PPPD (Persistent Postural Perceptual Dizziness) Treatment and Recovery
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- Опубликовано: 10 июл 2024
- Dr. Edward Cho (Beverly Hills ENT Cedars Sinai, formerly House Clinic) discusses PPPD (persistent postuarl perceptual dizziness) with Alicia, The Dizzy Cook.
- What is PPPD?
- How are you diagnosed?
- Can you recover from PPPD?
- What are the treatments?
We also discuss vestibular therapy and when it is good or bad for the patient, as well as tinnitus (ringing in the ears). What can be done to help tinnitus and where does it come from? Find out here!
The last 10 minutes are focused on questions from patients with PPPD, vestibular migraine and tinnitus. If you'd like to break up the video, just scroll to 30 minutes in.
Dr. Cho contact: www.beverlyhillsent.com/staff...
PPPD article: thedizzycook.com/persistent-p...
Find out more about vestibular disorders and vestibular migraine on thedizzycook.com.
My wife had this for several months. Saw several specialists before seeing Dr. Cho. Dr. Cho was able to finally determine the issue. Thank you Dr. Cho!!!
I literally could cry…. I have been in and out of the doctors to try to figure this out. Neurologists, PCP appointments, balance study tests, etc….. and they want to put me on meds for dizziness. This video makes SO much more sense and I’m so grateful to have found this. The grocery store, elevators, computer are my biggest triggers and it’s been debilitating. Thank you for this video !!
Amy I swear my life is really gone upside down since I have been suffering from this issue. Hope you are recovering
I've felt with this as well did you feel very lightheaded and like you were for sure gonna faint but it never happens and you feel like your out of your body and dissociate ?
Same here 😬
Do you have sinus inner ear dizzy
Any improvement!?
Wonderful video! Describes my issue perfectly!
thank you so much Alicia and Dr Cho! It’s so challenging to live with these vestibular disorders.
This video deserves millions of views ❤
Great interview and super helpful 🙏
So much good information here! Thank you!
Thank you both for this amazing informative video. This is so helpful. You guys are fantastic at what you do. I cant express the joy of learning all the information and hoping to find some great doctors and PPPD vestibular physios here in London United Kingdom.
Thank you for providing this video. It is so helpful in understanding just how many causes lead to symptoms. The slide of the escalator and grocery store really hit home. Because of not being grocery stores or malls for over a year I hadn't realized how badly my brain detached from surroundings. Dr. Cho was very informative. Thank you for this session.
This was a great video! Ive been dealing with all these symptoms for about a year. Ive been doing the vestibular exercises for about 3 months and have only slightly improved.
Thanks for this video! Was told I had VM over 5 yrs ago. My new neurologist now said I have PPPD.
This was so incredibly helpful and informative! Thank you so much for this. ❤️
You're welcome! I'm glad it was helpful!
This is terrific information for both patients and clinicians. Thank you so much!
Thank you!
This was life changing information! Thank you both so much!
Our pleasure!
I CANNOT BELIEVE THIS! I have been going doctor to doctor for two years trying to find a diagnosis. It’s BEYOND me why they wouldn’t mention this.
I say over and over, it’s not DIZZY, I feel like I am swaying and I feel it in my legs and worse when sitting.
This was triggered by a virus! I have had migraines and strange neuro symptoms as well. The accumulation of all the symptoms is what is disabling. I was suicidal. This gives me hope!
Thank you!!!!!
Sounds like we had the same journey. I saw so many "top" neuros, ent's and vestibular therapist...no one mentioned it.
This is me as well after post-covid.
Its really hard when people keep trying to change the words you say (particularly drs)....I describe mine as 4 beers drunk....Dont give up,I was ready to end it 3yrs ago,but after a lot of utube excercises I am much better (just try them,if they work,do it else drop it)...
I had this in 2018. I was normal and healthy beforehand. Hang in there. I have residual symptoms now but have improved about 80 percent
@r4tgl how did you improve ?
Very helpful! Thank you!
This was a great video. Didn't realize there is a population with exact symptoms I have. This was really helpful. After a stroke, I developed this and have developed a hyper sensitivity to senses so my solution has been to withdrawal but I see now not aggod strategy.
I have been diagnosed with Mal de débarquement syndrome and need wait 6 months to get in. PPPD is a better fit to what I am experiencing. Thanks for the info.
