Have You Ever Suffered With Something That You Didn't Know Was A Medical Issue?
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- Опубликовано: 21 окт 2024
- Fresh AskReddit Stories: [serious]Have you ever suffered with something you didn't know was a medical condition until a doctor told you? What happened? --- LIKE AND I WILL UPLOAD MORE REDDIT STORIES!
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“I was freaking out when i got my first panick attack” uh yea
hMmMm
*This wAtER iS wEt*
The first one is the scariest
Guys, i am sorry to announce, i liked my own comment, before you track me down and rip off my legs, i made it 69 nice likes.
@@civilizedgangster8024 it's aight, we understand
I’ve had musculoskeletal pain and fatigue my whole life. My parents just thought I was fat and lazy. One day, I woke up so stiff and in so much pain after I got sick with a high fever that I could barely move. At 19, I got diagnosed with Rheumatoid Arthritis. Here’s the kicker, my mom has it and so does my aunt. Not once did it occur to either of them. I’m still pissed that they didn’t believe me for years.
I have hypothyroidism from my dad. He doesn't have it, but his mom my grandmother does, her sisters & my aunt. I was diagnosed with it at 13 & I'm in my 20s now
That's awful! Sorry u went thru that.
I have that too. It sucks they didn't believe you or put two and two together.
Ugh me too didn't get diagnosed til 18. That did quite a number on the ol' self esteem
I thought every female had painful periods, and I was just sensitive to cramping too much. Even OBGYNs told me "you're just sensitive." After discovering a ovarian cyst that wasn't going away, I opted to have surgery. All those painful cramps to the point of passing out and throwing up? Yeah, it's called *endometriosis*
Oh god....I don’t even think my mom would believe me if it was that painful.
Yeah, it sucks how people seem to just dismiss period pains or weirdness. One bit of advice that I have heard helps is to go to a female OBGYN so that way at least the doctor has something to compare it to.
@@deinogreenstreet8631 that's the problem. All but one of my OBGYNs was female.
My thingie on rare occasions hurts and I am pretty sure its not the natural shape, I have a feeling it is deformed or something, but idk, I don't like taking about private things to family
Also I have horrible period pains (including stomach pain, but I have vomitted only once) but lately I am getting the feeling they are starting to get calmer so idk
@spaghetti sometimes those pains “get better” because your body is finally getting used to them. Doesn’t mean things are actually getting better. If I were to, I’d investigate before something worse happens. Don’t ever ignore your body when it been trying to tell you something isn’t right.
I was diagnosed with ADHD recently and when I took meds for the first time, it was a real breakthrough.
1. I realised that ADHD isn't just "normal concentration problems, but stronger". My brain actually works differently compared to healthy people. Without medicine, I can't control the direction my thoughts are taking, they're brutally pulled towards whatever seems the most interesting right now. That's why I had trouble sleeping as a child, my thoughts kept circling and keeping me awake. I thought it was normal to lie awake for at least an hour after going to bed.
2. I was a really whiny child and reacted very sensitive when in uncomfortable situations (hunger, tiredness, stress or boredom). This, to, can be explained by my never-stopping thought train. When I think of something sad, my brain quickly finds more things to be sad about until I start to cry (which makes me feeling angry and helpless, makes everything worse and it is really hard to escape this downward spiral. Takes a lot of time and distraction and it's better if people don't pay attention to my while I'm in that state). And I thought everyone had this kind of problems and I was just lacking discipline.
Now with meds, *I* decide where the thought train is going. If I look out the window while studying, I can actively decide "That's enough, let's get back to work". That used to be impossible. I never knew other people had so much control over their thoughts.
I have adult add, and didn't realize that my ridiculous tendency to procrastinate is merely a symptom of that...
College was a challenge.
@@monkeynumbernine I'm still in college, wish me luck :) Luckily I picked a subject that can easily be divided into short-term goals and has a clear structure, but it's still a struggle. If it weren't for the lockdown semester, I'd still be undiagnosed and emotionally unstable.
All the best :)
@@evilfriedchicken5965
I'm glad you got diagnosed!!
You will do well!
Oh man this was me when I was a child. I always wondered how people could just hand in their work not just on time, but ahead of the due date. I also wondered how everyone else could just fall asleep so quickly and not have to toss and turn a million times before they did. I guess I always assumed my whininess and boredom was bc the school said I was 'gifted' but apparently it was a double combo with ADD all along lmao
Undiagnosed until after *law school* here. (College I managed. Law school fucked with my mental health so bad.) I finally started to consider that something else besides "I'm lazy" was going on when a) I started taking melatonin supplements and discovered that "a good night's sleep" was not a myth, and b) realized that forgetting the very simple instructions I got from my supervisor in the time it took me to walk back to my cubicle was not attributable to "laziness". Fortunately, because of the aforementioned fuckery of my mental health, I already had a psychiatrist, so I made an appointment with him to discuss my suspicions. The first question he asked me was about how many car accidents I'd been in and/or speeding tickets I'd received. And I just started laughing, because I had literally just missed having my license suspended over a speeding ticket I had received about four months earlier. (The ticket itself floated around my car for about three months when I bothered to see when the fine was due/court date was. I'd missed the court date, so when the envelope from the county arrived, I knew exactly what it was and just left it unopened on my kitchen table until the day before it was due.) So yeah, getting my ADHD diagnosis made so many pieces fall into place even before I got on medication.
At around age three, my little brother started complaining about his legs hurting. He would cry every night because they hurt so bad. Our pediatrician said it was growing pains, but it lasted until he started kindergarten and got worse when he started school. We went to Academy to get new tennis shoes and the young employee noticed the way he walked. Turns out my brother has flat feet, and the solution was just high arch shoes or inserts. The pain disappeared in less than a week.
Tl;dr - some twenty year old shoe guy diagnosed my brother's flat feet instead of our family pediatrician.
I have flat feet too! I remember it getting so bad that when I went down the stairs, my only warning would be a shot of pain up my legs and then I’d lose control of my legs. I probably had problems with it since I was young but I mostly can’t remember my childhood bc of trauma, the trauma and situation is also probably the reason why I didn’t get checked sooner. I have insoles now and they’re the best! I can walk now lol. My doc was like that must hurt and I was jokingly like yeah, I can’t walk off the curb without knives shooting up my legs and he was like 😧
That dude is the real MVP! Glad he wasn’t to snobby to notice...frikkin doctors 🤜
Growing pains isn't actually a thing as growth itself isn't painful, it's just a thing that is said in relation to kids getting muscle pain in their legs at night. Any doctor that gives "growing pains" as a diagnosis needs a second opinion
My best friend has flat feet. She got inserts a couple years back. I have never seen her complain of leg pain since.
@@NiaJustNia Not sure if growing pains are a thing, google seems to be unsure, maybe growth alone isn't painful but some processes involved sometimes hurt. Either way they should always investigate further if someone is in severe pain, or anything seems out of the normal like they cant walk properly. Another thing that can cause leg pain (as well as back pain) is lack of magnesium (maybe other nutrients too). I at some point had extreme pain in my legs at night, that went over when I followed somoenes advice of eating food with more magnesium (bananas and cashew nuts if I remember right)
Parents really need to listen to their kids when their kids say something is wrong :(
And talk about diseases that run in the family! I got celiac disease from my mom and ADHD from my dad, the latter could've been diagnosed much earlier if only I'd known.
I have been to a lot of different doctors for my horrible leg pain. I haven't properly ran in a few years, and some days I can barely walk. I feel pain in my legs constantly, but sometimes it will flare up to the point that I have to miss school. I have tried a lot of different non-prescription painkillers, none of which have worked.
But since I'm a 10 year old girl, nope I'm 100% faking it, and they can't even tell me why they think this. No tests have been done, all the doctors usually do is ask me a few questions.
Thankful my parents did. I was around 8 when this happened. I had a fever and massive chest pain when I took a breath every time. They took me to the doctor and did a X-Ray. All they said was that I had a virus and I should get over the counter medication. My mom didn't like that response and came back a second time with the same answer. She had enough and went to another doctor. Took a blood test and it turned out that I had fluid in my lungs. They gave me strong medication to take for a few days. I eventually got better and it went away. This is a lesson to parents, listen to your kids. You never know.
I've had panic attacks for most of my life and I didn't know what it was.
I tried to talk about it with my parents and they never believed me, they just thought that I wanted to skip school and stay home, or that I just had to take stomach pain meds...
I've been to several doctors and they all seemed to agree with what my parents said to them and wouldn't listen to me...
It's only since two years ago that I was diagnosed with *generalized social anxiety* and *endometriosis*...
Now they believe me...
Agreed!
When I was diagnosed with Aspergers in 2001 I had virtually no idea what that was at first, and if you told me I was autistic, I would have thought you were a total liar because autistic people were little boys who are trapped in their own world, can't speak or interact with other people at all, and are confused and frightened all the time. Thankfully now I know better. And I don't "suffer" from Aspergers. I have Aspergers. What I really suffer from are people being idiots.
I feel you, my doctor told me i had asperger tendencies, but refused to do more test because i am not suffering. When i tell people this story they tell me "wow, you dont look autistic". I have problems understanding people sometimes and i tell them they need to talk clearly to me. They are always surprised.
Idontfuqing know me too! It took me a while to become okay with myself because i’d been told that autistic people are unloveable
@@NutyRiver sometimes i think about myself i am unlovable, but than i remember my family loves me and i love them.
I am 18 now and I'm hopefully starting therapy soon. I have so many symptoms of aspergers and every time I told my boyfriend that I wanna get tested because of my many symptoms he got angry because I am normal and always asks me agrily why I want to be a victim
Don’t we all lol
Not a medical issue perse, but I thought it was normal to see colors when you hear noises and eat food. Turns out it is synesthesia.
That would be something to experience! Sounds like some sort of a hallucinatory drug trip.
Rhoda Watkins A drug trip that never ends.
