As a Paramedic, I highly encourage you get a Medical Alert Bracelet like Road ID, especially since you travel and may be alone at times. You can list your medical condition, medications and any allergies or adverse reactions you have to medications, and most importantly, Nate's contact info!
I second this. My brother had epilepsy and passed at 23 because he suffocated from the seizure he suffered during sleep. A medical alert bracelet would have saved his life considering we were all in the house when he died.
I agree! I especially like that the Road IDs are so travel friendly. I exclusively use the flexible ones that are stretchy and come in many different colors. The others are too bulky in my opinion for active lifestyles. I am 77 years old and also have ones for my shoes. Being active requires being proactive.
I just wanted to say that I’m a doctor, I’ve seen so many patients have seizures and it’s still scary each time - I can’t imagine how terrifying it must have been for Nate to wake up and see Kara having a seizure for the first time. Luckily, epilepsy is something that is fairly straightforward to manage (although it can take some time to get the right type and dosage of medications) and you guys sound like you’re already handling it really well. It’s great that you’ve both got each other for support during this difficult time; please continue to do what you need to do to put your physical and mental health first above all, everything else can wait 💕
@hayleyevans7697 I have epilepsy and am also a travel vlogger, and I agree with you that it is very straightforward to manage when your case is not as severe, and you take your medicine daily, which based on her story, seems to be the case. Thank you for reassuring her of that instead of some of these other fear-mongering type comments!!
May the new road in your life’s journey, give you many blessings, allowing you to continue to bless others with sharing your life adventures. I made it thru 2 weeks of Covid years ago, binge watching your content. You blessed me to be in your world and to temporarily forget my sickness.
I’m not sure if you’re a neurologist, but respectfully, epilepsy is a very individual disorder and it is not always straightforward to manage and treat. Hopefully it will be for Kara, but it can be incredibly difficult and complex for some with epilepsy.
Nate and Kara, I'm a neurologist and watching your account is exactly why I do what I do. People deserve to know what is happening in their health, that's the sacred foundation of all physician - patient interactions that has been eroded in modern medical practice. Your neurologist knew rather easily the diagnosis because she listened to you. There's a famous quote from one of the fathers of modern American medicine, William Osler. The quote is "Listen to your patients, they are telling you the diagnosis." Thank you for taking the time to so thoughtfully share what you two have been living through. In epilepsy in particular, there are even studies that show peer to peer support is a health benefit for people living with epilepsy. Your narrative and the heart with which you have told your story has SO MUCH IMPACT - just look at all the loving comments that telling your story has brought. Thank you so much for your openness and helping others see themselves validated as well as presenting to society the journeys that we all are on when health problems arise. We are socialized to believe that symptoms should be "toughed out" or dismissed and there is so much stigma associated with any form of illness or disablity. When you speak up, you battle those negative aspects of human nature and you are a light for others. Again, thank you.
@@forgiven213 sleep deprivation, infection, substances like alcohol and marijuana can make it easier for a seizure to occur. The mesial temporal sclerosis is a clue related to the epilepsy as described by Kara's neurologist. In most of the cases we cannot find a "smoking gun" type structural problem causing the epilepsy. An active lifestyle does not cause epilepsy however head injuries can.
As a neurologist do you ever warn your patients about shots? Shots that have Thermosol in them (Mercury)??? Mercury has no business in the human body. It is a neurotoxin. Let me tell you my experience. I have crohns disease. My "Dr" told me it was "hereditary." No one in my family history has crohns. No one. Doctors lie and make things up. I then did tons of research and found out about vaccinations. One author stated once you inject that newborn baby with shot(s) you are forever making them a candidate for big pharma. Also since I have crohn's I read many natural cures books. I was able to get off all medications. Lost a ton of weight. One med leads to the next. Anyway, I eat all organic foods. This keeps my crohns in check and in remission. If I eat a bagged snack or all fruit "natural" popsicles....I get vertigo and I get restless leg syndrome. I have tested this myself. Once I introduce something new into my body I will continue to eat it if it doesn't cause a flare up. Well...to my surprise I had negative things happen to my body but not crohns. Once I get the symptoms ie: vertigo or restless leg I will stop eating that snack for a month. Usually within a week the vertigo or restless leg goes away. Just to fact check or double check I will reintroduce that snack again and the symptoms return. So for you as a neurologist might I suggest if you really want to help your patients, ask them what kind of snack foods do they eat? Anything with chemicals is a NO NO!!!! I now make my own potato chips. I kettle pop my own popcorn. I grow my own food. So if you really want to help your patients. Have them only eat food that they make. Nothing in a box for a month. No fast food. No diet soda's. Then introduce foods and snacks one at a time. Yes, I know....lots of work for the patient when everyone has been conditioned to take pills. People can cure themselves. It takes time and dedication. There is a great book I could recommend to you and anyone interested but I fear my comment will be shadow banned if I do. This book got me off of 5 different medications!!!!! It saved my life! It opened my eyes to the corruption in the med industry.
@@5GreenAcresthere is zero peer reviewed evidence that the Covid vaccine causes neurological issues. However, there is ample peer reviewed evidence that a covid infection can lead to neurological issues including seizures. I am not saying this is the case with Cara, since her symptoms started before Covid. I work in pediatric medicine for 2 decades, and I have never seen the amount of new onset seizures, neurologic issues, and out of season respiratory illnesses than in the last 4 years. Many many of the children are not vaccinated for Covid but have suffered through multiple infections in their short lives. Read the research and evidence and talk to actual medical doctors.
I got epilepsy as a16 year old and could stop medication when I was about 28 . I had given birth to 2 children by then. I am now 67 years and haven’t had a seizure since I stopped taking the medication. I don’t drink alcohol or smoke cigarettes and I do sleep about 8 hours a night. Wishing you all the best ❤I also had a very supportive and loving husband.We are very blessed women❤
The ketogenic diet can help manage and prevent epilepsy in all people. It was invented more than 100 years ago by doctors to treat epilepsy. Doctors noticed that people with epilepsy who fasted had far less relapse and issues, so they created a diet to safely simulate fasting. It's a scientific break through. No need to smoke or eat weed or take Valium. Just go keto
Nate saying “stop, you can’t carry this” should tell you everything about the kind of person he is, the kind of character he has inside, and the amount of love he has for Kara. You’re a great person Nate and I don’t think you’re told that enough by this community.
Much love to this comment. Alot of people don't realize it's not just the patient that carries the load. It's also the "other half". It's very very hard for that person to watch this happen to the person you love and you can't fix it. That is just as damaging as the diagnosis. Much love to you Nate. Be the rock! You got this.
@@roganvegathis is so true. I have recently been diagnosed with interstitial cystitis and other health issues but for 4 months before hand i was having unexplained fainting spells i was very fatigues and could not drive or do much but sit on the couch. while i was and have been carrying a huge load with my health issues my partner has had to carry this load as well. he has stepped up tremendously and has taken on so much to help me and comfort me. we have cried together we have thought the worst together but he has always remained my biggest supporter and comforter. I am so glad Kara not only has Nate to be that person for her but also to receive a diagnosis is absolutely life changing even though having a diagnosis itself is hard to handle and manage. there are so many people with chronic illnesses that dont get diagnosed or get medications/treatments and that is definitely the worst part. i agree so much about the relief of hearing that you have something that they can help try to manage. Kara and Nate are both so strong and a beautiful representation of a good partnership. To anyone living with a chronic illness/condition you are stronger then you think 💖
Dear Kara please don't talk yourself out of crying. I think in situations like yours or any other health change of any kind crying is good for your soul and mind. So if you feel like crying just let it out. Sending you a big and comforting hug, Kara. ❤🩹
It's very important to let it out. Holding it in causes so much stress on your body and mind. Release the tears. Let them flow. We are here to support Kara ❤always🙏 Thank you for this comment
Dear Kara, Hi! My name is Sienna, and I'm 15 years old. I've had epilepsy for the last 11 years, so I know exactly how you feel right now. I also watch all your RUclips videos and love them. Getting diagnosed with epilepsy can feel really overwhelming and scary, but I want you to know that you're not alone. Having your first few seizures can be very scary for your family because of the fear of the unknown. In my case, my dad had to rush me to the hospital because I was experiencing a long seizure. I felt very scared not knowing what was going on, and it was a tough time for all of us. Taking medication can be tough because you have to remind yourself to take it every day. But trust me, it's worth it because it helps prevent seizures and keeps you safe. I know it can be hard to explain epilepsy to other people. Sometimes they don't understand what we're going through. But by talking about it, we can help bring awareness and understanding, which is really important. If you ever want to talk about it or if you have any questions, please feel free to reach out to me. I'm here for you. Take care, and remember, you're not alone. Best wishes, Sienna
Wow, Sienna, you're only 15, and you're so articulate and kind, reaching out to an adult to offer support! You are going to do WELL as a human in life. Keep your kindness and empathy! This internet stranger is proud of you! Also I'm female (Frankie, not Frank), and I think it's great to see a young woman who already reaches out to support women.
I have had stage 4 cancer twice. I can no long speak and have spine damage. With that said, I never feel sorry for myself because when you spend a lot of time at the hospital, this is always someone who is going through something worse than you. I say that because when you see someone who might not be having a great day, you never know what that person is dealing with. Good luck in your journey. You should take all the space and all the time you need to work through this.
Hey guys! I am both a physician and a person living with epilepsy. Many of your experiences were mine (except they were 20+ years ago!). I haven’t had a seizure since starting medication as a teenager and would not stop them if given the chance. With the right medication and healthcare team, your quality of life is only going to be better from here onwards! It’s okay to grieve for the days where our bodies were indestructible and infallible but believe it or not, many of your best years are ahead of you. Much love
I’m surprised your comment hasn’t gotten 100 likes. It’s exactly what I would want to hear (from a physician no less) if I were diagnosed with epilepsy.
Sending huge hugs to you both! Your courage in sharing this journey may help someone else down the line. Thank you for sharing something so very personal.
I am a physician and let me give you some advice. If you are ever concerned about a test result, tell the medical office your concerns and ask to talk with the doctor. There was no reason that office could not have told you on the phone that the neurologist was going on vacation. Sometimes offices don't understand the worry when waiting for test results, but they should.
The amount of times I get rung by the doctors office on a Friday afternoon telling me the doctor needs to see me but I have to wait till next week is unbelievably stressful. It's not untill doctors get the same problem do they realise what you're going through
Kara, I have epilepsy and I am a first responder. My wife has seen me have my 1st grand mal seizure that caused a full shoulder dislocation. So we know what it feels like to have an uncertain future. I am still a first responder and we used these tricks to help control my epilepsy. Number one No energy drinks, they counteract most antiseizure meds. Coffee, and teas are fine. Number two sleep sleep sleep. Do your best to get not just 8 hours of sleep but qaulity sleep. Start a nighttime rountine. No matter where you are. And lastly I know it is scary but make fun of it. You are a strong and sweet person. Define your epilespy don't let it define you. My wife and I call mine the worm. With Nate at your side there is no doubt you can live a normal life. Take your meds, recognize your signs and everything will be fine.
I love hearing everyone’s feelings!! We are all so different and so happy you are a first responder! I’m thankful how caring every first responder has been when I have had a seizure. Favorite comment - you can stay here if you can tell me what year it is….. I was WAY off 😂
You are lucky you still have a job. My son is a chicago paramedic and they won’t let him back to work. They have kept him on disability for two years. He is so frustrated.
im 12 and I was recently diagnosed with epilepsy and Ive felt so different from everyone but i'm really happy to see there's lots of other people like me. im so sorry I know how hard it is!!
Hey. I just want you to know you're not alone, either. Hang in there, okay? You are loved and cared for. I hope and pray your doctor is a good one. My dad had epilepsy, but he got it as an adult, pretty sure after a motorcycle accident. It's scary, and I can't imagine how it feels for you guys, but it's going to be all right, in time. It may take a while to get your meds right.
@@AmyAndThePup thank you so much you don't know how much that means to me today I started medication for epilepsy and a few days ago the doctors told me I don't just have focal epilepsy I have generalized and it is so scary I hope you have an amazing day and I appreciate you so much!!
If you ever want a seizure alert dog, let me know. I do this for a living, I love helping people live their best lives with the help of a service dog. I would do this behind the scenes. Sending positive vibes your way. You got this girl!!
I have a diabetic alert service dog. I have really low blood sugars sometimes that result in having seizures. These dogs are amazing and help you get through the seizure. Please keep this in the back of your mind Kara. They truly are lifesavers. @margaretpittman9650: thank you for providing these dogs for us. I admire anyone who works with these dogs and helps people who need an assistance dog. Thank you so much!
Do you have a way for anyone with Epilepsy to learn about getting a service dog? I have 3 grown daughters that have it. It would be awesome to have someone to talk to about it....Thank You
I have a family member with general seizure disorder, and when I asked him if he'd looked into it, he said he can not come anywhere close to the cost of getting. one, @margaretpittman9650 Send me a pm on your alert dogs, if you can, please.
I used to know someone with seizures who had a seizure alert dog and it was a game changer for her in feeling comfortable on her own. Her dog would nudge her in a particular way when it sensed one coming on so she could lie down and not injure herself when it happened.
