My girlfriend is having these. She even has anxiety attacks. I feel so helpless when i see her like this. I try to check on her meditations and medicine daily but sometimes she skips them and after some times it get worse. It pains me and makes me think that i can't do anything for the person i love. She avoids me thinking I'm just wasting myself on her and I'm not able to make her understand that we are in this together , no matter what. Fighting it psychologically is an another fight. May god give her all the love she deserves. 🥺
My heart disheartened reading comments and realizing how big numbers of young people are suffering from this hell of disease, may god bless them and give strength to overcome from Here..
My boyfriend has taken medication after medication and these evil seizures keep torturing him. I pray my love can one day be relieved of the epilepsy curse :( I love him so much. It’s so hard to watch him suffer. Thank you for this information, I’m trying to learn more about his condition so I can attempt to help him in any way I can.
True that most doctors are full of shit just care about money I had to change two Neurologist doctors the first one was a piece of shit and got me hooked and Keppra before never to take those medications it's the worst for people with epilepsy and is the strongest form of medicine it gave me depression and didn't help me out at all and sorry to hear that about your son God bless him to get well this illness breaks me down mentally and physically 😢
I've had epilepsy for 27 yrs. I started with what was known as. GRAND MAL now known as Tonic-Clonic seizures, then sim partial seizures, Atonic seizures which had caused me to break my leg in several places requiring surgery, before this incident I was free of tonic clonic seizures for 10yrs... I have had more TC seizures this past 8 months alone that I had the full. 26 years prior. Been on 5 different AED'S varying doses and still suffering... ❤ to all the Epilepsy warriors in the comments. Thanks you for the video 😊
What I have learned As a Epilepsy Patient • It’s hard to bear, but we cannot lose hope to get healthy one day. • We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine. • We have to spread awareness about epilepsy, and show the world that nothing is impossible in life. • There are many people who are suffering from epilepsy, but they are living their lives very happily. • It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
As a former epilepsy patient it’s hard even after 13 years living with it. can’t live a normal life without having to take medication everyday for the rest of my life I break down in tears cause having to live with this till the day I die is when it will stop. It’s just so hard to accept it even after being diagnosed with it after 13 years
@@tast3myrainb0ws50 I'm also a former epilepsy patient. It was genetic because some of my relatives have that kind of disorder. However through time it will go away. I have medicate since 2nd year highschool until 2017 since the medication was unavailable. In my experience, a healthy mind must be a most priority. To achieve control over epilepsy is to control your own destiny. I have to remove all negative emotions. The greater your anxiety, the more it triggers. However, it depends on a person's psychological strength. You should control your mind by strengthening your spiritual senses. For me, when it triggers, it had an aura. It's like a merge of negative emotions all at once. I had an attack twice a year. So I had to meditate and try to feel again than emotion again. I practice what it's like that emotion or aura. Until when I was sleeping I had to control, I did stop that emotion from entering from me. Thus, I had the power to overcome it. The answer was to remove the negative emotion and imagine a field that you like most. For me I had to enter a sort a grass field where the wind blows breezely. Eliminate your negative emotion and find your peace. It was God who help overcome it..
I got my first seizure when I was 18 and no one around me knew what it was , there was bobble like thing coming out of my mouth to the extend my mom thought I was dieing, I got another one at 19 and it kept coming at least twice every year ... and me knowing what it was , I was scared of going out in public... but know after watching this video I got clarity that I m not the only one with this disease .... appreciate you all ❤
Seizures can affect us any moment.. suddenly with out any warning...even though we are not epileptic patient.. from my experience... I have experienced earlier some times it triggers Because of various factors like sleepless, pressure shot up , and stress , some light beams etc ... My was an unexpected ... While driving the car 🚗 to school I felt severe & heavy headache then I used a baam for my headache then reached my class and sat on Teachers chair in Between I lyied down also because excess headache .. that was a Christmas 🎄 celebration time class is full of noise they are crazy about their Christmas competition... But I want to take class . as the noise is terrible I shout at them with short temper & also I brust out with anger .. as soon as my Blood pressure becomes highest peak then my body Becomes very weak then my hands shakes a little & I Bend & fell to corner of the class then slowly drop down with Both eye's upwards & becames half blank out...repeat Nagyastisum continuously...🙄 😵 💫 💥🧠⚡ then starts seize my whole body my head shakes as yes no like that .. my hair becomes scattered then I dropped down to the floor ... my saree moved from my chest that makes my breast & Deep Round Navel pit exposed as yu seize Me also seize then huge number of bubbles came out my mouth... With nausea sound ekk ekk .. as usual as vomitting ...They said Teacher 👩🏫 is Vomitting Bubbles & she is shaking slowly.... Also I sweating well while shaking this makes wet on Blouse & makes visibles With exposing my Breast & navel ... But I don't feel shame it's because of this fits I shake ... While that some children from class tapped my sweated face and Belly that moment I turned my face to side ... no response but I can hear everything.. but I can't responds or react ... To it then teacher from next class came and done the same but the extreme noise makes shakes violent... Then she Let all children out of the class to main hall then she said we are doing 1 st aid to yur Teacher 👩🏫 so please keep Quite & go from this surroundings ... She Let them out because my hus smooths me by Floating his hands from head to Feets 👣 that moment some colleagues gave An 🗝️ tightly to my ✋ ...that proves the 🗝️ using remedies Is a False things .... As the Jerkings last for 3 seconds my hus came near me and Takes my head and removes the scattered hair & placed on his Lap that moment form and froth Bubbles falls on his Lap . Then he rubbed my Face , ✋ ,chest , Navel pit Till to my 👣 and makes me Lye on the 🛏️ Bench ... After 15 seconds I regins my Full consiousnes.... That moment hubby gaves me water Bit by bit .. & says why are you always Bursting out in short temper .. it's makes yu this so control yur anger ... Avoid pressure shot up. .so careful... Same things repeated once a while between while taking class 🙄😵🙂🙂🙂 but I didn't fear that situations .... 2:08
I’ve been suffering from uncontrolled epilepsy since birth; I’ve been on countless meds, been extremely discriminated in my life by being kicked out of school for being a liability, and been beaten up by bullies for being different. It makes me happy to see that there’s people that do care about us, and don’t just see us as freaks or think we’re possessed like the church does.
I was diagnosed with Epilepsy when I 20 years old & have Complex Partial Seizures. However due to being on countless medication also I ended up deciding to get VNS Surgery last year & it has significantly reduced my seizures. I attend an Epilepsy Support Group also & practice Mindfulness which also reduces stress and seizures even more.
People Have Been Asking Me Strange Questions And I'm Scared About The Fact That People Would Be Like Idk " He's Different Than Us We Will Torment Him Because He's Different." I Mean Like I've Had Epilepsy For Years As U Said Its Good To Know There Are People Out There Who Genuinely Care About The People With Epilepsy Like Us
@@hughmclaughlin6996 exactly all throughout school I was called seizure boy and finally in 8th grade I was kicked out of school for being a liability, it’s good to know that not only are there people who care but people who’ve walked a mile in my shoes.
It should have been treated when you was a child. Usually it happens due to high temperatur in children (until 5 years old) and when untreated it follows you through life. My nephew had it too, but he went through a treatment and got rid of it. This was also due to high temperature.
I'm having Simple partial epilepsy since 8 years, a lot of time my half of the body paralyzed for some seconds and sometimes my body reacts as a fish coming outside from water. I'm sorry to see all of you guys suffering from this. But I'm little relax that I am not only the one. I wish all of you a healthy life. Worst thing about this disease is, people look at you in this condition and makes fun of it or sometimes get scared.
It's terrible and unacceptable that someone made fun of you for it. I'm so very sorry to hear that. In Sha Allah may you feel better soon and In Sha Allah may it never happen again Ameen
Exactly. Since it’s an invisible disability, it’s one of those “they don’t know what won’t hurt them“ until they witness you having one and then feel the need to make fun of it. I guess that’s how you find out who your true friends are. Or in a new situation.
I also having the simple partial epilepsy always my mouth shaking one and I difficult to talk and I experienced that people make fun of me 🥺I totally understood ur feelings dear ❤
thank you :( this randomly started happening to me July 2024 and still happening to me and idk why, the doctors won’t help either like it’s so difficult to get an appointment or to be seen :( I don’t remember any of these like my memory is horrible and I continue to bite through my tongue & have even broken my cheek bone
My sister has been having seizure-like symptoms for over a year. She was scheduled to go for monitoring on an epilepsy unit in the hospital because her EEG and 72-hour EEG came back abnormal/inconclusive. It’s a good thing she went for the monitoring in the hospital because that day, she went into full-blown status epilepticus. She was intubated for a week and it was the most helpless I’ve ever felt in my entire life because there was nothing I could do for her. She’s home now, but I’m terrified for her.
