I developed this after a covid injection last year. Put in food processor 1 bunch of celery, one cucumber, 4 garlic cloves, 2 oranges and 1 apple. Drink 3 desert spoons of this mush mixed with glass of pure apple juice 2 a day. After 2 weeks all inflamation is gone so no pain.
I was diagnosed recently with this. I just turned 54, symptomatic since September of 2021. No known cause but theorized that bacterial or viral infection and or stress can bring this on. These things can also cause flares or relapse. Prednisone is a double edge sword. It works great until all the awful side effects start eating away at you. Very informative and to the point video. It’s hard to find up to date information on this as you said, not much has been learned about this. I’d like to know who or what is being done to research this more. There are a lot of us, numbers constantly growing, that suffer, and I do mean suffer, from this awful disease!
I'm 59 and just got "that call". I believe I am one of those that has suffered from this for many, many years. This last 6 years have been terrible. Unfortunately telling "all" the doctors that something is wrong (I would wave hands across my pelvic region and hips like a big triangle front and back) fell on deaf ears and my gp blames everything on Fibro. I have had steroid shots in many of my joints for over 30 years - which helped my whole body. The last 6 years the swelling, stiffness and joint pain ramped up and dressing became difficult (shoulders)... Well, my face breaks out some 1 or twice a year.....this involves an itch which leads to severe burning, redness and than swelling eyes then the peeling begins, which only prednisone stops. I know by the casual neck itch what is coming. I asked 1 year ago for help saying I'm swollen (behind my knees, the pressure might blow off my kneecaps - lol) but he was non committed to run blood work because "I will have markers for inflammation"....so that was it.........this last 2 weeks ago my face, neck, chest and now arms and hands came again and I told him "I'm fed up" what is causing this - it's so painful. Funny thing is, each time I got pregnant I developed face and neck rashes.....Seems pregnancy triggered something. I've been given a second week (first for face) and of course I'm feeling better. The hip joints down my outer thighs ending at my knees feel remarkable. I've had this painful areas for 25 years or so.....sleeping with a husband who would lift a knees during the night and rub along my outer thigh would shock me away.....I know it's a long story but for most of my life I've had these problems.....and to finally be told a tangible "thing" and it's not in my head and it's not fibromyalgia.....I hope I continue to improve as I've been concerned of late with my eyes/vision, balance and cognitive health from fatigue. Thanks for reading.
Recently diagnosed with PMR, the relief with prednisone was immediate with the dose started with 15 mg daily. I'm able to function on 8 to 10 mg without symptoms, and did not have elevated inflammation markers. I attribute it to having to a challenged autoimmune system. Yes the low dose prednisone has side effects, i.e. blood sugar elevated, higher blood pressure, put on weight, but I'll take the prednisone and its side effects compared to the crippling pain. Before prednisone, I was consider euthanasia.
My CRP… was 28.9 ,my doctor pinned pointed PmR concerning me right away. Months of so much pain. Why don’t more doctors know about this? Especially since it’s the second. I had Covid and woke up with all the above symptoms. I keep thinking it would go away , very wrong. I am on a steroid doing very will. This doctor is very informative. Good get help.
I can't even imagine. I have had symptoms for nearly a year with massive flare up horrible debilitating pain for the last 3 months. I can't imagine 3 years !!! I really feel for you.
I feel for you. I went from annoying aches to thinking I would be wheel chair bound in 4 days. I had a "emergency" P-Pak 4mg on hand for my back. On a Saturday with no other good options I started the dosing regimen. In 6 hours I had relief! It came back after the 6 days of doses ended. I saw my doctor and he immediately knew what my problem was.
Thanks so much for this video! I have been on prednisone for nearly 3 years and I'm tapering off now and just had a major flare, hearing you say that it happens more often than not made me feel more hopeful. I learned more from this video than from my Dr over the last 3 years, so again thanks!
I am a generally pretty healthy, active woman, windsurfed and swam this summer, and all of a sudden, got it over 48hrs , most probably after `an infection, after Covid as well. Until they gave me the meds, I took anti-inflammatory, voltaren, and even the antibiotics.. I lost 4 kilos, lost muscles and could not move out of bed, walk or even chew. I could not even use the tooth paste tube, no strength at all...only got up with my husband's help. I was lucky to have it diagnosed within the first two weeks, and started taking Prednisolone 40mg, then lowering down to 20mg in one week, still on them. I think I also have the Temporal Arthritis which started together, I felt very tender crane, very hardened jaw, could not chew and very bad vision...feeling better..definitely very bad stiffness in the morning and then gets better by noon. I have no headaches, no fever. I had very high aESR and CRP which was over 105. Good point about tummies. You have covered it all Dr Ortiz, Thank you so much... Such an incredibly good explanation...Thank you so much....
I was diagnosed with PMR the 28th of August last month. Like you said it hit all at once and I was so stiff could hardly get out of bed, horrible nights sleep and could barely walk. I told my wife I felt like I was dying prior to being diagnosed. My Dr. started me on 20 mg of Prednisone and now on 15 mg for a taper. The 2nd day I felt like I had a brand new body ! Have been doing very well and am so Thankful !
Such a clear explanation, thanks so much. I’ve just turned 70 and have just been diagnosed with PMR after a bout of flu. The pain and stiffness had been going on for nearly a month. Assuming it was a prolonged effect of the flu, I chose not to waste my Dr’s time, at the time of the year when so many people have the flu. The pain when standing up, trying to squat down and lifting my legs to climb the stairs etc etc was concerning me, plus I am the sole carer for my wife who has advanced Alzheimer’s, so I was really struggling to cope. I contacted my Dr, and within hours I was examined and had my bloods taken. The results came back 24 hrs later and I was immediately started on a course of Prednisolone. I live in the UK so this rapid and effective diagnosis under The NHS, is not the norm here unfortunately. The effectiveness of the Prednisolone was very rapid. Having never heard of this condition before, I am now trying to find out as much as possible. Your video has been so useful. Thanks so much.
