SOMETHING NEEDS TO CHANGE // diabetes and the holidays
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- Опубликовано: 6 окт 2024
- This holiday season with type 1 diabetes was rough for me… I experienced very high blood sugar with ketones, and I had about 3 days where I was feeling pretty sick. In this video I share what happened and why it happened. I’m back to "normal" now, but I wanted to share my experience with you in hopes that it may help those living with diabetes navigate the next holiday season!
Happy Holidays and all the best in 2020!
PS - apologies for the focusing issues at the end of this video ... it won't happen again :P
Follow my T1D journey on Instagram: @miche_lo
Music: www.epidemicsound.com
DISCLAIMER: I am not a healthcare professional. Do not take any of the content on this channel as medical advice. Always talk with your diabetes education team or primary care physician before making changes to your diabetes management.
I’ve learned to try to stick to my diet as much as possible through the holidays. I pick and chose my cheats carefully - maybe an extra bolus with those 2 fav cookies, piece of pie, or glass of wine. Also, checking in with my emotions and taking a minute for self-care like mediation helps. It keeps holiday anxiety at bay!! Good luck!!
My son was diagnosed 4 months ago. We make all of our food out of monk fruit and low carb flours now. He’s not low carb all the time but having mostly low carb fun foods on hand has helped a lot.
I'm glad you have found something that works well for your son :)
61 years with type 1 Doug here. First...... Happy New Year. Anyway, I learned long ago that the yearly Holiday control collapse is ok. The unavoidable extended stacking of both fatty, sugar based temptations, along with the bolus stacking to try to deal with it, is a holiday recipe that never ends well. And, in addition, the mental stress of the holidays, along with the all day “should I or shouldn’t I”, every time we look at terribly tempting food, makes the whole thing worse. For me, ever since 1958, during the holiday food mess, my mind is consumed with the very stressful mix of fear and anger. As my longtime, brilliant endocrinologist tells me at each annual 4th quarter checkup, “Just do the best you can. A two day control collapse is expected and is ok if it happens. Doug, don’t you always return to your normal ranges? You are allowed to fall off the endless control tightrope now and then. It’s all part of type 1.”
Michelle, you look great, and are obviously mentally and physically fit. You are doing GREAT.
Thanks so much for the encouragement and advice, Doug. I really value your input, as you've been living with T1D for so long! I absolutely love the wise words from your endocrinologist! I feel like we all need to hear that sometimes :). Happy New Year!
Doug I love your post! I’m Type1 for 52 years. This post says it all. 💜
I run every day over d holidays 2 try n keep it under control. But will still inevitably run high at times. I just try n enjoy it at the time and enter beast mode in Jan.
as a very newly diagnosed type 1, thank you for taking the time to post this comment
I appreciate the vulnerability of this post!! One of the struggles I’ve dealt with as a type 1 diabetic is guilt for bad blood sugars- I think that’s something that we shouldn’t put in ourselves. Live and learn, and keep trying! Thank you for your encouragement and sharing that it’s normal to not always manage perfectly!
Hey Michelle great video thank you for being open and transparent, Your definitely a honest voice in the diabetes community.
Please don't beat yourself up too much Michelle. I have been living with Type 1 for over 33 years and as you know all too well, diabetes never gives us a break. It is there 24 hours a day 365 days a year and never takes a holiday. That is not an excuse for not being vigilant during the holidays but it can be wearying having to deal with it daily. In any case everyone with Type 1 knows what you are coping with and we appreciate your videos about living with Type 1. Happy New Year and all the best.
Thank you so much! I really appreciate your kind words. Happy New Year :)
As a type 2 diabetic and a chocoholic, I had an extremely hard time with last night (New Year's Eve). My mom wanted me to have dessert at 9:00 pm (EST). I told her no because of my blood sugar. If I have any dessert this late, my blood sugar will skyrocket. I also had a carb-loaded dinner, so dessert was out of the question. I was so jealous of my family having dessert and I could not have any. I told myself I wish I didn't have diabetes so that I can enjoy dessert with my family. At the end of the night, my blood sugar was at 111 mg/dL (6.2 mmol/L). I was incredibly proud of myself because of the amount of willpower I had. Had this been in the past, I would have eaten dessert and my blood sugar would have skyrocketed. Willpower is something for me to note for next year and for future holidays to come. Happy Holidays from the American + Jewish type 2 diabetic!!!
