Unexpected 20 Week Ultrasound | Our baby has Spina Bifida...we need prayers..

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  • Опубликовано: 22 авг 2024
  • Thank you for your prayers as we walk through this with faith that God is, and will move.
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Комментарии • 1,9 тыс.

  • @autumnmay2862
    @autumnmay2862 4 года назад +1680

    My son was born with SB 21 years ago!!! There are so many levels of SB!!! My son had surgery at 2 days old and 2 years old! To God be the Glory he is playing his final year of college football!!!!

    • @MTknitter22
      @MTknitter22 4 года назад +16

      Autumn May Great testimony of God’s Goodness. All will be well! Trust God.

    • @1ARGS2020
      @1ARGS2020 4 года назад +9

      How motivating !!! God bless !

    • @alicruz4946
      @alicruz4946 4 года назад +6

      Autumn May this is amazing

    • @CDeeva05
      @CDeeva05 4 года назад +8

      Praise the Lord!

    • @MPHernandez13
      @MPHernandez13 4 года назад +22

      My son has spina bifida he paled basket ball n he is a proud father of 5 kids he has no shunt. He is a plumber

  • @mekylienguyen4482
    @mekylienguyen4482 4 года назад +827

    I was born with spina bifida. Dr's told my mom that I wouldn't be able to walk, talk, or do anything for myself. I have lived on my own since I was 18, and am now 28. Keep the faith! 😘

    • @wonderfulworldofasmr4084
      @wonderfulworldofasmr4084 4 года назад +24

      Same i was told I was never able to have kids and I'm currently pregnant with my 3rd baby I have a 4 year old and a 2 year old

    • @see5597
      @see5597 4 года назад +11

      @@wonderfulworldofasmr4084 God bless y'all!!!! God is Great!!! Nobody can stop what he's already set in stone. 🙏🙏May God continue to bless!!!!😊🙏

    • @AliceRoche-ii2ke
      @AliceRoche-ii2ke 4 года назад

      @@see5597 spina bifida isn't a blessing.

    • @see5597
      @see5597 4 года назад +10

      @@AliceRoche-ii2ke , please comprehend what you read.🙄

    • @AliceRoche-ii2ke
      @AliceRoche-ii2ke 4 года назад

      @@see5597 I have done.

  • @dreesebrownlee6
    @dreesebrownlee6 4 года назад +352

    Yes, my daughter was diagnosed with spina bifida through an ultrasound , she was actually fine! GOD is with you !!!

    • @gia9551
      @gia9551 4 года назад

      The exact same thing happened to one of my best friends growing up. I remembered it instantly when I saw this video

    • @Rachel-su3ir
      @Rachel-su3ir 4 года назад +1

      Like she was born healthy?

    • @jennaepratt
      @jennaepratt 4 года назад +3

      Same thing happened to me! I was "supposed" to have spina bifida as diagnosed while in the womb, born with no issues at all.
      I do have a learning disability, dyscalculia, and there is some crossover with that specific issue and spina bifida, so I always wonder if thats a remnant of the issue.
      Remember how limited our medical technology is, and how MASSIVE our King is.

    • @Lmr2021
      @Lmr2021 3 года назад

      Do you remember how they came to this conclusion? Did she have a banana shaped cerebellum or clubbed feet in the ultrasound?

    • @shaheensofia5157
      @shaheensofia5157 3 года назад

      I also suffer from same issue ......Spina bifida in third trimester of pregnancy.......I'm too worried plzzz help me out of this

  • @ashleymcallister375
    @ashleymcallister375 4 года назад +322

    Doctors told my mom that my younger sister needed to be aborted because she had SB and would be severely disabled. (more than 20 times they told her to abort) My younger sister was born perfectly healthy and functional.

  • @FrannRants64539
    @FrannRants64539 4 года назад +614

    I was born with spina bifida and PLEASE don’t stress until the baby is born!! They told my mom I would be wheelchair bound but I walk and I’m more independent than ever. It will be totally fine!

    • @jasminethornton3078
      @jasminethornton3078 4 года назад +15

      God bless you Fran for shedding some hope on her situation!!!!

    • @cathyl6716
      @cathyl6716 4 года назад +9

      @fran I was born with Spina Bifida too! But my story didn’t end on a good note mobility wise :( I’m glad yours did tho! 💗

    • @alexthegreat3862
      @alexthegreat3862 4 года назад

      Fran DeFilio Well said 🙌🏼

    • @reneevendelo7452
      @reneevendelo7452 4 года назад +4

      Good for you! Same with me iam 32 now i walk i have a healthy daughter Who is almost 8 now you can still have a good life if you have spina bifida..

    • @yelahm4084
      @yelahm4084 4 года назад +1

      @@reneevendelo7452 How was your pregnancy?

  • @shelbygrater2995
    @shelbygrater2995 4 года назад +496

    I have spina bifida and I’m perfectly fine in every way. I have had no issues since i was two months old and I am now 24.

    • @RaquelNavas
      @RaquelNavas 4 года назад +18

      We need to tell our story I also have Spina Bifida myelomeningocele.

    • @itsmenatty3252
      @itsmenatty3252 4 года назад +2

      ❤ ❤ ❤

    • @itsmenatty3252
      @itsmenatty3252 4 года назад +2

      You ladies are strong and beautiful!

    • @gracesauer5392
      @gracesauer5392 4 года назад +11

      I have myelomeningocele and I’m doing fine as well! Had a shunt revision at 6 months and a few surgeries throughout the years but I’m 17 now and doing great!

    • @brittanybearg7559
      @brittanybearg7559 4 года назад +1

      Raquel Navas so do I!

  • @lindsg1549
    @lindsg1549 4 года назад +334

    My aunt was told to abort my cousin because he would never walk or talk due to the severity of his SB. He has to wear leg braces but he always kept up with us all growing up. He played how we played. Swam. Played sport etc. he’s now an assistant deputy district attorney.