Thank you so much this video was so helpful!!! I have been struggling for 2 1/2 years. All of your videos have been encouraging and helpful!
Damn this Doctor is just amazing
Wonderful information! I am a patient of Dr. Jeffery Staab as is mentioned in the video. I was so glad to receive the diagnosis, even though it is not a great condition to have. No one knew what was going on. This video should help others in my life understand what is going on with me, I hope!
Hi, I have pppd, May I ask did you have the feeling of floor moving when walking? Like walking on a boat ?
If yes, how long did you have it?
Really appreciate 🙏🏻
Where is his clínic located?
Don’t have the grocery store aspect but I do haul in them. Mine started after a bacterial infection. 4?courses of vancomycin. 2 Nuero’s and 6 cardio’s. One group of cardio, lee memorial kicked me out since begging for help. My pcp yesterday did not know anything about this. For 5 years feel like on a sailboat. Have tach and Pots. Yes I saw other videos a free days ago and cried my eyes out.
Very informative presentation. Please any physician that specializes on 3PD/vestibular migraine in Houston TX area?
I have all pppd symptoms. I have not been diagnosed yet .I have a ent appointment in September and I'm hoping he knows about this . I have mentioned this to my chiropractor and he has never heard of this .it's funny how sometimes you know more than the doctors lol.
I can totally relate, my eye doctor gave me a funny look when I suggested that it might be vertical heterophoria.
Hi, I'm Reagan and your videos make me fell like im not alone in this world. I was diagnosed about 5 months ago. I came across your chancel and I got your cookbook. The diet has helped me so much. But I do miss cholate sometimes lol. but I have a question for you. I'm going on a Interational trip to Europe this summer. I was wondering if you could make a video of some Dizzy friendly quick snacks or meal. Thank you so much. And thank you for changing my life.
Hey! That's a great idea - thank you! Hopefully you can reintroduce chocolate eventually. In the meantime, you may really like this post. thedizzycook.com/migraine-diet-snacks/ It's all about snacks!
@@TheDizzyCook are you referring to dark chocolate regular milk chocolate?
Wow so much valuable information & wonderfully explained! I’m still shock that the brain creates sound bc I have that happen as much as I wish it didn’t happen it’s fascinating what the body does. Please bring the doctor back in the future for vestibular migraine talk. Thank you for everything you do to provide all this information.
I found that surprising too!
I felt so alien all of these years (lots of them, basically almost my whole life) having Pppd with most of the symptoms described, including dissociation which is very unpleasant. And going from doctor to doctor just to tell me there's nothing wrong with my vestibular system or neurologically. Basically "it's all in your head was the answer" or "you have anxiety". I went on a 5 years treatment with antidepressants which diminished the Pppd, but gave me side effects I wasn't going to accept to tolerate my whole life. So I gave up antidepressants and symptoms came back. Not as debilitating as before, due to the terapy I made and practices I've learned over the years, but I can still notice a connection between dizziness attacks and visual overstimulation or crowds. So I am currently searching for instruments to help me relieve these symptoms. Thank you for this video, it made me feel seen and not so alien after all. ❤️
I wore glasses for 62 years...after cataract surgery I no longer needed glasses...for those 62 years the first thing I did in the morning and the last thing I did in the evening was reach for my glasses, putting them on/taking them off...I continued to do this in spite of no longer wearing them. I knew the hardened neural pathways in the brain could be remapped based on what I'd read. BUT...I wasn't sure I believed it...Well, guess what. It took two months and without any effort or thought on my part I stopped reaching for my glasses!! I was amazed and encouraged b/c I knew that the brain is plastic and can be rewired!! It's exciting to me and it gives me hope that my horrid VM symptoms/triggers can be remodeled.
This is so helpful
Thank you ❤️
Thank you for this helpful video. I have been diagnosed with Ménière’s but this just opened my eyes to the fact that all my symptoms point to pppd and vm. Are there any doctors in the Fort Worth Texas area that specialize in this?
Dr. Shin Beh at Beh Center for Vestibular and Migraine Disorders
It's so sad because early treatment helps so much but sadly our Healthcare system blows you off for years and makes you feel like you're crazy or just have aniexty. I Am going on 8 years and JUST got a diagnosis after being gaslit for almost a decade
I'm so sorry you have been struggling for so long! I have been dealing with this for almost 10 months and it's so awful! Are you doing any better now?
