John Hudson's Big News (A New Treatment for a Horrible Condition)
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- Опубликовано: 11 сен 2024
- Help Cure EB at give.ebresearch.org/johnhudson_sbsk
John Hudson is diagnosed with epidermolysis bullosa, leaving him in a body covered in open wounds since he was an infant. He has advocated for a cure for this horrible condition since his youth, hoping that children in the future will never know the same pain that has left him bedridden. John and his advocacy were a contributing factor to the first ever FDA approved treatment for EB that was released to the public recently. This new development has given John hope that his efforts have been worthwhile and that a cure is still possible.
Researchers believe a cure for EB is possible by 2030 and you can help at give.ebresearch.org/johnhudson_sbsk . This is a fundraiser for the EB Research Partnership in John Hudson’s name. If everyone who wants to help John contributes just a bit, it will go a long way in helping to find a cure. Thank you for helping John and the many others who are impacted by EB.
33 sec
Keep being awesome!
God bless the EB Community, Amen. 🙏
Me too! Love John Hudson, his strength and hope for new discoveries made to help those after him. Dad’s with John Hudson now. May the family find strength in this. ❤🙏🏻
So much respect for you, John. You're a shining example of integrity and humility. Sending love and prayers to you, your mom, your friends, and your community. 🤗🙏🏻💚 PS pet Romeo for me 😻
"My hands are not as bad as the rest of my body". Let that sentence sink in for a second.
I know...I dont know where he will be after this life but it better be everything he wishes for and behind his wildest dreams.
I know!!!! 😩😥😣
It's just unreal, breaks my heart 😭💕
Made me tear up when I heard him say that.
😭😭😭
This kid is 10 billion times stronger than I will ever be. What a legend.
21 years old, so not quite a kid, but absolutely he has so much strength and courage
he's apparently not a kid he's 21
He's 21 so his not a kid but yes definitly he is very strong❤
God bless the EB Community, Amen. 🙏
😥😥😞😞😓😓😟😟
John Hudson might not look like a 21yr old man, but he is a bigger man than any of us.
Facts
I had no idea he was that old, ive been on and off following this channel for years and remember seeing him and mentally in my head hes been like 12 or whatever that entire time.
To live with this for 21 years, damn. Dudes strong.
Good god. Some of these comments are so corney. It's not that someone said it. It's that some 50 year old grown adult thinks it's not crazy to be posting on mentally ill digital forums. When Facebook first came out it was just kids. Still not healthy but an excuse was that it was just dumb kids. Then all the boomera get jealous and start joining, ruining there party. Then it just proved our society is dooned.
Maybe just post how you feel. Seriosuly. Who is the target audience of this post? You say "bigger man than any of us", so your target audience is men? But your comment is something an adult would say trying to impress a child. So which is it?
I'm sure John would appreciate my thoughtfulness. He's obviously a deep thinker, and has some criticisms about modern society implied by his impression with Japan over the west.
I can imagine some commenter gasping reading this, like "omg, the gravity of the situation". Yes we know. You're not treating him with respect if you think my criticism of this childish comment hurts his feelings. I'm criticizing our dumb culture. Not him.
Truth!
I really can't even comprehend being that damn tough. I have immense respect for this young man.
John is my age, yet 100x more of a badass than I'll ever be. Made me think twice about the stuff I complain about. Man is an absolute warrior. Truly inspiring.
I feel so terribly ashamed of have ever complained about anything in my life.
You’re allowed to complain. Disabled people don’t exist for you to pity us and make you feel like your struggles are less than. Everyone’s struggles are different, don’t feel bad for complaining, we all do it
@@choccymilkconnoisseur2775Extremely well said. It’s the same argument people employ when they say you aren’t valid for struggling with anything in your life because there are children starving in impoverished countries… like what?
@@godsstrongestschizo I think the original comment has a point, though. We should be more grateful for what we have, and remember those who are less fortunate than us rather than looking up to those more fortunate than us. It helps put life in better perspective, and calibrates your level of gratitude and satisfaction. So while this doesn’t mean we should shut down any urge to complain or feel frustrated (which are perfectly normal human emotions), we should indeed realize that we are in a better position than millions (if not most) of the world’s population. Even the ability to hear, see, and feel, are tremendous blessings from the Creator.
Remember: the happiest people are not those who have more - but those who need less.
Peace.
It's not about complaining. Validate your feeling but always be grateful. Pray/ meditate and pay it forward ❤
@@choccymilkconnoisseur2775 I'm going to quote this a lot in the future.
He's asked what his thoughts were on being born without skin on his left foot. He responds, "I can't imagine what it was like for my parent's to see that."