As I was being weaned from Prednisone, I started Actemra infusions. I'm completed off Prednisone and found monthly Actemra infusions. I have both PMR and Giant Cell Ateritis. While my markers remain within the normal range I still have shoulder and hip pain n some morning stiffness. Grateful for the infusions.
I was diagnosed 17 years ago and get bouts lasting about a year at a time. Prednisone is the only thing that helps. Would like to know more about the artery inflammation. Wonderful information much appreciated.
Great video, excellent content, great communication skills. Glad I lucked into seeing your RUclips listed in the sidebar. I was diagnosed in Sept/21 with PMR, occurred suddenly just as you noted it can. Started with 25 mg Prednisone/day, now down to 5 mg/day. I'll definetly check out your other videos.
I'm a guy, and I had PMR when I was 44 Years old. I was a body builder back then, weighed 240 an my weight went to 168 before the doctors figured it out, It took the doctors a year, The worst year of my life!!! It was so bad I could barely walk,, Hope I never get again!!
I thought I had pickleball injuries and was horrified at the thought of two hip replacements and shoulder surgery. Somehow it dawned on me yesterday that this is inflammatory and I knew what it was! I started small 5mg doses of prednisone weeks ago, trying to skip days, which caused severe rebound. Now that I know what it is I upped to 10mg last night and will take 20 today. I have to fly tomorrow. Once I am home I'll get the lab tests and see my doctor early April.
Thank you for addressing this. Current median duration of PMR is 5.9 years, not 2. So much information to be found on PMR/GCAuk site. Research, experiences and recommendations.
Dr Durham diagnosed me with this 2 years ago. I thought this might help you to understand why I have such a hard time getting around in the morning. It’s very debilitating and hard to predict when it will hit. I just don’t want you to think when I have to back out of doing something it’s not because I want to. I hope this is not something that I have passed down to you with you already having back pain. I’ll talk to you later. Love you.
OMG..!! I love your videos..!! I may have just found my condition..!! I'm 54 and tested pos for HSV-2 about 12 years ago. Since that time I have experienced joint pain flares that do not seem to cause swelling but are extremely painful. These flares affect my knees, elbows, lower back, back of neck, shoulders, wrists, hands, and ankles.... Not all at the same time, usually knees, elbows, shoulders..!! I have also noticed declining vision and dry-eye..!! The lower back flares about once per year for 3-5 day periods..!! During this time I have no palpable masses, blood in stool, stool shape or color changes. I also do not feel urgency to urinate or exhibit substantially reduced flow..!! It may be worth noting that I have also been struggling over the years with unusual sebaceous cyst growth in various locations..!!
Thank you for all your videos. I see a rheumatologist in March having tested positive for Sjögren, Scleroderma, and possible SLE a month ago. I have nerve damage after a back operation 21 years ago, plus diagnosed with fibromyalgia a year later. So it seems my prior problems were masking other diseases, which is easy to understand after watching your videos. Our new GP ran a second set of tests, and found the new results. So we’ll hopefully have a more certain diagnosis in March. Never heard of PMR. Dad is from Norway, Mom is French-Irish. How in the world will they determine what is going on, this is all so complicated? Thank you for sharing your vast knowledge on autoimmune disease. It really helps!
I was so hopeful when I first read this - I started with sore hips - could not bend to pick things up from floor, then to the knees and finally the shoulders - my GP did mention PMR a few weeks ago but we are still testing - for the first time in my life (I’m 72) my C-reactive is over 1 - it’s now 14. But what some people are saying here about the Prednisone treatment - loss of hair etc it disturbing - tho I guess I should not care! But even when my GP mentioned the possibility of PMR he did say ‘you don’t want to have to go on Prednisone - it’s a very dangerous drug’. But how else can one get rid of it. I never thought I would not get in the tub alone - I can’t now. Thank God I’m so active- use a Fitbit and walk a lot - tho some days the fatigue is so bad I can’t leave the house. I wonder if this can just go away on it’s own. It was interesting when you mentioned causes - like an overactive immune system from vaccines. I’ve not had covid but I’ve been faithful about the vaccines - have had 4 so far and got more and more systems after each. How can we protect ourselves from covid if the vaccines might be the flare for the PMR? Scary. Thanks so much for this talk and all the other feedback from viewers - so very helpful. :)
Bless you for this video. I have two shoulders that I can't move plus a couple months ago I wasn't able to get out of bed anymore or go to the toilet without pain. Morning stiffness was the worst. Two weeks I ago my doctor ran about 40 blood tests on me and the ESR is normal but CRP was 48. I'm certain I have PMR. I see him tomorrow to go over the results and hope to get on prednisone immediately.
That’s great!! I was recently diagnosed with PMR.. 6 weeks ago. I still have pain in am.. not Not excruciating pain like I had in the beginning but I still have pain in the morning I take 15 mg and was recently dropped down to 12.5 that’s when I noticed that I still have pain in the morning I was wondering if the pain will go away all together, but we still have some kind of a pain in the morning
@@LorySmith949Even though the ESR wasn’t high I was put on prednisone. Helped tremendously. Now have tapered to 3mg from 20mg. It’s a slow process especially now that the adrenal glands need to wake up. I am staying at 3mg through the end of the year then will try to taper off next year.
Exactly video and great information. I’m currently in testing for autoimmune diseases. I would love for you to do a video on IGA IGG IGM deficiency as well as a Myasthenia gravis video which my mom has.
Ça fait 9 ans que je prends prednisone et 2 ans avec Hydroxycloroquine. Cela a permis de diminuer la cortisone mais à 3 mg, rechute d'inflammation. Mon foie ne tolère pas Méthotrexate! J'avais 50 ans! C'est long. Je vais regarder du côté de Tosalizumab. Merci.
LDN made my autoimmune disease so much worse. I got so sick off of it and within months I developed additional autoimmune disease. It's not a magic treatment.
So many MDs think it's in joints and muscles. It's definitely in the tendons and bursa. Some have been known to pass it to their spouse... doesn't sound like autoimmune disease. People don't get it in January or February, very odd. If not treated the pain is unbearable; you just wouldn't want to live anymore.
