My Vestibular Migraine Recovery: The Treatment Plan That Got My Life Back
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- Опубликовано: 7 сен 2020
- Part 1 explained how difficult it was for me to find a neurologist and in this video, I go into detail on exactly what helped me get to 100% dizzy-free days. From medication, supplements, diet, and alternative treatments, I cover what I found to be most and least effective.
It's a long one, but packed with info.
For the full post and links to what I cover in this video see: thedizzycook.com/vestibular-m...
Timolol: thedizzycook.com/timolol-eye-...
Migraine Shields 20% Discount: www.migraineshields.com/?ref=... (code: THEDIZZYCOOK)
Allay Lamp $25 Discount: go.referralcandy.com/share/NR...
To everyone who sees this: don’t give up. Don’t give up on yourself. Listen to her advice.
I really needed this. It’s so hard 😭
I've been down a month. It feels like my life is over.
I remember before the dizziness and being couch/bed ridden. I would experience this dropping feeling while standing. I’ve been out of life and work for an entire year. I have finally been diagnosed with vestibular migraines. I’m so excited to finally have a diagnosis and begin some sort of treatment. Can’t wait to get back to my life and regain my lost business.
how are you doing now? VM is awful
@@marlac.876 still dealing with it. My doctor is still trying medicine to get me somewhat back to normal.
How arw you feeling now? I am taking funarizine since 21 days , it has helped me while sleeping . But dont know how long the journey will be
@@aashimataneja8215 been taking nortriptylin since June. It’s helped a little bit.
Been almost 6 years with zero answers, multiple studies and procedures and told I was crazy. Finally, FINALLY got diagnosed and started vitamins yesterday. Thank you so so so so so much for this. It makes me even more hopeful that this will work. Even the meds they tried to give me had horrible side effects.
Can I ask what vitamins are helping you
I hope you are getting relief. B2, Co'Q10, magnesium citrate and vitamin D3 have helped me so much.
@@tonip9844B2 is tremendous at diminishing this
This is so amazingly helpful, I cannot get over how I stumbled across this and realized...THIS is what I have! My first neurologist appt is next month and I feel like I can go into it with more knowledge than I would have before. Many thanks!!
Lately watching these videos is the only thing that provides relief and hope. They calm my anxiety
Thank you so much for these videos! I kept getting push back from my ENT and PCP and finally went to a 3rd ENT who suggested that I have an MRI done after presenting with all the symptoms that you mentioned. I just got my MRI results back and they found a Rathke Cleft Cyst on or about on my pituitary gland. Prior to this weird out of nowhere dizzy issues I have been losing weight the last 2 years and cannot figure it out. Now I have answers as this is all connected with. Thank you!! Anyone else who isn't getting answers an MRI may get you progress or at least on the right trail.
Glad I found this my 18 year old son was just diagnosed as having these migraines
Thank you so much! Just when I thought that there was no hope for this condition. I really needed to hear this, and I just ordered your book on Amazon, can’t wait to try some of the recipes. I’m looking forward to getting my life back.
I hope you enjoy it!
I've been struggling with this for 3 months and this is an amazing amount of info. Thank you!
I got diagnosed two weeks ago and have been dizzy since Jan 2022. So the same as you..hope you are better now
This post is so helpful❤
Thank you sooooo much!
Thank you for sharing, have been struggling with this and Menieres for years, the past 2 years progressively gotten worse. Keep getting passed on to new Drs.Only to hear there is no cure you have to live with it. You have given me hope!
Supposedly Dana White was cured from Menieres from a treatment in Germany, Lenire system is about 80% effective for tinnitus, almonds seems to help but no one knows why and the John of Ohio’s protocol has also helped many
Thank you so much for making this info. You are a huge blessing to all of us dealing with VM. Nausea was the very worst symptom for me but doing everything you are recommending has helped me so much. Yes, no yoga for me it triggers my dizziness.
Are u feeling constantly nauseous and dizzy 24/7? Please lemme know
Thank you for your videos! You led me to Dr. BEH . It has been the best progress I have ever had! I wasn't expecting such a long-term treatment plan, so adjusting to that was a mental adjustment.
Timolol has saved me so many times!
Great information! I have had VM for 19 years now and it is a struggle at times, but I am so glad that all of these things are working for you. You hit the nail on the head when you said getting therapy for your mental health is very important too with this illness because you can get very depressed. I also have diabetes on top of VM so therapy has been an extremely important aspect of treatment for dealing with chronic disease. Good luck and I hope you keep feeling great!
Thank you - you too!
Hello!!! How do you feel today?
