WHAT IS SPINA BIFIDA? | Answering Your Questions About Our Sons Birth Defect

Поделиться
HTML-код
  • Опубликовано: 9 мар 2020
  • Hey friends, welcome back to my channel and thanks for clicking on another video. We get so many questions on a daily basis about SB and how it relates to my sons diagnosis. So, we decided to make a dedicated video to the topic to be able to refer anyone who is curious!
    Subscribe: / @lexiethiery
    Follow my IG: / lexiethiery
    Watch next! SELF LOVE: • Day in the Life + WHAT...
    WOMEN OF WORTH PODCAST:
    podcasts.apple.com/us/podcast...
    FOLLOW ME:
    / lexiethiery
    www.lexiethieryfitness.com/
    _________________________________
    SHOP LOVE GOD APPAREL:
    www.bonfire.com/the-greatest-...
    SHOP ALL MY APPAREL: www.bonfire.com/store/woman-o...
    PRENATALS: amzn.to/2LHNhRL
    PROBIOTIC: amzn.to/30hrHwf
    FISH OIL: amzn.to/2Qn5XdW
    FAVORITE GREENS SUPPLEMENT: amzn.to/30jNrGX
    FAVORITE COLLAGEN POWDER: amzn.to/2LL7m9X
    BIBLE I USE: amzn.to/30hdFdg
    DEVOTIONAL I USE: amzn.to/2NtP9iV
    MY FAVORITE BOOK: amzn.to/2NAxtm7
    BOOK I CO-WROTE: amzn.to/2Nt4pwv
    GET YOUR YOUNG LIVING STARTER KIT: yl.pe/cfdp
    BLUE LIGHT GLASSES: amzn.to/2ObOHFM
    _________________________________
    Want to send us something?:
    P.O. Box 9558 Fort Wayne, IN 46899
    MUSIC IN THIS VIDEO:
    Please leave any prayer requests or video topics you'd like to see in the comments below!
    #Spinabifida #midlinedefect #fetalsurgeryforspinabifida
    Love God, Love Yourself, Love People
    Contact: womanofworthllc@gmail.com

Комментарии • 524

  • @LexieThiery
    @LexieThiery  4 года назад +191

    Thank you for how much love we’ve already gotten on this video. 💕 you all are absolutely incredible.

    • @allieglozier2389
      @allieglozier2389 4 года назад +6

      The part you said about hydrocephalus made me feel so proud and included. I had a VP shunt and as of a year old today I got it taken out (I got an ETV). Happy birthday to my ETV!

    • @allisonsadler719
      @allisonsadler719 4 года назад

      I have spina bifida if u would like to talk to me I'm allison Sadler Ontario 34

    • @alanahorley7500
      @alanahorley7500 4 года назад

      I was born with the trifecta 🤣 I’m L5 (I think) 🤔 i was born in the late 80s and my mum and dad had no idea until I was born. In a wheelchair

    • @purplepeggy9027
      @purplepeggy9027 4 года назад +1

      Lexie Thiery
      Hi Mommy +Daddy. Oohhhh he's so cute I can't take it. I wanna squeeze him & love him up. Btw, Imo He looks just like him daddy. awwww God Bless your lil family. PRAISE jesus.🛐💜

    • @shelbymorimoto371
      @shelbymorimoto371 4 года назад

      Would be curious to know if (given everything) you guys have chosen to or to not vaccinate him?

  • @leslypeace8293
    @leslypeace8293 4 года назад +535

    I was born with spina bifida and had surgery at birth. I developed some complications with one of them being tethered cord and I had to get a second surgery at age of 17. I wear a brace on my left foot and most of my damage is on my left side. But I walk just fine and I recently became a mother with no complications and I am a nurse now! He will do great, god does miracles!

    • @elainebird58
      @elainebird58 4 года назад +1

      GOD...respect his name

    • @snejjsndndnnj8499
      @snejjsndndnnj8499 4 года назад +16

      Elaine Bird relax lady

    • @annsnan
      @annsnan 4 года назад +5

      Elaine Bird wow....relax!

    • @jazmin6031
      @jazmin6031 4 года назад

      Aww 🥰

    • @Magical3750
      @Magical3750 4 года назад +3

      I’m the same way. I got tethered cord and hydrocephalus. I wear afo’s most of the time. Was your baby ok? I want to have biological kids if possible but mostly adopt, but I’ve always wondered.

  • @ehaszdawn
    @ehaszdawn 4 года назад +139

    I’ve witnessed God’s miracles after my daughter was hit by a car at 11yrs old. We were told she would never walk, talk, learn, etc. I refused to except that! Here we are almost 11 yrs later and she’s about to graduate college with a BA in education. The disabilities she was left with are minor in comparison to the outcome the doctors were giving. God is good! Your son is absolutely perfect!!

  • @terriarsenault5345
    @terriarsenault5345 4 года назад +15

    Exactly 30 yrs ago I was going through this with my son. He is now a father of 2, owns his own house and business. He has had multiple surgeries and the doctors were always amazed at his resilience. Best wishes to you all.