In what hemisphere does this condition not appear in January and February? I'm thinking winter vs summer and Vitamin D levels. And it's interesting that transmission to spouse has been reported :-)
PMR isn't passed on to another person. My PMR began in a January four years ago. There are some sites that don't contain reliable info so be careful what you read!!
I have been given prednisone for about a year for the condition. It helped me a bit. But struggling with stiffness. Particularly at night . It really made my life hell . I am still carrying on. But unable to do any housework and so on. Dreadful conditions.
Hi, I have recently been diagnosed with this but have a question. I started with hip pain, then knee, but my upper body symptoms started the day after a chiropractic neck adjustment. I can’t imagine it’s just coincidence. Thoughts?
Dr. Ortiz knows more about PMR than either of the rheumatologists I saw during my bout of PMR, and she does seem to be aware of some exciting work being done in Australia. Otherwise, there just isn't much. I read recently that they may have found marker antibodies for PMR. I don't remember anything more than that.
So hard to get in with an actual Rheumatologist and my appt has been cancelled for yet another month! I love Dr Ortiz, she sure makes it clear and understandable! I think I may just stick with my GP and my prednisone!! I just need to get on the right dosage! Prayers to all!!🙏❤️👍
Hello, I'm 42 and have PMR since early 30s. But formally diagnosed a year ago with blood tests sky high inflammation markers. This condition is so painful and flare ups sometimes leave me with very little mobility like I need a walking stick for support because my hips glutes and bursa are so inflamed. I also have fibromyalgia and endometriosis diagnosed 20 years ago so somehow these go together or the symptoms are very similar. Thank you for the information, I do however prefer natural alternative medicine although I haven't found the one that works yet Strongs to all.
My Rhumy only pulls crp and Sed and cbc that’s it! Then she stopped and only pull Cdc. I wish I could find one that will pull blood and really look!😢we lack good doctors in my area… Oh and she refuse to continue with my prednisone. That’s probably why I still have so much trouble, no prednisone for over a year! Most I was on was 10mg…
I forgot to ask about my abdominal discomfort and bloating. You mentioned stomach inflammation. I’m on prednisone, does this usually help stomach inflammation too? It hasn’t. If not, what will? Thanks
I have been diagnosed with sudden onset PMR and my hips are not involved. It is worst in the shoulders, elbows, wrists and hands as well as the knees. Trouble getting up from sitting is not from the hips, it's from the bad knee pain in the soft tissues beside and behind the knees. I suspect I have oxalate arthritis, having increased my oxalate intake suddenly on a new diet (yup, a lot of those "superfoods" are very high oxalate), but since the treatment is the same, I will accept the PMR diagnosis to save having a lot of diagnostic tests which may be inconclusive. Just letting others know that it may be wise to go on a strictly low oxalate diet in case it is caused by oxalates.
I too had Convid, pre the conditions i experienced, im not jibbed V the weaponised virus. Like you snd others, i believe there is a connection. Coincidence, i don't think so! Diagnosed after 2 months of classic worsening pain and weight loss to the point that I felt my life was over. Luckily my Dr, knew exactly what i described as my classic symptoms. I was 90% improved in 2 days and 100% within 5 days on 15mg. 15 months later I'm tapering successfully, slowly 15:mg , so far to 4.5mg, i hope and expect another year of tapering to get off 15:55 this insidious, but life saving drug,l. I have thinning hair, the start of cateracts, regained the 15kg that I'd lost and I'm just a 68 yo man now. Hope this is useful to somebody, the more we learn, the better it is for us.
I was diagnosed with PMR...been on Prednisone for 2 years... I've gone down to 1 mg of Prednisone and went off it..y muscles are not the culprit...I have severe arthritis in my feet and hands now...what's up???? Can't take Celebrex or ...Lyrica need help...don't think I ever had PMR!!! I hate Prednisone...lost hair, destroyed my nails and now I have been diagnosed with osteopenia.... Please turn your sound up ..we are having a hard time hearing you without turning our TV's extremely high volume!!!
Maybe u have RA rheumatoid arthritis. I refuse to take prednisone too. I have candida in lungs. It would make it grow more where I can't breathe. I just take excedrin. I think the ashwaganda is helping too
My pain is on both sides equally of my biceps (feels like soar, weak muscle) and clavicle area (a soreness in the center btwn chest bone and shoulders) and the neck, high on both sides where the skull meets the neck. There is a lot of popping in the shoulder and even my wrist area. I don't think I experience issues of the hip, but at times deep in my gluts (again, both sides). Still trying to determine if this is PMR. I was told that it is not RA. Blood work comes back fine. Can this subside on its own? Wondering if this is stress induced. I have always been otherwise very healthy, but increased stressed over the past few years.
I was recently diagnosed with PMR.. I was in major pain before the 15mg of prednisone..question I dropped down to 12.5mg. Question.. will the pain and stiffness go away with taking the prednisone 100 % no pain 💯 are will you still have pain but less?? Thanks
I love this channel. Have you done a video on MCTD? I looked but couldn't find one. I have MCTD and sometimes doctors just don't know much about it. If you haven't done one would you consider doing one?
So would you say that a doctor says it's pmr and your 30 that they're wrong about the diagnosis? I had tick disease that he thinks triggered pmr. Thoughts?
My husband a rare case. He's 38 and has this, but we don't have insurance and have been going to basically a walk-in for this. The doctor doesn't seem to have any experience in this and prescribed him 10mg to start which helps but he still has pain and she's simply told him to take ibuprofen (which is a joke in this area of pain). Does he HAVE to see a specialist or just insist on a higher dose with blood test monitoring?