    • @priscillafrye2951
      @priscillafrye2951 4 года назад +13

      Unbelievable! So if any of us lost our ability to walk or talk we no longer have any value? My first cousin was born in the 1940s with Duchennes Muscular Dystrophy. At that time, this afflicted rarely lived more than a few yrs. His parents were told to institutionalize him as was often done then. His parents said NO WAY! How dad stated a little league team so he could play baseball. My cousin hit & his dad ran the bases. My cousin was also mildly mentally handicapped (but smarter than all of us in a lot of ways) so his dad started the first organization in the city for the mentally handicapped.

    • @charliehinds700
      @charliehinds700 4 года назад +1

      oh wow! awesome new

    • @kaellarosenberg166
      @kaellarosenberg166 4 года назад

      Linds G many people underestimate children with bad odds but they prove all,those doctors wrong.

  • @amandafis1834
    @amandafis1834 4 года назад +23

    I was born with Spina Bifida 32 years ago! The only limitations this baby will have is what you put on him. Raise this baby to be independent and they will be. I'm married and living on my own.

  • @Goddessanamichelle
    @Goddessanamichelle 4 года назад +153

    I am the wife of a pastor , God have him a word about 3 days ago . I was telling him about your story . & he said he feels in his heart that God gave him this word for you . “Do not let your heart be troubled during this calamity or tribulation because the result is going to be a miracle way bigger .”

  • @madelineworth4491
    @madelineworth4491 4 года назад +266

    My skull was deformed & I died when I was born & they brought me back. My spinal cord was & is still messed up and guess what? I turned out okay plus I’m in nursing school. I almost died again two years ago in the hospital and God kept me alive. God’s hands will always be on you. Praying for you & he will finish what he started!

    • @justerinthings1732
      @justerinthings1732 4 года назад +17

      Why would you tell them how many times you've DIED when they're dealing with this?

    • @madelineworth4491
      @madelineworth4491 4 года назад +24

      Just trying to encourage them that something bad might happen (like me) but good can and WILL come out of it! :)

    • @cleliaann
      @cleliaann 4 года назад +6

      madeline worth you’re so strong and beautiful!

    • @madelineworth4491
      @madelineworth4491 4 года назад

      Clelia Ann thank you girl you are too! :)

    • @louiethaxton9482
      @louiethaxton9482 4 года назад +1

      amen ♡

  • @fr.jimwatersfranciscanprie7187
    @fr.jimwatersfranciscanprie7187 4 года назад +99

    My friends.. I was a neonatal chaplain for many years..and while serving in Iraq and Afghanistan I delivered two babies.
    Now listen.. your baby has lower lumbar..meaning this is best. Get another de using..have the surgery .. they tend to be less encouraging. He seems to be mild ..keep faith.. I knew many friends who were like yours. I am praying.. keep each other strong. I will keep up on this. Huge strides are being made. Bless you all. Fr. Jim Waters, PhD, us army retired, Maj.

    • @DandyBeingTandi
      @DandyBeingTandi 4 года назад +7

      Thank you for your service, sir! I am praying so hard for this baby.

    • @scottfam5752
      @scottfam5752 4 года назад +1

      ❤️❤️❤️

  • @danicakeppler1172
    @danicakeppler1172 4 года назад +55

    Sometimes god allows something in your life that only HE can fix so that you will get to see him fix it. 💛 I’m praying for you. I promise!!

  • @sierralori8756
    @sierralori8756 4 года назад +320

    I’m so happy that others who also have spina bifida are commenting to let you know that they are okay and doing well! I’m not a doctor, but I hope and pray your baby will be able to live a happy, healthy, and normal life! ❤️

  • @heyitsmet333
    @heyitsmet333 4 года назад +245

    Baby boy is perfectly formed in His image. No matter what, he is your precious baby boy & he is a miracle & such a beautiful blessing ❤

    • @kevinpackard8094
      @kevinpackard8094 4 года назад +1

      Me and my family are praying for your baby! The Packard family!

    • @alexisallegar1309
      @alexisallegar1309 4 года назад +1

      C&D Vlogs they’re having a boy?

    • @heyitsmet333
      @heyitsmet333 4 года назад +1

      @@alexisallegar1309 yes. A beautiful baby boy

  • @joyful9984
    @joyful9984 4 года назад +73

    A lot of those who would be the best parents are “entrusted” with the stronger challenges in this life, God loves you, and no matter the outcome your special to have one of His special angels. Prayers and blessings 🙏🏻

  • @ZIKKIESWORLD
    @ZIKKIESWORLD 4 года назад +62

    This is exactly what am going through now.
    My daughter was born with a mylomeningocele,(spina bifida).the worst case of spina bifida,it changed my life till today.
    The doctors said so many horrible things ranging from she will not walk,eat,talk and will totally depend on me.
    They gave me an options
    Termination or live with whatever I see.
    I cried from 20th week till I had her because no mother will envision there kids to depend on them for there entire life
    She is 20months just learned how to crawl and she crawls around the house,she has neurogenic bladder which she depend on straight caterization.
    I have always trust God for strength to pull through every single day and believe that God has a plan for her which I don’t know now.
    I still look up to God for miracle in her life
    THATS HOW I GAVE HER THE NAME MIRACLE
    you are not alone,praying for you.

    • @cpmffeilberg4970
      @cpmffeilberg4970 4 года назад +2

      I love that name, miracle. God bless you and your precious baby.

    • @rachelellis4375
      @rachelellis4375 4 года назад

      ZIKKIE'S WORLD I just subbed. You are an awesome momma. My son has been diagnosed with a neurogenic bladder and it has been frustrating to say the least. It’s been a fight to be able to straight cath him. The urologist that we do not see anymore, said that you don’t straight cath until he holds his pee in Everytime. Would love to hear some of your thoughts, what doctors have said and what plan of care is. My son started doing this in May and has had many UTI’s and actually went septic back in August. I am still terrified of this happening again and am still searching for answers.

    • @ZIKKIESWORLD
      @ZIKKIESWORLD 4 года назад +1

      Cpmf Feilberg thank you

    • @ZIKKIESWORLD
      @ZIKKIESWORLD 4 года назад +1

      Rachel Ellis my baby is a girl and I straight cath without any complain but she suffered UTI when I started newly so after 2 months she is free from UTI.

