A Teenager with Dementia and his Loving Family
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- Опубликовано: 22 май 2024
- Michael is diagnosed with a form of childhood dementia known as Hunter syndrome. He is progressively losing the ability to communicate as his health declines. His family is working to find new ways to connect with him, like through singing and dancing. Michael has already surpassed the life expectancy for Hunter syndrome, so he and his family are focused on enjoying every day they get together.
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This interview was filmed the day after Michael's 17th birthday. We even had cake to celebrate! Thank you Michael, Monique, MaKayla, and LaQuanda for having me!
happy birthday michael
Happy Birthday, Michael! May God bless and protect you and your loved ones as well. 🙏🏼💕🙌🏼💕💞💞🎉🎂🥳🥳🎁🎊🌹🌹🌹🎈
Happy birthday, Michael! 🥳
Happy Birthday, Michael!!
Happy birthday Michael 😊!!
Michael just lives in a house full of LOVE! Everyone surrounding him is so joyful and happy to be with him, it just fills my heart! ❤
Hey Michael! 👋
Right?! They are amazing. Wish I could give your comment 1,000 likes.❤
❤
That's exactly what I was going to say. Such loving support. 💜
His mom just radiates love, she literally looks like the best mother this young man could have 😊
❤❤
I think Micheal’s mom and strong family are the biggest reason why he’s alive and full of vibrant energy. Hearing about how his mom makes sure he does his breathing treatments four times a day when he has pneumonia is amazing. If only all parents could love their children like how Micheal is loved.
The mother is truly invested and knowledgeable of her sons condition. The love of a mother❤
I am telling you! Mother's deserve every bit of their flowers.
My daughter Desirae passed from Neimann-Pick type C. Its a form of child dementia shortly before her 3rd birthday in November. These stories always made me think of her. It reminds me of the love she gave us and how much she meant to us. Thank you for this.
I love you Desirae Kyla.
I'm so incredibly sorry for your loss. 💕 What a beautiful name you gave your daughter!
@@HamEggsButteredToast thank you 🙏
💜💜💜
❤
God Bless your soul!! My condolences!! I have UTTER admiration of you & how you, inspite of the pain/hurt of a soul of a beautiful little girl, YOUR DAUGHTER; you take this positively. No disrespect or dismissal to the people who are used to that/grew up in that. God Bless them also. Be safe, prosperous, & healthy!! Love you!! ❤️🔥❤️🔥
There's something about music that seems to stick with us even when other memories and abilities are failing. Before we lost him a couple of years ago, my dad's cognitive faculties were declining from dementia and he was at the point where he'd lost much of his ability to speak and couldn't even recognize my mum. My mum found his old cassette tapes of Colombian Cumbia music that he used to dance to around the house when I was little, and she copied them onto a CD to play for him at the nursing home. Not only did he recognize it immediately, he remembered all the words. Music transcended his dementia and connected to something deeper. I could see the same magic when Michael was dancing to the music and when he'd finish the lines of songs with his mum. He had more words, more physical control, and such a huge smile whenever there was music. It made my heart happy to see it. This was a lovely video of a beautiful family. I wish them all the absolute best.
It’s apart of our souls man
I think the dance intermission gave me all the joy I need today ❤
I was looking for a comment about that- simply perfect haha, brought me so much joy
It brings me joy to see these people are well looked after, as they should be.
And so many times they are not. I am also really happy to see the people that support and take care of him!
Michael is the embodiment of the saying on your wall…He LIVES, he LAUGHS, and he LOVES. He’s such a bundle of joy and sunshine. And the dude has some MOVES! Get it, Michael! Go ahead on! You have a beautiful family. Many blessings to you all! Thanks for putting a smile on my face today, Michael! ❤️
He's beautiful. And she's so beautiful it's making me cry.
That dance intermission is pure joy and I won’t forget that or the love in this extended family 😊❤
That was incredible!!
The whole family is so fun, warm, and loving. Mr. Tony is a whole nother level. You can tell how protective he is of Mike, and how proud he is of him. He is a great role model, and we should all do our best to emulate his attitude. The world would be a much better place.
Yeh ii was thinking the same thing what a good comment
This. ♥️
Whenever I feel discouraged by the atrocities of the world, I come to your channel. No other creator has such tender-hearted followers. The comment section is always filled with positivity, kindness and empathy. This is truly your mission. Nice to meet Michael! Kudos to his strong and sweet mama!
Makes me tear up. My brother had San Fillippo which is another dementia like mucopolysaccharidosis. Such similarities at that age. But the love that exists in this family is much like the love in ours. Something very special about these children. You're amazing Michael!
Prayers for you Mrkeller. San Fillipo is atrocious; I’m so very sorry. Thank you for sharing.
Michael was born into the perfect family for him. The love and positivity in this video is infectious. I constantly found myself smiling.