I’m so sorry your for your husband. I’m 35 yr old male and currently was diagnosed myself. I’m currently taking 20MG prednisone. This pain is unbearable
Is it possible to have Fibromyalgia and have PMR? I was recently told by my Rheumatologist that I most likely have Fibromyalgia as I tested negative for many autoimmune conditions like Lupus. I did another blood test recently and it showed I have off the charts inflammation CRP (36) and ESR (78). I am a woman 29 years old, have many of the symptoms of Fibromyalgia and I'm overweight. My Rheumatologist prescribed me Gabapentin but so far it's only given me more side effects than helping me. I do have widespread body pain, skin sensitivity when touched and anything touches me, fatigue, stiffness in many joints with joint pain in the morning and throughout the day, brain fog, restless legs especially at night, muscle cramping/ spasms and trouble sleeping/ insomina, problems walking from the pain/ stiffness just to name a few. I don't have a follow-up until November with my Rheumatologist. Is it possible I have both conditions?
I have just been diagnosed with PMR and Giant Cell and has now also lost 90% vision in my left eye. Have also lost 11 kilos in 3 weeks. It is very frightening.
I was diagnosed early 2022. Better now and off the prednisone. Does anyone know if I’m sick with a long lasting cold because my adrenal glands aren’t right?
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I've been being treated for PMR after a severe sudden onset since back in July of 2019. I was kept on 20 mg. Of Prednisone for over 2 years. I've developed latent TB, and popped a few tendons, that's never been treated. My first rheumatologist tried to start me on a biologic called symphony Aria after testing positive for TB I found out that I should not be doing biologics without having the TB treated first but she just wanted to treat me anyway, with the symphony Aria and not for the TB. She would never answer any of my questions I had about it so I quit her and started with another rheumatologist. He had me see an infection specialist who treated me for the TB, but all of them have had me go from 20 mg to 10 to 5:00 which set me back in a flare instantly which only got worse because they never reuped my dose to taper me the proper way. They want me to take about 12 different pills a day including Omeprazole I took before I ever had acid reflux which I had acid reflux the entire time I took it because I had diverticulitis and a bunch of things that I should have never taken omeprazole because of. Now I'm almost to the point where I just want to stop all of my pills because the side effects are worse almost than not being able to walk I've even had impact puncture wounds from slipping and falling and ended up having 21 stitches inside all the way out on my shin I had cut through my sack that goes around my bone almost lost my leg I was on seven different antibiotics in 5 months and now I'm just to the point where I don't trust anything my doctor wants me to do anymore. Well taking the antibiotics I had to get off of everything that's treating me for my PMR and my rheumatoid arthritis except for 10 mg down to five of prednisone and I'm a mess. Any advice on this?
I you were asking for suggestions, I would stay in close contact with the rheumatologist or generalist and report small changes or problems immediately so that you can both titrate the problems and treatment together before they become even more significant. It is unusual to maintain a dose of 20 mg prednisolone for so long but you did say that when the dose was decreased to 10 mg the condition flared probably indicating that you did actually need it to be 20 mg. Infection is one of the hazards of autoimmune disease treatment and this needs to be monitored closely for obvious reasons. I hope you were able to make progress :-)
Stopped when all the explanations started. There is an 'about' section on RUclips if one wants to know. Just get to the point as soon as you can. Some are not interested in who and why and when.
A good naturopath will seek to uncover whyn your body failed you and get you on the clean out, clean up road to better health! Go for it! Never say 'Die!' unless it is to a disease or toxicity! You can fight this stuff off!
I went to natural drs first and they nearly killed me. They missed all my serious diseases and even renamed my mast cell disease multiple chemical sensitivity. I was in a wheelchair by the time I figured out they were killing me. Back to western medicine and got proper treatment for Autoimmune Dysautonomia, and multiple autoimmune disease, Ehlers Danlos and MCAS. Been out of a wheelchair for 3 years now.
I’ve been diagnosed with PMR, but my only symptoms are the labs. No pain, or stiffness other than normal for my age. Currently on 5 mg prednisone daily. I want to discontinue the prednisone, very worried about bone strength and density.
How did the doctor know to test for PMR-speciific findings in blood if you didn't have symptoms? Serendipitous coincidental discovery? This does happen - I'm just interested.
@@Fomites That’s what I wondered. My husband got this about 4 years ago. Went from healthy to OMG what’s going on with him. They never would have run the diagnostic tests without him getting so sick. So why were they testing you?
I developed this after a covid injection last year. Put in food processor 1 bunch of celery, one cucumber, 4 garlic cloves, 2 oranges and 1 apple. Drink 3 desert spoons of this mush mixed with glass of pure apple juice 2 a day. After 2 weeks all inflamation is gone so no pain.
Were you diagnosed with PMR?
I was diagnosed recently with this. I just turned 54, symptomatic since September of 2021. No known cause but theorized that bacterial or viral infection and or stress can bring this on. These things can also cause flares or relapse. Prednisone is a double edge sword. It works great until all the awful side effects start eating away at you. Very informative and to the point video. It’s hard to find up to date information on this as you said, not much has been learned about this. I’d like to know who or what is being done to research this more. There are a lot of us, numbers constantly growing, that suffer, and I do mean suffer, from this awful disease!
It certainly is awful
Try thr carnivore diet. It worked for my PMR
@@liddletoeswhat carnivore diet ❤
I'm 59 and just got "that call". I believe I am one of those that has suffered from this for many, many years. This last 6 years have been terrible. Unfortunately telling "all" the doctors that something is wrong (I would wave hands across my pelvic region and hips like a big triangle front and back) fell on deaf ears and my gp blames everything on Fibro. I have had steroid shots in many of my joints for over 30 years - which helped my whole body. The last 6 years the swelling, stiffness and joint pain ramped up and dressing became difficult (shoulders)... Well, my face breaks out some 1 or twice a year.....this involves an itch which leads to severe burning, redness and than swelling eyes then the peeling begins, which only prednisone stops. I know by the casual neck itch what is coming. I asked 1 year ago for help saying I'm swollen (behind my knees, the pressure might blow off my kneecaps - lol) but he was non committed to run blood work because "I will have markers for inflammation"....so that was it.........this last 2 weeks ago my face, neck, chest and now arms and hands came again and I told him "I'm fed up" what is causing this - it's so painful. Funny thing is, each time I got pregnant I developed face and neck rashes.....Seems pregnancy triggered something. I've been given a second week (first for face) and of course I'm feeling better. The hip joints down my outer thighs ending at my knees feel remarkable. I've had this painful areas for 25 years or so.....sleeping with a husband who would lift a knees during the night and rub along my outer thigh would shock me away.....I know it's a long story but for most of my life I've had these problems.....and to finally be told a tangible "thing" and it's not in my head and it's not fibromyalgia.....I hope I continue to improve as I've been concerned of late with my eyes/vision, balance and cognitive health from fatigue. Thanks for reading.
