I list 22 symptoms of Parkinson’s disease as listed by the APDA, www.apdaparkinson.org/what-is... My Facebook: / jeremymcdonaldmusic My instagram: / jeremymac76
I am a woman 67 years old with Alzheimer’s and Parkinson’s. Parkinson’s is the one that I struggle with daily and different times of day trying to stay on top of symptoms before they get out of hand. Depression and high anxiety are overwhelming for me. Always tired. Thanks for sharing. I am listening to each video. Encouraging
Thank you for your video series! I am new to PD, diagnosed in April, and learning my way around the whole thing. Your videos have been exceptionally helpful. Pre-diagnosis, I had suffered from insomnia for many years, poor handwriting for about the last three, and in the year or so leading up to diagnosis arm rigidity became an issue, including an arm swing that vanished. Tremor in my left foot landed me in the neurologist’s office and she connected the dots! A strange disease, for sure. Your real-world insight offers something you don’t get from the medical folks- and I appreciate it!
I do something that I don't know if anyone else does, I have chronic insominia, I'll sleep for an hour and think I've been asleep for 6 hours, then not be able to get back to sleep. and sometimes I go into something like a trance, I do things and don't really realize I'm doing them. I've emptied the refrigerator and put my folded laundry in it. I've tried to sit in chairs that weren't there. One thing I do repeatedly is try to pull the switch covers off the wall with my fingers, often bending my fingernails back. My consciousness does flash to the surface and when it does I immediately put my head under cold water to become fully awake, I learned early not to lay down and try to sleep because it only feeds the episode. I've installed camera's so I can watch what I am doing to try and determine why I'm doing certain things. It's happening less often now, but still a concern.
Thanks for your video. It was very informative. I like how you spelled out all the different symptoms not everybody has the same for me. It’s speech, swallowing some more some tremors but now I find myself uncontrollably in the morning when I’m shaving rocking back-and-forth for no reason, but I enjoyed your show. I’ve been diagnosed with this disease since 2017 but I try to stay positive like you do and don’t let the Parkinson’s control me. I try to control the Parkinson’s. It doesn’t always work that way, but I do my best once again thanks for your video.
Hey brother. I share your videos with my beautiful wife of 40 years. Your first hand, non-clinical descriptions are powerful. You do the good work Peace
Depression for sure. I've done some hard core karate kicks in my sleep, but that doesn't happen anymore. Sweating, ugh! I am sweating right now as a matter of fact. 79 degrees outside, 71 in the house and I just showered 🙃Thank you for another great video and sharing with us!
Thanks Jeremy, so hard for me to explain to others what it feels like. If only would lose some weight. I will be sharing this with my friends and family.
For me it is tremor, rigidity and loss of sense of smell. The rigidity is the worst,as it causes the slow movement and walking issues. You mentioned something I always say, “I feel like an old man.” Great video.
Robin William's wife did a documentary on him. Have you seen it? It was a little tough seeing him deteriorate, but it was still worth watching. It was really nice seeing him in action and all the characters he portrayed. That's a great starter list. I feel like my personality almost improved because apathy ruled my life. Once I realized that was a symptom of PD, I actively made the effort to be more spontaneous, social, adventurous, etc. It's worked out really well. I've made new friends, traveled, and continue to spend more time doing thing that keep me from having my butt planted on the couch, which also helps minimize rigidity! Anyway, great topic and glad to see it's already helping people!
When you mentioned the sudden fatigue thing, it hit me right away because that was the first symptom I reported to my neuro. That was about 27 years ago, though. I was on the job inspecting some wiring (occupational safety and health busybody) behind a couple of desks. Suddenly this wave of fatigue came over me, so I worked my way back out to the chair, but it was so hard to get up. My first neuro never connected it with parkinson's, but it's happened from time to time since. That first incident was pretty intense, though.
I get extremely tired out of nowhere. I can close my eyes and be asleep, and it feels like a long time, but it's only a couple minutes. I do not drive more then 20 minutes away from my home, just to be safe. It's getting somewhat better as my meds are adjusted, and I've been "practicing" my range by driving a circuitous route at longer lengths of time. Which allowed me to go to my Moms for Christmas which is 20 minutes away. Small victories!
Slow thinking, for sure. I struggle just to come up with a sentence these days. My job requires me to write who, what, where and how narratives. I've been doing this for 24 years and over the last 3 it's been brutal.
I am now 63 was diagnosed 5 years ago. I noticed that I was losing my sense of smell about 2 or 3 years diagnosed, I would say now I have about 10% of it left. I had a tremor in my right hand but never imagined that I had PD. My wife would always ask why was I mad am always scowling and i had no clue it was the PD and frozen face. After 5 years its still bad. I have been on a new drug in testing since first if the year ,I was on Sinemet taking 11 pills a day. I m getting the rigidity now and that is sure no fun. Typing is a bad chore too.
