Meet Anthony, Coping With ALS | My Last Days
HTML-код
- Опубликовано: 14 май 2019
- At age 26, Anthony was diagnosed with ALS. Though he will eventually lose the ability to move his body, his loved ones are helping him find ways to continue doing the thing he loves: photography. Tune in to the CW on May 22 to watch the newest season of My Last Days.
Created by Justin Baldoni. Made in collaboration with Wayfarer and SoulPancake.
Follow Justin @ / justinbaldoni
We love to connect with YOU, no matter what language you speak. Help SoulPancake create captions in your language by clicking here:
bit.ly/27FqhGH
▃ ▅ ▆ SUBSCRIBE to SoulPancake ▆ ▅ ▃
bitly.com/SoulPancakeSubscribe
THE SPOONFUL, our weekly dose of good stuff from across the web: ow.ly/t7K7p
Buy our BOOK: book.soulpancake.com
Follow us on FACEBOOK: / soulpancake
TWEET us at: / soulpancake
Visit our WEBSITE: soulpancake.com 
Развлечения
Although it’s strange having my personal life in the public eye, it’s always been important for me to be vulnerable. There is no other way to bring true understanding to a chronic illness like ALS. It’s been almost two years since this was filmed and a lot has changed… Laarne is now on her own journey with life and I wish her love and happiness. I don’t know if I will find love again But I am finding it within myself. This past year has made me a more resilient soul. I don’t plan on giving up.. My mom and I are still fighting together and I am doing my best to continue my photography despite my progression. ALS has brought my voice to a whisper. I got a new feeding tube. Last week. My life is painfully beautiful and I am grateful for every second of it.. I just need to continue to evolve with my circumstances. Thank you My Last Days team for all of your hard work and enlightened souls and my family for your unwavering love and support. I L O V E Y O U.
Thanks for sharing this update Anthony, and for sharing your journey with all of us ❤️
Anthony you're such a beautiful soul. I'm grateful for getting to know a little bit of you thru that short film. I know that no matter what life gives each and one of us we're still blessed. I know that you were blessed with a loving and caring heart. I will never forget your story ❤
Anthony, you are an amazing human! You are inspiring to so many people! Keep living your dreams we are rooting for you!
Anthony, simply thank you! Your positive energy is very inspiring. Your pictures are amazing, you are very talented. Sending you lots of hugs!
Great job staying positive amidst such adversities! You demonstrate the true meaning of life for us all. Thanks for the update!
This guy has squeezed more juice out of life than anyone i know!!! Makes me feel like, WTF am i waiting for? And complaining about??
I know ♡
Peace & Namaste...I know, right...
TRUTH!!!
Indeed - he’s living more than I am
@@TaniaMarie424 SO why don´t u start 2 live more? =)
This break's my heart he became his mom's caregiver. He then went on to become diagnosed with ALS himself. Oh the pain his mother must of felt when she herd her son had ALS also.
It’s actually heartbreaking.
So ALS is more common among certain families genes? Like if your parents had it you will most likely have it?
Genetic als is just 6% of the cases, the 94% of cases are sporadic, which means most of the people with als won't have a son with als
So tragic that 3 ppl in the family got it@@dazeldibujosfeos8435
I went to the emergency room with ascending numbness, after my family doctor blew me off. At the hospital they immediately got me a neurologist. He said I had MS, ALS, or Guillian-Barre. I was terrified. My husband went back to work and left me there alone. It was Guillian-Barre. I did recover. And divorced that asshole. You are wonderful, live your beautiful life.
I am also a Guillain-Barré survivor. I am 2 months out. I spent a month in the hospital, from March to April. I'm glad you're doing better and that you divorced that asshole!
Alyssa R
I am so glad to read that, god is good.
Hello Ms Saravas56, I am sorry you went through this. I would never leave my wife even if she was never going to be mobile again. However, my ex left me because of her ego. Everyone has a story. I will pray you find peace in this life and the next. - Muhammad
Shahrukh Mirza
Me neither I wouldn’t wait for her to get sick.
My dad had GBS, a doctor dismissed it as the flu, luckily we got another opinion and luckily that doctors knew about GBS because his son had it. It was treated in time and my dad has mad a good recovery over the last few months.
