I am 67 years old man who was diagnosed with pmr about 11 weeks ago. - First day، 3 ml of 40 mg/ml injection methylprednisolole acetate in addition to 20 mg tablet. - 20 days on 20 mg prednisolone -15 days on 15 mg. - 30 days on 10 mg. Now I am on 7.5 mg the last 5 days. The side effects were: 1- constipation 2- muscle cramps disappeared at 10 mg. 3- excess sweating is okay now. 4- skin Bruises to any small accident. I feel nearly ok now, but you can't imagine my happiness and good feelings like I become younger by 10 years minimum. My blood pressure 110/71 Glucose 5.6 I lost 2 kg 84 now. The sodium level is 135 and the normal between 135-145. Don't be scared about prednisolone! If you are diagnosed with pmr then there's is no choice not to take it. I am happy to be ob prednisolone 2.5 for a long time because i am feeling great
I cannot believe you quoted that retrospective study comparing AE between PMR steroid takers and non PMR patients! In five years we will all be five years older and sh*t happens to us all. I showed it to my doc but she still thinks prednisone is too dangerous for me to take. Even doctors have beliefs about the horrors of prednisone and way too many PMR patients are suffering needlessly. I've had a mostly great year doing even more than before. I realized I may have this the rest of my life, so not pouting and complaining, waiting around for it to go away. Full speed ahead, time is short! Struggling at 3.55/3.25, I will stay on track as long as I can.
I manage quite well 95% of the time on a daily dose of 5mg. If I have a flare, I take a second 5mg. That is rare though. I don't experience any side effects from my Prednisone usage.
Hi I’m 64 and am experiencing my second period of PMR but this time I’m not using prednisone . I have awful pain in my hands and both bursar. Legs and Pelvis are ok. Can’t take pred due to osteoporosis from previous long term use. Just taking Leflunimide. So proud of my ability to keep enjoying life! 😊
I’m a 52 year old woman. I’ve been diagnosed with PMR. I’m currently on 25 mg. Last 2 times I’ve gone down to 20 mg all the symptoms came back. My CRP and ESR was very elevated. But the last blood work it came down significantly. I’m hoping next week can taper down to 20. The relief I’ve gotten is worth the side effects. As the n saids I was on for months offered no relief, I was in pain and so swollen and inflamed. It took 3 1/2 months to diagnose. I live in Hawaii , good doctors are slim pickings
I was diagnosed by my GP with PMR last month. I am 54. I thought I was going crazy not knowing why I couldn't get out of bed in the morning without extreme pain, waking up with pain all night, not being able to get dressed without pain etc.. My doctor put me on 15 mg to start and I was amazed with how fast I felt relief. I have an appointment with a rheumatologist in a few weeks and she will be handling my case. Thank you so much for these videos. They have answered many questions I had about what I might expect in the future.
additional comment for Robert ,He tools predisone 5 mg at 10 pm. another 5 mg at 6 am. and a third 5 mg at 2 pm. a total of 15 mg. it was the spreading out the doses that made the prednisone effective . Taking it all 15 mg first thing in the morning did not work well for him. So if someone is struggling with this, this is another thing to try.😊
My experience has been taking the full dose first thing in the morning made for a very hard time sleeping at night. So I divided the dose in half and that provided me with a restful night of sleep (second dose 6 hours before going to bed)
Well an update on my PMR I di taper down and was off prednisolone for about 6 months then the PMR was back with a vengeance. I could not walk. So reluctantly I head back to the Doctor and Started steroids again. Now when I look back on my obsession to be off steroids I was in pain every day and I just tried to tell my self this my lot. I am back on Steroids and on 11 mg daily, yes my Doctor would like would like me to taper. But for the moment I am enjoying feeling the best I have in years with little or no pain. I can't then The Prednisone Pharmacist enough for all her dedicated hard work research and for sharing her wisdom with us all. I do follow her advice and share it with my Doctor. Looking forward to remaining healthy now for a long time
Age 72, eighteen months in with PMR yet my doctor refuses to diagnose PMR without a rheumatologist. My husband is an internist with 40+ years experience so he and his partners have been prescribing for me. I take Plaquenil and Low Dose Naltrexone, both very safe. So far tapering 1mg a month. My doc refused to prescribe even 1mg to help me taper, as she has made the risk/benefit decision for me, which is incredibly arrogant. My husband's partner was able to diagnose PMR in the grocery store, lol, and wrote a year RX for me. Your talk was so realistic and helpful! I'd send it to my idiot doctor but I just abandoned her for Direct Primary Care. .
Sounds like your doc got about as much education as I did about PMR in grad school: not much. Most aren’t comfortable making this kind of diagnosis so I get it. But super sad that they won’t even prescribe for you!
@@PrednisonePharmacist 75%of PMR patients see GPs, not rheumatologists. No one wants PMR patients in the US because most of us are on Medicare, they would go broke. AND refusing prednisone 1mg pills so I could taper, being dependent at that point, is malpractice. I just realized that.
I have been having all the symptoms of pmr since I had covid in January with excruciating left shoulder pain. This was after I had rotator cuff op in May last year. The pain in my back hips upper legs and even 1 ankle have been excruciating. In jan I had aCRP of 140 yet all I had were blood tears and abdominal scan . I began investigating on my own and yesterday went yo a dr who is investigating. Put me on 40md Prednisone 😮for 3 days then to taper down. Already after 1 day the pain has subsided. Have to return visit in 2 weeks so holding thumbs. I am 74 years old and previously very active so hope I can remedy this old lady feeling😊
Mine came on after a covid vax and a cat bite...only tried 10 mg.pred...I have osteroperosis and osteopenia...in pain all the dam time.😢 hate tgis crap
@@kandacepatterson7965 See if a higher dose helps, prednisone should let you live your life. I started on 20mg and had to split the dose to get through the night. Tapered down to 3.5 mg now.