A fine young man, worrying about others before himself.
I hope Jesus will heal him completely.
@@dadaebiko8332 j-man ain't helping my guy
@@dadaebiko8332 ya está viniendo en la nube kinton
I mean, the fact that he literally had his skin pulled off as a newborn and reflecting on that his first thoughts are of his parents! Truly an amazing human being!
😢😢😢😢God bless him...
As a 29 years old EB man, I deeply respect Hudson's life experience. His patient capacity is amazing. We all EBs Love you form Turkiye
How long you been dealing with erectile dysfunction?
@@ghostsamongus3370wtf.
@@ghostsamongus3370🤨
@@ghostsamongus3370 uhm broskie,I’m pretty sure he said EB,not ED🤨
@@SarinaWelander eb? It days ed on my screen
When he said the rest of his body is way worse than his hands, my heart shattered.
Mine too
Same here, I kept wanting to think I misheard 😢
Mine too. ❤💔❤️
I was hoping that I just misheard him and when he started explaining the condition of his body, my heart stopped
Yeah that got me good. Then he said he's always in pain 😭
Immediately clicked on this when I saw it. Our hearts have all been with John for all these years. WOOOOOOO!!
Same here ❤😊
Yes...I remember watching a video about him when he was a young boy. I felt so sad for him. I couldn't imagine having to live in so much pain all the time. I hope and wish they will find something to make his life easier.
Same here as well. I remember watching the first interview when it came out.
🥰 Yes!!!! 🙌
Same ❤
The fact that John Hudson is experiencing excruciating pain constantly and can still be so thoughtful, well-spoken, patient, and respectful is incredible. I have a minor inconvenience or a headache and become irritable. He’s such an amazing person and I’m so hopeful about his future. I hope this new treatment can give him some relief and restore some of his mobility/independence. I hope a systemic (hopefully gene) therapy is on the horizon.
I'm the same way. It's so, so difficult to change who you are in that way, though. I don't know that it can fully be done for most of us. I've always wanted to be so level and patient under pressure. He's amazing.
That's because you're not strong like me.
@@WeirdSmellyManHe's a beautiful human being, yes. We could all learn something from him.
So incredibly sad. It seems men are subject to all sorts of horrible conditions. Prayers for him. 😢
@@ElysetheEevee
HEY, my name is Ava. I can relate to a lot of this stuff. I was born with EB, and my type of eb is junkshinal, one of the worst ones. I wasn't supposed to make it past a year, so this video means a lot to me, and it's not just me but other people with EB, so thank you so much
How old are you?
❤
I wonder if Lifewave patches would help at all. I encourage you to maybe give it a try?
I wish I had the money to do whatever it takes to ease his pain. People like this deserve so much help.
And the people with money do nothing.
Such a sweet souled man.
@@AuthorityCatyeah that always gets me, if I have a billion dollars say, why not just help these people. Easy for me to say this though as a non rich person.
❣
@@AuthorityCatknowing I have so much money that could help thousands of people but not help them is something I can’t imagine doing
“Some things change, but that doesn’t mean you can’t change with it.” Resilience at its finest. An amazing young man.
I pray this sweet angel can have relief from his pain and have the quality of life he deserves. Jesus loves you John. You’re a beautiful soul.
That's the thing I'm taking away from this. I'm not going through anything near to what John is but, I do have chronic pain issues.
Time for me to change! 💜
“Some people weren’t as blessed as I was” what an amazing human being, I pray for his health and happiness.
Wow, he sounds like he's always on the verge of crying. What a brave soul, a brave family. It's unfathomable.
I'd imagine talking is painful. He mentions his insides are affected too. His tongue might hurt.
Смелая душа я мысленно рядом и буду
@@catpoke9557I'm sure the insides would be harmed because they have no protection from the little skin he does have
My daughter has this disease. John is such a phenomenal individual. So well spoken and intelligent.
I am thinking of you, your daughter and family too now. I am going to donate to EB cause. Will need to replay that bit to get name of research charity in a minute. John Hudson is such a phenomenal young man for sure yes.
I'm so sorry ,I hope there becomes a treatment that helps ❤
Love to you and your daughter
@@natscat4752
If you look at the very first comment, it is from Chris and he gives a link you can click on that takes you to the EB Research page.
You're a good person for donating. 🫶
Much love to you and your daughter. Does she want to do an SBSK episode, too? It helps to have more than one face of EB.
Millionaires and billionaires should put their money in this research.
Or one million thousandaires
Easy to say when you dont have millions or billions.
@@blakeappine cultivate some empathy instead of licking boots
To do what?