Yes, gaslighting has been my experience too..the neuro I was referred to for treatment for VM denies I have VM, insists it's anxiety. He is clueless when it comes to VM.
Your speech
Thank you. It looks like i pop up in 3pd, but additionally i have nausea very often i am tired. Are they also symptoms of 3pd? I had many tests done which are rather normal for my age. Thank you.
This video was helpful. Was diagnosed with 3PD and migraines at the Mayo Clinic this past week. I have had both for probably 15 years. Was recommended CBT, vestibular PT, and migraine medicine. I was kinda embarrassed to get the 3PD bc it seemed to be a catch all for “you are dizzy and we don’t know why so here’s where we will stick you”….but I think I’m beginning to understand that the main thing about 3PD is that it is a brain issue and not an ear or eye issue. 3PD does actually rule out some other reasons for dizziness. I do not have eye dizziness, or ear dizziness, I have a brain dizziness. Is that a correct way to understand it?
Can i ask you which Mayo Clinic did you go to? I just got off the phone with Mayo Clinic in Phoenix and they said the headache department and ent department were not taking new patients. They were really unhelpful.
Hey how are you doing now?
@@oliviawesterbeck1253 same. I think knowing more about why I’m dizzy helps me mentally, but physically I’m still in the same situation as always. I have good days and bad days. I’ve kinda made peace with it. I have a good life and great family and friends and things could be worse. 💜
@@nicoleblake4098 Hi!!! How are you ? Take medication ?
Has anyone tried Buspirone? I read a google patent from a Russian doctor suggesting the use of Buspirone for PPPD
I cant find any link on your site to the gamma core device.
Does anyone know of a doctor and/or physical therapist in the NYC or Rockland County NY area who treats PPPD?
So if u have severe Tinnitus and PPPD happen within a certain period of time of each other they’re most likely related correct?
I have vestibular migraine and also pppd. Do you have any idea why i have extreme pressure in my head and almost like numbing zaps when i talk? was recently diagnosed. I just bought your book and I'm starting my healing journey. Took 5 months to get diagnosed . Lots if doctors and tests. Been dizzy and headaches for months. Still learning. Thankyou for sharing your info to all of us that need educated on this horrible condition.
It's not uncommon at all from many people I talk to! Generally seems to be a VM thing, not PPPD. I hope you get some relief with the information on the book and website. It does take some time but those eventually go away!
Hi! How are you ?
What is the diagnosis code for PPPD?
Where could I get treatment in Ontario, Canada?
Its interesting...I had 2 tumors on cerrebellum and treatment...left with tbi,balance,cognition,speaking etc probs...3yrs latter,done hbot a ton of utube physio and brain games...Im changed and a lot better,but left with this rocking drunk feeling...and focus on the outside world is a problem...lots of the 3pd symptoms ring true,so thanks for this video.
I have all these symptoms except I feel normal in a car sitting and laying down..
Me too
I too feel normal in my car when I'm driving or the engine is running.
I wonder if insomnia is also associated with pppd. Most of these pppd symptoms starts at the same time with me, as well as insomnia.
how can i make appointment virtual to the doctor like Dr.Cho or Dr. Beh? what website ty
Omg yes! I would love to get a virtual appointment. I hope we get the link..
Hi dizzy cook. Really appreciate if you answer. Did you yourself experience PPPD ? I wanted to ask you how long you have been through this if you’ve experienced it
Yes I did! And it eventually got better too. I'm no longer dizzy everyday or have pppd.
@@TheDizzyCookhow did u make it go away did ent la help get rid of 3pd or who did u visit to get the help?
Has anyone tried an ssri for their pppd?
Dommage de ne pas arriver à une traduction en Français 😢
I get significant brain fog when sitting in a moving car. Will this improve. I am really nervous. Any information will really help. Thank you 🙏
It does improve with treatment!
Please share how can we follow this Dr
Thanks in advance
He can be reached at Beverly Hills ENT at Cedars Sinai.
Can pppd cause nerve issues throughout the body? Things like muscle twitching and “zaps” that come and go?
