Meet Marinda, Terminal Illness Told With Dance | My Last Days

Поделиться
HTML-код
  • Опубликовано: 27 сен 2024
  • Marinda Davis is a renowned choreographer, having worked on shows like World of Dance. Marinda is not predicted to live past the age of 40. Her diagnosis of type four Ehlers-Danlos has not stopped her from traveling the world and continuing to share her story through dance. Tune in to the CW on May 22 to watch the newest season of My Last Days.
    Created by Justin Baldoni. Made in collaboration with Wayfarer and SoulPancake.
    Follow Justin @ / justinbaldoni
    We love to connect with YOU, no matter what language you speak. Help SoulPancake create captions in your language by clicking here:
    bit.ly/27FqhGH
    ▃ ▅ ▆ SUBSCRIBE to SoulPancake ▆ ▅ ▃
    bitly.com/SoulP...
    THE SPOONFUL, our weekly dose of good stuff from across the web: ow.ly/t7K7p
    Buy our BOOK: book.soulpancak...
    Follow us on FACEBOOK: / soulpancake
    TWEET us at: / soulpancake
    Visit our WEBSITE: soulpancake.com

Комментарии • 395

  • @Participant
    @Participant  5 лет назад +97

    What message would you give to people who have to face a life circumstance that seems insurmountable?

    • @mackenzieburton3522
      @mackenzieburton3522 5 лет назад +13

      to keep going and make every moment count. to fill yourself with feeling. thank you for this video, ironically my grandmother passed away 11 years ago today and her name was also Marinda (but we all called her Rin). I miss her so much as I have now hit some huge milestones without her but this video was like her saying through you, "hey I'm still here, so keep going"

    • @mackenzieburton3522
      @mackenzieburton3522 5 лет назад +5

      My Rin would have loved Marinda and her work.

    • @nancysmith9981
      @nancysmith9981 5 лет назад +5

      SoulPancake let your heart dance for your feet

    • @missseveri3512
      @missseveri3512 5 лет назад +7

      You are not alone

    • @Participant
      @Participant  5 лет назад +3

      @@mackenzieburton3522 Beautiful!

  • @kalleygirl7
    @kalleygirl7 5 лет назад +444

    This series has radically changed my life. Please never stop making it

  • @42042O
    @42042O 5 лет назад +219

    This is why we should just be kind to others. You never know what someone else is going through. She’s so inspiring. She really made lemonade out of lemons. I hope she makes it for a long time.

  • @kristinahabchi1862
    @kristinahabchi1862 5 лет назад +346

    Ugh her last quote.
    "What's in your way? Move it."

  • @KRIS-sh8wp
    @KRIS-sh8wp 5 лет назад +116

    01:32 "I want everyone to remember: The thing you take for granted, someone else is fighting for." ~ Miranda Davis👆❤👏
    #Godblessandkeepheralways🙏
    #EPIC💯

  • @mdb2879
    @mdb2879 5 лет назад +183

    *I really appreciated that her story was all displayed by dancing. Never seen something this special. It made me cry because just by seeing it, I kind of feel as if I had experienced it*

    • @Hunter-zu9qs
      @Hunter-zu9qs 5 лет назад +3

      seems like you want attention by *writing your whole ass comment like **_this_*

    • @Participant
      @Participant  5 лет назад +13

      @@Hunter-zu9qs If you don't have anything nice to say, you're not thinking hard enough.

    • @mdb2879
      @mdb2879 5 лет назад

      @@Hunter-zu9qsWish you could do One per cent of what this lady is achieving

    • @mdb2879
      @mdb2879 5 лет назад +2

      @@Participant thanks soulpancake for Always standing for positive inspiring feedback

    • @Hunter-zu9qs
      @Hunter-zu9qs 5 лет назад +3

      @@Participant mate, you either disable your comments or deal with it, the whole world is not going to change for you

  • @gailajones6798
    @gailajones6798 5 лет назад +57

    “The thing you take for granted, somebody else is fighting for”... beautiful girl your strength is beyond words
    Thank you for sharing 💕

    • @MARINDADAVIS
      @MARINDADAVIS 5 лет назад +4

      Gaila Jones 💜💜💜💜

  • @kwilson5724
    @kwilson5724 5 лет назад +165

    I am a dancer with Ehlers danlos, Hashimotos, POTS, and MCAS and I look up to Marinda immensely, you are a warrior, I back you up whole heartedly. Thank you for your existence and the sheer impact you've had on this world.

    • @jenmercado8860
      @jenmercado8860 5 лет назад +7

      Just curious, how are you able to dance with POTS? Most people can't even stand. As someone who recently got diagnosed with IST I relate.