You could NEVER be a burden, your family loves you. My son as been ill since the day he was born and I love him with every ounce of my heart. After years of fighting we we fight on. May God give you a special blessing.
God bless you
Thank you for sharing, Carolyn Phillips.
He has, He's given us all life eternal through faith in Jesus Christ! Trust in Him and share this with your Loved ones and you'll be reunited again in eternity!
@Heilige Why stop at the blessing of today? May God bless them EVERYDAY of their lives.
Lost my 47 year old daughter to this dreaded disease. Actually 6 years ago this past sat. (May11). Learned so much from her. Brave, funny and sooo strong. Left behind 3 WONDERFUL children. God bless.
So sorry for your loss. 🌸🌺
I am so sorry!! My love to you, especially during painful moments ❤
Cheryl Johnson I am so sorry for your loss. Her children are lucky to have you.
I'm really sorry to hear that =( I can't imagine what it feels like to lose a loved one to ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
Cheryl i am so,so sorry for your loss darling.
May her children always know how brave and beautiful their dearest Mam was. 💗
With much love. X 🕊⚘💗
My dad was diagnosed with als 7 months ago, seeing him go from the strongest guy I know to having trouble walking kills me. Knowing he doesn’t have much longer to live. He still gets up every day and goes to work. I hope that one day I’ll be as strong as my dad. I love you dad
Salaams - Gosh making me cry at this moment reading your post. This life is but a test.
How is he doing? My aunt passed from als is 2018. She luckily passed from a heart attack before it got to far.
Olivia Militello sorry for you loss. How old was she? My friend has ALS now.
please see wimhoff .....i hope that could help...all the best
I believed HIV,CANCER,HERPES,HEPATITIS, ALS, DIABETES,Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr.Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu for any diseases and virus.
Dr.rabiuvikraft@gmail.com
Call/whatsapp
+2348160264268
vikraftsambo.wixsite.com/vikraftsamboherbs
ALS is such a cruel disease. God bless this beautiful man and his family.
I can’t stop crying. Anthony and his wife and their entire family and friends and Justin have the most beautiful souls. I wish I can give you all hugs
She is no longer his wife
Parsimmon Leoni no way! how do you know this ?
@@adeolax2601 Because he has mentioned it on his instagram and facebook and obviously she's not featured in any of his posts anymore. Scroll to May 6, 2018 on his instagram. They broke up in December 2017
This is the instragam post if you are interested instagram.com/p/BidSE7VA21x/
Plus, he wrote in these comments about them no longer being together.
I was really saddened.
I lost my only sister Mary Ann to ALS April 09, 2019 after a 4 year battle. She was only 44 year's old... I miss her so much! 💔😢 #See #You #Soon #Manita
sending you so much love 💗
Can I know you more better.
My WhatsApp +14062211732
I am so sorry for your loss! 💐
😢so sorry
I'm a 19yold kid who is losing hair. I was so depressed when I find out, I even started to lose wieght. Even my friends start to notice there is something wrong with me. When I see videos like this I feel so stupid and grateful.
Same here man
Not stupid mate. I have Psoriasis which is made worse if I let my hair grow. I went to a skinhead at your age and didn't hold me back. Now got many partners and 3 kids behind me! You know what's attractive? Confidence. Embrace it, wear it with pride, don't try to hide it, make it something difference about you, smile and be comfortable with who you are - that's the sexiest thing in the world.
@@miles3379 YES CONFIDENCE !!!!
I Iaughed at "I got many partners' Mack Daddy lol
@@thatgardeninggirl2864 Back in the day, maybe! Not now!! x
@@miles3379But Buddy wasn't it Fun back in the day that is????
My youngest son is 17 he has his 1st gf I am telling him STOP chasing her. Let her chase you haha like he will listen we all gotta live & learn. Man to be that age again and know what I know now
Life goes by so very fast
This dude is way stronger than I am.
Yes he is strong, but never underestimate yourself! A person never knows how they will react until they are faced with a situation. I'm sure that you have a lot of hidden strength.
@@onemuckypup9823 a wise statement.
