@@jackelyngarcia8929 Yeah. I’m surprised you are asking me when that sounds like the best news ever who wouldn’t want to be seizure free? By the way is it a Tumor and how big is it?
@@RobertWWD because you can die from surgery that’s why I’m asking. I’m not asking because I do not want to be seizure free. I’m asking if there is any risk ❤️🧠
I got diagnosed with epilepsy just about 5 months ago. I’ll never forget my first seizure, i was getting ready for school (I’m 17 btw) and started feeling very unwell and then it just happened, i seriously thought i was dying and it was so confusing and scary. I’m still not entirely used to having seizures and it’s so scary and frustrating every time, especially when they happen at school. I hope things get easier over time.
I was diagnosed with epilepsy when I was 6 years old. I had my last seizure when I was 17 (I'm 26 now). So I'm 9 years seizure-free without medication. I hope you have the same kind of luck and they taper out over time.
According to my watch history, I watched this video recently, yet I have no recollection of watching it. No doubt I'll forget watching it this time too. Hello future me, how are you?
My daughter (5 years old ) had her first seizure last year 2022 😢. On the 16 she had another one 😢 Am try to have a better understanding so I can be a better mom and help her anyway I can. Thank you for sharing
I'm sorry to hear that your daughter is having seizures but just if you ever need to ask any questions or need advice just send a message because I'm actually 31 years old and I've had seizures since I was 8 years old and I've had two different types of seizures I've had the complex partials and grand mal seizures which medical term wise they're called tonic clonic seizures
You are astonishing to be speaking that way in public, much respect, I commend you, my lady has epilepsy and I’ve witnessed in first hand what you’re explaining. Stay strong you’re amazing.
I had my first seizure yesterday out of the blue. I was getting dressed for work and felt completely normal then the next thing I know I felt like I was in a warped dream. I was laying in my bed, my head was bleeding (I hit it on the night stand) and I was wearing my night clothes like I had just changed into them. I don’t remember the time between getting dressed for work and waking up in a change of clothes with a bloody head. I was home alone. I called my manager to tell her I couldn’t come in and I forgot who she was on the phone 😂 my mom picked me up and took me to the ER. I had a 2 inch cut down to my skull and 10 staples later I’m home. But my body is So. Sore. My calves and neck ache. It was truly one of the most bizarre things that has ever happened to me
I think Tonic colonic sizures are what people think of when people ask. The best way to describe the way it feels (at least for me) is before I black out is first I get dizzy. Then I start having a really hard time forming words. Then comes the fun part. You know when blood starts flowing back into your leg after you sat on it too long and it goes numb. Imagine that pins and needles feeling turned to 100, but IN your head and down your spine. Then the next thing you know your on the floor, 20 minutes passed, every one of your muscles is aching like you just climbed a mountain, and your head feels like your brain was trying to break out of your skull.
This is how my seizures are. I had 1 on Mother's Day in a gas station. I'm still trying to figure it out. It's a horrible feeling and I always bite my tongue which is so painful.
You don't remember anything if you have a full blown seizure. You remember what you were doing right before and after but while you are having one you don't remember a thing.
@TB-53 Weird, I'm getting random replies almost a year after I sent this reply. Anyway, I get auras. You sometimes have them before a "full-blown" sizure. Maybe you don't? That's why I said I kinda have a bit of a warning before I blackout. Also, keep in mind there many kind of sizures and the way they affect people is really on a case by case bases.
When you are watching a scary movie...that moment when you're holding your breath, there are tears in your eyes...and finally, you scream. You are alone in the house. There is no one to comfort you. You go to bed shaking in fear. Hours later you start to awaken from a nightmare. You bolt straight into a sitting position, screaming at the top of your lungs. This is as close as you can get. When people can't explain the experiences of epilepsy, their friends and family knowingly abusing them by accusing them of faking their seizures for attention. Nothing in this world hurts worse.
People ask so many questions when i come back from a seizure, and I don't know what to say. I just try to collect myself in my head. People don't even give you time to collect your thoughts. They swarm you with questions, and it's so overwhelming and upsetting. I know they want to help once it's all over, but in the moment, I hate it. I always describe having a seizure around family members is like having a bunch of strangers around who know everything about you, but you have no idea how! For me it takes about an hour or 2 before I get my memory back.
After a car accident it's clear the police officer questioned me before my brain was working. Police report just says I don't remember what I had for breakfast, don't remember what day it is, don't remember my phone number. Yeah I was still out of it. Wait For us to start ASKING questions . I also don't remember talking to police because I wasn't there yet
My most recent seizure, a week or two ago, it took me a couple of days for my brain to get part normal. I couldn't remember how to cook, only very simple things like boil water or follow directions. I had no frozen meals. No snacks like protein bars. No crackers or chips. I finally ended up boiling potatoes and making mashed potatoes to eat something I try to keep something easy to reheat in the fridge all the time. I had instant mashed potatoes but forgot because they were in a different cabinet
I hate it when I have a seizure and people gather all around. It's overwhelming and sometimes I can get even more confused. I also hate it when I hear people talk but I can't talk back yet.
Ms. Robinson does an amazing job capturing my experience and I'm assuming the universal experience of an epileptic. I am balling here thinking of all the seizures I have had on a public train, at work, and at home. When she describes that point of being post TC seizure and you can think clearly enough, but not articulate your thoughts. To me I have never felt so helpless. I've been handcuffed to a train seat, but could not tell the police the cuff was too tight. Via sign language essentially, I was able to it sort out, but the looming helplessness is always there.
Omg this is exactly how I feel. I’m 42 and had my first tonic clinic seizure last week at work in the middle of a meeting full of coworkers in the room. One second I’m talking to a person sitting next to me and in the blink of an eye I wake up on the floor with 3 people holding me (one my head, another my legs, another running my arm) and I’m laying in what I later found out to be the “recovery position”. I have no memory of what happened. I was told that I was sitting at the desk and all of a sudden I jumped up my chair, started screaming and then fell backwards. Luckily the guy next to be caught me and broke my fall otherwise I’d break the glass wall that was behind me. They told me I had several seizures right after another. I was thrashing around on the floor, banging my head, my arms and legs in unnatural contorted positions. Literally it looked like I was possessed by a demon. When I woke up 25 mins later, EMTS were there and ppl from other meetings heard the commotion and ran to help. When I woke up I couldn’t speak, I didn’t know what was happening. I thought we were having some sort of an emergency drill and I volunteered to be the person on whom the drill was performed (like CPR or something). Then they started asking simple questions like my name, what year it is, what season it is, what month, date etc. I failed to answer all but one, my name. I couldn’t walk, I but my tongue off, skinned my knees. My blood pressure jumped to 210/110 and they thought I had a stroke. When they took me to ER and kept me over night all results came back normal. MRI was fine, CT, EEG, ECG all was normal. So now I don’t know when to expect it next. They wouldn’t put me on any anti seizure meds because they want to trigger it again in hospital setting. I can’t trust myself anymore. I shower sitting down with door open, I can’t drive, I can’t ride my bike. I feel so disabled all because I don’t know when to expect it again. It’s an awful awful experience even though you have no memory of it. It felt like I ceased to exist and came back out of non existence to existence.
I don’t get the part about them not wanting to start you on seizure medications because they want to trigger it in a hospital setting .. if the cost of you not taking medicine is outweighing the benefit of it being witnessed by doctors then it’d be more ethical to get you started on a medication. Plus with seizures it could be for a number of reasons or unknown reasons so how would they even know what would trigger yours? That doesn’t make sense . I’d say check with a different neurologist . Especially if you had multiple one right after another (like me) get on meds , even a small dose , it’ll give you greater peace of mind and independence
Agree, I started having seizures 17 years ago, I'm now 53, I just had family to video my seizures,I was put on anti seizure meds straight away I do find neurologists disagree with one another constantly. my life is now unrecognisable.@@Justforthiscomment-yt3oz
Yeah... I can relate to feeling disabled. Thankfully I live with my family and they provide for me. Just had a seizure a few days ago... summer 2024, got a deep laceration near my neck when I lost consciousness and had a grand mal / tonic clonic. Seizures are usually accompanied by auras... or... I prefer to refer to them as pre seizure symptoms. I hope you are feeling better. Ceasing to exist and then coming back is a great way to describe a grand mal seizure... when you finally regain consciousness it is like time travel.
Hi. There are some seizures that are non-epileptic. They won’t show up on an eeg as they don’t alter your brains’s electrical signals. A neurologist would be able to help you figure out if that is what happened- that is what it sounds like from your description. Unfortunately it can take a while to get in to a neurologist. So calling to make an appointment as soon as possible is good to do. Praying that you get this figure out.
@9SenseGod issue is the ones getting them usually dont really know much either, I have em and don't even remember them, all I know is it's not good and it hurts bad after plus it's a near death experience for me each time so I dont know anything or remember anything at all
Never had one till about a year ago, got one in the morning out of the blue. I've had 4 more since then, and each one of them feels so strange and nightmarish, I've only lost consciousness from it once but best way to describe it is a strange feeling, migraine visuals before your comprehension just vanishes, some muscle twitches. After it's just panic, feels like you know that you are going to die, and that this is your final moment before you wake up after, dazed with a horrible headache. Feels almost like a dream everytime it happens
thank you for helping while I was asleep I felt my brain felt an indescribable way it felt so weird and I heard almost like a echoed buzz sound and then my eyes opened and I couldn't move
I’ve been having these recently, like a lot my eyes are closed and it feels like both arms and legs are shaking but I couldn’t open my eyes then all of a sudden I wake up and my toes and finger tips are numb. Idk if I should get this checked
More power to you, all of us have different kinds of seizures and yes at the time it is very embarrassing and confusing but all we need at that time is reassurance 💜
I just had mu first Seizure last last November at work, felt normal and then i started to see all these colored orb's. went and laid down under a shady tree and my bottom left jaw cramped up, thought i was having a stroke, woke up after 5 minute's not knowing what happend and the boss telling me you just had a fit and the ambulance is on it's way, have had EEG and MRI scans ,now waiting to go to the Austin hospital for Epilepsy. and i must say i was very very sore after the seizure and now i can't drink any caffine or i become light headed and dizzy
I have grandmal seizures and they are the worst, loss of all complete control, and fall wherever I’m at and start shaking, even stop breathing, I’ve tried to learn to get use to them to make them easier but it’s an everyday battle luckily the seizures are only about 2 to 3 minuites
I've been there for over 50 years, I have petty mal and a few grand mal thrown in. Now I'm having a new type which the top bods can't give info on them . I'm showing them what they look like . Andy
I just had my first one and i felt nothing. Like I stopped existing. No memory. But what was happening was scary. I was screaming, thrashing, banging my head, stopped breathing and had several consecutive seizures in a row. I don’t know how I could control any of it if I’m completely unaware when it’s happening. I thank god it happened when I was with ppl and not driving. Had it happened 30 mins earlier I’d be crashing on the freeway on my way to work.
