Inspired me to do it. Took me like 2 minutes to register on the Medicare app and spoke to my husband about my wishes. He jumped on board pretty quick too♥️
It is easy to see you compartmentalising this right now in order to get through this video. I wish Reece, yourself and family all the best in health. I hope you are both speaking to support groups, if not, please consider it. You both deserve to feel heard and safe. You don't have to walk alone in this. You are both a bright, caring young couple, the best is yet to come and better days will arrive.
Hey Lauren :) I have UC, 12 years diagnosed same as Reece. I struggled with finding that right medication for the first 8-9 years and finally found the biologic that works for me (for the time being). My heart and strength goes out to you and Reece, when you were talking about that see-saw between his two illnesses I just can't imagine how much* that must affect you both. As someone with a condition who has seen many dark times, the people who support you feel it just as much, if not worse. There is a feeling of hopelessness when you are completely powerless as a by-stander that I really don't want you to discount. You matter in this just as much. And how it seems you care for him is bloody lovely, and is the kind of support anyone could wish for. The road ahead sounds uncertain still, but I think together you will both make it through and be there for one another. Take care
My heart goes out to you both, this is ALOT. I’m glad that you and Reece do have a support network of family and friends, so invaluable so that you can take time for yourself to, lean on others for support, it is so hard on the partner as well as the person with the health challenges. Take care ❤. I really appreciate your reviews on make up, it’s so specific and your standards are high so I know if you like something, it’s amazing 😊
You’re such a grounded and genuine person, strong and loving as well… I’ve been silently watching you for a decade and I think i never commented before, but I just wanted to give you a virtual hug and send my prayers towards you. You’re a blessing for your close ones, remember that ❤
I have the same coping method as you When you are tired of crying and so accustomed to this life that when you have to explain to everyone that you just laugh the more intense the story gets because what else to do at this point...i noticed you chuckle and i also do the same I cant imagine what yall are going through but i do sympathize because my son also has a life threatening/altering heart condition...really does change your entire way of life Love youu sending so much support your way
Oh my goodness Lauren, so sorry to hear about Reece’s health, so stressful for the both of you! Thinking of you both and that the next few months are progressive in a positive way! An important plug for organ donation (can’t help it it’s the nurse in me) to help beautiful people like Reece and Lauren! Xxx
I've been going through my own troubles the past 2 months and today was particularly hard for me for some reason. I have watched your video's for over 10 years now so I was looking forward to watching a nice long video. Hearing what you and Reece are having to go through and how even in times like this you are still saying you are so grateful, just puts things into perspective for me and I honestly admire your strength, you are both incredibly strong. You both seem like such lovely people so its heartbreaking just thinking about how stressful this time is, but you both have all of our support and I pray that things start getting better for Reece
Stay strong and big hugs to you both. ❤ I just wanted to share my experience with my work in a transplant office specializing in kidney and liver transplant. (Not a health care practitioner. On the admin side) Liver transplant is just so hard….the medicine for the rest of the life is one thing but just missing a little can cause rejection and other problems. Like you said, it’s a whole set of other things and a whole new life caring for an organ. It’s crazy because right now you guys are caring for a sick organ and if you get a new organ you will be taking care and doing work ups for that new organ for the rest of your life too. It’s hard both ways and I wish he could get a good organ to take care of instead. It was very hard to watch patients suffer for sooo long with liver disease and not be put on the list. I had to leave that line of work because it’s hard to sit and wait. It’s truly a debilitating disease that is extremely challenging and the quality of life is not the same as everyone else. He is truly so strong! It’s hard to get on the list and then waiting while being ill. I am so overjoyed his readings are at 50 instead of 100 and I hope with some communities and naturopathy it will ease his daily pain and give hope. No one should have to deal with this internal struggle. May you guys find moments of peace in the journey. But I just wanted to share xx
It’s completely understandable that you would feel overwhelmed and emotional about everything that’s happening, those feelings are totally valid ❤ wishing you and Rhys all the best ❤
Hi Lauren, my boyfriend was born with Biliary Artesia (born with blocked and scarred bile ducts) and had a liver transplant by age 13. He was very sick but after the transplant he got a new lease on life. He is now 33 and has ran 3 marathons, travelled the world, works 6 days a week and has even more energy than me - his check ups are every 6 months and doctors are always impressed by how he is doing. This is such a hard time for you both, but please know after a liver transplant things can be better than ever… it’s also so confusing to go through this as a partner, the uncertainty gets me down sometimes and I’m always worried for him. But things will be ok!! You’re both so strong. Thinking of you, I’m now 28 and followed you since I was in early high school xxx
Im sorry y'all are going through all of this, and such a young age too. I hope he can start to get some luck on his side, its overdo. I am a nurse and honestly if it were me i would go for the colectomy/ostomy surgery (pending surgical details related to his other issued). I have seen so many people get their lives back and never need further meds for UC. It can be hard initially to get past having an ostomy but the tradeoff is paramount and becomes just part of the daily routine. Hoping things start to look up for you guys soon. ❤
@calicat1996 yeah agree. I know someone with Crohns who never wanted an ostomy, they can't have one easily due to issues from childhood and they used to be glad. But now at 40, they are over it and wish they could just have their bowel cut out and cut whatever have the ostomy. Now they are upset it's not an option for them.