I am 68 years old and was diagnosed with PMR approximately six months ago. I am a really healthy person and I haven’t had a bad cold in 20 years and I got three severely bad colds when I was taking prednisone that is my concern about taking prednisone. I was taking it mainly for arm pain I couldn’t even reach over to get my phone in the morning so I went on the prednisone and I tapered off slowly and when I tapered off I could tell the arm pain was coming back but I also developed leg and hip pain which I couldn’t even walk down the steps. So I was put back on 2 5mg tablets a day and that seems to be taking care of it. I am seeing my doctor tomorrow. I do have osteoporosis and I am on the medicine so these are my concerns. I loved your presentation.
Me diagnosticaron PMR hace casi dos meses, tomo 8 mg en la mañana y 4 por la noche, con esa dosis puedo realizar casi todas mis tareas sin gran sufrimiento. Gracias por el vídeo y destacar la importancia de tomar la dosis más baja posible. Al tomar cada 12 horas mejoró mucho la respuesta que con una toma única por la mañana, esto hace mucho a la eficacia de la dosis. Gracias.
Male, age 59 with polymyalgia diagnosed 3 months ago : My doctor started me at 10mg. It helped, but I was still having pain plus occasional bad flair up. Next my doctor increased it to 15mg. After a couple of weeks at 15mg, I had no symptoms at all. I reduced it back down to 12.5mg and still had no symptoms. After a few weeks at 12.5mg, I went back to 10mg. Within a week at 10mg the symptoms came back again. I went back up to 12.5mg and after a couple of weeks I no longer have pain except for some morning stiffness in the shoulders. I do some exercise each morning to get rid of the stiffness. I think I will stay at 12.5mg for a month before trying 11mg. I tried to temper to fast, but at least I know that 10mg isn't enough and that 15mg works the best. My doctor said it was ok to put up with some stiffness in exchange for a lower dose.
@@garynoll700 I found that after 15 days on 12.5mg all symptoms vanished. I then stayed at 12.5mg for another 30 days. Since then I have been tampering down 1mg every 22 days. I'm currently at 5.5mg and I still have no symptoms. I even started going back to the gym and I got my bench press back up to 250 lbs. I have been on Predisone for over 8 months now. I will likely have another 5 more months to go and hopefully the Polymyalgia will be gone and no more Predisone.
I started at 20mg. The mornings were not good. Had to go to 2 x 20mg per day. Thanks for your content. It has really been of help. I am signed up for auto delivery of Nutranize!
I was diagnosed with PMR in 2008. I finally discontinued prednisone in 2020. My average daily prednisone dose was 20 mg for more than 12 years. Technically, I still have PMR along with other autoimmune conditions. A biologic was believed to be my "best hope" of ever getting off prednisone. Biologic treatment allowed me to taper off prednisone in 7 months. I have now been off prednisone for two years. I'm slowly recovering from prednisone related side effects. The damage caused by chronic systemic inflammation is also apparent. Prednisone only manages the pain when remission should be the goal. I might be in remission but the danger of a relapse still exists.
I was diagnosed at age 41, I was in remission for four and a half years and the doctor originally told me that once in remission it would never come back. Sadly that is not a fact, as it is back. I am so frustrated and truly not wanting to go down this road that nearly crippled me already. Meeting anyone else who is here would be great. I am 48 now. Just finished another "round" as I felt the GP wasn't listening. I had all the right complaints but because I was told it doesn't come back I fought hard to keep ruling it out even though I felt this has to be PMR. The dosage i was best at was 25 Now I have to wait for another flare up to do more blood work just to get treatment.
My doctor had me on a fairly low dose for my PMR for about a year. The positive side - no pain, more energy, colors were brighter, food tasted better. It awoken al of my senses! It was a great year! The down side - I gained 20 lbs. that I have been having a hard time to lose!
I was diagnosed with PMR a week ago, given 20 mg which need to continue after the first week because of symptoms . I got this after having covid in february after being healthy and fit for my 65 years. So this is devastating and Im scared to death of those side effects. I shall start to look for alternative functional meds soon. Thanks for being so informative about it all.
I had Covid and on my 5 day woke with the symptoms…. I was in so much pain for months and my doctors had me on over the counter. Went to Mexico and had infusion and treatments that helped . My inflammation was 28.9 with little help. Was referred to a rheumatologist and I am on a steroid. I am tapering down. This is just awful!
@@julianavillanueva7385 the cortisone helps very quickly but the side effects are a challenge…..after 18 months I’m still on 7 mg and tapering very slowly …. I hope you feel better soon xx
I was diagnosed 5 weeks ago and took 15 mg .. within 12 hrs I could move again .. was needing help continually with everything and so happy to be independent again .Am now on 60mg daily awaiting tests for Temporal arteritis.. is this normal.. feeling confused and worried
I was diagnosed with PMR aged 50. I am now 74 (male) & have been on a roller coaster of flare ups over the years. My pain is in my hips & lower back + occasionally shoulders. Have taken 25 mg / day in past but always get a flare up below 5 mg/day. Very active, golf/ cycling/ Pilates/ & exercise with weights regularly so I decided to stay at 5 mg/ day where I can function absolutely normally. Been on this dose for a few years. Recently had a flare up for no apparent reason,so intend to go to 10 mg/ day & hope get rid of pain, then wind down back to 5mg/ day.
I feel very lucky that 5mg/day normally allows me to lead my active life, this flare up came out of the blue and took me a while to recognise. Thought old age had finally arrived! Couldn’t bend down at all & pain very acute, increased dose seems to be working. Thanks for info on your site. 😀
I began taking 20 mg in July of 2024, have tried tapering to 10 unsuccessfully, and with stress at Christmas had to go back to 20 mg for a bit. Tried 15 mg today and muscles in legs don't want to work well.
This is a great explanation of Prednisone and how to use it. On the other side of the equation is the PMR. Does ANYONE know how that can be reduced or cured or put in to remission????
