This is really eye-opening to see how seizures can look "normal" "not eye-catching" if a person wasn't focused on them. Now I'm wondering how many students in class and people around me had these kind of seizures without me thinking too much about it.
i’m impressed you could talk so much before the seizure. i usually only have intellect to say something like: “it’s coming” and lie on the ground, then i dissociate (not sure if this is the term in english). and you also seem so calm… for me it is a dreadful experience, i get very anxious…
These are not seizures in the sense you are thinking of. This girl has a functional neurological condition thst is why. If you google functional neurological condition you will get what I'm saying.
@@lindasmith6072I can talk perfectly coherently during my auras, sometimes throughout the actual thing (tho that’s more rare and I’m away with the fairies to look at) We are all different
@@LexiMagnuleea I used to get very anxious and would try to distract myself, trying not to do anything that would be considered awkward (at the time, I did not know they were seizures). Although, my auras came so strong I usually was unable to anything but try and start some repetitive task, such as tapping at the desk silently, waiting for the sh*tstorm that was phase 2 to come and go. (Before I learned of my sclerosis I called them: phase 1, 2 and 3). After that I would rush to a bathroom to puke and wait for that phase 3 (r*tarded mode) to diminish. Today, with medication, I am able to tell someone in advance: "it is coming", but the symptoms are very mild and end quickly, so I actually don't tell. (Sorry about my english, not my native).
The actual full seizures/convulsions only happened 3 times in my life (one of which fractured my shoulder). So, because of those, my wife insists that I try and lay down on the ground when I get an aura. Because one can never tell when a seizure will go from phase 2 (dissociation) to 3 or go from 2 to a tonic-clonic. It's not worth the risk to remain standing.
What scares me the most about your condition is that someday you might faint for a completely different, more dangerous reason, and no-one would notice because they're so used to your fainting 😕
@@BlackPlectrum no it's okay, its another thing to plan for to make it safer for me! good to talk about possible scenarios so things can be put in place to try and prevent the worst case problems from happening :) life with FND is a constant problem solving game haha
@@Zara_Beth hey :) can I ask you, did they give you some medicine, or what nevrologist says? I am asking because I also have Fnd., and have similar symptoms
I'm a nurse, so it's wonderful for me to see how you handle all of this. Back corner of a room in a safe out of the way space. Also, the fact that you have someone by your side to help if things go really sideways. ❤❤❤ Kudos to you both.🥰
Theres ticks and there sometimes the person doesn't even know I've always known there are different types even though I never been around or no anyone who has them
Those are known as "generalized tonic-clonic seizures", or "grand mal seizures". They're the best (or only) one known by lots of people, but they're not actually all that common. As far as I understand, absences and tics are far more common.
The amount of times my teachers would get mad at me for "rolling my eyes" and "falling asleep in class". Little did they know I was experiencing episodes like this. Stay strong honey ❤ I'm glad someone's spreading the word about this.
Some teachers are just rude and want to write off behaviour like this as quickly as possible. So it wont hurt their pretty minds thinking about what someone might be going through and labeling it as bad behaviour or poor discipline. So happy your environment is aware and keeping an eye on you. Your strong willed person, I pray one day by some miracle your condition can be cured.
I delt with this a lot too in highschool, I only found out about my epilepsy when I started having Grand Mal seizures in my sleep in College, it's a scary thing for sure
I remember having these in school. People made fun a lot especially teachers when I would come out of a complex seizure. They thought I was daydreaming or something even though they knew about my seizures. I want to thank you for sharing. It really educates a lot of people.
Kids are horrible in general and will always find something to pick on but those teachers should 100% know better. The way teachers treat disability is a complete travesty.
Me too!! I had absence seizures and petite mal seizures through high school (my first one ever was on my first day!) I got bullied for it as well. Kids are so cruel. The awareness is so key!! ❤️
I feel like it would be better if teachers treated these episode as "daydreaming", rather than bringing more attention to your medical conditions in fron of the whole class.
I had a roommate who had epilepsy and everyone in the house knew about it. We learned what to expect. There were a number of times where we had to take her into the emergency room because she wasn’t coming out of her seizures or it was one after the other. It’s scary to watch someone go unconscious no matter who it is but if it’s a friend or loved one, it’s so much worse. Especially when there’s no way to help them.
I admire how calm you deal with your seizures and other things, I have had a stroke and suffer FND for 14 years now with seizures and more and it scares the heck out of me. Your a great person ❤
Yes even though I don't deal with this I still imire how strong you are and positive mindset with this because I know these days are hard but I think you are amazing for getting through it so amazing ❤
I really appreciate the way the people around you deal with your seizures. I have multiple chronic illnesses including pots and it used to give me so much anxiety if people crowded me and asked loads of questions. The fact they let it happen without any panic or acting like its a major emergency is so good. Having that calm environment as youre coming round is so much nicer!! The way my school dealt with it definitely made it 100x worse and i know it comes from people not understanding/being scared but its super annoying. Hope youre doing okay. ❤❤
I have a few autoimmune includinG POTS and I agree when my seizures and fainting started 4 years ago I freaked out some, but now the most annoying thing is people freaking out makes it so much worse. My husband learned very quickly just be a calming presence and it’s so much better for me.
I can relate to that feeling when I get out of a seizure. Everything seems normal, but everyone's gathered around because something happened that I'm not aware of. I may be on the ground, but I haven't taken note. I just get iritated and defensive. My neurologist told me once she had a patient throw something at her, after emerging from a seizure. I've never gone that far, but I can understand.
I don't have a medical issue but the safest place for you when waking me up is at my head my arms are the last thing to react when I wake up my feet are the first and their pretty accurate my brother and sister could tell you it's a defense mechanism against being tickled I'm ticklish all over and its literally why I don't hug if I hug your safe it means I'm not that ticklish at the moment though I think most of it came from dry skin ever since I have switched to sensitive skin I have been less ticklish after a car accident I about almost kicked the paramedic who was checking me over kinda forgot to tell him I was ticklish probably thought when reacted he had found a spot I said it's alright I'm just ticklish the way I reacted body shivering and a little shake like shaking something off is the only warning you get after I tell you not to touch me as the next time it might be a kick the shake and shiver is my way of saying I barely caught that kick reaction don't push it
This is so terrible, I hate how you have to go through that :( I adore how strong and optimistic you are about your condition. We are all here for you, queen. We love ya, keep being you :)💙💙💙
When I was 5 my mom picked up me making noises on the baby monitor. I was shaking obsessively and I actually threw up. We rushed to the hospital and found out it was a seizure, luckily I’m not epileptic, but I have a bigger chance of it coming back. I love how calmly you handle it ❤
Man. It's been so long since I had an absence seizure, and I never knew what I looked like when I had them. Thanks for your continued awareness education.
@@alexusturner3231 i have a friend who has epilepsy. My friend Catie Bowman has epilepsy and she has her mother who catches her seizures in petite mal seizure types but would help her when a grand mal seizure happens. Catie Bowman has a brother who is also an epileptic person. Just she has the petite mal seizures more than grand mal seizures, but her brother has grand mal seizures more than petite mal seizures.
@@chevellmcintosh4525 don't be saying roasts like that towards people with disabilities. How would you feel if I roasted you by saying "your mom" when you suffered a concussion and a fractured leg bone and have to be in a wheelchair for a long time? You'd feel upset, won't you? Don't roast these epileptic people.
I have nothing but pure respect for you Zara. The fact that you can stay calm in an extremely stressful situation is admirable for so many. Stay strong❤
This is exactly what I experience but the doctors totally ignore my situation. I'm glad you seem to have doctors that acknowledge what is going on. Thank you for sharing and educating others.
Zara, as someone who has epilepsy, it has been really scary knowing that I could have a seizure at school and no one is going to be there to help me....But your videos have been definitely very helpful... Sincerely, thanks.
