I really appreciate the mother being honest about how she struggled with believing her daughter against what the doctor said. It’s nice that she took responsibility for that.
Drs don't know everything, mothers need to start listening to their Intuition more. Too many times we don't listen to our mothers Intuition because of a dr
@@HarvestMoon21 and what about theirs. They have all the right go express this it has nothing to do with u. U must be slow u mention religious freedom then try to demean theirs. U are a hypocrite
weird. It is cuz of this video I realized that there is something wrong. I just t hought I had a strong sex drive. It pushes me to the edge of the suicide.
I love how the partner explains himself and sex as special as some guys would appreciate her offer of needing sex to calm her pain down, but he doesnt. *That's a real man!*
Her fiancé is amazing. So patient and loving. Definitely a great match! I hope they continue to grow together and that he stays with her :) I hope there will be more ways to relieve her of her pain in the future.
Wow. This sounds like one of those conditions that you joke about, but never really considered as a real treatment. It must be so painful to have that constant desire without any real satisfaction.
It’s hell. I suffered with it for 7 months until I became pregnant. Thankfully it’s gone away, but I fear so much it coming back after the baby is born. It’s pure hell.
I cried when I heard her bf speak about how he was there for her and would help with anything she needed. Not everyone would do that and it takes a special kind of man to step up and be there for you 100%. Glad that mom was honest about how the whole thing went down and no need to feel guilty anymore It's in the past.
Doctors consistently say "It's nothing" to everything they don't know the answer to! Even in this day and age, they still use that excuse for their own ignorance!
It’s far too common. Then to tell patients it’s depression or a mental disorder instead of referring to another dr! I think dr’s are too proud to admit they don’t know!
@@rachelkoehn5836 Admitting you don't know something is the path to knowledge. Noone knows everything even in areas we are experts at and that's okay. It's too bad people willingly choose ignorance including highly credentialed people. Admitting you don't know something shouldn't be looked down upon which is a shame (and likely why docs don't want to admit they don't know).
@@mrod8578 That plus I think most doctors don't care. They are overworked and if they had any empathy to begin with, it's long gone as they get into their careers and lose that sensitivity. My mother in law had a procedure done on some vericose veins recently, the second round of surgery, and the anesthesia didn't take the way it did the first time. She was in excruciating pain the entire time, crying, and they just told her "it's not supposed to hurt" and "it didn't hurt when I got it done" like wth! It didn't hurt her the first time, but for whatever reason it definitely hurt like hell the second time! They brushed her off. That's how these people get through the day. Our problems are ours. (Which there is definitely truth to that, but still...)
I remember watching this poor girl on Dr. Phil and the trauma she went through just to get a proper diagnosis. I'm glad she's doing better, but now to find a solution to the disorder. Best wishes for her.
@@karinasanchez9444 I’m so sorry. I can’t even imagine trying to explain that to your parents as a five year old. I really hope there’s some kind of cure for you soon.
Don't people ever gets tired of asking dumb questions as to who is looking at this and who is looking at that? People should look on what they want without anyone questioning them as if thought they r a kid.
She is so brave to explain her condition especially because she said she doesn't like being online and she is so strong to deal with this all the time and all the pain
She isn’t “lucky to have someone understanding” this is just how people should be in general. I wish we didn’t have to call people lucky just for having people in there life that show basic respect and emotion and love
Bless you; on another vid about a man with a similar condition, someone describing themselves as a "Christian woman" blasted everyone who "claimed" to have the condition were just liars out to seek fame & be noticed. I got so enraged I thought my head would explode. True Christians are supposed to have compassion for the afflicted, aren't they?? (and yes, I know from personal experience what this is like; mine is very similar to what this girl suffers).
@@roaxelie Thank you. As a person with a number of health problems that I CERTAINLY didn't ask for or deserve, it gets beyond frustrating when somebody claiming to be a Christian fries me or others with problems rather than showing what I'd always been taught was a Christian attitude....compassion, loving, kindness, non-judgemental. It's not always easy --we know some of the conditions are very strange--, but we sure didn't ask to live in constant agony, frustration, & lack of functionality. Blessings to you.
@@kellyhoward6941 Yeah I agree. Christians are supposed to be a reflection of Christ. We are actually called to pray for people that are suffering. What that woman did was very wrong.
I wonder if Botox down there would help numb, or "deaden" some of the pain. I used to get injections for migraines and it helped. Or radio frequency ablation (RFA) where they cauterize the nerves affected.