@@Cheese-Head you should reconsider driving, If you have had any type of seizures, you generally are required to be seizure free for 6 months before you can drive, and that’s with someone in the car with you
@@twitchelpadrino6150 I stopped driving. In my state it’s 90 days. If I have another one, the clock restarts. It sucks. I’ve never been in a situation where I can’t drive. Ever since I got my license at 16 I had a car. No tickets, no DUIs nothing. And now I can’t get around :(
I've had a couple from alcohol withdrawal. I'm not epileptic... you can shine a strobe light all you want in my face and nothing will happen but everything this women is saying is true you go unconscious. When you come back your a little confused and even suffer from tempary amnesia. You'll come back but you do lose your self for a bit it sucks. and I wouldn't wish it on anyone
Just so you know and are educated being epileptic just means you’ve had more than one seizure. And just because you are epileptic doesn’t mean that strobe lights will make you have one. Every epileptics trigger is different. I say this because I’ve literally had friends be scared to invite me places because they are scared I might have one when in reality that’s not the case and it’s not my trigger. (Mine was unknown for almost 5 years until recently)
@@cjaynesxoxo69 thank you for this this cause ive never had them in my life till a couple of years ago and its still not really known for me as well.... to be honest even the doctocers dont know why they happend... only thing they got was because i drank to much at the time..... yet ive been drinking for years,
@@cjaynesxoxo69 i honestly think its because i have a brian injury....ive had so many impacts to the head in my life through fights whith peices of shit...... but even after an MRI then couldent find anything...
Yeah I had to get off the meds they put me on and keep a seizure journal, then do a bunch of my own research to finally get the answers myself. I finally figured out what I have and to this day many doctors will still have to ask ME what it is that I have so they can go research it too.. US healthcare is very behind and unfortunately for how common it is epilepsy is still one of the most unknown yet also lucrative disabilities considering 1/10 people suffer from epilepsy. They make a lot more money in the US “when they don’t know what’s wrong” my advice: find a Chinese or natural medicine Dr. Your more likely to find answers and help. 🩷
Yes! 2 out of five of mine where from the same reason, some being from morning nicotine hits that just triggered it. Get a strange feeling, whatever bright thing I saw last stays in my vision nomatter where I turn or shut my eyes. After a few moments I can't comprehend anything, hear words or speak, my vision is gone from my right eye and all I can do I lay and let it pass. I've fallen unconscious once from it, the only where I had muscle convulsions in my neck and shoulders. I don't recall much but the sudden feeling of impending doom and confusion. Waking after sucked ass, feels like a hangover multiplied to 10 with a daze and memory issues for a few hours. Feels almost dream like coming out of one. I am not diagnosed, nor do I care to be from the infrequency of them, (roughly every 4 or so months.) I thought about getting it checked out, but I know the triggers and I know how to handle it, only fear I have is driving.
Me too. When I first started having them I would wake up out of them not knowing what happened and the paramedics would have to restrain me and sedate me with Ativan due to my aggression. Luckily when I have one now Im able to tell I had one when I’m waking up out of one and so i don’t get aggressive, just extremely tired 🥱
@@Loganjsherrill the scariest part has to be the beginning, completly losing control of your bodily functions, not being able to move, or even cry for help I’ve heard from others I don’t even breath, I’ve completly fell and busted my head alot of times, one time I fell off a top bunk, and got back on, without knowing, and fell down again 😒
I also can super aggressive when I am out of it. It's amazing that once i really come to, it's like a light switch in how I go from aggressive to super apologetic. I just need to be lucid.
@@brokenbat13 sometimes it could be just words that make it realize what’s going on but it’s very hard to talk to me when I’m screaming at you to get away from me lmao
I feel, the only one who can get me to stop hitting things while laying or can snap me out of the confusion is my girlfriend, I recognize her and dont at the same time but its so wild
I’ve had about 4 seizures in my life started when I was 18 my first one was at a house party everyone thought I got drunk and blacked out I ended up with a head injury no one believed that I wasn’t just drunk I couldn’t even remember what happened myself, the second one happened in front of my brother and some friends, the third was in-front of my uncle. Then the seizures stopped for about 10 years until last night while I was talking to my wife in the shower I just remember feeling sick and when I regained consciousness my wife was holding my face terrified because she thought I was dead. Still haven’t given a proper diagnosis but I’m going to make an appointment asap
I hope nothing serious is causing them. My first was at 14. Hospitalized to run tests. Diagnosed with epilepsy and been on medication since then Now 50 years later learning I'm probably autistic and it's sometimes comorbid to also develop epilepsy at the age of 14. Also learning that long term chronic use of some anti seizure medication can cause low calcium. Maybe that explains all the broken bones. Medical issues that causes loss of consciousness and treatment that weakens bones! Great combo I need to start taking vitamin D3 again maybe vitamin K Oh and if you're a girl, the meds can reduce the effectiveness of birth control pills. And cause increase in birth defects. It's a barrel of fun
I don't have ID but I have a mild seizure disorder and I'd say while the (grand mal; I've had other seizures too) seizure is actually happening, it's the same as if you're in a deep sleep or passed out; you're not conscious at all. I did have a brief consciousness during my first seizure where I felt my head hitting the couch, but otherwise I was completely unconscious until I came to and had stopped seizing. Afterwards I was confused and had trouble communicating. The confusion stopped after about an hour. The second seizure I was unconscious again but there was no convulsions and I still don't remember what happened about 10 minutes before and after the seizure. I never thought I would have a seizure disorder and I always thought you were conscious during the convulsions; I didn't realize what grand mal seizures were like until the day I had one.
I lose hours of time. All I want to do after one is sleep, because I just had a full body workout The most recent one I had I woke on the kitchen floor, sitting in front of the fridge with the door open. No idea how my head didn't hit the ground, or how my bony unpadded rear end isn't even sore. I lost consciousness. But my back is still killing me . I live alone so it took me a couple of days for my brain to feel like it was working again. It's a miracle nothing broke and that I can still get up from the ground and way. Even if it hurts I daily write down things, even date and time of eating and using the bathroom. Because it helps me piece together clues After. I really wish I wasn't alone
It's like you get the most weirdest feeling , you know your seizure is about to come but can't do a single thing about itv, blackout, comeback and try and beat up your head trying to remember who you are where are you what were you doing ... I once had focal impared awareness one during exam and I forgot why did I come there in the 1st place ...
I only have seizures when I awake from my sleep so in my case it's like waking up and feeling this sudden feeling of dread and anxiety, then it slowly builds up to panic until finally my vision starts to blur and I fall into my bed unable to control my body. It's a very scary and annoying experience since all I can do is listen to the commotion around me and think what am I am gonna say when I finally am in control again. (Been 2 years since I have discovered this and still holding to hope that it will end one day)
I developed epilepsy over 50 years ago and all my seizures have been grand mal. The worst one happened while I was seated in a restaurant booth and broke my arm. Since I was in the postictal phase, I couldn't inform anyone so when I finally came around, the pain pushed me back into another seizure. My husband called the ambulance and I had a 3rd seizure in the ER. They found out that i broke my arm up near the shoulder and it had to be replaced. 3 months of PT and my shoulder has never recovered full function
My first seizure: By Patrick Connolly. Either it was on steve sippels half pipe in Carmel ca. I was 12 years old , 57right now. Or shuelte rd/Carmel River on arturos' yz 80. The half pipe i stopped skating and puked on the ramp. In the river ,dry at the time, i pulled in the clutch and sat there.Arturo rode us back to Dottie Arnold's house. 2yrs later came my first of many grand mals.
I had a seizure about 4 months ago, I was just walking on the street and I saw a flashing light. At first I ignored it, but it kept getting larger and flashing more frequently, then I started feeling impending doom. Terrible feeling, I thought I was about to die. So I start panicking, and yelling "HELP ME" like some sort of crackhead. I remember losing my balance and falling into a streetlight. At that point it went dark. I woke up a bit later and I retained some of my memory. I was slurring words, I couldn't stand up properly, I was irritable and I really wanted to sleep. I don't remember my trip to the hospital, I do however remember laying down in the temp room, I was talking to my father and funnily enough, I had yet another seizure. I later woke up in the reanimation ward. I barely remember anything else from that day. It's all just a blur. So anyway, 3 MRIs and 5 EEGs later, they told me that I suffered from a stroke. I don't know how I didn't get paralyzed but it did get me some mild mental issues. TLDR: I had a stroke at the age of 16.
DUDE, SPOT ON TO WHAT MINE FEEL LIKE - well, no stroke for me, but the onset feels identical. One I had my fan light just in my vision, I could turn, close my eyes not matter what it would just stay. I lose vision in my right eye, feels like looking through my peripherals, where whatever is directly infront of my right eye is practically invisible. The one time I had one that brought me unconsciousness had that same feeling that it was it, that I was going to die. I just remember being on my phone, then getting hit with an almost dreamlike feeling before shutting off my phone, and still seeing my screen wherever I looked. After a few seconds my head started to jerk back. I have no recollection after that, except waking in my bed with coffee spilled all over it, confused and with a horrible headache. I still don't know the cause, but it's not frequent so I don't worry much. I hope you are doing better though, I've been lucky to have them confined in my room
I'm lucky that I rarely have siezures. But for me I don't know how it feels having a siezure I just know how it is after because I just wake up on the floor, I can't move even if I try I don't have the strenght to get myself up until a bit later, I don't remember what happend before on that day, I'm in alot of pain and become depressed. I haven't have siezure since like maybe 5 years which feels very nice
The worst part for me, are the panicked feelings that come with the auras. It’s just so unbelievably scary, and those are the only parts of my seizures that I’m conscious for. I’m incredibly lucky, I’ve only had Grand Mals in private. I have only soiled myself once, and my mother was incredibly kind and reassuring, I can’t imagine going through that without someone.
After developing a tonic clonic seizure in college I was diagnosed with having epilepsy but I also found out I had occasional short duration absence mals throughout childhood. I didn’t know that my childhood mals that I was having was not something that everyone has. The medication I take now controls all aspects of my epileptic seizures. No seizures of any kind.
I had my first seizure out of the blue. It’s like I died and came back to life. I couldn’t breathe properly when I woke up. I was so scared. I’m on my way to get an mri. Wish me luck!
I mostly have petit mal seizures/focal seizures (which i call "epileptic stomach-butterflies" ) but also can have tonic-clonic seizures. I get a warning before and don't pass out luckily, but i remain aware of what happens through the tonic-clonic seizure: i can feel my body going rigid, my arms extend up; my eyes roll back; my mouth gets pulled to one side; i can feel myself shaking like a fish out of water and can hear the jerkiness of my breathing; i think i foam at the mouth and then after the rigidity and shaking wears off, i can hear myself making a sound like snoring. And then I'm really tearful, headachey and washed out. I was ever so close to having one two days ago so hence I lay on my bed to prepare.
I have a little bit of a messy epilepsy diagnosis where I have not only Epileptic seizures but non photogenic seizures . The issue is learning which are the real deal in the brain seizures and which ones are not ! The fact I have both has been a struggle ! They started as epileptic full blown tonic clinic seizures but I received so much trauma from them my body started having non photogenic seizures as well ! It’s been horrid ! It all began in 2004 and it’s been a battle of drs meds and lifestyle since . I’ve been in many ambulances and hospitals and even stopped breathing and my heart stopped last year and had to have be brought back to life . I’m on a good path now but it’s one exhausting disease .
I had a tonicclonic at work and fell off the back of a semi trailer, split my head open and had to get some staples put in. Never had them before but haven’t had one since so hope it stays that way. Couldn’t drive for 6 months.