Its good to know that im not alone in this bc I have seizures and I’ve had them in class before and some people would make fun of me and start rumors about me
It's so bad when you have them in public, like school or something. I don't have them, but I can imagine how bad it would be to have those in class, especially if you don't have a good relationship with your classmates and they make fun of you or smth. I have tics and when they happen in class, most of my classmates don't know what they are and they start making fun of me or call me crazy. I hope you are doing ok! 💙💙💙
My friend Catie Bowman and her brother Daniel Bowman are both epilepsy sufferers, you're not alone with the epilepsy and seizures too. I also help my friend and her brother whenever either one of them has a grand mal seizure, or a petite mal seizure. On march 29th 2023, Catie Bowman had witnessed her brother have a seizure at valley forge, during her school field trip. Her brother isn't a part of her school (she's in a cyber school called reach), meaning, he's not a learning coach, or a teacher, or a student, he is only 27 years old and he wanted to go on a hike through valley forge, on that day, so he went with her and her sister Michelle Bowman whom is her learning coach and a caretaker in Reach, and went to valley forge, then Daniel had a sudden change in blood sugar and blood pressure at the same time, happened and he asked for a Peanut butter and jelly sandwich from Michelle, but Michelle knew they weren't near a lunch area, then Daniel had a grand mal seizure. Catie tried to help him, and so did Michelle, then a park ranger, and several hikers came by, 1 of the hikers called 911, then daniel was taken to the nearest hospital, then Catie and Michelle told the park ranger that they were on a field trip and the Park ranger gave them a ride to the meeting area for the school, but the school never showed up, then Michelle called the park ranger, and the park ranger came and picked her and catie up and catie said "let's go to the hospital." And the park ranger decided to drive to the hospital, but he let his boss (or whoever he calls on walkie talkie, probably a dispatcher, specifically for park rangers) know he was going to the hospital that Daniel was in, then he got the right away to go to the hospital, then the park ranger drove to the hospital, and Michelle called her mom and dad and told them about the seizure Daniel had, then her dad had to tell his boss about Daniel's seizure, but he had to clarify that he was talking about daniel and not david since Catie's dad's boss only knew David Bowman personally, since both Catie's father and Catie's brother David both worked at SEPTA as traffic checkers, but Catie's brother David noved to Florida and got a job as a security guard at a museum, and Catie's dad became a train modeler, or someone who builds model trains that the transit gift shop sells in the store at SEPTA's transit gift shop. Catie's dad had to cancel his work, Catie's sister had to let the reach Montgomery county community coordinator know that they're not gonna be able to make it to the field trip, then Catie's brother David had to pay an uber for Catie's mom to get to the hospital from home, and Catie's mom had to get woken up and get ready and such, then idk how many hours later, Catie's mother, father, and catie and her sister arrive at the hospital, and went to meet Daniel and then he was discharged, and then Catie and her family went to the bus stop and then took a bus home, well, several buses to get to home. The park ranger went back to valley forge park after dropping Catie Bowman and her sister Michelle off at the hospital's emergency room meeting entrance, and other things happened. Seizures are crazily scary, I can tell. And Catie Bowman is always worried that she wil end up having a seizure and dying, like how Michael Jeter died of an epileptic seizure.
@@tjfreshboi1577 What the? There is nothing to make fun of... Sometimes people are strange. Depending on how these things go, they look scary even for the people watching...
Fr tho I’ve witnessed them sometimes and it’s scary as heck, sometimes I even try to get up and help if someone doesn’t get there in time, but thankfully I’ve only witnessed 1 seizure and not many, the other time was a faint I think. God bless everyone.
This helps me understand that what people suffer with isn’t always how it is in movies. Thank you and I wish people who suffered with this never had to, it looks awful and must feel like that
I stumbled upon this by accident. You are a very brave young woman. Best wishes to you and your health! One could only hope there are ways to severely reduce your symptoms..
This one time I fainted and whacked my head SUPER hard into my desk at school, everyone was staring at me and it was very anxiety raising, you are so strong
I admire your strength. I have epilepsy and it started at 16 and I even had to deal with it in school as well. I have the myoclonic and a little bit of atonic seizures that turned into grand mal seizures. I'm still fighting it all this time. Even with my medication I get these weird shakes from time to time but I finally learned to manage it. Now I'm 26 and I finally overcame the fear. Watching this just helped inspire me to not be afraid. Thank you so much ❤
@@JessMcNichollhonestly for everyone its different. But the one thing I did learn is to cope with it and not fight it. The more you fight the worse it gets. For a long time I felt broken and useless. I had people that cared for me help me through the process. Sorry that this reply is late.
Saw this a few weeks ago in my recommended. I didn't realise seizures could look like that. Until today when I was officially diagnosed with FND! I'm fully aware now that I was experiencing seizures too. Thank you for sharing your experience with us ❤
Thank you for posting this, I just got diagnosed with FND a month ago and am finally going back to college, but I’m pretty nervous. I’m having a difficult time believing it is possible because, after all the hoops we have to go through to get diagnosed, I’m feeling extremely down trodden. Especially since my doctors keep telling me to “lessen my load” and “take it slow.” And like, that’s just not completely achievable. I’ve got accommodations in place, the disability center at my school have been incredible, but I’m still terrified about having seizures in public alone. So I really appreciate seeing like, honesty, you know? Not encouragement, which is very necessary! But I can’t plan if we avoid reality, and people like doing that. So, thanks for being real.
This was painful but so enlightening to watch. I apparently have all of these types of seizure activity but I've never seen it myself. I also have tonic clonic seizures and the other seizures are apparently a warning sign but my T/C seizures are so bad I can't remember them. Thank you so much for being so vulnerable. You've passed on a little strength to all the warriors fighting the same battle ❤
Thank you so much for posting this and being open with your disability. I have epilepsy and I struggle with some of the seizures you documented. It can be so debilitating at times, especially when a lot of seizures go “unnoticed” or people don’t take them as serious because they don’t actually “see” what’s going on. This made me feel like I can keep fighting and that there’s hope, we got this :)
Thank you for being brave enough to put yourself out here to raise awareness. I admire your strength and hope someday a treatment will be found to help yourself and all those who are effected by the same. Hugs and take care of yourself 🐇💙
It’s amazing how your teacher just keeps teaching knowing this is okay and she doesn’t stop the class bc if she did the whole class would stare at you and u might feel like embarrassed so good job teacher! Edit: bro ik only the annoying people do this but 88 likes? Jeez Edit 2: damn I’m being annoying but like 200+ likes? My most ever
I really appreciate you documenting this and putting it out there. There have probably been countless people throughout time and history who experience this but the people around them don't know or understand. I'm sorry you have to go through this and wish you the best.
I admire how you continue to go to school even after what you going through. You do brave. But I’m incredibly surprised how no teacher sees that you getting seizures and helps you or the person aside from you either
they probably know what she has and she would probably have told them not to worry about it etc, or they are in a special school and/or the teachers are trained with this sort of stuff and know how to handle it
She clearly tells the girl next to her and the girl tracked how long she was out. If this happens daily, there's no point in fussing over her. She knows what's going on and it's not life threatening.
This video is very relatable. I suffered from epilepsy from birth until I was seven and a half. I had, at a minimum, a hundred absence seizures a day until I finally had a life-saving brain surgery in December 2007. It was the greatest Christmas present I could've asked for as it completely saved my life. Now, at 23 years old, I've been seizure-free for almost 16 years. There was a very distinct, indescribable feeling that would dawn on me before a seizure started, and I can't begin to describe how elated I am that it's been nearly 16 years since I last felt that feeling. I hope it never comes back, but considering it's been 16 years, things are looking good for me. Without that surgery, there's zero chance I'd still be here.
