Although I have had no dyskinesia, this is definitely helpful to inform a conversation with my MDS about treatment options, which, so far I have not included CL. Very appropriate Bowie album back there. I think Ziggy Stardust and the Spiders from Mars might also fit into the topic somewhere.
Thanks Jmac! I think dyskinesia shows up in my gait at times. Neurologist says I have a dance step in my walk. I’ve only had one twitching fit-so far. I woke up with it one morning. Scared me. If my meds wear off before I fall asleep, my legs try to run off the bed.
Stay strong Jeremy, just saw a program on Swedish TV about the first test person of the new Levodopa pump model without the need for connecting it to your small intestine, it just goes directly under your skin. Much less complications it seems, but still in the evaluation phase. I myself am 10 years into my PD since diagnosis and take 2 * 100mg of Levodopa tablets every 4 hour, but have not yet experienced much complications with dyskinesia or anything else, knock on wood...
I was surprised I started getting some dyskinetic movements so quickly after being on Sinemet. I also wonder just how effective amantadine is. Anyhoo....good info as always!
My left hand n my left leg, they shake wether u got music on or not@!😂 it's a funk walk, but it's all good. Oh yah got my painting done lil red bird on branch..came out ok, right handed thank God, no shaken
![Chicken P - People's Favorite (Remix) [Feat. 42 Dugg] (Official Video)](http://i.ytimg.com/vi/a6Bn8FEtxmY/mqdefault.jpg)
":to not be able to do the things you used to do" ***** the most frustrating feature of PD **** 9:45 **** !!! so true !!!
Sad but true!
Love your posts- honest and engaging. Keep doing what you’re doing !
Will do! Thx, Sharon!
Although I have had no dyskinesia, this is definitely helpful to inform a conversation with my MDS about treatment options, which, so far I have not included CL. Very appropriate Bowie album back there. I think Ziggy Stardust and the Spiders from Mars might also fit into the topic somewhere.
I’m glad you liked the album! Glad I could help, Ken!
Thanks Jeremy! For me, thankfully, dyskinesia isn't too much of an issue at the moment. Seems t come on when I am happy or excited about something.
Hopefully your experience will be different than mine. Thx, David!
Thanks Jmac! I think dyskinesia shows up in my gait at times. Neurologist says I have a dance step in my walk. I’ve only had one twitching fit-so far. I woke up with it one morning. Scared me. If my meds wear off before I fall asleep, my legs try to run off the bed.
The first time I had dyskinesia it scared the hell out of me, too! I hate to say it, but you get used to it. thx, Karen!
Hang is there. Thank you for sharing.
Thx, Hannah!
Stay strong Jeremy, just saw a program on Swedish TV about the first test person of the new Levodopa pump model without the need for connecting it to your small intestine, it just goes directly under your skin. Much less complications it seems, but still in the evaluation phase. I myself am 10 years into my PD since diagnosis and take 2 * 100mg of Levodopa tablets every 4 hour, but have not yet experienced much complications with dyskinesia or anything else, knock on wood...
I’m very hopeful that the new l-dopa pump will offer at lease some relief. if I can afford it, that is! Thx, Robert!
Thank you so much for sharing this
Any time! I just gotta be honest about my situation. Thx for listening!😎
Jmac, I’m not totally up on dyskinesia yet, so found this helpful information
Glad to hear it, Jack! Hopefully, your journey will be a bit better than mine.
I was surprised I started getting some dyskinetic movements so quickly after being on Sinemet. I also wonder just how effective amantadine is. Anyhoo....good info as always!
I was surprised too, at how quickly you got dyskinesia. Maybe by reducing your dose you can get better results. Thx, Michele!
I feel you, Jeremy. I like to call it my sexy dance. Same as I call you Professor Longhair.
Professor Longhair! I love it!😂
thank U Jeremy
Great video! Good information! Thanks!
Glad it was helpful!
I have this in my legs yes I often look like some kind of human balloon being blown about
Great description!
Great video more please
More to come!
My left hand n my left leg, they shake wether u got music on or not@!😂 it's a funk walk, but it's all good. Oh yah got my painting done lil red bird on branch..came out ok, right handed thank God, no shaken
Good work on the painting! Could you email me a picture of it? jaymacpodcaster@gmail.com
Great video. Thank you for sharing 👍 GO David Bowie 👍
Glad you enjoyed it, Roger!
I dont give a shit about what other people think or say
Good for you, dude!
Dykenisia sucks..bad. But I would rather have it than be off. Thx JMac❤
Between a rock and a hard place!😟
I have severe dyskinesia. My doctor suggested Amantadine, but I am really worried about side effects. Did you experience any issues 11:50
I have experienced no issues whatsoever with amatadine, however some people do. Hope this helps!