    • @kwilson5724
      @kwilson5724 5 лет назад +8

      Jen Mercado I struggle with standing as well but I take many medications and on good days when I’m not flaring I can dance. Usually I do pass out in dance or have to sit down or lie down under a fan after every few minutes and I have to have snacks on me and lots of Gatorade. It’s hard but for me as of right now it’s not impossible. I know I’ll get worse in the future so I’m doing as much as I physically can right now before I can’t do it anymore. Last year it was fairly easy to dance and this year it’s getting a lot harder to do, but I manage.

    • @jenmercado8860
      @jenmercado8860 5 лет назад +8

      @@kwilson5724 I'm sorry to hear that. My condition is extremely similar, but my heart rate is high no matter if I'm standing, sitting out laying down. It's a struggle, but I agree we need to make the best of our lives. I wish you the best. ❤

    • @kwilson5724
      @kwilson5724 5 лет назад +5

      @@jenmercado8860 Thank you! On good days my resting heart rate is 90 on rough days (Or this entire month haha) has been 115 bpm even when lying down. It's a really tight balance to still dance but I try to find ways to work it in. Wishing you the best and praying for some relief!

    • @lindsaysheffield
      @lindsaysheffield 5 лет назад +2

      K Wilson SCI, EDS, POTS, MCAS, and some other stuff over here. Awesome that you’ve found a way to make dance work for you :)

  • @jojustjo
    @jojustjo 5 лет назад +185

    Oh my goodness, I'm ugly crying. Thank you Miranda (and SP) living "normally" and becoming disabled at 27 was definitely my hardest journey, but I feel after 27 was the most rewarding. You just see things differently. Videos like this keep my spirit alive. Hugs, love, and prayers.

    • @trumpnicemoveclinton3067
      @trumpnicemoveclinton3067 5 лет назад +8

      I real feel for you...I hope you gain strength and peace each day ❤❤❤

    • @jojustjo
      @jojustjo 5 лет назад +3

      When I edited, the SP ❤went away. But if you see this, thank you for taking the time to read the comments.

    • @lindsaysheffield
      @lindsaysheffield 5 лет назад +4

      Jo Withrow hang in there! I also became permanently disabled at 27 (I’m 34 now).

    • @TheTeresaFarah
      @TheTeresaFarah 5 лет назад +3

      bless you.

    • @jojustjo
      @jojustjo 5 лет назад +2

      @@lindsaysheffield, I am now 39. I'm not going to say the pain gets better. In my case, it gets worse. But I now mentally perceive the pain differently. I think I enjoy life more now because everything I see, i see differently than I used to. Life is very beautiful and amazing. Hang in there.

  • @hannahbailey6424
    @hannahbailey6424 5 лет назад +29

    A girl I went to school with recently passed away due to EDS type 4. (vascular) She was due to have surgery to correct an aneurysm. It ruptured in her sleep. It was so sudden and heartbreaking for our community. I wish you the best Marinda❤️

  • @tammypmartin3460
    @tammypmartin3460 2 года назад +9

    I love to dance as well. I have ehler Danlose syndrome, hyperthyroidism and cerebral herniation with an aneurysm. I just love how you take on life and not letting these health issues define you. You are my role model and thank you for doing this. May God keep continuing blessing you. I also love to dance but I end up dislocating my joints and I fall all the time. I also have scoilis as well. I am 52 years old now. I am totally disabled and in severe pain. I can't say thanking you enough. My aunt also had this disease and she passed away away at 46 years old and she was a dancer too

  • @valerie4912
    @valerie4912 5 лет назад +28

    “The thing you take for granted someone else is fighting for”
    I knew I was going to cry but this pulled on all my heart strings.
    From one dancer to another.. YOU GOT THIS!!

  • @jessb436
    @jessb436 5 лет назад +17

    "The thing you take for granted, someone else is fighting for " wow that really hit home

  • @brooklynbarrett4978
    @brooklynbarrett4978 5 лет назад +63

    I love this series. I always finish watching a video feeling different about life.

  • @tanyastamant
    @tanyastamant 5 лет назад +13

    What a beautiful soul. I have five autoimmune diseases and possibly one more and therefore I know a little of what she is going through. My prayers are with her and all who deal with chronic and terminal illnesses and deal with pain. God bless you!

  • @louiseclarke2507
    @louiseclarke2507 5 лет назад +29

    I just got cleared of not having EDS ontop if three other chronic health conditions. But the process of going through diagnosis after diagnosis has been so difficult on my family, so to her parents I commend your strength and ability to let her fly in the face of desperately wanting to hold on to her. You have given her life and love.