Wow that takes a lot of willpower, and I commend you for that! Thanks for sharing your success story, and I hope you had a great Holiday Season (and happy chanukah too!) :)
I’m U.K. and I tend to pig out on the meat and green veg, sprouts, a little carrot, gravy but i leave out the parsnips and potatoes. Dessert however is a different thing! Xmas pud is disgusting but we always have a chocolate pud alternative which I always apologise to my Pancreas before I indulge/inject! Oh and happy Hanukkah when December comes x
Hi Michelle,
Thankyou for your video. It is so encouraging to be able to support our another, and know we are not alone . It is so hard never being able to forget about type 1.
I have had it 26 years, got type 1 at 40 years old, after hepatitis B vaccine required for my work.
Don't be hard on your self, we all have our high days with it, when we need a break from constantly trying to keep it in range.
A couple of high days in the holidays won't make a scrap of difference to our HbA1c results .
Have a happy and blessed new Year to you and Ralphie
Thank you so much for the kind words Rex! :)
Michelle, thank you so so sooooooo much for this video. I honestly relate to every single aspect of what you’re saying here. My blood sugars have been alllll over the place this holiday season- and they’ve been that way in large part due to my inability to control my cravings!! Like you, I try to eat very clean and when I saw all those sugary salty delights come out I had to have them all!!! I just thank you so much for your honesty, and say well done to you for making a video in and amongst all this chaos...not easy...and really to be commended. I’m also so inspired by you’re takeaways from your battles. So Inspiring to see you take lessons away from these struggles. Just thank you so so much for basically making be feel less alone. Wishing you an awesome 2020 and hope you’re feeling better now 🍾🥂💙
Thank you so much Andrea❤️! I remember you making a video on tips for dealing with the holidays and T1D, and I clearly should be watching that video at the beginning of each holiday season 😂! I'm sorry to hear you also struggled with cravings and holiday food temptations. Based on the comment section here, we are definitely not alone. I wish you a happy and healthy 2020 🤗!!
We have all been there. Don't beat your self up over it.
I have the ultimate respect for sharing the realities of a diabetics challenges.
I too being on the tandem and the holiday eating temptations felt your pain.....ughhh!
Yes....I felt better by you sharing....thank you Michelle!
Aww thank you!! I'm happy to share ❤️
I love when you always tell a story about Diabetes cause you sound so true and honest
Aww thank you! I'm happy to share my experiences for others to relate to or learn from :)
Christmas day was actually my best diabetes day this year! I had an average of 4.8 that day!
mmol/L
That is amazing!! I'm happy for you :)!
This totally happened to me too!! I'm only just coming up to 1 year being diagnosed (diaversary is 30th Jan 2019), and this was my first big holiday with T1D. My blood sugars were so stubborn and high (averaging between 15mmol and 18mmol, but sometimes higher)!! It's kinda reassuring, knowing that I'm certainly not alone with stubborn blood sugar levels and insulin resistance!! Thank you for everything that you do Michelle
(45yo T1D diagnosed only 1y ago) Thanks a lot for your extremely informative and useful videos. Also a tough season for me. This is what I learned (very much confirmed by your own conclusions): food in extremes no longer affects you in a narrow window of 4 hours, 8 hours… it impacts glucose levels, in very unpredictable ways, for days to come; so the game is not longer about bolusing what you eat but also be prepared for arbitrary spikes. And this is what is working for me (albeit I'm not in my current good levels):
-increase basal rates
-pre-bolus always
-more aggressive on insulin and then be fast in preventing lows (there's always sugar around you in christmas!)