You'll never know how strong you are, until being strong is the only choice you have 💕
I'm not strong
We don’t know our own strengths until we’re challenged.
That shower scene was so beautiful!!!
It was perfect....no movie director could ever replicate that.
My dad died if this... I'm still sad... He was trapped in his body.... He was BRAVE.Kind and my HERO.
I'm sure he was. Peace
🌱🌷🌱
I am a nurse who cares for people living with ALS. Our residents have more of a will to live than most able bodied people I know. It an honour and a privilege to care for our residents, and I love my work. They are more like family than clients. Much love and good wishes for Anthony and his family.....❤️❤️❤️
You are amazing for doing what you do
EVERY DOLLAR THIS VIDEO MONETIZES NEEDS TO GO TO THIS MAN RIGHT NOW!
Alright, Game Over. Shut it down RUclips. You can't top this. The most beautiful 20 minutes I've viewed on the platform. Thank you for sharing your story Anthony.
Yes
You said it all, Jason. Meeting this family is incomparable.
yep
Yes....very well said!
And many thanks to his beautiful wife !
How did they squeeze so much beautiful into one video?!
Editing
I couldn’t watch all of this, my dad passed from this disease 3 years ago and it’s truly amazing that anyone diagnosed with it can keep such a bright outlook on life and not really complain, which they have every right to do. My dad never complained, he always smiled & joked until his final days and when I first got to his side when his situation turned, his first words to me were “I’m sorry”…he was sorry I had to rush a hour away to be by his side smh amazing he still was thinking about everyone else. Anthony, people like you and my dad are true heroes the way you continue to spread light in the darkest situations, continuing to love and care for others and create memories instead of letting this disease take over what’s left of your quality of life, you make the best of it. Sending all my love to you and your family❤
I don’t have als but I was paralyzed at 23. My family took care of me for a while (less than a year) and just became resentful.
(Not that it was a surprise)
They weren’t there for me when I was 15 and going through chemo or the two year I had depression.
Although I live with my family, I take care of myself and I took care of myself when I was 15yrs old to now.
You have a great family and a wonderful wife.
I hope the very best for you
I'm so sorry that you haven't had the love and support to help you get through these times where you should have been given unconditional love .I will be thinking of you and hoping all you deserve comes your way because you so deserve it ❤
May Allah help you n give you beautiful life n strength..👍💐💐
@@afreensiddiqui4401 allah is not real and if he was this wouldn't have happened to this nice lady.
Sending blessings and prayers
The tears streamed this whole video. He’s completely amazing.
@Tuk Tuk she left him.
I can see why loving Anthony is so easy. After watching this video, he feels like an old friend. God bless you as you take this journey. So glad I met you!
My aunt passed away from ALS last year. I truly hope a cure is found for this terrible, heartbreaking disease.
Sorry for your loss. May she rest ❤❤
I cant stop crying i just love his wife and especially him
Sadly they arent together anymore
His wife leave him
@@narutofan8261 how do you know?
@@beckyg6337 the guy posted a comment
@@narutofan8261 oh no I’m from stalking him and just realized photos been deleted
You are such a beautiful human being.. I wish you all the love and happiness in the world ❤️
I work with ALS patients as a caregiver. God Bless you man!
Sergio Alcala God bless??? Gods the one who gave them the disease😐
Sergio, I would like to thank u from the bottom of my heart❤ for taking care of people just like Anthony. It really takes a special person like yourself to do what u do on a daily basis, your compassionate, with a heart of gold, u have empathy, respect & do the best u can to make it a little easier when a patient is near the end. Hugs from Canada🇨🇦 😉❤🇨🇦🇺🇸
Just trying to send some positive energy from my side. Thanks to all the positive people out there.
@@HxtFire : I pray for you the same understanding of life and challenges that Anthony has.
Rae Darden ok
Heartbreaking to read this couple have gone in separate directions. They had so much love for each other. To lose that in the depths of ALS is so darn sad. I love his attitude and the beauty and appreciation he has for every day. Damn this horrible disease and the pain it brings.
So much for in sickness or in health.
My husband lost his best friend from ALS. It was one of the saddest things I’ve ever seen. One day we were with him and he could move his big toe and the next day we lost him. But he never stop smiling. Hang in there. We all love you.
