Low Dose Naltrexone (LDN) Changed My Life!
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- Опубликовано: 2 окт 2024
- It has now been 6 months since I started low dose naltrexone (LDN), and I am so thankful for how it has impacted my life. My adrenal insufficiency is now more stable/under control, and I have also seen some small benefits with my fatigue. Some days are better than others, but I'm really glad to not be where I was 6 months ago.
Learn more about LDN here: ldnresearchtru... ❤️️
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#lowdosenaltrexone #chronicillness #lymedisease
One of my docs told me that it was impossible for me to have both Lyme and EDS. He’s no longer my doctor.
Bartonella maybe? Look into it’s interactions with collagen
Glad you knew to leave!
@@kristenjohansson3084 you people and your arm chair junk science
Well done 👍
Will this help my wife's nasal cyst me and my wife are nervous about the side effects
Thank you for your video .💞
I'm taking LDN since September 2020. Brainfog and POTS went away. Energy ist better. The pains are VERY slowly getting better.
Love from Austria 🇱🇻
Servus, darf ich fragen an wen Du Dich damit gewandt hast? Einfach zum Hausarzt? Grüße aus Wien ;)
@@dekkard Suki dot com sells it globally, I got from there
Im not understanding.. Energy IS or ISNT better? Thank you.
@@cryptochainbreaker6396 ist is IS in German
How r u now
It’s also important to make lifestyle changes while on LDN and not rely on it entirely. Diet, exercise, and self care are a must.
For me LDN effect was immediate but I was also doing many other things that I think at that point only LDN could address so it helped tremendously.
Has it helped muscle pain I think most of us have Asperger's hypomobility with this albeit undiagnosed mostly
Which did it help with u immediately and how much did u start with?
@@jennifersalazar6837 I've been in it ,6 weeks still got pain
So far it has helped me immediately.
Also make sure you’re not living or working in a water damaged building.
I used to take LDN and when I had to change Drs due to her no longer being in network with my insurance my new Dr refused to refill it. Said it was dangerous long term. But, I can honestly say I never felt better than what I did when I was taking it. I have an appointment with the Dr that prescribed it before and see if I can get back on it. I have an auto immune disorder and live in constant pain due to inflammation. That helped tremendously with my pain and inflammation. Also, I lost about 20 pounds without trying. She had told me that was a “good” side effect if you’re overweight. I’ve finally decided I’m willing to pay out of pocket to get back on it.
How r u
No Dr. should deny the help! Good luck
this has helped me recently with CFS/ME. normally, i struggle so much with waking up. LDN lets me get up and stay alert.
So glad to hear that!
Dose?
I'm on EDS spectrum and it led to lyme and chronic infections. I was about to try LDN but went with reiki, but I'm thinking that LDN probably would have made a huge impact too. In addition to reiki I do lots of supplements and a raw vegetable heavy Mediterranean diet it is absolutely changing my life I was bed bound and having near death experiences and now I'm dancing and back to daily activities.
The one who found LDN I want to meet him/her and fall on my knees and say thank you.
Totally agree ❤️
@@HealingWithRachael and those who destroyed us with f vaccines need to hang on a string of piano
How r u
Dr. Bernard Binari who has passed away. I believe Dr.Ian Zagon is sometimes falsely credited as having made the discovery.
Thank you young lady for this information. I'm a great grandma and got fibromyalgia at age 30. Hopefully my Dr. will help me get this drug
Doctor today told me this is only for alcohol abuse and he isn't prescribing me. Not ever seeing him again.
Keep hope and switch drs. I was told the same thing and I just got a new dr and he listened to me and looked it up and prescribed it to me
I was told the same thing. I googled online docs and found a website that will evaluate you via questionnaire and prescribe an rx…then send it to you!
@@Djk8263 what website is that
@@jeremycoscino6009
Ageless
Rx
My pain specialist gave me a prescription but I had to pay out of pocket $50 bc I had to get it from a compound pharmacy. It’s only been a week and I’m still nauseous. I was warned by the pharmacist about others having vivid dreams. Praying for everyone’s healing process.
I Take LDN for my Hashimoto’s. I take 4mg daily. It has changed my life!
I have Hashimoto’s and adrenal dysfunction. How long were you on it before you felt better?
glad to hear! did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
How long did it take you to feel better?
Very helpful thanks. Starting now with 1mg. I have HEDS. Love to chat more about that
Isn't it strange that most doctors don't know about naltrexone 🤔
Story of my life. A lot of doctors don't know about LDN, I went to the ER once and the nurse suggested that I was under treatment for substance abuse.
I have long covid for 2 years now.... I have chronic fatigue, brain fog, memory loss, skin rashes, severe chest pain etc..... I have Dr appointment this week and I hope I can get my Dr to prescribe LDN for me.... What dosage size dosage do you take? Thank you for the information......