I had 4 grand mal seizures in an hour on Christmas and then realized I also had covid. I had my wife there and so amazed that she is used to it but knows how to help
Just had my first seizure last week at 22 years old. Happened during sleep at 5:30 in the morning. Woke my girlfriend up laying next to me was a tonic clonic seizure lasting about 5 minutes. EMS came to get me and had a second seizure about 2 hours later in the hospital. They started me on keppra immediately after. MRI EEG and EKG all came back normal. The weirdest part of all of it is the extreme confusion and no memory of any of it. Literally just felt like I time traveled a whole day . Have a follow up this week with neurologist praying I can get answers.
i’ve had 2 pretty recently this year and and from my experience i mentally blackout but my body continues on, and at some point i begin to realize that my EYES are indeed closed and then the realization hits of where i was but also thinking i don’t remember making it home, and that’s what really triggers my brain that “hey we gotta wake up.” (context: i associate my eyes being closed as me being asleep at home) this second one happened very similarly to the one earlier this year, felt no unusual feelings and was waiting for my wife to come pick me up from work (license is suspended bc of a prior seizure, although i am trying to get that back at some point but i just wanna focus on what’s making the seizures happen and preventing them long term) and boom had a TC for god knows how long and no one was around to help me and from what i’m told the front receptionist had called me asking where i was because my wife was outside waiting and all she heard was loud banging and the sounds of me most likely flopping around like a fish, she then asked if i was ok and apparently out of all that noise i managed to very clearly say “NO!” then i managed to somehow get outside and walk 10 feet before apparently collapsing and thankfully my wife came to my rescue and started barking orders for what to do for me. All in all it felt like getting knocked unconscious and then waking up feeling the worst pain all on my backside from the muscles contorting during the TC and i started to cry because i felt so embarrassed by the whole ordeal.
i dont have epilepsy, but i've had seizures twice. the first one was 3 years ago and it happened in my sleep. i remember waking up, but i was half conscious. i had blurred vision, i was stiff, and my arms and legs jerked uncontrollably. idk how long it lasted, but i remember suddenly waking up the next day. i was sore and sweaty. my last seizure was a couple hours ago. this one was worse. i was taking a shower and i kept jerking briefly (this happens if im tired or just woke up) and slamming into the wall. i lost consciousness while falling, but somewhat gained it again temporarily. at this moment, i was stiff, i felt a tingling sensation, i felt my mouth open, and i tried to scream but couldnt. that was the most terrifying part. idk what happened after, but i somewhat gained consciousness again but it felt like i was in a dream. i was pacing back and forth and imagining something but i barely remember it. i do remember feeling anxiety and dread though. im super tired, and i feel like i should sleep, but im too scared to. i might on accident
i have been diagnosed with non epileptic seizures, i only have them when i’m asleep or upon waking , i get them for a while or few days every now and then. It is the worst feeling in the world when you know that it’s coming and when it does, it’s awful from my experience, i can hear myself screaming while it’s happening, it’s so weird, i feel like i’m hitting myself but what my family have told me when they see me having one i am not. i get so confused afterwards and have brain fog/tiredness for days, makes me really depressed.
I experienced this today for the first time and I have been shaken up all day. I feel so tired but I’m so scared to sleep now because it happened when I was asleep .
I have FND causeing me to have 98.9% non epileptic seizures I’m very foggy can’t speak normally for almost 1 hr after my seizures hard to move sometimes can be cranky for almost a week and weakness and headaches are quite common sometimes for me it almost takes a full week for me to fully recover and I always have cluster seizures but am semi conscious during them including I can hear so I listen to my calming comforting music during my seizures and yes I do use valtaco during the seizures
People ask me what I see when I’m having a staring seizure and I don’t know what to tell them. My tonic clonic seizures are under control every since I stopped taking courses for college because of anxiety, worry and stress.
Most horrible pain I’ve ever experienced waking up and seeing paramedics. It’s taken me 3 wks to get back to feeling normal after not remembering anything and it’s still some thing I have forgotten. My personality feels different and so does my feelings about life. This is weird and so embarrassing.
My epilepsy started when ibwas 10yrs old, a few TC seizures during the day, but mostly at night while i was asleep. Im now almost 39, and the TC seizures have stopped, went through most of my 20s with nothing. Then when i got to almost 30, it all started again. But now im having focal seizures. Sometimes im still responsive, most of the time not. I know when they're starting. It feels like i dont know where i am as everything looks different and feel disorientated. Memory seems to slowly turn off, start to not recognise people. Then after that, im told by others that i become unresponsive, look at them as if i dont know them or what theyre saying, and simply look around as if im puzzled and dont know where i am. My wife tells me that if she asks me anything at all (so do others, when they see that im having one) even "are you ok, cone on sit down for a minute" i dont realy respond to them, i just look at them with a puzzled complexion and shrug my shoulders while holding my hands up. Tbh a lot of the time i dont know that it's happened afterwards and my memory of a little while afterwards simply isnt there., its as if a part of the day afterwards has simply disappeared. I cant describe it much more than that tbh When i was
LMAO yup! I feel like I got ran over by a truck and the disorientation and confusion afterward I am so disoriented I and it lasts for a couple of days before I feel myself again.
It feels like dejavu and don't feel if you bite your tounge or not, then you might feel like your body tenses up and your head goes to the right , and you black out and wake up again like what happened its crazy I want to be cured
Yep, mine starts with kinda the feeling of falling in a dream, where you jerk awake with confusion. Usually I get some odd visual stuff right before it happens, whatever light I see lingers in my vision whether eyes closed or open, before losing sight in 1 eye. I've only had hard convulsions once, which was the same one that I fell unconscious for, started with visual queues, then the feeling of dread and fear. Seconds later my head was convulsing back and to the right. I don't recall anything between that and waking, but waking is always confusion, you still feel almost dreamlike and with a headache. Everything just feels off after for a few hours
I just had 2 in one morning on the 4th. First time and hopefully last time. I screwed my back up so badly I had to wheeled in and out of the ER and can barely walk to the bathroom. They’re alwful.
I know the feeling waking up from a seizure. I was at work and fell on my head. I woke up in back in ambulance with my boss closing the doors. I woke up telling them I was alright which I wasn't I was really out of it. They said I didn't know my name. I was so weak I could hardly walk.
I didn’t know anyone would be aware of such things I don’t remember any of my Seizures but I had my Tumor surgically removed when I was a Kid so that might be why.
Right before I would have a seizure, my entire body would suddenly feel numb and fuzzy at the same time. Like the pins and needles you feel when your foot falls asleep. Then a second later, I'm on the floor flopping like a fish. My eyes roll back so all I see is black, but I can still hear and feel everything that's going on. Hearing my family freaking out, feeling the uncontrollable jerking of my body and my family turning me on my side. It's terrible. After the seizure, I'm weak and exhausted and it's difficult to swallow anything for a while.
I dont know what happend to me... but today when i got up from bed too fayt... i expirienced that many times and i just get my eyesight blacked out... and i start to feel dizzy and start to wobble around... this ussually takes 10 seconds maximum... but today it was bit different... i get up from the bed fast and been dizzy... and then it was bit weird... becuase i didnt know what my hands were doing, i felt that they are moving... but i didnt know where moving... it was weird....
I am not a doctor, but from what I do know from experience is that It could be your blood pressure. Getting dizzy after standing usually means that it is low. So maybe this time your blood pressure was particularly low, and it took awhile to get blood back into your brain. It is likely not serious but please let your doctor know next time!
My new partner has told me she has seizures that feel like she is dreaming and then wakes up randomly. She’s not had one for over a year but i want to learn as much as i can. She said her heart has stopped before and she had to be resuscitated.
@ I just went to the hospital and got some more like idea of what I’m like and I had a 5 minute seizure and every time I have one, when I wake up, I just feel like I’m dreaming and i can’t speak for everyone but that’s my person experiences with it
No history of seizures. I hadn't slept the night before, my girlfriend was very ill with her first Migraine. So when she woke up at 6am, I had just stood/got up after watching how she is for the night. Felt normal, no other health problems aside from chronic pain in my back. I am 21yrs old. I proceeded to do the daily chores. Loading the dishwasher, tidying up, etc. I got what I now know was an aura about 4 hours before. Cannot describe how it feels, the aura felt like I was looking at myself in the third person POV. Like a video game. Not confused, but a weird feeling. Her mom and her boyfriend came home, at this point I'd gone to the bathroom to wet my face, noticed my pupils were the size of saucers... That's it. Black. I was told I came out of the bathroom, my face went almost skew, and I fell over backwards like a stone. Smashed my head on the floor, during this time and bit a huge chunk of my tongue off. And began shaking for what was timed as 6 or so minutes. I do not have health insurance and in South Africa where I live, paramedics will charge you on site for procedures or emergency callouts, which is super expensive. I was not able to have that luxury. My girlfriend handled it extremely well. Got me into the recovery position, bearing in mind that I have never had a seizure before and I'm now jerking and foaming out the mouth, topped with a lot of blood from my tongue wound. I do not remember walking up, they asked me basic questions. Name, date etc. Got them all right. Could.not speak due to the tongue which they noticed but I was able to stammer up the answers very vaguely. I remember 2 hours later I was in bed. My body was in pain for 4 days afterwards. Could not move at all. I was extremely stiff. I'm terrified of doctors and hospitals. And I'm seizure free since that happened almost a year ago. It was incredibly scary for me, I know now if I ever have such an aura or common aura symptoms, to just stay in bed. It's very scary... My heart goes out to the people who deal with this chronically. It is not great at all.
Last night i had my very first episode after 24 years on this earth and its left me very concerned, beside a drop in your blood sugar is there anything else that anyones knows may have caused it, i felt extremely light headed, was able to articulate that to my sister who was next to me, and then the next thing i remember i was waking up from the floor with her looking after me, im feeling pretty concerned about it if anyone can she'd some light for me please
Epilepsy is a spectrum, but I would say it's, as some who has Unknown Seizures, but I like to call them "Silent Seizures", it's like I die and then come back to life. I can feel my body shutting off one part at a time. I don't thrash around, but I do stop breathing.
Not sure if this was a seizure but like i was getting up from my bed and suddenly i felt light headed and stood there for a second then suddenly i couldnt see and a buzzing in my head kinda started and i couldnt move i was holding onto something and this sounds weird but like i remember a samsung boot up that was all i remember seeing and it went dark then i suddenly could see again but like my head was hurting also when this happened i felt like i was paniking or something it was very weird kinda a subconscious scared feeling
I've felt the same buzzing thing, my vision fades out on one side and I lose the ability to read or comprehend. If I saw a light before it starts, the image of the light hangs in my sight wherever I look before fading and being replaced with the blindness I'm my right eye. I've had one bring me unconscious, started out of the blue and within I think seconds I felt my head convulsing backwards. I've been in near death experiences, but nothing compares to the fear during a seizure, you feel assured that it's it and you are dying. Just to wake later, confused as hell with a horrible headache and nothing feeling real for a bit.
Had my first in November,been on keppra for 6 months.No seizures but dizzy spells and butterflies in stomach feeling always.Pins and needles sensation in body at suoermarket,thought i was gonna have another seizure,luckily no.Seem to be no improvement.