  • @purpletetrisdragon
    @purpletetrisdragon 5 лет назад +11

    I am so glad you are doing what you love, which is immerse yourself in the world of dance. I have Cystic Fibrosis and many other health challenges. I am 35 and it’s a miracle I am alive. Watching the choreography of your life moved me to tears. So much love, you are not alone. 💜

  • @alannah9427
    @alannah9427 5 лет назад +14

    And now I’m crying. She is so inspirational and moving. Really touched my heart.

  • @adhdmonster1369
    @adhdmonster1369 4 года назад +17

    I’m extremely impressed by how masterfully crafted and beautiful each of these episodes are. The cinematography and score unquestionably enhances the stories of these individuals, making them extremely moving and impactful. Whoever is involved with the production of this series should be very proud of themselves.

  • @daniellemisin4049
    @daniellemisin4049 5 лет назад +14

    So incredibly moving. As a former dancer sidelined by injuries I know how hard it can be to lose that part of your being...dancers feel so deeply and navigate life through dance. My heart hurts for you Miranda, but what a beautiful impact you have made on every person you come in contact with. I wish you only the very best in your journey. ❤️❤️❤️🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻

  • @dustyhart
    @dustyhart 5 лет назад +20

    "People need people" you are right Marinda, sending love your way xoxo

  • @atozrecovery518
    @atozrecovery518 5 лет назад +28

    I'm 46 and was told last month I have 6 months to live. I've had heart bypass surgery and 20 stents and 3 arteries 100% completely blocked. I have a cardiac loop recorder and a morphine pump to numb the chronic pain. I'm just trying to spend more time with kids and grandkids
    Even worse my 19 year daughter has 3 autoimmune disorders and dissanomia is one of them. I know I butchered spelling sorry. I pray for her wellness more than mine. 😥

    • @adyarym
      @adyarym 4 года назад

      Hello......

    • @elisar8594
      @elisar8594 3 года назад +1

      I hope you and your family are doing well!! Stay strong!

    • @yfa6244
      @yfa6244 3 года назад +1

      I hope you and your daughter receive a miracle!

    • @whowho1881
      @whowho1881 3 года назад

      I hope you are well. Honestly, this is why I’m adopting. I will never pass on my conditions I couldn’t live with myself.

    • @atozrecovery518
      @atozrecovery518 3 года назад +2

      @@whowho1881 my husband passed away a month ago, I am just now going through his pages.

  • @meganlynn864
    @meganlynn864 5 лет назад +8

    Although I ball my eyes out each time I watch “my last days” My life has changed. 💛

  • @oliviagrace7638
    @oliviagrace7638 5 лет назад +7

    I just shared this with my childhood friend who dances, and we had a long talk about how much we love each other and how important the arts are to tell stories. She sent me her choreography project from college that I never would have thought to ask for, and I cried watching it as much as I did watching this video. I cannot wait to continue the conversation with her. Thank you Marinda for opening conversations and inspiring people to move ‘that thing’ in their way. You are inspirational, and mesmerizing. You still dance truthfully and beautifully- even through other people.

  • @tonysopranoholdinganeedler1638
    @tonysopranoholdinganeedler1638 3 года назад +5

    This series is helping me come to terms with my anxiety revolving around dying. Thank you.

  • @tinapinch7494
    @tinapinch7494 3 года назад +3

    I knew she had ehlers. I do too. It's genetic but it can manifest in some people. I have classic type as well as type 4. My heart is OK so far. They don't think it will kill me but it is still very painful to live with. I dislocate everything except my elbows. I was adopted too. Thank you for sharing our struggles. People don't get it at all.

  • @valloryredner45
    @valloryredner45 5 лет назад +8

    This is exactly how I feel. I'm not afraid of dying..just leaving my family behind. I've been sick for so long...doctors are trying to figure out whats going on. She's so strong and brave ❤

    • @kpark2024
      @kpark2024 5 лет назад +4

      Valerie Redner I’m praying for you! Jesus loves you!!

  • @anndaems9617
    @anndaems9617 5 лет назад +18

    OMG she went to Costa Rica , to Spirit Dance and my daughter had the pleasure to take classes with her!!!😍

  • @phoenixshultz9580
    @phoenixshultz9580 5 лет назад +95

    Its these people that got me a diagnosis this early. I'm 15 and I got diagnosed. I have type 3 EDS. Instead of it being quick. It's slow. Same prognosis but prolonged. I know her pain. I feel it. Only someone with EDS truly understand this

    • @tay2944
      @tay2944 5 лет назад +1

      Phoenix Shultz I’m so sorry

    • @FiMilton
      @FiMilton 5 лет назад +15

      Phoenix Shultz type 3 is not like vascular EDS and very likely won’t kill us (I have it as well). I hope you find some ways to help you cope with the pain. 💖

    • @alannah9427
      @alannah9427 5 лет назад

      Phoenix Shultz be strong, you can do it.