    • @cpmffeilberg4970
      @cpmffeilberg4970 4 года назад +1

      @@ZIKKIESWORLD you are so welcome.

  • @addisongriffin9966
    @addisongriffin9966 4 года назад +71

    Don’t lose hope! When my mom was pregnant with my sister, she was told that my sister had a cyst/tumor in her brain and that the best option would be to abort her because she wouldn’t live past a year. Well, my parents didn’t listen. They prayed and trusted God and when they went back for an ultrasound, it was gone. Like it had never been there. She is now 16 and perfectly healthy!

    • @JJBird1118
      @JJBird1118 4 года назад +1

      Addison Griffin I had the same thing with my 2 year old and she had a cyst at 18 weeks and it was gone at 22. God can move mountains!

  • @celestedekock4841
    @celestedekock4841 4 года назад +225

    “He shall cover you with His feathers, And under His wings you shall take refuge; His truth shall be your shield and buckler.”
    ‭‭Psalms‬ ‭91:4‬ ‭NKJV‬‬
    Hey Lexie, when I watched this video the Lord put Psalm 91 on my heart for you guys...

    • @tiffanyeulalah4781
      @tiffanyeulalah4781 4 года назад +1

      Amen....

    • @MTknitter22
      @MTknitter22 4 года назад +1

      Celeste de Kock Amen. The key? We believe what PS 91 says so deeply that we stand on THAT first and know all circumstances are subject to change because we trust God. Sweet couple, all will be well!!

  • @selenamiller6127
    @selenamiller6127 4 года назад +17

    I love how you say this is so small to God. Your faith is admirable. Praying for your family and your baby ♥️

    • @caroh2809
      @caroh2809 4 года назад

      Selena Whipkey yeah I loved and admired this too. This makes their baby extra special to God.

  • @rachelgraybill
    @rachelgraybill 4 года назад +180

    At 20 weeks I was told my son had SB however when he was born the hole had closed. Praying for you 💕

    • @freekimsurr
      @freekimsurr 4 года назад +1

      WOW...AMAZING

    • @kellybergeson3748
      @kellybergeson3748 4 года назад +2

      It may have closed, but that doesn't mean there won't be any problems in the future.

    • @rachelgraybill
      @rachelgraybill 4 года назад +24

      @@kellybergeson3748 he is almost 25 now. 6'2 and healthy. It truly was a blessing.

    • @dezaray2518
      @dezaray2518 4 года назад +2

      Same here❤️

  • @amyflowers7804
    @amyflowers7804 4 года назад +293

    Spina Bifida doesn’t define who a person is. This baby boy is amazing in so many ways. God is bigger than any problems. Prayers for you all!

    • @mistymedina6079
      @mistymedina6079 4 года назад

      Amen!!!

    • @dustystars5306
      @dustystars5306 4 года назад

      It's not a problem. Her baby having spina bifida is what God wanted and Gods will.

    • @amyflowers7804
      @amyflowers7804 4 года назад

      Marisol Ruiz I did not mean than Spina Bifida is a problem. What you don’t know is I too have Spina Bifida.

  • @blueside9359
    @blueside9359 4 года назад +52

    Hey, I’m 24yo I was born with Mielomeningolece, the most severe form of Spina Bifida but located in the lower area (like you mentioned) so ig it didn't affect that much. Natural birth since mom didn't know... I do have neouregenic bladder but manage it with intermittent catheterization, stopped using diapers once I turned 10 :) also received therapy till I was 2yo then started walking and lead a normal life. I have a nephew with the same condition, he’s 8 and travels to USA once a year for treatment. Few obstacles but nothing we can’t overcome. God is the best doctor. We were blessed and I know your baby will too. We are here for a reason. You are strong. Sorry English is not my first language but just wanted to let you guys know my story and that everything is going to be okay. You are in our prayers.

    • @tanyabrown9839
      @tanyabrown9839 4 года назад +3

      very important before you have children .. get tested for MTHFR mutation..

    • @jazzcat717
      @jazzcat717 4 года назад +3

      My condition is the same as yours and in the same area lower lumbar! So nice to read there’s others like me out there 😊

  • @taylorrichards6442
    @taylorrichards6442 4 года назад +4

    My husband and I just started trying to get pregnant with our first baby. I have told him many times that even though I’m hyper aware of everything that could go wrong, I just have this faith unlike I’ve ever had that we are in God’s hands. I’ve always been a worrier but watching you and Craig’s faith and God’s work heal Azariah has been such a reminder to me that fear is a liar. Thank you so much for sharing your story and your faith. It had been such a blessing to me.

  • @sexyjessie612
    @sexyjessie612 4 года назад +43

    God gives special kids to special parents and your baby is already blessed

    • @Abcdefghijajajaja
      @Abcdefghijajajaja 4 года назад +2

      Jessica Meeks that is a ridiculous comment. All kids are special. Where does it say that in the Bible or anywhere that God does that?

    • @Honeybees1005
      @Honeybees1005 3 года назад +1

      I cannot stand this comment. I know it’s well meaning but anyone with a child with a disability cringes when someone says this

  • @LoveIsKind2008
    @LoveIsKind2008 4 года назад +126

    My 11 year old son has Spina Bifida, we also found out at the 20 week scan. Watching your video brought back so many memories for me :( I was devastated, it was my first pregnancy and I was so scared and sad. He wears braces on his legs to help him walk better and doesn’t have any control of his bowel and bladder. It has been a long hard road but my boy is beautiful and so brave and determined. Sending you so much love and prayers, thank you for sharing your story 💙💛

    • @brothertn708
      @brothertn708 4 года назад +1

      LoveIsKind2008 I’m sorry to hear but what do you think happened? Were you taking prenatal vitamins?

    • @brothertn708
      @brothertn708 4 года назад +1

      lifeassheknowsit I’m not blaming her, I’m simply asking if she took her vitamins since I have read that a lack of folate may cause spina bífida! You’re the one straight out blaming her, you freak ass bitch!