I had a full blown seizure on my livestream a few weeks ago, and over 500 viewers saw my underwear and me in a very vulnerable, undignified position. So embarrassing.
Greetings. I feel like I am going through a bad dream in which I cannot wake up from during and afterwards, I have a bad case of amnesia. It takes a while to recover from this scary event. .
For me I feel like I'm confused and everything is slowing down, then I feel a new smell, then I feel nauseated and then I start having a seizure and stiffen up and twitch a lot.
My dad recently had a seizure rn hes in the icu and he never had seizures before and they say that they think hes not gonna mke it because the fall also caused bleeding in the brain idk how to process this
I have Grand Mal Seizures, I black out, and feel and remember NOTHING during the event, but Before and After are total different... as there are stages of seizure activity in the brain. Mine seem to be caused by dehydration and are accompanied by: severe tiredness, disorientation, and abnormal levels of confusion. After the Grand Mal, I feel like my body was essentially... well, I have never been beaten up by a heavy weight boxer, but I assume that is what it feels like.... in a word: Horrible
@@justinpontarelli4368i don’t have serizures right now but i can feel something coming im not sure exactly i shake a ton at night i wake up with bruises and very confused. I hope nothing happens in the future my symptoms are worsening
@@MRC4 , that sounds hard to go through, you may want to see a neurologist... just in case. During my last seizure I had a close brush with death... I jabbed my neck with a chunk of an old wooden desk... when my family found me I was bleeding. My neuro. Has me on a ton of meds right now. Anyway... make sure you eat well, drink enough water, exercise... everything that I'm lousy at, lol. I hope you get better, I wouldn't wish epilepsy or seizures on even my worst enemy.
I have 3 different types of seizures and If you ask me they hurt like hell. Epilepsy, Grand Mal, and Tonic Clonic Seizures. For people who doesn't have them trust me yall don't wanna know what they feel like because they really hurt like crazy too.
Something about the bathroom makes me have tonic clonic and I have both peed and pooped in the bed so I think I’m always trying to get to the bathroom for some reason
Sounds more like the tonic clinic seizures are just making you incontinent (pee and poop yourself) which is a common side effect of seizures. You just happen to have a full stool when you get them but I don’t think you needing to go to the bathroom is a trigger but hey what do I know
And every time I have one I'm in so much pain my back hurts my muscles pounding headache wonder if I sold myself and I get sick to my stomach I don't even recognize my fiance when I get out of a seizure
Had a seizure. I’m not epileptic. But I was already feeling just staticky so I decided to drive myself to the hospital.. ( BAD CALL, IN FACT. HORRIBLE! ) woke up in the back of an Ambulance being asked repeatedly by an EMT if I’m okay and I’m aggressively telling him I’m fine! Meanwhile I was on the verge of vomiting a LAKE! I thank God for Keppra.
Wow, I hope you are feeling better, ❣ I had a very similar experience about a month ago. I would have died if a neighbor didn't call the bldg manager about groceries left in the hallway that were not picked up for days. I was found on the bathroom floor, naked by my son (LOL). Luckily, he was home b/c he often works out of state for months at a time. I don't have a car (thankfully) now and It's getting too stressful to worry about all the additional tests. phone calls, etc; (and perhaps pointless at my age/condition). I just want some peace, finally.
I hope you’re doing fine as well! I just hate the fact that how embarrassing post seizures can be.. it’s like getting drunk at the club and not remembering anything you’ve done but people actually tell you what you did lol
Yes it was terrifying struggling to move or speak I think I was having a nightmare just remember being very scared..seemed like like an eternity to pass finally was able to speak and move. However I don't think that was the worst one it felt like it tho. I now have a 24/7 cameras watching me when I'm home by myself. My family knows the signs and when I start talking incoherently and erratic behavior they know I'm about to have one and keep will hold a pillow in anticipation.
I have PNES , if you don’t know what that is , psychogenic, non-epileptic seizures. When I have one it’s horrific I’ll have them in a store , home. Dr.s office what it feels like , I get confused I feel something in my stomach, I feel hot , smacking my lips , I wonder around, if an or when I can figure I’m going to have one , I can take ……. A nitro yes a nitro it helps me come right out of it . I feel weak , very thirsty water I want water . No at times I am unable to drive . But I come out of the episode I have a headache but otherwise I’m fine I can drive home, an of course I’m on meds that helps , sometimes it … what I call bleeds through . PNES is a deep unseeded emotionally non threatening seizure that last less then 5 minutes. I’ve had them for years- they are caused from trauma ………… mindfulness meditation / body scan medication therapy is the best option for healing 🌻❤️
You know what epileptic teached me, it is only good to have some challenge in life and I thought when 18 years old let's leave NDL and go to NZ and have a life full of fun and be grateful to have epilepsy as it tells me not to spend time on religion and to think for yourself,, ones have a fit there is less blood and oxygen in the brain,, and than we are unable to recall what happened during that time,, so I say when I'm dead no blood or oxygen to my brain,so no awareness at all, so that brings me to the last point ☝️ to enjoy each second of our lives,, and guess what after travel to 60 countries in 20 years I'm now ended up in one of the most stressful city hong Kong as what is been told but yeah I don't agree,, and run here a international education and sustainable development platform in the business of art and design and wood work, and no more medicine,, and yes 7 days a week work , but it is my baby,, I couldn't be happier,, and I just want to explain,, we ,, yes we epileptic people,, we shall not fight against it,☝️ please learn to embrace it, use it for yourself as a challenge to make proud,, and endure endless great achievements in the sense what gives you satisfaction,,. No fear,, only love and positive mindset and energy 💪💪💪💪🙏 kind regards Rob
@@reshmi11182 maybe everyone should go to hong Kong who has epilepsy, as HK culture and environment and infrastructure works perfectly for my epilepsy, aswell of importance, having a target a goal a direction what is for everyone of high importance as it than settle down in the brain and thoughts and you know than where you going in life, it's giving stability, and yes I definitely found that in HK 🤣😉🤗😊
Well said Rob, we're all warriors to have fought & continue to fight such a terrible disease. I'm 49 now and have been suffering from it since i was run over by a car, 44 years ago. 2 years ago i suffered post concussion syndrome. Its very unpleasant but we embrace it the best we can. Peace to all fellow epilepsy sufferers.
The only way to describe a seizure. It feels like you're typing on a computer and for reason, it sends up a blue screen. And then it shuts off and has to reboot.
For me ,having epilepsy is like,no you cannot live forever and can't reincarnate or even live,again like those egypts true story,and having no treatment,and just dying.whats worse is that it makes me feel difficult.harder dealing at lives, activity,things and every items.things at life
Can trauma (physical or emotional) cause epilepsy? I have epilepsy but nobody in my family suffers from it, i am the only one. My mother unfortunately was someone who...tend in the past when i was a baby to hurt me. I still don't know why. She was stressed and was a single mother. Then one day i see double and we get to the hospital and they diagnosed me with epilepsy. I just want to know the truth. Can physical abuse or being hit too hard cause epilepsy?
Yes, trauma, such as a head injury, can cause epilepsy. However, for individuals who have epilepsy without any form of brain damage (e.g., I have epilepsy due to brain damage from a stroke that occurred right before or during birth), it can occur without an identifiable cause.
I think it's shit as I have grand mals epilepsy now and I was a electrical engineer and had to stop it all and it's really imbarracing now people think bad of you because you're having them and it's hard to get around without being put down and people taking the piss and it's not nice I've had these seizures for 14 years now and I'm 36 now and it's hard to get around without having one on the street etc and nowadays people think you're on something or drinking and won't even help you even though you have epilepsy yet they want you to help them whenever they are hurt etc and it is really shit for people who have epilepsy as others do not give a shit if you have one on the street or not as most people nowadays just walk round ya or past you it's very hard to be epileptic
When you are having a seizure you lose focus and you lose control of your body mind and actions seizures can make you do things like walking out of a vehicle while you're on the road
Hi have suffer with epilepsy since I was 7 year old new I am now 43 year old and I still suffer with epilepsy only a week a go I have a go I had to escorted to hospital I was when woc up in the hospital I was told by my mom ambulance took an hour and a half to come so instead drive to the hospital bye my brother. 2:12
I’m having every single sign of a seizure every single day for the past couple months but the hospital said it’s just anxiety and I’ve had multiple seizures before when I was doing Xanax and cocaine but I’ve been clean for about 2 years and I feel exactly how I would feel when i was doing drugs and having seizures somebody please help…..
And just 4 days ago I went completely blind on my left eye and for 2 hours . When I finally gained my vision back I had an EXTREME bad migraine on my head and on my eyes
I understand about Grandma seizures I have them I'm 40 years old and I've had them ever since I was 21 medicine doesn't help my grandma seizures the more medicine I take the worse it my name is Steven and I don't know what to do
I was diagnosed with Epilepsy when I was 2.
When I was 8 I had a Brain Tumor surgically removed.
24 years Seizure free.
May god bless you
Much luck and love
Should I get the surgery then? I have August 30th until to think about it. It’ll help me become seizure free ❤️
@@jackelyngarcia8929
Yeah.
I’m surprised you are asking me when that sounds like the best news ever who wouldn’t want to be seizure free?
By the way is it a Tumor and how big is it?
@@RobertWWD because you can die from surgery that’s why I’m asking. I’m not asking because I do not want to be seizure free. I’m asking if there is any risk ❤️🧠
I got diagnosed with epilepsy just about 5 months ago. I’ll never forget my first seizure, i was getting ready for school (I’m 17 btw) and started feeling very unwell and then it just happened, i seriously thought i was dying and it was so confusing and scary. I’m still not entirely used to having seizures and it’s so scary and frustrating every time, especially when they happen at school. I hope things get easier over time.
How are you ? Any good news ?
@@joma05 first of thanks for asking it made my day, and I'm doing good and I'm just learning to live with it, gets easier over time
@@karenrodriguez.7576 That is good to hear. How often does it happen to you ? Couple times a month, week or is a daily event ?
I was diagnosed with epilepsy when I was 6 years old. I had my last seizure when I was 17 (I'm 26 now). So I'm 9 years seizure-free without medication. I hope you have the same kind of luck and they taper out over time.
does it hurt?
According to my watch history, I watched this video recently, yet I have no recollection of watching it. No doubt I'll forget watching it this time too. Hello future me, how are you?
It's like dying and coming back to life.
Mine feel like somebody chopped my leg off and at the same time being electrocuted
Couldn’t explain it even better!
for me waking up after it resets my head and I forget stuff like times that I’m supposed to work
oh so its not that bad? cuz dying wouldnt feel like anything... cuz youre dead
I thought that I was dying when I first had one
My daughter (5 years old ) had her first seizure last year 2022 😢. On the 16 she had another one 😢 Am try to have a better understanding so I can be a better mom and help her anyway I can. Thank you for sharing
your a good mom 💗 i hope you and your daughter are doing well
❤
I'm sorry to hear that your daughter is having seizures but just if you ever need to ask any questions or need advice just send a message because I'm actually 31 years old and I've had seizures since I was 8 years old and I've had two different types of seizures I've had the complex partials and grand mal seizures which medical term wise they're called tonic clonic seizures
You are astonishing to be speaking that way in public, much respect, I commend you, my lady has epilepsy and I’ve witnessed in first hand what you’re explaining. Stay strong you’re
amazing.