Your body chemistry changes, so your scent changes. At least enough for a dog to smell it. There are bigger non profit companies that provide service dogs, but a long waiting list. Canine for companions is one.
Psychologist/counsellor here. Be kind to yourself. You may have to change some aspects of your lifestyle, but that is not a failure. You may have to slow down a bit, and that is not a failure. You may have to modify your self-concept, and that is not a failure. The only failure is if you beat yourself up over those changes. So be kind to yourself.
Nate, I was a nurse for 5 years in an Epilepsy unit, where we would trigger seizures, to pinpoint where they were coming from. They are terrifying, every single time. You're not being overdramatic.
Can I just correct this a little. As someone with the condition and having the seizure, they're not terrifying, you don't even feel them while you're having them. But this view adds to the stigma sadly. Let's normalise them and know how people are during grand mals. First of all, keep calm, put something soft under the person's head and move anything dangerous from around them, look and your watch, time the seizure and if after 5 minutes the seizure is still happening call an ambulance. Don't put anything in their mouth. Having had thousands of seizures during my life, I have one, I get some sleep, and I get up and get back on with my life, maybe just with some Bonjella after biting my tongue during them. So many people live with them and get on with life, like me.
@@Katieforty4 I think the other commenters are saying that they are terrifying to witness, and as the daughter of someone who has grand mal seizures I completely agree. Growing up I was completely and utterly terrified, not only when my dad had a seizure, but I also found myself anxiously worried about him potentially having a seizure. They are so violent to witness - seeing someone you love most in the world have one really is pure terror. We're keenly aware that it could be a seizure they never recover from, or that they could bang their head, swallow their tongue etc. I can be very very calm when helping a stranger having a seizure, but when it comes to my dad it is another story - I am outwardly calm, but inside I am utterly terrified and panicked. You're right to point out that the person having the seizure doesn't feel anything during the seizure, only after (body aches, injuries from falls, etc).
The confidence of your neurologist when she said “you have epilepsy” is exactly what people need. It is a relief because at least you know what’s going on. After I cried to my therapist that I felt like my entire life was spiraling she told me I had ADHD & once I was able to put a reason behind the chaos & understand what came with it, I was able to give myself some grace & forgiveness for being chaotic. ADHD & epilepsy are nowhere in the same ballpark but the relief is incredible. I’m glad you got answers & have found a treatment that works! You’re going to continue to be amazing & I look forward to watching you progress!
When my sister, at 19, was diagnosed with Epilepsy she was told that no one knew what or how long her future would be. She just turned 65 last November. She has two beautiful, intelligent, accomplished children who have given her four grandchildren. She has retired after teaching elementary school for thirty six years. Her life has been challenging, certainly, but in no way would she allow it to rule her life. I have two pieces of advice. 1) Be proactive. You are in charge of your life, health, and future. Don't let anyone make your decisions for you. Research everything. Find a doctor you trust. If you aren't comfortable, change doctors!!! 2) Decide what you want your life to be. Don't let your disorder rule your decisions. Take your meds, eat well(which you do) exercise regularly (which you do) get enough sleep (?). Be aware, not wary. Blessed Be Kara, you've got this!
I know you are well cared for. Our God has his hands on you. Keep posting wonderful adventures and showing all of us how beautiful and great this world can be if we only take that chance to know it. Love you guys. # Number 1 trip power couple.❤❤❤❤❤
I have a special needs autistic epileptic daughter 28 years old on 3 medications to control he seizures still she gets seizures .. her seizures got horrible horrible during PMS ..and her actual period so I took the decision to give her the DEPO provera shot to stop her menstrual periods it did make a huge difference ... This must have been a humbling experience for Miss Kara as I found you were gettin g to be quite a show off in tour vlogs....
Icu nurse here!! Obviously as a nurse I’ve seen a lot of seizures, but I just wanted to give my support to Nate having watched a loved one go through that cannot be easy especially when you cannot stop it at that moment! Watching you be a rock for Kara is amazing. And to Kara, the vulnerability you are giving to your audience by sharing this story is so inspiring. From a healthcare provider, people’s health is not talked about enough on social media. As you said, it’s a highlight reel. Thank you for sharing your story. I wish you all the best and hopefully an easy journey in your treatment. I’m so glad the medication is working and you’re healthy and happy! 😊
@@nirmalasingh7677 Please don't be heartless. It doesn't make it any less scary to be on the phone with a professional when someone you love is IN a violent crisis and all you can do is watch.
@@nirmalasingh7677 I think you are wrong there. Just because his mom is an RN doesn't mean she can diagnose from afar. I can't imagine going through seizures, and not knowing the cause. It can be from a dangerous brain condition or many other issues. Nate having to watch his wife seize, and not breathing, must be terrifying. I'm just glad they have a diagnosis and have medication to help.
My cousin, who had never experienced seizures before, suddenly started having them at the age of 30. He was athletic and strong, having played football on a scholarship. Once he began taking his medication regularly, his condition improved instantly. At first, the medication made him sleepy, but after some adjustments, he was able to manage it better. By God's grace, he has been doing well ever since. I'm praying for you, Kara-you've got this!
Epilepsy is not the same for everyone, my is a huge control over my life what I can and can’t do what I can’t eat. Glad it’s easy for you but not for everyone.
@@BrodyYYC the side are effects terrible, especially when you have to take multiple medications, you’re getting them from every one . I know I was a totally different person before so long ago but I can remember I miss doing things.
The best thing a student did for me was to tell me in front of the class that she had epilepsy, and what to do about it. She described what it could look like, as she had two types of seizures. At the time, I wondered why she'd say something so personal in front of everyone, but the day she experienced a seizure in class, everyone remembered what to do. No one panicked, she didn't have to be embarrassed. It was a good experience for all of us. I imagine Nate's reaction when he had no warning. Thank you for being open. It IS helpful.
Spoken as a health care professional, you were a dream patient. The fact that you had logged your symptoms and everything associated with them was SO helpful to your neurologist. 90% of a diagnosis comes from the history we get from the patient. The tests are just to confirm. Hang in there! You guys will handle this with grace and love just like everything you do❤
Hi there! 2 years ago I got diagnosed with epilepsy at 17 years old. It has been so crazy and it has taken so long to finally get my life back on track. I don't see videos/people talking openly about epilepsy openly, so I am so thankful I found this video. Sending so much love to you guys
I was diagnosed with epilepsy at age 5, am 63 now, so it’s been with me all my life. You’ll be ok! Trust your body and trust yourself. Take notes and partner with a good neurologist. Epilepsy is manageable and it’s possible to build a rich life around it. Wishing good things for you both.
Kara, ANOTHER doctor here:) I can’t help but say something …. I am SO happy you finally have an accurate diagnosis and some peace of mind (no pun intended). It is very frustrating for me to hear the stories of the medical delays and overlooking your symptoms that you had been experiencing for so long. The subtleties of your symptoms (until the seizure) can be explained by so many other things so I can also see why someone might overlook the vague complaints of a totally healthy and happy young lady. HOWEVER… The advantage of having your own primary care doctor is: - They get to know you! If a patient repeatedly comes in with complaints that are not resolving, I am obligated to explore those concerns. (But seeing multiple doctors is not optimal for you or for them to diagnose you. ) -I would have had you into a neurologist in a week! This depends so much on your location as some areas might only have a single neurologist in the entire city --but a simple phone call to ask them to make accommodations is easy to do and we do it all the time. I am happy to hear that you are being treated and doing well. You guys are so fun to watch. Keep up the great work - and make sure to take some time off to really and truly relax!
I agree, but with insurance here in the States, I've had to change Dr's hundreds of times. My employer changed our insurance provider again this year, so now I have to find new Dr's (Again!!) And this ins. keeps giving me the run around, and I can't even get an appointment. Luckily, they're still honoring my prescriptions.
I had the same primary doctor for 25 years. She retired 5 years ago. At the same clinic have since been referred to 3, the first 2 left the clinic. When you do need to get in you can never see your doctor. For a country that likes to claims we have the best health care we don’t for most people.
My sister had her first grand mal seizure at 13 years old and is now 53 and an Iron Woman, who is competing in yet another Olympic triathlon tomorrow! Her medication has controlled her epilepsy 100%! Keep living your awesome life and let the meds give you comfort and confidence. ❤
Hi Kara and Nate, my name is Rex and I've had Epilepsy ever since I was 7 years old - I'm 60 now. I spent my whole life going to doctors and going through blood tests and so on. Thank you for sharing. RUclips is a great place to connect to others who can relate to what you are going through. Stay strong and take care of yourself. Cheers!
My wife has epilepsy and has been seizure free for about 5 years or so? She found a terrific doctor who found the perfect medication management program for her. I’d be typing all day if I told countless stories of our first years of marriage and watching her have a seizure at 7 months pregnant. Believe it or not? Nate will have to be the hero in this journey.
Even better than medications that will cause other health problems, I recommend a holistic chiropractor who can renew your nervous system through adjustments. I met a lady at my clinic who has been going from doc to doc for 20 years and on meds, but it wasn't until she started getting adjusted that she could sleep through the night without a seizure. It's wild how much our nervous system controls and if your spine is misaligned, your nervous system can't work properly.
Important note if anyone in the comments is working through the medical system, please keep advocating for yourself. Women in particular are often told their symptoms are less than or not red flags, when they are signs of major underlying concerns. I have a friend who was having issues and the doctor sent her home. She decided to keep advocacting herself and they found a major blood clot. I have another friend that took 8 years to get her endo diagnosis. So this is just a reminder please keep advocating for yourself!!!
I’m hearing that beautiful quote of Nates Grandfather “Good health is the crown on the well man’s head that only the sick can see.” You’re doing all the amazing things for you & Nate.
I was diagnosed at 23 with Epilepsy. They couldn't find any reasons. You're not alone. It's a scary thing to hear at first, but the more you research and learn, the less scary it becomes. Thank you for sharing your story. Please keep using your platform to raise awareness. 1 in 26 people have it 💜
My husband has a really rare neurological condition that also causes seizures, memory issues, and mobility issues. When we were going through this same scary diagnostic process, I was having to watch and make sure my husband stayed breathing through the night. To everyone reading: please don't underestimate the impact Kara's condition can have on Nate too. It's genuinely traumatic to deal with a scary health situation like this, and as the "caretaker" you have to do everything you can to advocate and remain strong for your partner. People tend to underestimate how much of a toll these kind of diagnosis take on BOTH partners (just in very different ways).
Hi Kara. I was helping my son with his Spanish. Next thing I know I am being off loaded to ER. I had just come too and overheard the ER doc say I probably had a Brain Tumor My heart sank. I guess I am right. The neurosurgeon said I had a brain tumor that was fortunately benign. That was back in 2009, and am still hanging in there,though I have had 4 additional seizures. I am all too familiar with your description of what I call mini-seizures. Anyway I am well and take 1000MG of Keppra twice a day and that seems to be keeping the big seizures in check. I am glad you are doing well. Lean on your husband figuratively and literally when you are feeling out of sorts. Take care
Hi Kara and Nate, I'm a 58 year young guy... I have had severe epilepsy since I was 17 years old and it was said that I would never get rid of the seizures, in October 2006 I got a new medicine called Keppra, 30 days after I started whit the new medicine, my seizures went away and I haven't had a single seizure since... What I mean by that is that you can get medicine that suits your Epilepsy, and it can go away completely… But unfortunately you have to take this medication for the rest of your life. Sleep properly, eat at fixed times, take more time, plan everything in advance so you don't have to stress, such as not having to stress for the next flight 😁... As an Epileptic, stress and poor sleep are your biggest enemy. Big hugs Kara, you have a great guy taking care of you, big hugs to you too Nate and take care... Best regards from Lars in Karlstad, Sweden 🙂😎
Awesome Advice! Yes, Resting enough is so Important. Glad Your Seizures are also well controlled! 😀 (I have Seizures, but from Temporal Lobe Seizure Disorder, but have been Seizure Free for 5 Years, thanks to My Medication.)
I take Keppra too! I was diagnosed last year though I had been twitching (mini seizures I guess) for nearly 10 years before having a seizure and blacking while I was with a customer. I finally got the diagnosis. Abnormal front lobes suck but Keppra has done wonders for me
Keppra is amazing for those it works for. When it works at all it works really really well. Its great it can help some people with epilepsy. When it doesn't though, it's horrible. It's known as the rage drug because the mood issues it causes can be so severe and horrible. Just a heads up.
Seizures are scary, especially witnessing one for the first time. Don’t ever think you’re over dramatic. It is traumatic to see a loved one (or anyone) having a medical emergency, does not matter the “severity”. You guys are strong and even stronger together!
A year ago, my brother, who is now 13, had his first seizure in the early morning hours of November. I remember that when my mother rushed him to the emergency room, all I could do was pray to God, hoping it wasn’t something life-threatening. I was terrified. We went to several specialists searching for a diagnosis. My brother only has seizures while sleeping; he has never had one while awake. I was so scared that for about three months, I slept very few hours because I spent the nights watching over him. I prayed a lot to God for my brother's health, and seeing a child like him having seizures broke my heart (his seizures are conscious). The medication doses worked for weeks, maybe months. Then we found an epileptologist here in the Dominican Republic who explained the cause of his seizures (he has a brain lining with ridges, though I can't explain it in medical terms). He treated my brother; he has been like any other since that day. I sleep peacefully now, although we are still cautious, especially around pools and the beach. But he has lived a normal life just like any other child. I used to question God’s will a lot until I met people with conditions and situations that cannot be improved with medication, who don’t even have hope of a better quality of life. So, I’m just telling you, have faith in God and keep a positive attitude. Leave your health and life in God’s hands, and He will give you the peace you need.