    • @guadisch3136
      @guadisch3136 3 года назад

      @@brothertn708 I took my vitamins and eat a variety rich diet.. We got the same diagnosis.
      There is a genetic mutation where you cannot synthesize folic acid.. So a lot of prenatal vitamins are useless to you if you don't have the mthr gene.
      I had no idea about this. Until now. I am waiting for my results to see if I have this genetic mutation.

  • @loudgirl816
    @loudgirl816 4 года назад +203

    I have Spina Bifida and living life to the fullest . This diagnosis is not the end of the world . You need to be involved with. A support system they’re are lots of groups on Facebook

  • @mariaxo3588
    @mariaxo3588 4 года назад +7

    This made me ball my eyes out. I'm 35 weeks pregnant and with PCOS, was told I may not be able to even have kids.. so the fact that I am is a blessing. I cannot express how sad I feel for you. Because I know how hard it is praying and hoping your child comes out 100% healthy. Praying for your baby and family ❤

  • @alekvalenzuela4161
    @alekvalenzuela4161 4 года назад +6

    At my 20 wk scan my doctors told me my daughter wasn’t gonna have a good quality of life’s she wasn’t gonna breath feed and have many many issues she was born c-section but has proved doctors wrong every day now I have a healthy 7 mo old baby that did everything she wasn’t suppose to do from day 1 through prayers and faith we got through everything and our-miracle was born Send lots of love and prayers for y’all !!

  • @nikkib5753
    @nikkib5753 4 года назад +91

    Please know that Spina Bifida does not mean your beautiful child won't live a long full life, doing EVERYTHING they want to do. Focus on the positives and speak them to fruition. Our God is an awesome God. Much love & prayers. ❤

  • @nikkiperrault6420
    @nikkiperrault6420 4 года назад +111

    Prays for baby boy I know lots people kids that have it your baby boy will be okay God is watching him

  • @rubyolivo4925
    @rubyolivo4925 4 года назад +3

    28 weeks pregnant and in tears; god is good and as I watch this video I had to stop and pray for this family. God bless you guys

  • @brenale_heartsJesus
    @brenale_heartsJesus 4 года назад +23

    Your baby will be fine. God has him in His hands. Be at peace.

  • @kaelynsmith7884
    @kaelynsmith7884 4 года назад +250

    don’t worry. i have spina bifida too. everything’s going to be fine!!❤️

    • @RaquelNavas
      @RaquelNavas 4 года назад +1

      What type do you have and do you walk on your own.

    • @RaquelNavas
      @RaquelNavas 4 года назад +2

      What type do you have??? Do you walk on your own???

    • @kaelynsmith7884
      @kaelynsmith7884 4 года назад +3

      Raquel Navas yeah i can walk. idk what type i have though!

    • @kristenkate06
      @kristenkate06 4 года назад +2

      @@kaelynsmith7884 can you tell me what it is please

    • @kaelynsmith7884
      @kaelynsmith7884 4 года назад +10

      Kristen Montgomery i can explain it very well, but i’ll try and you can google it too. so basically your spine is outside of you and you aren’t supposed to walk. i’m able to walk and i’m sure this baby will too. anyway, i had to go into surgery right after i was born to close my back up. i have to wear ankle braces to help me walk easier. for people with spina bifida that can walk, it takes more energy to do things that you take for granted, like walking. i can’t run, or jump either. that’s all i can explain right now, but you can look it up!

  • @faylew1012
    @faylew1012 4 года назад +175

    God doesn’t make mistakes, he knew you were the parents this sweet boy needed.

    • @heyitsmet333
      @heyitsmet333 4 года назад +4

      Yes! People now days would opt to terminate the pregnancy because the baby isn't "perfect" The Lord knew exactly which parents to give this baby to so that wouldn't happen 💖
      Baby boy will be perfect no matter what & he will be such a blessing to this family.

    • @teresedawn1008
      @teresedawn1008 4 года назад +14

      C&D Vlogs this comment is so inconsiderate. People don’t just terminate because the baby is not perfect. They make the very difficult decision to terminate for many reasons including; health, risk of theirs or baby’s life, no funding to be able raise a child with a disability (not everyone can afford hundreds of dollars worth of equipment and medical that comes with it), mental health is another important thing too.
      People don’t terminate lightly. So please keep that in mind when commenting.

    • @monicaduran9688
      @monicaduran9688 4 года назад +3

      I believe this is true. They are a strong couple and God knew they would be perfect parents for this sweet angel.

    • @amyfraser6964
      @amyfraser6964 4 года назад

      The Lewis Lewnatics Amen, 🙏🏻🙏🏻🙏🏻 for all three in this new family

    • @marysayre7142
      @marysayre7142 4 года назад +1

      @@danielle4971 people with spina bifida are not retarded. Have some respect.

  • @Cathy-re2eo
    @Cathy-re2eo 4 года назад +6

    My daughter’s friend had surgery at 23 weeks I believe. Her daughter is beautiful. God is good!

  • @alyssabird720
    @alyssabird720 4 года назад +59

    I have spina bifida in my lower back and I'm 25 years old. Didn't even know I had until a few months ago when I got an xray. It's not the end. Sometimes people don't even have symptoms. my only symptoms are lower back pain and some bowel problems.

  • @cbeann12
    @cbeann12 4 года назад +81

    I haven’t even watched this whole video, but based on the diagnosis I want to say I was in your same position in January of this year. I remember hearing the news and feeling heartbroken, not knowing anything about the condition. My sweet, sweet baby boy is now 6 months old and I can promise you he is the absolute best thing to ever happen to me and to my family. You will get through this. Everything will be okay. Keep your faith and stay strong.

  • @brooken8593
    @brooken8593 4 года назад +20

    Hey!! RUclips somehow recommended me this video, and I feel like it's a God thing. I am 26 years old and just had a baby boy with spina bifida. He is the light of our lives and he has touched more lives in his 4 months of living than I have in my entire life. I know exactly what you are feeling. Please please please feel free to reach out to me for any questions or if you just need someone to understand your pain! God chooses special people to be spina bifida parents!!