Yes, I could not stop smiling while watching this. Especially, when he threw that toy down like a football for a touchdown, while saying touchdown 😁
I don’t think you can watch this video and not feel and see all the love every person in this family has. This is such a beautiful family! They are lucky to have Michael and Michael is lucky to have them. Sending lots of love to this incredible family ❤
Michael had such joy while dancing with his momma and teasing his Auntie. To Michael’s mother I would just like to say you’re doing a great job! Keep up the hard work momma
Michael has an infectious smile! ☺️ He seems like such a happy, fun soul. I loved watching the 3 of you have a blast dancing and playing! Thank you to Chris, Mike and also his loving family for sharing their story to all of us. ❤
His grin in the dance break 😍
What a nice bunch of people. I wish I was more like them.
Momma saving the last words for Michael to sing is awesome. What a great way to encourage speaking! What an inspiring group of people in this family. Love the dancing. Happy Birthday to Michael!
Michael:Hey!!!
Me : *excited and interacting with him as if he where in front of me* : Heyyyyyyy! ❤😊
He is so precious seeing the way his mom interacts with him and is so loving with him.
Me too, lol! My cat wondering why I am grinning and every few minutes give a loud "Heyyyy!" 😂
@wildflower1397 omg love that !!
I have a friend who had a verbal tic for about a year, where he would make little sounds. He randomly beeped, booped, thrilled, and chirped whenever he was in a good mood, and it was delightful. Sometimes I could find him in a store by following the cheerful little sounds, lol. People assumed he was like a child mentally, but he was just a regular guy with a joyful soundtrack. 😂
I like seeing Chris interacting with his new friends. I like it when Chris edits a bit of that right at the beginning, when Chris says hello to them. It's a good way to introduce the audience to the host a guest, without being too formal.
Micheal is surrounded by some wonderful people. Micheal is thriving due to all of them. Many blessings their way.
So much love and positive energy.
Lot's of respect for the whole family.
He is beyond precious and his family is simply golden! ❤
Such a loving and positive Mother. Gerat job!
The whole family has so much chemistry together! Couldn't help but smile along with them ✨ mama is doing great
Michael's enthusiasm for football made me smile. It was so contagious. : D
Such a sweet kid! I love his relationship with his Aunt! You can tell even though he might have lost the ability to verbalize the sarcasm and joking relationship is still there which is a sign of high intelligence and comprehension! Bravo to a wonderful family doing a great job with this sweet guy!
Such a sweet family!
As I was a special needs teacher for 19 years a while back I am in my late 50s now I look at Michal and smile with such joy I wish I could spend time with him and just play with him and see that sweet boy in person spreading. His god giving joy .hey Michael sending love and hugs to you and you keep on being just who you are your beautiful.❤❤❤❤
When you realize you have smiled through an entire video. 😇🌟✌🏼
I'm here for that super sweet dance break! Michael's got some moves!!! ❤
The smile on Michael's face when he was dancing shows he really enjoys it. He seems so sweet ❤😊
When Michael belched after you asked Kayla what it's like to hear him make different sounds, I got a good chuckle 😂 This family is absolutely beautiful inside and out, every single one of them!!! Thanks for sharing Michael's story. ❤
Hello dear friends, thank you so much for sharing your wonderful video and great interview with us! ♥️🙏🏼🥰. Like 145 👍🏻♥️💕💞📖💞🌹🤗
Thanks a lot for sharing @granolitayyo.
Michael has the most beautiful smile 😊😊😊 You could see how much he loves his Auntie. His face was just lit up. His Momma is so great with him. And his God Father just adores him as well. What a wonderful family 🤗🤗🤗
Micheal is a great person who is very loved he has a eonderful family
That young man is SO LOVED for exactly who he is. That's ❤️ beautiful
such a phenomenal mom!
There’s nothing like a loving devoted parent to help heal their child and prove doctors wrong!! ❤loving family, Micheal dancing had me dancing along!!
Hi Michael! I loved your video so much! I’m glad you’re all smiles, it makes me happy too🤗 Your mom seems so nice, I bet you’re so thankful to have such a warm, devoted and loving mother. And I wish my cousins visited more often, it looks like you guys get along great 😁
The joy from Michael and his family radiates! ❤
Hopefully Tyler Perry sees this and will make a visit. It would be really fantastic
Who else dancing along? Awesome dance break
I dance too, dear
He wouldn't live past 5. Hey yeah ! Need that spirit
Hes such a happy child, i love these videos and very grateful to the families that share their stories with us. It really helps people like me who knows nothing about many of the conditions to learn about them and how to interact with them should a meeting ever arise. So from the bottom of my heart thank you chris and all the families. ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Love the purple couch 👍🏻♥️ Sweet young man 👍🏻
Happy late birthday, Michael! 🎉🎉🎉
Respect and hugs to Michael, his Mom and family. Such a beautiful, loving family. They are truly blessed in ways many of us are not.