-aggressive temporal basal rates
-extended bolus that allow me to be more aggressive with insulin and still be safe (I'd canceled extended bolus several times this season!)
-create awareness around family and friends about good food, because what's happening to my body it's in very similar ways happening to theirs! (sure, they are not exposed to the immediate effects we're but the long term effects are the same)
-and yes, come up with ideas to fight laziness (family + friends: games and team sports!)
Thanks for sharing what works for you! I agree with you, foods can definitely affect our blood sugars for a long period of time. Happy New Year!
Great video and thanks for sharing. Similar thing happened with my son this year. We were ping ponging up and down between 70-125 the whole day stayed in range. And at about 1-2 am we got his high alarm which we set at 250, bolused, dropped down a little and got the high alarm again between 3-4 (was around 300) bolused and he woke up at around 275 and ran like cr@p the following day. All good tips and thanks for sharing.
It's crazy how the high blood sugars can hit so much later than the meal! I'm sorry your son also experienced the same thing as me! I hope he is feeling better now :)
Thanks for having t1d so it helps me get threw it! Thanks!
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Happy New Year Michelle. I’m sure no permanent damage was done. I have had similar experiences in the past and your strategy for next time sounds good. What has worked for me is: 1. Try to bolus for all the carbs I have eaten. This is difficult to estimate. 2. Exercise to help lower the BGL (but not at 2:00 a.m.). 3. Increase my Basal rate by a modest amount. 4. Set the alarm clock to wake up a couple of times during the night to test my BGL and make corrections as needed. It’s not a perfect solution, but it has kept me out of real trouble. P.S. - I’m getting my t:slim X2 next week and am looking forward to using it.
Thank you!! I appreciate you sharing what has worked well for you over the holidays :). I'm hoping I can implement some of these things next year. That is so exciting about your t:slim! Enjoy it!!
It’s too bad Afrezza isn’t available in Canada. I was able to snack and eat as much as I wanted because Afrezza is super fast and doesn’t linger in your system. Keep up the good fight!
Thank you!! I'm glad Afrezza is working well for you!!
Fab video, you explain everything so well and I can relate with my previous Xmas food binges. You're right about the control/festive freedom balance, you definitely can't go full binge like non-diabetic friends. It seems like you have all the answers so good luck to you next year
Thank you so much! I'm hoping to find more balance next year haha 😂
Omg. I you have taken the words right Out of my mouth! When I mean the EXACT same thing happened to me, I mean the EXACT same thing happened to me. I’m on multiple daily injections and the same thing happened. I completely understand and I also need a better plan for the next holiday season! One thing I didn’t do, was check for ketones… Which I should’ve because that probably is also why I was so insulin resistant for four days following Christmas day. Thank you for sharing!
Ugh I'm sorry you had the same issue!! It's crazy how much the holiday food can affect us! Let's hope for a better holiday season next year ❤️
I spent Christmas in hospital DKA as I am close to giving up
Matthew Mcgarry You'll get it together brother...............
One thing I find very difficult at Christmas is the change of routine with meal time, as always people are late coming, and it is usually expected to wait for them before we start, and i don't want to eat a snack, as only would make things worse.
So true about people coming late! Happy New Year!
I feel you! I had something similar happen recently; I asked how soon the holiday dinner was going to be and was told "about 20 to 40 minutes" and I was debating whether or not to take insulin..if dinner was in 20 minutes then I was going to take insulin fairly soon, but if dinner was in 40 minutes then I wanted to wait a little before injecting (so I wouldn't end up in the position you're describing and needing a snack) - well, dinner ended up "starting" within ten minutes and the table was teasing (lighthearted but still frustrating at the time) that they had to wait for me while I injected! 1) they do not by any means have to wait but I understand why they feel it necessary to do so (it being a special occasion) 2) I didn't choose to have to do this for every single thing I eat - sucks more for me than for them. They have to "deal with it" (which means, plan for my injections) only every so often when I'm around it 24/7 and actual have to receive the injections. I didn't respond to the teasing but it definitely wasn't appreciated. Whew, didn't realize I even needed to vent that out!
