MyEpilepsyStory Brogan my little brother does this he is 5 I hate seeing it. It seems to happen a lot if he is doing work like writting his name or drawing. What do you think is the cause? I know when he was like 2 he was real sick and had a seizure and went to the hospital. But didn't notice these until about 6 months ago. Tho with children it's hard to tell what they are looking at. Now that I think back could have been happening a long time now.
Something no one would pay attention it's almost like she's spacing out wow you learn something new every day hope the best for you thanks for the video
William Fullman i can tell whats happening because i have them but mine lasts longer almost to where it feels like hours when im just staring off into the distance i hear people calling me but i cant talk back or respond in anyway until it runs the course
I was finally diagnosed with this type of epilepsy at 17. I went through school and everyone thought I was just day dreaming. It was good to finally know why I was always so zoned out.
Yea i used to get in trouble A LOT in the 3rd grade because that’s when my Epilepsy started showing up. Since i’m not visibly shaking my teacher thought i was just not paying attention when in reality i was having seizure after seizure
The first time I had one... It was weird.. Because it was almost like being asleep while being wide awake.. I don't know how long it lasted.. But I didn't move.. Didn't blink.. Didn't breath.. My teacher was calling on me and I was unresponsive.. It was only when the whole class was screaming my name that I snapped out of it. It made me so confused..
inge smit they thought I was deliberately trying not to pay attention. So they were mad.. and I was just so confused. I felt like I hadn't even been "there" ya know? I have no idea how long it lasted.
A few years ago, I would walk my youngest child to her school bus stop (it was a rough neighborhood, so I provided a little stability to the bus stop). One day, this girl - probably about 14 years old - started coming up to me and talking to me. This made me kind of uncomfortable, as I had no idea who she was. So, one day, I asked her to please refrain from contacting me, as she started standing closer and closer, to me. Uncomfortably close. After several requests for her to stand elsewhere, I decided to record our interactions and send them to her school. I wanted to remove any doubt that I was trying to get too friendly with a minor. During the video I made, I would walk away from this girl and she would follow me, like a lost puppy. I forwarded the video to her school and the school, in turn, shared the video with the girl's parents. The parents contacted me... to thank me. My video showed that she was experiencing SEVERAL "absence seizures", allowing her parents to realize that they did not have their daughter's seizure issue as under control as they thought they had it. So, inadvertently, I helped this girl and her family seek further care for her seizures. An annoying situation turned into one that improved the health of a kid at a bus stop. Who would have ever guessed...
@@twayne4608 You May want to learn how to read. If a 14-year-old girl starts following an adult male around, not leaving him alone, you document so your ass isn’t accused of anything inappropriate. In this case, I happened to catch the girl having a seizure.
It is very odd that a 14 y/o girl would follow an adult male around. I can say as a woman, we're taught to do the opposite, not be alone with adult men when we're kids. But for ur situation, it obviously was very helpful as the girl had needed help. She probably had more not right with her. But also, I would point out, that if a girl that young is going up to you like that, I'd be concerned of trafficking. And record the situation to protect yourself as you did.
Hey Trey thanks for doing research and then making a revision to your previous statement. I hope that in the future you do the research first before commenting but coming back and taking accountability for your mistake is really honorable. Many grown men will not do this so you already have a head up on them. Keeping growing and learning! :)
sileNt solEmNitY -Dove Maci- no u don’t lose train of thought you go blank and don’t remember it so it’s like a point when time passes but it feels like you’ve been doing what you have without stopping
You look young enough that they may stop. I had them my entire life until my early 20s. They suddenly stopped. Unfortunately, I started having grand mal seizures at age 30. It's been 3 years now and they're pretty rare at this point. I hope yours go away.
Mia Smith it sounds like perhaps you should try it some other medications. These are possible side effects with many drugs, but you can probably find a different drug or a lower dose of your current drug that is still effective but doesn't make you feel as badly. Med school dropout here. A Bachelor's in psych was a good foundation for my planned career path before I became to ill to finish.
I never even considered it as a possibility until I went to a physiologist for my anxiety. She was like, "Yeah, you need to go get tested asap because you're textbook for absence seizures." I did get tested, but we pushed so hard to get an appointment because I was about to lose my insurance that the doctor just wanted me out of his office as quickly as possible. They did a 20 minute sleep study with me right beside the hub where all the nurses meet to gossip and there was construction or something going on so it was impossible to to sleep. The technician guy was like, "yeah you slept for maybe two minutes, I didn't see anything too abnormal. Bye." I still get accused of just spacing out and not paying attention
I had a friend in high school who would zone out and mumble or make noises. When I told her about it, she didn't believe me. Then she had a full-on seizure one day and was diagnosed with epilepsy. Looking back, this is probably what she had.
@@rayvega3163it’s actually common for people with absence seizures to not know it even occurred! I have Juvenile myoclonic epilepsy and can have both grand and petit mal seizures as well as myoclonic ones, when I was diagnosed the neurologist that I spoke with asked if I could recall “missing time.” In classes for example, he asked if I could recall watching the teacher during the lesson and it seemed like they’ve suddenly jumped from one part to the next with nothing in between, I thought I was just zoning out hard or maybe even dozing off in class but even my family has vouched for my “zoning out” every so often, they thought it was just a zone out too but I don’t think it’s often (if at all) one can zone out so completely they become totally unresponsive. Epilepsy is a fascinating existence lol
Thank you for this video. I knew a woman years ago who had "seizures" and I never understood properly because she didn't have the trembling kind, she just went like you did - just sort of blank and motionless. Now I understand better.
Daria Wells I have absence seizures but with pills they are controlled. As someone who has epilepsy, it’s frustrating because people think we fall on the ground.
I am learning Japanese Omggg i felt this on a spiritual level!!! There are soooo many types of seizures that when i tell someone i have seizure they’re like “sO yOu FaLl On ThE gRoUnD?!?”
@@nehla_noor Personally I started going to a professional about them almost as soon as my parents began noticing the seizures. I was on ethosuximide for a few years and eventually the seizures went away around 11 or 12 :)
@@Elkat196 I'm not diagnosed with it yet,but I'm feeling like I've experienced this quite a few times So,Idk if I should consult a professional or something... Tysm for sharing anyway:) Have a good day!
MyEpilepsyStory Brogan you are absolutely right, awareness needs to be spread about Absence seizures. More than once people have told me they thought I had either just spaced out or was ignoring them
I hate the feeling of having these. Worst part for me was I started having them just a couple years ago and my boss at the time thought I was just slacking off and daydreaming
DoomstaKurLz187 I know the feeling! Its actually very common but people just dont speak out about it! And its amazing what social media can do for the world 💕
OP; I dont know how to get out of them w out breaking something. Usually i break the silence but that doesnt always work ever since i met people who were insistently silent and i tried to be like them too. Well i dont blast thug rap so i'm not spreading that disease but something serious needs done to eradicate such major trauma sources. Then people can relax instead of being so uptight after the acoustical assaults ruined their last bit of patience. Lately i just build up tension and snap w a sudden movement intending to ditch all the psychological burdens from people my disposition inclines me to otherwise care about but who do not reciprocate in kind. even that is becoming less effective as i age and friends become more needy than they seem worth the plague of so much crap to be held down by while they keep incurring more crap w the irresponsible freedom of the dgaf mentality. I might be exaggerating just to illustrate whats going on.
Wow i had these when i was kid during sleep and at night. Now 16 yrs later and i have done exactly what you have done just last week. But i had double vision before. Scary i wanted to keep my license.
MyEpilepsyStory Brogan I've had 2 friends die from epilepsy. Its very sad. One friend died when I was in high school. His parents came home from shopping and found him. Before that he hadn't had a seizure for over a year. My other friend died last year because his seizure induced a fatal heart attack. I'm 40 now and he was only 53 when he died.
Thank you for your channel, I love that you are spreading awareness about epilepsy because so many people dont understand what it’s really like to have a seizure. Having epilepsy can be such an isolating experience and it’s nice to see others speaking about it
especially when you’re participating in an activity. People might just guess that you’re daydreaming , but having seizures & daydreaming are totally different once you actually observe the two. It’s the worst.
Nick Zona One time I was doing a speech during class and I had a absence seizure and then when it stopped everyone was staring at me really weird (because no one knew I had them). It was the worst I hate seizures
One of my best friends has Absence seizures all the time. She ends up staring into space, blanking out, fidgeting, and repeating the same word over and over again. She has gained over 80 lbs. due to all the medication she has had to take. We are both are 13 years old. When she was 11 years old she weighed 94 lbs. When she was 12 she weighed 120 lbs. Now, she weighs 184 lbs. And it has impacted her life A LOT. Now, as I listed before, the symptoms or signs of a seizure is what i have to look out for. She sometimes hates herself for her weight but we all remind her it is not her fault. I am not quite sure how many medications she has to take but its over 4 medications. And I love her to pieces and this doesn't change a thing. Although, one time in 6th grade we had P.E. class and in the middle of handball, she stood still, fidgeting and mumbling random words. This continued for about 3 minutes. She had 24 seizures in a row, and it was extremely scary. After resting in the nurse's office, she didn't remember anything that happened that day at all, for about 20 minutes she forgot who I was! Seizures are not a laughing matter. You can gain over 90 lbs. from all the medications you have to take and it sucks. But I love her so much i don't know what I would do without her.
