Meet Shane, live life to the fullest | My Last Days
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- Опубликовано: 16 июн 2024
- Shane Burcaw is 20 years old and was diagnosed with Spinal Muscular Atrophy. He's been in a wheelchair since the age of 2, but it hasn't stopped him from being a huge inspiration to everyone around him.
Read more about Shane at: laughingatmynightmare.1000note....
Help raise money for Spinal Muscular Atrophy at: www.laughingatmynightmare.com.
Say hi to him on twitter @shaner528
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CREDITS
SoulPancake presents, in collaboration with Wayfarer Entertainment:
Director/Producer: Justin Baldoni
Producer: Ahmed Kolacek
Associate Producer: Fouad Elgohari
Editor: Nick Pezzillo
Special Thanks to Foundation Content
Associate Producer: Sam Baldoni
Production Coordinator: Emily Foxler
DP: Sam Rosenthal
Sound Recordist: Jordon Justice
Music: Jamey Heath
Colorist: Kurt Nishimura
Mixed by: Lisa Fowle
Special Thanks to Hyatt Park Bethlehem
Enterprise Car Rental Bethlehem
Joe Dinh: Press the Flesh Tattoo Parlor. Bethlehem PA
Visit: wayfarer-entertainment.com
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Развлечения
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Who else is here after Shane and Hannah’s video about how they met?
me lol!
🙋
Of course,
IT SHOWED UP IN MY RECOMMENDED immediately after I watched it! Freaking SPOOKY lol
Hannah is a gold digger
“Someday I’ll find a girl that doesn’t care about the challenges we will face together and just make things work”😩😩😩 HANNAH!!!!! I LOVE this story ughhh!!
IM BAWLING CUZ YES HANNAH!! :'(
Valencia Williams In comes Hannah...who is gorgeous by the way!
And it was because of this document she email him 😊
Valencia Williams I know, I agree. Amazing. I love their videos.....
@Jason Blaha's Strength and Fitness Link?
“ Someday I’m gonna find a girl who doesn’t care “ And that girl is Hannah. 💕🥰
She only cares about his money.
@@ebogar42 bruh what money, dude is a writer n not even a popular youtuber
@@mcemilyca Writers make good money and he's had a popular blog and other social media that he makes money from. He's a millionaire.
@@ebogar42 Only very famous writers make good money, which he's not. Your other points are alright tho, fair enough
@Matt Brown k
Wow it's just crazy to think that 7 years ago everyone thought Shane would die. Look at him now! Same happy person, living a life he didn't expect. Bravo, Shane!
@GlenOStevensII ?????? WTF
@GlenOStevensII - few weeks ago, he did fall off his wheelchair and hit his head.
@GlenOStevensII - She didn’t even take him to the ER.
Ppl it all B.S. that's y they turned down Dr.Phil.....
@@xmuta hahaha
He's talking about Hannah in this video he just didn't know it yet 🖤
@Randy Butternubs yes
😭😍😭
Law of Attraction at it's finest! 🙌🏻❤🥰
TANYA DEE - Law of Attraction = $$$
I just haven't met you yet!
coming back to this 5 years later and knowing that he has found the medical treatment to keep him alive as long as the rest of us makes me more than happy
What is his treatment and how does it work?
rexatron it’s Spinraza- an injection into his spine. It’s really amazing, but very overpriced. His RUclips channel is called Squirmy and Grubs; he’s hilarious.
Chana Bayla what else is there???
@@Daniel-lx3nh Rein it in dog.
The world is blessed to have the chance to have Shane around as long as possible.
“We all have problems in life. Some of them are big, some of them are small. But the quality of your life is really dependent upon how you react to those problems.” ~Shane Burcaw
"There are parts of everyone's life that truly just blow, and it's about how you react to that which defines the quality of your life."
Shane is blessed with a father like that. I wish if every child with disability has a father like Shane's dad, world would be a better place.
If every child had a father like that period.
But yep you’re right. His folks taught him to look at the positive. Good job mom and dad. 😊
@@FreeMare1042i was thinking the same....every child deserves mom n dad like shane🥰🥰🥰🥰🥰🥰🥰🥰xxx
THe amount of love his father has for him.
His father said sex is one of his favorite things.
Bawling over his families love...so beautiful
@@allidoiscry4119 Yes, parents are human too.
St Jude MAFIA of Cancer Industry - The "Mission" collect the most Money possible before donor know about they will NEVER FIND THE CURE or bye bye Business - The "Hope" to find more ignorant and brains washes donors. They are making 2.4 BILLONS A YEAR IS NOT MORE A "CHARITY" IS A DAMN CORPORATION
He's still alive, what a great dude.
Hes on Instagram and Twitter. I found his bk on Barnes& Noble after having a really bad day :) DEFINITELY WAT I NEEDED @ THAT TIME!
Nice! He deserves it!
Not only is he still alive, but he's now taking a medication that is slightly improving some of his symptoms. Go Shane!