Can I just say how nice are the people in this comment section? This is a very positive community and I super love it. May God Bless you more Kara and Nate ❤❤
I have a handful of comments as the wife of someone with epilepsy: 1. You didn't wait too long or push anything off getting diagnosed. My husband was having partial seizures for 5 years before his grand mal when he finally got the attention he needed. 2. You need to get good sleep and use the meds. It's a partnership! We've found that slower travel is better now, and always building in a rest day after a long flight has helped tremendously (especially remembering those meds every 12 hours). 3. It's okay to feel your feelings both of you! I watched my husband have his big seizure and it was one of the most traumatic experiences of my life. Cry it out, it feels better. 4. Once you find the right meds, you can live your life however you want, just as long as you find a way to get sleep. 5. Hearing your story was so amazing and it's lovely knowing we're not alone with this diagnosis.
This is a great summary. I've had a similar experience with my husband. He's had 7 grand mal seizures in the last 10 years (starting at age 46 and just after we moved to Colorado). It's traumatic and incredibly scary to witness, but you find a way to live with it. We manage a mostly normal life with some added precautions including as you said making sure he gets enough sleep. We have always wondered how much altitude contributed since it started in Colorado and he had 2 of his seizures on flights.
"Courage doesn't always roar. Sometimes courage is that little voice at the end of the day that says I'll try again tomorrow." Keep your head up, stay positive and you will often find that things will work themselves out. Great video.
My daughter is a HUGE fan of your channel. She was diagnosed with epilepsy this year and I just wanted you to know that you being so honest and sharing your diagnosis was REALLY helped her a lot and inspired her to feel more validated in coping with her own diagnosis. Keep being super awesome and strong as you are more of an inspiration than you know ❤praying for you!
Med student here. I just want to thank you for trusting us and sharing your story. I know you were talking about how you hope sharing could help someone else, so I just wanted to say that hearing your story will help me recognize symptoms in other patients, and hopefully help get my future patients to a definitive diagnosis/treatment sooner. Sharing this has probably helped so many people in so many different ways. More than anything, I'm glad you are on your way towards an answer, and hopefully getting back to some sense of normalcy. Your presence in the world has brought me so much joy over the years and all I want is the best for you two.
My daughter had her first seizure at around 6 months old. Scary as **** in the middle of the night. Medicine reduced the quantity of them, and now at 20 years old hasn't had one for years. Thank you upstairs.
The support Nate gives through this is phenomenal but at the very end when he says so sweetly “you can’t carry this” just broke me in so many ways. You two are such beautiful, amazing souls. I love that you found each other and that you share your lives with us. Thank you.
I am a nurse and watching seizures is so upsetting, especially if it is someone you love. My daughter started having seizures as a teenager. With medication she has been seizure free over 20 years. Lives a perfectly normal life, had two healthy babies. She has to get her sleep, no alcohol, and take meds on time. You got this! ❤
my daughter was pretty much the same. First tonic clonic seizure at 14. She has been on medication since and has been seizure free for over 15 years. She has had 3 healthy children and is fine as long as she gets sleep and takes her meds. It was very scary seeing that first seizure though as I'd never seen one before
Tough watching that first big seizure moment, must have been terrifying for both of you. Glad it led to a diagnosis and Kara's getting the needed care!
Just got diagnosed today! For my whole life I’ve had episodes where I blank out for a second. My neurologist decided to do and EEG just to check and lo and behold it is a form of seizure. I don’t think they will get any worse or ever be full-body, but I came to this video for comfort because today is a really trying day. Gonna start a low dose of meds soon.
Kara, I was diagnosed at 36 w/epilepsy. The neurologist believes it presented itself b/c my entire body was under stress from cancer treatments. My sister was diagnosed at 15 and it was triggered by her starting her menstrual cycle. Epilepsy has no rhyme or reason. I have not had a seizure since 2018 and that was due to another medication interfering w/my epilepsy medication. Thank you for sharing your journey. It is scary. I'm incredibly proud of you. Do NOT EVER apologize for your tears. You need that release. HUGE HUGS and lots of love! (side note: sleep deprived EEGs are the WORST!! Right?)
As a mom of a kiddo with Epilepsy, I can 1000% identify with how scary a first seizure experience can be. Thank you all for sharing your journey in such a real way.
I am so proud of y'all for posting this. I have lived with a form of epilepsy all of my life. I know that this was probably one of the hardest things to go through. Once I found out what my triggers were I was able to start feeling that I had more control over my life again. For me it was finding the balance of good sleep and diet. I hope for the best for you.
My son was diagnosed with absence seizures after years of his pediatrician ignoring my concerns. He had multiple episodes per day. It affected his ability to pay attention in class and his grades suffered. He was a sad, frustrated kid. When we finally got the diagnosis and medication he became a straight “A” student. Thank you for your story. I know by telling it you will help others know that they need to listen to their bodies. You are in my prayers!
My best friend has epilepsy, with absence seizures. We were in high school when I did a little research and told her they should speak to a doctor, and my concerns! It took awhile for her to find a medication that worked for her, but she did find one, and she just graduated college this winter!
Same with our middle son. He would stare off and miss parts of the teacher’s lesson. He seems to have outgrown it. Our nephew also outgrew his epileptic seizures, too.
My son (much older than you two) was diagnosed with what was then called petit mal seizures (now called absence seizures). We were so lucky we lived in an area that had a pediatric neurologist. At that time the thinking was that if you had one form of epilepsy you could develop a breakthrough in another type. That's obviously what happened to you. My son was medicated for all seizures and tested annually until he simply outgrew it. It was so scary but well-controlled...and that was over 45 years ago! And I'm sorry, but all those doctors who didn't have a clue about your 'dizzy spells' need to go back to school.
No one need ever apologize for feeling emotion. You don't apologize when you're ecstatic, or wowed... elated, or in love... so none of us should be apologizing for sadness, grief, fear, or trauma either; it's what makes us HUMAN. 💜 Thank you for sharing your story. I'm glad you guys have slowed down a bit this year and started prioritizing your health. It's so important for all of us to advocate for our health in every way. Hugs to you both.
My daughter collapsed with a 7 minute seizure a decade ago. Leading up to the grand seizure we thought she had Tourette’s. She would throw cups. Fall down the steps. Etc. she has been on every anti seizure medication and she experienced so many side effects. She is currently on zonisamide and pregnant with her second child. She lives a full, normal life. You will be great! The initial experience was absolutely emotional. We lived in terror. A lot of crying. But modern medicine is amazing!
My beautiful daughter was just diagnosed today after dealing with this for half of her life. She’s 16 and I feel so distressed thinking of how long it has taken for someone to help her. I’m still in the afraid part.
I’m so glad your treatment provider did not medically gaslight you. She provided comfort, a diagnosis, validation and a treatment plan. This experience needs to be the norm.
Guys, prioritise health first, YT second. Make sure you give yourself the right time to work everything out, don't go putting yourselves in danger in a remote location. 🤗
My sister was diagnosed with epilepsy at 2 years old. She's now 62 and eventhough she has huge grand mal seizures, she lives on her own, travels around by herself etc. Things haven't always been easy for her but she gets on with life and never lets epilepsy hold her back. As scary as it is for you right now, people can and do live full lives with epilepsy. You still have awesome adventures and sights to see ahead of you. Live a beautiful full life. Don't let epilepsy hold you back ❤
We are 4 years into an epilepsy journey with my daughter. She is doing very well now. I started watching videos to get ideas for how to travel more comfortably with her so this video was strangely comforting. Thanks for being willing to share.
Hey, physician here, just so you know you may not be resigned to taking medications for the rest of your life. There are some patients with epilepsy who are eventually able to come off their medications. So glad you have answers and thank you so much for sharing your story.
My mom had epilepsy. She started having seizures in her late 40s. Once she found the right med, she lived another 40 years seizure free. You got this! Sending you and Nate all the love❤
So my daughter is 26 and her epilepsy has progressed from absence seizures as a child and now tonic-clonic. She also has Autism and developmentally delayed. She says that her head feels funky then has a seizure. For what she has to deal with, she’s a real trooper. She’s unable on her own to know what to do to stay safe. But she goes along with the precautions we put into place. Her seizures have not stopped us. We travel, she loves cruises, she goes to a camp for people with cognitive issues, she plays video games. Her life hasn’t stopped, we just make concessions and keep going forward.
When Nate said to Kara "you can't carry this" meaning by herself and to let him share it with her I just cried. Kara you have such a great support system with Nate and will get through this. 😊
I had my first seizure 40+ years ago. After high school prom. The key to living a ‘normal’ life is to find a medication that works for you and to find you triggers that you need to avoid. My triggers are lack of sleep, stress, trauma. I have been seizure free for 12 years. I wish you all the best! You’ve got this!
In front of that camera are two real people with real life problems...prayers to both of you. There will be ups and downs but you got all of us here for you.
Dear Kara, just wanted to support you and tell you not to worry. With the help of medication, you can continue your lifestyle and live a long, productive and interesting life. My husband had severe seizures when he was younger, some lasting an hour or more. But after he started taking medications, they stopped. Now he is 77, he feels well and continues to live a full life. We travel a lot and epilepsy has not been a problem at all. Take care and wish you all the best.
My Dad (77yrs) has been living with Epilepsy all his life for the most part. He had surgery to correct it 20yrs ago but he has now been Epilepsy free for that span. He has been on meds all his life so trust me girl I know your fears. I work in a hospital and I understand how hard it can be to get into Neuro but believe me that they are top in the field. Many Blessings to you on your health journey.. much love!
After reading approximately the first 100 comments, I had to stop. Everyone will have a different experience and opinion. Please don't take these to heart. You're very brave to share your own experience. You're doing the right thing for your own healthcare. Big hugs to the both of you, from an 81 y.o. grandmother. ❤❤
Love this comment! I have epilepsy and am a travel vlogger and my epilepsy is mild and very controlled with medicine and doesn't stop my travel lifestyle. Based on Kara's 6 year journey and confirmations from neurologists, she seems to have a pretty mild case too. But i see in this comments section here, phase 2 of epilepsy for her: the constant stream of unsolicited fearmongering, judgment and advice that doesn't apply to her specific story, lol
I genuinely felt like I was sitting in a room with a good friend telling me a story about their life. You were so vulnerable… you didn’t need to tell us this. Proud of you - I’m sure this was hard. Speaking from all the true fans… bless you - we are here for you!!
Thanks for sharing. I’ve been having grand-mal seizures all my life. In particular during a military training exercise and several, while living overseas. I’m now taking Tegretol and have been seizure free for 17 years. The root cause was diagnosed as idiopathic but sleep deprivation prior to my seizures played a role. Kara, I’m grateful you now have proper treatment and support. And you can still continue to live a life of your dreams. Love both of your’s channel and always look forward to your adventures!
You guys might not see this but I’m the person who approached you guys inside Patagonia, at Vail in mid May. I had no idea you guys were going through anything like this as you were super friendly and kind while talking to me. I’m sorry to hear about this and absolutely sending positive vibes your way ✨
My grandmother had epilepsy. I NEVER saw her seize. They were able to control it with medication. In her later life she decided she didn't have epilepsy, went off her medication and ended up faceplanting into a sidewalk when, surprise surprise, she had a seizure. Always put your health first. ❤
I've been a silent watcher for 2yrs. This subject brought me out. I'm 54, been having grand Mal and petite seizures since I was 15yrs old. It hurts to see you crying and not knowing what's coming ur way. You'll be OK! They are scary, to wake up and not know why ur in the floor or outside on the ground. Mine is caused from stress and being a manic depressive. Kara please know you will be OK! Love you both! Good luck!
Hi Kara. I live just outside Port Elizabeth in South Africa and i want to take this time to encourage you. Our family enjoys watching your travels and adventures but when you shared your plans for 2024 I saw you possibly would come to South Africa - and that was exciting because we have an amazing country, but at the same time i felt overwhelmed to pray for you and Nate. Jesus has gone before you both and as you seek Him, He will lead and guide you and give you His Peace. I hope i havent overstepped any boundaries by sharing this with you on this platform. May you know His Healing and have good health. God bless you both in abundance, today and always. Best wishes Ingrid from SA
As the nearly 7000th comment, I don't know if this will get read, but wanted to say: my husband and I watched this last night, and it made him cry. In 2012, I was diagnosed with MS -- lots of left sided weakness and dizziness. For a while, my symptoms abated, but they flared up (MASSIVELY) again in 2017, when we were traveling in Johannesburg. I was scared. He was scared. Neither one of us knew how our travel life would evolve -- if I'd need a cane, walker, wheelchair, or other device to see the world in the future. I have recovered enough to walk (not long distances, but I can walk just fine otherwise) but that incident is always in the back of our minds as a reminder to live life now. Which is how the two of you have been going for a while :) but I wanted to add to those saying -- this is only a small bump in the road. Keep living life. :) I need to take additional precautions these days, but I'm still traveling everywhere. Nate, you are a GEM in sharing and showing your support. We should all have a Nate in our lives -- luckily, I have one of my own. :) Take care, and thanks for your vulnerability on this.