I hear loud ringing when i am in a quiet area alone
Is it normal?
spaghetti That’s called Tinnitus.
This reminds me of the time I found out hearing sound but being unable to interpret it was in fact not normal. Turns out it’s auditory processing disorder.
A few years ago, round about April or May, I began to notice a 'tense' spot when I sat down. At first I thought it was no big deal... but eventially this 'tense' spot began to increase in severity over the following months. Eventually it graduated up to basically 'sitting on a rock'. Made work and play difficult. Had been to doctor, was given some Antibiotics, helped a little bit, but not for long. End of August I had a CT scan to take a look... no good. That following Saturday we had a DnD session and my DM was nice enough to bring pillows for my problem. Later that night I went to use the toilet to find that 'rock' had decided to hatch. Went to ER, eventually had surgery done.
After waking up in all kind of pain I found out they had removed a Tennis-ball sized mass out of my Left butt cheek.
Not long after that, at an appointment to have the wound re-packed, I was told that Tennis-ball sized mass was a yeast infection.
"How does that happen?"
"It happens a lot"
".... that doesn't answer my question!"
Apparently Yeast feeds on Sugar, and this happens when you have too much sugar in your diet.... such as my doofus behavior of buying a 2liter Dr. Pepper and nursing it as I work on my hobbies at the game store.
Bit me right in the ass (pun intended).
I used to brew big batches of chamomile tea to ice and drink during the summers I was training. If I have to have soda I get the sugerless stuff. Turns out candida albicans (the yeast bacteria in people's bodies) absolutely loves insulin resistance that loves my chronic illness. You're pretty lucky it was in a pocket, it can infect people system wide and that's a big pain in the butt.
I was around 7 or 8 when a very obvious wrong thing started happening to my chest. Told my mother and she told me "it was all in my head" and that I was lying. I believed her. By the time I was 13 my hair was falling in clumps, I was obese, I practically slept 12-15 hours a day, and my legs swelled up and was in intense pain. My sister had to convince her to take me to the doctor. Who took me to an endocrinologist and I found out I have hashimoto's thyroiditis. If I had stayed undiagnosed any longer. I would have fallen into a coma
I'm not implying your mother is a bad mother... But were I her, I'd be hysterically crying and begging for your forgiveness. I get people make mistakes and people don't always see the obvious wrong stuff when you see something every day ... But, dang. Hope you are okay. Hope you and your mum are okay.
@@Cel3ere5 I agree, my mother may be the same when it comes to mental stuff but when it comes to physical she goes crazy if she sees something wong with me or my sister
Im sorry that happened. Thats really early in life for you to have been diagnosed with Hashi's. I have been diagnosed with this as well. I am on a gluten free diet. Any tips?
@@LizHellsing Listen to your body, there will be times when the dosage will have to rise and be lowered, especially if you do a change in weight. If you have Hashimoto's disease your at risk of getting other autoimmune diseases, so it's best to look into them to make sure you know the warning signs (I also ended up getting Lupus)
@@janetsanchez8581 thank you i appreciate it
Since 4 years old I’ve had migraines, even though my dad was quite insistent that “kids don’t get headaches” regardless of the fact I would writhe in pain until I threw up. Also had bloody noses until I was a teenager. Those were due to varicose veins in my sinuses. Like so many, I’ve had pain in my legs, arms, back, etc, since I was a kid. Yeah, I have arthritis and fibromyalgia.
arthritis runs in my family, my joints ankles hurt from the inside but not out, Just pains. Sometimes they never go away. Sometimes they do quickly. Its interesting :)
I had migraines when I was a little kid. Luckily I don’t get them anymore but I remember the pain so clearly...
Been diagnosed with fibromyalgia since I was 15, now almost 23 and just about to graduate from nursing school. I hope you have been able to get your migraines under control in your life, I suffered with them frequently. When I was little it was almost every day before I got glasses in the first grade, and they came back with the stress of advanced courses in high school. I got an inner daith piercing after five days straight of having a migraine and had basically tried everything I could think of. Since I got that, I have maybe 3-4 migraines a month, which is considerably more manageable than the 10-15 would have per month before I got the piercing.
I was diagnosed with migraines at age 4 too! 40 years later I haven't worked in 17 years because of them. In my twenties they gradually got more and more frequent (amazing what a person can get "used to" when it happens over time), and I pretty much slept through my 30s. My doctors have told me that falling asleep in response to pain is what's known as an "infantile response," because that was the only defense mechanism I had when I started getting migraines. Most people who acquire migraines as adults feel worse if they lay down during one. It has had the effect of training my brain to respond to painful/stressful stimuli with overwhelming sleepiness - I call it "learned narcolepsy."
A year and a half ago a guy I went to school with passed away from brain cancer/tumor. He'd started experiencing headaches and fatigue - unusual for him - and his wife got him to see a doctor. I don't think he made it a year after diagnosis. It was his headaches that made him think something might be wrong. I fear something like this happening but me not doing anything about it because daily migraines have simply become "normal," even twice daily migraines were happening for a year or so (not anymore thankfully). I'll be that person who finds out they've got a massive tumor in their brain only when it's paralyzed me or I am suddenly speaking fluent French and unable to go back to English.
I have rheumatoid arthritis and fibromyalgia with migraines too. My migraines started when I was very young too. The arthritis pain started when I was younger like 18 but I did my 4 yrs in the USMC and I was in pain the whole time. I was diagnosed just last May 2021. I was 36. I was working with the VA since 2007 and the military during my time in. It took me going to civilian doctors to find out what was wrong with me. I had gone under several cancer test due to how high my white blood cell counts were. My arthritis still isn't under control and the fibromyalgia gets so bad some days it hurts to have anything touch me. How do you all deal with it?
I remember my mom telling me that growing sideways was normal. Years of back pain and begging for an x ray later, it turns out I had scoliosis the entire time
What in the actual,entire hell?! Growing.sideways isNORMAL?!!
rochelle thundercloud definitely not normal. i think she was just hoping it would go away lmao
I have a speech disorder called “cluttering” realated to stuttering and only found out after we move away from the place where People understood me.
Can you tell me about it? Sorry if I'm being mean I just want to know.
Its cool, cluttering affects your rate(words per minute), your pronunciation(saying a “d” instead of “th”, dat instead of that), and your general sentience structure(more disorganized). It doesn’t affect you that badly and if you take speech classes to work on fixing those core aspects it will barely affect you. Even if you don’t take speech you wont encounter many problems. I only found out recently when I moved and people were not used to my fast rate. If you want more information there is a page on the stuttering foundation about it. The condition is rare so you at any one school there is a chance of there being a clutterer in a speech group(most likely only one).
@@diamonddestroy6454 oh thank you I hope it gets better
@@diamonddestroy6454 there's a name for that? I thought it was just me!
@@diamonddestroy6454 kinda reminds me of a speech impediment
Mom says I'm to "dramatic" well it's these kind of videos that get me *shook*
God On break Hey god. Can you get back to work? The world kinda messed up right now
@@alanm4629
Bababababbababa i am in control red button have funny yeah yeah
@@justsomepandawithinternet dude you pressed the red button already now it's just levers
Yup I can relate
Bro god has a disease
I developed a back hump as a kid in my thoracic spine. School dr's dismissed me because it wasnt scoliosis, a side to side curvature. Went my whole life until 27 with crippling back pain and being teased for it. I had a workplace injury that led me to see a physical therapist who asked me how long I had Schuermans for. I looked at him like he had three heads, and he told me Schuermans kyphosis is a genetic spinal deformity where the vertbrea grow trigle/wedge shape instead of rectangular and it causes that back hump with numbness of my hands and legs and balance problems as well as pain. All my life this has NEVER been mentioned and is now untreatable, I can manage pain, but cant fix the hump which will only get worse, had dr's or school caught it as a kid I could have gotten a brace and some calcium medication and PT and it would not have progressed...
i learned from reddit that not all people have a constant ringing in their ears. i have tinnitus.
People tell me I have tinnitus from listening to music in my ear buds to loud, problem with that, I've had it since I was 6 or 7, I didn't start listening to music in my own, let alone with ear buds, until I was 15.
@@andrewwhite8734 Same.
Andrew White yea i think it happens from like trauma in your ears. like i’ve had 3 surgeries for tubes in my ears, and i’ve had ear infections and swimmers ear countless times. i think when i was reading about it, the article said it can also be caused by loud music like you mentioned.
@@lgraceking7283 it usually goes along with hearing loss, which can be caused by trauma or illness.
For me personally, I have tinnitus from being in percussion in high school and an inner ear problem
Andrew White same here i dont know how i got it but i might have slight hearing loss ;-;
Lived most of my life in a leg brace because of constantly dislocating it by stupid means (walking up the stairs, walking down the school hall, ect)
Knew the constant dislocations were an issue, but didn't know it was because both my kneecaps were located above my actual knee, not just the one that had the problem.
Sooooooo Ehlers-Danlos syndrome?
@@SheWhoWalksSilently is that what it's called? The doctor that pointed it out never gave it a name
@@jamiemunger2931 Well possibly. I am hyper-mobile, and it mainly affects my ligaments, possibly my tendons as well. It mainly causes my back, and neck to go out. Most of my bones slide around from their places, so I go out and in easily.
Ehler-Danlos has 7 types if I'm not mistaken, and is considered a part of the "hyper-mobile spectrum". So there are other things it could be, but doctors mainly treat symptoms anyway.
My kneecaps are located slightly below where they should be! Ive dislocated my knees by bending over, turning too quickly, and doing a forward roll. High five
@@jamiemunger2931 also i recommend getting tested for EDS and/or connective tissue disorders
Gastroparesis is not that your stomach DOESN'T empty, it's that it empties much slower than it should.
Yeah I figure if it never emptied this person would have been dead already very quickly!
My son has this.
Oooooh... So that's what me and my mom have.