From somebody who is epileptic and has had to deal with very similar incidents in middle of college classes and later on uni lectures I have nothing but respect for you. Most relatable part was coming round and asking for the timings straight away. Best of luck to you !!
I get seizures quite often not just in class, but when my parents talk to me sometimes and don't understand why sometimes I reply and sometimes I don't. I admire how you describe your experience on RUclips, nice video! ❤
I have epilepsy also, and it’s rlly hard for someone to watch another person having a seizure. It’s scary when you’re in the moment of it. You are an extremely brave and amazing person.
I have absence seizures too! It’s so nice to have them talked about/showed by someone who isn’t a doctor. I’m glad I found your channel, it’s been a big help for me in dealing with my own health stuff.
This is EXACTLY how my seizures went. For days on end, I had fainting spells and was misdiagnosed, saying I was "dehydrated" when even after checking me I was clearly NOT dehydrated. Found out later they were symptoms of epilepsy. Juvenile MiClonic. Although I do not suffer from FND, I can relate to this video. People used to accuse me of FAKING, because I didn't have full outburts, I started having full seizure body shaking when I started 8th grade.
It’s a huge relief that you’re okay and still going to school, this stuff is scary and from the outside looking in, I never would’ve noticed these were seizures. I also really appreciated what you said in the description, I def needed that :> 🌸
this is a very serious issue. one of my classmates passed away bc she had a seizure problem, like you. she had one while taking a bath, and drowned. it was horrifying to hear. stay safe. RIP Danica❤️
@franktank516 I flooded my entire flat and my neighbours ceiling leaked flooding his floors. I had a seizure and fell asleep whilst running a bath. I was asleep almost 2 hours. I ha to get a bath alarm and have a person always with me at the time. It's scary to know you've no control over yourself during every seizure. I'm sorry for your friend that's terribly sad 😔
I think the way you handle this is so admirable! I also think that the people around you handle it well too. They are obviously keeping track, because they know how long or about how long you are out, but they don’t make a huge deal of it. ❤️
In my head I’m saying “sweetheart take your glasses off, please take them off👍” My daughter has EDS, POTS, RAYNAUDS and ADHD. I noticed your hands mottled when you fainted. Love you Zara❤️🌹❤️
If I may ask, what does it mean when your hands mottle? As in what causes it? I get it quite a lot in my hands and feet and and I’m suspecting I might have pots
I have FND and Fibromyalgia, watching this I could relate to it so much. Watching your video was very comforting to know there are people out there struggling with the same things. It’s nice to know that you’re not alone in the world. Thanks for spreading awareness and comfort. It’s very important to be more aware of others we share spaces with
I’ve had seizures my whole life all the way up until I was 20. I’m 30 now. When I was 15, I had one at school and I don’t remember any of it, but other students were saying I stared at the teacher weirdly and kept saying “mom” over and over. Most embarrassing thing ever. Seizures can be absolute hell.
You poor thing, that looks so terrifying. I think you're incredibly brave and have a lot of respect for you. I'm also glad you have a support structure and that the whole class including teacher is probably aware of your condition and are respectful to let you handle it without nagging you each time. I wish you all the best.
I had no idea what these seizures look like until watching this video. I'm glad you have a classmate to sit next to who you can rely on to keep an eye on you while you go through these. Are your instructors aware of your condition? Do they know what. If anything, they can do for you?
This is really helpful for me. My 21 year old son is dealing with some issues like this and I’m trying to learn all that I can. His episodes look differently than yours does. We think his issues have something to do with his heart. Stay strong little girl!
This video was recommended by RUclips and I just wanted to say that I really admire your tenacity to push through and control your tics. You got a new sub my friend! ❤
this is actually really interesting. ive always thought of seizures as really bad shaking and stuff so i just learned something new! thank you for opening my eyes to this!
When I first had seizures, I started crying because I thought I was going to die soon and I didn't like that at all because no one in my family had ever experienced anything like that. But seeing you today has given me courage, you are very brave and I can't describe how much i want to be like you ❤❤I pray that you get well very soon.
I hope you are okay. I'm type 1 diabetic, and if my glucose falls too low, I could have a seizure. I've never had one, but I saw a kid in middle school have a grand mal, and it scared me a lot.
@@lelouchvibritannia4028 i hope you will get better soon, ik it's not easy to live a life with a disease but Dw you will get well soon I'll pray for all of u guy's who suffering from any kind of disease :)
i remember in 5th grade, we had a new girl join our classroom, us being young children, we didn’t know much about seizures, i’m not sure if beforehand we got told that she suffered with it but it was something very new for all of us. it wasn’t like an everyday thing but she had seizures constantly, at least once a week. i remembered one of her triggers was loud noises. at this point we had gotten used to it, if she was about to have a seizure, we would just know. there was one time where she had a really bad seizure than she usually did and her mom had to be called. i also remember during pe and recess, i think about it again now and walk in her shoes, it must have been so hard, she had to deal with it in public school, that is not easy… she knew she had no choice but to deal with it and especially with a bunch of other kids who could have been judgmental about it. i admit tho, some kids were very mean to her, not because of her struggle but bc she was ig bothersome and annoying to them. i hope she is doing way better now, this video furthered my knowledge on how seizures can be soo different and unawaring, as in we might not be aware that someone near us is having one. keep doing u girl ! 🫶🏼
Totally badass of you to post this! Mine are nocturnal tonic clonics. Grand mals, w/e. Started at 24. Spouse got a video of one and I have a hard time watching it myself, much less showing others-even family members. Its SUCH a vulnerable state and I give you props for sharing.
This is the first time I've ever seen someone have seizures just like mine!! Thank you soooo much for posting this! Most people don't understand it. I'm grateful to you for bringing awareness that not all seizures look the same!❤
They probably all know about it and I’m guessing she’s told everyone just to let her go through it and she’ll be fine. I mean her friend there knew how long it was so she was aware. Well at least of the faint, perhaps not of the seizure parts.
Thank you so much for showing this!! I have the same Thing, but sometimes I start shaking... But to see it from this point of view gives me so much more kindness for myself... Somehow I could finally accept that more people suffer from this and that I'm not weird and most importantly, not alone! Thank you so much for sharing!
Hi sweetie. I was diagnosed with epilepsy at age 12. I had grand mals and absences. The best way I could describe my seizures was "blacking out." Or "losing time." Anyways... I see you struggling and you are so brave... but the greatest thing I have ever done for myself was starting to take a medicine called Kepra. I am now 23 years old, I can drive, I am taking 1500 mg when I used to take 3,000 mg at 12 years old. Just the only thing I CANNOT do is the strobe lights lol!! You are strong. So proud of you. ❤️
Nice to see how 'normal' everyone keeps on going, especially the person next to you & the teacher. Good that you take your symptoms seriously and take of your glasses before fainting too!
I have this. People who don’t understand that it is very real and who are unwilling to learn are best being left in the past. I was diagnosed with low blood pressure for 13 years, then epilepsy for 11 before the FOURTH neurologist saw a seizure and said ‘I know exactly what that is!’ Well done for being so brave and willing to educate others through your experiences.
I once fainted for the first time this year at my cousins house don’t know what triggered it I was washing my hands cuz my hands were dirty, and my cousin was with me in the bathroom, he told me all of a sudden I just froze he thought it was a joke till I hit my head in the tile floor almost hitting my head on a corner my cousin went running screaming for his mum. the next thing I hear is my auntie and my cousin talking in front of me, slowly getting up not realising that I feel like imma throw up and my head doesn’t feel so bad, you feel like what she said in the video drowsy and stuff but I hated the throwing up feeling I felt so sick, I was in tears, it’s amazing how you deal with it so well, your so brave and definitely an amazing hero and someone to look up to you, May your days be the best everyday- ❤❤❤🎉🎉🎉🎉🎉🎉😊😊😊 (sorry for any spelling mistakes)
Question... What do you do if it's the end of class and you have another class to go to or it's time to leave for home and you're still having symptoms? I definitely get being able to sit somewhere to be more safe.
the teacher will either help me or call learning support staff who would come and get me to a safe room and ring my mum :) or if i'm well enough but still feeling symptomatic i can call my mum myself and ask her to pick me up
This makes me cry 😭 i love that you are comfortable enough to show your symptoms. The amount of energy you must spend dealing with this must be exhausting. 🥺❤️
This reminds me of my high school days, quite a few classes were spent with my head down because I couldn't keep my eyes open. As an epileptic, you're an inspiration to those of us who struggle, Zara!