Oh my God I am so sorry. That is terrible. And your anxiety heightens with the race against time since you know how that works with seizures, especially after witnessing what your sister went through. I know that this is a few months old, however, I still hope things are moving in the right direction.
The first time in 2018, I was in school and we had physics and all of a sudden I fell to the floor and started having cramps and all the students came out of class because my face was so scary and now it's not in 2022. I don't go away and sometimes I take medicines but they don't work which always saddens me My mom sees me crying and my little sister is 15 years old. She is the most helpful person to get me to sleep and sleep with me. I love her so much. At the end of the talk, I want you to thank God for the blessing of health
My twin sister has been epileptic since she was a baby upto now ,I always feel so damaged every time she is having these attacks ,it pains me so much that this has actually even affected her relationships ,she ask me everyday if she will ever get someone to accept her for who she is and this pains me to the core honestly sometimes I wish I was the one sick not her .God I pray that one day you may uplift her from this burden of sickness.
I had surgery done to reduce my absence and complex partial seizures. My surgeon removed 75% of my right temporal lobe and all of my right hippocampus because it shrunk and got hard from over 30 yrs. of seizures. Then I started using cbd twice a day and taking 2 Tablespoons of apple cider vinegar with mother in it and my seizures went from 300 a yr. down to 68 a yr. The vinegar is what really helped me more than the surgery and now my Drs. are trying to figure out how vinegar with mother in it can reduce seizures. Wishing All of You Only the Best
Suzanne porter..when do you take acv,morning or bedtime,pls? We have tried every possible anti epileptic drugs,for 15 yrs...he's 30 now and still having multiple seizures a day
@@reginadionessaddi6961 I take 2 Tablespoons of apple cider vinegar with mother in it right before I eat breakfast in the morning and that it. You can also have the Dr. do a DNA test and by doing that they can find out if he is drug resistant to seizure meds this is what I found out.
@@reginadionessaddi6961 Bs aside im 36 born with epilepsy and the ONLY thing that ever worked for me was getting The fk away from everyone. Meaning the calmer his life woth less noice and lights the better. It helped me stop all the seizures i was geyting Every week. I wont say cured cause if i dont stop my self n pass what i know are my stress and emotional limits itll trigger a seizure but this has been the only way to stop them no medicine ever worked for me or my 2 siblings that also have epilepsy..my mom was a saint for been able to deal with 3 epileptic kids.
@Nauman Khan mother is a good protein along with a good bacteria that is in the apple cider vinegar that says Apple cider vinegar with mother. You can get it in the grocery store or Dept. stores.
Been having seizures for 10 years, I have fallen so many times that I've cracked a tooth & also dislocated my shoulder. I realize I get them a lot when I am very stressed out. Usually I can feel when I am about to have one so I will hurry and lay down but sometimes I don't & that's when I get injured.
Yup stess does it for me also..which suks cause life is stressfull all the flipping time... a life of less stress and less lights n noices helped me cope and survive this crap..i have it from birth its hereditary in my family
@@josephinelemian I thought only me have the same feeling …what you said was similar to me …not sure why it can feel sometimes if is really stress or pressure ..what you said I did the same too … when it feels or can predict … just lay on bed and take a sleep .. afterwards would feels better ..if not might get hurt or injured if it’s come suddenly ….
Asslam o Alikum and hello everyone hope you all are fine who are reading my comment i have read some people comment regarding their children mother father or any relation suffering from eplapsi disease feels so bad for those patients and myself too . i am also suffering from eplapsi from 10 year when i was 15 years old now by the grace of god my age will be 25 next month ..my parents took me to many docters after many hardwork 1 docter get the point whats the issue he said for CT scan after the report he said to my parents that his brain some part is effected veins area when those veins dont get oxygen the fits occur at that time i dont stay in my senses my left hand fingers some kind of vibration and my tounge get injured in my teeth from back side .. And some time i have face the situation like this while driving motor cycle i get fits i fell down people help make me stand up during that i dont know what happened to me i get injured some time . recently i was using tegral tablet 500mg after that some time i was not feeling well one of my father friend told us of one docter he took me to him and showed him all my reports and said to my mother that from his birth did he face major disease she said he was suffering from high fever at time i took 1 day to wakeup in hospital .. Now i am using lerace 500mg 1 doze in morning and 2 dozes in night with rivotril and olepra from last 3 year i am very well but the main thing is that the fits dont stop 4-5 time in month or i when i dont feel well mean to say suffer from fever it occurs 4,5 times in a day .. I am fed up dont know what do . i have stopped my studies from 9th grade i stay at home all the just watch drama serial all offer prayer for my self and every people .. My parents dont have money that they can take me abroad for treatment is their anyone who can help .. I hope i will get good responce because their all good people and ONGZ who have problems like that . i will be waiting for good responce . 😢
I am suffering from epilepsy seizures for nearly 15 years (age 23) - What happens before during and after the seizures...... Before the onset of seizure I somehow know that i am going to have one but in most cases i get know in the last 5-15 seconds so i have a low time frame to respond so i have to be careful when i am riding a bike driving a car swimming or other activities alone During the seizure I usually fall down instantly most of the times i hit my head and there is always a very serious injury on my tongue due to biting while having seizure i wake up with a pain in my head and bloody tongue and unable to eat salty/spicy for few days (thank god the tongue is the strongest muscle ) first sentence after getting consciousness is always HOW did i get here ? I usually regain consciousness between 1hour-2hour I have MEMORY loss of the events that occurred 6-12 hours before the onset of seizure and i only have small flashes of the events Let me briefly elaborate the feeling of a seizure First thing is i start to forget where i am or what i am doing i dont feel my hands and legs my minds slowly goes blank and i dont know if i am waking up again
In first time I couldn't remember anything I just woke up in emergency room and nurse ask me some questions takes long time to know what's going on But for 2nd time I felt that sth is coming there was a strong pain in my head and heart and I felt so dizzy I knew it I'm about to faint so I asked my mom to hold me and after that I woke up in a really bad pain in my head.
@@G63045 please protect your head at all costs if you are alone instantly lie down on the ground or ask someone to hold you ......i have had very very painful head injuries now i always try to protect my head .....head injuries during free fall can be very dangerous ☠️
I've had Epilepsy since I was 10 years old. It started out with Focal aka partial, but now I've had both Tonic-Clonic and Focal for 30 years. But for the past 2 years I've been having cluster seizures and my doctor hasn't been that big of a help. My life is literally on hold due to the fact I really can't go anywhere. I'm having multiple a day. This video explains seizures quite well and I thank you.
My son got diagnosed with Epilepsy November 2021. He was suffering when he would get his episodes. He lost so much weight before th diagnostic. THANK GOD he's doing better on the medication and gaining his weight bac🙏🏻. It was so hard seeing him suffer and dealing with it before he got tested and diagnosed 😭.
My daughter suffer this 17 yrs hers does happen so different ways she does fall down she has a frature hip can you help doctot says pitty mild but all dangeroes
@@theresaoben8017 my son would get his episodes and her arm would lock. He wouldn't remember nothing as it was happening. He hasn't had an episode since he's been on medication thank God 🙏🏻
I watch such videos every time I have a seizure,read comments to remind myself that I’m not alone… no amounts of all is well can heal the pain I have rn
@@ashiphrorobviina1590 No amount of all is well can heal the pain we just be grateful to the Lord that we didn’t breathe out last in the last seizure! That’s been my consolation for last 22 years! Am 26!
My parents told me to stop my jerky movements like abnormal mouth movement and body movement. They haven’t been aware. My parent are so stupid. They told me, “Why are you like that?”.
I have focal onset temporal lobe epilepsy and I get a strong feeling of panic, as well as a rising sensation in my stomach and deja vu right before I have a partial seizure. I don’t have any awareness or memory for two minutes after I have this feeling before the seizure
For me its been a long war with this disease. Its hereditary so all of my siblings and i have it ...im 36 now and still get them here and there but for me Stress triggers my seizures...and lights... i stopped having them the moment i started living a quieter calmer life away from anyone that really causes me emotional distress..take it day by day but it helped me alot. Mined would happen and i wouldnt black out but ide loose my senses of taste and everything would flip side ways visualy and ide grab on to anything QUICK..Then i loose my ability to speak..its all jumbled crapp that comes out..i try so hard to say seizure seizure and i cant its inaudible...takes me a minute to speak again.