At least you don't have to eat for a while
I have it. Sometimes the valve at the bottom of your stomach gets stuck because the muscles controlling it lock up. This leads to intense pain, pain so bad you can’t move and all you can do is sit on your knees and lean forward until your forehead touches the floor.
It stops when your muscles wake up and return to work.
In severe cases, an abdominal pacemaker is needed to keep things working.
This pacemaker is basically a cardiac pacemaker but placed in the abdomen.
"I don't want to get up because I hurt" -me, at 9
"Well I'm xxx amount of years on you I'm old and I hurt more than you, go do it" - my mother
"We'll have to have more testing but you have enough physical traits that I'm going to give you a tentative diagnosis of EDS" -my genetics counselor
"So this pain actually isn't normal and normal people don't feel like this and just shrug it off? I thought I was just weak and lazy." -me, at 35
Moral of my story is; don't tell a child they're too young to be in pain.
aw FUCK dude i relate so damn hard to this shit. ive had joint pain since like 2016 that got worse and worse (i even use a cane often nowadays since otherwise the pain gets too bad in my hips/knees) and my parents said i was faking it and it was just because im a bit overweight. 3 days ago, in ONE rheumatological exam, it was confirmed my pain was caused by hypermobility causing shit to constantly come out of alignment. im starting physical therapy next week. i feel empowered.
I’ve had pain my whole life!! My pain tolerance is off the chart(I had a gangrene gallbladder & didn’t feel any more pain). I got diagnosed with heds when I was 38 due to a work injury. I have a bunch of commodities but everything finally makes sense!!! I have had so much PT/OT that I have lost count!!
It started during my teenage years. I'd just kind of 'blank out' all of a sudden; get dizzy, my mind flashing-back to a god aweful Mars candy themed Halloween special, get this deep unsettling feeling in my gut. Kept them to myself because I foolishly thought this was due to me sneaking peeks at dad's magazines (we weren't even evangelical or anything). This went on all through high-school and into my early 20's, I could time this to happening about every 3rd month. December of 2001 I was working at K-mart. Decided to do some Christmas shopping on break, walking from the break room to buy my sister's copy of the sims... I felt it coming on as I passed the Sporting Goods counter... next thing I know I was drifting in and out of consciousness being loaded into an ambulance.
Found out when I was all there in the ER that I had just collapsed right there on the sales floor. I was shortly diagnosed with Epilepsy.
Grand-Mal to be precise (which I figured out on the Transformer Wiki).
Flash forward almost 20 years and several doctors, and my current prescription regiment has it under control.
I have those too! I'm pretty sure they're called absent siezures
I remember getting up from doing school work (i'm home schooled) and went to get something to drink. I then just randomly fell unconscious and had a siesure on the floor. I went to the hospital and got diagnosed with em. Sometimes ill have a strange flash, almost as if I stood up too fast, and suddenly ill pass out. Luckily the only real harm they can do is minor brusing from impact on the floor.
@@CreedmanTheBot absent seizures are just staring into space and drop to the floor or remain in upright position; with grand mal seizures you can feel off or dazed before collapsing into full on muscle spasms like being Tazed. I knew I felt off sometimes but it wasn't till I spent the night with someone that I found I was having grand mals. We treated it with epilepsy meds for several years with a little success but somehow we put things together and realized it was caused by anxiety! And my father was the primary cause. They put me on anxiety meds took away the epileptic meds and I was seizure free for many years.
Dee Mueller ...... after an episode i had recently, this is making me consider talking to my doctor. ive done it since 16 years old but figured it was hypoglycemia by 19 and then severe anxiety attacks causing near blackout episodes around 27. but this sounds eeriely more in line with what i actually experience.
@@tigerpixieprincess have they ever done the EEG? They found when I stressed that a frontal brain area was having an issue with a vein or artery. I stressed, it would spasm to a near closure, seizure, recover and was fine till the next stressful event- repeat!
My exMIL started having seizures during menopause. Took them 3 years to figure out the timing since seizure meds weren't the complete answer. Once she started hormone injections once a month she never had another seizure and was able to come off the seizure meds. Definitely talk to your provider!
Also, if you think it might be hypoglycemia you can test anytime OR if you try the dexcom or libre you don't have to try to stick the finger. It's a sensor under the skin and you can wave the remote or your smart phone over the sensor for immediate results.
Always had back and joint problems when I was a kid and was told I had arthritis. Alright I could deal. After I moved into my new place at 25yrs (2yrs ago) old I got up to get breakfast and my back immediately spasmed and couldn't walk. It was a few months of testing before I got diagnosed with fibromyalgia. The thing is it's getting worse. More doctors, more tests, I'm told nothing is wrong so I give up, as most people with chronic pain do (i dont take pain killers for my chronic pain). Recently I pushed my rheumatologist to check for me being double jointed, and got diagnosed with hypermobility syndrome, yet I'm not really double joined, but my bones slide around and pop and hurt all the time. 15/10 pain. I'm now going to get tested for Ehlers-Danlos Syndrome (EDS) in August and as much as I don't want it to be that, at least I would have an answer. I didn't know any of this stuff was a thing 2 years ago
I just call it Bendy Bone Syndrome lol cause trying to explain it to people so they understand is kinda hard.
Also people automatically assume I'm addicted to opioids when doctors in my state are too scared to give you anything more than a prescription for Aleve 🥴
And some people don't believe fibromyalgia exists so :) I'm :) apparently :) faking :) being :) miserable :) for :) 2 :) years :)
Normalizing chronic pain needs to be up there with mental health. Ik it can be hard to actually tell cause in FM there's no clear reason as to why FM develops in the first place and research is slow cause lack of funding. Fun.
There’s no such thing as double-jointedness, just varying degrees of flexibility, including hypermobility. There are multiple different types of Ehlers-Danlos Syndrome: I have Type 3, “benign hypermobility”. Well, benign my butt. Basically the ligaments and whatnot surrounding my joints are far too loose, so my body has to work extra hard to keep everything in place. It’s caused lifelong fatigue and joint pain. It sounds like you could have that too. It was a pain for me to get diagnosed, as I only got tested for the other types of EDS and was told I didn’t have it. I hope you don’t run into the same problems and get things figured out soon! FM sounds like it sucks, I’m really sorry you have to go through that on top of the possible EDS. Be strong, my friend.
Ever tried massage for your fibromyalgia? Or even acupuncture? I hear people have a lot of good results from that.
@@SheWhoWalksSilently Oh definitely, I've tried that and then some. I just don't have the money to do it once a month, or once every two. I only tried acupuncture once though cause I'm horribly afraid of needles haha 😅 I couldn't really relax.
@@mildlymarvelous I'm sorry :/ try another geneticist? I mean if you don't feel like you got the right diagnosis then getting a second opinion might not hurt? I know I plan to get a second if I'm told something that doesn't add up.
How do you deal with the pain? I fell near the beginning of this month and I think I tore something in my neck and hip cause it's not getting better. Plus my shoulders pop and crack 24/7 and ache. Google doesn't give me a lot to work with other than meds, shots, or the possibility of surgery to repair some damage. I don't have the time or want for any of those things.
Jay'N Co I did get the right diagnosis, don’t worry. For pain I mainly just take ibuprofen, but only when I’m having a really bad day. The thing that hurts my shoulders most is actually sleeping, since I’m a side sleeper. Unless you thrash around in your sleep and change positions a lot, I would recommend posing yourself very carefully in bed, propping up with pillows and making sure your arm isn’t trapped in a hyperextended position. I would definitely go see a doctor about your neck and hip since it’s not getting better. Pretty much the only thing they could do would be prescribe physical therapy, but that might help. Oh yeah- from what I’ve heard, pretty much the only way to hurt less is to exercise. Which seems counterintuitive since exercise hurts. However, there are low-impact ways to exercise which help strengthen joints without too much pain. I’m taking aquatherapy rn and I think it’s starting to help. If you go to the gym, stick with exercises where the machines take a lot of the stress off, for example the elliptical instead of the treadmill. Even just a little moving around or light weightlifting (like, really light) at home can help.
Started pooping yellow. Turns out I had a unicellular parasite called giardia from cleaning work toilets.
Oof, didja get your employer for the medical bill? Cuz that's some health and safety violation right there, m8.
@@hauntedshadowslegacy2826 good thinking! However, I worked for a nonprofit after-school tutoring ministry and we had a lot of low income kids using those toilets. Their budget is stretched already. Besides, gloves were available but I didn't realize that at the time. Thanks for the advice, though! I appreciate it.
Na na na na na na na na
Radioactive man!
Not trying to be mean btw
Shiting out banana's
I'm lactose and intolerant and it's my favorite weapon to use. When I want the room cleared it the best tool. Lactose is my fuel to make annoying people suffer.
Lol
I am too
Lol you just can unleash a fart nuke by drinking chocolate milk
@@SasukeUchiha-tc9xx lol
What are you intolerant of.....IS IT BLACK PEOPLE?!
I have something like this.
So back in 2013 (I was 16), I was practising piano in my room when I suddenly felt really weird. Like I got pinpoint vision, my hearing sounded like I was underwater and my breathing sounded super loud inside my head. It was freaky af. I ran out to the lounge screaming to my Mum and told her, then woke up over 40 minutes later on the floor with 2 paramedics asking me questions. Turns out I had a seizure (over 5 minutes long). Tonic Clonic (which is the one where you pass out and jerk around, foam at the mouth, stop breathing, etc). I was okay after a few minutes and was able to sit up and do their tests fine. Needless to say, had scans done. MRI and EEG found nothing, so it was concluded it was a once off (cause apparently 1 in 10 people will have a seizure in their life, even if they don't have epilepsy).