Zara’s ability to control these in a safe, quiet corner is truly great. Although the seizures may not look so serious, or eye catching, I like how Zara takes her precautions, have someone to help in case stuff goes sideways, and she keeps calm, and doesn’t freak out. Your class is an amazingly understanding class, and the teacher knew what was going on, and she didn’t interfere. Although your fainting may not be for such a serious cause, I’m scared! Someday you might faint for a serious and more dangerous reason, and no one will notice, thinking it’s normal… I love your videos, amazing and they help people understand a lot more about all of these conditions. Love u ❤
Genuinely curious question: what was the process of making your school aware of what’s going on so they don’t think it’s inattentive or disrespectful behavior during classes?
In the UK you are asked to declare any disabilities or other issues when you apply to colleges etc to discuss them, and then this information is relayed to your teachers in the form of a support plan they can access
Hi Zara, can you always feel the indicators prior fainting ? I hope when it happens you can always feel it and have the time to sit down/assume a safe position to faint. I'm 42 and i have never had any history of worrying illness or whatsoever except that i generally have low blood pressure (usually around 90/60) and I started to have accumulated bad cholesterol and uric acid since i was 36 or so. Then one day I suddenly felt unwell after waking up from overslept on the sofa. I walked upstairs into the toilet. I remember I started peeing and then the next thing I knew I was already on the floor. I didn't immediately got up. Was laying there for about 10-15 min trying to piece things together...what I did and how I got there. It was really scarry actually like having a memory skip. When i woke up i felt nauseous cause I had a concussion on my head, which took me almost a week to recover from. I really hope you always faint safely and don't get hit on the head or something like that. The doctor told me that maybe at that time i had very low blood pressure and I woke up too fast, so the heart did not pump enough blood to my head/upper body. Took some brain scans after that thankfully i am ok. Please take exceedingly good care of yourself. You don't want that kind of concussion that I had. Trust me.
Literally cried watching this bc I’ve been trying to get some mystery health issues diagnosed and your absence seizures look just like what I do before I have complete numbness in my arms and legs I’m usually very aware and can respond and tell people it’s about to happen just like you did. Up until the numbness I can still move through it, but i can still talk and look around. Can I ask what you feel before they happen or how they feel while it’s happening? It may help me describe at least that part to my doctor if we share some things in common
Have you looked up conversion disorders? I personally have functional Neurological Disconnect. Symptoms are differential in intensity. But some for me are limb numbness and weakness. Along with non epileptic seizures and fatigue, which lead to passing out. FND won't shop up in blood work or MRI scans.
@@yinyang5529 i havent but I recently got a preliminary diagnosis of psychosomatic non-epileptic seizures and was told to try cognitive behavioral therapy bc its caused by an overreaction to anxiety and external stressors. I did look up covering disorders though and that matched my symptoms so well so I will be asking my neurologist at my next appointment! Thank you so much for your response! It makes me feel less crazy knowing other people experience the same things 🫶🏼
I have a question, do you have some sort of sense or knowing what’s going on around you or do you completely forget? My best friend has seizures and for the first time she had one in front of me. I wasn’t sure what the recovery position was then (I do now) so told someone to get a teacher and they did it for me. She ended up hitting her head and fractured her upper eye socket! I think it’s really cool to share this experience with someone who also has seizures because it helps me learn in case it happens again! I think your really cool and sweet bro just thank you for being you ❤
during seizures like absence seizures in this video, i'm completely unaware and it feels like literally waking up when i come around from one - i'm confused and remember nothing so i'm trying to gauge my surroundings and figure out what the heck i was doing before it came on i have had the odd full tonic clonic (convulsive) seizure where i remember snippets but usually i don't and i'm not there ❤
Thank you for showing people that we are normal and still have lived even though we have seizures. It’s incredible how much people do not understand seizures.
Same here. I am fortunate enough to have gotten genetic testing (for EDS) and find out I'm not making anything up.. PUSH FOR YOUR HEALTH! you matter the most. Disabled people always feel like everything is messed up with them or feel like an imposter. You got this
My sister has these seizures too and feels like she's going to faint but hasn't (thankfully). She's having a hard time getting anyone to listen to her, I think because they don't understand. I showed her your video and she doesnt feel so alone. Thank you for sharing. ❤
This is really eye-opening to see how seizures can look "normal" "not eye-catching" if a person wasn't focused on them. Now I'm wondering how many students in class and people around me had these kind of seizures without me thinking too much about it.
Most likely none, it’s quite rare
Same that’s exactly what I thought
i knew a girl who had epilepsy and one time after a science class she told me ”i had a seizure during class but no one noticed :/“ 😭😭
@@ao1fe That is really sad
@@ao1fe it's a common thing for us with seizures to have them when nobody notices!
i’m impressed you could talk so much before the seizure. i usually only have intellect to say something like: “it’s coming” and lie on the ground, then i dissociate (not sure if this is the term in english). and you also seem so calm… for me it is a dreadful experience, i get very anxious…
These are not seizures in the sense you are thinking of. This girl has a functional neurological condition thst is why. If you google functional neurological condition you will get what I'm saying.
@@lindasmith6072I can talk perfectly coherently during my auras, sometimes throughout the actual thing (tho that’s more rare and I’m away with the fairies to look at)
We are all different
@@FRSS27what do you do when you know you’re about to get a seizure in a classroom.
@@LexiMagnuleea I used to get very anxious and would try to distract myself, trying not to do anything that would be considered awkward (at the time, I did not know they were seizures).
Although, my auras came so strong I usually was unable to anything but try and start some repetitive task, such as tapping at the desk silently, waiting for the sh*tstorm that was phase 2 to come and go. (Before I learned of my sclerosis I called them: phase 1, 2 and 3).
After that I would rush to a bathroom to puke and wait for that phase 3 (r*tarded mode) to diminish.
Today, with medication, I am able to tell someone in advance: "it is coming", but the symptoms are very mild and end quickly, so I actually don't tell.
(Sorry about my english, not my native).
The actual full seizures/convulsions only happened 3 times in my life (one of which fractured my shoulder). So, because of those, my wife insists that I try and lay down on the ground when I get an aura.
Because one can never tell when a seizure will go from phase 2 (dissociation) to 3 or go from 2 to a tonic-clonic. It's not worth the risk to remain standing.
What scares me the most about your condition is that someday you might faint for a completely different, more dangerous reason, and no-one would notice because they're so used to your fainting 😕
i’d never thought about that! yeah😅
@@Zara_Beth Dang, now I'm sorry for bringing it up. It wasn't my intention to make you anxious about a scenario like that
@@BlackPlectrum no it's okay, its another thing to plan for to make it safer for me! good to talk about possible scenarios so things can be put in place to try and prevent the worst case problems from happening :)
life with FND is a constant problem solving game haha
Ik but if she prays and keeps her head high she gonna make it
@@Zara_Beth hey :) can I ask you, did they give you some medicine, or what nevrologist says? I am asking because I also have Fnd., and have similar symptoms
I'm a nurse, so it's wonderful for me to see how you handle all of this. Back corner of a room in a safe out of the way space. Also, the fact that you have someone by your side to help if things go really sideways. ❤❤❤ Kudos to you both.🥰
My Dad's a doctor and my Mum's a nurse. I admire your work ❤🙂
I always saw seizures as the whole body just vibrating. Instresting to see different types and how you deal with them.
yes, there are many different types
Theres ticks and there sometimes the person doesn't even know I've always known there are different types even though I never been around or no anyone who has them
Those are known as "generalized tonic-clonic seizures", or "grand mal seizures". They're the best (or only) one known by lots of people, but they're not actually all that common. As far as I understand, absences and tics are far more common.