Hi! You can check out this video about "Polymyalgia Rheumatica (PMR) Treatment: Essential Guide" View the full video here: prednisonepharmacist.com/education/polymyalgia-rheumatica-treatment/ For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
Thank you for the info...I am 68 yrs. old..... was diagnosed in 2016 w PMR...am currently on 2m medrol but still feel the pain & stiffness in morning & later in the day..I will have to taper down bc my Covid vaccine is scheduled for this wk & Flu shot next wk...hopefully will return to regular dosing.
Too freaked out about the side effects! I take tramadol as needed, ibuprofen, prescription strength, and am doing daily exercises with a physical therapist and chiropractor. I’ve had cataracts and surgery. I’d rather endure some pmr pain than lose my vision!
I am 56yrs of age. I was diagnosed with PMR in July 2021. I started on 15mg prednisone per day. It's been over a year and I can't get below 10mg with out the pain returning. I've tried to taper a few times but too much pain in shoulders and hips. I've gained about 10lbs and my face is huge. I was told that PMR runs it's course in approximately 3 yrs for most. I really hope that's true.
Can you get per in hands. I got in shoulders but goes to hands as well. Was taking 5 mg every other day and it was liveable but now got pain hands and may have to increase again.
I was diagnosed in September 2022 and I was prescribed 15 mg a day but I only decided to take 5 mg as I am 5 foot and weigh 110 lb I wanted to allow my body to tell me the dose needed I have been on 5 mg since the end of September 2022 it is now the first week of April 2023 and I’ve had an allergic reaction and I am now weaning myself down from 5 mg to 2 1/2 and I would do that just as explained in this video for a month and then lower it again here in the UK the only suggestion from my GP when I called to say I have allergic reaction was to go to A&E there’s no way I’m going to sit in A&E for eight hours and show them the hives and redness all over my body I prefer to manage my allergic reaction myself I am not a loose cannon And once again my body will let me know when it’s happy.
what are the terrible side effects you’re referring to. I have a pretty extreme case of PMR and find the prednisone relief to be a blessing. Have been using for 8 days, what might I expect side effects wise ?
Hi! You can check out this article about "Prednisone Side Effects - The Ultimate List" that might be of help in your condition. View the full article here: prednisonepharmacist.com/side-effects-solutions/prednisone-side-effects/ For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
You’re not told by your doctor? You need a new MD. I was sent away with a couple of pages of info, regular tests and three monthly callback, tests and eye exams.
I have increased eye pressure caused by prednisone so am prescribed eye drops to reduce it. Monitoring eye pressure every 4 months. Also increased Rosatia due to prednisone. Otherwise I do fine on 5mg. Good luck
I have had PMR for over 5 years now. I have been tapering. For me the magic dose is 4 mg. But always positive I can get lower. When I was tapering i fount taking it in 1/2 mg steps worked better when you get to 7mg. Also I found taper from the old dose to the new lower dose on alternate days worked better as your body adjusts. After first week stretch the old dose out 2 days while taking new lower dose for day then one day at old dose. Then the next week 3 days and so on until the month is up. This seemed to prevent the body aching and feeling like a flare coming. Plus also seemed to prevent a flare happening in some months. Good luck it is a journey. But we all need to do what works for us.
Good Morning! I am curious if you have had any issues with osteoporosis while being on prednisone, and if you have, are you taking any of the bone meds?
Well an update on my PMR I di taper down and was off prednisolone for about 6 months then the PMR was back with a vengeance. I could not walk. So reluctantly I head back to the Doctor and Started steroids again. Now when I look back on my obsession to be off steroids I was in pain every day and I just tried to tell my self this my lot. I am back on Steroids and on 11 mg daily, yes my Doctor would like would like me to taper. But for the moment I am enjoying feeling the best I have in years with little or no pain. I can't then The Prednisone Pharmacist enough for all her dedicated hard work research and for sharing her wisdom with us all. I do follow her advice and share it with my Doctor. Looking forward to remaining healthy now for a long time
@AmandaHallPsychic so, did you originally taper too quickly and just dealt with the pain? That's what I'm dealing with right now, and I'm not sure which avenue to go down... pain or no pain. This disease sucks. No one knows where it came from or how to cure it.
I have not been responding to 12.5 MG after starting out with 20Mg. My doctor suggested replacing the prednisone with Methotrexate. What are your thoughts?
I am 81. Living in Greece. My body was attacked by This disease 1 month ago. Was give prescriptions by Greek doctors for vitamins pills ! I knew there was more than vitamins my body wanted with horrific pains in my not being able to get dressed ect ect . Therefore I decided to back to England. Within a hour of seeing Doctor. I was prescribed P. And out of pain ! My dosage has come down. And No pain. I am virtually a fit person. Love of walking. Swimming ect. But P M. R Did take over my body. Hopefully I can work off my Medication. Unbelievable my 56 son who lives in Norway. Has this disease And the doctors where not sure about His condition Until recently, I have read up on this disease. If I am correct it writing this many years ago it started in Norway ! Please quote if I am wrong !!!
Although turmeric has an anti-inflammatory ability. It's not safe to combine it with prednisone. You can check out this video about "Should You Avoid Turmeric and Curcumin While on Prednisone?" View the full video here: ruclips.net/video/aCdT5iS_n5E/видео.html For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
I am currently on 2mg. Medrol for my PMR..long term...my crp stays high though from blood tests, I'm at a loss of words...wondering why my inflammation is still high..I try my best..not working.
61 here, been on prednisone roughly 9 months 15mg dose helps get through life any less the pain becomes unbearable, when I finally went to the dr and the did my bloodwork the inflammation rate was 70.5 ( the dr was like these are impressive numbers, not for you lol, so now I’m getting ready to try a new medication called Kevzara, it’s an every other week injection, I guess it’s the only thing that can replace prednisone, so we shall see what if any help it can offer
I have PMR, I started at 20mg for 1 week, then 15 for 1 week, 10mg for 4 weeks, started 9 mg 10 days ago, and like you said I’ll be doing a taper of 1 mg every 4 weeks. So far so good. My issue is I’m 69, I do have osteoporosis but my last 2 dexa scans I have increased my bone density. I do take calcium and vitamin D supplements, I eat the Mediterranean way, I walk 3 miles a day and do yoga, some Pilates, resistant bands and some weights. My doctor wants me to do the prolia shot which I’m struggling with to do that. Am I facing a losing battle if I don’t do it, because I have increased bone density before naturally,I’m really struggling with this decision. ( my osteoporosis was caused by having a parathyroid tumor which I had removed in 2017) I enjoy all the info that you help us with about prednisone!! Thank you!!