    • @Ishuuuxix
      @Ishuuuxix 5 лет назад

      ❤️❤️❤️🤗U will be OK promise

    • @knuddelkatze452
      @knuddelkatze452 5 лет назад +5

      Type 3 isn't that bad. Have it myself. Just learn how to cope with the progressing pain.

  • @MissJemimah254
    @MissJemimah254 5 лет назад +12

    The thing we take for granted someones else is fighting for soo true

  • @rachelsimpson7129
    @rachelsimpson7129 5 лет назад +26

    I just fell in love with this woman! 🙏🏻❤️😘

  • @XxSakurafairy24xX
    @XxSakurafairy24xX 5 лет назад +22

    So excited to see new 'episodes' of these BUT makes me extremely sad because i hate seeing what people have to go through

  • @mkay2864
    @mkay2864 5 лет назад +10

    I am so happy I got to watch this. I am a dancer living in NYC so if you live here there's no way you don't know who Marinda is. I have also gotten to train with and be mentored by many of the people that she is mentored by including Sheila. I havent had the pleasure of being able to learn from Marinda but hope I do sometime soon. You are beautiful and brave beyond belief. I have been following for so long and never truly understood your full story. It is a beautiful and inspiring one and I hope you know how much of an impact you have had on so many lives near and afar.

  • @joelarama
    @joelarama 5 лет назад +8

    EVERYONE needs to watch this video. Miranda is a true inspiration to so many. God bless you beautiful hoomin. X

  • @HeatherBryant22
    @HeatherBryant22 5 лет назад +17

    This made me laugh and cry with goosebumps the entire time. I feel the dance in my heart as a long ago dancer and as someone who has Ehlers Danlos Syndrome type 2 as well as several other major diagnoses. Thank you for this!

  • @kyatomhave6080
    @kyatomhave6080 5 лет назад +11

    Oh my gosh Justin! You’re so sweet toward every single person in this series and you are making such a difference in the way I view my life. Thank you for this... and for making such a difference and for introducing us to these wonderful people.

  • @MrWildapil
    @MrWildapil 5 лет назад +20

    Thank you, Marinda, for sharing and being so open and vulnerable.
    Justin, the quality if this particular episode touched me deepest. I am not sure what it was, perhaps the context of dance reaching places in my brain that hadn't been exercised before. For that, I thank you, too.

  • @thegihonpromise
    @thegihonpromise 5 лет назад +5

    Oh my gosh I'm sobbing. I really want to see her production. I love the strength and drive she portrays as if she's not constantly in pain. Its....so beautiful.

  • @rosamorel9621
    @rosamorel9621 5 лет назад +9

    Every time I watch one of your documentaries; I learn and learn more and more about life. To the point that my depressions are gone, and I'm accepting whatever I'm going through. Liking it or not.
    Thank you. Hope she gets to accomplish her dreams with God helps.

  • @jnanashakti6036
    @jnanashakti6036 5 лет назад +28

    Geez Louise, SoulPancake... can I have my heart back? You keep stealing it with all these stories. Second thought, take my heart. You do good things with it.

  • @KatGrijalva
    @KatGrijalva 5 лет назад +144

    I have hope that she will make it past 40 💖

  • @rebekahbridges-tervydis5054
    @rebekahbridges-tervydis5054 5 лет назад +16

    Terrific. I love storytelling thru dance!

  • @moyzies
    @moyzies 5 лет назад +6

    I was diagnosed with Ehler's Danlos Syndrome type three last year at age 19.
    It was a diagnosis we fought for, not so much in specific but just we wanted an answer as to why certain things were happening and why I wasn't able to do some of the things I used to. I was relieved to finally have a name for what I was dealing with, but at the same time I had to spend about a month mourning over the loss of ability to do the things I was once able to do so well, the things I loved so dearly.
    Of course now I focus on the things I still can do - even the things that might require a little assistance. I know that I have a rough road ahead, and that there are complications or illnesses that are correlating to my EDS that I will face or am facing even now, but I'm not going to let that stop me.
    We are strong. We are powerful. We are Zebras.

  • @mae._.7676
    @mae._.7676 5 лет назад +48

    I have EDS type 3, mine won't kill me but will and has made my life grieving what I could once do. I can't raise my arms above my head. I can't do any sports or even go to the gym. EDS is underdiagnosed especially type 3. It took me 16 years. We need more awareness

    • @kbellmurray
      @kbellmurray 5 лет назад

      Mae Suxx I hear you ❤️

  • @marioannamarioanna1070
    @marioannamarioanna1070 5 лет назад +24

    I was watching for maybe 3 minutes and I thought: this must be EDS. I also have EDS. Officially I have the better type, but I am bedridden for I think 7 years now (and I mean 24/7 bedridden) and my intestines aren’t ok either. Cannot eat, cannot go to the toilet myself (my bowel doesn’t work well) and EDS has lots of comorbids for most patient. So dysautonomnia etc is kind of part of the EDSyndrome. And allergic reactions due to mast cell problems are common as well. It is very good that EDS is at the map lately. Cause doctors often miss the diagnosis. I hope Marinda will live for a long time and I will thank her for the dance. Cause it is perfect. And it tells the story in a way which is more easy to understand for other people. So thank you for this documentary and thank you for the dance Marinda!