I have followed you for years, but recently came across one of your Instagram stories where you discussed Reece’s health. I was shocked at first, as I had never seen or heard anyone mention PSC outside of a hospital. My fiancé and I have been together 6 years, and unfortunately have gone through a very similar situation to you and Reece. I have never in my life commented on a RUclips video, but couldn’t really get the thought of contacting you out of my mind. As two girls, who are similar in age living in different countries miles apart, I wanted to make myself available to talk to you about this situation we find ourselves in. I have never really had anyone to talk to about this, apart from my amazing partner obviously, however sometimes having someone to talk to that’s not directly involved in the situation but can relate is a great help. (Although I’ve never found someone that can relate to this situation before!) X
Oh Lauren, that's so much for Reece and you to unpack 😢 I'm so sorry you're faced with so many obstacles. I wish you both all the best - you are such a beautiful couple and he seems like the most kind hearted soul 🤍 I hope he receives the best care available
Hi Lauren, I'm so sorry to hear about Reece. I don't know Reece personally, but how you've described him over the years, he sounds like such a nice, calm, sweet person. Isn't it strange how terrible things happen to the most undeserving people? I have first hand experience with this as my fiance (a literal Saint) had a kidney transplant in 2020- smack dab in the Pdemic. Miraculously, I was a match and was fortunate enough to be able to donate one of my kidneys to him. As you know, this whole rollercoaster of your partners health, everyday life and keeping yourself afloat is incredible hard and if you’re like me, you start to feel like a broken record when people ask you "how he's doing" and then you start to feel like they just ask to ask and they dont fully understand the weight/stress/anxiety of it all- it gets slightly lonely. I just wanted to simply say, you're not alone, and if you need a stranger to talk to, even though our circumstances are different, I'm all ears! Btw, our transplant surgery went great! We've had ups and downs post transplant, but overall its been a blessing. I'd recommend being with him with as many appts as you can and being his advocate. Sometimes, it's hard to speak up for yourself, but I've found that I have zero issues speaking up for him and making sure the doctors clearly understand what he's going through, etc.
I had a colectomy and it changed my life! I’ve now had a Jpouch for 20 years and I cant even believe I lived in that much pain. Wishing you both the best! 💌
I am so sorry you both are going through this, and for so many years as well 💚 My husband was diagnosed with advanced cholangiocarcinoma last year and battled the insane itch from the jaundice (his bilirubin hit over 400), having to wait for the bilirubin to reduce, cholangitis and sepsis from having a biliary drainage catheter - so I completely understand what you are both going through. I am certain my husband and Reece have the same medical team - they are absolutely amazing and Reece is in the best hands.
Oh my gosh 400?!? Poor thing, that sounds absolutely horrible, for him and of course for you having to witness it. Is he seen at Charlie’s? They’re a great team aren’t they! I hope he’s doing much better 🩷
@@laurencurtis Yeah, 400! It was so high - he resembled a simpsons character he was that yellow. He was seen at Charlie's and he is doing much better :)! They are a fantastic team. I hope both you and Reece are doing okay and holding in there 💚
I feel for you both so much. My husband had stents in his bile ducts and would always get infections…sepsis once as well….ascending Cholangitis. It’s such a difficult journey. I haven’t finished watching this yet, but just wanted to send well-wishes and just tell you how relatable this is. Glad Reece has great medical care. Wishing you both continued strength! Omg…watching more and you are saying so much of what I felt. It’s validating that I was not alone in that. It’s like listening to myself…..
I'm a solid organ transplant dietitian, and my patients are the absolute strongest people I know. It's a long road and can feel impossible at times, but there is hope on the other side. Sending you both strength. And here's to Reece hitting those protein goals :)
Hey Lauren, sorry you are going on with so many things at once. Hope you and Reece will be ok, sending love. And good luck with your ADHD journey, it takes a while ( i received my diagnose two years ago)
I don’t know how the healthcare in Australia is, but my brother in law has the exact same conditions as Reece (UC and PSC) and the medication he was prescribed in Boston has put it in essentially complete remission for the past 10+ years. Sending love to yall ❤
I had 60% of my liver removed in late April after some large liver tumors were found. My gallbladder also had to go because it’s connected to the right lobe of the liver. The liver is a fascinating organ that I never expected to know anything about. I am very happy to share with you (or others) about my experience. I am very familiar with many of the things you mentioned. My best advice is to look after yourself. I am so grateful to my husband for the care and support he provided. Never once did I feel that he didn’t also deserve a break. Hugs to you and Reece. ❤
Lauren ❤️ I’ve been following you since the beginning of your channel and lost track for a while, but you popped up on my feed today, and I felt I had to reach out. I’m truly sorry for everything you and Reece are going through. Living with long-term illness is unimaginably tough, and being by someone’s side through it all is equally challenging in its own way. Supporting Reece as his rock is one of the hardest, most emotionally taxing things you can do, and it’s so important to recognize your strength in that role. Trust in your medical team and hold on to hope for the pain-free future you and Reece deserve. There are other people out there - myself included - who can empathise with your situation. You aren’t alone in all this. Sending so much love from Ireland 🇮🇪
this must be such a challenging time, my heart goes out to you. as a long-time subscriber, I'm sending so much love & thinking of you both. hoping for the very best ❤ you are such a wonderful supportive partner.
Sounds super stressful 😢. Don’t forget to look after you too gf! There’s so much info online about stress and coping techniques - deep breathing and tapping has been life changing for my anxiety. Thinking of you both 🤍.