I’ve had this for 2yrs. I was just diagnosed today. I hope to find some relief to get my life back that I’ve lost. 🙏🏽🥺 thank you for your information
Wishing you all the best!
I’ve been suffering with this for about 4 years now. Been to the er so many times just to be shoved off with “anxiety” finally saw my first ent this month and he thinks it’s vestibular migraines. I’m hopeful to finally start recovering. Thank you
Hello, how do you feel today?
Excited to have found your channel! 😘😘😘
Yay!!! I need to get better at it like you have!
Just got diagnosed with this from an audiologist yesterday after they ran a bunch of ear, eye and some crazy chair spinning test. Still hard to believe but im glad to see that it is actually a real thing. Ive bene misdiagines for years and hoping this is truly the right one this time. Great video!
Hey! Definitely a real thing and I'm seeing it a lot more often too. I hope you find some good tips on my website and also make sure you see a neurologist or neurotologist for treatment as audiologists aren't qualified to treat VM long term. I have some recommendations here! thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
Wow, i watched your first video. I can’t believe how identical our stories are, mine started right when i got back from a small vacation to miami. Im now listening to this and it’s just crazy how everything is the same with me and your story. I felt so insane for so many months, i finally figured out what i had after dozens of tests and nobody knowing what was wrong with me and i finally found vm online. The big smoking gun was walking into walmart because i had been telling my family for months i would get all wacked out in walmart and felt thr best when driving. The difficult thing was trying to differentiate the vm versus panic attacks which i had a history of. And many months later i realized it was first vm, followed by anxiety.. which gets confusing bc the two overlap.
Ive done vestibular therapy which didnt work but did make me feel very dizzy. Man… so crazy. I’m a little nervous because i’m still in the weeds. I found a neuro otologist near me but its taken 3 months to get to see him and he said i probably have vm but he wanted more tests.. which the soonest appointment was 2.5 months from then. I just had my testing done only one of the testing machines was broken so its pushed everything back even longer. My neurologist in the meantime started me on a beta blocker. I tried 3 medications before this that either made me feel weird or made things worse, i’m about 3-4 weeks in on this and upped my dose 3 times so far and getting discouraged bc i still feel off daily. I get the really scary internal tremors occasionally that feel like an earthquake and it mostly happens in department stores or when this first started when i was at work. And im on fmla but it runs out on the 12th so im kind of scared because i work in construction as a welder and very high up so im nervous about having to return with all this going on. I’m about… 5-6 months into all this when it started till now.
I tried everything like you did early on, ive been taking coq10, magnesium, b2, feverfew and many other things, did vestibular therapy, did acupuncture for 3 weeks, got massages, tried cryo therapy and salt therapy.
After I initially found out about vm through research (while waiting on traditional medical testing and doctors) my mother found dr Beh and his book which she bought and thats why i started on all the supplements. After that nothing was working and was still struggling with trying to find the correct doctor to treat this.
So anyways, thanks for sharing your story, i’m still in the early stages of this and am really looking forward to having no dizzy days and no anxiety!
Glad i found someone whos story matched mine exactly. I also found someone else that i know who has been struggling with this for years 😑
It’s such a silent condition and it seems very few people and doctors know about this.
I think i might start another youtube channel to talk about my story as well since your story has been so beneficial to me.
Hi, did you get a medical treatment? I am trying everything to feel better also. I feel same symptoms like you. When I am on my bed I feel throbbing head or palpitations, and the feeling that I am in a elevator for 2 seconds. That is really scary.
How do you feel today.?
I started my VM a year ago.
I never pieced together why I've had a positive change in my vestibular symptoms for the last month until you mentioned CoQ10. Changing my diet to exclude sodium and caffeine pointed me towards some different foods for the past few months. We've been making vegetarian sushi every week with avocado (I screwed up with low sodium soy sauce the first time). It dawned on me that CoQ10 is in Avocado and Oranges. I can't say its a day and night change in symptoms, but I think I'm going to experiment with more avocado recipes now.
You are totally right on not discrediting CBT. I wish I would have started therapy sooner. Its such an important part of treatment.
Thank you for this video, your channel was recommended to me. Will be watching more!
Thank you!! I'm so glad it has been helpful!
Thank. you for telling your journey with vestibular migraines. I’ve had severe migraines for over 30 years, so when RUclips recommended your video I opened it immediately.
I suffered for 15 years before the doctors believed they were real and prescribed medicines to help. At the start 2022 the vertigo hit me hard. My Physician sent me to physical therapy, but it didn’t help. So we did all the ear and sinus medications, but that didn’t help either. So I endured another 7 months of dizziness. Then one day vertigo was just gone, glad but now very confused, I now have answers.
