Vestibular Neuritis - The Struggle and Recovery Story
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- Опубликовано: 7 авг 2019
- The video is about my struggle with Vestibular Neuritis, a Vestibular Disorder. I talk about my onset, symptoms, my recovery story and I give advice on how I got better. My goal is to spread awareness and ins-till hope for those that are suffering from this illness. EDIT - I forgot to mention in the video that I've been seeing someone for Cranial Sacral Therapy the last few months, and I've seen improvement. Also, I am not a medical professional and these are just my thoughts, theories and what have worked for me.
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Im 25 and drank to much beer one night and woke up with vestibular problems. It's been a nightmare to say the least. It's hell on earth. My mind feels completely disconnected from reality. And vertigo as well as losing feeling in some areas. A few months in I had thoughts of suicide. I was put in a psych ward hospital for a week, there I met people who I'll never forget. My problem lately has been eye dilation, my eyes are usually black saucers, which all stared right after my vng test. Constantly hearing ringing in my right ear. It's been a real problem all this. But you know what, I know I will recover and when I do I will come out 10 times stronger both in Faith and spirit. Bless all of you who are dealing with this! May you find peace with God, and pray that Jesus will help you recover.
How are you doing these days? I heard that alcohol induced vestibular stuff has a huge chance of subsiding with abstinence.
Has your tinnitus disappeared?
Hello, has anyone ever went back to work? I have mine for almost 2 years now and have gone back to work eversince
I did go back to work,after 2months of vertigo,my tinnetus is now mild,what i did is stop drinking coffe and softdrinks,i still have vertigo,but its not severe anymore,i can manage it now,u have to be active guys,exercise also helps,the more u get active the better progress of curing vertigo,its a long processed guys,i still have vertigo at this time but im optimistic that i will get past trough it
How much better % wise are you now that you quit caffeine/soft drinks?@@JhayrhHalili
Been dealing with dizziness for three years , it’s the worst , and I wouldn’t wish this on my worse enemy.
I just want everyone to know it does get better. I suffered with this for 2 years. I did the exercises he recommends plus lots of neck, eyes, jaw and shoulder stretches to reduce stress and anxiety caused by the symptoms. Working in front of a computer was tough so. Every time I walked into a shop I’d stand near a shelf or wall incase I lost my balance. The exposure to bright lights or even too many people in a room (talking loudly) gave me anxiety … it just takes time to get better :)
You are 90% better?
Thanks for sharing are you better, I’ve been dealing with dizziness since October of last year I’ve had all test ran everything is positive .
My Brother has been suffering for 11 months. He found your videos and credited you for saving his life. He was so mentally depleted and depressed. You gave him hope. I know he has thanked you but I wanted to as well.Thank you so much Sean. Your amazing. I wish you good health always.
Thank you for sharing. I had a concussion last year and my symptoms and struggles are very similar. Wishing you a speedy recovery from Vancouver.
Also I strongly believe that people like you who have made videos or there are support groups, they impart more information and motivation than any of the doctors I ve see. Thanks Sean for such videos. It gives us lots of hope and motivation.
So true. Never thought I would be in a point n my life where I felt so hopeless. But it will get better.
Thank You for the positivity!! I have been feeling this for a month and a half now. Couldnt tell what it is as i havent to so many doctors. This gives me so much hope! Im praying for recovery for the next year!
Gelo Ybanez it definitely gets better! Some hard work and patience for sure! All the best
Good luck to you! Hope you do recover 100%. I’m dealing with similar symptoms and really appreciate your video. Thank you!
Thank you.. good luck to you as well.. hope for a speedy recovery to you!!
Thanks for taking the time to do these blogs. It’s helps greatly to hear from people with similar experiences.
I am four months in and feel 80% at best, but also noticing slight improvements.
Having never previously been prone to anxiety this illness has caused me to question many parts of my life and daily routines.
Your videos are very well explained and you have provided excellent assistance.
Thankyou.
Thanks for reaching out and thanks for the comment! I’ve never had anxiety either, but with this condition it goes hand in hand. Try to find a way to get the anxiety under control, it definitely helped in the healing process. Once I gained control over the anxiety, I gained confidence, and it helped so much. All the best
thank you for sharing. the vestibular drills also helped me a lot with my balance. I hope for your complete recovery. Hope all of us will be healed and recovered from all these
All the best to you!
I am just at the beginning of this journey. Such helpful tools and resources and wisdom. Thank you for sharing such a compassionate message.
Dreamwalker Day no problem. All the best to you!!
Thanks so much for posting. You are awesome! So impressed with your determination and discipline. I have been struggling with this and have made so many positive changes because of it. I get frustrated sometimes because recovery is slow. Let’s both keep going strong! Look forward to hearing about your progress.
Sarah Finlay yeah I’m pretty determined to beat this thing. Crappy hand to be dealt but you have to move on and do what ya can. Keep it up! It’ll be so good at the end of it and look back and realize how stronger you’ve become
Thank you for taking the time in making this video, you have given me hope. As a 32 year old head of household and father of 3 and working in the construction industry, ive had the worst last 4 months of my life. Your video gives me hope.
Hope you are better my brother.
I’ve had it bad too!!:(
Hey Rey
How you holding up?
Are u better
@@jeffslancik1341 do you have spongy walking feeling ?
Thank you so much for posting this. You really helped me not feel alone.
I speak with many people and there are a lot more ppl than you think struggling with this and have recovered
Dearest Sean. Many thanks for publishing this video. I cannot tell you how grateful I am. Bless you, bless you, bless you.
merete rosenberg no problem!! All the best to you
merete rosenberg would you happen to have Twitter? I’m in a contest and if so could you like this pic? twitter.com/UpperDeckHockey/status/1235629037248110592
Thank you for this Video. I have been dealing with this for months. I can see that I may be getting better. You are a great motivation!!
Thank you so much for sharing this. I am in the beginning stages so I've been having quite a bit of anxiety and stress. Your story gives me hope! Also from Edmonton and totally relate to the whyte ave story!
I'm Edmonton area as well and am just three months in with what I'm told is vestibular hypofunction. Still very much trying to get symptoms under control and cope with the emotional aspects to this. Since your somewhat local to me I just thought I would say Hey, good luck, and let you know you're not alone right now in navigating this whole new world of.... well, stress, anxiety, and of course symptoms.
So happy I discovered this video. My husband is 77 and he’s been so healthy and active his whole life. This has been so hard for him. This makes me believe he will get better. We are still in the diagnosis faze. But we’re pretty sure he has some kind of vestibular. Thank you again for this and I hope you have recovered and are doing well
Hey Claidia !!
I’m going through it now!! Worst thing ever !! What’s his symptoms ?