I have a mixed of all versions and I am super sad and mad. I have tremor to my hands, left one the most always. Sometimes I can sense it before however last and the recent one I did not have any clue. I am praying almighty for more strength as I am a single mother of 11 years living abroad where I have no family friends and relatives.
Thanks for the information ❤ I am a epilepsy sufferer and have clinic tonic seizures. I wish all the epilepsy sufferers all the good luck and enjoy life ❤ I have 3 kids and enjoy and keep myself busy with them and work. So can every one of YOU ❤ live you all and may Allah swt bless you all ❤
The only time I've felt something like these symptoms was when a family member put a new type of video or movie thing on the tv. The thing did something weird to me, my head ached and I couldn't move then I threw up an passed out. My parents never let me watch tv or be around bright screens n stuff like that for very long anymore. It only happened that one time I think.
I’ve been diagnosed with Epilepsy 2 years ago and I haven’t had any seizures since. I’m still on the edge as I’m not sure if this was a sort of episode of my life that is behind me or at any moment it can happen again. Dr tried to prescribe me Keppra but that first night I took it it gave me a high fever and chills and then dr prescribed me Oxcarbenzipine and it’s as if I never had any seizures. Please advocate for yourselves and stay strong. Also don’t get mad at the person who has had seizures if they crack a joke,coping mech, some of us are not technically there to witness😂😂
I had a complex partial seizure that ruined my 6 month streak earlier today and I'm still a bit shook. It's 1am right now and I still can't sleep. To everyone going through this, you're not alone. Find a good doctor who'll listen to you and help you find the right meds and it'll get better. To everyone with a loved one or friend with epilepsy, I know how hard it is to have to watch someone you care about having a seizure knowing that there's nothing you can do but just watch and make sure they don't hurt themselves. My friend once told me that watching me have those is excruciatingly painful because she feels helpless. Honestly, as terrifying as seizures are, waking up to see someone you love watching over you makes you feel so much better.
By reading the comments tears are come in eyes because I was also had seizure in my childhood after taking medication on time for period of 2.5-3years without skiping the doses I completely free from this disease The thing which cure any disease - we need to be calm - we should not be worry from disease we should need to fate in medication and hope of getting well soon and other thing is our love ones care and support are most important Now I healthy and doing my studies well Now I am feeling very blessed ❤️
I am suffering from partial epilepsy since I was 3 but it happened very rarely like the first time i got it I was around 3 or 4 then second time in 3rd grade then I was on medicines for 3 years.. But recently I have had episodes of loosing awareness strong cramps in legs and stomach sweating feeling like I'm going to faint the bg noises fading.. Are these symptoms of epilepsy?
I have my son now 9 years started the symptoms in 2919 up to now he's on medication ,my worries is even in school other children Don't want him near them even to touch their lockers .But I trust in God because he was born healthy one day he will do a miracle
Damn relatable! I was just the age of 4 when i became a patient &now after 2 decades, i still have it Im always thankful to the almighty for the improvement& that he gave me the strength to face this all these years May he give all of these patients the same strength& early recovery too🧿🧿🧿
@@harshvardhanrai4674 depends on the type of seizures- Focal Generalized Focal &Generalised or maybe some other type Its best to consult a neurologist for knowing exact condition by EEG &MRI scanning Patient needs to describe how he/she feels during seizure Accordingly they will take scans& prescribe medicines Ive been taking both homeopathic& allopathic medicines
Am Having seizures, i've been taking some meds(medication) and seeing a professional doctor where am tired of seeing a doctor every start of month on a check up . i 've been taking my meds for 6 years (i started having seizures at age 12 now am 20 ) but there's no change, where my parents wants me to take other medication but not from a doctor but i refused so now they're mad at me and telling me that i don't wanna be treated but as i watched the video i think am goin' try the ketogenic diet and try several drugs medication to see what suitable for me to reduce my seizures i even broke my tooth on falling on a wash-hand basin and broke my arm a few days ago as i read these comments it makes me feel better and see that am not the only one having seizures thanks for the video it was helpful ---- spreading Peace and Love to y'all facing seizures : )
I am now 38. Had epilepsy my whole life. When I was in primary school I had general seizures. Now I have all types of seizures. Partial and General seizures. I am on 4 different chronic meditcations. I've been at 9 different neurologists through my life and still don't know what triggers the seizures. Mesial Temporal Sclerosis.
Dr told me to try pot am seizure free mostly absence rarely had temporal lobe and frontal lobe from accident have scaring in both lobes its the only thing that's worked well have had some pretty bad seizures including psyco and have quit breathing been in statis went for days sometimes not knowing who what or where no longer
I have onset epilepsy that’s caused by scar tissue from brain surgery. Usually just absence seizures and my last one caused me to total my truck and lose my license. I just hope anyone who has it can find a way to live a happy and safe life like I want to
This is helpful bc I have been having like when I just start to run without stretching or anything like my muscles and my whole body just starts doing its own thing and lock up and now I realize that I have this
This is a very painful experience to u and her but God knows long before you met her and knows how she will be cured always be with her showing how much is she valued to u May God bless you both
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
Share ko lang po ,may epelepcy din ang anak ko nagsimula ito nong 3 yrs old palang siya. Hanggang ngayon 8 yrs old na siya di parin nawawala.his taking valparine syrup since the beginning of his seizure till now, im always praying na mawala na sana ito at magiging ok na po ang lahat.with the help of our heavenly father, thank you so much,
Hello po. Try nyo po kuya ang reflexology ng epilepsy, e RUclips nyo lng po Basta yung big toe po mina massage kasi daw po nghehelp increase ng blood flow. Yan po ginagawa ko sa bro in law, and it's effective less than 3mins po stop na ang convulsion nya unlike before 20-30mins
@@Greenderin7 anak ko 16 years old .up to now..mag madesin pasiya..mahabamg lost of consiusness siya..mga 24 hours ma wala sa ulirat tapos bigla nalang nag siezure..after that nawawala na.balik normal na uli utak niya..may ganun ba talaga
I had this as a child and have been seizure and medicine free for 7+ years but now have got it again because of anxiety + lack of sleep (and have been having seizures every 15 days , even on medication, has someone had a similar experience ?)
Indeed, My elder brother too have the same issue.He had seizure till the age of 3 then he haven't had that problem till his age of 16.After that he's been facing those difficulties for 8 years. He is 24 now.
I'm 16 and currently preparing for my neet'24 exam 😢, my mom is suffering from seizures since she was an teenager😭💔, i wanna become an well-known neurologist in future and can treat ppl with neuro problems and seizures
I have simply partial seizures. It usually happens when I am tiered during the day from work. And slowly drifting into a nap. And when I’m drunk or day drinking and I get sleepy. I am aware of everything happening in my body. I can’t snap out of it as much as I try. My lips jerk. I begin to drool , I feel like I’m going to have a heart attack and I panic in my consciousness l. And my breathing begins to slow down. It’s happened like 5 plus times..
Hello I have been having grandma seziures at night for the last seven years have tried many different meds no help then the vns with great hopes no then the rns still waiting a year and a half just had 7 in a row such a bad experience for my wife and daughter. I am going to ucsf for a nother adjustment and was prescribed another drug with very bad side effects I was hoping it could be controlled not yet?
Stop drinking!!! COMPLETELY!! It brings seizures!! I stopped having seizures while awake after I stopped drinking alcohol!! Only then did I start driving!!
I’m not sure if I have seizures or not, once every few days I tend to get this thing where my eyes flick back and forth a few times really quickly and I become a bit disoriented, and loads of times a day my vision flashes black for a second, and sometimes (especially when I am tired) my eyes sort of roll back and I feel dizzy as if i will pass out :/
Thanks for the information, I have been having epilepsy but I didn't know because mine only happens when I am sleeping, I shout so much and I can fall from the bed. Sometimes I find myself sleeping on the floor wondering what happened 😢
This is so helpful to understand. My husband had accident n his forehead had a hole totally injured by the traffic accident. Only his brain effected so much. Then he had some seizure n completely patient of epilepsy. He always forgot the things even my humble behavior n always shout on me n said u r wrong. I was always support him. But hi mentallygave me torcher. Now i am sperated. N single mother. Bcz he had no affection for his toddler.