@@karicherrycola that's great to hear 😍
April He and his girlfriend have a RUclips channel now, squirmy & grubs. They are hilarious 😆
"When you have kids, you raise them above your shoulders!"
What a PROFOUND thing to say!!! The percentage of parents that a tually believe and practice that is another story!!
I liked that too 😁
"A girl will never come up to me..."
His wife is stunning. His humor and intelligence is what drew her in.
She also talks about how sexy he is to her.
cause they never do, they all sudenly just pop up in his email, lol ruclips.net/video/DN1lPscaDLI/видео.html
She never shows him any affection. She shows the dog more love.
@@matulich77 so u believe her when she say he is sexy to her?
@Kerry Smith beats me, she either love him like a child, like a dog, she either a creep, a devotee, who choose him for his disability, not cause hs is soo smart and funny as theyr fans say, or she just lies when she say that, and its a partnership to make money.
And now he’s receiving a life changing treatment and is going to allow him to live a long happy life with his wonderful fiancée, Hannah!!!
The only reason he’s still alive is because the medication that he uses is made of baby fetus
Speaking Truth you need to change your name because nothing you saying is beneficial and the use of baby fetus to keep a twizzler like Shane alive is high level witchcraft
@@whitelightning4220 You are truly an awful person.
belle32100 you’re the awful one, you continue to lie to yourself about what’s right and wrong, people like you have no morals at all
They are a fake couple, just trying to get rich and famous out of the fairytale they are selling. He has done the same before with 2 other stunning girls that he made a load of money with.
Who came from SBSK? I Think this could be the video that helped him find the love of his life.
I did, and I think you're right. I'm so glad that Hannah saw this video. They seem so happy.
I seen him on SBSK, visited his YT channel and then this A.M. SP was in my inbox as a ‘recommended’ video. He is an amazing young man. Wish he was local...I’d be his girlfriend! Hannah would def have competition. 😇
I'm pretty sure it was
i was searching around for that video too! lol
Me
This is even more awesome to watch knowing where life has taken Shane. He seems so happy and fulfilled, It’s a joy watching him and his wife.
@@dianeandries1331 He and Hannah hadn't met yet.
@@dianeandries1331This was 2012.
His father washing his hair so tenderly. So touching
He's not only still alive and doing well but he's also receiving a new working treatment now :)
He has his own RUclips and beautiful girlfriend too
@@Linuciukas1992 Shane and his girlfriend also did an interview with Special Books by Special Kids
Yes he is receiving Spinraza which is the only FDA approved treatment that slows down the atrophy,his life expectancy is looking better. I love Shane & Hannah!!!
Link?
@@binkyrae6343 ruclips.net/channel/UCdomP1JqhnyBQGaBmfDl4KQ
I can see why Hannah fell for him, what a beautiful, wise soul and he’s really funny and optimistic
snipergang he’s really annoying
@@elizabethsmith9624 Annoying immature and dishonest with his 3rd fake girlfriend.
These comments aren’t hateful... they are honest.. bf you get mad at the comments, do some research... you need to be mad at the people you are defending
snipergang he’s not funny at all. He’s an annoying immature jerk.
ebuTuoY Why do you think that his girlfriends were fake? Do you have proof of something? (I didn’t even know of any other girlfriend than Hannah)
The loves his father shows when he takes care of him is palpable. ❤️
It’s called “acting”
@@lindasullivan2780 Seriously???? His father isn't showing him love? He has to "act/pretend" that he loves him? He doesn't really love him? Are u saying that just bc Shane is disabled?
@@lindasullivan2780 Sad that you didn't experience a father's true love towards his child.
Hannah and Shane just hit A MILLION SUBS!! Came here to relive the “beginning” of Shane sharing his story, just being thankful for him and giving me so much perspective in life. His humor is a reminder how healing laughter can truly be. He’s a beautiful person, with a beautiful family. Thank you for sharing his story!!
Shane Burkaw and Hannah Aylward are a NDA business open relationship agreement agenda lol!!
Those two are frauds .
@@spikedchair7123 Seems really pathetic to be a absolute NOBODY trying to discredit a couple by replying to comments from months ago. Sad… get help, it sounds like you’re struggling with something if this is how you choose to spend your time. It’s not normal behavior.
Well color me unimpressed as hell 🙄
Aaaaand he’s still kicking! He’s got the girl, the house & now a dog. So happy for them❤️
(Edit: Don’t scroll through these comments, I warned you.)
💞
Still scamming with his fake girlfriends more like.
He’s scamming bf you think he has something you don’t
@AsHLiegH-MaRie HoPe You need to stay deluded and go donate them some more money. So they can go on their next free vacation, paid for by their gullible fans.
ebuTuoY whaaat? What’s he scamming? Or the gf scamming?
Shane's father is incredibly inspirational. Such a good kind man.
I think so as well. What real men are like. God bless y'all.