You're amazing! Thank you so much for making this video!! I've been dealing with this for almost a year and just got diagnosed a few weeks ago. This whole time I thought I was just dealing with anxiety. I got so much out of this video. I appreciate it so much!!
God's WarriorChild anxiety is definitely a symptom of it and thank you. Subscribe to my feed, I’ll be putting out more vids of things that have helped me! Best of luck on your journey
Yes the worst part is you look fine. And diagnosis is difficult. So for the most of the time that I was unwell before the diagnosis really happened most people thought I was just faking or being lazy.
rohita vikash it’s definitely tough. How are you these days?
Not good. I walk with help. I'm going to see a specialist soon. I ve not been taking any supplements or medications.
Hi Sean!
Just saw one of your posts in Vestibular Hope the other day and clicked on the link of your recovery video right away!
We have many similar symptoms - I was diagnosed with VN too a few months ago and Ibeen doing VRT for about a month now. My biggest disturbance is my vision since I feel like objects are moving. This is driving me crazy some days. That classic bouncy vision was never there for me but instead this slight movement I notice when I move my head.
I am really hoping VRT will help improve my gaze:) Heres to full recoveryxx😊
Thanks for reaching out.. yeah it's a tough thing to battle, and the vision problems was one of my worst symptoms. It took time, but the eye exercises helped so much. I don't have anymore eye issues, but I was pretty relentless with the exercises. Even when it seemed like it wasn't working, I kept it up and it's paid off. I do it before bedtime, for maintenance (scared to regress). I hope the best for you, keep going
Thank you so much for sharing your experience, Sean! It felt like you were telling my story, not yours! One of the most difficult parts of having a vestibular disorder is that no one understands it. Like you said- one looks fine! Only someone who has gone through it can understand the kind of darkness it can envelope you in! I could not help weeping while listening to you. You are the first person I have heard that is talking about symptoms that I have also suffered from, and all the blood tests and MRIs and what not, came out to be just fine! Being a married woman in India, it is so difficult to lead my life in a deeply patriarchal society that treats my health issues as "all in the head" and not real. There is no compassion at a societal level. I truly appreciate the recovery process that you have shared with us. If I may add to it, meditation helps, as does breathing techniques used in what is known as "Pranayama" in Yoga, with the two specific ones being 'Bhramari' and 'Anulom Vilom'. Once again, big thank you. Thanks also for suggesting online support groups for vestibular disorders. I wish you a full recovery. ❤
Thank you so much for making this video. I don’t have all the eye issues, but definitely my eyes aren’t working well together. I went to eye therapy a couple of years ago. I need to start doing those exercises again. My balance and dizziness have gotten so much worse. I am so encouraged by your story to get up and do stuff. My life has pretty much come to a stand still.
Hi there, sorry that you're going through this. I hadn't stopped the eye exercises for fear of it relapsing- with that said, I don't do them a lot and for only a couple minute before bed. I also do minor balance exercises still- hope you find your answers and feel better!
Threeloys
Please reach out to me because I’m going through the same .
It’s good to help each other like Sean did
I’m so glad I came across your video. I have very similar symptoms. I’ve been out of work for a month now and the symptoms came after being sick with bronchitis and a sinus infection. I went to my ENT and he is sending me to physical therapy and a neurologist.
Hope you have a complete recovery from this. I’m hanging in there.
How are you feel now ? , i hope you are ok . Waht was your sintomps , may tell me ? I'm on tow months ago whit vestibular condicions
Thank you so much for this video! I've had all these issues for 5 weeks now. My neurologist said it wasn't vestibular neuritis, just bppv, but I disagree. I have such similar issues with my eyes, balance and weird sensations of not feeling my legs. I'm saving this video and I'll be trying the exercises you mentioned. God bless you.
Thank you so much for sharing your experience and tips for this horrible ailment! I'm 16 days into this and it's the worst thing that has ever happened to me. I really appreciate you taking the time to make this video, this is such a scary, lonely, and debilitating feeling. Thank you for sharing your strength and hope.
Sorry to hear this happening to you. If this is inner ear related, look into research of steroid to settle inflammation. There’s studies of it when it’s early onset, if you take a steroid (I forget which one it’s called) that it helps prevent long term effects. Worth looking into
@@seanpangs7131would that be prednisone? My symptoms are about 14 days in and that’s what I’ve been taking.
It's so nice to find videos like this that don't make you feel alone in the world. This condition is sooo hard. I have literally felt like life wasn't worth living and I have 6 beautiful children, if that tells you how awful this is. I am 7 months dealing with this. It's horrible at night. I can't lay down flat or I go into full blown vertigo, so I sit upright while the room spins gently all night long. People have no idea what this is like if they've never experienced it. I feel hopeful listening to your story. Thank you for sharing.
No problem. It's tough but it gets better. It might be a slow process but it does
Hey girl, how are you now?
It's good to see and hear other people that are going through the same problems, I've been having most of these problems for a little over a year now on and off and have been worried that it is serious, been to the doctor several times and they tell me it's just anxiety...Thanks for the video. Good luck to all whom may be going through this.
Chris Brannon yeah I got the “it’s just anxiety” too. But you know your body and you know it’s not just anxiety. I’m anxious because I can’t balance and walk properly haha. I hope things get better for you.. I’m a couple months shy of two years and I keep getting better month over month. I know and believe I’ll get pretty damn close to 100% soon
Has your tinnitus disappeared?
Thank you for making this video! Please make another in depth video! I’m currently trying to recover! & my days have been so rough.
Fav Ooo I will make one soon. It gets better, there are rough days but it gets better. All the best
Yes Sean please do.. This is the worst part of it the head and vision. It's like sensory overload or like your in a fishbowl.. So drunk and out of it.. Please do another video.. 😢
I have been dealing with vestibular neuritis since Jan 4, 2022. At month 7 and was getting better, have had a wave of symptoms this week. I appreciate your story and have learned a lot. God bless man!
How are you doing now at the 1 year mark?
Awesome video. I'm 21 months now. I work in ENT ( how crazy eh) so I was fortunate to get my vestibular neuritis diagnosis very quickly but I learned very fast that they couldn't help me and it was up to me and rehab exercise etc. Good days and bad days and staying positive and giving my body what it needs on a daily basis. Every day seems to be different.
Oh wow that’s good to get a perspective from someone that works in ent.. glad you took initiative to do what you have to do to get better
Thank you for posting this video. I am 14 weeks into VN - that is the diagnosis I received after a period of hospitalization and ruling out other afflictions. I'm 63 and this is my first episode, terrible misfortune for someone as young as yourself to be going through this, at my stage of life this has brought on an early retirement. I am working with a vestibular therapist - at my age neuroplasticity is comparably poor, so I expect I that I am in for a long-haul. I too am back in the gym and walking up to an hour or so, erg rower is manageable. Like you, I shall work toward better fitness, but my state of mind from day to day is also a challenge. COVID 19 as a backdrop - worse to be struggling through that disease, but would prefer to have avoided VN.
