Victory Over Vestibular Migraine: Dr Shin Beh's Book Q&A
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- Опубликовано: 16 июл 2020
- In this episode, Dr. Shin Beh, founding Director of UT Southwestern’s Vestibular Neurology and Neuro-Visual Disorders Clinic, discusses his new release: Victory Over Vestibular Migraine: The Action Plan for Healing and Getting Your Life Back (amzn.to/3haWQ8K) and answers questions from live attendees on meds, diet, supplements, PPPD, tinnitus, and more.
You can follow Dr. Beh on Twitter @thedizzydoc and website: www.thedizzyneurologist.com/
For more vestibular migraine resources, see thedizzycook.com/.
Thank you Alicia for this recording! I'm so so happy I found this and thank you, Dr Shin Beh, for writing that book in lockdown, have just ordered both your books and can't wait to get on the road to some normality!
Thank you so much @TheDizzyCook for running this interview! I'm about to purchase Dr. Beh's book now =)
Thank you Doctor and Alicia God Bless you
I look forward to the Q & A session!
Thank you sooo much for this positive and informative interview with Dr Shin Beh. So many things have become so much clearer. I am in the Uk and will buy this book today. Your website/blog /blog is fantastic and has helped me on this new vestibular migraine journey. Thank you both for being the intelligent, generous and kind professionals that you are.
Thank you so incredibly much for the time and dedication you've poured into sharing your story and VM diagnosis journey. I literally just found your website/cookbook/blog today and it's changed my life for the better to know there are others who share in this frustrating and awful condition, and that there is still hope for a normal life. Especially knowing there are doctors out there like Dr. Beh, I hope it really means some day I can regain my life back! Seriously, you are doing amazing things by continuing to share your experiences
Thanks so much for sharing that with me!!
Truly helpful interview!!! Wish more doctors were as understanding as him🙏🙏
Thank you for interviewing Dr. Beh, he was the only doctor to help me and give me true hope. I remember wanting to hug him after my visit with him, he’s absolutely incredible. I have visual snow, mdds, and vestibular migraines. He said I’m quite a unique case lol
Hi there how I can reach out Dr Beh ?? Then website dosent work
How are you feeling now
Such a wonderful and helpful interview!! Many thanks ☺️❤️
This has been brilliant! Thank you so so much
I do want to thank you for actually caring and explaining these things for us
Great compliment!! Thank you!
This was amazing! Thank you so much for making this happen! I’ve learned so much and will be purchasing his book now! Alicia with your help, Kayla, and with Dr. Beh understanding everything about VM has made my life easier. Thank you!
Thank you!!
Thank you for helping me with my new vestibular migraine life. I’m so grateful I found you 💗
Hi Jennifer I"m trying to make an apto with DR Shin but I haven't been able can you help me Thanks
Thank you so much for making this video & introducing me to this Doctor. I’m in Australia but have just purchased his book. Will take to my neurologist to discuss
hey heather,im in Aus and have just been diagnosed too. How are you going with it?
Such a helpful fabulous discussion!!! Thank you so much! My book is on it's way to me🙂
Can't wait to hear what you think!
The Dizzy Cook how do I go about contacting this awesome doctor.. I'm in the Dallas area.. I'm desperate. I know there's a waiting list. He mentioned emailing him do you have his email or a way to contact him to get put on his waiting list.. Thank you..so much for posting this video..
This video was so validating for me. I have baseline dizziness for 2.5 years (now I’m convinced it’s PPPD not VM) and was being treated with Effexor and Emgality for preventatives. I recently went off Effexor 3 months ago and I think it was helping my dizziness more than I thought because now I’m becoming more dizzy again. Better than it was 2.5 years ago but I’m still dizzy. My question is: with PPPD how long do you usually need to take antidepressants for? Does it ever resolve or is it something patients usually need to take long term to keep dizziness at bay? I’m willing to go back on Effexor if I need to but just wondering what’s the prognosis with treating with antidepressants and for how long?
Thank you so much for this!! I think I’ve been going through the beginning stages of menopause and my migraines are changing. For 3 weeks I had some migraine and this week I’ve been dizzy all week. So I see them changing. I started getting zig zag auras. So my next neurologist appointment she’s going to be peppered with questions!
She'll be so impressed with all your new knowledge!!
How much of b2 ?