Skip forward about 9 months. Now 2014. I'm now 17 and at school practising piano again in a large room by myself. I feel it happening again. I stand up to try to get to the door, but I know immediately it's too far away, so lay down and seize again. Wake up at least 40 minutes later again. I seized for an unknown amount of time (my friend walked in on me having it) and when I wake my whole music class, the teacher and the school nurse who I'd never met are in my face. Ambulance arrives and takes me to the hospital. My parents arrive and I meet a real nice nurse named Ben who checks out my vitals and questions me. After a bit over an hour, I'm free to go. Now have to go see a Neurologist in the city. Go to him and he speculates about different types of epilepsy, suggesting 'Musicogenic Epilepsy' (which yes, means it's caused by music) and I am sent for more tests. Nothing concluded, but he thinks I have it since two seizures now.
But then before anything can be done about that, about 6 weeks after the second one I have a third one. Guess what I was doing? Playing the piano. At home again. My auras (that's what the pinpoint vision, hearing thing is, not everyone gets them but everyone who does have different ones) occur and last for about 5 minutes (normally they only last about 10-20 seconds). I also get another type of aura this time. I was talking to my Mum and everything I would say, I could feel my mouth moving in the correct sequence of words, but then I would hear myself talk and the words would come back wrong. So I'd say 'can you understand me?' and then hear it as 'understand can me you?'. Weird sensation. Anyway, seize again, over 5 minute seizure and then passed out for over 40, same old same old. Apparently I turned grey because I had been without oxygen for so long. Ambulance comes and I'm taken to the hospital and guess who's my nurse? Ben! And he remembers me! We get to talking and I tell him I seized again and my neurologist thinks I have Musicogenic Epilepsy and he is intrigued. He's never heard of it before. It spreads throughout the hospital in the four hours I'm there under watch and only 1 person in the building had heard of it (and this is a decent sized hospital for a town of about 100,000 people). So yeah, it's rare. I eventually am free to go.
Finally, go see my neurologist one last time. Tell him about the third one and he declares that I have it, despite not being able to find it in tests (we even did an EEG with me miming playing the piano to a piece I had recorded and was listening to while hooked up to the machine - the lady doing the test asked to record it for research purposes but nothing happened in the test). I got prescribed medication which works for me! I haven't had any seizures since that third one in May of 2014.
I looked it up and about 1 in 10,000,000 people have this type of epilepsy.
And guess what I did after all that? Chose to study a Bachelor of Music at University. I graduated from that a few years back and am now in a Masters degree for Music Teaching. Cause I apparently hate myself.
tldr: had some seizures while playing piano, turns out I have a Musicogenic Epilepsy (seizures caused by music). Then decided to study music after finding that out cause I'm smart (but the meds stop it, it's okay).
Oh don't get me started. My parents like to play doctor so all my health problems are diagnose 2-3 years late.
ugh my parents r the same. my dad has so many undiagnosed health problems and has a "i dont give a fuck" mentality... he has a few broken ribs, a broken shoulder, crooked fingers, a knocked out tooth etc. well when i was about 3 years old (please keep in mind that i was talking full sentences and doing 2nd grade math at that time so people usually took me seriously when i said something) i would get stomac pains and i would only feel better if i puked but it took my parents a week before bringing me to the hospital (this went on for about 2 weeks and right before they brought me to the hostpital i hadnt eaten in the past 2 days) well first the doctors thought i had a stomac bug so i got penacilin (im sorry if i didnt spell that right) well a week after that i developed an allergy to it then 2 days after i went to the hospital for my allergy we went back and i was diagnosed with strep throat... guy my parents insisted that i spend time with my grandma who had it and thats how i caught it.
and heres a more minor story: i got stepped on by my horse (my horse is NOT small) and probably broke my baby toe but no matter how much i begged my dad to bring me to the hostpital or for him to get me a numbing cream he screamed at me and called me a pussy... yay and now my toe is very deformed and i barely have feeling in it
I just thought I was chatty and that my eyes vibrated because they were lazy, I also couldn't sit still as a child, had food aversions based on texture; turns out I have extremely pronounced ADHD that was caught when I was 19.
My periods started when I was 8 were really bad and I couldn't move and would be grey and throw up constantly, at 19 i was diagnosed with stage 4 endomitriosis.
Thought it was normal to be bloated all the time, had heartburn all the time, as well as food aversions, and I missed a lot of school, my parents and teachers thought I was faking; nope just extremely ceiliac that no one thought to check for until I was 21.
I found it really hard to convince myself that everyone doesn't hate me and I would cry a lot because I felt unsafe everywhere for no reason; 3 different Anxiety disorders and PTSD from childhood trauma
Thought it was normal for your chest to hurt when your ran no matter how fit you are for hours after. I would cough for like an hour after unable to catch my breath; not normal at all, at 18 my new doctor told me that I have severe asthma
Moral of the story: find a good doctor, I was told my whole life that I was being dramatic about everything and now my body is damaged. I grew up in a small town and every doctor thought that no one that looked healthy could have anything wrong. I have so much anxiety about telling anyone when something is wrong because when I spoke up all of the adults in my life would think I was faking.
Trust yourself, you know your body
Vertigo.severe cluster migraines.asthma.feet pointed outward.extreme heartburn.deaf.
You have not lived until you have 2 modified wound vacs,one in each ear,sucking thick,black,foul smelling infection out of your ears. Had to go through that at age 9.FOR A SOLID 2 MONTHS.
That was an ear infection? What made it so gnarly?
@@jamersbazuka8055 it was a massive staph infection from improperly maintained piercing equippment
rochelle thundercloud Holy crap. I’m going to add that to my list of reasons I don’t want piercings.
That reminds me of how my birth mother treated me so badly I had been hospitalized at least twice and had 9 ear infections before the age of 1.
Memez_R_ Life Oh my gosh. I’m so glad you got away from her!
I was almost 20 before I learned it wasn't normal to see, hear, and feel things that weren't there (hallucinations). I only found out when I happened to mention my cat (hallucination) to friends at uni
Recently found out about oral allergy syndrome. Basically if you have a bad enough pollen allergy, and you are already having an allergic reaction to pollen, eating certain fruits (for me it was lychee and bananas) will make your mouth itch and burn. It's not anaphylaxis, because it doesn't close the airways, and when I'm having no issues with my allergies I can eat them just fine. My mother also seems to have had this problem her whole life and didn't understand why until I found out about this in spring of this year.
Severe anxiety. Like, to the poubt that I have an anxiety attack when my alarm goes off because I know I have to deal with school. To the point that I get excited from going 24 hours without an anxiety attack. I thought it was normal...
POV you’re watching this to see if there’s something wrong w you
Oh I already know... I have absent seizures and can randomly go unconscious and have a siezure... And boy is it scary when u wake up
I am and I did. I have burning mouth syndrome. Never thought much about it and like the poster I just assumed it was an allergic reaction.
Uhhhhh it appeared on my recommended ._.
I did find the answer to my problem, (thank god), I have the visual snow. It's great to know what it is, but sucks to know there's not much in terms of cure or symptom relief...
Me rn
I've been feeling "empty" or just "not there" for a few years now. I'm not sure if it's depression, because I match most symptoms but not all of them.
I have to convince myself to do things. I'm emotionally detached from life. I don't really "care" about anything much. Everything is a job, a chore, and nothing is fun. Some things are relaxing and even enjoyable in the moment, but that feeling is short lived at best.
Try Jesus. Maybe finding purpose to your life will help. You can try reading the Bible and seeing what you think and how it makes you feel and make try praying.
Most people with depression don't match all of the symptoms, if you match most then that's a lot and you should definitely talk to a doctor or psychological professional about it if possible, if you're unable to talk to a professional for whatever reason then please talk to someone else in your life if you have access to this. With help overtime it does get better.
I was like that, similarly didn't think I had depression... Have severe depression, please please go get checked out
Depression is not one size fits all. I have some symptoms and not others. Please seek help from your doctor.
not feeling pleasure is called anhedonia and it can also be related to schizophrenia or schizoaffective disorder afaik. there's also a chronic type of depression where the main symptom is just anhedonia and low energy. it sounds like you have a psychological problem that could be helped with medication. if you have experienced trauma, abuse, or bad home life, then getting therapy to deal with such experiences would help too.
I found out I had scoliosis when I was in week 4 of boot camp(BCT, It was a complete surprise; I went there due to unknown bleeding unrelated to my cycle). I'll admit I was panicking BUT I lucked out with it being near the time I had to call home to book a flight. So I was able to talk to my father and let him know what the Dr told me and He told me he's had it for a long time and was able to calm me down.)
I was also very lucky to have a very chill 45 yo drill ssgt (he was formally a prison guard in a former life and country so this wasn't sh1t to him) so he wasn't exactly keeping tract how long my 5 min call was. I calmed down enough and figured I'd try as long as I can. (I also wasn't a pain and stayed in line)
And here I am, having completing my sentence. My back has gone down hill with a couple of joints but there's pros and cons to every job. Such as life.
"Parents never believed me." Been there my friends. Thanks for the trauma, mam and dad.
I had absolute terrible pain in the arch of my foot whenever I ran a lot or was just very active. It was the worst pain I’ve ever felt, I couldn’t make myself move whenever I felt the pain coming on because it was just so bad that I had to curl up and hold my foot while hoping it ended. I have a really high pain tolerance so after a few times of this happening my family got worried and took me to a doctor. Turns out I have plantar fasciitis because my foot is too damn wide for the ligament and it gets swollen when I’m too active. I got these hella expensive plastic insoles to put in my shoes and I haven’t had a problem in about a year
Bro that's how my heel is because I stood on my tippy toes about a year ago and it hurt so bad and froze up and I couldn't walk and it almost makes me cry every time it happens and the first time I did cry and now I've learned moving my toes back and forth and moving my foot side to side while extremely painful it helps but the thing is it doesn't happen often but I beg my mom to take me to the doctor but she won't.
yooooo i got the same shit!! it was like age 12 or 13 when i couldn't get through tournaments anymore (travel softball, usually three games a day for two days) and even at practice sometimes if i was on my feet a lot before hand. been wearing inserts since, unless i wear shoes with malleable soles to the point where it formed to my foot (and i generally only wear them for an hour or so lmao)
When I was young I remember that every time I breathed in I felt like I could probably breathe deeper but it was as if something was stopping me from doing it. Then when I was like 13 or 14 years old I started to notice that it was becoming harder to breathe. At first I ignored it thinking that it was nothing and that it will probably go away, and I didn't want to tell my mom because she usually just thinks that I'm being dramatic so I prefer not telling her when I'm feeling sick unless it's pretty bad. But everything just started to become worst, it was so hard to breathe, any kind of exercise would make me feel terrible and I wasn't sleeping well because I couldn't breathe while laying down. Just when I couldn't deal with it anymore is that I finally told her and insisted to her to take me to the doctor and I ended up having asthma and I also had some previous lung issues due to being born premature which my mom didn't even tell me before that. If I had known I would have probably told her before because she would probably have taken it seriously knowing my previous issues but what a great idea is to not mention stuff about their own health to your kids and make them feel insecure to tell you things 🙄🙄
I used to have stomach aches a lot as a kid and was told it was constipation...It was my Anxiety Disorder presenting itself but my small brain didn't understand
So, I have always been a bit...special. I march to the beat of my own drum, didn't quite have a filter, had trouble making friends, etc.