Botox for that area sounds like it might help. I can’t imagine it would make the situation worse than it already is. I hope she gets the relief she needs, it must make her life miserable. 😢
@Jennifer Woodhead I assume you’re joking. Not a very nice thing to say. The mother was clearly distraught about not believing in her daughter. She at least has a heart.
@Eli Shhh I did and it didn't help that much! But also its not a sex drive. Went I took molly about a decade ago my sex drive/libido went through the roof lol. But it actually decreased bloodflow downstairs if u know what I mean. So it got rid of the pgad for 4hrs. If that doesn't make since think of it like this, a man may take molly or be in the mood but he cant rock up. But the opposite may occur too. Say a man is constantly being fed viagra without his consent, he doesnt necessarily want to get it on in fact having a rock in his pants will decrease his sex drive. Woman and I guess men who have a high sex are nymphomaniacs! Pgad is not that...
I hope she recover soon, but I notice that the female doctor of her, is an Indian & it feel extremely happy and proud. Someone from my country serves patients in the University of Michigan hospital.
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
Her mom breaking down and saying she still feels guilty for not believing her... Broke me! It's ok mama! You did the best you could especially with such a rare disease and no knowledge!
I pray that everything will work out for her in the future and her relationship. You’re not the only ones going through something like this. Please stay strong and patient
Wow thank u for sharing ur story. I. Really don't think I experienced. A real one myself and I am 39. But I'm glad her family is their and supporting her. So happy she has a good man in her life.
I suffer from this; have done for fifteen months. By sheer chance, I found Zolpidem completely removes the sensations. This is a horrendous condition! I don't suffer pain like this lady but the arousal, the creeping, crawling, tingling sensations are constant - day in, day out. Not a day goes by where I don't consider suicide. My Dr is understanding but it must be hard for her to imagine, especially when I cannot describe it. I would only wish this on someone else for a couple of minutes, just so they could know exactly how it feels. Restless legs accompany this for me. So, so over it.
I just stumbled on this, but as a pain patient who has explained the hand painpreading like an organ, which starts to spread after a certain threshold, I wonder it TENS or transcutaneous nerve stimulation device would help for you? It helped me ifmI had pad in both palms and both soles so that it went across the spine. I just could not use it more than a week in a row without starting to get electric stinging from the device. But it has helped the pain, which only reacts to fast opioids like oxygenic etc.
Charles B I’m single so I don’t have to worry about that. But is your gf on any meds? That plays into it a lot and sometimes older ladies lose it too. 😔
Charles B. She may be asexual. I’m never aroused either. Before I realized I’m asexual, I got LOADS of tests done for things that can impact libidos. Everything in my body is a-OK. I’m just asexual. Your gf may be too. Humans are weird 😂
i don’t have this condition but i have random spasms and other feelings there aren’t really words to describe because of sexual trauma and i feel this woman’s pain
I do not have this disorder. I have had moments where arousal won't go away and it's extremely uncomfortable especially when in public. I can't imagine how she feels
I'm chronically ill with a rare disease as well with basically no treatment. I can't leave the house and will never have a job. I feel hopeless. I've spent 7 years like this and I'm only 23, the future looks very dark. Doctors refuse to help me though I wish there was some sort of medicine then I'd eat it and finally completely my upper education finally get a job move out start my life.
It's so hard when doctors can't figure out what's wrong and say its nothing.. What a brave girl.. Thank goodness she was born into a family and country that won't ostracise her ❤
That’s a horrible feeling! I went through that for 6 hours when I was given Reglan once in the hospital. The feeling was so horrible I wanted to die, I could never do that constantly like she has because that’s just an unlivable existence.
I can’t imagine ever dealing with that amount of pain every single day plus having periods once a month but I’m really glad that she was lucky enough to find a partner that loves her and always does what’s best for her
I hope one day you find what eases your pain and takes the disorder away. Thank you for sharing your story. Some may not come forward until they see that they are not alone.
@@Eheh980Hii i wanted to ask, do you like getting treatment? and are the symptoms improving? because I felt these symptoms almost a year ago but haven't seen a doctor yet
@@maddiewhatever441Hii i wanted to ask, do you like getting treatment? and are the symptoms improving? because I felt these symptoms almost a year ago but haven't seen a doctor yet
To everyone it may concern, there is actually a similar condition for men. It's called priapism and it's named after an ancient god of Greek mythology, Priapus (Πρίαπος), who was the God of fertility and male genitalia. It's an extremely painful condition, where the penis can be aroused for hours, in the absence of stimulation. It's not embarrassing. It's nothing to be sarcastic about. It's nothing to be laughed at. It's a serious medical condition.