Clearly it's not working if, like you said, she has Absence seizures all the time. I always wonder why people jam all this medication down their throat if it's not really doing anything to combat the problem, and instead is creating another.
I've been having these for about 15 years after I was hit in the head in a car accident. I could never explain why all of a sudden I can't remember what I just said, was going to say, or was even thinking about. Now I know. Thank you for showing us what you go through so that we can better understand ourselves and those whom we love.
I was just going to say the same thing! Having lived half of my life in the U.K & half in the U.S.A., I know they are called "Absence Seizures" in the UK & "Petit Mal |Seizures" in the USA. Seizures of any kind are no fun, if it's any comfort my best friend had Petit Mals & eventually outgrew them. You'll be in my thoughts & prayers :)
Your video helped me realize that I have absence seizures. It randomly popped up in my feed one day and I'm so glad it did. My seizures look EXACTLY like yours. After 20 years, I finally went to the doctor and got diagnosed. Now it very rarely happens or when I don't take my medicine.
Wow all my life I thought I was just “zoning out” as people would say but I didn’t know this is what I was experiencing. I have had a total of 3 grand mal seizures and there’s nothing more worse than that
Sorry about your condition but there's many things worse than 3 Grand Mal seizures, especially if you're talking about "in your life" opposed to "in a row" but even still, there's worse things than that. Maybe you should count your blessings 🙏🏻
@@graciefrancoeur9573 not to be ~ms correction~ over here but it would be classified as a disorder. honestly thank you for your other comment because although I've been through plenty of traumatic life events, I would rather go through them again than have another seizure. I had grand mal seizures nearly my entire childhood (6-12), and they only stopped when I became a teenager. I grew out of them with the help of daily medication. I'm 20 now.
Thank you Brogan!! I was just diagnosed epileptic as a result of serious brain injuries last Spring. I have 4 different types of seizures, and Absence is one of them. It was educational for me to watch yours so I know what other people see when I m having one. God bless you. You are on my prayer list!!
Thank you so much for your comment and sharing your story! It means alot to me for people to speak out about there stories and also those in the comment section. I also have grand mals, very hard to deal with Epilepsy. I hope you feel better soon and stay safe 💜
@@MyEpilepsyStoryBrogan Thank you, Dear Brogan for your reply! Didn’t know you have Grand Mals also! I have those too.! Hurt my head badly when I hit hard pavement. We must keep one another encouraged! Thank you for doing that for me!!
I admire you for being staying happy and positive as it looks like not a big deal but I was glad to see this as I have this type of epilepsy with alot of other symptoms, I'm in my fifty's but I had problems as a child that went unnoticed and as a result my whole time at school was a waste of time not to mention damaging, good luck and stay positive x
I have epilepsy too and I'm so sorry you have to go through this. You're lovely, don't ever give up hope for a cure!!! Love and prayers from across the pond
Thank you for posting this, and sharing your story. If no one tells you enough, it is brave to show vulnerability, and by sharing you are helping others. My son is 9 and autistic/ADHD/Slow processing speed and has these moments where he is just blank for a few seconds to almost a minute. Just staring. We call him but he doesn’t respond. Then he comes right back and is like, “what?” He struggles getting stories and sentences out, often avoiding speaking if he can, or dumbing down sentences so they won’t be as long. He is incredibly bright and can speak eloquently with a broad, complex vocabulary for his age, but he stops himself from expressing himself that way. He has had these staring spells since he was a baby, especially as a toddler. I thought they could be seizures but was told no by some doctors. Then teachers started bringing it up as a concern for seizures. I’m still told it’s just his slow processing, or lack of attention/focus from ADHD. I’m curious how you feel the difference, and how you were diagnosed. I think my son would feel so comforted to know there are more young people out there like him. He won’t feel so alone. Thank you again, I am so glad I found your video so I could compare what happens for you with what I see happening with my son. He is very similar. Wishing you health and happiness!
I hope you got some answers! I do know that it’s not ADHD: I have 3 immediate 2:11 family members with it of varying ages and it’s not something that any of them do.
My mother was an epileptic and I never thought i would experience any seizures until I experienced an absence seizure a few years back, worst feeling ever. Almost feels like sleep paralysis if you understand.
I was diagnosed with epilepsy about one year ago and I only ever have absence seizures. I don’t really know what I expected when I clicked this video but I most certainly did not expect to start tearing up. I couldn’t tell you why I got emotional; I wish I knew. Maybe it’s just the video confirmation that I’m not alone idk. Beautifully educational video 😊 good on you for putting yourself out there for educational purposes. Never lose hope 💜💜
@@Arlene_witha_y It’s difficult to explain but I’ll try. They are very short so I don’t really feel anything while they’re happening, it’s kinda just like my off switch got flipped on accident haha. Kind of like when you’re flickering a light switch. Once I come to, i’m usually incredibly disoriented and I have to take a moment to reassess what i was doing. Once in a while, I’ll catch myself twitching pretty hard while coming out of a seizure. I also tend to have multiple seizures when i’m trying really hard to focus on multiple tasks at once. I think seizures are a little different for everyone but this is just my experience. I hope this can be helpful/education to some.
I know exactly how this feels I have tonic and absence seizures and I hate when I'm in the middle of a conversation and people think I'm rude or something because I lose track of time for up to give minutes and can come to consciousness completely confused about what I was saying it not even aware that someone had spoken to me at all
@@EndeavorsDnB it depends on the individual, type of seizure, and severity of the seizure. I have some where I stay conscious and others where I collapse and don't remember anything
@@EndeavorsDnB when I have absence seizures, I’m fully conscious or sometimes half asleep but when I have my tonic-clonic seizures I’m fully unconscious. It’s different for everyone though. I highly recommend the epilepsy action website if you’d like more information about seizures or epilepsy. Feel free to ask questions too💜💜💜
I am 40 years old and have been having these type of episodes since I was 12. The ones I knew of were about 10 a day but, lasted a lot longer than what you had in this video. I was actually diagnosed at I believe 25. I was at a normal annual with my primary and I "stared" and my jaw was doing a chewing motion. I heard him say "I need to talk to you when you come back"...I can see and hear everything during these. He told me what he thought it was and I had an MRI that showed nothing. I still have about 20 or so a day that I know of and get migraines if they last very long. My longest one lasted over a minute. Epilepsy meds did not help, so i just have to deal with them. I am glad that you made this video. My triggers are patterns...especially really tight patterns, like on a tie (that is how mine happened with the doctor), or even floor tiles.
I'm 26 and have the same thing. Never had normal seizures, just absent ones. Have actually been having them my whole life but since I was really shy and nervous at school and it gave me a bit of a stutter when I spoke all the teachers and pupils just thought it was my stutter that was stopping me from speaking mid-way. Same at home, during a conversation or doing some work I would suddenly freeze and go still and my family thought I was just daydreaming. It was only recently when I went to see a psychiatrist to help me with my anxiety that they noticed what I was doing and told my parents that I was not actually a daydreamer but having seizures 😟 it was so weird to find out such a thing
I was diagnosed with absent seizures when I was about 8. I'd have these exact episodes but I also had episodes where I'd make an odd face and my hands would tense. Those were usually when I was excited. I had an EEG done and I had 22 seizures in 20 minutes. My mom felt so bad because I struggled in school and teachers always said I just day dreamed and wouldn't pay attention. I'm 24 and I haven't had a seizure in 3 years. That I've been able to tell. Dr thinks I grew out of them. Hope you do too.
Thank you so much for making this video and actually being able to capture your absence seizures on camera. These are exactly like the ones I have, and I have been needing a video to show friends and family what to look for. Again thank you so much.
I have mitochondrial disease and I get the same type of seizures. We call them resetting seizures because that what it feels like. When they were at the worst when I still was working I could have 50 in a minute. I'm glad I stumbled across your video I can now show my Neurologist.
This is super helpful! Thank you so much for posting this. This type of seizure is often so subtle that it's often missed or misinterpreted by people. Thanks again for capturing these moments and sharing your experience
Jaden Jones I’m sorry I normally don’t care, I’ve just been having problems as of late and catch myself attacking before I think. Which isn’t an excuse. You’re okay to post whatever you want if it’s not being malicious. Honestly it doesn’t matter how old you are, even if I find it annoying, I can’t stop you from continuing to post stuff you think is funny.
Right in the feels! Luckily I have had a successful career so far despite my Epilepsy. You need to take care of yourself and take some deep breaths. If you would like to know more about absence seizures here is a link 😊 thank you for watching! www.epilepsy.org.uk/info/seizures/absence-seizures
It's very very brave of you to share this with so many people . A lot of people are afraid to even talk about epilepsy let alone record them on video...Bravo , Kudos and big ten thumbs up .
My seizures are really bad. They come as uncontrolable Chills, shakes. I get disoriented and get confused. Im not able to walk or operate in any way when Im in a seizure attack.