I was very good at certain types of schoolwork, and very bad at others. Cleaning up after myself was...hard. And I went through a couple of phases where I was straight out suicidal. I still have a nigh PTSD reaction to my father's disapproval. Sometimes I put the back edge of a knife against my skin to calm down.
...Then I discovered Autism. And, it fit everything. Everyone who knew anything about Autism? Thought I couldn't be more symptomatic. I kept seeing it everywhere. But my parents told me there was no way.
Finally, I figured out what happened...turns out, the family doctor believed Autistic people all had to have flat affect. They have to be emotionless. I'm HYPER emotional...
Because I 'centered' myself using TV, so I think that's normal. Once we got past that, I got diagnosed and things are moving to get better...even if my dad still makes me want to cut myself.
This is my first time writing one of these, so bear with me. Actually, make that two of these.
1. For a long time, I would get sick or just feel bleh when I ate sugar. I also had stopped growing for a year.
Turns out I have a rare condition called CSID, which makes it so I have too little of the enzyme that digests table sugar. In some cases it can stunt growth, though I forget why.
2. I’ve always been pretty good in various school subjects. However, when I had to write something that was outside my interests, I would start ‘overthinking it’ (I referred to it as that) and end up taking as long to write three sentences as others would to write two paragraphs. Apparently I actually have a type of learning disability where my mind kicks thoughts off the proverbial shelf too soon, causing me to have no idea what to write. What makes it worse is that I also have adhd, and these two conditions affect the same part of my brain, making the learning disability a bit worse. Sometimes I don’t even have a complete thought and then my brain is like ‘okay I’m done with that’ and ditches it.
So yeah, those plus a few other things just proves that I lost the genetic lottery.
Edit a year later: I just remembered another one! So have a third.
So, I’ve had a bike for a while, but a few years back I noticed it hurt to ride. My tailbone felt like it was what got sat on. We got a cushion but it didn’t work. So, we went to see a doctor about it. Did a few examinations, and... apparently one of my legs is longer than the other. Got a lift attached to insoles I already had for hypermobility, and that helped. Never even noticed. And in case you’re wondering, I still don’t know why riding my bike hurts.
I was born as an quick learner, gifted, multitalented, high eq, but was nerfed down to less than zero by something, I don't know what because my country is backwards af and my parents never believe me but the possibility of me just being lazy is high on the shelf
I may have won the loterry, but I spent all my money on the casino
I have a crippling birth defect in my lower spine, as well as dysplasia of hips and shoulders.
Turns out I'm a tall dwarf.
Emily Elfmore oh wow! that’s actually so interesting.
At 34 I just found out that shoulders aren’t supposed to just dislocate when you flex a muscle. The look of horror on the doctor’s face when I called it my ‘cool party trick.”
i do the same thing- my friends have taken to shouting "NO PARTY TRICKS" whenever i'm intentionally dislocating joints
At about 12 - 14 (so halfway through puberty for me) I started getting super lethargic, would sleep 15+ hours a day and still be super tired, and couldn't pull off as much physical activity anymore to the point where even running was basically impossible. The two adults in my life were my grandmother and my mother (who was diagnosed with cancer, which severely limited her physical capabilities, when I was young so I don't really remember her pre-cancer too well). I, therefore, assumed "Oh this is a puberty thing, adults can't do anything physical."
Turns out I developed an underactive thyroid and chronic fatigue, and it is not part of puberty.
I didn’t know I had Tourette’s and I kept getting in trouble for rolling my eyes at teachers when it was just a tic, but I didn’t know how to explain that I can’t control it
Mine was oral allergy syndrome, my Mom’s mouth would start to swell anytime she ate walnuts, she was explaining this to my dad when (10?) year old me looked up and said “isn’t that what happens to everyone?” Yeah turns out that whenever I ate walnuts this would happen. I just didn’t eat walnuts for a few years, until I ate a slice of watermelon and the same reaction occurred, went to my GP and turns out that my seasonal allergies are so bad that I’m allergic to all raw produce and walnuts (birch pollen). Getting treated for that now.
Guess I’m just highly tolerant to my own body trying to murder me.
my joints dislocated multiple times a week my whole life, sometimes every day....I didn't know it was dislocations or that it was abnormal.
The craziest thing i never realized was hip dislocations because i would walk around with one leg visibly higher than the other, in pain, not thinking anything of it. I cringe thinking about how often I've used dislocated limbs (writing, walking, drawing, dancing) thinking the pain and unexplained temporary difficulty with motor control was just something that happened to everyone.
(I have EDS)
i have more fun stories like how i always thought people were lying when they said you'd warm up after a while in a pool...never questioned that i would get progressively colder until one day someone asked why my lips were blue. Related is how I'd complain in the winter that my feet had unbearable burning pain followed by losing feeling and being difficult to walk on bc of the loss of feeling. I was always brushed off. Years later found out I have raynauds syndrome & it wasn't "in my head".
If you think something is wrong with your body don't let people ignore you- you know your body better than anyone
I hurt my abdomen in high school. I played basketball and volleyball, and i pulled muscles all the time. The team I played on seriously overworked all of us- daily practice for two hours, constant hard exercise with no rotations. Constant running and playing. The whole season I was in pain. I constantly had to stop and take breaks or stretch, trying anything to fix my pain. My coaches and I assumed it was a pulled muscle still, but the stretches never helped. My parents- nurses- and I cycled through a couple explanations for pain in my hip. We thought it was a bursitis for a while, but it wasn’t, and eventually after I saw my GP and found out I had PCOS, we started to assume the pain in my pelvis was an ovarian cyst. I had a couple on the opposite side and my GP agreed that the pain in my pelvis on the left side could have been related. Fast forward a few weeks to months and I play a tournament with my teammates. It’s the worst day of my life. Two of my other teammates, team captains, are benched for other injuries. A third player has to be benched in the middle of the game due to a new injury obtained during the game, and we’re stuck with only four players on the court. It was horrible. After that game, which we lost big time, I go home and take a shower because I have to go see family. While I’m in the shower, I notice a massive lump on my pelvis. It’s swollen, about the size of my palm and shaped sort of irregularly. I assume it’s a bad sprain or something, finish shower, and limp around the rest of the day. A couple days later, I see an orthopedist and have an xray taken because at that point I can barely hold my own weight, let alone walk or run. As the orthopedist examines my xrays he looks up at me and tells me I have an evulsion fracture on my pelvis and that I need to be on bed rest for the next six weeks and had to sit out the rest of the season. My coach and teammate didn’t believe me on the phone when I told them, so I show up to the next practice on crutches with a big envelope with my X-rays in it and show them all. I never played basketball again.
TLDR: I sprained my abdomen so bad that the muscles and tendons literally pulled a four inch section of my pelvis off and before the bone popped off through my skin, I and everyone around me assumed it was an ovarian cyst.
16:10- I started having a constant headache when I was 11 years old. At around 1515 on a Sunday in late April, not long after eating a white chocolate Reese's.
It threw my balance completely off to where I could not watch certain shows due to it making me nausea. I also ended up walking around with a cane to help with my balance. After a few months, I got used to it. Buy after a few months, I got used to it.
But after many cts, constract with dyes and tests; I've just gotten used to the fact that I'm not sure what's wrong with my body and I probably won't know until I'm dead.
Is been nearly 20 years since since then.
I've got a similar thing. Starting about a year ago I've had a killer headache. I havent told my family because they'll just tell me it's a migraine (it's very common in my family). I mean migraines can't last a year, right?
Dang the ADHD one hit personal for me. I thought zoning out whenever you were bored and being fidgety was normal up until I went to get tested by a childrens psychologist when I was around 11 or 12. Then two years later I was fooling around then forgot I had to focus and then I reminded myself that I did actually need to focus and my mum made a comment about me and having ADHD which I had no clue I had. She was convinced that she told me of my ADHD but I had no clue up until then. My ADHD is mild enough that I'm fine without the meds to keep the symptoms in check but it's bad enough that I could still take meds. Since I'm in the middle of high school, if I struggle enough in class then I might get a prescription for something if the inattentiveness gets bad enough. Also, my memory isn't the best (which I'm pretty sure is an ADHD symptom) so that sucks. Not to mention that having ADHD puts me 4x more at risk for depression and anxiety than my fellow neurotypical peers. Overall, I don't mind it.
Also, what's it like not having ADHD? I'm genuinely curious. Like, can you sit still without feeling the need to bounce your foot or shift? Or can you remember most of what the teacher says? And do you get called out when you zone out? Do you notice when you zone out?
Tl;dr Thought I was neurotypical, got diagnosed with ADHD, found out two years later, asked a bunch of annoying questions
:>
When I was in elementary I would complain to my teachers and parents that my heel and ankles hurt really bad and one day it hurt so bad I told my teacher that it felt like my bones specifically were hurting. I still remember the face my teacher made when I told her that and she dismissively said "What do you mean your BONES hurt? Your bones can't hurt!"