Thank you for making me feel so much better about PMR. You were very clear and concise. We need more Doctors like you.
Recently diagnosed with PMR, the relief with prednisone was immediate with the dose started with 15 mg daily. I'm able to function on 8 to 10 mg without symptoms, and did not have elevated inflammation markers. I attribute it to having to a challenged autoimmune system.
Yes the low dose prednisone has side effects, i.e. blood sugar elevated, higher blood pressure, put on weight, but I'll take the prednisone and its side effects compared to the crippling pain. Before prednisone, I was consider euthanasia.
Agree, it was awful for 2 months before diagnosis and Preds relief.
Where to get euthanasia?
My CRP… was 28.9 ,my doctor pinned pointed PmR concerning me right away. Months of so much pain. Why don’t more doctors know about this? Especially since it’s the second. I had Covid and woke up with all the above symptoms. I keep thinking it would go away , very wrong. I am on a steroid doing very will. This doctor is very informative. Good get help.
What was your sedimentation rate?
Thank you! I suffered for 3 years, before I found a Dr, who helped me. I thought I was dying.
Me too!
I can't even imagine. I have had symptoms for nearly a year with massive flare up horrible debilitating pain for the last 3 months. I can't imagine 3 years !!! I really feel for you.
I feel for you. I went from annoying aches to thinking I would be wheel chair bound in 4 days. I had a "emergency" P-Pak 4mg on hand for my back. On a Saturday with no other good options I started the dosing regimen. In 6 hours I had relief! It came back after the 6 days of doses ended. I saw my doctor and he immediately knew what my problem was.
I just learned about this today. But I'm pretty sure you are my favorite Rheumatologist. Thank you for informing us.
Thanks so much for this video! I have been on prednisone for nearly 3 years and I'm tapering off now and just had a major flare, hearing you say that it happens more often than not made me feel more hopeful. I learned more from this video than from my Dr over the last 3 years, so again thanks!
I am a generally pretty healthy, active woman, windsurfed and swam this summer, and all of a sudden, got it over 48hrs , most probably after `an infection, after Covid as well. Until they gave me the meds, I took anti-inflammatory, voltaren, and even the antibiotics..
I lost 4 kilos, lost muscles and could not move out of bed, walk or even chew. I could not even use the tooth paste tube, no strength at all...only got up with my husband's help.
I was lucky to have it diagnosed within the first two weeks, and started taking Prednisolone 40mg, then lowering down to 20mg in one week, still on them. I think I also have the Temporal Arthritis which started together, I felt very tender crane, very hardened jaw, could not chew and very bad vision...feeling better..definitely very bad stiffness in the morning and then gets better by noon. I have no headaches, no fever. I had very high aESR and CRP which was over 105. Good point about tummies. You have covered it all Dr Ortiz, Thank you so much...
Such an incredibly good explanation...Thank you so much....
Thank you for this video. I was finally able to get into a rheumatologist a few days ago and got my diagnosis of PMR.
I was diagnosed with PMR the 28th of August last month. Like you said it hit all at once and I was so stiff could hardly get out of bed, horrible nights sleep and could barely walk. I told my wife I felt like I was dying prior to being diagnosed. My Dr. started me on 20 mg of Prednisone and now on 15 mg for a taper. The 2nd day I felt like I had a brand new body ! Have been doing very well and am so Thankful !
A friend was just diagnosed with PMR. This is an excellent overview of the disease!
I'm in South Africa and was diagnosed at age 30 when I was diagnosed with polymyalgia Rheumatica.
Such a clear explanation, thanks so much. I’ve just turned 70 and have just been diagnosed with PMR after a bout of flu. The pain and stiffness had been going on for nearly a month. Assuming it was a prolonged effect of the flu, I chose not to waste my Dr’s time, at the time of the year when so many people have the flu. The pain when standing up, trying to squat down and lifting my legs to climb the stairs etc etc was concerning me, plus I am the sole carer for my wife who has advanced Alzheimer’s, so I was really struggling to cope. I contacted my Dr, and within hours I was examined and had my bloods taken. The results came back 24 hrs later and I was immediately started on a course of Prednisolone. I live in the UK so this rapid and effective diagnosis under The NHS, is not the norm here unfortunately. The effectiveness of the Prednisolone was very rapid. Having never heard of this condition before, I am now trying to find out as much as possible. Your video has been so useful. Thanks so much.
As I was being weaned from Prednisone, I started Actemra infusions. I'm completed off Prednisone and found monthly Actemra infusions. I have both PMR and Giant Cell Ateritis. While my markers remain within the normal range I still have shoulder and hip pain n some morning stiffness. Grateful for the infusions.
I was diagnosed 17 years ago and get bouts lasting about a year at a time. Prednisone is the only thing that helps. Would like to know more about the artery inflammation. Wonderful information much appreciated.
You have a great delivery and a kind heart! Well done!
Great video, excellent content, great communication skills. Glad I lucked into seeing your RUclips listed in the sidebar. I was diagnosed in Sept/21 with PMR, occurred suddenly just as you noted it can. Started with 25 mg Prednisone/day, now down to 5 mg/day. I'll definetly check out your other videos.
Obviously the prednisone isn't working for you if you're glad you found this!
Thank you for this information. PMR and Giant Cell run in my family. Will share with them.
I'm a guy, and I had PMR when I was 44 Years old. I was a body builder back then, weighed 240 an my weight went to 168 before the doctors figured it out, It took the doctors a year, The worst year of my life!!! It was so bad I could barely walk,, Hope I never get again!!
Excelente video. For the first time I understand PMR And I must because I have been suffering from it for years. Thank you!
