The Conley Family: Their ALS Journey and Love Story
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- Опубликовано: 15 фев 2022
- THANK YOU for being a part of the Conley's Cause Army!
If you don’t know the Conley's, now is your chance to see their love story. ❤️
www.gofundme.com/f/Conleys-Ca...
Take 7 minutes out of your day to hear Brandon Conley and Samantha Conley tell their love story and their experiences so far with ALS.
On Sunday, February 20th, 2022 our Conleys Cause Event will occur to help this young family fighting ALS.
This fundraiser will be in-person but will also be available live on Facebook to watch the performances and participate in the auction. Follow our Facebook page Conley's Cause for more information.
Help us reach our goal of $75,000!
Link to donate:
www.gofundme.com/f/Conleys-Ca...
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My husband has been diagnosed with ALS last year. We believe that he was showing symptoms the year before that. It took the doctor’s after several months to determine the ALS. My husband and I have been married for 50 years and this hasn’t been easy as he has lost a lot of his ability to get around. I will be praying for you both that God will give you strength in the days and weeks ahead. God bless you.
My husband also has been diagnosed with ALS a little over a year ago. We are both walking in the same shoes. His speech has gotten real bad and he has episodes of choking, which is scary.
The diagnosis of ALS sucks but not knowing how we are going to make it financially is scary also.
Sending hugs to all
My prayers for you and your husband it will be a difficult journey.
@@C6whatever I’m so sorry for everyone. IMO when people have a disease like this the government should pay for all medical bills, medications and living expenses. I’m not trying to get political or anything but so many people get government assistance that don’t need it and people like this that actually need it don’t get it and/or don’t get enough. I have absolutely no problem what so ever with my tax money going to families like yours! It’s bad enough that your husband has to live with this TERRIBLE disease, you guys shouldn’t have to worry about how to pay for his medical bills and medical needs! It’s absolutely disgusting to me that the government doesn’t take better financial care of people in these situations. My one buddy has 2 kids with this woman and she has 2 other kids with other men and she doesn’t work because she has to watch the kids, my buddy pays child support but the other 2 men she has kids with are dead beats they don’t work so she has to get food stamps and government assistance to live, the other 2 men also are getting food stamps and housing assistance but they don’t have anything wrong with well the one guy is so fat that he’s on disability he’s too fat to work well if he wasn’t so lazy he could get a job working from home but he’s too lazy he just sits his fat ass down and watches tv all day and eats that’s all he does it makes me mad when people like that who can work who have an able body but they get free money from the government, and the mother could get a job working during the day while kids are at school and on the weekends because 2 of the kids are old enough to watch the 2 younger kids so she can work weekends and really work a full time job during the week but she’s lazy these people are trash! It makes me so mad when people are taking my tax money like that when people like ur husband and ur household could really use the help and 110% DESERVE the help! If I had it my way I would make sure family’s like urs were taken care of all of ur husbands bills were 100% paid for, all the household bills taken care of, even a savings plan for ur kids college education taken care of because ur husband cant work and the family should be given enough money so you (the wife) doesn’t need to work u can stay home to take care of him and given more then enough money to live a nice middle class life without working that’s what should be happening! These are the things I want to see my tax dollars spent on that would make me happy knowing my money is going to truly help people in need and make their lives a bit easier. It makes me sad hearing about people that are sick and they can barely afford to buy their medication. I hope things get better for everyone and I truly hope a cure is found very soon. GOD BLESS EVERYONE!
@@peanutbutterisfu thanks I appreciate your input. You are right is sucks all the way around.