Thanks so much - I an 81 and I have had PD 2 + years = my Jaw juggles ,have some difficulty walking, the worst thing is pain in my back in the morning, it puts me down ,takes till noon to get going - Im ok with PD its just the pain .
I’m gonna comment and I hope you give an advice. I always have a stiff neck I went to the dr and did mri nothing showed up so I just ignore it than the stiffness started to spread to my arms back and legs so I went to the dr again I was scared if it could be Ms ! So we did mri and spinal tap all came back clean ! The dr saying is stress but I don’t believe him because with the stiffness I have twitching and sometimes I feel like my body is shaking like vibration feeling for no reason ! So I started to google my symptoms and always Ms or parkinsons disease showed up ! How can I release my mind 😢
I would recommend seeing a movement disorder specialist. Sometimes, neurologists can miss things that an MDS has more experience diagnosing. Best wishes!
the Cognitive thing was my 1st symptom...I used to read 3 newspapers a day, and came to a time where I have to read 1 paragraph over and over and still not understand it
I have pretty much every symptom you have described. But funny enough not really anxiety or depression. I'm more of " it is what it is" type of guy. But i am curious if you get vivid dreams like i do? The dreams feel so real and out of this world. I'm not the imaginative type, but damn, maybe i should start writing movies!
I wish my partner would watch these. I try to explain symptoms, but it’s super hard when you’re in the middle of them. Maybe someday 🙃. Thank you for the content 🙂
I am a woman 67 years old with Alzheimer’s and Parkinson’s. Parkinson’s is the one that I struggle with daily and different times of day trying to stay on top of symptoms before they get out of hand. Depression and high anxiety are overwhelming for me. Always tired.
Thanks for sharing. I am listening to each video. Encouraging
Hearing from you made my day! Thanks, Dena!
Thank you for your video series! I am new to PD, diagnosed in April, and learning my way around the whole thing. Your videos have been exceptionally helpful. Pre-diagnosis, I had suffered from insomnia for many years, poor handwriting for about the last three, and in the year or so leading up to diagnosis arm rigidity became an issue, including an arm swing that vanished. Tremor in my left foot landed me in the neurologist’s office and she connected the dots! A strange disease, for sure. Your real-world insight offers something you don’t get from the medical folks- and I appreciate it!
Thank you so much, Ken! It’s always a pick me up when someone enjoys my perspective.
😅😅
I do something that I don't know if anyone else does, I have chronic insominia, I'll sleep for an hour and think I've been asleep for 6 hours, then not be able to get back to sleep. and sometimes I go into something like a trance, I do things and don't really realize I'm doing them. I've emptied the refrigerator and put my folded laundry in it. I've tried to sit in chairs that weren't there. One thing I do repeatedly is try to pull the switch covers off the wall with my fingers, often bending my fingernails back. My consciousness does flash to the surface and when it does I immediately put my head under cold water to become fully awake, I learned early not to lay down and try to sleep because it only feeds the episode. I've installed camera's so I can watch what I am doing to try and determine why I'm doing certain things. It's happening less often now, but still a concern.
That sounds frightening! I recommend talking to your doctor about this.
Thanks for your video. It was very informative. I like how you spelled out all the different symptoms not everybody has the same for me. It’s speech, swallowing some more some tremors but now I find myself uncontrollably in the morning when I’m shaving rocking back-and-forth for no reason, but I enjoyed your show. I’ve been diagnosed with this disease since 2017 but I try to stay positive like you do and don’t let the Parkinson’s control me. I try to control the Parkinson’s. It doesn’t always work that way, but I do my best once again thanks for your video.
This disease is an absolutely different animal for everyone! Thx for taking the time to reach out.😎
Thanks for publishing these videos, from Robert in Stockholm, Sweden (57 Yold, 10 years PD diagnosis), + good taste in music by the way!
Nice! I’m always happy to meet someone from across the pond!
Hey brother. I share your videos with my beautiful wife of 40 years. Your first hand, non-clinical descriptions are powerful.
You do the good work
Peace
Wow, thank you!
Another great video Jeremy. Can totally relate to Al those symptoms. 😊
Thx, Bill!
The gift that keeps on giving
Amen, brother!
Thank you for the video brother
You bet!
I really appreciate your sincerity and your explanations. You are a gift to us parkys!!
Awww! You just made my day, Nancy! Thank you!😊
Depression for sure. I've done some hard core karate kicks in my sleep, but that doesn't happen anymore. Sweating, ugh! I am sweating right now as a matter of fact. 79 degrees outside, 71 in the house and I just showered 🙃Thank you for another great video and sharing with us!
Thanks, this video is helping me explain me to my husband.
I’m glad I could help!
Thanks Jeremy, so hard for me to explain to others what it feels like. If only would lose some weight. I will be sharing this with my friends and family.
Please do! Thx, Tom!
For me it is tremor, rigidity and loss of sense of smell. The rigidity is the worst,as it causes the slow movement and walking issues. You mentioned something I always say, “I feel like an old man.” Great video.