    • @Happycactus-s1q
      @Happycactus-s1q 5 лет назад

      Marioanna Marioanna Why are you bedridden? I have eds too, and at some point you have to make the choice to get up and try. You have to recondition your body. I’m not trying to be mean, but you will live in a bed for the rest of your life until you die miserable if you don’t make a decision.

    • @marioannamarioanna1070
      @marioannamarioanna1070 5 лет назад +4

      Abbie W I don’t think you are mean, don’t worry. You just didn’t have enough information to understand. I didn’t write it down because it is a long story. But I have worked hard for years and years. Trained a lot and I still do. I believe in use it or lose it. Despite having lots of other illnesses as well (like Crohn’s desease, Sjogrens, a tumor and so on) I didn’t stop me from training, walking etc. Even when I had my wheelchair I did as much as I could and even more. But my life wasn’t that easy. I am not a person who puts problems outside, in contrary I feel very responsible, but fighting the government for almost all I needed pulled a strong bill. My doctors helped me, the judges supported me a lot, but my situation wasn’t common and I live in a country where everything is caught in rules. So not fitting the boxes gave lots of problems just to get the aid I needed. And with all my diseases especially the EDS overloading the body was destroying. And the overload was huge .
      I feel lucky because my body did a good job for a long time and my spirit kept alive. I had a very good social network, good doctors, good nurses and not to forget: good judges. But it is a pity that I have to fight a lot just for basic things. My doctors were proud of me for staying optimistic and training how much it hurted. The only thing I thought was: use it or lose it so I was afraid to stop exercising. But then my intestines, stomach and bladder stopped. The pain was no longer under control. My lungs gave problems and after I think 30 years of persevere and enjoy life I had to choose: an social life from out of my bed or a life that would consist uit fighting, exhaustion etc. And for me being a social, caring and loving person was the most important thing in life.
      But, I still exercise, and I still fight for better laws so that people after me won’t get in the same trouble when they don’t fit the boxes. Cause I think it is important to have mattered....

    • @lindsaysheffield
      @lindsaysheffield 5 лет назад +1

      Marioanna Marioanna ahh, gastroparesis is hell...I’m on blended/liquid diet. My bowel/bladder issues are from a spinal cord injury but I have a bunch of autonomic and immune diagnoses as well...best of luck to you!

    • @gijanine3701
      @gijanine3701 4 года назад +3

      @@Happycactus-s1q it's not like being bedridden is a choice. And eds is different in everyone so don't compare your experience with theirs

  • @chibaby0306
    @chibaby0306 5 лет назад +9

    Gosh this gave me so much goosebumps, miranda you r such a queen and a beautiful angel. Thank you for sharing your gift. The dancers are absolutely phenomenal! !! It's also amazing how she has so many positive friends around her!

  • @ghostmoss8158
    @ghostmoss8158 5 лет назад +3

    When you have EDS it’s like you’re supposed to run from your pain, hide your fear, distract yourself. But maybe it’s okay to run to it, not away. I’m amazed by this art & her not running from it. I’m so glad I got to see this video.

  • @krazyoldlady.989
    @krazyoldlady.989 2 года назад +1

    I really want more stories, more episodes of "My Last Days". I suffer from stomach ulcers and have bad flare ups and acid in my throat, my doctor said it will more than likely cause throat or stomach cancer and I've been going through this for some years and the pain is crazy but I'm trying to prepare my kids for when i do get it. Throat cancer kills pretty fast so i know they have to be able to talk and ask these now. These types of shows make it easier, make it possible to start that conversation. We ALL are going to die one day but i think we need to talk about death when we're living. I just love and hope this show comes back, and when My Last Days come i can share my story.

  • @violette80
    @violette80 5 лет назад +7

    Marinda, you are amazing!!! And your parents are lovely! Thank you for being such an inspiration 💕

  • @heidimiele6835
    @heidimiele6835 5 лет назад +4

    I am so profoundly moved and touched by your strength and your tenacity from life. My heart aches for your situation in the trials you’ll be facing until your last days. But please know this we were created by a loving God who would love to except you into eternity through what his son did on the cross. I pray that you know and feel how truly loved you are by your creator.