The 2 diseases that scare me the most is ALS and Alzheimer's. I am sorry that this is happening to both of you. You would think that insurance companies should pay for your care. I was diagnosed with breast cancer last year and radiation alone was over $120,000.00, covered by insurance. If they aren't paying for medication etc., because there aren't any....they should pay for your care. I will keep you in my prayers. ❤
Right there with you on ALS/Dementia. Those two diseases are a different type of hell, and especially when you watch a loved one go through either 1st hand. Also agree 100% on the outrageous cost overall when it comes to any major illness or disease. Guess that $120k covers some big shots salary who gets to attach MD at the end of their name, only to sit around and take over a year to diagnose this poor guy with ALS…Just the diagnosis alone apparently will run you $10,000 a month, or maybe that $120,000 is helping fund another medical trailblazer who also refers to themselves as “Dr.” but in this case it’s a “scientist” who’s making 6+ figures a year to apparently sit around and look smart, but do absolutely nothing. All of the technological advancements (especially since the turn of the century) meanwhile someone’s still staring through a microscope with their lab coat on like it’s 9th grade biology…But in this scenario they’re referred to as doctor. But much like that freshman in high school, neither one has cured or solved a damn thing. Stay strong my man.
Thank you for the prayer Darlene. We agree about the insurance. It really is awful!!! Sam is my best friend so that’s why I’m raising money for them since it’s an expensive horrific disease and they need the funds to support with Brandon’s medication and soon a wheelchair. We appreciate you taking the time to hear their story and spread the word.
Yes, those can be prevented but not reversed like MS can be. Terrible once you’ve got them.
This is such a good point! It seems totally unfair! Prayers to you both❣️
My Uncle died of ALS . It started with his speech . He had to have a feeding tube in and nourishment sent to the house . He could not talk . It’s a horrible disease 😢
I can’t watch these videos. I clicked to say it breaks my heart that you have to go through this at all. ALS should be a cause we divert all these war funds into. I pray for peace for your family and all others suffering from this. God Bless you.
This just broke me. I suffer daily from depression. Sometimes it’s all I can do to get out of bed. Anti-depressants don’t work for me (they make me feel nothing at all) so I’ve been relying on supplements which seem to help. Your story put things into perspective for me. My prayers are with you - for a cure and for strength. If you can have the courage to get through the next day, so can I. Thank you for sharing this….as difficult as it was. I will think of you each day moving forward.
Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16
1 Corinthians 15 1-4
Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand
By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain,
For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures
And that He was buried, and that He rose again the third day according to the scriptures, Take care
This is a true love story. I see how you love one another.
Its so awesome he realizes and gives credit to his partner. Not all partners are like this and it is so hard. Its tough to be a caregiver
It's devastating to watch this. Someone so young and active struck down in their prime with such a shocking disease. Sending you hugs and lots of love from Queensland Australia.
Thank you for watching and commenting Tracey! This is how we spread awareness of the disease! It's tragic ---but together we must fight
My heart goes out to you. God Bless and Help you. I lost my sister to ALS in February of 2020. She was 73. This just really hit me hard. You are both so sweet and special.
Thank you for sharing Rebecca! We are so sorry to hear about your sister- it's such an awful disease!
Having a love one pass away from ALS is the hardest thing in the World. My children’s Dad only had two years with his illness it progressed to rapidly. I pray for this illness to be cured soon.
So very sorry for you!! Prayers!!🙏❤❤
My Mom had ALS, sending prayers and positive energy to you! My mom said never give up hope...❤️
Stay Strong and God Bless you Two. My Prayers are with you. 🙏
I can't believe this is real! Pray for a miracle!
God Bless to you both and your family. ❤❤❤❤ Thank you for sharing your story. Love sent.
Praying so hard for you!!
My prayers are with you both it must be so scary knowing time will end on this earth sooner then you hoped for..so so sorry ...I'm praying ❤
God Bless you both.💗🙏
So sad😪😪💔💔💔 God bless you brandon.
What a beautiful couple. All my best to you.
god bless you and your family. You both are amazing people
Beautiful
Your courage amazes me!
God bless this young couple (and many others) fighting this dreaded diseaae
Thank you
My heart goes out to you both, what an awful disease, there has to be meaning to all this! Stay strong and thanks for spreading awareness ❤
You are a beautiful couple!!