I’m a silent watcher. Twenty three years ago my husband witnessed me having a seizure while asleep. When I woke up, I never saw him so frightened. In the end I didn’t have epilepsy, but was extremely sleep deprived from nursing our first born, who ate around the clock. I remember the fear of another one happening, the anxiety and the feeling of loss of any control in my life. Give yourself time. ❤
Kara, it takes the brain time to heal. Once you get your med dosage correct, and no more seizures, you WILL see improvement in your memory. Keep taking it easy.
@@_Nat_A_ my sister who had a ruptured brain aneurysm found healing in lions main mushroom tea. mushrooms can be very beneficial in healing the brain (and any cardio vascular type disease). She went from having to be horizontal 20 out of 24 hours a day, to living a mostly normal life.
You are both a gift to each other. You have an extraordinary relationship and you’ve got this! You are still Kara, epilepsy does not define you. It’s a hiccup in your life and once you get your meds under control the world will be right again. It was probably time to take a breather anyway so just enjoy the break. Sending you a hug! God bless you.
Petit Mal Absence Seizure gal here Kara, thank you for being so vulnerable and open telling this community, I can fully appreciate how daunting it can be talking about something which is scary. Waking up from your first seizure is terrifying as is having to witness your loved one going through one and there’s nothing you can do to stop the situation. Nate, if people didn’t see you as Kara’s rock before now, they soon will. Whether you post a video a day, 3 a month or 5 a year know that this community is with you and has your back so make sure you take the time for you, your health & wellbeing! 💪🏼
And this is exactly why, my darlings, that you have nearly 4 million followers. You bring your hearts to everything you do. Truly wishing you both every happiness and good health. xox
As a neurodivergent individual with memory problems as well, I cried in recognition when you said it hurt when people assume you do not care because you could not remember.
I have a proposal, you guys. For everyone of us who has successfully come out of epilepsy the other side, still living their best life, treated years later, (I am one!), respond to someone in the comments who is struggling. There are people here who were diagnosed last week and are scared out of their wits with not one single comment. Let’s spread some of Kara’s love around. I know she would love that.
How did you get out of it ? I’ve had it for over 15 years . I still take medication . If I don’t I get them. I want to stop taking medication because the sides effects have really effected me within the years especially my short term memory !! I’m curious how u get of it
@@carmensarmiento214 you're still having seizures because of the medication. Most AEDs have a side effect that says "may cause more seizures". My daughter had bad side effects on every pharmaceutical we tried. She is now mostly seizure free and off pharmaceuticals. She only has seizures when sick now. If you really want to get off of pharmaceuticals, wean off VERY SLOWLY. Like months slowly. It's the stopping the meds that causes seizures, a twisted side effect from pharmaceutical companies to probably keep people on meds. My daughter takes the tiniest bit of CBD oil now, but even forgetting a dose of that can cause a seizure. I want to see what happens when she's completely drug free but the state of NY probably will come after me lol, so I don't dare. You are old enough to do this. Just wean off very slowly like I said. You got this! God bless!
Kara I have had epilepsy since the age of 12 and it is extremely scary to have sometimes but you will still be able to live your normal travelling life and enjoy your best life . Sending so much love. It is very scary for people to see but the bad memories of nate seeing that first seizure will fade and he is still by your side and obviously very understanding of your situation. That's what makes you a great couple
I am in late 50s diagnosed with epilepsy years ago. Those dizzy spells and blackouts are scary even after diagnosis. I had a blackout recently first in a long time. You and all of us are not alone
Kara, most anyone with a chronic illness GETS it! You finally get answers to something you’ve dealt with forever and it’s a weird relief to finally know. You do start to feel crazy! Especially those of us who have gone to doctor after doctor, seeking out answers and they always say you’re fine. The American healthcare system is so broken, but I am SO so glad you found a neurologist who gets it and could help you so quickly. ❤️❤️ And Nate! Gosh, dude. I know you have your own trauma surrounding this, so I hope you have people taking care of you too.
I have lived with a seizure disorder for 50 years. I have triggers; not the proper sleep, caffeine, alcohol, not eating right and not having a routine. I now go to bed at the same time every day, avoid caffeine,etc. Travel and changes in time are my toughest.
My adult daughter has epilepsy. Staying on medication is key & routine. Biggest triggers for her have been not enough sleep especially, & stress! Prayers💜🙏💜
My adult daughter has it too, and she’s a physician at that. Key to her being seizure-free is her not forgetting to take her meds. Otherwise, she’s living her full life, taking care of patients, having sleepless nights, being a mother of a toddler, etc. You got this.
OMG my lovies. I have watched you for so many years!!! I am happy you felt comfortable enough to share everything with us. You are safe, loved and protected!! I have not been able to catch up with you for some time because of a major health crisis. July 4, 22, I was hit by a van and drug down the road. With hundreds of fractures, coma, 12+surgeries (stopped counting), full paralysis to now 1/4 paralysis (left leg), learned to move, breathe, talk, eat (swallowing and using utensils again), speak, write and communicate -- to NOW just learning to walk again. I had 10 appointments a week for about 1.5 years to six appointments, to four, to 2-3 a week! Now at year two, I am in a wheelchair and have a few more surgeries to go. I have had the medical team of an 86-year-old. But learning to do everything over again was like becoming a one-year-old in relearning abilities. YES!!! It is ALL extremely emotional (let it flow). The whole health and healing journey. It is so personal. It is scary the unknown. Everyone will have learnings, lessons, and purpose around their environment and experiences. All the while in my sitch' trying to raise two young men while keeping my "job". So! now, it is one day at a time. Live it to the fullest with the least amount of stress! Doing only things you value and that bring you joy. Priorities change. And it generally leads you to a new version of you- new opportunities, and maybe you influence what creates a new paradigm. YOU have done SO MUCH in transversing the earth and sharing it with us all - maybe new ways impact your purpose to do it differently. Colorado is high, but you were in Nepal and Peru, and those are much higher altitudes. Nate, you are so strong and THE BEST! Watching a seizure and knowing you cannot do anything makes your heart stop!!!! Kara, it will even out and you will become adept at all the medappointments. Team Neuro to the rescue. Glad you figured it all out! BIGHUGS!!!! and, keep breathing and living in gratitude.
I was diagnosed at 34, had "dizzy spells", smelled "burned toast", when there was none around. I had one grandmal siezure..... in the mountains, at a ski hill.... at 10 yrs old. Focal siezures, common until I finally began medication with a clear diagnosis. Took two tries to find the perfect one perscribed. Life changing! Kara, I am 67 now! 33 years using the same medication. I travel all over the world.... and have been able to fill the perscription in many countries. Happy for you and the people who will watch this and go back to thier Dr to push for a diagnosis. Isn't it great to discover you are not an "air head", just zoning out? ❤
Question... Kara and you are describing these dizzy spells, but what goes on around it? You see, i have been going back and forth to the doctor for a while now with excessive tiredness. The thing is, i often have these moments in which I get a feeling of rising nausea but not really nausea and after that dizziness. This is usually accompanied by a sense of confusion or other wordlyness if that makes sense. After iI'm usually really tired. I always thought it was just pure exhaustion.. but does that sound familiar to you, maybe? This does come on suddenly btw i can't point to any external factors that would cause i, and it happens almost dail, and i feel likeit'ss getting worse and worse. The only thing that makes me feel like this is entirely different is that this entire experience from beginning to end can take a while. A seizure is short, right? Just a few minutes at most. Thanks for sharing
My daughter has epilepsy and it has been almost two year since she was diagnosed. She loves watching you all and even when we were in the hospital many many times she lived off you all
I have epilepsy too. Ten years from now after you have been seizure free for ten years, and some primary care doc says you can probably stop taking your epilepsy meds, do not take their advice because ten years after that, you will have another seizure because you hadn't been taking your medication. Warning over. I wish you guys all the best.
My dad had his 2nd seizure after 27 years after being off of meds for 5 years☹️. It was horrible he was knocked out for a good few minutes and in an out of consciousness for 30ish mins.. ended up in ER
If you happen to read this, Kara, I am glad you shared. It helps people to know they aren't alone, and if they keep sharing, it might help the next person find out that life is still liveable. Your strong! You got this!
Kara, you don’t need to worry about us. Your wellbeing comes first. Take it one step at a time, as you and Nate have stated. Nate, you have proven yourself to be a good husband and a good friend to Kara. You have shown her support.
My sister was unknowingly having petit mal seizures for 10 years when after a U2 concert she had her first grand mal. She was 27. She’s 53 now, has three kids (triplets!) and a totally normal life. YOUR LIFE GOES ON!
Kara- I had so many tears for you watching this. My husband has epilepsy and has had several different types of seizures. Doctors that put him on too many meds and made symptoms worse and a doctor that finally made his life better. He has held a job for the past 6 years and finally has found peace. If I had one piece of advice it would be, Nate, you will be the one to see signs (especially others won’t see) that Kara may not notice first. We have lived our lives different from others but that hasn’t stopped us from living our best lives! Hugs to both of you!
I've never seen a video of yours until this one. You're not alone. I had epilepsy from 14 to 40. Now medicine free. I had deja vu symptoms just like you. I could have diagnosed you just after hearing your story. My special needs son has epilepsy far worse than mine ever was. He is on 2 medications. Now he is on a type of keto called modified Atkins. It has decreased his seizure occurrence and severity extremely!! It is amazing. You're going to be okay, doll. I will pray for you. It's wonderful that you have a great husband to support you. I have watched my son have major seizures. It is so scary, so i know what your husband went through. You both are blessed. You are going to be okay. God bless!!!
Also Nate it is not over dramatic. My husband does a lot to help take care of me, witnessed a partial seizure and it’s all so much on a spouse. You’re doing amazing! You’re both an inspiration
Oh Kara. I have epilepsy too. It’s been a long rod these last 8 years with it. 3 brain surgeries and lots of meds later I can tell you that it’s going to be okay. The epilepsy community is incredible. I’m praying for you 🫶🥹
As a Paramedic, I highly encourage you get a Medical Alert Bracelet like Road ID, especially since you travel and may be alone at times. You can list your medical condition, medications and any allergies or adverse reactions you have to medications, and most importantly, Nate's contact info!
I second this. My brother had epilepsy and passed at 23 because he suffocated from the seizure he suffered during sleep. A medical alert bracelet would have saved his life considering we were all in the house when he died.
Stellar advice!
Excellent advice!!
I forgot to say that. Our son wears one. It says seizures, place on side. His name and our phone numbers on back.
I agree! I especially like that the Road IDs are so travel friendly. I exclusively use the flexible ones that are stretchy and come in many different colors. The others are too bulky in my opinion for active lifestyles. I am 77 years old and also have ones for my shoes. Being active requires being proactive.
I just wanted to say that I’m a doctor, I’ve seen so many patients have seizures and it’s still scary each time - I can’t imagine how terrifying it must have been for Nate to wake up and see Kara having a seizure for the first time. Luckily, epilepsy is something that is fairly straightforward to manage (although it can take some time to get the right type and dosage of medications) and you guys sound like you’re already handling it really well. It’s great that you’ve both got each other for support during this difficult time; please continue to do what you need to do to put your physical and mental health first above all, everything else can wait 💕
@hayleyevans7697 I have epilepsy and am also a travel vlogger, and I agree with you that it is very straightforward to manage when your case is not as severe, and you take your medicine daily, which based on her story, seems to be the case. Thank you for reassuring her of that instead of some of these other fear-mongering type comments!!
sigh ...cannabis will reduce seizures to almost zero ? why not give that advice
@@MPezant1215 Charlottes Webb
May the new road in your life’s journey, give you many blessings, allowing you to continue to bless others with sharing your life adventures. I made it thru 2 weeks of Covid years ago, binge watching your content. You blessed me to be in your world and to temporarily forget my sickness.
I’m not sure if you’re a neurologist, but respectfully, epilepsy is a very individual disorder and it is not always straightforward to manage and treat. Hopefully it will be for Kara, but it can be incredibly difficult and complex for some with epilepsy.
Nate and Kara,
I'm a neurologist and watching your account is exactly why I do what I do. People deserve to know what is happening in their health, that's the sacred foundation of all physician - patient interactions that has been eroded in modern medical practice. Your neurologist knew rather easily the diagnosis because she listened to you. There's a famous quote from one of the fathers of modern American medicine, William Osler. The quote is "Listen to your patients, they are telling you the diagnosis."
Thank you for taking the time to so thoughtfully share what you two have been living through. In epilepsy in particular, there are even studies that show peer to peer support is a health benefit for people living with epilepsy. Your narrative and the heart with which you have told your story has SO MUCH IMPACT - just look at all the loving comments that telling your story has brought. Thank you so much for your openness and helping others see themselves validated as well as presenting to society the journeys that we all are on when health problems arise. We are socialized to believe that symptoms should be "toughed out" or dismissed and there is so much stigma associated with any form of illness or disablity. When you speak up, you battle those negative aspects of human nature and you are a light for others. Again, thank you.
as a neurologist, can the stress of such an active/changing lifestyle contribute to exacerbating this condition?