Life is so unfair, to think so many of us take every day little things for granted and he's grateful to just take photographs. This video really put life into perspective for me, I wish him all the happiness in the world.
I remember back in like 2015 or 2016 or somewhere around that when the ALS ice bucket challenge was around and I saw his! I used to watch his RUclips channel all the time. God bless
@ move it what is his youtube channel's name, i'd also love to follow him!
@ ky : ruclips.net/user/acarbajal945
2015. I just moved to Colorado and a friends mother was diagnosed with it.
when he said " this is one of those moments you just savor and dont point your camera at it". i love it this man is soo genuine
Thanks a real ass woman taking care of her husband keeping her vows!!!
She's no longer with him
Many women keep their vows. Marriage is about two people taking care of each other.
@@mtashunkab715 How do you know?
@@Michelle-pn9xt it used to say that at the description below thus video and if you followed in Facebook he tells of that too. He said his wife and him parted ways and he will always love that season in his life with her...check it out
@@Michelle-pn9xt oh..it does say that I. His pinned comment on this video...didn't you read that ?
My grandfather passed away from ALS in 2011. this was so emotional to watch, Thank you Anthony for telling us your story, you are such and incredible human being. God bless❤️
I'm really sorry to hear that =( I can't imagine what it feels like to lose a loved one to ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
Dear Anthony -- I have never been so moved by a video as I was with your episode. I have struggled with being vulnerable not consciously but subconsciously, throughout my entire life. When you showed your vulnerability, you made it okay for me to reveal my own (although I was alone). It was like a brick had been removed from a wall I had denied even existed and some light penetrated my soul. I cried. The first time in 8 years. It was a short, "ugly" cry, that included some whimpering, but it felt like a psychic weight had been lifted from me, one that I had been carrying around for years and years. You did that for me and I am ever so grateful. I needed that shift. Thank you for being that unselfishly being that light.
My AMAZING heart filled neurologist past not long ago from als.When he told me he was going to be gone within 2 years i begged to do some trials.He did what you did.Said no he's going to go take some time to be with his family and golf.I cant tell you how my heart broke.So your amazing you took what you were given and ran with it.The love the smiles.Everyone wishes they had love that is unconditional.You got to really live more than people who aren't sick with anything.I wish i could.I had a stroke almost 11years ago.Im scared everyday of dying.I hope i can live what i have left like you.Your inspiration!!Bless all of you.
Anthony is very inspiring. God needs to give him his life back. I am so sorry and I pray for him and all the people having to deal with ALS 😥🙏
Omg then in the shower together I lost it. God bless them both. I’ve seen this disease firsthand and it’s heartbreaking.
I am beyond moved by this story. I have many people in my network who have seen the effect of this disease first hand. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
@@KevinJamesBooker I go back to Afrca from california and I see that People are suffering for this sickness ALS and there is no Research or cure.
Yes! The shower scene hit me hard & I want so bad 2 experience a love like this!
@@jeanakatherine9369 They are no longer together....she left him sadly.
She left him....they are no longer together sadly.
Anthony i was diagnosed with ALS this January. I have just about lost my speech and swolling is so very difficult for me. Like you i am learning to evolve with the changes in my body that others cant see but i can feel. When I began watching your videos and you have inspired me in more ways that I cant say. You give me strength and hope! I try to focus on the living my best life everyday! I dont think to far ahead but i do have things i want to do and a few places i would like to see before my time is over! My sister is one of my angels. My husband and I are so thankful that she makes all of my phone calls and schedules all of my appointments. She advocates for me to get me what i need to fight this disease and make living my the best it can be. My husband and I are so grateful to have her. With her on my side it allows my husband the ability to concentrate on taking care of me. I feel blessed. I thank God for the ALS Foundation and the MDA CLINIC where i get my treatment. I will continue to pray for your mom and for you and everyone else who has been diagnosed with ALS. I urge every one to donate money no matter how small or big the amount. We need a CURE and we need to have access to treatment that will give us more time without having to be worried about how much the procedure costs! We as Americans have that right ! You take care of yourself and your mom and never give up! We are ALS WARRIORS! WITH GREAT LOVE and Respect Always,
Rhonda Adkins
My dear mom was diagnosed with ALS in December 2020. On March 13 just 4 days ago she died. It was very aggressive and heartbreaking. We were with her until the end.