  • @carmengonzalez-quevedo1434
    @carmengonzalez-quevedo1434 4 года назад +35

    Hi my name is Carmen. I am 40 years old and I also have spina bífida. And also have it at level L4 L5. I used to walk with crutches. As a kid I don’t any longer I am currently in a wheelchair. But in my case I have found I have more freedom to do things now that I couldn’t while I was using my crutches. Your baby is super adorable. My wish for you all and him is for you to continue to fight for him all the way and always listen to him as he grows and push him to be as independent as possible and never let him feel as he can’t do something because of his disability. He may do them differently but he can do anything he sets his mind too. Best wishes.

  • @cass6474
    @cass6474 4 года назад +99

    I lost my only son and only child when he was 3 months old..he was shaken by my partner at the time and i really gave up on faith and beleived god wouldnt allow this to happen if he truly existed..but i came across your videos and watched how he is slowly healing Azariah and that is showing me that god does work miracles..so thank you for sharing your journey..

    • @kkfatmonkey24
      @kkfatmonkey24 4 года назад +10

      I am so sorry for your loss. I will pray for you!

    • @autumngrace3135
      @autumngrace3135 4 года назад +2

      Oh my, yes, God is good, and good all of the time!!!

    • @cass6474
      @cass6474 4 года назад +8

      @@autumngrace3135 im slowly realizing that...

    • @Lisa2233
      @Lisa2233 4 года назад +1

      Oh honey! I'm so sorry for your loss!! ❤

    • @tinaschill7104
      @tinaschill7104 4 года назад +11

      Cassandra Heilman I’m so so sorry about you losing your baby. I know this feeling all to well. I lost my first baby boy at 2 months old to sids. I also lost 4 other babies all were boys. They were born to early and didn’t make it. Sending hugs and prayer to you.

  • @RealityChick77
    @RealityChick77 4 года назад +148

    I was born with incomplete SB and am 43 now. The doctors back then said that I would never walk or function. I have lived a “normal” life and just now am having issues. The main issue for me is the nerve damage/pain, but I say all this to applaud your handling of this. Never allow docs to dictate your child’s future. God has already mapped out his path and HE will walk beside azariah through his journey on earth

    • @TheCrystalrenee
      @TheCrystalrenee 4 года назад

      Mary Loves Makeup77
      I’m the same way and I am 45. Although I have problems with walking and I fall a lot.

  • @shelliemassey873
    @shelliemassey873 4 года назад +53

    Lexie you did an AMAZING job of explaining Spina Bifida and bringing HEALTHY awareness. As the mom of a 21 year son with Spina Bifida, I love the fact that you are waiting for your son’s personal story to be written. You are 100% correct that each case is totally unique. I love that you point out that folic acid and the type is only one piece of the puzzle, Spina Bifida is truly multifactorial. My prenatal testing did not catch our sons Spina Bifida and I must say it was quite the crash course at birth! Lol. I have followed you since your diagnosis but always remained silent BECAUSE each child is unique and I remember wanting just one answer I could count on for sure....there isn’t one, each child is a miracle. Congrats on your gorgeous baby boy, he is truly blessed to have such incredible parents and you are incredibly blessed to have him! May you enjoy this journey!

  • @Proverbs31Couponing
    @Proverbs31Couponing 4 года назад +11

    My son has Congenital Hydrocephalus, and it was found during my 18 week anatomy scan of my pregnancy. He is almost 4, and he’s had 5 brain surgeries. He relies on a shunt to keep him alive. It’s a hard reality, and I pray that you never have to experience that.
    Having a special needs child is such a journey, and it has definitely increased my faith and trust in The Lord. Thank you for sharing your story, and your faith in this journey. You’re amazing parents and advocating for your child and his conditions is so important, and needed.

  • @samiehalenda9436
    @samiehalenda9436 4 года назад +26

    I haven’t watched the video yet. But I just want to say something to you. Your the most amazing mother to Azariah. He’s one of the luckiest kids to have you as a mom. I love how your a Christian and just show the love. You may have your good days and bad days but I just see the love you have for your child. I know this was a hard journey and I can’t imagine being in this position, but you really are a warrior and Azariah. I am so happy you have a husband too who sticks with you through this time. He is such a good daddy too! I watch all your videos, and it just brings a smile to my face seeing such a mother’s love to their child. Azariah is such a victory from God! Amen 🙏❤️

  • @katiegodinho2275
    @katiegodinho2275 4 года назад +39

    Evidence of a miracle working God is all over this story. Love it.

  • @christinagonzalez1129
    @christinagonzalez1129 4 года назад +7

    You explained everything perfectly!!! I have SB Myelomeningocele. And everything you said was correct!! I have the most severe case of SB. I am 28 years old. I had surgery when I was 2 days old. I have had leg braces since I was 2 years old. I learned to walk when I was 1 1/2 years old. I have a shunt because of hydrocephalus I’ve had it since I was 1 month old. I have graduated college and have a full time job. I have used a walker, wheelchair and scooter all throughout life to get me to and from places but I never have let it stop me from walking even when I get tired from walking long distances. I have never let Spina Bifida hold me back from reaching my goals. And I have seen just how much god has had his hands on me and my life the last 28 years. My family and I are very blessed. I can see just how blessed you and your family & Azariah are blessed too! God is so great! God bless you all! 🙏🏼💜🙌🏼😃

  • @jessicacompton5371
    @jessicacompton5371 4 года назад +144

    Don’t tell me our God isn’t a loving, powerful God. Look at this little miracle boy. ♥️

  • @jessiejenkin3461
    @jessiejenkin3461 4 года назад +33

    My partner has Spina Bifida he’s 23 and he is the most loving kind hearted person you will ever meet he’s strong and never complains despite being in pain a lot of the time.