    • @brooken8593
      @brooken8593 4 года назад +1

      If you are interested I will give you my number to text or call me, but only if you feel comfortable with that. And only when you are ready to talk about it. I had intrauterine surgery and my baby boys defect was in the lumbar region. Praying for you both and your sweet baby!!!

    • @luciadelarosa6437
      @luciadelarosa6437 3 года назад

      Brooke, I would love to talk to you. I need to talk to someone who knows what I am going through. My baby was just diagnosed with SB and I am completely overwhelmed. I am 18 weeks pregnant. (760) 282 7958 thank you.

  • @angelinaolivera8808
    @angelinaolivera8808 4 года назад +1

    At 2 months old my little boy who is now 7 was diagnosed with Muscular Dystrophy. My oldest brother and my youngest brother have both passed away from the same illness. There is absolutely no cure for it. And it's a matter of time until he is in a wheelchair. The hardest part is knowing what will happen to my son and there is nothing that I can do. My husband and I have been through the worst of anguish but God held us through the storm. Our faith was made stronger. Our son is our greatest blessing. My prayers are with you both. As a mommy I feel your pain. God is faithful and God will make a way. 🙏❤

  • @sydneymason4165
    @sydneymason4165 4 года назад +8

    I had surgery for my spinal bifida when I was 6 weeks old (the doctors didn’t find it until I was born) I’m 16 now and ive never had any issues from it. Keep praying and everything will be alright.

  • @KaraMcLaney
    @KaraMcLaney 4 года назад +64

    Crying with you both. ❤️ You’re so right about this being SO SMALL for God. He is in complete control and will bless all three of you. Your faithfulness is incredible. Praying for you all.

  • @aschofield687
    @aschofield687 4 года назад +42

    I have it and I can walk and talk and do anything my parents prayed. Everything will be ok

    • @MTknitter22
      @MTknitter22 4 года назад

      Addie Schofield Amen! Don’t let ANYTHING steal the Joy of the Lord

  • @priscillaJefferson9880
    @priscillaJefferson9880 4 года назад +6

    You're baby is healed in the name of Christ! All praises be to the Most high God!

  • @lamarschmucker9666
    @lamarschmucker9666 3 года назад +1

    I was born with SB over 42 years ago. I have had over 34 surgeries and have been married for over 20 years. We have a wonderful God above us. Don't give up God is still in control.

  • @cassidyjsmith6073
    @cassidyjsmith6073 4 года назад +60

    Lexie, your faith in God is admirable. He will bring your family through this. Praying so hard for baby T. ❤️

  • @amnahc2002
    @amnahc2002 4 года назад +52

    I also have spina bifida and I’m 17. Don’t worry. Everything will be fine ❤️

  • @hailee4978
    @hailee4978 4 года назад +4

    Went back to rewatch this video after watching Azariah’s 4 month update.. what a MIRACLE baby. I love looking back on this video because it shows how far you all have come. I am so proud of you guys for being strong & having unshakable faith. God is SO GOOD.

  • @kellyrose5379
    @kellyrose5379 4 года назад +1

    When my mom was pregnant with me, she was told my limbs would be much smaller than normal and I would not be very mobile. I did have to have heart surgery right after being born and again at 1 1/2 years old, I will say, all of my limbs are normal. I am a healthy 30yr old woman who is thriving. I am blessed. I want to send you words of inspiration. You two will be amazing parents, god will bless you and your child and I will pray for you. Take deep breaths mama and dad ❤️
    Much love to you all ❤️

  • @ashleyeklund.586
    @ashleyeklund.586 4 года назад +30

    My cousin has this.. he's 22 and wheel chair bound.. BUT he brings so much joy to everyone's lives.. Try to keep your chin up.

  • @maddieheartsmakeup1
    @maddieheartsmakeup1 4 года назад +61

    At my anatomy scan with my son they told us he had spins bifida but when he was born it was closed. Prayers for your family!

    • @tanyabrown9839
      @tanyabrown9839 4 года назад

      please get yourself tested for MTHFR mutation before you have any more children as next time you may not be so lucky and if you have this issues are preventable.

    • @maddieheartsmakeup1
      @maddieheartsmakeup1 4 года назад +1

      Tanya Brown I’ve already been tested for it, I don’t have it.

    • @tanyabrown9839
      @tanyabrown9839 4 года назад

      @@maddieheartsmakeup1 that's good then.

    • @KQuinn672
      @KQuinn672 4 года назад +1

      Amen! Let it be so for these parents! Lord please close the spine!

  • @munes466
    @munes466 4 года назад

    My cousins daughter has SB. It was a rocky road in the beginning for them. Lots of surgeries and doctors appointments, hospital stays. Many said she wouldnt live very long, let alone be able to move her let's or walk, but let me tell you, that beautiful baby girl, proved every one of them wrong!!!! She moved her legs and even better, she crawled!! Shes coming up on her 3rd birthday and NOTHING can stop her!!!! Have faith in the Lord and his magic to work miracles!!! These beautiful blessings come straight from God. Yes a doctor knows medical issues, but God knows ALL!! Prayers for you and your family!!!!

  • @debbiejett789
    @debbiejett789 4 года назад

    My daughter was born with the most severe form of spina bifida possible that is still compatible with life. T12 level. Has been in a wheelchair all of her life...30 years. You would never meet a happier woman, a more independent woman! She has a shunt, revised 5 times in her life. She drives, works, is fully independent! God has been our source of strength for 30 years! No matter HOW He answers, the answer is always good because HE is good! I know you are devastated because i fully remember ALL of the same feelings that you are going through. We prayed and believed and prayed and believed. We STILL believe fora miracle! Your baby IS a world changer and God will be glorified! My husband and I are praying for you and your husband and your baby!!

  • @tinselbmerryweather
    @tinselbmerryweather 4 года назад +13

    Definitely praying.
    I have Spina Bifida, I have family members with it, just because they don’t look like they don’t have it doesn’t mean they don’t. My cousin was serving in military, and recently found out he has it.
    We all are ok, happy healthy. I can’t imagine how you feel, but please know God has 100+ reasons why he has it.

