Addisons disease for 30 years. Unfortunately quite a few other auto immunes have tagged on I say Im the strongest woman alive because it takes a special kind of body to cope with all of this. Im in awe of this wonderful body Weirdly I never wish I didn't have these diseases, they are just me Thanks for sharing Jane
Yes the tagging on of other autoimmune conditions is a great challenge! It always makes me feel as though my body is invaded by one of those Pac-Man computer games! And it does make you in awe of a body that just keeps on. Much love J c
Oh Jane ! I’m almost in tears . Although I’ve had rheumatoid arthritis since I was 7 ( now 64) I have never heard a better description of living with a chronic disease and how to cope . I’ve felt alone but not now. The download is exactly what the doctor ordered and if it’s ok with you I’m going to show my rheumatologist at my appointment next week . Personally , I’ve noticed that the fight or flight mode takes over quickly when I try and do what I think I ‘should ‘ do - chores and exercise 😃 etc before I ‘allow’ myself to do something nice . The rest and digest ( never heard of that ) is something I’m going to focus on more especially as I seem to be getting anxious these days . I know what works for me is art but even that can get too pressurised ( the thought of having to produce for an exhibition rather than for fun ) and what works really well is meditation ( I follow Wu Wei Wisdom run by my friends David and Alex Lees - a Taoist based philosophy) but I don’t find the time to do it as often as would be beneficial - always thinking I’ll do it when my chores are done !!!! So, thanks to you a reshuffle of priorities is on the cards - thank you !
Thanks for leaving such a lovely comment Clare - I do think that you are right, that the feeling of "should" often triggers that Flight or fight - as do feelings of comparison or competition. Please do show your rheumatologist - it would be interesting to hear what they feel about it. J x
Jane thank you for your lovely vlog. I suffer from a chronic autoimmune disease for the last 42 years. I felt very helpless in the beginning and there was not a lot available re my autoimmune in these first years. I felt better once I accepted that this was my new life and do what I could manage building up my strength. Nature and doing what you love helps greatly. Take care and thank you for the download xx
Thank you so much Jane. Another beautiful film. So interesting & helpful. I can really relate. I've had M.E. & fibromyalgia for 38 years. I have poor mobility & I am house & garden bound. I only recently discovered about regulating your nervous system. What a difference! I feel the similar triggers to you & find getting fresh air, getting into the garden, even for 10 minutes, is so calming. Listen to the birds, stopping & noticing growth, colour & scent. If I'm too ill to go out, I try to bring the garden inside, with pots of bulbs, violas etc. Thank you so much for sharing your lived experience & hard won wisdom. It is so positive, encouraging & real. 🌿
Thank you so much for leaving this comment Kathryn - I do think that it’s something where we can take control and make a difference in the way we experience life. J xx
I can see what you mean about your condition being a superpower. A lot of us have some condition that impacts our daily life. What we need to teach people is now to set up an optimal life for yourself. From the moment you get up in the morning, if you focus on what is best for yourself, you can lead your best life. I guess what you are saying is that you realized because of your condition how important that was for your well being, while the rest of us typically kowtow to what we think the work around asks from us - and therefore get frustrated, angry or depressed, instead of advocating for our selves.
Thank you for sharing your story. I find it really helpful to hear how other people cope with chronic illness. I have had fibromyalgia for five years and now have osteoarthritis in most of my joints so spend life with daily pain . I agree it deepens somehow your way of looking at life. It is easy to get into a feeling sorry for yourself mode and i did for a while as felt like I had been cheated out of living the way i wanted to and that created a lot of fight and flight and exhaustion. I am realistic now and try and embrace me with my conditions. It helps to lower expectations and do what feels right and pleasurable - and being out in natural world close to nature and creativity are so beneficial to the rest phase for me and I am finding weaving on hand loom really good creative activity to unwind and simply be. xx
Such open hearted comments to read here....I feel I'm in a state of overwhelm (or flight or flight)since my husband (51) was diagnosed with Multiple System Atrophy. I just cant shift the gear and move into the new reality. Thank you for the download Jane xx
embracing Addison’s as a guide and gauge to living a balanced nurturing lifestyle is something I needed to hear today. I have a creative business and during peak season, which is March-June I push and drive myself to produce and deliver. Many days I am running on empty and I just discovered I have TMJ. I’m clinched up on the inside in drive-mode and it is taking a toll on my muscles, nerves and digestive system. I’m going to step back and examine why I’m doing this to myself. I find my creative adventure fun and imaginative, until I over-commit to producing. Thank you for this discussion on energy awareness and self-care.