  • @melissacary6884
    @melissacary6884 4 года назад +101

    Have you considered being an informational speaker for families expecting a child with SB? I think you could be a source of peace for a lot of families!

  • @JuliaM987
    @JuliaM987 4 года назад +4

    I’ve followed your channel for a year or so now, and at the time you popped up on my recommendations. Maybe it’s because I’m from Southeastern Indiana and y’all are from northern Indiana, that your channel happened to be recommended for me. I’m glad it was, because seeing the journey since then has been truly a blessing. Y’all have handled everything so well and had a good look on everything that was thrown your way when it came to Azariah! And look at how great our God is! Azariah is as healthy as I and a bunch of people prayed for! 💕 I know what it’s like a little to have a baby with problems. Only mine was my niece having a very rare genetic disorder. We were blessed to spend two and a half months with her at Cinci Children’s NICU. As much as I miss her, we always tried to stay positive and never be angry. It wasn’t easy but now because of her, I have such a bigger outlook on others now because of it. I think I definitely pray a little harder for other people that may face issues with their children now, too.
    I’m so happy to see Azariah doing so well!

  • @nicoleb1023
    @nicoleb1023 4 года назад +7

    Every video about your journey with him has brought me to tears. Currently 22 weeks pregnant with my 3rd baby and found your channel a few months ago. I had recently started bible studying and dipping back into Christianity as well and every video just keeps pushing me with the sense that it's a good direction. Your kiddo is so blessed to have you guys as parents. Beautiful job!!

  • @glorymua6611
    @glorymua6611 4 года назад +53

    My mom had no other choice, but to wait in till after birth due to the fact she found out I had Spina bifida 2 days before I was born. Every doctor I see tells me I’m a miracle, and is so shocked that I’ve made it this far. Yes I have medical procedures I have to do like cathing and flushing. But they are really shocked on my muscle mass, and now I’m gonna have a baby, so they are even more surprised. Having Spina Bifida isn’t easy at times, but you just gotta be determined and have a good support system and really good doctors ❤️

    • @jocelynpena7801
      @jocelynpena7801 3 года назад

      Hey girl I have spina bifida and I would love to talk I live in California not many ppl here to connect with that have it

  • @reed.7395
    @reed.7395 4 года назад +5

    So proud of that sweet boy, I can tell he’s already changing he looks like both of you. He’s perfect & I’m so excited to see how God uses him & you guys too! Just putting his story out there, I know you are helping so many people. You guys are amazing!

  • @CarleyPartyof6
    @CarleyPartyof6 4 года назад +13

    I cant imagine how difficult this whole experience must have been for you guys... I cant help but think that with everything going on regarding the legality of abortion today you two were chosen to carry this baby and share your story to give a voice to unborn children. Its such a powerful story. I pray for you guys every day. You are doing such an amazing job.

  • @FancyPants_RN
    @FancyPants_RN 4 года назад +3

    Lexie....I have been a RN for 20 years and am impressed how well you did at explaining everything. Great job, momma!! You are well informed and can tell that you are a great caregiver and advocate for your baby. He is such a precious little guy....and I am so glad to hear that you guys chose LIFE for him. 💗
    We have a chronically ill child and I encourage you to find your tribe....other families that understand your life because many of your friends will love you still, but they just can't relate. They care....but they can't empathize. Also....ASK FOR HELP AND TAKE IT! You need to do that to survive the long haul. God made us to live in community....not alone.

  • @caledoniabeautifuleden8584
    @caledoniabeautifuleden8584 4 года назад +2

    Oh my goodness Lexie, Azariah is beautiful! My ovaries just exploded! You are an incredibly brave and strong woman of faith! I am so proud of how positive and trusting of God you have been throughout this entire pregnancy! Thank you for sharing your beautiful and precious baby boy with us Sister! I will keep you and Azariah in my prayers!

  • @anna._.6218
    @anna._.6218 4 года назад +11

    I’m so glad everything is going so well with him! ‘God has helped’ truly!!! You guys are all doing so good- well done! You all are really inspiring! Also it is so amazing you are using your platform to spread awareness and help other people 💛💛💛

  • @sparklingslimeASMR
    @sparklingslimeASMR 4 года назад +1

    I was having a rough day last night and still was troubled when I woke up this morning. My anatomy scan is in a couple of days and I’ve been stressed about what the outcome will be. Watching this video compared to the first video when you found out, I see so much strength and power that you’ve reclaimed through the grace of God. Your faith and testimony were just what I needed to remind me that things are not in my hands and that regardless of the outcome, we serve a wonderful God. You truly embody Proverbs 31:25 and little Azariah is so blessed to have you as his mother.
    Praying for more miracles to come❤️

  • @judyshepplt3086
    @judyshepplt3086 4 года назад +4

    Beautiful family.....It’s wonderful to see such a young Christian family. It’s off of a comfort to know that our God is in total control. Good luck to you

  • @xbritny
    @xbritny 4 года назад

    My first son was thought to have SB but was diagnosed with Dandy-Walker syndrome. He was diagnosed with hydrocephalus at 4 months and had a shunt placed. I feel so many similarities to your and your family and send all my love and prayers! God has given our children such a purpose and testimony. Having my child with special needs has made me so much stronger, not only mentally but spiritually! You’re amazing!