@@phobos.anomaly my mom always tells me the grand map ones are the worst ones besides granny seizures, and they can kill you?? 😨
same, i also thought that. i didn’t know there were different types! this channel is educating me
The amount of times my teachers would get mad at me for "rolling my eyes" and "falling asleep in class". Little did they know I was experiencing episodes like this. Stay strong honey ❤ I'm glad someone's spreading the word about this.
Some teachers are just rude and want to write off behaviour like this as quickly as possible. So it wont hurt their pretty minds thinking about what someone might be going through and labeling it as bad behaviour or poor discipline.
So happy your environment is aware and keeping an eye on you. Your strong willed person, I pray one day by some miracle your condition can be cured.
I delt with this a lot too in highschool, I only found out about my epilepsy when I started having Grand Mal seizures in my sleep in College, it's a scary thing for sure
I have these too girl power through it
But sleeping in school is banned
yeah and usually getting yelled at can trigger anxiety or ptsd and that causes seizures
I remember having these in school. People made fun a lot especially teachers when I would come out of a complex seizure. They thought I was daydreaming or something even though they knew about my seizures. I want to thank you for sharing. It really educates a lot of people.
Damn that sucks! I’m so sorry to hear that. F@ck those ppl!
Same!
Kids are horrible in general and will always find something to pick on but those teachers should 100% know better. The way teachers treat disability is a complete travesty.
Me too!! I had absence seizures and petite mal seizures through high school (my first one ever was on my first day!) I got bullied for it as well. Kids are so cruel. The awareness is so key!! ❤️
I feel like it would be better if teachers treated these episode as "daydreaming", rather than bringing more attention to your medical conditions in fron of the whole class.
I had a roommate who had epilepsy and everyone in the house knew about it. We learned what to expect. There were a number of times where we had to take her into the emergency room because she wasn’t coming out of her seizures or it was one after the other. It’s scary to watch someone go unconscious no matter who it is but if it’s a friend or loved one, it’s so much worse. Especially when there’s no way to help them.
I admire how calm you deal with your seizures and other things, I have had a stroke and suffer FND for 14 years now with seizures and more and it scares the heck out of me. Your a great person ❤
Can I ask you something yes or no
Yes even though I don't deal with this I still imire how strong you are and positive mindset with this because I know these days are hard but I think you are amazing for getting through it so amazing ❤
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
1:14 BRO WHY DOES SHE LOOK SO PRETTY WITH BOTH LONG AND SHORT HAIR-? I COULD NEVER
@@Bea_n46 I thought she had short hair until she whipped out a whole ass weave
I really appreciate the way the people around you deal with your seizures. I have multiple chronic illnesses including pots and it used to give me so much anxiety if people crowded me and asked loads of questions. The fact they let it happen without any panic or acting like its a major emergency is so good. Having that calm environment as youre coming round is so much nicer!! The way my school dealt with it definitely made it 100x worse and i know it comes from people not understanding/being scared but its super annoying. Hope youre doing okay. ❤❤
I have a few autoimmune includinG POTS and I agree when my seizures and fainting started 4 years ago I freaked out some, but now the most annoying thing is people freaking out makes it so much worse. My husband learned very quickly just be a calming presence and it’s so much better for me.
I can relate to that feeling when I get out of a seizure.
Everything seems normal, but everyone's gathered around because something happened that I'm not aware of. I may be on the ground, but I haven't taken note. I just get iritated and defensive.
My neurologist told me once she had a patient throw something at her, after emerging from a seizure. I've never gone that far, but I can understand.
I don't have a medical issue but the safest place for you when waking me up is at my head my arms are the last thing to react when I wake up my feet are the first and their pretty accurate my brother and sister could tell you it's a defense mechanism against being tickled I'm ticklish all over and its literally why I don't hug if I hug your safe it means I'm not that ticklish at the moment though I think most of it came from dry skin ever since I have switched to sensitive skin I have been less ticklish after a car accident I about almost kicked the paramedic who was checking me over kinda forgot to tell him I was ticklish probably thought when reacted he had found a spot I said it's alright I'm just ticklish the way I reacted body shivering and a little shake like shaking something off is the only warning you get after I tell you not to touch me as the next time it might be a kick the shake and shiver is my way of saying I barely caught that kick reaction don't push it
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
I love that your friend times how long you were out in case it becomes dangerous. Its so nice to see you have support
This is so terrible, I hate how you have to go through that :( I adore how strong and optimistic you are about your condition. We are all here for you, queen. We love ya, keep being you :)💙💙💙
Zara thanks for hearting :) love ya💙💙
When I was 5 my mom picked up me making noises on the baby monitor. I was shaking obsessively and I actually threw up. We rushed to the hospital and found out it was a seizure, luckily I’m not epileptic, but I have a bigger chance of it coming back. I love how calmly you handle it ❤
Man. It's been so long since I had an absence seizure, and I never knew what I looked like when I had them. Thanks for your continued awareness education.
As someone who has Epilepsy and hasn't had a seizure in 30yrs I hope you are able to be seizure free 1 day
@@alexusturner3231 i have a friend who has epilepsy. My friend Catie Bowman has epilepsy and she has her mother who catches her seizures in petite mal seizure types but would help her when a grand mal seizure happens. Catie Bowman has a brother who is also an epileptic person. Just she has the petite mal seizures more than grand mal seizures, but her brother has grand mal seizures more than petite mal seizures.
Your mom
@@chevellmcintosh4525 don't be saying roasts like that towards people with disabilities. How would you feel if I roasted you by saying "your mom" when you suffered a concussion and a fractured leg bone and have to be in a wheelchair for a long time? You'd feel upset, won't you? Don't roast these epileptic people.
Man I nearly had a seizure three days ago had to practice my breathing exercises just to stop it
It’s amazing that you’re raising awareness about FND because I had never even heard of it before. Stay strong and thank you for this 💕
I have nothing but pure respect for you Zara. The fact that you can stay calm in an extremely stressful situation is admirable for so many. Stay strong❤
This is exactly what I experience but the doctors totally ignore my situation. I'm glad you seem to have doctors that acknowledge what is going on.
Thank you for sharing and educating others.
You took that so calm for having seizures and fainting in class. you are an amazing person and so is the person that was sitting next to you.
This girl goes through a lot lets give her a round of applause👏👏
Zara, as someone who has epilepsy, it has been really scary knowing that I could have a seizure at school and no one is going to be there to help me....But your videos have been definitely very helpful... Sincerely, thanks.
