Just keep trying things, even things you've tried before. Sometimes something that didn't work before will suddenly start working. Best wishes for feeling better.
Love the advice about phones and social media 🙌 I also try to remind myself, I’ve been through a bad flare before and I’ve come out of it before too; it can really help at least keep your mindset in a realistic, but positive place when things can feel extra heavy. ❤
Very true. Reminding yourself that you have weathered this storm before and made it through is a great way to keep yourself focused. As tough as it is, and it certainly is very tough, but a good mind set can truly be a large part of the battle, It makes a big difference. Thanks for sharing.
Is it normal that my flare-ups only happen in the winter? It happened last year in January for 2.5 weeks (I didn't even know what dysautonomia was and thought I was dying). Then I felt myself again. Thought whatever it was wouldn't happen again... Then once again this January, it came back. It was even worse and lasted into March. I was diagnosed with mitral valve prolapse. Several people, including my ENT, said it sounds like Dysautonomia. Now I am always lightheaded and fatigued, but it's nothing compared to how horrible those flare-ups are.
Flare ups can happen in any season and frequently the reason is never discovered. Yes, flare ups are the worst, especially because they can come out of nowhere and last for a short or long amount of tine. The unpredictability of this disorder can create anxiety, understandably so. And dysautonomia is frequently a secondary illness, meaning a person is living with another issue and then develops dysautonomia secondary to that. I can't speak to whether that is what you are going through or not, just that it is a common scenario. We wish you the very best in managing your symptoms.
Awesome videos
Thank you for posting. 😊 I feel like my dysautonomia is progressing and am not sure what to do. I will take your advice, hopefully I can cope better.
Just keep trying things, even things you've tried before. Sometimes something that didn't work before will suddenly start working. Best wishes for feeling better.
Love the advice about phones and social media 🙌 I also try to remind myself, I’ve been through a bad flare before and I’ve come out of it before too; it can really help at least keep your mindset in a realistic, but positive place when things can feel extra heavy. ❤
Very true. Reminding yourself that you have weathered this storm before and made it through is a great way to keep yourself focused. As tough as it is, and it certainly is very tough, but a good mind set can truly be a large part of the battle, It makes a big difference. Thanks for sharing.
Is it normal that my flare-ups only happen in the winter? It happened last year in January for 2.5 weeks (I didn't even know what dysautonomia was and thought I was dying). Then I felt myself again. Thought whatever it was wouldn't happen again... Then once again this January, it came back. It was even worse and lasted into March. I was diagnosed with mitral valve prolapse. Several people, including my ENT, said it sounds like Dysautonomia. Now I am always lightheaded and fatigued, but it's nothing compared to how horrible those flare-ups are.
Flare ups can happen in any season and frequently the reason is never discovered. Yes, flare ups are the worst, especially because they can come out of nowhere and last for a short or long amount of tine. The unpredictability of this disorder can create anxiety, understandably so. And dysautonomia is frequently a secondary illness, meaning a person is living with another issue and then develops dysautonomia secondary to that. I can't speak to whether that is what you are going through or not, just that it is a common scenario. We wish you the very best in managing your symptoms.