  • @soniagiles8221
    @soniagiles8221 4 года назад +1

    I love your openness, your testimony is powerful and God is and has been in total control. I have shared a bit of my story simply because I want to share how awesome the lord is..
    I am 60 years old and was born with a mild form of Spina Bifida, I had surgery at two and a half and wore braces at night for a year and at 4 began to walk with a slight limp on my own.. I come from a Christian family and the power of prayer is hugh.. I know that the lord had his hand on me.. I did everything my siblings did.. I am a mother of two and grandmother of 3.. I retired at the end of 2019 after a 20 year career in social services.. I am so looking forward to seeing the rest of little Azariah’s miracle..

  • @michellecarter9876
    @michellecarter9876 4 года назад +1

    Azariah is quite the warrior! So glad he is beating all the odds. Awesome!!

  • @FrannRants64539
    @FrannRants64539 4 года назад +43

    I have L4/L5, no shunt and I have chiari 2 malformation, I walk with braces and I do just fine. I hope he has a great life ❤️

    • @snakebitepellehue
      @snakebitepellehue 4 года назад +1

      Same. I have L4/L5, shunt, neurogenic bladder,bowels and type 2 Chiari malformation. I walk with crutches, though.

  • @brytaniegovea8269
    @brytaniegovea8269 4 года назад +2

    Thank you for speaking about the misconception about folic/folate acid. I was under the impression that SB was 100% prevented as long as you take it and learning that isn’t true was really eye opening. I’ve been wanting to ask about it for a while, but didn’t want to to come across like I was putting any blame on you or other mothers with babies who have SB. I’ve only been following your journey for a few months but I feel as if your videos have brought me closer to God.

  • @thewheellife9826
    @thewheellife9826 4 года назад +2

    I was born with Spina Bifda as well, The day this was posted was my 39th birthday. They did not have fetal surgery until I was a kid. I am glad babies can have a chance at a more "normal" life with this surgery. Obviously, they will still have SB but they may not need as much intervention. I have Mylomengocile. My lesion was at T12. I also have Hydrocephalus and a shunt. I have had two shunts in my life. Writing this as I'm watching the video. Everything you are saying I keep thinking" me too." I have been a lifelong wheelchair user. Latex allergy (which I tested positive for) tends to happen with prolonged exposure to Latex. Your son is adorable no matter what!

  • @jazlin2002
    @jazlin2002 4 года назад

    You guys are absolutely amazing! The way the information just rolled off your tongue at such a young age is incredible. He's got a good mama! One lucky little man. I myself found out when I was 16 weeks pregnant that my daughter had Hydrocephalus. She had her 1st shunt put in when. She was 1 month old. She is now 18 and has had a few rough patches with infection and surgeries but at the moment she is doing well. She wore leg braces, used a posterior walker to walk for a couple years. (They told me should would never walk on her own. She showed them that they were wrong!) She had scoliosis at one point and was treated with a body brace. Now 18 her gate is a little off (walking abnormally, feet turn slightly outward). Other than that she is doing great! She has an amazing personality and is our little miracle! I'm so glad to hear that your little man is doing so good! 🙏 It stays that way. God Bless!

  • @alyseandrews1066
    @alyseandrews1066 4 года назад +1

    You are so strong! What a frightening journey for your first pregnancy! I am so happy for the incredible outcome from his surgery and that everything is looking even better than anticipated!

  • @Stacey67643
    @Stacey67643 4 года назад

    He is just precious!!!! Sleeping so sweetly and peacefully. Such a blessing.❤🙏

  • @HisCuteNeko
    @HisCuteNeko 4 года назад +3

    I was LITERALLY re-watching your birth vlog when this popped up! I’m here for it 🙌🏻

  • @buildingamystery74
    @buildingamystery74 4 года назад +1

    I’m super impressed with your level of knowledge. You basically explained everything accurately. I’ve got L4 Spina Bifida and I walked with KAFOs and crutches for the first half of my life. I mainly use a wheelchair now due to a knee injury and surgery. My Chiari Malformation is mild and has never really caused symptoms unless I lean my head all the way back. That makes me a little dizzy. I had a shunt for the first 2 years of my life but I had it removed because my hydrocephalus was not causing issues. I’ve not had a shunt for 34 years and never had a problem. Really hoping your neurologist appointment goes well and he doesn’t need a shunt anytime soon. My understanding is that the latex allergy tends to develop in children who have had multiple open surgeries due to latex glove exposure inside the body. Most surgical gloves used in hospitals are now made from nitrile. Definitely try to use nitrile gloves if you can because the allergy tends to develop over time.
    If he’s kicking or moving his little legs and the doctors are telling you he’ll do well, then I’m sure he’ll be a great walker. I’m sure he’ll do great whether it’s with a wheelchair or a walker or braces and crutches. He’ll just use the tools he needs and he’ll become an expert at getting around in his own way. My mother always said that having a kid in a wheelchair is like giving a driver’s license to a toddler. He’ll be running circles around you either way.