Fast forward to me taking Anatomy and Physiology in college and learning about our epithelial plate and my professor confirming that growth pains in kids IS a real thing. Smh
I was diagnosed with Aspergers, Depression, Selective Muteness and, they said through Depression, non-epileptic attacks a few years ago. I know the Depression is from losing my Dad and dog, who grew up with me, within 6 months of each other.
I always thought I was just shy, I have never liked talking to strangers and still sometimes have trouble talking to people I've known for years. The doctor who diagnosed me said something like it was not noticed because I was good at maths.
My son who was almost 2 at the time was in the car with his dad/my husband when they got hit head on. The other driver died the 3 others in their car were injured badly. My husband shielded my son almost every bone in his body was broken and he later died at the hospital after his family told him i said its okay and it was ok to let go. The only thing not exploded or broken in car was the front harness of sons carseat. My son had multiple shattered facial bones. Before accident son was walking, he no longer did. They(drs) wouldn't listen that he was screaming when put down and he tried moving. I knew something was wrong. After nearly being arrested because I wouldn't leave drs they finally decided to mri ct and xray my sons legs. Turned out his legs were broken in 3 places as well. Hes now in the military ❤
This isn’t quite the topic but over the years i grew fast and often and my doctor noticed my back was curved. I went to a back doctor and found out that I have a 13% curve. He also said that most people have this and it isn’t a problem. It was only a problem for me because it may have developed into actual scoliosis if I didn’t stop growing so much so fast
I have the same thing my back is curved too it sucks
At 13, my Drs found an S-curve in my spine - 3 curves/twists - 45°, 30°, 15° - top to bottom. I'm now 53, and the spinal fusion my orthopedist wanted to perform when I was 15 is now necessary due to the scoliosis and degenerative disc disorder that run in my family. Wish me luck, y'all. 😢
I’m late but I actually have a story of two severe back conditions I had as a kid- and still have- I was unaware of until pointed out.
I have scoliosis AND kyphosis. My teacher was the first to notice after I wouldn’t stand up straight (I always hunched over) after being told to. She started getting concerned and told my mom. Then my grandma pointed out that my shoulders were terrifyingly uneven and that one of my shoulder blades seemed to want to just “pop out of my skin”. Turned out I had a major curve and needed surgery or I would eventually die. So yeah, that was fun.
Also, I’m allergic to the sun.
I think I have a school phobia. I remember one time, when I was in the car to go to school, when my body was like NOPE and I started to have a panic attack. All I knew was that, no matter what, I did NOT want to go to school.
That sounds like bad anxiety to me. Hope you get help for that!
All throughout my life I've always felt like shit when going to a funeral for family members. Not because someone died tho, but because I feel happy seeing all my family in a room. So I have to fake being sad about said dead family member so I don't come off as an asshole and upset people further. I honestly hate it and wish I could feel just as bad as other people so I could be normal. I also have a hard time when people come to vent to me because I don't know what to say or do. I don't feel bad but I also am afraid of giving bad advice because I don't have any feelings. No matter how hard I try, someone can cry on my shoulder and tell me the most heart wrenching thing ever and I won't feel anything. Just numbness. A few years ago I got my answer to why I am so messed up. I have bpd and narcissism. The reason I don't feel bad is because it's not me. The narcissism part was a tough pill to swallow because narcissists are bad people and I'm not a bad person. But accepting that it's my problem I've honestly haven't been as depressed as I used to be because I am no longer seeking admiration or validation when I'm on my grandiose high and getting kicked with reality. Whenever I am being grandiose I tell myself no I'm not the best thing ever, and when I come crashing down I tell myself I'm not the worst thing ever.
Good on you for accepting that diagnosis and working with it. It's something very, very few people with narcissism ever do, and it speaks really well of you. It seems like you have a good amount of self-awareness, which I feel like few enough people in general manage.
I didn’t know until 12th grade that my asthma was considered a chronic illness
You,too?
Wow, I still didn’t know! I have “severe” asthma, but for about a year when I was younger, I was too lazy to take my inhaler twice a day, so I just didn’t ever take it. This wasn’t my emergency inhaler either, it was my normal, take this medication or you’ll suffocate inhaler. Oof, maybe I should’ve taken better care of my health lol
Omg your asthma is a chronic illness too?
Yep. My former Mother in Law.
Got an inhaler.
Oh I'm not going to do that
Like its OPTIONAL
My mom has asthma
I have seen small static dots in my vision my entire life. When I was a kid, I thought I had extra powerful eyes because of which I was able to see micro-oragnisms otherwise invisible to the regular naked eye. Got to know some time back that it was a condition called 'broadband visual snow'. Also, according to Ayurveda, it apparently happens due to vayu in body.
I have weird statics when I look at the clear sky but thats propably just some normal temporary blindness
I was today years old learning that this isn't normal lol
@@littlebee8311 same!!
I thought those were just floaters. ???
Mmmm tv eyes go brrrrrrrrr
Exhaustion. Beem living with it for years, thinking I was just lazy and hearing this from some people too. Turns out my anemia is grade 2 already. I have already treated it and I am amazed that I actually have energy to do stuff now. Like, this is how people normally feel. Amazing!
I thought I just had bumpy skin on my arms until I found out I had keratosis.
I have it too! It's quite common
Same!! We found out because of a flare up when i was a kid that made it look like chickenpox lol
wait bro- i think i have that- i looked it up and my upper arms look like THAT- ive been so self consious about it cuz it looks like i have like, white heads all over my arms. My sister had it too. and YOU CAN GET RIDE KF IT?? where was this info all my life
@@mthyy5294 medicared creams
My dad has Gastroparesis. It’s not a laughing matter at all!!! He went from weighing 168 pounds to 108 pound in less that 3 months. He’s in and out of hospitals every 2 months. He’s in so much pain the doctor’s seriously consider giving him gastric bypass surgery. Which is where they put a feeding tube in you. So that nurse who laughed at that person should be fired.🤬🤬🤬🤬
That feeling when you realize while watching this video that you realize you indeed have one of the conditions. I have acute visual snow, and have had it since early childhood and only really happens more noticeably when looking to the sky or when I lose focus. Thanks Updoot Everything for uploading this video, I feel very informed ^-^
Upon further research turns out I actually have a specific type of VS called "blue field entoptic phenomenon" which means I see white dots swirling around when looking into bright blue light like the sky.
had debilitating pms pain for many years to the point of passing out. i was a (tw!!!) longtime extreme self harmer with a very high pain tolerance. was always told it was normal and given a prescription for naproxen (basically ibuprofen) for yeara that didnt help. finally a new doc started working at the local GP office that told me i probably have pcos but it didnt show up on an ultrasound and even after saying it only shows up on ultrasounds in some extremely low percentage of cases, they couldn't do an invasive test because of company policy. i was told if i had it and did not seek treatment i probably would never be able to have children. i lived in a small village and did not have access to another doctor for a second opinion. all the other doctors at the office would not even listen when i asked for a test and just told me 'we can't give you stronger meds, it's against policy' to which i always replied 'i'm not asking for meds, nothing works anyway, i just want to find out what i have' (context: my area had a bad drug problem)
i got pregnant, and, well, the worst happened. i was 8 months along.
i was also told i likely have a connective tissue disorder (EDS: my joints dislocate easily. i have had subluxed hips, my arms don't stay in socket half the day, my ribs pop out of place and get stuck in the muscle causing muscle spasms, walking causes my ankles to dislocate, i am incredibly flexible doing splits with ease and even my skin is stretchy and elastic, and have digestive problems) but was never sent for the genetic testing required for a full diagnosis.
to this day i haven't gotten a diagnosis, but it's probably a good thing if the ACA ends up getting repealed as i'm almost 26 and will need to get my own insurance. if ACA is repealed insurance companies will be able to deny coverage for pre existing conditions again. while exceedingly rare, as far as my medical luck goes, i'd probably be one of the people denied coverage. so i will be waiting until i'm 26 to seek out my diagnoses.
that being said, my parents' insurance is amazing, 100% coverage, no limits or deductibles, every emergency surgery i've ever had only cost $20-25. i would have loved to take advantage of that during my youth over the decades i've known i might have a fucking disability. getting diagnosed once i'm 26 (a couple months to go....) will probably cost me an arm and a leg and leave me in crippling debt. but it's the safest way because if i got diagnosed now, in 2 months i could be denied coverage entirely for a disability i've suffered with for two decades.
Not a dramatic one but I used to think it was normal to have a burning sensation in your mouth after eating a lot of chocolate. Turns out I'm allergic to soya, which is an ingrediente in many chocolate bars
Do you get it on the roof of your mouth? I the same sensation there. Especially with white chocolate
@@bridgetmoran7343 yes. Also there was a lot of bloating & heartburn, which are symptoms we rarely associate with allergies
I have a terrible time focusing In school, I can’t sit in one spot for more than 10 minutes, If I am not interested in what’s going on I find it almost impossible to make myself sit still, i was tested for ADHD when I was around 6 but apparently I didn’t have it sooooo idk
It might be a similar problem
Adhd is not the only concentration thing out there
I got diagnosed with ADHD but my mum doesn't want me to get the medication 😃
One time, when I was a teen, my mom and I went to the Del Mar Fair, walked all over everywhere on foot, having fun at the commercial huts (kind of like one of those as-seen-on-tv specialty stores), the home and hobby exhibits, and eating fair food. Next day, my feet hurt so badly, I was on my hands and knees just to get from point A to point B in my home. Mom figured this was not normal, so she took me to the doctor at Kaiser Permanente. Turns out I had low arches. They sent me to a specialist to cast my feet and make custom inserts. Been wearing inserts ever since, but I had the casting redone years later in case there were any changes to my feet since I hit adulthood.