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
I can understand and I used to have absence seizures when I was in grade school. If you're not on medication then you may need to be. It may be not be just surgery you needed and if you don't go to the doctor then it could get way worse than what you think.
@@dennisg209 all I can say is that I have a family member that would have seizures and I'm not sure what kind but he had surgery where they went in and took out a small portion of his brain and he stopped having them but I think he still took medication. I will find out and if I'm wrong I will edit my reply
i do have brief seizers randomly and it reduce my studying efficiency. when im focusing on something if i suddenly think of other thing , i have the seizer , its like having a lag in a game. But imagine having that in ur daily life. its so tiring and exhausting to know that ur own brain limits ur ability to even live properly. all that and i'm experiencing this small seizers. i really cant imagine how people with bigger seizers deal with it. God bless whoever have epilepsy and all the people who suffer from this very painful hell everyday. And lets hope our doctors all around the world find the decisive cure asap. for the generations to come.
I have developed a stutter over the past few years.....I have had a few seizures and the last one was on new years eve the other day. I have no idea what's happening and have felt horrible since my last seizure. That day my stutter was very bad and right before my seizure I could barely speak and felt like I got electrocuted. I was very confused when I came to
I was diagnosed with epilepsy when I was 12 yrs old and took medication (keppra) and it did helped me control it and it went away for some time. But now I’m 18 and for the past month I’ve been feeling like is comming back 🤒 and I feel so stress to know that it could happen anytime anywhere.
My dad started having tonic/ clonic convulsive seizures out of nowhere a little over 1 year ago. He can't work and could have a seizure anytime anywhere. He takes 5 medications for other mental issues as well and have tried 3 meds for epilepsy already but nothing is working so far. It's tough man
@@carloscabrera5311 hi Carlos. Do you know someone that started taking new medicines and then started having seizures? They changed my dad's recipe again, but thankfully this time he's been good for almost couple months. Only thing, he's getting fatter
Pot works it stops seizure activity and helps with depression and other disorders that's why it's legal so many places also some varites do a good job on pain
Epilepsy is a condition that can affect anyone. There are different types which can be triggered by different sources, such as light, or stress , or drugs. Appropriate research will always be needed to improve the lives of people who have this condition.
I suffered from epilepsy. They stopped in 2018 its been 6 years since then. Doctors said i shouldn't have any further seizures. I still have so much anxiety everyday because epilepsy was something that affected me since i was a kid and i dont want to go through the horrors i have been through
I have had seizures of all kinds for over a decade I fell down 3 flights of stairs, collapsed and hit my face and scraped against concrete, broken teeth, bit my tongue and inner cheeks so bad, had absent seizures, generalized, tonic, had them when sleep, driving, walking, while in the middle of conversations, urinated on my self woke up so sore all over can't remember anything but that last thing I did. And once I couldn't remember my name no matter how hard I tried
None of the meds worked to stop my seizures. My Neurologist and I decided to try Medical Marijuana in 2019 and I am going for longer periods between seizures. My last seizure was in November of 2020.
Been searching through the net for answers, I was sitting in my chair just enjoying my time watching TikTok when my brain felt like it was going sleep and light mode. I felt like I was disassociating really badly, similar to drunk and or dreaming but much more aware. My whole torso started to lean and eventually fall, my limbs worked and I used all the energy I could muster to stand up but my torso felt like deadweight and caused me to fall back into my seat. I felt some sudden jerk and I started getting a mild headache, similar to after I disassociated for a short period of time. Torso still felt heavy but not as heavy as it was before, I was so confused. I walked it off thankfully, if it were worse I probably would have injured myself because I was alone in my room when it happened.
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I want to learn more about this. But I tend to not focus for very long! Watch later
My girlfriend is having these. She even has anxiety attacks. I feel so helpless when i see her like this. I try to check on her meditations and medicine daily but sometimes she skips them and after some times it get worse. It pains me and makes me think that i can't do anything for the person i love. She avoids me thinking I'm just wasting myself on her and I'm not able to make her understand that we are in this together , no matter what. Fighting it psychologically is an another fight. May god give her all the love she deserves. 🥺
Hi dude , r u frm India?
God bless her
@@raja12545 yes
May god bless both of your hearts ... same situation here it's draining mentally ... try and hang in there guys
Same here bro, don't worry bro keep her happy because happiness will give much more diversion to her problem she can forget the pain and become normal
My heart disheartened reading comments and realizing how big numbers of young people are suffering from this hell of disease, may god bless them and give strength to overcome from
Here..
I’m also one of the and i just had one 🥺
I'm scared of this and my wife doesn't fully understand. Caint find counsuling in my city for it
It's a curse
Thank you ml
#AK second your opinion
My boyfriend has taken medication after medication and these evil seizures keep torturing him. I pray my love can one day be relieved of the epilepsy curse :( I love him so much. It’s so hard to watch him suffer. Thank you for this information, I’m trying to learn more about his condition so I can attempt to help him in any way I can.
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine
@@waynekross72 how? 15 yrs of medications seem not to help my son...he's now 30 and taking 3 diff AEDs...
The medication I have got rid of them try carbamazepine
Sensory deprivation, low and calm life style is what stopped them on me
@@waynekross72 I have a friend who’s suffering from epilepsy 🥲 can u help us with location pls
This information was more helpful than my sons neurologist thank you
True that most doctors are full of shit just care about money I had to change two Neurologist doctors the first one was a piece of shit and got me hooked and Keppra before never to take those medications it's the worst for people with epilepsy and is the strongest form of medicine it gave me depression and didn't help me out at all and sorry to hear that about your son God bless him to get well this illness breaks me down mentally and physically 😢
My nuerolgist I have now is helpful
Why is ur sons nuerolgist not helpful ?
@@dennisg209 omg 😱 my nuerolgist at Yale didint help
Me either
@@dennisg209 hello, you mentioned that you were taking Keppra? What helped you with your seizures?
I've had epilepsy for 27 yrs. I started with what was known as. GRAND MAL now known as Tonic-Clonic seizures, then sim partial seizures, Atonic seizures which had caused me to break my leg in several places requiring surgery, before this incident I was free of tonic clonic seizures for 10yrs... I have had more TC seizures this past 8 months alone that I had the full. 26 years prior. Been on 5 different AED'S varying doses and still suffering... ❤ to all the Epilepsy warriors in the comments.
Thanks you for the video 😊
Bağırsaklardaki kıl kurdu nöbete sebep olabilir
How can you get rid of this? @@lalehanm3984
Are you wearing Bluetooth hearing aids or ear plugs?
What I have learned As a Epilepsy Patient
• It’s hard to bear, but we cannot lose hope to get healthy one day. • We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine. • We have to spread awareness about epilepsy, and show the world that nothing is impossible in life. • There are many people who are suffering from epilepsy, but they are living their lives very happily. • It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
As a former epilepsy patient it’s hard even after 13 years living with it. can’t live a normal life without having to take medication everyday for the rest of my life I break down in tears cause having to live with this till the day I die is when it will stop. It’s just so hard to accept it even after being diagnosed with it after 13 years
@@tast3myrainb0ws50 I'm also a former epilepsy patient. It was genetic because some of my relatives have that kind of disorder. However through time it will go away. I have medicate since 2nd year highschool until 2017 since the medication was unavailable. In my experience, a healthy mind must be a most priority. To achieve control over epilepsy is to control your own destiny. I have to remove all negative emotions. The greater your anxiety, the more it triggers. However, it depends on a person's psychological strength. You should control your mind by strengthening your spiritual senses. For me, when it triggers, it had an aura. It's like a merge of negative emotions all at once. I had an attack twice a year. So I had to meditate and try to feel again than emotion again. I practice what it's like that emotion or aura. Until when I was sleeping I had to control, I did stop that emotion from entering from me. Thus, I had the power to overcome it. The answer was to remove the negative emotion and imagine a field that you like most. For me I had to enter a sort a grass field where the wind blows breezely. Eliminate your negative emotion and find your peace. It was God who help overcome it..