My mom was finally diagnosed with Addison’s in 1965 when she was about 32, after about 8 years of doctors trying to figure out what was wrong with her. She was very good at self-monitoring when she needed to adjust her own medication (typically in summer, when it was hot) which bothered the doctors (ha ha ha) but what I want you to know is she lived a very full life, and lived to age 85. Much love to you- Nancy
Beautiful film Jane and I am sure that for anyone with Addisons or any other disease these words are super encouraging. I can tell you that, for me, who has developed anxiety and loss of confidence over the past 5 years, they have ☺️ Wonderful 🙏🏻
Thankyou for being a positive role model of managing chronic illness and thriving in a new way. It gives Hope and Faith to myself and others that Recovery and a Good Life after diagnosis is Possible.
I am in about year 5 of my autoimmune chronic illnesses and self discovery. If only I had found you sooner. I believe I spent the first couple of years full of doom and gloom and crying about what I couldn't do anymore and crashing and burning a great deal. Thank you for sharing and teaching us about your experiences. You made my life a bit brighter, I know you have made many more lives brighter, you just had to of...
@@snapdragonlife Thank you for your well wishes. Each day I learn something new about how to live with my chronic conditions. A step or two forward and a step back. One of themost helpful things I have found is meditation. It has been helpful in calming my fight flight and my pain.
Fantastic video Jane. I cried watching it. My Dad had Addison’s- he had it pretty much all his life, and he managed it really well. It was Covid that got him in the end. I’m struggling with the after-effects of a brain tumour myself, and trying to work out how to go forward in this altered state where I experience a lot of overwhelming emotions, can’t seem to control what I say and can’t remember anything!
Thank you for sharing. I was diagnosed with Hypothyroidism 24 years ago and even though medicated like many sufferers, I have days where fatigue and brain fog can be chronic. I could totally relate to what you were describing in this vlog and have found ways to manage my autoimmune disease. Once I learnt to work with it rather than against it, life became more manageable.
Thank you so much for sharing Jane. I have recently developed anxiety after a very stressful period in my life. Your email with the video was exactly what I needed, thank you ❤
I had Cushing’s from an adrenal tumour. Gland had to be removed but because I had such huge cortisol levels my right one had stopped working and didn’t work for three years and balancing my cortisone levels because I was told to reduce. Sometimes I was ill because I had a virus or something and needed more tablets. I was told I might never get the function back so I’m very grateful I have. I also have MS and never knew which one was causing the fatigue. Worst is trying to explain Addisons. People have not heard of it and even some doctors are pretty ignorant as well. I almost fell unconscious once in hospital because a doctor cancelled my cortisone. Still mad about that one!
I hope that you are doing well now. Rare diseases (& those that science hasn’t yet caught up with) are a troubling thing. Though Addisons is very common in dogs- which rather skews the google searches 😂
@@snapdragonlife Cushing’s as well! I googled Cushing’s when I got it and it was a lot of dog stuff too! I actually have MEN1 syndrome which kicked off the whole thing which is means Multiple Endocrinological Neoplasms so lots of hormonal tumours caused by a missing gene.
Thank you for sharing your story. I am always impressed by how much you achieve. I suffered a lot of stress a few years ago and I still feel the effects of it now as I find it hard to relax. The download is really helpful.