I have epilepsy and I have different kinds of seizures but you described it pretty well hun x
Thank you for making me feel like I'm not alone; I can relate so much and tend to be ashamed
I had my first seizure yesterday out of the blue. I was getting dressed for work and felt completely normal then the next thing I know I felt like I was in a warped dream. I was laying in my bed, my head was bleeding (I hit it on the night stand) and I was wearing my night clothes like I had just changed into them. I don’t remember the time between getting dressed for work and waking up in a change of clothes with a bloody head. I was home alone. I called my manager to tell her I couldn’t come in and I forgot who she was on the phone 😂 my mom picked me up and took me to the ER. I had a 2 inch cut down to my skull and 10 staples later I’m home. But my body is So. Sore. My calves and neck ache. It was truly one of the most bizarre things that has ever happened to me
Wishing you rest and recovery and hope you can build the best supports !
I’m so sorry 😢
❤
Hope you are fine now
Oh that’s sounds terrifying! Glad you’re ok. Have you had a seizure before this and have you had any others since then?
I think Tonic colonic sizures are what people think of when people ask. The best way to describe the way it feels (at least for me) is before I black out is first I get dizzy. Then I start having a really hard time forming words. Then comes the fun part. You know when blood starts flowing back into your leg after you sat on it too long and it goes numb. Imagine that pins and needles feeling turned to 100, but IN your head and down your spine. Then the next thing you know your on the floor, 20 minutes passed, every one of your muscles is aching like you just climbed a mountain, and your head feels like your brain was trying to break out of your skull.
This was a good example of what i have.b
This is how my seizures are. I had 1 on Mother's Day in a gas station. I'm still trying to figure it out. It's a horrible feeling and I always bite my tongue which is so painful.
This describes me exactly.... I thought I was the only one...
You don't remember anything if you have a full blown seizure. You remember what you were doing right before and after but while you are having one you don't remember a thing.
@TB-53 Weird, I'm getting random replies almost a year after I sent this reply. Anyway, I get auras. You sometimes have them before a "full-blown" sizure. Maybe you don't? That's why I said I kinda have a bit of a warning before I blackout. Also, keep in mind there many kind of sizures and the way they affect people is really on a case by case bases.
When you are watching a scary movie...that moment when you're holding your breath, there are tears in your eyes...and finally, you scream. You are alone in the house. There is no one to comfort you. You go to bed shaking in fear. Hours later you start to awaken from a nightmare. You bolt straight into a sitting position, screaming at the top of your lungs.
This is as close as you can get. When people can't explain the experiences of epilepsy, their friends and family knowingly abusing them by accusing them of faking their seizures for attention. Nothing in this world hurts worse.
People ask so many questions when i come back from a seizure, and I don't know what to say. I just try to collect myself in my head. People don't even give you time to collect your thoughts. They swarm you with questions, and it's so overwhelming and upsetting. I know they want to help once it's all over, but in the moment, I hate it. I always describe having a seizure around family members is like having a bunch of strangers around who know everything about you, but you have no idea how! For me it takes about an hour or 2 before I get my memory back.
After a car accident it's clear the police officer questioned me before my brain was working. Police report just says I don't remember what I had for breakfast, don't remember what day it is, don't remember my phone number. Yeah I was still out of it. Wait For us to start ASKING questions . I also don't remember talking to police because I wasn't there yet
My most recent seizure, a week or two ago, it took me a couple of days for my brain to get part normal. I couldn't remember how to cook, only very simple things like boil water or follow directions. I had no frozen meals. No snacks like protein bars. No crackers or chips. I finally ended up boiling potatoes and making mashed potatoes to eat something
I try to keep something easy to reheat in the fridge all the time. I had instant mashed potatoes but forgot because they were in a different cabinet
@recoveringsoul755 man that sounds rough
@@sgtpolk normally medication keeps it under control. But the expense has me trying to stretch them out
I hate it when I have a seizure and people gather all around. It's overwhelming and sometimes I can get even more confused. I also hate it when I hear people talk but I can't talk back yet.
as a writer, this is very helpful - thank you
Cheers!
Ms. Robinson does an amazing job capturing my experience and I'm assuming the universal experience of an epileptic. I am balling here thinking of all the seizures I have had on a public train, at work, and at home. When she describes that point of being post TC seizure and you can think clearly enough, but not articulate your thoughts. To me I have never felt so helpless. I've been handcuffed to a train seat, but could not tell the police the cuff was too tight. Via sign language essentially, I was able to it sort out, but the looming helplessness is always there.
Omg this is exactly how I feel. I’m 42 and had my first tonic clinic seizure last week at work in the middle of a meeting full of coworkers in the room. One second I’m talking to a person sitting next to me and in the blink of an eye I wake up on the floor with 3 people holding me (one my head, another my legs, another running my arm) and I’m laying in what I later found out to be the “recovery position”. I have no memory of what happened. I was told that I was sitting at the desk and all of a sudden I jumped up my chair, started screaming and then fell backwards. Luckily the guy next to be caught me and broke my fall otherwise I’d break the glass wall that was behind me. They told me I had several seizures right after another. I was thrashing around on the floor, banging my head, my arms and legs in unnatural contorted positions. Literally it looked like I was possessed by a demon. When I woke up 25 mins later, EMTS were there and ppl from other meetings heard the commotion and ran to help. When I woke up I couldn’t speak, I didn’t know what was happening. I thought we were having some sort of an emergency drill and I volunteered to be the person on whom the drill was performed (like CPR or something). Then they started asking simple questions like my name, what year it is, what season it is, what month, date etc. I failed to answer all but one, my name. I couldn’t walk, I but my tongue off, skinned my knees. My blood pressure jumped to 210/110 and they thought I had a stroke. When they took me to ER and kept me over night all results came back normal. MRI was fine, CT, EEG, ECG all was normal. So now I don’t know when to expect it next. They wouldn’t put me on any anti seizure meds because they want to trigger it again in hospital setting. I can’t trust myself anymore. I shower sitting down with door open, I can’t drive, I can’t ride my bike. I feel so disabled all because I don’t know when to expect it again. It’s an awful awful experience even though you have no memory of it. It felt like I ceased to exist and came back out of non existence to existence.
I don’t get the part about them not wanting to start you on seizure medications because they want to trigger it in a hospital setting .. if the cost of you not taking medicine is outweighing the benefit of it being witnessed by doctors then it’d be more ethical to get you started on a medication. Plus with seizures it could be for a number of reasons or unknown reasons so how would they even know what would trigger yours? That doesn’t make sense . I’d say check with a different neurologist . Especially if you had multiple one right after another (like me) get on meds , even a small dose , it’ll give you greater peace of mind and independence
That is horrible, what had happened since then ? Have you had more of those seizures ? Have you started a medication ? How is your life now ?
Agree, I started having seizures 17 years ago, I'm now 53, I just had family to video my seizures,I was put on anti seizure meds straight away
I do find neurologists disagree with one another constantly. my life is now unrecognisable.@@Justforthiscomment-yt3oz
Yeah... I can relate to feeling disabled. Thankfully I live with my family and they provide for me. Just had a seizure a few days ago... summer 2024, got a deep laceration near my neck when I lost consciousness and had a grand mal / tonic clonic. Seizures are usually accompanied by auras... or... I prefer to refer to them as pre seizure symptoms. I hope you are feeling better. Ceasing to exist and then coming back is a great way to describe a grand mal seizure... when you finally regain consciousness it is like time travel.
Hi. There are some seizures that are non-epileptic. They won’t show up on an eeg as they don’t alter your brains’s electrical signals. A neurologist would be able to help you figure out if that is what happened- that is what it sounds like from your description. Unfortunately it can take a while to get in to a neurologist. So calling to make an appointment as soon as possible is good to do. Praying that you get this figure out.
I sense you’re a genuine person. I wish you the best❤
Prayers to you! Hope all is well with you right now and moving forward.
What's scary is that it can happen to anyone and it's not that rare, and doctors don't know much about it
They say they don't but they aren't the ones getting them 🤔
@9SenseGod issue is the ones getting them usually dont really know much either, I have em and don't even remember them, all I know is it's not good and it hurts bad after plus it's a near death experience for me each time so I dont know anything or remember anything at all
Never had one till about a year ago, got one in the morning out of the blue.
I've had 4 more since then, and each one of them feels so strange and nightmarish, I've only lost consciousness from it once but best way to describe it is a strange feeling, migraine visuals before your comprehension just vanishes, some muscle twitches. After it's just panic, feels like you know that you are going to die, and that this is your final moment before you wake up after, dazed with a horrible headache. Feels almost like a dream everytime it happens
thank you for helping while I was asleep I felt my brain felt an indescribable way it felt so weird and I heard almost like a echoed buzz sound and then my eyes opened and I couldn't move
that's probably sleep paralysis
I’ve been having these recently, like a lot my eyes are closed and it feels like both arms and legs are shaking but I couldn’t open my eyes then all of a sudden I wake up and my toes and finger tips are numb. Idk if I should get this checked
@@charbelhanna3038 it wasn't i couldn't move for like 1 second which was after i felt almost like electricity through my brain
@@DjPer0881 yeah that’s sleep paralysis
@@gamerguy9536 sleep paralysis. Not epilepsy, you would’ve woken up with a headache and confusion
I feel you, I know your pain coz I suffered the same… God bless
More power to you, all of us have different kinds of seizures and yes at the time it is very embarrassing and confusing but all we need at that time is reassurance 💜
Thank you for helping on this topic. I’ve seen friends have an episode, but didn’t know how to help them. This was wonderful.
So glad it was useful Shal!
I just had mu first Seizure last last November at work, felt normal and then i started to see all these colored orb's. went and laid down under a shady tree and my bottom left jaw cramped up, thought i was having a stroke, woke up after 5 minute's not knowing what happend and the boss telling me you just had a fit and the ambulance is on it's way, have had EEG and MRI scans ,now waiting to go to the Austin hospital for Epilepsy. and i must say i was very very sore after the seizure and now i can't drink any caffine or i become light headed and dizzy
You’ve described this very well
I have grandmal seizures and they are the worst, loss of all complete control, and fall wherever I’m at and start shaking, even stop breathing, I’ve tried to learn to get use to them to make them easier but it’s an everyday battle luckily the seizures are only about 2 to 3 minuites
I've been there for over 50 years, I have petty mal and a few grand mal thrown in. Now I'm having a new type which the top bods can't give info on them . I'm showing them what they look like . Andy
I just had my first one and i felt nothing. Like I stopped existing. No memory. But what was happening was scary. I was screaming, thrashing, banging my head, stopped breathing and had several consecutive seizures in a row. I don’t know how I could control any of it if I’m completely unaware when it’s happening. I thank god it happened when I was with ppl and not driving. Had it happened 30 mins earlier I’d be crashing on the freeway on my way to work.
