Don't skip past this video because it seems like a long one. Absolutely worth listening to, probably the most helpful video I've come across. Thanks dr sarah for spending your time in providing this video.
Basically the whole presentation was about me lol. The worst part of this issue is majority of doctors do not even know or mention about PPPD. I have spent so much time and money just to figure this out. Thank you for your video!
The problem is the physical symptoms at least for me are soo extreme it’s like I drank a bottle of whisky in an hour. It’s soo intense that, you can’t just not think about it, you can’t just let it go…it’s so bad you can’t even sleep…it’s awful. There is no peace
Agree it's very hard to "just put it in the background " or ignore it when you feel so off balance. I also feel like I'm buzzed, but unfortunately haven't drank anything lol. Wish I could, I'm afraid to even have a drink for how I'll feel. 😢
I wish Dr edelman would answer people on these comments.. It would be nice if she did. When you do a video of this magnatude you should atleast answer peoples questions.. We're all in dispair...
The brain itself habituates, it keeps the symptoms going. Sending over exaggeration of stimuli responses that normally our brains ignore. Vestibular rehab (by a physical therapist) can help you learn neuro retraining skills. Medication, vestibular rehab AND learn mindfulness with behavioral strategies I think would have longer lasting success. If you don't solve the triggers ( like vestibular migraines), PPPD might flare up again. Multi prong approach is far more effective. I think my anxiety started FROM the symptoms and the frustration of not getting treated for months. Providers shrugging off in a game of "not it". I don't think I would be feeling better with just CBT.. Brains can be whiney old grumpy curmudgeons, with measured careful rehab we can soothe and remind the brain to function better. Pssst, it is not "all in your head" .... mental health AND neuro based issue.
Yes my head feels cloudy. When I stand or walk I am dizzy , lightheaded. I have had this condition since I had COVID-19. I live my life sitting or laying down.
Ik how? I get so nervous to drive that I'll get dizzy behind the wheel. Any lately stores make me feel weird walking down the aisles. But I do know we have to keep doing these things even if we feel off.
I wish Dr edelman would answer people on these comments. It would be nice.. When you make a video of this magnatude you should atleast answer peoples questions. Where all in dispair.😢
Are these people just on RUclips? I don't know of any therapists who's specialty is dizziness. Same with these vestibular audiologists that have YT channels, most audiologist near me just do hearing tests. How do you find these specialists?
Thank you for that! what about symptoms like extremely sensitive hearing and tinitus in one ear? can it be also some of the symptoms? The more my head hurts and pressured, the more dizzy and sensitive hearing i get... is it common? thank you!
This is the best talk about PPPD I've seen on youtube. Thank you very much.
Don't skip past this video because it seems like a long one. Absolutely worth listening to, probably the most helpful video I've come across.
Thanks dr sarah for spending your time in providing this video.
Basically the whole presentation was about me lol. The worst part of this issue is majority of doctors do not even know or mention about PPPD. I have spent so much time and money just to figure this out. Thank you for your video!
So how is it going?
@@tmb0183 nothing has changed tbh. it turns out my atlas is misaligned as well. I am getting used to these but its affecting the quallity of life
The problem is the physical symptoms at least for me are soo extreme it’s like I drank a bottle of whisky in an hour. It’s soo intense that, you can’t just not think about it, you can’t just let it go…it’s so bad you can’t even sleep…it’s awful. There is no peace
Agree it's very hard to "just put it in the background " or ignore it when you feel so off balance. I also feel like I'm buzzed, but unfortunately haven't drank anything lol. Wish I could, I'm afraid to even have a drink for how I'll feel. 😢
I wish Dr edelman would answer people on these comments.. It would be nice if she did. When you do a video of this magnatude you should atleast answer peoples questions.. We're all in dispair...
All these site. offer little or no help, to the problem .
@@prbasset6371 go and have cbt
best presentation!!thanks for good advices!!
Thank you so much for this video, just what I needed, i will buy your book ❤
Give up the fight! There’s Nothing wrong with you!
Thank you so much, this is very informative.
This is an excellent presentation. Extremely helpful.
Amazing Sarah! Very good content. It's great to learn from you.
The brain itself habituates, it keeps the symptoms going. Sending over exaggeration of stimuli responses that normally our brains ignore. Vestibular rehab (by a physical therapist) can help you learn neuro retraining skills. Medication, vestibular rehab AND learn mindfulness with behavioral strategies I think would have longer lasting success. If you don't solve the triggers ( like vestibular migraines), PPPD might flare up again. Multi prong approach is far more effective. I think my anxiety started FROM the symptoms and the frustration of not getting treated for months. Providers shrugging off in a game of "not it". I don't think I would be feeling better with just CBT.. Brains can be whiney old grumpy curmudgeons, with measured careful rehab we can soothe and remind the brain to function better. Pssst, it is not "all in your head" .... mental health AND neuro based issue.
Yes my head feels cloudy. When I stand or walk I am dizzy , lightheaded. I have had this condition since I had COVID-19.
I live my life sitting or laying down.
Same case with me, u got any cure with any medicine kindly share me
Did you have vertigo or tinitus ?
No only offbalance and dizziness
@@cristhiandiaz1149i have both since covid
Regarding safety and avoidance behaviors. How do you go out when your rocking swaying and feeling your going to fall?
Ik how? I get so nervous to drive that I'll get dizzy behind the wheel. Any lately stores make me feel weird walking down the aisles. But I do know we have to keep doing these things even if we feel off.
I even walk wobbly like I will hit something. Like I am drunk but
I never drink alcohol.
I wish Dr edelman would answer people on these comments. It would be nice.. When you make a video of this magnatude you should atleast answer peoples questions. Where all in dispair.😢
❤
Ataxia is what they call it i call ut drunk feeling due to stroke
Can taking antidepressants for long run cause long term side effects or give way to another/new disease?
Are these people just on RUclips? I don't know of any therapists who's specialty is dizziness. Same with these vestibular audiologists that have YT channels, most audiologist near me just do hearing tests. How do you find these specialists?
Thank you for that! what about symptoms like extremely sensitive hearing and tinitus in one ear? can it be also some of the symptoms?
The more my head hurts and pressured, the more dizzy and sensitive hearing i get... is it common? thank you!
Information flyer is available for download here: file:///C:/Users/sedel/Downloads/2019%20Information%20flyer.pdf
Dear Sarah, Do you see patients remotely? How can I schedule a session with you? Thanka. Pablo