I don't know why but I immediately thought of a scene from Nymphomaniac Vol II when she said she begged for sex. This condition is literally incredible to hear about and I'm hoping there will be a cure for it.
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
I am 65 this started for me at about 10 years old. I am just now putting a name to it. I just accepted it and for many years thought it was just normal. Actually for me it is now. I did think it would stop after menopause but it didn't. I find it more annoying now that I am older and a widow. My husband was very supportive and understanding. To put a name to it is great but it doesn't stop the orgasms. I would love a partner again that accepted it and enjoyed it as often as he did but at my age how? I just endure and use my toys.
honestly the mum seems really nice. like, being a good parent and never doubting your kid is great but whats even better is to doubt them and then call yourself out, saying 'i was wrong, i'm sorry.'
I know this is an older video, but if it is at all possible to get information to this lady I want her to know I have a lot of similar issues including spastic Pelvic floor dysfunction, vaginismus, Endometriosis, PCOS, and interstitial cystitis and I see a surgeon in Scottsdale, Az named Dr. Michael Hibner who is the leading surgeon in the US for this type of issue. He has developed many different new and cutting edge surgical procedures as well as vaginal suppositories that help calm the vaginal muscles inside and stop the pain. They have literally saved my life. He also does Botox across the pelvic floor which includes vaginally to impair the muscles from spasming. There are also pelvic floor physical therapists who can help with this specific diagnosis greatly. Hopefully this information gets to you and I hope it can help.
I really appreciate the mother being honest about how she struggled with believing her daughter against what the doctor said. It’s nice that she took responsibility for that.
It's incredible to me, my mother would never, the mother damn near made me cry when she started crying becuase she felt guilty
Drs don't know everything, mothers need to start listening to their Intuition more. Too many times we don't listen to our mothers Intuition because of a dr
She’s a great mom
Right
That’s what I was thinking too. I appreciate the honesty
That's like having to sneeze all the time but it never comes out
*cums
ya boi 😂😂😂😂👍
Basically Olivia lmao but her husband is prob like, hell yeah! Finally a girl I can turn on 😂
Mason Parkin nope, guys think they want this til they have it
Basically Olivia except with pain. In most people.
The mother is nice, she took responsibility for her mistakes, that’s rare
the mum looks very tired- i feel bad for her too.
And I hate it when the doctors don’t believe the patients
@@Mote78 you feel me
Wow you look enchanting I will love to get to know you please contact me on here if interested {samuel.obas02/@/y/a/h/o/o/./c/o/m/}
Yes rare it is.
I pray one day she will be healed.i can't imagine how she deals with it
I can...
Jasiek 97 lmao
@@HarvestMoon21 and what about theirs. They have all the right go express this it has nothing to do with u. U must be slow u mention religious freedom then try to demean theirs. U are a hypocrite
@@comelordjesus4078 you expressed that on them not me ! Read your comment Lord!
Amen to that🙏🏽
ALWAYS BELIEVE WHAT YOUR CHILDREN TELL YOU THERE IS NO NEED FOR HER TO LIE.
In guessing u don't have kids since kids are known to lie for attention. Plus they can also be convinced to lie ..but okay 😳🙄🙄🙄😂😂😂
Amira Guereca I would say check out what they say because u never know
Im just like 50/50 to be sure cause theres a two side of every story and im trying to understand both!
Amira Guereca Not everything they tell you but personal things they constantly complain about.
It looks like mom might ice sk8 on a regular basis.
Ok that + period cramps must be an actual living hell.
Todomo it is
Oh Jesus Christ I don’t want to imagine that-
Not everyone gets those.
Oh girl definelty
But technically sexual arousal/ orgasms on your period are supposed to lessen the cramps
I feel so bad for her ! It must be really unconfortable
weird. It is cuz of this video I realized that there is something wrong. I just t hought I had a strong sex drive. It pushes me to the edge of the suicide.
Sue Ryan oh wow, glad you found out what was going on!!
@@bigchungus2990 There is nothing I can do.
Its so unconfortable.
I hope you have found help to ease your symptoms. Please don't end your life -- help is out there and hopefully there will soon be a cure!
Ugh poor woman.
Then you get some women, who find it hard to get aroused.