@@forgiven213 sleep deprivation, infection, substances like alcohol and marijuana can make it easier for a seizure to occur. The mesial temporal sclerosis is a clue related to the epilepsy as described by Kara's neurologist. In most of the cases we cannot find a "smoking gun" type structural problem causing the epilepsy. An active lifestyle does not cause epilepsy however head injuries can.
@@forgiven213 Shots from cradle to grave. Did she get the jab?
As a neurologist do you ever warn your patients about shots? Shots that have Thermosol in them (Mercury)??? Mercury has no business in the human body. It is a neurotoxin. Let me tell you my experience. I have crohns disease. My "Dr" told me it was "hereditary." No one in my family history has crohns. No one. Doctors lie and make things up. I then did tons of research and found out about vaccinations. One author stated once you inject that newborn baby with shot(s) you are forever making them a candidate for big pharma. Also since I have crohn's I read many natural cures books. I was able to get off all medications. Lost a ton of weight. One med leads to the next. Anyway, I eat all organic foods. This keeps my crohns in check and in remission. If I eat a bagged snack or all fruit "natural" popsicles....I get vertigo and I get restless leg syndrome. I have tested this myself. Once I introduce something new into my body I will continue to eat it if it doesn't cause a flare up. Well...to my surprise I had negative things happen to my body but not crohns. Once I get the symptoms ie: vertigo or restless leg I will stop eating that snack for a month. Usually within a week the vertigo or restless leg goes away. Just to fact check or double check I will reintroduce that snack again and the symptoms return. So for you as a neurologist might I suggest if you really want to help your patients, ask them what kind of snack foods do they eat? Anything with chemicals is a NO NO!!!! I now make my own potato chips. I kettle pop my own popcorn. I grow my own food. So if you really want to help your patients. Have them only eat food that they make. Nothing in a box for a month. No fast food. No diet soda's. Then introduce foods and snacks one at a time. Yes, I know....lots of work for the patient when everyone has been conditioned to take pills. People can cure themselves. It takes time and dedication. There is a great book I could recommend to you and anyone interested but I fear my comment will be shadow banned if I do. This book got me off of 5 different medications!!!!! It saved my life! It opened my eyes to the corruption in the med industry.
@@5GreenAcresthere is zero peer reviewed evidence that the Covid vaccine causes neurological issues. However, there is ample peer reviewed evidence that a covid infection can lead to neurological issues including seizures. I am not saying this is the case with Cara, since her symptoms started before Covid. I work in pediatric medicine for 2 decades, and I have never seen the amount of new onset seizures, neurologic issues, and out of season respiratory illnesses than in the last 4 years. Many many of the children are not vaccinated for Covid but have suffered through multiple infections in their short lives. Read the research and evidence and talk to actual medical doctors.
I got epilepsy as a16 year old and could stop medication when I was about 28 . I had given birth to 2 children by then. I am now 67 years and haven’t had a seizure since I stopped taking the medication. I don’t drink alcohol or smoke cigarettes and I do sleep about 8 hours a night. Wishing you all the best ❤I also had a very supportive and loving husband.We are very blessed women❤
Me too! You go Kara, you got this!
Great story
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
I'm taking epilepsy medicine can I drink green tea
The ketogenic diet can help manage and prevent epilepsy in all people. It was invented more than 100 years ago by doctors to treat epilepsy. Doctors noticed that people with epilepsy who fasted had far less relapse and issues, so they created a diet to safely simulate fasting. It's a scientific break through. No need to smoke or eat weed or take Valium. Just go keto
Nate saying “stop, you can’t carry this” should tell you everything about the kind of person he is, the kind of character he has inside, and the amount of love he has for Kara. You’re a great person Nate and I don’t think you’re told that enough by this community.
Jesus loves you and is with you
@@jesusworksbro4Life cool bro, but this isn’t the time
Much love to this comment. Alot of people don't realize it's not just the patient that carries the load. It's also the "other half". It's very very hard for that person to watch this happen to the person you love and you can't fix it. That is just as damaging as the diagnosis. Much love to you Nate. Be the rock! You got this.
Sending good vibes your way!
@@roganvegathis is so true. I have recently been diagnosed with interstitial cystitis and other health issues but for 4 months before hand i was having unexplained fainting spells i was very fatigues and could not drive or do much but sit on the couch. while i was and have been carrying a huge load with my health issues my partner has had to carry this load as well. he has stepped up tremendously and has taken on so much to help me and comfort me. we have cried together we have thought the worst together but he has always remained my biggest supporter and comforter. I am so glad Kara not only has Nate to be that person for her but also to receive a diagnosis is absolutely life changing even though having a diagnosis itself is hard to handle and manage. there are so many people with chronic illnesses that dont get diagnosed or get medications/treatments and that is definitely the worst part. i agree so much about the relief of hearing that you have something that they can help try to manage. Kara and Nate are both so strong and a beautiful representation of a good partnership. To anyone living with a chronic illness/condition you are stronger then you think 💖
Dear Kara please don't talk yourself out of crying. I think in situations like yours or any other health change of any kind crying is good for your soul and mind. So if you feel like crying just let it out. Sending you a big and comforting hug, Kara. ❤🩹
Great advice ❤
It's very important to let it out. Holding it in causes so much stress on your body and mind. Release the tears. Let them flow. We are here to support Kara ❤always🙏 Thank you for this comment
Yes ❤️❤️❤️ repair follows that release
agreed! crying helps our brain process our emotions!
Agreed….its totally fine to cry if that’s what you need to do. It can be quite cathartic
Dear Kara,
Hi! My name is Sienna, and I'm 15 years old. I've had epilepsy for the last 11 years, so I know exactly how you feel right now. I also watch all your RUclips videos and love them.
Getting diagnosed with epilepsy can feel really overwhelming and scary, but I want you to know that you're not alone. Having your first few seizures can be very scary for your family because of the fear of the unknown. In my case, my dad had to rush me to the hospital because I was experiencing a long seizure. I felt very scared not knowing what was going on, and it was a tough time for all of us.
Taking medication can be tough because you have to remind yourself to take it every day. But trust me, it's worth it because it helps prevent seizures and keeps you safe.
I know it can be hard to explain epilepsy to other people. Sometimes they don't understand what we're going through. But by talking about it, we can help bring awareness and understanding, which is really important.
If you ever want to talk about it or if you have any questions, please feel free to reach out to me. I'm here for you.
Take care, and remember, you're not alone.
Best wishes,
Sienna
Sweet girl💕
Dearest Sienna:
You are an old soul.
Wow, Sienna, you're only 15, and you're so articulate and kind, reaching out to an adult to offer support!
You are going to do WELL as a human in life.
Keep your kindness and empathy!
This internet stranger is proud of you!
Also I'm female (Frankie, not Frank), and I think it's great to see a young woman who already reaches out to support women.
Amazing young lady ❤
This literally brought tears to my eyes…such a beautiful soul ❤
I have had stage 4 cancer twice.
I can no long speak and have spine damage.
With that said, I never feel sorry for myself because when you spend a lot of time at the hospital, this is always someone who is going through something worse than you.
I say that because when you see someone who might not be having a great day, you never know what that person is dealing with.
Good luck in your journey. You should take all the space and all the time you need to work through this.
❤❤❤❤❤
❤
How are you doing
Hey guys! I am both a physician and a person living with epilepsy. Many of your experiences were mine (except they were 20+ years ago!). I haven’t had a seizure since starting medication as a teenager and would not stop them if given the chance. With the right medication and healthcare team, your quality of life is only going to be better from here onwards! It’s okay to grieve for the days where our bodies were indestructible and infallible but believe it or not, many of your best years are ahead of you. Much love
I’m surprised your comment hasn’t gotten 100 likes. It’s exactly what I would want to hear (from a physician no less) if I were diagnosed with epilepsy.
100% on all points.
❤
Sending huge hugs to you both! Your courage in sharing this journey may help someone else down the line. Thank you for sharing something so very personal.
Hey I have been going through anxiety and now my muscles are feeling tired and don’t know what it is, any thoughts?
I am a physician and let me give you some advice. If you are ever concerned about a test result, tell the medical office your concerns and ask to talk with the doctor. There was no reason that office could not have told you on the phone that the neurologist was going on vacation. Sometimes offices don't understand the worry when waiting for test results, but they should.
Thank you for such compassionate advice.
The amount of times I get rung by the doctors office on a Friday afternoon telling me the doctor needs to see me but I have to wait till next week is unbelievably stressful. It's not untill doctors get the same problem do they realise what you're going through
Thank you, Doctor, for sharing this advice.
@@CarlottaART My pleasure.
Some people really lack basic bedside manners!
Kara,
I have epilepsy and I am a first responder. My wife has seen me have my 1st grand mal seizure that caused a full shoulder dislocation. So we know what it feels like to have an uncertain future. I am still a first responder and we used these tricks to help control my epilepsy. Number one No energy drinks, they counteract most antiseizure meds. Coffee, and teas are fine. Number two sleep sleep sleep. Do your best to get not just 8 hours of sleep but qaulity sleep. Start a nighttime rountine. No matter where you are. And lastly I know it is scary but make fun of it. You are a strong and sweet person. Define your epilespy don't let it define you. My wife and I call mine the worm. With Nate at your side there is no doubt you can live a normal life. Take your meds, recognize your signs and everything will be fine.
I love hearing everyone’s feelings!! We are all so different and so happy you are a first responder! I’m thankful how caring every first responder has been when I have had a seizure. Favorite comment - you can stay here if you can tell me what year it is….. I was WAY off 😂
A great bit of information! ❤️
100% agree from a retired nurse
So happy Kara can still have her coffee 😊
You are lucky you still have a job. My son is a chicago paramedic and they won’t let him back to work. They have kept him on disability for two years. He is so frustrated.
im 12 and I was recently diagnosed with epilepsy and Ive felt so different from everyone but i'm really happy to see there's lots of other people like me. im so sorry I know how hard it is!!
Hey. I just want you to know you're not alone, either. Hang in there, okay? You are loved and cared for. I hope and pray your doctor is a good one.
My dad had epilepsy, but he got it as an adult, pretty sure after a motorcycle accident. It's scary, and I can't imagine how it feels for you guys, but it's going to be all right, in time. It may take a while to get your meds right.
@@AmyAndThePup thank you so much you don't know how much that means to me today I started medication for epilepsy and a few days ago the doctors told me I don't just have focal epilepsy I have generalized and it is so scary I hope you have an amazing day and I appreciate you so much!!
@@AvaLynnsLife Hugs. Hang in there. I don't have epilepsy, but my dad did. Hang in there. I know it's tough right now.
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran..
If you ever want a seizure alert dog, let me know. I do this for a living, I love helping people live their best lives with the help of a service dog. I would do this behind the scenes. Sending positive vibes your way. You got this girl!!
I have a diabetic alert service dog. I have really low blood sugars sometimes that result in having seizures. These dogs are amazing and help you get through the seizure. Please keep this in the back of your mind Kara. They truly are lifesavers. @margaretpittman9650: thank you for providing these dogs for us. I admire anyone who works with these dogs and helps people who need an assistance dog. Thank you so much!
Do you have a way for anyone with Epilepsy to learn about getting a service dog? I have 3 grown daughters that have it. It would be awesome to have someone to talk to about it....Thank You
I have a family member with general seizure disorder, and when I asked him if he'd looked into it, he said he can not come anywhere close to the cost of getting. one, @margaretpittman9650 Send me a pm on your alert dogs, if you can, please.
I used to know someone with seizures who had a seizure alert dog and it was a game changer for her in feeling comfortable on her own. Her dog would nudge her in a particular way when it sensed one coming on so she could lie down and not injure herself when it happened.
Your body chemistry changes, so your scent changes. At least enough for a dog to smell it. There are bigger non profit companies that provide service dogs, but a long waiting list. Canine for companions is one.
Psychologist/counsellor here. Be kind to yourself. You may have to change some aspects of your lifestyle, but that is not a failure. You may have to slow down a bit, and that is not a failure. You may have to modify your self-concept, and that is not a failure. The only failure is if you beat yourself up over those changes. So be kind to yourself.
❤
Nate, I was a nurse for 5 years in an Epilepsy unit, where we would trigger seizures, to pinpoint where they were coming from. They are terrifying, every single time. You're not being overdramatic.
Thank you for saying this…seizures are scary and it’s not over dramatic, it’s a real scary emotion.
he is a hero
Can I just correct this a little. As someone with the condition and having the seizure, they're not terrifying, you don't even feel them while you're having them. But this view adds to the stigma sadly. Let's normalise them and know how people are during grand mals. First of all, keep calm, put something soft under the person's head and move anything dangerous from around them, look and your watch, time the seizure and if after 5 minutes the seizure is still happening call an ambulance. Don't put anything in their mouth. Having had thousands of seizures during my life, I have one, I get some sleep, and I get up and get back on with my life, maybe just with some Bonjella after biting my tongue during them. So many people live with them and get on with life, like me.
O@@hasmikarakelian3580
@@Katieforty4 I think the other commenters are saying that they are terrifying to witness, and as the daughter of someone who has grand mal seizures I completely agree. Growing up I was completely and utterly terrified, not only when my dad had a seizure, but I also found myself anxiously worried about him potentially having a seizure. They are so violent to witness - seeing someone you love most in the world have one really is pure terror. We're keenly aware that it could be a seizure they never recover from, or that they could bang their head, swallow their tongue etc. I can be very very calm when helping a stranger having a seizure, but when it comes to my dad it is another story - I am outwardly calm, but inside I am utterly terrified and panicked.