How can I get a diagnosis? My internest concured with my diagnosis based on what my husband had gone through! I had all the signs and the prendesone was a blessing. Two weeks after tapering it flaired AGAIN. Also, are high doses of fish oil helpful?
Get a second opinion! I’m not sure about fish oil. But here are the supplements you need while on prednisone. prednisonepharmacist.com/the-evidence/prednisone-nutrient-depletion/
I’m currently at 4mg Prednisone, I was very comfortable at 7 1/2 mg, tapered to 5 Felt OK but achy tapered to 2 1/2 and felt miserable. I’m back up to 4 mg, Still feeling a little achy especially around the shoulders and neck supplementing 800mg ibuprofen when needed.
That’s a big jump from 5 to 2.5! That’s 50%! I’d recommend 10-20% at a time to make sure you don’t go into withdrawals. But definitely work with your doctor.
I have been treated for pmr for about 5 to 6 yrs now age 71, prednisone was a godsend but as everyone knows side effects especially long term, after talking with my rheumatologist he agreed to a am and a pm regimen (as early morning pain returned) now at 6mg, total zero pain to maybe 1 out of a 10 pain level, going well now will try a slower tapering off next.
But what would we do without the prednisone?? My pain was debilitating and it was not me!!!!!😔Lots of prayers to all of us and the drs that understand!!!🥰🙏
Should I increase my steroid dose for a high physical stress journey? (Flight between NZ and UK- massive jet lag and v tiring traveling!) I am new PMR diagnosis, otherwise fit, i need to visit UK twice a year for family reasons. Your opinion is valuable. (Am also considering LDN as an alternative due to long term steroid risks...). thank you!
I have PMR (got it at 55) and started on 20mg prednisone and slowly tapered over a year and a bit and got down to 1mg. After going off it and feeling great for about 3 weeks I started getting symptoms and they got worse (I used to find that when tapering the dose down each month there would always be very slight symptoms for about a week which would then come right until I hit about 2mg when everything started to be okay, no tiredness either). I had to go up to 4mg to get back on track but I am wondering- when I get back to 1mg do I have to do half a milligram this time or 1mg every 2 days? What is the advice if you only have trouble at the very low doses?
I started out with 10 mg as prescribed by my doctor. My blood readings ranged between 7 and 10. Then over the 9 months I got down to readings around 2. Prednisone intake varied from 10 mg per day down to 2 mg per day. I am now taking 1 mg every second day. My shoulders and hands are a little stiff with very little pain. I still have days with more pain than other days. Overall, Prednisone does work, but I’m anxious to try stop the medication.
I have PMR with Giant Cell Arteritis was at 45 mg now down to ten. Starting the monthly taper to get off. Is it realistic to think I can get off since I have GCA?
I am also on higher Prednisone for possible gca and pmr. Awaiting test results.Everyone must improve their diet with vegetables.Ditch sugar,soda,empty carbs,processed food and meats.
Hi! You can check out this article about "Prednisone Side Effects - The Ultimate List" View the full article here: prednisonepharmacist.com/side-effects-solutions/prednisone-side-effects/ For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
Diagnosed two months ago, age 69 female, starting dose 60mg per day for three weeks, tapered down to 30 mg with Methotrexate. I asked my doctor about supplements like calcium and he Rx Folate only. Another doctor placed me on Lyrica due to a fibromyalgia diagnosis. I pee every 15 minutes and arise from bed three times per hour to pee. The hair on the face and body is severely thin or does not grow. Very bad hip pain after standing for 10 minutes. I also have hourly chills with hot sweats. I basically feel terrible every day.
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I am 67 years old man who was diagnosed with pmr about 11 weeks ago.
- First day، 3 ml of 40 mg/ml injection methylprednisolole acetate in addition to 20 mg tablet.
- 20 days on 20 mg prednisolone
-15 days on 15 mg.
- 30 days on 10 mg.
Now I am on 7.5 mg the last 5 days.
The side effects were:
1- constipation
2- muscle cramps disappeared at 10 mg.
3- excess sweating is okay now.
4- skin Bruises to any small accident.
I feel nearly ok now, but you can't imagine my happiness and good feelings like I become younger by 10 years minimum.
My blood pressure 110/71
Glucose 5.6
I lost 2 kg 84 now.
The sodium level is 135 and the normal between 135-145.
Don't be scared about prednisolone! If you are diagnosed with pmr then there's is no choice not to take it.
I am happy to be ob prednisolone 2.5 for a long time because i am feeling great
I cannot believe you quoted that retrospective study comparing AE between PMR steroid takers and non PMR patients! In five years we will all be five years older and sh*t happens to us all. I showed it to my doc but she still thinks prednisone is too dangerous for me to take. Even doctors have beliefs about the horrors of prednisone and way too many PMR patients are suffering needlessly.
I've had a mostly great year doing even more than before. I realized I may have this the rest of my life, so not pouting and complaining, waiting around for it to go away. Full speed ahead, time is short! Struggling at 3.55/3.25, I will stay on track as long as I can.
I manage quite well 95% of the time on a daily dose of 5mg. If I have a flare, I take a second 5mg. That is rare though. I don't experience any side effects from my Prednisone usage.