U can give even a dollar u know. Stop always hiding behind poverty. I have been very poor but always donated.
Hello John Hudson! I am donating $50 worth of money to the EB research community. I send this money in honor of your story. It really inspired me, and I hope that you will go far someday. Never let anybody judge who you are! Be proud of yourself! I struggle with spina bifida. It really makes my life hard, but I persevere. Sincerely, Gage H (age 11) Edit from Gage's mom: Gage came home from a weekend away and was overwhelmed by the love and words of support for him and John Hudson both. Thank you all for building him up as you did.
Hi Gage! I’m sorry you struggle with spina bifida. I’m quite a bit older than you but I also struggle with chronic pain from other conditions. You seem like an incredibly caring, kind, and strong young man. Keep going strong, we believe in you!
Go Gage 😊 💪 what a fine young man you are already too
He and you are so strong. ❤
Generosity is a result of gratitude, for sure!🎉 Bless you both in your separate health journey's!🎉❤
Hi Gage! What a lovely person. I have a friend with spina bifida. She made it on to Team GB for the olympics, doing hand cycling (wheelchair cycling) and also does modelling. I doubt she imagined that at age 11. I hope you can do wilder, funner things than you can imagine yet :)
I have the same condition as Jonathan and I’m also currently in bed with the fan blasting towards me. I’m so glad that the gel is making a difference. I’m currently waiting to hear about when I’m going to receive this treatment. Just to finally get some relief on my wounds that won’t heal is going to be amazing. I really appreciate these videos. The more people become aware and the more people donate, the closer we are to finding a cure. ❤
I sub to your channel
So many ppl admire celebrities and want to meet them.
To me John Hudson is someone who deserves my admiration. I would want to meet him just to say how inspirational he is! John Hudson if you’re reading this “You are my hero!”
Totally agree. Would far rather meet John than any so called celeb.
@@jmk1962me too❤
Well said and his Mum is one of my other heroes 😊
@@jmk1962 100% agree, I would rather meet this kid than any celebrity......because this kid would give me courage.
He's my hero too. What a strong and charming young man.
日本からコメントを送ります🇯🇵
これほど大変な病気と戦いながらも、彼は他の人たちを気遣っていることに、私は驚きました。
彼が最も行きたい場所は｢日本｣だと言ったとき、私は泣きました。
彼に評価してもらえる日本、そして日本人でいられるように、私たち日本人は努力をしなければなりません。
素晴らしい動画ですね。
ありがとうございます。
Comment translate was the best thing RUclips has added ❤
Japan is one of the most wonderful countries in the world, and Japanese people are absolutely amazing ❤
"I cried because I had no shoes. Until i met a man who had no feet"
What a remarkable young man.
Dear God, please make this treatment work and give this incredible young man some relief from his suffering 🙏 I will never moan again. 🙏
a god that would allow this is not a god deserving of praise
@@content6032Also a God that didn’t case it, but allowed it. but also a the same God, that found a treatment. so yes, praise God🙏🏾❤️
@@Cy3er_Br4t God caused everything, humans found the treatment. We exist in a natural universe, not a f'n magical one.
@@content6032God allows trials that teach us empathy, patience and love.
@@content6032god gave the people of the world free will. You cannot blame god for this.
Everyone needs to remember this legend whenever you think you’re having a bad day. One day at a time man, your stronger than 90% of us
Yeah he’s so well spoken
99.9% of us
99.99999%
He is the bravest human being I have ever seen in my 75 years!
I'm more brave.
@@WeirdSmellyManare you always worse than useless?
He’s also really lucky to have his family support and loving community that pushed him to have this mindset
He’s very optimistic it’s amazing, cause a lot of people in his situation would just want a way out, not a battle
@@WeirdSmellyManThere are places you shouldn’t crack jokes, this is one of them.
@@WeirdSmellyMan dont shove yourself into other peoples compliments.
I have been depressed and hopeless from life since august 2021, today after more than 3 years I have felt en emotion of genuine happiness after hearing about this good news
same here but august 2019, i have genuine hope for the future now.
@@Himmel.Himmel
Both of you were inspired by a humble hero. I hope your days keep getting better and better.
If John Hudson can continue to fight, so can you. 💙👍🩵🙏👊
Why are u depressed?