Thank you so much for posting, you’ve given hope ❤️❤️❤️ I will be asking my doctor about any new medicines
I'm so glad it was helpful! Your story sounds similar to mine. The physical therapy can often make it worse if it's not treated properly. I have some doctor recommendations here as well. thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
Thank you for sharing. I haven't been diagnosed yet bit was looking for possibilities for what has been wrong with me and I'm sure this is it. Thank you Thank you so much.
Thank you so much for sharing your experience. I've had something like VM/MDDS for 4 years. Will definitely be trying some of your suggestions!
I hope they help you!
very helpful details, thank you!
Your video is beyond helpful =) thank you so much for sharing your story. I have been recovering from Vestibular Migraine and MdDS for a little over a year now. I’m going to try your diet and supplement changes and read Dr. Beh’s book!
I really hope it helps give you that extra boost. I do get a discount on some of these supplements mentioned here if you need it. us.fullscript.com/welcome/thedizzycook
Hello 👋, I want to thank you for this video. I have been recently dx with chronic migraines and vasculitis after 23 years of MS dx.
So I am researching everything I can to try and get caught up with a new and different dx.
I bought the icecap and I just did my first mag bath and ice on my head after taking two migraine excedrine. My face and neck pain is not gone but holy moly 😳 I feel so much better.
Oh and I read your blog post about the different mags and coq10 and ordered them as well and started the mag. Will see how all this goes and I'm greatful for more tools to help me. At least try and see. Thank you for sharing here. Good luck on your journey. 💞💪🫂
This is great! It’s just so frustrating because it’s all so expensive!
Praise God! Thank you for sharing. I believe God uses people like you to help others to God be the glory He is our ultimate healer!
What a lovely thing to say. Thank you
Thank you so much for this. So encouraging
You're very welcome!!
Thank you for this ❤️ I’ve been dealing with VM for 3 weeks now. It started randomly for me & ive been working with my neurologist since last week. I’m on Topamax now. Only day 3, so I haven’t really seen a difference. But I am very hopeful. And It gives me hope seeing your success! I’ll definitely check out the supplements and also the diet!
I hope that it turns out to be helpful for you! I have a few friends that combine that med with diet and supplements who have had great results. It sounds like you caught it so early you'll be able to really stay on top of it!
The Dizzy Cook unfortunately, It made my symptoms worse, so i stopped taking the medicine. I’m going to speak with my doctor tomorrow to come up with another treatment plan instead!
How do you feel now?
@@DannieAntionette hoy do u feel? Hope is gone 🙏🏼
Thank you so much for all this info. I have suffered for years and was kinda diagnosed with vistibular migraines and basically told there is not a lot to be done. I live in DFW and am going to get into to seeing your Neurologist. I can’t wait! But while I wait I am going to start some supplements and want to fry message therapy you never posted who she was. Can you share that info please. You give me some hope for treatment!
Thank you, this is a very reassuring post! I'm 10 months in and recovering well, but it's very easy after that length of time to wonder if there will ever be dizzy free days and it's a great reminder that yes, there most likely will be and it's to be expected that the process will take time. I've used a few of your recipes - my husband and I really enjoyed the tacos with cilantro slaw!
I'm so happy to hear that!!
Thank you for sharing your story! I am thankful to have been diagnosed after about 6 weeks of symptoms. Now, I am trying to figure out a long-term plan with medication. I am interested in a more holistic approach.
I been waiting for this 😩😩😩
I hope you find it helpful!!
The Dizzy Cook I been dealing with this illness for 2 years. I lost 2 great careers and feel like I’m losing my life lil by lil. I can’t hang out with friends anymore or can’t play with my son anymore can’t drive much anymore or workout. It shut me down literally. I much rather had other disease than this. This is have destroyed me in so many ways. I need help please 😢
@@jayhannon7422 I'm so sorry to hear this. I felt the same way for a long time too. I hope this video and the resources on my website and in my cookbook can help you get your life back.
The Dizzy Cook what’s your website and cookbook ??
@@jayhannon7422 thedizzycook.com
thedizzycookshop.com/collections/cookbook
amzn.to/33k6fGF
I have multiple sclerosis and have had Vestibular Migraine symptoms for about 6 weeks. When I started having symptoms I was sure it wasn't my MS. I was prescribed 3 days of high dose IV steroids and within 3 day the Vestibular migarine symptons returned! I started researching and found the "dizzy cook's" videos to be so helpful and have given me hope! Thank you so much
Wow! Some neurologists suggested this for me too. I think sometimes doctors confuse the symptoms of MS with VM as well. Makes you a tough case! I hope you're getting the help you need now.