Did your doctor prescribed it?
@@TrendyNewsByRajDubey Yes, I've been taking it for over 5 weeks now... 5 mgs LDN..... I can't say that I feel any different but I know it will take more time to see potential positive results..... 😀
Thanks so much for sharing your experience with this. I have never heard of it and looked at one of the links you posted and was amazed at all the different conditions listed on there that it could help people with - it's incredible! I am so glad it is helping you! I am also so sorry to hear where you were at your worst and everything you have gone through to get to where you are now. You are working so hard and it's paying off. I hope things continue to improve for you. Thanks again for sharing your story with us
Thank you so much!! ❤️️ It really is amazing how many conditions its been known to help with. I hope they continue to research and learn more about it so more people can benefit from it!
@@HealingWithRachael someone also gived me this ldn but after some weeks building it up to 4.5mg i felt the effect was going away?
I hope you continue to improve. I have been taking ldn sublingually for 3 weeks now. How long did it take to really notice a change in your overall health and wellbeing?
How r u
I found out about LDN while I was looking for fibro, lyme disease treatments being desperate. My doctor prescribed it and I'm waiting for the RX to be filled. I'm so glad to hear it has helped you, gives me hope.
Good luck with everything! Ive heard you can herx on it or flare with lyme especially if you start too high but I’m sure you probably already know that! 💚 I hope it helps!
Please post your updates.
Hope it’s a good change!
How r u
من در ایران زندگی میکنم و الان ۲ ماه هست مصرف نالترکسون رو شروع کردم و این دارو به نظر من به هر کسی که به هر چیزی وسواس دارد کار میدهد.
خداروشکر من الان خوبم و زندگیم تغییر کرده است.
👍
LDN completely changed my life. My rheumatologist prescribed me this, I have high inflammation and positive ana speckled bloodwork but don't cone back positive for lupus or RA. LDN has given me sooo many more good days than bad and am able to live a way normal life. I've had no negative side effects so far besides insomnia so i was put back on a low dose sleep medication.
Same here, I take 4.5, compound it myself. It's the best drug ever. I have autoimmune, tick disease (Alpha Gal Syndrome) which brought on joint pain (allergic to all NSAIDS) and ME/CFS. It's made me feel normal again. I've been on it for about 4 months.
That's amazing Mariah! Thanks for sharing!
@@wagwag630 that's awesome, how long did it take, I'm on 2 months and it feel like I'm detoxing. A few really good normal feeling days with energy and clear brain which have been a tease because the rest of the time I'm still sick.
@@someoneusa It's taken about 7 months and I am still improving.
@@someoneusa were you succeeded with it?
Watching my favourite inspiration makes my day expecially when she is educating people
You're so sweet, thank you Amy!
Hi Rachael. I received my giraffe from Etsy, with your beautiful embroidery. Thank you. You are very talented. As to this current video, it sounds like your journey is taking a positive up-turn. Thank God for that. Keep fighting the good fight. 🌹🌹🌹🙏🙏🙏😇😇😇
I'm so glad to hear you like your giraffe! Thank you so much!
Where did you get the gel form of the LDN?
Yay! Today I found a doc who has no problems prescribing LDN for M. E./CFS. Before that no-one would.
I've waited 10 years for this! 😁
I'll be getting it this evening (the pharmicist here delivers for free).
I'll update and let you know if it helps!
Even if it doesn't - surely it is worth a try. 🎉
Hoping all the best for you!!
Wie geht es Dir mit der Einnahme ?
@@LissBraunweiß nicht wie es ihr geht aber ich nehme es schon 4 Jahre ein für Hashimoto. Es wird in der City Apotheke in Göttingen hergestellt. Mir hilft es gut und war fast direkt merkbar. Im Serum bereits nach 4 Wochen senkende Antikörperwerte. Ich nehme meistens nür 0.5 mg ein.
I'm on LDN with Fibro, likely hEDS, POTS, likely MCAS, etc. Biggest thing I notice with LDN is it significantly improves my pain. I t makes me dizzy so I take it before bed. Intense dreams stopped after a couple weeks.
I’ve just started the process of getting a prescription for LDN! I have EDS/POTS/ME and really hope it gives some relief.
I hope it goes well, Ellie!
Did you start
I have chronic back pain and chronic fatigue syndrome. I’ve had both for 24 years. I’m going to talk to my doctor. I’ll be in touch. Thank you.
Wishing you all the best!
I ordered contrave cuz my MD said no
@@longislandbirria8157 doesn’t it also require a prescription?
How u now
I’ve been on it for 9 years. Never coming off.