Initial impressions were that of a vicar or a priest but I suppose his joke about breathing and sex I suppose rules this out
I agree, I like his views on life and afterlife.
Shane’s father is a superhero, in my book.
Id love update on him
This video is so moving. As someone who lived in an abusive household Shane’s family is a dream.
You do not know what goes on behind closed doors
@@lindasullivan2780 yes of course I have no idea. I am sure his family has flaws like anyone else’s but it seems like he’s loved and supported and this is amazing ❤️
Completely agree.
SAME here.. his father made me full on cry...
I have the distinct pleasure of meeting Shane and his father as well as his cousin at a conference in Wenatchee Washington a few years ago. I will say he is funny, intelligent, sarcastic and one of the most inspiring people I have ever had the privilege to meet. His dad was all of the above as well. I have been following him on social media ever since and cried my eyes out when he and Hannah finally had their beautiful wedding. He is an amazing person.
@Monica Robey that was a very special trip! Thank you for the kind words!
Fun fact: Hannah, his fiancee, found him from this video
Something about Hannah is off.
Sandra Tristan how?
Maddie Jones her laughter is fake. She saw that Shane previously had 2 cute GF and she was the one to reach out to him! From hundreds of miles away... she seems fake. I hope I’m wrong. And I hope his parents keep a close eye on that relationship
@@sandeetee8009 yeah, totally! she must have went for Shane's fame, fortune, great body, looks and health! That sneaky Hannah! oh wait. For reals, you serious? Like take at least one minute to chew and swallow what you're about to say. Like, it doesn't take a college degree not to look like a tool on the internet.
Maddie Tillem - She’s trolling RUclips to find disable guys to date?
"Everything's weak except for my penis" XD KEEP LIVING LIKE A HERO
Can't think of anyone who needed that disgusting piece of information
I love keeping up with your RUclips and Instagram. As a 22 year old man with Duchenne Muscular Dystrophy you inspire me to live life to its fullest every day!
Why not. Live your life. PEACE
I wish you nothing but the best that life has to offer .May God continue to bless you and your family you are in my thoughts and prayers 🙏 ❤ amen 🙏
Hope you're doing well Mr. Noah! You got this my dude!
Always look for the silver lining in everything and you will find it. Look for live in the world and that is what you will see.
I would like to take a moment of appreciation for Rainn Wilson. Because thanks to him and this video Shane met the love of his life/ Wife Hannah. And I have never been more happy for somebody❤
@Karpal_Seijiin72 who said shes not getting sex? You Really need to head over to their channel to cure your ignorance😂
@Karpal_Seijiin72 and you sat she has no social life? Lmao you really dont know them then. All they did before stupud covid was travel they even wrote their own book and owns his own house so if you ask me she's doing just fine for having to "slave" after him😂😂😂 like you put it.
@Karpal_Seijiin72 Your judgemental comments reek of jealousy.
@@janine9115 How could someone be jealous of a person stuck in a wheelchair for the rest of their life, that has to lie about having hot girlfriends to feel normal and to make a living.
I've been following Shane on tumblr for 6 years. Reading about him losing abilities and then regaining them because of Spinraza has been amazing.
@AsHLiegH-MaRie HoPe definitely! It's improved his life expectancy :')
@Jay Kenley well he sat up on his own
@Jay Kenley he held up a cup and drank from the straw by himself.
@Jay Kenley He can also hold his head up in the car without any help now, and when his head falls, he can lift it back up himself.
What’s his handle
I like when in the beginning he was talking about how his muscles were weak then he said "except for my penis" I started laughing and crying at the same time I love him. he is so happy and idk great
Glad I wasn't drinking anything when he cracked that joke. Funny how a comment can sit there and then 2 years later it gets two responses within an hour.
Make that 3 😂
So true lol
He is a riot for sure
Only that it's not a muscle :O
This is exactly the kind of video that makes me happy that the internet even exists. Shane and Hannah would never have met if it was not for this video and they are definitely such a cseeet, fun and compatible couple. ❤️
Your cousin, your parents, your brother and your friends are all truly incredible people. I see now how you are the person you became because of them - because of having such incredible love and support.
Hes alive and literally kicking. A new drug is restoring his muscle tone!! Hes awesome
47thstreetsupplyco Not restoring, just slowing the progression of deterioration. Still awesome though!!!
larryslove890 I follow his RUclips channel, and since he started Spinraza, he’s been slowly regaining the ability to do things he hasn’t done since he was a teenager, ie sit unassisted and hold a cup.
@@Amber-zg4zo I hope he will improve his abilities... 🤞
47thstreetsupplyco No, he's not 'literally' kicking. He can't kick his legs.
@@l.l.storrie3851 yes he can! He can move his legs, just not walk.
"I don't use humour to avoid the bad stuff, I use humour to make the bad stuff less bad."
Look at him today! Happier than ever and he of all people deserves it! Love u Shane and Hannah!
