Support is very important. Sadly most of the time people like me with rare illness are not taken seriously and people says that what I have is just anxiety. But I know I suffer due to dysautonomia
It is always difficult because it is normal for people with chronic illnesses to feel depressed from time to time and/or anxious. But that doesn't always mean that there is nothing physically wrong. People with dysautonomia may become depressed or anxious but it is NOT the cause of the disorder. Best of luck. Keep reaching out to your support people. Consider joining our forum - it can be very helpful to talk to other people living with the same disorder. www.dinet.org/forums
Wow. I never thought to connect my agoraphobia or anxiety in general to my POTS. I do constantly fear that I'm going to have a flare when I'm out in public or while I'm driving and that this will cause a crisis of some sort. It's gotten so bad that I'm afraid to leave the house or touch my car PERIOD lol I'm currently in therapy and working on this but I don't think that my anxiety will resolve until my POTS is under control. I've been thinking about seeing a dysautonomia specialist but those are hard to come by in my area, unfortunately. I'm not giving up the search tho so wish me luck lol
We certainly do wish you luck. But what you are describing is very, very common for people with POTS. It is natural to become anxious when what you fear is real and would cause most people anxiety. It's great that you are going to therapy to help you deal with this issue, but please know that you are not alone in these feelings. Therapy is a great way to help you manage the anxiety so that it does not debilitate you. Also, if you have a good relationship with your PCP, they may be able to help you manage some of the POTS symptoms, even if they are not a specialist. A good doctor will either educate themselves to help their patient or refer you to someone else who can. Once your symptoms are better managed, some of your anxiety may ease over time. Also, talking to other patients helps the emotional aspect of living with chronic illness. DINET has a moderated patient forum that can put you in touch with other people experiencing similar issues. Check it out at www.dinet.org/forums Best of luck.
@DINET - Dysautonomia Information Network Oh wow, thank you for this! I will definitely be sure to check this out. My therapist says the same thing that my fears and things are absolutely valid because they aren't necessarily irrational. It's not irrational to think that I might have an episode whilst out in public or behind the wheel because it's happened before. My therapist is very understanding and she helps me to rationalise so much of what I feel and think and helps me to feel not so...crazy lol I will check in with my cardiologist and my neurologist to see if they can team up and work together to manage my care. It's worth a shot!
Little question, can a toxic living environment and a lot of undergoing stress cause an ANS disorder? My doctor told me that and recommended that I go to therapy, I don't know if I have any other chronic illnesses that would go together with dysautonomia. I'm just a bit curious
Physical and emotional stress can certainly have negative affects on your body and can cause worse symptoms. But stress does not cause dysautonomia. There are many factors that can cause ANS dysfunction like a virus, surgery, an infection, etc. and many times no one can track the exact cause. Naturally being chronically ill and having the symptoms common to dysautonomia, many people experience anxiety and depression. That doesn't mean that that caused the dysautonomia. Sometimes doctors who are not as familiar with dysautonomia will chalk up symptoms to being more psychosomatic than physiological. If you are experiencing a lot of anxiety or depression it is always a good idea to reach out for help and therapy can be a wonderful way to find that help. But it is not the cause of dysautonomia. Best wishes for finding some relief from your symptoms.
See now I disagree…with dysautonomia you cannot control when or how much adrenaline that your body secretes especially upon waking up in the morning. It’s a natural mechanism for your body to slowly release adrenaline to wake up. With dysautonomia, your body cannot control how much it even when the body releases adrenaline.
Thank you for posting. I'm not sure what you are disagreeing with. In this video there was no discussion of adrenaline or mornings in particular. Perhaps you meant to post your comment on a different video? If you are referring to anxiety and dysautonomia, please explain - we are interested. Thanks
![Chino Pacas - Modo Capone (with Drake & JOP) [Video Visualizador Oficial]](http://i.ytimg.com/vi/Zoc75M8Swhc/mqdefault.jpg)
Support is very important. Sadly most of the time people like me with rare illness are not taken seriously and people says that what I have is just anxiety. But I know I suffer due to dysautonomia
It is always difficult because it is normal for people with chronic illnesses to feel depressed from time to time and/or anxious. But that doesn't always mean that there is nothing physically wrong. People with dysautonomia may become depressed or anxious but it is NOT the cause of the disorder. Best of luck. Keep reaching out to your support people. Consider joining our forum - it can be very helpful to talk to other people living with the same disorder.
www.dinet.org/forums
Wow. I never thought to connect my agoraphobia or anxiety in general to my POTS. I do constantly fear that I'm going to have a flare when I'm out in public or while I'm driving and that this will cause a crisis of some sort. It's gotten so bad that I'm afraid to leave the house or touch my car PERIOD lol I'm currently in therapy and working on this but I don't think that my anxiety will resolve until my POTS is under control. I've been thinking about seeing a dysautonomia specialist but those are hard to come by in my area, unfortunately. I'm not giving up the search tho so wish me luck lol
We certainly do wish you luck. But what you are describing is very, very common for people with POTS. It is natural to become anxious when what you fear is real and would cause most people anxiety. It's great that you are going to therapy to help you deal with this issue, but please know that you are not alone in these feelings. Therapy is a great way to help you manage the anxiety so that it does not debilitate you. Also, if you have a good relationship with your PCP, they may be able to help you manage some of the POTS symptoms, even if they are not a specialist. A good doctor will either educate themselves to help their patient or refer you to someone else who can. Once your symptoms are better managed, some of your anxiety may ease over time. Also, talking to other patients helps the emotional aspect of living with chronic illness. DINET has a moderated patient forum that can put you in touch with other people experiencing similar issues. Check it out at www.dinet.org/forums Best of luck.
@DINET - Dysautonomia Information Network Oh wow, thank you for this! I will definitely be sure to check this out. My therapist says the same thing that my fears and things are absolutely valid because they aren't necessarily irrational. It's not irrational to think that I might have an episode whilst out in public or behind the wheel because it's happened before. My therapist is very understanding and she helps me to rationalise so much of what I feel and think and helps me to feel not so...crazy lol
I will check in with my cardiologist and my neurologist to see if they can team up and work together to manage my care. It's worth a shot!
Do you have any knowledge about research on stame cell therapy or jene therapy can help in dysautonomia or pots patient
Little question, can a toxic living environment and a lot of undergoing stress cause an ANS disorder? My doctor told me that and recommended that I go to therapy, I don't know if I have any other chronic illnesses that would go together with dysautonomia. I'm just a bit curious
Physical and emotional stress can certainly have negative affects on your body and can cause worse symptoms. But stress does not cause dysautonomia. There are many factors that can cause ANS dysfunction like a virus, surgery, an infection, etc. and many times no one can track the exact cause. Naturally being chronically ill and having the symptoms common to dysautonomia, many people experience anxiety and depression. That doesn't mean that that caused the dysautonomia. Sometimes doctors who are not as familiar with dysautonomia will chalk up symptoms to being more psychosomatic than physiological. If you are experiencing a lot of anxiety or depression it is always a good idea to reach out for help and therapy can be a wonderful way to find that help. But it is not the cause of dysautonomia. Best wishes for finding some relief from your symptoms.
See now I disagree…with dysautonomia you cannot control when or how much adrenaline that your body secretes especially upon waking up in the morning. It’s a natural mechanism for your body to slowly release adrenaline to wake up. With dysautonomia, your body cannot control how much it even when the body releases adrenaline.
Thank you for posting. I'm not sure what you are disagreeing with. In this video there was no discussion of adrenaline or mornings in particular. Perhaps you meant to post your comment on a different video? If you are referring to anxiety and dysautonomia, please explain - we are interested. Thanks