❤️❤️
What dosage did you take?
@@IlIKRATOSIlI normal is 4.5 mg
May I ask why are you on it?
@@kseniyaalive3772 I’m on for pots, me/cfs, mcas, and a hundred other things but those are why I started.
Also try cycling if possible. After a few months every day you will notice a big improvement. I also cut out all sugar. There’s a great book called “How I Cured My Arthritis” which has a lot of good info on autoimmune diseases.
What type of arthritis?
I thought this medication was used to treat addictions. My doctor wants to prescribe me for a food addiction I also have A.I.
It is! With lower doses it is used to treat many chronic conditions. :)
I have been on it for 3 months now. I started at .5 and added the same weekly. I really noticed pain reduction in my back at around 4 and am at 4.5 now. It seems to be getting better daily. I plan to stay at 4.5 as that is the recommended dose. I notice if I take it an hour prior to sleep there is less dreams. Good luck. Definitely a wonderful drug. I feel very clear headed and rested, more energy and the runners high affect is fantastic.
You are doing good. It was about 3 months on LDN before I felt significant positive effects. I also settled at 4.5 mgs. And now I have been on LDN for an incredible 10 years now. And LDN has never failed me.
All LDN does is fix your Immune System. Normalizes it from a state of disease and non-function. And the way you know it is working is you stop getting sick. Before starting LDN I was getting sick all the time. Colds and illnesses all the time. Now on LDN....I can't even remember the last time I had a cold. It has been quite a few years. Pretty hard to get sick on LDN -- my experience.
In 2009 I had a Colonoscopy. It was bad -- 9 polyps as I recall. Started LDN in March 2012. In September 2014 I had a 2nd follow-up Colonoscopy. They found NOTHING. Could not believe it. Absolutely sure it was the LDN that so improved me. To me, LDN is the main reason I am still above ground and walking the Earth still.
To me...everybody past the age of 48 or so should be on LDN. Think about all the pain and suffering it could prevent. But unfortunately, It is never going to happen. Mainstream Medicine and BigPharma are still doing their best to prevent wide-spread knowledge and use of LDN. They just view LDN as "Bad for Business." And for all that LDN can do for $1 per dose, it really would severely impact Mainstream Medicine profits. I am so thankful I learned about LDN when I did. Saved my life for sure.
did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
@@AlexSelf-Help No, not any sexual side-effects for me. Am almost 70 years old and still have pretty good interest in sex still. Just can't function as when I was 20 of course.
@@PatrickOCnMD thanks for quick reply, and glad it didn’t affect you anyhow negatively. whilst the mechanism - blocking opiate receptors, obviously doesn’t differ from person to person, it seems not to affect everyone in the same way. But to me it makes sense, as blocking opiate receptors is related to endorphins, (ChatGPT) and LDN is used as an anti-addiction drug for all sorts of ‚excessive pleasures‘.
Thanks for your encouraging report Rachael, I too have battled Lyme, in remission we think and a host of other auto immunes. I was Dx'd w adrenal insufficiency around 11 yrs ago and was put on Cortef and have been on it for all this time. About a year ago I was DX'd w osteopenia which is the warning for Osteoperosis. My Dr thinks it's from the corticosteroid even though it's low dose and I was told it would not harm me. Well I feel it has. I eat nutrient dense foods and should not be in this shape at 53. I also feel it damaged my renal pathways. So I have been weaning off for about 6 months and have gone down from 20 mgs per day to 2 mgs per day which is amazing but the pain an fatigue is ...well...you know. My new Dr wants me to go on Naltrexone and gave me super low dose Trokes but like you I hyper react to EVERYTHING, so I have had it for a month and have been afraid to take them. I too am researching everything to be sure I feel good about taking it. So I may have more questions for you later but is it something you can wean off of later in time? Thanks so much! Sue
Hi Sue, yes, be careful with it. I am like you super sensitive and reacted badly to LDN ingesting. Vomiting and nausea for 4 weeks, only after 1 dose. I will be taking to my doctor see if I can get compounding cream versus taking through digestive tract.
Thank you for this information. I am starting LDN in one month for RA, Chron’s and chronic pain and inflammation. None of the 5 RA drugs I have taken have worked, over the past 6 years; most of them caused me unbearable side effects, even worsened my RA to the extreme (using Humira for a year). I’m starting LDN at 1.5. I currently take L-Theanine and Melatonin for sleep and have a wonderfully restful sleep.
Update, I won’t be starting the LNR. Due to other circumstances, Ive just started a difference biologic.