I got my first seizure when I was 18 and no one around me knew what it was , there was bobble like thing coming out of my mouth to the extend my mom thought I was dieing, I got another one at 19 and it kept coming at least twice every year ... and me knowing what it was , I was scared of going out in public... but know after watching this video I got clarity that I m not the only one with this disease .... appreciate you all ❤
Burn frankincense daily with the window cracked just before bed 🧘♂️ 🙏
Seizures can affect us any moment.. suddenly with out any warning...even though we are not epileptic patient.. from my experience... I have experienced earlier some times it triggers Because of various factors like sleepless, pressure shot up , and stress , some light beams etc ... My was an unexpected ... While driving the car 🚗 to school I felt severe & heavy headache then I used a baam for my headache then reached my class and sat on Teachers chair in Between I lyied down also because excess headache .. that was a Christmas 🎄 celebration time class is full of noise they are crazy about their Christmas competition... But I want to take class . as the noise is terrible I shout at them with short temper & also I brust out with anger .. as soon as my Blood pressure becomes highest peak then my body Becomes very weak then my hands shakes a little & I Bend & fell to corner of the class then slowly drop down with Both eye's upwards & becames half blank out...repeat Nagyastisum continuously...🙄 😵 💫 💥🧠⚡ then starts seize my whole body my head shakes as yes no like that .. my hair becomes scattered then I dropped down to the floor ... my saree moved from my chest that makes my breast & Deep Round Navel pit exposed as
yu seize Me also seize then huge number of bubbles came out my mouth... With nausea sound ekk ekk .. as usual as vomitting ...They said Teacher 👩🏫 is Vomitting Bubbles & she is shaking slowly.... Also I sweating well while shaking this makes wet on Blouse & makes visibles With exposing my Breast & navel ... But I don't feel shame it's because of this fits I shake ... While that some children from class tapped my sweated face and Belly that moment I turned my face to side ... no response but I can hear everything.. but I can't responds or react ... To it then teacher from next class came and done the same but the extreme noise makes shakes violent... Then she Let all children out of the class to main hall then she said we are doing 1 st aid to yur Teacher 👩🏫 so please keep Quite & go from this surroundings ... She Let them out because my hus smooths me by Floating his hands from head to Feets 👣 that moment some colleagues gave An 🗝️ tightly to my ✋ ...that proves the 🗝️ using remedies Is a False things .... As the Jerkings last for 3 seconds my hus came near me and Takes my head and removes the scattered hair & placed on his Lap that moment form and froth Bubbles falls on his Lap . Then he rubbed my Face , ✋ ,chest , Navel pit Till to my 👣 and makes me Lye on the 🛏️ Bench ... After 15 seconds I regins my Full consiousnes.... That moment hubby gaves me water Bit by bit .. & says why are you always Bursting out in short temper .. it's makes yu this so control yur anger ... Avoid pressure shot up.
.so careful... Same things repeated once a while between while taking class 🙄😵🙂🙂🙂 but I didn't fear that situations .... 2:08
Bağırsaklardaki kıl kurdu nöbet geçirmeye sebep olabilir
The explanation was brief and effective. It's really worth watching. Thank you!
Yes I agree
I’ve been suffering from uncontrolled epilepsy since birth; I’ve been on countless meds, been extremely discriminated in my life by being kicked out of school for being a liability, and been beaten up by bullies for being different. It makes me happy to see that there’s people that do care about us, and don’t just see us as freaks or think we’re possessed like the church does.
I was diagnosed with Epilepsy when I 20 years old & have Complex Partial Seizures. However due to being on countless medication also I ended up deciding to get VNS Surgery last year & it has significantly reduced my seizures. I attend an Epilepsy Support Group also & practice Mindfulness which also reduces stress and seizures even more.
People Have Been Asking Me Strange Questions And I'm Scared About The Fact That People Would Be Like Idk " He's Different Than Us We Will Torment Him Because He's Different." I Mean Like I've Had Epilepsy For Years As U Said Its Good To Know There Are People Out There Who Genuinely Care About The People With Epilepsy Like Us
@@hughmclaughlin6996 exactly all throughout school I was called seizure boy and finally in 8th grade I was kicked out of school for being a liability, it’s good to know that not only are there people who care but people who’ve walked a mile in my shoes.
It should have been treated when you was a child. Usually it happens due to high temperatur in children (until 5 years old) and when untreated it follows you through life. My nephew had it too, but he went through a treatment and got rid of it. This was also due to high temperature.
@@CapreDiem86 How did that happen, where was it treated and how was it treated. Just curious to know about it so I can help those around me. Thanks
I'm having Simple partial epilepsy since 8 years, a lot of time my half of the body paralyzed for some seconds and sometimes my body reacts as a fish coming outside from water. I'm sorry to see all of you guys suffering from this. But I'm little relax that I am not only the one. I wish all of you a healthy life.
Worst thing about this disease is, people look at you in this condition and makes fun of it or sometimes get scared.
It's terrible and unacceptable that someone made fun of you for it. I'm so very sorry to hear that. In Sha Allah may you feel better soon and In Sha Allah may it never happen again Ameen
Yeah I never like having anyone witness this..
Exactly. Since it’s an invisible disability, it’s one of those “they don’t know what won’t hurt them“ until they witness you having one and then feel the need to make fun of it. I guess that’s how you find out who your true friends are. Or in a new situation.
I also having the simple partial epilepsy always my mouth shaking one and I difficult to talk and I experienced that people make fun of me 🥺I totally understood ur feelings dear ❤
Hayatım boyunca ehliyet alamıyorum. Hiç bir kız benle sevgili olmuyor. Sosyal hayattan kopuk yaşıyorum. Lanet bir hastalık
To all those suffering from this, a big hug to you all
Thank you ❤
thank you :( this randomly started happening to me July 2024 and still happening to me and idk why, the doctors won’t help either like it’s so difficult to get an appointment or to be seen :( I don’t remember any of these like my memory is horrible and I continue to bite through my tongue & have even broken my cheek bone
i used to have them at childhood now i am fully recovered Alhamdu Lillah and a med student wanting to be a neurologist
What did u do to stop yours
Please teach me 😢
@@ToyinOgundele I got my treatment from a doctor
@@SampanaHilda teach you what
What medicine did you get@@DOCTOR2B201
My sister has been having seizure-like symptoms for over a year. She was scheduled to go for monitoring on an epilepsy unit in the hospital because her EEG and 72-hour EEG came back abnormal/inconclusive. It’s a good thing she went for the monitoring in the hospital because that day, she went into full-blown status epilepticus. She was intubated for a week and it was the most helpless I’ve ever felt in my entire life because there was nothing I could do for her. She’s home now, but I’m terrified for her.
I cannot even start to imagine what you are feeling. My brother had a seizure and it was probably the most scared I was in 20 years.
Bağırsaklardaki kıl kurdu nöbet geçirmeye sebep olabilir
does she wear a Bluetooth hearing aid or other Bluetooth ear plug?
Oh my God I am so sorry. That is terrible. And your anxiety heightens with the race against time since you know how that works with seizures, especially after witnessing what your sister went through. I know that this is a few months old, however, I still hope things are moving in the right direction.
Take care of her, she will be alright soon!
The first time in 2018, I was in school and we had physics and all of a sudden I fell to the floor and started having cramps and all the students came out of class because my face was so scary and now it's not in 2022. I don't go away and sometimes I take medicines but they don't work which always saddens me My mom sees me crying and my little sister is 15 years old. She is the most helpful person to get me to sleep and sleep with me. I love her so much. At the end of the talk, I want you to thank God for the blessing of health
Big cheers bro! God bless you ❤
My twin sister has been epileptic since she was a baby upto now ,I always feel so damaged every time she is having these attacks ,it pains me so much that this has actually even affected her relationships ,she ask me everyday if she will ever get someone to accept her for who she is and this pains me to the core honestly sometimes I wish I was the one sick not her .God I pray that one day you may uplift her from this burden of sickness.
I pray to d Almighty Allah to grant her complete recovery & all those who are facing dis trials ( sickness) Amin
Hayatım boyunca ehliyet alamıyorum. Hiç bir kız benle sevgili olmuyor. Sosyal hayattan kopuk yaşıyorum. Lanet bir hastalık
Please pray for my mom's friend baby
Praise the lord
whats his/her name i will pray him/her
Praying won't do shit
@@Juan-qz4eg I
completely agree with u but praying reduces the worries and stress to at least some extent, tho it is of no use to the disorder.
CONTACT ME FOR FREE TREATMENT
I had surgery done to reduce my absence and complex partial seizures. My surgeon removed 75% of my right temporal lobe and all of my right hippocampus
because it shrunk and got hard from over 30 yrs. of seizures. Then I started using cbd twice a day and taking 2 Tablespoons of apple cider vinegar with
mother in it and my seizures went from 300 a yr. down to 68 a yr. The vinegar is what really helped me more than the surgery and now my Drs. are trying
to figure out how vinegar with mother in it can reduce seizures. Wishing All of You Only the Best
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine.