Wat is ms
@@zealoflife3010 Multiple Sclerosis
Thank you for your story. I am almost healed at 70%now.
So what did you do? ❤
I am just starting this journey. I was diagnosed and prescribed therapy. I HATED the therapy. I am on magnesium. I have been keto almost 5 years. I just got Dr Beh's book. I am having to take control now. This entire diagnosis is crazy to me. I am extremely light sensitive. Thanks for your posts.
Sometimes it's too soon for therapy. I hope you love the book! I really recommend checking out one of these for your light sensitivity. They help a lot. thedizzycook.com/which-migraine-glasses-are-best/
Dizzy will go by stretching the side where you’ve got the ringing in the ear and head mouvements helps as well
Having listened to both parts of your story has made me in equal parts happy, hopeful and sad. I have VM and PPPD
I have vestibular therapy exercises in place, supplements (although I had a very severe reaction to Magnesium so will try a different formula). I have been told to avoid banana, nuts, citrus, red wine, caffeine and dark chocolate- but need to read why. And have an upcoming appt with a therapist as well. Plus I have Theraspecs.
I have had to give up running and yoga and change how I work - outside gardenin. Onto Pilates but nothing that has me moving my head side to side or too much up and down.
I just expected to get better quicker and not being able to get on and do things like I am used to is very very hard.
I have nausea some days but less now. Dizzy all the time. Light and sound sensitive and feel like I am on a pontoon with jet lag all the time. I started with bad headaches on my left side and falling sensations - usually in the supermarket. I had put my foggy head down to menopause- I am 59 but know that changes in hormones can be a trigger so am back on HRT. The worst is the weight gain due to lack of exercise and not getting my diet right. I’ll be checking out your website for how to manage my intake. With my sons wedding in 6.5 weeks I hope to be able to manage my symptoms to get through the day. Thank you for all this clear detail
The reason why you were told to avoid nuts, citrus, red wine etc is because these foods are high in tyramine. Tyramine triggers migraines. There is a digestive enzyme called monoamine oxidase (MAO) which we are supposed to have in our bodies that naturally breakdowns the tyramine which in turn means no migraines. However if, due to gastric issues etc, this enzyme is too low we can’t break down the tyramine and therefore a migraine is triggered every time you eat these foods! This happened to me after celiac disease destroyed my gut I had 1 and 1/2 years of 24/7 vertigo from undiagnosed vestibular migraines.. horrible. However the good news is it can be treated naturally as many vitamins and minerals are needed to heal and in particular calcium and vitamin B2 riboflavin have been found to greatly increase mao enzyme activity. So I would recommend taking them and magnesium and very importantly I would recommend high strength zinc as the root cause of these issues was probably from stomach distress and zinc is wonderful for healing stomach linings etc, I hope you take on these suggestions and feel better soon 🙏🏼
@@katrinabruce9476 it may not be just the tyramine these foods also cause gastric vertigo for some because of the high acid content produced and they can also trigger the release of histamine, h2 blockers can help
I`ve done everything i could to improve my symptoms. Nothing has worked. I`ve done physical therapy, acupuncture and massage and nothing has helped. I`m glad I finally found someone who has experienced what I`m dealing with.
Glad you found me! Sometimes we can't improve with natural treatments alone. I was that way. Some of us are just more severe than others. But it doesn't always mean you'll need those medical interventions forever.
Thank you very much 😌
Your story describes me to a "T" I've been standing still and feel like I was on and elevator when it stops! I have light sensitivity, sound, I mean all of it and have for years off and on.
This is absolutely debilitating and it has had me on the couch for almost a month which feels like a lifetime!! I am so sorry to any of you that have had to endure this nightmare for a long time. I was recently diagnosed by my awesome ENT but no ear issues! I definitely experience severe neck pain and migraines in the back of my head. I also experience a dropping sensation at times which has caused palpitations and nervousness for sure! Lets see I am off balance and I feel like im floating most of the day even when im still ( also im pregnant ) so anyone here who can contribute ideas I would love and appreciate what has worked.
Can you take this special magnesium when pregnant by the way?
@@kaitlin4713 always check with your doctor first, but my OB and RE have loved keeping me on magnesium throughout pregnancy. It can also help with the constipation.
@@TheDizzyCook thank you so much!!!
Thank you for writing this. You are the first person I’ve ever seen/heard describe the feeling as a “dropping”sensation. Thats exactly what I experience. Its usually described as a tilt or dizziness. Whereas I dont feel “dizzy” or off balance per se but like a lightheadedness which drops. Anyways, all this to thank you🙏 It makes me feel less worried.