  • @stacyfraley6046
    @stacyfraley6046 4 года назад

    Gods amazing grace! Azariah is beautiful, I’m continually thankful and praying for his complete recovery. What grace the lord has already given is just a testament. Prayers and love always!

  • @janineaires8547
    @janineaires8547 4 года назад +1

    I remember seeing your video where you found out Azaria has spina bifida and have been following you since... How our God has moved! How our God has blessed you! Enjoy every single second with your beautiful baby boy!!! Indeed a world changer 🙌🏼

  • @amykremer6891
    @amykremer6891 4 года назад

    You are an amazing young couple, and your little guy is a miracle! Your strength and faith are inspiring! Your story is a blessing to so many! May God keep you all well and safe!

  • @spre1501
    @spre1501 4 года назад

    Lexie thank you. I was born with Spina Bifida, Hydrocephalus and Chiari Malformation at L4/5 34 years ago. Your description and your information was great. Thank you for sharing. I am so grateful that there are so many advancements in treatment compared to when I was born. God bless you richly.

  • @Gotcha7474
    @Gotcha7474 4 года назад

    Gods grace is so evident through you guys. Your story and your journey is so inspiring. Just know you have touched my life, your wee guy and your reaction and how you have handled everything, staying true and showing your faith. This right here is testimony to God. I’m so thankful that I found your podcast recently!!

  • @z4324
    @z4324 3 года назад

    I was born with spina bifida 34 years ago at a time when they didn’t know much about it. L5 S1. I absolutely love that you guys made this video and are making videos about it and your life and journey. I feel more people need to bring more awareness to it. I am very fortunate to only have paralysis below my knees. I’m so glad you brought up the facts about abortion and commend you for not even thinking about abortion. It’ll be a long road but I know you guys will do an amazing job as parents and that beautiful baby will grow up and do absolutely amazing thing! Keep being amazing.

  • @therese_grimsdottir
    @therese_grimsdottir 4 года назад +3

    Oh my goodness I'm just staring at that adorable little baby the whole time! Thank you for taking the time to make this video.

  • @jenniferfonzo1168
    @jenniferfonzo1168 4 года назад +12

    I was born with club foot, found out when I was in my 20’s I had chiari malformation and a tethered spinal cord. Prayers momma

  • @Erin_Coke
    @Erin_Coke 4 года назад +6

    Azariah's story is already a lot like mine. I did not get my lesion closed until after birth, but his lesion is the same as mine. I can walk with a walker and I wear leg braces (AFO's). I did develop hydrocephalus and required a shunt shortly after birth (like, within a day or two after). The bladder and bowel control is a struggle, but using a bathroom break schedule really helps with that. Praising God little man is doing so well and I pray he continues to flourish!

  • @tinaschill7104
    @tinaschill7104 4 года назад +6

    I’m so glad that you kept him. He’s a true blessing and a child of the most high God. Your amazing parents. I am so happy that I get to watch this little miracle worker grow.

  • @tamtam06111
    @tamtam06111 4 года назад +2

    Thank you so much for sharing your story. I know this is still hard for you. I found out my baby girl has this at level s3. Two weeks ago. Trying to gather as much information as I can without stressing out. Staying positive and praying was hard to do at the beginning. But following you has really made this much easier. I watch your videos over and over I haven't found any others with as much information. So again thank you. Im praying for you and you beautiful lil man as well. 🙏

  • @madamguro6922
    @madamguro6922 3 года назад

    What an unconditional love 💜
    Sometimes we complain in life , yet there are a millions of things to be grateful for . Just having a daughter who from birth is normal is such a blessing for me but after watching your family's journey , I've been more grateful . Lexi , you are such a brave woman & truly trust the Lord completely. 💜🌹

  • @kristinhall4959
    @kristinhall4959 4 года назад

    Your such a strong beautiful woman/Mom🙏🙏🙏🙏 You are so in tune with everything that he may or may NOT go through.... he's sooo adorable and he has such an amazing Mommy and Daddy... he's so precious!!!! So proud of you, your doing so good momma, keep your head up and I will be praying for ALL of you!!!!! He's definitely a Miracle and he doesn't even know how many people are rooting for him, you & Daddy!!!! He's so precious!!!