I hope you achieve 100% recovery.
Best of luck to you, good to know you’re staying active as much as you can
@@khroxas i'm 58 and have been dealing with it for about 9 months, getting better thank goodness because i did not want to live that way, so unreal and debilitating! Sean said it all right here in his video-Thanks Sean!!!
@@krae1111Has your tinnitus disappeared?
You hit the nail on the head !! Diagnosed in 2015 and still a journey!! I was diagnosed with vestibular migraines. Bouncy vision still and drunk walking , bumping into door ways on bad days . And yes the weather affect you !! So does . I feel like the human barometer. Your videos intrigue me to keep pushing on .
Michelle Jarosak thanks for sharing! Nice to hear from you.. I’m curious when you say the vids intrigue you to keep pushing. Do you mean with vrt? If so, did you do it and stop?
Sean Pangs yes I was doing Vrt .and did stop . It didn’t feel like it was helping . I struggle the most with my vision. When this first started I could barely see to drive , White knuckling it all the way to work . My neck would be so sore . It felt like I could literally feel every little bump in the road . Very hard to keep focused. Could really feel I was concentrating hard and causing stress. I’m better at driving now , but still struggling with walking and focusing. Bad days with walking are.. feeling like I’m stumbling over my own two feet . At times I can feel right foot turn in , and my brain is trying to correct but feels like it’s not getting connection. It’s weird.
Michelle Jarosak oh yeah I absolutely know how you feel because I’ve felt that all. And the reason why I asked because I was curious if you stopped vrt.. now I’m wondering if you start up again and just continue if it’ll help? I just passed two years and I’m feeling waaaay more normal days than before. Now I think about the days when vrt didn’t seem like it was helping, but in total I calculated and I’ve done about 900 hours in vrt in those two years. And I’m just wondering if that’s around the magic number of hours of vrt that someone needs to put in, in order for the brain to retrain. It’s worth a shot
Thank you so much for sharing this. I am 7 weeks into VN. Depression and anxiety set in on week 3 and I have struggled since.... Your video has given me hope that this will not last forever. You are a legend.
It won't last forever.. there's some scary times but this is why I released this video. I had some dark days but I'm good now. I wish you all the best
I'm week 4!! Anxiety and stress skyhigh.
@@TheBella489 how are you now?
I just jumped on to Thank Sean as Terry is my Brother. He is about 80% recovered now he says. He had 8 months off work…that was hard for him. He’s never not worked. It has not been easy. Today I woke up from sleep spinning as if I was Alice spiralling down the rabbit hole, nausea & vomiting, I couldn’t stand. I thought it might be genetic because I am the same age now as my Brother was last year when he first fell ill. Very weird. His neurologist said it’s not genetic.
My Brother told me about Sean. So I thought I’d jump on and see.
I am nauseous still 18 hours later but the dizziness has stopped…for now. I had no cold or flu symptoms just like Sean. A bit of ringing in my ears and felt tired. I am glad Sean is here if I need him and am so grateful he made these videos for my Brothers and everyone else’s sake. 🙏
This is the first video I’ve came across of someone having 95% of the same symptoms of myself. This gives me hope. It’s been almost 2 months now and I haven’t been back to work yet. It’s definitely causing a lot of anxiety and depression. But this definitely gives me hope. I’ve been following the vestibular group on Facebook and it’s helped some too. I’m definitely going to try your suggestions. Thank you so much!
Andrew Raines yeah I hear you, it’s hard and it’s going to be hard but there’s hope. There will be down days but just know it gets better. When it’s over you’ll look back and see how much you’ve grown
hi, how are you now? im suffering for 2 months now and also not back to work. i cant even go inside groceries or tall to other people for a long time
@@sadclownmadclown2303 how are you? I’ve been suffering since dec 2020. First months were hell now I feel like it may be starting all over again because I have a cold
I feel the same way as you all and I'm glad I watched this video too. I was hospitalized this past Tuesday and then sent home but these last few days have been extremely horrible. It legit came out of no where and i work a remote job so I'm struggling with that as well. Just trying to have hope. That you for sharing this. If anyone had the name of the fb group please drop it.
Thanks for posting this video.. it was excellent & very helpful & inspiring. My vertigo started 3 months ago following surgery on my leg. My leg is healing fine but i still feel woozy & as if I am falling all the time.. and I am getting tired of always grabbing for furniture, walls, doorknobs, etc whenever I try to get around the house! I will try the things you mentioned and walking outside. Thanks!
Thanks for the video. I've been like this for years. I just about managed to wash my car the other day. It totally wiped me out. I desperately need to keep faith I will be ok again one day.
Thank you for being able to articulate what I am struggling to do so. I have forwarded this to my family to help break down what I am going through. Glad you are compensating successfully.
Mac R no problem.. and yeah sometimes family/friends need to see it from someone else to truly understand. Hope you get well
I did the same he is the best
Thank you, Sean. I've been working through VN for 7 months now, and today has been a tough day, physically and emotionally. So grateful I came across this video and was reminded that I'm not alone and there is hope. Love and light.
You're not alone and it is a tough ordeal to go through. Just have to stay active, keep going as much as you think you can't and keep believing you'll get better.
@@seanpangs7131 how’s it going Sean??
@@8benzin really good! Doing normal things now
@@seanpangs7131 that’s awesome ! Do you feel closer to 100% ? Better then last videos ?
@@seanpangs7131 hey Sean what type of normal things are you doing ? Like how is the dizzy symptoms ?
I’m literally dealing with this now! Came out of no where. I was diagnosed with Vestibular Neuronitis and now almost a year later been diagnosed with Vestibular migraines because I’ve had a few episodes
Thank you for all this information! I was diagnosed with cochlear hydrops in May 2019. I have constant tinnitus, constant disequillibrium, head pressure. I feel like I'm on a boat 24/7. I get nauseous sometimes if I look at crazy patterns. I'm also going to a functional neurologist who has me doing gaze stabilization. I'm also doing some forms of neuroplasticity. One of my favorite, easy ones is to stand on one leg and brush my teeth with my non-dominant hand. Most conventional doctors have been of no help. My best advice to anyone going through a vestibular disorder is take exceptional care of yourself and there is no such thing as an idiopathic (origin unknown) disease or illness. It just means doctors don't know how to treat it. You just have to find the origin and it will be hell sometimes, but you will be back to yourself. Be your own advocate and educate yourself.