Thank you so much for sharing this! You can’t imagine how happy I am to know that some people who were having the same issue that I’m currently having have recovered. It gives me a lot of hope
I'm so glad to hear this!!
@@TheDizzyCook hello...you described really what i suffered 4 2 years can y plz write the drugs y have taken thx. 🙏🙏
Omg I just found your videos. Thank u thank u so much your videos are right on point. I have been dealing with this 5 months now. I have been so up and down thinking that I am crazy. How do I find your list of recommended vitamins? And where do I find the right glasses?
I had a relapse after 2 years of not having vertigo attacks but I never got well enough to function near normal anyway. I lost my job and pretty much life as I knew it 8 years ago when I had my first attack and I have been having difficulties since then. But at least I wasn't having spinning sensations and I could do some things. Now, I am back to square one, home bound and miserable again. Do you by any chance know any specialists in the Atlanta area? I was on the HYH diet and have added back just a few food items back. I have since gone back to the most strict initial diet and still not much improvements.
Hi there, I just started treating VM too. Just wondering, what does of Ativan did you do for the first month? Thanks a lot!
Hello mam!!
I am 24 yrs old.
I was having this time to time vertigo, dizziness and headache since my childhood. It used to be like a vertigo followed by headache and dizziness which used to get normal automatically in 3 days or 2 days. I kept ignoring this issue because it was not very frequent.
But, last year, i suddenly got severe vertigo and this dizziness and headache symptoms sustained for 15 days. Then, i went to a general physician doctor and had some common tests for general vertigo but didn't get any results. Then i finally decided to meet a neurologist. He listened to my history and told me that i got a migraine. Then, he gave me medications like tricyclic anti- depressant, beta blockers, few supplements and Vitamin D. I got better and my symptoms went away but after 6 months of having the medications, i stopped taking them. Now, which is after 6 months since i stopped medications, i again got a vertigo attack and all those dizzy symptoms came back. 😕😕
Mam, my question is, will I have to take those medications for my entire life to have a normal life ??? Or there is any way to fix this issue so that i can live normal life without medications??
What rescue medication do you use for a sudden attack?
I have a question, did it gave u dizziness? Because my mom has dizziness and also having problems with balance.
How does one get "diagnosed" with migraine associated dizziness? I have he dizziness 24/7 and used to get ocular migraines?
Does anything show up in VNG testing? I have the testing coming up for the 3rd time, and I hate the caloric test!
How long did you take the Ativan for? And did you take it daily?
I've been pretty lucky with the diagnosis part so far. Had a few visits to the ENT before he brought up strong suspicion of vestibular migraine. I got the initial feeling after being on a plane, I usually still feel like I'm on the plane for a few days but nothing debilitating. First time I got it self induced was after hours of shoveling, constantly bending over and over. I started feeling like I was on a boat, or a plane, bobbing up and down. Went away after another plane ride, later in the year, did some deadlifts while exercising, feeling came back noticeably stronger. I did some situps afterwards like a moron, and that made it even worse. I've been lucky, I just have the movement feeling/moving forward up and down/minor headaches/sinus pressure. I can still drive, work, do most things. No sensitivity yet, no hearing loss, damage, had several CAT scans, seemingly no brain/heart issues. I'm not sure if it might be a neck issue as well, I feel like I should get an MRI to rule out anything hard to see. Meclizine didn't allay the movement feeling, it did help with the headaches though. Tried Triamterene, that made me feel like crap. Tried Butterbur, which I feel like again, helped with the headaches, but movement feeling stayed the same. Tried Nortriptyline 10mg for a week, no effect, probably didn't take it long enough to see a difference. Still have a lot of things to try, figured Id put this here in case anyone else has similar issues, you're not alone :)
Very similar symptoms as you have. I do have neck tightness as well so I went to chiropractor but no success from it. Nortriptyline didn’t help either after a few months. Starting to think there’s some correlation with the neck pain and this imbalance.
@MattJLA did you ever find a solution?
@@laurynwellbrock3299 Hi Lauryn! I haven't found a solution but that's because I haven't pursued searching for one, the feeling of movement on its own for me is actually not that unpleasant, I've been feeling it for around 2 years now, and its stayed relatively the same. The headaches however were the worst part for me, and the butterbur my ENT suggested seems to REALLY help remove them from the equation, whether its a placebo or not, it helps so that's what counts haha. But it's not been so terrible to get me off my butt and try other medications, VRT therapy, monthly massages, etc. But that's just my personal situation, I'm afraid of making it worse by trying new stuff, which sounds dumb but that's where I am about it currently lol.
what supplement did u use for 400 mg/ day of riboflavin (b2)?