I didn't not think it was normal that everybody's feet hurt when walking for hours. However, I personally think standing for hours with no breaks can't be healthy or normal, but that's what my mom did as a biochemist working with lab mice. Why she didn't get low arches from her mother but I did, I'll never know...
23:10 ADHD (Attention Deficit Hyperactive Disorder) without the hyperactive part is just ADD (Attention Deficit Disorder). Its a lot alike in every way except for the fact that people with ADHD are hyper whereas people with ADD arent.
The term 'ADD' has since been removed from the DSM. Instead, there's now three different types of ADHD: Predominantly Inattentive, Predominantly Hyperactive, and Mixed.
@@hauntedshadowslegacy2826 Which seems like a dumb move. Why have 'non-hyper' as a type of ADHD, when you can just say ADHD is a type of ADD?
I have ADD inattentive type. They got rid of ADHD.
In both cases, it's the same illness with different symptoms. If one lactose intolerant person becomes nauseous and one developed a lot of gas, you wouldn't classify it as two different diseases. I call it ADHD although I'm the inattentive type because that's the official term and "ADD" isn't even classified in my country. I don't mind it, but from a neutral point of view, calling it ADD would be the better choice because it isn't as misleading. Many people tend to overrate the hyperactivity thing.
Low energy most of my teenage years, weird episodes of foggy thinking and numb limbs. all culminated in a period where the right half of my body went numb, I started slurring my speech, and could not communicate normally(words got messed up as they came out). Got checked for a stroke. But nah, it was multiple sclerosis. I’m feeling better now, tho I never really got sensation back in my right hand.
i thought everyone couldn’t sit still and was always hyper. also i couldn’t really read stuff cuz all the letters would be switched up and weird and stuff and also i talk kinda funny. turns out im dyslexic and i have adhd along with a bunch of other stuff im not going to bore y’all with here. but yeah all the time my teachers thought i was just trying to get out of doing work.
I knew I was autistic for ages but recently we found out I have a kinda uncommon form of bipolar as well so that was fun.
Also had fainting/dizzy spells with exercise and stairs for almost my whole life and only found out it was POTS (Postural Orthostatic Tachycardia Syndrome) at 18. It’s under control now.
Damn, you found all of that by 18? I didn't get my autism diagnosis before age 14, I'm now 25, and finally being diagnosed with depression and cptsd. And I haven't been formally diagnosed with my POTS. There is management for that?
Being bad at maths. Turns out i have dyscalculia. Found out when i was 26- would have been helpful to know in school.
Also, being clumsy- ive always been a clumsy person, tripped and fell constantly as a kid. I have a whole lot of other health problems and some relate to my legs/feet so i always thought it was that- turns out clumsiness is a symptom of Fibromyalgia.
In regard to your clumsiness, this may sound strange but have you looked closely at your fingerprints? One of my sisters seemed to be pretty clumsy but later on in her life I had the chance to look closely at her hands and realised that she has extremely shallow fingerprints, to the point that the skin is almost totally flat in places. Fingerprints are one of the reasons we're able to hold things without them sliding out of our grip.
4 years!! 4 damn years from 18-22 no one would listen to me about the pain, throwing up, constantly being tired, not able to walk sometimes, falling, blacking out, or the memory loss. Turns out I have EDS, POTS, MCAS, and MG!?!? 🤦♂️ I had to fly to the Mayo Clinic in Arizona for a week to finally be diagnosed.
What does MCAS stand for?
I assume MG is myasthenia gravis
@@bridgetmoran7343 MCAS is mass cell activation syndrome. Yes MG is myasthenia Gravis
15:17 What is this medication that can help with Raynaud's? I've got Raynaud's myself, and it makes even moderately cold weather borderline unbearable with the pain and the numbness. If there's a thing I can take to keep my hands from freezing solid in the winter, I'd love to know about it. Anyone here know? Perhaps a doc watching this in their downtime?
I'd love to know too, I'd love to have functional hands!
Yes, please! What's it called? Help us out!
@@NiaJustNia I did a bit of poking around, and there's apparently two types of medications that can help. One type lowers blood pressure, and the other type blocks how much calcium you get.
@@hauntedshadowslegacy2826 Given my other health problems I can see why that's not an option offered to me
I am on verapamil, a calcium channel blocker. My neurologist is changing me to the other option, whatever that might be.
These threads are a case where Reddit helps people learn they have a disease!
In the comments of this video I discovered that my apparent 'textbook ADHD symptoms' weren't normal, like being shitty at concentration and taking 4 hours to fall asleep.
For me its gluten intolerance with a longe story but lets just say i olmost died
I just discovered I have visual snow thanks to this video. The floaters and static always piss me off but I thought it was normal. Thanks to this video I learned it's a thing and not normal.
I didnt know I had OCD for the longest time. Apparently its not just being picky when your brain tells you that you have to do something or your whole family will die
Same. I just thought these OCD symptoms I showed were part of also having Aspergers but when I was 11, I was diagnosed after seeing a therapist because my parents were concerned for my constant irrational panic attacks
I thought it was normal to always see "snow" in my vision (think of TV's being on a channel where it is just those black and white dots) I found out at that I've had Visual Snow all my life. There are facebook groups about it and I've joined a few of them.
This video made me just realize I have it and the static, floaters, and blurs aren't normal! What are the groups?
@@Wendelile I have it too, although mine is not natural. Believe I got it from abusing OTC sleep meds. Fuck me
I have it as well but I got mine after surgery .
SO YOURE TELLING MME MY FINGERS TURNING PALE AND GETTING STIFF IN THE COLD ARENT NORMAL??????
😖
Hell no
me too-
I always have one or two fingers that get phat in the cold and my brother and I like to laugh about it and poke it because it gets larger than the other and now my right thumb is slightly larger than the left one
I have something like this called raynards or however its spelled. My Knuckles go black in the cold and my fingers go yellow in the cold, also if I press my finger it stays white for 10 mins or more
Starting when I was about 9 years old, I was sick almost every day. I had heartburn, acid reflux, indigestion, and nausea on a regular basis. I couldn’t do anything fun for all of 4th grade. I went home sick about every other week. I even had trouble swallowing sometimes. In September of my 5th grade year, I had an endoscopy, where the doctor discovered that I have Eosinophilic Esophagitis (EoE). There is no known cure for this disease. The only way to treat it is for me to remove foods from my diet. A traditional allergy test will reveal all of the triggers, but sometimes reacts to non-triggers. In the beginning I removed 17 different foods. I have since trialed many of these and gotten the list down to 7. That may sound like a lot, but it is actually a short list for someone with EoE. I have lived with this for several years, and it is more of an inconvenience that anything. I would rather avoid any number of foods than deal with the pain. For more information on EoE and other eosinophilic disorders, visit apfed.org
I was diagnosed with Aspergers when I was 13. The way I think suddenly made sense. Family members would often point out that I’d noticed or think of things someone else wouldn’t. Socializing with my piers was almost impossible. When I was diagnosed, I was able to get the help I needed. Now, I even have a best friend and can drive.
My anosmia
Everyone thought I was lying when I said I couldn't smell, even a lot of my family.
My aunt still just thinks I'm always sick...
I recently found out that not everyone has blank spaces in memories where major events should be and not everyone forgets if they've done things they needed to or completely blanks out pain unintentionally or starts a task and it's suddenly done with no memory of doing it or loses seconds, minutes, hours, even days at a time. I have a trauma related dissociation disorder that's been basically destroying my life for my entire life due to how young the trauma started
I was also diagnosed with ADHD in college. All I wanted was proof of my dyslexia so I could get a free copy of a speak to text software because dictating despite my lisps has always been easier then actually siting down and typing. I never got that software but I did get more time on tests and a lot of my life since elementary school made a lot more sense
I have visual snow. I had to research it myself, but I finally figured it out once my doctor told me the static, pinpricks of light, and floaters was not an additional symptom of vitamin b12 deficiency and was not at all normal. It’s some sort of neurological issue for me, my eyes are perfectly healthy and working fine. Still, though, my vision is never totally clear
Wait, I'm so early lol!! This is kind of similar but I have a really good pain tolerance and I was at a trampoline park thingy with my class and fell awkwardly on my knee and it cracked, i walked over to the sit-out bench and decided to cool off for a bit, it hurt like hell, but I was so excited for that trip I was NOT going home or sitting out watching everybody else have fun, no...not me I carried on with a bad knee like nothing happened even though I was in constant, horrible, horrible pain, and I never saw a doctor I just went home and told my mam I would be fine win a few days, I wasn't...still didn't go to a doctor and now my knee crunches and starts randomly hurting sometimes. 😒 not to self: don't prioritize having fun over your health, you will regret it deeply. 😂
That happened to me
Hurting your knee at a place where u literally have to use your legs. That sucks
@@LateshaRenee ikr!!!
@@SaikiKFann I feel for you. And it sucks when you've been waiting so long to go there and the first time you get on a frickin trampoline you snap your leg
@@Caraaaaxx yeah it was the worst but what happened to you must suck too
Back in 2014, I started to suffer with severe numbness and pins and needles in my limbs, vision black outs whenever I stood up and all sorts of other conditions. It led to me having a LOT of time off school because I was too sick to go. I was referred to neurology for scans and in 2015, they found a cyst in my pineal gland (centre of my brain). We thought that was the end of it after I got the diagnosis but nope.
3 years later (January 2018) I got a head injury at a concert and had to be referred to neurology again as I started developing new symptoms, and ended up dealing with 6 months of memory loss (still can't recall pretty much anything from that time period). They did another scan, this time full head and neck, and they discovered a syrinx (pocket of fluid inside my spinal cord) that I have had since birth and it had never been found prior. The kick to the head at the concert had irritated it enough to cause the symptoms that led to it being found. I was told that if they hadn't discovered it, I could have been paralysed by the age of 30, or if I had accidentally put too much pressure on my back it could have killed me. Now I am being monitored every year :)
I went through 4 years of high school and 2 years of college with people thinking I was faking my symptoms for attention and so I could have an excuse to skip class. That diagnosis finally confirmed that I was right all along when I was telling them something was wrong. I'm so glad my mother kept pushing for the hospital to do something.