Loved this story! His parents set the standard. If they had not chosen to look at the hand that they were given in a positive way,Shane would probably have a different outlook on his life. It’s a blessing to see the results of a positive mindset. Shane, his family and friends are awesome! May God continue to bless them all!
Hello Catrina
How are you doing today?
Give him a full life he looks happy and well care for his family wouldn't allow him to be mis treated let him ne happy being love as a man if your husband had a accident and was as bad want would u do love is from God he has encourage alot of people and I was ashamed of my complain he is happy I ask God to bless them he is happy and she do alot out of love she is beautful person and I think he will longer with her in his life
Wow his brother has such a pure heart! That entire family, including his best friend, is just beyond amazing. THIS is the type of family you need to watch, America! Pure love!
Amen. It's nice to see some positivity in our struggling world. This truly gives me hope. They are truly amazing and inspirational.
Bet his brother has not had 3 stunning girlfriends in a row like Shane. He has made these girls a load of money from selling the story. Guess that helps.
"Someday I'm going to find a girl that doesn't care about the challenges we'll face together, and we'll make things work." SO happy that Shane and Hannah found each other ❤️
Fake relationship and you believe that crap 😆😆
This video feels all the sweeter knowing what this led to for Shane. Right in the feels... so so so inspiring...
Turned a pretty girl into caregiver during her youth
@@sammiech9602 Oh yeah, thats totally what hapened. She was brainwashed and bamboozeled by shane the evil one... she had no say and is staying against her will and completely unhappy... I just don't know how I didn't see it in their videos, it's so clear now...
Jeez you people make me chuckle... :D
@@neilgooge at least she is shopping for her second mansion and trying on new bikini to bring awareness to disabled
@@neilgooge why else would she be with him? Shes a care giver as the other comment said
Well I can see where he got his strength. Awesome parents.
He’s got the hottest fiancée, the cutest dog, an awesome house...a beautiful life. For him, I wish his body didn’t betray him..but he is absolutely making the very best of what he has been given...and he’s living far beyond what most of us do...
Right. ❤
@LouiseGrazano sounds like your just jealous! Shane does what he can do and I think he is funny and apparently a lot of other people does to and Hannah knew what she was getting into with her relationship with him and apparently she doesn't mind cause she's getting married to him!
It’s a RUclips business for sure.. the RUclips community is so idiotic for buying into their crap... 🤦♂️. Handicap people can act too
@@bigtriece6019 keep that same energy. Handicap people can find love too.
@@rain1250 Yeah true Shane had 3 stunning girls in a row fall in love with him. Nothing to do with all the money he was making them from selling the story at all 😂😂
"My Last Days" LOL he's most likely going to outlive all of us mere mortals! He's kicking it harder in 2020 than ever before.
He hit the jackpot with these parents ❤️
I was tearful throughout this video because I could feel the deep love his family and friends feel for Shane and he for them. The message he shares is so great, but the love they are all living is the most wonderful. They all sparkle and shine like beautiful jewels.
Don’t waste your tears on it.
my God, what a wise man his father is.
Incredible man.
you watch these vids and realise how much time you've wasted on being sad about nothingness...
howl well said.
I've had PTSD and depression for years. Now that I'm a mom I've claimed enough. When I'm down or feeling withdrawn I watch these videos. I like to think I get to let them live through me for the minutes these videos distract me. Then I remember how thankful I am to be a mom to a son that out wits me daily. I love soul pancake and other family stories. It beats TV and social media every day of the week because your experiencing some REAL ASS LIFE THROUGH REAL ASS PEOPLE.
Let me just say I was attached to this man from the penis joke.
thank you! not only do I see how self centered I have been but I know a couple of people that whine about the dumbest stuff. Then I see this and I am like if he can smile through adversity, no reason I cannot.
Very true
yup
May God bless Shane’s brother..willing to step in and make sacrifices for his brother. That is the kind of love we need more of in the world!
Shane: “some day I’m gonna find a girl that doesn’t care about the challenges well face together, well just make it work”
That day came❤️❤️. In walked Hannah!
@Yugo_Mon Yeah.. because he makes TONS of money off of being a very small and mainly unknown author and the ridiculously tiny amount of money he gets for disability. Give me a break! Hannah loves him because he is smart and funny and handsome and he takes care of her just as much as she takes care of him, just in different ways. They are perfect for eachother and a beautiful example of true love. You must really be insecure to judge them the way you do. Really sad. I feel sorry for you. Maybe watch their channel and you'll see how genuine and amazing their relationship is!
@Yugo_Mon Money in her eyes??? She is great and seems to see him for the humorous intelligent person he is. Gotta love the judges.
Smh it's a scam and she cheats on him any ways.
@@claireashley427 He's making money out of the youtube channel, patreon, donations and many more. Yeah and he tried this with 2 other girls before but they didn't want to carry on this facade. All young and hot. Ask any disabled person how probable is that. Funny how the same women that defend them, have no problem calling older men with much younger women gross etc.