@@heyitsbrianna136 Sexual Arousal is different, for females than in males..
U dont need to wear a mask in the picture
Nothing poor about a woman pretending
flogger lmao
I love how the partner explains himself and sex as special as some guys would appreciate her offer of needing sex to calm her pain down, but he doesnt. *That's a real man!*
When she asks for it he might go for a round or two. But after that he can't do it. It's a different case for her.
Most men say they want to date a sex addict or nymphomaniac until they meet one....I feel her boyfriend
@@MegaLilei right then when they get with one they figure out they cant handle it
Yeah imagine having a partner who wants sex all the time......
When your a teenager sure lots and lots of sex is fun but as you get older it becomes more hard work as the body gets more aches n pains!
Her fiancé is amazing. So patient and loving. Definitely a great match! I hope they continue to grow together and that he stays with her :) I hope there will be more ways to relieve her of her pain in the future.
@@stonerdude3098 shut up
A loving partner it's a must especially with her condition.
Wow. This sounds like one of those conditions that you joke about, but never really considered as a real treatment. It must be so painful to have that constant desire without any real satisfaction.
I can remember how inconvenient a horny burst at work would be when first dating a new guy. I can't even begin to imagine this.
It’s hell. I suffered with it for 7 months until I became pregnant. Thankfully it’s gone away, but I fear so much it coming back after the baby is born. It’s pure hell.
@@lucychoisnard7939 i can't understand why there isn't some cure!!
@@lucychoisnard7939 How are you doing, Lucy? Have you had the baby yet? Did it return?
It’s hell. Coming up to a year of having this condition and I still haven’t got my diagnosis! It’s horrendous. I have no life.
"she met her partner and they have been inseparable ever since"
tubester4567 literally😭😂
😂
I'm sure
I bet.
I bet so if you have unlimited supply of cooch
It's less of a constant raging boner and more like never ending blueballs.
Leah Bear exactly lmaooo
Leah Bear now that sounds painful
Before guys figure out masturbation they have both raging boners and blue balls. I wouldn't wish it upon anyone.
Omg! Lol...my name is "puma bear" but my real name is "Leah" (it's rare I see anyone with my name, lol)
PUMA BEAR two of my friends names are Leah spelled that way
I cried when I heard her bf speak about how he was there for her and would help with anything she needed. Not everyone would do that and it takes a special kind of man to step up and be there for you 100%. Glad that mom was honest about how the whole thing went down and no need to feel guilty anymore It's in the past.
Are you okay?
Doctors consistently say "It's nothing" to everything they don't know the answer to! Even in this day and age, they still use that excuse for their own ignorance!
Exactly! I have this condition and the docs told me the same thing!
It’s far too common. Then to tell patients it’s depression or a mental disorder instead of referring to another dr! I think dr’s are too proud to admit they don’t know!
@@rachelkoehn5836 Admitting you don't know something is the path to knowledge. Noone knows everything even in areas we are experts at and that's okay. It's too bad people willingly choose ignorance including highly credentialed people. Admitting you don't know something shouldn't be looked down upon which is a shame (and likely why docs don't want to admit they don't know).
@@mrod8578 That plus I think most doctors don't care. They are overworked and if they had any empathy to begin with, it's long gone as they get into their careers and lose that sensitivity.
My mother in law had a procedure done on some vericose veins recently, the second round of surgery, and the anesthesia didn't take the way it did the first time. She was in excruciating pain the entire time, crying, and they just told her "it's not supposed to hurt" and "it didn't hurt when I got it done" like wth! It didn't hurt her the first time, but for whatever reason it definitely hurt like hell the second time! They brushed her off. That's how these people get through the day. Our problems are ours. (Which there is definitely truth to that, but still...)
That’s why it’s called “practicing “ medicine.
I remember watching this poor girl on Dr. Phil and the trauma she went through just to get a proper diagnosis. I'm glad she's doing better, but now to find a solution to the disorder. Best wishes for her.
13? Such a young age for that to start :( that must of sucked that people couldn’t understand or believe what she was going through
Puberty sucks in general, adding this to it is a just the cherry on top! Talk about a hellish puberty sundae!
Ive had this my whole life. Symptoms atarted as early as 5yrs old. Life is hell.
@@karinasanchez9444 I’m so sorry. I can’t even imagine trying to explain that to your parents as a five year old. I really hope there’s some kind of cure for you soon.