What kind of lamp helps light sensitivity?
I'm sure I have been suffering from vestibular migraine for years. It always starts with a headache right on top of my head to the left then I feel off balance (never dizzy) like I'm on a boat or the floor isn't level, It always seems to be worse in the summer either from direct sunlight or if I feel like im dehydrated. I always feel worse when I'm stressed or tired. My doctor seems to think it's anxiety I have been to the ent many times but nothing seems to come up.
Just wondering if anyone has any advice.
Thanks
Will you share the dose (strength) of your timolol eye drops? I'd like to discuss with my doctor...trying to be my own advocate. Thank you!
Hi. Will green tea help me in vestibular migraine. I have gained lot of weight
Thank you so much for this! Out of interest, how many food triggers do you have? Is it a lot? I am in university at the moment and I feel that this will make it so hard to stay committed to the diet :( But obviously I know it is worth it.
No I just found a few - nuts, MSG, yogurt, and large amounts of citrus or chocolate. I have to be careful not to overdo it, but for the most part it's not too bad!
I didn't understand what did he RX you other than ativan? Did you say atenolol drops?
I this is what I have, but how do I get this diagnosed, I live in South Africa
Hi, did you ever experience this feeling during your brain fog? Almost like a pressure sensastion stimulating feeling like everything and though process is in slow motion? I get those all the time, and i stuggle to think and respond to people when that happens. It gets worse when im stressed or anxious in that moment as well.
I have vestibukar migraines and bvvp positonal vertigo
How do you tell the difference?
Hi I appreciate to this video so I am suffering from 1 year dr. Sent refer refer but they can’t diagnosed so really same my problem with this video can you give any solution for me thank you
I’m curious about the light sensitivity. I have vestibular migraines but I don’t have light sensitivity. I’m also a yoga teacher and yoga is lovely for the stress aspect of it. More of a gentle flow tho so not much bending or tons of movement .
What type Of dr dignosied you I also have m, s, I’m in az what state r u in I get tired when I do d vit.
I haven't had a proper diagnosis yet but you basically described me. Except, do you have tinnitus? Because I do.
Does magnesium theonate .make you drowsy?
Hi i just want to know u took only medication r u did exercises also bcz my ent doctor said there is no medicine she said some exercises it's been 6 months no much improvement i am facing more dizziness from 3 days not sleep not walk nothing i can do
I have been having such a rough road with three ENT's over the last 3 years...but the last one I saw (at a highly specialized clinic at the University of Virginia) was shocked I had ever been diagnosed with Meniere's Disease. He said my hearing test came back normal, my inner ears were completely healthy, my MRI & CT scan were crystal clear and I'd only had three nasty vertigo spells in 3 years. But the first two ENT's were convinced it was Meniere's because of balance issues, vertigo, dizziness, tinnintus, fullness in my ear, etc. I explained to him that no other ENT had ever really listened to me after they were convinced I had Meniere's. They pretty much disregarded all these other side effects like that dropping feeling, feeling swimmy in the head (or like you describe as dizzy in the back of your head), heat intolerance, sensitivity to sound, getting overwhelmed by conversations especially at restaurants, having head sensations when in big stores like Wal-Mart, etc. He finally listened to me and said he believes I DO have Vestibular Migraines but I need to see a Neurologist to confirm but everything pretty much fits the bill. I am hoping to get in and see a Neurologist in the next few months...but until then I do take the Magnesium Glycinate daily...Flonase, anxiety meds and am weaning off a diuretic (since I don't need it anymore since I don't have Meniere's and have to be as cautious with sodium). Your videos really make me feel better and that there is light at the end of the tunnel. THANK YOU!
How have you been doing? 💛
I’ve had vertigo for about 5 years. The last 6-7 months it’s been every day. I want to walk off a tall building it doesn’t go away.
Im on Verapamil and it basically foes nothing now and timolol for high eye pressure aand simbrinza for high eye pressure. Horrible dribing to work and get dizzy and panicky.
I just dont believe it will ever get better.
Thank you for this information. You are helping so many figure out this disorder that presents such a puzzle for most sufferers. I’m thrilled about your success story and wish you continued good health. That gives me so much hope that I too will get there some day soon👏🏼👏🏼. Did you experience any heart palpitations while taking magnesium threonate?
How many mg daily was tolerable for you without any digestive issues?
No I did not but extremely rarely I do hear of this from readers so that's why it's good to run dosages by your doctor first. Different forms work for different people.
