Please don’t stop making videos! We need a Microscopic Colitis voice on RUclips and the more you learn as you go through this journey the more valuable your information will be. Sorry for your crappy (no pun intended) test results but most of us are in the same boat. I’ve been gluten, dairy and soy free for several years and only eat eggs very occasionally. My worst trigger is dairy. It will guarantee a bad flare. I thought I couldn’t possibly live without cheese but have learned that I can 😢. Gluten free was pretty easy for me and soy free means no more processed foods and not much eating out. So sorry you’re having to go through this at such a young age but love your can do spirit.
Thank you for continuing to watch me and my journey ! I’d love to get some recipe ideas from you seeing as we have the same intolerances and I am so new to this ! My results were definitely crappy 😂 but hey at least I know now ! Thanks for saying it gets better cause some days it can definitely feel hopeless!. I’ll keep doing videos!! You’re right we need a voice 🗣 💪🏼
Hi Praline. I was diagnosed with lymphocytic microscopic colitis over a year ago. I just discovered your videos and am binge watching them. I'm so glad you didn't stop making them here, as you thought you might. Thank you so much for sharing your experience. Your videos are still helping and encouraging others. It helps so much to "know" others who are living with this disease and learning how to manage it. I look forward to watching the rest of your videos. I hope you are doing well. It appears that you haven't made a video for about a year. I'd love to see a recent video to know how you're doing. You're making me consider making my own videos to encourage others because yours are so encouraging to me. Thanks so much!
Hi Praline. I have been watching your videos since you started and I’ve been wanting to share my story with you for some time now. I feel like I can relate to so much that you’re going through. I was so happy to find a voice on RUclips that was going through a similar situation as me. I’m 22 years old and was diagnosed with microscopic colitis (lymphocytic) in November of last year. I had been battling chronic diarrhea since January of 2018 during my last semester of college and had no idea what was wrong with me. The first doctor I went to suggested I just increase my fiber intake. Looking for more answers, I went to a GI dr a few months later. I was ordered to do many rounds of blood work and stool samples and they found nothing. I finally got a colonoscopy and endoscopy after I graduated in November and got the diagnosis. I was on the steroid for a couple months and it was helping a little bit but the symptoms were still there. This past year has been the most stressful for me (finishing school, trying to find a job post grad, etc etc) so it makes sense that this initial flare up would occur during that time. I started eating a little bit healthier.. not cutting things out, but limiting things like gluten and dairy. I got a job last month and I’ve felt my stress levels go down and noticed a lot of improvements with my stomach and digestion. However, a few months ago I noticed a pain in my throat when swallowing. I got this checked out a few weeks ago and the doctor ordered an ultrasound on my thyroid and blood tests. Turns out my thyroid is slightly enlarged and some of my levels are abnormal, she diagnosed me with Hashimoto’s Disease. She thinks these 2 conditions (MC and hashimotos) are definitely related to each other. Because I have an auto immune disorder - it is just showing in different parts of my body now. First in my intestine, now in my thyroid. I’m wanting to make changes in my lifestyle to try and limit the chances of something else happening. Once I get settled in this new city I moved to and new job I’d like to see a specialist that can help me with everything. But this video intrigued me and I feel like I should order this test. I think making changes to my diet will be instrumental in my well being moving forward. I’d love to be a “companion in this” and am so grateful to you for sharing your story. It’s really hard to find information and stories surrounding this condition and it’s been nice to hear someone personally speaking about it. Stay strong! -Bailey James
Hi Bailey ! I can’t thank you enough for taking the time to watch me and listen to my journey and most Importantly sharing your story with me !!!! ❤️ our time lines are so similar with MC! You have been through SO MUCH and I KNOW just how much your life must have changed in the past year. You’re incredibly strong for juggling the symptoms of this illness ,college, life, + hashimotos . 💪🏼 It’s such a comfort to know I’m not alone, Thank you so much for reaching out to me. Excited for you to get settled and to a specialist that can help you have more healthy days. Diet is EVERYTHING so let me know if you see any improvements once you alter your diet a little more, I promise it will help and if you do end up taking the tests please let me know your results ! We got this 💪🏼 Xoxo - your companion in this
I was just diagnosed with this disease after dealing with issues since around Christmas time. I find your videos educational as this is soo foreign to me. I thought for sure I was celiac.