It’s all fake
His brother is someone really special.
I'm so glad Hannah found him
Courtney Pie how did they meet?
Oopsie Daisy she seen a video on him & she emailed him
Heck yeah! Hannah is bomb.com! They are beautiful together
@@lillidaisyASMR Tinder
@@lillidaisyASMR you and i... we can have that kinda relationship as well. Except for I'm very body abled.... =) we'd make some pretty babies.
7 years later he is married.
Fraud wedding. Hannah is a gold digger.
@@ebogar42 Pretty much like any other woman. So?
@@alexanderl9721 Yeah, a lot of them. That's how they're raised. Find a guy to support you and never have to work hard.
@@ebogar42 Try taking care of Shane everyday and then tell me it's an easy job.
@@ebogar42 He's life expectancy is much longer than that. It seems like you have no idea what you're taking about yet you seem very vocal.
I just saw this after watching many Shane and Hannah videos. I have tears flowing and so glad to have seen his amazing parents and brother and friends. Shane is amazing.
I cried when he dad woke him and bathed him and dressed him for the day. It was love in action. A gentle loving act that is not a burden but a gift that his family receives every day. I’m am so deeply happy that this amazing young man is still alive and thriving and DID meet that young woman who didn’t care about the chair or the inabilities and just saw a guy who had other amazing abilities. And that she had the good sense to say, “ps, I think you’re cute.” ❤️❤️
Hello Dear
How are you doing today?
The part his dad was bathing him made me cry because of the struggle but also because of the absolute love.
It doesn't hurt that his dad is hot.
@@blackdogslivesmatter1568 hot? I don't think so. But, his dad IS funny! And funny guys always get the girls. But, hot? Not so much
It's a positive feeling helping the ones you love no drug can compare. I have a special needs brother that I bathe, feed, change his clothes all of that hygiene stuff pretty much making sure he is happy healthy. it can get tiring at times but seeing him happy and smiling is awesome!!!!
And it seems so ironic to me, because immediately before watching this I watched a video of Hannah washing Shane in the shower.😁 Different but the same, I guess!
Omg it’s so weird seeing baby Shane from when he was 20
Shane and Hannah are an inspiration. Anyone who watches these videos loves the fun and laughs they have. Thank you guys, you make me forget my pain.
Hello Jane a
How are you doing today?
He found the girl!!!! ❤️ hannah and shane ❤️
He dated Anna Reinalda previously
lol
Ander Son she looks like she could be Hannah’s little sister 😯
@Octane no idea
@Wraith Yeah the only 3 girlfriends he has had, all stunning girls and all made money from selling the story. Nothing fishy going on here, don't forget to turn a blind eye everyone.
Soul pancake why don’t you do a follow up on Shane? It’s so freaking inspirational.He’s come so far in fulfilling his dreams that most people never accomplish half of.
Why??? He's on his RUclips channel almost daily. You can get an update anytime you want.
Merri Edger they have on channel now
@@chaunybuck6065 But anyone who just sees this video, and its misleading title, is bound to get the wrong idea.
@@kiwispam84
But at the time that Shane did this video he truly thought that his life expectancy was 20 to 30 years. He was 20 at the time of this video.
Please don't say it's "inspirational". Shane (and Hannah) don't do amazingly crazy stuff, they just live a normal life, while Shane happens to be disabled. They do indeed put a smile on everyone's face, but you shouldn't be inspired by their story just because he's in a wheelchair. I guess the "dreams" you're talking about were like having a girlfriend, traveling, hold a RUclips channel or talking to people maybe, but those are just dreams that every human can have and accomplish. Shane is no superhero, he's just an incredibly funny and smart guy :)
I am kind of speaking on their behave, but they did a video in which they talk about it so I allowed myself to respond to your comment : ruclips.net/video/9uR5WmuIAMY/видео.html
luv
I’m an avid fan of Shane & Hannah’s & i’m so glad i found this video of Shane as a twenty year old! He has a great family & terrific friends. These videos have brought happiness & laughter into my life ❤
Just remember guys, he now has a normal life expectancy.
Well I don’t know about “normal”.. he’s very immuno compromised so he could take a sickness way worse than the average :(
@@fromspace8816 I think you’ll find there are not many young healthy people have died from Covid.
That's fantastic to hear!! May he live and be well, for a long, long time; with Hannah.
And now he has a girlfriend, with whom he has been for 4 years and is getting married to
I think they've been together for 5 years.
Smoking hot too, good for him!
TheInternet Sucks what's wrong with you? Everyone wants sex, needs sex!! To prevent what? They have created an amazing person........unlike your parents.
@@allidoiscry4119 I am sorry but the dad had nothing to do with his condition. Kudos to his parents! I am amazed!
Lauren Noel no the last one was named anna reinalda and before that it was Shannon something. They're all really pretty too. He did articles with same title too it kinda weird
I’m seeing this 7 years later. He is taking an injection that stops the deterioration of his muscles now. Yay!
and he just stopped.