  • @browningbarbie3520
    @browningbarbie3520 4 года назад

    You guys are so inspirational! I'm from Canada and it shocked me when you said you had never heard of spina bifida before your 20 week ultrasound when you first heard the word! I learned in school from grade 7 to 12 all about birth issues like this one and how they can be prevented, treated, and all the ways to deal with issues that can happen besides abortion! I have been taking folic acid since I was sexually active at the age of 14 because there is always a chance to be pregnant when having sex and I have always been trying to prevent what I can so there is less to overcome later. It definitely makes a person stronger and you are an amazing woman and mother. God has put this weight on your shoulders knowing you could carry it and come out stronger! ❤️😊❤️

  • @mickiedelosreyes5481
    @mickiedelosreyes5481 4 года назад

    Leslie this grandma thinks you are an amazing mama. Thank you for educating others about SB. I raised a special needs child who wasn't supposed to see 5 yrs old. It's hard work but it's your child and so worth it. Btw she's 25 now. God Bless You and your little family.

  • @shellymeade5872
    @shellymeade5872 4 года назад

    So thankful for this little world changer. God is good. So glad we get to see his works through this little guy. We love him so much. Continued prayer and hugs and kisses to you all.

  • @kimb9287
    @kimb9287 4 года назад

    He's so adorable!!! Thank you for sharing your family's story and for bringing light to SB. You're son truly is a warrior, as well as you and your husband! God bless your family. A tip to remember dorsiflexion vs plantar flexion- plantar flexion is down because you plant your foot on the ground! I'm an occupational therapy assistant and use this as a memory aid!

  • @grandmacheryl882
    @grandmacheryl882 4 года назад +1

    Thank you so much for posting your family! You are a beautiful Christian mother and your son is a precious gift from God💙💙💙

  • @joancalamezzo3209
    @joancalamezzo3209 4 года назад +1

    Great job on explaining everything. He’s a precious gift❣️ 🙏🏻

  • @keilalondon9949
    @keilalondon9949 4 года назад +3

    Our God is awesome! May he continue to shine his blessings on your “World Changer”

  • @anniehill2639
    @anniehill2639 4 года назад

    You’re an amazing example of courage and faith

  • @murgy1234
    @murgy1234 4 года назад +1

    You are an inspiration for all parents out there! I admire your positivity all throughout your journey with your son. Azariah is incredibly lucky to have such amazing parents and I know you feel lucky to have him. I had no prior knowledge to spina bifida, thank you for sharing your story. Lexie, you are a world changer as well ❤️

  • @saramccahon2784
    @saramccahon2784 4 года назад

    what a blessing that sweet baby is and what a gift a godly mama like you is! i can’t wait to see what the Lord does in and through your sweet family.

  • @Carr081411
    @Carr081411 4 года назад +1

    Your story is beautiful! The first video I ever saw was your positive pregnancy test and watched from their plus watched a lot of your past videos. Baby boy is beautiful

  • @mariespence2980
    @mariespence2980 4 года назад

    My little brother was born with the worst type. He has no feeling in his legs but he crawls and he has a shunt and has had Idk how many surgical procedures. We were not told untill every shortly before birth and was rushed to ruby memorial in Morgantown. He is high functioning and a truly amazing case. You are the first RUclipsr I have every seen talk about it. I take every chance I can to talk and inform person about and how to prevent spina bifida.

  • @JesseAflleje
    @JesseAflleje 4 года назад

    I am so joyous for you that I want to cry every time I watch your videos. He is so cute and when you talk about this I look at him and I want to celebrate his life with you both. You two are just awesome and he is as lucky to have you, as you are to have him.

  • @judysetran9198
    @judysetran9198 4 года назад

    The victories at this point are many..Thank you for sharing this with us. many prayers for more victories to come

  • @johnjudypyper9397
    @johnjudypyper9397 4 года назад +1

    Lexie he is SO adorable! Such a gift from God as are his parents!

  • @joycebaker3798
    @joycebaker3798 4 года назад

    The things doctors can do now are so amazing. I babysat for a little girl with SB back in the 70's. Back then you had no clue until the baby was born. She used a wheelchair and had no control of her bladder/bowels. You a great mom already! You are helping other parents (with or without children with SB) to understand not to make assumptions about children with SB.

  • @jennifermorley6487
    @jennifermorley6487 4 года назад

    Praise the Lord! So much good news and as you know God is in control of your little one's future. Truly a miracle.

  • @frankiekohl1593
    @frankiekohl1593 4 года назад +2

    Hi Lexie I just saw your video. Azariyah is beautiful what a blessing from God he is. I will follow your journey and watch all the Miracles that God's going to do for your baby. My advice read the good comments ignore the bad ones.

  • @Bizygr2
    @Bizygr2 4 года назад +3

    Very informative! Although, I found it very difficult to concentrate on what you were saying because I found I was distracted by the perfect precious little buddy looking so comfy. Honestly, it was a struggle! Enjoy the cuddles and snuggles!!

  • @carolryan2419
    @carolryan2419 4 года назад +2

    It is so amazing what Drs. can do for babies born today with Spina Bifida although in the 50's it was called Spinal Bifida. I had a sister born in 1954 with the most severe case a baby could have and of course the Drs. said she would not live through the night and there was nothing to be done for her. She actually lived for 7 months and then passed away, she was just a beautiful little baby and dearly loved by her parents and siblings but it was God's will for her to go home to be with him.