You are a beautiful couple & your love story is beautiful as well. I pray that you find a way to slow down the sand in the hourglass & enjoy each day as it comes. And quite possibly find a cure! Hang in there. Your laugh will see you through. You are surrounded by friends & family & now strangers. And all of us offer our prayers & support!
My heart goes out to you. I lost my sister to ALS, she was 59. Keep the faith. Sending prayers
How sad, such a young man with a beautiful wife. So sorry for you, my prayers are with you.
I came across your video and Had to run to donate. Keep fighting!!
WOW- thank you Rachel! We can't tell you how much we appreciate it!
😭😭😭I’m so sorry
Best wishes to you both. Thank you for telling your story.
and thank YOU for hearing our story!
God bless and help. I do hope this disease can be reserved. Myself diagnosed with ALS last year.🙏
What good can you reap from this video…a God honoring marriage of sacred vows…”For Better or Worse”…so proud of you both for this video💞
Yeah right. Your perfect god allowed this. Lol
Sending healing prayers 🙏❤️
Thank you
A devasting disease whatever the age. Whether affected or for the family who have to live with this. God Bess you. You are heroes in my eyes.
god bless u both !!!!!!!
My dear cousin just lost his battle with this cruel disease. 🙏🏻 he had feared how the end would be. He was only 46. Progression of ALS went really fast for him.
OMG, WHY does insurance not cover ALS any better than this? That's disgusting and down right criminal. My heart goes out to this beautiful couple. Such love. I pray for a miracle for them, something good must come out of this.
It’s a Terminal and should immediately qualify for hospice and coverage. Terrible how it i is ignored.
I just saw this even though it's 11mo old. Your so young to have such a diagnosis..your in my prayers 🙏 your beautiful wife is just awesome. It angers me insurance companies denie so much to so many. Bless u both. I up u give us updates.
My daughter went to college with Pete Frates brother. There is more hope thanks to him. I’ll be donating to Conley‘s cause this week. 💙💙
We can't tell you how much we appreciate your support and time
God will provide for His children. ❤
Our human bodies are nothing short of miraculous machines...but our bodies are not perfect. The challenges of living within this imperfection are many. The most we can do is to make the best of our circumstances as we greet each dawn.
True ❤well said ❤
So sad to see this happen to such a beautiful young man. He seems so fun and kind. With so many horrible people in the world these days- why does this have to happen to him. 😢
I wonder the same thing. It's tragic. Thank you for watching and sharing and helping us spread awareness!
Praying for you and your family…Thank You for sharing your journey it truly helps others .I lost my sister to ALS last April and I want to raise money for this to help find a cure and support families on this journey.
Thank you for your kind works Diane!! So sorry to hear about your sister. It really is an awful disease. And that’s why we are fighting together!!!! Our go fund me link is here if you are interested in supporting www.gofundme.com/f/Conleys-Cause-for-ALS?fbclid=PAAaajDLHnbTzd35np2G6PE6U_V-jHco4nkhU0fiDKwmRfdSg2qVBE2mZs4PQ
Diane I am so sorry for your loss. This is such a terrible disease of young people. I only hope more money can be found for research and a cure. It's got to be out there❤️
My prayer for you is that you will be eligible for experimental drugs and beat this horrific disease! ALS runs in my family. I have lost 5 people, including my brother and mother who passed from ALS. I know of 12 additional family members that have suffered from ALS. I hope if at all possible throughout the tragedy of this disease that you will find hope and become a father.....you are a remarkable person! May God truly bless you!
So sorry to hear this. My prayers are with you.
I’m 20 with als a fiancé and I’m already almost end stage I feel u bro I really do
God Bless you buddy❤️
Motor neurons disease is also severe.
So so sorry ..prayers
God bless you & keep you safe from harm.
