met several people who have used over a kg of high potent topical medication. In that case the healing time line is long (decades). That doesn't mean the person has open, impaired skin that long, but the skin cell proliferation rate is not back to normal yet and there is still skin atrophy (thinned skin), which makes the skin more sensitive. As an example: someone has an estimated healing timeline of 20 years. Phase 1 will take 5 years. At the end of Phase 1, is when the person reaches normal looking skin. But at that point the skin is not fully healed yet at all. The skin may look normal at, let's say, around 75% skin thickness (this is an estimate and serves as an example), but is still thinned and hyper sensitive at that stage. The skin can very easily flare at that point from all kinds of triggers (watch Triggers that slow down the healing rate of TSW). But over time the skin quality improves. The skin gets more strong and a bit thicker. At the near end of Phase 2, this person will be into TSW about 9 years. At this point flaring does not happen easily anymore, but can still happen (for example: the person moves into a new home with lots of chemicals in the air). So yes, in case of a long healing timeline, 9 year into TSW, a person can still flare. Other example: a person used a much smaller amount of high potent topical medication. And , for example, this person has an estimated healing timeline of 4 years in total. Phase 1 being 1 year (with visible TSW symptoms). After 4 years the skin cell proliferation rate is back to normal and the skin thickness as well. In this case, if something like a big rash happens 9 years after using topical medication, this is not related to TSW anymore, but is more likely and allergic reaction to something or some other (new) root cause. I hope this makes things more clear.

If you used the steroid creams for only one month and not in a high dose (for example only one small tube), then you should be fine. You might experience a short rebound, but this should last max 6 weeks. But of course the contact dermatitis will come back as long as you haven't resolved the root cause. (which is avoiding the allergen). Best of luck.

I have almost used up the second tube of kenalog (0.1%) which is a medium steroid. Will the withdrawal be severe and how will i stop using it? Is there anything recommended after stopping the steroid tO treat the dermatitis? Please reply

Hi! You can send me a message via Instagram or Facebook. Link to my Instagram (dedicated to TSW): instagram.com/tsw.topical.steroid.withdrawal/ Link to my personal Facebook page: facebook.com/marietteMariri You don't need to send a friendship request. I will get your message via Messenger and I keep an eye out and check the folder with new chat requests 🌟

Hi, yes all TSW skin has flaking, although in light cases of TSW this is invisible flaking, which can be felt by touch (rough skin) but these flakes are very small.

@TSW.healing ahh right... topical steroids have been placed on my skin for 50 years. I stopped using them in January this year. I felt the burning and stinging sensations, but given I have brown skin, I went darker rather than red. I've been doing no moisture for several weeks, and my skin went very dry and a little rough and scabbie in parts, but the burning has stopped. My skin has also started to moisturise itself in parts. This invisible shedding is new to me, and so I'm wondering if you would do a video on this, please, to help me and others further understand. Thank you so much for sharing your knowledge it is invaluable x

Hi, this is a recent study in which also biopsies of tsw skin is discussed: www.medrxiv.org/content/10.1101/2024.04.17.24305846v1.full?fbclid=IwZXh0bgNhZW0CMTEAAR1asUs5-NTZRhiktX7iGw2pGblaqsbX74KPw6BNaL2L5h90iGA_SPi5UOs_aem_AT5oU6uDEbQnwA6p4tVX8S9piNK4CFFBs800VshEw3cRYbRim9vEIqPcKxEYq7lZuZYAoqcNHolwbXMVQ9zJMSvx I hope it is helpful.

If you have a light case of TSW, (only some redness and invisible flaking) then you can moisturize. In all the other cases (so with visible flaking) it is not recommended, because of the risk of getting hardened skin. All patients I talked to who have hardened skin absolutely regretted having moisturized their skin since hardened skin is very slow and sometimes very difficult to reverse and it is not always 100% reversible (in severe cases) leaving deep wrinkles and the skin looking old. Flaking is part of TSW, it is a sign of healing. Your skin is trying to get thicker and heal. It is mentally a step to go out side with your skin flaking, but it's the best for your healing (and I have to say, after a while, I didn't even think about it anymore, and accepted my flakes :)

That is very case dependent. For me, until now I have the best skin ever (I had eczema since baby). I don't have any eczema at the moment. But the root cause of eczema can be very diverse, so if the root cause is still present, yes, then eczema is still there. But what other ex tsw patients report is that their original eczema is peanuts compared to the suffering which they had during tsw and that they manage to live with it very well. (finding out your tiggers (stress, foods, contact allergens, alcohol use, etc) and what helps your skin (like sun and sea vacation planned during winter time or moving to a better climate for your skin) can both massively help with the management of eczema and even clear it completely if all triggers are found and addressed.

Mometasone Furoate CREAM is a mid-potency steroid. (Mometasone Furoate Ointment is stronger and is classified as a strong steroid). The amount of time you used the cream is not what determines if you have developed TSW or how severe the case of TSW is. This depends on the amount (the dose) that you have been using. So exactly how many tubes did you use and how many grams per tube. If you indeed developed TSW (or better: damaged skin by topical medication) then you can experience these symptoms as a result of that. In that case, simple moisturizers that were previously not a problem can indeed cause a reaction of irritation and inflammation (due to the skin being very thin and compromised as a result of the use of the topical medication). If you think you have developed tsw, then it's best not to moisturize and just let the skin flake, so it can restore and get thicker over time. By watching all the videos on this channel, you can learn about the phases of tsw, what irritants are and possible triggers that affect the healing rate of your skin. Your case doesn't sound like a severe case of tsw (which can often be full body with symptoms like oozing, hair loss, shaking, temperature dysregulation, muscle spasms etc.). So in that way you are lucky, although the impact is still very big and a difficult process to go through. But you will heal by time. What you could consider is getting a Red Light Therapy panel. Since this is proven technology and will help your healing rate. Don't expect dramatic changes, but it can make a difference and speed things up a bit. Wishing you all the best!!