Megan Henry thank you for sharing!! Best of luck in your recovery!
Yesss youre soo right we have to be our own advocate .Dealing with all the doctors since 9 month and iam still home bound 🙄
Thank you for this Video. It gives me hope. I‘m 32 and have it since 5 months. Thankfully, It gets better week by week.
Well conveyed. Thank you so much. Informative with empathy in hope.
Thank you.. I’m doing very well these days, so it can get better :)
My story exactly!! Thank you for the video- I’ve been dealing with this for 13 months now. My story is identical to yours. I’m recovering slowly but surely. This was an encouraging video and I thank you for that! Good luck in your recovery!
Lyndsey Milligan thank you! Good luck in yours too!!
Lyndsey Milligan did u take meds
How are you feeling now?
@@seanpangs7131 hey Sean!! Do you still work ? I had to quit my work. I’m 2 months into this . You seem like a cool guy man . Thanks for you video.
@@kalvincan1270 yup been working. I was taken off work, 3 months in for about 4 months and then gradually went back. Couldn't do computer work for the longest time but mow I can
Hi Sean Great video thank you for this. I had this hit me out of the blue about 3 weeks ago, but like you mention I knew something hadn't felt right for a while, particularly with fatigue etc.
This video absolutely nails my symptoms also , after an initial diagnosis of BPVV, I am now far more reassured that this is what I have (though awaiting confirmation of diagnosis). I am under the care of my GP after an initial night in hospital when it all happened. Scariest thing I have ever had and I was convinced it was a stroke.
Thanks once again for posting this - it is hugely informative and has helped me understand the condition far better than I did.
Gets way better man!!!! Hang in there !
Thank you @@8benzin I am slowly on the mend - slower than originally I thought it would be. This has been a nightmare and one I wouldn't wish on anyone. Before this happened to me I had never even heard of VN. Thanks for posting my friend.
@@brendanloy3520 don’t worry just keep going man!!! Stay positive . How long has it been?? I woke up one day and couldn’t even put my clothes on then kept throwing up for 3 months
@@8benzin Yes been 3 months more or less to the day now. Took ill at the end of day at a site I was delivering some training at - whole room was spinning to the right and just wouldn't stop for around ten minutes. Iwas Subsequently began to vomit and didn't stop for about a week! Admitted to hospital that evening and then discharged following day. Could hardly stand up. Eventually saw my own Dr who suspected VN (hospital had diagnosed me with 'vertigo', and when I read up on it, symptoms were exactly the same. Been a long slow road back since then - balance, vision, nystagmus, oud noises, bright lights etc etc usual stuff that everyone seems to have I guess but quite depressed as well with it all. The best part of it has hearing from people on here and other blogs because you know you are not alone with it and other people have experienced exact same thing. Thanks for posting back. I wish you all the best with your recovery also.
@@brendanloy3520 hi , one question , you did tinitus , dezrelization or problems suhc as legs , arms pain ?
Iam living with vertigo for 15 years .But i had the vertigo episode this year in march and my life is upside down since than i dont have my balance back .I was in tears when i was waching this video to hear people going trough the same .Thank you sooo much for good information 👍
meyrem kalkan yeah it’s sometimes a bit of a relief that other ppl are struggling with the same stuff. It’s a tough thing to have. I hope you get better
Thanks for this it really helps ! I have been about 2 yrs into it and gradually getting better with help of you tube vids because all clinics closed in uk with COVID ! I totally understand what u said about walking in public I drive to a local park and found it so much easier because no one knew me ! I struggle walking downhill working on that !
Does the depersonalization always go away with vestabular disorders? Does it just leave on its own? I can't see a way owt
Thank you for your video. I’m having similar symptoms and this video is giving my hope.
Sorry you're going through this, but there is hope. I'm fine now and living normally
Hello to Sean or anyone reading this post. To start, after watching this video I had every single symptom (like literally every single one, my symptoms even started in April) I even did the same type of recovery the same way. Iv had this issue for almost two years now but after the last 5 months I totally recovered to about 90%. What made me recover so quickly is I stopped trying to fix the vestibular systems, but rather try and find what is causing it.
What I am about to say I really urge everyone to look into because I truly believe many people who suffer from these issues have this problem I am about to discuss.
What I found out was causing my issues was CIRS (chronic inflammatory response syndrome) you get this when your body cannot detox toxins from your body. Your body is in a constant state of inflammation and is very hard to diagnose on a MRI. For me, I learned I was living in a moldy house for a year before my symptoms ever started. Sadly no amount of therapy can fix this, but rather it is a bandaid, the only way to fix this issue is to detox your body which can take months or a year or two.
The crazy thing about CIRS is once you have your first bad flare up anything and everything will hurt you. Your body is taking in things from the environment and the foods you eat as threats. That is why some people cannot eat the foods they were able to before their issues started. CIRS can see gluten and sugar as threats and immediately flare up.
These dizzy episodes of being off balance and vertigo are done by the brain being swollen and not getting good nutrition because the blood brain barrier is so thick. Plus CIRS can give you issues of tmj which many people never notice because their jaw doesn’t click when they open. But CIRS inflames all ligaments and muscles in the body. So there is a good chance your jaw joint is inflamed and pushing on the ear causing dizziness. When this happens it makes it hard for the eyes to work since the jaw,neck,ears and eyes are all connected. That is why people have eye issues such as converging issues and an unstable gaze.
Sorry for the long post, but I believe this is something everyone should at least try and look into. CIRS is just now being talked about in terms of national coverage!
Thanks for sharing
Oh my goodness this made me cry. I’m a 33 year old man, this is the most TERRIFYING FEELING! In august 2020 it began for me - your description is PIN POINT EXACT what happened to me. An intense episode that lasted a few seconds. Then nothing for a day or so. Then another intense episode lasting a second. Then a persistent, constant, dizziness and disorientation began for months. I’d say three months of hell. Then the anxiety developed. Fear of driving, weird panic attack feeling. Like if I thought about the symptoms it was almost like they would get worse or bring upon a panic attack. Now it’s ten months later, I felt much better but now I’ve had two more intense episodes and I’m feeling the constant dizziness again. I feel like I’m at square one again. I feel so scared and lost. I’m a 33 year old man and I feel so scared now! I try to walk walk walk. Thank you for NAMING the exercises too. Gosh your video really gives me hope you really described everything I’m feeling!
Sorry you’re going through this. And yes try the exercises I listed and remember results are measured in weeks, potentially months, so keep trying. It was all a trial and error for me, so what works for one may not work for others. Good luck
Thank you so much for making this video! i have been suffering from vestibular neuritis for 3 months now. I am slowly recovering but I need to do more to help with my process
Good to hear you’re doing better. Maybe doing more is good but I learnt I had to listen to my body, sometimes I had to do less as well. All the best to you
Has your tinnitus disappeared?