You should do Dr Brooke Goldners goodbye autoimmune protocol. Life changing
The worst I ever felt in my healing was being vegan 😢😅
I started using a liquid version of LDN (preservative free). A syringe is used to get it out of the bottle. It is a 4.5mg strength, but I used a little amount & slowly titrated it up. If I got any bad vivid dreams I would reduce the quantity. It took a while to get results. But they were great. Now I have titrated it down. That is the new train of thought. It works. I woman in England (MS pt) said it took 2 years before she could be wheelchair free. Dr Bihari (now deceased) was responsible for figuring out the benefits of it.
How u now
I have been ill for 30 years, the first 5 completely confined to a wheelchair. I've spent tens of thousands in different supplements trying to 'fix' myself hecause my HMO wouldn't. I saw a new doctor yesterday and it was the first time anyone ever mentioned LDN to me. He told me to go home and read about it. 🙌 I understand having a body that overreacts to everything. May I ask how often you have increased your dosage?
I just got ldn prescribed for long haul covid and chronic fatigue syndrome, brain fog, I nearly died of covid last year and suffered an ischemic stroke from the covid. I was on life support for 16 days etc. I'm excited to try this since I'm at such a low point in life quality of life wise. I'm very scared to take my first dose bc I have such bad panic attacks. It's for 1mg. Is side affects bad for this medicine? So nervous Thank you for your story and hope.
How r u doing on it?
No side effects except insomnia…I m also on it due to long Covid, took last dosage 5pm but can’t sleep
Did you people diagnosed with long Covid also have the covid jabs?
@@SnailWhales no vaxxed
@@SnailWhales You can get longhaul from the virus or jab . Me and my family have been long hauling since 2020 and we are all unvaxxed
I recently saw a video by a doctor that uses LDN a lot in his clinical practice, and he basically said there's no magic to the 4.5 mg dose. It just happens to be kind of in the middle of the range. Based on all I've seen it is good advice to start out at a lower dose. The reason to increase is to get more benefit, but if it starts to cause harm, go back down to the previous dose. I've seen people say they are "cured" on 1.5 mg, but they're still talking about wanting to get up to the 4.5. Why? No need.
There's a Dr Younger that wants to study dextronaltrexone which is a form where you might be able to take higher doses without the side effects. This will be for people who seem to need a higher dose, but can't tolerate it.
Thanks la for the video. Did you notice any sexual side effects, like low libido/weak orgasms or just little pleasure? Heard it blocks endorphins, so it would make sense ..
I have read that taking the liquid form allows much slower and more consistently accurate titration up or down.
For example, 1.0 mg, then 1.1 mg, with the change every other day versus daily.
If you have low dopamine naturally this drug is not for you! Are you getting paid for putting out this marketing
Thank you so much for sharing 😀
My doc here in Australia has recommended this to me for Interstitial cystitis/ME/Fibro/Endometriosis. I'm nervous about insomnia side effects. I already have terrible light broken sleep and nightmares.
I hope it goes as well as possible for you, Kendall! ❤️
It's ok to experiment with taking it at different times of day, even though bed time is recommended.
How r u
Hi, I am new to this channel and read your post. I was diagnosed with interstitial cystitis fibromyalgia Severe TMJ many many years ago. I am wondering how the LDN helped you. I gave up on Dr’s a while back and I wasn’t even aware they were giving this I read it could be used but my neurologist has not heard of it being used for fibromyalgia. I also have trigeminal neuralgia from the surgery to fix the TMJ that’s actually the worst pain of all. Anyway I would love to hear your response with the IC fibromyalgia etc. thank you so much
@Emma Brent Hi thanks for replying I’m curious what kind of face pain you have? If you can tell me I’d appreciate it and what kind of diet help to reduce the pain thanks so much.
So happy to hear of your LDN therapy and that it is working for you. And it should work even better for you the longer you are staying on it.
Only thing I would recommend is that you do whatever you can to switch to nighttime dosing. LDN works by significantly increasing the number of Endorphin hormones (as much as a 3X increase). While you are getting for sure benefits taking it in the AM. You will get even greater benefits by taking it at night -- usually between 10 - 11 PM. That is because your body produces MOST of the Endorphin hormones (through the Brain's Pituitary Gland) that support your Immune System during the Overnight hours (1-5 AM) per the Circadium Rythm. So talking LDN between 10 - 11 PM will cause you to get the greatest BOOST in Endorphins from the medication. Even if you have to use Sleep Meds to take LDN at night---there should be no problem. Not aware of any conflict with taking LDN with sleep meds.
At any rate, I have been taking LDN now for over an incredible 10 years now. LDN is without doubt my MOST important medication. I truly believe I would not live very long if I were ever to go off it. I take it for my Hashimot's autoimmune disorder. And like you -- I was extremely sick to the point of being nonfunctional before being able to get on my LDN medicastion.