Hi Jane, I find all your videos inspirational and look forward to them. This one especially is so moving and truly wonderful. I love 'rest and digest', something that I will take away as it is what I need to do most to stop from constantly feeling the need to keep busy and productive. Your explnation of cortisol and flight and flight is relayed so well. Your smile, aura of calmness and voice warms me. Thank you so much
Thank you so much for sharing this video. I have had to learn all of these things over the last 6 years with FND. You have just summed up everything I do in order to enjoy a full life, free from as much stress as possible 😊
What a gorgeous film. Thank you for sharing your story. I think you have quite a few Super Powers! I’m prone to catastrophying . What helps for me is a mixture of socialising but then withdrawing and being in my own space. I love exercise from challenging gym classes to simple walks, but then I also love curling up with a book or box set. I think this whole holistic approach to health is the key. You’ve probably heard about Zoe Science and Nutrition pod casts, but if you haven’t, may I recommend How to Eat in 2024 and 10 Tips To Help You Live Healthier (2parts to that one). I adore all the craft items you do. I’ve raided my daughter’s art supplies and intend to make one of those love notes.
Thanks Carol. I think you are so right - that it is gathering up all the knowledge of what we can do ourselves to help with our health (or catastrophizing 🥰) partly so that we feel more in control of our lives. Let me know how you get on with the love note - they are a very addictive make! J x
Jane you really share the most fabulously calming and inspiring material... I listened to your commentary here with much gratitude and understanding, seeing and feeling similarities in my own journey back to health over the last 6 years. Thank you for making this beautiful film and for having the courage and foresight to share it with us. - Best wishes - Claire
Thanks for sharing this great video, Jane! I agree with everything you said and I would add that it also depends on how one thinks about the activities one is engaged in. In fact, that is what seems to determine how one feels doing them. For instance, I love making wreaths and it's very rewarding for me but the moment I decided to turn it into a business, the same activity became very exhausting for me because suddenly I felt like I have to do it, and do it properly instead of just for fun. Also, for me, the same activities often feel different on different days. I wish there was some rhyme or reason to the fluctuations of my conditions (M.E. etc.). Just wanted to share this in case there are others who also cannot find a pattern with their energy levels.
Thanks Romana. I think that you are right - that when things involve the possibility of being judged or rushed they can suddenly become exhausted. A day when I have made a stupid mistake is far more tiring! J x
![Summer Walker - Heart Of A Woman [Official Lyric Video]](http://i.ytimg.com/vi/SFddctbZzw8/mqdefault.jpg)
Addisons disease for 30 years. Unfortunately quite a few other auto immunes have tagged on I say Im the strongest woman alive because it takes a special kind of body to cope with all of this. Im in awe of this wonderful body Weirdly I never wish I didn't have these diseases, they are just me Thanks for sharing Jane
Yes the tagging on of other autoimmune conditions is a great challenge! It always makes me feel as though my body is invaded by one of those Pac-Man computer games! And it does make you in awe of a body that just keeps on. Much love J c
The beauty of the frost on the window panes is one of my favourite images. The icy cold paints the most exquisite portraits.
It’s always amazing isn’t it. The feathering and sparks. You can see why Jack Frost was invented going round drawing on the window panes.
Oh Jane ! I’m almost in tears . Although I’ve had rheumatoid arthritis since I was 7 ( now 64) I have never heard a better description of living with a chronic disease and how to cope . I’ve felt alone but not now. The download is exactly what the doctor ordered and if it’s ok with you I’m going to show my rheumatologist at my appointment next week . Personally , I’ve noticed that the fight or flight mode takes over quickly when I try and do what I think I ‘should ‘ do - chores and exercise 😃 etc before I ‘allow’ myself to do something nice . The rest and digest ( never heard of that ) is something I’m going to focus on more especially as I seem to be getting anxious these days . I know what works for me is art but even that can get too pressurised ( the thought of having to produce for an exhibition rather than for fun ) and what works really well is meditation ( I follow Wu Wei Wisdom run by my friends David and Alex Lees - a Taoist based philosophy) but I don’t find the time to do it as often as would be beneficial - always thinking I’ll do it when my chores are done !!!! So, thanks to you a reshuffle of priorities is on the cards - thank you !