@@Cheese-Head you should reconsider driving, If you have had any type of seizures, you generally are required to be seizure free for 6 months before you can drive, and that’s with someone in the car with you
@@twitchelpadrino6150 I stopped driving. In my state it’s 90 days. If I have another one, the clock restarts. It sucks. I’ve never been in a situation where I can’t drive. Ever since I got my license at 16 I had a car. No tickets, no DUIs nothing. And now I can’t get around :(
@@Cheese-Head tell me about it, my little brother got a car before me 😒
I've had a couple from alcohol withdrawal. I'm not epileptic... you can shine a strobe light all you want in my face and nothing will happen but everything this women is saying is true you go unconscious. When you come back your a little confused and even suffer from tempary amnesia. You'll come back but you do lose your self for a bit it sucks. and I wouldn't wish it on anyone
Just so you know and are educated being epileptic just means you’ve had more than one seizure. And just because you are epileptic doesn’t mean that strobe lights will make you have one. Every epileptics trigger is different.
I say this because I’ve literally had friends be scared to invite me places because they are scared I might have one when in reality that’s not the case and it’s not my trigger. (Mine was unknown for almost 5 years until recently)
@@cjaynesxoxo69 thank you for this this cause ive never had them in my life till a couple of years ago and its still not really known for me as well.... to be honest even the doctocers dont know why they happend... only thing they got was because i drank to much at the time..... yet ive been drinking for years,
@@cjaynesxoxo69 i honestly think its because i have a brian injury....ive had so many impacts to the head in my life through fights whith peices of shit...... but even after an MRI then couldent find anything...
Yeah I had to get off the meds they put me on and keep a seizure journal, then do a bunch of my own research to finally get the answers myself. I finally figured out what I have and to this day many doctors will still have to ask ME what it is that I have so they can go research it too.. US healthcare is very behind and unfortunately for how common it is epilepsy is still one of the most unknown yet also lucrative disabilities considering 1/10 people suffer from epilepsy. They make a lot more money in the US “when they don’t know what’s wrong” my advice: find a Chinese or natural medicine Dr. Your more likely to find answers and help. 🩷
Yes! 2 out of five of mine where from the same reason, some being from morning nicotine hits that just triggered it. Get a strange feeling, whatever bright thing I saw last stays in my vision nomatter where I turn or shut my eyes. After a few moments I can't comprehend anything, hear words or speak, my vision is gone from my right eye and all I can do I lay and let it pass. I've fallen unconscious once from it, the only where I had muscle convulsions in my neck and shoulders. I don't recall much but the sudden feeling of impending doom and confusion. Waking after sucked ass, feels like a hangover multiplied to 10 with a daze and memory issues for a few hours. Feels almost dream like coming out of one.
I am not diagnosed, nor do I care to be from the infrequency of them, (roughly every 4 or so months.)
I thought about getting it checked out, but I know the triggers and I know how to handle it, only fear I have is driving.
I get extremely aggressive after a seizure, I’ve even tried to fight paramedics, and still don’t remember any of these things happening
Me too. When I first started having them I would wake up out of them not knowing what happened and the paramedics would have to restrain me and sedate me with Ativan due to my aggression. Luckily when I have one now Im able to tell I had one when I’m waking up out of one and so i don’t get aggressive, just extremely tired 🥱
@@Loganjsherrill the scariest part has to be the beginning, completly losing control of your bodily functions, not being able to move, or even cry for help I’ve heard from others I don’t even breath, I’ve completly fell and busted my head alot of times, one time I fell off a top bunk, and got back on, without knowing, and fell down again 😒
I also can super aggressive when I am out of it. It's amazing that once i really come to, it's like a light switch in how I go from aggressive to super apologetic. I just need to be lucid.
@@brokenbat13 sometimes it could be just words that make it realize what’s going on but it’s very hard to talk to me when I’m screaming at you to get away from me lmao
I feel, the only one who can get me to stop hitting things while laying or can snap me out of the confusion is my girlfriend, I recognize her and dont at the same time but its so wild
I’ve had about 4 seizures in my life started when I was 18 my first one was at a house party everyone thought I got drunk and blacked out I ended up with a head injury no one believed that I wasn’t just drunk I couldn’t even remember what happened myself, the second one happened in front of my brother and some friends, the third was in-front of my uncle. Then the seizures stopped for about 10 years until last night while I was talking to my wife in the shower I just remember feeling sick and when I regained consciousness my wife was holding my face terrified because she thought I was dead. Still haven’t given a proper diagnosis but I’m going to make an appointment asap
Having seizures is insane because you have to remember to get to a doctor about your siezure
I hope nothing serious is causing them. My first was at 14. Hospitalized to run tests. Diagnosed with epilepsy and been on medication since then
Now 50 years later learning I'm probably autistic and it's sometimes comorbid to also develop epilepsy at the age of 14.
Also learning that long term chronic use of some anti seizure medication can cause low calcium. Maybe that explains all the broken bones.
Medical issues that causes loss of consciousness and treatment that weakens bones! Great combo
I need to start taking vitamin D3 again maybe vitamin K
Oh and if you're a girl, the meds can reduce the effectiveness of birth control pills.
And cause increase in birth defects. It's a barrel of fun
I don't have ID but I have a mild seizure disorder and I'd say while the (grand mal; I've had other seizures too) seizure is actually happening, it's the same as if you're in a deep sleep or passed out; you're not conscious at all. I did have a brief consciousness during my first seizure where I felt my head hitting the couch, but otherwise I was completely unconscious until I came to and had stopped seizing. Afterwards I was confused and had trouble communicating. The confusion stopped after about an hour. The second seizure I was unconscious again but there was no convulsions and I still don't remember what happened about 10 minutes before and after the seizure. I never thought I would have a seizure disorder and I always thought you were conscious during the convulsions; I didn't realize what grand mal seizures were like until the day I had one.
I lose hours of time. All I want to do after one is sleep, because I just had a full body workout
The most recent one I had I woke on the kitchen floor, sitting in front of the fridge with the door open. No idea how my head didn't hit the ground, or how my bony unpadded rear end isn't even sore. I lost consciousness. But my back is still killing me .
I live alone so it took me a couple of days for my brain to feel like it was working again. It's a miracle nothing broke and that I can still get up from the ground and way. Even if it hurts
I daily write down things, even date and time of eating and using the bathroom. Because it helps me piece together clues After. I really wish I wasn't alone
It's like you get the most weirdest feeling , you know your seizure is about to come but can't do a single thing about itv, blackout, comeback and try and beat up your head trying to remember who you are where are you what were you doing ...
I once had focal impared awareness one during exam and I forgot why did I come there in the 1st place ...
I only have seizures when I awake from my sleep so in my case it's like waking up and feeling this sudden feeling of dread and anxiety, then it slowly builds up to panic until finally my vision starts to blur and I fall into my bed unable to control my body. It's a very scary and annoying experience since all I can do is listen to the commotion around me and think what am I am gonna say when I finally am in control again. (Been 2 years since I have discovered this and still holding to hope that it will end one day)
Prayers for your healing & the same for my 21 year old son. Jesus Heal please help us & have pity upon us. ❤ Amen
I developed epilepsy over 50 years ago and all my seizures have been grand mal. The worst one happened while I was seated in a restaurant booth and broke my arm. Since I was in the postictal phase, I couldn't inform anyone so when I finally came around, the pain pushed me back into another seizure. My husband called the ambulance and I had a 3rd seizure in the ER. They found out that i broke my arm up near the shoulder and it had to be replaced. 3 months of PT and my shoulder has never recovered full function
My first seizure:
By Patrick Connolly.
Either it was on steve sippels half pipe in Carmel ca. I was 12 years old , 57right now.
Or shuelte rd/Carmel River on arturos' yz 80. The half pipe i stopped skating and puked on the ramp. In the river ,dry at the time, i pulled in the clutch and sat there.Arturo rode us back to Dottie Arnold's house.
2yrs later came my first of many grand mals.
Thank you for your expressions. I feel the same way.
I had a seizure about 4 months ago, I was just walking on the street and I saw a flashing light. At first I ignored it, but it kept getting larger and flashing more frequently, then I started feeling impending doom. Terrible feeling, I thought I was about to die. So I start panicking, and yelling "HELP ME" like some sort of crackhead. I remember losing my balance and falling into a streetlight. At that point it went dark. I woke up a bit later and I retained some of my memory. I was slurring words, I couldn't stand up properly, I was irritable and I really wanted to sleep. I don't remember my trip to the hospital, I do however remember laying down in the temp room, I was talking to my father and funnily enough, I had yet another seizure. I later woke up in the reanimation ward. I barely remember anything else from that day. It's all just a blur. So anyway, 3 MRIs and 5 EEGs later, they told me that I suffered from a stroke. I don't know how I didn't get paralyzed but it did get me some mild mental issues.
TLDR: I had a stroke at the age of 16.
DUDE, SPOT ON TO WHAT MINE FEEL LIKE -
well, no stroke for me, but the onset feels identical. One I had my fan light just in my vision, I could turn, close my eyes not matter what it would just stay. I lose vision in my right eye, feels like looking through my peripherals, where whatever is directly infront of my right eye is practically invisible.
The one time I had one that brought me unconsciousness had that same feeling that it was it, that I was going to die. I just remember being on my phone, then getting hit with an almost dreamlike feeling before shutting off my phone, and still seeing my screen wherever I looked. After a few seconds my head started to jerk back. I have no recollection after that, except waking in my bed with coffee spilled all over it, confused and with a horrible headache.
I still don't know the cause, but it's not frequent so I don't worry much. I hope you are doing better though, I've been lucky to have them confined in my room
Epilepsy seizure recovery explained that you have mentioned 😮 thank you
I'm lucky that I rarely have siezures. But for me I don't know how it feels having a siezure I just know how it is after because I just wake up on the floor, I can't move even if I try I don't have the strenght to get myself up until a bit later, I don't remember what happend before on that day, I'm in alot of pain and become depressed. I haven't have siezure since like maybe 5 years which feels very nice
The worst part for me, are the panicked feelings that come with the auras. It’s just so unbelievably scary, and those are the only parts of my seizures that I’m conscious for.
I’m incredibly lucky, I’ve only had Grand Mals in private.
I have only soiled myself once, and my mother was incredibly kind and reassuring, I can’t imagine going through that without someone.
After developing a tonic clonic seizure in college I was diagnosed with having epilepsy but I also found out I had occasional short duration absence mals throughout childhood. I didn’t know that my childhood mals that I was having was not something that everyone has. The medication I take now controls all aspects of my epileptic seizures. No seizures of any kind.
I had my first seizure out of the blue. It’s like I died and came back to life. I couldn’t breathe properly when I woke up. I was so scared. I’m on my way to get an mri. Wish me luck!
I mostly have petit mal seizures/focal seizures (which i call "epileptic stomach-butterflies" ) but also can have tonic-clonic seizures. I get a warning before and don't pass out luckily, but i remain aware of what happens through the tonic-clonic seizure: i can feel my body going rigid, my arms extend up; my eyes roll back; my mouth gets pulled to one side; i can feel myself shaking like a fish out of water and can hear the jerkiness of my breathing; i think i foam at the mouth and then after the rigidity and shaking wears off, i can hear myself making a sound like snoring. And then I'm really tearful, headachey and washed out. I was ever so close to having one two days ago so hence I lay on my bed to prepare.
I have a little bit of a messy epilepsy diagnosis where I have not only Epileptic seizures but non photogenic seizures .
The issue is learning which are the real deal in the brain seizures and which ones are not ! The fact I have both has been a struggle !