Thanks so much for this video! I have literally all the same symptoms. I’m at month four ... I feel it getting slowly better :) I have hope. 🙏🏼 it’s been the worst few months of my life so far. I cry all the time... but I forced myself to get my anxiety in order. Stress makes it worse. Can’t wait to be better!
You better ?
MJ I’m the same way you are !! If you still are but I’m going through this now Sean
2 months in
Thank you so much Sean. I'm going through this right now. This was really helpful and encouraging!
no problem! I wish you all the best.. it's possible to be normal again!
Hey Helena!! I’m also going through this now !! What symptoms do you feel?
@@kalvincan1270 It was the way he described in the video. Vertigo, nausea, loss of balance, unable to focus my eyes, weakness, etc. I couldn't even walk. A nightmare. I had to stay in bed for a week, after that I started a daily routine of exercises (eyes, coordination, etc). Keep working on it, it's a tricky balance between resting and pushing yourself a little every day. A little exposure every day, a short walk around the block until you feel sick. Then going to the store, etc. It will get better. Look up "vestibular neuritis exercises", there's some info out there. Sean gives great advice too. I'm about 95% better! This channel was also very helpful: ruclips.net/channel/UCUz0RVfp31dyOJmqm1zE4aw
Good luck and feel better soon.
@@helenamaal did you quit your job too? Yes I’ve been doing the exercises and going for long walks but I still get nauseous and feel head heavy and dizzy at times
I hate his nauseous feeling a lot . you couldn’t walk the first week? What’s your daily routine now ? Hopefully you have family that’s supporting you?
@@kalvincan1270 Keep working on it, it gets better. A little more exposure every day. I still do some exercises, but I can walk, exercise, run, lie down, etc. without getting dizzy anymore. I ate small amounts of food and ginger with everything and that helped a lot with nausea. Perseverance and attitude are key. Wish you the best!
Great video! I'm going on 16 months. Went through all you described. VRT is highly recommended. Where I am the ENT offers testing and rehab. At this time I have mild vision anomolies. Such as something moving that isnt there. Hard to explain. I still get dizzy or the feeling that I want to faint. I get tired because my eyes work extra hard. One day I feel totally recovered. Then a week later I'm having problems. But I'm getting along. My life has changed in a lot of ways. I think this illness will be with me a long time to come. Best to all who are living with this very strange condition.
Mike Robinson I hear you! What a battle for sure. Glad to see you’re doing better
How r u now?
I had this exactly as you described. Two years. Recovered now. :) What hell...
CCranstry glad to hear you recovered. Did you do VRT throughout?
Bjorn Lothbrok hey add me on Instagram - s.pangs and shoot me a message. It’s easier to chat on there
hi, share your daily activities. and the things you do.
Did you have ear pain or tinnitus?
Germana Guarnaccia hi there, we all have the same problems and its really frustrating 😢
God bless you! Wish you all the best and thank you for everything you said for those sruggling.
Thank you. All the best to you!
What a great post. Thankyou 🙌👏✊️
Hey friend, just got this at a bad time :( just turned 21 and I was ready to start college up again but like you it came out of nowhere. Got out of a long term relationship and most of friends moved away, I was starting to feel strong again but then out of nowhere I got this condition and I feel in a very dark place. I hope we can all push through this and recover
Keep moving forward! Takes breaks when you need to, but keep pushing forward
@@seanpangs7131hey Sean how are you man!? How are you feeling and all? Thanks brother
34 years of this. Vestibular rehab has helped every 8 to 10 years but this time I am just not improving. Having an MRI of brain tomorrow. You have encouraged me to work harder on wye exercises. Thank you.
Good to hear from you, and yes I found that staying active is key for me
Going thru this BS right now....started with what I thought was ear or tooth infection....then went to urgent care and diagnosed me with shingles in ear around 12/31/20....been struggling with it ever since....the ENTS suck/can’t tell me what’s going on where I’m at in my illness....almost done with meds but symptoms still remain....either way....I stumbled across your vid and appreciated your story....it is very inspiring and helped me get thru a day....thank you
Hey thanks for reaching out, hopefully the symptoms don’t last as long as mine and a positive thing is that they were able to identify what’s causing it. Hopefully they can heal it sooner than later! All the best
Almost the same symptoms here - thank you for sharing with us.
Thankyou so much for sharing ive been suffering since august last year and so fedup with it i struggle every day had appointments booked but they got cancelled thru the conorvirus i will take on board what youve said and done and try those exercises out xx
Jackie Anderson no problem and I hope you start to feel better. Don’t give up on the exercises, you need to push through and keep doing them
Yea man I’m going through this now, I thought I was developing Alzheimer’s or something or just going nuts, sure enough the ent said it was a vestibular dysfunction. I have awful ringing and humming in my left ear as well. Thanks man, a little hope is really reassuring
No problem, all the best to you
Look for vitamins that help tinnitus and if you can get a hearing aid from Amazon to use at night so you can listen to a fan and focus on that. There are also good white noise pieces that lsat all night.
Milk man
Me too!!! What type symptoms do you feel??
I also got VN a Month ago. I also got the tinnitus and humming in my left ear. How are you now?
@@seanpangs7131 hey Sean how you doing man!? Feeling better and all?
Thank you for this video! I'm not going through this alone.
Thank you for sharing your story. I'm 4 months in after experiencing a vestibular episode on 9/11/2021. I've seen specialist after specialist and after a long wait I finally met with an ENT provider who diagnosed me with VN. I have a good VR therapist and was started on low dose Klonopin to address the anxiety but I think I'm starting to make some progress. Like you I use the X, broch string, do all the head movements but funny enough it was a game in Virtual Reality with a lot of visual stimuli and slight head and body movements that began to work for me. The environment still appears to jump when I walk and I still have issues with balance but I'm taking it one day at a time. I've had a few "out of the blue" vertigo episodes while driving, standing in a store and thankfully sitting on the couch but the incidents were brief. I never completely feel clear. I'm always aware that there is something a bit off with my gaze and balance and per my Dr. I may never be the same with 100% loss of vestibular functioning on one side but not being able to drive or work is just not an option for me so with hard work I hope to regain enough functioning to enjoy my life again.
Looks like you're doing the right things. I actually seen a VR simulation recently and I was thinking that it would be perfect to help with vestibular rehab. Keep going!