Hi Michelle, thank you for watching. I am glad you finally received a diagnosis. I know it is so stressful having all of the symptoms and having no clue what was going on with my body. It means a lot to know that my videos are helping you in any way! I do recommend getting Wayne Perskys book "microscopic colitis" it's the first thing i ordered after i was diagnosed and it has guided me in the right direction. Hoping for healthier days for you ! keep in touch ! xoxxo
Tina Crouch hi 👋🏼 so sorry to hear about your sisters diagnosis. I know there is hardly any info about this illness online but I do suggest reading Microscopic Colitis by Wayne Persky , it’s everything you need to know and was a great place to start when I was first diagnosed. Always here if you have any questions!
Symptoms during the the past 2 years include: - "peeing" out of my bottom 4-13 times daily - fatigue that's more like slipping into a coma - loss of appetite - loss of hunger signals - stomach gurgling and churning like shoes in a dryer - bloating and distension - red hot buring stomach pain - brain fog so severe it scares me - the attention span of a gnat - irked that I gave up gluten 17 years ago, drinking 4.5 years ago and dairy 3 days ago
Your videos are so helpful. I haven't done this specific lab test but by tons of trial and error I have figured out my top contributors that can trigger a flare up. It's also strange that after I am passed my flare I can tolerate most of those things as long as I keep a lot of variety in my diet and don't eat the same things multiple days in a row. I also prefer to stay on a low carb/low glycemic diet and for some reason my microscopic colitis really revolts after a few months of it.. maybe this lab test can help answer that for me. Thanks for sharing!
Hey 👋🏼 thanks for watching & letting me know that these videos have helped you !! I feel like the majority of me finding my way thru this illness has been ALL trial and error lol The Enterolab tests were a great starting off point for me as far as diet once I found out my definite intolerances and I cut them out entirely no cheating I saw a 50% improvement in my symptoms but don’t get me wrong some days I still feel like 💀 Thanks for reaching out to me it’s always great to know I’m not alone and that ppl understand !! Pls keep in touch 💕💕💖
Roxanne Budd yes your food intolerances sound very similar to mine ! What is your diet like ? I’m always searching for new things to add to mine but I’m usually to scared to try ! 😂😭
I am still trying to figure out my diet with this, so my symptoms are hit and miss. I am on Budesonide and it seems to help, but it still varies by day. Mostly I have upset stomach and minor pain. The big one is the Fatigue and Brain fog, some days I am not tired but just drained feeling hence fatigue.
Hey girl! I’ve been struggling with this disease as well and been doing gluten free, dairy free, and now soy free to no avail! I was considering doing the Enterolab tests, but was wondering how much they cost! Also, have you seen improvement since you eliminated those things from your diet? The struggle is so real! Like what do you even eat for breakfast! 😢 This disease is tough! If you ever want to chat about it, I’d be happy to swap stories! 🙂
Hey girl👋🏼 Thank you so much for reaching out to me and taking the time to watch! I am so sorry it’s taken me so long to get back to you. I’ve made a pact that I’m going to get more consistent with this and I would love to keep in touch and chat about our experiences!!! You can email me at pralinenoel@gmail.com if you like ! The enterolab tests can be pretty pricey and most insurance companies don’t cover it but for me it was a really good starting point because I had no clue what I was intolerant to but it does sound like you Already have a pretty decent idea of the things you need to eliminate from your diet. I will tell you truly, honestly I have seen an incredible amount of improvement from eliminating all of these things and being on a very strict diet. It’s truly been the only thing that has given me any kind of quality of life back. The thing is it just takes your intestines so long to heal that the elimination diet may seem like it’s not working at first but it just takes time and patience and practice ! This disease is super tough and I’m just happy I have people who can relate ❤️ Really looking forward to hearing from you!
Leigh Tara Cumming www.enterolab.com there is a section on the left side “which tests to order” & they will tell you which tests exactly you need to order if you have microscopic colitis .
Hi 👋🏼 I saw immediate results and relief after strictly cutting out gluten, dairy, soy and chicken egg. Diet is everything when it comes to finding relief while living with this condition. I am really strict about it and don’t even take risks like eating out or cooking with anything someone else has cooked with that could be contaminated by my trigger foods. Please let me know if you have any questions and keep in touch !
Please don’t stop making videos! We need a Microscopic Colitis voice on RUclips and the more you learn as you go through this journey the more valuable your information will be. Sorry for your crappy (no pun intended) test results but most of us are in the same boat. I’ve been gluten, dairy and soy free for several years and only eat eggs very occasionally. My worst trigger is dairy. It will guarantee a bad flare. I thought I couldn’t possibly live without cheese but have learned that I can 😢. Gluten free was pretty easy for me and soy free means no more processed foods and not much eating out. So sorry you’re having to go through this at such a young age but love your can do spirit.