Hi I’m 64 and am experiencing my second period of PMR but this time I’m not using prednisone . I have awful pain in my hands and both bursar. Legs and Pelvis are ok. Can’t take pred due to osteoporosis from previous long term use. Just taking Leflunimide. So proud of my ability to keep enjoying life! 😊
I’m a 52 year old woman. I’ve been diagnosed with PMR. I’m currently on 25 mg. Last 2 times I’ve gone down to 20 mg all the symptoms came back. My CRP and ESR was very elevated. But the last blood work it came down significantly. I’m hoping next week can taper down to 20. The relief I’ve gotten is worth the side effects. As the n saids I was on for months offered no relief, I was in pain and so swollen and inflamed. It took 3 1/2 months to diagnose. I live in Hawaii , good doctors are slim pickings
Glad to hear you found a dose that works for you! It’s different for everyone.
I was diagnosed by my GP with PMR last month. I am 54. I thought I was going crazy not knowing why I couldn't get out of bed in the morning without extreme pain, waking up with pain all night, not being able to get dressed without pain etc.. My doctor put me on 15 mg to start and I was amazed with how fast I felt relief. I have an appointment with a rheumatologist in a few weeks and she will be handling my case. Thank you so much for these videos. They have answered many questions I had about what I might expect in the future.
You’re welcome! I’m glad you found it helpful! What were you most worried about!
additional comment for Robert ,He tools predisone 5 mg at 10 pm. another 5 mg at 6 am. and a third 5 mg at 2 pm. a total of 15 mg. it was the spreading out the doses that made the prednisone effective . Taking it all 15 mg first thing in the morning did not work well for him. So if someone is struggling with this, this is another thing to try.😊
@@robertrooks9294 doesn’t keep you up at night?
@ Predisone did make it harder for him to sleep.
My experience has been taking the full dose first thing in the morning made for a very hard time sleeping at night. So I divided the dose in half and that provided me with a restful night of sleep (second dose 6 hours before going to bed)
Well an update on my PMR I di taper down and was off prednisolone for about 6 months then the PMR was back with a vengeance. I could not walk. So reluctantly I head back to the Doctor and Started steroids again. Now when I look back on my obsession to be off steroids I was in pain every day and I just tried to tell my self this my lot. I am back on Steroids and on 11 mg daily, yes my Doctor would like would like me to taper. But for the moment I am enjoying feeling the best I have in years with little or no pain. I can't then The Prednisone Pharmacist enough for all her dedicated hard work research and for sharing her wisdom with us all. I do follow her advice and share it with my Doctor. Looking forward to remaining healthy now for a long time
Age 72, eighteen months in with PMR yet my doctor refuses to diagnose PMR without a rheumatologist. My husband is an internist with 40+ years experience so he and his partners have been prescribing for me. I take Plaquenil and Low Dose Naltrexone, both very safe. So far tapering 1mg a month. My doc refused to prescribe even 1mg to help me taper, as she has made the risk/benefit decision for me, which is incredibly arrogant. My husband's partner was able to diagnose PMR in the grocery store, lol, and wrote a year RX for me.
Your talk was so realistic and helpful! I'd send it to my idiot doctor but I just abandoned her for Direct Primary Care.
.
Sounds like your doc got about as much education as I did about PMR in grad school: not much. Most aren’t comfortable making this kind of diagnosis so I get it. But super sad that they won’t even prescribe for you!
@@PrednisonePharmacist 75%of PMR patients see GPs, not rheumatologists. No one wants PMR patients in the US because most of us are on Medicare, they would go broke. AND refusing prednisone 1mg pills so I could taper, being dependent at that point, is malpractice. I just realized that.
I suffered for 5 months …. I was going crazy till I got the diagnosis. I was in so much pain. Every symptom me.
I have been having all the symptoms of pmr since I had covid in January with excruciating left shoulder pain. This was after I had rotator cuff op in May last year. The pain in my back hips upper legs and even 1 ankle have been excruciating. In jan I had aCRP of 140 yet all I had were blood tears and abdominal scan . I began investigating on my own and yesterday went yo a dr who is investigating. Put me on 40md Prednisone 😮for 3 days then to taper down. Already after 1 day the pain has subsided. Have to return visit in 2 weeks so holding thumbs. I am 74 years old and previously very active so hope I can remedy this old lady feeling😊
Mine came on after a covid vax and a cat bite...only tried 10 mg.pred...I have osteroperosis and osteopenia...in pain all the dam time.😢 hate tgis crap
@@kandacepatterson7965 See if a higher dose helps, prednisone should let you live your life. I started on 20mg and had to split the dose to get through the night. Tapered down to 3.5 mg now.
I am 68 years old and was diagnosed with PMR approximately six months ago. I am a really healthy person and I haven’t had a bad cold in 20 years and I got three severely bad colds when I was taking prednisone that is my concern about taking prednisone. I was taking it mainly for arm pain I couldn’t even reach over to get my phone in the morning so I went on the prednisone and I tapered off slowly and when I tapered off I could tell the arm pain was coming back but I also developed leg and hip pain which I couldn’t even walk down the steps. So I was put back on 2 5mg tablets a day and that seems to be taking care of it. I am seeing my doctor tomorrow. I do have osteoporosis and I am on the medicine so these are my concerns. I loved your presentation.
I’m so glad to hear you loved it! Sounds like pretty awful PMR. Best of luck tapering off!
Me diagnosticaron PMR hace casi dos meses, tomo 8 mg en la mañana y 4 por la noche, con esa dosis puedo realizar casi todas mis tareas sin gran sufrimiento. Gracias por el vídeo y destacar la importancia de tomar la dosis más baja posible. Al tomar cada 12 horas mejoró mucho la respuesta que con una toma única por la mañana, esto hace mucho a la eficacia de la dosis. Gracias.
Male, age 59 with polymyalgia diagnosed 3 months ago : My doctor started me at 10mg. It helped, but I was still having pain plus occasional bad flair up. Next my doctor increased it to 15mg. After a couple of weeks at 15mg, I had no symptoms at all. I reduced it back down to 12.5mg and still had no symptoms. After a few weeks at 12.5mg, I went back to 10mg. Within a week at 10mg the symptoms came back again. I went back up to 12.5mg and after a couple of weeks I no longer have pain except for some morning stiffness in the shoulders. I do some exercise each morning to get rid of the stiffness. I think I will stay at 12.5mg for a month before trying 11mg. I tried to temper to fast, but at least I know that 10mg isn't enough and that 15mg works the best. My doctor said it was ok to put up with some stiffness in exchange for a lower dose.