You're right to point out that the person having the seizure doesn't feel anything during the seizure, only after (body aches, injuries from falls, etc).
The confidence of your neurologist when she said “you have epilepsy” is exactly what people need. It is a relief because at least you know what’s going on. After I cried to my therapist that I felt like my entire life was spiraling she told me I had ADHD & once I was able to put a reason behind the chaos & understand what came with it, I was able to give myself some grace & forgiveness for being chaotic. ADHD & epilepsy are nowhere in the same ballpark but the relief is incredible. I’m glad you got answers & have found a treatment that works! You’re going to continue to be amazing & I look forward to watching you progress!
When my sister, at 19, was diagnosed with Epilepsy she was told that no one knew what or how long her future would be. She just turned 65 last November. She has two beautiful, intelligent, accomplished children who have given her four grandchildren. She has retired after teaching elementary school for thirty six years. Her life has been challenging, certainly, but in no way would she allow it to rule her life.
I have two pieces of advice. 1) Be proactive. You are in charge of your life, health, and future. Don't let anyone make your decisions for you. Research everything. Find a doctor you trust. If you aren't comfortable, change doctors!!! 2) Decide what you want your life to be. Don't let your disorder rule your decisions. Take your meds, eat well(which you do) exercise regularly (which you do) get enough sleep (?). Be aware, not wary.
Blessed Be Kara, you've got this!
I know you are well cared for. Our God has his hands on you. Keep posting wonderful adventures and showing all of us how beautiful and great this world can be if we only take that chance to know it. Love you guys. # Number 1 trip power couple.❤❤❤❤❤
What a lovely, encouraging note. Your sister has a very kind person in her corner. ❤️
The change doctor thing. YES! we are allowed to fire medical professionals who do not hold our best interests!!
I have a special needs autistic epileptic daughter 28 years old on 3 medications to control he seizures still she gets seizures .. her seizures got horrible horrible during PMS ..and her actual period so I took the decision to give her the DEPO provera shot to stop her menstrual periods it did make a huge difference ... This must have been a humbling experience for Miss Kara as I found you were gettin g to be quite a show off in tour vlogs....
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
No advice. Just know we understand if you don’t post in a timely manner! We are just privileged to have you share your lives with us!
Icu nurse here!! Obviously as a nurse I’ve seen a lot of seizures, but I just wanted to give my support to Nate having watched a loved one go through that cannot be easy especially when you cannot stop it at that moment! Watching you be a rock for Kara is amazing. And to Kara, the vulnerability you are giving to your audience by sharing this story is so inspiring. From a healthcare provider, people’s health is not talked about enough on social media. As you said, it’s a highlight reel. Thank you for sharing your story. I wish you all the best and hopefully an easy journey in your treatment. I’m so glad the medication is working and you’re healthy and happy! 😊
it’s the bare minimum to take care of your wife tho?
Nate's mom is a RN too, so pretty sure he was on the phone with her right away, and she talked him through it.
@@nirmalasingh7677 Please don't be heartless. It doesn't make it any less scary to be on the phone with a professional when someone you love is IN a violent crisis and all you can do is watch.
@@nirmalasingh7677 I think you are wrong there. Just because his mom is an RN doesn't mean she can diagnose from afar.
I can't imagine going through seizures, and not knowing the cause. It can be from a dangerous brain condition or many other issues. Nate having to watch his wife seize, and not breathing, must be terrifying. I'm just glad they have a diagnosis and have medication to help.
💯💯💯💯💯💯 I totally agree thanks for commenting
My cousin, who had never experienced seizures before, suddenly started having them at the age of 30. He was athletic and strong, having played football on a scholarship. Once he began taking his medication regularly, his condition improved instantly. At first, the medication made him sleepy, but after some adjustments, he was able to manage it better. By God's grace, he has been doing well ever since. I'm praying for you, Kara-you've got this!
I've got Epilepsy, it's nothing to worry about! You can easily live with it once you've learnt your warnings. You'll be grand hope you're okay 🎉
Epilepsy is not the same for everyone, my is a huge control over my life what I can and can’t do what I can’t eat. Glad it’s easy for you but not for everyone.
My dad had it and the medication he took for it had horrible side effects.
Everyone's epilepsy experience is different. I'm glad you have warnings, and that works for you, but it is not the case for everyone.
@@BrodyYYC the side are effects terrible, especially when you have to take multiple medications, you’re getting them from every one . I know I was a totally different person before so long ago but I can remember I miss doing things.
Thank you for the thoughtful and encouraging words for her sake! ❤
The best thing a student did for me was to tell me in front of the class that she had epilepsy, and what to do about it. She described what it could look like, as she had two types of seizures. At the time, I wondered why she'd say something so personal in front of everyone, but the day she experienced a seizure in class, everyone remembered what to do. No one panicked, she didn't have to be embarrassed. It was a good experience for all of us. I imagine Nate's reaction when he had no warning. Thank you for being open. It IS helpful.
I agree! All of this was very informative to know. That is such a good idea that your student said that in your class.
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran...
Spoken as a health care professional, you were a dream patient. The fact that you had logged your symptoms and everything associated with them was SO helpful to your neurologist. 90% of a diagnosis comes from the history we get from the patient. The tests are just to confirm. Hang in there! You guys will handle this with grace and love just like everything you do❤
Hi there!
2 years ago I got diagnosed with epilepsy at 17 years old. It has been so crazy and it has taken so long to finally get my life back on track. I don't see videos/people talking openly about epilepsy openly, so I am so thankful I found this video. Sending so much love to you guys
Hi. I’m 19 and I also was diagnosed with epilepsy at 17 years old, so 2 years ago 😳
I was diagnosed with epilepsy at age 5, am 63 now, so it’s been with me all my life. You’ll be ok! Trust your body and trust yourself. Take notes and partner with a good neurologist. Epilepsy is manageable and it’s possible to build a rich life around it. Wishing good things for you both.
We are close First grand mal seizure at age 10 and 64 now. Seizure free since 1997. 😊
Kara,
ANOTHER doctor here:)
I can’t help but say something ….
I am SO happy you finally have an accurate diagnosis and some peace of mind (no pun intended). It is very frustrating for me to hear the stories of the medical delays and overlooking your symptoms that you had been experiencing for so long. The subtleties of your symptoms (until the seizure) can be explained by so many other things so I can also see why someone might overlook the vague complaints of a totally healthy and happy young lady.
HOWEVER…
The advantage of having your own primary care doctor is:
- They get to know you! If a patient repeatedly comes in with complaints that are not resolving, I am obligated to explore those concerns. (But seeing
multiple doctors is not optimal for you or for them to diagnose you. )
-I would have had you into a neurologist in a week! This depends so much on your location as some areas might only have a single neurologist in the entire city --but a simple phone call to ask them to make accommodations is easy to do and we do it all the time.
I am happy to hear that you are being treated and doing well. You guys are so fun to watch. Keep up the great work - and make sure to take some time off to really and truly relax!
I agree, but with insurance here in the States, I've had to change Dr's hundreds of times.
My employer changed our insurance provider again this year, so now I have to find new Dr's (Again!!) And this ins. keeps giving me the run around, and I can't even get an appointment. Luckily, they're still honoring my prescriptions.
I had the same primary doctor for 25 years. She retired 5 years ago. At the same clinic have since been referred to 3, the first 2 left the clinic. When you do need to get in you can never see your doctor. For a country that likes to claims we have the best health care we don’t for most people.
My sister had her first grand mal seizure at 13 years old and is now 53 and an Iron Woman, who is competing in yet another Olympic triathlon tomorrow! Her medication has controlled her epilepsy 100%! Keep living your awesome life and let the meds give you comfort and confidence. ❤
Hi Kara and Nate, my name is Rex and I've had Epilepsy ever since I was 7 years old - I'm 60 now. I spent my whole life going to doctors and going through blood tests and so on. Thank you for sharing. RUclips is a great place to connect to others who can relate to what you are going through. Stay strong and take care of yourself. Cheers!
My wife has epilepsy and has been seizure free for about 5 years or so? She found a terrific doctor who found the perfect medication management program for her. I’d be typing all day if I told countless stories of our first years of marriage and watching her have a seizure at 7 months pregnant. Believe it or not? Nate will have to be the hero in this journey.
I also had one of my seizures when I was 7 months pregnant but I was driving. Fortunately baby and I were fine.
YOU ARE ABSOLUTELY RIGHT🥲😥
Even better than medications that will cause other health problems, I recommend a holistic chiropractor who can renew your nervous system through adjustments. I met a lady at my clinic who has been going from doc to doc for 20 years and on meds, but it wasn't until she started getting adjusted that she could sleep through the night without a seizure. It's wild how much our nervous system controls and if your spine is misaligned, your nervous system can't work properly.
@@lydiarose3553 Everyone is different so what might work for one might not work for another.
Important note if anyone in the comments is working through the medical system, please keep advocating for yourself. Women in particular are often told their symptoms are less than or not red flags, when they are signs of major underlying concerns. I have a friend who was having issues and the doctor sent her home. She decided to keep advocacting herself and they found a major blood clot. I have another friend that took 8 years to get her endo diagnosis.
So this is just a reminder please keep advocating for yourself!!!
I’m hearing that beautiful quote of Nates Grandfather “Good health is the crown on the well man’s head that only the sick can see.” You’re doing all the amazing things for you & Nate.
I was diagnosed at 23 with Epilepsy. They couldn't find any reasons. You're not alone. It's a scary thing to hear at first, but the more you research and learn, the less scary it becomes.
Thank you for sharing your story. Please keep using your platform to raise awareness. 1 in 26 people have it 💜
its caused by brain damage. smash a brain = misfires. why is that so hard for you to figure out?
My husband has a really rare neurological condition that also causes seizures, memory issues, and mobility issues. When we were going through this same scary diagnostic process, I was having to watch and make sure my husband stayed breathing through the night. To everyone reading: please don't underestimate the impact Kara's condition can have on Nate too. It's genuinely traumatic to deal with a scary health situation like this, and as the "caretaker" you have to do everything you can to advocate and remain strong for your partner. People tend to underestimate how much of a toll these kind of diagnosis take on BOTH partners (just in very different ways).
How Is he doing now. I hope he gets better ❤
I also hope he gets better .....as well as you
Hi Kara. I was helping my son with his Spanish. Next thing I know I am being off loaded to ER. I had just come too and overheard the ER doc say I probably had a Brain Tumor My heart sank. I guess I am right. The neurosurgeon said I had a brain tumor that was fortunately benign. That was back in 2009, and am still hanging in there,though I have had 4 additional seizures. I am all too familiar with your description of what I call mini-seizures. Anyway I am well and take 1000MG of Keppra twice a day and that seems to be keeping the big seizures in check. I am glad you are doing well. Lean on your husband figuratively and literally when you are feeling out of sorts. Take care
Sorry living right
@@Oecanside He's much more stable now, thankfully. He definitely isn't "healthy," but I haven't had to help him stay breathing in almost a year
Hi Kara and Nate, I'm a 58 year young guy...
I have had severe epilepsy since I was 17 years old and it was said that I would never get rid of the seizures,
in October 2006 I got a new medicine called Keppra, 30 days after I started whit the new medicine, my seizures went away and I haven't had a single seizure since...
What I mean by that is that you can get medicine that suits your Epilepsy, and it can go away completely…
But unfortunately you have to take this medication for the rest of your life.
Sleep properly, eat at fixed times, take more time, plan everything in advance so you don't have to stress, such as not having to stress for the next flight 😁...
As an Epileptic, stress and poor sleep are your biggest enemy.
Big hugs Kara, you have a great guy taking care of you, big hugs to you too Nate and take care...
Best regards from Lars in Karlstad, Sweden 🙂😎
Awesome Advice!
Yes, Resting enough is so Important.
Glad Your Seizures are also well controlled! 😀
(I have Seizures, but from Temporal Lobe Seizure Disorder, but have been Seizure Free for 5 Years, thanks to My Medication.)
This epileptic in Oklahoma agrees wholeheartedly. Thanks for sharing!
I take Keppra too! I was diagnosed last year though I had been twitching (mini seizures I guess) for nearly 10 years before having a seizure and blacking while I was with a customer. I finally got the diagnosis. Abnormal front lobes suck but Keppra has done wonders for me
Keppra is just amazing. I’m on it too. ❤
Keppra is amazing for those it works for. When it works at all it works really really well. Its great it can help some people with epilepsy. When it doesn't though, it's horrible. It's known as the rage drug because the mood issues it causes can be so severe and horrible. Just a heads up.
Seizures are scary, especially witnessing one for the first time. Don’t ever think you’re over dramatic. It is traumatic to see a loved one (or anyone) having a medical emergency, does not matter the “severity”. You guys are strong and even stronger together!
True. It's even scary seeing your pet have one.
@@divscifres2674 100%! My husband’s family dog growing up had seizures and it was always so heart breaking to see her go through that!