Im from the US and had this exact condition. They stopped when I got older but i always have been and will be sympathetic to others who deal with them.
I do this and I tend to stutter a lot. I just suddenly started doing this back in May of 2018. I have other seizures as well of the more convulsing and it’s super scary. Stay strong :)
You're awesome for doing this. Trying to semi-diagnose myself before seeing a doctor. This was really helpful. Wish I could return the favor, hurts to see someone trying to do good in the world going through this,
i remember having a episode like this with my mate at a festival line, my mate thought i was fucking with him giving him the 1000yard stare and wasnt replying to him for the next 2 minutes then i finally gained back conciseness and just called him a fuckwit even though i just woke up and remembered where i was. good times
Thank you for mentioning your triggers. I am dealing with my son who is seven and having these types of seizures. They seem to last quite a long time compared to yours but the other symptoms are the same. Thank you for this demonstration ❤
I was diagnosed with this at the age of 6 when school teachers were noticing I "wasn't paying attention" in class. After an EEG, I was finally diagnosed with epilepsy. Mine is so mild, I've never needed medication for it, although I do space out sometimes and just stare for about 30 seconds. Bright lights (especially flashing lights) trigger it for me and I kind of go into a meditative state, if that makes sense? xD It's kind of relaxing. However, after watching this video, I'm a bit concerned because it's made me aware of how much I blank out during conversations. Never really picked up on it until watching this. :S I forget things a lot and word just fly out of my head. Maybe I should keep any eye on it. xD
Meditative state sounds right. The way i see it is we have delta and theta brain waves (the slow ones) too and when we are saturated with desperate and stupid people's alpha/beta/gamma brainwave crap (coffee induced chatter, gossip, advertisements, junky cluttered settings, etc) we just snap and say "to hell w this idiotic crap" and revert to more enduring thought processes that are slow and steady ie theta and delta.
I told my mum that I kept having these little “black outs” and she never believed me, I used to be talking to someone and then suddenly I would stop hearing things and just see black it took her 6months of convincing to get her to take me to a doctor has anyone else experienced this?
Hiya thank you for your comment! 🙂 I have seen lots of comments on this video describing the pain they went through to get diagnosed. Especially when Epilepsy was not very understood. There is a link here that is how you can get some support about dealing with Epilepsy and a free helpline: www.epilepsy.org.uk/support-for-you Hope this helps x
Wait what are you sure dude sometimes when I'm sitting doing nothing or just staring or walking I just see black things they dont trigger too much but sometimes they make me go full blind for 2 seconds everytime it happens I have a panic attack and I dont know if I have this what should I do??
I have absense seizures, they are exactly like this! When I try to explain to people what they are they don’t understand. But this is exactly what I experience. Thank you for making this video, I feel less alone :)
So your seizures are super short but many one after another. My absence seizures usually just a one, lasting between 30 seconds to a few minutes of blankness (and sometimes weird things with my face like chewing), followed by being really confused afterwards.
I appreciate this a lot. I’ve been having very strange symptoms all throughout the day more often when I’m stressed. One day I specifically remembered that scared me, was I was in math class trying to write notes. I felt myself sort of blacking out. I felt different limbs tingle or feel numb, my brain went numb, and I remember not being able to make sense of anything. I lost control of my motor skills and no matter how hard I tried I could not write the number 6. I started having tremors and asked to leave class because I was worried. This is so reassuring because my doctor told me it doesn’t sound like a seizure but sent a referral to a neurologist anyways. I hope you’re doing well 💗
top brony Awh im sorry to here that hun. Yes they are more frustrating that anything! My medication doesnt fully control them either,as you can see lol! Thanks for watching 💕
Thank you for this. I have had absence and petit mal seizures since I was about 10, only yesterday I had my first grand mal. I also suffer from fainting spells. I know I am not the only one who has problems like this, but it sure feels like it. This video makes me feel better actually knowing what it looks like to experience one.
I used to get absence seizures where it would look like I was spacing out and sometimes I’d come out of it to people clapping their hands right it my face, saying my name over and over, and people thinking I was daydreaming. I was always so embarrassed until I found out they were seizures when I got a grand mal seizure and found out I had a brain tumor. What helped me the most when I had seizures and headaches was marijuana, it saved me from so much pain. You are so strong girl and thanks for spreading awareness❤️
I was diagnosed after having my daughter, I had a lot of issues during labor and I hemorrhaged. My doctor doesn't know exactly how it happened to me specifically, but a few women develop epilepsy after labor and I was one of them. (If you don't believe this is a thing, look it up. its very rare, but very real) Over the last 6 months I have tried two different medications to try and stop my atypical seizures and it made them much worse. I looked up your video today, because someone told me about it. Not a lot of people know about my seizures aside from family, and it feels really nice to know I'm not alone. People will try and tell me I'm faking it and its all in my head, and now I have a reference (your video) to prove to them that its real. Please ,never delete this. You're helping people like me.
I have what i call "stuck on stupid" i get them all the time, but ive beem told tbeu are from my PTSD.. My 2 1/2 yr old has had 2 EEG a 45 min and 6 hr one and of course came out fine, but as soon as we were done and walking out...he had one! Still working with his neurologist to see if in fact hes experiencing Absent Seizures...i was glad to see that your eyes move during your episode cuz other videos i see ppl just have the gaze, but my sons eyes will move...
0131blues My mum had absence seizures (so I am very informed about them), and I though I'm not going into detail, I am 21 and have mental health issues, some of which you mentioned. So I can confirm that whoever told you they are probably PTSD related are probably right. Haven't you not heard the term "dissociation"? I'm surprised whoever you see for your PTSD has not told you about it. It's a common reaction to trauma and mirrors an absence seizure. But they aren't seizures at all. It's psychological and you have to learn to ground yourself.
My body is a jerk an NEVER behaves when monitored! All EEGs normal (TERRIBLY allergic to the glue as well) of course. And with my heart, I have a pacemaker I had like 17 EKGs that were normal. Took me coding on a table for anyone to think something was wrong. 🙄🙄🙄 My body is a massive JERK!!!
@MyEpilepsyStory Brogan, I had petit mal seizures for 17 years. I have been seizure free for 32 years on Depakote. I hope you find a treatment that works for you.
hazelwood55 Depakote gave me sisters nightmares like she’d take it and then dream of being covered in blood so the doctors said she was allergic to it😂 i’m glad all is good for you i’m on Keppra
MyEpilepsyStory Brogan Hello 😊 Not sure if marijuana is legal in your state, but CBD oil is magic! It is so much better for you than any pharmaceutical drugs. It will help you so much.
MyEpilepsyStory Brogan Hi my name is Nick I'm from the US. I had surgery the 9th for my seizures. I'm like you.. but I'm 33 and they have advanced. It gets harder as you age... I've lost months.. January through April of this year. I still have my job, so ya know... auto pilot is pretty good. I'm what they call "Status" so I just stay seized... it's sad. I wish you the best. You have my best wishes from one who deals with it to another. God bless
Hi, There have been some questions about it already, but i want to ask it again, with a bit more specifics. When you are having a seizure, are you like "away" for 2-3 seconds and basically you loose 2-3 seconds from your life? Or is it just a quick moment, where like short term memory is erased and during those 2-3 seconds you are totally present, but just catching up? I wish you the best!
I hope you grow out of the Epilepsy as some people do. I can see it in your eyes when they happen, they kind of look droopy. It’s cool and very informational! Thanks for sharing this!
I've had complex- partial and absence seizure for 13 years now. They started when I was 18 and i'm now 31. I take Keppra for the and it has worked very well. I recently decided to go back to school and the stress has caused me to have breakthrough seizures and auras. I don't know how you found out you had seizures but I was living in Atlanta, Ga and every weekend I would drive home to see my family. I started having seizures but they were so small and short I didn't even know i was having them. I was doing stuff like.. forgetting that i was talking and just pause, or i would continue what i was doing when one hit and if happened to be walking.. i would continue walking during my seizure and run into stuff! lol! Mine don't hit me at a certain time they just come when they want! I didn't drive for 3 years which was horrible. And one medicine they put me on made me hallucinate. I love hearing other peoples stories about epilepsy. I hope you are doing better!
Samantha James Hi! Thanks for sharing your story! I have mostly the absence seizures and i have also had 3 Grand mal seizures 🙂 i found out because i wasnt answering questions from my mum properly so my mum thought maybe there was something wrong with my hearing! Went to the doctors and they said pretty much straight away epilepsy! So had to have scans ect. Im 20 now and i got it when i was 11, not fully controlled (as you can see lol) but im considered sort of stable with it so im happy at the mo ☺ thank you so much for watching 💕
MyEpilepsyStory Brogan : i had sleep one and one where i was seen the tv and then i remember i could still see but response to to people or it 2as slow to respond. i was probably 9 or some. i been free of them for omust 10/5 years
Hey, Brogan!! How are you doing these days?? (Today is Valentines Day in the States. Feb. 14 ) Hope you’re doing well! You’re on my Prayer List ‘! Keep me on yours!!🙏😊
Does an absence seizure feel like a complete void? Like you know you had the word or phrase, you can feel it, but for the life of you can't find it? I've had this problem for years and just thought it was a memory issue. Never thought it could be seizures. But what your video looks like is almost exactly what happens to me. I just get lost.