Thanks so much for making this video
You are an incredible man, your story speaks volumes. WOW you are so well spoken despite the physical roadblocks. You give the vestibular community a voice and a strong one at that Sean. You have a powerful and caring energy that emanates. Thank you for sharing your story and updates. There’s no doubt that you will fully recover with the habits you have developed. Man you don’t even know how much you are helping your peers with this ! Incredible Sean, incredible…
Thank you, I appreciate that. It was definitely a challenge and continuous drive to challenge myself but I feel almost 95% recovered, which really feels like 100%. All the best to you as well, and keep going! And I definitely made these videos to let people know that it's possible to get your life back. It takes time, patience and hard work, but definitely doable!
Wow, thank you for telling us your story. This sounds SO similar to what I've been feeling for about six months now. Very scary stuff.
Thank you for making this video! I have to make my own video too to help spread the word -- I had a relapse of VN earlier this year and tho it was a brutal 3 months, I recovered thankfully.
hawaiidispenser definitely spread the word and help people out! I’m glad you’re doing better :)
@hawaiidispenser glad you recovered! I'm almost at month 3 and my last lingering symptom is the walking on a trampoline although it's getting slowly better.
What helps this symptom? I've been walking like crazy so i think that's helping too.
@@alexandrawalton7616 Thank you! The trampoline walking feeling was my last lingering symptom as well. My dizziness and nausea had all gone by 1.5 months, but the trampoline lasted another 1.5 months. I added more side to side stepping, which i learned from Simply Seth on RUclips (see his video in the snow) as well as adding chair spins... but the plain truth is... I stopped all vrt after a few weeks and just walked everyday, twice a day and then one day i noticed.... Hey, no moon walk feeling! So its probably gonna happen on its own in time for you too. stay active, but try not to stress and it will come. good luck!
@@hawaiidispenser thanks so much for the reply. Yup my dizziness and nausea stopped at 1.5 months as well! I feel like I'm right there! Thanks I'll go check out seth's video 😊
Hello so walking is the exercise for this?? VRT not required? Opinion please thank you ❤️
Thank you brother. It means a lot
Hi great to hear about your awareness on your condition.
I am in the same boat.
I had an ear infection due to hay fever allergies which blocked up my ears with fluid. Obviously debilitating symptoms of dizziness which were compounded by my search for a diagnosis for 2 months which made me very anxious and stressed. In the first month I had a bit of derealisation which made me even more panicked and claustrophobic in my own body. (Fixed it by learning to accept thederealisation and move on which was hard but got it done but still dizziness symptoms were there)
This never ending cycle of stress and anxiety was still there and meant that I was still in shock for as long as I thought about it and I still had lingering cognitive symptoms of brain fog and feeling spaced out. Difficulty concentrating at work looking at a computer screen and forgetfulness.
And then I heard about PPPD…
I realised that my physical symptoms of dizziness from my vertigo had actually gone 2 weeks ago and I didn’t really realise it because apparently my brain still wanted to believe that I was meant to be dizzy. I still felt like I was dizzy and ‘not quite right’. Concentrating and fogginess.
I learned that PPPD is part anxiety driven and brain caused.
Once I learned about this (and all my tests - bloods - CT scan - eyes) I felt much better already because I knew that it was mental for me.
Naturally I am an anxious person already. I was convinced at one point that I had MS or CMT through this saga.
But once I heard about PPPD I felt relieved and I have begun Vestibular exercises (the same as you already have) and going back to my CBT which is re framing my mind and I am on a goal of reclaiming my spiritual happiness through rest, exercise, hobbies, dogs and calmness and acceptance but also challenging my self.
I realised that following my usual strategy of just pushing through at work might be not so helpful for my health but my health is more important. Feel more conscious already.
Good luck to you and your recovery.
Yeah his is great!! You have great points, and definitely I recommend everyone check out PPPD. I’ve always felt that it’s something what I had, but unfortunately no one was able (in my area) to give me the diagnosis. With that, I just kept up with exercises to change my brain to be not in that dizzy state anymore. All the best to you!
yeah, sounds about right for me. not even 2 weeks in though so its hard to say if this will stay long term. the brain fuzziness.. feels like im daydreaming but stuck in the daydream mode. The neck pain/strain. Even sitting up at my computer seems hard so i hold my head with my hand. Weird head pressure and burning feeling like I have a high fever. weird ear problems. And the fatigue and weak legs randomly showing up sometimes.. as if the dizziness and vision problems werent enough like wtf? lol. Glad you are recovering and i hope i and everyone else can
How are you doing ?
I am in third month of it and same symptoms like you.
I am aged 54 Years. Thanks for sharing it dear. It makes me confident to overcome the Vestibular Neuritis.
AWESOME video & info...THANKS Sean!!! 👍 I'm going to try some of these things asap! ❤ I've had this crap going on and getting worse for over 2 years now. I also have Crohn's and adrenal fatigue too (that is backed up by very low cortisol & dhea (anti-aging hormone) levels that I had tested. I am SO lucky! Lol.
(at least it's not cancer...?) 😉
What medication is Cerc (correct spelling or not?) please Sean?
Definitely, the exercises helped. Seems like you have fought quite the battle, I hope you find relief soon. Serc, to be honest I’m not quite sure what it actually does. I asked a dr. And he wasn’t actually sure, it helps some ppl though
Sean - I was in Grande Prairie AB when I first got symptoms. Ever since 8 months ago, I’ve been living in my parents’ home in BC dealing with symptoms and doing VRT everyday. Can’t thank you enough for your video as it was one of the first I saw months ago. Currently I’m only 30% recovered but I know there’s light.
Question - did you get bad nausea during the recovery portion? I still have it every day. Thanks, Nick
Nick! This is kindve ironic.. I’m subscribed to you and your videos helped me learn about investing when I started last year.. so first I want to thank you. Sorry you’re going through this, the nausea was pretty minimal for me throughout, I guess I kinda got used to it. But if you’re on insta, chat with me on there “s.pangs” or sean pangs. on Facebook
Hi nick how much % are you recovered now after 14month ?
Im in month 12 had few relapses like this week and 40% of the time nausea as well..
@@leviackermann188 that sucks. I’m about 65% better now!
@@NickPeitsch did you have some relapse like feeling ,, omg not again,,..
THANK YOU SEAN JUST FOUND YOUR VIDEO BECAUSE I ALSO COULDN'T FOCUS ON SMALL PRINT OR DEAL WITH LIGHT ~ THIS JUST BEGAN 2 WEEKS AGO AFTER 1ST SHOT OF VACCINE FOR COVID JUST FELT SLIGHT DIZZINESS BUT THOUGHT POLLEN OF SPRING WHILE WALKING MY PUP WAS CAUSE THEN PROGRESSED TO NO BALANCE AT ALL TO WALK WITHOUT LOOKING COMPLETELY DRUNK AND THE NAUSEOUSNESS WHEN TRYING TO FOCUS EYES YOU ARE A BLESSING AND WILL FIND YOUR OTHER VIDEOS
Sorry this happened to you. Definitely seek out medical professionals if this is still fairly new. All the best to you
Thank you so much. Hope you g e t welll. I live with same difficulties
Thank you for this video, youre so brave! I recommend the book: "Rock Steady".