@@dimitriskalofiris1777 Depression can happen without an external reason - sometimes a person's brain chemistry is just a bit off naturally, and the effects can be really severe depression. 🫶
I've also felt really, really hopeless from depression - and I still have depression. But thanks to medicine it's been so... faded? My dad helped advocate for me to try a different antidepressant that his doctor friend had talked about was relatively new still but works especially to help against low energy levels (which was a huge problem for me), and gradually it is really getting better. I take Sertraline (Zoloft) and Bupropion (Voxra). I hope so, so deeply that you can also get relief like this. You are doing so so well, having lived this far, and I'm really proud of you for how you've been holding on. Best of luck to you 🫶
John Hudson’s mom is the strongest woman I’ve ever seen. I can’t imagine what it’s like to have a kid with such a serious disease. They both really are lucky to have each other. They truly are rockstars
No she aint :|
most parents are ready to dump their children in the river after they change a couple diapers
@@gxlorpwhy would you say that
@@gxlorp oh shut up scrub
John Hudson, I'm so sorry about the passing of your dad. Loss of a parent is truly devastating. I lost a parent too soon as well. Strength to you and your mom - you guys are incredible people.
Mr. John is the epitome of strength, grace and selflessness. He is an inspiration to us all.
True, what a wise young man. I wont ever complain again!
@@iamatlantis1 how are the gas prices?
@@whatsthatguydoing going up lately 😭
I cried when I saw the ending... His dad moved me so much in his second interview when he said that he never ever saw taking care of John as a burden and John laid his head on his shoulder in pure gratefulness 🤍
His Dad was lovely.
Oh! I remember that now. It is so sad learning that his dad passed away. How sad for John and his lovely mom.
@@iamjane9628 Some people, just cannot catch a break it seems.
That last frame broke my heart. Gentle hugs to all who loved him. 💕
a parent chooses to bring the child into the world without the childs consent, so a child should never be a burden no matter their afflictions
My Mom was dying of ALS and she saw a woman on the Oprah show who had been burned over her entire body. My mom looked at me and said there's always someone else worse off. I have MS and had a bad day then I saw this young man. I thought two things. The first, I thought if he can continue living with love and gratitude I have no right to not see my journey completed the same way. The second I pleaded with the "powers" that be to expedite a cure. A true cure. I wish so much I could take this from him to let him feel the ocean, hike a trail, run free from pain and fall in love. I beg all there is to allow him to be freed. ❤
Shout out from an MS friend! I had those exact same feelings
@@rw8873 ❤️ Only love to you.
Here's something I say maybe it'll give you a laugh. My husband calls these Colleenisms.
" If you find you can't walk start the rock then roll."
-From Me ❤️
Well said. Please God give John Hudson a cure.
What lovely things to wish for others.
If you care about yourself one person cares for you.
But when everyone cares mkre about everyone else. Then everyone has billions looking out for them.
Good on you for seeing the right path. Even if it seems harder and less rewarding to give up your chances for anothsr
Who else feels ashamed for complaining about anything after watching this kid? Thanks for sharing his story. I had no idea this condition existed until now.
Don't think like that. Your feelings are valid. There will always be someone in a worse situation.
My sentiments exactly
Just don’t compared yourself with others. Focus on you, not them. I wanna be better than the past me , not other people
What really got me during this interview was the love for his cat, Romeo. The companionship and love that I know a cat can do for you is limitless. I wouldn't know where I would be if I didn't have my own Kitty by my side. I'm happy that he gets to know that feeling too.
😻😻😻
Hard agree❤
Yes. The gentle steps of Romeo with his soft fluffs. 💖 A special bond between cats and humans is one thing....but having such a companion with a gentle touch for John Hudson's medical condition. You do mean a lot to us John Hudson. A true superhero.
And it is like the cat is watching over and protecting him, too. 💕
Cats are such perfect little angels. My home is not complete without a cat.
this kid got me out of bed and to work in the middle of an opiate withdrawal so thank you.
You got this . We do recover
I am on therapy now too. You got this! Keep fighting!
❤❤❤
Yesss 🙌
God bless you, never stop trying ❤️
To be in his condition and even say the words “as blessed as I am” is unfathomable. I would give anything to help this dude. He deserves a normal life more than all of us.
Look into the eyes of this young man. It tells more than any words could tell. He is a fighter, not for fame, not for glory, but out of necessity. An old man I barely knew told a friend of mine once: "There is nothing in life harder than life itself."
He's a beautiful human. Just imagine having a disease so awful that RUclips considers your image "graphic". And yet he remains a beautiful human in every way. I'm donating again. I wish him and his family all the best. Here's to a miracle.
You have beautiful profile picture.
I agree with you. He is such a strong dude. Hearing the part about how he was born and had his skin ripped off.. So sad and ouch. I respect the fact that he doesn't hold any grudges. What a good person.
