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DINET - Dysautonomia Information Network
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Добавлен 23 мар 2018
DINET, the Dysautonomia Information Network is a 501c3 nonprofit organization dedicated to providing information, awareness, and support to people living with dysautonomia. We will be posting new videos each month about different topics related to living with dysautonomia, managing chronic illness and also wellness topics. We hope you find these videos helpful and informative. For more information about dysautonomia, please visit our site at www.dinet.org Thank you.
Living With Dysautonomia: Patient Stories
It is common to feel alone when living with a chronic illness. This unique video shares the experiences of those living with dysautonomia. While the information should not be taken as medical advice, we hope it helps those in similar situations feel less alone. Our goal is to provide a variety of perspectives that show how much chronic illness can impact our lives.
If you enjoyed this video, please consider donating to DINET today! Your gift will be used to help us continue to make these videos and webinars.
www.paypal.com/US/fundraiser/charity/1552351
If you enjoyed this video, please consider donating to DINET today! Your gift will be used to help us continue to make these videos and webinars.
www.paypal.com/US/fundraiser/charity/1552351
Просмотров: 430
Видео
Mental Health and Chronic Illness: Part 2
Просмотров 10310 месяцев назад
Mental health plays a big part in our lives with chronic illness. We often face challenges dealing with anxiety, depression, grieving our old selves, being a caregiver or having to rely on someone to help us, and more. Join DINET and two licensed therapists who also happen to be caregivers to those with chronic illnesses. Tina Borsa, LCMHC, and Lori Lohrmann, MA, are professionals with years of...
Mental Health and Chronic Illness: Part 1
Просмотров 20310 месяцев назад
Mental health plays a big part in our lives with chronic illness. We often face challenges dealing with anxiety, depression, grieving our old selves, being a caregiver or having to rely on someone to help us, and more. Join DINET and two licensed therapists who also happen to be caregivers to those with chronic illnesses. Tina Borsa, LCMHC, and Lori Lohrmann, MA, are professionals with years of...
POTS: Subtypes 101
Просмотров 1,4 тыс.11 месяцев назад
POTS is the most recognized type of dysautonomia but it isn't the end of the story. Understanding the many subtypes of POTS and the differences in symptoms and treatment is a vital part of management. This important session will be led by Susanne Rimm, retired/disabled RN living with HyperPOTS. Susanne has over 20 years of clinical experience that she will bring to this discussion, as well as y...
DINET Dyscussion: How To Submit Your Patient Stories
Просмотров 94Год назад
As a part of this year's DINET Dyscussion Series, DINET will be sharing videos from people living with all forms of dysautonomia for October Awareness Month (October 2023). Sharing is EASY with our step-by-step tutorial! Videos need to be sent by Thursday, October 12th at 11:59 PM EST. Submissions will premiere on our RUclips channel on Thursday, October 26th at 1PM EST. 1. Record a 3-minute vi...
Nutrient Imbalances and Dysautonomia
Просмотров 537Год назад
Could a nutrient or vitamin imbalance be contributing to your dysautonomia symptoms? Dr. Svetlana Blitshteyn, Founder of the Dysautonomia Clinic, and Standing Up to POTS shares a list of nutrients you can test for if you have dysautonomia. "The following nutrient imbalances may be worth investigation, as they have been associated with POTS, exacerbation of POTS-like symptoms, or common POTS com...
Disability Pride Month
Просмотров 212Год назад
July is Disability Pride Month to celebrate the passing of the Americans with Disabilities Act (ADA) on July 26th, 1990. This video briefly explains its history and the significance of the disability pride flag colors.
Self Help Treatment Options for POTS
Просмотров 555Год назад
Are you tired of trying different prescription meds that do more harm than good? This video shares different treatment options to try on your time, at your pace that may help alleviate some of your dysautonomia symptoms. To take a more in-depth look at these options, visit the link below! www.dinet.org/info/pots/just-my-cup-of-tea-…-self-help-options-for-managing-pots-symptoms-r238/?fbclid=IwAR...