I thought I had pickleball injuries and was horrified at the thought of two hip replacements and shoulder surgery. Somehow it dawned on me yesterday that this is inflammatory and I knew what it was! I started small 5mg doses of prednisone weeks ago, trying to skip days, which caused severe rebound. Now that I know what it is I upped to 10mg last night and will take 20 today. I have to fly tomorrow. Once I am home I'll get the lab tests and see my doctor early April.
Thank you for addressing this. Current median duration of PMR is 5.9 years, not 2. So much information to be found on PMR/GCAuk site. Research, experiences and recommendations.
Can't even find PMR on that site
I had 2 years 8 months
@@miaboldsen6009 I found it today: 2022.11.06 at pmrgcauk dot org dot uk It's quite good :-)
Dr Durham diagnosed me with this 2 years ago. I thought this might help you to understand why I have such a hard time getting around in the morning. It’s very debilitating and hard to predict when it will hit. I just don’t want you to think when I have to back out of doing something it’s not because I want to.
I hope this is not something that I have passed down to you with you already having back pain.
I’ll talk to you later. Love you.
OMG..!! I love your videos..!! I may have just found my condition..!! I'm 54 and tested pos for HSV-2 about 12 years ago. Since that time I have experienced joint pain flares that do not seem to cause swelling but are extremely painful. These flares affect my knees, elbows, lower back, back of neck, shoulders, wrists, hands, and ankles.... Not all at the same time, usually knees, elbows, shoulders..!! I have also noticed declining vision and dry-eye..!! The lower back flares about once per year for 3-5 day periods..!! During this time I have no palpable masses, blood in stool, stool shape or color changes. I also do not feel urgency to urinate or exhibit substantially reduced flow..!! It may be worth noting that I have also been struggling over the years with unusual sebaceous cyst growth in various locations..!!
Thank you so much for this video!!! I’ve been recently diagnosed and beginning to feel much better!!! Thank you!!!
Thank you for all your videos. I see a rheumatologist in March having tested positive for Sjögren, Scleroderma, and possible SLE a month ago. I have nerve damage after a back operation 21 years ago, plus diagnosed with fibromyalgia a year later. So it seems my prior problems were masking other diseases, which is easy to understand after watching your videos.
Our new GP ran a second set of tests, and found the new results. So we’ll hopefully have a more certain diagnosis in March.
Never heard of PMR. Dad is from Norway, Mom is French-Irish. How in the world will they determine what is going on, this is all so complicated? Thank you for sharing your vast knowledge on autoimmune disease. It really helps!
I was so hopeful when I first read this - I started with sore hips - could not bend to pick things up from floor, then to the knees and finally the shoulders - my GP did mention PMR a few weeks ago but we are still testing - for the first time in my life (I’m 72) my C-reactive is over 1 - it’s now 14. But what some people are saying here about the Prednisone treatment - loss of hair etc it disturbing - tho I guess I should not care! But even when my GP mentioned the possibility of PMR he did say ‘you don’t want to have to go on Prednisone - it’s a very dangerous drug’. But how else can one get rid of it. I never thought I would not get in the tub alone - I can’t now. Thank God I’m so active- use a Fitbit and walk a lot - tho some days the fatigue is so bad I can’t leave the house. I wonder if this can just go away on it’s own. It was interesting when you mentioned causes - like an overactive immune system from vaccines. I’ve not had covid but I’ve been faithful about the vaccines - have had 4 so far and got more and more systems after each. How can we protect ourselves from covid if the vaccines might be the flare for the PMR? Scary. Thanks so much for this talk and all the other feedback from viewers - so very helpful. :)
Great down-to-earth information. Thank you so much!
What a great and an insightful video. Can you advise on how to handle the weight loss due to this. It really disturbing. Thanks
Bless you for this video. I have two shoulders that I can't move plus a couple months ago I wasn't able to get out of bed anymore or go to the toilet without pain. Morning stiffness was the worst. Two weeks I ago my doctor ran about 40 blood tests on me and the ESR is normal but CRP was 48. I'm certain I have PMR. I see him tomorrow to go over the results and hope to get on prednisone immediately.
I have PMR I’ve been on prednisone since July 2022 I feel great no pain
That’s great!! I was recently diagnosed with PMR.. 6 weeks ago. I still have pain in am.. not Not excruciating pain like I had in the beginning but I still have pain in the morning I take 15 mg and was recently dropped down to 12.5 that’s when I noticed that I still have pain in the morning I was wondering if the pain will go away all together, but we still have some kind of a pain in the morning
It's weird I think they only did the sedimentation test on me. Mine was 44. I get worse in the summer. How are you now?
@@LorySmith949Even though the ESR wasn’t high I was put on prednisone. Helped tremendously. Now have tapered to 3mg from 20mg. It’s a slow process especially now that the adrenal glands need to wake up. I am staying at 3mg through the end of the year then will try to taper off next year.
Exactly video and great information. I’m currently in testing for autoimmune diseases. I would love for you to do a video on IGA IGG IGM deficiency as well as a Myasthenia gravis video which my mom has.
This video was so helpful, than you so much!
Ça fait 9 ans que je prends prednisone et 2 ans avec Hydroxycloroquine. Cela a permis de diminuer la cortisone mais à 3 mg, rechute d'inflammation. Mon foie ne tolère pas Méthotrexate! J'avais 50 ans! C'est long. Je vais regarder du côté de Tosalizumab. Merci.
A very good explanation
Very informative but sound low.
Thank you is was so very helpful ❤
Wish you would discuss LDN (low dose naltrexone) for many autoimmune diseases that lowers inflammation, pain & increases energy naturally.
LDN made my autoimmune disease so much worse. I got so sick off of it and within months I developed additional autoimmune disease. It's not a magic treatment.
I am one of those flukes I was diagnosed at 43 and am 7 years with still no remission.
Try excedrin or ashwanda
I was just diagnosed with PMR this morning.
What was your sedimentation rate? Does it get worse in the summer.?
@@LorySmith949 I have all the symptoms but NO inflammatory markers. That stumped a few doctors. I’m trying five days of steroids to see if they help.