Bye Felicia 😘
Wow you look enchanting I will love to get to know you please contact me on here if interested {samuel.obas02/@/y/a/h/o/o/./c/o/m/}
Who is watching this while quarantined?
Btw this is painful
Me...🙋♀️
Don't people ever gets tired of asking dumb questions as to who is looking at this and who is looking at that? People should look on what they want without anyone questioning them as if thought they r a kid.
@@jasminmckenzie1671 if you dont want to see it then dont come to a comment section...🙄
@@jasminmckenzie1671 okk bish
@@ayanda_shongwe so u were born from a man? that's why u found the B word in ur filthy mouth? too bad u haven't gotten any training from a woman.
She is so brave to explain her condition especially because she said she doesn't like being online and she is so strong to deal with this all the time and all the pain
It’s heart breaking to see and hear parents be dismissive of their kids. I wish this young woman only good news.
Her fiance sounds like an amazing man, she's so lucky to have someone so caring and understanding
He probably dates and got engaged to her for looks.
@@beauty84535 What is wrong with you?
@Tom Burkart this guy get's it... lmao
She isn’t “lucky to have someone understanding” this is just how people should be in general. I wish we didn’t have to call people lucky just for having people in there life that show basic respect and emotion and love
@@beauty84535 Lol, was that a joke? It was funny either way.
She kinda sounds like Meg from family Guy 🤷🏼♀️
Mila kunis
You're right , she does
Baby Cas
😂
defo
Yes
I would love an update on this woman. She discovered love and had so much hope with this committed doctor. I truly hope she found peace ❤️
I pray for your healing beautiful sister!Much love from Nigeria 🇳🇬
May she get cured and healed completely.
God bless her.
Bless you; on another vid about a man with a similar condition, someone describing themselves as a "Christian woman" blasted everyone who "claimed" to have the condition were just liars out to seek fame & be noticed. I got so enraged I thought my head would explode. True Christians are supposed to have compassion for the afflicted, aren't they?? (and yes, I know from personal experience what this is like; mine is very similar to what this girl suffers).
@@kellyhoward6941Yes, she shouldn't do that. She should pray for them instead of judging or insulting them.
@@roaxelie Thank you. As a person with a number of health problems that I CERTAINLY didn't ask for or deserve, it gets beyond frustrating when somebody claiming to be a Christian fries me or others with problems rather than showing what I'd always been taught was a Christian attitude....compassion, loving, kindness, non-judgemental. It's not always easy --we know some of the conditions are very strange--, but we sure didn't ask to live in constant agony, frustration, & lack of functionality. Blessings to you.
@@kellyhoward6941 Yeah I agree. Christians are supposed to be a reflection of Christ. We are actually called to pray for people that are suffering. What that woman did was very wrong.
For a second i thought the title said abused
brayden lee same
brayden lee- same
Same.
For real I thought to myself how is that being born different
Same
Omg Dr. Gupta used to be my doctor like 4 years ago! Too bad I moved out and got a different one -_-
My Name Is Pro she's hawttt
Melissa mm wow ok then
Pro ¡•¡ liar liar pant for higher
Rice Bear ladybug!!!!
I see Dr Gupta for my Tourette syndrome!
Theres been several stories about women who constantly orgasm. Is this disorder more common in women?
GalaxyEspeon She can't orgasm. She gets aroused constantly, but there is no peaking into orgasm. She's stuck in the arousal state.
taoist40 Niether way, alot of these stories include women, so maybe they are more prone to it?
GalaxyEspeon well with men it's priapism maybe?
GalaxyEspeon jThe hbThe
Yeah it is
This is painful beyond one's imagination. God please make her all healthy.
1:30 I'm happy that her mother apologized and realized that her daughter was not lying!
🙏🥀♥️🥀🙏
I wonder if Botox down there would help numb, or "deaden" some of the pain. I used to get injections for migraines and it helped. Or radio frequency ablation (RFA) where they cauterize the nerves affected.
Eva Marino 😱😂😂😂
Pushing needles in sensitive areas won't help.
Smart woman! Botox will probably work
Botox for that area sounds like it might help. I can’t imagine it would make the situation worse than it already is. I hope she gets the relief she needs, it must make her life miserable. 😢
@Jennifer Woodhead I assume you’re joking. Not a very nice thing to say. The mother was clearly distraught about not believing in her daughter. She at least has a heart.
"Ice inserts"
I'm sorry but....
Jesus Christ that's... ow ow
Leave Jesus out of this, that's blasphemy & irreverent! 👎🇦🇺
What does Jesus have to do with this? Why mention his name for?