I get this too, and have been diagnosed with generalised epilepsy with absences. It feels exactly like this and is apparently very common - but this video is the first time I've seen it happen or discussed in the same way I experience it. Hope you worked it out!
Not really, it feels like you missed something like for me i can hear people when i’m having my seizure but i can’t comprehend what they’re saying and i can’t talk back i just have to let it pass then chug a bottle of water(we love dehydration as a trigger✌🏻) but you should get an EEG just to be safe
Yes! I have frontal lobe epilepsy and suffer from absence seizures. No one seems to understand because you can really notice them in person. My epilepsy also makes me forget how to do certain tasks if I’ve had a really bad seizure. Thank you for sharing and showing people out there what they look like!
It is an absolute nightmare to have this condition. I'd accept horrible things to get rid of my grand mals. I'd accept dying at like 55 for or maybe cutting of my left arm.
Hi everyone!😀 Thank you so much for all your questions, they mean the world to me! Please find the Q&A video here! ruclips.net/video/hqAfty0d554/видео.html
Does anyone know if it’s possible to get tested to see if you get absences? Cuz I find myself spacing out a lot for the reasons she stated but I also have severe ADHD and a few other things and I don’t know if that’ll interfere with it at all. If anyone has any help please let me knoowww
so *that's* what it looks like, never seen it from the outside before (as an observer) was always kind of curios what others see when it happened, luckily mine went away
I am sooooooo with you and completely understand what it's like to experience absences. Being 16 and having seizures since I was 7, I understand the struggles and stress that it can cause, especially on a young person. You're doing great! Lots of love, God bless xx
Emily Hope Aw thank you so mucj Emily, it means the world to me! Thanks so much for watching ☺ please give a thumbs up 👍and a subscribe! Check out my new Q&A video on my channel too!😀
I don't mean to sound rude just genuinely curious but how come when you are having a seizure you stop talking? What does it feel like? Is it intense enough to make you stop talking?
I have epilepsy as well & have absent seizures everyday , grand mals as well. I am from the U.S. my epilepsy was diagnosed late in life & also there is no known reason I have it. It's really hard to find anyone to talk to that understands what it's like it's so nice to find your videos ❤️
Thank you so much for this, I haven't ever seen anyone else with absence siezures and am thankful that I know of someone else. It is so hard to explain to others because you look "normal", I just got diagnosed recently. I usually throw up after just one and lose memory, have extreme fatigue, fogginess, loss of thought, lack of concentration, and migraines. Although I'm sure you're not glad to have it, I am glad that I can no longer feel like the only one.
So I'm going to sound co.pletely and utterly stupid but if you don't ask you don't know right. What's actually happening? I always thought a seizure is pretty visable physically, I've never seen anyone have one apart from a maybe one or two videos. All I can see is her pausing for one or two seconds, again I know I sound stupid
Sometimes ill be into a topic and out of nowhere ill feel blanked about the whole subject as if i completely forgot what i was talking about and then remember a few moments later and i studder when that happens
Thank you for posting this, it’s very helpful to see an example! I had a brain injury this past spring, and I think I’ve been having absence seizures since, but just called it “zoning out” or “when my brain gets tired it turns itself off”
I know this was posted 7 yrs ago but I've been watching a few of these types of videos lately. I have been diagnosed with seizures within the last 10 yrs. I've so far had a few different types, including grand mal. But this, this might be my issue as of late. I'm older, so I've always thought it was just that, age. Thank you for posting this.
This is really interesting to see up close because my older sister has epilepsy and she also gets absence seizures. So this video really helped my understanding of them, thank you!!
I use to have these a lot due to my epilepsy. But at 10 they stopped. I haven't had any in 8 years. Thank you for filming this so now I understand what I looked like to other people when I would zone out in the middle of conversation. Mine were longer absences i believe or thats what they felt like, but i couldn't move, talk, see, and hear when I had them. I was gone for the moment basically.
NEW VIDEO! 💜 LOVE U GUYS 💜💜 ruclips.net/video/3XP6Q3KYsSo/видео.html
@@FootballAthlete575 what a kind comment coming from a child... 🙄
IM SORRY THAT I CALLED YOU NOT PREETY
Are you an army 💜💜💜💜💜 BTS
@@FootballAthlete575 shut up and how do you even have a like on your stupid comment?
@@MyEpilepsyStoryBrogan love your kindness and heart.
I had these when I was young but everyone just dismissed me as a absent minded daydreaming fool and so I suffered in silence.
Shane McKenna yes the seizures do appear like daydreaming! It is very frustrating
MyEpilepsyStory Brogan my little brother does this he is 5 I hate seeing it. It seems to happen a lot if he is doing work like writting his name or drawing. What do you think is the cause? I know when he was like 2 he was real sick and had a seizure and went to the hospital. But didn't notice these until about 6 months ago. Tho with children it's hard to tell what they are looking at. Now that I think back could have been happening a long time now.
Shane McKenna Same
Shane McKenna same
Shane McKenna aaah that's really sad..
Something no one would pay attention it's almost like she's spacing out wow you learn something new every day hope the best for you thanks for the video
William Fullman i can tell whats happening because i have them but mine lasts longer almost to where it feels like hours when im just staring off into the distance i hear people calling me but i cant talk back or respond in anyway until it runs the course
Obsecen sezurie usually come in clusters
I was finally diagnosed with this type of epilepsy at 17. I went through school and everyone thought I was just day dreaming. It was good to finally know why I was always so zoned out.
Yea i used to get in trouble A LOT in the 3rd grade because that’s when my Epilepsy started showing up. Since i’m not visibly shaking my teacher thought i was just not paying attention when in reality i was having seizure after seizure
@@NSWSPIRITWOLF exactly! That's how I feel!
The first time I had one... It was weird.. Because it was almost like being asleep while being wide awake.. I don't know how long it lasted.. But I didn't move.. Didn't blink.. Didn't breath.. My teacher was calling on me and I was unresponsive.. It was only when the whole class was screaming my name that I snapped out of it. It made me so confused..
Bailey Archer qhat did they think happened to you?
How do u kniw u didnt breath? Did it last longer then few sec?
inge smit I know I didn't breathe because, when I finally came out of it, i was gasping for air and my heart was beating fast
inge smit they thought I was deliberately trying not to pay attention. So they were mad.. and I was just so confused. I felt like I hadn't even been "there" ya know? I have no idea how long it lasted.
Bailey Archer oh
inge smit you can feel yourself not breath/blinking
A few years ago, I would walk my youngest child to her school bus stop (it was a rough neighborhood, so I provided a little stability to the bus stop). One day, this girl - probably about 14 years old - started coming up to me and talking to me. This made me kind of uncomfortable, as I had no idea who she was. So, one day, I asked her to please refrain from contacting me, as she started standing closer and closer, to me. Uncomfortably close. After several requests for her to stand elsewhere, I decided to record our interactions and send them to her school. I wanted to remove any doubt that I was trying to get too friendly with a minor. During the video I made, I would walk away from this girl and she would follow me, like a lost puppy. I forwarded the video to her school and the school, in turn, shared the video with the girl's parents. The parents contacted me... to thank me. My video showed that she was experiencing SEVERAL "absence seizures", allowing her parents to realize that they did not have their daughter's seizure issue as under control as they thought they had it. So, inadvertently, I helped this girl and her family seek further care for her seizures. An annoying situation turned into one that improved the health of a kid at a bus stop. Who would have ever guessed...
ruclips.net/video/ZOX2eg1nfAs/видео.html
Next time a 14yr old child approaches you for help… help.
This comment was the most twisted, “I did right” post I’ve ever read
@@twayne4608 You May want to learn how to read. If a 14-year-old girl starts following an adult male around, not leaving him alone, you document so your ass isn’t accused of anything inappropriate. In this case, I happened to catch the girl having a seizure.
It is very odd that a 14 y/o girl would follow an adult male around. I can say as a woman, we're taught to do the opposite, not be alone with adult men when we're kids. But for ur situation, it obviously was very helpful as the girl had needed help. She probably had more not right with her.
But also, I would point out, that if a girl that young is going up to you like that, I'd be concerned of trafficking. And record the situation to protect yourself as you did.
God bless you for making the effort. She may have been hurt badly, many dangers out there.
❤
It really mimics losing train of thought... I know nothing about this but i like learning about interesting things like this
sileNt solEmNitY -Dove Maci- I'm so glad you learnt something from my video, thank you for watching❤
MyEpilepsyStory Brogan is that what they are? Lost of train of thought? How did you get dishonor diagnosed? I'm going to look into it further.