    • @RaquelNavas
      @RaquelNavas 4 года назад +1

      I'm the only one on both sides of my family. Nobody else has it but me. I have myelomeningocele.

    • @tinselbmerryweather
      @tinselbmerryweather 4 года назад +1

      Raquel Navas I have that too

    • @tanyasweatland9244
      @tanyasweatland9244 4 года назад

      wait you do not just get spina bifida your born with it what are u talkin about your cousin just found out he has what its not spina bifida your born with that there is not a chance of getting it its not like a cold

    • @tinselbmerryweather
      @tinselbmerryweather 4 года назад

      tanya sweatland the military never detected it because he had full use of everything. My Aunt who was a nurse guessed he had it the last few years. He was tested and they gave him a dishonorable discharge because he didn’t know he had it. Their tests were wrong at the beginning. He can do everything perfectly fine, but has the syndrome.

    • @tanyasweatland9244
      @tanyasweatland9244 4 года назад

      @@tinselbmerryweather what sydrome i am confused

  • @ciskejohnson1997
    @ciskejohnson1997 4 года назад +34

    “If God brings you to it, He will lead you through it.” Suburbians 3:9
    Prayers for you, your husband, baby boy and your family ❤️

  • @rebeccaswift7588
    @rebeccaswift7588 4 года назад +9

    23 years ago my daughter was told that her unborn son had SB..but they were wrong..he was completely healthy with no issues at all..he's 23 now..

  • @vxoxo12
    @vxoxo12 4 года назад +17

    I'm currently pregnant & this just touched my heart so much. I know it worries you as a mother holding your baby inside you..Try to keep your head up..prayers🙏

  • @Ag-vq5xd
    @Ag-vq5xd 4 года назад +17

    Praying always, but God is control! I have two cousins with spina bifida and they are amazing in their own unique way! It takes special parents to raise such a special, wonderful child! 💙

  • @abbeyhuber8118
    @abbeyhuber8118 4 года назад +8

    Oh Lexie ❤ I can't imagine how you're feeling, but please remember, God gave you this little boy for a reason. We all say "we just want a healthy baby", but when we may find out there is something that isn't perfect, you still love that little boy so much and he is exactly who he supposed to be. God has a plan for him. He will do great things. Sending prayer for you all ❤

  • @anjatknudsen
    @anjatknudsen 4 года назад +1

    Please dont stress, i was born with spina bifida, also lower lumbar❤️ and i know many awesome people with SP who lives their best beautiful life🙏🏻 I myself sit in a wheelchair, and yes i do that 24/7 BUT I can still drive my own car, swim, ride horses. All this without an feeling below my knees or strength in my legs from my waist down. And yes i have bladder and bowel “issues” but my life is beautiful and so will your sons life be❤️

  • @DrSP-wu8wd
    @DrSP-wu8wd 4 года назад +2

    Watching this after you have taken your son home i am bawling. God is amazing and truly gives us all we need and blesses us beyond belief.

  • @coralscraftslady
    @coralscraftslady 4 года назад +34

    My friend had it, and she is in her seventies now! Praying,

  • @MsNeal2023
    @MsNeal2023 4 года назад +30

    He's perfect, just how he was meant to be. Praying for you!

  • @alittlewheiser521
    @alittlewheiser521 4 года назад +3

    The key word....doctor "thinks" your baby has spina bifida. God is all knowing and has given you your child in his image. Praying for you for strength and comfort. Your baby is going to be perfect no matter what and he will be loved unconditionally by you both. Prayers from California. ❤

  • @hannahnicole7522
    @hannahnicole7522 4 года назад

    Girl please do not stress!! God is so faithful!! My sister was born with Spina Bifida in 2003 with the same diagnosis as your sweet baby and back then they didnt have the equipment or technology of todays world. They told our mother that she would not be able to walk or talk! That girl went into surgery 2 hours after birth and was in the NICU for almost 3 weeks and I won't lie to you it was hard. It was also hard in 2008 when her shunt went into failure and she had to undergo massive brain surgery..but we got through it and she has been otherwise healthy! She is THE BIGGEST blessing in our lives and let me tell you she is a spit fire! She's my reason for believing. She has seen multiple doctors most world renowned and not one of them can tell you how she has the ability to walk. She truly is a blessing. Most of the time no one even knows there is something "wrong" with her aside from her limp but that girl defies the odds everyday and I know that with god on your side your sweet baby will too! God never gives you more then you can handle! My prayers are with you both but I know you're in good hands!! ♡

  • @Jennamariedawkins
    @Jennamariedawkins 4 года назад +7

    My husband and I are speaking full healing over your sweet boy! And peace for your whole family❤️

  • @sarahflick1173
    @sarahflick1173 4 года назад +22

    The intrauterine procedure saved one of my close friends. The procedure has come a very long way and can and will help baby boy. You guys are in my prayers. ❤️

  • @msm5887
    @msm5887 4 года назад +52

    This video was recommend to me by RUclips... God sent me to tell you: This was no surprise to Him, as it is to you. As such He is still in control - When all is said and done He will be glorified. Do not lose heart - He is God and this is a testimony under construction. Faith is not the absence of fear, but trusting God while fearful ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

  • @destinyd.2931
    @destinyd.2931 4 года назад +13

    Don't stress I have it I've had 4 surgery's aka one when I was 45 minutes old your baby is perfect

  • @marysmiles17
    @marysmiles17 4 года назад +23

    My cousin just went through something very similar. She had in-utero surgery to repair her baby boy’s spine. She had him premature because of the surgery, and they stayed in a children’s hospital until he was full term. They recently came home, and he is doing amazing. He doesn’t have a lot of spinal issues that they predicted, but he has side effects because of the premature birth. I understand every situation is so unique, and I’m not trying to give advice. However if you want to talk to me more about their experience I would love to. Prayers for you during this time, God will make a way ❤️

  • @coolgray14
    @coolgray14 4 года назад +16

    God will never give you something you can’t handle❤️ You’ve helped me grow in my faith and thank you for sharing your journey. Praying for you and your family💕