@@TheDizzyCook
Thank you. Unfortunately, I haven’t had much luck with so many doctors I have seen in the last 6 years of having daily migraines. They have no answers for me and don’t know the etiology of the migraines. When I hear of good doctors from other migraine sufferers, they are usually in other states.
But, I remain hopeful…
Yes I had the same reaction felt like I was having them in my sleep.
I forgot to ask you did u drink organic decaf Swiss water processed coffee every day or just occasionally?
I drink it almost everyday, but back then it wasn't as much. thedizzycook.com/vm-coffee/
Hi, I’m experiencing this too. And my doc prescribed magnesium oxide but same as you I had digestive issues. But the other forms of magnesium, which brands are they and what are they called?
I have a post here: thedizzycook.com/magnesium-supplements-explained-which-one-is-best-for-vestibular-migraine/
And also have some recommended brands here: us.fullscript.com/welcome/thedizzycook (discounted)
Your story and website has been so helpful for me.
I just bought your book, you recommend unflavored seltzer. From what you know, do you think it’s possible that the “natural flavors” in flavored seltzer’s can be triggering? I started drinking honestly like 4 of them a day maybe 6 months ago. Appreciate any thoughts you have.
I'm so glad to hear that! Usually if it's natural flavors but the fruit is still ok on the diet (like mango), it's ok. If it's like lemon natural flavor, that wouldn't be allowed. I do find some friends are still triggered by flavored seltzers even if they are considered "safe", so just something to watch for, especially if you're drinking so many. Sparkling water with natural fruit juices mixed in is also a good alternative.
Good to know, I’ll back off them for now. Thanks for the help.
@@deannar.7670 I use to make my own ginger ale by putting grated ginger root in sparkling water. No SUGAR. It really helped with the nausea.
Thank for sharing this ! Just wanted to ask you , did have chest pain during taking the supplements? And have had irregular heart beat ? Thanks
I did not. Sometimes that can happen if you take too much magnesium. I'd definitely consult with your physician to make sure you're on the right dosage for you.
Some blood pressure medications can give you chest pain. I had chest pain taking verapamil so I had to switch my medication. But Vestibular migraine alone should not give u pain chest.
Have you ever been checked for MS?
Thank you for your videos. I have all the same symptoms but there is one I’m curious if you ever experienced. Have you ever experienced a random dizzy spell out of nowhere?? I was talking to a co worker and next thing you know I got a violent dizzy spell that brought me to my knees. Lasted about 5-10 seconds then it just stops and goes away as fast as it came. I feel shaky and nervous after but then I’m ok. This happens to me on an average of once every 1 to 2 months
Actually I talk about this here. It's really common to happen in conversations. thedizzycook.com/vestibular-migraine-triggers/
This happens to me too.in fact it just happened yesterday when I was at the store.
I am doing VRT now with a therapist. I am also watching my diet. I am doing all the things that u r doing. I am wondering if u have tried Cefaly?
Hi I briefly saw in the comments about the covid jab making it worse, it was after my second jab I got severe dizzy spells especially when driving or in supermarkets.
Please can you share the link where you talk about this
The problem with it is more if people don't have a good plan to manage it. It's similar with any illness, if you don't have a good rescue to bring that dizziness down, it can get out of control. I have some tips here for managing directly after: thedizzycook.com/vestibular-migraine-and-the-covid-vaccine/
But since you're probably past this point I would recommend discussing good acute treatments with your physician if you're already on a preventative: thedizzycook.com/acute-treatments-for-vestibular-migraine/
We talk a little bit about patients getting VM after getting sick here: ruclips.net/video/JMIAs5M6DtQ/видео.html
Does anyone feel each day where they have like a massive air bubble in their face or sinus and thru to ear and where it feels like you can’t function normally? This is how I feel each day and have had it for 2 weeks since my last cycle, had this vestibular condition for 3 years but this sensation or symptom is new and it’s worrying me a lot …
I feel like this, I’ve told people I just want to pop my ears like if it was a balloon and I feel like it would release all the air inside and it would make me feel better. But I think that feeling is part of the fullness in the ear symptom and the pressure in the sinuses I think is a regular symptom of migraines
Hi I was just diagnosed with vestibular migraine 2 weeks ago after 2 months of symptoms. I was just prescribed propranolol. Do you know if it’s effective at all for this diagnosis?
I just started propanolol 4 days ago after 5 months of vestibular and regular migraines. (And 400mg riboflavin b2 vitamins). How did it work for you?
Just to like to ask, is anyone having neck pain or neck stiffness as part of your vestibular migraine symptoms?