@@Emmughhhhh yes so frustrating, it's always the special , or formal occasions that are the difficult ones. I expect a lot of us could relate to this problem.
I remember having a terrible hypo 2 something because the mains were served, and then a speaker gave a talk, before deserts were served later on, I didn't allow for the long delay, already having insulin for the full meal.
I know exactly what you’re talking about. When I eat anything with carbs/fat my blood sugar looks like it’s doing fine and then a few hours later it’s in the 300s and it’s like how did that happen? And then trying to correct it I tend to be insulin resistant just like you said. For me low fat WFPB works better for my control, but have to indulge occasionally. Exercising during that time helps the insulin to work better too. Your videos help me to feel normal living with this disease. Blessings to you in 2020.
Thanks Pam! Fatty foods can really make blood sugars unpredictable! All the best to you as well! Happy New Year :)
Those are all good intentions for next year and I hope you’ll have luck having more control. I too have been extremely lazy and ready to get back to my routine (can you believe that here in Spain there’s still another holiday to celebrate? 😱 )
As for the treats, those are hard to resist for sure. Here’s an idea... space them out and try to avoid eating too many at “dessert time”. I take a plate with all my goodies, (that way my brain knows they are mine and I’m not going to miss out on any of them if they’re all eaten before I get a chance to try something) but then I eat a few things now, a few others after 2-3 hours, and so on. That way I can have a constant battle between insulin and sugar rather than have all that sugar spike and win. (We do not want the sugar to win in our cases). Your plan sounds good and you’ve given me some good tips to help control myself next year also. Thanks!
You have another holiday? Oh my goodness! Thanks so much for your advice with the treats :) . Happy New Year
been type 1 for 50 years control is always hard during the holidays but Happy New Years
Thanks! Happy New Years to you as well :)
Happy New Year, Michelle! I hate when you think you aced your boluses for all the food and you go to sleep at a great, stable blood sugar and then the dexcom graph shoots up! Holidays can be hard, but I am glad you have a gameplan for next year :)
Thanks so much Hannah! Happy New Year :D
This was my first Christmas with diabetes. I actually didnt really indulge at all hardly. Im still on a lower intake of insulin. I really missed all the good food and sweets. I had a very good sugar day on Christmas eve. But of course i was surrounded by sweets all day so that was annoying. Half of them i made too 😅😅 apparently i made like THE BEST peppermint sugar cookies, lol. My bf had to keep me from eating one lol. Christmas day i will say i indulged a little. I had highs and low sugar that day tho. I had pumpkin cinnamon rolls. Which were in my carb range. But since so sugary and im on such low insulin intake. It spiked it to like 242. I dont remember what happened later that day. I think since my sugar was hi before lunch i took the insulin dose i have for that. But then ate no carbs for lunch and wound up with 68 bloodsugar. Soo yea. Then idk what i did. Ate too much later i guess, tho i didnt really have like alot of carbs. Even in my intake it makes my sugar hi and so it was back to 239 later... so yea. I had ups and downs.
I wasnt very active.
Ive got goals to be way more active this new year tho.
I was only diagnosed back the day before easter. So its still hard to get used to.
I am not on the pump yet. May be soon tho.
Is the pump really better than injections?
You have just described my holidays
Haha oh no! I'm sorry you had a similar experience to me. Hopefully next year will be better for us :)
God gives us another day. We're diabetic. Treat every day like God gave it to you. Keep yourself as God keeps you. Love you.
my sugars have not been good during the whole month of December, but now it’s getting there
I'm glad they are starting to get better :)
Glad to know I'm not the only one who grazed their way through the holidays... I paid for it for over a week with highly sensitive sugar control.