  • @gpbball6749
    @gpbball6749 4 года назад

    Lexi, you are an amazing person, a fabulous mother and a very positive full of life, faith, hope & love - Azariah is so lucky to have chosen you guys as his parents - you are always in our prayers and we are sure your little world changer is going to have a beautiful life - make sure you take time to enjoy every minute with him - love & prayers always

  • @brookejackson8122
    @brookejackson8122 4 года назад +6

    Azariah is such a fighter I'm so proud of the little guy and I also have Spina bifida and my mom had surgery to close my back while I was still in her stomach and I'm doing amazing and can walk and don't need a wheelchair and I also have a shunt

  • @brianwilson2004
    @brianwilson2004 4 года назад

    Im so glad that he is ok God is able to do all things!!! Im so happy for you guys and will continue to keep you guys in my prayers

  • @11xaunt43
    @11xaunt43 4 года назад

    He is AMAZING. Enjoy every moment. Bless your hearts and journey always.

  • @michelleowens2282
    @michelleowens2282 4 года назад +1

    Thank you for sharing your story.
    He is beautiful just like his Momma !
    God Bless you, baby and your family.

  • @YunissaA
    @YunissaA 4 года назад +1

    He is so adorable 😍 my baby girl was born with SB too she has 3 months I prayed so much for my baby because they said so many things and at the end when they send me home after all the tests she had they said I was taking a normal baby home with no special care Trust God your baby is a gift.
    Every time they give you a bad diagnosis refuse it and pray for his health by baby was diagnosed with 22q deletion syndrome but she has so much energy and at 2 months started rolling over and moves her legs like a normal baby
    May God bless you baby 🍼

  • @coolestgrammyintown5598
    @coolestgrammyintown5598 4 года назад

    Mama you rock!! God certainly gave his sweet baby boy to the right family!! Prayers will continue!💞

  • @gabbyareli1159
    @gabbyareli1159 4 года назад

    My son has a shunt and unfortunately it has failed a lot of times. He was also diagnosed in utero with hydrocephalus at our 20 weeks ultrasound and he has had 7 brain surgeries so far.. they “highly recommended” that termination was the best option for us it looked very severe and his ventricles were just really big, but we also decided to leave it up to God 🙌🏼. He was full term and is now gonna be 5 years old this summer and is just the happiest kid doing all the things they told us he wouldn’t do like walk run talk feed himself.. These babies are here for a reason and your faith will be compensated just like ours 💙💙💙 keep trusting Him. Love and blessings to you guys!!

  • @heavenpendley
    @heavenpendley 4 года назад +1

    You are incredible 🥺🥺 you’re so strong it’s so admirable. God bless that beautiful baby and his wonderful parents ❤️❤️❤️❤️

  • @judymcfadden3577
    @judymcfadden3577 4 года назад

    I know people mean well, but it seems everyone is an expert. It sounds like you have to wait and have to take it day by day. He is gorgeous little angel, and full of surprises that's for sure. Not to mention the best, loving parents♡♡

  • @aissatousambe5075
    @aissatousambe5075 4 года назад +2

    You know ur stuff MAMA!! I love it, never heard of SB, but I am so glad I came across this vid and ur birth vid! I cried with u. He’s sooo cute, he’ll be fine 🙏🏿

  • @boobear2013ily
    @boobear2013ily 4 года назад

    Luhhhh you Lexie. You’re baby is adorable. Thanks for always keeping me updated on how to pray for you ❤️ you guys are doing amazing and that baby boy is super blessed to have you guys as his parents. My boy is 2 months and there is no feeling greater than to be able to pray for my baby when he can’t pray for himself.

  • @cathlyn205
    @cathlyn205 4 года назад

    Oh my gosh, he is so adorable! Prayers and best wishes for you all. Great and informative video!!

  • @jg1027
    @jg1027 4 года назад +38

    My jaw dropped to the floor when you said that the FIRST option they give is termination for SB. Baffling! I am so glad that wasn’t your route for little man. ❤️

    • @shelbymorimoto371
      @shelbymorimoto371 4 года назад +1

      J G right?? It’s not even close to a terminal diagnosis so anything non terminal I can’t even believe they push that option onto people!!! Horrible

    • @tabithawallen7716
      @tabithawallen7716 4 года назад +2

      They give termination as an option for cleft lip and palates. Way too many parents don’t want ‘sick’ or disabled kids and choose that option every day. My younger sis has SB and my husband and I have a 75% chance of our kids having it due to our genetics. Our 20w scan is Friday and my doc is nervous but we aren’t.

    • @jg1027
      @jg1027 4 года назад

      Tabitha Wallen Hugs ❤️ sending you guys prayers.

    • @gracewillis577
      @gracewillis577 4 года назад +2

      I got offered a termination because one of my twins had enlarged ventricles at 16 weeks and a single umbilical artery to his cord by 24 the ventricles were totally back to normal and his cord hasnt affected his growth ... craziness

    • @MamiFilipinaa
      @MamiFilipinaa 4 года назад +7

      Mrs Moto it might not be terminal but there are people in the world who don’t want to bring children into the world knowing they could face a lot of hardship and pain due to having Spina Bifida. It’s personal preference. No one has a right to judge, no matter their life choices.