Its good to know that im not alone in this bc I have seizures and I’ve had them in class before and some people would make fun of me and start rumors about me
It's so bad when you have them in public, like school or something. I don't have them, but I can imagine how bad it would be to have those in class, especially if you don't have a good relationship with your classmates and they make fun of you or smth. I have tics and when they happen in class, most of my classmates don't know what they are and they start making fun of me or call me crazy. I hope you are doing ok! 💙💙💙
My friend Catie Bowman and her brother Daniel Bowman are both epilepsy sufferers, you're not alone with the epilepsy and seizures too. I also help my friend and her brother whenever either one of them has a grand mal seizure, or a petite mal seizure. On march 29th 2023, Catie Bowman had witnessed her brother have a seizure at valley forge, during her school field trip. Her brother isn't a part of her school (she's in a cyber school called reach), meaning, he's not a learning coach, or a teacher, or a student, he is only 27 years old and he wanted to go on a hike through valley forge, on that day, so he went with her and her sister Michelle Bowman whom is her learning coach and a caretaker in Reach, and went to valley forge, then Daniel had a sudden change in blood sugar and blood pressure at the same time, happened and he asked for a Peanut butter and jelly sandwich from Michelle, but Michelle knew they weren't near a lunch area, then Daniel had a grand mal seizure. Catie tried to help him, and so did Michelle, then a park ranger, and several hikers came by, 1 of the hikers called 911, then daniel was taken to the nearest hospital, then Catie and Michelle told the park ranger that they were on a field trip and the Park ranger gave them a ride to the meeting area for the school, but the school never showed up, then Michelle called the park ranger, and the park ranger came and picked her and catie up and catie said "let's go to the hospital." And the park ranger decided to drive to the hospital, but he let his boss (or whoever he calls on walkie talkie, probably a dispatcher, specifically for park rangers) know he was going to the hospital that Daniel was in, then he got the right away to go to the hospital, then the park ranger drove to the hospital, and Michelle called her mom and dad and told them about the seizure Daniel had, then her dad had to tell his boss about Daniel's seizure, but he had to clarify that he was talking about daniel and not david since Catie's dad's boss only knew David Bowman personally, since both Catie's father and Catie's brother David both worked at SEPTA as traffic checkers, but Catie's brother David noved to Florida and got a job as a security guard at a museum, and Catie's dad became a train modeler, or someone who builds model trains that the transit gift shop sells in the store at SEPTA's transit gift shop. Catie's dad had to cancel his work, Catie's sister had to let the reach Montgomery county community coordinator know that they're not gonna be able to make it to the field trip, then Catie's brother David had to pay an uber for Catie's mom to get to the hospital from home, and Catie's mom had to get woken up and get ready and such, then idk how many hours later, Catie's mother, father, and catie and her sister arrive at the hospital, and went to meet Daniel and then he was discharged, and then Catie and her family went to the bus stop and then took a bus home, well, several buses to get to home. The park ranger went back to valley forge park after dropping Catie Bowman and her sister Michelle off at the hospital's emergency room meeting entrance, and other things happened.
Seizures are crazily scary, I can tell. And Catie Bowman is always worried that she wil end up having a seizure and dying, like how Michael Jeter died of an epileptic seizure.
@@tjfreshboi1577 What the? There is nothing to make fun of... Sometimes people are strange. Depending on how these things go, they look scary even for the people watching...
Fr tho I’ve witnessed them sometimes and it’s scary as heck, sometimes I even try to get up and help if someone doesn’t get there in time, but thankfully I’ve only witnessed 1 seizure and not many, the other time was a faint I think. God bless everyone.
This helps me understand that what people suffer with isn’t always how it is in movies. Thank you and I wish people who suffered with this never had to, it looks awful and must feel like that
I stumbled upon this by accident. You are a very brave young woman. Best wishes to you and your health! One could only hope there are ways to severely reduce your symptoms..
This one time I fainted and whacked my head SUPER hard into my desk at school, everyone was staring at me and it was very anxiety raising, you are so strong
Oh dear I'm sorry
I hope it didn't hurt too bad
I admire your strength. I have epilepsy and it started at 16 and I even had to deal with it in school as well. I have the myoclonic and a little bit of atonic seizures that turned into grand mal seizures. I'm still fighting it all this time. Even with my medication I get these weird shakes from time to time but I finally learned to manage it. Now I'm 26 and I finally overcame the fear. Watching this just helped inspire me to not be afraid. Thank you so much ❤
Do you have any advice to fighting the fear? I've been scared to leave the house for years haha
@@JessMcNichollhonestly for everyone its different. But the one thing I did learn is to cope with it and not fight it. The more you fight the worse it gets. For a long time I felt broken and useless. I had people that cared for me help me through the process. Sorry that this reply is late.
Saw this a few weeks ago in my recommended. I didn't realise seizures could look like that. Until today when I was officially diagnosed with FND! I'm fully aware now that I was experiencing seizures too. Thank you for sharing your experience with us ❤
This is you, in college, in life, young and happy as it should be. Go ahead proudly knowing we are all here rooting for you ❤
Thank you for posting this, I just got diagnosed with FND a month ago and am finally going back to college, but I’m pretty nervous. I’m having a difficult time believing it is possible because, after all the hoops we have to go through to get diagnosed, I’m feeling extremely down trodden. Especially since my doctors keep telling me to “lessen my load” and “take it slow.” And like, that’s just not completely achievable. I’ve got accommodations in place, the disability center at my school have been incredible, but I’m still terrified about having seizures in public alone. So I really appreciate seeing like, honesty, you know? Not encouragement, which is very necessary! But I can’t plan if we avoid reality, and people like doing that.
So, thanks for being real.
This was painful but so enlightening to watch. I apparently have all of these types of seizure activity but I've never seen it myself. I also have tonic clonic seizures and the other seizures are apparently a warning sign but my T/C seizures are so bad I can't remember them. Thank you so much for being so vulnerable. You've passed on a little strength to all the warriors fighting the same battle ❤
Thank you so much for posting this and being open with your disability. I have epilepsy and I struggle with some of the seizures you documented. It can be so debilitating at times, especially when a lot of seizures go “unnoticed” or people don’t take them as serious because they don’t actually “see” what’s going on. This made me feel like I can keep fighting and that there’s hope, we got this :)
Thank you for being brave enough to put yourself out here to raise awareness. I admire your strength and hope someday a treatment will be found to help yourself and all those who are effected by the same. Hugs and take care of yourself 🐇💙
I'm so sorry that you're having to go through that regularly. It must be incredibly hard to deal with emotionally.
It’s amazing how your teacher just keeps teaching knowing this is okay and she doesn’t stop the class bc if she did the whole class would stare at you and u might feel like embarrassed so good job teacher!
Edit: bro ik only the annoying people do this but 88 likes? Jeez
Edit 2: damn I’m being annoying but like 200+ likes? My most ever
@@pey-petZC maybe
Have greater ambitions than accumulating likes.
I really appreciate you documenting this and putting it out there. There have probably been countless people throughout time and history who experience this but the people around them don't know or understand. I'm sorry you have to go through this and wish you the best.
thanks for spreading awareness! your amazing and so pretty 💗 stay strong zara x
as a person going thru epilepsy, i understand how this feels, stay strong queen!
I admire how you continue to go to school even after what you going through. You do brave. But I’m incredibly surprised how no teacher sees that you getting seizures and helps you or the person aside from you either
they probably know what she has and she would probably have told them not to worry about it etc, or they are in a special school and/or the teachers are trained with this sort of stuff and know how to handle it
She clearly tells the girl next to her and the girl tracked how long she was out. If this happens daily, there's no point in fussing over her. She knows what's going on and it's not life threatening.
Of course they see?? There’s nothing to help with.
There’s nothing they can do. Sat there next to her friend, with a teacher who knows what to look for, is the safest place she can be.
This video is very relatable. I suffered from epilepsy from birth until I was seven and a half. I had, at a minimum, a hundred absence seizures a day until I finally had a life-saving brain surgery in December 2007. It was the greatest Christmas present I could've asked for as it completely saved my life. Now, at 23 years old, I've been seizure-free for almost 16 years. There was a very distinct, indescribable feeling that would dawn on me before a seizure started, and I can't begin to describe how elated I am that it's been nearly 16 years since I last felt that feeling. I hope it never comes back, but considering it's been 16 years, things are looking good for me. Without that surgery, there's zero chance I'd still be here.
From somebody who is epileptic and has had to deal with very similar incidents in middle of college classes and later on uni lectures I have nothing but respect for you. Most relatable part was coming round and asking for the timings straight away. Best of luck to you !!