So very sorry or your loss, sending love an prayers!
His ALS Doc @10:00 in the video is my doctor... Dr. Jeffrey Rosenfeld at Loma Linda ALS Clinic. A Very Fine Man.
This is the best one yet. He's such a cool, talented, funny guy. And wise too!! I wonder if there's a place I can support his photography or buy his work.
Go check him out on Instagram! I’ve been following him for years. Just search his name :)
What is his full name?
@@rebeccachecker5503 It's Anthony Carbajal
@@Participant thank you :)) and awesome video as always!
"Evolve with your circumstances" you are an inspiration ♥♥
His street photography is incredible. The way he’s able to engage with strangers, and the perspective he shows the viewer…. Amazing.
I just lost one of my friends to ALS. It's heartbreaking and she's not much older than I am. Then 30 days later her sister died from cancer and she is my age. Always tell the ones you love that you love them as much as you want to. Because once they are gone you can't tell them or show them how much you love them. God bless y'all and much love, prayers, and good vibes for everyone.
This is so beautifully heartbreaking, there is so much love in the middle of all the sadness & pain. it makes u to look at your life from a different perspective, at least it made me look at mine.
Ur cute af
Watch "Jason Becker: Not Dead Yet". He has survived with ALS for over 20 years. He used to play guitar for Van Halen but was diagnosed with this disease around that time. He is still alive and writing music with his eyes using a special keyboard!!
a childhood hero of mine as I use to play the guitar... I learned a lot by his example and his family support system. Were friends now online and I hope to visit him soon!
Anthony Carbajal - i would love to be part of your art . It’d be my pleasure.
Ahhh man, for once i'm glad for youtube's random recommendations.
I lost a beautiful soul last year due to ALS. i found the most beautiful time was our eye contact towards the end. Her soul is always with me. This video was so human and I love each one of you ❤️💙♥️♥️❤️
My grandpa had ALS too. He was suffering. He was dying slowly. My family was doing everything to keep him here as long as possible. Finally, he couldn't take it. He left. Hes
Gone. But he is no longer suffering. He is happy. So, I'm happy ❤️
I'm really sorry to hear that =( I can't imagine what it feels like to lose a loved one to ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
Who is cutting onions in here?
Keep living life the way you can Anthony ❤ i work as a personal assistant for a woman with MS and can leave my work at the end of the day being grateful for life. My 45year old brother is struggling with cancer and has soon finished his 6weeks of chemo and radiation 🙏 me myself woke up on wednesday with lumbago and cant even move out of the couch...we all only have one life and never knows when it ends so just be grateful for every day on this beautiful planet🤗❤❤love from Sweden
Ahhh. My heart. My husband has terminal cancer and I bathe him. This brings back so much and I can relate to his wife so much. This is such a amazing, sad, empowering video. Wishing you and your family the best Anthony ❤
P
I may be late now and hate to hear that but i want you to check out cannabis health radio here on youtube about rso for treating terminal cancer vs chemo and radiation. If it is too late then you will be able to help others to spread the word there is a better option for sick people if they take the time to research. Its a shame that it doesnt do anything for als to reverse the neurological damage. May you all stay healthy and continue to grow strong!
@@tokziikk5610 thank you so much, although my step dad has since passed my husband is still fighting ❤ hes using a regime of chaga and Cbd. Thank you for the warm thoughts- I will most definitely check it out!
@@allisonrae4828 i am sorry to hear that and so happy you have a fighter by your side, definitely wish you all the best and that he kicks cancers a*&!!!
@@allisonrae4828 Hope everything is OK. Whatever happens, you are a good wife and human being, keep fighting!
My god, your smile is warmer than the sun and I cannot imagine what you’re experiencing. My uncle had ALS, as a child I recognized the cruelty of it and my family was not graceful in the acceptance of the futility.
You two are a beautiful pair of well matched humans...I wish you peace and comfort and an extension.