  • @chriswadecable
    @chriswadecable 4 года назад +1

    My name is Chris and I’m 37 and have spina Bifida Mylomenengicele. My defect is at L-4&5. I wanted encourage you that you guys will make great parents. And I wanted to tell you I live a full life. I lived on my own for 7 years before meeting my wife, I drive a car, and graduated college. Technology today is so much further than it was 37 years ago. My mom didn’t even know I had it til the day I was born. People have asked me if I would change my birth defect if I could and I say no. It has given me so many awesome opportunities like wheelchair basketball and wheelchair racing, being on a telethon and did commercials with our local newscasters. I just found your channel today and am hooked already and look forward to seeing you guys raise an amazing son. God Bless

  • @marissaplus4
    @marissaplus4 4 года назад +2

    Watching this brought so many feelings back when my baby was diagnosed with spina bifida the confusion the fear trying to wrap your head around the whole situation. Keep going your one strong momma have faith, God is an amazing father. My daughter is now 21 months old And is such a miracle and blessing shes the happiness in our family. Like you said God is faithful and yes this is part of yours and your babies testimony I will keep you guys in my prayers ❤

  • @alyscanlon4715
    @alyscanlon4715 4 года назад +17

    I can’t even begin to express how much my heart goes out to you. Praying for your family ❤️

  • @amymiller9478
    @amymiller9478 4 года назад +9

    So sorry....you and your family are being lifted up to the throne room of Christ.
    Thank you for sharing your life with such vulnerability and confidence.
    May the Peace of God be poured out on you through this journey!!

  • @MsCrazyClassic
    @MsCrazyClassic 4 года назад +1

    watching this now that hes here, he was born full term, hes a beautiful and otherwise healthy little boy. God is just showing out through this situation. he is good all the time, even in the sad times. and he works all things for good. Your faith through this so touching and inspiring. You have given God all the glory and honor he deserves despite your fears and he has blessed you for it

  • @BrettinaLaroche
    @BrettinaLaroche 4 года назад

    This journey that God has handed you will become very clear in the future how important your task is. I have a son born with Down Syndrome who is now 45 years old and perfect in every way. His name is Joshua. When he was born I cried about everything but he was mine!! In loved hin so and he taught me to be a better person, to work hard right beside him to be all he could be. What a lesson I learned. Now I reach out to all the new babies and their parents and share all that I learned. You can not see all this now, I would cry about everything he wouldn't be able to do but I finally figured out. I needed to focus on what he could do and help him do it the best he can. He graduated from high school and even went to two proms! I will be praying for you all and please remember when you see that sweet smile for the first time you will know God sent you a special gift. Love to you all💜💜💜

  • @avoryfreeman5038
    @avoryfreeman5038 4 года назад +17

    I am praying for all 3 of you, you’re going to have such a beautiful family and god is going to bless you with all of the miracles.

  • @nicholefrank6770
    @nicholefrank6770 4 года назад +3

    I just started watching you. This is my second video. I am going through things that has caused my faith to waiver. You, my sweet girl, are such an inspiration. You're Faith..... You are the real deal and I'm in this journey with you for the Long haul. Thank you for reminding me that God is faithful and that even in the midst of our darkest days we can trust and rest in Him completely. Thank you and I'm so sorry you are going through this but God works things together for His glory. This baby is going to be a world changer. I feel it and I know that doesn't mean much coming from a stranger but I'm telling you your baby is so special and will touch so many lives🙏🏼🙏🏼 I will be praying for you and baby.

  • @WarriorFamily
    @WarriorFamily 4 года назад +2

    My second pregnancy my son was diagnosed with spinabifida & lost him at 30 wks. I was told i couldnt have kids & now i have a son born with chromosomal syndrome 🙏🏼♥️god blesses you with miracles from heaven. ✨

  • @mnoorlander9205
    @mnoorlander9205 4 года назад +1

    It is beautiful to see how children of God are real in sharing their emotions, and show others that a life with Jesus isn't perfect. But you guys show how you hold on to Jesus in the midst of the storm, and your child will look back on this video and see how his parents struggled but kept their faith! It is a beautiful legacy you guys are building, and your faith will grow and jou will become stronger and closer to God. Like you said, God is a: waymaker, miracleworker, promisekeeper and light in the darkness!

  • @kyabaker4312
    @kyabaker4312 4 года назад +5

    This is only the second video of yours that I have watched, but I can tell that you love the Lord. I believe that you guys and this baby will have an amazing testimony, and because of your faithfulness I am believing that a miracle will happen. I am praying peace over you guys and that a miracle happens.

  • @haileynichole1645
    @haileynichole1645 4 года назад +6

    My brother in law his this, and he has/will forever be in a wheelchair. It is HARD but the beautiful people that deal with this everyday are strong, and perfect, and you all will get through this I promise. Many many prayers headed your way. He is and will be perfect no matter what!!💙

  • @MPinFL
    @MPinFL 2 года назад +1

    I love watching these older videos now that Azariah is here and thriving because it’s so apparent how strong your faith is throughout your pregnancy during all the unknowns. You’re such a great role model for how a Christian woman should live!❤️❤️

  • @lisaharrison9546
    @lisaharrison9546 4 года назад +1

    Guys my son who is 15 now had abnormal ultrasounds. The dr said that his brain fissure development was off and was pointing to brain disorders. I would speak over his ultrasound and pray for him and believe for his miracle. Well, the last ultrasound we had, had a counseling appointment with it to help us get through and to be able to ask questions about the issues he would have. We went into the ultrasound and they told us everything looked normal and our child had perfect measurements!!! Don’t ever give up on ur miracle.

  • @ashleemacklin9547
    @ashleemacklin9547 4 года назад +9

    Yalls video just popped up on my RUclips and I wanted to tell y’all that God’s got this and everything will be ok and no matter what your baby will be perfect no matter what. Y’all are amazing. God bless y’all and that baby

  • @petalisyak4242
    @petalisyak4242 4 года назад +12

    I'm in Australia and I'm living proof that you're baby can live a normal happy life

  • @emilynicole.2267
    @emilynicole.2267 4 года назад +8

    I have spina bifida. I'm otherwise a healthy person. I just had my third child and they dont have it. The only compliant in my life is I have constant pain but it is ok. Keep your head up. Things will be ok.