Routine is my whole existence and I have a massive problem with noise lol I just found out I am also autistic as well as ADHD. Change is so hard man! Thinking of you guys xx it’s okay to struggle too! No wonder. That is so much to cope with. 💜
I don't think I've ever related to a video more in my life. I'm late diagnosis ADHD as well, and I've had ALL the same realisations you talked about, AND my boyfriend has UC and PSC. So I really have so much empathy for you Lauren. I'm so lucky that my partner is in remission and his liver hasn't been affected too badly (yet), but I know that's a possibility on our horizon, which is terrifying. Knowing you have ADHD as well makes me so sad, because I know how hard regular life is with ADHD and I can't even imagine how hard all of the medical appts and constant disruption to routine would be on top of that. And the guilt would be so hard on you because we live with that shame and guilt every day over struggling with "normal" things, let alone when the person you love is struggling and needs you. This comment is pretty incoherent but I guess I just wanted to let you know that I feel for you and I hope things get better for you really soon ❤
I don’t know if they have this in Australia, but go get your colors done and they also have a style class to help you figure out what styles are best for your body proportions. In the US and UK there is House of Colour, but not sure if there if something similar in Austrailia! It changed my life and makes shopping and putting an outfit together so much easier and it makes me feel much more confident!
My heart goes out you and Reece. I was diagnosed with MS just over a year ago at age 26 which is also an auto immune disease and am on immune suppression treatment. I know it’s not the same, but I empathize with the situation I feel medical things like these just feel terrifying and just consume you. Reece is very lucky to have such a supportive partner, I’m sure he would be forever grateful. Sending lots of love and positive energy. 🤍
I lost my dad to liver cancer from Hep C. It’s a rough and long journey when you’re diagnosed with something that affects the liver. Wishing Reece all the best. You’re such a strong partner ❤
I feel so much for you and Reece, I actually have psc too and it’s so scary to think about at times. Cholangitis is one of the most painful things ever and such an awful experience, sending lots of love ❤
I’ve just finished your video and also want to add that I’ve also had a total colectomy and it actually changed my life so much for the better 😊 I also went for the permanent stoma, the j pouch totally isn’t worth it!! It takes so much strength to push through everything but it sounds like everyone is fighting hard for you guys
Sending you both love and strength 🩷 It is completely normal to feel overwhelmed with everything you’re trying to process. Lean on those close to you and let people help. You’re doing amazing Loz 🩷🩷
Sending you both my love, it must be alot to handle as you say, you're a very strong lady and Reece is lucky to have you. I hope his treatment plans go well aevhe feels better soon ❤
Gurll regarding your style struggles, i would highly recommend to have an appoinment with allison bornstein she will definitely help you to style your actual closet, i don't know if you have heard about the 3 word method but it's just basically what your personality and lifestyle leans towards fashion wise without you even noticing it! Sending lots of light and love to you an Reece ❤ The sun will come out after the storm ☀️
Dear Heavenly Father, thank you for today. Thank you for Lauren and Reece. Lord we pray your peace over them both and we pray Your healing over Reeces liver in Jesus name! We pray that his liver would function 100 percent and that colitis leaves his body! Thank you Lord for what your gonna do in Jesus name. Lord reveal to them your love and healing power. In Jesus mighty name amen.
I have Lupus and fibromyalgia which are autoimmune diseases one messes with the kidneys and bones and the others is the muscles and nerves…. It takes a strong person like you to help care for and love someone with autoimmune diseases we need people that truly care about us around us… you’re Reece’s person mine is my sister and I am so lucky my sister gives up so much to take care of me
I have chronic illnesses myself that are quite disabling due to my own weight loss and lack of energy. So I definitely have compassion for Reece and his own journey. I'm sending you both so much love Lauren and am wishing Reece the best. ❤❤❤
I know what you’re dealing wit, my husband just had a heart procedure and it’s so difficult to not stress before and after. Everything is going to be alright. Sending positive vibes to you and Reece🤍
My sister has the exact same conditions. She just had her biopsy last week to determine when the appropriate time for her transplant will be. So hard to watch someone you love go through this. Hugs ❤
Hi I have NASH Cirrhosis. I was diagnosed October 2018 and I’m 50. Is he suitable for a clinical trial for either the liver disease or the UC? It might be worth asking. I’m doing one for a drug to prevent varices. I’m in my second year now. Wishing you both all the best. ❤️💐
Would you consider engaging with a naturopath? There’s a lot that naturopaths can do to support the bodies natural healing and it wouldn’t mean stopping any of his medications/going against doctors etc. Even if Reece isn’t open to natural medicine, you could just have a conversation with a naturopath to talk it out and see if there’s anything they can do. I feel the heaviness for you both and I am sending love and peace to you both during this difficult time.
Lauren ❤❤❤ sending you all the love. This all feels so heavy. I hope you’re taking care of yourself- especially your mental health. I’m not sure if you already do this, but I hope you have a therapist because dealing with this is not for the faint of heart. Sending Reece healing 🙏🏽🙏🏽🙏🏽✨✨✨
I really struggled looking after my Mum when she was sick, including never being at home and long days in the hospital. After she passed away I completely crashed out, she passed away in 2019 and I spent the pandemic alone, so that didn't help. Anyway, turned out as well as grief it was autistic burnout. I got diagnosed with ADHD when I was 31 and Autism when I was 32, a few years after she died. I just got to the bit where you mentioned ADHD, before that my neurodiversity Spidey senses were going. 😂❤ Do whatever you need to take care of yourself. You aren't bad or wrong for feeling overwhelmed for yourself. Being overstimulated by constantly changing environments, lack of day-to-day stability and whirring thoughts is draining. Wishing you both loads of love, health and peace. ❤
Charlies does have an agreement with one of the motel/hotels near buy and pts get priority there. And now at FSH they have opened the Medi Hotel for short and long stay. My best friend is on the transplant list and its such a complex emotinal journey. Really hoping for good outcomes for him ❤ Im also a nurse a friend is a transplant coordinator nurse if you have any afyer hrs 😊 questions 😊
Friend at work got THE call driving to work that they had a transplant for her and she had to get to the city. Best reason to call in sick ever! Oh also remember he wont come home the day he has the transplant. You will have some time to sort bits and bobs out.