Thats very common with severe anxiety.. im suffering with that atm
What was your actual treatment plan? I think I have pppd not sure if I have vm but it all started with two bad vertigo attacks after the stomach flu. Ever since then I’ve been dizzy everyday. Had. mRI of brain, did a VNG test and an EEG all normal. Now being sent to a neurological institution. I feel as if there is no hope left. I just want to be normal again and live normal.
Hey - I have it here or in another video on my youtube page. thedizzycook.com/vestibular-migraine-treatment-plan/
Did you get better Jessica?
Why i have off balance only when I'm lie down or trying to sleep and my off balance dizziness gets triggered by leg movements
It's like I'm floating or on a bus roof which is doing off Roading or like I'm on a roller coaster ?
And sometimes it's like strong dizzy spell
When im sitting on chair and nove my legs i fell soo bad. How are you now?
How do you feel about Neurofeedback?
It's always something to try! I worked with a licensed therapist.
Hello, and doctors who specialize in PPPD in Florida?
Hey - my neuro Dr Beh does online consults for people in FL. I have his info and more here: thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
Had my first covid Phizer vaccine in June 2021 and by july I was diagonised with vertibular neuritis, and 4 months down the line I had tinnitis. I am from London and to get an appointment to see an ENT specialist has been challenging. My doc put me on betahistine as I also had pressure issues, so he thought I had menieres disease. Finally had my ENT appointment nearly a year later and he thinks I have PPPD. The symptoms apparently are the after effect of vertibular neuritis. Has anyone got sick since their vaccine? I am not against it I just find it weird I was sick a month after having it. Maybe it just a concidence.
Me! I developed chronic dizziness 4 days after my second covid vaccine Astra Zeneca
I developed chronic dizziness within 5 days of my second AZ vaccine 🤔
Also in the UK and I also developed PPPD after my vaccinations. It's completely destroyed my mobility and my life in general. I had the moderna vaccine.
I developed vestibular problems and tinnitus after my jab and have suffered ever since.
@@annedaniels8803 Thank you for not making me feel so alone. I hope it improves for you. I am definitely better than I was a year ago but still not myself. The vertigo is 80% better, and the tinnitus is more evident when there is silence so it is bearable. What is frustrating for me the most apart from the dizziness is the foggy head. I also feel like I am a bit forgetful about things.
I am suffering from PPPD for the past two years and because of my work I can't really get rid of it. I am heavily dependent on SSRIs for management of my issue. Can you recommend what should be the correct dose for the same. Also, when one is undergoing vestibular therapy , can I still go about doing my regular job or should it be done with a complete break.
Hi! How are you ?
@@yendryrojas I am still suffering
@@abhimanyucheba961 What medication do you take? is it not working for you?
@@yendryrojas SNRIs
@@abhimanyucheba961 You have not noticed any improvement with the medication. ?
This condition is so disturbing.... it takes over my life..I have all of this ..I am seeing a great therapist and I have to start my SSRI. Praying it all works
how do you feel now, Debbie? My daughter is starting with Zoloft today due to PPPD
Live in South Florida - having a hard time finding a PT that knows about PPPD - do you know if there is a site to find a PT
Same here in south Florida. Barely anyone knows PPPD Here
Hi, I have pppd, May I ask did you have the feeling of floor moving when walking? Like walking on a boat ?
If yes, how long did you have it?
Really appreciate 🙏🏻
My sister’s Meniere disease was complicated with so many 🤢🤢symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus and I had to gave her Dr Madida herbs from RUclips recommendation and after she using the medicine, she was with me last month telling me that she is cured completely and don’t longer experience any of the symptoms anymore.💥💥
Wow am so happy for your sister recovery , please can you share the link to get the herb, someone really needs it, thank you
Ow wow
Can U pls share which herbs as I am really struggling
@@jackier9144 I don’t know the herbs, contact Dr Madida and get their supplements.
Search Dr Madida
I am a hypochondriac, but i feel like I’ve been suffering from this for years. I just did a PPPD exercise and I feel more grounded. I am not as dizzy and feel like I am almost normal
Which exercise did you do?
Hey, mind sharing the exercise with us?
Doctors just say it’s anxiety- but it’s not, they just can’t help you
Walcze z tym 6 lat nikt w Polsce nie unie pomóc
There is no treatment.
??? There is lol