Suzanne porter..when do you take acv,morning or bedtime,pls? We have tried every possible anti epileptic drugs,for 15 yrs...he's 30 now and still having multiple seizures a day
@@reginadionessaddi6961 I take 2 Tablespoons of apple cider vinegar with mother in it right before I eat breakfast in the morning and that it. You can also have the Dr. do a DNA test and by doing that they can find out if he is drug resistant to seizure meds this is what I found out.
@@reginadionessaddi6961
Bs aside im 36 born with epilepsy and the ONLY thing that ever worked for me was getting The fk away from everyone. Meaning the calmer his life woth less noice and lights the better. It helped me stop all the seizures i was geyting Every week. I wont say cured cause if i dont stop my self n pass what i know are my stress and emotional limits itll trigger a seizure but this has been the only way to stop them no medicine ever worked for me or my 2 siblings that also have epilepsy..my mom was a saint for been able to deal with 3 epileptic kids.
@Nauman Khan mother is a good protein along with a good bacteria that is in the apple cider vinegar that says Apple cider vinegar with mother.
You can get it in the grocery store or Dept. stores.
Been having seizures for 10 years, I have fallen so many times that I've cracked a tooth & also dislocated my shoulder. I realize I get them a lot when I am very stressed out.
Usually I can feel when I am about to have one so I will hurry and lay down but sometimes I don't & that's when I get injured.
Here is a big hug for you sweety 🤗❤❤❤
Yup stess does it for me also..which suks cause life is stressfull all the flipping time... a life of less stress and less lights n noices helped me cope and survive this crap..i have it from birth its hereditary in my family
@@josephinelemian I thought only me have the same feeling …what you said was similar to me …not sure why it can feel sometimes if is really stress or pressure ..what you said I did the same too … when it feels or can predict … just lay on bed and take a sleep .. afterwards would feels better ..if not might get hurt or injured if it’s come suddenly ….
Stress and lack of sleep don’t help stay safe, I wish I can lay down but the panic doesn’t help me to realize what I have to do
Asslam o Alikum and hello everyone hope you all are fine who are reading my comment i have read some people comment regarding their children mother father or any relation suffering from eplapsi disease feels so bad for those patients and myself too . i am also suffering from eplapsi from 10 year when i was 15 years old now by the grace of god my age will be 25 next month ..my parents took me to many docters after many hardwork 1 docter get the point whats the issue he said for CT scan after the report he said to my parents that his brain some part is effected veins area when those veins dont get oxygen the fits occur at that time i dont stay in my senses my left hand fingers some kind of vibration and my tounge get injured in my teeth from back side .. And some time i have face the situation like this while driving motor cycle i get fits i fell down people help make me stand up during that i dont know what happened to me i get injured some time . recently i was using tegral tablet 500mg after that some time i was not feeling well one of my father friend told us of one docter he took me to him and showed him all my reports and said to my mother that from his birth did he face major disease she said he was suffering from high fever at time i took 1 day to wakeup in hospital .. Now i am using lerace 500mg 1 doze in morning and 2 dozes in night with rivotril and olepra from last 3 year i am very well but the main thing is that the fits dont stop 4-5 time in month or i when i dont feel well mean to say suffer from fever it occurs 4,5 times in a day .. I am fed up dont know what do . i have stopped my studies from 9th grade i stay at home all the just watch drama serial all offer prayer for my self and every people .. My parents dont have money that they can take me abroad for treatment is their anyone who can help .. I hope i will get good responce because their all good people and ONGZ who have problems like that . i will be waiting for good responce . 😢
I am suffering from epilepsy seizures for nearly 15 years (age 23)
- What happens before during and after the seizures......
Before the onset of seizure I somehow know that i am going to have one but in most cases i get know in the last 5-15 seconds so i have a low time frame to respond so i have to be careful when i am riding a bike driving a car swimming or other activities alone
During the seizure I usually fall down instantly most of the times i hit my head and there is always a very serious injury on my tongue due to biting while having seizure
i wake up with a pain in my head and bloody tongue and unable to eat salty/spicy for few days (thank god the tongue is the strongest muscle ) first sentence after getting consciousness is always HOW did i get here ?
I usually regain consciousness between 1hour-2hour
I have MEMORY loss of the events that occurred 6-12 hours before the onset of seizure and i only have small flashes of the events
Let me briefly elaborate the feeling of a seizure
First thing is i start to forget where i am or what i am doing i dont feel my hands and legs my minds slowly goes blank and i dont know if i am waking up again
Same happens with me
Sir .. can I have your contact number plz
In first time I couldn't remember anything I just woke up in emergency room and nurse ask me some questions takes long time to know what's going on
But for 2nd time I felt that sth is coming there was a strong pain in my head and heart and I felt so dizzy I knew it I'm about to faint so I asked my mom to hold me and after that I woke up in a really bad pain in my head.
@@keerthi2488 if you want to ask anything you can ask here? If you are not comfortable then i can share my contact number
@@G63045 please protect your head at all costs if you are alone instantly lie down on the ground or ask someone to hold you ......i have had very very painful head injuries now i always try to protect my head .....head injuries during free fall can be very dangerous ☠️
I've had Epilepsy since I was 10 years old. It started out with Focal aka partial, but now I've had both Tonic-Clonic and Focal for 30 years. But for the past 2 years I've been having cluster seizures and my doctor hasn't been that big of a help. My life is literally on hold due to the fact I really can't go anywhere. I'm having multiple a day. This video explains seizures quite well and I thank you.
My son got diagnosed with Epilepsy November 2021. He was suffering when he would get his episodes. He lost so much weight before th diagnostic. THANK GOD he's doing better on the medication and gaining his weight bac🙏🏻. It was so hard seeing him suffer and dealing with it before he got tested and diagnosed 😭.
God is great.
@Sroncal what are you laughing @??? Someone is crying out her pain & u'r there laughing. There's no sympathy in u
My daughter suffer this 17 yrs hers does happen so different ways she does fall down she has a frature hip can you help doctot says pitty mild but all dangeroes
@@theresaoben8017 my son would get his episodes and her arm would lock. He wouldn't remember nothing as it was happening. He hasn't had an episode since he's been on medication thank God 🙏🏻
@@pattyesparza89 l will like to know what medication used
Trust me.. I think u r better than any other doctors in my country.... Love 💝 from Bangladesh
Hoping one day there will be a cure for epilepsy 👉🏻👈🏻🥺
My grandmother taught me how to cure this thing...
I watch such videos every time I have a seizure,read comments to remind myself that I’m not alone… no amounts of all is well can heal the pain I have rn
May God bless you 🤞
Bağırsaklarda kıl kurdu olabilir
I'm not alone 😢😢😢I've been suffering from epilepsy for 4 years n every once a month I experience seizure n it's hard for me to have a normal life 🥺🥺🥺
@@ashiphrorobviina1590 No amount of all is well can heal the pain we just be grateful to the Lord that we didn’t breathe out last in the last seizure! That’s been my consolation for last 22 years! Am 26!
My parents told me to stop my jerky movements like abnormal mouth movement and body movement. They haven’t been aware. My parent are so stupid. They told me, “Why are you like that?”.
Try to inform them and please go to a doctor
well you Have Epilepsy thats why u do that
Unfortunately 😢
you might have tourretts
Thx for this video. I just met a woman that has epilepsy. I knew very little about it but wanted to quickly educate myself on the basics. Thank you
I have focal onset temporal lobe epilepsy and I get a strong feeling of panic, as well as a rising sensation in my stomach and deja vu right before I have a partial seizure. I don’t have any awareness or memory for two minutes after I have this feeling before the seizure
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine
oh i Have epilepsy too
For me its been a long war with this disease. Its hereditary so all of my siblings and i have it ...im 36 now and still get them here and there but for me Stress triggers my seizures...and lights... i stopped having them the moment i started living a quieter calmer life away from anyone that really causes me emotional distress..take it day by day but it helped me alot. Mined would happen and i wouldnt black out but ide loose my senses of taste and everything would flip side ways visualy and ide grab on to anything QUICK..Then i loose my ability to speak..its all jumbled crapp that comes out..i try so hard to say seizure seizure and i cant its inaudible...takes me a minute to speak again.
I have Temporal Lobe focal seizures too. I feel like I have some short-term memory damage from it.
I have a mixed of all versions and I am super sad and mad. I have tremor to my hands, left one the most always. Sometimes I can sense it before however last and the recent one I did not have any clue. I am praying almighty for more strength as I am a single mother of 11 years living abroad where I have no family friends and relatives.