Thank you for continuing to watch me and my journey !
I’d love to get some recipe ideas from you seeing as we have the same intolerances and I am so new to this ! My results were definitely crappy 😂 but hey at least I know now ! Thanks for saying it gets better cause some days it can definitely feel hopeless!. I’ll keep doing videos!! You’re right we need a voice 🗣 💪🏼
Hi Praline. I was diagnosed with lymphocytic microscopic colitis over a year ago. I just discovered your videos and am binge watching them. I'm so glad you didn't stop making them here, as you thought you might. Thank you so much for sharing your experience. Your videos are still helping and encouraging others. It helps so much to "know" others who are living with this disease and learning how to manage it. I look forward to watching the rest of your videos. I hope you are doing well. It appears that you haven't made a video for about a year. I'd love to see a recent video to know how you're doing. You're making me consider making my own videos to encourage others because yours are so encouraging to me. Thanks so much!
Hi Praline. I have been watching your videos since you started and I’ve been wanting to share my story with you for some time now. I feel like I can relate to so much that you’re going through. I was so happy to find a voice on RUclips that was going through a similar situation as me. I’m 22 years old and was diagnosed with microscopic colitis (lymphocytic) in November of last year. I had been battling chronic diarrhea since January of 2018 during my last semester of college and had no idea what was wrong with me. The first doctor I went to suggested I just increase my fiber intake. Looking for more answers, I went to a GI dr a few months later. I was ordered to do many rounds of blood work and stool samples and they found nothing. I finally got a colonoscopy and endoscopy after I graduated in November and got the diagnosis. I was on the steroid for a couple months and it was helping a little bit but the symptoms were still there. This past year has been the most stressful for me (finishing school, trying to find a job post grad, etc etc) so it makes sense that this initial flare up would occur during that time. I started eating a little bit healthier.. not cutting things out, but limiting things like gluten and dairy. I got a job last month and I’ve felt my stress levels go down and noticed a lot of improvements with my stomach and digestion. However, a few months ago I noticed a pain in my throat when swallowing. I got this checked out a few weeks ago and the doctor ordered an ultrasound on my thyroid and blood tests. Turns out my thyroid is slightly enlarged and some of my levels are abnormal, she diagnosed me with Hashimoto’s Disease. She thinks these 2 conditions (MC and hashimotos) are definitely related to each other. Because I have an auto immune disorder - it is just showing in different parts of my body now. First in my intestine, now in my thyroid. I’m wanting to make changes in my lifestyle to try and limit the chances of something else happening. Once I get settled in this new city I moved to and new job I’d like to see a specialist that can help me with everything. But this video intrigued me and I feel like I should order this test. I think making changes to my diet will be instrumental in my well being moving forward.
I’d love to be a “companion in this” and am so grateful to you for sharing your story. It’s really hard to find information and stories surrounding this condition and it’s been nice to hear someone personally speaking about it. Stay strong!
-Bailey James
Hi Bailey !
I can’t thank you enough for taking the time to watch me and listen to my journey and most Importantly sharing your story with me !!!! ❤️ our time lines are so similar with MC!
You have been through SO MUCH and I KNOW just how much your life must have changed in the past year. You’re incredibly strong for juggling the symptoms of this illness ,college, life, + hashimotos . 💪🏼
It’s such a comfort to know I’m not alone, Thank you so much for reaching out to me.
Excited for you to get settled and to a specialist that can help you have more healthy days.
Diet is EVERYTHING so let me know if you see any improvements once you alter your diet a little more, I promise it will help and if you do end up taking the tests please let me know your results !
We got this 💪🏼
Xoxo
- your companion in this
I was just diagnosed with this disease after dealing with issues since around Christmas time. I find your videos educational as this is soo foreign to me. I thought for sure I was celiac.
Hi Michelle, thank you for watching. I am glad you finally received a diagnosis. I know it is so stressful having all of the symptoms and having no clue what was going on with my body. It means a lot to know that my videos are helping you in any way! I do recommend getting Wayne Perskys book "microscopic colitis" it's the first thing i ordered after i was diagnosed and it has guided me in the right direction.
Hoping for healthier days for you ! keep in touch ! xoxxo
My sister has this disease. I’m trying to learn about it
Tina Crouch hi 👋🏼 so sorry to hear about your sisters diagnosis. I know there is hardly any info about this illness online but I do suggest reading Microscopic Colitis by Wayne Persky , it’s everything you need to know and was a great place to start when I was first diagnosed. Always here if you have any questions!