Hey Trey thanks for doing research and then making a revision to your previous statement. I hope that in the future you do the research first before commenting but coming back and taking accountability for your mistake is really honorable. Many grown men will not do this so you already have a head up on them. Keeping growing and learning! :)
Thank you, I’ve been trying to make sure I know what I’m talking about.
sileNt solEmNitY -Dove Maci- no u don’t lose train of thought you go blank and don’t remember it so it’s like a point when time passes but it feels like you’ve been doing what you have without stopping
You look young enough that they may stop. I had them my entire life until my early 20s. They suddenly stopped. Unfortunately, I started having grand mal seizures at age 30. It's been 3 years now and they're pretty rare at this point. I hope yours go away.
MyEpilepsyStory Brogan I thought you were being rude until I looked at her RUclips name. lol
MyEpilepsyStory Brogan thanks, love.
Mia Smith lol that's happened a few times since I changed it to this. It apparently is also a reason for some people not to take me seriously.
Mia Smith it sounds like perhaps you should try it some other medications. These are possible side effects with many drugs, but you can probably find a different drug or a lower dose of your current drug that is still effective but doesn't make you feel as badly. Med school dropout here. A Bachelor's in psych was a good foundation for my planned career path before I became to ill to finish.
Mia Smith this could definitely be the reason. You should be running more like 70 while resting.
Wow. People could so easily think you were dumb or “slow”. I wonder how many people actually suffer from this without knowing it.
I think I did as a child but no one knew what was going on. I now have Tonic/Chronic seizures.
I never even considered it as a possibility until I went to a physiologist for my anxiety. She was like, "Yeah, you need to go get tested asap because you're textbook for absence seizures." I did get tested, but we pushed so hard to get an appointment because I was about to lose my insurance that the doctor just wanted me out of his office as quickly as possible. They did a 20 minute sleep study with me right beside the hub where all the nurses meet to gossip and there was construction or something going on so it was impossible to to sleep. The technician guy was like, "yeah you slept for maybe two minutes, I didn't see anything too abnormal. Bye." I still get accused of just spacing out and not paying attention
Oh wow....this is scary.
@@goprocowgirl6446 hmm this comment section is really reminding me how messed up our healthcare system is.
@@astrofrk I'm the exact same! Nobody knew I had these as a child so as I grew up the seizures became more aggressive
I had a friend in high school who would zone out and mumble or make noises. When I told her about it, she didn't believe me. Then she had a full-on seizure one day and was diagnosed with epilepsy. Looking back, this is probably what she had.
@Naresh Achary hi
hold up, you can get absence seizures without knowing?
@@rayvega3163it’s actually common for people with absence seizures to not know it even occurred! I have Juvenile myoclonic epilepsy and can have both grand and petit mal seizures as well as myoclonic ones, when I was diagnosed the neurologist that I spoke with asked if I could recall “missing time.” In classes for example, he asked if I could recall watching the teacher during the lesson and it seemed like they’ve suddenly jumped from one part to the next with nothing in between, I thought I was just zoning out hard or maybe even dozing off in class but even my family has vouched for my “zoning out” every so often, they thought it was just a zone out too but I don’t think it’s often (if at all) one can zone out so completely they become totally unresponsive. Epilepsy is a fascinating existence lol
Thank you for this video. I knew a woman years ago who had "seizures" and I never understood properly because she didn't have the trembling kind, she just went like you did - just sort of blank and motionless. Now I understand better.
Daria Wells I have absence seizures but with pills they are controlled. As someone who has epilepsy, it’s frustrating because people think we fall on the ground.
I am learning Japanese Omggg i felt this on a spiritual level!!! There are soooo many types of seizures that when i tell someone i have seizure they’re like “sO yOu FaLl On ThE gRoUnD?!?”
I’ve never met someone else who’s went through petit mal seizures!!! I had them when I was a child, but grew out of them. You go girl! ❤️
Hey,how did you get rid of them?
@@nehla_noor Personally I started going to a professional about them almost as soon as my parents began noticing the seizures. I was on ethosuximide for a few years and eventually the seizures went away around 11 or 12 :)
@@Elkat196 thanks for sharing:)
Btw do you still use medication?
@@nehla_noor Nope! They took me off of it once the seizures were gone
@@Elkat196 I'm not diagnosed with it yet,but I'm feeling like I've experienced this quite a few times
So,Idk if I should consult a professional or something...
Tysm for sharing anyway:) Have a good day!
I know exactly how you feel it's horrible kind of nice to know I'm not the only one.. because up until now I never met anyone with these seizures..
Sabah Rahil yes it is common but people just dont discuss it! Its frustrating but we need to spead awareness 😀
MyEpilepsyStory Brogan I suscribed to you 😌
MyEpilepsyStory Brogan you are absolutely right, awareness needs to be spread about Absence seizures. More than once people have told me they thought I had either just spaced out or was ignoring them
LePoodle With LeNoodle no 🙄🙄
Sabah Rahil god bless you both I'll pray 🙏🙏🙏
Thank you so much. I know you filmed this a while ago but this is exactly what happens for my daughter. I really appreciate you sharing this.
I hate the feeling of having these. Worst part for me was I started having them just a couple years ago and my boss at the time thought I was just slacking off and daydreaming
DoomstaKurLz187 yes it is very frustrating! It is such a strange feeling, it does appear like daydreaming! Thank you for watching 🙂❤
MyEpilepsyStory Brogan you are very welcome, thank you for sharing your story, nice to know I'm not the only one
DoomstaKurLz187 I know the feeling! Its actually very common but people just dont speak out about it! And its amazing what social media can do for the world 💕
What does it feel like?
OP; I dont know how to get out of them w out breaking something. Usually i break the silence but that doesnt always work ever since i met people who were insistently silent and i tried to be like them too. Well i dont blast thug rap so i'm not spreading that disease but something serious needs done to eradicate such major trauma sources. Then people can relax instead of being so uptight after the acoustical assaults ruined their last bit of patience.
Lately i just build up tension and snap w a sudden movement intending to ditch all the psychological burdens from people my disposition inclines me to otherwise care about but who do not reciprocate in kind. even that is becoming less effective as i age and friends become more needy than they seem worth the plague of so much crap to be held down by while they keep incurring more crap w the irresponsible freedom of the dgaf mentality. I might be exaggerating just to illustrate whats going on.
It's so subtle that I often have to tell people that I'm having issues. I've just called them "glitches" for years...it certainly fits.
Has there been any update with you?
Wow i had these when i was kid during sleep and at night. Now 16 yrs later and i have done exactly what you have done just last week. But i had double vision before. Scary i wanted to keep my license.
Kaila Rabbitt i usually have them in the mornings rather than at night! strange how the brain works, thank you for watching ☺
MyEpilepsyStory Brogan I've had 2 friends die from epilepsy. Its very sad. One friend died when I was in high school. His parents came home from shopping and found him. Before that he hadn't had a seizure for over a year. My other friend died last year because his seizure induced a fatal heart attack. I'm 40 now and he was only 53 when he died.
I hope you went to a GP because double vision is also a symptom of a brain tumour
Kaila Rabbi
Kaila Rabbitt my vision would get blurry too
Thank you for your channel, I love that you are spreading awareness about epilepsy because so many people dont understand what it’s really like to have a seizure. Having epilepsy can be such an isolating experience and it’s nice to see others speaking about it
im assuming public speaking must be god awful
Nick Zona yep!🙈
especially when you’re participating in an activity. People might just guess that you’re daydreaming , but having seizures & daydreaming are totally different once you actually observe the two. It’s the worst.
Nick Zona One time I was doing a speech during class and I had a absence seizure and then when it stopped everyone was staring at me really weird (because no one knew I had them). It was the worst I hate seizures
Thank You for taking the time to make this video and educate people. 👍
One of my best friends has Absence seizures all the time. She ends up staring into space, blanking out, fidgeting, and repeating the same word over and over again. She has gained over 80 lbs. due to all the medication she has had to take. We are both are 13 years old. When she was 11 years old she weighed 94 lbs. When she was 12 she weighed 120 lbs. Now, she weighs 184 lbs. And it has impacted her life A LOT. Now, as I listed before, the symptoms or signs of a seizure is what i have to look out for. She sometimes hates herself for her weight but we all remind her it is not her fault. I am not quite sure how many medications she has to take but its over 4 medications. And I love her to pieces and this doesn't change a thing. Although, one time in 6th grade we had P.E. class and in the middle of handball, she stood still, fidgeting and mumbling random words. This continued for about 3 minutes. She had 24 seizures in a row, and it was extremely scary. After resting in the nurse's office, she didn't remember anything that happened that day at all, for about 20 minutes she forgot who I was! Seizures are not a laughing matter. You can gain over 90 lbs. from all the medications you have to take and it sucks. But I love her so much i don't know what I would do without her.
What is all the medication supposed to accomplish?
I am not sure. I think it helps reduce the amounts of seizures..?
Clearly it's not working if, like you said, she has Absence seizures all the time. I always wonder why people jam all this medication down their throat if it's not really doing anything to combat the problem, and instead is creating another.
Yeah I know. Doctor's can be idiots nowadays
Next time she goes to the doctor tell her to bring up Keppra(that’s the generic name for it) i take Keppra and it’s pretty much stopped my seizures
I've been having these for about 15 years after I was hit in the head in a car accident. I could never explain why all of a sudden I can't remember what I just said, was going to say, or was even thinking about. Now I know. Thank you for showing us what you go through so that we can better understand ourselves and those whom we love.