I’ve got Crohn’s Disease, so I can truly relate to what Reese is going through-it can be such a challenging experience. I’ll be keeping you both in my thoughts. My spouse has been there through my journey, and hearing your perspective, as someone who provides that same care, means more than you know. We appreciate partners like you deeply. ❤❤❤
my brother was an organ donor and saved many lives when he passed. it was healing for us knowing he was a hero. his heart was donated to a young child 😭
My daughter has colitis too but made the huge decision to have her bowel removed last year. Now she lives with a ileostomy and bag and her life has improved so much. Those drugs come with their own risks.Thinking of Reece.
I used to wear fake tan 24/7 and now never wear it. I literally don’t know how I used to do it 😂 it’s such a relief not having to schedule around it anymore. I only pull it out for certain occasions.
My friend got a new liver and wasn’t that far along in her liver disease. It took a year to find a match. Why can’t he get on the now? Is it bc he’s not a father? Is it the social healthcare issue? He so young and should be getting on a list.
Hello, I’m sending you my best energy and positivity. I was diagnosed 18 years ago with an autoimmune disease, autoimmune hepatitis, primary biliary cholangitis, and esophageal varices. Now everything has progressed, and I have primary biliary cirrhosis. I just started my tests and I’m now on the waiting list for a liver transplant, but with a lot of self-care and the love of my loved ones, this situation becomes more bearable.
Please, please, please consider trying the carnivore diet. Dr Anthony Chaffee who is based in Perth is one of the leading doctors in the world who prescribes patients with this diet. He also has a private clinic. This diet heals, especially autoimmune diseases. Also look at the lion diet with Makayla Peterson. Please at least listen to Dr Chaffees podcasts 🙏🏼🙏🏼🙏🏼
It’s free in Australia! Medications become expensive because he takes so many but they’re still only a few hundred dollars a month. Eternally grateful we live in Australia
Obviously be a registered donor and talking to our enduring power of attorneys but as liver can be a live donor organ, is there a way we can find out if we would be a match?
I mean you basically said the solution. Just go for the transplant. Yeah there's risks, very small ones because liver transplants are probably one of the most common transplants in the world, but the side effects and taking anti-rejection medications and monitoring your liver function and kidney function after a transplant is much more preferable to all the bullshit that you're putting up with now. I don't know, it's an easy choice for me out of two serious decisions, which one has the probability for a better outcome? Sticking to what he has now and not doing anything? Well that's going to get you nowhere fast, at least with the transplant you have a better chance a higher probability at quality life there's no decision here
Everyone reading this should look into their organ donation status.
Inspired me to do it. Took me like 2 minutes to register on the Medicare app and spoke to my husband about my wishes. He jumped on board pretty quick too♥️
Me too!
It is easy to see you compartmentalising this right now in order to get through this video. I wish Reece, yourself and family all the best in health. I hope you are both speaking to support groups, if not, please consider it. You both deserve to feel heard and safe. You don't have to walk alone in this. You are both a bright, caring young couple, the best is yet to come and better days will arrive.
Hey Lauren :) I have UC, 12 years diagnosed same as Reece. I struggled with finding that right medication for the first 8-9 years and finally found the biologic that works for me (for the time being). My heart and strength goes out to you and Reece, when you were talking about that see-saw between his two illnesses I just can't imagine how much* that must affect you both. As someone with a condition who has seen many dark times, the people who support you feel it just as much, if not worse. There is a feeling of hopelessness when you are completely powerless as a by-stander that I really don't want you to discount.
You matter in this just as much. And how it seems you care for him is bloody lovely, and is the kind of support anyone could wish for.