Fantastic results! Well done!!!

Yes sure, it sounds like you are not a severe case of TSW, only your neck area and that your healing is going well. Try to avoid irritant exposure and other triggers that make your skin flare. Even it you have a mild case of TSW, you'll have to try to avoid these triggers for a while to have a good healing rate. You can check the videos on this channel about 'Triggers that delay the healing rate of TSW' and other clips about irritants. Best of luck!

CAP, Cold Atmospheric Plasma, you can find several videos on this channel explaining exactly what it is, what it does and where you can find clinics.

Sure, you can send me a message on my Instagram or via FB Messenger (contact info is in de description of this video or the description of this channel). I can give you contact details of the clinic and explain a bit which info to send them.

Hi :) Sleeping pills on itself usually don't case any problems with TSW skin (unless you are allergic to one of the ingredients). Of course discuss with your doc which ones are safe for you to use and dosage and so on. RLT on itself is well studies and has great benefits to the skin. So it's more likely that you were exposed to a irritant at the clinic you went to (cleaning detergent, perfumes in the air, etc.) Clinics that are not TSW specialized, are usually not TSW friendly in terms of irritant exposure ;) Or maybe some irritant exposure elsewhere coincidentally after you went for the RLT. RLT will help your skin heal, so you could also consider buying a panel for home use, so you can control irritant exposure better. Only avoid RLT on oozing spots or when you have a bacterial skin infection or when you are flaring heavily from irritant exposure.

It depends on the dose (how many bottles) that you have been using. (so not the length of time). You might have spread the steroids a bit by rubbing in your eye with your fingers and then touching your hand and arms. Usually a period of 8 months of steroid usage does not give a person severe TSW, but as mentioned before, it depends on the dose. It's not very likely that you are a severe case since the rash has spread only to your hands and arms and not full body. Although what you are experiencing is still very uncomfortable and intense to go through. Best what you can do at this time is check all the videos on this channel so you understand better what tsw is. Also: avoid moisturizing and learn about irritants and avoid irritant exposure and other triggers until your skin is healed. I wish you the best healing rate possible.

No, it is reversible, just not in every case 100% reversible. It depends on the severity of the hardened skin (which depends on the dose and type of moisturizers that have been used on thinned, impaired skin). To give an example: if a person has middle or severe TSW and has used moisturizers 3 times a day for 3 years, the chronic hardened skin is much more severe than someone who has middle or severe TSW and who has used moisturizers for 6 months. The longer the moisturizing on thinned, impaired skin has been going on, the more severe the hardened skin will become. In the first example (3 years, 3 x a day) the hardened skin is likely not 100% reversible, but 80% reversible or 90% reversible. So this person is left with visible wrinkles and when you touch the skin it still feels thickened. Hardened skin is a real issue. Sooo many TSW patients are using moisturizers on their skin and end up with hardened skin, not knowing what it is. Severe hardened skin is very painful and the process of healing is very slow. From what patients describe if can feel very very thigh, like suffocating in their own skin. The skin is not flexible and cracks with movement. Some patients are not able to turn their neck or open their arms fully. To get a better understanding you might watch all videos on hardened skin on this channel (I think there are 3 of them). I really hope this information will spread, to prevent further suffering. So please share if you can.

:D good one, lol. It was part of my surrounding at the time (I was in Thailand then)

At the moment there is a clinic in Thailand, Singapore and in the UK. Some beauty salons are also offering CAP, but be aware that the result may be very different. The UK clinic has a waiting list at the moment, the Thai clinic is the most economical. If you send me a message on my Instagram, I can answer you with a voice note if you need more info.

Hi, as far as I know the serum is not available in India yet. I guess you could order it in Thailand at the clinic and they can ship it to you, but you would have to check if the customs in India let it through.

Very good, best skin I can remember having, not even any eczema spots. I learned a lot about triggers, allergens and irritants during my CAP treatment, so maybe this is also helpful for avoiding eczema triggers. I'm much more aware of what products I'm using (not only on the skin, but also around the house), I'm much more conscious of triggers like not enough sleep or stress or alcohol use (I don't drink at all) and some personal food triggers I have. All in all, my skin is doing really good and most people even think I'm younger than my actual age, haha, who would have thought after looking like a granny during TSW. :)

Hi, no I never had zingers or hair loss. All the other symptoms, yes. Very intense! I'm glad to hear you are doing better! I wish you the best healing rate possible.

Yes, I have talked to hundreds of TSW patients and I have seen about 70 cases live. So being able to observe the skin, see a part of the healing process and talk to the patients.

That is a high dose. But It also depends which class of steroids you have been using. Most problems start from class 5 upwards. (class 1 being the strongest and class 7 being the least strong).

@@TSW.healing It was 1/4 formula steroid, so i dont know which class was it.

Please send me a message on my Instagram. Link is provided in the description of this video. I'll send you a voice note back.

@@TSW.healing done!! Waiting impatiently for your reply 😄😄😁

@@TSW.healingcant find your instagram, can you pls tell??