A year ago, my brother, who is now 13, had his first seizure in the early morning hours of November. I remember that when my mother rushed him to the emergency room, all I could do was pray to God, hoping it wasn’t something life-threatening. I was terrified. We went to several specialists searching for a diagnosis. My brother only has seizures while sleeping; he has never had one while awake. I was so scared that for about three months, I slept very few hours because I spent the nights watching over him. I prayed a lot to God for my brother's health, and seeing a child like him having seizures broke my heart (his seizures are conscious). The medication doses worked for weeks, maybe months. Then we found an epileptologist here in the Dominican Republic who explained the cause of his seizures (he has a brain lining with ridges, though I can't explain it in medical terms). He treated my brother; he has been like any other since that day. I sleep peacefully now, although we are still cautious, especially around pools and the beach. But he has lived a normal life just like any other child. I used to question God’s will a lot until I met people with conditions and situations that cannot be improved with medication, who don’t even have hope of a better quality of life. So, I’m just telling you, have faith in God and keep a positive attitude. Leave your health and life in God’s hands, and He will give you the peace you need.
Can I just say how nice are the people in this comment section? This is a very positive community and I super love it. May God Bless you more Kara and Nate ❤❤
Is it possible to love Kara (and Nate) anymore??? Thank you for sharing your authentic selves, letting us into your life and to grow with you.
This! They are just so human and relatable. ❤
I do not love them at all. They are okay😂
IMPOSSIBLE!! They are lovely ❤❤
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
I have a handful of comments as the wife of someone with epilepsy:
1. You didn't wait too long or push anything off getting diagnosed. My husband was having partial seizures for 5 years before his grand mal when he finally got the attention he needed.
2. You need to get good sleep and use the meds. It's a partnership! We've found that slower travel is better now, and always building in a rest day after a long flight has helped tremendously (especially remembering those meds every 12 hours).
3. It's okay to feel your feelings both of you! I watched my husband have his big seizure and it was one of the most traumatic experiences of my life. Cry it out, it feels better.
4. Once you find the right meds, you can live your life however you want, just as long as you find a way to get sleep.
5. Hearing your story was so amazing and it's lovely knowing we're not alone with this diagnosis.
This is a great summary. I've had a similar experience with my husband. He's had 7 grand mal seizures in the last 10 years (starting at age 46 and just after we moved to Colorado). It's traumatic and incredibly scary to witness, but you find a way to live with it. We manage a mostly normal life with some added precautions including as you said making sure he gets enough sleep. We have always wondered how much altitude contributed since it started in Colorado and he had 2 of his seizures on flights.
"Courage doesn't always roar. Sometimes courage is that little voice at the end of the day that says I'll try again tomorrow." Keep your head up, stay positive and you will often find that things will work themselves out. Great video.
Nate said what is so important to remember. We don’t know what people are going through and we need to give each other grace!
My daughter is a HUGE fan of your channel. She was diagnosed with epilepsy this year and I just wanted you to know that you being so honest and sharing your diagnosis was REALLY helped her a lot and inspired her to feel more validated in coping with her own diagnosis. Keep being super awesome and strong as you are more of an inspiration than you know ❤praying for you!
Med student here. I just want to thank you for trusting us and sharing your story. I know you were talking about how you hope sharing could help someone else, so I just wanted to say that hearing your story will help me recognize symptoms in other patients, and hopefully help get my future patients to a definitive diagnosis/treatment sooner. Sharing this has probably helped so many people in so many different ways. More than anything, I'm glad you are on your way towards an answer, and hopefully getting back to some sense of normalcy. Your presence in the world has brought me so much joy over the years and all I want is the best for you two.
My daughter had her first seizure at around 6 months old. Scary as **** in the middle of the night. Medicine reduced the quantity of them, and now at 20 years old hasn't had one for years. Thank you upstairs.
The support Nate gives through this is phenomenal but at the very end when he says so sweetly “you can’t carry this” just broke me in so many ways. You two are such beautiful, amazing souls. I love that you found each other and that you share your lives with us. Thank you.
I am a nurse and watching seizures is so upsetting, especially if it is someone you love. My daughter started having seizures as a teenager. With medication she has been seizure free over 20 years. Lives a perfectly normal life, had two healthy babies. She has to get her sleep, no alcohol, and take meds on time. You got this! ❤
my daughter was pretty much the same. First tonic clonic seizure at 14. She has been on medication since and has been seizure free for over 15 years. She has had 3 healthy children and is fine as long as she gets sleep and takes her meds. It was very scary seeing that first seizure though as I'd never seen one before
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
Tough watching that first big seizure moment, must have been terrifying for both of you. Glad it led to a diagnosis and Kara's getting the needed care!
You feel helpless when you don't know what to do. Just make sure the seizure is not going to make them hurt themselves and swallow their tounge.
really scary !!
@@johnstover4584it's physically impossible to swallow your tongue, you can choke on your saliva or vomit during a seizure
@@harper_anne2089 same here, Kara and Nate!
*Kara, as their channel name shows
Just got diagnosed today! For my whole life I’ve had episodes where I blank out for a second. My neurologist decided to do and EEG just to check and lo and behold it is a form of seizure. I don’t think they will get any worse or ever be full-body, but I came to this video for comfort because today is a really trying day. Gonna start a low dose of meds soon.
Kara, I was diagnosed at 36 w/epilepsy. The neurologist believes it presented itself b/c my entire body was under stress from cancer treatments. My sister was diagnosed at 15 and it was triggered by her starting her menstrual cycle. Epilepsy has no rhyme or reason. I have not had a seizure since 2018 and that was due to another medication interfering w/my epilepsy medication. Thank you for sharing your journey. It is scary. I'm incredibly proud of you. Do NOT EVER apologize for your tears. You need that release. HUGE HUGS and lots of love! (side note: sleep deprived EEGs are the WORST!! Right?)
Jesus Encounter Ministries RUclips channel
As a mom of a kiddo with Epilepsy, I can 1000% identify with how scary a first seizure experience can be. Thank you all for sharing your journey in such a real way.
I’ve lived with epilepsy for almost 10 years, once you figure out which meds work for you life is totally normal!
I am so proud of y'all for posting this. I have lived with a form of epilepsy all of my life. I know that this was probably one of the hardest things to go through. Once I found out what my triggers were I was able to start feeling that I had more control over my life again. For me it was finding the balance of good sleep and diet. I hope for the best for you.
My son was diagnosed with absence seizures after years of his pediatrician ignoring my concerns. He had multiple episodes per day. It affected his ability to pay attention in class and his grades suffered. He was a sad, frustrated kid. When we finally got the diagnosis and medication he became a straight “A” student. Thank you for your story. I know by telling it you will help others know that they need to listen to their bodies. You are in my prayers!
My best friend has epilepsy, with absence seizures. We were in high school when I did a little research and told her they should speak to a doctor, and my concerns! It took awhile for her to find a medication that worked for her, but she did find one, and she just graduated college this winter!
My daughter was the same. The medication has helped her tremendously. They are really smart kids!
Same with our middle son. He would stare off and miss parts of the teacher’s lesson. He seems to have outgrown it. Our nephew also outgrew his epileptic seizures, too.
My son (much older than you two) was diagnosed with what was then called petit mal seizures (now called absence seizures). We were so lucky we lived in an area that had a pediatric neurologist. At that time the thinking was that if you had one form of epilepsy you could develop a breakthrough in another type. That's obviously what happened to you. My son was medicated for all seizures and tested annually until he simply outgrew it. It was so scary but well-controlled...and that was over 45 years ago! And I'm sorry, but all those doctors who didn't have a clue about your 'dizzy spells' need to go back to school.
No one need ever apologize for feeling emotion. You don't apologize when you're ecstatic, or wowed... elated, or in love... so none of us should be apologizing for sadness, grief, fear, or trauma either; it's what makes us HUMAN. 💜 Thank you for sharing your story. I'm glad you guys have slowed down a bit this year and started prioritizing your health. It's so important for all of us to advocate for our health in every way. Hugs to you both.
My daughter collapsed with a 7 minute seizure a decade ago. Leading up to the grand seizure we thought she had Tourette’s. She would throw cups. Fall down the steps. Etc. she has been on every anti seizure medication and she experienced so many side effects. She is currently on zonisamide and pregnant with her second child. She lives a full, normal life. You will be great! The initial experience was absolutely emotional. We lived in terror. A lot of crying. But modern medicine is amazing!
My beautiful daughter was just diagnosed today after dealing with this for half of her life. She’s 16 and I feel so distressed thinking of how long it has taken for someone to help her. I’m still in the afraid part.
I’m so glad your treatment provider did not medically gaslight you. She provided comfort, a diagnosis, validation and a treatment plan. This experience needs to be the norm.
Guys, prioritise health first, YT second. Make sure you give yourself the right time to work everything out, don't go putting yourselves in danger in a remote location. 🤗
As someone who's lived with epilepsy for over 50 years, Kara, you got this. Everything will be fine.
My sister was diagnosed with epilepsy at 2 years old. She's now 62 and eventhough she has huge grand mal seizures, she lives on her own, travels around by herself etc. Things haven't always been easy for her but she gets on with life and never lets epilepsy hold her back. As scary as it is for you right now, people can and do live full lives with epilepsy. You still have awesome adventures and sights to see ahead of you. Live a beautiful full life. Don't let epilepsy hold you back ❤
We are 4 years into an epilepsy journey with my daughter. She is doing very well now. I started watching videos to get ideas for how to travel more comfortably with her so this video was strangely comforting. Thanks for being willing to share.
Hey, physician here, just so you know you may not be resigned to taking medications for the rest of your life. There are some patients with epilepsy who are eventually able to come off their medications. So glad you have answers and thank you so much for sharing your story.
My mom had epilepsy. She started having seizures in her late 40s. Once she found the right med, she lived another 40 years seizure free. You got this! Sending you and Nate all the love❤
My wife has epilepsy and watching her have seizures is a nightmare for me, I feel you Nate.
So my daughter is 26 and her epilepsy has progressed from absence seizures as a child and now tonic-clonic. She also has Autism and developmentally delayed. She says that her head feels funky then has a seizure. For what she has to deal with, she’s a real trooper. She’s unable on her own to know what to do to stay safe. But she goes along with the precautions we put into place. Her seizures have not stopped us. We travel, she loves cruises, she goes to a camp for people with cognitive issues, she plays video games. Her life hasn’t stopped, we just make concessions and keep going forward.
When Nate said to Kara "you can't carry this" meaning by herself and to let him share it with her I just cried. Kara you have such a great support system with Nate and will get through this. 😊
I had my first seizure 40+ years ago. After high school prom. The key to living a ‘normal’ life is to find a medication that works for you and to find you triggers that you need to avoid. My triggers are lack of sleep, stress, trauma. I have been seizure free for 12 years.
I wish you all the best! You’ve got this!
In front of that camera are two real people with real life problems...prayers to both of you. There will be ups and downs but you got all of us here for you.
Dear Kara,
just wanted to support you and tell you not to worry. With the help of medication, you can continue your lifestyle and live a long, productive and interesting life. My husband had severe seizures when he was younger, some lasting an hour or more. But after he started taking medications, they stopped. Now he is 77, he feels well and continues to live a full life. We travel a lot and epilepsy has not been a problem at all. Take care and wish you all the best.
My Dad (77yrs) has been living with Epilepsy all his life for the most part. He had surgery to correct it 20yrs ago but he has now been Epilepsy free for that span. He has been on meds all his life so trust me girl I know your fears. I work in a hospital and I understand how hard it can be to get into Neuro but believe me that they are top in the field. Many Blessings to you on your health journey.. much love!
After reading approximately the first 100 comments, I had to stop. Everyone will have a different experience and opinion. Please don't take these to heart. You're very brave to share your own experience. You're doing the right thing for your own healthcare. Big hugs to the both of you, from an 81 y.o. grandmother. ❤❤
Love this comment! I have epilepsy and am a travel vlogger and my epilepsy is mild and very controlled with medicine and doesn't stop my travel lifestyle. Based on Kara's 6 year journey and confirmations from neurologists, she seems to have a pretty mild case too. But i see in this comments section here, phase 2 of epilepsy for her: the constant stream of unsolicited fearmongering, judgment and advice that doesn't apply to her specific story, lol
I genuinely felt like I was sitting in a room with a good friend telling me a story about their life. You were so vulnerable… you didn’t need to tell us this. Proud of you - I’m sure this was hard. Speaking from all the true fans… bless you - we are here for you!!
Thanks for sharing. I’ve been having grand-mal seizures all my life. In particular during a military training exercise and several, while living overseas. I’m now taking Tegretol and have been seizure free for 17 years. The root cause was diagnosed as idiopathic but sleep deprivation prior to my seizures played a role. Kara, I’m grateful you now have proper treatment and support. And you can still continue to live a life of your dreams. Love both of your’s channel and always look forward to your adventures!
You guys might not see this but I’m the person who approached you guys inside Patagonia, at Vail in mid May. I had no idea you guys were going through anything like this as you were super friendly and kind while talking to me. I’m sorry to hear about this and absolutely sending positive vibes your way ✨
My grandmother had epilepsy. I NEVER saw her seize. They were able to control it with medication. In her later life she decided she didn't have epilepsy, went off her medication and ended up faceplanting into a sidewalk when, surprise surprise, she had a seizure. Always put your health first. ❤
Lots of wisdom here.