The road ahead sounds uncertain still, but I think together you will both make it through and be there for one another. Take care
Well said ❤😊😊❤ 👏
Thank you so much 😭🩷
You both are in my thoughts! And I hope you get better days soon! ❤
My heart goes out to you both, this is ALOT. I’m glad that you and Reece do have a support network of family and friends, so invaluable so that you can take time for yourself to, lean on others for support, it is so hard on the partner as well as the person with the health challenges. Take care ❤. I really appreciate your reviews on make up, it’s so specific and your standards are high so I know if you like something, it’s amazing 😊
You’re such a grounded and genuine person, strong and loving as well… I’ve been silently watching you for a decade and I think i never commented before, but I just wanted to give you a virtual hug and send my prayers towards you. You’re a blessing for your close ones, remember that ❤
🥺🩷
I have the same coping method as you
When you are tired of crying and so accustomed to this life that when you have to explain to everyone that you just laugh the more intense the story gets because what else to do at this point...i noticed you chuckle and i also do the same
I cant imagine what yall are going through but i do sympathize because my son also has a life threatening/altering heart condition...really does change your entire way of life
Love youu sending so much support your way
🥺🩷🩷
Also, you are literally the definition of a beautiful person inside and out
Sending both you and Reece so much love and strength! Thank you for sharing his story and your feelings. 🫶🏾🫶🏾🫶🏾
Oh poor Reece, and poor you, what a hectic thing to go through. At least he's got options and sounds like a great medical team. Thinking of you guys 💕
Oh my goodness Lauren, so sorry to hear about Reece’s health, so stressful for the both of you! Thinking of you both and that the next few months are progressive in a positive way! An important plug for organ donation (can’t help it it’s the nurse in me) to help beautiful people like Reece and Lauren! Xxx
I've been going through my own troubles the past 2 months and today was particularly hard for me for some reason. I have watched your video's for over 10 years now so I was looking forward to watching a nice long video. Hearing what you and Reece are having to go through and how even in times like this you are still saying you are so grateful, just puts things into perspective for me and I honestly admire your strength, you are both incredibly strong. You both seem like such lovely people so its heartbreaking just thinking about how stressful this time is, but you both have all of our support and I pray that things start getting better for Reece
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Stay strong and big hugs to you both. ❤ I just wanted to share my experience with my work in a transplant office specializing in kidney and liver transplant. (Not a health care practitioner. On the admin side) Liver transplant is just so hard….the medicine for the rest of the life is one thing but just missing a little can cause rejection and other problems. Like you said, it’s a whole set of other things and a whole new life caring for an organ. It’s crazy because right now you guys are caring for a sick organ and if you get a new organ you will be taking care and doing work ups for that new organ for the rest of your life too. It’s hard both ways and I wish he could get a good organ to take care of instead. It was very hard to watch patients suffer for sooo long with liver disease and not be put on the list. I had to leave that line of work because it’s hard to sit and wait. It’s truly a debilitating disease that is extremely challenging and the quality of life is not the same as everyone else. He is truly so strong! It’s hard to get on the list and then waiting while being ill. I am so overjoyed his readings are at 50 instead of 100 and I hope with some communities and naturopathy it will ease his daily pain and give hope. No one should have to deal with this internal struggle. May you guys find moments of peace in the journey. But I just wanted to share xx
It’s completely understandable that you would feel overwhelmed and emotional about everything that’s happening, those feelings are totally valid ❤ wishing you and Rhys all the best ❤
Ohhhh man, that’s so much for him and you to be dealing with 😢
He’s very lucky to have you!
I wish him all the best for his future ❤
Hi Lauren, my boyfriend was born with Biliary Artesia (born with blocked and scarred bile ducts) and had a liver transplant by age 13. He was very sick but after the transplant he got a new lease on life. He is now 33 and has ran 3 marathons, travelled the world, works 6 days a week and has even more energy than me - his check ups are every 6 months and doctors are always impressed by how he is doing. This is such a hard time for you both, but please know after a liver transplant things can be better than ever… it’s also so confusing to go through this as a partner, the uncertainty gets me down sometimes and I’m always worried for him. But things will be ok!! You’re both so strong. Thinking of you, I’m now 28 and followed you since I was in early high school xxx
Sending you and Reece the most positive and healing vibes going through this experience ! ❤
Im sorry y'all are going through all of this, and such a young age too. I hope he can start to get some luck on his side, its overdo.
I am a nurse and honestly if it were me i would go for the colectomy/ostomy surgery (pending surgical details related to his other issued). I have seen so many people get their lives back and never need further meds for UC. It can be hard initially to get past having an ostomy but the tradeoff is paramount and becomes just part of the daily routine.
Hoping things start to look up for you guys soon. ❤
Thank you so much! Yep, he feels the same way about the colectomy now
@calicat1996 yeah agree. I know someone with Crohns who never wanted an ostomy, they can't have one easily due to issues from childhood and they used to be glad. But now at 40, they are over it and wish they could just have their bowel cut out and cut whatever have the ostomy. Now they are upset it's not an option for them.
I have followed you for years, but recently came across one of your Instagram stories where you discussed Reece’s health. I was shocked at first, as I had never seen or heard anyone mention PSC outside of a hospital.
My fiancé and I have been together 6 years, and unfortunately have gone through a very similar situation to you and Reece. I have never in my life commented on a RUclips video, but couldn’t really get the thought of contacting you out of my mind.
As two girls, who are similar in age living in different countries miles apart, I wanted to make myself available to talk to you about this situation we find ourselves in. I have never really had anyone to talk to about this, apart from my amazing partner obviously, however sometimes having someone to talk to that’s not directly involved in the situation but can relate is a great help. (Although I’ve never found someone that can relate to this situation before!) X
That’s so lovely - thank you so much 🥺🩷 always here to chat!
omg… i’ll be praying for reece 🥺 my mom has UC so i know how unpleasant it can get. hopefully that transplant comes soon! ❤️
Oh Lauren, that's so much for Reece and you to unpack 😢 I'm so sorry you're faced with so many obstacles. I wish you both all the best - you are such a beautiful couple and he seems like the most kind hearted soul 🤍 I hope he receives the best care available
Hi Lauren, I'm so sorry to hear about Reece. I don't know Reece personally, but how you've described him over the years, he sounds like such a nice, calm, sweet person. Isn't it strange how terrible things happen to the most undeserving people? I have first hand experience with this as my fiance (a literal Saint) had a kidney transplant in 2020- smack dab in the Pdemic. Miraculously, I was a match and was fortunate enough to be able to donate one of my kidneys to him. As you know, this whole rollercoaster of your partners health, everyday life and keeping yourself afloat is incredible hard and if you’re like me, you start to feel like a broken record when people ask you "how he's doing" and then you start to feel like they just ask to ask and they dont fully understand the weight/stress/anxiety of it all- it gets slightly lonely. I just wanted to simply say, you're not alone, and if you need a stranger to talk to, even though our circumstances are different, I'm all ears! Btw, our transplant surgery went great! We've had ups and downs post transplant, but overall its been a blessing. I'd recommend being with him with as many appts as you can and being his advocate. Sometimes, it's hard to speak up for yourself, but I've found that I have zero issues speaking up for him and making sure the doctors clearly understand what he's going through, etc.