@@kravenLaw1 for God's sake, it's an expression of shock you imbeciles
@@tsrenis took the words right out of my mouth. Glad someone said it smh
@@tsrenis oh and be careful you said "for Gods sake" WhAt dOeS GoD hAve tO do WiTh it" 😂😂😂🤔
Thank you for bringing awareness to this condition, it's very obscure and very misunderstood at the same time!
In the name of Jesus I pray healing for this woman Amen
Amen
I pray for her too... Amen......
Amen! Im praying for myself too because I also have this condition!!!
@Eli Shhh I did and it didn't help that much! But also its not a sex drive. Went I took molly about a decade ago my sex drive/libido went through the roof lol. But it actually decreased bloodflow downstairs if u know what I mean. So it got rid of the pgad for 4hrs. If that doesn't make since think of it like this, a man may take molly or be in the mood but he cant rock up. But the opposite may occur too. Say a man is constantly being fed viagra without his consent, he doesnt necessarily want to get it on in fact having a rock in his pants will decrease his sex drive. Woman and I guess men who have a high sex are nymphomaniacs! Pgad is not that...
Amen, I pray for her healing as real!
I don't judge her mother, but she sort of reminds me of my mother... She judged her own daughter without even trying to understand, very hurtful...
It's a rare condition . I don't think she did it on purpose. She just didn't understand or have knowledge about the condition.
I feel bad for her but it’s brilliant knowing that she has a brilliant partner who cares for her
She sounds like mila kunis
Melissa mm bish where
Melissa mm nahhh
Melissa mm barely
And looks like her
Oscar Fitness not at all
I'm glad she's with someone who is understanding.
1:37 aww u can see the mom felt very bad she didnt trust her daughter before... 😢
I hope she recover soon, but I notice that the female doctor of her, is an Indian & it feel extremely happy and proud. Someone from my country serves patients in the University of Michigan hospital.
My mom’s doctor is Indian and my mom absolutely loves her!
Dr. Gupta looks like she's half Indian maybe. Indian father and white momma. She's probably not actually from India she's probably born in America.
When I started taking the pill,.I felt like this for a month. I am so happy it stopped. I can't imagine living my whole life like this...
What pill?
I appreciate the mom being completely apologetic it must've been hell for her daughter I'm so sorry
That sounds like a nightmare.
Wow, this was a lot sadder than I thought it was going to be.
When pleasure becomes a Curse
That really sucks. I hope the best for her
me to intesrting name btw
Poor girl. I can't imagine having to go to school and other social gatherings while dealing with that. I hope they find a cure for her.
He said he was ready to jump in....LOL
( ͡° ͜ʖ ͡°)
@@krsa8597 Ugh you didn't properly come in right it goes more like this (͡° ͜ʖ ͡°)
😂😭
I couldn't imagine having this, it makes me feel bad for these women who have it
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
I feel SO BAD for her!!! I hope she’s able to find relief!
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
Courageous woman to speak of this publicly I wish her the best
my heart goes out to her. she’s so beautiful and strong. God bless her.
I'm so happy she has someone to help her through this and to be understanding. I hope she continues to find better ways to cope.
He's probably helping her thought it because of looks.
1:15 wow that’s bizarre way to talk about your daughter
Disgusting of the mother to even say that.
@@lavenderlabrys3479 found the feminist
Yeah that’s what I thought.. she’s rough as guts
F212, flawless block U2 found the incel
@@ripabigfatoneforme lose some weight
Her mom breaking down and saying she still feels guilty for not believing her... Broke me! It's ok mama! You did the best you could especially with such a rare disease and no knowledge!
Hello Amber how're you doing?
I pray that everything will work out for her in the future and her relationship. You’re not the only ones going through something like this. Please stay strong and patient
30 medications. god damn, its hard enough with taking 2 medications for me.
...I feel like you've done this documentary 10 times already...
Yea i think its a re upload
This is one of those disorders that you joke about until you really consider how detrimental it would be
Wow thank u for sharing ur story. I. Really don't think I experienced. A real one myself and I am 39. But I'm glad her family is their and supporting her. So happy she has a good man in her life.