Thanks for sharing I’ve been dealing with dizziness since last October .
Everything you mentioned here. I felt it. It's really conforting to hear same story as myslef.
Are you still experiencing issues?
@@okaygames2245 yes, I thought I was at 80% recovery. Then a couple of days ago. I felt the dizziness again. But not as scary like before
@@NkoDmtryPoletv hey how do you feel now ? Hope good how long did it takes (month)
@@leviackermann188 hi there Levi, the first time I experienced it back in 2019 it took months like almost a year before I recovered. Then this year it came back but was gone after 3 months. Its5 getting better.
@@leviackermann188 do you experience one now? Im hoping you'll get better. It's really hard. It was the worst feeling ever.
Great video. Bless you. Mine just hit out of nowhere. Was feeling normal before. Just collapsed. No balance, couldn’t walk, see, dizziness, eyes were going from side to side, hated bright light, noises and constant vomiting 🤮 . Went to A&E and then sent to Acute stroke unit.. They thought I’d had a stroke but mri showed I hadn’t. Diagnosed with VN. It’s a horrific condition no one can explain. It’s been 10 weeks. Can actually watch tv now. Before it was too much stimulus. It’s got better but I’m still clumsy, fine motor skills are effected. Eyes still not focusing as much as before. I’m sooooooo sick of this condition now. Can’t drive. Can’t be a passenger either. I love figure skating and ballet and I’ve tried to go back but I can’t. Bless you xx
Thank you so much, I just came across your video. This is worst that anyone could go through. I have had this for 7 years. I was misdiagnosed with vertigo but was never told what to do just take mesci!ine. A year ago I made an appointment with any doctor he brought in a specialist to th some test he reported that I had vestibular disorder. I was referred to a neurologist to have a brain scan to make sure I did not have a tumer. I was sent to see a vestibular therapist, which I have been seeing since February, twice a week. Finally I got better systems went away not to long ago early August for 12 days I had a tromatic experience with one of my c!ose friends, and since I also suffer with anxiety it came back , my last day of therapy is Monday August 31 I don't have all your symptoms I think if I did I would have lost my mind but I do have the lightheadedness which affects my stomach weakness in my legs my eyes 👀 hurt I am not able to participate in family outings or friend's it's awful. family and friends don't get it. You become so frustrated and alone. If I was offered 50 million dollars to stay the way that I am I would give it all up if the choice was don't take the money and you will be granted your normal healthy life, I would choose my healthy life and give up the money. Just want to go back to normal.
Judith Ocasio hi thanks for reaching out. Seems like you’ve been through a lot, but seems like you’re finally finding your way. Definitely up and downs as you know, but even if your vestibular therapy coming to an end, id say still keep it up and staying active. That was very important for me... it’s hard. Ppl don’t understand it unless they’ve been through it
Just wanted to say this is a great video. I have been dealing with this for about 10 months and I'd say I'm about 90% better. As you mentioned, my remaining symptom is some eye strain that pops up and a little head pressure - I suspect this too is due to an over-reliance on vision and I should pick back up some of the eyes-closed balance VRT exercises I was doing more regularly early on.
Glad to hear from you and thanks for reaching out! Glad to hear you’re on your way too! I’m trying to figure out the whole eye strain and I’m just guessing with the whole “do things with my eyes closed” but I think it’s helping. I just did a bunch of computer work for a few hours and it threw my whole vestibular system off for a couple hours (but better than the whole day I guess). All the best to you
@@seanpangs7131 Regarding your eye strain, is your eye on the side of your affected ear where you feel the strain? That's the case for me. Eyes-closed balance work seems to help. For me wearing glasses takes away that eye strain too (which sounds obvious, but I don't wear contacts and I used to rarely wear glasses, except when I drive, before all of this started). Anyway, I have a blue light filter on my computer screen, which could be worth trying if your computer screen bothers you. I also put one on my phone. I'm not sure if these things are doing anything, but I figure why not just have them on there. My right eye seems like the last lingering symptom, which in all honestly I'd rather be dealing with than all of the symptoms that have come and gone over the last 11 months.
Sarah Lucas would you happen to have Twitter? I’m in a contest and if so could you like this pic? twitter.com/UpperDeckHockey/status/1235629037248110592
how do you feel now?
@@sarahlucas2557 Hey Sarah, have you figured out anything for the eye strain yet? I have just ordered an eye massager from amazon as some else said thats been helping them.
Thanks so much for this helpful video - very positive! When you say you looked in the mirror and it felt weird - what do you mean? I felt something similar but couldn't really explain it! Also, are you back at work now? Hope you're still feeling better!
RM B sorry just seeing this.. I just looked ill, my skin colour was off and it just looked so off
when i look in the mirror my eyes cant even fix like my vision is distorted but its not
Thank you SO much for sharing!!! I am just beginning VRT. I seem to currently have the worst problems when driving. :-(
K. Duran it gets better! Keep at it
It sounds like you had a rough time, it's something no one can understand until they go through it, people say you could be going through a depression and it's extremely frustrating to constantly justify and explain yourself, it's happened to me 10 years ago and going on again, hopefully it will pass
Waleed Maharajh I hope it passes too man! All the best. And yeah it’s a definite struggle
NINE YEARS HERE. First went to my primary after waking with vertigo, headpain and feeling "out of it". The PA gave me prednisone and said it was BPV. Referred me to an ENT, she tried the Epley maneuver and said "NO, see an eye doctor." Saw the eye doc and he sent me for several blood tests ruling out Lyme Disease, Mythenis Gravis etc. Sent for MRI for possible stroke. Came back negative. Went to Walk-in doctor on a weekend because I was terrified, now having the head fog, spatial instability, strabismus, staggering, confusion with reading, ear buzzing/sensitivity and double vision . He said I most likely had, MS and said go to a specialist. Made an appointment with neurologist, but had followup with the eye doctor. He referred then me to a surgeon for possible Arteritis, but since I had a upcoming appointment with a neurologist I hesitated after seeing this 80+ surgeon with shakey hands, decided to see the neurologist first before agreeing to temple artery surgery. After seeing the neurologist, I had another MRI with contrast, which was "normal" but showed some lesions which he attributed it to migraines. The neurologist put me through an EMG nerve test. He basically said migraine, which made no sense to me. (I did have a history of migraine with visual symptoms, but very infrequent). But constant migraine for months on end with insane symptoms?