This is so sweet. Thank you so much. I’m so glad he’s doing much better 🩷🩷
I had a colectomy and it changed my life! I’ve now had a Jpouch for 20 years and I cant even believe I lived in that much pain. Wishing you both the best! 💌
I am so sorry you both are going through this, and for so many years as well 💚
My husband was diagnosed with advanced cholangiocarcinoma last year and battled the insane itch from the jaundice (his bilirubin hit over 400), having to wait for the bilirubin to reduce, cholangitis and sepsis from having a biliary drainage catheter - so I completely understand what you are both going through. I am certain my husband and Reece have the same medical team - they are absolutely amazing and Reece is in the best hands.
Oh my gosh 400?!? Poor thing, that sounds absolutely horrible, for him and of course for you having to witness it. Is he seen at Charlie’s? They’re a great team aren’t they! I hope he’s doing much better 🩷
@@laurencurtis Yeah, 400! It was so high - he resembled a simpsons character he was that yellow. He was seen at Charlie's and he is doing much better :)! They are a fantastic team. I hope both you and Reece are doing okay and holding in there 💚
I feel for you both so much. My husband had stents in his bile ducts and would always get infections…sepsis once as well….ascending Cholangitis. It’s such a difficult journey. I haven’t finished watching this yet, but just wanted to send well-wishes and just tell you how relatable this is. Glad Reece has great medical care. Wishing you both continued strength! Omg…watching more and you are saying so much of what I felt. It’s validating that I was not alone in that. It’s like listening to myself…..
🩷 I’m glad Reece had his stent removed for that reason. I was terrified he’d get another sepsis infection or something
Sending you and Reece so much love and strength! ❤❤❤❤
THAT LIP COMBO IS ANGELIC !
8:20 calling sepsis "another infection" is such an understatement. ooof just shows how rough things have been :(
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Keeping you and Reece in my thoughts and hoping for better health days ahead for you both💛💛
Hey LNR I always check on your latest tutorials Lauren I'm happy and will keep ya'll in my prayers for you guys!!!
I'm a solid organ transplant dietitian, and my patients are the absolute strongest people I know. It's a long road and can feel impossible at times, but there is hope on the other side. Sending you both strength. And here's to Reece hitting those protein goals :)
Thank you for updating us! I will continue to pray 🙏
All the best to Reece, for a good outcome. Love your video's. ❤
Hey Lauren, sorry you are going on with so many things at once. Hope you and Reece will be ok, sending love. And good luck with your ADHD journey, it takes a while ( i received my diagnose two years ago)
I just have to say I'm thinking about you and Reece. I had a liver transplant at the age of 5 and am now 41. it is a road I understand ❤
I don’t know how the healthcare in Australia is, but my brother in law has the exact same conditions as Reece (UC and PSC) and the medication he was prescribed in Boston has put it in essentially complete remission for the past 10+ years. Sending love to yall ❤
I had 60% of my liver removed in late April after some large liver tumors were found. My gallbladder also had to go because it’s connected to the right lobe of the liver. The liver is a fascinating organ that I never expected to know anything about. I am very happy to share with you (or others) about my experience. I am very familiar with many of the things you mentioned. My best advice is to look after yourself. I am so grateful to my husband for the care and support he provided. Never once did I feel that he didn’t also deserve a break.
Hugs to you and Reece. ❤
Lauren ❤️ I’ve been following you since the beginning of your channel and lost track for a while, but you popped up on my feed today, and I felt I had to reach out. I’m truly sorry for everything you and Reece are going through. Living with long-term illness is unimaginably tough, and being by someone’s side through it all is equally challenging in its own way. Supporting Reece as his rock is one of the hardest, most emotionally taxing things you can do, and it’s so important to recognize your strength in that role. Trust in your medical team and hold on to hope for the pain-free future you and Reece deserve. There are other people out there - myself included - who can empathise with your situation. You aren’t alone in all this. Sending so much love from Ireland 🇮🇪
this must be such a challenging time, my heart goes out to you. as a long-time subscriber, I'm sending so much love & thinking of you both. hoping for the very best ❤ you are such a wonderful supportive partner.
Lauren you are such a warrior. This must be so hard for Reece and for you. Thinking of you both ❤
I’m so sorry you guys are going through this. sending love and hoping for healing 🩵
All my thoughts to you and Reece ! I have been following you since the beginnning. Lots of love
Sounds super stressful 😢. Don’t forget to look after you too gf! There’s so much info online about stress and coping techniques - deep breathing and tapping has been life changing for my anxiety. Thinking of you both 🤍.
Routine is my whole existence and I have a massive problem with noise lol I just found out I am also autistic as well as ADHD. Change is so hard man!