I suffer from this; have done for fifteen months. By sheer chance, I found Zolpidem completely removes the sensations. This is a horrendous condition! I don't suffer pain like this lady but the arousal, the creeping, crawling, tingling sensations are constant - day in, day out. Not a day goes by where I don't consider suicide. My Dr is understanding but it must be hard for her to imagine, especially when I cannot describe it. I would only wish this on someone else for a couple of minutes, just so they could know exactly how it feels. Restless legs accompany this for me. So, so over it.
Contact me. As long as your teeth aren't like hers
Kevin Polk she takes 30 different medications that’s causes mouth issues even if you brush them do your research instead of making crappy remarks
@@Mister75199 shame on you.
Well can you take the zolpidem when it starts? You mentioned that gave you some relief. I feel for ya girl, it sounds aweful.
I just stumbled on this, but as a pain patient who has explained the hand painpreading like an organ, which starts to spread after a certain threshold, I wonder it TENS or transcutaneous nerve stimulation device would help for you? It helped me ifmI had pad in both palms and both soles so that it went across the spine.
I just could not use it more than a week in a row without starting to get electric stinging from the device. But it has helped the pain, which only reacts to fast opioids like oxygenic etc.
She’s constantly aroused then u got me who’s never aroused. Is there no happy medium?!
Check diet and exercise. Sex drive is the first thing to go.
Traci Smith My gf is the same way. She is never aroused. Really puts a strain on our relationship.
Charles B I’m single so I don’t have to worry about that. But is your gf on any meds? That plays into it a lot and sometimes older ladies lose it too. 😔
Charles B. She may be asexual. I’m never aroused either. Before I realized I’m asexual, I got LOADS of tests done for things that can impact libidos. Everything in my body is a-OK. I’m just asexual. Your gf may be too. Humans are weird 😂
Milfuelle100 🤔 that would explain a lot. And yea humans are fricking weird 😂😂
i don’t have this condition but i have random spasms and other feelings there aren’t really words to describe because of sexual trauma and i feel this woman’s pain
I do not have this disorder. I have had moments where arousal won't go away and it's extremely uncomfortable especially when in public. I can't imagine how she feels
Her and period cramps I feel so bad
The fiancee didn't mind when he found out.... who would have thought??
Lmaooo, they have been "inseparable" ever since. 😂🤔
Girl Beggin for sex all the time lol
Lucky guy
Ya......want sex all the time. I'm in!
@@hanskazan7403 what's with the lol?? Did u watched the video or not. It's painful dude. Joke about something that u suffer ... not others
I'm chronically ill with a rare disease as well with basically no treatment. I can't leave the house and will never have a job. I feel hopeless. I've spent 7 years like this and I'm only 23, the future looks very dark. Doctors refuse to help me though I wish there was some sort of medicine then I'd eat it and finally completely my upper education finally get a job move out start my life.
it's official... I've seen everything now....
It's so hard when doctors can't figure out what's wrong and say its nothing.. What a brave girl.. Thank goodness she was born into a family and country that won't ostracise her ❤
Wow you look enchanting I will love to get to know you please contact me on here if interested {samuel.obas02/@/y/a/h/o/o/./c/o/m/}
Id rather doctors tell me “i dunno but we will try and figure it out” then its nothing
That’s a horrible feeling! I went through that for 6 hours when I was given Reglan once in the hospital. The feeling was so horrible I wanted to die, I could never do that constantly like she has because that’s just an unlivable existence.
I thought the title said " constantly abused " 😩
same XD
Me too
Raquel lmao
Damn that's a hot doctor.
Shes alright
I’d like to make her aroused.
With my PEEENIS
If I had that condition she couldn't be my doctor
i have a small penis
2.55" I liked her so I was prepared to basicly jump in" 🤣🤣
Your a kind man
I can’t imagine ever dealing with that amount of pain every single day plus having periods once a month but I’m really glad that she was lucky enough to find a partner that loves her and always does what’s best for her
I hope one day you find what eases your pain and takes the disorder away. Thank you for sharing your story. Some may not come forward until they see that they are not alone.
I have this disorder. I was so relieved when I was finally diagnosed.
I have just discovered the name of it! I feel so relieved! But I'm 31 and dealing with it since a teen. It's awful
I also have it. I was born with it and finally figured it out at 15. Now I'm 17 and spend all day fighting the stigma that surrounds it.
See an Osteopath, it's a physical problem.