They started as epileptic full blown tonic clinic seizures but I received so much trauma from them my body started having non photogenic seizures as well !
It’s been horrid ! It all began in 2004 and it’s been a battle of drs meds and lifestyle since .
I’ve been in many ambulances and hospitals and even stopped breathing and my heart stopped last year and had to have be brought back to life .
I’m on a good path now but it’s one exhausting disease .
I had a tonicclonic at work and fell off the back of a semi trailer, split my head open and had to get some staples put in. Never had them before but haven’t had one since so hope it stays that way. Couldn’t drive for 6 months.
It usually takes two or more days for me to recover and people don't know why I still can't communicate normally... physically or mentally
it's like waking up from the dead. i feel nothing, see nothing, and when i come back i get horrible migraines for about 2-3 hours after
I had 4 grand mal seizures in an hour on Christmas and then realized I also had covid. I had my wife there and so amazed that she is used to it but knows how to help
Just had my first seizure last week at 22 years old. Happened during sleep at 5:30 in the morning. Woke my girlfriend up laying next to me was a tonic clonic seizure lasting about 5 minutes. EMS came to get me and had a second seizure about 2 hours later in the hospital. They started me on keppra immediately after. MRI EEG and EKG all came back normal. The weirdest part of all of it is the extreme confusion and no memory of any of it. Literally just felt like I time traveled a whole day . Have a follow up this week with neurologist praying I can get answers.
i’ve had 2 pretty recently this year and and from my experience i mentally blackout but my body continues on, and at some point i begin to realize that my EYES are indeed closed and then the realization hits of where i was but also thinking i don’t remember making it home, and that’s what really triggers my brain that “hey we gotta wake up.” (context: i associate my eyes being closed as me being asleep at home) this second one happened very similarly to the one earlier this year, felt no unusual feelings and was waiting for my wife to come pick me up from work (license is suspended bc of a prior seizure, although i am trying to get that back at some point but i just wanna focus on what’s making the seizures happen and preventing them long term) and boom had a TC for god knows how long and no one was around to help me and from what i’m told the front receptionist had called me asking where i was because my wife was outside waiting and all she heard was loud banging and the sounds of me most likely flopping around like a fish, she then asked if i was ok and apparently out of all that noise i managed to very clearly say “NO!” then i managed to somehow get outside and walk 10 feet before apparently collapsing and thankfully my wife came to my rescue and started barking orders for what to do for me. All in all it felt like getting knocked unconscious and then waking up feeling the worst pain all on my backside from the muscles contorting during the TC and i started to cry because i felt so embarrassed by the whole ordeal.
I had seizures when i was little and I hope I won’t get anymore later on
i dont have epilepsy, but i've had seizures twice. the first one was 3 years ago and it happened in my sleep. i remember waking up, but i was half conscious. i had blurred vision, i was stiff, and my arms and legs jerked uncontrollably. idk how long it lasted, but i remember suddenly waking up the next day. i was sore and sweaty.
my last seizure was a couple hours ago. this one was worse. i was taking a shower and i kept jerking briefly (this happens if im tired or just woke up) and slamming into the wall. i lost consciousness while falling, but somewhat gained it again temporarily. at this moment, i was stiff, i felt a tingling sensation, i felt my mouth open, and i tried to scream but couldnt. that was the most terrifying part. idk what happened after, but i somewhat gained consciousness again but it felt like i was in a dream. i was pacing back and forth and imagining something but i barely remember it. i do remember feeling anxiety and dread though. im super tired, and i feel like i should sleep, but im too scared to. i might on accident
This is such a fucking amazing explanation of something that is often impossible to explain.
i have been diagnosed with non epileptic seizures, i only have them when i’m asleep or upon waking , i get them for a while or few days every now and then. It is the worst feeling in the world when you know that it’s coming and when it does, it’s awful from my experience, i can hear myself screaming while it’s happening, it’s so weird, i feel like i’m hitting myself but what my family have told me when they see me having one i am not.
i get so confused afterwards and have brain fog/tiredness for days, makes me really depressed.
I experienced this today for the first time and I have been shaken up all day. I feel so tired but I’m so scared to sleep now because it happened when I was asleep .
I have FND causeing me to have 98.9% non epileptic seizures I’m very foggy can’t speak normally for almost 1 hr after my seizures hard to move sometimes can be cranky for almost a week and weakness and headaches are quite common sometimes for me it almost takes a full week for me to fully recover and I always have cluster seizures but am semi conscious during them including I can hear so I listen to my calming comforting music during my seizures and yes I do use valtaco during the seizures
People ask me what I see when I’m having a staring seizure and I don’t know what to tell them. My tonic clonic seizures are under control every since I stopped taking courses for college because of anxiety, worry and stress.
Most horrible pain I’ve ever experienced waking up and seeing paramedics. It’s taken me 3 wks to get back to feeling normal after not remembering anything and it’s still some thing I have forgotten. My personality feels different and so does my feelings about life. This is weird and so embarrassing.
My epilepsy started when ibwas 10yrs old, a few TC seizures during the day, but mostly at night while i was asleep. Im now almost 39, and the TC seizures have stopped, went through most of my 20s with nothing. Then when i got to almost 30, it all started again. But now im having focal seizures. Sometimes im still responsive, most of the time not.
I know when they're starting. It feels like i dont know where i am as everything looks different and feel disorientated. Memory seems to slowly turn off, start to not recognise people. Then after that, im told by others that i become unresponsive, look at them as if i dont know them or what theyre saying, and simply look around as if im puzzled and dont know where i am. My wife tells me that if she asks me anything at all (so do others, when they see that im having one) even "are you ok, cone on sit down for a minute" i dont realy respond to them, i just look at them with a puzzled complexion and shrug my shoulders while holding my hands up.
Tbh a lot of the time i dont know that it's happened afterwards and my memory of a little while afterwards simply isnt there., its as if a part of the day afterwards has simply disappeared.
I cant describe it much more than that tbh
When i was
LMAO yup! I feel like I got ran over by a truck and the disorientation and confusion afterward I am so disoriented I and it lasts for a couple of days before I feel myself again.
It feels like dejavu and don't feel if you bite your tounge or not, then you might feel like your body tenses up and your head goes to the right , and you black out and wake up again like what happened its crazy I want to be cured
Yep, mine starts with kinda the feeling of falling in a dream, where you jerk awake with confusion. Usually I get some odd visual stuff right before it happens, whatever light I see lingers in my vision whether eyes closed or open, before losing sight in 1 eye. I've only had hard convulsions once, which was the same one that I fell unconscious for, started with visual queues, then the feeling of dread and fear. Seconds later my head was convulsing back and to the right. I don't recall anything between that and waking, but waking is always confusion, you still feel almost dreamlike and with a headache. Everything just feels off after for a few hours
I just had 2 in one morning on the 4th. First time and hopefully last time. I screwed my back up so badly I had to wheeled in and out of the ER and can barely walk to the bathroom. They’re alwful.
I know the feeling waking up from a seizure. I was at work and fell on my head. I woke up in back in ambulance with my boss closing the doors. I woke up telling them I was alright which I wasn't I was really out of it. They said I didn't know my name. I was so weak I could hardly walk.
I didn’t know anyone would be aware of such things I don’t remember any of my Seizures but I had my Tumor surgically removed when I was a Kid so that might be why.
Right before I would have a seizure, my entire body would suddenly feel numb and fuzzy at the same time. Like the pins and needles you feel when your foot falls asleep. Then a second later, I'm on the floor flopping like a fish. My eyes roll back so all I see is black, but I can still hear and feel everything that's going on. Hearing my family freaking out, feeling the uncontrollable jerking of my body and my family turning me on my side. It's terrible. After the seizure, I'm weak and exhausted and it's difficult to swallow anything for a while.
I dont know what happend to me... but today when i got up from bed too fayt... i expirienced that many times and i just get my eyesight blacked out... and i start to feel dizzy and start to wobble around... this ussually takes 10 seconds maximum... but today it was bit different... i get up from the bed fast and been dizzy... and then it was bit weird... becuase i didnt know what my hands were doing, i felt that they are moving... but i didnt know where moving... it was weird....
@@dubbayu9823 yes please do before things gets worse
@@al27.72 the thing is it's never happened again so I'm not sure if it matters anymore?
I am not a doctor, but from what I do know from experience is that It could be your blood pressure. Getting dizzy after standing usually means that it is low. So maybe this time your blood pressure was particularly low, and it took awhile to get blood back into your brain.
It is likely not serious but please let your doctor know next time!
This sounds like POTS would get that checked out if you could
My new partner has told me she has seizures that feel like she is dreaming and then wakes up randomly. She’s not had one for over a year but i want to learn as much as i can. She said her heart has stopped before and she had to be resuscitated.
Personally as an epileptic, I only feel something after I wake up. Like I can barely walk sometimes and I can’t see very well
No auras?
@ I just went to the hospital and got some more like idea of what I’m like and I had a 5 minute seizure and every time I have one, when I wake up, I just feel like I’m dreaming and i can’t speak for everyone but that’s my person experiences with it
No history of seizures. I hadn't slept the night before, my girlfriend was very ill with her first Migraine. So when she woke up at 6am, I had just stood/got up after watching how she is for the night. Felt normal, no other health problems aside from chronic pain in my back. I am 21yrs old. I proceeded to do the daily chores. Loading the dishwasher, tidying up, etc. I got what I now know was an aura about 4 hours before. Cannot describe how it feels, the aura felt like I was looking at myself in the third person POV. Like a video game. Not confused, but a weird feeling. Her mom and her boyfriend came home, at this point I'd gone to the bathroom to wet my face, noticed my pupils were the size of saucers... That's it. Black. I was told I came out of the bathroom, my face went almost skew, and I fell over backwards like a stone. Smashed my head on the floor, during this time and bit a huge chunk of my tongue off. And began shaking for what was timed as 6 or so minutes. I do not have health insurance and in South Africa where I live, paramedics will charge you on site for procedures or emergency callouts, which is super expensive. I was not able to have that luxury. My girlfriend handled it extremely well. Got me into the recovery position, bearing in mind that I have never had a seizure before and I'm now jerking and foaming out the mouth, topped with a lot of blood from my tongue wound. I do not remember walking up, they asked me basic questions. Name, date etc. Got them all right. Could.not speak due to the tongue which they noticed but I was able to stammer up the answers very vaguely. I remember 2 hours later I was in bed. My body was in pain for 4 days afterwards. Could not move at all. I was extremely stiff. I'm terrified of doctors and hospitals. And I'm seizure free since that happened almost a year ago. It was incredibly scary for me, I know now if I ever have such an aura or common aura symptoms, to just stay in bed. It's very scary... My heart goes out to the people who deal with this chronically. It is not great at all.