My best friend from high school has petit mal seizures
Charity Miles you mean absence seizures
Charity Miles it is also known as Petit mal ☺
I was just going to say the same thing! Having lived half of my life in the U.K & half in the U.S.A., I know they are called "Absence Seizures" in the UK & "Petit Mal |Seizures" in the USA. Seizures of any kind are no fun, if it's any comfort my best friend had Petit Mals & eventually outgrew them. You'll be in my thoughts & prayers :)
Charity Miles I thought Roy were talking French??
How do it feel
Your video helped me realize that I have absence seizures. It randomly popped up in my feed one day and I'm so glad it did. My seizures look EXACTLY like yours. After 20 years, I finally went to the doctor and got diagnosed. Now it very rarely happens or when I don't take my medicine.
Wow all my life I thought I was just “zoning out” as people would say but I didn’t know this is what I was experiencing. I have had a total of 3 grand mal seizures and there’s nothing more worse than that
Sorry about your condition but there's many things worse than 3 Grand Mal seizures, especially if you're talking about "in your life" opposed to "in a row" but even still, there's worse things than that. Maybe you should count your blessings 🙏🏻
@@mandielou maybe you shouldn’t downplay someone’s feelings about their own illness :)
@@Dasqal ok disease
@@graciefrancoeur9573 not to be ~ms correction~ over here but it would be classified as a disorder. honestly thank you for your other comment because although I've been through plenty of traumatic life events, I would rather go through them again than have another seizure. I had grand mal seizures nearly my entire childhood (6-12), and they only stopped when I became a teenager. I grew out of them with the help of daily medication. I'm 20 now.
@@rosie99991 also im so glad you found the right medication path to help, and that you're better now!
I know It's been 5 years but thank you for your video. It meant the world to me, and I hope you're doing really well. 😍
You're beautiful and awesome. I feel what you've been through. Stay strong. God bless!
Jeff Caceres aw thank you so much, its people like you who make the difference in my life!💕
@@MyEpilepsyStoryBrogan I hope I can too. Just pray to god ur so beautiful
Thank you Brogan!! I was just diagnosed epileptic as a result of serious brain injuries last Spring. I have 4 different types of seizures, and Absence is one of them. It was educational for me to watch yours so I know what other people see when I m having one. God bless you. You are on my prayer list!!
Thank you so much for your comment and sharing your story! It means alot to me for people to speak out about there stories and also those in the comment section. I also have grand mals, very hard to deal with Epilepsy. I hope you feel better soon and stay safe 💜
@@MyEpilepsyStoryBrogan Thank you, Dear Brogan for your reply! Didn’t know you have Grand Mals also! I have those too.! Hurt my head badly when I hit hard pavement. We must keep one another encouraged! Thank you for doing that for me!!
I admire you for being staying happy and positive as it looks like not a big deal but I was glad to see this as I have this type of epilepsy with alot of other symptoms, I'm in my fifty's but I had problems as a child that went unnoticed and as a result my whole time at school was a waste of time not to mention damaging, good luck and stay positive x
I have epilepsy too and I'm so sorry you have to go through this. You're lovely, don't ever give up hope for a cure!!! Love and prayers from across the pond
Thank you for posting this, and sharing your story. If no one tells you enough, it is brave to show vulnerability, and by sharing you are helping others. My son is 9 and autistic/ADHD/Slow processing speed and has these moments where he is just blank for a few seconds to almost a minute. Just staring. We call him but he doesn’t respond. Then he comes right back and is like, “what?” He struggles getting stories and sentences out, often avoiding speaking if he can, or dumbing down sentences so they won’t be as long. He is incredibly bright and can speak eloquently with a broad, complex vocabulary for his age, but he stops himself from expressing himself that way. He has had these staring spells since he was a baby, especially as a toddler. I thought they could be seizures but was told no by some doctors. Then teachers started bringing it up as a concern for seizures. I’m still told it’s just his slow processing, or lack of attention/focus from ADHD. I’m curious how you feel the difference, and how you were diagnosed. I think my son would feel so comforted to know there are more young people out there like him. He won’t feel so alone. Thank you again, I am so glad I found your video so I could compare what happens for you with what I see happening with my son. He is very similar. Wishing you health and happiness!
I hope you got some answers! I do know that it’s not ADHD: I have 3 immediate 2:11 family members with it of varying ages and it’s not something that any of them do.
Confusion in her eyes it says it all,
She's lost controll.
My mother was an epileptic and I never thought i would experience any seizures until I experienced an absence seizure a few years back, worst feeling ever. Almost feels like sleep paralysis if you understand.
I was diagnosed with epilepsy about one year ago and I only ever have absence seizures. I don’t really know what I expected when I clicked this video but I most certainly did not expect to start tearing up. I couldn’t tell you why I got emotional; I wish I knew. Maybe it’s just the video confirmation that I’m not alone idk. Beautifully educational video 😊 good on you for putting yourself out there for educational purposes. Never lose hope 💜💜
Can you explain what it feels like when you’re having one?
@@Arlene_witha_y It’s difficult to explain but I’ll try. They are very short so I don’t really feel anything while they’re happening, it’s kinda just like my off switch got flipped on accident haha. Kind of like when you’re flickering a light switch. Once I come to, i’m usually incredibly disoriented and I have to take a moment to reassess what i was doing. Once in a while, I’ll catch myself twitching pretty hard while coming out of a seizure. I also tend to have multiple seizures when i’m trying really hard to focus on multiple tasks at once. I think seizures are a little different for everyone but this is just my experience. I hope this can be helpful/education to some.
I know exactly how this feels I have tonic and absence seizures and I hate when I'm in the middle of a conversation and people think I'm rude or something because I lose track of time for up to give minutes and can come to consciousness completely confused about what I was saying it not even aware that someone had spoken to me at all
Does everyone who has legit seizures like these leave consciousness?
@@EndeavorsDnB it depends on the individual, type of seizure, and severity of the seizure. I have some where I stay conscious and others where I collapse and don't remember anything
@@EndeavorsDnB when I have absence seizures, I’m fully conscious or sometimes half asleep but when I have my tonic-clonic seizures I’m fully unconscious. It’s different for everyone though. I highly recommend the epilepsy action website if you’d like more information about seizures or epilepsy. Feel free to ask questions too💜💜💜
This must explain what happens to women when I approach them and try to engage them in conversation and they blank me.
I am 40 years old and have been having these type of episodes since I was 12. The ones I knew of were about 10 a day but, lasted a lot longer than what you had in this video. I was actually diagnosed at I believe 25. I was at a normal annual with my primary and I "stared" and my jaw was doing a chewing motion. I heard him say "I need to talk to you when you come back"...I can see and hear everything during these. He told me what he thought it was and I had an MRI that showed nothing. I still have about 20 or so a day that I know of and get migraines if they last very long. My longest one lasted over a minute. Epilepsy meds did not help, so i just have to deal with them. I am glad that you made this video. My triggers are patterns...especially really tight patterns, like on a tie (that is how mine happened with the doctor), or even floor tiles.
I'm 26 and have the same thing. Never had normal seizures, just absent ones. Have actually been having them my whole life but since I was really shy and nervous at school and it gave me a bit of a stutter when I spoke all the teachers and pupils just thought it was my stutter that was stopping me from speaking mid-way. Same at home, during a conversation or doing some work I would suddenly freeze and go still and my family thought I was just daydreaming. It was only recently when I went to see a psychiatrist to help me with my anxiety that they noticed what I was doing and told my parents that I was not actually a daydreamer but having seizures 😟 it was so weird to find out such a thing
I was the exact same way.
ruclips.net/video/ZOX2eg1nfAs/видео.html
@@goprocowgirl6446 ruclips.net/video/ZOX2eg1nfAs/видео.html
I didn't know there was such a thing. This shows how important your video is. You're informing thousands and knowledge is power
I was diagnosed with absent seizures when I was about 8. I'd have these exact episodes but I also had episodes where I'd make an odd face and my hands would tense. Those were usually when I was excited. I had an EEG done and I had 22 seizures in 20 minutes. My mom felt so bad because I struggled in school and teachers always said I just day dreamed and wouldn't pay attention. I'm 24 and I haven't had a seizure in 3 years. That I've been able to tell. Dr thinks I grew out of them. Hope you do too.
Thank you so much for making this video and actually being able to capture your absence seizures on camera. These are exactly like the ones I have, and I have been needing a video to show friends and family what to look for. Again thank you so much.
have you consider having a service dog?
Nicole Rupert Hi! Urm im not sure if dogs detect absence seizures maybe just grand mals? I will look that up😁 thanks for watching 💕
they can either naturally or it was trained :D
MyEpilepsyStory Brogan they are only needed if their type of seizures can be deadly
I have a cat that'll stick with me when I have the longer ones. Some cats can sense them too.
They can help relieve stress also! So by helping for you to have stress relief may in turn reduce seizures? hope you are doing well x
I have mitochondrial disease and I get the same type of seizures. We call them resetting seizures because that what it feels like. When they were at the worst when I still was working I could have 50 in a minute. I'm glad I stumbled across your video I can now show my Neurologist.