@@Eheh980Hii i wanted to ask, do you like getting treatment? and are the symptoms improving? because I felt these symptoms almost a year ago but haven't seen a doctor yet
@@maddiewhatever441Hii i wanted to ask, do you like getting treatment? and are the symptoms improving? because I felt these symptoms almost a year ago but haven't seen a doctor yet
I feel for her, I see the pain in her eyes. I pray she will find relief
To everyone it may concern, there is actually a similar condition for men. It's called priapism and it's named after an ancient god of Greek mythology, Priapus (Πρίαπος), who was the God of fertility and male genitalia. It's an extremely painful condition, where the penis can be aroused for hours, in the absence of stimulation. It's not embarrassing. It's nothing to be sarcastic about. It's nothing to be laughed at. It's a serious medical condition.
I cannot imagine how hard this would be to deal with :(
My wife has something similar, but the complete opposite.
dusty2good sounds like you need to learn to turn a woman on before someone else does
😂😂🤣
Bruh 😂😂😂
@Fried Chicken u cant let that happen, or 1 of you will get it else where. Not many are happy in a sexless relationship
ok boomer
I feel so bad for her, I'm sure there are medications out there that will ease her pain
Why most comments in RUclips are soo much supportive and loving compare to twitter
I don't know why but I immediately thought of a scene from Nymphomaniac Vol II when she said she begged for sex. This condition is literally incredible to hear about and I'm hoping there will be a cure for it.
I wouldn't wish this on the worst person imangable and shes going going through it. I cant imagine how it feels to be constantly needing relief.
This would be miserable. I feel so bad for her, not only her disease but having suffered all that judgment her entire life.
OBAMWONYI
I understand. It’s painful for me.
"I don't want to be on social media"
*goes on barcroft*
I'm a man but I know your pain sister and i pray to god for you
I feel for her this has to be so uncomfortable and hard to deal with
baby Am Ben easygoing person I like good and do good I like friends that have understanding and fun to be with I love arts, museum and music l lunch luxury every Eve I compose poem and scripts am a civil engineer and a contractor I work for company and I work in Asia,africa,and Europe I need a woman who understands What love is all about, to be my own I saw your picture and I am impressed you're beautiful and baby you shines like a diamond springs In Sky nicely like flowers in the garden of Eden's I close my eyes all I is you at first sight I felt the energy of Sun rays angel'wings written love on it I love you so much baby I want a wonderful woman will love me and know who I am and be mine forever i hope You will reply soonest thanks
Wow you look enchanting I will love to get to know you please contact me on here if interested {samuel.obas02/@/y/a/h/o/o/./c/o/m/}
What a kind boyfriend.
That doctor 😍
She looks more Latin than Indian.
TheEseJandro I knew I would see this somewhere.
@@ХареКришна-т7г Some Latins look Indian and vice versa.
I am 65 this started for me at about 10 years old. I am just now putting a name to it. I just accepted it and for many years thought it was just normal. Actually for me it is now. I did think it would stop after menopause but it didn't. I find it more annoying now that I am older and a widow. My husband was very supportive and understanding. To put a name to it is great but it doesn't stop the orgasms. I would love a partner again that accepted it and enjoyed it as often as he did but at my age how? I just endure and use my toys.
If she was to have to go through menopause, I believe she is a woman, not a man; by the way.
I am so very sad for her :'(
honestly the mum seems really nice. like, being a good parent and never doubting your kid is great but whats even better is to doubt them and then call yourself out, saying 'i was wrong, i'm sorry.'
Wow, how many disorders are out there! The problem is the suffering of bearing the pain and working around with a possibility of not finding a cure...
I've been looking for a woman like this
"I'm ready again..."
"Sounds good 😊"
I hope life gets better. Keep moving forward love.
I know this is an older video, but if it is at all possible to get information to this lady I want her to know I have a lot of similar issues including spastic Pelvic floor dysfunction, vaginismus, Endometriosis, PCOS, and interstitial cystitis and I see a surgeon in Scottsdale, Az named Dr. Michael Hibner who is the leading surgeon in the US for this type of issue. He has developed many different new and cutting edge surgical procedures as well as vaginal suppositories that help calm the vaginal muscles inside and stop the pain. They have literally saved my life. He also does Botox across the pelvic floor which includes vaginally to impair the muscles from spasming. There are also pelvic floor physical therapists who can help with this specific diagnosis greatly. Hopefully this information gets to you and I hope it can help.
Dear girl this is such a difficult condition and anybody that doubts or jokes about it needs to stop it right now.
The very first sentence of this video is exactly how I feel about my anxiety - 24/7 and no one really understands. 😅😅
I understand. I used to be like that but God healed me. ask him to heal you . 💝