Last night i had my very first episode after 24 years on this earth and its left me very concerned, beside a drop in your blood sugar is there anything else that anyones knows may have caused it, i felt extremely light headed, was able to articulate that to my sister who was next to me, and then the next thing i remember i was waking up from the floor with her looking after me, im feeling pretty concerned about it if anyone can she'd some light for me please
Epilepsy is a spectrum, but I would say it's, as some who has Unknown Seizures, but I like to call them "Silent Seizures", it's like I die and then come back to life. I can feel my body shutting off one part at a time. I don't thrash around, but I do stop breathing.
thanks for this
Not sure if this was a seizure but like i was getting up from my bed and suddenly i felt light headed and stood there for a second then suddenly i couldnt see and a buzzing in my head kinda started and i couldnt move i was holding onto something and this sounds weird but like i remember a samsung boot up that was all i remember seeing and it went dark then i suddenly could see again but like my head was hurting also when this happened i felt like i was paniking or something it was very weird kinda a subconscious scared feeling
That’s most likely POTS I would get that checked out
I've felt the same buzzing thing, my vision fades out on one side and I lose the ability to read or comprehend. If I saw a light before it starts, the image of the light hangs in my sight wherever I look before fading and being replaced with the blindness I'm my right eye.
I've had one bring me unconscious, started out of the blue and within I think seconds I felt my head convulsing backwards. I've been in near death experiences, but nothing compares to the fear during a seizure, you feel assured that it's it and you are dying. Just to wake later, confused as hell with a horrible headache and nothing feeling real for a bit.
Had my first in November,been on keppra for 6 months.No seizures but dizzy spells and butterflies in stomach feeling always.Pins and needles sensation in body at suoermarket,thought i was gonna have another seizure,luckily no.Seem to be no improvement.
2 words... impending doom... thats how it feels... (at least for me)
I had a full blown seizure on my livestream a few weeks ago, and over 500 viewers saw my underwear and me in a very vulnerable, undignified position. So embarrassing.
Greetings. I feel like I am going through a bad dream in which I cannot wake up from during and afterwards, I have a bad case of amnesia. It takes a while to recover from this scary event. .
For me I feel like I'm confused and everything is slowing down, then I feel a new smell, then I feel nauseated and then I start having a seizure and stiffen up and twitch a lot.
My dad recently had a seizure rn hes in the icu and he never had seizures before and they say that they think hes not gonna mke it because the fall also caused bleeding in the brain idk how to process this
I have Grand Mal Seizures, I black out, and feel and remember NOTHING during the event, but Before and After are total different... as there are stages of seizure activity in the brain. Mine seem to be caused by dehydration and are accompanied by: severe tiredness, disorientation, and abnormal levels of confusion. After the Grand Mal, I feel like my body was essentially... well, I have never been beaten up by a heavy weight boxer, but I assume that is what it feels like.... in a word: Horrible
Forgot to mention, because I black out, during the Grand Mal, it is essentially a lousy way to experience time travel. 0/5 Stars, would not recommend!
@@justinpontarelli4368i don’t have serizures right now but i can feel something coming im not sure exactly i shake a ton at night i wake up with bruises and very confused. I hope nothing happens in the future my symptoms are worsening
@@MRC4 , that sounds hard to go through, you may want to see a neurologist... just in case. During my last seizure I had a close brush with death... I jabbed my neck with a chunk of an old wooden desk... when my family found me I was bleeding. My neuro. Has me on a ton of meds right now.
Anyway... make sure you eat well, drink enough water, exercise... everything that I'm lousy at, lol. I hope you get better, I wouldn't wish epilepsy or seizures on even my worst enemy.
I have the same grand mal seizures and I have crazy headaches after it.
And sometime I won’t eat, and scared to go to sleep.
@@mitooojuju_2889 , that sucks. Do you have a good rescue medication?
how big is a chance you have brain tumor if you had first (partial?) seizure at 31? Or it is not neceserily connected to it?
I have epilepsy I want to know we happen because I haven’t had one since having one in my sleep at school 2 weeks ago
My first one I was woke up by a fireman in my apartment. Very strange
I have 3 different types of seizures and If you ask me they hurt like hell. Epilepsy, Grand Mal, and Tonic Clonic Seizures. For people who doesn't have them trust me yall don't wanna know what they feel like because they really hurt like crazy too.
Something about the bathroom makes me have tonic clonic and I have both peed and pooped in the bed so I think I’m always trying to get to the bathroom for some reason
Sounds more like the tonic clinic seizures are just making you incontinent (pee and poop yourself) which is a common side effect of seizures. You just happen to have a full stool when you get them but I don’t think you needing to go to the bathroom is a trigger but hey what do I know
And every time I have one I'm in so much pain my back hurts my muscles pounding headache wonder if I sold myself and I get sick to my stomach I don't even recognize my fiance when I get out of a seizure
Had a seizure. I’m not epileptic. But I was already feeling just staticky so I decided to drive myself to the hospital.. ( BAD CALL, IN FACT. HORRIBLE! ) woke up in the back of an Ambulance being asked repeatedly by an EMT if I’m okay and I’m aggressively telling him I’m fine! Meanwhile I was on the verge of vomiting a LAKE! I thank God for Keppra.
Wow, I hope you are feeling better, ❣ I had a very similar experience about a month ago. I would have died if a neighbor didn't call the bldg manager about groceries left in the hallway that were not picked up for days. I was found on the bathroom floor, naked by my son (LOL). Luckily, he was home b/c he often works out of state for months at a time. I don't have a car (thankfully) now and It's getting too stressful to worry about all the additional tests. phone calls, etc; (and perhaps pointless at my age/condition). I just want some peace, finally.
I hope you’re doing fine as well! I just hate the fact that how embarrassing post seizures can be.. it’s like getting drunk at the club and not remembering anything you’ve done but people actually tell you what you did lol
I woke up during a seizure and I thought I was being electrocuted.. anyone else?
Yes
Yes it was terrifying struggling to move or speak I think I was having a nightmare just remember being very scared..seemed like like an eternity to pass finally was able to speak and move. However I don't think that was the worst one it felt like it tho. I now have a 24/7 cameras watching me when I'm home by myself. My family knows the signs and when I start talking incoherently and erratic behavior they know I'm about to have one and keep will hold a pillow in anticipation.
I have PNES , if you don’t know what that is , psychogenic, non-epileptic seizures. When I have one it’s horrific I’ll have them in a store , home. Dr.s office what it feels like , I get confused I feel something in my stomach, I feel hot , smacking my lips , I wonder around, if an or when I can figure I’m going to have one , I can take ……. A nitro yes a nitro it helps me come right out of it . I feel weak , very thirsty water I want water . No at times I am unable to drive . But I come out of the episode I have a headache but otherwise I’m fine I can drive home, an of course I’m on meds that helps , sometimes it … what I call bleeds through . PNES is a deep unseeded emotionally non threatening seizure that last less then 5 minutes.
I’ve had them for years- they are caused from trauma ………… mindfulness meditation / body scan medication therapy is the best option for healing 🌻❤️
You know what epileptic teached me, it is only good to have some challenge in life and I thought when 18 years old let's leave NDL and go to NZ and have a life full of fun and be grateful to have epilepsy as it tells me not to spend time on religion and to think for yourself,, ones have a fit there is less blood and oxygen in the brain,, and than we are unable to recall what happened during that time,, so I say when I'm dead no blood or oxygen to my brain,so no awareness at all, so that brings me to the last point ☝️ to enjoy each second of our lives,, and guess what after travel to 60 countries in 20 years I'm now ended up in one of the most stressful city hong Kong as what is been told but yeah I don't agree,, and run here a international education and sustainable development platform in the business of art and design and wood work, and no more medicine,, and yes 7 days a week work , but it is my baby,, I couldn't be happier,, and I just want to explain,, we ,, yes we epileptic people,, we shall not fight against it,☝️ please learn to embrace it, use it for yourself as a challenge to make proud,, and endure endless great achievements in the sense what gives you satisfaction,,. No fear,, only love and positive mindset and energy 💪💪💪💪🙏 kind regards Rob
Hi Rob.Ive had epilepsy past 24yrs.Am in HK too.
@@reshmi11182 maybe everyone should go to hong Kong who has epilepsy, as HK culture and environment and infrastructure works perfectly for my epilepsy, aswell of importance, having a target a goal a direction what is for everyone of high importance as it than settle down in the brain and thoughts and you know than where you going in life, it's giving stability, and yes I definitely found that in HK 🤣😉🤗😊
Well said Rob, we're all warriors to have fought & continue to fight such a terrible disease. I'm 49 now and have been suffering from it since i was run over by a car, 44 years ago. 2 years ago i suffered post concussion syndrome. Its very unpleasant but we embrace it the best we can. Peace to all fellow epilepsy sufferers.
I dont even know i had one. i woke up on hospital, not knowing what happened. I have a gap in time where i need the doctors to fell me in.
The only way to describe a seizure.
It feels like you're typing on a computer and for reason, it sends up a blue screen. And then it shuts off and has to reboot.
For me ,having epilepsy is like,no you cannot live forever and can't reincarnate or even live,again like those egypts true story,and having no treatment,and just dying.whats worse is that it makes me feel difficult.harder dealing at lives, activity,things and every items.things at life
Can trauma (physical or emotional) cause epilepsy? I have epilepsy but nobody in my family suffers from it, i am the only one.
My mother unfortunately was someone who...tend in the past when i was a baby to hurt me. I still don't know why. She was stressed and was a single mother.
Then one day i see double and we get to the hospital and they diagnosed me with epilepsy.
I just want to know the truth.
Can physical abuse or being hit too hard cause epilepsy?
Yes, trauma, such as a head injury, can cause epilepsy. However, for individuals who have epilepsy without any form of brain damage (e.g., I have epilepsy due to brain damage from a stroke that occurred right before or during birth), it can occur without an identifiable cause.
I think it's shit as I have grand mals epilepsy now and I was a electrical engineer and had to stop it all and it's really imbarracing now people think bad of you because you're having them and it's hard to get around without being put down and people taking the piss and it's not nice I've had these seizures for 14 years now and I'm 36 now and it's hard to get around without having one on the street etc and nowadays people think you're on something or drinking and won't even help you even though you have epilepsy yet they want you to help them whenever they are hurt etc and it is really shit for people who have epilepsy as others do not give a shit if you have one on the street or not as most people nowadays just walk round ya or past you it's very hard to be epileptic
One minute I'm fine, then all of a sudden I'm in the hospital
When you are having a seizure you lose focus and you lose control of your body mind and actions seizures can make you do things like walking out of a vehicle while you're on the road
My friend was playing chess and suddenly had a seizure
hope your friend is okay
What does your shirt say?
My brain has too many tabs open I think
It probably says "My brain has too many tabs open"
Hi have suffer with epilepsy since I was 7 year old new I am now 43 year old and I still suffer with epilepsy only a week a go I have a go I had to escorted to hospital I was when woc up in the hospital I was told by my mom ambulance took an hour and a half to come so instead drive to the hospital bye my brother. 2:12
I’m having every single sign of a seizure every single day for the past couple months but the hospital said it’s just anxiety and I’ve had multiple seizures before when I was doing Xanax and cocaine but I’ve been clean for about 2 years and I feel exactly how I would feel when i was doing drugs and having seizures somebody please help…..
And just 4 days ago I went completely blind on my left eye and for 2 hours . When I finally gained my vision back I had an EXTREME bad migraine on my head and on my eyes
I understand about Grandma seizures I have them I'm 40 years old and I've had them ever since I was 21 medicine doesn't help my grandma seizures the more medicine I take the worse it my name is Steven and I don't know what to do
Me i have a doubble vesion☹️
I cry alot and I have headache after and people look at me like am crazy