  • @Pain-zg5pq
    @Pain-zg5pq 5 лет назад +2

    God this had me in tears, good people do exist.. her story shook my soul man

  • @TheNewMailLady
    @TheNewMailLady 5 лет назад +2

    The dancing made me feel like I was really going through your life Miranda, the ups and downs, the pain and torment, the whole thing. You are an amazing woman with amazing friends, family, and support. I wish you the best of everything life has to offer! 💙💜💙

  • @tjastrow1976
    @tjastrow1976 5 лет назад +2

    What a beautiful soul! Much love Miranda

  • @lilwackadoodle
    @lilwackadoodle 5 лет назад +3

    Well it's not even 7am and im bawling. So much beauty here.

  • @JulianVegaMerisi
    @JulianVegaMerisi 4 года назад +1

    The Music, the dance, everything is so moving, Im suffering from very deep episodes of Anhedonia right now, after having some issues with alcohol withdrawal and this definitely moved me, THANK YOU!

  • @mauragrier6958
    @mauragrier6958 5 лет назад +13

    This was uploaded just in time for EDS awareness month.

    • @Participant
      @Participant  5 лет назад +5

      Glad we could help bring some awareness around it!

  • @LillianJEllmore
    @LillianJEllmore 5 лет назад +2

    This woman is a fighter and I am so moved by her story! Please keep choreographing because your dance hit home for me on so many levels!

  • @theSarahendrix
    @theSarahendrix 5 лет назад +24

    Beautiful... I'm speechless. Sending so much love and admiration from France

  • @Dina-ew1pk
    @Dina-ew1pk 5 лет назад +2

    The thing you take for granted others are fighting for. That is some powerful stuff 😥

  • @origamibird5902
    @origamibird5902 5 лет назад +1

    it always makes me so sad when i see people's stories that are terminal, they have so much to give... so much more to live for, it always makes me think of myself and how ready i am to die... not in a sad sense but because i am saved and i know eternal life is awaiting. bless your soul and all you do in this life for everyone.

  • @kimjackson7810
    @kimjackson7810 5 лет назад +2

    This story....that dance....this woman......💜

  • @KateCarew
    @KateCarew 5 лет назад +5

    DEAR AMERICA, quit cutting funding for the arts in schools!!
    I will never understand or accept why THIS isn’t as important as math. We are not all made to be scholarly and there needs to be options, and truly, it’s not an either or situation! Everyone benefits from a society that has room and a sustainable life for the arts.
    I’m a hospice nurse and Marinda has a lot of life left, it’s up to her body and I can first hand that young people full of passion don’t accept this with ease. I pray she finds contentment, fulfillment and peace.
    I wish her nothing but the best life for as many years as she can muster 🙏🏻

    • @MARINDADAVIS
      @MARINDADAVIS 5 лет назад +2

      kate carew ARTS save the world !!!

    • @KateCarew
      @KateCarew 5 лет назад +1

      marinda davis I’m so honored you read my comment and you understand what I meant 🙏🏻❤️🙏🏻
      Like you I believe without the arts I’d be long gone.
      I’m so happy to hear from you 🤗

  • @gizmogurlie41786
    @gizmogurlie41786 5 лет назад +7

    I'm not a dancer but I am an actor. I had hashimoto's which turned into cancer. I had to cancel the few roles I booked because I knew I would barely be able to speak due to surgery. It was very hard because I was told there was a huge chance I would lose my voice. I didn't but it's taken a lot of work to strengthen it again. I have been very depressed and scared to try acting again but this inspired me so much. If she can do it, I can do it

    • @Noonecares3203
      @Noonecares3203 5 лет назад +2

      Bless you. I’m sorry you’re going through this. I’m praying for you.

    • @gizmogurlie41786
      @gizmogurlie41786 5 лет назад

      @@Noonecares3203 thank you. You are so sweet!

  • @MsMichelle7710
    @MsMichelle7710 5 лет назад +1

    Absolutely impossible not to ugly cry watching this.

  • @TheAgeofFabulous
    @TheAgeofFabulous 5 лет назад +1

    I love this story. I hope Marinda has the best life. I have hypermobile Ehlers Danlos Syndrome (formerly known as type III) and I understand a lot of what Marinda goes through on a daily basis in regards to pain the physical ailments. I walked into work today with a bone in my foot out of place and the only way to get it back into alignment was to continue walking on my foot. The pain feels almost as bad as breaking your foot, I know because I’ve broken the same foot. Vascular EDS has the shortest life rate but a life with EDS sucks. Any type is a life sentence of pain. I know I’m going to get Hashimotos, it’s not if, it’s when. My mom is the one that gave me EDS and I’ll be getting Hashimotos as well. I could list my surgeries and reconstructions, including my face - I call it my 2013 model. EDS, I feel you Marinda. I feel for you.