Your mother...so beautiful and I cannot ever begin to understand why some of the kindest most conscientious people end up in such situations. I’m a hospice nurse and I’m forever in awe of the grace humans exhibit during these things.
❤
This video was shot a few years ago, Laarne and Anthony are no longer together
Parsimmon Leoni I just looked at his twitter and it broke my heart
Parsimmon Leoni even if they’re not together...she played a powerful role in his life and him in hers... that’s the thing about this life, embrace the moments. Nothing, nothing lasts... so hold on at the time, appreciate what is at the time.
As life goes on, being a grandma and nurse...having lived through pain, disappointments, loss, beauty, miracles...I expect less of what will be and work more on accepting what is.
Sometimes soulmates are people who make an imprint and don’t stay... and sometimes you reconnect with someone you love later after you thought it would never happen again and you are intoxicatingly grateful for that opportunity and less afraid at potential loss...
love harder, fear less...
Mêlée Placid beautifully worded, so succinct and apt 🙏🏻❤️🙏🏻
100% agree with what you’ve said in its entirety
This is beautiful. Rest in piece to all that have passed from this disease and we pray for the people who are struggling now 💓
I have Complex PTSD, severe depression, anxiety & I have been watching end of life videos all night. It’s almost 5am. Just weeping in bed. Why do I do this? Such beautiful people. I guess I’m trying to understand how they do it. I was really sick once too but it was curable though it’s left me with some chronic issues. Nothing like this though so I am grateful. I sought to destroy myself for so long in fear of more pain & life, not death, yet terrified of death still. To see these people is so amazing. But still I’ve just been bawling silently. Not healthy.
I lost my baby brother to ALS this year. Praying for the cure .
is it child als
@SoulPancake This is one of the best video I've watched on your channel. I'm speechless ❤️
Being a human is not for the weak or cowardly; it’s tough as hell sometimes. As a fellow earthling and a person living with MS, I’m deeply humbled and truly inspired by your magnificence and love. Godspeed to all of you.
M Leibs.. Beautifully said! Much love from Austin Texas!!
Why do people give thumbs down 👎🏾 on such a sensitive video 🤦🏾♀️the world indeed doesn’t run out of idiots 🤔 stay strong Anthony ❤️❤️❤️❤️❤️❤️❤️❤️much love ❤️
This peoducer is amazing.. He cry with them.. He help themm.. He do all can for them. Good bless him and his family
My gosh! Dear lord please bless this man 🙏🏽 Such an awesome being.
“Even if my a mom knew I’d have ALS I’d still want this life”.... Prayers and hugs to you all! Thank you for showing us how to live life at its fullest ♥️
I lost my father(kidney failure)when I was 11.After 2yrs my mum got diagnosed ALS.n she was bedridden for about n half yrs.That was a tough time for me n my brother n obviously for my Mum too.Seeing her in that condition everyday for more than a yr made me depressed. She left this world in my arms,I was 16! Am 29 .. couldn't come out of those traumas I had in early ages of my life.Its tough. Hats off to this man 'ANTHONY',my prayers are with you, wherever you are.
At present,my mum's sis too going through 'ALS'..n their family is dealing with the same tough challenges we have suffered with.Plz pray that this disease doesn't get expressed in any other family member. Prayers for everyone who are going through tough times.
Jeez, I am crying my eyes out, what a wonderful family and what an amazing story
So sad and beautiful at the same time❤️
Oh my God the love they have for each other and his passion for life is incredible, beautiful, amazing....😭♥️🤘🌹
"But they did write each other love letters."
"They were dirty!"
Seeing that kind of humor and love when someone is facing death is the most beautiful gift. I have to admit, that was a very funny comment. These programs are so loving and heartwarming. This guy is living life to the fullest and I admire that greatly! Thank you for the uploads and please keep them coming!
My dad passed away on 05/30 with ALS and COPD. No one ever knows unless you've been through it how difficult ALS is on a family. Gods peace, love, and hope for anyone/family that ever has to go through the long journey of ALS.
"...the mind creates what it needs out of desperation to cope..." No truer words have been said. Wishing you the absolute BEST!
Unless you suffer clinical depression,it's the exact opposite.