Long COVID
Просмотров 294Год назад
This video shares a basic overview of long COVID and helpful resources for those dealing with the condition or post COVID POTS. To learn more about long COVID and find clinics, visit the link below! longcovidalliance.org/what-is-long-covid-the-physical-and-psychological-symptoms-and-management/
Vagus Nerve
Просмотров 697Год назад
The vagus nerve may pop up from time to time in the dysautonomia community and for good reason. This video shares a brief overview of the vagus nerve and how it pertains to your autonomic nervous system. To learn more about the vagus nerve, visit the link below! www.medicalnewstoday.com/articles/318128#What-is-the-vagus-nerve
Dyspnea
Просмотров 475Год назад
This video gives a brief overview of dyspnea, the medical term used to describe shortness of breath. Visit the link below for a more in-depth explanation of dyspnea! www.medicalnewstoday.com/articles/314963
Dysmotility
Просмотров 483Год назад
Dysmotility can be a common, painful symptom of POTS and other forms of dysautonomia. This video briefly shares an explanation of the condition. To learn more about dysmotility, visit the link below! muschealth.org/medical-services/ddc/patients/digestive-diseases/small-intestine/dysmotility?fbclid=IwAR3orLJmaxPTvctZRXWSJfRsRxuZj277x64yMVpRDMzCtzUtoSn1z5Vb27U
Receiving A New Diagnosis
Просмотров 277Год назад
Receiving a new diagnosis can come with many mixed emotions. This video shares the struggle many of us go through during and after finding out the name of a new illness.
Tips for Getting Through a Flare
Просмотров 889Год назад
This video shares some of our favorite ways to help get through a flare.
Utilizing Technology For Chronic Illness
Просмотров 365Год назад
This video shares our favorite ways to implement technology in your life to make living with chronic illness a little easier. For the full article and more ideas, visit the link below! www.dinet.org/content/living-with-dysautonomia/technology-education/optimized-living/?fbclid=IwAR0K0gIPAvpowvqF7T0m49Vxy-3VpQvYXRrQd-uoIOG8Pj_I30Eug2ye_lo
Orthostatic Hypotension (Postural Hypotension)
Просмотров 3,1 тыс.Год назад
Orthostatic Hypotension (Postural Hypotension)
Most Recommended Medications For Dysautonomia
Просмотров 4,9 тыс.Год назад
Most Recommended Medications For Dysautonomia
Top GI Symptoms Associated With Dysautonomia
Просмотров 3,2 тыс.Год назад
Top GI Symptoms Associated With Dysautonomia
5 Things You Learn From Chronic Illness
Просмотров 5302 года назад
5 Things You Learn From Chronic Illness
I hate people checking in on me and grossly affects my PDA
Absolutely the #1 for me is heat sensitivity. I just can’t handle it at all. That’s why I enjoy winter / fall
Someone from RUclips saud maybe it's not IBS, maybe it's dysautonomia... Which is why I'm here and surprisingly, I have all the symptoms 😢
thanks for the explanation, also your voice is cute
Anaphylaxis from physical exertion. Stairs are hard for me. Started improving when I started eating salt. My sodium, chloride and potassium were all low. I also follow the forum at the Mayo clinic. Stage three kiddney failure complicates it some but improving with salt. Lost 30 lbs which Helps too. Compression sleeves on both knees and I can work some now. I don't even carry my EPIPEN now. Heat did make it worse too. What a battle. Consider Zero point energy!
I think my medication is causing heat intolerance.. I don’t know what to do as I don’t have AC and I have to live indoors!
How do beta blockers affect exercising with Pots?
Thank you so much for making this video! It has some great tips for the “healthier” people in our lives who aren’t sure what to do.
I have this as well! It was truly a scary test when you didn't know what may happen. People did not believe me and thought I was faking as well. It was so frustrating trying to get others to understand. I pray I can stay normal.
Thanks for the video and linked article. Since the article notes that Modafinil (Provigil) is used for this, I wanted to comment that it helped me a lot. But sadly, after 5 years it sort of stopped working - but it got me through a period of caregiving for my mother, who had Alzheimer’s and rheumatoid arthritis. So grateful my doctor offered Modafinil.
The Turnto app has great resources for exercising & pots
Hello mam! I have pots and day before I started i ate a lot since then there stomach problems also. So my gi is reason for pots?
I have syncope! I have had it since I was a pre teen and im now 14 I was really confused and worried on what was going on until I heard that you sometimes are awake with syncope which is what happens to me.