I currently have absence seizures and I relate so hard they’re really frustrating to have that’s for sure!
This is super helpful! Thank you so much for posting this. This type of seizure is often so subtle that it's often missed or misinterpreted by people. Thanks again for capturing these moments and sharing your experience
You are so pretty!
makaila mcdaniel thank you Makaila ☺
Thx
siMP1111!!1!1!!1!1!11!1
@@MakailaMcDaniel Chill. This is the internet. People troll.
Jaden Jones I’m sorry I normally don’t care, I’ve just been having problems as of late and catch myself attacking before I think. Which isn’t an excuse. You’re okay to post whatever you want if it’s not being malicious. Honestly it doesn’t matter how old you are, even if I find it annoying, I can’t stop you from continuing to post stuff you think is funny.
Thank you for posting this, I'm a nursing student and this really helped me to understand it better and to appreciate what you're going through.
Just imagine this happening during a job interview.
Right in the feels! Luckily I have had a successful career so far despite my Epilepsy. You need to take care of yourself and take some deep breaths. If you would like to know more about absence seizures here is a link 😊 thank you for watching!
www.epilepsy.org.uk/info/seizures/absence-seizures
@@MyEpilepsyStoryBrogan Good for you. I'm glad it hasn't impacted your career.
It's very very brave of you to share this with so many people . A lot of people are afraid to even talk about epilepsy let alone record them on video...Bravo , Kudos and big ten thumbs up .
My seizures are really bad. They come as uncontrolable Chills, shakes. I get disoriented and get confused. Im not able to walk or operate in any way when Im in a seizure attack.
Im from the US and had this exact condition. They stopped when I got older but i always have been and will be sympathetic to others who deal with them.
I do this and I tend to stutter a lot. I just suddenly started doing this back in May of 2018. I have other seizures as well of the more convulsing and it’s super scary. Stay strong :)
Poor you! I wish you just the best!!
You're awesome for doing this. Trying to semi-diagnose myself before seeing a doctor. This was really helpful. Wish I could return the favor, hurts to see someone trying to do good in the world going through this,
i remember having a episode like this with my mate at a festival line, my mate thought i was fucking with him giving him the 1000yard stare and wasnt replying to him for the next 2 minutes then i finally gained back conciseness and just called him a fuckwit even though i just woke up and remembered where i was. good times
Thank you for mentioning your triggers. I am dealing with my son who is seven and having these types of seizures. They seem to last quite a long time compared to yours but the other symptoms are the same. Thank you for this demonstration ❤
I was diagnosed with this at the age of 6 when school teachers were noticing I "wasn't paying attention" in class. After an EEG, I was finally diagnosed with epilepsy. Mine is so mild, I've never needed medication for it, although I do space out sometimes and just stare for about 30 seconds. Bright lights (especially flashing lights) trigger it for me and I kind of go into a meditative state, if that makes sense? xD It's kind of relaxing.
However, after watching this video, I'm a bit concerned because it's made me aware of how much I blank out during conversations. Never really picked up on it until watching this. :S I forget things a lot and word just fly out of my head. Maybe I should keep any eye on it. xD
Meditative state sounds right. The way i see it is we have delta and theta brain waves (the slow ones) too and when we are saturated with desperate and stupid people's alpha/beta/gamma brainwave crap (coffee induced chatter, gossip, advertisements, junky cluttered settings, etc) we just snap and say "to hell w this idiotic crap" and revert to more enduring thought processes that are slow and steady ie theta and delta.
Don't ever drive then.
Thank you for sharing. I'm an emergency medical technician. This helps me understand things I need to know.
Thanks for watching 😁
I told my mum that I kept having these little “black outs” and she never believed me, I used to be talking to someone and then suddenly I would stop hearing things and just see black it took her 6months of convincing to get her to take me to a doctor has anyone else experienced this?
Hiya thank you for your comment! 🙂 I have seen lots of comments on this video describing the pain they went through to get diagnosed. Especially when Epilepsy was not very understood.
There is a link here that is how you can get some support about dealing with Epilepsy and a free helpline: www.epilepsy.org.uk/support-for-you
Hope this helps x
I have somes seizures but i dont know if my mom will belive me
Wait what are you sure dude sometimes when I'm sitting doing nothing or just staring or walking I just see black things they dont trigger too much but sometimes they make me go full blind for 2 seconds everytime it happens I have a panic attack and I dont know if I have this what should I do??
I have absense seizures, they are exactly like this! When I try to explain to people what they are they don’t understand. But this is exactly what I experience. Thank you for making this video, I feel less alone :)
So your seizures are super short but many one after another.
My absence seizures usually just a one, lasting between 30 seconds to a few minutes of blankness (and sometimes weird things with my face like chewing), followed by being really confused afterwards.
I appreciate this a lot. I’ve been having very strange symptoms all throughout the day more often when I’m stressed. One day I specifically remembered that scared me, was I was in math class trying to write notes. I felt myself sort of blacking out. I felt different limbs tingle or feel numb, my brain went numb, and I remember not being able to make sense of anything. I lost control of my motor skills and no matter how hard I tried I could not write the number 6. I started having tremors and asked to leave class because I was worried. This is so reassuring because my doctor told me it doesn’t sound like a seizure but sent a referral to a neurologist anyways. I hope you’re doing well 💗
I have them too. I'm so sorry. I know how you feel. My doctor says I had over 300 a day. Even my medication wont help me.
top brony Awh im sorry to here that hun. Yes they are more frustrating that anything! My medication doesnt fully control them either,as you can see lol! Thanks for watching 💕
Indica Blue I'm actually allergic to marijuana, everytime I smell it I have a sneeze-fit
Thank you for this. I have had absence and petit mal seizures since I was about 10, only yesterday I had my first grand mal. I also suffer from fainting spells. I know I am not the only one who has problems like this, but it sure feels like it. This video makes me feel better actually knowing what it looks like to experience one.
I used to get absence seizures where it would look like I was spacing out and sometimes I’d come out of it to people clapping their hands right it my face, saying my name over and over, and people thinking I was daydreaming. I was always so embarrassed until I found out they were seizures when I got a grand mal seizure and found out I had a brain tumor. What helped me the most when I had seizures and headaches was marijuana, it saved me from so much pain. You are so strong girl and thanks for spreading awareness❤️
.../КАКюЮч👨🏻ю😎🤗👙🔥👊🏻🍑🤤🤗👙😂💝ЮДфб😱😍👧🏻
I was diagnosed after having my daughter, I had a lot of issues during labor and I hemorrhaged. My doctor doesn't know exactly how it happened to me specifically, but a few women develop epilepsy after labor and I was one of them. (If you don't believe this is a thing, look it up. its very rare, but very real) Over the last 6 months I have tried two different medications to try and stop my atypical seizures and it made them much worse. I looked up your video today, because someone told me about it. Not a lot of people know about my seizures aside from family, and it feels really nice to know I'm not alone. People will try and tell me I'm faking it and its all in my head, and now I have a reference (your video) to prove to them that its real. Please ,never delete this. You're helping people like me.
I have what i call "stuck on stupid" i get them all the time, but ive beem told tbeu are from my PTSD.. My 2 1/2 yr old has had 2 EEG a 45 min and 6 hr one and of course came out fine, but as soon as we were done and walking out...he had one! Still working with his neurologist to see if in fact hes experiencing Absent Seizures...i was glad to see that your eyes move during your episode cuz other videos i see ppl just have the gaze, but my sons eyes will move...
0131blues Hi! Yeah my eyes seem to flicker! So strange,thanks for watching 💕
0131blues My mum had absence seizures (so I am very informed about them), and I though I'm not going into detail, I am 21 and have mental health issues, some of which you mentioned.
So I can confirm that whoever told you they are probably PTSD related are probably right. Haven't you not heard the term "dissociation"? I'm surprised whoever you see for your PTSD has not told you about it. It's a common reaction to trauma and mirrors an absence seizure. But they aren't seizures at all. It's psychological and you have to learn to ground yourself.
0131blues I keep having this same problem when I go in for the eeg
My body is a jerk an NEVER behaves when monitored! All EEGs normal (TERRIBLY allergic to the glue as well) of course. And with my heart, I have a pacemaker I had like 17 EKGs that were normal. Took me coding on a table for anyone to think something was wrong. 🙄🙄🙄 My body is a massive JERK!!!
I support you in every way and know it can be scary, but i am here for you
@MyEpilepsyStory Brogan, I had petit mal seizures for 17 years. I have been seizure free for 32 years on Depakote. I hope you find a treatment that works for you.
hazelwood55 Depakote gave me sisters nightmares like she’d take it and then dream of being covered in blood so the doctors said she was allergic to it😂 i’m glad all is good for you i’m on Keppra
Great video! I have the same problem, in those moments i get a tunnel vision and i´m starting to drool, i wish you the best
Hi guys! I'm going to make a Q&A video soon, so please reply to this post with all your questions! Thanks for watching 💕
MyEpilepsyStory Brogan How long has this occurred?