He truly is a beautiful human being. I just love his personality. I am so glad to see this update with him.
ur awesome
These are the kind of people whose names should adorn our streets
And Freemasons
Yes, and he already has trophies and medals of courage.
Well said!
Great idea
Why tho?
Q: When somebody finishes watching this interview what do you hope they remember most from it?
A: I hope they remember that I'm not the only one going through this.
A completely selfless and benevolent answer. You're a good guy John, what happened to you is unfair and cruel, and to top it off you aren't bitter. That makes you a special type of person, I'm hoping the treatment works and they find even better ones to help you, and others suffering from EB.
Life is so unfair.
He also immediately mentions that, when he thinks about how traumatic the experience of his birth was, he mainly feels sad for his parents because of how frightening it must have been for them.
Yes this is so true of John. Amazing human with so much kindness. Hopefully this new treatment gives him and others a chance to live with less pain and itching, more mobility. Research should crank it up! Love to you John (and Romeo)!
God bless you, young man.
I'm a 60 year old man with no heart but this kidd just made me cry like a little baby.. .I'm speechless. May God help you with all his power
No heart? I do not think so man. ❤
This is what the government needs to be putting their money into for research! Prayers! I could not even imagine .
on god.
Instead they are tortuous puppies and funding wars. Shameful
You're totally correct. Most of our gov't or whoever is in con trol are very si ck and deme nted people. I can't believe what they waste money on
Another trillion dollar to send arms to Israel you said?
well, probably no, this is sad, but also super rare
I’ve always admired how well spoken, strong, smart, kind this kid has been. Keep up the fight bud. You’ve made tons of progress and more to come. We’re all rooting for ya bro.
he’s 21 and not a kid but yea I agree
@@yourfavappol He’s a kid as in being young not las though I believe he’s a child.
@@yourfavappol
Stop. 🙄
i also admired his speaking ..i pray God for healing him ..i hope scientists solve this disease as soon as possible completely...
@@yourfavappol Just say you're butthurt because you're 21 or younger and move on. 🙄
Reading through the comments, I want you all to know that just because you don't have it as bad as John Hudson, doesn't mean your pain is invalid. We all have our struggles and they are just as real and impactful as they feel to you. The human body and brain are amazing at adapting, and some of us go through unthinkable traumas. But you don't need to be one of those people to justify your emotions, your feelings, your pain, your stress. The thought that "I can't complain because others have it worse" is incredibly self-deprecating and doesn't appreciate you for who you are as a person. Love yourself and those around you! Ask for help when you need it. The only person you should compare yourself to is your past self, because we always want to be learning and growing. Abandon toxic ideas like "I'm not worth it" or "I don't have the right to speak". We can appreciate and share love for ourselves at the same time as we share it for John. We can acknowledge that he has it worse, but also acknowledge that we ourselves may need help or relief. These concepts can exist together!
Exactly!
Thank you curo. Everything you said is true. I feel great compassion and empathy for this guy. The Bible basically states that when one grows old it to teach compassion in others. I don't believe growing old is a prerequisite for that though. I do believe that people come into our lives that are ill to help teach the true nature of love. Without intention he's doing that. Not only to be loved, but to love. We have to show that love to ourselves as well. God bless this incredible, brave young man. I wish him and his family the very best. He one day like the rest of us will cross over and leave his ailing body behind. His soul will go on unhindered and into the arms of total love. All is not lost.
I don't agree. A lot of people walk around with self inflicted issues. Complaining is not always valid
While I agree with you this does put so much into perspective. He’s a strong kid.
@@themightycrixus1131
I absolutely Concur!!
This man is the definition of a hero. The spiritual strength he posesses is beyond my comprehension.
Só pode ser algo que vem do alto, só Deus para fazer isso, pois sua alma é leve e o seu espirito é feliz... ❤
21 with EB, that is amazing. Strongest man alive.
I'll never forget this charming and brave young man. It's quite obvious that he has become quite the man. I have kept him in my thoughts and prayers.
John Hudson is one of the most special people on the planet. I'm so glad he's finally getting a treatment that might bring him some relief. Very sorry to hear about his dad passing away.
Kid mental strenght Is over 9000. Hope for your swift recovery. Stay strong 💪
I CAN'T BELIEVE John is 21 years old!! I've followed you since the start...OMG...TIME IS FLYING....
I WAS WONDERING HOW HE WAS DOING!! An absolute legend. Literally the strongest human being on the planet.
My exact thoughts......
The strongest? *one of the strongest maybe
What a good smart boy Romeo is! A bond with a cat is very special and I'm glad John gets to have that in his life.