The eye doctor did extensive testing, but said I probably had a 6th nerve palsy from diabetes affecting a nerve in my left eye. That's almost the end. Now all the doctors are retired.
Recently, went for my annual eye check (he had my previous records from his partner). He couldnt believe prisms weren't tried for my double vision. Now waiting for them to come in. NINE FREAKING YEARS LATER. I STILL HAVE DOUBLE VISION & OCCASIONAL UNSTEADINESS. I literally felt crazy over the last 9 years. Thought I literally had Multiple Sclerosis... ( The night before the start of this nightmare, I had taken a large dose of Nyquil to sleep. A week before that, I was hit in the eye socket with my hatchback almost knocking me out... always wondered if either injured my inner ear and eye nerve.)
I found that cutting out all sugar, wheat, dairy and histamine foods made my symptoms feel a lot better, especially after dry fasting and only eating after 6pm fast tracked my wellness
I'm 3-1/2 weeks into this right now. And it doesn't let up. Can't walk, work, or (obviously) drive. Thanks for some hope that it'll get better.
Thank you for sharing!!! My VN began May of 2019.Went to urgent, ER,ect.I was getting improperly diagnosed intil I was seen at nerologyI was put on Prednisone for 12 days, I started to feel alittle better.I have had alot of theraphy. The anxiety is the hardest for me now,Im fine going into stores& driving only if somone is with me, going myself the anxiety is really bad.
Bertha Emerson the anxiety gets better.. confidence is a big thing. One you start to feel better, balance etc, the more confident in public places, the anxiety gets less and less.
@@seanpangs7131 Thank you!!!
i was diagnosed to day and this is so helpful.
I’m glad.. it gets better. Take care!
I certainly can relate to your VN symptoms. My problems started about three years ago with vertigo. I had to cancel my entire vacation plans bc I couldn’t walk straight and had to sit down for fear of falling. The thing is I didn’t get sick with any virus beforehand. Did you experience dizziness as you woke up in the morning. It feels like you’re spinning. I feel pressure on the side that’s most affected and have loss of hearing. Sometimes this condition makes me depressed but I’m still hopeful that I will recover. I will be getting an MRI to rule out anything serious.
Thank you. Just... thank you! I recently was diagnosed with vestibular hypofunction and as you talked there were so many things that were paralleling my experiences thus far and it was really encouraging since I'm still very much living day to day. I'm from just outside Edmonton myself and was just curious the ENT you went to. Also, you mentioned flying and having issues after that... do you think flying triggered something? Is that a concern for those of us dealing with a vestibular disorder? Your videos are really good. Please keep on sharing your journey!
Lori! It’s always nice to hear from fellow Albertans/Canadians.. sorry you’re going through this. To be honest, I can’t remember his name. It was a referral that took a few months to get into, and it was in a plaza downtown... but he almost said there wasn’t anything wrong with my ears- but then why were my ears sensitive, I felt the weather change etc... flying, I don’t know if it caused it. I came back from Vancouver and then maybe a few days later it kinda hit me, I’m not sure. But I’ve taken a trip to Europe since then and planes multiple times and it didn’t bother me or make it worse. Any other questions, reach out on Insta s.pangs
@@seanpangs7131 ...thank you for replying, I was looking into one downtown as well... it really does help knowing you've flown since recovery and haven't had it trigger... I like traveling and since I have weird things going on in my ear as well with this I was really concerned about the pressure changes impacting things somehow... I was trying to accept that when/if I get back to 'normal' I wouldn't be willing to risk it anymore, but that gives me some assurances it could be ok. Hope things keep improving that last percentage for you or at least keep on stable :)
@@lorih4291 absolutely.. I was afraid too that I wouldn’t be able to fly. I did try these things called “war planes”.. got them off amazon. Check them out, relatively inexpensive and they’re for flying. Good luck to you!
@@seanpangs7131 Thanks Sean, I will check those out
Thanks very encouraging, I am still undertaking my condition.John in South West Wales UK.
Very informative i'm lookng foward to being there I do not have this but he symptos are very similar it's great to reivew i toally appreicate the hard work at doing this and editing totally a pro
15:00 so true. Shame we need to 'fake' a physical injury so strangers don't assume and judge and yep... even criticise. Yup that happens too
Thank you so much for sharing your experience x I wish you all the best ❤ 💙
I was lucky ro be referred to a fantastic neuro physiotherapy who taught me most of the exercises you have discussed.
It is a slow and uncomfortable recovery but symptoms will ease with work x
Thank you. I'm devastated. 15 days ago my life was turned upside down.
It gets better, and ppl get better at different rates (better than me)
Gosh, i listened to your story and It was like i was talking, exactly the same symptoms only the anxiety that you feel in trying to understand what is happening to you is almost as bad as the symptoms. I started off with tinnitus and out of the blue i just collapsed. What i can only describe as being on a roller-coaster and a roundabout at the same time for 3 months affected me to greatly, the perception that you are drunk with the nausea is something that i would not wish on anybody. 10 months later and I still have some spacial awareness problems especially with a sudden head movement but there is hope for recovery.
Sorry this happened to you. Yeah you described it exactly.. there certainly is hope, im practically symptom free and doing absolutely everything I used to do before
Hello @woodhamshrimper. Has your tinnitus disappeared?
@@omarbilbao7460
I went 10 months were I felt about 95% of my former self and then the tinnitus progressed to the point I new was affecting my hearing. Starting getting vertigo again in September 2022, which lasted about 3 weeks although I still get the motion of moving forward sometimes. I have been diagnosed with Ménière’s disease and vestibular neuritis( migraines) very debilitating .
Thank you so much for this video. I apprecuate your willingness to share your experience. I dont know what I have, I think its PPPD and not Vestibular Neuritis, but thank you for not making be feel alone.
Dean Chirieleison you’re not alone! It’s remarkable how many ppl have reached out, and how many ppl are suffering from this. I feel there can be so many diagnosis’ but just doing the proper exercises, treating your body right and you’ll get there
@@seanpangs7131 thank you. Can you tell me more about your practices ? I saw in the video you do x 1 both up and down. How many times a day did you find was effective for recovery?
Dean Chirieleison hard to say.. when I first started I did it morning, mid day and at night. I still do them Morning and night and then sometimes throughout the day if I’m going out “just for good measure” type of thing
Hey dude thanks I lot for this video I really appreciate it! When you started VRT did you notice symptoms getting worse in the beginnging before they got better?
Digitalbulldog ogas no prob and they definitely did get worse before getting better. I always tell people that it’s a marathon, not a sprint.