Why don't you ask for more higher dose to relieve some more pain?
@@garynoll700 I found that after 15 days on 12.5mg all symptoms vanished. I then stayed at 12.5mg for another 30 days. Since then I have been tampering down 1mg every 22 days. I'm currently at 5.5mg and I still have no symptoms. I even started going back to the gym and I got my bench press back up to 250 lbs. I have been on Predisone for over 8 months now. I will likely have another 5 more months to go and hopefully the Polymyalgia will be gone and no more Predisone.
So clear and easy to understand. Thank you, thank you, THANK YOU!❣🌻❣
Glad it was helpful!
I started at 20mg. The mornings were not good. Had to go to 2 x 20mg per day. Thanks for your content. It has really been of help. I am signed up for auto delivery of Nutranize!
Glad to know! Excited for your journey with it!
I was diagnosed with PMR in 2008. I finally discontinued prednisone in 2020. My average daily prednisone dose was 20 mg for more than 12 years. Technically, I still have PMR along with other autoimmune conditions. A biologic was believed to be my "best hope" of ever getting off prednisone. Biologic treatment allowed me to taper off prednisone in 7 months. I have now been off prednisone for two years. I'm slowly recovering from prednisone related side effects. The damage caused by chronic systemic inflammation is also apparent. Prednisone only manages the pain when remission should be the goal. I might be in remission but the danger of a relapse still exists.
So much damage, right? What’s the worst you’re still struggling with?
I was diagnosed at age 41, I was in remission for four and a half years and the doctor originally told me that once in remission it would never come back. Sadly that is not a fact, as it is back. I am so frustrated and truly not wanting to go down this road that nearly crippled me already. Meeting anyone else who is here would be great. I am 48 now. Just finished another "round" as I felt the GP wasn't listening. I had all the right complaints but because I was told it doesn't come back I fought hard to keep ruling it out even though I felt this has to be PMR. The dosage i was best at was 25 Now I have to wait for another flare up to do more blood work just to get treatment.
You can get a crp test real easy that will convince Dr. That pmr has returned.
Thanks..... that explanation is exactly what I needed since I started prednisone 3 weeks ago. Currently on 15 mg down from 20.
Glad it helped!
My doctor had me on a fairly low dose for my PMR for about a year. The positive side - no pain, more energy, colors were brighter, food tasted better. It awoken al of my senses! It was a great year! The down side - I gained 20 lbs. that I have been having a hard time to lose!
The down side can be controlled! I would take the weight gain which I can control compared to the pain which is debilitating!!
I was diagnosed with PMR a week ago, given 20 mg which need to continue after the first week because of symptoms . I got this after having covid in february after being healthy and fit for my 65 years. So this is devastating and Im scared to death of those side effects. I shall start to look for alternative functional meds soon. Thanks for being so informative about it all.
You’re welcome! Which scares you the most?
Watch dr. Broke Goldner
I had Covid and on my 5 day woke with the symptoms…. I was in so much pain for months and my doctors had me on over the counter. Went to Mexico and had infusion and treatments that helped . My inflammation was 28.9 with little help. Was referred to a rheumatologist and I am on a steroid. I am tapering down. This is just awful!
@@julianavillanueva7385 the cortisone helps very quickly but the side effects are a challenge…..after 18 months I’m still on 7 mg and tapering very slowly ….
I hope you feel better soon xx
I was diagnosed 5 weeks ago and took 15 mg .. within 12 hrs I could move again .. was needing help continually with everything and so happy to be independent again .Am now on 60mg daily awaiting tests for Temporal arteritis.. is this normal.. feeling confused and worried
I was diagnosed with PMR aged 50. I am now 74 (male) & have been on a roller coaster of flare ups over the years. My pain is in my hips & lower back + occasionally shoulders. Have taken 25 mg / day in past but always get a flare up below 5 mg/day. Very active, golf/ cycling/ Pilates/ & exercise with weights regularly so I decided to stay at 5 mg/ day where I can function absolutely normally. Been on this dose for a few years. Recently had a flare up for no apparent reason,so intend to go to 10 mg/ day & hope get rid of pain, then wind down back to 5mg/ day.
Hi John, your story sounds a lot like others I’ve heard. 5 mg a day isn’t very high and worth it if you’re able to live such an active life, right?
I feel very lucky that 5mg/day normally allows me to lead my active life, this flare up came out of the blue and took me a while to recognise. Thought old age had finally arrived! Couldn’t bend down at all & pain very acute, increased dose seems to be working. Thanks for info on your site. 😀
My doc wo t give me more than 10 mg..that does nothing. Freaking painful.
I began taking 20 mg in July of 2024, have tried tapering to 10 unsuccessfully, and with stress at Christmas had to go back to 20 mg for a bit. Tried 15 mg today and muscles in legs don't want to work well.
This is a great explanation of Prednisone and how to use it. On the other side of the equation is the PMR. Does ANYONE know how that can be reduced or cured or put in to remission????
Hi! You can check out this video about "Polymyalgia Rheumatica (PMR) Treatment: Essential Guide"
View the full video here:
prednisonepharmacist.com/education/polymyalgia-rheumatica-treatment/
For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
Thank you for the info...I am 68 yrs. old..... was diagnosed in 2016 w PMR...am currently on 2m medrol but still feel the pain & stiffness in morning & later in the day..I will have to taper down bc my Covid vaccine is scheduled for this wk & Flu shot next wk...hopefully will return to regular dosing.
Too freaked out about the side effects! I take tramadol as needed, ibuprofen, prescription strength, and am doing daily exercises with a physical therapist and chiropractor. I’ve had cataracts and surgery. I’d rather endure some pmr pain than lose my vision!