Thinking of you guys xx it’s okay to struggle too! No wonder. That is so much to cope with. 💜
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I don't think I've ever related to a video more in my life. I'm late diagnosis ADHD as well, and I've had ALL the same realisations you talked about, AND my boyfriend has UC and PSC. So I really have so much empathy for you Lauren. I'm so lucky that my partner is in remission and his liver hasn't been affected too badly (yet), but I know that's a possibility on our horizon, which is terrifying. Knowing you have ADHD as well makes me so sad, because I know how hard regular life is with ADHD and I can't even imagine how hard all of the medical appts and constant disruption to routine would be on top of that. And the guilt would be so hard on you because we live with that shame and guilt every day over struggling with "normal" things, let alone when the person you love is struggling and needs you. This comment is pretty incoherent but I guess I just wanted to let you know that I feel for you and I hope things get better for you really soon ❤
Sending you a huge hug. Thank you 🥺🩷
@laurencurtis 💕💕💕💕
I don’t know if they have this in Australia, but go get your colors done and they also have a style class to help you figure out what styles are best for your body proportions. In the US and UK there is House of Colour, but not sure if there if something similar in Austrailia! It changed my life and makes shopping and putting an outfit together so much easier and it makes me feel much more confident!
My heart goes out you and Reece.
I was diagnosed with MS just over a year ago at age 26 which is also an auto immune disease and am on immune suppression treatment. I know it’s not the same, but I empathize with the situation I feel medical things like these just feel terrifying and just consume you.
Reece is very lucky to have such a supportive partner, I’m sure he would be forever grateful.
Sending lots of love and positive energy. 🤍
Sending you and Reece lots of love!!
I lost my dad to liver cancer from Hep C. It’s a rough and long journey when you’re diagnosed with something that affects the liver. Wishing Reece all the best. You’re such a strong partner ❤
I miss you!!! It's been a long time! we'll be praying for Reece's health 🙏
I feel so much for you and Reece, I actually have psc too and it’s so scary to think about at times. Cholangitis is one of the most painful things ever and such an awful experience, sending lots of love ❤
I’ve just finished your video and also want to add that I’ve also had a total colectomy and it actually changed my life so much for the better 😊 I also went for the permanent stoma, the j pouch totally isn’t worth it!! It takes so much strength to push through everything but it sounds like everyone is fighting hard for you guys
That’s so amazing to hear!! Thank you so much for sharing 🩷
Sending you both love and strength 🩷
It is completely normal to feel overwhelmed with everything you’re trying to process.
Lean on those close to you and let people help. You’re doing amazing Loz 🩷🩷
Sending you both my love, it must be alot to handle as you say, you're a very strong lady and Reece is lucky to have you. I hope his treatment plans go well aevhe feels better soon ❤
Gurll regarding your style struggles, i would highly recommend to have an appoinment with allison bornstein she will definitely help you to style your actual closet, i don't know if you have heard about the 3 word method but it's just basically what your personality and lifestyle leans towards fashion wise without you even noticing it! Sending lots of light and love to you an Reece ❤ The sun will come out after the storm ☀️
Dear Heavenly Father, thank you for today. Thank you for Lauren and Reece. Lord we pray your peace over them both and we pray Your healing over Reeces liver in Jesus name! We pray that his liver would function 100 percent and that colitis leaves his body! Thank you Lord for what your gonna do in Jesus name. Lord reveal to them your love and healing power. In Jesus mighty name amen.
I have Lupus and fibromyalgia which are autoimmune diseases one messes with the kidneys and bones and the others is the muscles and nerves…. It takes a strong person like you to help care for and love someone with autoimmune diseases we need people that truly care about us around us… you’re Reece’s person mine is my sister and I am so lucky my sister gives up so much to take care of me
I have chronic illnesses myself that are quite disabling due to my own weight loss and lack of energy. So I definitely have compassion for Reece and his own journey.
I'm sending you both so much love Lauren and am wishing Reece the best. ❤❤❤
Lauren, your feelings and struggle with this situation are completely valid too. Just wanted to make sure you know that. :)
Hiii omg i miss u so much , im listening to this while im at work 💞💞💞
I’ve also got Ulcerative colitis after seeing a naturopath i haven’t had as many flares literally 1 minor one in the last 4 years.
Sending love and health to you and Reese ❤
I know what you’re dealing wit, my husband just had a heart procedure and it’s so difficult to not stress before and after. Everything is going to be alright. Sending positive vibes to you and Reece🤍
I remember when you didn’t know what was wrong with Reece 😢 hoping you have a nice Christmas ❤
My sister has the exact same conditions. She just had her biopsy last week to determine when the appropriate time for her transplant will be. So hard to watch someone you love go through this. Hugs ❤
Hi I have NASH Cirrhosis. I was diagnosed October 2018 and I’m 50. Is he suitable for a clinical trial for either the liver disease or the UC? It might be worth asking. I’m doing one for a drug to prevent varices. I’m in my second year now.
Wishing you both all the best. ❤️💐
Would you consider engaging with a naturopath? There’s a lot that naturopaths can do to support the bodies natural healing and it wouldn’t mean stopping any of his medications/going against doctors etc. Even if Reece isn’t open to natural medicine, you could just have a conversation with a naturopath to talk it out and see if there’s anything they can do.
I feel the heaviness for you both and I am sending love and peace to you both during this difficult time.
Lauren ❤❤❤ sending you all the love. This all feels so heavy. I hope you’re taking care of yourself- especially your mental health. I’m not sure if you already do this, but I hope you have a therapist because dealing with this is not for the faint of heart. Sending Reece healing 🙏🏽🙏🏽🙏🏽✨✨✨
You are so strong , is must be so hard to constantly living on edge if you will lose the love of your life
Sending hugs and healing ❤️🩹 wishes for you both.