Thanks for leaving such a lovely comment Clare - I do think that you are right, that the feeling of "should" often triggers that Flight or fight - as do feelings of comparison or competition. Please do show your rheumatologist - it would be interesting to hear what they feel about it. J x
Jane thank you for your lovely vlog. I suffer from a chronic autoimmune disease for the last 42 years. I felt very helpless in the beginning and there was not a lot available re my autoimmune in these first years. I felt better once I accepted that this was my new life and do what I could manage building up my strength. Nature and doing what you love helps greatly. Take care and thank you for the download xx
Thank you Margaret x
Thank you Jane for sharing your story.
The carnivore diet has helped my autoimmune issues tremendously.
Thanks Tiffany. I think food, and finding what works FOR us is so powerful x
Thank you so much Jane. Another beautiful film. So interesting & helpful. I can really relate.
I've had M.E. & fibromyalgia for 38 years. I have poor mobility & I am house & garden bound. I only recently discovered about regulating your nervous system. What a difference! I feel the similar triggers to you & find getting fresh air, getting into the garden, even for 10 minutes, is so calming. Listen to the birds, stopping & noticing growth, colour & scent. If I'm too ill to go out, I try to bring the garden inside, with pots of bulbs, violas etc.
Thank you so much for sharing your lived experience & hard won wisdom. It is so positive, encouraging & real. 🌿
Thank you so much for leaving this comment Kathryn - I do think that it’s something where we can take control and make a difference in the way we experience life. J xx
Definitely. Thank you so much for making this film & showing how beautifully it can be done. Hope you have a lovely weekend. 🌿
I can see what you mean about your condition being a superpower. A lot of us have some condition that impacts our daily life. What we need to teach people is now to set up an optimal life for yourself. From the moment you get up in the morning, if you focus on what is best for yourself, you can lead your best life. I guess what you are saying is that you realized because of your condition how important that was for your well being, while the rest of us typically kowtow to what we think the work around asks from us - and therefore get frustrated, angry or depressed, instead of advocating for our selves.
Thank you Sunita. Exactly that and the fact that my particular condition gives a very fast feedback loop when I slip into fight or flight mode. J x
Thank you for sharing your story. I find it really helpful to hear how other people cope with chronic illness. I have had fibromyalgia for five years and now have osteoarthritis in most of my joints so spend life with daily pain . I agree it deepens somehow your way of looking at life. It is easy to get into a feeling sorry for yourself mode and i did for a while as felt like I had been cheated out of living the way i wanted to and that created a lot of fight and flight and exhaustion. I am realistic now and try and embrace me with my conditions. It helps to lower expectations and do what feels right and pleasurable - and being out in natural world close to nature and creativity are so beneficial to the rest phase for me and I am finding weaving on hand loom really good creative activity to unwind and simply be. xx
Thanks Tania. You are so right. A hand loom sounds amazing- what are you creating with it? J x
Very very beautifully said Jane. I live with motor neurone disease and yes it is also my superpower🎉💗
Thank you for leaving such a lovely comment Elodie - I was anxious that people might misunderstand me and feel I was being glib. J xx
@@snapdragonlife 😂😂😂quite the opposite of glib Jane!
Thank you @@elodieleaf
@@snapdragonlife take good care of yourself😘
I have ms bedbound and housebound for 11 years, found you today as an artist , I was blessed, you confirmed ideas I was thinking, thank you
Thank you Lorna Ann. Xxx
What a balm it is to listen to your voice. Thank you
Thank you xx
Inspiring to hear your approach to finding health Jane 👏
Thanks Naser. X
Hello Jane... I have only just discovered your channel & your content is proving so helpful. Thank you very much.