I am 56yrs of age. I was diagnosed with PMR in July 2021. I started on 15mg prednisone per day. It's been over a year and I can't get below 10mg with out the pain returning. I've tried to taper a few times but too much pain in shoulders and hips. I've gained about 10lbs and my face is huge. I was told that PMR runs it's course in approximately 3 yrs for most. I really hope that's true.
You must change your diet look up Brooke Goldner
Can you get per in hands. I got in shoulders but goes to hands as well. Was taking 5 mg every other day and it was liveable but now got pain hands and may have to increase again.
What causes PMR ? Can anyone answer this question please
I was diagnosed in September 2022 and I was prescribed 15 mg a day but I only decided to take 5 mg as I am 5 foot and weigh 110 lb I wanted to allow my body to tell me the dose needed I have been on 5 mg since the end of September 2022 it is now the first week of April 2023 and I’ve had an allergic reaction and I am now weaning myself down from 5 mg to 2 1/2 and I would do that just as explained in this video for a month and then lower it again here in the UK the only suggestion from my GP when I called to say I have allergic reaction was to go to A&E there’s no way I’m going to sit in A&E for eight hours and show them the hives and redness all over my body I prefer to manage my allergic reaction myself I am not a loose cannon And once again my body will let me know when it’s happy.
what are the terrible side effects you’re referring to. I have a pretty extreme case of PMR and find the prednisone relief to be a blessing. Have been using for 8 days, what might I expect side effects wise ?
Hi! You can check out this article about "Prednisone Side Effects - The Ultimate List" that might be of help in your condition.
View the full article here:
prednisonepharmacist.com/side-effects-solutions/prednisone-side-effects/
For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
You’re not told by your doctor? You need a new MD.
I was sent away with a couple of pages of info, regular tests and three monthly callback, tests and eye exams.
I have increased eye pressure caused by prednisone so am prescribed eye drops to reduce it. Monitoring eye pressure every 4 months. Also increased Rosatia due to prednisone. Otherwise I do fine on 5mg. Good luck
I have had PMR for over 5 years now. I have been tapering. For me the magic dose is 4 mg. But always positive I can get lower. When I was tapering i fount taking it in 1/2 mg steps worked better when you get to 7mg. Also I found taper from the old dose to the new lower dose on alternate days worked better as your body adjusts. After first week stretch the old dose out 2 days while taking new lower dose for day then one day at old dose. Then the next week 3 days and so on until the month is up. This seemed to prevent the body aching and feeling like a flare coming. Plus also seemed to prevent a flare happening in some months. Good luck it is a journey. But we all need to do what works for us.
Good Morning! I am curious if you have had any issues with osteoporosis while being on prednisone, and if you have, are you taking any of the bone meds?
Great tips! I’ve heard similar strategies with great success.
Seems like a lot of trial and error. Do you ever get discouraged and wonder if the pmrs ever going to go away
Well an update on my PMR I di taper down and was off prednisolone for about 6 months then the PMR was back with a vengeance. I could not walk. So reluctantly I head back to the Doctor and Started steroids again. Now when I look back on my obsession to be off steroids I was in pain every day and I just tried to tell my self this my lot. I am back on Steroids and on 11 mg daily, yes my Doctor would like would like me to taper. But for the moment I am enjoying feeling the best I have in years with little or no pain. I can't then The Prednisone Pharmacist enough for all her dedicated hard work research and for sharing her wisdom with us all. I do follow her advice and share it with my Doctor. Looking forward to remaining healthy now for a long time
@AmandaHallPsychic so, did you originally taper too quickly and just dealt with the pain? That's what I'm dealing with right now, and I'm not sure which avenue to go down... pain or no pain. This disease sucks. No one knows where it came from or how to cure it.
I have not been responding to 12.5 MG after starting out with 20Mg. My doctor suggested replacing the prednisone with Methotrexate. What are your thoughts?
I am 81. Living in Greece. My body was attacked by This disease 1 month ago. Was give prescriptions by Greek doctors for vitamins pills ! I knew there was more than vitamins my body wanted with horrific pains in my not being able to get dressed ect ect . Therefore I decided to back to England. Within a hour of seeing Doctor. I was prescribed P. And out of pain ! My dosage has come down. And No pain. I am virtually a fit person. Love of walking. Swimming ect. But P M. R Did take over my body. Hopefully I can work off my Medication. Unbelievable my 56 son who lives in Norway. Has this disease And the doctors where not sure about His condition Until recently, I have read up on this disease. If I am correct it writing this many years ago it started in Norway ! Please quote if I am wrong !!!
Wow, you had to go all the way across Europe to get prednisone?! Yes, I think PMR is more common in people of northern/western European descent.
Has anyone tried taking Tumeric powder to reduce the inflammation which ism the cause of the pain?
Although turmeric has an anti-inflammatory ability. It's not safe to combine it with prednisone.
You can check out this video about "Should You Avoid Turmeric and Curcumin While on Prednisone?"
View the full video here:
ruclips.net/video/aCdT5iS_n5E/видео.html
For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
I am currently on 2mg. Medrol for my PMR..long term...my crp stays high though from blood tests, I'm at a loss of words...wondering why my inflammation is still high..I try my best..not working.
61 here, been on prednisone roughly 9 months 15mg dose helps get through life any less the pain becomes unbearable, when I finally went to the dr and the did my bloodwork the inflammation rate was 70.5 ( the dr was like these are impressive numbers, not for you lol, so now I’m getting ready to try a new medication called Kevzara, it’s an every other week injection, I guess it’s the only thing that can replace prednisone, so we shall see what if any help it can offer
I have PMR, I started at 20mg for 1 week, then 15 for 1 week, 10mg for 4 weeks, started 9 mg 10 days ago, and like you said I’ll be doing a taper of 1 mg every 4 weeks. So far so good. My issue is I’m 69, I do have osteoporosis but my last 2 dexa scans I have increased my bone density. I do take calcium and vitamin D supplements, I eat the Mediterranean way, I walk 3 miles a day and do yoga, some Pilates, resistant bands and some weights. My doctor wants me to do the prolia shot which I’m struggling with to do that. Am I facing a losing battle if I don’t do it, because I have increased bone density before naturally,I’m really struggling with this decision. ( my osteoporosis was caused by having a parathyroid tumor which I had removed in 2017) I enjoy all the info that you help us with about prednisone!! Thank you!!
