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Have you ever been checked for MS?

I just dont believe it will ever get better.

That's my story too! I'm stilling trying to find a Dr that will take me seriously!

i really believe i have this and it started about 2 months ago. i def have a hypersensitive brain and have battled chronic anxiety and panic attacks for years. the one thing though is i have no issues driving at all. but i do suffer big time in like a grocery store for years now. i always thought i was crazy but its good to know its a real thing. But it is possible to have PPPD and be able to drive with no problems? im fine when im driving. i also feel totally fine when im laying down too. its only when im upright doing normal everyday movements like in the kitchen or bathroom the twisting and turning etc etc etc. i can take a long walk too with no issue as long as im moving forward constantly. all my symptoms seem to fit PPPD. mine started after having a bad vertigo attack that lasted like 10 seonds. ever since then ive had these PPPD symptoms (but no vertigo at all it was just that one time that triggered it) my vertigo/dizzyness i like in my head instead of external vertigo. its def worse when im having bad anxiety its very obvious it makes it much worse

I thought she had vestibular migraines not 3p. Trying to figure out the difference because they seem very similar.

Omggggg!!! The yogurt 🤦🏼‍♀️ 🤯I never liked yogurt my whole life up until til a few months ago I discovered I loved Greek yogurt. Which magically aligns with my everyday headaches and the onset of my vertigo. This is so sad to me lol…just when I thought I found myself a healthy(ish) treat.

I have that car experience all the time and never feel grounded. Always motion issues even when still. So glad you covered this as I will be talking to my doctor!

Hi i get off balance when standing still and when i am sitting down. Is this something to do vestibular migraine?

Will you share the dose (strength) of your timolol eye drops? I'd like to discuss with my doctor...trying to be my own advocate. Thank you!

This is exactly what I have been going through for the last three years. And I have been through thousands of dollars of testing. I even just had an MRI to check for a Brain Tumor (which luckily I don't). I get attacks where everything spin so much that I can't even move from my spot. I even thought I was having a stroke at certain points. Thank you for this. I now have something to push my doctor's to test.

What kind of flower do you recommend using if you’re also gluten-free and you’re trying to avoid any nut products

Has anyone taken Topomax for Vestibular Migraines?

Thank you very much 😌

That's me and the madness for the last 6 years thank you for sharing

How did the issue get fixed

All these are 100% me except i do go through periods of bad headaches as well. But always off balance headache or not. Comes with severe stress which i had had a lot of so i had thought for years it was anxiety. When my symptoms started in 2001 my neuro put me on low dose Paxil for 6 months then tapered off. I was fine for a year or so. It came back and quickly. Then i went down the road of SSRI's and added Depakote. I got sick or side effects of antidepressants so ended up on Depakote alone fo4 about 5 years. I weaned off and was good about another 5 years until i had 2 back to back losses and the stress triggered it all again. I can barely drive down the stress. Now i guess it back on the med train. Going to try lamotrigine this time because i hated the weight gain from Depakote.

Great interview! Wonderful, hopeful, and very informative video. Thank you for taking the time to be interviewed, Dr. Bey

Your video unfortunately gave me a migraine

I have just been diagnoses and I am 3 weeks in. Again did not believe it. I am really impatient for this to go away and worry about my job. You symptoms are right on with mine. The movement issues, light sensitivity, etc. Scrolling tablet, etc. It is like you are moving but it take the rest of you to catch up!

It took my consultant about 2 years to diagnose this it’s a lot better now but it’s very stressful there is a constant worry it can get worse again. Thanks for sharing your experience

Thank you. It looks like i pop up in 3pd, but additionally i have nausea very often i am tired. Are they also symptoms of 3pd? I had many tests done which are rather normal for my age. Thank you.

Did you have heavy legs also?

Thank you for this. I’ve been struggling lately and am trying to save up money to see Dr. Beh. I needed to hear these answers today.

Does magnesium theonate .make you drowsy?

Your speech

I had an episode of this about 4 years ago lasting about 6 months. 3 doctors dismissed me as being a malingerer. I could only safely walk with a wheely walker as I was falling all the time. Walking on sponges, turning and losing balance, all your symptoms. It was awful. I have recently had an MRI after insisting because of headaches for the last 3 years. I have been found to have periventricular white matter lesions. Probably causing my severe R sided head/neck migraines up to 10 days a month. I want to now visit a neurosurgeon. My GP is not very proactive. I feel like she hasn't believe me. The MRI has shown something but I I am not sure she knows what to do. Except wait and see. I want a plan if possible. Thankyou for your video. The symptoms were so accurate to lots of mine. 🧸

Was diagnised with vestibular neuritis by ENT with no nystagmus. VNG caloric showed weakness on right, tho I don't understand if there is a normal baseline to compare left side to. Multiple hallpike tests by ENT and vestibular therpaist, who thinks its not VN. Daily dizziness(some days worse), hyperacsusis, tinnitus both sides/central for about 4 months. Head pressure headache for hours some days. Inner ear sensations both sides, tonal fluctuation right ear, with occasional sound distortion. Clear mri without contrast according to radiologist. Waiting on a CT scan. Some light sensitivity. Vestibular therapy has not helped so far. Dizziness increases when bending over or other positions. Less when lying down. Brain fog and extreme fatigue for over a year straight, worsened since onset of dizziness, tinnitus, hyperacusis. Constant eye floaters started close to inner ear discomfort 14 months ago. Opthamologist sees no eye damage. Eyes tire as day progresses. Jaw ache, discomfort that fluctuates. Crackling with movement. Never have true vertigo that I know of. Now suspected vestibular migraine. Does this show as a chronic state of symptoms daily? Was prescribed yesterday gabapentin 100mg 3x daily. Took a few and woke up feeling worse all day today. May be unrelated. Meclazine and sumatriptan as needed. Been to so many doctors and practitioners for over a year with no clear diagnoses. Could be multiple things going on.