So many MDs think it's in joints and muscles. It's definitely in the tendons and bursa. Some have been known to pass it to their spouse... doesn't sound like autoimmune disease. People don't get it in January or February, very odd. If not treated the pain is unbearable; you just wouldn't want to live anymore.
In what hemisphere does this condition not appear in January and February? I'm thinking winter vs summer and Vitamin D levels. And it's interesting that transmission to spouse has been reported :-)
It's January and I just got it
Sorry, that's just what I read🤷♀️
PMR isn't passed on to another person. My PMR began in a January four years ago. There are some sites that don't contain reliable info so be careful what you read!!
My rheumatologist had patients who passed it to their spouse. I got it in May. I have done hours of research
Great video thank you.
excellent info, thank you
My mother has PMR and Giant Cell Arteritis! And I have GPA and Goodpasture’s Disease!
Suggest the carnivore diet to your patients. It worked for my PMR.
I have been given prednisone for about a year for the condition. It helped me a bit. But struggling with stiffness. Particularly at night . It really made my life hell . I am still carrying on. But unable to do any housework and so on. Dreadful conditions.
Hi, I have recently been diagnosed with this but have a question. I started with hip pain, then knee, but my upper body symptoms started the day after a chiropractic neck adjustment. I can’t imagine it’s just coincidence. Thoughts?
your videos are very informative, wish I could hear you properly. poor sound quality.
yes... sound is too low
Dr. Ortiz knows more about PMR than either of the rheumatologists I saw during my bout of PMR, and she does seem to be aware of some exciting work being done in Australia. Otherwise, there just isn't much. I read recently that they may have found marker antibodies for PMR. I don't remember anything more than that.
So hard to get in with an actual Rheumatologist and my appt has been cancelled for yet another month! I love Dr Ortiz, she sure makes it clear and understandable! I think I may just stick with my GP and my prednisone!! I just need to get on the right dosage! Prayers to all!!🙏❤️👍
Hello, I'm 42 and have PMR since early 30s. But formally diagnosed a year ago with blood tests sky high inflammation markers. This condition is so painful and flare ups sometimes leave me with very little mobility like I need a walking stick for support because my hips glutes and bursa are so inflamed. I also have fibromyalgia and endometriosis diagnosed 20 years ago so somehow these go together or the symptoms are very similar. Thank you for the information, I do however prefer natural alternative medicine although I haven't found the one that works yet
Strongs to all.
My Rhumy only pulls crp and Sed and cbc that’s it! Then she stopped and only pull Cdc. I wish I could find one that will pull blood and really look!😢we lack good doctors in my area…
Oh and she refuse to continue with my prednisone. That’s probably why I still have so much trouble, no prednisone for over a year! Most I was on was 10mg…
I forgot to ask about my abdominal discomfort and bloating. You mentioned stomach inflammation. I’m on prednisone, does this usually help stomach inflammation too? It hasn’t. If not, what will? Thanks
A brilliant video. Thank you SO much. I really wish you were my rheumatologist! (I have PMR). X
I have been diagnosed with sudden onset PMR and my hips are not involved. It is worst in the shoulders, elbows, wrists and hands as well as the knees. Trouble getting up from sitting is not from the hips, it's from the bad knee pain in the soft tissues beside and behind the knees.
I suspect I have oxalate arthritis, having increased my oxalate intake suddenly on a new diet (yup, a lot of those "superfoods" are very high oxalate), but since the treatment is the same, I will accept the PMR diagnosis to save having a lot of diagnostic tests which may be inconclusive. Just letting others know that it may be wise to go on a strictly low oxalate diet in case it is caused by oxalates.
I too had Convid, pre the conditions i experienced, im not jibbed V the weaponised virus. Like you snd others, i believe there is a connection.
Coincidence, i don't think so!
Diagnosed after 2 months of classic worsening pain and weight loss to the point that I felt my life was over.
Luckily my Dr, knew exactly what i described as my classic symptoms.
I was 90% improved in 2 days and 100% within 5 days on 15mg.
15 months later I'm tapering successfully, slowly 15:mg , so far to 4.5mg, i hope and expect another year of tapering to get off 15:55 this insidious, but life saving drug,l.
I have thinning hair, the start of cateracts, regained the 15kg that I'd lost and I'm just a 68 yo man now.
Hope this is useful to somebody, the more we learn, the better it is for us.
Yes. TY for sharing your experience. 😊
I’m 39 and have pmr x
I was diagnosed with PMR...been on Prednisone for 2 years... I've gone down to 1 mg of Prednisone and went off it..y muscles are not the culprit...I have severe arthritis in my feet and hands now...what's up???? Can't take Celebrex or ...Lyrica need help...don't think I ever had PMR!!! I hate Prednisone...lost hair, destroyed my nails and now I have been diagnosed with osteopenia.... Please turn your sound up ..we are having a hard time hearing you without turning our TV's extremely high volume!!!
Maybe u have RA rheumatoid arthritis. I refuse to take prednisone too. I have candida in lungs. It would make it grow more where I can't breathe. I just take excedrin. I think the ashwaganda is helping too
My pain is on both sides equally of my biceps (feels like soar, weak muscle) and clavicle area (a soreness in the center btwn chest bone and shoulders) and the neck, high on both sides where the skull meets the neck. There is a lot of popping in the shoulder and even my wrist area. I don't think I experience issues of the hip, but at times deep in my gluts (again, both sides). Still trying to determine if this is PMR. I was told that it is not RA. Blood work comes back fine. Can this subside on its own? Wondering if this is stress induced. I have always been otherwise very healthy, but increased stressed over the past few years.
❤ Bless🙏🏻 you
I was recently diagnosed with PMR.. I was in major pain before the 15mg of prednisone..question I dropped down to 12.5mg. Question.. will the pain and stiffness go away with taking the prednisone 100 % no pain 💯 are will you still have pain but less?? Thanks
Unfortunate that the audio is so low
It isn’t low for me. Did you try turning up your sound volume?
No mention of brain fog
I love this channel. Have you done a video on MCTD? I looked but couldn't find one. I have MCTD and sometimes doctors just don't know much about it. If you haven't done one would you consider doing one?