What helps me a lot during christmas is that I always make a good amount of sugarfree/low carbchristmas treats myself (sugarfree cookies and low carb chocolates - for instance marzipan coated in chocolate with high cocoa content, peanut clusters or other delicious things).The cookies are extremely good and everybody eats them, which means that I eat the same as everyone else and therefore don't feel like I'm missing out on anything. I also buy some very high quality filled chocolate with high cocoa content which is just for me and then when the others are eating off-the-shelf low quality chistmas chocolates I eat the good stuff :D which generally have lower sugar content and a bit more fat so my blood sugars doesn't spike. And as a bonus, it tastes better :P But also, if I have some of the other stuff, moderation is definitely the key ;) Generally I also raise my basal and eat slow :)
What a great idea to have some sugarfree treats!! I love that! Thanks for sharing :)
Thanks for sharing, Michelle! I have the same tech as you. I was also constantly around food, just like you. I created a temp rate of 125% each day. This seemed to help a lot.
Thanks Michael! That's great that the temp basal worked out well for you :). Happy New Year!
Feliz 2020!!! muchas bendiciones guapa!
Happy New Year!! :)
Great tips. Would you consider asking your family for support during the holidays? Maybe they can help reduce your temptation by cutting back on the desserts. It can be hard to speak up, but it's important.
S M After what happened this previous year, my mom is taking action haha. She said she is going to avoid putting out sweets and try to provide healthier snacks (like a veggie tray) during the holidays next year 😊
Besides bolusing I also raise my temp basal an hour at a time and constantly checking to see if my sugar level is stable and cancel when it is.
Smart idea! :)
I definitely got so lucky on Christmas day! It was my first Christmas diagnosed, so I decided I was just gonna wing it and not worry too much, but keep a close eye. Thankfully I'm small and get full very quickly, so although I wasnt at all healthy that day, it wasnt constant snacking. I tried to snack more around meal times and just inject a little more insulin before my meal when I new I was going to be snacking afterwards. I think going for a short walk also helped. I managed to get by with just two minor hypos.
That is wonderful! I'm so happy that your first Christmas with diabetes went well :)
@@MichelleLord thank you! I hope you're feeling better now!
Michelle it is just human nature. .Sometimes for me it's not just the holidays as my face snack is chocolate chip cookie lol but not funny even some things we don't know why our bgs stay up. I am far from perfect and am thankful to still have decent A1C but don't see how to lower it without having more lows. Cannot afford Dexcom. T1D since '96 age 29. Hypoglycemia dx age 19.
Happens to all of us. I typically will try (BIG WORD) to guess what you will snack on and then bolus for the entire amount but do an extended bolus . I usually give 10% now and the other 90 out for 4 hours, I also had my basal up top 200%. Been playing this game for 46 yrs now this year I was fighting lows as I over estimated and my eyes were bigger than my stomach.
Sometimes you need to step away from it at your own discretion. Been there done that got the tshirt!
Being sedentary is what does me in. My normal days are active, insulin, eating and all revolves around that. Throw in a lazy day and look out. Throw in a lazy day with holiday food temptations... Red Alert. The body certainly doesn't work predictably when it comes to breaking away from your usual routine. And as Doug summed up, it is going to happen, we are not penned up in some bunker with only the bare necessities.
Totally!! Getting up and moving around can make a huge difference with blood sugar control. Thanks Alex!
I admit that unlike Thanksgiving for which my BG stayed literally 100% in range and did not go about 170 I fell off the wagon for Christmas as well and what really was my downfall was eating way to much pumpkin pie with the land of lakes spray whip topping and it spiked way late at night.
Best I can guess is the pie was extremely slow in spiking maybe because of the fat content in the pie.
Girl I can relate👏. I feel like giving up when my diabetes goes north 😂. I want to get my blood sugars to stable numbers especially when the holidays comes around.
Yesss same here! Next year the holidays will hopefully be better for both of us :)
I just became a diabetic a year ago I'm a type 1.5 and this is so hard and scary every time I think I'm doing something right I wind up not you make this look so easy
There is no 1.5. You are type one. T1D looks like you too. No need to feel like an outsider.