Yes I do!
Hi Alicia, I am recently diagnosed with VM.. I have all the symptoms like Sound sensitivity, Motion sickness, Headache, ear pain. As a first medication dr prescribed me Sumatriptan 100MG. I am scared to take this medication as I heard it gives you chest pain, jaw pain, heavyness. Did you feel the same symptoms like it.
Hey Aryan, I was never prescribed triptans for VM. It's definitely not something you can take daily - you need to limit them to 10 days a month or else you risk medication overuse symptoms. If you're looking for something more long term you may need to ask your doctor about preventative medications. Dr. Beh has a great book that reviews some of these called Victory Over Vestibular Migraine.
Did you ever end up taking this? I got prescribed this too…
Try Tai Cheng...Tai Chi for older people. It is FANTASTIC
Anyone use the cefaly device?
So is there a known root cause
?
Did you get any tinnitus (ear ringing) during the worst of this?
Only on occasion. It's a terrible symptom. thedizzycook.com/vestibular-migraine-symptom-dictionary-an-interview-with-dr-cho-from-house-clinic/
Does timolol eyes drop help your light sensitivity ???xx
It did with time. thedizzycook.com/timolol-eye-drops-as-a-migraine-preventative-and-acute-treatment/
I also love to use Migraine Shields www.migraineshields.com/?ref=THEDIZZYCOOK - they give 20% off with code THEDIZZYCOOK as well
Did you have heavy legs also?
Timolol is use in glaucoma. My husband was on it.
Yes! Been around for years.
I’ve had this for coming up a year now, and I feel absolutely drained mentally and physically. I’m only 17, and just want to be going out and working harder but I just can’t. Just started on Propranolol and hoping it’ll help me
I was 21 when mine started, stay strong it can and will get better ❤️🩹 🙏
Damn bro nice to see there are other guys who are my age range who suffer from this
Update: a year later, propranolol worked for a whole bit I’ve been dealing with it again now for another 3-4 months and can’t seem to solve it. It really is a horrible condition that I wouldn’t wish on anyone.
I tried a beta blocker but have had better results with calcium channel blockers.
Would you happen to know of any great vestibular migraine neurologists here in CA, LA area? P.s this is ALL SO incredibly helpful and encouraging! Thank you x infinity ♾
Hey! I would recommend Dr. Edward Cho for LA, but I have a few recommended doctors here.
thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
I second Dr. Edward Cho. He truly specializes in these disorders and knew what was going on with me right away.
I have a question and it may sound dumb... why would I feel like I am walking on clouds all the time? Does that mean that the vestibular migraine is always there?
I wonder the same mine is every day all day dizziness
It's not dumb at all. You can have continuous or chronic VM and that's why you would feel that way. It was the same way I felt.
I'm currently on Zoloft bc of all of the unexplained symptoms. Can you recommend a doctor here in the Dallas area?
I recommend Dr. Shin Beh who I've done a few videos on this channel with!
Did the zoloft help ?
Did zoloft help? I was prescribed it because they said all my symptoms are unexplained so it could just be depression and anxiety but i stopped it because i felt so bad after the first week and couldn't take it
Hello my ent prescribe for my vestibular migraine was Amitriptiline5mg before sleep I didn’t find any difference am on the 4th day. Tell me I couldn’t understand which medication u used , can you write down here pls?
Any update 4 months later
I have the same problem as well and my ent had prescribed amitriptiline 5 mg to be taken for a minimum period of 4 months. I did have pain on and off within a period of one month. After one month of taking the medication, the pain has substantially reduced.
Thank you. Have you found any medications that actually did help?
I have everything linked here - thedizzycook.com/vestibular-migraine-treatment-plan/
Hello, this is Felipe from Colombia, I would like to know why your doctor prescribed timolol, which is an eye medication? I start to think because my dizziness problem happened right after an eye strain (strong movement)
thank you very much for your content 🙏🏼
I’ve been dealing with this for almost 3 months now. I’ll been to 2 ENT’s and one Neurologist. Could you direct me to what supplements you are taking and the ones you named in this video? Also have you tried chiropractor. I’ve started that recently and I’m just ok. However, I am not 100%. My neurologist put me on nitripylin, but I was miserable after a week. He then switched me to topirmate, but I’m so scared to take it and the side effects are just not worth it for me. Look forward to your reply.
Yes heres my post! thedizzycook.com/natural-treatments-for-migraines/
I did see a chiropractor, but I dont believe it was a huge factor for me. Maybe it helped a little bit - but it's always worth a try if you have a good one. We're all so different in what works and what doesn't :)