Thank you for trying to learn, your sister should appreciate you for this.
Symptoms during the the past 2 years include:
- "peeing" out of my bottom 4-13 times daily
- fatigue that's more like slipping into a coma
- loss of appetite
- loss of hunger signals
- stomach gurgling and churning like shoes in a dryer
- bloating and distension
- red hot buring stomach pain
- brain fog so severe it scares me
- the attention span of a gnat
- irked that I gave up gluten 17 years ago, drinking 4.5 years ago and dairy 3 days ago
My wife says "PLEEEEEEEASE start making new videos!!
Would love it if u made more videos!! I might give the tests a try. Take care:-)
Thanks for the support! And if you do take the Enterolab tests please share your results !
Your videos are so helpful. I haven't done this specific lab test but by tons of trial and error I have figured out my top contributors that can trigger a flare up. It's also strange that after I am passed my flare I can tolerate most of those things as long as I keep a lot of variety in my diet and don't eat the same things multiple days in a row. I also prefer to stay on a low carb/low glycemic diet and for some reason my microscopic colitis really revolts after a few months of it.. maybe this lab test can help answer that for me.
Thanks for sharing!
Hey 👋🏼 thanks for watching & letting me know that these videos have helped you !!
I feel like the majority of me finding my way thru this illness has been ALL trial and error lol
The Enterolab tests were a great starting off point for me as far as diet once I found out my definite intolerances and I cut them out entirely no cheating I saw a 50% improvement in my symptoms but don’t get me wrong some days I still feel like 💀
Thanks for reaching out to me it’s always great to know I’m not alone and that ppl understand !!
Pls keep in touch 💕💕💖
I did not have this test, but I bet I’m in the same boat as you. I don’t tolerate gluten, dairy and allergic to eggs and yeast.
Roxanne Budd yes your food intolerances sound very similar to mine !
What is your diet like ? I’m always searching for new things to add to mine but I’m usually to scared to try ! 😂😭
They should totally sponsor you.
i wish ! :)
I am still trying to figure out my diet with this, so my symptoms are hit and miss. I am on Budesonide and it seems to help, but it still varies by day. Mostly I have upset stomach and minor pain. The big one is the Fatigue and Brain fog, some days I am not tired but just drained feeling hence fatigue.
Hey girl! I’ve been struggling with this disease as well and been doing gluten free, dairy free, and now soy free to no avail! I was considering doing the Enterolab tests, but was wondering how much they cost! Also, have you seen improvement since you eliminated those things from your diet? The struggle is so real! Like what do you even eat for breakfast! 😢 This disease is tough! If you ever want to chat about it, I’d be happy to swap stories! 🙂
Hey girl👋🏼 Thank you so much for reaching out to me and taking the time to watch! I am so sorry it’s taken me so long to get back to you. I’ve made a pact that I’m going to get more consistent with this and I would love to keep in touch and chat about our experiences!!! You can email me at pralinenoel@gmail.com if you like ! The enterolab tests can be pretty pricey and most insurance companies don’t cover it but for me it was a really good starting point because I had no clue what I was intolerant to but it does sound like you Already have a pretty decent idea of the things you need to eliminate from your diet. I will tell you truly, honestly I have seen an incredible amount of improvement from eliminating all of these things and being on a very strict diet. It’s truly been the only thing that has given me any kind of quality of life back. The thing is it just takes your intestines so long to heal that the elimination diet may seem like it’s not working at first but it just takes time and patience and practice ! This disease is super tough and I’m just happy I have people who can relate ❤️ Really looking forward to hearing from you!
What tests are they? And how can I get them done?
Leigh Tara Cumming www.enterolab.com there is a section on the left side “which tests to order” & they will tell you which tests exactly you need to order if you have microscopic colitis .
Did you need a doctor's order for the test? Thank you for sharing.
Hi 👋🏼
No doctors note necessary, just go to enterolab.com and there is a section for what tests to order if you have microscopic colitis 🙂
Did you see any results after cutting out the food groups that you failed for on your enterolabs test?
Hi 👋🏼
I saw immediate results and relief after strictly cutting out gluten, dairy, soy and chicken egg.
Diet is everything when it comes to finding relief while living with this condition.
I am really strict about it and don’t even take risks like eating out or cooking with anything someone else has cooked with that could be contaminated by my trigger foods.
Please let me know if you have any questions and keep in touch !