Thanks for the information ❤ I am a epilepsy sufferer and have clinic tonic seizures. I wish all the epilepsy sufferers all the good luck and enjoy life ❤ I have 3 kids and enjoy and keep myself busy with them and work. So can every one of YOU ❤ live you all and may Allah swt bless you all ❤
Bağırsaklardaki kıl kurdu nöbet geçirmeye sebep oluyor
Crystal clear explanation in such a short span of time..big thank s to the team of alila medical media🙏🏽🙏🏽🙏🏽
The only time I've felt something like these symptoms was when a family member put a new type of video or movie thing on the tv.
The thing did something weird to me, my head ached and I couldn't move then I threw up an passed out.
My parents never let me watch tv or be around bright screens n stuff like that for very long anymore.
It only happened that one time I think.
I’ve been diagnosed with Epilepsy 2 years ago and I haven’t had any seizures since. I’m still on the edge as I’m not sure if this was a sort of episode of my life that is behind me or at any moment it can happen again. Dr tried to prescribe me Keppra but that first night I took it it gave me a high fever and chills and then dr prescribed me Oxcarbenzipine and it’s as if I never had any seizures. Please advocate for yourselves and stay strong. Also don’t get mad at the person who has had seizures if they crack a joke,coping mech, some of us are not technically there to witness😂😂
❤❤
Thank you so much for making this!
It made it so simple to understand, while still using the correct medical terms.
very very useful i as a nurse watch them all - thank u
I had a complex partial seizure that ruined my 6 month streak earlier today and I'm still a bit shook. It's 1am right now and I still can't sleep. To everyone going through this, you're not alone. Find a good doctor who'll listen to you and help you find the right meds and it'll get better. To everyone with a loved one or friend with epilepsy, I know how hard it is to have to watch someone you care about having a seizure knowing that there's nothing you can do but just watch and make sure they don't hurt themselves. My friend once told me that watching me have those is excruciatingly painful because she feels helpless. Honestly, as terrifying as seizures are, waking up to see someone you love watching over you makes you feel so much better.
By reading the comments tears are come in eyes because I was also had seizure in my childhood after taking medication on time for period of 2.5-3years without skiping the doses I completely free from this disease
The thing which cure any disease - we need to be calm - we should not be worry from disease we should need to fate in medication and hope of getting well soon and other thing is our love ones care and support are most important
Now I healthy and doing my studies well
Now I am feeling very blessed ❤️
I'll like to know what medication you used
Can you please let us know what medication you were out on
I also wanna know what medication u used
I am suffering from partial epilepsy since I was 3 but it happened very rarely like the first time i got it I was around 3 or 4 then second time in 3rd grade then I was on medicines for 3 years.. But recently I have had episodes of loosing awareness strong cramps in legs and stomach sweating feeling like I'm going to faint the bg noises fading.. Are these symptoms of epilepsy?
I have my son now 9 years started the symptoms in 2919 up to now he's on medication ,my worries is even in school other children Don't want him near them even to touch their lockers .But I trust in God because he was born healthy one day he will do a miracle
I’ve been in and out of hospital because of my seizures and it makes me cry every time every time I get it I haven’t gotten any medication yet for it
@T B I actually have been in and out of the hospital multiple times were you there with me throughout the whole time ? No so move along 🤣
This helps me understand my disease better
Damn relatable!
I was just the age of 4 when i became a patient &now after 2 decades, i still have it
Im always thankful to the almighty for the improvement& that he gave me the strength to face this all these years
May he give all of these patients the same strength& early recovery too🧿🧿🧿
Thank you. Dear . May gid give us strength and love
Did you take any treatment,I mean how did you recover from this
@@harshvardhanrai4674 yes
Ive been under medication since the age of 4 &there has been a lot of improvement all these yrs
@@deekshakumar21 so what kind of medication you took can you tell me please
@@harshvardhanrai4674 depends on the type of seizures-
Focal
Generalized
Focal &Generalised or maybe some other type
Its best to consult a neurologist for knowing exact condition by EEG &MRI scanning
Patient needs to describe how he/she feels during seizure
Accordingly they will take scans& prescribe medicines
Ive been taking both homeopathic& allopathic medicines
Am Having seizures, i've been taking some meds(medication) and seeing a professional doctor where am tired of seeing a doctor every start of month on a check up . i 've been taking my meds for 6 years (i started having seizures at age 12 now am 20 ) but there's no change, where my parents wants me to take other medication but not from a doctor but i refused so now they're mad at me and telling me that i don't wanna be treated but as i watched the video i think am goin' try the ketogenic diet and try several drugs medication to see what suitable for me to reduce my seizures i even broke my tooth on falling on a wash-hand basin and broke my arm a few days ago as i read these comments it makes me feel better and see that am not the only one having seizures thanks for the video it was helpful ---- spreading Peace and Love to y'all facing seizures : )
I’ve already been on three different medications and I still get the a few times a month
I am now 38. Had epilepsy my whole life. When I was in primary school I had general seizures. Now I have all types of seizures. Partial and General seizures. I am on 4 different chronic meditcations. I've been at 9 different neurologists through my life and still don't know what triggers the seizures. Mesial Temporal Sclerosis.
Dr told me to try pot am seizure free mostly absence rarely had temporal lobe and frontal lobe from accident have scaring in both lobes its the only thing that's worked well have had some pretty bad seizures including psyco and have quit breathing been in statis went for days sometimes not knowing who what or where no longer
I have onset epilepsy that’s caused by scar tissue from brain surgery. Usually just absence seizures and my last one caused me to total my truck and lose my license. I just hope anyone who has it can find a way to live a happy and safe life like I want to
This is helpful bc I have been having like when I just start to run without stretching or anything like my muscles and my whole body just starts doing its own thing and lock up and now I realize that I have this
This is a very painful experience to u and her but God knows long before you met her and knows how she will be cured always be with her showing how much is she valued to u May God bless you both
Thanks for rhis information... My son 1 year old is experiencing this type of seizure 😢😢🙏🏻🙏🏻
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
Woow in 5min i finally understand what I couldn't understand in my classroom thaaaanx 🌸🌸
Excellent lecture maam ...🙏keep helping us...your lecture is really very helpful.ANIMATION of videos are very very helpful...👍
Thank you for making this video cause I have and seizures and now I know how they even came existence basically
Share ko lang po ,may epelepcy din ang anak ko nagsimula ito nong 3 yrs old palang siya. Hanggang ngayon 8 yrs old na siya di parin nawawala.his taking valparine syrup since the beginning of his seizure till now, im always praying na mawala na sana ito at magiging ok na po ang lahat.with the help of our heavenly father, thank you so much,
Sodium valproate po yung maintenance ng baby ko
Try nyo hanap ng ceragem bed.. Baka maka help.. marami na akong narinig na naging ok sa ceragem bed
Hello po. Try nyo po kuya ang reflexology ng epilepsy, e RUclips nyo lng po Basta yung big toe po mina massage kasi daw po nghehelp increase ng blood flow. Yan po ginagawa ko sa bro in law, and it's effective less than 3mins po stop na ang convulsion nya unlike before 20-30mins
@@Greenderin7 anak ko 16 years old .up to now..mag madesin pasiya..mahabamg lost of consiusness siya..mga 24 hours ma wala sa ulirat tapos bigla nalang nag siezure..after that nawawala na.balik normal na uli utak niya..may ganun ba talaga
@@dennispangilinan78 TRY MO ANG NASA VIDEO
Thanks the information was very helpful
I had this as a child and have been seizure and medicine free for 7+ years but now have got it again because of anxiety + lack of sleep (and have been having seizures every 15 days , even on medication, has someone had a similar experience ?)
Hope you are okay that's a lot of grand mals how long do they last?
Indeed, My elder brother too have the same issue.He had seizure till the age of 3 then he haven't had that problem till his age of 16.After that he's been facing those difficulties for 8 years. He is 24 now.
Yes , a nurse even told me I couldn’t get seizures from lack of sleep and I knew better .. glad to know I’m not alone
Hi Elena first why you stop taking your medication
I went thru that as well
The explanation was brief and effective
I'm 16 and currently preparing for my neet'24 exam 😢, my mom is suffering from seizures since she was an teenager😭💔, i wanna become an well-known neurologist in future and can treat ppl with neuro problems and seizures
🧘♂️🙏
Bağırsaklardaki kıl kurdu nöbet geçirmeye sebep oluyor
Hii I'm Indian too! I'm just 17 and I'm suffering from epilepsy since I was 3 . I hope you become a great doc and treat us ❤
I am in jee preparation for 2025 affected by same disease
Thank you so much...this really helped. I have a presentation on seizures today and this had made me understand it better
this helped so much thank you
Thank you Ma'am, for sharing about seizure it's help a lot to me....