Thanks for sharing your experience....what about alcohol during the holidays? Like wine...red or white...does it make your glucose go high too?...happy new year!
I love your story
08:15 Upping your basal is also a good measure for when you are somewhat more resistant. If during the holidays you eat significantly more carbs than usual, and you do that for a couple of days (a classic during christmas), you'll become more resistant, because of downregulation of insulin receptors. Basically, the receptors turn themselves off for a while after increased activity, so you have fewer active receptors, and as a result, are less insulin sensitive. This used to not be an issue back with the rigid eating scheduled, because you then ate the exact amount of carbs every day. Today, with the far more flexible management, up- and downregulation suddenly did become relevant.
So: If you run into this situation, the trick is to raise basal by perhaps 110-120%, but also keep your total daily insulin dosage _lower_ than the total daily dosage (TDD) of the past few days (when you ate more carbs). This implies that you go (very) low carb for 1-2 days. The raised basal keeps the BG at the target level, and the lowered TDD causes fewer receptors to downregulate. So, eventually, more receptors "return", and your sensitivity is back to normal again.
The reverse also happens. If you suddenly eat fewer carbs than usual, or do vigorous amounts of exercise, more receptors become active - they upregulate. Treatment here is to lower basal, perhaps also eat more carbs (though that one is not strictly necessary).
Thanks so much for explaining the relationship between carb intake and insulin resistance! Very interesting. Increasing basal rates during the holidays can definitely help, as I've done it in the past. I'll have to implement this next year as well :). Happy New Year!!
@@MichelleLord You're welcome :) Be careful though - you increase basal, but must also keep your TDD _lower_ than what it was over the past few days. Otherwise this method won't work.
What I do is tell the host that I really want to taste a little of all the desserts, however, my body will not tolerate too much sugar too quickly. I then ask if it is ok if I put a bite of each to take home to eat slowly. I've never been told no.
Give yourself a break, honey. Just think of all the non diabetics who packed on 5 to 10 lbs during the holidays. And these folks don't take good care of themselves for the rest of the year, either, unlike you.
So cheer up, kid😉👍!
The complete opposite happened to me and I totally overcompensated for Christmas dinner. My boyfriend and I both slept through the critical low alarm and woke up to an hour of missed calls from my dad 😅
Oh my goodness!!!! That is scary, and I'm glad you are ok!
So hard with the holidays! It happens.. add this with colds and it is a recipe for diaster
Oh yes! Illness + holiday food = disastrous blood sugars lol
What advice would you give someone about to start on an insulin pump for the first time? It's the Medtronic 670g system.
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This exactly happened to me and I’m still struggling to get them down!
Ughh no I'm sorry! I hope you get back to normal soon!
Gee wiz sounds like my Xmas only difference is I have the Australian summer heat to deal with over the holiday season so we eat a lot of cold meat , I was up in the mid 20s for the most part of it but it doesn’t effect me as badly as the lows
Oh yes, your weather is the exact opposite of Canada! That must be so tough to deal with the holiday food plus the heat!
Michelle Lord it is very tough adding to that is the horrible bushfires , the heat today was around 45 degs just have to drink lots of water and rest
Rich and heavy foods ..........pies , cookies , fudge I seem to recall them , can't quite picture them ? LOL Take care M
Sleep helps alot
3:34 min, Purge ?
Hey lady I get that
To help me prevent snacking I like to chew on gum !
Meeting Dr IGUDIA RUclips channel was the beginning of a new life for me after using his herbs medication in curing my Diabetes disease.
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Which app do you use with your dexcom g6 on your fitbit watch.
I use the Dexcom G6 continuous glucose monitor. The Dexcom App on my phone transmits my blood sugar to my Apple Watch :)
@@MichelleLord Oh ok. I thought you are using fitbit. Thanks for the replay.
Hi!
Hi!!❤️
Great video. I sent you a dm on insta please could you read it. I need some advice x
Thanks! I will look for it later today :)