I thought toothpaste was suppose to burn your mouth. Turns out I’m very allergic
Wait really?
spaghetti I am! I’m highly allergic to soaps, toothpaste, hairspray, shampoos, etc. and also most fragrances
@@hunni_bee9898 oh rip
Well, pretty sure its actually normal to burn with toothpaste, the rest not really, but toothpaste usually has menthol I think
Same here, the inside of my mouth started peeling until I switched to an all natural toothpaste.
Liz Hellsing I would get awful blisters in my mouth, and we all thought I was just prone to cold sores. I’m sorry you have to go through this hun 💛
Found out at age 22 from either one of these reddit videos or a Quora post that I have Disgraphia. It's a writting disorder that has a similar affect that dyslexia had to reading. One of the main identifiers is transposing certain letters, common ones are b, d, p, g, and q, which I do consistently and even whole words at times. I'll start writing one word but finish writing either the next one or one a few ahead in the sentence. I know how to spell a word, and even if I spell it out in my head letter for letter as I write it still happens consistently. It also causes sloping writing, not fitting the writing properly in the page and tightness and soreness in my hand when I write because of the way it causes me to hold implements, I'd often break pencils in school, I had to have special permission to only use mechanical pencils or pens because otherwise I'd go through at least 2 pencils a day and spend most of class sharpening it after breaking it. Actually snapped a few in half by accident somehow. It can affect typing as well. It's also very commonly seen in people with ADHD, ADD, and other attention and learning disorders, which I was also diagnosed with at 19 after years of insistance, thoughvi still think they got the diagnosis wrong, they said I have ADD, but I think I have ADHD, because I do have periods of high energy, but 90% of the time it's subdued by the pain, fatigue and lethargy caused by my fibromyalgia, so it's mostly just relased as fidgeting and restless limbs (constantly bouncing/rocking knee or leg, etc) but on days or periods when my fibromyalgia is better than normal I get super active and almost hyper and giddy, sometimes if it's just too much energy built up over time it will still release even though I'm really sore. So it almost makes it worse because it's suppressed so it internalizes and makes me go stir-crazy or adds to the attention deficiency sometimes. Vicious circle.
Lol I ended up finding out I had lupus last year in March, and almost had a heart attack when getting medical steroids for it. Doing better now, but I often felt tired and had a rash on my face before finding out.
When I was younger I played soccer, and whenever we did anaerobic drills like sprinting, I would complain that my heart was beating too fast and that I was feeling faint. My coaches always told me that I was probably just breathing hard from the exercise, and that I would be fine. Fast forward a couple years, and it's still happening, but it usually wasn't triggered by anything, and would happen while I was just sitting on the couch or even laying down, about to go to sleep. I was a worrywart back then, so I was often told that it was just a panic attack and that I was totally fine. Then, I went swimming with my family. My heart started beating too fast and when I walked into my house, I immediately fainted on the couch. My mom, an ER nurse, took my heart rate and it was 263 bpm. We sped off to the hospital, where I got an EKG, and it showed that I had superventricular tachycardia, so I was then referred to a cardiologist, wore a heart monitor for 2 months (the old monitor with the electrodes, it was super embarassing) and got an ablation. The moral of this story is to listen to your kids when they say something's wrong!! They could need heart surgery!!
That was the symptom of lactose and wheat intolerance ? The wheat part makes perfect sense.
I have a stinging pain in my gut area. When it gets bad or really bad it's persistant, I have no energy and just feel nauseous.
I'm still trial-and-error-ing myself to find out what causes it 'cause sometimes it's when I've had something with lactose in when I haven't had enough sleep. Other times I'm not affected at all. No change in what I ingest.
Used to think it was car sickness for a while, until I heard from my mother than I had it when I was a child so I assume it's come back up 20 years later.
For me it’s like I’ve eaten rocks 😅. It’s a very heavy pit of my stomach feeling. I also have a lot of bloating with that too. It was so normal for so long til my doctor ordered a few blood tests, one of which being an allergy test. So I went off everything I was allergic to and I have been great since then.
I have celiac and I throw up viciously every time I eat gluten. Mostly pasta tho
My whole life practically I had mental issues. I was put on antidepressants, and they helped. I was still having problems, but it came to a head during a stressful job and moving in with grandma and she was very smothering, forgetting I was in my 30s and know how to drive. She was always trying to help, but was driving me insane. So I get a med and that helped with anxiety, but it helped with so many other problems as well. I didn't realize I had so many things wrong.
When I was little I thought everyone’s vision was a lil blurry. I saw kids that wore glasses and stuff but I never had a problem reading the whiteboard or anything until I was in middle school. All of a sudden my vision started rapidly declining. I tried telling my parents but I had severe depression in middle school so they thought I was making it up to get out of school. We did those eye tests and when they told me to read a certain line I just went “I can’t”. Nurse asked “Can you try?” and I told her I straight up couldn’t see a thing.
Got glasses my freshman year of high school and then transitioned to contacts. My left eye has been relatively the same but my right eye continues to slowly fade. It’s super wild to think that i thought people just lived life not being able to fucking see lmao
Turns out when my daughter was young, she had a weak eye, but we never knew until she took an eye test at school, and they sent a note home that she should see an eye doctor. I could hardly believe my ears when she was told to look at the chart with her right eye, and looking at the big first letter, said, "I think that's an E." She was diagnosed with amblyopia, commonly known as Lazy Eye, and generally identified when the subject's eye goes crossed. Unfortunately (?), hers never did this, (and she can't cross her eyes to this day). Normally this condition is identified when a child is pretty young, and is corrected with surgery if caught early enough, which hers was not. I'm sure it has had some effect on her life, but nothing awful. She can read, and drive, and looks totally normal.
I’m watching this while doubling over in pain. I’ve felt this for 3 weeks now and I think I have a peptic ulcer. My parents won’t listen and won’t take me to the doctor
I have scoliosis my back would hurt realy bad if I sat up for too long or stood straight up for a long time and I whent to a doc and got x rays nothing whent to another doc and he sed I have scoliosis and this pain will stick with me until I die
Dude have you tried chiropractic? That’s the kind of thing they can help with. Though fair warning, not all chiropractors are made equal
I was diagnosed with ASD the summer between kindergarten and first grade (honestly pretty lucky, since it's better to get diagnosed earlier so you can get help/adjust easier, and girls get diagnosed significantly less than boys, especially so young). My first grade teachers treated me horribly- not to get into too much detail but they literally locked me in a closet because I wanted to read instead of do class and let me scream and cry banging against the door trying to get out, because that's definitely a thing you should do to a 6-year-old no matter if they're autistic or not. Ever since then I've had consistently bad experiences with school, despite my parents and teachers trying their best for me- I just didn't trust anyone or anything about it.
Long story short, I had a total mental breakdown in 6th grade and had to go to an in-patient school/facility, and my assigned therapist took one look at me and went, "yeah, you have PTSD."
Also, I've always especially hated math- we thought I might have dyscalculia, actually. It wasn't until a couple years ago that my therapist at the time casually mentioned that a lot of people where I'm at in the ASD spectrum struggle with math, and I flipped out because all my teachers just told me I should be good at math because I'm autistic, like we're all supposed to be Sheldon from Big Bang Theory or something.
Also, she also told (or I guess reminded) us that I have ADHD, too, since technically I was diagnosed at the in-patient school, but we were all so focused on the PTSD part that we totally forgot. I take Adderal now and it's amazing how the brain fog that I honestly didn't even notice is gone and I can actually interact with the world - it's hard to explain but that's the best I got, lmao
More of a mental condition. But apparently I have maladaptive daydreaming. I thought it was normal to get so immersed in the worlds you create in your head that it distracts you from real life. Apparently not.
Duuuuude I had school phobia for like a week and a half! I had slept horribly for a while and then I'd start waking up in the middle of the night or in the morning and straight up just start puking because of the thought of school. The panic was gone the second I knew I could stay home. Shit's wild, and honestly I surprise myself quite often with some of the hidden reasons for panics. To all my fellow anxious people out there, stay strong. I know it's hard but you can do this!
It wasn't normal to get lung infections, bronchitis, the works, every 2-3 weeks as a little kid(I missed a LOT of school). Turns out black mold does some wonders to your lungs with asthma, so either by now I have the best immune system or I'm going to keel over if I get the rona 👀
Also at some point in my life I had a hole in my left cornea which healed over by itself? So I mean, that's pretty cool right?
@spirals 73 That's pretty cool, optometrist told me that there's a good chance that at any point, be from trauma or just because, my cornea might just tear on its own because it actually stretches over the hole(?).
if that happens i'll time how long it takes to heal lmao
I can relate to the ADHD one, wasn't diagnosed until college, along with sever anxiety. I've been learning more and more about it ever since, and it really is so much more than being hyperactive.
Mental disorder. Diagnosed with Todd's/Alice in wonderland syndrome. I told my parents, teachers and friends what I seen/experienced since childhood and all said I had high imagination. Randomly told my doctor why I was fascinated by the floor pattern moving like under water, he sent me to a psychiatrist. At least I'm not crazy.
um, can you tell me more about this? I'm starting to get concerned about a thing
Sure. It's extremely rare to have, especially as an adult. It caused visual and audio hallucinations at times. Mostly people with migraines, which I have. Like the movie Alice in wonderland where facial features looks large or small, Hatter's eyes, Queen's head. Objects can too. You can see multiple things like clocks on the wall. Lose time, gain it. Sometimes it's more noticeable at night. However, it's not all the time. Any more questions?
In Middle school, I was going to Physical Therapy for a shoulder injury.
The therapist started gently pulling on my back with his thumb. Finally he says "Your tendon is snapping."
I go "Is that not normal?"
"No, It's not."
Hypermobility spectrum disorder.