Thanks Jeff.I needed that
You are an inspiration. May god bless you and keep you comfortable for longer than the doctors ever imagined. I love your take on life and your wife is also a blessing with her humour and love for you and each other. I have shed So many tears, some of sadness but also tears of hope..
Anthony and his wife are no longer together... this video was shot 3 years ago for a TV channel and I guess soul pancake bought the rights to it
Parsimmon Leoni iamso sorry to hear that news. How is Anthony doing, do you know?
@@suzannest-laurentdvorak459 He recently got a feeding tube and his voice is now a whisper but he has mentioned remaining positive. He posts on facebook and instagram
Parsimmon Leoni Thank you for your reply. I’ll say a few prayers that he continue without too many problems. I’m sure it’s inevitable, but let’s hope he has more years if that is what HE wishes. I am also wondering about his mom, sorry for all the questions.
@@suzannest-laurentdvorak459 I don't know any of them personally but his mom appears to be doing well from what I see on facebook. I'm guessing he will get a tracheostomy like his mom which could give him many years but idk
It’s hard for me to understand how Anthony is so full of love and happiness in the face of such adversity. Honestly, this video made me ashamed that I spend so much time worrying and stressing. My life isn’t perfect, but whose is? I have so much to be thankful for, and I forget that sometimes. I wish this family continued lives filled with love, happiness and beauty.
Such a powerful video. My dad was diagnosed with ALS this past winter. Dealing with this has been a struggle, at best.
I oftentimes feel so selfish because I am so mad at the world about this that I feel like I can't enjoy what time we have left. Crushing depression pops up often and trying to balance that with being a father and husband to my wife and daughter, along with a baby expected in February 2020, has been a struggle. I'm terrified for life after my dad, he's always been a constant go-to contact for me. I love you Dad.
Anthony, thank you for sharing your story. I wish you nothing more than love and happiness, you have a hell of a tribe.
My own stepdad was diagnosed formally just before Thanksgiving '23. I am currently in that "crushing depression" moment and dealing with some anger toward the disease and what's to come. I feel the same way you do, I probably won't watch this video, I am not ready. I hope things have gotten better for you in the last four years.
@@ashhleyyyyxxx just seeing this. I am happy to say that my dad is still with us and doing better than what the statistics say he should. It's weird getting glimpses of hope but knowing what is yet to come. I still have moments where the realization hits me but i've found it best to just keep being present.
Best thing I can say - some days will be good, some won't.. for you both. It's ok to be mad though, its fucked. Don't fight those angry feelings, they are as important as the good. I have seen a vulnerable side to my dad that i've never known and through that I feel like i've gotten to truly know him. Don't hold back the things you want to say, he likely wants to share as much as you want to know. Stay strong and be present!
@@davebarnett3101 That makes me so happy to hear for you both! Thank you for the kind words and advice.
As a nurse who has given care to 2 ALS patients in the past over my long nursing career, I am loving this beautiful gift of insight into this lovely family. To me, every experience of major illness is a family/friend family experience. ❤
Nancy Beveridge Taylor I’m a nurse as well...I’ve had several ALS patients because I’m in hospice care, my uncle also had it, this family, or tribe is one of those beautiful groups of people that really touch the heart deeply.
I try to keep my emotions under control at work but times like this, watching these videos it all comes out in a deluge.
I just wanted to say hi, nursing is one of those fields where only we can understand the depth of what we do.
May you be well 🙏🏻
We love and NEED powerful people like you who help in the fight and care for patients that suffer from ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
Kevin James Booker Kevin, are you looking for Nancy or me?
I’m willing to talk to you...but I’m thinking you’re looking for Nancy 🙏🏻
@@KateCarew Actually, I'd love both, if possible!
I like the blurry compositions. Expresses the uncertainty of existence.
I marvel at your strength, love and optimism!Twelve people in my family have passed from ALS., including my mother , brother, grandfather, and 2 uncles.I am TERRIFiED of ALS !Please please please, let there be another Ice Bucket Challenge, ALS has to be eliminated!
