One of my first symptoms of PD was my face…I didn’t even realize it until I was on my 3rd MDS and they all made reference to my face. I just thought as I aged it was “Resting B Face!” 🤣 I enjoy your videos! Thanks for being in this with us PD peeps!
I love your haircut, you're looking great today, Jeremy 👍 I worked with children for many years and was always complimented on my pleasant smile. Since Parkinson's entered my life I have lost that smile and am left with a blank look or even a frown at times. It distresses me greatly and I have to really work at remembering to smile.
I worry about the look in my eyes too. I think of it as 'the deer in the headlights' look. Like to wear my sunglasses in stores as a diversion, and if the shakes start up, I will stick my shaking hand in my pocket.
My #1 annoyance is people telling me to smile. A couple years back I got self conscious about it and then I started curling my lips in to try and hide this apparent angry/serious look I had. The other thing I do now...is when I'm out eating with someone, I'll end up hiding my one hand under the table while the other one does all the gesturing. lol BTW, I see nothing but friendliness in your eyes! :-)
The angry look is the worst for me. I've actually explained it to a couple close friends. I feel this is the one symptom that I can't control how other people perceive me, they would be able to see the shaking and the stiffness and know something's is wrong, but with the face they must think it's either me or them. As for other symptoms I let my freak fly. At this point my visual symptoms are mild and I hope I can keep this attitude going forward.
Hi Jeremy My worst experience was being accused of shoplifting at the drugstore. Other than that I just let my symptoms fly out in the open and scare people when I nearly fall
I don't know about hiding symptoms but I do try to minimise them; "Don't worry, I'll be okay" etc. I was embarrassed the other day when having asked for assistance at an airport, because I was having trouble walking , when the chair arrived 10 minutes later I realised the drugs had kicked in (or something) and I could walk normally. So I had tofake issues while I got in the chair.
I guess I am conscious of my face being stony, but at the same time, unless I actively tell it to move, it will not change. So, I’m trying to be aware of it. I think that’s a bit of a losing battle though. Maybe I can be the straight man, so to speak, in a comedy routine. 😂
Thank you JM I was diagnosed with parkinson in 2013 I live in Cameroon in French speaking Africa here parkinson's disease is really unknown and is still the victim of a lot of clichés tomorrow Sunday I try wearing sunglasses
As you know from my casino video I pretty much let my “freak flag fly” 🙃 but there have been times when I sit on my hands as a way to try and manage or tame my dyskinesia. When I have gait issues and there’s nowhere to sit and wait, there’s no hiding it…I’ve got some tricks to initiate a step and get going, but until my meds kick in, there’s no hiding my gait issues.
I know a man that constantly rubs and wrings his hands together during presentations. It appears to be a continuous movement of hands that is not nervousness. One example is he may reach for a book and then not pick it up. Do you think he has PD?
Looking good with clean shave! It’s hard to say for me. I think when my right arm doesn’t swing, that effects me mentally as well as when I get a little rigid..it’s tough..I’m always walking at work, and that has become a problem recently. It actually gave me anxiety, then that look comes on your face 😐😁😆🤣🤣🤣 ah well
Hey Jeremy, ya know I haven't figured out the technique yet for hiding my walk as it's stiff and slow. Oh my word I used to get that comment all the time about why are you so mad? I only get the tremors like you showed once in awhile. My main symptoms are apathy stiffness slowness cognitive
@@JeremyMcdonald I take the Sinemet too but I think it works more for my brain 🧠 chemistry it calms the mood I guess but it definitely does help with my walking
@Jeremy Mcdonald I was diagnosed in April and I'm scared. I have a bunch of questions. Can you recommend a place/way to talk with people like you? I appreciate your realism of day-to-day life. Good job. Regards Henry
@@henryjarm9544 Thx, Henry! I attend a bimonthly meeting with other YOPD patients and I’m has helped immensely. Would you be interested in something similar?
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I am stuck with the PD face, too. The thing that has saved me is the masks we have been wearing for the covid-virus.
I agree! That is the one thing about Covid that works in our favor.
One of my first symptoms of PD was my face…I didn’t even realize it until I was on my 3rd MDS and they all made reference to my face. I just thought as I aged it was “Resting B Face!” 🤣 I enjoy your videos! Thanks for being in this with us PD peeps!
Thx for watching, Dawn! Resting "b" face........Love it!!!
I love your haircut, you're looking great today, Jeremy 👍 I worked with children for many years and was always complimented on my pleasant smile. Since Parkinson's entered my life I have lost that smile and am left with a blank look or even a frown at times. It distresses me greatly and I have to really work at remembering to smile.
Agreed! I have to make a point to smile now. And thank you for the compliment on my haircut!
I worry about the look in my eyes too. I think of it as 'the deer in the headlights' look. Like to wear my sunglasses in stores as a diversion, and if the shakes start up, I will stick my shaking hand in my pocket.
The things we have to deal with. Thx for watching!
Hooking fingers in front pants pocket to hide hand tremors
I use that one, too!