John’s battle has reached me in a critical time in my life. I have heart failure which my lungs are killing my heart. My hemoglobin has been bad 8.0-8.1 for 2 years now and I’m on verge of needing blood transfusions. I also have open foot wounds that won’t heal and havnt for almost 3 years. Iv have close to a dozen surgeries on them with no luck. I can’t imagine how much pain John is in because it’s only my feet which the pain radiates up my legs. I am not diabetic so I feel everything. Drs havnt seen this before and I feel helpless. I have a good family but one of my best supporters, my father, has lost hope in me and now I’m lost. My finances are gone and soon I’m going to be without funds to continue. I’m at the verge of giving up John. Your story just hit me though and I admire your strength and selflessness. I need help. 😞
i'm so so sorry. please know you are loved and valued! wishing you strength ❤
I'm so sorry, wishing you strength ❤
Are you or someone in your family able to open a go found me ? I'm sure many people want to help you ... much love my dear
Ask st. Jude for help!!
When he said “luckily my hands aren’t as bad as the rest of my body” I gasped. This poor man. He’s gotta be tough as nails to have made it this long. Praying that the new treatment offers some time and more importantly relief. God bless you, John Hudson.
Me too 😮 I gasped out loud. What heroes... I am in awe of this young man and his mother.Grateful for this channel ❤
Me too! The pain must be excruciating 😢
This poor kid's life has been a living hell since birth, I can't even imagine what he goes through every single day... I hope this new treatment really helps him, God bless his strength and his family.
Watch out. The"kid" police are patrolling. They have nothing better to do than correct everyone that uses the word "kid".
This young man is so humble. Jesus, please be with him.
Oh, Jesus has been with him this whole time.
Amen
@@hi-rm8us Really? Why hasn't he f'n fixed him then?
I’m sitting here with my mouth hanging open listening to his story. He’s the definition of strength.
I’m so sorry to hear that John’s dad passed. I recall in past videos seeing their amazing bond. ❤
why he passed?
Oh my god, I remember their amazing relationship, such a loving and caring! Huge loss.
@@shishi2776 In 2017 because of cancer sadly.
@@Thor_Asgard_ he died July 29th, 2023....not 2017
@@timestamptramp hmm thats for real, because all i could find was in 2017. If its 2023 its even more sad for this poor soul...
21 years fighting with that??!? that boy is a champ no doubt about it. May God bless him and give him strength to keep facing this.
I've never forgot this warrior of a kid from a few yrs ago when I first saw him. An absolute gentleman and a true warrior in this life. I've been a spinal cord injured paraplegic myself since I was 18 back in 97' from a crash. I've always said that mental fortitude is so key in this life and its true for so many of us. I wish i could hang out with this guy and chill, make him smile and have a laugh. My sincerest prayers to him and his family always.
He's 21 so not a kid.
@@DoABarellJohuman life expectancy is 78 he’s a child in the long run anyone under like 25 is lol
@DoABarellJo I meant what i said and how I said it very sincerely. I'm a few yrs away from 50, and I don't think he would be "offended" by said comment. I know he is literally not a kid now, and when i first saw him, he was very much a kid, so yeah......carry on and troll some more.
I'm more of a warrior.
@@WeirdSmellyMan what a sad, strange little man you are to be offended by a disabled person.
😢 Lord, please help this incredible young man and his family. His strength and humbleness are beautiful.
We found out my son has EB it's localized to his hands and feet thank God. He's 24. We found out prob 2 years ago that it was actually EB not dyshidrotic eczema. This boy is literally so strong and his spirit is beautiful. What a dude 👏🏻👏🏻👏🏻, we are rooting for you John Hudson 💕 kudos to your momma for being a rockstar too. 🥰
He's 21 so a man, not a boy.
@@DoABarellJoa lot of older adults refer to people in their 20s as kids because they’re still young. it doesn’t mean he’s an actual kid
@@meghan_. Yeah and a lot of people with disabilities are infantilized. His disorder restricts his growth. We shouldn't be referring to him as a kid just because of his size and voice.
@@DoABarellJo i agree with you, but that isn’t the case for this situation.
@@DoABarellJo THIS YOUNG MAN. Oh wait I didn't ask pronouns either. People like you will pick things out of nowhere. You need a therapist and as the KIDS say, touch some grass boo.
Chronic pain is no joke. John Hudson is such a sweet soul. Best wishes for this guy, he deserves it.
I’ve followed John Hudson’s story for years and what always grabs me is the fact that when he talks about his birth, he’s always more concerned about how his parents must have felt. Saying he is an inspiration really doesn’t do him justice, you are just an amazingly beautiful person. I am so happy to hear this new treatment is helping you, I truly am.