I am also a patient advocate for LDN. Not as active as I used to be. Got frustrated because so many Doctors still refuse to accept LDN and prescribe it. The main problem with LDN is that it is still not supported very much at all by Mainstream Doctors who are generally married at the hip to only very expensive Big Pharma medicines that mostly don't work at all in comparison to LDN which does. The other thing many doctors do not like about LDN is that is very cheap. Only about a $1 per dose generally. A cheap dollar per day drug like LDN simply gets easily dismissed by a majority of Doctors. Unfortunately.
Finally, I did put out my own RUclips advocacy video for LDN a few years ago. I think it is certainly one of the best things I have ever done and I still get steady views from people interested in LDN. Here is a link to it if interested in my experiences with LDN.
ruclips.net/video/w8nylF-uGvQ/видео.html
If you take LDN at night, you might have sleep issues. I just woke up 1am CET and took 1mg at 5pm, so even that time in between was not sufficient, can not sleep, slight tachycardia, and just awake now
@@AlexSelf-Help Sleep issues are fairly common when initially starting LDN therapy. But they generally go away. And if they persist, you can take sleep meds on LDN. There is no conflict that I know of.
@@PatrickOCnMD just strange why LDN increases pulse…I mean it’s supposed to regulate immunsystem on micro dose. I m on 3mg, not sure why body readers with slight tachycardia
@John P OConnell: Hi again, I quit LDN after 3 weeks, due to sexual side effects like weak orgasms/no joy, and much less sexual interest, like I never felt before. Did you have that too, is that normal, obviously LDN blocks opiate/joy receptors, which is why it s also used for getting people of alcohol and other pleasures such as shopping addiction etc., but concerned this is now permanent?! Any advice! Would appreciate a lot, as this is scary... btw. I read also LDN messes with prolacting, which explains why I m no longer tired after climax, which sounds good for my wife, but the issue is I don't have any joyful intimate feelings. (maybe 20%) Thank you!
I had to switch it to morning. I got awful insomnia when I take it before bed. Much better now. Everyone is different.
Can you explain more about the adrenal issue? Was it like adrenaline rushes?
Thanks for the great information. I have POTS. Have you found that LDN helps crashes? I have terrible Exercise Intolerance and really need help.
So pleased for you! 😀...I am in the UK and going to ask my doctor if I can try it ( not sure if he will say yes though) ..Can I ask which brand you take? Also I worry about the fillers...( I have Fibromyalgia) ...hate being in pain all the time 😣xxx
I’m also in the U.K.. I take the liquid form and it’s fantastic without heavy fillers. Did you have any luck with your Dr? Best wishes 😊
@@PandaA-cv3mm how r u now
How r u now
@@PandaA-cv3mmHow did you convince your GP to prescribe it?
Young lady you have
gave the best video on ldn I have seen yet thankyóu
Their are many that also have immediate results 🌻
Oh please let that be me!! 🙏🙏🙏
I am one of those. After 1.6 years of long covid and a diagnosis of lupus I began LDN 5 days ago. I got IMMEDIATE relief with no side effects. I'm incredibly lucky and so greatful to finally be able to get back to work and get my life back
Have you tried CBD Oil for the chronic Pain?
CBD and marijuana complement LDN for me they both help with pain and anxiety
Has anyone taken LDN and then stopped? It is hard to come off of if necessary? I’ve had trouble with other drugs with that in the past! 🙏🏼❤️Tia.
I don’t take it anymore :)
Started LDN 4 days ago, no relief yet but praying 🙏
any update?
@tiffdate1 The end of the first week It helped tremendously with fatigue but I also had terrible insomnia. The 2nd week I had a flare up and inflammation was bad. The 3rd week insomnia went away, fatigue was much less and my chest pain stopped....but I noticed weakness in my legs and some blurry vision issues.
I'm not sure what to attribute to the medication and what is maybe just part of the autoimmune issues I'm dealing with and the CFS. Overall, at this point I think it's maybe too early to give it 100% support but I will say I think just what it's done for fatigue and my chest pain outweighs the side effects so far.
I started 1.0mg I was on pain medication for terrible fscial nerve pain from a trauma. I quit that for health reasons. Not able to take serotonin medication, I just need help healing my neurotransmitters. I found a great medical team that new about LDN. 1.5mg seemed too much but did help my pain. I am going to .05 and later go up. I am on 4th day. I've had nausea abdominal pain and headache. & agitation. But it is helping pain, cravings for oxycodone. I was able to accomplish tasks... so hoping this issue the answer for repair of dopamine.
Hello Rachael, I hope you see this. Here in Denmark the professor in chronic pain i talked to, told me to use the LDN first thing in the morning, and not at night. Because it would often interfere with sleep. There isnt a big difference in overall effects. This is an old post so i hope you have found this out already
Thank you for sharing! I actually have always taken in first thing in the morning :)
@@HealingWithRachael oh nice, is it working just as good today
Agreed. Strange dreams. I take 4.5 at night.