  • @annalise1139
    @annalise1139 5 лет назад +2

    18:05 “you guys, did that just happen?” Lolol made my heart smile

  • @daksmom1999
    @daksmom1999 5 лет назад +2

    Absolutely powerful video. We all should have her passion for life like she does. We all should push forward with life when faced with adversity, like she does. Bless Marinda.

  • @loree72
    @loree72 5 лет назад +2

    Wow amazing! bless her, her parents and friends!

  • @elizabethsavage9108
    @elizabethsavage9108 Год назад

    What an amazing woman I’m humbled , people like Miranda change the world xxx

  • @Judy122550
    @Judy122550 5 лет назад +2

    Thank you for this powerful video. I worked in a pharmacy for 27 years I seen people live & out live what their diseases said they should. You have wonderful loving parents & so many people loving you . ( Judy )

  • @AW301517
    @AW301517 5 лет назад +1

    I have EDS type 3-she has type 4. So many of us have been dancers and such...good to seee a documentary shining a light on this horrible disease too many of us are born with. Happy EDS awareness month!

  • @BeyondMezure
    @BeyondMezure 5 лет назад +2

    What a beautiful life you just shared with me in a matter if minutes! Amazing human being, brave and fierce. What a testament of perseverance!

  • @susuoftexas7460
    @susuoftexas7460 5 лет назад +5

    You are a beautiful, inspiring strong woman thank you for sharing this with the world

  • @laylenhope9327
    @laylenhope9327 5 лет назад +28

    I have ehlers danlos and dysautonomia and I was adopted, my biological mom was addicted to drugs and was also taking them while pregnant with me. I have a different type of ehlers danlos, so it’s more manageable, but it’s interesting how similar my story is to hers. I wish her the best

  • @ReineDeLaSeine14
    @ReineDeLaSeine14 5 лет назад +9

    Dysautonomia and Ehlers-Danlos are not weird, hard to say words in my world. I have them too, which I did inherit. EDS is normal in our house. 💜

  • @itsjustmyopinionbut1671
    @itsjustmyopinionbut1671 5 лет назад +2

    GAVE ME CHILLS, OMG THAT DANCE THO ❤️

  • @bribriTDWP
    @bribriTDWP 5 лет назад +5

    my message would be, Just have faith, things in life always happen for a reason.

  • @alebner1527
    @alebner1527 5 лет назад +1

    i have eds type three. it’s not deadly, but it’s painful. i have some complications from it such as my intestines can’t push things through properly. i was a dancer. i loved it. i had to stop a year ago. my body couldn’t take it anymore. i miss it so damn much. i really hope this girl makes it past 40.

  • @grayskindablue
    @grayskindablue 5 лет назад +7

    I’ve never heard of autoimmune diseases caused by heroin (or any other drug)? They generally pale in comparison to the damage alcohol does. Not saying it isn’t accurate, just saying that seems a lot less common. Watching this broken hearted. I have Ehlers-Danlos and several co-morbids, (including dysautonomia like her,) and it was the reason I had to turn down my dance scholarship. I miss it immensely. The dance was excruciatingly beautiful too and I hope she knows her choreography speaks lifetimes. Her will to continue to fight is absolutely incredible. I don’t know how to be nearly that brave, but I’m so glad I got to see her story.

    • @clarehalacy9266
      @clarehalacy9266 5 лет назад +6

      Yeah while I appreciate hearing her story I think those doctors who told her that her mom did this were just grasping at answers that aren’t there. This is a genetic thing but not a mutation caused by heroin use. EDS isn’t a prenatal injury, it’s written into your dna, it’s in our genes before our mom is even pregnant.

    • @pinkpink-kb6dl
      @pinkpink-kb6dl 5 лет назад +2

      @@clarehalacy9266 maybe the drug use caused some of her other conditions and the interview was edited in a way that made it seem like she was talking about eds specifically?

    • @clarehalacy9266
      @clarehalacy9266 5 лет назад +2

      pink pink EDS causes a lot of comorbidities including some of the things she’s been diagnosed with. Doctors like to think they know a lot about it and they especially like to have answers to patients questions. I’ve had many different doctors tell me I was sick for many different reasons but it all comes back to EDS. I’m only saying this cause I can’t imagine living with that resentment towards your mother. Especially because she was dealing with a health issue as well, addiction. I just think people like to grasp at answers to questions there aren’t any answers to. It’s no ones fault, and even if it was her heroine use, that wasn’t her choice it was her addiction. I used to blame my mom cause she had me when she was 40 I know it’s a much less serious situation but my older sister was healthy and I thought that her age during pregnancy caused my health issues. It’s human nature to need someone to blame but especially with EDS we know that it causes a whole long list of complications and it was written into our dna before anyone even thought of having sex.