Thank you sooo much!! Going to let my family listen to this❤
Everyone has something they are dealing with. I do have Post Traumatic Tethered Cord Syndrome and I have massive nerve damage which caused massive Pain from my lower spine to the Bottom of my Feet. So half my Body is affected. I push myself every single day of my life...I push extremely hard.
I get dizzy faint every day. Low bp but also really low hr. Blood poolw in cakves. My sodium so easily easily electrolyte drinks and vitassium. My legs guve out
big pharma is pushing junk science. these medications are worse than useless.
I had breast surgery recently, I've been dizzy and hot and drained since.
It can be fairly common for people to experience dizziness after surgery along with fatigue. Even people who do not have any form of dysautonomia can have symptoms of orthostatic hypotension after surgery or illness. That's why doctors won't make a diagnosis until symptoms have been consistent for more than 6 months. That being said, I hope you have discussed the dizziness and other symptoms with your surgeon during follow up visits or with your PCP. It is not uncommon to need a supplement or even nutritional changes after surgery to help your body adjust. Best of luck with your recovery.
Thank you 😊
@@monathomas1777 You're very welcome. Best wishes for a speedy recovery.
I have post exertional malaise, where i get profound neurological issues after exercising
Ok.. so how can this be treated?? THAT’S the big question.. who do you go to, and what can be done?
If you explore our channel - ruclips.net/channel/UCUZMfU6I2622J6Fv50oFaiQ and our website, www.dinet.org, there are many videos and articles discussing treatments, medications and self-help.
I asked that question because I’m tired of going through hell every day and night.
How do you stop heat intolerance permanently?
Sadly, you don't. Heat intolerance is a symptom that can be treated as a symptom. You can manage symptoms but you can't get rid of them unless the underlying cause is cured. The best thing to do is find the treatment or treatments that help with the symptom. I wish there was a way to get rid of many of the symptoms of dysautonomia and they will improve over time with treatment. In the meantime, treat the heat intolerance by trying different things until you find some relief. Best of luck
I thought that all I was having was presyncope episodes until I had one of my regular spells in office with my PT. She told me I had COMPLETELY fainted!! Apparently my idea of what counted as a full faint was closer to Hollywood: so I thought you needed to completely fall over, lose consciousness for an extended period of time... NOPE!! As long as you lose all of your senses for any amount of time, including balance, you've fainted. Whelp...that changed EVERYTHING for my treatment. 😅
Syncope is a loss of consciousness and/or a loss of control of your body, frequently described as "going limp" Many people report being able to hear things around them but being unable to stand or speak or control their bodies - including incontinence for some. Any symptoms like dizziness without being incapacitated is considered presyncope.
Um. I had no idea that this could even exist. My dr might not be outing the pieces together? I wonder.... does the condition effect rem sleep....reddit off i go
For me i want to exercise but i get hurt easily like pulling muscles and hurting my legs but im used to laying down so my legs and leg muscles are always tense and wont stretch out like i cant touch my toes because my leg muscles are so compact from no exercise for a while but im sadly a kid so i cant do much like buy things etc 😭.
Don't think of exercise, think only of small movements, gentle stretching. You won't get hurt and you will still get the benefits of circulation and muscle tone. There is a product called Exercise bands. They are like very big rubber bands. Start out with the lowest strength (resistance) and you can do the movements (stretches) laying down if you need to. You can stretch your legs and arms this way. Just one suggestion. If you can sit up in a chair, there is something called "Chair yoga" that can be helpful. With all of these things, you start with the smallest movements until they get easy to do. And don't do anything before you clear it with your doctor. But keep trying to find ways to move gently to help you stay as healthy as possible.
This video helped my friends and family have a more understanding on what's going on for me. I have NCS/VS and POTS I I faint and near faint all the time Presyncope happens to me almost daily. The episode that made my mom take me into the hospital for testing was my brother and I were play fighting i hit the bar of the porch. Pain surged as I tried to walk my limbs went limp and heavy and I fell. I screamed for my mom and brother they came rushing but my vision started to fail and they were blobs and I couldn't hear them so I was just screaming at my mom. She said I looked dead with blue lips but I was screaming at her. Fainted in high school EMS guys told my parents I was faking it bc my blood sugar was fine. But the daily struggle is trying to workm I called off this Wednesday bc I physically couldn't drive. My heart rate sitting would not go under 120bpm for the longest of times. I get clammy, breathing starts to get hard and I become super nauseous.