Thank you so much. That is really good to hear x
Such open hearted comments to read here....I feel I'm in a state of overwhelm (or flight or flight)since my husband (51) was diagnosed with Multiple System Atrophy. I just cant shift the gear and move into the new reality.
Thank you for the download Jane xx
You have such a lot to deal with Claire - xx
embracing Addison’s as a guide and gauge to living a balanced nurturing lifestyle is something I needed to hear today. I have a creative business and during peak season, which is March-June I push and drive myself to produce and deliver. Many days I am running on empty and I just discovered I have TMJ. I’m clinched up on the inside in drive-mode and it is taking a toll on my muscles, nerves and digestive system. I’m going to step back and examine why I’m doing this to myself. I find my creative adventure fun and imaginative, until I over-commit to producing. Thank you for this discussion on energy awareness and self-care.
Thank you. I am so glad that you have caught yourself in time to see if there is another way to get through peak season. Good luck. X
My mom was finally diagnosed with Addison’s in 1965 when she was about 32, after about 8 years of doctors trying to figure out what was wrong with her. She was very good at self-monitoring when she needed to adjust her own medication (typically in summer, when it was hot) which bothered the doctors (ha ha ha) but what I want you to know is she lived a very full life, and lived to age 85. Much love to you- Nancy
Thanks Nancy! That is good to hear. X
Seeing your Breath, I cannot imagine how that feels. I would gravitate to a Sunny location! :)
Thank you Jane. 💐
😘😘😘
Beautiful film Jane and I am sure that for anyone with Addisons or any other disease these words are super encouraging. I can tell you that, for me, who has developed anxiety and loss of confidence over the past 5 years, they have ☺️ Wonderful 🙏🏻
Thanks Jen xx
Thankyou for being a positive role model of managing chronic illness and thriving in a new way. It gives Hope and Faith to myself and others that Recovery and a Good Life after diagnosis is Possible.
Thank you Rosa. I’m glad you found it helpful x
I am in about year 5 of my autoimmune chronic illnesses and self discovery. If only I had found you sooner. I believe I spent the first couple of years full of doom and gloom and crying about what I couldn't do anymore and crashing and burning a great deal. Thank you for sharing and teaching us about your experiences. You made my life a bit brighter, I know you have made many more lives brighter, you just had to of...
Thank you Sarah. I hope that you are managing to thrive within your chronic illness better now. J x
@@snapdragonlife Thank you for your well wishes. Each day I learn something new about how to live with my chronic conditions. A step or two forward and a step back. One of themost helpful things I have found is meditation. It has been helpful in calming my fight flight and my pain.
Fantastic video Jane. I cried watching it. My Dad had Addison’s- he had it pretty much all his life, and he managed it really well. It was Covid that got him in the end. I’m struggling with the after-effects of a brain tumour myself, and trying to work out how to go forward in this altered state where I experience a lot of overwhelming emotions, can’t seem to control what I say and can’t remember anything!
Thank you Nikki. That must be incredibly difficult for you - not feeling in control is such a major cause of stress. Much love to you (& a hug) J x
Thank you for sharing. I was diagnosed with Hypothyroidism 24 years ago and even though medicated like many sufferers, I have days where fatigue and brain fog can be chronic. I could totally relate to what you were describing in this vlog and have found ways to manage my autoimmune disease. Once I learnt to work with it rather than against it, life became more manageable.