  • @sarahdicindio1801
    @sarahdicindio1801 4 года назад

    Such a powerful little man with amazing parents. Thank you for sharing his s story with us♥️

  • @jennifernielson8630
    @jennifernielson8630 3 года назад

    Ur such a fabulous, well educated momma!!!! He’s beautiful!!!!! Isn’t it so wonderful that God has blessed us with such miracles in medicine that all these things are possible!!!! I had my son at 28 weeks & these little guys r warriors straight from the Lord!!!!!

  • @davidholloway9461
    @davidholloway9461 4 года назад

    Thx for the helpful insight into your journey thus far! Great news!

  • @marykearney4070
    @marykearney4070 4 года назад +1

    I "broke my back" spinal injury, at age 17 and almost 10 months. My break was between L3 and L6. They opened me up on my left side through to my back and removed my two smallest ribs on my left side to graft to my spine with screws and a metal cage. I had numbness already occurring on my left side below my hip. That is why we went ahead with the surgery even though the fracture was small. I also had bone fragments that caused some complications. Now I am 32 years old and 8 months in 1 day. To say I am 100 percent "cured" or "fixed", would be a disservice. That being said I have full functionality as I did prior to the break, just with some added pain and extra precaution on my end. I wouldn't change any decisions leading from then to now. I pray for you guys, and am thankful it has gone so well. I continue to pray that it does, and during any rough times, I know God will be there and your family will find it's way! Stay safe and thank you for your time and open honesty with your videos!!

  • @donnajakubos4249
    @donnajakubos4249 4 года назад

    Good to hear all the positive. He's just precious 💖

  • @junocomm
    @junocomm 4 года назад

    Thanks for sharing this journey already you are proactive and doing whats best for your baby boy. This is what he needs and it will help him have better outcomes as he grows. All the best to you. He's beautiful.

  • @lainewhite5691
    @lainewhite5691 4 года назад +2

    I feel like you’re one of my best friends I adore you guys.💞 I’m a (full time only parent) single mom to a little boy with autism and is non-verbal. I’m not sure if he will ever speak or if I’ll ever have a verbal convo with the love of my life. So I definitely relate to you on that, facing the unknown as a mother. Autism is also a spectrum condition where every child is different, so I have no way of knowing what our future holds. Like you, I’m just grateful for his existence and the biggest gift, being a mommy. Your boy will teach you more than you’ve ever known, I’m sure he already has. All my love!! I look forward to following along your journey, 💓💓💓

    • @cathysnedegar6711
      @cathysnedegar6711 4 года назад

      Laine Please look up the website called Sonrise. It may give you some ideas about interactions with your son. I give it a shout out because I found some wonderful things there.

  • @Nunyabusiness82777
    @Nunyabusiness82777 4 года назад

    I believe he will grow to be totally normal with no complications!! ❤️🙏🏻🙏🏻🙏🏻

  • @stesan60
    @stesan60 3 года назад

    Love how you open your video with a song we sing at church. :)

  • @peglegflys
    @peglegflys 4 года назад +1

    I am 37 & I have SB. I have had a very complex life. I had had 62 surgeries. I am married & I have a 13yr old daughter. I would never change anything i have been through. I was in two comas & had an outter body experience. During that time my parents we're talking to the doctors about putting me on life support but at that moment I aw myself. I felt a hug and I knew I was not alone. God was there holding me. I woke up from the coma.

  • @lskaste
    @lskaste 4 года назад +1

    My daughter was not diagnosed till she was about 14 days after she was born. She has coordination issues and is incontinent. However she walks, dances, and is very active...
    Huggs to you and your baby boy.

  • @lollysjourney2782
    @lollysjourney2782 4 года назад +4

    He's perfect, and God is going to continue doing his great work and baby is going to grow and be strong ❤️😘

  • @TheOlive101595
    @TheOlive101595 4 года назад

    SOOOOOO crazy! There was an abortion commercial on your video... I respect and LOVE how you trusted God throughout this whole process. I love your testimony and how you can touch other people that might be in your shoes! Praying for yall

    • @TheOlive101595
      @TheOlive101595 4 года назад

      The devil will try hard where there is good.. AKA the commercial on your AMAZING VIDEO or a testimony.

  • @gaillampert9591
    @gaillampert9591 4 года назад

    Congratulations on your beautiful baby boy. He is precious and so are his parents!!!

  • @hellelima6458
    @hellelima6458 4 года назад +30

    Your story is close to my heart because we know the God we serve and nothing is impssible for Him. May God bless your and your baby's recovery and may your son be a living testimony to God's faithfullness.

    • @choosnau
      @choosnau 4 года назад

      So if nothing is impossible why doesn't god cure him or had prevented it from happening

  • @amylinde7841
    @amylinde7841 4 года назад

    My baby was also born with spinal bifidia. We never new our baby was going to be born like this. My baby past away when he was 7monthes old.
    Your videos gives me so much hope

  • @candi4202
    @candi4202 4 года назад

    My son has spine abifita. His lesion closed on its own in utero. He was very lucky. We were blessed. And your baby is a beautiful blessing and so happy for you guys