That’s a tricky spot. You’re doing all the right things. There are many factors to consider, like have you broken a bone yet? Keep up the good work!
I have not had any fractures or broken any bones..
How can I get a diagnosis? My internest concured with my diagnosis based on what my husband had gone through! I had all the signs and the prendesone was a blessing. Two weeks after tapering it flaired AGAIN.
Also, are high doses of fish oil helpful?
Get a second opinion!
I’m not sure about fish oil. But here are the supplements you need while on prednisone. prednisonepharmacist.com/the-evidence/prednisone-nutrient-depletion/
I’m currently at 4mg Prednisone, I was very comfortable at 7 1/2 mg, tapered to 5 Felt OK but achy tapered to 2 1/2 and felt miserable. I’m back up to 4 mg, Still feeling a little achy especially around the shoulders and neck supplementing 800mg ibuprofen when needed.
That’s a big jump from 5 to 2.5! That’s 50%! I’d recommend 10-20% at a time to make sure you don’t go into withdrawals. But definitely work with your doctor.
I have been treated for pmr for about 5 to 6 yrs now age 71, prednisone was a godsend but as everyone knows side effects especially long term, after talking with my rheumatologist he agreed to a am and a pm regimen (as early morning pain returned) now at 6mg, total zero pain to maybe 1 out of a 10 pain level, going well now will try a slower tapering off next.
But what would we do without the prednisone?? My pain was debilitating and it was not me!!!!!😔Lots of prayers to all of us and the drs that understand!!!🥰🙏
I have just been djagnised and on 60mg a day. How do I get off this?
Hi Sankie, check out my Tapering blog: prednisonepharmacist.com/side-effects-solutions/how-to-taper-prednisone/
Should I increase my steroid dose for a high physical stress journey? (Flight between NZ and UK- massive jet lag and v tiring traveling!) I am new PMR diagnosis, otherwise fit, i need to visit UK twice a year for family reasons. Your opinion is valuable. (Am also considering LDN as an alternative due to long term steroid risks...). thank you!
Can you have PMR and it not show in your blood work? If so, are there any other tests that could be given ?
I have read that aprox 20% of people do not show as PMR in the blood work.
I have PMR (got it at 55) and started on 20mg prednisone and slowly tapered over a year and a bit and got down to 1mg. After going off it and feeling great for about 3 weeks I started getting symptoms and they got worse (I used to find that when tapering the dose down each month there would always be very slight symptoms for about a week which would then come right until I hit about 2mg when everything started to be okay, no tiredness either). I had to go up to 4mg to get back on track but I am wondering- when I get back to 1mg do I have to do half a milligram this time or 1mg every 2 days? What is the advice if you only have trouble at the very low doses?
Those low doses are so tricky! Have you downloaded my taper chart?
I started out with 10 mg as prescribed by my doctor. My blood readings ranged between 7 and 10. Then over the 9 months I got down to readings around 2. Prednisone intake varied from 10 mg per day down to 2 mg per day. I am now taking 1 mg every second day. My shoulders and hands are a little stiff with very little pain. I still have days with more pain than other days. Overall, Prednisone does work, but I’m anxious to try stop the medication.
But what’s the alternative??? 🙏
I have PMR with Giant Cell Arteritis was at 45 mg now down to ten. Starting the monthly taper to get off. Is it realistic to think I can get off since I have GCA?
It is possible. People are sometimes able to get off. But definitely work closely with your doctor.
My son was on a short term but higher dose for another condition- 30mg for 1 wk, then 20mg for 1 wk, then 10mg for 1 wk, then nothing. Is that normal?
Yes, that’s a typical dose for some conditions.
I am also on higher Prednisone for possible gca and pmr. Awaiting test results.Everyone must improve their diet with vegetables.Ditch sugar,soda,empty carbs,processed food and meats.
Sugars and carbs are bad in excess, MEAT IS NOT BAD!! Meat is extremely healthy, actually.
@@LadyPashta i meant processed meat like lunch meat.
What about all side affects, thin skin . Hair. loss , etc, weak bone's, Why don't you talk about then, It's a terrible drug
Hi! You can check out this article about "Prednisone Side Effects - The Ultimate List"
View the full article here:
prednisonepharmacist.com/side-effects-solutions/prednisone-side-effects/
For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
You call yourself a doctor, but then you say you are a pharmacist. Could you share your qualifications?
Hi Wanda! I’m a Doctor of Pharmacy and also have a license as a pharmacist.
@@PrednisonePharmacist I see why the AMA has sought to clarify and limit the use of the doctor title. You are a pharmacist rather than a physician.
Are you kidding? Being a "doctor" is having an MD. Having a "doctorate" is a high level in a field of study. Two completely different things!
Diagnosed two months ago, age 69 female, starting dose 60mg per day for three weeks, tapered down to 30 mg with Methotrexate. I asked my doctor about supplements like calcium and he Rx Folate only. Another doctor placed me on Lyrica due to a fibromyalgia diagnosis. I pee every 15 minutes and arise from bed three times per hour to pee. The hair on the face and body is severely thin or does not grow. Very bad hip pain after standing for 10 minutes. I also have hourly chills with hot sweats. I basically feel terrible every day.
So sorry for your suffering 😢…
What did you have? GCA? How are you doing now?
@@Richie07a1 I received an incorrect diagnosis, I have fibromyalgia. I am doing poor because I can not take the medications due to their side effects
@MilliePat Sorry about that. I wonder if anybody on this planet gets to spend their 80 plus years here without any suffering.