Thank you for sharing your experience. Presyncope and syncope is a common symptom for most of us. It is very difficult to deal with and very scary. I'm so glad to hear that the video help your friends and family to understand what you go through. For many of us, the episode doesn't last a very long time, so the initial episode can be over quickly even though the fatigue, headache and feeling unwell lasts much longer. Thank you for sharing. Best wishes.
They don't work. My life is still horrible.
I'm sorry to hear you haven't found anything to help yet. But don't give up. It takes finding just the right combination of treatments, sometimes medicine with lifestyle changes, to minimize symptoms. It is not easy and requires a lot of patience, but remember that effective treatment is different for each person, so you have to keep trying different things including things like nutrition, hydration, movement, etc. Hang in there.
Try to stay positive. It definitely makes a difference. Focus on and be thankful for every little thing that you can do. Feeling down/depressed definitely makes me physically worse. Often this is brought on from trauma to the body whether it’s physical, emotional or both. Both in my case and for me cutting out a toxic family member who was causing severe stress helped me more than anything. Triggers of mine: caffeine, too much sugar/carbs, alcohol, dehydrated/not enough salt, not eating frequently enough, too hot or too cold, poor sleep, stress, pushing myself too far, not taking enough breaks and weather changes. I share my triggers in hopes that it will help you or someone else. It took me years to understand them all. I’ve also found grounding, especially at the beach (possibly from the salt?)beneficial for inflammation and pain.
IV Saline???
Yes, for some people it is required to maintain the right balance of electrolytes and fluids and to help minimize symptoms.
That was a really good list. I wish people would do that for me. I hire people to help me. I’ve been in chronic pain for 25 years six spinal surgeries.
Sorry to hear that you have chronic pain. Autonomic dysfunction is fairly common for people with spine issues. Thanks for sharing
I have this POTS perspiration odd times, severe small fiber Polyneuropathy, 45-50%hf, fatigue, seronegative lupus, seronegative rheumatoid arthritis, dizziness, severe restless leg, anxiety, just a lot of things going on on. On tilt test my left side had full neuropathy symptoms I panicked trying to not to pass out, rapid heart rate, told increased by 70. It was the longest 10 min of my life testing
Excellent thankyou ❤
So glad you found it helpful. Happy travels.
I have vasovagal syndrome. Is it the same?
Yes, they ae the same. It is also sometimes called Neurally Mediated Syncope.
I wish for others to support me, but I don't expect much, so even when they go a little out of their way to help me, I feel immensly happy.
It is tough for us to understand what is happening in our body sometimes, so it makes sense that it is very difficult for other people to "get it". It is great that you are appreciative. I have personally found that asking people for very specific things gets me better results - everything from "it would be great if you could come here instead of going out today" or "if you go past a store, could you pick up milk for me?" to "could you put aside about 15 minutes in the next day or so to help me wash my kitchen floor?" Whatever it is that might be most helpful to you. Just a thought. Best wishes
I have dysautonomia and for me the gohan (rice) sweet potato advocate are good, I don’t eat sugar neither fast food 🥲🥲
I'm a medical coder and I experienced 212/191 BP for the TTT, I get really cold and I sweat and freeze at the same time, I have GERD and I was diagnosed with overactive bladder and urgency incontinence after I got COVID. I get purple and blue arms and my pulse can change from 63-116 in a matter of a couple minutes, just lying there. Please help me.
I have that too, where I'm freezing but sweating like crazy. It doesn't always happen but if I'm stressed, it kicks in right away and I'll have to change my shirt cause I'll sweat right thru it
I'm sorry to hear that you are experiencing all of that. But as @candyland8903 points out, this is unfortunately a common symptom that happens with this disorder. I am going to assume you have been diagnosed with HyperPOTS since you posted your comment on this video. HyperPOTS is directly related to dysfunction that centers around the adrenal gland function. So rises and falls of the body's chemicals like aldosterone, norepinephrine, etc are behind the symptoms you are experiencing. It takes a lot of patience to find the right combination of medication and lifestyle changes that will alleviate some of the more difficult symptoms because treatment is different for each person. Some people suffer with GI symptoms as their worst, others these surges of adrenaline or decreases in the body's natural chemicals. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Understanding what your body is experiencing is extremely important so that you can better inform your doctor what is happening and to better participate in your treatment. I wish you both the very best. Thank you both for posting.