This was very informative thank you 👏🏼
I'm praying for our safety and total healing 🙏 And also our loved ones.. Keep safe'
I have simply partial seizures.
It usually happens when I am tiered during the day from work. And slowly drifting into a nap. And when I’m drunk or day drinking and I get sleepy. I am aware of everything happening in my body. I can’t snap out of it as much as I try. My lips jerk. I begin to drool , I feel like I’m going to have a heart attack and I panic in my consciousness l. And my breathing begins to slow down. It’s happened like 5 plus times..
Im thinking this is what my 7 year old daughter is having 😥
Hello I have been having grandma seziures at night for the last seven years have tried many different meds no help then the vns with great hopes no then the rns still waiting a year and a half just had 7 in a row such a bad experience for my wife and daughter. I am going to ucsf for a nother adjustment and was prescribed another drug with very bad side effects I was hoping it could be controlled not yet?
Pls stop drinking alcohol if you do
First thing to do is....get with your physician about detoxing from alcohol and avoid it like the plague
Stop drinking!!! COMPLETELY!! It brings seizures!! I stopped having seizures while awake after I stopped drinking alcohol!! Only then did I start driving!!
Thanks for the details.😀
I’m not sure if I have seizures or not, once every few days I tend to get this thing where my eyes flick back and forth a few times really quickly and I become a bit disoriented, and loads of times a day my vision flashes black for a second, and sometimes (especially when I am tired) my eyes sort of roll back and I feel dizzy as if i will pass out :/
i m also facing the same
I've had epilepsy for 41 years now and now I'm seizure free 8 years
good luck for all pharmacy student
Done a very needy video, thanks you 👍
Thanks for the information, I have been having epilepsy but I didn't know because mine only happens when I am sleeping, I shout so much and I can fall from the bed. Sometimes I find myself sleeping on the floor wondering what happened 😢
Me too. I hope you're taking your medication
@@gmercymw not yet I but I am planning to go for medication this month
@lameck Okay. I wish you well
@@gmercymw thanks Mercy
Same here. I am always having my seizures when i am sleeping.
Really informative and simple. I love it. Great for studying, im working to get registered as a tech
Thanks for that vital information.
I'm here because my 6 year old grandson just started having seizures 3 days ago. My nephew 16 been having them almost a year now.
Great video! Covered most of the aspects within 6 mins.
You guys are the best ✅
this is Amayzing thanks
Thank you for this video..
Tonic-clonic seizures are definitely no fun. Glad to be seizure free 3 years on a keto carnivore diet!
@Giyara Jain maine bhi use kiya hai branocon syrup and assicon syrup best hai
@@aayushirathod7387 brain injury huwe thi apko?
yeah i dont have those kind
@Giyara Jain What Are U Saying?
This is so helpful to understand. My husband had accident n his forehead had a hole totally injured by the traffic accident. Only his brain effected so much. Then he had some seizure n completely patient of epilepsy.
He always forgot the things even my humble behavior n always shout on me n said u r wrong. I was always support him. But hi mentallygave me torcher. Now i am sperated. N single mother. Bcz he had no affection for his toddler.
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
I was really scared when my mom got it while sleeping.. i literally have phobia from this now! I was so scared like i cried!
(I am 8 yrs old)
Great explanation!
I have had surgery and still have multiple seizures... I don’t know what’s wrong and I’m too scared to go to a hospital
Y hun
I can understand and I used to have absence seizures when I was in grade school. If you're not on medication then you may need to be. It may be not be just surgery you needed and if you don't go to the doctor then it could get way worse than what you think.
What does the surgery even do does it help people with epilepsy
@@dennisg209 all I can say is that I have a family member that would have seizures and I'm not sure what kind but he had surgery where they went in and took out a small portion of his brain and he stopped having them but I think he still took medication. I will find out and if I'm wrong I will edit my reply
I had a brain surgery and since that I never had a seizure again.
Voice of this voiceover is very good .
My husband has this disease. He is suffering a lot. 🥺
Thanks for the INFO. 👍
i do have brief seizers randomly and it reduce my studying efficiency. when im focusing on something if i suddenly think of other thing , i have the seizer , its like having a lag in a game. But imagine having that in ur daily life. its so tiring and exhausting to know that ur own brain limits ur ability to even live properly. all that and i'm experiencing this small seizers. i really cant imagine how people with bigger seizers deal with it. God bless whoever have epilepsy and all the people who suffer from this very painful hell everyday. And lets hope our doctors all around the world find the decisive cure asap. for the generations to come.
I have developed a stutter over the past few years.....I have had a few seizures and the last one was on new years eve the other day. I have no idea what's happening and have felt horrible since my last seizure. That day my stutter was very bad and right before my seizure I could barely speak and felt like I got electrocuted. I was very confused when I came to
Knowledgeable presentation
Thank you very informative
I have epilepsy since I was 4,now I have multiple sclerosis too, and seasures became more often than before.
Do you have multiple sclerosis? Hmmm
Hi I just wanna ask you if I had one or two seizures does that make me have more I think it's my drinking I'm not epilepsy
I was diagnosed with epilepsy when I was 12 yrs old and took medication (keppra) and it did helped me control it and it went away for some time. But now I’m 18 and for the past month I’ve been feeling like is comming back 🤒 and I feel so stress to know that it could happen anytime anywhere.
I got all the side effects and no relief from Keppra. Xcopri helped quite a bit but my Ins won't cover because it's too $ so on to another med. Sigh
Keppra gave me bad side effects and depression. I’m now stabilised on another epileptic drug
Please make more videos !! ❤️
My dad started having tonic/ clonic convulsive seizures out of nowhere a little over 1 year ago. He can't work and could have a seizure anytime anywhere. He takes 5 medications for other mental issues as well and have tried 3 meds for epilepsy already but nothing is working so far. It's tough man
Careful. His other meds might be the ones that created the seizure.
@@carloscabrera5311 hi Carlos. Do you know someone that started taking new medicines and then started having seizures? They changed my dad's recipe again, but thankfully this time he's been good for almost couple months. Only thing, he's getting fatter
Pot works it stops seizure activity and helps with depression and other disorders that's why it's legal so many places also some varites do a good job on pain
very very nice explanation thanks
I have Experienced Absence seizures, Tonic seizures, atonic seizures, clonic seizures, Myoclonic seizures 😁
a very vivid explanation
Epilepsy is a condition that can affect anyone. There are different types which can be triggered by different sources, such as light, or stress , or drugs.
Appropriate research will always be needed to improve the lives of people who have this condition.
I suffered from epilepsy. They stopped in 2018 its been 6 years since then. Doctors said i shouldn't have any further seizures. I still have so much anxiety everyday because epilepsy was something that affected me since i was a kid and i dont want to go through the horrors i have been through
I have had seizures of all kinds for over a decade I fell down 3 flights of stairs, collapsed and hit my face and scraped against concrete, broken teeth, bit my tongue and inner cheeks so bad, had absent seizures, generalized, tonic, had them when sleep, driving, walking, while in the middle of conversations, urinated on my self woke up so sore all over can't remember anything but that last thing I did. And once I couldn't remember my name no matter how hard I tried
None of the meds worked to stop my seizures. My Neurologist and I decided to try Medical Marijuana in 2019 and I am going for longer periods between seizures. My last seizure was in November of 2020.
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine.
Medical marijuana is not yet allowed in our country
Really really really helpful video thank you so much for this video... 🥂
Been searching through the net for answers, I was sitting in my chair just enjoying my time watching TikTok when my brain felt like it was going sleep and light mode. I felt like I was disassociating really badly, similar to drunk and or dreaming but much more aware. My whole torso started to lean and eventually fall, my limbs worked and I used all the energy I could muster to stand up but my torso felt like deadweight and caused me to fall back into my seat. I felt some sudden jerk and I started getting a mild headache, similar to after I disassociated for a short period of time. Torso still felt heavy but not as heavy as it was before, I was so confused. I walked it off thankfully, if it were worse I probably would have injured myself because I was alone in my room when it happened.
Hi can we talk
I used to have seizures when I was so young but I am fully recovered, all thanks to my mom and God the almighty ❤
I have seizure I just want to ask how cure seizure?it's started in 2019 until now, is it cured,