@@utinsutiwi in favor of another medication that should help!
He should inject Zolgensma. It's werry expensive but stopts definitly the problem. It's experimental but in my country we make donation for children with SMA1 to recive the treatment and be able to walk again and have a normal life.
Watching this while knowing how great Shane is doing now makes me look at my last 2 1/2 years with severe burn out and sick leave so much more positively!!
Shanes’s family, friends and the love of his life…. Amazing and humbling. God bless and peace to them all.
i cried while watching this video. i have Spina Bifida, where my spinal cord failed to develop completely when i was in my mother's womb, and so far this has no cure. i am SUPER blessed because most people who have this disease couldnt walk anymore and would end up on a wheelchair but I CAN WALK normally and nothing is wrong with me. i just have some handicaps that i can manage very well. i cried because i saw the love of Shane's family to him and the never ending support that they give to him. it's so much alike to my family, they never gave up on me despite of the hardships that they have to go through because of my disease. i am 18 years old right now. this video gives me hope. God bless, Shane.
bless you sweety
I have the same diagnosis
Meriane Dawn read his book laughing at my nightmare
awesome book
Meriane, I'm so glad to hear your family has always been there for you! I just wanted to write this to wish you well!
I have spina bifida too. And I can walk, talk, etc. Doctors told my parents to leave me at the hospital to die. I was one of the first babies in my country that got a surgery so I could live. I'm 25 now and most people meeting me for the first time dont even know or notice I'm disabled.
Shane ain't leaving us anytime soon. He's getting better and reminds me every day to stop bitching and be grateful!
🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻 Amen!
His dad is wonderful and you can tell how much he loves his kids just by the way he talks about them 💕 him washing Shane’s hair made me tear up it was so sweet.
My oldest sibling is my brother Jamie. He has cerebral palsy. He can not do anything for himself. They said he would not live to see 20. Next February he will be 74. He doesn't dwell on his situation. He has the best sense of humor, he loves baseball and he too can't wait to get to heaven to play baseball. Our whole family has been blessed to have him in our lives. But he has always been included in everything we did as kids. The newspaper' s were hung on the back of his chair for delivering. We'd get ice from the ice house to take to the record shop for the pop machine and it was sat on his lap for the trip across the street, he'd laugh all the way.
Unfortunately our dad died at an early age and had to go to live somewhere else cause he was getting to big for my mom and us to handle. But he is still included in our lives. He has his own friend's who take him out on the local bus transportation.
He's a great role model and a great brother. I couldn't ask for a better one.
Shane's story is absolutely amazing, but I am so fascinated with hannah. She is so selfless and her heart is something I truly wish I had an ounce of. She loves so openly and is so positive, I don't understand, I've never met anybody like either of them. It makes me think so hard and just wish I was better. I can only imagine how nice of a woman Hannah's mom Is for raising her to be a perfect loving human. I've been raised with body and soul built into mind. She loves him for his soul. It's making me tear up just saying it. It's beautiful.
An able bodied partner is no hero for dating us disabled folks. Lol
honestly in the beginning i thought shane was lucky. now i know hannah is, shane is so funny, kind, just perfect. they are both lucky to have found eachother. its just so beautiful.
@@sabserab I dont think its that shes a "hero", but dedicating your life to what is essentially servitude and care taking, it is a life us able bodied people could not imagine willingly choosing. So when we see hanna doing it, who is so beautiful and could clearly have any man of her choosing- it is shocking that she would choose one that she would always have to take care of, as opposed to a man that could take care of her. Their love is shocking and a testament to true love!
That is because it is put on for the camera, they are making a fortune selling a fairytale picture perfect relationship. Just like he did with the last 2 stunning girls that he had.
seidson315 Hannah is in it for the money.
Enjoy all the small things in life, because one day you will realise they where big things.
Bro this quote is spot on. So good I'm going to write it down. Is it an original or did it come from somewhere?
@@nickyfortune600 It was Kurt Vonnegut who said it:
“Enjoy the little things in life because one day you'll look back and realize they were the big things.”
Great analogy with men and their penises when they get old. lol
Just like my d
*tear rolls down cheek
I needed to see this young man's video tonight. I am truly ashamed of myself now for thinking that my life sucks. Thank you Shane for putting my life back into perspective for me. You are amazing bro.
I'm watching this 2 years after you and I hope you're doing well.
This was the sweetest video of you. You are so strong and intelligent and loving. You will have a long and fulfilling life. I can tell you love people and we love you. Your wife is precious as well. I hope you don’t mind mushy letters. I’m a 75 year old granny and everyone loves to hear that they are loved and proud of all you’ve accomplished. Go have funnnn!!!
Hello Linda
How are you doing today?