My Dr said take at night but I saw side effects were insomnia so I’m in the morning. Took the first time at night and got 4 hrs of sleep and the sleep deprivation triggered my Hashimoto flare up. So I am taking my 1.5mg for the flare ups and fatigue.I think it will help!
What a lovely and hard working spirit. Very best to you.
I just found this video! I am looking to start LDN and not many videos explain how to start at very low doses and titrate up to what dose works for you. I have Fibro, Lupus and Chronic Fatigue Syndrome and Adrenal issues. It is so important to get inflammation under control in folks like us before it causes more conditions like Crohns, Colitis, RA, etc. Thank you so much for this video!!!
How r u now
Omg, I think you will love it from the first day. Start very low. It’s a miracle drug. I use it as I’m in chronic pain in my neck and lower back. I stopped using it for a week as I wanted some other pain medication, but then I realised how even more sick I got🥵I tried morfin instead but it didn’t help at all so I got back on ldn 3 mg..from the first pill it lowered the inflammation straight away. Still so sick and I’m still desperate to find more help. But I couldn’t live without my ldn.
@@charlottevik9849 side effects like anxiety? Or more depressed?
Just going to.start it
How are you today
Naltrexone I been on it for a week 50 mg I feel sick most of time should lower my dose ,it's my first time use it ,I try to lose weight
That is a high dose…low dose
Hi Rachael I am happy you are are recovering from your condition. I was wondering if you are taking LDN now.
In another comment she said she's not. That she doesn't need it anymore.
Hi, I was wondering which compounding pharmacy offers the gelatin form? I cannot find one in my area. Thank you for the testimonial!
I know this is an old video but did LDN help with the barometric pain?. I have C4,5,6, Stenosis and Chiari Malformation and will get results of C.T. scan this week for Cervical Instability and I have Psoriatic Arthritis and all my conditions 10 times worse when wet , or stormy weather. I think it might help. x
How r u feeling I am thinking abt taking this medication did it help with yr chiari
How are you doing now my friend?
I'm so glad for you! Does your cervical fusion helped too? What type of EDS you have? Are you still taking Lyme medication?
I'm very thankful that my doctor knows about it and prescribed it to me. He's the one who told me about it.
Is there a way to get this without a prescription? It’s almost impossible to find a doctor who will prescribe it
A naturopath will! :)
If you don't mind me asking, what protocols does your Lyme doctor prescribe for you? I'm curious in hearing testimonials from others dealing with this terrible disease.
I started at 0.75 and in process of working up. The first dose it felt like a niacin flush- like my brain was squeezing. Only that one time though.
Seems like when I increase the dosage the dreams get weird.
Thank you so much for this video. I've been looking into LDN after reading about it in a RA book. I'm cautiously optimistic that it might help and your video gave me a bit more hope.
Quel est votre maladie ?
How do you get the gelatin or drops form?
Sorry you can’t sleep. I dosed up to 4.5mg over 20 days. I got nauseous and insomnia but it wore off. My crps in my feet is starting to go away and I can jog on a treadmill again!
I got given 5mg and wasn't told to taper. Big mistake, felt even worse fatigue, constipation and brain fog. I've started tapering again
This is a very informative video thank you for sharing I was born with congenital issues and have been experiencing chronic pain on my life I tried everything from injections to pain psychiatrists and much more today I saw my doctor and she told me about this LDN I'm looking forward to the journey she's going to start me at 1.5mg I'm praying for so much relief God bless you young lady and may God bless us all in Jesus name
Wishing you the best, I hope it helps for you!
How r u now
@@santella.story.healing blessings actually I'm doing better pain level is down I'm not paying free I'm able to rest more I'm able to be a little more mobile at this juncture I am pleased with the benefits I have no side effects kudos to my doctor and I'm excited for better days ahead
@@michaelholton1796 does it help fatigue
What dose are you on?@@michaelholton1796
I am waiting for my LDN to arrive in the mail and so hopeful it will help with my Lyme induced SIBO. I did not even bother going through my primary - I ordered it online via a service that has an ordering MD who prescribes it.
How r u now
@@santella.story.healing unbelievably better! I'm eating all the fodmaps, dairy, wheat... No more bloating at all! It's unreal. I've suffered for years. Eliminated all the foods, took the 4 weeks of antibiotics, spent thousands on herbs/ supplements/functional medicine appts... I no longer have neuropathies in all four extremities. And my migrating joint pain is almost fully resolved.