I really struggled looking after my Mum when she was sick, including never being at home and long days in the hospital.
After she passed away I completely crashed out, she passed away in 2019 and I spent the pandemic alone, so that didn't help. Anyway, turned out as well as grief it was autistic burnout. I got diagnosed with ADHD when I was 31 and Autism when I was 32, a few years after she died.
I just got to the bit where you mentioned ADHD, before that my neurodiversity Spidey senses were going. 😂❤
Do whatever you need to take care of yourself. You aren't bad or wrong for feeling overwhelmed for yourself. Being overstimulated by constantly changing environments, lack of day-to-day stability and whirring thoughts is draining.
Wishing you both loads of love, health and peace. ❤
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Praying for you both🙏❤️🙏
Sending so much love, how incredibly difficult ❤ 🫂
When they say health is wealth they aren’t kidding. ❤
Charlies does have an agreement with one of the motel/hotels near buy and pts get priority there. And now at FSH they have opened the Medi Hotel for short and long stay. My best friend is on the transplant list and its such a complex emotinal journey. Really hoping for good outcomes for him ❤
Im also a nurse a friend is a transplant coordinator nurse if you have any afyer hrs 😊 questions 😊
Friend at work got THE call driving to work that they had a transplant for her and she had to get to the city. Best reason to call in sick ever!
Oh also remember he wont come home the day he has the transplant. You will have some time to sort bits and bobs out.
I’ve got Crohn’s Disease, so I can truly relate to what Reese is going through-it can be such a challenging experience. I’ll be keeping you both in my thoughts. My spouse has been there through my journey, and hearing your perspective, as someone who provides that same care, means more than you know. We appreciate partners like you deeply. ❤❤❤
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What a difficult journey for you both. 😢
my brother was an organ donor and saved many lives when he passed. it was healing for us knowing he was a hero.
his heart was donated to a young child 😭
Oh my gosh 🥺🩷🩷🩷
Sending so much love. 💜
My daughter has colitis too but made the huge decision to have her bowel removed last year. Now she lives with a ileostomy and bag and her life has improved so much. Those drugs come with their own risks.Thinking of Reece.
I’m SO happy to hear that 🩷
@laurencurtis thanks 😊
I used to wear fake tan 24/7 and now never wear it. I literally don’t know how I used to do it 😂 it’s such a relief not having to schedule around it anymore. I only pull it out for certain occasions.
Well i watched it before bedtime to wind down and fall asleep 😄
Sending love to you guys❤
Are there any doctors who have solutions to try to heal his conditions or do they keep pumping him with drugs that have awful side effects? 😢
My friend got a new liver and wasn’t that far along in her liver disease. It took a year to find a match. Why can’t he get on the now? Is it bc he’s not a father? Is it the social healthcare issue? He so young and should be getting on a list.
Me and my siblings are being tested to see if we match my sister. She needs a kidney transplant. She’s 34. I understand the stress you’re under. ♥️
Do you ever regret movi g so far from Perth with all the hospital visits etc that will be hapenning
Don’t regret it at all but the timing sucks haha
@laurencurtis I am in Perth and have UC. Would you mind sharing your specialist ? My thoughts and prayers are with you both. Xx
She’s at Sir Charles Gairdner hospital, I don’t think she works privately! But if you DM me on Instagram I can share her name x
Something Ive realised in my 30s - there is nothing wrong with just being standard/basic
Hello, I’m sending you my best energy and positivity. I was diagnosed 18 years ago with an autoimmune disease, autoimmune hepatitis, primary biliary cholangitis, and esophageal varices.
Now everything has progressed, and I have primary biliary cirrhosis. I just started my tests and I’m now on the waiting list for a liver transplant, but with a lot of self-care and the love of my loved ones, this situation becomes more bearable.
Sending you lots of love, I hope your eventual transplant goes perfectly x
Please, please, please consider trying the carnivore diet. Dr Anthony Chaffee who is based in Perth is one of the leading doctors in the world who prescribes patients with this diet. He also has a private clinic. This diet heals, especially autoimmune diseases. Also look at the lion diet with Makayla Peterson. Please at least listen to Dr Chaffees podcasts 🙏🏼🙏🏼🙏🏼
I’m not doing anything else. I’m all ears xx
Wishing you BOTH the best 🤍🤍 watched you two when I was young and appreciate you still on RUclips 🫶🏼🫶🏼
Geez the poor guy. Life can be so unfair!
And so hard for u too Lauren 😔
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I know illness can expensive how do you guys afford medical bills??
Do you guys have insurance is there medical plans available?
It’s free in Australia! Medications become expensive because he takes so many but they’re still only a few hundred dollars a month. Eternally grateful we live in Australia
UC is the devil. It’s so frustrating and disheartening at times. ❤
Obviously be a registered donor and talking to our enduring power of attorneys but as liver can be a live donor organ, is there a way we can find out if we would be a match?
They don’t do living donor transplants in Western Australia!
I mean you basically said the solution. Just go for the transplant. Yeah there's risks, very small ones because liver transplants are probably one of the most common transplants in the world, but the side effects and taking anti-rejection medications and monitoring your liver function and kidney function after a transplant is much more preferable to all the bullshit that you're putting up with now. I don't know, it's an easy choice for me out of two serious decisions, which one has the probability for a better outcome? Sticking to what he has now and not doing anything? Well that's going to get you nowhere fast, at least with the transplant you have a better chance a higher probability at quality life there's no decision here
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