I feel your pain! Keep fighting!
Robin William's wife did a documentary on him. Have you seen it? It was a little tough seeing him deteriorate, but it was still worth watching. It was really nice seeing him in action and all the characters he portrayed.
That's a great starter list. I feel like my personality almost improved because apathy ruled my life. Once I realized that was a symptom of PD, I actively made the effort to be more spontaneous, social, adventurous, etc. It's worked out really well. I've made new friends, traveled, and continue to spend more time doing thing that keep me from having my butt planted on the couch, which also helps minimize rigidity! Anyway, great topic and glad to see it's already helping people!
I love robin Williams! I will have to check out the documentary!
When you mentioned the sudden fatigue thing, it hit me right away because that was the first symptom I reported to my neuro. That was about 27 years ago, though. I was on the job inspecting some wiring (occupational safety and health busybody) behind a couple of desks. Suddenly this wave of fatigue came over me, so I worked my way back out to the chair, but it was so hard to get up. My first neuro never connected it with parkinson's, but it's happened from time to time since. That first incident was pretty intense, though.
It was really scary for me, too, the first time it happened.
I get extremely tired out of nowhere. I can close my eyes and be asleep, and it feels like a long time, but it's only a couple minutes. I do not drive more then 20 minutes away from my home, just to be safe. It's getting somewhat better as my meds are adjusted, and I've been "practicing" my range by driving a circuitous route at longer lengths of time. Which allowed me to go to my Moms for Christmas which is 20 minutes away. Small victories!
Slow thinking, for sure. I struggle just to come up with a sentence these days. My job requires me to write who, what, where and how narratives. I've been doing this for 24 years and over the last 3 it's been brutal.
Wow! That sounds overwhelming!
hello good friend
Sleep dekanisia, the worst of all PD conditions.
I agree. It has happened a few times to me as well.
I am now 63 was diagnosed 5 years ago. I noticed that I was losing my sense of smell about 2 or 3 years diagnosed, I would say now I have about 10% of it left. I had a tremor in my right hand but never imagined that I had PD. My wife would always ask why was I mad am always scowling and i had no clue it was the PD and frozen face. After 5 years its still bad. I have been on a new drug in testing since first if the year ,I was on Sinemet taking 11 pills a day. I m getting the rigidity now and that is sure no fun. Typing is a bad chore too.
Thanks so much - I an 81 and I have had PD 2 + years = my Jaw juggles ,have some difficulty walking, the worst thing is pain in my back in the morning, it puts me down ,takes till noon to get going - Im ok with PD its just the pain .
My jaw also wobbles a bit when I am “off”. I find it very annoying. Thx for watching 😎
I’m gonna comment and I hope you give an advice. I always have a stiff neck I went to the dr and did mri nothing showed up so I just ignore it than the stiffness started to spread to my arms back and legs so I went to the dr again I was scared if it could be Ms ! So we did mri and spinal tap all came back clean !
The dr saying is stress but I don’t believe him because with the stiffness I have twitching and sometimes I feel like my body is shaking like vibration feeling for no reason ! So I started to google my symptoms and always Ms or parkinsons disease showed up ! How can I release my mind 😢
I would recommend seeing a movement disorder specialist. Sometimes, neurologists can miss things that an MDS has more experience diagnosing. Best wishes!
the Cognitive thing was my 1st symptom...I used to read 3 newspapers a day, and came to a time where I have to read 1 paragraph over and over and still not understand it
I can relate.
I have pretty much every symptom you have described. But funny enough not really anxiety or depression. I'm more of " it is what it is" type of guy. But i am curious if you get vivid dreams like i do? The dreams feel so real and out of this world. I'm not the imaginative type, but damn, maybe i should start writing movies!
That describes my dreams to a T! My mind comes up with some crazy things.😂
on my part these are the problems I experiece
hands shaking / balance / fatigue / lost smell / memory
Thx, Mike!
Hi, I’m 42 and just diagnosed in July. Do meds stop freezing gait and tremors?
For me they do.
Great to hear. Freezing gait sucks. Love your channel
1:03 Apathy, big time. For me no desire to go to work, church, hobbies. Better now that I take 10 Rytary a day. Thanks for your channel.
Thx for watching and commenting!@@topper6738
Red light therapy has really helped my sleep with parkinsons
I have heard that it is effective for some people. Good for you!😁
Can you tell us which red light you purchased. There are so many scams out today
can men still father children naturally with parkinsons?
Yes!
I wish my partner would watch these. I try to explain symptoms, but it’s super hard when you’re in the middle of them. Maybe someday 🙃. Thank you for the content 🙂
That is a big reason why I make videos like this. To help explain what us Parkies are going through. Thx, Kendra!
@@JeremyMcdonald ❤️
Only 22 symptoms, are they sure!?!?!?!
That’s what I thought!