Interesting. I follow the Visual Snow Initiative and Professor Goadsby. At the most recent Visual Snow conference (which is here on RUclips) there was a lot of discussion surrounding the notion of VS being a disorder distinct from Migraine, a syndrome in itself, there are research papers that support this too. They also discuss the fact that VS is currently untreatable. I know for me here in the UK, it has been very difficult to find a Neurologist that has even heard of VS. I get after images, snow, halos, star bursts, flashes....a whole host of visual stuff...its like living in a really bad disco :) I am really interested to hear Dr Beh talk about this as I am currently awaiting an appointment with a Neurologist who recognises Visual Snow and can hopefully help with my Chronic VM.
Dr. Beh was the only doctor I saw who knew what visual snow was, he’s incredible at his job and a good person. Smart as hell too
In my professional experience vertical heterophoria (image of one eye is higher than the other) can cause dizziness, visual vertigo, eyestrain and neck muscle strain... which in turn can trigger frequent (vestibular) migraine attacks. In that case corrective vertical prisms can reduce the number of migraine attacks significantly! Horizontal heterophoria can be corrected by eye exercises, vertical not so much. Wouldn't give horizontal prisms unless there's double vision, as there's a risk of "prism eating".
Please answer me.How to distinguish between pppd and vestibular migrain in simple way,iam diagonsed with vestibular migrain 2 weeks ago. My symptoms started around 1 and half month ago.I done full body checkup including 3t mri of brain,echo cardiogram,ecg,blood tests,urine tests, abdominal scans,chest x-rays etc, every tests were normal.I also done tympanogram audio test ,again that was normal.After watching several videos in youtube iam confused whether iam having pppd or vm.The symptoms I have is constant balance issue like floating feeling,sometimes head ache, constant tinnitus in my left ear and had episodes of dizziness before taking medication.My symptoms suddenly go away when I lay down in bed except tinnitus.The things that make my symptoms worse is driving,skipping meals or bad night sleep.first 4 weeks I had very high anxiety,now anxiety under control after full body checkup, diagonsis and medication.In 1st week of onset of symptoms I had problem in focussing my eyes and also found nystagmus when I turn my head or eyes to left side,but then after 3 weeks of onset of symptoms my eye nystagmus gone and eyes started to focus correctly.I had 5 or more episodes of dizziness in last month accompanying with slight irritation to sound when iam with crowd. Now iam taking migrain preventive medication beta blocker, now after taking medication iam not having any dizzy episodes with sound irritation but still have balance issue while standing or walking, but not a huge one just a floating feeling.Dr please answer my query.
i'm so confused and gave up trying to find an answer but Dr Shin mentions PPPD with the more constant but I also get the light sensitivity and other symptoms but never severe vertigo as he mentions with migraine attacks, it gets just a little bit worse, but my quality of life is in the toilet regardless. BTW visual snow never goes away and I have had that as long as I can remember.
Thank you so much for your advice. Sadly we don’t seem to have anyone like you in the UK and we need someone to help us sufferers here…😞🙏
Hey Arty - I have some recommendations here. My doctor actually sees international patients online. thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
What is Triple PD? I'm new to this world. I ordered both of your books. I'm feeling hopeful about my healing journey. I gave Dr. Beh's book to my neurologist because they are not to familiar with vestibular migranes but they are so wanting to help me get well. So I'm trying to help them so they can help me (and many others) 😁
Here's some info on PPPD - thedizzycook.com/persistent-postural-perceptual-dizziness-pppd-explained/
Can BAD eye pain be a part of VMs?
What about sound sensitivity!!?? I get soo dizzy with sound?!! And does this dr have an instagram? I know I have this but nothing has helped! I’m exited to learn more!
Supplement name for tinnitus ?
Hi doctor , I've been diagnosed with vestibular migraine .ive been handling this condition for the past 2 years . and I'm just 24. Have vitamin d3 deficiency too . My doctor recently prescribed me with sibelium 5 mg ...its been 2 weeks ..no change as such ...I also have right ear fullness. Is there anything further which I need to consider?? Like any further medication or vitamin intake??
What if you had a hystertomy should I hormones
This is so informative. Thanks to you both. Alicia, just wondering how you eliminated your eye strain? Did you do visual therapy?
I did some vestibular therapy, but honestly the best thing that helped were migraine glasses. I have some linked here - thedizzycook.com/great-gifts-for-migraine-and-vestibular-disorders/
How will find out if you have VM? I just had a VNG? One ear is weakened than the other. Lights bothers my eyes. I feel dizzy and sometimes like if the car is moving.
It's basically a combination of history and details of your symptoms and attacks. VNG helps to rule out other vestibular disorders but not necessarily diagnose VM.