What an outstanding family Michael has! The quality and quantity of love by square foot at his house is out of charts. Bless you all throughout your lives. You are all gifted human beings. Thank you for sharing this heart-warming story!
His smiles infectious!! ((:
What a good mama.
It warms my heart to see Michael and his amazing support system! Thank you as always for sharing these people and stories that remind me of the good in the world.
He's probably one of the happiest babies with 1 of the most physical and mental altering diseases that some people would just be debilitated, but this baby is smiling and dancing and acting like every day is a party and mama. You did a great job and the host of this channel. Sir, for you to interact with these babies, you just make it all the more beautiful God bless you all.
He reminds me of my little cousin ! Adorable!
This really warmed my heart ❤️❤️❤️. AND I absolutely love the T-shirts he and his mom were wearing, "Don't stare at me, play with me". Those shirts should be mass produced.
Michael and his aunt have me in tears!! 🥹🩷 the absolute joy from both of them. You are such an awesome family!
he seems sweet I would love to be his friend and meet his mom
HAPPY BIRTHDAY MICHEAL!!! 👏🏾💐💐🎉🎉🎉🎊🎊🎊🎊🎉🎉
Mike is awesome and so is his family and godfather. ❤️
The love in that home is incredible ❤
He's got so much love surrounding him and that's why I believe he's so happy especially.😊
I found myself smiling the whole time. What a wonderful family.
I love the questions that you ask, and the way you try to understand these families. Wonderful to see Michael surrounded by so much love and support. Keep up the amazing work, always a pleasure to watch SBSK.
Such a sweet family
OK not even 2 minutes in and I am so, so impressed with mom!!!
I love how his mother is so supportive and loving to her son
The dancing was the best part, so great to see Micheal enjoying the dnace, and great moves too!
What a wonderful group of people around Michael. He is a lovely person and those who love him so much are a real blessing in this world. Thank you for this uplifting video. ❤
He is precious. Looks like he brings sunshine wherever he goes, too. What a phenomenal family. 🥰
His mom is really something special. She’s an amazing person.
*SUCH LOVE ALL AROUND!*
*HAPPY BIRTHDAY MICHAEL!*
🎂😍🙏🕊️
Michael seems so happy and well-loved. I'm glad he has such a warm and caring family. I was smiling the whole way through!
What a great mom. I can tell she loves her son and is proud of him. I'm glad he has so many people around him to love him unconditionally and be so supportive. 😂
Michael has such a loving family. The fact that he tries so hard to communicate and has the energy that he does is a testament to their love.❤
I enjoyed watching Michael dance! He's so cool!
What a wonderful family ❤️
Their dance is so nice!
I love it. He's such a goofball, full of joy. His family is amazing too. They know each other so well. He gives me hope.
What a happy young man. Good job family. Your love and care shows in leaps and bounds. Bless you all.
He gives so much joy to those around him, which is more than a some people ever contribute to the world. His bright smile is everything. ❤
What beautiful humans!
I had to dance with you, Michael and Mom. Your dancing is contagious.
Thanks for sharing a view into such amazing love.
"I'm having a day" I feel that.
His mother is literally having me in tears😭 Her love is so deep and strong
I adore his mom and the village! Love his spunk with his Auntie, you can tell they're crazy about him 🥰🥳
Michael is truly blessed to live his life surrounded by people who love and care for him 24/7. It's truly a different and simple world than we all live in. One filled with happiness, laughing, and family. It must be an amazingly beautiful world to be surrounded by so much love. May he have this love for the rest of his life. God blessed this family with Michael.
Happy Birthday Michael!!! I love your dancing and that gorgeous smile!!!! You all are so blessed to have each other !!! You can tell how much love and respect you have for eachother!!!! God bless you all! Thank you for sharing your life! Love from Lawrence Kansas!!!
I love this family. I can tell they have a light. I wish them the Best of the world. They deserve it 💛
Michael had me smiling and laughing so much, what a bright young man and how lucky this family is to have each other!
That was so uplifting! The dance intermission was the cutest thing!
Michael's family is so loving and nice, he is a lucky guy ❤
Michaels amazing and his mother is just pure sunshine energy!!
What an awesome family! ❤❤❤
“Leave me alone” that’s just great what a beautiful young man.
I truly believe that Michael was sent to the perfect family. They are so caring, fun-loving, and united. Beautiful ❤️
He's so loved! These are the lovliest people who love their silly boy 🥰🥰
The love from his mother is beautiful. I cant imagine how hard it must be.
This is by far my favorite SBSK interview thus far. Michael is a total rockstar I love how he interjects and says Heyyyy!! so funny and makes me smile.