@@sara-mc3rk wow! Does it help with fatigue
@@sara-mc3rk wow, that’s amazing, can I ask what the cost was. I have Fibromyalgia multiple chemical sensitivities interstitial cystitis etc. thank you so much chronic pain constant
@@lindapelle8738 It's $30ish per month, paid in 3 month supply at a time. Took a few weeks to kick in and then I started noticing I was not complaining of bloating and joint pain as much. I tried to eat more FODMAPS foods like beans and broccoli and was surprised they were ok again. It's been about 6 months now and I can go for long walks again without needing a week to recover from the pain and fatigue and am eating so many more foods than I was 5 years ago.I was totally worth it. I went through ageless Rx, if you are curious. Reading reviews on trust pilot was reassuring to me that it was not a scam (the name sounds sketch to me) and then of course when I started to get better.
Have you looked into microdosing iboga?? Or psilocybin? Lots on line for research
Anyone connecting POTS with vaccine injuries??
I wonder if you would continue to improve even more if you increased to 3.0. Maybe not though 😊 trust your gut! I worked up to 4.5 in one month (kinda quick) but had a gut feeling that would be best for my fatigue and fibromyalgia. Best wishes ❤
Thanks Sarah! Glad its helped you! I'm actually not even on LDN anymore, as I don't need it. But I'm grateful it helped :)
@@HealingWithRachael What?! You don't need it? How is that?
@@cfoster6804 look at my recent videos. Brain rewiring and nervous system regulation has brought me the most healing. ❤️
@@HealingWithRachaelOooh! How did you rewire your brain and nervous system?
Any links? ❤️
Yes, I'm very interested in how you rewired your brain and how to do nervous system regulation
I'm so happy for you! It's changed mine too, with autoimmune issues, ME/CFS and tick disease. I think it's also great for depression, watched a video on that today. Out of five doctors on my team only one knew about LDN and I am so thankful! The key is to start slow and low and work up to 4.5.
I'm so glad to hear its helped you too!! I was amazed to read the long list of conditions it has helped. I hope more doctors become aware of it. :)
You are so cute 😍 😍 😍
Very cute
Hi Racheal I know this was put out a long time ago can I ask what Country your in please? I’m in Uk & iv been prescribed 0.5mg LDN but The doctors can only get 50mg tablets any feedback would be fantastic thanks for putting this out there
You have to have them made at a compounding pharmacy. So far as I know, low dose naltrexone is not approved in any country as a standard therapy and so no pharmaceutical companies have it as part of their regular offering.
Cant stop hearing about ldn....wondering how I can get ahold of some? Seems like it helps so many
It never helped me
AgelessRx is where I got mine from.
@@AutumnC22 what was the cost
@@lindasplaylist100 around $30 a month. Cheaper if you do the 3 month at a time subscription.
How u now
are you still taking this and is it still working?
I trying to lose weight is the best thing to take if don't have a addiction,
I’ve been on LDN at 4.5mg compounded pills for about 1 year for EDS/POTS/MCAS/Gastroparesis.
I take it in the morning because it disrupts my sleep.
Originally it was prescribed to help with pain, which it hasn’t. At all. However, I have noticed a marked improvement (from severe down to moderate most days) in my fatigue levels, brain fog, POTS symptoms, and MCAS reaction severity.
I noticed the improvement in fatigue after a couple of months. But the other improvements I didn’t notice until 6-9 months after I started taking it.
It’s certainly been immensely helpful.
I'm so glad to hear its been helpful for you!!
Some people say taking at night keeps them awake and others say the opposite. How did you find what worked? I'm about to start taking it for chronic pain.
@@savvysilvia5075 how r u
How r u now
@@santella.story.healing I'm sorry, I'm not good at finding replies on here yet. I answered somewhere else. I'm only on 2 mg in the morning. I still have most of my pain but I feel so much better mood wise I'm going to keep taking it. I got a bunch of .5mg tablets and didn't increase until all my side effects were gone. It's taken me this long to get to 2mg but I have no side effects now. I just feel better.
Hi Rachael, Do you share anyware what type of treatment, and which doctor/practitioner you go to? Also wondering what type of adrenal insufficiency you refer to, and what the symptoms are? I have been trying to find out if I am having adrenal insuficiency as well, without luck with doctors, as I am not positive for Addison´s disease,but dealing with extreme symptoms of adrenal issues which are debilitating, and holding me to the bed. Really appreciate you sharing
CBD works really well for sleep while on LDN :)
Thanks for sharing your experience with LDN. Have you ever heard of Coimbra Protocol to treat autoimune deseases? - Best wishes
So glad it’s been helping you! I’ve been on it a few years as well.
did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
Hey girl, thank you so much for sharing your story :) I started LDN right around the time you did and it’s so encouraging to hear it has helped so me.