@@DysautonomiaInformationNetwork I actually have not been diagnosed... Doctors are telling me it's not abnormal
@@CoderNessCCS We can't diagnose you obviously, but we can strongly encourage you to look for a new doctor if the one you have now is telling you that a BP of 212/191 is normal or purple and blue arms are common. Find a cardiologist that will listen and take your symptoms seriously. It is not uncommon to have to go to a few doctors before finding one you can have good communication with but it is essential if you are to get to the bottom of your symptoms. I wish you the very best.
I'm really shocked that one of the main symptoms of this was not listed....( I was confirmed/ diagnosed with Hyper POTS at Mayo Clinic via a catecholamine test).... Adrenal surges is a MAJOR symptom and EXTREMELY difficult to manage, even with medication and lifestyle.... I mean, it's right there in the name : hyper adrenergic AKA hyper-adrenaline
The video begins with explaining that HyperPOTS involves increases & decreases in adrenal function. It also discusses changes in renin, aldosterone, norepinephrine and epinephrine - all chemicals released by the adrenal gland. These surges and drops in these chemicals are what cause the symptoms you experience. I think the confusion here is that the video states the characteristics of these surges and drops i.e; anxiety, sweating, tremors, etc. Those are the symptoms experienced within the body - the cause are the adrenal surges and drops of these chemicals because of the dysfunction inherent in hyperPOTS. I hope that explains the difference. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Thank you for reaching out.
Clonidine has helped me with unbearable adrenaline surges.
My case, I have dysautonomia post covid 🥲🥲🥲 …
All about low pressure. What about us with high blood pressure from dysautonomia:(
People with autonomic dysfunction can have baroreflex abnormalities causing fluctuations in BP. Depending on the type of dysautonomia, it can cause severe and dangerously high blood pressure. That said, most people with the more common types of dysautonomia experience drops in BP with changes in position.
Thank you for your video i have dysautonomia post covid, I’m going to try with the bike, because i really feel bad almost all the time 🥲🥲
I really hope it helps. Start slowly & take your time building. It can be frustrating because we just want to go back to how it was before, but know in advance that it is a slow, steady journey that works. Best of luck.
My shoulder has been doing this for the longest time.. it got worse as I've grown older.. had learnt to avoid certain angles.. physio didn't help either 😅
What brands do you recommend? There are a lot on Amazon and at sporting goods stores but I didn’t know if the level of compression is not up to par of actual medical supply products. Thanks
The best way is to get a prescription from your doctor. A medical supply store will measure you & give you garments with the right amount of compression to help you. Other than that, I would say to go to a store in person so you can feel the amount of compression yourself. If you buy online, make sure the product allows returns so you can try a few if needed. It may take a little longer but be patient & you'll get tge right fit.
@@DysautonomiaInformationNetwork great advice - thanks!
Doesnt anyone get more triggered by smells? I was going this dish for dinner and got this Asian BBQ marinate sauce. I was so excited. Thenb I opened rhe bottle. It didnt smell gross, but it made so nauseated and made my other symptoms flare for a while. Before POTS, I would have been fine with rhe smell
Smell has a very strong, but individual effect on people. So although it isn't generally reported as a trigger, nausea is. So any smell could hit you in a way that makes you feel nausea even if you didn't in the past.
Finding out what has been happening to my right ankle and left knee all these years was subluxation was interesting lol 😂 Didn't know it was not normal or a part of my chronic mystery pain. Only just last month was told hEDS.
Got dysmotility what to eat
There is no set diet for dysmotility per se. But eating a diet rich in whole grains, fruits, vegetables & avoiding too much red meat is generally considered healthy for all of us. But with dysmotility, you should check with your doctor for a referral to a nutritionist to help you construct a meal plan specific to eliminating your symptoms.
Too early hot and cold both are killing any tips mam I have postural orthostatic tachycardia
Is hsd cause Cervical instablity
Cervical instability can present in people with HSD, but there are also other causes of cervical instability. If you have symptoms you should be seen immediately by a physician. Cervical instability, regardless of the cause, should be treating promptly. Best of luck.