No
So would you say that a doctor says it's pmr and your 30 that they're wrong about the diagnosis? I had tick disease that he thinks triggered pmr. Thoughts?
My husband a rare case. He's 38 and has this, but we don't have insurance and have been going to basically a walk-in for this. The doctor doesn't seem to have any experience in this and prescribed him 10mg to start which helps but he still has pain and she's simply told him to take ibuprofen (which is a joke in this area of pain). Does he HAVE to see a specialist or just insist on a higher dose with blood test monitoring?
I’m so sorry your for your husband.
I’m 35 yr old male and currently was diagnosed myself.
I’m currently taking 20MG prednisone. This pain is unbearable
I mainly have soreness, weakness and stiffness. Excedrin helps me. I can't take prednisone
Is it possible to have Fibromyalgia and have PMR? I was recently told by my Rheumatologist that I most likely have Fibromyalgia as I tested negative for many autoimmune conditions like Lupus. I did another blood test recently and it showed I have off the charts inflammation CRP (36) and ESR (78). I am a woman 29 years old, have many of the symptoms of Fibromyalgia and I'm overweight. My Rheumatologist prescribed me Gabapentin but so far it's only given me more side effects than helping me. I do have widespread body pain, skin sensitivity when touched and anything touches me, fatigue, stiffness in many joints with joint pain in the morning and throughout the day, brain fog, restless legs especially at night, muscle cramping/ spasms and trouble sleeping/ insomina, problems walking from the pain/ stiffness just to name a few. I don't have a follow-up until November with my Rheumatologist. Is it possible I have both conditions?
I just started LDN. How do you feel about this rx?
I have just been diagnosed with PMR and Giant Cell and has now also lost 90% vision in my left eye. Have also lost 11 kilos in 3 weeks. It is very frightening.
What Happened you didn't get it diagnosed fast enough? Did u get all the jaw pain and headaches?
What is the side effects of polymyalgia rheumatica?
Thunbs up thanks
Hard of hearing and Can't see subtitles!
Do you do zoom calls?
how does it differ from fibromyalgia
I am a 57 year old woman with extreme pain in my hips which exercise can i do to help the stiffness?
I was diagnosed early 2022.
Better now and off the prednisone.
Does anyone know if I’m sick with a long lasting cold because my adrenal glands aren’t right?
I have nerve pain all over my body it's affecting my eyesight I've lost 70lbs I also have constant ringing in my ears Tennitus can someone help?
SA needs 100% Safety and Security, World Class Education, Justice Fair and Equal but Applied Fully, Health and Hygiene, Free Enterprise without restrictions on any one..... the economy and the rest will naturally follow.
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I've been being treated for PMR after a severe sudden onset since back in July of 2019. I was kept on 20 mg. Of Prednisone for over 2 years. I've developed latent TB, and popped a few tendons, that's never been treated. My first rheumatologist tried to start me on a biologic called symphony Aria after testing positive for TB I found out that I should not be doing biologics without having the TB treated first but she just wanted to treat me anyway, with the symphony Aria and not for the TB. She would never answer any of my questions I had about it so I quit her and started with another rheumatologist. He had me see an infection specialist who treated me for the TB, but all of them have had me go from 20 mg to 10 to 5:00 which set me back in a flare instantly which only got worse because they never reuped my dose to taper me the proper way. They want me to take about 12 different pills a day including Omeprazole I took before I ever had acid reflux which I had acid reflux the entire time I took it because I had diverticulitis and a bunch of things that I should have never taken omeprazole because of. Now I'm almost to the point where I just want to stop all of my pills because the side effects are worse almost than not being able to walk I've even had impact puncture wounds from slipping and falling and ended up having 21 stitches inside all the way out on my shin I had cut through my sack that goes around my bone almost lost my leg I was on seven different antibiotics in 5 months and now I'm just to the point where I don't trust anything my doctor wants me to do anymore. Well taking the antibiotics I had to get off of everything that's treating me for my PMR and my rheumatoid arthritis except for 10 mg down to five of prednisone and I'm a mess. Any advice on this?
I you were asking for suggestions, I would stay in close contact with the rheumatologist or generalist and report small changes or problems immediately so that you can both titrate the problems and treatment together before they become even more significant. It is unusual to maintain a dose of 20 mg prednisolone for so long but you did say that when the dose was decreased to 10 mg the condition flared probably indicating that you did actually need it to be 20 mg. Infection is one of the hazards of autoimmune disease treatment and this needs to be monitored closely for obvious reasons. I hope you were able to make progress :-)
Can't hear you very well.
Stopped when all the explanations started. There is an 'about' section on RUclips if one wants to know. Just get to the point as soon as you can. Some are not interested in who and why and when.
How about you turn your mic up
I names it PMR(prime minister residence 😅
A good naturopath will seek to uncover whyn your body failed you and get you on the clean out, clean up road to better health! Go for it! Never say 'Die!' unless it is to a disease or toxicity! You can fight this stuff off!
Nope. You don't know what you are talking about.
I went to natural drs first and they nearly killed me. They missed all my serious diseases and even renamed my mast cell disease multiple chemical sensitivity. I was in a wheelchair by the time I figured out they were killing me.
Back to western medicine and got proper treatment for Autoimmune Dysautonomia, and multiple autoimmune disease, Ehlers Danlos and MCAS. Been out of a wheelchair for 3 years now.
Rodriguez Maria Perez Linda Lewis Robert
I’ve been diagnosed with PMR, but my only symptoms are the labs. No pain, or stiffness other than normal for my age. Currently on 5 mg prednisone daily. I want to discontinue the prednisone, very worried about bone strength and density.
How did the doctor know to test for PMR-speciific findings in blood if you didn't have symptoms? Serendipitous coincidental discovery? This does happen - I'm just interested.
@@Fomites That’s what I wondered. My husband got this about 4 years ago. Went from healthy to OMG what’s going on with him. They never would have run the diagnostic tests without him getting so sick. So why were they testing you?
Love your blogs. Thank you.