Hello all I am a muslim mum who have three children whom all have severe lifelong special needs, my eldest daughter is 10 she has global developmental delay severe learning and speech delay, my youngest daughter is 5 she has severe cerebral palsy affecting all her four limbs she in wheelchair and may never be able to walk and is tubefed and on 5-6 medications daily, my youngest son has severe low functioning autism and non verbal, life is hard and challenging but wort to see their smile, just hope one day hopefully they can all become as independent as they can be.
I'm sorry to hear of the tough situation you are living with. I hope the best for you are your children. One question though, why did you include the fact that you are a muslim? I mean no disrespect by this question, I'm just curious. Thanks!
Zachary mainwaring sorry thats how I write I dont mean to upset anyone... I have lots of friends from different religions and cultures...sorry thats how I am when I write about my family ...I've never been a good writer lolz ...our lives can be challenging and hard but our children are amazing and special. ..never give up people they are worth more than gold and diamonds and their smile melts our hearts :) :)
rehana begum No need to apologize. Thanks for the explanation. I guess it is a big part of your identity. Also, I think you write just fine and well!
You are a strong mother. God bless you and your family
rehana begum Your a trooper Ma'am
Squirmy and grubs is his and his gf youtube. I love them there so funny
Katie Tidwell also major attention seekers
@@littlemissgroove how do u figure
They are actually super cute and I enjoy watching them
I love them! They're adorable!
You're kind of an asshole person in real life aren't you. Just bitter at the world? Am I hitting the nail right on the head? Anyone that has ever posted a video on RUclips is an "attention seeker" because everyone hopes that a bunch of people will see their content. So the whole idea that you're calling them attention seekers in a derogatory way, on a website where the whole goal of it is to post videos that will reach as many people as possible, is actually one of the dumbest, most ignorant things I've seen in a while You're just ignorant. Grow up
I ran across Shane a year? ago. His sense of self, emotional maturity and honesty are refreshing, and they provide a picture of what life as a disabled person can be. Bravo to Shane and all who support, encourage
and show us such love.
Also I love Shane’s Dad. What a legend. Great brother too.
I started to cry when his dad was washing him like a baby.....oh my good lord I just don't understand why these things have to be it makes you so much more thankful for what you have.
Courtney Witham Our life on this Earth is but the blink of an eye in eternity. I don’t claim to know the mind of God but I believe that He knows what He’s doing. I put my trust in him and thank God almost everyday for the many blessings in my life. Shane is an inspiration.
it's part of nature and the natural order.
Same
Jason Blaha's Strength and Fitness on your channel?
Jason Blaha's Strength and Fitness you didn’t expose anything except yourself for being the most loathsome person on the face of the earth!!!! Go away, idiot.
I would give him my ability to walk if I could in exchange for the ability to love life on the level he cans,when you think about the fact that most of us have everything laid out on a silver platter and we still can't appreciate life as he cans.That's pretty shitty of us if you think about it...
Ahh. It's so nice of you to say.
Sounds like you have depression. Shane does not seem to have depression. So that is a shitty thing that was handed to you and not him. Everyone has their own problems. Just because one person's problems seem worse does not mean you can not be sad or mad about what you were dealt in life.
I felt that. I know this was 3 years ago but I hope you’re holding strong buddy
Mind Flowers And we have a RUclips doctor over here
If you’ve noticed everyone in his family and friend group is very positive and uplifting. He has a very healthy family dynamic which is crucial during adolescent years in developing this attitude. Yeah I’m sure who he is as a person plays in to it as well, but people don’t understand how important your family dynamic is during adolescent years. If your parents are negative and abusive chances are you’ll be the same bc you won’t know anything else...make sense?
Such an inspiring story. Brought me to tears. Shane’s outlook on life is amazing.
Love this! I was moved by the love Shane’s family exudes towards him. The humor and authentic people Shane and his parents and brother are, is awesome!
I love watching this 7 years after it came out, knowing how far Shane has gone and where his is now and him being with Hannah. He is such an amazing person and has done more for people in his 28 years than most have in an entire lifetime. I wish him and Hannah the best.
@Pitouli Whiff you're just jealous because you can't get such a loving relationship. Yes, they promote partnerships and sell Shane's books, but that's totally normal, almost every youtuber does it (especially when books and youtube are Shane's main source of income). But they don't ask for donations - I follow them for quite some time and I've never ever seen them asking for any money.
@Pitouli Whiff Insurance doesn't cover everything. Only a percentage. I have insurance too, but I still have to pay a shitton of copays and percentages, especially for anything emergency related... go do some research on how much a person usually ends up spending on a wheelchair bc insurance refuses to cover what they actually need.
Look up how expensive it is to be disabled in America. It's a nightmare.
I work as a nursing assistant.....I soon learned that helping someone on the bathroom toilet etc...wiping their poop...well you get used to everything..believe me. I never think about it.
Ant readers should realize the beauty of humans is we adapt.
Humor is key for me.
So true I have a disabled brother that needs to be cared for like a baby even though he is 22. People who haven't experienced taking care of another person from head to toe dont understand what caring for someone is like.