Can you recommend me a supplement about vestibular migraine;

Your symptoms sound exactly like mine! Thank you for sharing! I have seen Doctor after Doctor trying to determine what is wrong with me! Meclizine made me violently ill! I will never take that again. I just saw another Doctor yesterday who suggested that this may be Vestibular Migraines. So, here I am watching RUclips videos. After months of tests and no answers, I thank you for sharing your story! I just bought your book and look forward to making some migraine healthy meals soon. Hopefully, I can find a Doctor who can help me with a proper diagnosis, whether it is finally determined that this is the appropriate diagnosis for me or something else is. While I have only had the vertigo/vestibular migraine issues since early April, I have had a whole lifetime of migraines. It's the new vertigo symptoms that threw me.

What an amazing video such an informative video thank you 🫶🏻🙌 I wish I lived in the States and could go see Dr Beh too!

I am so grateful for this story…. I am struggling with this same symptoms since 6 months ago…. Just this week a Dr told me that I may have vestibular migraine…. I am waiting on my MRI results to confirm something…. Wow …. Thanks so much

This was a great talk. Everything you talk about is me. I been experimenting with what foods to eat and keeping a journal for 1 week, thank you.

This is so amazingly helpful, I cannot get over how I stumbled across this and realized...THIS is what I have! My first neurologist appt is next month and I feel like I can go into it with more knowledge than I would have before. Many thanks!!

Thank YOU! I needed this!

I wore glasses for 62 years...after cataract surgery I no longer needed glasses...for those 62 years the first thing I did in the morning and the last thing I did in the evening was reach for my glasses, putting them on/taking them off...I continued to do this in spite of no longer wearing them. I knew the hardened neural pathways in the brain could be remapped based on what I'd read. BUT...I wasn't sure I believed it...Well, guess what. It took two months and without any effort or thought on my part I stopped reaching for my glasses!! I was amazed and encouraged b/c I knew that the brain is plastic and can be rewired!! It's exciting to me and it gives me hope that my horrid VM symptoms/triggers can be remodeled.

What roll dose tinnitus have in this? My history was vertigo hit, then headaches, then tinnitus. Now i have tinnitus 24/7. Help

Wat eyedrop are the dr talking about,i would really like to know,i am also struggling with this disease for many,many years, i am currently on a pill called toplep it is for people struggling with ceazures,but it also works for people getting vestibulere meagrains

Thank you. My Mother has all these symptoms and she is scared. I sent her your video ❤

Thank you for sharing your story! I am thankful to have been diagnosed after about 6 weeks of symptoms. Now, I am trying to figure out a long-term plan with medication. I am interested in a more holistic approach.

My ENT thinks I might have this. If so I've had this my whole life meaning I was probably born with this .

Thank you for this presentation with Dr. Beh. It was hard for me to understand him because he talks so fast. Also, my headache is so bad today and this was long. I hope I can find this again to relisten to what was said. You were talking about eye issues that I didn’t understand. I need to see my doctor soon because my eyes are giving me problems. I want to share this with my psychiatrist too. Again, thank you. Sharon Flores in Arizona.

Hi, did you ever experience this feeling during your brain fog? Almost like a pressure sensastion stimulating feeling like everything and though process is in slow motion? I get those all the time, and i stuggle to think and respond to people when that happens. It gets worse when im stressed or anxious in that moment as well.

But, WHAT WAS THE TREATMENT?

I have those symptoms and my vision is still not back to normal.

I described my dizziness as wooey insides my head

Another great video thank you! What glasses are you wearing Alicia?

Thank you!!! Does Dr Beh have any suggestions if the triggering event that started your PPPD was coming off of anti depressants (SSRI) after long term use? What should you do in this situation? There are a number of us dealing with this and it's hard to get answers on what to do. Thank you.

Merci beaucoup pour cette vidéo ☺️ je ne peux pas prendre de betabloquant et je n ai pas supporter les anti CGRP. J ai une maladie auto immune la maladie de Sojgren et je qouffre de MV et Pppd depuis 20 ans. Avec cette maladie, je pourrais essayer quoi comme traitement? Qui n aggrave pas ma maladie. On ne parle pas des migraines vestibulaires associés aux maladies auto immune et j ai la malaide d Hashimoto si vous savez me donner un conseil. Mon neurologue ne sait plus quoi me donner merci. Dommage que le livre du docteur BEH n est pas traduit en français difficile de le traduire nous même 😟 merci

Hi Doctor Beh and Alicia, Thank you from the button of my heart for everything you do. I have listened to all of your podcasts. All of your information has been invaluable to me tremendously! I tried to make an appointment to see dr. Beh, but been told I had to cancel the appointment due to out of state patients :( I have VM for over 20 years. I also had hit or bumped my head 6 times so far, does it cause VM ? The most difficult symptoms for me are vision giggling, vibration, light headedness, balance, dizziness, light and sounds sensitivity. I have no headache pain ( just once in awhile). Will Neurolens helps my vision when I have to read? Thank you so much in advance for your reply. Blessings to you 🙏

Thanks to you because l see all your videos today was my appointment with doctor beh