Thank you for this video. I watched the other linked video about compression garments. Unfortunately I have silent reflux so I’m not supposed to wear anything tight around my abdomen. I’m kind of bummed I don’t get to wear them! I’m wondering what other people with POTS & GERD do.
We are glad you found the video helpful. Yes, compression garments around the abdomen are not a good fit for someone with reflux, if it increases your symptoms. You can still benefit from compression garments around your legs. They will still help with blood pooling.
You may be able to try the special compression tights they make for maternity. If that's too much you might try maternity support panty hose. They will be less, but some compression.
by the way Jobst makes them. I've used their socks which are good but not these, they also come in 5 colors. Mrs. K.
i might hve this
i get at night! between 10pm and 7am heart rate jumps temp every timei wake up ! scary its been a year. it got wost last dec
There are many things that can cause changes in your heart rate. For most types of dysautonomia there is more involved that waking up. Have you been checked for sleep apnea? With apnea a person can stop breathing and the body wakes itself up - usually with a pounding heart rate, frequently sweating and other symptoms, It can be a very scary sensation and it is certainly worth discussing with your doctor,
i did go to my doctor, in jan did ecg whore a heart molter in feb results were noirmal i dont hv any disconfort last sat night 230 am my heart rate rose wen i was awake to 85 checked bp 145 85 5 min later 133 81 p of 73 to 85 middle night p... my p is usually 60 heart rate fluctuates lots 60 to 85 dont know why
wen i wake up, several times my pulse is dfrom 70 to 85 then it goes bk down to 60 65 then sun morning middle night p stays 80s 70s even awake
Again, I would talk to your doctor about having a sleep study done for apnea. The heart monitor that a person wears to track your heart rate wouldn't pick up what happens to you when you sleep. It may explain your symptoms.
WOW!! She has sum up my LIFE over the past 20years!!!!.. Here is my timeline.. 1. 15-21 football player -- HS and college 2. 22-30 work hard .. sun, fun, drinking.. living life,, running in the sun to sweat out the alcohol.. all that fun stuff.. never did DRUGS! caffinee YES 3. 31 at a bar-- had maybe 3 drinks-- HEART RACING - never experience before- went to ER calmly and they ran test.. DOC told me "ahh anexity" I wass like what they hell is that? He said all test were good. 4. During 31- 35 constant heart paps which always CHECKED OUT as SINUS TACY.. dizzy spells and coould NOT RUN ANYMORE IN THE HEAT. I would have to exercise INSIDE GYM but was fairly NORMAL INSIDE THE GYM-- HOWEVER i notice heart rate would some times race. 5. AGE 35 another BAD HEART PAP issues racing heart rate after working on a roof.. not even hard work just working , sweeping leafs,etc up and down ladder but HEART RATE woudl stay in the 130s.. WENT TO ER same old thing.. Then went to a cardilogist and ran all the TEST even did a STRESS TEST etc..etc.. his diag was mild dysautomnomia.. GET ON WELBURTRON, GET ON BETA BLOCKER, and lose 20lbs... - I did none of that 6. Again from 35 to 40s would experience these RACING HEART RATES stuff .. then started taking XANAX which OMG help a bunch, but that drug could be very danagers.. HOWEVEE from 35 to 40s -- I WOUDL AVOID THE SUN, AVOID being outside but for limimted time... if i had to go on a boat prepare.. drink , hydrate like crazy and would jsut SUFFER .. suffer .. suffer, suffer... 7. NOW I am 50-- yes i have tried BETA BLOCKERS that do help but noting really fixes.. I have even got mild phobias from having a bad ATTACKS.. THIS YOUNG LADY SAID STAIRS!! Omg she is so right! STAIRS was my thepry when i was 15 thru 28 I would run stairs to stay in shape, now i walk them SLOWLY only when i have too!! ITS HORRIBLE!! I see 300lb people walking in HOT SUN having fun ,, walking up stairs like normal.. now i suffer when i do it, and that creats a PHOBIA.. everything she said in this video was so on point!!!
I buy mine in Amazon the good one recommended by people who knows a lot about it , there some in power other in drops I’ve been drinking for more than 3 years but I am suffering from chronic dehydration my body doesn’t absorb water no matter what I do is not feeling thirsty my body is super dry inside and out. I love pickles juice it helps a lot on my restless legs syndrome
Thanks so much for sharing. Pickle juice is loaded with electrolytes as well as salt.