I get seizures quite often not just in class, but when my parents talk to me sometimes and don't understand why sometimes I reply and sometimes I don't. I admire how you describe your experience on RUclips, nice video! ❤
I have epilepsy also, and it’s rlly hard for someone to watch another person having a seizure. It’s scary when you’re in the moment of it. You are an extremely brave and amazing person.
I have absence seizures too! It’s so nice to have them talked about/showed by someone who isn’t a doctor. I’m glad I found your channel, it’s been a big help for me in dealing with my own health stuff.
I’m so sorry that you have to go through this. Keep doing what you love 🙃
That definitely looks scary! - Glad you know what to do when it's about to hit. Hope you're doing ok & staying strong!
This is EXACTLY how my seizures went. For days on end, I had fainting spells and was misdiagnosed, saying I was "dehydrated" when even after checking me I was clearly NOT dehydrated. Found out later they were symptoms of epilepsy. Juvenile MiClonic. Although I do not suffer from FND, I can relate to this video. People used to accuse me of FAKING, because I didn't have full outburts, I started having full seizure body shaking when I started 8th grade.
It’s a huge relief that you’re okay and still going to school, this stuff is scary and from the outside looking in, I never would’ve noticed these were seizures. I also really appreciated what you said in the description, I def needed that :> 🌸
this is a very serious issue. one of my classmates passed away bc she had a seizure problem, like you. she had one while taking a bath, and drowned. it was horrifying to hear. stay safe. RIP Danica❤️
@franktank516 I flooded my entire flat and my neighbours ceiling leaked flooding his floors. I had a seizure and fell asleep whilst running a bath. I was asleep almost 2 hours. I ha to get a bath alarm and have a person always with me at the time. It's scary to know you've no control over yourself during every seizure. I'm sorry for your friend that's terribly sad 😔
It's realy nice to see a supportive friend who understands and is there for you!!! 💛. I am sorry you have to go through all that.
I think the way you handle this is so admirable! I also think that the people around you handle it well too. They are obviously keeping track, because they know how long or about how long you are out, but they don’t make a huge deal of it. ❤️
Very brave to post this. You are very strong and I’m so sorry you have to endure this.
In my head I’m saying “sweetheart take your glasses off, please take them off👍” My daughter has EDS, POTS, RAYNAUDS and ADHD. I noticed your hands mottled when you fainted. Love you Zara❤️🌹❤️
well spotted! that’s one of the symptoms i get when the (suspected POTS) fainting symptoms begin ❤
I have that too, just not ADHD 👍🏼
If I may ask, what does it mean when your hands mottle? As in what causes it? I get it quite a lot in my hands and feet and and I’m suspecting I might have pots
I have adhd and not POTS
@@Zara_Beth I am interested in hair 😊
That is emotional & physical resilience! You inspire me in my battle with post CoVid heart issues.
I am having an awful flare day and for some reason videos like this make me feel less alone
you are never alone ❤
I have FND and Fibromyalgia, watching this I could relate to it so much. Watching your video was very comforting to know there are people out there struggling with the same things. It’s nice to know that you’re not alone in the world. Thanks for spreading awareness and comfort. It’s very important to be more aware of others we share spaces with
I’ve had seizures my whole life all the way up until I was 20. I’m 30 now. When I was 15, I had one at school and I don’t remember any of it, but other students were saying I stared at the teacher weirdly and kept saying “mom” over and over. Most embarrassing thing ever. Seizures can be absolute hell.
You poor thing, that looks so terrifying. I think you're incredibly brave and have a lot of respect for you. I'm also glad you have a support structure and that the whole class including teacher is probably aware of your condition and are respectful to let you handle it without nagging you each time. I wish you all the best.
I had no idea what these seizures look like until watching this video. I'm glad you have a classmate to sit next to who you can rely on to keep an eye on you while you go through these. Are your instructors aware of your condition? Do they know what. If anything, they can do for you?
This is really helpful for me. My 21 year old son is dealing with some issues like this and I’m trying to learn all that I can. His episodes look differently than yours does. We think his issues have something to do with his heart. Stay strong little girl!
I have a question how long is ur longest faint
20 minutes 😅
Can I just ask can you hear what is going on around you when you faint 🥰
@@Joandpriya nothing! i'm unconscious
@@Zara_Beth thank you so much for replying to my message I really appreciate it
Have you ever got hurt when having a seizure?
This video was recommended by RUclips and I just wanted to say that I really admire your tenacity to push through and control your tics. You got a new sub my friend! ❤
Thank you so much! welcome to the community ❤
@@Zara_Beth fainting is for the WEAK
@@Zara_Beth did one of the girls take you to the school 🏫 nurse when you fainted at school 🏫
So much respect for you getting an education despite challenges
Everyone is so proud of you ❤
this is actually really interesting. ive always thought of seizures as really bad shaking and stuff so i just learned something new! thank you for opening my eyes to this!
Respect! She is sooo strong. Thanks for sharing. Greets from Switzerland.
Wow your truly amazing go through all this as a college student I just subscribed to you thank you for sharing your journey with us !!! :))))
When I first had seizures, I started crying because I thought I was going to die soon and I didn't like that at all because no one in my family had ever experienced anything like that. But seeing you today has given me courage, you are very brave and I can't describe how much i want to be like you ❤❤I pray that you get well very soon.
I hope you are okay. I'm type 1 diabetic, and if my glucose falls too low, I could have a seizure. I've never had one, but I saw a kid in middle school have a grand mal, and it scared me a lot.
@@lelouchvibritannia4028 i hope you will get better soon, ik it's not easy to live a life with a disease but Dw you will get well soon I'll pray for all of u guy's who suffering from any kind of disease :)
@@LucyHeartfilia9942 Thank you very much, and same here to you.
I appreciate you :) I know some people who have had seizures and I want to be able to understand so I can be there for them, have a good day!💖
i remember in 5th grade, we had a new girl join our classroom, us being young children, we didn’t know much about seizures, i’m not sure if beforehand we got told that she suffered with it but it was something very new for all of us. it wasn’t like an everyday thing but she had seizures constantly, at least once a week. i remembered one of her triggers was loud noises. at this point we had gotten used to it, if she was about to have a seizure, we would just know. there was one time where she had a really bad seizure than she usually did and her mom had to be called. i also remember during pe and recess, i think about it again now and walk in her shoes, it must have been so hard, she had to deal with it in public school, that is not easy… she knew she had no choice but to deal with it and especially with a bunch of other kids who could have been judgmental about it. i admit tho, some kids were very mean to her, not because of her struggle but bc she was ig bothersome and annoying to them. i hope she is doing way better now, this video furthered my knowledge on how seizures can be soo different and unawaring, as in we might not be aware that someone near us is having one. keep doing u girl ! 🫶🏼
Totally badass of you to post this! Mine are nocturnal tonic clonics. Grand mals, w/e. Started at 24. Spouse got a video of one and I have a hard time watching it myself, much less showing others-even family members. Its SUCH a vulnerable state and I give you props for sharing.
this is probably so exhausting having to deal with everyday, you’re so strong and amazing :,((
Your classmates are kind ❤
This is the first time I've ever seen someone have seizures just like mine!! Thank you soooo much for posting this! Most people don't understand it. I'm grateful to you for bringing awareness that not all seizures look the same!❤
I like how you just kept trying to do school.And you dealed with them so calmly. Did anybody notice you?
They probably all know about it and I’m guessing she’s told everyone just to let her go through it and she’ll be fine. I mean her friend there knew how long it was so she was aware. Well at least of the faint, perhaps not of the seizure parts.
Thank you so much for showing this!! I have the same Thing, but sometimes I start shaking... But to see it from this point of view gives me so much more kindness for myself... Somehow I could finally accept that more people suffer from this and that I'm not weird and most importantly, not alone! Thank you so much for sharing!