MyEpilepsyStory Brogan Hello 😊 Not sure if marijuana is legal in your state, but CBD oil is magic! It is so much better for you than any pharmaceutical drugs. It will help you so much.
This is not a question but, I hope you are having a wonderful day!
MyEpilepsyStory Brogan
Hi my name is Nick I'm from the US. I had surgery the 9th for my seizures. I'm like you.. but I'm 33 and they have advanced. It gets harder as you age... I've lost months.. January through April of this year. I still have my job, so ya know... auto pilot is pretty good.
I'm what they call "Status" so I just stay seized... it's sad. I wish you the best. You have my best wishes from one who deals with it to another.
God bless
Hi,
There have been some questions about it already, but i want to ask it again, with a bit more specifics.
When you are having a seizure, are you like "away" for 2-3 seconds and basically you loose 2-3 seconds from your life?
Or is it just a quick moment, where like short term memory is erased and during those 2-3 seconds you are totally present, but just catching up?
I wish you the best!
I have absence seizures as well. Got in a head on collision 7 years ago and almost died. Just now am getting my driving privileges back.
I think I have that kind of seizure too. Sometimes when watching a video my eyes just go out of focus and I forget how to brain for a few seconds.
I hope you grow out of the Epilepsy as some people do. I can see it in your eyes when they happen, they kind of look droopy. It’s cool and very informational! Thanks for sharing this!
I've had complex- partial and absence seizure for 13 years now. They started when I was 18 and i'm now 31. I take Keppra for the and it has worked very well. I recently decided to go back to school and the stress has caused me to have breakthrough seizures and auras. I don't know how you found out you had seizures but I was living in Atlanta, Ga and every weekend I would drive home to see my family. I started having seizures but they were so small and short I didn't even know i was having them. I was doing stuff like.. forgetting that i was talking and just pause, or i would continue what i was doing when one hit and if happened to be walking.. i would continue walking during my seizure and run into stuff! lol! Mine don't hit me at a certain time they just come when they want! I didn't drive for 3 years which was horrible. And one medicine they put me on made me hallucinate. I love hearing other peoples stories about epilepsy. I hope you are doing better!
Samantha James Hi! Thanks for sharing your story! I have mostly the absence seizures and i have also had 3 Grand mal seizures 🙂 i found out because i wasnt answering questions from my mum properly so my mum thought maybe there was something wrong with my hearing! Went to the doctors and they said pretty much straight away epilepsy! So had to have scans ect. Im 20 now and i got it when i was 11, not fully controlled (as you can see lol) but im considered sort of stable with it so im happy at the mo ☺ thank you so much for watching 💕
Samantha James wow you look pretty, but i really hope your not still driving.
MyEpilepsyStory Brogan : i had sleep one and one where i was seen the tv and then i remember i could still see but response to to people or it 2as slow to respond. i was probably 9 or some. i been free of them for omust 10/5 years
Hey, Brogan!! How are you doing these days?? (Today is Valentines Day in the States. Feb. 14 ) Hope you’re doing well! You’re on my Prayer List ‘! Keep me on yours!!🙏😊
When I have my absence on seizures I don't remember them at all.
Bless you hun i have absences daily and even go catatonic all seizure related your so brave at such a young age to document them
Does an absence seizure feel like a complete void? Like you know you had the word or phrase, you can feel it, but for the life of you can't find it? I've had this problem for years and just thought it was a memory issue. Never thought it could be seizures. But what your video looks like is almost exactly what happens to me. I just get lost.
mollycule It's like missing a chunk of time. Nothing happens in your perspective mostly, but you do tend to feel a little confused after it's over.
mollycule Hi please find the answer to this question on my new Q&A video here! ruclips.net/video/hqAfty0d554/видео.html 😀
I get this too, and have been diagnosed with generalised epilepsy with absences. It feels exactly like this and is apparently very common - but this video is the first time I've seen it happen or discussed in the same way I experience it. Hope you worked it out!
Not really, it feels like you missed something like for me i can hear people when i’m having my seizure but i can’t comprehend what they’re saying and i can’t talk back i just have to let it pass then chug a bottle of water(we love dehydration as a trigger✌🏻) but you should get an EEG just to be safe
Yes! I have frontal lobe epilepsy and suffer from absence seizures. No one seems to understand because you can really notice them in person. My epilepsy also makes me forget how to do certain tasks if I’ve had a really bad seizure. Thank you for sharing and showing people out there what they look like!
My friends finish sentences for me, so all is cool
😀 😀 😀 Please don't get it wrong, I think IT wasn't meant to be mean or something
It is an absolute nightmare to have this condition. I'd accept horrible things to get rid of my grand mals. I'd accept dying at like 55 for or maybe cutting of my left arm.
I hadn't noticed that you had those seizure before I read the left superior edge of the video. I hope you can overcome that. Greetings from Brazil
Hi everyone!😀 Thank you so much for all your questions, they mean the world to me! Please find the Q&A video here! ruclips.net/video/hqAfty0d554/видео.html
MyEpilepsyStory Brogan you pretty
What do you feel when you have a seizure? And are there different levels of severity?
Does anyone know if it’s possible to get tested to see if you get absences? Cuz I find myself spacing out a lot for the reasons she stated but I also have severe ADHD and a few other things and I don’t know if that’ll interfere with it at all. If anyone has any help please let me knoowww
so *that's* what it looks like, never seen it from the outside before (as an observer) was always kind of curios what others see when it happened, luckily mine went away
MyEpilepsyStory Brogan why are you so cuuuteee
Sorry for your problem. Hugs from northern Italy
I have absent seizures too
Me as well
I am sooooooo with you and completely understand what it's like to experience absences. Being 16 and having seizures since I was 7, I understand the struggles and stress that it can cause, especially on a young person. You're doing great! Lots of love, God bless xx
Emily Hope Aw thank you so mucj Emily, it means the world to me! Thanks so much for watching ☺ please give a thumbs up 👍and a subscribe! Check out my new Q&A video on my channel too!😀
I don't mean to sound rude just genuinely curious but how come when you are having a seizure you stop talking? What does it feel like? Is it intense enough to make you stop talking?
MayMay Hastings Hiya! Please find the answer to your question in my Q&A video here: ruclips.net/video/hqAfty0d554/видео.html 😀
I have epilepsy as well & have absent seizures everyday , grand mals as well. I am from the U.S. my epilepsy was diagnosed late in life & also there is no known reason I have it. It's really hard to find anyone to talk to that understands what it's like it's so nice to find your videos ❤️
I know how it feels. I have epilepsy too and it's so annoying ;(
SOFIA FIN it sure is!
Hope you for the best! Don't give up! life has many challenges but someone above us will NEVER give challenges that we can't do!
Thank you so much for this, I haven't ever seen anyone else with absence siezures and am thankful that I know of someone else. It is so hard to explain to others because you look "normal", I just got diagnosed recently. I usually throw up after just one and lose memory, have extreme fatigue, fogginess, loss of thought, lack of concentration, and migraines. Although I'm sure you're not glad to have it, I am glad that I can no longer feel like the only one.
Hey lovelies! Please donate to my Fundraisor to change the lives of people with Epilepsy 💜 www.justgiving.com/fundraising/myepilepsystorybrogan
i really love this video - it really shows what my absence seizures look like too, when people don't understand how i'm explaining it
So I'm going to sound co.pletely and utterly stupid but if you don't ask you don't know right. What's actually happening? I always thought a seizure is pretty visable physically, I've never seen anyone have one apart from a maybe one or two videos. All I can see is her pausing for one or two seconds, again I know I sound stupid
Jodie Fletcher Hiya! Please find the answer to your question in my Q&A video here: ruclips.net/video/hqAfty0d554/видео.html 😀
MyEpilepsyStory Brogan thank you :)
Sometimes ill be into a topic and out of nowhere ill feel blanked about the whole subject as if i completely forgot what i was talking about and then remember a few moments later and i studder when that happens
Thank you for posting this, it’s very helpful to see an example! I had a brain injury this past spring, and I think I’ve been having absence seizures since, but just called it “zoning out” or “when my brain gets tired it turns itself off”
Aw poor girl...
I know this was posted 7 yrs ago but I've been watching a few of these types of videos lately. I have been diagnosed with seizures within the last 10 yrs. I've so far had a few different types, including grand mal. But this, this might be my issue as of late. I'm older, so I've always thought it was just that, age. Thank you for posting this.
I had one of these yesterday 😑 but when I arrived at the e.r I passed out
This is really interesting to see up close because my older sister has epilepsy and she also gets absence seizures. So this video really helped my understanding of them, thank you!!
Anyone else here for Cameron boyce
Such sad news 😢
I have the exact same seizures. They’re so hard to explain to someone who has never had one. It’s a crazy feeling, thanks for you video!!
I use to have these a lot due to my epilepsy. But at 10 they stopped. I haven't had any in 8 years. Thank you for filming this so now I understand what I looked like to other people when I would zone out in the middle of conversation. Mine were longer absences i believe or thats what they felt like, but i couldn't move, talk, see, and hear when I had them. I was gone for the moment basically.