My dad got it and wouldn't allow us to see him I never got to hug him care for him 💔 say all that I wanted to say and love him till the end ,I felt it was so selfish but now I don't judge him .... thank u for sharing 💓 💖
Thank you for sharing, sending you and your family love. Thank you for watching!
DONT GIVE UP !!!!!!!!!!!!!!
I am praying for you, you seem like a great man. I am so very very sorry. May God cure you. Please God cure him
I hope he gets access to Nurown -it may help him. When he said it started with muscle twitching, it makes me wonder because I have had muscle twitches all over my body for years. but no ALS
They need to find a way to diagnose this sooner. If a treatment become available months to a year will make a huge difference in functioning. THere needs to be a protocol in place when ALS is suspected
Please know you are not alone, God is walking right beside you. Thankful you have your beautiful wife, family and friends. I will pray for your strength to stay. I pray Our Heavenly Father will bless you both.
What type of GOD thinks this is OK, sorry but this is just awful for all concerned and your God is vindictive
@Kitten2 a God that Loves all of us, gives us his strength, walks with us.
I live in a small town in Massachusetts and I know 4 men who’ve died in their 40s
God Bless your family. ALS is a terrible disease.
How is this family doing these days? 💙🙏🏼
Could I ask for a list of the supplements husband takes?
Hello, how are you doing now? What are your symptoms since this video?
It’s January of 2023 and I’m praying Gods love, peace and healing for you… Our Jehovah Rapha, our God that heals, is greater than any disease.
People have come off their death beds.. listening to the Word of God.. Healing scriptures daily. I believe your husband will be healed if you seek that✝️🙏❤️
Thank you for sharing your story. They are ripping you off with the B12 shots, hundreds of dollars? A 10 mL vial of B12 which is able to be bought without a prescription here in Canada is $12. That’s ten doses, so $1.20 per dose.
💖
I don’t understand why there’s so little insurance available for ALS patients. Anyone know why?
what about medi-cal or medi-care
What do you think of stem cell ?
Contact the ALS Foundation for free equipment!!!!
If there,s that many people in your area that has the same thing, something in your invironment is causing it! Examine your water extensively.
God bless you both. Have you anything anti parasitic in your daily supplements as many people have found Panacur C or ivermectin successful in treating many serious conditions. 🙏
Thank you for sharing!
💝🙏🏻✝️
Can someone help me. I’ve been watching a lot of ALS videos and for some reason, I notice that the majority of people who get ALS are super active and fit. Is there a connection?
I agree with you, I have notice the same thing in a lot of the cases.
Our friend just passed from ALS. She was a marathon runner. 65 years old. Her daughter did tons of research and found that a high percentage of people with ALS are heavy into various forms of exercise, but they don’t know why yet.
And why are military folks 50% more prone to it?
Thanks for your questions and comments. Symptoms most commonly develop between the ages of 55 and 75 and men are slightly more likely than women to develop ALS.
A recent study in December of 2021 show that NFL players are four times more likely to develop ALS, a new study shows Scientists who conducted the study say they couldn't determine exactly why the rate was higher but suggested that repetitive head impacts and traumatic brain injuries may play a role.
@@stevegardiol6973 my husband is retired military. And I read ppl in the military are more subtle on getting this because of Viromental inhalation. Chemicals & etc… so yes, men & women are definitely a higher rate in the military
🌻🙏💛
Prívate healthcare/ insurance and most of the cost of this dreadful disease is not covered. It’s so sad. This is what we are facing in the UK, no more free at the point of need NHS but a private system that works on profit.
Hi i wanna known How is your husband with als,thanks
People should ban together to help passes legislation that would mandate insurance companies to provide medical equipment and other costs that are not currently covered. I hope they are fighting their insurance on these things especially the equipment. Sometimes decisions can be reversed. Good luck!!
VOTE BLUE FOR HEALTH CARE /
Acts 9:32-35 My hope & prayer for you.
Brandon, Jesus Christ makes you whole!