I've been a silent watcher for 2yrs. This subject brought me out. I'm 54, been having grand Mal and petite seizures since I was 15yrs old. It hurts to see you crying and not knowing what's coming ur way. You'll be OK! They are scary, to wake up and not know why ur in the floor or outside on the ground. Mine is caused from stress and being a manic depressive. Kara please know you will be OK! Love you both! Good luck!
Thank you
Hi Kara. I live just outside Port Elizabeth in South Africa and i want to take this time to encourage you. Our family enjoys watching your travels and adventures but when you shared your plans for 2024 I saw you possibly would come to South Africa - and that was exciting because we have an amazing country, but at the same time i felt overwhelmed to pray for you and Nate. Jesus has gone before you both and as you seek Him, He will lead and guide you and give you His Peace.
I hope i havent overstepped any boundaries by sharing this with you on this platform. May you know His Healing and have good health. God bless you both in abundance, today and always.
Best wishes
Ingrid from SA
As the nearly 7000th comment, I don't know if this will get read, but wanted to say: my husband and I watched this last night, and it made him cry.
In 2012, I was diagnosed with MS -- lots of left sided weakness and dizziness. For a while, my symptoms abated, but they flared up (MASSIVELY) again in 2017, when we were traveling in Johannesburg. I was scared. He was scared. Neither one of us knew how our travel life would evolve -- if I'd need a cane, walker, wheelchair, or other device to see the world in the future.
I have recovered enough to walk (not long distances, but I can walk just fine otherwise) but that incident is always in the back of our minds as a reminder to live life now. Which is how the two of you have been going for a while :) but I wanted to add to those saying -- this is only a small bump in the road. Keep living life. :) I need to take additional precautions these days, but I'm still traveling everywhere.
Nate, you are a GEM in sharing and showing your support. We should all have a Nate in our lives -- luckily, I have one of my own. :)
Take care, and thanks for your vulnerability on this.
God bless you guys
God bless you and your husband
الله يحفظ زوجك إن سان طيب وشهم
Can you describe your dizziness and left sided weakness more please?
Love this reminder to "live life now"...
I’m a silent watcher. Twenty three years ago my husband witnessed me having a seizure while asleep. When I woke up, I never saw him so frightened. In the end I didn’t have epilepsy, but was extremely sleep deprived from nursing our first born, who ate around the clock. I remember the fear of another one happening, the anxiety and the feeling of loss of any control in my life. Give yourself time. ❤
Kara, it takes the brain time to heal. Once you get your med dosage correct, and no more seizures, you WILL see improvement in your memory. Keep taking it easy.
@@_Nat_A_ my sister who had a ruptured brain aneurysm found healing in lions main mushroom tea. mushrooms can be very beneficial in healing the brain (and any cardio vascular type disease). She went from having to be horizontal 20 out of 24 hours a day, to living a mostly normal life.
You are both a gift to each other. You have an extraordinary relationship and you’ve got this! You are still Kara, epilepsy does not define you. It’s a hiccup in your life and once you get your meds under control the world will be right again. It was probably time to take a breather anyway so just enjoy the break. Sending you a hug! God bless you.
Petit Mal Absence Seizure gal here
Kara, thank you for being so vulnerable and open telling this community, I can fully appreciate how daunting it can be talking about something which is scary.
Waking up from your first seizure is terrifying as is having to witness your loved one going through one and there’s nothing you can do to stop the situation.
Nate, if people didn’t see you as Kara’s rock before now, they soon will.
Whether you post a video a day, 3 a month or 5 a year know that this community is with you and has your back so make sure you take the time for you, your health & wellbeing! 💪🏼
And this is exactly why, my darlings, that you have nearly 4 million followers. You bring your hearts to everything you do. Truly wishing you both every happiness and good health. xox
As a neurodivergent individual with memory problems as well, I cried in recognition when you said it hurt when people assume you do not care because you could not remember.
I have a proposal, you guys. For everyone of us who has successfully come out of epilepsy the other side, still living their best life, treated years later, (I am one!), respond to someone in the comments who is struggling. There are people here who were diagnosed last week and are scared out of their wits with not one single comment. Let’s spread some of Kara’s love around. I know she would love that.
How did you get out of it ? I’ve had it for over 15 years . I still take medication . If I don’t I get them. I want to stop taking medication because the sides effects have really effected me within the years especially my short term memory !! I’m curious how u get of it
@@carmensarmiento214definitely wouldn’t stop taking your medication
Not everyone gets to another side, so this seems pretty pointless and dismissive.
@@carmensarmiento214have you talked to you doctor about the side effects? it might be worth trying something else.
@@carmensarmiento214 you're still having seizures because of the medication. Most AEDs have a side effect that says "may cause more seizures". My daughter had bad side effects on every pharmaceutical we tried. She is now mostly seizure free and off pharmaceuticals. She only has seizures when sick now. If you really want to get off of pharmaceuticals, wean off VERY SLOWLY. Like months slowly. It's the stopping the meds that causes seizures, a twisted side effect from pharmaceutical companies to probably keep people on meds. My daughter takes the tiniest bit of CBD oil now, but even forgetting a dose of that can cause a seizure. I want to see what happens when she's completely drug free but the state of NY probably will come after me lol, so I don't dare. You are old enough to do this. Just wean off very slowly like I said. You got this! God bless!
Kara I have had epilepsy since the age of 12 and it is extremely scary to have sometimes but you will still be able to live your normal travelling life and enjoy your best life . Sending so much love. It is very scary for people to see but the bad memories of nate seeing that first seizure will fade and he is still by your side and obviously very understanding of your situation. That's what makes you a great couple
Kara my son is on same medcine he’s been on many different ones Briviact is the only one that’s worked for him with no seizures or side effects 🎉
Sleep heat and stress is triggers
Jesus Encounter Ministries RUclips channel
I’ve had two seizures first one at 1 1/2 years old and second one at 5 1/2
@@MikeSmith-db6sfI’m on keppra it helps me
I am in late 50s diagnosed with epilepsy years ago. Those dizzy spells and blackouts are scary even after diagnosis. I had a blackout recently first in a long time. You and all of us are not alone
I cried when Nate was talking about this as a ‘we’ thing. It’s amazing to see how you have each other’s backs and really truly support each other.
Kara’s dad loves your post
Kara, most anyone with a chronic illness GETS it! You finally get answers to something you’ve dealt with forever and it’s a weird relief to finally know. You do start to feel crazy! Especially those of us who have gone to doctor after doctor, seeking out answers and they always say you’re fine. The American healthcare system is so broken, but I am SO so glad you found a neurologist who gets it and could help you so quickly. ❤️❤️
And Nate! Gosh, dude. I know you have your own trauma surrounding this, so I hope you have people taking care of you too.
I have lived with a seizure disorder for 50 years. I have triggers; not the proper sleep, caffeine, alcohol, not eating right and not having a routine. I now go to bed at the same time every day, avoid caffeine,etc. Travel and changes in time are my toughest.
My adult daughter has epilepsy. Staying on medication is key & routine. Biggest triggers for her have been not enough sleep especially, & stress! Prayers💜🙏💜
My adult daughter has it too, and she’s a physician at that. Key to her being seizure-free is her not forgetting to take her meds. Otherwise, she’s living her full life, taking care of patients, having sleepless nights, being a mother of a toddler, etc. You got this.
OMG my lovies. I have watched you for so many years!!! I am happy you felt comfortable enough to share everything with us. You are safe, loved and protected!! I have not been able to catch up with you for some time because of a major health crisis. July 4, 22, I was hit by a van and drug down the road. With hundreds of fractures, coma, 12+surgeries (stopped counting), full paralysis to now 1/4 paralysis (left leg), learned to move, breathe, talk, eat (swallowing and using utensils again), speak, write and communicate -- to NOW just learning to walk again. I had 10 appointments a week for about 1.5 years to six appointments, to four, to 2-3 a week! Now at year two, I am in a wheelchair and have a few more surgeries to go. I have had the medical team of an 86-year-old. But learning to do everything over again was like becoming a one-year-old in relearning abilities. YES!!! It is ALL extremely emotional (let it flow). The whole health and healing journey. It is so personal. It is scary the unknown. Everyone will have learnings, lessons, and purpose around their environment and experiences. All the while in my sitch' trying to raise two young men while keeping my "job". So! now, it is one day at a time. Live it to the fullest with the least amount of stress! Doing only things you value and that bring you joy. Priorities change. And it generally leads you to a new version of you- new opportunities, and maybe you influence what creates a new paradigm. YOU have done SO MUCH in transversing the earth and sharing it with us all - maybe new ways impact your purpose to do it differently. Colorado is high, but you were in Nepal and Peru, and those are much higher altitudes. Nate, you are so strong and THE BEST! Watching a seizure and knowing you cannot do anything makes your heart stop!!!! Kara, it will even out and you will become adept at all the medappointments. Team Neuro to the rescue. Glad you figured it all out! BIGHUGS!!!! and, keep breathing and living in gratitude.
I was diagnosed at 34, had "dizzy spells", smelled "burned toast", when there was none around. I had one grandmal siezure..... in the mountains, at a ski hill.... at 10 yrs old. Focal siezures, common until I finally began medication with a clear diagnosis. Took two tries to find the perfect one perscribed. Life changing! Kara, I am 67 now! 33 years using the same medication. I travel all over the world.... and have been able to fill the perscription in many countries. Happy for you and the people who will watch this and go back to thier Dr to push for a diagnosis. Isn't it great to discover you are not an "air head", just zoning out? ❤
Question... Kara and you are describing these dizzy spells, but what goes on around it? You see, i have been going back and forth to the doctor for a while now with excessive tiredness. The thing is, i often have these moments in which I get a feeling of rising nausea but not really nausea and after that dizziness. This is usually accompanied by a sense of confusion or other wordlyness if that makes sense. After iI'm usually really tired. I always thought it was just pure exhaustion.. but does that sound familiar to you, maybe?
This does come on suddenly btw i can't point to any external factors that would cause i, and it happens almost dail, and i feel likeit'ss getting worse and worse. The only thing that makes me feel like this is entirely different is that this entire experience from beginning to end can take a while. A seizure is short, right? Just a few minutes at most.
Thanks for sharing
My daughter has epilepsy and it has been almost two year since she was diagnosed. She loves watching you all and even when we were in the hospital many many times she lived off you all
I have epilepsy too. Ten years from now after you have been seizure free for ten years, and some primary care doc says you can probably stop taking your epilepsy meds, do not take their advice because ten years after that, you will have another seizure because you hadn't been taking your medication. Warning over. I wish you guys all the best.
I agree. Same thing happened to my hubby and he was driving.
My dad had his 2nd seizure after 27 years after being off of meds for 5 years☹️. It was horrible he was knocked out for a good few minutes and in an out of consciousness for 30ish mins.. ended up in ER
So true. my dad have been seizure free for 15+years and was asked to stop his meds. and he had another aggressive seizure (after 15years seizure free)
i agree with this, i went of my meds for a year and had a seizure 8 months after i stopped, went straight back on them but a different dose and brand
I agree, this was my decision to stay on them and it was right xxx
If you happen to read this, Kara, I am glad you shared. It helps people to know they aren't alone, and if they keep sharing, it might help the next person find out that life is still liveable. Your strong! You got this!
Kara, you don’t need to worry about us. Your wellbeing comes first. Take it one step at a time, as you and Nate have stated. Nate, you have proven yourself to be a good husband and a good friend to Kara. You have shown her support.
My sister was unknowingly having petit mal seizures for 10 years when after a U2 concert she had her first grand mal. She was 27. She’s 53 now, has three kids (triplets!) and a totally normal life. YOUR LIFE GOES ON!
Kara- I had so many tears for you watching this. My husband has epilepsy and has had several different types of seizures. Doctors that put him on too many meds and made symptoms worse and a doctor that finally made his life better. He has held a job for the past 6 years and finally has found peace. If I had one piece of advice it would be, Nate, you will be the one to see signs (especially others won’t see) that Kara may not notice first. We have lived our lives different from others but that hasn’t stopped us from living our best lives! Hugs to both of you!
I've never seen a video of yours until this one. You're not alone. I had epilepsy from 14 to 40. Now medicine free. I had deja vu symptoms just like you. I could have diagnosed you just after hearing your story. My special needs son has epilepsy far worse than mine ever was. He is on 2 medications. Now he is on a type of keto called modified Atkins. It has decreased his seizure occurrence and severity extremely!! It is amazing. You're going to be okay, doll. I will pray for you. It's wonderful that you have a great husband to support you. I have watched my son have major seizures. It is so scary, so i know what your husband went through. You both are blessed. You are going to be okay. God bless!!!
The most beautiful gift a couple can offer themselves is support for one another, no matter what.
Mom diagnosed with epilepsy after grand mal. Six kids and lived to 92. No problem s in her kids. Wish you all the best. Prayers and blessings!!
Also Nate it is not over dramatic. My husband does a lot to help take care of me, witnessed a partial seizure and it’s all so much on a spouse. You’re doing amazing! You’re both an inspiration
Oh Kara. I have epilepsy too. It’s been a long rod these last 8 years with it. 3 brain surgeries and lots of meds later I can tell you that it’s going to be okay. The epilepsy community is incredible. I’m praying for you 🫶🥹