    • @grayskindablue
      @grayskindablue 5 лет назад +2

      Dalene Colon I’m sure that was meant with nothing but kindness and I appreciate the sentiment. But no, jesus isn’t for me, by now it immensely stresses me out when I’m being told I’m being prayed for or people “know” I need their religion. I don’t need prayers, I don’t need religion, I really just need competent medical care. If he’s for you, that’s great, and I’m genuinely glad you find peace in that.

    • @grayskindablue
      @grayskindablue 5 лет назад +3

      pink pink It’s possible but I honestly doubt it. Babies born addicted to, for example, heroin, detox in the hospital. First year of life tends to be pretty miserable but there really aren’t any longterm major issues that can be directly related. Alcohol on the other hand is devastating. But neither can cause EDS, it’s genetic, and almost everything else mentioned is a co-morbidity of EDS.

  • @C.kirk1287
    @C.kirk1287 5 лет назад +2

    You are my hero sweetie ❤️ I hope you get to see this beautiful message and know how much strength you have radiating through your story 💪🏽❤️ You are sooo special ❤️❤️

  • @mirmirbaxter8474
    @mirmirbaxter8474 5 лет назад +8

    This is a hard story to get through..

  • @donnarobinson8044
    @donnarobinson8044 5 лет назад +2

    What a beautiful person... Inside and out!!

  • @MH-fv1ib
    @MH-fv1ib 5 лет назад +1

    I looked up what EDS was because I was like I am not getting enough info from this video. But man do ppl go through a whole lot from this. Her courage makes it worth knowing you can be that determined in your mine to keep going. Her last statement touched my heart. I will move it out my way. Imma go accomplish my dreams and make them reality. God Bless you Miranda. I enjoy dancing a lot, never took a class but expressing how you feel through it moves your soul. 🙏🙏🙏🙏🙏🙏🙏.

  • @deefredericks6446
    @deefredericks6446 5 лет назад +1

    Beautiful parents, beautiful dancers, beautiful Miranda💐 Fight hard!

  • @tmd6625
    @tmd6625 4 года назад +6

    Aloha fr 🌋Hawaii,
    Brilliant series.
    " The only certainty in life is death."
    "Live life to the fullest for we only live once."
    Mahalo, Thank you for sharing this video.
    T.🌺

  • @tracyroot9578
    @tracyroot9578 Год назад

    I’m a professional artist and I want to thank you for sharing this. I’ve been diagnosed with stage 1VB Thymoma that’s gone into my lung and since I became ill and was diagnosed I haven’t been able to pick up a paint brush. It’s been months since I’ve painted. You have given me the inspiration to get off my butt! Thank you ❤️

  • @jessamonet2634
    @jessamonet2634 5 лет назад +3

    Beautiful in every aspect. Thank you for sharing your story. 🥰😘

  • @kiiraadams261
    @kiiraadams261 5 лет назад +3

    So beautiful and inspiring xx

  • @IndigoRoses7
    @IndigoRoses7 3 года назад

    Her story is truly beautiful.

  • @melukaussie7128
    @melukaussie7128 5 лет назад +3

    Very inspiring, thank you for sharing your story, you are such a beautiful soul!

  • @GIguy
    @GIguy 5 лет назад +5

    PS - I was adopted when I was nine months old, and I can guarantee you that genetics has nothing to do with family, genetics don’t dictate who your family is, love does.

  • @dacemuhammad659
    @dacemuhammad659 5 лет назад +1

    Such a beautiful woman and spirit. May you continue to live everyday the way you do beautifully and with class

  • @2115virgo13
    @2115virgo13 3 года назад

    I’m bawling my eyes out. That dance was a story. What a beautiful woman you are.

  • @jfaria77
    @jfaria77 5 лет назад +2

    Beautiful!!!!!🙌🙌🙌🙌🙌🙌

  • @wandapitts2850
    @wandapitts2850 3 года назад

    She is AWESOME.

  • @FloydLUVpaco
    @FloydLUVpaco 5 лет назад +1

    God bless her soul. Justin Baldoni 😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍

  • @amyb7648
    @amyb7648 5 лет назад +2

    What a beautiful video, what a beautiful person Marinda is...she is amazing ❤❤❤

  • @angiequintero2919
    @angiequintero2919 5 лет назад +1

    Marinda you are just awesome 😍 sending you my love

  • @GLaiz89
    @GLaiz89 2 года назад +1

    I just started watching ur videos since yesterday , my heart is now in pain watching them like waiting their own death😭😭😭

  • @rahmahmohamed1598
    @rahmahmohamed1598 5 лет назад +9

    I love this series!!! It really opens my eyes to the world and is really inspiring!!!