I have bullous pemphigoid. Which is similar but not as bad. I get random blisters all over and my skin is paper thin. Rips so easy. This boy has taught me patience and acceptance. I won’t complain anymore as my disease is 80 percent controlled now. I have harsh medicines but I’m able to get around and work still. This boy is such an inspiration. ❤❤❤
As someone who lives with a severe form of atopic dermatitis, my heart goes out to him. This is 100x worse and I'm really impressed with his resilience. I hope everyone is able to stay strong. Especially mentally.
I have atopic dermatitis as well and agree! We got this 😎👍🏽
My son has atopic dermatitis and he doesn't even have a life or go to school because of it. Seeing this kid and his mother makes me wanna keep going and not give up . He so strong ❤
@@simabelsky3471long-term severe eczema
Adult AD patient here, too. No words needed.
Aquaphora/water emulsion has helped me tremendously with atopic dermatitis.
(One of the) the strongest people you have ever interviewed. Mad respect to John.
Incredible. I feel like I've been following his life for years. It's nice to hear some good news.
John Hudson’s positive energy and attitude, makes him a blessing.
I remember him❤❤sending so much love, we are the same age! I donated after the last interview, i think John was the one who said something that i have written down:
- What's the most important thing in your life?
- The fact that I have one....
Thinking about this answer a lot.
Such an amazing statement from an amazing young man!❤
I’m only a few years older than John Hudson and though I struggle with my own chronic conditions I can’t imagine how strong he is to go through what he deals with every day. I don’t think I could ever be that strong.
Yep, made me cry. Greetings from Australia.
What a pleasant surprise to see John Hudson on SBSK today! I honestly wasn't sure if he was even still with us, so seeing him today was so wonderful! This new treatment they're trying is exciting! I pray they're able to find a cure for EB. I would love to see him able to travel to Japan. John Hudson's humility is awe-inspiring! ❤❤
RIP to Johns father and condolences to all who knew and loved him. I truly wish the best for John and his fight against EB. John has an endurance of pain at a threshold I could not imagine. His daily suffering is something hard to grasp.
On top of all he's been through, he lost his dad, too. My heart goes out to him, I love him so much
This kid is something else, like the next evolution of humanity. I'm 100% sure almost nobody else could endure like this. Absolute mythic champion.
I completely agree! He is the epitome of strength and resilience.
He's 21 so not a kid.
@@DoABarellJo Thanks for pointing this out. I was thinking the same thing, this is literally a man.
@@ogioblueThey've suffered the same condition since birth
@@Ktmfan450 I'm not saying anything is wrong him being a man or being featured on this channel or anything. I'm saying we should probably respect him and call him what he is. A man. Not a child.
Immediately clicked when I saw John Hudson. The strongest kid that's ever lived. Good to see you JH keep fighting
He's 21 so not a kid.
The strongest person of any age I think....
@@DoABarellJo Yes he is a kid! So is my 19 year old son
dear God, I gotta stop complaining when I have a bad day, or a headache or my knee hurts. Surely this guy will set on the throne beside Jesus.
Jesus looks at this guy and counts himself lucky
@@Ktmfan450L comment
@@Yxngzul L Book
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@@Ktmfan450 L you
The amount of tears I shed for this boy… such a strong and brave soul…
I love you and hope and pray that you heal brother ❤
John Hudson is a true hero. His mother (and late father) as well. What an amazing son they raised.
Wow he's already 21! Time flies. He is such a smart dude, I hope an effective treatment can be found soon. I urge everyone to share and donate
It's discouraging to see how much John Hudson has deteriorated over the years, but then the young man speaks... I always come away from his interviews admiring such a noble, humble man. He truly is a hero for all who have EB. I am so thankful to see real results coming about from research as awareness improves about this awful genetic disease. Praying for you and your sweet family, John Hudson. Losing your father had to be really hard for everyone.
I don’t have any words. I literally never have the right to complain. This young man is stronger than anyone I've ever met.
This young man has been through more pain in his few years than what most of us will go through in our entire lives. RIP to his loving father that passed a couple years ago. I really hope they can help him soon because 21 years already, that strength is beyond ethereal.
I had 16 Kidneystones in 10 years. But I think I would not want to swap places
What a tough, cool guy. He was more worried about what his parents went through when he was born than himself
He’s 500x more mature than any 21-year-old I’ve ever seen. It’s obvious why, but I wish every high school and college freshman class would be made to watch this.
At someone who is 20 I completely agree, he seems so much wiser than me and my peers, crazy how that much hardship can mature you like that.
I see people like this and it just crushes my spirit. God either doesn't exist or doesn't care about us.