Their relationship is fake
"Some day I'm going to find a girl ..." Truer words were never spoken! And she's a real beauty, looks and personality. :-)
What an amazing supportive family, we should treat everyone with disabilities this way 🙏
I am happy he found Hannah tbh and seeing the love his family has for him as well is awesome! Growing up Autistic, Adhd and OCD, it wasn't easy not having family support and being seen as the black sheep. Seeing this kind of family, is the support I give my kids now and it is really a difference having love over just being...
My son has recently been diagnosed with Autism, OCD, and ADD. He has appointment next week to do more tests. His step dad doesn’t understand what he is going through and says I just baby him.
How did you deal with your autism? My son was finally diagnosed two years ago. He has add as well and Tourette’s. His autism thank God isn’t the worst he is in the lower part of the spectrum. He is like Sheldon on the Big Bang theory if you are familiar with that show? Anyways I have a couple of questions since it seems getting the correct help he needs is looking to be a joke. What is the best thing I can do for him to help him and let him know he isn’t different? He doesn’t know anyone else with this disorder why he feels so alone, singled out and different. I have tried finding a kid with the same diagnosis but haven’t so far.. The other question is .. what is the best help or program I need to get him into? That will help him the best. I appreciate any response thank you for even reading all this!🙏
@@angelanetherton8240 I have autism too and I love Sheldon..but I don't think Sheldon is on the lower part tbh. Before I lived with my fiance I have been living in a building with fellow autism people from low to really bad. Sure, Sheldon can speak normal, is smart and doesn't have autistic body movements but mentally wise in some ways hes pretty bad but then again I've also seen really different types of autism but eh. Each autist is different and some are more noticable than others but it's pretty noticable in Sheldon though. Also kudos to the actor, he's so good!
@@wendyjacobs6506 The support you give your son is so integral to feeling accepted by someone he trusts and loves. Providing care for your son isn't babying him. Keep doing what you're doing, keep killin it!
@@wendyjacobs6506 So sad to hear that!
It is now 2019, and he still has a wonderful personality. I love following him and Hannah on RUclips.
Thank you sir. Being now diagnosed with a disability myself you have demonstrated my belief, that love is a powerful thing and is there for all of us. No time not to love each other and all things that we encounter. Thank you sir
Oh i just adore shane. I love his positivity and his resilience is awe inspiring. Im so happy he and hannah found each other. They are so cute, love em!
This entire family is absolutely GOLDEN. Thank you for showing us how "it's" done.
Rae Darden Exactly my thoughts
This is the kind of love, happiness & care that the WHOLE human race needs to strive for & give one another!!!!
I want them to adopt me.
My last days my ass. It's been 7 years and he's still going strong
Back then it was last days... they didn't have a treatment for SMA back then. The Spinraza treatment only came around about 3 or 4 years ago. He's now on a second type of medication since the Spinraza was so expensive and difficult to get, and a new oral medication was in trials.
He’s amazing! I’ve seen so many of his videos, I love his sense of humor, and the relationship with people, especially his wife. I’m happy you’re doing this.
Ahh this is wonderful to watch. Shane was such a sweet young man back then and I love his family and friends. So incredibly happy he found Hannah she is just perfect and they botb deserves every bit of happiness. Xxx
When I saw his brother caring for him and talk about him, I thought of the line in that song, He ain't heavy... He's my brother. And then it all hit me. Such a touching story and this sweet young man has such a wonderful circle of family and friends around him. ❤️
His RUclips critics question his personality, but his family and friends all say he is a good guy so I guess they should gft
It cannot be easy being Shane.
Saw him on SBSK and this guy is too awesome for this world, he has a great sense of humor and look on life. He has a beautiful girlfriend too. He is living the good life and we all, disabled or not, could definitely learn something from him.
"Everything is weak, except for my penis" That made me laugh more than it should have.
Dubyah B ok
Was his best friend in this video the host of SBSK ? It sure looks like him.
Lmao , that is a good thing. Something to play with when bored,lol
Shane your life and how you're living it can teach others how to live, regardless of they're situation..You are remarkable as well as your family. Thank you for allowing us to share part of your journey
This many years later and im still inspired by folks like Shane. The world needs more people like Shane
I cried when his dad was washing his hair just because how frail he was and no one deserves that. He has amazing friends and family and a healthy mind.
Im a Grandmother Shane, I have a Down Syndrome Grand Daughter a happy normal child.. I see a handsome, intelligent young man. I love you Shane. I send you Blessings, Love, Happiness and Healing.
Shane God is Inside of you, thats the power that wakes you up everyday, keeps you positive and keeps you living. Keep Dreaming, Dreams do come true
Anyone else crying while hearing what his family and friends say about him?🤧😭 it is so touching to see so much love around him.❤
Hannah and Shane are two of my favorite people in this world. They are awesome! 🙏🌎❤️