My #1 annoyance is people telling me to smile. A couple years back I got self conscious about it and then I started curling my lips in to try and hide this apparent angry/serious look I had. The other thing I do now...is when I'm out eating with someone, I'll end up hiding my one hand under the table while the other one does all the gesturing. lol BTW, I see nothing but friendliness in your eyes! :-)
I work very hard at smiling and being expressive. I’m glad it shows! I use the hand under the table trick, too.
The angry look is the worst for me. I've actually explained it to a couple close friends. I feel this is the one symptom that I can't control how other people perceive me, they would be able to see the shaking and the stiffness and know something's is wrong, but with the face they must think it's either me or them. As for other symptoms I let my freak fly. At this point my visual symptoms are mild and I hope I can keep this attitude going forward.
Yeah, I hate being misread as well. Keep flying your flag, bro!
Hi Jeremy My worst experience was being accused of shoplifting at the drugstore. Other than that I just let my symptoms fly out in the open and scare people when I nearly fall
I don't know about hiding symptoms but I do try to minimise them; "Don't worry, I'll be okay" etc. I was embarrassed the other day when having asked for assistance at an airport, because I was having trouble walking , when the chair arrived 10 minutes later I realised the drugs had kicked in (or something) and I could walk normally. So I had tofake issues while I got in the chair.
I know the feeling! I recently took a flight and I was a little self conscious about being able to walk even though I had a transport chair.
I guess I am conscious of my face being stony, but at the same time, unless I actively tell it to move, it will not change. So, I’m trying to be aware of it. I think that’s a bit of a losing battle though. Maybe I can be the straight man, so to speak, in a comedy routine. 😂
There ya go! Thx for watching!
Thank you JM I was diagnosed with parkinson in 2013 I live in Cameroon in French speaking Africa here parkinson's disease is really unknown and is still the victim of a lot of clichés tomorrow Sunday I try wearing sunglasses
Thank you for watching! The sunglasses really do help.
As you know from my casino video I pretty much let my “freak flag fly” 🙃 but there have been times when I sit on my hands as a way to try and manage or tame my dyskinesia. When I have gait issues and there’s nowhere to sit and wait, there’s no hiding it…I’ve got some tricks to initiate a step and get going, but until my meds kick in, there’s no hiding my gait issues.
You are an example for all of us, Jenn! Thx for the honesty!
I never thought about it till someone said , smile! Why so serious?
I just thought people were misinterpreting fatigue for anger.
How far back the angry look comments for me ..... probably 20 years or more .
Great video as always , hope all is well on west coast .
Thx! It is so annoying when people say “What’s wrong?”.
I know a man that constantly rubs and wrings his hands together during presentations. It appears to be a continuous movement of hands that is not nervousness. One example is he may reach for a book and then not pick it up. Do you think he has PD?
There are medications that can cause this type of thing, so it’s impossible for me to say.
@@JeremyMcdonald Thank you for your response.
My right hand trembles a lot.
Mine too!
Looking good with clean shave! It’s hard to say for me. I think when my right arm doesn’t swing, that effects me mentally as well as when I get a little rigid..it’s tough..I’m always walking at work, and that has become a problem recently. It actually gave me anxiety, then that look comes on your face 😐😁😆🤣🤣🤣 ah well
If you don’t mind me asking, what line of work are you in?
@@JeremyMcdonald loss prevention 22 yrs so far
@@GoProGoalieUzi So a lot of walking, huh. That’s rough.
@@JeremyMcdonald yup! 8hrs a day.
@@GoProGoalieUzi How do you manage your symptoms?
I also see heavy brow , I went to hair salon today to add bangs and hair dresser convince not to cut bangs. LOL:
That makes sense. Thx for watching!
Hey Jeremy, ya know I haven't figured out the technique yet for hiding my walk as it's stiff and slow. Oh my word I used to get that comment all the time about why are you so mad? I only get the tremors like you showed once in awhile. My main symptoms are apathy stiffness slowness cognitive
Hi, Tory! Hiding stiffness is almost impossible, isn’t it? My brain just slows down so much when I’m “off “. That’s the main reason I take Sinemet.
@@JeremyMcdonald I take the Sinemet too but I think it works more for my brain 🧠 chemistry
it calms the mood I guess but it definitely does help with my walking
@@toryberch Sinemet makes walking almost impossible for me.
hi jeremy
Howdy, friend!
@@JeremyMcdonald
your email please
hello my friend.you look good😍👍👍👍
Thx! Where are you from?
Your face seems normal to me
Because I am medicated.
@Jeremy Mcdonald I was diagnosed in April and I'm scared. I have a bunch of questions. Can you recommend a place/way to talk with people like you? I appreciate your realism of day-to-day life. Good job. Regards Henry
@@henryjarm9544 Thx, Henry! I attend a bimonthly meeting with other YOPD patients and I’m has helped immensely. Would you be interested in something similar?
@Jeremy Mcdonald
Yes , I need more input on what I'm feeling. My neurologist says I'm in early stages but I disagree based on decline.