John Hudson you are a warrior. I know that you didnt choose this battle, but you do choose to fight and not give in, for this you are a role model for all men.
Every day that you stay strong and positive, even stoic if need be, is a day that men, including myself cannot give up on our duty to fight the good fight. We cannot quit for pain, despair or for any reason.
Your struggle and unwillingness to quit is warrior's story for the history books. Every day you push forward, you push the bar higher for all of us.
I hope you find relief with this new treatment.
His cat Romeo is there for him too 👍🏻 Sorry to hear about his dad passing 😭😱
I know someone who has to be in bed 24/7 as well, but even his condition is not to this level. I don't even know what to say. This young man deserves the world.
This is a holy person. Exudes grace and love. God bless him and his family.
I haven’t shed a tear in years… John brought something out in me I hadn’t thought possible. The brightest of souls often have the darkest of paths, such as beautiful mind heart and soul
I am literally in tears right now 😭… he has been through SO much. I remember seeing the very first video of him all those years ago and thinking MY pain couldn’t possibly be that bad… knowing hes still fighting gives me strength.
John Hudson: I wish you all the best in life. I’m sorry about your Dad- my second Dad passed away last year… huge air hugs. I hope this new treatment gives you some relief and healing ❤️🩹
Much love, from Iowa
Me 2. This boy is a good soul . He fights with grace . He is a hero for us weaker 1s
I can’t express how happy I am for John and his family. Really hope it works.
I hope too but the dear child has to wait at least 6 years 😢
@@cindyjofaithful4469 Is that how long the treatment is predicated to take (to show positive results)?
Chris has this superpower to always ask questions in the right way, right tone of voice, right empathy, right level of detail etc. You Chris deserve all the followers you have on the channel ❤
What an incredible young man! I hope the cure they have spoken of by 2030 is a reality. What a painful disease.
13:21 "You know, some things change but that doesn't mean that you can't change with it and you can learn to make those things work" thank you John Hudson, you are so young and so wise, I wish you all the best!
I’ve been sitting here complaining about my severe eczema and painful flare ups, while this strong young man is taking on this battle with full force. Blessings to you.
Be kind to yourself. Another persons pain doesn't mean your pain doesn't exist. Another persons pain doesn't mean your pain doesn't impact your life.
Yes, be grateful for what you have, but be gentle with yourself too.
Was just speaking of this with a friend who just had her leg amputated. She said other people have it so much worse. That was my mantra as an abused child. It took many years to understand that we can empathize with those less fortunate than we are but it doesn’t mean our trauma isn’t valid.
I told her it was ok to recognize and validate her pain. We just can’t dwell on it and let it take us down.
This young man…dear Lord! What a phenomenal human being! I can’t even fathom! God bless you and may he bring you comfort and healing with this new ointment! I pray it works better than expected!
Look up Avené. They help so many people. It’s a clinic in France that you can get treatments for but they sell their products online.
i used to have severe eczema too, i mean like my clothes, bedsheets, pillows, etc. would always be bloody and i had massive wounds all over my body. it was so painful just to get out of bed that i pretty much laid in bed all day, it wasn’t easy. i can understand all the pain you go through, but just because john’s condition is worse than yours doesn’t mean yours is nonexistent. hang in there, your skin won’t always be like this
Please try the Avené Thermale Spring water and their products . They’re amazing. They also have a dermatology center in France that you can go to for treatments. There are stories of children and adults being cured there. My eczema is a lot better since I used their products. I get flares when I’m nervous. It’s important to keep the anxiety at bay for me.
John, you are thoughtful, articulate and unbelievably tough. I pray for you and your family!
Dude i am a 5th grade med student from turkey. Last week in my dermatology course i thought about you and your disease. İ love you guys i love you john. İ love your shaky little kid sound. You make my heart soft and human. İ was a devil before i know you. İ will study harder for beatiful kids like you
My sisters granddaughter will be one in June. She has EB. She's been in the hospital many times, just recently getting a tracheotomy and feeding tube. She's definitely a little fighter. I've been following John for many years. I'd like to thank John and SBSK for teaching me about this. Also John, thank you for being a big part of the research. You are one amazing young man!
This man is a chad among chads. I wish him a successful treatment and a long healthy life after that.
John, I’ve been in chronic pain since I was 15 and am almost 70. But the difference between us is huge, your pain is with you every waking moment, and so much worse than mine. I know we shouldn’t compare pains..it’s a futile exercise.. I am praying that an even better outcome for you. While I’m so grateful for your topical treatment, I’m praying for something better! Much love from the Brit lady in northern Portugal 🇵🇹 ❤