I was diagnosed with a chronic life-limiting illness a few years ago and I’ve talked to many people and they’ve shared their stories but there’s a distinct difference: they’re not living our lives. Stories like Anthony’s resonate deep within me like no other. Life is messy and complicated and beautiful and scary, but that doesn’t mean we should shy away from it. I know I’m trying to soak in each day as much as I can. I don’t know how long I’ll be here. No one does. Thank you for sharing Anthony’s story
Thank you for sharing. I am sorry to hear that you have separate ways. My boyfriend went his separate way as well. It's tough for those we love to stay and deal with all the uphill battles. I have learned to love myself, to forgive and accept changes with grace. You are a warrior. I had someone ask me what I was worth and my reply was "I am of worth because I am a child of God who is fighting a good fight." May God bless you during your journey. Keep taking pictures ( I am jealous, lol awesome equipment). You have made a difference in my life. Thank you for sharing your journey
I'd never marry an unwell man and then leave cause if you think it's hard for the caregiver try being the guy in the wheelchair.💕
They divorced!?
When his parents cried, my heart broke clean in half. So many tears right now. This is so beautiful.
What a beautiful and loving couple you are. Heartbroken for the two of you.
I didn't realize ALS was genetic. Your family and friends are wonderful for you.
Prayers and love to you and your family.
My mom was diagnosed in September and passed away the following May at 54. Sad to go see someone go through this horrible disease. My grandfather and uncle and cousin all passed from ALS .
The mind creates a need for its ability to cope...wise man
I’ve known a few people with ALS and it is so frustrating we aren’t doing more when we totally have the research. I
Hope we can do more to at least extend their lives sooner. He’s got such a good soul.
I'm really sorry to hear that =( I can't imagine what it feels like watching people suffer from ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
God bless this family. My mom died in January of this year and before then she spent her last 3 months in hospital, 2 1/2 months in icu on a respirator and tracheotomy and it was very hard for me to see her like that. Mom wanted to talk and tried so hard and it killed me to see her like that. May God continue to bless you and your family with strength to endure and know my prayers are with y'all.
Oh My Dear Lord ,Im in so much tears . God bless Him And His Family forever.
Anthony DONT GIVEUP!! you can still be doing almost whatever by yourself!!
Blessings my bro.
this is in my top 3 favorite so far. i cried more in this one than any others.
hes so gorgeous and sweet! i really hope the rest of his journey is filled with happiness, positivity, and the least pain possible. and what a talent he has.
Anthony, you and your beautiful family are such an inspiration to so many of us. Live on, brother.
Everybody in the world should see this. THIS is what living is all about. Anthony's life is a gift to us all. Thank you SoulPancake!!
Anthony, thank you for sharing your story. I was diagnosed with progressive brain damage as a result of chronic adult epilepsy about four months ago. Since then, I’ve had to make a lot of changes in my life, including shifting my career focus and reducing my physical activity greatly. I’ve spent too much time lately worrying what my future looks like. This video made me feel the earth shift beneath my feet. It gave me such needed perspective and reminded me to stay grateful, live in this moment and appreciate the abilities my body has right now. I have shared this video with friends and students and they have said that it helped them understand me in a way that they didn’t until now. Thank you for your vulnerability.
Mannnnn I’m in tearsssss... This was one of the BEST episodes 💕💕
Having people like that around you is just so amazing.
Its not burnt, it is perfect. True love right there😍
Those photographs of the people in the streets
You, Anthony, are an amazing human being. Thank you, for sharing your journey. Stay encouraged. ❤
The love these two have is real & pure !!
I'm crying, it's very sad to see the progress of the disease, last time I saw him was in his ice bucket challenge. He is getting the most out of his life, hope he can continue to do that
My uncle died of ALS a few years ago. It was rough watching him lose all function in his body to the point where he couldnt even talk properly. RIP Christobal💜
I'm really sorry to hear that =( I can't imagine what it feels like to lose a loved one to ALS. I’m a student researcher at the Rochester Institute of Technology doing research on ALS patients and their families. If possible, I would love to schedule a conversation with you to learn more about your particular situation or encounter with ALS. Can I reach out to you?
Seeing this sweet man cry is absolutely heartbreaking. His support system is wonderful. 💕
Anothy you are the light on a dark day ! Continue shining ❤️