Here's a good post on finding a good dr that may help - thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
I'm leaning towards amitriptyline but my doctor gave me a choice between that and Topamax. I'm torn on witch one to start.
Neither worked for me. Topamax have me the most intense pins and needles in feet, then legs then hands then rang the pharmacist, and he said allergic reaction stop immediately! So I did. Still looking for answers...
How effective is Cefaly with vestibular migraine? If it’s effective, does migraine diet have to be maintained?
Hi there - I answered this in another post! But yes, you would need to maintain both
My Husband has been experiencing similar to this for a few years now, going from Doctor to doctor to doctor. No one can figure it out. He has pressure on his head when it happened, not a headache, not spinning ,but he experiences lightheadedness like he's going to pass out. He had cataract surgery prior toall this, the left eye is a multifocal lens and that seems to be the one that gives him most problem with the division issue.
Out of the blue one doctor say that he thought that it was migraines and of course, my husband says I have no headaches but he tried to two different medications and it just made the issues worse so we figured it's not migraine and we're moving on to try to see a neuro-ophthalmologist. Have not been in there yet . And so our primary doctor recommended this book and now I'm on this video watching and wondering, could this be the issue I don't know what do you people think. Have NOT read the book yet. What do you think? Thank you for your time
Hey - I'd recommend visiting with one of the physicians listed here. If not in your area or don't have insurance, Dr Beh and Dr Berk are recommended. thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
So is VM potentially the cause of PPPD? I was diagnosed with PPpD but i feel i have vM too. I dont know what treatment is best...
Yes, PPPD is usually caused by another vestibular disorder. thedizzycook.com/persistent-postural-perceptual-dizziness-pppd-explained/
@@TheDizzyCook its very confusing ;) i dont have "attacks" per say of vestibular migraines but i do suffer from typical headaches, but persistent dizziness/floating and light sensitivity. Its hard to know how to heal when the diagnosis is unclear....
How do I go about getting an appointment with this awesome doctor.. I'm so desperate.. I'm sure there's a waiting list.. He mentioned emailing him.. Or contacting you. Do you have his emailing address or is there another way to contact him.. 🙏 thank you so much for posting this...
Hi Janice, you will need a referral from your current physician. Here's his contact info - utswmed.org/doctors/shin-beh/
Thank you I just called today and my doctor sent over a referral...I should have done this months ago.. I have a medicine phobia so I hope he can help me.. I'm getting so desperate...😢
@@TheDizzyCook hello, is there any possibllity for me to have an appoinment with this doctor? I tried to fill the format to arrange an appoinment but it was not possible since I don't live in the U.S. Thank you.
Where is this clinic at? What state?
UTSW - Dallas
How about nausea and vomiting this is the worst for me with or without vertigo anyone else have this
I get severe vomiting during each vertigo episode and its often lasts for several hours before it stops.
What was the best remedy for tinnitus and clogged ears due to vestibular migraines for you?
I also have this symptom, feeling of fullness in my right ear extending to the jaw and sinuses for over a year now- so frustrating!
@@emcook3898 are you taking any medicine?
What did he mean vestibular starts after 40? What if you got VM in your 20s?
I have VM in my 20's started on my 21st birthday and I just turned 24.
I think he means he typically sees older patients because of hormonal changes but that doesn't mean it can't happen at any point. For me, I was 30 when mine started. I have lots of readers in their teens and 20's. It's not uncommon.
I was in my early 30's.
Where are you located?
Dallas, Tx
Can vestibular migraines be caused by trauma like a car crash?
I think traumatic events can definitely trigger them.
Scopalamine patches??? Shouldn't that be illegal???
Hi thanks for sharing this video I tried to make an aptt with Dr Shin but it was close to impossible Does any body can help me with a # that I can call ? thanks
Hey Ana, did you go through UTSW? It can take a few months to get in. If you're willing to go without insurance, please contact me.
I wonder if as a Canadian i could see him via skype...
Please can I have the wonderful doctor’s email address I would love to get appointment with him. I’m 55 this happened when I was 53 and I’ve been to doctor after doctor. I have all the bad symptoms. I’m doing neuroplacisty online it’s helping but I need to know right medication to sleep I can’t sleep. I’m a wreak. My wonderful is hubby is taking care of me and I want to get out life back.
Thank you so much.
Can’t wait for my book to arrive.
Thanks Mary
Mary just Google his name and his information comes up phone number too. That's what I did . Just call the number