  • @londonr6679
    @londonr6679 4 года назад

    We keeping y'all in our prayers 🙏 my daughter was supposed to be the same but for some miracle of God she was born healthy have faith god works in miracle way 🙏❤️ she's 18 years old now and graduated high school this May 2019 but she was born with scoliosis since she was 7 years old being treated all these years God has done a miracle 🙏 she's doing well it was hard for me as a mother with prayers we have made through ❤️🙏

  • @goglostick
    @goglostick 4 года назад +22

    That’s difficult 😔 Sending prayers for baby and both parents.

  • @corkyjentho9618
    @corkyjentho9618 4 года назад +18

    I started bawling 😭 I’m Keeping y’all In my prayers, Me, My Husband and Our 10 month old lost Our twins in the womb at 20 wks I had to have a D&C done on July 22nd. It’s like one day their hearts we’re beating the next they weren’t, hearing their heartbeats and the one ultrasound are the only memories we have of our two baby boys. So hold on to every amazing moment y’all have. ❣️😭

    • @denaimullet8427
      @denaimullet8427 4 года назад +3

      Corky Jentho I am so sorry for your loss. Will keep you in my prayers.

    • @corkyjentho9618
      @corkyjentho9618 4 года назад

      Denai Mullet Thank You 🙏🏼

    • @Alicia_W413
      @Alicia_W413 4 года назад +2

      I'm sorry for your loss.. God bless you ❤️

    • @QUEENBEE200384
      @QUEENBEE200384 4 года назад +1

      I know you’re probably tired of hearing I’m sorry but I’m truly sorry for you loss. Have they gave you any answers to what possibly may have went wrong.

    • @corkyjentho9618
      @corkyjentho9618 4 года назад

      QUEENBEE200384 it’s fine it’s just going to take time and No they haven’t they just said it could take months but I’m calling today here in a few after mine and my sons nap to see if the have any answers.

  • @priscillaurbina5254
    @priscillaurbina5254 4 года назад +4

    Let go of your worries and stay strong. I have a friend who’s son had it, doctors pressured her to abort. Her son is perfectly healthy now and plays sports and has a perfectly normal life.

  • @MrDoodlebug68018
    @MrDoodlebug68018 4 года назад +4

    Your little one is a blessing no matter what the outcome, stay strong and keep fighting for your beautiful baby boy!Keeping your family in my thoughts and prayers! 🙏❤

  • @CelestRayanneMann
    @CelestRayanneMann 4 года назад +17

    Praying so so much for you ♥️ I love you so so so so much my girl. Ugh, my heart is broken but my spirit is smiling at how strong you are and how strong God is gonna make you and your baby through this.

  • @carlykwadsworth8653
    @carlykwadsworth8653 4 года назад +5

    I have Spina Bifida! And I am living an AWESOME life!!!! Prayers for you and your family!!!!!!!!

  • @dawnsamantha6728
    @dawnsamantha6728 2 года назад

    “I want to look back on this and see how God was faithful”
    Omg Lexie- rewatching these has me wrecked. God has been so faithful. You have demonstrated such steadfast strength. A Arian is growing into an amazing young man. God bless you all

  • @LaurenNicholsen
    @LaurenNicholsen 4 года назад

    The power of the good Lord will get you through this. The exact same thing happened to my Son and he was born perfect. Stay grounded in your faith and know that everything will work out according to his plan. Sending you love and strength!

  • @Carol-D.1324
    @Carol-D.1324 4 года назад +14

    I understand your fear and heartache. My husband and I were told that our baby girl might have Down Syndrome...did we want to do an amniocentesis to make sure as we would have to go to another state to terminate the pregnancy if that is what we chose, and he left us alone to discuss the issue. We were stunned and shocked. We looked at each other and said the same thing, terminating our pregnancy was just NOT an option.
    We knew two things.
    1) We are having a baby and....
    2) We are going to love this baby NO MATTER WHAT. I would question myself..WHY ME!?!? Why US!?! Our preacher told us something that I have never forgotten..he said,” Why NOT you?!? There are people out there that couldn’t go through this and would choose to end their pregnancy, but God chose YOU! God knows that no one could love this baby as much as you two! You were chosen for a reason! Trust in God and his choice.” That was the turning point for me. Our devastation turned into a beautiful blessing! Our daughter is now 11 and is special needs. She is sooo sweet and kind and honestly... I can’t imagine having her any other way. She is the absolute best thing that has ever happened to us! I know what you are going through and I understand exactly how you feel. All of this is shocking and heartbreaking and not at all what you expected to hear. So, cry and just let it all out and cry until you can’t cry any more. Then pull yourselves together and start a new path with a new plan. You have been chosen for a reason!! Trust in God and the path you have been chosen to take. My thoughts and love AND prayers are with you all. This is so hard, but you CAN do this ♥️

    • @caroh2809
      @caroh2809 4 года назад +2

      Cari D that’s just lovely. You have a great pastor for sure. xx

  • @hannahmiles
    @hannahmiles 4 года назад +49

    I have spina bifida and I’m in a wheelchair and I’m 27 years old

  • @heatherweed6511
    @heatherweed6511 4 года назад

    I listened more. Our son was delivered four weeks early...by C-section. We trusted in God and waited. He had surgery in 24 hours. And got a shunt placed a week later. He has had only one surgery to replace the shunt. After 6 years of having the shunt, it was determined that he wasn't shunt dependent. God is good! He has the shunt but it was tapped off. He hasn't needed it. The issue with bladder, bowel and orthopedic are manageable. I wish if I could give you both a hug and tell you I UNDERSTAND.

  • @soniagiles8221
    @soniagiles8221 4 года назад +1

    I was born with a mild form called Spina bifida Occulta, 60 years ago.. I am a mother, a grandmother, I am in the process of retiring after a 20 year career in Community Services.. it never stopped for anything to God be the Glory.. I will keep you and your baby in my prayers 🙏🏽.. I think you’re very courageous in sharing your news and emotions ..