Thanks Dee - I think you are right, that accepting the illness - whatever it is - as part of ourselves does make things much easier. J x
Thank you so much for sharing Jane. I have recently developed anxiety after a very stressful period in my life. Your email with the video was exactly what I needed, thank you ❤
I’m so glad! J x
I had Cushing’s from an adrenal tumour. Gland had to be removed but because I had such huge cortisol levels my right one had stopped working and didn’t work for three years and balancing my cortisone levels because I was told to reduce. Sometimes I was ill because I had a virus or something and needed more tablets. I was told I might never get the function back so I’m very grateful I have. I also have MS and never knew which one was causing the fatigue. Worst is trying to explain Addisons. People have not heard of it and even some doctors are pretty ignorant as well. I almost fell unconscious once in hospital because a doctor cancelled my cortisone. Still mad about that one!
I hope that you are doing well now. Rare diseases (& those that science hasn’t yet caught up with) are a troubling thing. Though Addisons is very common in dogs- which rather skews the google searches 😂
@@snapdragonlife Cushing’s as well! I googled Cushing’s when I got it and it was a lot of dog stuff too! I actually have MEN1 syndrome which kicked off the whole thing which is means Multiple Endocrinological Neoplasms so lots of hormonal tumours caused by a missing gene.
Thank you for sharing your story. I am always impressed by how much you achieve. I suffered a lot of stress a few years ago and I still feel the effects of it now as I find it hard to relax. The download is really helpful.
Thanks Elizabeth. I’m glad that you find the download helpful. J x
Hi Jane, I find all your videos inspirational and look forward to them. This one especially is so moving and truly wonderful. I love 'rest and digest', something that I will take away as it is what I need to do most to stop from constantly feeling the need to keep busy and productive. Your explnation of cortisol and flight and flight is relayed so well. Your smile, aura of calmness and voice warms me. Thank you so much
Thank you so much for this lovely comment Felicity x
Thank you so much for sharing this video. I have had to learn all of these things over the last 6 years with FND. You have just summed up everything I do in order to enjoy a full life, free from as much stress as possible 😊
Thank you. I’m so glad that you liked it. J d
What a gorgeous film. Thank you for sharing your story. I think you have quite a few Super Powers! I’m prone to catastrophying . What helps for me is a mixture of socialising but then withdrawing and being in my own space. I love exercise from challenging gym classes to simple walks, but then I also love curling up with a book or box set. I think this whole holistic approach to health is the key. You’ve probably heard about Zoe Science and Nutrition pod casts, but if you haven’t, may I recommend How to Eat in 2024 and 10 Tips To Help You Live Healthier (2parts to that one). I adore all the craft items you do. I’ve raided my daughter’s art supplies and intend to make one of those love notes.
Thanks Carol. I think you are so right - that it is gathering up all the knowledge of what we can do ourselves to help with our health (or catastrophizing 🥰) partly so that we feel more in control of our lives. Let me know how you get on with the love note - they are a very addictive make! J x
Thank you Jane this was beautiful to watch and to listen to x auto immune conditions run in my family so this was very interesting and inspiring ❤❤
Thank you. I’m glad you found it interesting. J x
Jane you really share the most fabulously calming and inspiring material... I listened to your commentary here with much gratitude and understanding, seeing and feeling similarities in my own journey back to health over the last 6 years. Thank you for making this beautiful film and for having the courage and foresight to share it with us. - Best wishes - Claire
Thanks Claire. Your comment means a lot. X
Thanks for sharing this great video, Jane! I agree with everything you said and I would add that it also depends on how one thinks about the activities one is engaged in. In fact, that is what seems to determine how one feels doing them.
For instance, I love making wreaths and it's very rewarding for me but the moment I decided to turn it into a business, the same activity became very exhausting for me because suddenly I felt like I have to do it, and do it properly instead of just for fun. Also, for me, the same activities often feel different on different days. I wish there was some rhyme or reason to the fluctuations of my conditions (M.E. etc.). Just wanted to share this in case there are others who also cannot find a pattern with their energy levels.
Thanks Romana. I think that you are right - that when things involve the possibility of being judged or rushed they can suddenly become exhausted. A day when I have made a stupid mistake is far more tiring! J x