If you don’t mind, could you share some of your symptoms of adrenal insufficiency that you have had?
How u now
All your other afflictions, are from Lyme and/or co infection. I was completely healthy 34 yo male at the time. 1 tick bite and 10 years later, I still suffer. I am getting ready to try ldn.
What are you doing for treatment?
A strict carnivore diet / no plants GAPS has been one of the most helpful things for me so far. I’d recommend reading “Gut & Physiology Syndrome” by Dr. Natasha McBride. She addresses lyme and similar issues and why they are becoming so prevalent. I hope you find relief!
LDN was quite the rage a few years ago but I don't believe it ever cured anyone.
I don't think anyone is claiming LDN is a cure, but rather that it has been helpful (in varying degrees) for a lot of people with chronic illnesses.
So what cures?
Not a cure, but helps with many symptoms.
@@dogfeliz nbprotocol.proboards.com/thread/272/modulating-micro-rna
Lol nah
I had the worst experience on it... I took my first dose of 1.5 a week ago and all my symptoms did come back really bad and I have not taken another dose again. I do plan to take it again but at a really low dose, I am just trying to get back to my baseline before I try. Kind of scared.
Oh no! I'm really sorry to hear that. I hope you can find something that helps! I understand the fear. That's why I started at 0.1mg, haha! ❤️️Hope you find something to help!
What symptoms did you get that scared you? I'm scared also. :(
@@savvysilvia5075 chills, a depressive episode, pain, head pressure, anxiety, insomnia…. I would just start really really low
@@deana.amlott thank you for replying Deana. I'm starting next week with .5mg. I reati badly to everything. I know this isn't the best place to chat, but how long before the bad symptons went away. House or days? Thanks
@@savvysilvia5075 for me it took a good week…. I restarted about two weeks later at about .3 and worked up to .5 but it began affecting my sleep again so stopped “for a couple of days” and have yet to restart. I think it depends on what you are taking it for. I have autoimmune issues and arthritis which it also revved the pain up there a little bit. I did have a little more energy during the day. But don’t let my experience scare you. You can always dilute your .5 down to .1 and start super low and work your way up. It’s better to do that then have a bad time like me out of the gate. This doctor also touches on that as well. vimeo.com/293553098?ref=fb-share&fbclid=IwAR2Sk0-yGnOo40KhK7e1HTA2jiL0mkEDTrFIzLj-h4CJcwLcJUi0Dz9eC_o
Hi Rachael, I very happy to hear you are doing well. I too take LDN and, after a few months, it helped with chronic pain (the future is less gloomy). I am looking forward to fatigue reduction. Take care and stay well during these difficult times. From Fay (a fellow hEDS, Chiari, MCAS, and POTS) xx
How r u
Does it help with yr chiari ? How long u been taking this medication
How long did it take for pain
My wife took a 1.5 dosage and woke with a fast heart rate of 175bpm.....LDN is trash be careful
@@Carlos-od7jr it's making me ache more at 4.5 but pushing threw best I can
I have a hard time getting it. I really need it and felt wonderful when on it for a year but then a turn if events led to not having refills and new docs won’t prescribe it bc they don’t know what it does.
Look up AgelessRx! It's a website that prescribes it to you. Just received my order today 👍😊
@@AutumnC22 OMG you’re a life saver! Thank you so much!
@@amber3574 Glad I could help! ❤
Me too. I went to the contrave website and got that. Wow what. Change
@ Autumn
I have been thinking of trying AgelessRX but I'm concerned that after I pay for the Dr consult that they won't prescribe it. Can you share how the process went for you, please? Maybe hearing you positive experience will motivate me to give it a go 🙂
I thank you for your time
Doctor Behari invented the protocol.
Ps I just started ldn for Ms
All the best, Gary!! Hope it helps!
How did you go? 🙏
How many milligrams
Hi Rachel, do you still take this or any medications still? Sorry if too personal, not my intentions
Not too personal at all. I don't take LDN or any medications anymore :)
@@HealingWithRachael that's wonderful!
Did prp help at all? Did you continue doing that?
You still take it?
Where can you get this?
Do you still need it?
I don’t!
@@HealingWithRachael awesome 🥰
Have you heard of dextro-naltrexone?
It usually comes as a racemic mixture of 50:50 levo and dextro isomers.
I'm very glad it worked for you & very proud of you always!
I did get it after watching your first video about it but unfortunately I couldn't tolerate even the 0.25 mg dose! I don't know why! It makes me very tired & sleepy!
I've undiagnosed autoimmune disorder & adrenal insufficiency!
I'm sending you very kind hugs! Super warrior princess! I'm keen you would post a video one day fod your complete healing ❣🙏
It takes time to get used to it