Hi sweetie. I was diagnosed with epilepsy at age 12. I had grand mals and absences. The best way I could describe my seizures was "blacking out." Or "losing time." Anyways... I see you struggling and you are so brave... but the greatest thing I have ever done for myself was starting to take a medicine called Kepra. I am now 23 years old, I can drive, I am taking 1500 mg when I used to take 3,000 mg at 12 years old. Just the only thing I CANNOT do is the strobe lights lol!! You are strong. So proud of you. ❤️
Nice to see how 'normal' everyone keeps on going, especially the person next to you & the teacher.
Good that you take your symptoms seriously and take of your glasses before fainting too!
Hey Zara.
These seizure and fainting videos are interesting to see what it can look like if things like that happen.👍😊
I have this. People who don’t understand that it is very real and who are unwilling to learn are best being left in the past. I was diagnosed with low blood pressure for 13 years, then epilepsy for 11 before the FOURTH neurologist saw a seizure and said ‘I know exactly what that is!’ Well done for being so brave and willing to educate others through your experiences.
Jesus loves you!!
I once fainted for the first time this year at my cousins house don’t know what triggered it I was washing my hands cuz my hands were dirty, and my cousin was with me in the bathroom, he told me all of a sudden I just froze he thought it was a joke till I hit my head in the tile floor almost hitting my head on a corner my cousin went running screaming for his mum. the next thing I hear is my auntie and my cousin talking in front of me, slowly getting up not realising that I feel like imma throw up and my head doesn’t feel so bad, you feel like what she said in the video drowsy and stuff but I hated the throwing up feeling I felt so sick, I was in tears, it’s amazing how you deal with it so well, your so brave and definitely an amazing hero and someone to look up to you, May your days be the best everyday- ❤❤❤🎉🎉🎉🎉🎉🎉😊😊😊 (sorry for any spelling mistakes)
It takes real strength to live a normal life with these challenges and you are doing amazingly. Take some credit coz u r great.
Question... What do you do if it's the end of class and you have another class to go to or it's time to leave for home and you're still having symptoms? I definitely get being able to sit somewhere to be more safe.
the teacher will either help me or call learning support staff who would come and get me to a safe room and ring my mum :)
or if i'm well enough but still feeling symptomatic i can call my mum myself and ask her to pick me up
@@Zara_Beth great ❤️👍
This makes me cry 😭 i love that you are comfortable enough to show your symptoms. The amount of energy you must spend dealing with this must be exhausting. 🥺❤️
Why didnt the teacher help? Do they know? Im curious.
@@todorinjokaraso6695 no fr
This reminds me of my high school days, quite a few classes were spent with my head down because I couldn't keep my eyes open. As an epileptic, you're an inspiration to those of us who struggle, Zara!
1:17 I thought you had short hair
Zara’s ability to control these in a safe, quiet corner is truly great. Although the seizures may not look so serious, or eye catching, I like how Zara takes her precautions, have someone to help in case stuff goes sideways, and she keeps calm, and doesn’t freak out. Your class is an amazingly understanding class, and the teacher knew what was going on, and she didn’t interfere. Although your fainting may not be for such a serious cause, I’m scared! Someday you might faint for a serious and more dangerous reason, and no one will notice, thinking it’s normal…
I love your videos, amazing and they help people understand a lot more about all of these conditions.
Love u ❤
Genuinely curious question: what was the process of making your school aware of what’s going on so they don’t think it’s inattentive or disrespectful behavior during classes?
In the UK you are asked to declare any disabilities or other issues when you apply to colleges etc to discuss them, and then this information is relayed to your teachers in the form of a support plan they can access
im am not fully aware of your condition , but I'm sending prayers and love, you will get through it all. Your gorgeous and u deserve the world!
Hi Zara, can you always feel the indicators prior fainting ? I hope when it happens you can always feel it and have the time to sit down/assume a safe position to faint. I'm 42 and i have never had any history of worrying illness or whatsoever except that i generally have low blood pressure (usually around 90/60) and I started to have accumulated bad cholesterol and uric acid since i was 36 or so. Then one day I suddenly felt unwell after waking up from overslept on the sofa. I walked upstairs into the toilet. I remember I started peeing and then the next thing I knew I was already on the floor. I didn't immediately got up. Was laying there for about 10-15 min trying to piece things together...what I did and how I got there. It was really scarry actually like having a memory skip. When i woke up i felt nauseous cause I had a concussion on my head, which took me almost a week to recover from. I really hope you always faint safely and don't get hit on the head or something like that. The doctor told me that maybe at that time i had very low blood pressure and I woke up too fast, so the heart did not pump enough blood to my head/upper body. Took some brain scans after that thankfully i am ok. Please take exceedingly good care of yourself. You don't want that kind of concussion that I had. Trust me.
Thank you so much for documenting this for us so we can learn more about various conditions like seizures. ❤
Thank you for sharing this ❤ I hope you'll be fine You're eyes are pretty amazing 😍❤ Love watching your vlog I'm from Philippines 🇵🇭
You’re such a strong person. I’m very proud of you.
Literally cried watching this bc I’ve been trying to get some mystery health issues diagnosed and your absence seizures look just like what I do before I have complete numbness in my arms and legs I’m usually very aware and can respond and tell people it’s about to happen just like you did. Up until the numbness I can still move through it, but i can still talk and look around. Can I ask what you feel before they happen or how they feel while it’s happening? It may help me describe at least that part to my doctor if we share some things in common
Have you looked up conversion disorders? I personally have functional Neurological Disconnect. Symptoms are differential in intensity. But some for me are limb numbness and weakness. Along with non epileptic seizures and fatigue, which lead to passing out. FND won't shop up in blood work or MRI scans.
@@yinyang5529 i havent but I recently got a preliminary diagnosis of psychosomatic non-epileptic seizures and was told to try cognitive behavioral therapy bc its caused by an overreaction to anxiety and external stressors. I did look up covering disorders though and that matched my symptoms so well so I will be asking my neurologist at my next appointment! Thank you so much for your response! It makes me feel less crazy knowing other people experience the same things 🫶🏼
I feel so bad, I can’t imagine how hard this is for your, wishing you the best of luck ❤
I have a question, do you have some sort of sense or knowing what’s going on around you or do you completely forget? My best friend has seizures and for the first time she had one in front of me. I wasn’t sure what the recovery position was then (I do now) so told someone to get a teacher and they did it for me. She ended up hitting her head and fractured her upper eye socket! I think it’s really cool to share this experience with someone who also has seizures because it helps me learn in case it happens again! I think your really cool and sweet bro just thank you for being you ❤
during seizures like absence seizures in this video, i'm completely unaware and it feels like literally waking up when i come around from one - i'm confused and remember nothing so i'm trying to gauge my surroundings and figure out what the heck i was doing before it came on
i have had the odd full tonic clonic (convulsive) seizure where i remember snippets but usually i don't and i'm not there ❤
@@Zara_Beth ok thanks you! xx
Thank you for showing people that we are normal and still have lived even though we have seizures. It’s incredible how much people do not understand seizures.
I've been getting tics recently, but im scared to tell my mom bc "there is always sm wrong with me." Also, i don't want anyone thinking im faking...
Same here. I am fortunate enough to have gotten genetic testing (for EDS) and find out I'm not making anything up.. PUSH FOR YOUR HEALTH! you matter the most. Disabled people always feel like everything is messed up with them or feel like an imposter. You got this
3:25 teachers who don’t understand might think you’re asleep
My sister has these seizures too and feels like she's going to faint but hasn't (thankfully). She's having a hard time getting anyone to listen to her, I think because they don't understand. I showed her your video and she doesnt feel so alone. Thank you for sharing. ❤
And here I thought seizures meant violently convulsing...
I hope you get well soon(assuming this condition is treatable, hope so)!