Arise, & make your bed.
what if the cure was in ancient medicine? this is a youtube video with the title "Simple qigong visualization movement to heal ALS, MS, Parkinson Disease" I have witness miraculous recoveries and I see one for you.
Thank you for sharing
Why are you not told what the cause behind this disease is. Which inflammatory causes (infection agents) give these disturbances. Then you can purposefully search for the best treatment and recover.
☝👑📖 Pray to Jesus...
For your healing...
Looks like Tahoe or Truckee
Denver and Evergreen :)
Joe dispenza..check him out
Thank you!
How si your husband??💚
The carnivore diet may slow down the progression
Thank you for sharing, Janet. Appreciate you watching their story!
Horrible, awful disease. So very sorry.
Why the he** doesn’t insurance cover most of his medications & equipment?? That’s so unethical!
It's so awful, right? Thank you for taking the time to watch!
Don’t blame GOD for disease. Sin brought this into the world. Read a Bible. Yes it’s sad, but so is cancer.
Proof there is No God... Or at least No good God!!
So sad you feel that way. There’s a God, just like there’s a Devil. It amazes me you none believers, never blame the devil for terrible things that happens to ppl. You have to realize, we’re not promised here forever on this earth. This is not paradise. And yes,Jesus had to suffer. And because Adam & Eve ate the forbidden fruit, unfortunately man & woman has to suffer for their sins. When we die,& if you lived right,& keep Gods commandments you’ll know you have a place in heaven, for the rest of eternity. I know by the grace of God there’s no death, nor is there sickness. And I’m trusting in my God🌺
@@jancraig9298 it’s hard to completely blame the devil when God is the reason why the devil has so much free will to do all pain and damage to gods own creations, this is why I say if there is a God then I do not like his ways I don’t like how so called “loving” He is to give his own creations free will knowing very well that they are going to choose what is opposite against him instead of him forcing good on us knowing that if he gave us a choice then he knows in the end it would lead us all to hell, So before you keep on saying why don’t you blame the devil you’re right the devil has a part in all the suffering in the world but don’t forget he only has a part because God allows him to run around because that’s the type of God that we were created by we were created by a God who for saw all the evil that was gonna happen in this world but still allowed this world to exist for his own selfish reasons , you don’t really need to know God‘s ways to tell how corrupt he is as an eternal being, once again can’t really blame the devil 100% when it’s gods fault that he is letting the devil run around
@@jancraig9298 that’s also selfish! Even you contradict your own self did you hear what you just said? Because the first two humans sinned against God that means people who are never there in the garden of Eden back then have to pay for something that they didn’t do all because God now says “we are born into sin” that’s not love so that means he doesn’t love us that means we are not a part of him if he has to say he will “adopt us” Into his kingdom yet he’s the reason why we were created so God has a very stupid mentality I’m sorry to say actually I’m not sorry I’m not gonna apologize for how I truly feel about your cosmic dictator
@@phattrel6023 you know what you have your opinion I have mines. Politics & religion is definitely two things ppl will never agree on. I was raised baptist & I gather your agnostic,I don’t quite know. But I do know this,so many atheist have felt the same way you have. And several of them have had a near death experience. And they found themselves in hell for not believing in God, & cursing him. It’s several stories, on RUclips about their experiences. Hopefully it won’t be to late for you . Have good day
It is funny how religious beliefs depend almost entirely on when and where you are born. There are 4,000 religions around the world today. Yet each religion believes they are the only ones that have the story right, and everyone else will burn in hell. According to some, a mass murderer will be saved if he asks for forgiveness, but someone that leads a good life in the service of others and just doing the right thing will burn in hell because he does not profess a belief in ‘God’. Had you been born in Egypt in 2400 BCE you would have worshipped Ra as the giver of life. Religion is created by man to control other men. It is and always will be that way. If being a good person, helping others, not judging others and living a life that does not put on airs to earn the praise of a church is not enough then so be it.